NETWise

This episode is part of a collaboration with the FlaNET Carcinoid Community, focusing on financial toxicity. We explore some of the major costs that can arise throughout the neuroendocrine cancer journey and share guidance on how to find helpful resources. NET specialists included in this episode Use our episode infographics to get a visual picture […] The post Managing the Financial Burden of Neuroendocrine Cancer appeared first on NETRF.

When it comes to PRRT (Peptide Receptor Radionuclide Therapy), patients often have big questions and concerns. In this episode, we dive into the most common questions surrounding PRRT and the broader field of radiopharmaceutical treatments for neuroendocrine cancer. This is an exciting field as there is much more research being done into radiopharmaceuticals for neuroendocrine […] The post Radiopharmaceutical Treatment – FAQs & Insights appeared first on NETRF.

Artificial intelligence (AI) has become a hot topic, making its way into everyday conversations and industries worldwide. While AI technologies have been around for years, recent advancements are accelerating their impact—especially in healthcare. From improving cancer research to enhancing diagnosis and treatment, AI is reshaping the future of medicine. In this episode of NETWise, we […] The post NETWise Episode 43: How Could AI Change Neuroendocrine Cancer? appeared first on NETRF.

Happiness is something that can be difficult to find in life, no matter what. Having an uncommon cancer can make it infinitely harder. The post NETWise Episode 42: Finding Happiness While Living with Neuroendocrine Cancer appeared first on NETRF.

Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we will bring you into one of our most exciting yearly events: NETRF's 2024 Neuroendocrine Cancer Research Symposium. You will hear ways […] The post NETWise Episode 41: 2024 Year in Review appeared first on NETRF.

In this episode, we're diving deep into the symptoms caused by functional neuroendocrine tumors (NENs) and, more importantly, how to effectively manage them. Whether you're navigating symptomatic NETs yourself or supporting someone who is, this conversation will arm you with fresh insights and practical tools to take control. This is a revamped and enriched update […] The post NETWise Episode 40: Managing Symptoms of NENs—Updated Episode appeared first on NETRF.

Lately, there's been a lot of talk about immunotherapy, which has transformed treatment for patients with some kinds of cancer. So far, patients with NETs and NECs have largely been excluded from these developments. But there's hope that the benefits of immunotherapy could one day extend to NENs. In this episode of NETWise, we're going […] The post NETWise Episode 39: What Could Immunotherapy Mean for NENs? appeared first on NETRF.

Whether or not a patient has access to care is one of the most important factors in how their cancer journey plays out. It is crucial for timely diagnosis and effective treatment of neuroendocrine neoplasms. And when you live in a rural place, that access can be complicated. We often talk about how important it […] The post NETWise Episode 38: Rural Care appeared first on NETRF.

Neuroendocrine neoplasms (NENs) can arise in many locations throughout the body; they can grow rapidly; and they can occur under unique circumstances. In this episode of NETWise, we talk through some of the more uncommon locations – and situations – where neuroendocrine neoplasms arise. This episode is devoted to some of those more uncommon situations. […] The post NETWise Episode 37: Uncommon Neuroendocrine Neoplasms (NENs) appeared first on NETRF.

In the past few months, there's been a lot of buzz in the NET community about histotripsy. This newly-approved procedure holds a lot of promise for treating NETs, and may prove to be even more exciting in the future. In this episode of NETwise, we're going to tell you everything we know about this new […] The post NETWise Episode 35: Histotripsy appeared first on NETRF.

In this episode of NETWise, we talk about the experiences of young people living with NETs. This is an update to an episode that was originally published in 2020. A special thank you to  Dr. Aman Chauhan, a medical oncologist who leads the University of Miami Neuroendocrine Cancer Program and Dr. Jaydira Del Rivero, a […] The post NETWise Episode 34: Young Adults Living with NETs: Updated Episode appeared first on NETRF.

