Podcasts about community outreach manager

Hala Zainal, Senior Programs and Community Outreach Manager, at the National Multiple Sclerosis Society (NMSS) explains the impressive support that the NMSS provides for the community of the UAE, through both medical assistance and mental health assessments with their newly established helpline: 800677. Listen to #Pulse95Radio in the UAE by tuning in on your radio (95.00 FM) or online on our website: www.pulse95radio.com ************************ Follow us on Social. www.facebook.com/pulse95radio www.twitter.com/pulse95radio www.instagram.com/pulse95radio

Edgar Euan, Community Outreach Manager, Diversity Collective for World AIDS Day Erik Roberts, President of the Ventura Black Sheep Motorcycle Ministry invites you to their 5th Annual Toy Run to benefit the Lighthouse Women and Children's Shelter Maria Alcantar, Founder of the VC Expo is helping our senior community with her Christmas Santa Senior Drive Young Quicks gives back with his annual Toy Giveaway December 19th at Huemene High School. --- Support this podcast: https://podcasters.spotify.com/pod/show/alynettework/support

In this special Halloween episode of The Health Advocates, we're diving into some spine-chilling experiences in the health care system. Our guests open up about their scariest moments — from misdiagnoses and panic attacks in MRI machines to doctors dismissing their pain. But it's not all fright! They share how these tough experiences helped them become stronger self-advocates, turning fear into resilience. Among the highlights in this episode: 01:34: Shelley Fritz, Patient-Centered Engagement and Insights Manager at GHLF, describes her experience on Easter weekend in 2017, when she started experiencing severe chest pain and difficulty breathing 06:47: Shelley shares that she was diagnosed with bilateral pulmonary embolisms (blood clots in both lungs) — a potentially fatal condition and recalls how a nurse, unaware of her diagnosis, carelessly lifted her, worsening her pain. Shelley had to advocate for different pain management, eventually receiving proper treatment after several hours 11:26: Sarah Shaw, Associate Director of Diversity, Equity, Inclusion & Community Outreach at GHLF, shares how her doctor's frustration with her lack of progress led to a shocking comment, labeling her a “problem patient.” Sarah felt blamed for not responding to treatments but decided to find a new doctor who would advocate for her and work collaboratively on her treatment plan 15:23: Sarah reflects on her positive experience with her new doctor, who reassures her that “the treatment failed you, not the other way around,” a supportive approach that transformed her journey, emphasizing the importance of finding a doctor who listens and treats patients as partners in their care 18:53: Zoe Rothblatt, Director of Community Outreach at GHLF, shares her own story of feeling dismissed by a dermatologist who kept her waiting for over two hours, only to rush through the appointment and offer unsolicited advice on her autoimmune treatment, making her feel uncomfortable and disregarded 21:59: Zoe reflects on the lessons learned: the importance of trusting her instincts, finding providers who respect her time, and ensuring she feels comfortable speaking up during appointments 26:44: JP Summers, Senior Patient Advocate and Community Outreach Manager at GHLF, describes the panic attack she experienced while in the MRI machine due to severe claustrophobia. This led her to advocate for an open MRI despite initial insurance denials, highlighting how crucial it is to speak up for her needs in challenging health care situations 32:54: Zoe thanks JP for sharing her story, acknowledging the anxiety diagnostic tests can trigger for chronic illness patients, and underscores the importance of knowing there are often alternatives available 36:19: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Director of Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

In this episode of Faith in Elections, Adam Phillips talks with Patricia Ruiz-Cantu, an evangelical leader from Milwaukee, who discusses how her Christian faith inspires her to promote civic engagement within the Latino community. Reflecting on her journey as an immigrant and her conversion from Catholic to Evangelical, she explains challenges Latino voters face, including misinformation. Patricia highlights her initiative, Renaces (You Are Reborn), which focuses on civics education for Latino Evangelicals, and underscores the importance of bringing joy and optimism to election work, even in divisive times. Guest Bio: Patricia Ruiz-Cantu, as a Community Outreach Manager at the City of Milwaukee, has over eight years of experience in developing and implementing innovative programs and initiatives that foster authentic human connections and civic engagement among diverse communities. She collaborates with various stakeholders, including faith leaders, media outlets, non-profit organizations, and elected officials, to build trust, collaboration, and awareness on various issues and opportunities that impact the city and its residents. In addition to her role as a Community Outreach Manager, Patricia also serves as an Election Commissioner and a Certified Coach, Trainer, and Speaker with The John Maxwell Team. These roles allow her to leverage her skills in conflict resolution, workshop facilitation, and leadership development to empower individuals and groups to achieve their goals and create positive change. As a bilingual and bicultural professional in Spanish and English, she has a unique perspective and ability to communicate effectively across cultures and contexts.Find out more about Civics 101 and Renaces  by following Patricia on X @Pruizcantu. The identity of “evangelical” contains a wide range of people from across America and the world. We believe they have an important role to play in America's Diverse Democracy. In collaboration with Christianity Today, Interfaith America has launched a new essay series that equips Christians to live faithfully and neighborly in a world we don't control. Featuring leaders in the evangelical tradition—like John Inazu, Karen Swallow Prior, Matthew Kaemingk, and Russell Moore—this series offers thoughtful and diverse perspectives on how Christians can build bridges across differences in their communities. To read the series and learn more about our work with evangelicals, visit Evangelicals in a Diverse Democracy.Visit Interfaith America to learn more about the organization and our podcast. Learn more about how you can support your community this election season with Interfaith America's Faith in Elections Playbook. Follow us on Twitter and Instagram to stay up to date with new episodes, interfaith stories, and our programs.

Mallory Taylor is the Community Outreach Manager at Suicide Prevention Resource Center

For this week's Community Focus, I took a trip to check out the latest exhibition at The Toledo Museum of Art — which exclusively features the work of artists over the age of 55. Community Outreach Manager Jessica Mack joins me to explain.

Teresa Valenzuela, Community Outreach Manager for the San Diego Futures Foundation, and Irina Prokhorova, Lead Digital Navigator for the Foundation, discuss the Foundation's mission and its Digital Bridge Initiative.

"Hometown Heroes" from Family Life Hannah Farley does outreach to encourage people who are 45 and older to get checked for early signs of cancer. In this Family Life News interview, she says some residents of rural areas have a bias which prevents them from wanting to get cancer screening.  Farley finds though that it is productive to reinterpret the question as a "stewardship of your body" and to encourage you to ponder how the people around you rely on your presence -- "you are a gift to your family". In this week's edition of "Hometown Heroes", you will hear about success stories through this program across its three decades. The CSP team can help individuals get screened, even if they don't have current health insurance or feel there are other barriers. Farley is the Community Outreach Manager for the Cancer Screening Program in the Finger Lakes region of New York.  

