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Through conversations with patient advocates Cristina Montoya and Lene Andersen, we learn that many of the emotions and discussions around starting (and staying on) a treatment are in fact the same for biosimilars and biologics. In the second of a two-part episode, Cristina and Lene discuss that feeling when you know your treatment is working, the possibility of adjusting medications, and ultimately, if they feel more comfortable with biosimilars. “One of the things that can be such a joyful part of the process is when it starts working. And all of a sudden, you can do this thing that you haven't been able to do for months. And that's really incredible,” says Lene Andersen. Among the highlights in this episode: 01:50- Lene and Cristina tell Zoe and Conner what injection day is like 04:21- Lene and Cristina talk about the side effects that may come on injection day 06:08- Lene and Cristina talk about the process of getting the timing of their injections correct 08:26- Zoe asks Lene and Cristina what they decide to bring up with their physician at appointments 11:01- Lene and Cristina share the moments of joy where they noticed the treatments were working 12:27- Conners asks Cristina if she is happy that she made the switch to biosimilars 13:05- Zoe asks Lene about her thoughts on biosimilars after hearing Cristina share her experience 16:03- Lene and Cristina remind the listener that the symptoms of arthritis are guaranteed, the side effects from the treatments vary Contact Our Hosts: Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org Conner Mertens, Patient Advocate and Community Outreach Manager at GHLF: cmertens@ghlf.org We'd love to hear what you think. Send your comments to BreakingDownBiosimilars@GHLF.orgSee omnystudio.com/listener for privacy information.
New biosimilars are coming to market and there is a lot of confusion among patients about what this will mean for their treatment plan. We called on patient advocates Cristina Montoya and Lene Andersen to hear directly about their experience on a biologic and biosimilar, respectively. In this first of a two-part episode, Cristina discusses starting a biosimilar and Lene shares about her experience on a biologic. We learn about the types of questions and concerns that go into treatment decisions, the nerves of starting a new treatment, and how support programs can help. "You know, let's give it a try,” says Cristina, when sharing with us what she said to her rheumatologist about trying her first biosimilar, “and I felt better knowing that I've been having this conversation for a long time.” Among the highlights in this episode: 03:26- Zoe and Conner kick off the episode by introducing special guests Lene Anderson and Cristina Montoya 04:27- Zoe asks Cristina and Lene about the first time they heard about biosimilars 06:01- Cristina tells Zoe about the change in her mindset about biosimilars 07:33- Conner and Zoe clarify and differentiate the terms biologics and biosimilars 07:52- Cristina walks us through the process of getting prescribed a biosimilar 10:59- Lene and Cristina discuss the use of patient support programs 12:26- Zoe and Conner pause to reflect on the conversation so far and to give three helpful tips 15:43- Cristina shares that despite initial hurdles, delivery of her biosimilars has been on schedule 16:43- Cristina shares the questions and concerns she had before starting biosimilars 19:04- Lene shares her questions and concerns about biosimilars Contact Our Hosts: Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org Conner Mertens, Patient Advocate and Community Outreach Manager at GHLF: cmertens@ghlf.org We'd love to hear what you think. Send your comments to BreakingDownBiosimilars@GHLF.orgSee omnystudio.com/listener for privacy information.
