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Our guest this week is Nathan Simpson of Colorado Springs, CO an aircraft mission planner for the U.S. Air Force and father of nine children including one with tuberous sclerosis. Nathan and his wife, Stefanie, have been married for 19 years and are the proud parents of nine children ranging in age from 3 months to 17 years, including six year old Tevia, who has tuberous sclerosis. The family lives outside of Colorado Springs on a working farm, with all types of animals and Stefanie home schools the children. Nathan has also been a member of the SFN Matermind Group in Colorado. It's an enlightening, uplifting and inspiring story about a young couple, with a large family and a demonstrated spiritual dimension to their lives, all on this episode of the SFN Dad to Dad Podcast.Order your copy of the new 21CD book: Dads Raising Chidlren With Special Needs & Disabilities: A Guide For 21st Century Dads on Amazon: https://amzn.to/4tdvjcvJoin 21CD on the SFN U.S. Tour, a 30 day, 50 state, 60+ stop tour taking place from May 21 to June 21, 2026: to strengthen and grow the Special Fathers Network as well as give away 2,000 copies of our new book. Click here to see the full tour schedul and register for the venuw closest to you: https://21stcenturydads.org/us-tour-venue-details/ Show Notes - Email – simpson.nathan@pm.meTSA website - https://tuberous-sclerosis.org/information-and-support/what-is-tsc/Special Fathers Network –SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: “I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through.”SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Join the SFN U.S. Tour in one of 60+ locations all across the U.S. from May 21st to June 21st. Go to www.21stCenturyDads.org for additional informaiton. Please conisder hosting, co-hosting or simoly joining the tour near your home. Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/
Health Hero Show: The official Chemical Free Body Lifestyle Podcast
Episode #320: Caroline Chang, Supreme Court Rules Vaccines UnsafeHello Health Heroes!On this episode of Tim James Upgraded, I sit down with Caroline Chang, a mother on a mission who lost her daughter to multiple Sclerosis due to complications from a vaccine. This injury robbed her of 19 years of quality life and eventually died on December 5, 2022. The Supreme Court in 2011, in the Bruesewitz v. Wyeth LLC case, ruled that “Vaccines are Unavoidably Unsafe” in interpreting the 1986 National Childhood Vaccine Injury Act. This Supreme Court decision should unequivocally give everyone the right to a medical exemption from all vaccines as they have been judicially recognized as “Unavoidably Unsafe” and thus carrying potentially great risks, including death.Caroline also suggests that parents can get a medical exemption in all 50 states simply by asking your doctor to write a medical exemption due to the fact that the government (supreme court) has declared all vaccines unsafe and give the link to the court case to your doctor for review if they are unsure.“Doctor please write a medical exemption, I do not want products that the supreme court, our government has deemed “Unavoidably unsafe” injected into my child”.If you have a friend or loved one that is vaccine injured you can join Caroline's lawsuit at supremecourtrulingawareness.org.Enjoy the show!Love & Light,Coach TimP.S. If this helped you, please like & subscribe for more inspiration and education to help you become your own best doctor and help heal our world.P.P.S. Connect with Caroline: clchange@gmail.com, awake2onenessradio.org, supremecourtrulingawareness.org Tim's Favorite, HIGHEST QUALITY Health Product Recommendations:Best Detox & Nutrition Supplements: CLICK HEREBest Infrared Saunas & Healing Lamps: Tim's personal unit - Save $100 CLICK HEREWater Purification/Restructuring System: Book FREE Consult CLICK HEREBest Home Air Purification Unit : Tim's personal unit CLICK HEREBest Non Toxic Home Building Materials: CLICK HERE See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Terri Louise Brown, founder of Talks with MS joins us in this episode. We learn how to create a charity from scratch and discover the importance of community support for those living with multiple Sclerosis.Terri has relapse-remitting spinal MS and shares why she feels the power of community is essential, and her journey from an online group to creating a registered charity. We explore the inclusive Empowerment Awards, the importance of supportive educators, the use of technology for good, and why the Sunflower lanyard is a quiet voice for invisible disabilities.For support:Talks with MSThe Empowerment Awards If you are concerned about any of the subjects discussed in the podcast, please follow up and seek support from your healthcare practitioner. Hosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review. Find out more about the Sunflower by visiting the website hdsunflower.com Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website
In this episode, we review the high-yield topic of Tuberous Sclerosis from the Neurology section at Medbullets.comFollow Medbullets on social media:Facebook: www.facebook.com/medbulletsInstagram: www.instagram.com/medbulletsofficialTwitter: www.twitter.com/medbulletsLinkedin: https://www.linkedin.com/company/medbullets
Edison sempre trabalhou com serviço braçal na empresa: cavava buraco, instalava postes nas ruas…Trabalhar com material pesado sempre foi algo normal até o dia em que tentou erguer um vergalhão de ferro para jogar no caminhão e simplesmente não conseguiu.Um colega menor e mais franzino que ele levantou o material. Edison ficou parado, com a sensação clara de que havia algo errado com o seu corpo.Num primeiro momento, a desconfiança era de uma fraqueza qualquer, mas ele foi investigar.Vieram consultas, exames, ele começou a passar de um médico para o outro, e ninguém conseguia dizer o que ele tinha.A fraqueza, que começou no início de 2025, foi avançando, chegando aos dedos, até que ele perdeu totalmente o movimento dos dois braços.Sem diagnóstico, o dia a dia dele começou a ficar difícil. Coisas banais como coçar o nariz, segurar o celular, comer, tomar banho se tornaram tarefas que ele precisava de ajuda.Até que uma médica, com certa suspeita do que o Edison teria, decide buscar uma resposta para ele e sua família e fecha o diagnóstico: Esclerose Lateral Amiotrófica (ELA).O diagnóstico chegou quase um ano depois, em dezembro de 2025, com um misto de medo e alívio. Medo porque o prognóstico é difícil, mas o alívio de nomear aquela fraqueza e iniciar o tratamento correto ajuda Edison e a família a encarar o futuro.Hoje, Edison segue firme no tratamento, com muita fé e apoio da família e amigos. Às vezes o choro vem por ver todos se esforçarem para auxiliá-lo, mas a felicidade de tê-los em sua vida é insuperável.Mesmo com o diagnóstico, Edison escolheu o agora. Quando a cabeça corre para o futuro, ele puxa de volta: vive hoje. Um dia de cada vez.A ELA é uma doença rara que leva à paralisia de forma irreversível devido à degeneração e morte dos neurônios que controlam os músculos responsáveis por atividades diárias1,2.Se perceber sintomas persistentes, procure orientação médica, nem que seja para tirar dúvidas.A história do Edison foi contada em parceria com a @daiichisankyobrasil para a campanha @falesobreela. Este conteúdo tem caráter exclusivamente informativo e institucional, sem finalidade promocional ou comercial. Material destinado ao público geral.#FaleSobreELA #EscleroseLateralAmiotrófica #ELAAo clicar no link, você será direcionado para um site de terceiros, fora da gestão da Daiichi Sankyo Brasil.1. R. H. Brown e A. Al-Chalabi, “Amyotrophic Lateral Sclerosis,” N Engl J Med, 2017 2. Ministério da Saúde. Esclerose Lateral Amiotrófica. Disponível em: https://www.gov.br/saude/pt- br/assuntos/saude-de-a-a- z/e/ela. Acesso em: Fevereiro/2026
