Podcasts about adolescents and young adults

About this episode: Our mental health and well-being are shaped by our environment: access to green space can be beneficial, while cities with high population density can affect the risk for mood, anxiety, or even substance use disorders. A recent study explores how cities can be more mental health-friendly for adolescents and emphasizes the importance of life skills, open-minded interpersonal relationships, safe public spaces, secure employment, and youth-inclusive policy-making. Guest: Dr. Pamela Collins is a Bloomberg Centennial Professor and chair of Mental Health at the Johns Hopkins Bloomberg School of Public Health. Host: Stephanie Desmon, MA, is a former journalist, author, and the director of public relations and communications for the Johns Hopkins Center for Communication Programs, the largest center at the Johns Hopkins Bloomberg School of Public Health. Show links and related content: Making cities mental health friendly for adolescents and young adults—Nature Research Identifies Characteristics of Cities That Would Support Young People's Mental Health—Johns Hopkins Bloomberg School of Public Health World Mental Health Day: Mental Health is a Universal Human Right—Johns Hopkins Bloomberg School of Public Health Contact us: Have a question about something you heard? Want to suggest a topic or guest? Contact us via email or visit our website. Follow us: @‌PublicHealthPod on X @‌JohnsHopkinsSPH on Instagram @‌JohnsHopkinsSPH on Facebook @‌PublicHealthOnCall on YouTube Here's our RSS feed

On this episode of NP Pulse: The Voice of the Nurse Practitioner®, Drs. Mary Koslap-Petraco and Ruth Carrico will discuss meningococcal disease, the maze of meningococcal vaccines, ACIP recommendations and the use of shared clinical decision-making. Meningococcal disease — a life-threatening infection caused by Neisseria meningitidis — demands our attention. It strikes swiftly, leaving devastation in its wake. Still, we have powerful tools at our disposal: MenACWY and MenB vaccines, and a new, game-changing pentavalent vaccine that covers serogroups A, B, C, W and Y. Additionally, a meningitis point-of-care tool will be available on AANP's Tools and Resources page. To earn 1.0 contact hours of continuing education (CE) credit, you will need the participation code provided at the end of the podcast. To claim your CE credit, log in and register for the activity within the AANP CE Center, then enter the participation code and complete the post-test and evaluation. CE credit is available for this podcast through June 2025. This educational activity is supported by an independent medical education grant from GSK.

Join us for a new episode of FACTSinnated, featuring a discussion with four young adult vaccine advocates. Eric, Lindsey, Archer, and Nolan each have a unique background and lived experiences that have shaped their interest in adolescent vaccination. On this episode, we'll hear about their path to becoming vaccine advocates, what it takes to make their voice heard, and how they've been able to make a difference among their peers. Tune in to this to learn more about strategies for navigating conversations about vaccines and sharing credible, fact-based vaccine information with your friends and family.

Disposable E-Cigarette Use and Subsequent Use Patterns in Adolescents and Young Adults  Pediatrics Utilizing sequential surveys in adolescents and young adults, the study evaluated the association between disposable e-cigarette (E-cig) use versus non-disposable E-cig and subsequent E-cig use. Those reporting the use of disposable e-cigs at baseline reported greater number of use days in past 30-days. In the follow-up survey, while controlling for demographics and baseline e-cig use patterns, disposable e-cig use was associated with continued e-cig use (OR=1.92) and greater number of times used daily (IRR=1.29). The authors note that disposable E-cigs are generally inexpensive, relatively easy to hide, and sold in various flavors (not regulated compared to non-disposable forms) and thus recommend comprehensive policies to regulate all forms of nicotine products. Read this issue of the ASAM Weekly Subscribe to the ASAM Weekly Visit ASAM

How many of you have been a part of an IF:Gathering over the years? We have long admired the difference our new friend, Jennie Allen, is making in the world in so many spaces—books, podcasts, events and more--and were thrilled to get to have a conversation with her. We're talking about Raising Teenagers and Young Adults. And, so if you have one, or are on your way to having one soon or…who are we kidding?! If you're parenting in any stage, we would HIGHLY recommend you listen in on this rich, honest, inspiring conversation. Untangle Your Emotions . . . . . Discussion Guides to download for each stage of the Raising Boys and Girls series are located on our website here. Order The Worry-Free Parent or The Worry-Free Parent Workbook today! Sign up to receive the RBG monthly newsletter to keep up to date with where David and Sissy are speaking, where they are taco'ing, PLUS conversation starters for you and your family to share!  Find us on YouTube! Download a copy of the Raising Boys and Girls Feelings Chart. Connect with David, Sissy, and Melissa at raisingboysandgirls.com. . . . . . If you would like to partner with Raising Boys and Girls as a podcast sponsor, fill out our Advertise with us form. . . . . . A special thank you to our sponsor: Trust & Will: Get 10% off plus free shipping of your estate plan documents by visiting trustandwill.com/RBG. Learn more about your ad choices. Visit megaphone.fm/adchoices