Hannah Farley is the Community Outreach Manager for the University of Rochester Cancer Services Program of the Finger Lakes Region. For more information on available services, visit their website. Family Life's "Hometown Heroes" interviews intriguing people from throughout Pennsylvania and New York who carry out inspirational, life-changing work. Tap the Hometown Heroes icon for more of these features.  

In the third episode of our three-part series on polymyalgia rheumatica (PMR), we are joined by JP Summers, Patient Advocate and Community Outreach Manager at GHLF. JP shares what she's learned from people living with PMR about managing their symptoms and advocating for themselves at doctor's appointments. JP and Zoe Rothblatt, Associate Director of Community Outreach at GHLF, talk about the challenges of discussing health issues with loved ones but emphasize how these conversations can provide crucial support in diagnosing and managing PMR. This episode was made possible with support from Sanofi. Among the highlights in this episode: 01:06: The Health Advocates share their personal highlights from the year in advocacy, emphasizing the importance and impact of patient advocacy, particularly through the 50-State Network 03:05: JP Summers shares her insights on advocating for oneself, and the importance of patients taking immediate action upon noticing symptoms and being proactive about their health 06:51: JP discusses how to navigate the stigma that can come with a chronic illness like PMR and advises on how to effectively ask for help from family, friends, and health care providers 08:30: JP talks about the broader aspects of advocacy, including engaging with legislators and stakeholders 12:20: JP reflects on her conversations with PMR patients, highlighting the importance of community support and the power of sharing one's story as a form of advocacy 22:44: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Sheryl Dingman, Volunteer Coordinator and Community Outreach Manager visits and tells what the Fox Cities Victim Crisis Response Team brings to our communities. Then Nicole Stockman talks about all of the events going on during Veterans Week with Veterans Services at UWGB. Guests: Sheryl Dingman, Nicole Stockman

Trellis Outreach Manager, Jetta Wiedemeier says open enrollment for Medicare is underway and seniors have until December 7, 2023, to make choices or plan changes.  She says Trellis can help navigate the process and offers a helpline number, 800-333-2433.

Host Adam Robison interviews Kenley Holman, the Community Outreach Manager for My T By Design, Therapeutic Art Studio in Northwest Arkansas. My T By Design uses art as a therapeutic tool to help strengthen mental wellness for people of all ages and backgrounds, including at-risk youth, veterans, and seniors. Kenley outlines their mission to help […]

Host Adam Robison interviews Kenley Holman, the Community Outreach Manager for My T By Design, Therapeutic Art Studio in Northwest Arkansas. My T By Design uses art as a therapeutic tool to help strengthen mental wellness for people of all ages and backgrounds, including at-risk youth, veterans, and seniors. Kenley outlines their mission to help […] The post The Healing Power of Art and Community appeared first on Business RadioX ®.

In this episode of the Nine to Thrive HR podcast, host Cindi Koetzle welcomes guests Diana Ralston, Executive Director of Can'd Aid and Bailey Saunders, Community Outreach Manager of the Journeys Group. They discuss how Can'd Aid, a national nonprofit, partners with organizations like Journeys to facilitate various volunteer initiatives that allow employees to give back to their communities in different ways. The podcast highlights the impact of these initiatives on employees, the communities they serve, and the connection between corporate values and volunteerism. They also emphasize the importance of employees witnessing the immediate impact of their efforts. The episode showcases how corporate partnerships with organizations like Can'd Aid can make a significant difference and foster a culture of giving back.

Conner Mertens, Patient Advocate and Community Outreach Manager at GHLF, joins our host Zoe Rothblatt, Associate Director of Community Outreach, as guest co-host to cover the latest news on the FDA approved RSV shot for infants, a new pandemic preparedness office, insurance coverage for mental health, and results from our latest quick poll. For the main topic, Conner and Zoe discuss active health care bills around the states, updates on the Safe Step Act and HELP Copays Act and how our 50-State Network is advocating. “It really is powerful when you get to walk into a lawmaker's office with a patient who has a very personal story, and that the laws that these folks are passing can really impact their lives. And to hear from those lawmakers that it's the first time they've spoken directly to a patient about how these bills that they're working on will change their day to day is a wonderful thing that we get to see firsthand,” says Conner. Among the highlights in this episode: 00:41: Zoe and Conner discuss the recent approval of an RSV preventative shot for infants and vulnerable toddlers, and the FDA's considerations of approving a vaccine for pregnant women and adults 60 and older 02:18: Our hosts discuss the creation of a new White House office, the Office of Pandemic Preparedness and Response Policy (OPPR), headed by Dr. Paul Friedrichs, and its mandate for managing biological threats and pandemic preparedness 03:46: Zoe and Conner examine the Biden administration's move to improve insurance coverage of mental health treatments and the implications of the Mental Health Parity and Addiction Equity Act 05:46: Our hosts discuss the results from a recent GHLF COVID-19 Patient Support Program quick poll related to GHLF's HEROES program, which educates stylists about skin and scalp conditions, and the positive reception it has received 07:09: Conner shares his experience from a recent advocacy road trip across the West Coast, highlighting the importance of patient perspectives in health care legislation 08:32: Zoe and Conner talk about active health care legislation in various states, mainly focusing on accumulator bills and non-medical switching bans 10:21: Our hosts review federal health policy, specifically the Safe Step Act aiming to reduce step therapy, which has recently gained traction in the House and Senate 12:25: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Happy Independence Day and welcome to the show. Bonnie joins Evan in studio this morning for the July 4th edition of the program. Trish, Community Outreach Manager from The Martin County Sheriffs Office pays a visit with tips for July 4th, Randy Segal has his Space Report, and Phil stops by with a special July 4th Top 10 List.

Episode #47. Host Jonathan Hughes and co-host Julie Shields-Rutyna first interview Community Outreach Manager for MEFA Savings Programs, Adam Hartwell, about 529 Day and the Attainable Savings Plan. Then they go to the MEFA Mailbag to discuss financial aid and early decision. Finally, Jonathan talks with the Program Director of Veterans Upward Bound at Suffolk University, Nick Charrette. They discuss the program, their new tutoring aspect, as well as Nick's journey with college and the Army.

**Get Each Episode One Week Early on Patreon!** This week on the Boss Rush Podcast, Corey, LeRon, and Stephanie are joined by JM Specht, voice actor and the Community Outreach Manager at Devolver Digital, to talk about his job at the company, many of Devolver's games, and much more. Follow Corey: Twitter  |  InstagramFollow LeRon: Twitter  |  Instagram  |  TwitchFollow Stephanie: Twitter | Instagram Today's Guest: JMSpecht: Twitter | Devolver Digital Follow us on Social Media:Twitter | Discord | Instagram | Twitch | YouTube | Facebook Group | Facebook Thank you for listening to The Boss Rush Podcast, the Flagship Show of Boss Rush Media and The Boss Rush Network. You can catch the show on YouTube, iTunes, Spotify, and other podcast apps as well as our website every Monday morning. Remember to like, subscribe, share, rate, and review us wherever you consume the show. Thanks for building something better together with us. Be You. Be More. Play Games. Be Better.