When one is diagnosed with an illness, like NETs, mortality can come to the forefront. Even if your NET journey presents a trajectory of being chronic and is stable, it is not uncommon to have thoughts about disease progression and mortality.  There is also a lot of stigma and discomfort in talking about end of […] The post NETWise Episode 33: The Power of Knowing: Mortality & End-of-Life appeared first on NETRF.

Some of the rarest, most complex, challenging and difficult NETs are known as pheochromocytomas and paragangliomas. This is an updated version of an episode that first aired in 2021. A special thank you to Dr. Erik Mittra Chief of Nuclear Medicine and Molecular Imaging at Oregon Health and Science University for his expert assistance with […] The post NETWise Episode 32: Pheos & Paras (updated episode) appeared first on NETRF.

Research is at the very core of what we do at NETRF. We believe it is the key to discovering cures and more effective treatments for neuroendocrine cancers. In this episode of NETWise, we share some of the most important developments in NET research that happened in 2023,  and look back on the progress made […] The post NETWise Episode 31: 2023 Year in Review appeared first on NETRF.

If you're dealing with NETs, you likely have encountered fatigue in various forms. The spectrum of fatigue spans from temporary and inconvenient to persistent and debilitating. It can be a source of frustration, stress, and, at times, a feeling of isolation, as it may not be readily apparent to others. Despite its prevalence, fatigue often […] The post NETWise Episode 30: Understanding Fatigue & NETs appeared first on NETRF.

One of the things that sets neuroendocrine tumors apart from other kinds of cancer is that they can occur almost anywhere in the body. Those different locations — or primary sites — can mean the NET takes on different characteristics, and requires different kinds of treatment. In previous episodes of this show, we've talked about […] The post NETWise Episode 29: Merkel Cell Carcinoma appeared first on NETRF.

In this episode, we're talking in depth about one of the most exciting and widely discussed treatments for NETs: PRRT. This is a revised version of an episode that originally released in 2020. A lot has happened since then in the development of nuclear medicine treatments like PRRT, and we're excited to bring you information […] The post NETWise Episode 28: PRRT Revisited appeared first on NETRF.

We hear a lot about the need for diversity and inclusion in health care, and we know there is a need for more diversity in NET clinical trials. In looking at the issue of race and medicine there are four major factors that influence health outcomes and that deserve scientific investigation. First, is your genes […] The post NETWise Episode 27: NETs & Race appeared first on NETRF.

This is an updated NETWise episode. A special thank you to Dr. Aman Chauhan for his expert knowledge and help with this special NETWise update. Did you know that about 1 in 4 NETs develop in the lungs? Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the […] The post NETWise Episode 26: LungNETs – Updated Episode appeared first on NETRF.

This is a revised version of an episode that originally aired in December of 2020, where we focused on diagnosis and treatment of NETs that start in the most common primary site for neuroendocrine tumors, the small intestine. A special thank you to Dr. Mark Lewis for his expert knowledge and help with this special […] The post NETWise Episode 25: Small Bowel NETs appeared first on NETRF.

Today, we're going to pick up again with our series looking at all possible NET primary sites, with a conversation about one of the very rarest forms of NETs – those that originate in the female reproductive organs. The post Episode 24: Gynecologic NETs appeared first on NETRF.

As we end our mini-series about adjusting to the new normal of your life with NETs, we wanted to use an episode to highlight one of the most emotionally challenging situations that might confront a person who is newly diagnosed -- learning you have cancer while you are raising children. The post Episode 23: Parenting with NETs appeared first on NETRF.

The post NETs 101: En Espanol appeared first on NETRF.

In the last episode of NETWise, we talked about a moment of transition – the time right after someone receives a diagnosis of NETs and the feelings of grief that can follow. This episode discusses the next part of the journey- how to navigate through the emotions, symptoms, and treatments of NETs while one continues to manage life responsibilities and relationships while living with NETs. This episode addresses survivorship and how one starts to navigate their new normal. The post Episode 22: Navigating The New Normal appeared first on NETRF.