So what is metamodernity you may ask, and what does it have to do with systems thinking and cybernetics? Well, I recently had a chance to find out for myself during my conversation with Lene Rachel Andersen about her book Metamodernity: Meaning and Hope in a Complex World (Nordic Bildung, 2019). The short answer is metamodernity is a systems perspective; "it is about seeing the world as a process and not as fixed circumstances, a world in which there are not isolated phenomena but where everything is interconnected and interdependent..." (p. 94). The book's premise is that as our old understandings and the answers we get from them are insufficient, the ways we are used to reacting and behaving do not work well anymore either. Our cultural compass cannot contain and judge the world properly because the challenges we are facing were not a part of our world when we came of age and learned what the world was like. More than a cultural trend (or 'ism'), metamodernity is a meaning-making code—one that encompasses cultural codes from every epoch of the human experience. Andersen argues that "we need metamodern minds that can relate to the intimate indigenous, the existential premodern, the democratic & scientific modern, and the deconstructing postmodern simultaneously" (p. 128). It is only through this synthesis and adoption of the metamodern code, she stresses, that we'll have the capacity to make good decisions to guide the necessary changes to our current systems and institutions. The 'hyper-modern' alternative is not a good one; think: much an exaggerated version of what will turn out to be mere glimpses of what we're seeing right now—such as rise in authoritarianism, surveillance society, extreme inequality, and of course, climate change. Metamodernity provides us with a framework for understanding ourselves and our societies in a more complex way. Metamodernity is a way of strengthening local, national, continental, and global cultural heritage among all. It thus has the potential to dismantle the fear of losing one's culture as the global economy as well as the internet and exponential technologies are disrupting our current modes of societal organization and governance. Metamodernity: Meaning and Hope in a Complex World is thought-provoking and a wonderful complement to many of the books I've covered in previous episodes. I hope you enjoy listening to my conversation with Lene, and I invite you to check out the rest of her work at https://www.lenerachelandersen.com/. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/systems-and-cybernetics
So what is metamodernity you may ask, and what does it have to do with systems thinking and cybernetics? Well, I recently had a chance to find out for myself during my conversation with Lene Rachel Andersen about her book Metamodernity: Meaning and Hope in a Complex World (Nordic Bildung, 2019). The short answer is metamodernity is a systems perspective; "it is about seeing the world as a process and not as fixed circumstances, a world in which there are not isolated phenomena but where everything is interconnected and interdependent..." (p. 94). The book's premise is that as our old understandings and the answers we get from them are insufficient, the ways we are used to reacting and behaving do not work well anymore either. Our cultural compass cannot contain and judge the world properly because the challenges we are facing were not a part of our world when we came of age and learned what the world was like. More than a cultural trend (or 'ism'), metamodernity is a meaning-making code—one that encompasses cultural codes from every epoch of the human experience. Andersen argues that "we need metamodern minds that can relate to the intimate indigenous, the existential premodern, the democratic & scientific modern, and the deconstructing postmodern simultaneously" (p. 128). It is only through this synthesis and adoption of the metamodern code, she stresses, that we'll have the capacity to make good decisions to guide the necessary changes to our current systems and institutions. The 'hyper-modern' alternative is not a good one; think: much an exaggerated version of what will turn out to be mere glimpses of what we're seeing right now—such as rise in authoritarianism, surveillance society, extreme inequality, and of course, climate change. Metamodernity provides us with a framework for understanding ourselves and our societies in a more complex way. Metamodernity is a way of strengthening local, national, continental, and global cultural heritage among all. It thus has the potential to dismantle the fear of losing one's culture as the global economy as well as the internet and exponential technologies are disrupting our current modes of societal organization and governance. Metamodernity: Meaning and Hope in a Complex World is thought-provoking and a wonderful complement to many of the books I've covered in previous episodes. I hope you enjoy listening to my conversation with Lene, and I invite you to check out the rest of her work at https://www.lenerachelandersen.com/. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/politics-and-polemics
So what is metamodernity you may ask, and what does it have to do with systems thinking and cybernetics? Well, I recently had a chance to find out for myself during my conversation with Lene Rachel Andersen about her book Metamodernity: Meaning and Hope in a Complex World (Nordic Bildung, 2019). The short answer is metamodernity is a systems perspective; "it is about seeing the world as a process and not as fixed circumstances, a world in which there are not isolated phenomena but where everything is interconnected and interdependent..." (p. 94). The book's premise is that as our old understandings and the answers we get from them are insufficient, the ways we are used to reacting and behaving do not work well anymore either. Our cultural compass cannot contain and judge the world properly because the challenges we are facing were not a part of our world when we came of age and learned what the world was like. More than a cultural trend (or 'ism'), metamodernity is a meaning-making code—one that encompasses cultural codes from every epoch of the human experience. Andersen