Listen as the Community Outreach Manager from a North Texas Police Department (AKA Birthday Girl) shares examples of her Shine (strengths, hobbies, interests, irritants, needs, and experiences.) You will soon see how these details contribute to her success in overseeing the Community Outreach Center that was founded between the police department and the local school district. Listen as she tells you how she puts her strength of (and need for) communication to work as she builds relationships with residents from the surrounding apartments and trailer homes.

Garin Hussenjian received her BA in English with an emphasis in creative writing from UCLA in 1996. In 1999, she completed her MFA in Film from Art Center College of Design and in 2000 her short film, Single Moments, was nominated for a Student Academy Award. Initially working in film production as an independent freelance producer and unit production manager, she branched out to work in a variety of fields. This included founding her own Japanese stationery importing company, managing an aerospace engineering company, and most recently, working for the City of Beverly Hills. Within the City of Beverly Hills, she's held many roles including Public Information Coordinator, Community Outreach Manager, and Deputy Director of Special Projects. To every role, Garin brings some common threads – being an expert listener and communicator, bringing out the best in individuals so teams can achieve their goals.

Our hosts discuss important pieces of legislation in the U.S. that help improve access to care, both federally and around the states, and how the Global Healthy Living Foundation's 50-State Network has been advocating on the ground. The hosts also break down big news in health insurance, including the recent attacks on the Affordable Care Act and why millions may soon lose access to Medicaid. “During the pandemic… Medicaid enrollment grew by 5 million people between 2020 and 2022. So that's a lot of people who are on it [Medicaid] and could potentially be losing coverage, maybe even more than that. And it's already starting to happen around some states,” says Zoe Rothblatt, Associate Director of Community Outreach at GHLF. Among the highlights in this episode: 1:16: Steven Newmark, Director of Policy at GHLF, discusses the issue of copay accumulators and their detrimental impact on patients 3:05: “I think that there are still a lot of elected officials and staff who are unaware of what accumulators are, who don't get to hear the patient perspective enough. And I think it says to us; we have more work to do. And to anyone listening, it's important to continue to play a role and to let folks, policymakers, and elected officials know what it's like to live with a chronic condition, and when dealing with accumulators, the affordability issues at play,” says Steven 3:53: GHLF's efforts to advocate for the Safe Step Act and the Help Copays Act 5:17: Our hosts discuss JP Summers, Patient Advocate and Community Outreach Manager at GHLF, perspective and experience testifying about co-pays as a patient and advocate in Austin, TX 7:01: “In California, we focused on a legislation that helps with co-pay accumulator adjusters. And what was so interesting was that two different legislative offices said that with GHLF coming with patients, it was the first time they ever heard directly from patients about these bills,” says Zoe 8:13: Why are millions of people potentially going to lose access to Medicaid? 8:21: “During the pandemic, the government suspended procedures that would remove people from Medicaid rolls. In the past, people would regularly lose their Medicaid coverage if they started making too much money to qualify for the program, or if they moved out of state,” says Steven 9:04: “The good news is that not all ineligible people will be dropped at once. States have different timelines. Most states are expected to take between nine months and a full year to complete the verification process [in regard to eligibility for Medicaid] so there's a good amount of time to check in on what's happening,” says Zoe 10:55: “Insurance is a lifeline and it's scary to potentially lose that access… If you do change plans, always remember to check your doctor's coverage and prescription coverage to make sure that you'll be able to continue your care as you were,” says Zoe 12:53: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

On this episode Will Kwasigroh will be joined by Rene Hampton, Hailey Archer, and Elizabeth Newman to discuss Colorectal Cancer Awareness and its importance. All of our guest today are from Kirkland Cancer Center located in Jackson, TN. Tune in to learn more.For questions concerning Colorectal Cancer call Rene Hampton at 731-541-1740 or call Elizabeth Newman at 731-541-1818.Host:Will KwasigrohSocial Media CoordinatorRene HamptonGI Care Nurse NavigatorHailey ArcherClinical DietitianElizabeth NewmanMarketing and Community Outreach Manager

An oral history with the co-founder of Kids and Families Together, Faith Friedlander. Touring the Kids and Families Together facilities with the Community Outreach Manager, Amy Huot who shares their programming. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/alynettework/message Support this podcast: https://anchor.fm/alynettework/support

Seacoast Science Center's Marine Mammal Rescue (MMR) team is advancing wildlife conservation through stranded marine mammal response, care, and community outreach in New Hampshire and Northeastern Massachusetts.MMR responds to all reports of live (healthy, injured, sick) and deceased seals, whales, porpoises, and dolphins in NH and northern MA (from Essex, MA, to the Maine border).Marine Mammal Reporting Hotline: 603-997-9448All marine mammals are protected by the Marine Mammal Protection Act, enacted by the federal government on October 21, 1972. Fulfilling this requirement, Seacoast Science Center Marine Mammal Rescue staffs a 24/7 hotline (603-997-9448) and responds to all reports of marine mammals that haul out or strand on the shore in New Hampshire and northern Massachusetts (from Essex, MA to the Maine border). MMR leads the response and rescue and conducts health assessments and triage while collaborating necropsy labs conduct postmortem exams and rehabilitation facilities care for and release animals.Marine Mammal Response Hotline: 603-997-9448https://www.seacoastsciencecenter.org/marine-mammal-rescue/about/***Please note all opinions expressed on The Three Guys Podcast do not represent any Group, Company or Organization***Episode Produced by The Three Guys ProductionsThe Three Guys Podcast:Instagram:  The Three Guys Podcast (@the_three_guys_podcast_) • Instagram photos and videosTwitter:  The Three Guys Podcast (@TheThreeGuysPo1) / TwitterYouTube:   Three Guys Podcast - YouTubeLinkedIn the-three-guys-podcastDerek:  Derek DePetrillo (@derekd0518) • Instagram photos and videosBrian:  Brian Nazarian (@the_real_brian_nazarian) • Instagram photos and videosBrett:  Brett J. DePetrillo (@78brettzky

Ep 076: One of our favorite charitable events we support each year is the Energy4Life Golf Scramble. Maritime Energy started the Energy4Life program to help local families dealing with cancer. Each year, hundreds of golfers come together to support the Energy4Life charity, and this year, our guest was speaking to the group on behalf of the Maine Cancer Foundation. He painted a picture of how cancer is impacting the State of Maine but how the dollars raised locally are helping our families, friends, neighbors, and communities. We ran up to him after his talk and introduced our podcast and how it would be a great episode to discuss what happens next when we've been diagnosed with cancer and how Maine in particular is impacted by cancer rates. So, that is what we're going to discuss today!  Our next guest earned a degree in criminal justice from St. Joseph's College of Maine and began work as a beat cop in Portland in 2005. In 2018, he joined the Maine Cancer Foundation, first as the Community Outreach Manager and the Director of Development and NOW as Executive Director. He's just as easily found in Aroostook County as he is in Cumberland. An avid outdoorsman and studying to become a registered Maine guide, it's not uncommon for him to forgo a hotel room for his tent while on the road for Maine Cancer Foundation. With that, please welcome Ray Ruby to The Retirement Success in Maine Podcast! Chapters: Welcome, Ray Ruby! [3:17] What is the Maine Cancer Foundation? [10:03] What's happening in Maine around cancer? [18:18] What is “day one” after receiving a cancer diagnosis? [34:18] What can we do to be prepared regarding our treatment plan? [42:50] What can we all do to help kick cancer in the butt? [53:19] How will Ray find his personal Retirement Success? [58:40]