This is something special for NETWise. This is the pilot episode of a new project we've begun, translating the NETWisew series into Spanish! We've started with the very first episode of the show, from back in August of 2019, which lays out the most basic and foundational information about what NETs are and how they work. If we're able to do more of these, and we hope to, it will move to its own podcast feed to be a resource for a whole new segment of the NET community. For now, please share this with Spanish-language speakers who would find it valuable, and we'll be back next month with a brand-new episode of the series in English. The post NETs 101: En Español: Lo que necesitas saber appeared first on NETRF.

A NET cancer diagnosis can affect the emotional health of patients, families, and caregivers. In this episode, we're going to do something a little different. We have spent a lot of time in this series talking about the science of NETs, but a NET cancer journey is not just about biology. The NET journey can […] The post Episode 21: Adjusting to the New Normal appeared first on NETRF.

Episode 20 is part two of our deeper understanding into NET research. Advancing NET research is the core of our mission at NETRF, and it's a crucial need. This episode of NETWise will take a closer look at how scientists do the research that we hope will yield the next generation of effective treatments for […] The post Episode 20: NET Research—Part Two appeared first on NETRF.

Episode 19 is the first of two episodes that will discuss a topic near and dear to us here at NETRF: NET research. Advancing NET research is the core of our mission, and it's a crucial need, because NETs are extremely complicated cancers and there is still a lot the medical community needs to learn […] The post Episode 19: NET Research—Part One appeared first on NETRF.

One of the most interesting and widely discussed features of neuroendocrine tumors is that in many cases they are extremely low-grade, meaning very slow to develop and spread. Often, treatment of these low-grade NETs can go on for years or even decades, and look more like management of a chronic condition than traditional cancer treatment. The post Episode 18: High-grade NETs appeared first on NETRF.

Very often, the liver is the first and most significant site of NET metastasis, and for many people, managing the disease in their liver becomes the most challenging part of their NET journey. In this episode of NETWise, we're going to focus on an organ that is almost never a NET primary site, but nevertheless is crucially important to many people with NETs: the liver. The post Episode 17: Focus on Liver NETs appeared first on NETRF.

In this episode of NETWise, we're going to look at all the ways that NETs interact with nutrition–how having a NET can affect your body's ability to use nutrients properly, and how what you choose to eat can help or hurt your NET treatment and quality of life. The post Episode 16: NETs and Nutrition appeared first on NETRF.

When you're fighting cancer, treating your tumors is only part of the care you need to continue living your best life. Caring for you as a person - mind, body, and spirit - is the focus of a dedicated team of interdisciplinary professionals who have a lot to offer people with neuroendocrine tumors. Just don't be scared of the "P" word! The post Episode 15: Supportive Care for the Mind, Body, and Soul appeared first on NETRF.

Pheochromocytomas and paragangliomas are rare neuroendocrine tumors that occur inside or outside the adrenal glands. Affecting approximately 1 in 3,000 people, pheochromocytomas and paragangliomas are unique tumors in that they can produce excessive amounts of “fight or flight” hormones that can cause over 100 different signs and symptoms. The symptoms can come and go and […] The post Episode 14: Pheos and Paras — NETs Known as “the Great Mimic” appeared first on NETRF.

What role do genetics play in neuroendocrine tumors? Is genetic screening right for you? In this episode of NETWise, we’ll explore the role DNA plays in NETS and why your genetic code might hold important implications for treatment strategies and the health of family members. The post Episode 13: NETs and Genetic Screening appeared first on NETRF.

Caregivers Share the Burden of a NET Diagnosis A diagnosis of neuroendocrine cancer impacts the person who receives the diagnosis, as well as those they love.  A spouse, child, or friend may take on the role of caregiver—a partner to the patient on the NET journey and advocate for their loved one.  It’s a job […] The post Episode 12: The Importance of Caregivers appeared first on NETRF.

Unique challenges for young people with NETs Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility challenges. How do you navigate the healthcare system? Who do you tell about your illness and when? Will you be able to have a career? Can […] The post Episode 11: AYA (Adolescents and Young Adults) and NETs appeared first on NETRF.