BLURB  In this podcast, Dr Andrea Ferrari and Dr Annalisa Trama, interviewed by Dr Patrizia Gasparini, present the important topic of adolescents and young adults (AYA) with cancer. They provide an overview of the unique epidemiology and survival of this age group of patients. Moreover, Dr. Ferrari discusses the clinical challenges of AYA patients, highlightening several AYA-dedicated multidisciplinary approaches and programs.

In this episode, Samantha V. Hill, MD, MPH, and Eunice E. Radcliff, MD, discuss key considerations for PrEP uptake in adolescents, including: Advice on talking with parents about the importance of adolescents having alone time with their healthcare professionalsMaintaining confidentiality when someone is on their parents' insuranceStrategies to increase awareness, uptake, engagement, and persistence on PrEP among adolescentsHaving discussions about HIV prevention and PrEP along with the HPV vaccine, STI testing, or contraceptionFacultySamantha V. Hill, MD, MPHAssistant ProfessorDivision of General PediatricsSection on Adolescent HealthDepartment of PediatricsEmory UniversityAtlanta, GeorgiaEunice E. Radcliff, MDAssistant Professor General PediatricsEmory University School of MedicineAtlanta, GeorgiaLink to full program: https://bit.ly/3PZGYdR

In this podcast, experts Sarah M. Wood, MD, MS, and Errol L. Fields, MD, PhD, MPH, discuss some of the challenges and concerns clinicians face when prescribing PrEP to adolescents. The faculty addresses the potential for adverse effects from PrEP, including the potential for renal impairment, decreased bone density, and whether PrEP can interfere with hormone therapy for gender-affirming care. They review the data behind these concerns and emphasize that the vast majority of adverse effects caused by PrEP are mild and reversible.The experts also examine common barriers that adolescents face when attempting to initiate and adhere to PrEP, such as insurance coverage and confidentiality. Dr Fields and Dr Woods discuss strategies for overcoming these barriers and retaining adolescents on PrEP, including how to navigate tricky conversations with both patients and parents or within communities that may stigmatize PrEP and HIV.Sarah M. Woods, MD, MSAssistant Professor of PediatricsDivision of Adolescent MedicineUniversity of Pennsylvania Perelman School of MedicineChildren's Hospital of PhiladelphiaPhiladelphia, PennsylvaniaErrol L. Fields, MD, PhD, MPHAssociate Professor of PediatricsDivision of Adolescent/Young Adult MedicineDepartment of PediatricsJohns Hopkins School of MedicineBaltimore, MarylandContent based on an online CME program supported by independent educational grants from Gilead Sciences Inc. and ViiV Healthcare.Link to full program: https://bit.ly/3PZGYdR

Cervical cancer survivor, vaccine advocate, and the CEO of Cervivor, Tamika Felder, joins us on FACTSinnated to discuss the importance of HPV vaccination. On this episode hosted by intern Natalie Mar Cordero, Tamika shares her experience with cervical cancer, all things HPV, and how she became a vaccine advocate.  