The impact of copay accumulator policies can create additional financial difficulties for patients by limiting payments that count toward their annual deductibles and out-of-pocket maximums. As a result, millions of patients who are already struggling with the financial and physical toll of their condition may delay care or stop taking their medication altogether leading to worsening health. “Copay accumulator adjusters are a program used by insurance companies to force patients to take medications that they determine are cheaper for them. And, in reality, it's actually just cheaper for the insurance company,” says Corey Greenblatt, Senior Manager of Policy and Advocacy at GHLF. Our guests, JP Summers, Patient Advocate and Community Outreach Manager at GHLF, and Corey, tell us more about their advocacy efforts and about their support for the bipartisan bill called the HELP Copays Act. Among the highlights in this episode: 1:24: Listener comment 1:56: H.4929, a step therapy protection law, was passed by both the Massachusetts House and Senate in October after being introduced for the first time over five years ago 2:37: “Governor Baker has 10 days to sign this bill; otherwise, it will die and it would need to be repassed next year,” says Zoe Rothblatt, Associate Director of Community Outreach at GHLF 2:50: Results from a recent GHLF COVID-19 Patient Support Program quick poll shows that most respondents will be celebrating the holidays in person with only 5 percent canceling plans or celebrating virtually 3:30: Steven Newmark, Director of Policy at GHLF, gives some tips to stay safe this holiday season 5:42: JP Summers describes her – and Corey Greenblatt's – participation to the virtual advocacy event: All Copays Count Coalition Hill Day 6:54: What are copay accumulators? 8:47: The HELP Copays Act explained 9:27: A look back at JP Summers' chronic illness journey and how the HELP Copays Act could impact her and other patients if passed 11:35: Are there bills similar to the HELP Copays Act at the state level? 12:18: How patients can get involved and advocate for themselves 12:59: What goes through an advocate's mind when meeting with elected officials? 15:38: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Through conversations with patient advocates Cristina Montoya and Lene Andersen, we learn that many of the emotions and discussions around starting (and staying on) a treatment are in fact the same for biosimilars and biologics. In the second of a two-part episode, Cristina and Lene discuss that feeling when you know your treatment is working, the possibility of adjusting medications, and ultimately, if they feel more comfortable with biosimilars. “One of the things that can be such a joyful part of the process is when it starts working.  And all of a sudden, you can do this thing that you haven't been able to do for months. And that's really incredible,” says Lene Andersen. Among the highlights in this episode: 01:50- Lene and Cristina tell Zoe and Conner what injection day is like 04:21- Lene and Cristina talk about the side effects that may come on injection day 06:08- Lene and Cristina talk about the process of getting the timing of their injections correct 08:26- Zoe asks Lene and Cristina what they decide to bring up with their physician at appointments 11:01- Lene and Cristina share the moments of joy where they noticed the treatments were working 12:27- Conners asks Cristina if she is happy that she made the switch to biosimilars 13:05- Zoe asks Lene about her thoughts on biosimilars after hearing Cristina share her experience 16:03- Lene and Cristina remind the listener that the symptoms of arthritis are guaranteed, the side effects from the treatments vary Contact Our Hosts: Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org Conner Mertens, Patient Advocate and Community Outreach Manager at GHLF: cmertens@ghlf.org We'd love to hear what you think. Send your comments to BreakingDownBiosimilars@GHLF.orgSee omnystudio.com/listener for privacy information.

New biosimilars are coming to market and there is a lot of confusion among patients about what this will mean for their treatment plan. We called on patient advocates Cristina Montoya and Lene Andersen to hear directly about their experience on a biologic and biosimilar, respectively. In this first of a two-part episode, Cristina discusses starting a biosimilar and Lene shares about her experience on a biologic. We learn about the types of questions and concerns that go into treatment decisions, the nerves of starting a new treatment, and how support programs can help. "You know, let's give it a try,” says Cristina, when sharing with us what she said to her rheumatologist about trying her first biosimilar, “and I felt better knowing that I've been having this conversation for a long time.” Among the highlights in this episode: 03:26- Zoe and Conner kick off the episode by introducing special guests Lene Anderson and Cristina Montoya 04:27- Zoe asks Cristina and Lene about the first time they heard about biosimilars 06:01- Cristina tells Zoe about the change in her mindset about biosimilars 07:33- Conner and Zoe clarify and differentiate the terms biologics and biosimilars 07:52- Cristina walks us through the process of getting prescribed a biosimilar 10:59- Lene and Cristina discuss the use of patient support programs 12:26- Zoe and Conner pause to reflect on the conversation so far and to give three helpful tips 15:43- Cristina shares that despite initial hurdles, delivery of her biosimilars has been on schedule 16:43- Cristina shares the questions and concerns she had before starting biosimilars 19:04- Lene shares her questions and concerns about biosimilars Contact Our Hosts: Zoe Rothblatt, Associate Director, Community Outreach at GHLF: zrothblatt@ghlf.org Conner Mertens, Patient Advocate and Community Outreach Manager at GHLF: cmertens@ghlf.org We'd love to hear what you think. Send your comments to BreakingDownBiosimilars@GHLF.orgSee omnystudio.com/listener for privacy information.

Today on Hustling Sideways, we're mixing things up with Christopher Schwartz, aka DJ Alpine and Twitch streamer TopherStrudel69. Schwartz is a Community Outreach Manager for a bank during the day, as well as a DJ and streamer by night, so to say that he's busy is an understatement. We talk about how the three jobs aren't that different in some aspects, and also discuss learning to read a room full of people, as well as getting comfortable making changes on the fly when things go wrong. Follow us: Allen Halas AllenHalas.com BreakingAndEntering.net Twitter: @AllenHalas Instagram: @AllenHalas Jim Love GoAuthenticYou.com Twitter: @jim_m_love Instagram: @jimmlove23