Did you know that there are more treatments for pancreatic NETs (PNETs) than for other types of NETs? While there are more options, treatment for PNETs needs to be individualized since these tumors can vary significantly in stage, grade, and their ability to cause hormonal symptoms.  PNETs are complex because the pancreas plays an essential […] The post Episode 10: Pancreatic NETs appeared first on NETRF.

Did you know that 12% of gastrointestinal (GI) NETs are found in the small bowel? The small bowel, or the small intestine, is one of the most common places NETs form. If you are living with a small bowel NET, this episode is for you.  In this episode, you will learn more about the anatomy […] The post Special Episode: Small Bowel NETs appeared first on NETRF.

Did you know that about 1 in 4 NETs develop in the lungs? Lung NETs are often overlooked, less frequently discussed, and more misunderstood than NETs that begin in the pancreas or GI tract. It can be frustrating for individuals and families living with a lung NET to find useful information or the right health […] The post Special Episode: Lung NETs appeared first on NETRF.

New Ways to Detect and Treat NETs What are clinical trials? In this episode of NETWise, discover how new ideas in NET detection and treatment are moving from the laboratory to the bedside. You’ll learn about the different stages of research and how promising drug compounds progress through them. You will also learn how clinical […] The post Episode 7: Clinical Trials appeared first on NETRF.

Using Virtual Appointments to Care for NET Patients In this special episode of NETWise, we learn how COVID-19 is forcing our health care systems to make sweeping operational changes. Amid lockdown and stay-at-home orders, NET specialists are switching to telemedicine visits as a new option. The increased use of telemedicine over the past few months […] The post Special Episode: COVID-19 and the Rise of Telemedicine appeared first on NETRF.

Functional and Non-Functional NETs This episode is about managing the symptoms of functional NETs. To understand these symptoms, we start by talking about hormones. What role do hormones play in the human body? And what do they have to do with NETs? We’ll help you understand the differences between functional and non-functional NETs. You’ll also […] The post Episode 6: Managing Symptoms of NETs appeared first on NETRF.

What treatments do oncologists use to slow or stop neuroendocrine tumor growth? What role do newer approaches like targeted therapy or immunotherapy play in treating neuroendocrine cancer? And what drugs can be used to alleviate symptoms caused by hormone-producing tumors? The post Episode 5: Medical Management of NETs appeared first on NETRF.

In this special episode of NETWise, listen as we talk about COVID-19. As a NET patient, you may have additional risk for serious illness from COVID-19, so we share some tips for avoiding infection, managing your NET treatment, and staying mentally healthy during this challenging time. NETRF CEO, Elyse Gellerman, chatted with Dr. Mark Lewis, […] The post Special Episode: COVID-19 and NETs – What You Need to Know appeared first on NETRF.

Treating NETs with Nuclear Medicine This episode of NETRF’s NETWise podcast discusses Peptide Receptor Radionuclide Therapy (PRRT) a targeted form of radiotherapy approved in the U.S. in 2018. Listen in as NET experts like Josh Mailman, Drs. George Fisher, Thor Halfdanarson, Ed Wolin, Richard Baum, and others explain what it is, how it works, and […] The post Episode 4: Nuclear Medicine for NETs: What is PRRT? appeared first on NETRF.

Surgery and Interventional Radiology for NETs are two common treatments for neuroendocrine tumors that can reduce the number and size of NETs as well as reduce some of the symptoms caused by tumors. The post Episode 3: Surgery and Interventional Radiology for NETs appeared first on NETRF.

Detecting and Monitoring NETs: Listen as NETWise takes you on a journey to diagnose neuroendocrine cancer. The post Episode 2: Imaging, Testing, and Building a Care Team appeared first on NETRF.

Understanding the Basics of a Neuroendocrine Tumor (NET) Diagnosis: Tune into this episode of NETWise as we define and explain how neuroendocrine cells become neuroendocrine tumors (NETs). The post Episode 1: What You Need to Know About NETs appeared first on NETRF.