argues that "we need metamodern minds that can relate to the intimate indigenous, the existential premodern, the democratic & scientific modern, and the deconstructing postmodern simultaneously" (p. 128). It is only through this synthesis and adoption of the metamodern code, she stresses, that we'll have the capacity to make good decisions to guide the necessary changes to our current systems and institutions. The 'hyper-modern' alternative is not a good one; think: much an exaggerated version of what will turn out to be mere glimpses of what we're seeing right now—such as rise in authoritarianism, surveillance society, extreme inequality, and of course, climate change. Metamodernity provides us with a framework for understanding ourselves and our societies in a more complex way. Metamodernity is a way of strengthening local, national, continental, and global cultural heritage among all. It thus has the potential to dismantle the fear of losing one's culture as the global economy as well as the internet and exponential technologies are disrupting our current modes of societal organization and governance. Metamodernity: Meaning and Hope in a Complex World is thought-provoking and a wonderful complement to many of the books I've covered in previous episodes. I hope you enjoy listening to my conversation with Lene, and I invite you to check out the rest of her work at https://www.lenerachelandersen.com/. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/critical-theory
So what is metamodernity you may ask, and what does it have to do with systems thinking and cybernetics? Well, I recently had a chance to find out for myself during my conversation with Lene Rachel Andersen about her book Metamodernity: Meaning and Hope in a Complex World (Nordic Bildung, 2019). The short answer is metamodernity is a systems perspective; "it is about seeing the world as a process and not as fixed circumstances, a world in which there are not isolated phenomena but where everything is interconnected and interdependent..." (p. 94). The book's premise is that as our old understandings and the answers we get from them are insufficient, the ways we are used to reacting and behaving do not work well anymore either. Our cultural compass cannot contain and judge the world properly because the challenges we are facing were not a part of our world when we came of age and learned what the world was like. More than a cultural trend (or 'ism'), metamodernity is a meaning-making code—one that encompasses cultural codes from every epoch of the human experience. Andersen argues that "we need metamodern minds that can relate to the intimate indigenous, the existential premodern, the democratic & scientific modern, and the deconstructing postmodern simultaneously" (p. 128). It is only through this synthesis and adoption of the metamodern code, she stresses, that we'll have the capacity to make good decisions to guide the necessary changes to our current systems and institutions. The 'hyper-modern' alternative is not a good one; think: much an exaggerated version of what will turn out to be mere glimpses of what we're seeing right now—such as rise in authoritarianism, surveillance society, extreme inequality, and of course, climate change. Metamodernity provides us with a framework for understanding ourselves and our societies in a more complex way. Metamodernity is a way of strengthening local, national, continental, and global cultural heritage among all. It thus has the potential to dismantle the fear of losing one's culture as the global economy as well as the internet and exponential technologies are disrupting our current modes of societal organization and governance. Metamodernity: Meaning and Hope in a Complex World is thought-provoking and a wonderful complement to many of the books I've covered in previous episodes. I hope you enjoy listening to my conversation with Lene, and I invite you to check out the rest of her work at https://www.lenerachelandersen.com/. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/new-books-network
Episode at a glance:0:00 - 3:25: Lene's journey with juvenile idiopathic arthritis from diagnosis at age 9 to using a power wheelchair starting at age 16 to now3:25 - 10:40: What is ableism, and how does it relate to other forms of descrimination such as racism or sexism?10:40 - 17:51 - What is health privilege?17:51 - 24:30 - What is internalized ableism and how might it manifest in a person with chronic illness?24:30 - 30:00 - How to dismantle internalized ableism: disentangling worth from productivity, not being ashamed to use mobility aids or daily living aids30:00 - 34:50 - How Lene is not “wheelchair bound” but in fact a wheelchair is liberating and a helpful tool for everyday life34:50 - 41:00 - The social model of disability and how external barriers are often more limiting to quality of life than the disability itself41:00 - 46:50: The differences between living with an invisible versus visible disability46:50 - 48:10: TRIGGER WARNING (suicide): Brief discussion of assisted suicide as it relates to disability48:10 - 52:50 - How the tropes of disabled people in media (movies, books) are often incredibly over simplified52:50 - 55:30: What does it mean to have a “dynamic disability” with fluctuating symptoms?55:30 - endUniversal design versus accessibilitySpeaker Bios:Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode SponsorRheumatoid Arthritis Roadmap, a self-paced online course Cheryl created that teaches you how to confidently manage your physical, social and emotional life with rheumatoid arthritis. For full episode links and show notes:Go to the Arthritis Life website at: www.MyArthritisLife.Net
This final episode of the year encapsulates everything 2020 has been about. Poorva talks to writer and disability advocate Lene Andersen about the fear and anxiety of being someone who is high risk in the pandemic. They discuss the many ways in which our collective actions can not only be the difference between life or death for someone but also how that behavior impacts the day-to-day mental and physical wellbeing of those around us. They also talk about how to have a very merry Christmas when everything familiar and traditional feels so far away.