In this episode of "Aging with Grace," DG shares a heartfelt and educational look into lichen sclerosis, a condition that often goes undiagnosed and can cause significant suffering, especially in women over 40. Using a personal narrative, DG highlights the confusion, embarrassment, and challenges people face when seeking a diagnosis, as well as the relief proper treatment can bring. The episode dives into the autoimmune roots and symptoms of lichen sclerosis, touching on why awareness and open discussion are so important within our communities.Beyond the medical overview, DG provides useful background on the evolution of topical steroid treatments and their role in managing the condition. There's also a thoughtful exploration of the adrenal glands—how they work, affect stress, and might be indirectly linked to flare-ups. DG wraps up with practical self-care tips for adrenal health (like nutrition, sleep, and reducing stress), and encourages listeners to spread awareness and connect for support. If you're interested in health education, personal stories, and living well as you age, this episode is full of helpful info and encouragement.This is DG and I would love to hear from you!Connect with Aging With Grace®️ at agingwithgraceinfo.org
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
Stem cell science is reshaping treatment for complex disorders of the brain and spinal cord. Researchers develop cell based therapies to replace lost dopaminergic neurons in Parkinson's disease, fill gaps across spinal cord injuries, and calm seizure networks in refractory epilepsy by restoring the balance of inhibition and excitation. Teams test immune cell therapies against Epstein Barr virus infected B cells in multiple sclerosis and collaborate to move treatments across the blood brain barrier to reach diseased cells. Clinicians combine imaging in the operating room, surgical tools, and research on biological age and the pace of aging to understand disease and guide treatment. Patient advocates describe challenges and hopes for better options, and contemporary art reflects on perception in digital and physical worlds. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 40992]
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One of my brave patients shares her story with lichen sclerosis from being dismissed and told it was "all in her head" to finding proper treatment and relief.I'll never forget the day Jess walked into my office. By the time she found me, she'd already been dismissed by multiple doctors including specialists at what was supposed to be one of Chicago's premier women's health centers. They told her the severe pain and skin changes she was experiencing were "all in her head." Two different physicians suggested she needed a therapist, not medical treatment. Her depression history was weaponized against her, used as proof that she was just being hysterical.But Jess wasn't hysterical. She had advanced lichen sclerosis, and her vulvar skin was literally fusing together. Had she not found proper treatment, she would never have been able to have penetrative sex again. Even worse, without treatment, her risk of vulvar cancer would have climbed from 1% to 3-5%. Yet nobody had explained any of this to her. She'd been handed a tube of clobetasol and essentially told to figure it out herself which she did, on YouTube, learning the proper application technique that her doctors never bothered to teach her.In this episode, Jess bravely shares her journey living with lichen sclerosis—from the devastating experience of being gaslit by female physicians to finding relief through injectable steroids and surgical lysis of adhesions. We talk about how her symptoms worsened when she entered menopause in her mid-40s (common with autoimmune conditions), the complete loss of libido that left her sobbing when a doctor said "it's never coming back," and the body changes that made her feel like a "potato."But this conversation is about more than just lichen sclerosis. It's about the failures of our healthcare system, the importance of advocating for yourself even when you're furious and exhausted, and learning to accept yourself exactly where you're at. Jess's story will resonate with anyone who's ever been dismissed, anyone struggling with vulvar health issues, and anyone navigating the chaos of menopause while trying to hold onto their sense of self-worth.Highlights:Why most gynecologists miss lichen sclerosis (hint: they're not actually looking at your vulva).The proper way to apply clobetasol that doctors don't teach.How vaginismus became a catch-all diagnosis for any woman with painful sex.The We Do Not Care Club movement and redefining your value at midlife.What it means when influencers are the face of menopause marketing.If you've been dismissed or told your vulvar symptoms are "all in your head," this episode validates your experience and shows you're not alone. And if you're a clinician, this is your wake-up call we can no longer dismiss women's symptoms as psychological when real physical disease is staring us in the face. Please share this with someone who needs to hear that their symptoms are real and treatment is available.Get in Touch with Me: WebsiteInstagramYoutubeSubstack
In this episode, we review the high-yield topic of Tuberous Sclerosis from the Neurology section.Follow Medbullets on social media:Facebook: www.facebook.com/medbulletsInstagram: www.instagram.com/medbulletsofficialTwitter: www.twitter.com/medbullets
On this episode, Dr. Sadaf sits down for a special focus on the autoimmune-driven chronic inflammatory condition known as lichen sclerosis. Dr. Sadaf shares some insightful anecdotes on how she has encountered this problematic condition for the vulva as a practitioner. Get a break down of all the common symptoms: pain, itching, burning, and scarring of the genital skin, plus Dr. Sadaf discusses, in detail, how lichen sclerosis is diagnosed, managed, and treated.Disclaimer: Anything discussed on the show should not be taken as official medical advice. If you have any concerns about your health, please speak to your medical provider. If you have any questions about your religion, please ask your friendly neighborhood religious leader. It's the Muslim Sex Podcast because I just happen to be a Muslim woman who talks about sex.To learn more about Dr. Sadaf's practice and to become a patient visit DrSadaf.comLike and subscribe to our YouTube channel where you can watch all episodes of the podcast!Feel free to leave a review on Apple Podcasts and share the show!Follow us on Social Media...Instagram: DrSadafobgynTikTok: DrSadafobgyn
Anna shares her coming out journey, her feelings around imposter syndrome as a newly out queer person and the life-changing news she got shortly after coming out.