Polio is the latest disease to make a comeback. One case in New York and traces of it found in London and Jerusalem have health advocates sounding an alarm of polio's potential spreading with a renewed look at the vaccine's effectiveness. “It's worrisome that polio can come back. It's worrisome that there may be folks in this day-and-age of vaccine hesitancy and anti-vaxxing that may refrain from giving their children the polio vaccine. That's how viruses come back,” says Steven Newmark, Director of Policy at the Global Healthy Living Foundation. Among the highlights in this episode: 1:12: Listener comment 1:24: The U.S. Senate passes a bill to allow Medicare to negotiate with drug makers on the price of prescription drugs, caps insulin costs for Medicare recipients, and broadens the subsidies available under the Affordable Care Act for another three years 4:27: Novavax COVID-19 vaccine was rolled out but only 7,300 doses have been administered 5:50: For the first time since 2013, New York State discovered a case of polio in an adult 6:04: What is polio? 6:31: A case of polio was detected in Great Britain earlier this summer 7:48: Wasn't polio eradicated in 1988? 10:10: “The polio vaccine is one of the great success stories,” says Steven 10:43: How concerned should we be of these cases of polio? 11:04: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

For people living with rheumatoid arthritis, knowledge is power, whether it's here in the United States or around the world. In this episode, learn how a leading health advocate in the UK is serving 450,000 adults living with RA and 12,000 children with juvenile rheumatoid arthritis. “Everything we do is about giving the individual living with inflammatory arthritis as much knowledge and as many tools for them to understand their condition,” says Clare Jacklin, CEO at National Rheumatoid Arthritis Society in the United Kingdom. Among the highlights in this episode: 1:06: Listener comment 1:40: The U.S. is working to increase access to Evusheld, the preventative COVID treatment to help protect the immunocompromised against COVID 2:37: President Biden tested positive for a rebound case of COVID-19 after being treated with Paxlovid, the antiviral treatment 3:56: The National Rheumatoid Arthritis Society is “the only patient organization in the United Kingdom that focuses specifically on rheumatoid arthritis,” says Clare 5:41: Clare describes the changes she's seen for rheumatology patients in her 15 years advocating for the organization 7:43: Clare shares what she and other advocates learn by attending the European Conference on Rheumatology 9:53: The ways Clare's organization keeps  rheumatoid arthritis patients up-to-date with the latest health information 11:43: “I think the key thing about being an advocate for yourself is really to have the knowledge and knowledge is power,” believes Clare 13:03: Clare describes ways, big and small, that her organization helps patients 15:27: Clare provides an update on COVID in the UK: “I wouldn't say our community feels safe. But we feel safer than we did two years ago” 17:28: What our hosts learned from this episode Learn more about Clare's organization, National Rheumatoid Arthritis Society in the United Kingdom  Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

As the World Health Organization declares monkeypox a global health emergency, the U.S. is getting more aggressive, directing states to share data, while another 800,000 doses of the monkeypox vaccine will soon be available nationwide. All this for the rare but potentially serious disease that is caused by the monkeypox virus. “I think monkeypox is just similar to what we've been doing with COVID,” says Zoe Rothblatt, Associate Director of Community Outreach at Global Healthy Living Foundation. “Stay up to date on the spread of virus in your area. The CDC has a map now that you could check out.” Among the highlights in this episode: 1:09: Listener comment 1:24: A fourth COVID shot, the Novavax vaccine has been approved for use 2:05: Survey: more than 40% of U.S. healthcare workers plan to leave their job within the next five years 3:27: The importance of public health workers 4:15: CreakyJoints article has tips for managing your health care costs  5:46: The World Health Organization declares monkeypox a global emergency 6:16: Defining a global emergency as a call to action 7:04: Examples of previous global emergencies: Swine 09, Zika, and Ebola 8:21: What is monkeypox and how dangerous is it? 8:55: Monkeypox symptoms 9:06: How does monkeypox spread? 9:30: Survival rate if you contract monkeypox 10:03: What you need to know about the monkeypox vaccine 10:49: The risk of spreading monkeypox by having sex 11:15: CDC advice on monkeypox 12:13: The WHO recommends isolating for three weeks if you encounter someone with monkeypox 13:45: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Each day seems to present new questions about COVID, its variants, and the best vaccines. In this episode, we get clear answers from GHLF's own Dr. Daniel Hernandez about our risks to contract COVID and whether to wait for a new vaccine to come to market before getting boosted. “You should get a COVID vaccine even if you have already had COVID. There's no way to know how long immunity lasts after the infection,” says Dr. Hernandez, Director of Medical Affairs and Hispanic Outreach at Global Healthy Living Foundation. “There are very specific vaccines that are coming out. We have to make sure that we're up to date with those as well in order to protect ourselves in the best way possible.” Among the highlights in this episode: 1:10: Listener comment 1:41: GHLF Quick Poll results: 25% of respondents who are immunocompromised have received their fifth vaccination 2:53: UnitedHealthcare eliminates co-pays for insulin 3:51: Parents in Florida are struggling to find vaccines 5:12: Vaccines stimulate different branches of our immune system 6:10: If the vaccines are simple and work, what role do boosters play? 6:56: Why do vaccines sometimes cause side effects? 8:01: “You should get a COVID vaccine even if you have already had COVID,” advises Dr. Hernandez 8:49: Vaccines are believed to be effective for all variants 9:34: Speak to your doctor when deciding when to get further vaccines 10:47: What our hosts learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

The recent abortion ruling by the U.S. Supreme Court created an unintended consequence for patients seeking methotrexate, a drug which prolongs the lifespan of people with rheumatoid arthritis and other inflammatory diseases. In this episode, learn how GHLF is championing the cause and advocating for these patients. “Imagine what patients are going through…They're told that they're no longer able to fill that prescription because of a change in a law,” says Conner Mertens, Patient Advocate and Community Outreach Manager at Global Healthy Living Foundation. “It's really scary time for some of these patients.” Among the highlights in this episode: :46: Steven introduces Conner, who hosts his own GHLF podcast with Robert Popovian, Healthcare Matters 1:51: Listener comment 2:17: A new study, led by GHLF's Dr. Popovian, finds that drug formularies often have exclusions that could harm consumers and cost more money 3:29: COVID cases on the rise 4:28: Some women fear losing access to methotrexate as a result of the Supreme Court ruling on abortion 6:47: As health advocates, GHLF has sent a letter to Texas Governor Greg Abbott, seeking clarification on patient access to methotrexate 7:09: The Biden Administration has taken steps to protect abortion rights 8:39: What our hosts Steven and Conner learned from this episode Listen to Healthcare Matters podcast with Robert Popovian and Conner Mertens Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