Another Christmas chat with Lene Andersen, on how to make the holidays special during Covid, why perfect Christmases are overrated, washi tape and house-lipstick.Links for Lene:The blog: https://theseatedview.com/Chronic Christmas Book: https://amzn.to/342wEGb Lipstick Effect: https://en.wikipedia.org/wiki/Lipstick_effect Have Brain Fog? How about a washi tape video https://www.youtube.com/watch?v=I45J8MV5bmgOr a planner / bullet journal video https://www.youtube.com/watch?v=2cCMUfgQ2tk Thanks to Fresh Kils for the intro/outro music: https://freshkils.bandcamp.com/music
Photo credit for Lene’s photo: David Govoni. Speaker bios:Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. Links to things discussed in this episode:Lene’s website: The Seated View https://theseatedview.com/Lene’s Twitter @TheSeateViewLene’s Facebook https://www.facebook.com/LeneAndersenwriter/Lene’s Instagram @TheSeatedViewCheryl on InstagramCheryl’s website: Arthritis LifeCheryl’s Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryls Handout: Cheryl’s Master Checklist for Managing RACheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic SupportThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Here's the show breakdown:· 01:50 – Lene shares her diagnosis story with Juvenile and Rheumatoid Arthritis· 02:32 – Lene shares some tips for managing the holidays with a chronic illness. · 05:00 – How Lene learned to embrace “imperfect moments” that create the family legends to make the holidays special.· 11:45 – Lene’s reflections about navigating the holiday season this year during COVID-19. · 20:55 – Lene shares her journey of creating her first book while battling major hurdles living with her Juvenile and Rheumatoid Arthritis.· 26:45 – Anyone battling chronic illness with big aspirations just take it one step at a time – remember: thinking and planning counts as moving in the right direction. · 31:40 – Lene gives insight about using her power wheelchair at age sixteen empowered her to live life to the fullest.· 36:25 – Lene discusses human right principles by understanding employment and accommodations for people with chronic illness.· 42:40 – Lene’s advice for newly diagnosed patients.
Lene Andersen and I talk about ALL THE THINGS! Corona, accessibility, doctor’s appointments and how much we appreciate Janitors for keeping us safe. You can find Lene’s info on her blog site: https://theseatedview.com/ Other Links to random stuff we talked about:Mother’s day history: https://www.bbc.com/news/stories-52589173Arrgh, I lost the link to the migraine app that statistically tracks your triggers to see if they really are triggers. But I did some googling, and I’m going to try this one: https://n1-headache.com/CBC Spark did a segment on a tracking app that’s coming to Canada: https://www.cbc.ca/radio/spark/montreal-ai-lab-develops-privacy-first-contact-tracing-app-to-track-covid-19-cases-1.5552857When doing a search for Cognitive Anchoring a whole bunch of stuff came up around Bias. But Cognitive Anchoring Bias was not what I was referring to. Here is the link to Heather Ordover’s site where she talks about the research around doing things like crocheting or doodling to help you pay attention: http://cognitiveanchoring.com/Cute Overload is gone!!! To be fair, I haven’t visited in forever. But look, there is an old inactive twitter account, I’m gonna scroll though it and squee: https://twitter.com/CuteOverload
The number of ICU beds in use is thankfully far below what Ontario's modelling had predicted. However, some people worry about who might get priority for life-saving treatment should those numbers surge, especially after a draft document around triage protocols was leaked to the media. Author and disability rights advocate Lene Andersen joins the podcast to air her concerns. Also, hosts Steve Paikin and John Michael McGrath discuss the latest news from the provincial and federal governments.
Den mest præcise måde at beskrive Lene Andersen på er som et leksikon læst op som lydbog. Eller Wikipedia på shuffle. Hver gang man tror, at pointen nærmer sig sin afslutning, åbner hun et nyt kapitel. Aksiomatisk møder Lene Andersen i et henkastet kontor på fjerde sal i hjertet af København. Bøger vokser ud fra borde, gulve og reoler som mos og svampe i en fugtig skovbund. Majoriteten har hun skrevet selv. Læs mere »
Lene Andersen and I talk about her new audio book Chronic Christmas: Surviving the Holidays with a Chronic Illness. Links:Chronic Christmas Audio Book: https://amzn.to/342wEGbLene’s Blog: https://theseatedview.com/Social Media:https://www.facebook.com/LeneAndersenwriter/https://www.instagram.com/theseatedview/https://twitter.com/TheSeatedView