In today's episode, we'll discuss time-limited triplet therapy in relapsed or refractory CLL. Zanubrutinib, venetoclax and obinutuzumab induced deep remissions, and was well tolerated, even in very high-risk patients, and those with prior exposure to targeted therapies. After that: researchers chronicle the development of a patient-reported outcome measure for sclerosis associated with chronic GVHD—graft-versus-host disease. The new symptom scale—currently undergoing validation studies—may provide valuable information regarding severity, functional impact, and response to therapy. Finally, a study of changes in population dynamic rates that underlie inflammation-associated myeloid bias. The work demonstrates the use of mathematical models to deliver critical biological insights and uncover underlying mechanisms.Featured Articles:MRD-guided zanubrutinib, venetoclax, and obinutuzumab in relapsed CLL: primary end point analysis from the CLL2-BZAG trialDevelopment of the Lee Symptom Scale–Skin Sclerosis for chronic GVHD–associated sclerosisPopulation dynamics modeling reveals that myeloid bias involves both HSC differentiation and progenitor proliferation biases
Join us in praying for our Wheels for the World teams around the world! See our upcoming outreaches here:https://joniandfriends.org/calendar/category/wheels-for-the-world/ --------Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org. Find more encouragement on Instagram, TikTok, Facebook, and YouTube.
If you know a couple who has a disability in their marriage, follow God's prompting and pray for them. Like Ephesians 6 says: “Pray in the Spirit on every occasion.” -------- Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org Find more encouragement on Instagram, TikTok, Facebook, and YouTube.
02/02/25The Healthy Matters PodcastS04_E08 - The MS Journey: From Symptoms to SolutionsDid you know that 1,000,000 people in the U.S. alone are living with Multiple Sclerosis? We've all likely heard of MS before, and many of us may even know someone with the condition, but there are always a lot of questions when it comes to these types of diseases. Like, what's actually happening in the body? What are typical symptoms? And what help is there available to those living with it?Thankfully, we've got experts on hand to guide us through the basics. On Episode 8, we'll be joined by Dr. Ali AlMoamen (MB, BCh, BAO), a board-certified neurologist at Hennepin Healthcare and a specialist in autoimmune conditions like MS. He's helped many patients and their loved ones navigate this perplexing, and oftentimes scary condition, and has assisted them on their way to continuing to live a fulfilling life. On this show, we'll take a look at the root causes of the condition, the challenges in diagnosing it, the current and forthcoming treatment options, and how we all can help anyone living with MS. Please join us.Additional resources and information can be found on the National MS Society website.We're open to your comments or ideas for future shows!Email - healthymatters@hcmed.orgCall - 612-873-TALK (8255)Get a preview of upcoming shows on social media and find out more about our show at www.healthymatters.org.
LS is one of those secret conditions that doesn't get talked about because it affects a part of the body we try to keep especially private. And so people can suffer in secret as well. The steroids that are often prescribed are a short term relief at best, or completely ineffective at worst. Thankfully, we can work with herbs both internally and externally, to address symptoms as well as the root issue. And what is the root issue? Listen in to find out! If you would like support making custom herbal remedies to reduce your symptoms and guidance on how to correct your tissue state and foundational health, visit www.laureltreewellnessllc.com to learn more.Thank you so much for listening! And thank you to the listener who requested this episode!You can request a topic for the show by emailing laureltreewellness@gmail.com or calling 802-234-1177.If this episode blessed you, please share with others, and leave feedback on the app! I appreciate it. Have a great week!
Bowel function is not something most people want to bring up in casual conversation. The topic can be uncomfortable, especially when things aren't working as they should. But having a conversation about bowel function with your MS team is important in helping you manage your symptoms and improve your function. Join Dr. Iliescu to learn about how MS can affect digestion and ways to improve bowel function.
Although Alzheimer disease (AD) is the most common neurodegenerative cause of dementia, other etiologies can mimic the typical amnestic-predominant syndrome and medial temporal brain involvement. Neurologists should recognize potential mimics of AD for clinical decision-making and patient counseling. In this episode, Kait Nevel, MD, speaks with Vijay K. Ramanan, MD, PhD, an author of the article “LATE, Hippocampal Sclerosis, and Primary Age-related Tauopathy,” in the Continuum December 2024 Dementia issue. Dr. Nevel is a Continuum® Audio interviewer and a neurologist and neuro-oncologist at Indiana University School of Medicine in Indianapolis, Indiana. Dr. Ramanan is a consultant and assistant professor of neurology in the Division of Behavioral Neurology at Mayo Clinic College of Medicine and Science in Rochester, Minnesota. Additional Resources Read the article: LATE, Hippocampal Sclerosis, and Primary Age-related Tauopathy Subscribe to Continuum: shop.lww.com/Continuum Earn CME (available only to AAN members): continpub.com/AudioCME Continuum® Aloud (verbatim audio-book style recordings of articles available only to Continuum® subscribers): continpub.com/Aloud More about the Academy of Neurology: aan.com Social Media facebook.com/continuumcme @ContinuumAAN Host: IUneurodocmom Guest: @vijaykramanan Full episode transcript available here Dr Jones: This is Dr Lyle Jones, Editor-in-Chief of Continuum, the premier topic-based neurology clinical review and CME journal from the American Academy of Neurology. Thank you for joining us on Continuum Audio, which features conversations with Continuum 's guest editors and authors who are the leading experts in their fields. Subscribers to the Continuum Journal can read the full article or listen to verbatim recordings of the article and have access to exclusive interviews not featured on the podcast. Please visit the link in the episode notes for more information on the article, subscribing to the journal, and how to get CME. Dr Nevel: This is Dr Kait Nevel. Today I'm interviewing Dr Vijay Ramanan about his article he wrote with Dr Jonathan Graff-Radford on LATE hippocampal sclerosis and primary age-related tauopathy, which appears in the December 2024 Continuum issue on dementia. Welcome to the podcast. Vijay, can you please introduce yourself to the audience? Dr Ramanan: Thanks so much, Kait. I'm delighted to be here. So, I am a cognitive neurologist and neuroscientist at the Mayo Clinic in Rochester, Minnesota. I have roles in practice, education and research, but amongst those I see patients with cognitive disorders in the clinic. I help direct our Alzheimer's disease treatment clinic and also do research, including clinical trial involvement and some observational research on genetics and biomarkers related to Alzheimer's and similar disorders. Dr Nevel: Great, thanks for that. So, I'd like to start off by talking about why is LATE hippocampal sclerosis, why is this important for the neurologist practicing in clinic to know about these things? Dr Ramanan: That's a great question. So, if we take a step back, we know that degenerative diseases of the brain