If you're immunocompromised, you're tired of having to fight for basic health care. But after the U.S. Supreme Court issued Dobbs vs. Jackson which overturned Roe vs. Wade, access to the drug methotrexate, which prolongs the lifespan of people with rheumatoid arthritis, is being denied in some states due to its connection to abortion. “There's so much confusion and overwhelm with managing such a dynamic fluctuating condition like inflammatory arthritis, that when you finally find through trial and error, a medication regimen that works for you, it's like striking gold,” says Cheryl Crow, founder of Arthritis Life. “So, to know that suddenly that's going to be taken away from you, it's really scary to a lot of patients.” Among the highlights in this episode: 1:25: Listener comment 1:41: Rising COVID cases force some counties in Washington State to require masks 2:40: Aetna drops prior authorization for most cataract surgeries, allowing patients to bypass the pre-approval process 3:29: Progress for IBD patients as New York City plans to increase the number of public restrooms 5:36 What is methotrexate 5:55: Some pharmacists are nervous to fill methotrexate prescriptions because after Roe vs. Wade was overturned, the law states that it's a felony if you're dispensing this medication for an abortion 6:42: Cheryl describes why she started “Arthritis Life” 9:03: Cheryl talks about her advocacy for methotrexate 10:40: “I think it's really an example of insult to injury” for patients to be denied methotrexate, says Cheryl 13:25: Methotrexate improves people's quality of life, says Zoe 15:15: Cheryl's advice to help patients advocate for their medication 17:25: “We always say, having chronic illness is a full-time job. This is like adding another internship to that job. It's too much,” says Zoe 20:32: What our hosts Steven and Zoe learned from this episode Learn more about Cheryl and her organization Arthritis Life Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Maricopa County Animal Care and Control is one of the largest municipal shelters in the US. Community Outreach Manager, Gina Martino describes the challenges of operating a nearly full public shelter caring for several hundred animals at a time in the fastest growing county in the country. Compounding matters is the July 4th holiday, which invariably leads to more missing and frightened family pets. Gina offers steps the community can take to improve the lives of animals in their care even as we all work to lower the number of animals in need of forever homes. Animal Care Software KONG Zoo Zoo Logic

Diseases don't discriminate; anyone can get one or suffer from a chronic illness. But they do disproportionately affect BIPOC and LGBTQIA+ communities. In this episode, Sarah Shaw, BIPOC Outreach Manager at Global Healthy Living Foundation, describes what it's like being a Queer, Black woman living with chronic migraine, endometriosis, and anxiety and how health care providers must improve interaction with these communities. “Maybe if there have been more representation showing that Queer people get migraine. Black, Indigenous, and People of Color get migraine. Men, Women, Trans, and Non-Binary folks get migraine. If that representation had been there, maybe they would have jumped to a migraine conclusion diagnosis first, instead of what I was pushed on, which was, 'Oh, it's just anxiety or stress,' when I was seeking answers,” says Sarah. Among the highlights in this episode: 1:25: Listener comment 1:49: A fifth shot for the immunocompromised is recommended by the CDC 3:47: The impact of overturning Roe v. Wade is having on the immunocompromised community 6:30: The importance of June being Pride Month, Migraine and Headache Awareness Month, and Juneteenth 7:28: Sarah describes being a Queer, Black woman living with chronic migraine, endometriosis, and anxiety 8:39: “Migraine is part of me, my queer identity is a part of me and they interchange,” says Sarah 9:04: Sarah describes how medical practitioners can help members of the BIPOC and LGBTQIA+ communities 9:41: “I think access to health care and treatment is still such a huge issue for folks in the LGBTQIA+ community,” says Sarah 11:49: Sarah discusses her appearance on the GHLF podcast “Talking Head Pain” 13:47: Sarah's advice for others to speak up and advocate 15:08: What our hosts Steven and Zoe learned from this episode Listen here to Sarah's appearance on Talking Head Pain Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Have you noticed your symptoms for a common cold during COVID are worse than normal? You're not alone. Researchers believe our acquired immunity is lower, which can be particularly nerve wracking for those in the immunocompromised community.  “The weird thing about the pandemic during the lockdown phase is I didn't get sick,” says Steven Newmark, Director of Policy at Global Healthy Living Foundation. “And I was so used to, my whole life, going through a winter and always having a tickle in my throat or sneezing or what have you. And to have zero illness was just a very strange experience.” Among the highlights in this episode: 1:14: Listener comment 1:44: The Centers for Disease Control and Prevention endorses Pfizer and Moderna vaccines for children as young as 6 months 2:53: Florida is the lone state to not pre-order vaccines for children 3:29: Florida doctors can order vaccines only through the federal government 4:29: Likely passage of new health care and tax-free disability benefits to combat veterans, for conditions ranging from brain cancer to hypertension 5:50: Familiar viruses are acting in unfamiliar ways 6:18: Hospitals are seeing people come in for respiratory viruses, especially children 6:49: Our hosts describe weathering cold and flu seasons during the pandemic 7:35: “I haven't been this sick in two years. It felt so unfamiliar, uncomfortable,” says Zoe 8:09: When Steven recently got a cold, he “couldn't help but wonder if some of that was mental or psychosomatic” 8:35: Researchers believe that acquired immunity is lower for people who stayed inside during the pandemic, including the immunocompromised community 10:34: Experts anticipate that the viruses will fall back into patterns once the population immunity increases 10:52: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

You're vaccinated, boosted, and perhaps even had COVID. But how much protection do you currently have from the virus or one of its variants? An international group of researchers have developed a new blood test to help assess a person’s COVID immunity. While the test is already used in Europe, the FDA is in the process of reviewing the technology. “If there was an at-home version…I would take it every week. The idea of just knowing and I would feel safe,” says Steven Newmark, Director of Policy at Global Healthy Living Foundation. Among the highlights in this episode: 1:11: We’ve surpassed 10,000 listens to our podcast 1:24: Listeners’ feedback 1:48: Pfizer and Moderna ask the FDA to authorize COVID vaccine for younger kids 2:25: Kaiser Family Foundation: 18% of parents with kids under five are eager to get them a shot, 27% of parents said they will definitely not get their child vaccinated 3:32: Massachusetts distributing another 2 million free COVID testing kits 4:09: U.S. lifts COVID testing requirements for international travelers returning to the United States 5:36: “Our community always feel safer knowing people have tested negative that they're going to be around and get more nervous if safety measures are dropped,” say Zoe 5:59: GHLF Quick Poll: what activities are immunocompromised people comfortable doing this summer 7:26: Zoe describes getting her antibody levels tested 7:50: T cells are the white blood cells that work alongside a virus fighting antibodies to mount an immune response 7:56: An international group of researchers recently developed a new blood test to help assess COVID immunity 8:28: While the test is already used in Europe, the FDA is in the process of reviewing the technology 9:46: This blood test lets you know how much protection from COVID you have 10:29: “If there was an at-home version…I would take it every week, depending on the cost,” says Steven 11:30: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