Lene Andersen is a writer, health and disability advocate, photographer and chronic illness navigator who has had rheumatoid arthritis since she was four years old. She is the author of the book “Chronic Christmas: Surviving the Holidays With a Chronic Illness” and that’s exactly what we’re talking to her about today! She is extremely grateful to be given a second chance in life. Despite her illness, she feels the need to honor it and decided to help other people dealing with chronic illnesses as well as their family and friends through her books. In this episode, Lene emphasizes the importance of letting go of the perfectionist mindset. If not, you’ll lose the joy of Christmas – being with people you love, chilling and enjoying the moment. Learn to have a good time and enjoy yourself as you listen to today’s episode of FUMS! Enjoy and Happy Holidays! In this episode we discuss: The amazing book Chronic Christmas by Lene Anderson How she pursued her lifelong dream of becoming a writer What made her decide to write Chronic Christmas Christmas Advent Calendars and Gift Lists Tips and tricks when buying gifts online It’s the thought that counts not the price Suggestions about decorating Recipes and wines for Holiday Celebration “Life is made up of moments. The faster you move the more you miss.” Resources mentioned in this episode (clickable links): Chronic Christmas: Surviving the Holidays with a Chronic Illness FUMS Holiday Gift Guide Mindfulness for Beginners: Reclaiming the Present Moment and Your Life by Jon Kabat-Zinn Where to find Lene Anderson: Email her at lene@yourlifewithra.com Social Media: Facebook | Instagram | Twitter Your Life With RA Website **Today’s episode is brought to you by the FUMS Holiday Gift Guide – an annual guide including over 50 gift ideas for those with MS – and other chronic illnesses – and for those who love us! Forward a link to your friends and family and mark a few gifts you’d like!! And new this year: FUMS logo’ed merchandise. Let the world know how you feel about MS – loud and proud – share your FUMS attitude on teeshirts, sweatshirts, socks, a tote bag, your phone case – there are a ton of options. You can find theFUMS Holiday Gift Guide at FUMSnow.com/HolidayGiftGuide **Don’t forget to join us on the FUMS Facebook Page, on Twitter at FUMS and on Instagram at FUMS.now. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!!
Rebel Wisdom's David Fuller made the first documentary about Jordan Peterson in January, since then he has become one of the polarising public figures in the world, especially to those on the left of the political spectrum. In a new interview - and accompanying podcast, David Fuller and Alexander Beiner of Rebel Wisdom examine the crisis on the left, through the prism of Jordan Peterson's thought. Rebel Wisdom Discord Chat: https://discord.gg/rJtyfFV This film is part of a larger Rebel Wisdom series, "Jordan Peterson and the left, a new conversation". The other films are as follows. 'Jordan Peterson, censorship and the left', with novelist Tim Lott: https://youtu.be/yRmvzqc8BkU 'What can the left learn from Jordan Peterson', with Matthew Segall and Jesse Estrin from the California Institute of Integral Studies: https://youtu.be/jwMxmg83aUw 'Jordan Peterson and Integral Theory', with Jeff Salzman of the Daily Evolver: https://youtu.be/hfJbrS75_Gs 'Jordan Peterson and the patriarchy', with Lene Andersen: https://youtu.be/dvyo1w5Ff_A 'Beyond polarisation?' The left & Jordan Peterson, with Ronan Harrington, Alter Ego: https://youtu.be/t6Fwhs3HBGE If you enjoy our films, please consider helping us make more by funding us on Patreon: https://www.patreon.com/rebelwisdom
This week, I talk with photographer, writer/author, and general badass: Lene Andersen. As you will hear, she is one of the reasons that Chronic Sex started. She is a wonderful advocate, activist, and pal. Keep in mind that this episode was recorded over the summer of 2016. That said, we mention a contest for SYLK that has since run and ended. You can find links for Lene below: Real RA: It’s Not Just About the Jar: http://theseatedview.blogspot.com/2012/01/real-ra-its-not-just-about-jar.html Masturbating and RA: http://www.healthcentral.com/rheumatoid-arthritis/c/80106/179394/masturbating/?ap=420 The Seated View: http://theseatedview.blogspot.com Books: http://theseatedview.blogspot.com/p/blog-page.html Health Central: http://www.healthcentral.com/profiles/c/80106 Creaky Joints: https://creakyjoints.org/cj-author-lene-andersen/ Facebook: https://www.facebook.com/LeneAndersenwriter/ We mention the following: Come as you are: http://www.comeasyouare.com/ Good Clean Love lubes: https://goodcleanlove.com/product-category/personal-lubricants/ SYLK: http://sylkusa.com/ Sex furniture: https://www.liberator.com/ A page with arthritis-friendly sex positions: http://www.orthop.washington.edu/?q=patient-care/articles/arthritis/sex-and-arthritis.html
Sofie Lene Bak, Associate Professor at the Department of History at the University of Copenhagen, delivers a presentation in which she discusses the rescue of the Danish Jews during World War II at the October 43 Conference in Copenhagen on October 1, 2013. The presentation was moderated by writer and publisher Lene Andersen.