are really, really common, and they get more and more common as we get older. I think all neurologists, and in fact most clinicians and large swaths of the general public, are well aware of Alzheimer's disease, which is the most common degenerative cause of cognitive impairment in the population. But there are non-Alzheimer's degenerative diseases which can produce cognitive difficulties as well. And it's important to be aware of those disorders, of their specific presentations and their implications, in part because it's always a healthy thing when we can be as precise and confident about diagnosis and expectation with our patients as possible. I'll look to the analogy of a patient presenting with a myelopathy. As neurologists, we would all find it critical to clarify, is that myelopathy the result of a compressive spondylotic change? The result of an inflammatory disorder, of a neoplastic disorder, of an infectious disorder? It's critical to guide the patient and choose appropriate management options based on the cause of their syndrome. It would potentially harm the patient if you treated an infectious myelopathy with steroids or other immune-suppressant drugs. So, a similar principle holds in cognitive neurology. I accept with humility that we can never be 100% crystal clear certain about things in medicine, just because when you think you got it all figured out there's a curveball. But I want to get as close to that 100% as possible. And recognizing that disorders like LATE or PART can mimic the symptoms, sometimes even the imaging features of Alzheimer's disease. I think it's critical to have heightened awareness of those disorders, how they look, to be able to apply appropriate counseling and management options to patients. I think this becomes particularly critical as we move into an era of disease-specific, and sometimes disease-modifying, therapies, where applying a choice of a treatment option could have significant consequences to a patient if the thing you're treating isn't the thing that the drug is trying to accomplish. So, having awareness and spreading awareness about some of these non-AD causes of cognitive difficulty, I think, is a big mission in the field. Dr Nevel: Yeah, that makes total sense. And kind of leaning into this, you know, trying to differentiate between these different causes of late-life amnestic cognitive impairment. You know, I'll point out to the listeners today to please read your article, but in addition to reading your article, I'd like to note that there's a really nice table in your article, Table 6-1, where you kind of go through the different causes of amnestic cognitive impairment and the different features that better fit with diagnosis X, Y, or Z, because I think it's a really nice table to reference and really easy to look at and reference back to. But on that note, what is your typical approach when you're seeing a patient in clinic, have a new referral for an older patient presenting with a predominantly progressive amnestic-type features? Dr Ramanan: Excellent question. And this is one that I think has relevance not just in a subspecialty memory clinic, but to all the clinicians who help to diagnose and manage cognitive disorders, including in primary care and general neurology and others. One principle that I think it's helpful to keep in our minds is that in cognitive neurology, no one data point takes precedence over all the others. We have a variety of information that we can gather from history, from exam, from imaging, from fluid biomarkers. And really the fun, the challenge, the reward is in piercing together that information. It's almost like being a lawyer and compiling the evidence, having possibilities on your list and raising and lowering those possibilities to get as close to the truth as you can. So, for patients with a cognitive syndrome, I think the first plank is in defining that syndrome. As you mentioned, if I'm seeing someone with a progressive amnestic-predominant syndrome, I first want to make sure, are we talking about the same thing, the patient, the care partner, and I? Can often be helpful to ask them for some examples of what they see, because sometimes what patients may report as memory troubles may in fact reflect cognitive difficult in other parts of our mental functioning. For example, executive functioning or naming of objects. And so helpful to clarify that in the history to get a sense of the intensity and the pace of change over time, and then to pair that with a good general neurologic exam and some type of standardized assessment of their cognitive functioning. At the Mayo Clinic, where partial to the short test of mental status. There are other ways to accomplish that, such as with an MMSE or a MoCA. If I understand that the syndrome is a progressive amnestic disorder, Alzheimer's disease is the most common cause of that presentation in older adults, it deserves to be on my differential diagnosis. But there might be some other features in the story that could raise or lower those mimics on my list. So, in patients who are, say, older than the age of seventy five, disorders like LATE or PART start to rise higher on the likelihood for me, in particular if I know that their clinical course has been more slow brewing, gradually evolving. And again, most degenerative disorders we expect to evolve not over days or weeks, but over many months to many years. But in comparison with Alzheimer's disease, patients with LATE or with PART would be expected to have a little more slow change where maybe year over year they or their care partners really aren't noticing big declines. Their daily function is relatively spare. There might not be as much involvement into other non-memory cognitive domains. So, these are some of the pieces of the story that can help to perhaps isolate those other non-AD disorders on the list as being more likely and then integrating, as a next level, diagnostic testing, which helps you to rule in and rule out or support those different causes. So, for example, with LATE there can be often out of proportion to the clinical picture, out of proportion to what you see on the rest of their imaging or other profiles, very predominant hippocampal and medial temporal volume loss. And so that can be a clue in the right setting that you may not be dealing with Alzheimer's disease or pure Alzheimer's disease, but that this other entity is there. So, in the big picture, I would say being systematic, recognizing that multiple data points being put together helps you get to that confident cause or etiology of the syndrome. And in particular, taking a step back and thinking about big picture factors like age and course to help you order those elements of the differential, whether AD or otherwise. Dr Nevel: Great, thanks. In your article, you talk about different imaging modalities that can be used, as you mentioned, you know, just another piece of the puzzle, if you will, to try and put together what may be going on with the patient, and recognizing that some of these imaging techniques are imaging is special imaging, not available in a lot of places. You know, and maybe other diagnostic type tests that could be helpful in differentiating between these different disorders may not be available, you know, for the general neurologist practicing in the community. So, what do you suggest to the general neurologist maybe practicing somewhere where they don't have access to some of these ancillary tests that could assist with a diagnosis? Dr Ramanan: Critical question. And here I think there's not likely to be one single answer. As with most things, awareness and recognition is a good place to start. So, some of those