The Health Advocates share several takeaways from attending a medical conference on rheumatology. One was a “bombshell finding” that chronic pain is now identified as its own disease. Another is that people’s level of anger and social isolation have declined after COVID vaccines became widely available. “It was really powerful to come to this conference and realize that there's an abundance of research happening on chronic illness and COVID,” says Zoe Rothblatt, Patient Advocate and Community Outreach Manager at Global Healthy Living Foundation. “And we really aren't being left behind. People are studying and are caring.” Among the highlights in this episode: 1:11: Listeners’ feedback 1:36: Macintosh makes another cameo as we begin season 4 of The Health Advocates 1:57: By a vote of 21-0, experts recommend that the U.S. Food and Drug Administration issue an Emergency Use Authorization for the Novavax vaccine 2:58: “A huge win” for the chronically ill community, says Zoe 3:08: Steven takes his first international trip since the start of the pandemic, a medical conference on rheumatology 3:45: The benefits of attending such conferences 4:28: The best way to be a health advocate is armed with information 4:38: At the conference, “there was a lot of discussion about anxiety and depression for patients, long COVID and its implications for autoimmune patients,” reports Steven 5:38: Bombshell finding: Chronic pain was identified as its own disease 6:28: Other discussions at the conference centered on sexual health, fatigue, diet and exercise, the role of your gut and inflammation overlapping with other conditions 7:09: GHLF research was presented 7:34: GHLF report: levels of anger and social isolation measured in people during the pandemic declined after vaccines became widely available 8:07: “It's very important for the medical providers… to hear the mental health plight that patients go through,” says Steven 8:48: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

What is your trilogy of living a healthy life? Is it the body, mind and soul or perhaps exercise, nutrition, and mindset? Whatever it is, we are all part of an evolution of wellness. In this episode, we introduce you to a new GHLF podcast, “Wellness Evolution” with its hosts Angel Tapia and Danielle Ali. “Your community is such an essential part of your wellness,” says Danielle. “We have an opportunity to bring the community together to discuss mental health, like the physical wellness, and how that can change the experience that we're having as a patient,” adds Angel. Among the highlights in this episode: 1:12: Listeners’ feedback 1:51: Angel describes the vision for the podcast, Wellness Evolution 2:30: “Our podcast…ties together real stories and challenges that everyone faces,” says Danielle 3:06: Advocacy starts with self-care 3:41: What is “advocacy burnout” and how does it happen 4:39: Zoe describes the “spoon theory” that can help anyone, especially people living with chronic illness, better manage their life 6:31: Tips for self-care 7:45: Danielle describes her portion of Wellness Evolution that focuses on breathing exercises 9:06: How breathing can help us deal with chronic pain, triggers, and emotions 9:37: Angel explains why Danielle’s breathing exercises are an important part of the Wellness evolution podcast 11:25: The book “The Four Agreements” points to doing your best, regardless of how much energy you have 12:18: “The whole point of the (Wellness Evolution) podcast is that we're ever changing. And that wellness is your evolution,” says Danielle 13:55: The power of “patient stories” that fosters advocacy 16:19: The hosts each describe how community and wellness work hand in hand 10:23: What Zoe learned from this episode Listen here to the "Wellness Evolution" podcast, hosted by Angel and Danielle Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

It's summer movie season! Ashley Cleveland, who heads up Salt Lake's Outdoor Afro chapter, and Russell Roots, Community Outreach Manager at the Utah Film Center join Ali to talk about the Wild and Scenic Fest at Liberty Park, and anti-racism in outdoor spaces. Email Ali your debate questions at ali.vallarta@citycast.fm. Subscribe to our daily morning newsletter here. Looking to advertise on City Cast Salt Lake? Check out our options for podcast and newsletter ads atcitycast.fm/advertise. Learn more about your ad choices. Visit megaphone.fm/adchoices

People living with chronic pain are often misunderstood. Their ongoing struggles cause those lacking compassion to gaslight them and minimize their symptoms. In this episode, we meet Catina Morrison, who is using her own experiences living with rheumatoid arthritis, fibromyalgia, and endometriosis to teach others how to stand up and self-advocate to overcome people, pain, and stigma. “People who complain of chronic pain are often told that it's in their head. "Oh, it can't be that bad. It's just a bad period. Aren't period supposed to be painful?" No, they're not,” says Catina Morrison, Corporate Nurse and Chronic Illness Coach. Among the highlights in this episode: 1:16: Listeners’ feedback 1:48: The number of COVID deaths in the U.S. is equivalent to the entire population of San Jose, California 2:21: Novavax is confident that their COVID vaccine will receive FDA authorization in June 2:50: Booster shots authorized for 6-12-year-old children 3:04: A third round of free COVID tests are available 3:31: The background of our guest, Catina Morrison, who's a Corporate Nurse and Chronic Illness Coach 4:11: Catina describes the importance of advocacy in our health 4:36: People with chronic illness are often uncomfortable talking about their ongoing symptoms 5:05: Catina has been living with chronic illness for more than 30 yars 5:50: “Health advocacy means being able to openly and honestly and transparently speak about what your particular circumstances are,” says Catina 7:49: How to overcome gaslighting, when someone minimizes your chronic illness 9:05: Catina shares what’s behind her podcast, Inflamed Sisters Thriving” 10:55: Why Catina has made her work female-centric 12:25: Catina’s free workbook is designed to help women find their voice when it comes to their health 10:59: One tip to help start your self-advocacy is creating a journal to chronicle your health journey 16:14: What our hosts Steven and Zoe learned from this episode Resources from our Guest Free Self-Advocacy Guide "Inflamed Sisters Thriving" Podcast Catina's Instagram Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

A series of letters and numbers have changed our lives: COVID-19, SARS-CoV-2, Omicron, Delta, BA.4, BA.5. So no wonder we’re confused by the virus and all its variants. In this episode, our host Zoe Rothblatt leads our class in sorting through the confusion and, together with Steven Newmark, bottom line why we need to understand it all. “How do you recognize your symptoms? I did a COVID test because I was so nervous. I'm like, "No; it's allergies." And it would really be helpful if I read up more so I could recognize those symptoms and not bring myself into a panic,” says Zoe, Patient Advocate and Community Outreach Manager at the Global Heathy Living Foundation. Among the highlights in this episode 1:12: Listener’s feedback 1:37: How do you know the difference between a COVID subvariant and variant 2:03: COVID-19 Patient Support Program quick poll results on Evusheld, a medication to prevent COVID before exposure in immunocompromised individuals 4:03: GHLF testified before the Delaware State Senate for a bill that would ban copay accumulator adjusters 4:44: Zoe describes running out of her copay assistance 5:20: Steven recalls how it took 4 people to use his copay card at his specialty pharmacy 6:00: FDA approves Rinvoq for people with ankylosing spondylitis 6:12: New mask mandates in California and Massachusetts 6:53: Class is in session: defining the differences in mutation, strain, variant, and subvariant 10:40: We had COVID, we got a variant, the building blocks have changed 10:56: If you get infected with a particular variant, you’re less likely to be reinfected with that variant in the future 11:17: Why does it matter that we know the differences? 13:01: When you get diagnosed, it feels good to know what it’s called, explains Zoe 14:58: Hopeful signs the virus and its variants are becoming weaker 15:40: Answering listeners’ questions: "I've had one or two doses of Evusheld, now what?” 16:45: Steve and Zoe take us through their safety precautions while out in public 19:47: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Who doesn’t want to leave winter behind and enjoy life beyond COVID? But the truth is we’re living in a place in-between, eager to drop our guards and live life out in the open again but with the invisible threat of variants always looming nearby. “I saw New York City has moved into the medium yellow risk category as (COVID) cases rise,” says Zoe Rothblatt, Patient Advocate and Community Outreach Manager at the Global Heathy Living Foundation. “That sent off the little alarm bells in my head…it's a little nerve wracking to be moving into this category.” Among the highlights in this episode 1:30: Listener’s feedback 2:04: Living in this weird period between seasons of COVID 2:36: “We've become more invisible during COVID,” says Zoe 2:50: Advocating helps make you feel you’re doing something positive 3:34: Requests made of the FDA to authorize vaccines for more children 5:00: Parents of young, unvaccinated children feeling anxious 7:24: Fear of future variants, not just sub-variants 9:15: Study: efficacy of fourth dose waning 9:58: Chronically ill know far too well how to plan to be protected 10:27: Changing the phrase “I’m fully vaccinated“ to “my vaccines are up to date” 11:21: Reminder to have all your medical records up to date and in one place 12:21: The CDC is still recommending wearing a mask on public transportation and airlines. Despite a judge striking down mask mandates in those places 12:32: Uncertain what to do with the elevated risk declared in New York City 14:31: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

The majority of Americans are now believed to have had COVID. So as communities lower their guard, the strategy to fight the virus is as much rooted in vaccines and masking as it is with new drugs that are being approved. But for our immunocompromised community, the fear of contracting COVID keeps them isolated while they long for that time when they were once free from chronic illness. “We're all just one chronic disease away from being chronically ill,” says Zoe Rothblatt, Patient Advocate and Community Outreach Manager at the Global Heathy Living Foundation. “I was once young and healthy before I got the diagnosis. We grieve who we once were and what we used to be able to do.” Among the highlights in this episode: 1:17: Listener comment 1:43: Plans to expand availability of the COVID drug Paxlovid, which reduces COVID hospitalizations by 90 percent 4:05: The FDA approves the COVID treatment Remdesivir for young kids 5:06: More people are testing positive for COVID 6:04: The CDC believes that 60 percent of Americans and 75 percent of children have been infected with COVID 7:00: Hospitalization rates are stable to declining 7:32: Whatever happened to herd immunity to fight COVID? 9:08: Correlation to methods to contain measles outbreaks 9:49: World Health Organization: measles could become endemic again as a result of vaccine hesitancy 10:18: How the measles vaccine and the COVID vaccine differs 12:51: Steven offers a list of hopeful signs ahead 14:42: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

Not everyone is cheering the news that the mask mandate on planes and trains has ended. While the Justice Department is appealing that ruling, those most susceptible to contracting COVID fear for their health and safety. In this episode, our hosts can’t contain their frustration and anger at those adults unwilling to wear masks for the common good. “I don't understand all these adults that act like children. For the good of people who are suffering; from immunocompromised, elderly, or whatever the case may be, just like wear the damn mask for a little bit longer,” says Steven Newmark, Director of Policy at the Global Heathy Living Foundation. Among the highlights in this episode: 1:08: Listener comment 1:35: Federal mask mandate on planes and trains ends 1:56: “The CDC doesn't have the authority over disease prevention,” laments Zoe 2:06: Repealing the mask mandate frustrates Steven 2:29: The hosts walk us through the last two years, from the virus to masks to vaccines to variants 3:42: “All the lessons feel like they've been unlearned by everybody,” says Zoe 3:59: Amid cheers from passengers, a Delta flight attendant announces the mask mandate is over 4:40: “It makes my heart break that that's where society is,” says Zoe 4:44: “I don't understand how all these adults act like children,” says a frustrated Steven 5:52: Lifting the mask mandate hurts immunocompromised people 6:34: Airlines still recommend passengers wear masks 7:49: COVID-19 Patient Support Program Quick Poll results: 20% of respondents had COVID 9:33: FDA authorizes the first COVID breath test 10:56: Finding tailored solutions for the immunocompromised, starting with safety in the workplace 12:44: What our hosts Steven and Zoe learned from this episode Read more on this topic: "Immunocompromised? What to Do If You Get Pushback for Wearing a Mask in Public": https://creakyjoints.org/living-with-arthritis/coronavirus/daily-living/handle-pushback-for-wearing-mask-immunocompromised/ Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel. See omnystudio.com/listener for privacy information.

Rashaunda Shaw became a health advocate when her mother and sister were both hospitalized and dying. Now, she’s turned her grief into purpose. "In the midst of us grieving, we would start this foundation to advocate and raise awareness around digestive diseases in the African American community," says Rashaunda, founder of the nonprofit Shakeilya Shaw Scholars Education Foundation. Among the highlights in this episode: 1:15: Listener comment 2:02: Philadelphia reinstates its mask mandate 2:49: Dr Fauci talks about personal judgment calls when it comes to taking precautions 4:13: How two family deaths led Rashaunda to start a nonprofit 7:51: Advice for how people can advocate for themselves during health crises 8:05: Take notes 8:22: Ask hard questions 8:54: Use the app called Just Answers 9:41: Hire a family lawyer 10:31: Meet with hospital staff 12:21: How Rashaunda turned her grief into purpose 12:49: Continuing her late-sister’s school supply drive 13:18: Advocating and raising awareness around digestive diseases in the African American community 15:15: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.

For patients with chronic illness, getting through a day is often daunting. But these same people have the power to impact change when they share their stories. Recently, the Global Healthy Living Foundation participated in an advocacy event to educate lawmakers on challenges facing people with digestive diseases — all in an effort to pass laws to help them. “A brave person who is suffering from a chronic health care condition is willing to visit their legislator in Washington or get on a Zoom to talk about how they're impacted by digestive diseases and educate them about what's happening in their community,” says Dale Dirks of the Digestive Disease National Coalition. Among the highlights in this episode: 1:23: Listener comment 2:16: The history of the Digestive Disease National Coalition 4:02: How the death of Dale’s father from colon cancer led him to advocate for patients 4:31: How new treatments have kept people with Crohn's disease and ulcerative colitis alive 5:09: Steven hears people’s frustration with the pace of progress in Congress 6:13: “We convinced Congress to add a colon cancer screening benefit to the Medicare program,” says Dale 6:32: Some of the inroads made by the Digestive Disease National Coalition 7:52: How the digestive community works together 8:35: Ways health advocates are making a difference 9:40: The importance of patient stories in educating lawmakers and passing new laws to help patients 10:25: Advocates from 33 states met with lawmakers on Capitol Hill 12:03: To get involved with the Digestive Disease National Coalition, visit www.ddnc.org 12:27: What our hosts Steven and Zoe learned from this episode Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Zoe Rothblatt, Patient Advocate and Community Outreach Manager at GHLF: zrothblatt@ghlf.org We want to hear what you think. Send your comments, or a video or audio clip of yourself, to thehealthadvocates@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.