clues that I mentioned earlier about the clinical course, about the age, the- we're talking about clinical setting there. So, comfort with and understanding that the clinical setting can help you to be more confident about, for example, LATE or PART being present in contrast to AD. That's important information. It deserves to be part of the discussion. It doesn't necessarily need other tests to have value on its own. A second piece is that tests help, in some cases, to rule in and rule out causes for cognitive difficulty. As part of a standard cognitive evaluation, we would all be interested in getting some blood tests to look for thyroid dysfunction or vitamin deficiencies. Some type of structural head imaging to rule out big strokes, tumors, bleeds. Head CT can accomplish some of that perspective. It's ideal if a brain MRI can be obtained, but again, keeping in mind, what's the primary goal of that assessment? It's to assess structure. Occasionally you can get even deeper clues into a syndrome from the MRI. For example, that very profound hippocampal or medial temporal atrophy. So, increasing awareness amongst clinicians throughout our communities to be able to recognize that change and put it in the context of what they see in other brain regions that can be affected by Alzheimer's or related disorders. For example, the parietal regions can be helpful. And recall that MRI can also be helpful in assessing for chronic cerebrovascular disease changes. This is another mimic that shows up in that table that you mentioned. And so multiple purposes can be satisfied by single tests. Now, you're absolutely right that there are additional test modalities that, perhaps in a subspecialty clinic at an academic medical center, we're very used to relying on and finding great value on; for example, glucose PET scans or sometimes fluid biomarkers from the blood or from the spinal fluid. And these are not always as widely available throughout our communities. Part of the challenge for all of us as a field is therefore to take the expertise that we have gathered in more subspecialty settings and tertiary care settings and translate and disseminate that out into our communities where we need to take care of patients. That's part of the challenge. The other challenge is in continued tool and technological development. There's a lot of optimism in our field that the availability of blood-based biomarkers relevant for Alzheimer's disease may play a part in helping to address some of the disparities in resource and access to care. You can imagine that doing a blood test to give you some high-quality information, there are going to be less barriers to doing that in many settings compared to thinking about a lumbar puncture or a PET scan, both in terms of cost to the patient as well as infrastructure to the clinicians and the care team. So I'm optimistic about a lot of those changes. In the meantime, I think there are, through both clinical evaluation and some basic testing including structural head imaging, there are clues that can help navigate these possibilities. Dr Nevel: So, let's say you have your patient in clinic, you've done your evaluation, maybe gotten some ancillary testing, and you highly suspect either LATE or PART. How do you counsel those patients and their families? How do you manage those patients moving forward who you really suspect don't have, you know, some sort of co-pathology? Dr Ramanan: So, it's- I think it's helpful to remember when patients are coming to see us, either they or the people around them have noticed an issue. And very likely it's an issue that's been brewing for a little while. I think it can be very valuable, very helpful for patients to have answers. What's the cause for the issue? Once you have answers, even if sometimes those answers are not the most welcome things or the things that you'd be looking forward to, answers give you an opportunity to grab hold of what's going on, to define a game plan. So, understanding there is a degenerative disease there, it sheds light on why that individual had had memory symptoms over the years. And it gives them a general expectation that over time on an individualized basis, but generally expecting gradually over many months to many years, there may be some worsening in some of those symptoms helps them to plan and helps them to make the adaptations that are a-ok and great to make to just help you to do the things you want to do. As much as I can, I try to put the focus here closer to how we would view things like high blood pressure or high cholesterol. Those are also chronic issues that tend to be more common as we get older, tend to get more troublesome as we get older. The goal is, know what you're dealing with and take the combination of lifestyle modifications, adaptations in your day-to-day and maybe medications to keep them as mild and as slow-changing as possible. With something like LATE, we don't have specific medication therapies to help support cognitive functioning at this time. There's a lot of hope that with additional research we will have those therapies. But even so, I think it's an important moment to emphasize some of those good healthy lifestyle habits. Staying mentally, socially and physically active, getting a good night's sleep, eating a healthy, balanced diet, keeping good control of vascular risk factors, all of that is critical to keeping the brain healthy, keeping the degenerative disease as mild and slow-brewing as possible. And understanding what some of the symptoms to expect could be. So, with LATE the syndrome tends to be very memory-predominant. There may be some trouble with maybe naming of objects or perhaps recall of emotionally salient historical knowledge, world events, but you're not expecting, at least over the short to medium term, huge intervening on other cognitive functioning. And so that can be helpful for patients to understand. So, the hope is once you know what what you're dealing with, you understand that the disease can look different from person to person. Having a general map of what to expect and what you can do to keep it in check, I think, is the goal. Dr Nevel: I agree with you 100% that it really can be helpful even if we can't, quote unquote, fix it, that for people, family, the patient have a name for what they have and kind of have some sort of idea of what to expect in the future. And they may come in thinking that they have Alzheimer's or something like that. And then, so, to get that information that this is going to be a little different, we expect this to go a little bit differently then it would if you had a diagnosis of Alzheimer's, I can see how that would be really helpful for people. Dr Ramanan: I completely agree. And here's another challenge for us in the field when most patients have heard about Alzheimer's disease and many have perhaps even heard of dementia with Lewy bodies or frontotemporal dementia, but may not have heard of things like LATE. And they're not always easy to go online or find books that talk about these things. Having a name for it and being able to pair that with patient-friendly information is really critical. I see our appointments where we're sharing those diagnosis and making initial game plans as an initial foray into that process. Dr Nevel: Yeah, absolutely. What is the greatest inequity or disparity that you see in taking care of patients with progressive amnestic cognitive impairment? Dr Ramanan: Yeah, great question. I think two big things come to mind. The first, you hinted at very well earlier that there are disparities in access to care, access to diagnostic testing, access to specialists and expertise throughout our communities. If we want diagnostics and therapeutics to be broadly applicable, they do need to be broadly available. And that's a big challenge for us as a field to work to address those disparities. There's not going to be one single cause or contributor to those iniquities, but as a field, I'm heartened to see thought and investment into trying to better address those. Another big weakness, and this is not just limited to cognitive neurology, it's a challenge throughout neurology, is that too many of our research studies are lacking in diversity. And that impacts our biological and pathophysiological understanding of these disorders. It also impacts our counseling and management. Again, if we want a new drug treatment to be broadly applicable throughout all of the patients that we take care of, we need to have data which guides how we apply those treatments. And so again, I'm heartened. This is a big challenge. It's a long standing challenge. It will take deep and long standing committed efforts to reverse. But I'm heartened that there are efforts in the field to broaden clinical trial enrollment, broaden observational research enrollment, and again, broaden access to tools and expertise. As a neurologist, I got into this field because I want to help people, use my expertise and my training to help people. These are steps that we can take to make sure that that help is broadly applicable throughout everybody in our communities. Dr Nevel: Yeah, absolutely. So, kind of segueing from you mentioning research and how we can better include patients in research. What do you think the next breakthrough is going to be? What do you think the next big thing is going to be in these disorders? What do we still need to learn? Dr Ramanan: There's a lot. I think for LATE and PART, the development of specific biomarkers would be top of the agenda. Now, biomarkers are by their nature imperfect. Even with Alzheimer's disease, where in comparison, we know quite a lot. We have a variety of imaging and fluid biomarkers that we can use to support or rule out a diagnosis. There are nuances in how you interpret those biomarkers. Patients can have signs of amyloid plaques in their brain and have completely normal cognition. They may be at risk for developing cognitive trouble due to Alzheimer's disease in the future, but it's one piece of the puzzle. Patients can have the changes of Alzheimer's disease amyloid plaques and tau tangles in the brain. We can confirm that through biomarkers. But at the end of the day, their cognitive syndrome might be driven by something else. Maybe it's Lewy body disease, maybe it's LATE, maybe it's a combination of factors. So, integrating and interpreting those biomarkers is challenging. But I do think, again, from the standpoint of giving patients answers with a diagnosis, having those biomarkers is really critical to just kind of closing the loop. It will also be critical to have those biomarkers as we're assessing for treatment response. So, for example, patients who may have coexistent Alzheimer's disease and LATE, I don't think we know the answer fully as to how likely they are to benefit from, say, newer antiamyloid monoclonal antibodies for Alzheimer's disease in the setting of that second pathology. So, wouldn't it be great if, similar to an oncologic setting where you engage in a treatment and then you're tracking two or three or four plasma measures and you're tracking tumor size with imaging, if we had this multimodal ability to track neurodegenerative pathology through biomarkers? I think that'll be a critical next step. And so, filling out that for non-Alzheimer's diseases, including LATE and PART, I think is item number one on the agenda. Dr Nevel: Wonderful, thank you so much. I really appreciate you taking the time to chat with me today about your article. I really enjoyed our conversation, certainly learned a lot. Dr Ramanan: Thank you so much, Kait. Love talking with you. And again, it was an honor to write this article. I hope it's helpful to many out in the field who take care of patients with cognitive issues. Dr Nevel: Yeah, I think it will be. So again, today I'm interviewing Dr Vijay Ramanan about his article that he wrote with Dr Jonathan Graff-Radford on LATE hippocampal sclerosis and primary age-related tauopathy, which appears in the most recent issue of Continuum on dementia. Be sure to check out Continuum audio episodes from this and other issues. And thank you, Vijay, and thank you to our listeners for joining us today. Dr Monteith: This is Dr Teshamae Monteith, associate editor of Continuum Audio. If you've enjoyed this episode, you'll love the journal, which is full of in-depth and clinically relevant information important for neurology practitioners. Use this link in the episode notes to learn more and subscribe. AAN members, you can get CME for listening to this interview by completing the evaluation at continpub.com/AudioCME. Thank you for listening to Continuum Audio.
All Joking Aside - Featuring Marco Gamboa
Cognition refers to a person's ability to perform high-level brain functions and includes things like thinking, learning, remembering, and understanding. Up to 65% of individuals with MS will develop cognitive dysfunction over the course of their disease. For some people, cognitive dysfunction can be very mild and not easily noticed by those around them. For others, it can be significant and make it difficult to work or take care of things at home. Join Dr. Ernest Aucone, PhD to learn about cognitive dysfunction and how to recognize and manage this symptom of MS.
Send us a textWhether you're feeling "tired and wired" or struggling with persistent menopause symptoms issues, this episode provides valuable information to help you take control of your health journey. Tune in to discover how supporting your adrenal function can be a game-changer in addressing multiple health concerns and reclaiming your energy and clarity.Support the showDive Deeper On Your Journey: ☆ Book a complimentary connection call with Selin for your hormone health & weight loss goals here.☆ Let's connect on Instagram!☆ Do you or a loved one have painful periods or PMS? The Painless Period Guide will help!☆ This is for the girlies who love to colour!: Purchase the gorgeous Goddess Affirmation Colouring book here.
This episode delves into a lesser-known yet critical heart condition that affects millions, particularly older adults. Dr. Kota Reddy breaks down the condition's causes, symptoms, and its significant link to cardiovascular risks like heart attacks and coronary artery disease. Through compelling patient stories, listeners will discover how lifestyle changes, such as diet modifications and regular exercise, can slow or even halt progression, delaying the need for invasive procedures. With insights into diagnosis, risk factors, and prevention strategies, this episode equips listeners with practical tools to take charge of their heart health.
Depression is a serious condition, and if left untreated, can lead to chronic depression. Depression is a medical disorder that can be mild, severe, or even life threatening. Not only can it affect a person's quality of life, it can interfere with relationships, jobs, and a person's overall health. Join Dr. Ashley Head to learn how to recognize depression, as well as ways to manage this symptom of MS.
A multiple sclerosis relapse is when inflammation in the brain and/or spinal cord causes a new symptom or worsening of an old symptom. Symptoms with a relapse can range from mild to severe enough to interfere with one's ability to function. Join Dr. Carolyn Bevan to learn what causes relapses, how to recognize them, as well as management strategies.
Navigating autism in today's neurodivergent world involves understanding the unique experiences and challenges faced by individuals on the autism spectrum. As society increasingly recognizes the value of neurodiversity, it becomes essential to foster environments that not only support but also celebrate these differences. This journey requires a multifaceted approach that includes advocating for inclusive policies, promoting awareness and acceptance, and creating supportive communities that empower autistic individuals to thrive. By shifting perspectives from viewing autism as a deficit to recognizing it as a distinct way of being, we can cultivate a culture that values diverse neurotypes and enhances the quality of life for all, ultimately leading to a more equitable society. In this episode, I am joined by Michael Villines, The Autoimmune Coach. His mission is to help people with multiple Sclerosis have the confidence to live. Michael delves into things he wished he had growing up feeling different, alcohol as a coping mechanism and advice to get started on the life you want to live. He also sheds more light on the books that helped him become who he was, the journey of building your own business, and things that made him feel less underrepresented. This guide aims to illuminate what autism looks like, providing insights on how to effectively support, advocate for, and empower children with autism. By fostering environments that celebrate neurodiversity, we can promote awareness and acceptance while emphasizing that we are all in this together. This journey encourages us to shift our perspectives from viewing autism as a deficit to recognizing it as a distinct way of being, ultimately enhancing the quality of life for all and cultivating a more equitable society where every individual is seen and valued. Tune in to learn more about how to support people living with autism and other related syndromes in this neurodivergent world. Timestamps [03:37] About Michael Villines [06:38] What Michael felt different growing up with autism [09:24] Things Michael wished he had growing up feeling different [16:12] Shedding people and things that aren't healthy [23:15] Alcohol as a coping mechanism [28:10] Advice to get started on the life you want to live [33:20] Books that helped Michael to become who he was [36:46] Things that made Michael feel less underrepresented [41:27] The journey of building your own business [45:09] Michael's final remarks Notable Quotes “The world is not as kind as it needs to be.” “The thing that kids don't realize is, it goes a long way just to be nice to people.” “Love isn't what you say but what you do.” “Get comfortable with yourself and really work on yourself.” “Our brains work in different ways, but it doesn't mean that we are not still valuable or there aren't gifts that we have.” “Learn to learn about each person and take each person individually, don't put people in boxes.” Resources Mentioned: The Book; Walking with God through Pain and Suffering - Timothy Keller: https://www.amazon.com/Walking-God-through-Pain-Suffering/dp/1594634408 Connect With Michael Villines: Website: https://www.lifewave.com/theautoimmunecoach Instagram: https://www.instagram.com/michaeljvillines/?ref=axnnroyd&hl=am-et Facebook: https://www.facebook.com/michael.villines/?locale=af_ZA LinkedIn: https://www.linkedin.com/in/michelle-villines-36160b105/ Connect with me: Gabi Garland Website: http://www.gabigarland.com/ Instagram: https://www.instagram.com/gabi.garland/
Join us today as we welcome Kaley Z, a resilience expert and mind-body wellness coach who has triumphed over a debilitating chronic illness to live a vibrant, symptom-free life. Kaley will share her inspiring story of overcoming relapsing remitting Multiple Sclerosis (MS), and how she has dedicated her life to helping others unlock their natural healing capacity.Through her business, Kaley empowers clients to break free from the grip of chronic illness by understanding their unique "health blueprint," releasing limiting "illness identities," and tapping into the body's innate ability to repair and regenerate. Her work is a testament to the human spirit's capacity for resilience, hope, and transformation.In this conversation, Kaley will share:Her personal journey of self-discovery and healingThe scientifically-backed mind-body techniques that transformed her healthThe role of faith and spirituality in her journeyHer dreams for helping others achieve vibrant health and wellnessThe impact of her story on those living with chronic illnessTune in to be inspired by Kaley's courage, resilience, and passion for empowering others to thrive.Kaley Z is a resilience expert and mind-body wellness coach who has defied the odds of a debilitating chronic illness to live a vibrant, symptom-free life. Diagnosed with relapsing remitting Multiple Sclerosis (MS) as a child, she spent years navigating the challenges of her condition, from blindness and paralysis to debilitating fatigue and pain. Yet, she never lost sight of her determination to thrive.Through her own journey of self-discovery and exploration of scientifically-backed mind-body techniques, Kaley Z successfully eliminated disease from her body and has remained symptom-free for over a decade. Today, she dedicates her life to empowering others to unlock their own natural healing capacity and break free from the grip of chronic illness.As a coach and guide, Kaley Z helps clients understand their unique "health blueprint," release limiting "illness identities," and tap into the body's innate ability to repair and regenerate. Her work is a testament to the human spirit's capacity for resilience, hope, and transformation.https://kaleyz.com/ https://www.facebook.com/KaleyZeitounihttps://www.linkedin.com/in/kaley-zeitouni-17150234/ https://www.instagram.com/kaleyzeitouniofficial/Become a supporter of this podcast: https://www.spreaker.com/podcast/i-am-refocused-radio--2671113/support.
Headaches can be common in people with MS, with between 20-70% of people with MS experiencing tension headaches, migraine headaches, and/or cluster headaches. Triggers for MS headaches include stress, muscle tension, or certain foods. However, a range of medications and alternative treatments may help relieve the symptoms. Join Dr. Zughayer to learn about preventive measures and treatment options.
In this episode, Callie and Rachel explore lichen sclerosis, a chronic skin condition typically affecting the genital and anal areas. Learn about its symptoms, diagnosis, and impact on pelvic health. Discover why pelvic floor physical therapy providers can be a valuable tool in treating this as well as ways to alleviate symptoms and improve quality of life.
Wellness is about physical, emotional, spiritual, and psychological well-being. Staying well with MS means not just keeping on top of your MS, but also taking charge of your general health. Staying well may require you to take a holistic look at the many areas of life that can affect your health — your work environment, relationships, diet, sleep patterns, and more. Join Dr. Suma Shah to learn about complementary and alternative therapies that may be beneficial for people with MS.
The VA ranks as one of the nation's leaders in health research. Thousands of studies are conducted at VA medical centers, outpatient clinics, and nursing homes each year. This research has significantly contributed to advancements in health care for Veterans and other Americans from every walk of life. Join Dr. Lindsey Wooliscroft to learn about MS research studies taking place in the VA to improve our understanding of MS and improve the care of people with this chronic disease.
More than 70 per cent of truck drivers said they had a near miss on average once a week, according to a study by Monash University.
God never pours out his power on the proud and resourceful. He only gives grace at our points of brokenness. God is in the business of breaking proud hearts yet healing wounded hearts. -------- Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org. Find more encouragement on Instagram, TikTok, Facebook, and YouTube.
Today's guest is Dr. Duncan Moore from the Northwestern Scleroderma Center. Our topic today is classification and diagnosis of scleroderma. There is a classification point system that rheumatologists can use to help determine diagnosis. Dr. Moore talks through the classification system. We discuss the differences between diffuse cutaneous systemic Sclerosis and limited cutaneous systemic Sclerosis. We end with Dr. Moore and the scleroderma center offering to coordinate with your local rheumatologist to help with diagnosis and treatment.1. The 2008 paper by Koenig et al. which describes various rates of progression from Raynaud's phenomenon to systemic sclerosis. Free to access. [https://onlinelibrary.wiley.com/doi/epdf/10.1002/art.24038]2. The 2013 ACR/EULAR Classification Criteria for Systemic Sclerosis. Free to access. [https://ard.bmj.com/content/72/11/1747.long]
On days when you feel like you're drowning, pray a short, but sweet prayer: “Lord, save me!” That prayer is short and simple, but it's packed with honesty and humility.-------- Thank you for listening! Your support of Joni and Friends helps make this show possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Become part of the global movement today at www.joniandfriends.org Find more encouragement on Instagram, TikTok, Facebook, and YouTube.
This episode covers tuberous sclerosis.Written notes can be found at https://zerotofinals.com/medicine/neurology/tuberoussclerosis/ or in the neurology section of the 2nd edition of the Zero to Finals medicine book.The audio in the episode was expertly edited by Harry Watchman.
Listen as Dr. London Smith (.com) and his producer Cameron discuss Tuberous Sclerosis with special guest Tom Tobaggan (Alex Bozinovic). Sponsored by Caldera + Lab (use code "jockdoc" to get 20% off!). Not so boring! https://calderalab.com/pages/podcast-special-offer?show=Jock+Doc&utm_medium=podcast&utm_source=JocDoc https://www.patreon.com/join/jockdocpodcast Hosts: London Smith, Cameron Clark. Guest: Alex Bozinovic. Produced by: Dylan Walker Created by: London Smith
This week Dr. Daniel Correa speaks with author and humorist Samantha Irby. Samantha shares her story growing up with her mother who lived with multiple sclerosis (MS) and her experience as a caregiver at a young age. Next Dr. Correa welcomes back medical expert, Dr. Riley Bove, an associate professor of neurology at the University of California, San Francisco, and neurologist at UCSF Multiple Sclerosis Center. Dr. Bove discusses the association between MS and other autoimmune conditions and offers suggestions on how to navigate explaining the condition to children. Additional Resources Learn more about MS Brain & Life Books series: Navigating Life with Multiple Sclerosis Brain & Life: Telling Young Children a Loved One Has a Neurologic Disorder Brain & Life: Hiking the Appalachian Trail for Multiple Sclerosis Penguin Random House: Samantha Irby Other Brain & Life Podcast Episodes on Multiple Sclerosis Courtney Platt Dances Through Life with Multiple Sclerosis Colors of Multiple Sclerosis with Artist Lindsey Holcomb Voices from the Multiple Sclerosis Community Nancy Davis' Race to Erase Multiple Sclerosis Chef Mariana Orozco on Multiple Sclerosis and the Healing Power of Food La Chef Mariana Orozco habla sobre Esclerosis Múltiple y sobre el poder curativo de la comida We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Guests: Penguin Random House: Samantha Irby; @penguinrandom (Twitter) @penguinrandomhouse (Instagram); Dr. Riley Bove @BoveRiley (Twitter) Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
This episode covers systemic sclerosis.Written notes can be found at https://zerotofinals.com/medicine/rheumatology/systemicsclerosis/ or in the rheumatology section of the 2nd edition of the Zero to Finals medicine book.The audio in the episode was expertly edited by Harry Watchman.
Therapist Emily Cade joins the show to talk about dating with chronic illness or injury.Emily Cade TherapyThis show is part of the Spreaker Prime Network, if you are interested in advertising on this podcast, contact us at https://www.spreaker.com/show/5601514/advertisement
Our guest this week is Tony Brescia of West Dundee, IL who owns a Hallmark store, is the father of two including a son with Tuberous Sclerosis, and more recently is raising funds to create Project ALEX Communities, a unique residential community for adults with intellectual disabilities. Tony and his wife, Joelle, have been married for 34 years and are the proud parents of two boys: Jason (28) and Alex (32) who was born with Tuberous Sclerosis, a rare genetic disease that causes non-cancerous (benign) tumors to grow in the brain and several areas of the body, including the spinal cord, nerves, eyes, lung, heart, kidneys, and skin. Tony owns the Joelle's Hallmark Shop in Clarendon Hills. Joelle and Tony also have a vision for building Project ALEX Communities. ALEX stands for Adult, Living EXperience and the mission is "establishing a safe (residential) living environment and create a community atmosphere for adults with intellectual / developmental disabilities and individuals without disabilities."We also learn about the role the Tubular Sclerosis Association, Canine Companions for Independence of Greater Chicagoland and Ten Pin Bowlers Special Olympics Bowling have played in Alex's life.Tony also talks passionately about the role the SFN Mastermind Group has played in his life and being among a small group of like-minded special needs dads who meet on a weekly basis for fellowship and camaraderie.It's a touching and uplifting story about faith and family all on this episode of the SFN Dad to Dad Podcast.Show Links:Email – tbrescia@earthlink.netWebsite - https://projalex.org/Website – http://www.joelleshallmark.com/LinkedIn – https://www.linkedin.com/in/tony-brescia-3302875/Tubular Sclerosis Association - https://tuberous-sclerosis.org/ Canine Companions for Independence - https://canine.org/ SFN Dads Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channe... Please support the SFN. Click here to donate: https://21stcenturydads.org/do...Find out about Horizon Therapeutics – Science and Compassion Working Together To Transform Lives. https://www.horizontherapeutics.com/Special Fathers Network: https://21stcenturydads.org/Discover more about the Dads Honor Ride 2023 - https://21stcenturydads.org/2023-dads-honor-ride/
When Lisa was diagnosed with Multiple Sclerosis (MS), she felt as if her future had been cancelled and she grieved for what she had lost. She began a journey to learn to be patient and to navigate an unexpected path. Serving as the senior medical director for a national care management company, allows Lisa to experience creativity, continued work with vulnerable populations and improved stress management. She shares the following nuggets of life wisdom: look for the silver linings strive to raise awareness for access to healthcare push for change find life force in each person tags: Dr, Lisa, Doggett, family, physician, author, Up, the, Down, Escalator, Medicine, Motherhood, Multiple, Sclerosis, story, stories, that, empower, empowering, empowerment, inspire, inspiring, inspiration, encourage, encouraging, encouragement, hope, light, podcast, Sean, https://storiesthatempower.com
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