A variety of perspectives are explored as Dr. Westin speaks with Dr. Jennifer Mack, Dr. Chun Chao, and Mallory Casperson about end-of-life care planning in adolescent and young adult cancer. TRANSCRIPT The guest on this podcast episode has no disclosures to declare.  Dr. Shannon Westin: Hello, everyone, and welcome to another episode of JCO After Hours, the podcast where we get down and dirty with manuscripts that are being published in the Journal Clinical Oncology. And I am your host, Shannon Westin, GYN Oncologist and Social Media Editor of the Journal of Clinical Oncology. I am so very excited to have a number of guests with us today to discuss a very important paper entitled “Discussions About Goals of Care and Advanced Care Planning Among Adolescents and Young Adults with Cancer Approaching the End of Life.”  And I'm joined by several of the authors of this important paper. The first is Dr. Jennifer Mack. She is the Associate Chief in the Division of Population Sciences, an Associate Professor at Harvard Medical School and Senior Physician in Pediatric Hematology Oncology at the Dana-Farber Cancer Institute. Welcome, Dr. Mack. Dr. Jennifer Mack: Thank you. Dr. Shannon Westin: We also have Mallory Casperson. She is the cofounder and CEO of the Cactus Cancer Society. They provide online support programs and resources to young adult cancer survivors and caregivers in the comfort of their own homes. Welcome.   Mallory Casperson: Thanks for having me. Dr. Shannon Westin: And then, finally, last but not least, Dr. Chun Chao. She is a Senior Research Scientist in the Division of Epidemiologic Research in the Department of Research and Evaluation at Kaiser Permanente Southern California. Welcome.  Dr. Chun Chao: Thank you. It's a pleasure being here. Dr. Shannon Westin: So I want to get right into this. I think that there certainly has been a lot of discussion, at least at our institution as well as at the ASCO level, around advanced care planning across all patients with cancer and anyone with a diagnosis of cancer. And I would love to just start and level set and make sure all of our listeners are all on the same baseline around the incidence and prevalence of cancer in adolescents and young adults. Like, first, define what are the age groups that we're looking at here? How common is cancer in this population? Dr. Jennifer Mack: Right. For this study, we defined adolescents and young adults as individuals aged 12 to 39. And right now, about 90,000 adolescents and young adults are diagnosed with cancer in the United States each year. Those numbers are also rising, so more and more are diagnosed each year, and because of that, we think it's increasingly important to pay attention to the needs of this population. This population really experiences a whole range of different cancer types, some of which are more common in children, some of which are more common in adults, but the most common ones include breast and gastrointestinal cancers, sarcomas, germ cell tumors, leukemias, lymphomas, and brain tumors. Dr. Shannon Westin: And your manuscript notes that adolescents and young adults seem to receive medically intensive measures at the end of life. Now, how common is this across this group? And do you all have a sense of some of the reasons that we see this increased use of these measures? Dr. Jennifer Mack: That's a great question. We and others—actually, the early work that led to this study was done with Chun. We had previously found that most adolescents and young adults receive at least some kind of medically intensive care at the end of life. And that includes things like being hospitalized, being in the intensive care unit, receiving chemotherapy, and spending time in the emergency room near the end of life. And so, if you take all of those together, about two-thirds of adolescents and young adults receive at least one of these near the end of life.  And we don't know the reasons for this. There are probably complex reasons. Some adolescents and young adults may actually want to receive these kinds of measures, maybe because they're young and they want to do everything they can to live as long as they can. And some patients in this age group are parents to young children, and they may be making choices to prolong life and be there for their kids. But we also know that if we look at older adults, most people who know they're dying don't want to receive this type of care, which is also associated with more suffering and with poorer quality of life. So it's also possible they're making these choices because they don't fully recognize they're approaching the end of life or because they haven't had opportunity to plan for this time through conversations with their medical teams. Mallory Casperson: I think the conjecture, too, that a young adult is likely to focus on extending life, even in a situation where palliation is the stated goal, is a really great conjecture. This population is really burdened by these unique psychosocial issues that are driven by the extreme disruptions that cancer has on major life milestones. Like Jenny said, they may have young children at home, they may have a new spouse at home, still be trying to advance at work, you name it. So this period of young adulthood is really characterized by constant change. And it's possible that these young adults are being driven to stay present in their lives for really as long as possible to reach some of these goals or even just to support their young families as they reach their own goals. Dr. Shannon Westin: I really appreciate that context, and I'm going to always bring it back to what I know as a provider of gynecologic cancer care, where we see quite a bit of young people at the beginning of their life, at the beginning of their fertility. And I think it is so important to keep that context in mind as we're designing interventions and studies and things like that. So I really appreciate that, having the ability to kind of see from that standpoint. So I think you guys have convinced me this is important. We know the reasons. So why don't we just lay out the objectives of this particular study and give our listeners a brief review of how it was designed? Dr. Jennifer Mack: Great. We wanted to know how often adolescent and young adult patients with incurable cancer have discussions about prognosis and end-of-life care planning before they die. And a secondary goal was to understand whether having earlier discussions would change the type of care that's delivered. So, for example, having those discussions about goals of care earlier in their illness, could that make them less likely to receive intensive measures?  So, to do the study, we conducted a retrospective review of health records for nearly 2,000 adolescents and young adults who died between 2005 and 2019 after receiving care in one of three centers—the Dana-Farber Cancer Institute, Kaiser Permanente Southern California, Kaiser Permanente Northern California—and looked for documentation of discussions about care planning. For this study, we focused on patients who either had stage IV disease at diagnosis or who had experienced a recurrence because we wanted to ensure that we had a population of young people who were living with advanced disease and not people who might have died suddenly and unexpectedly during treatment, because they might not have had the same opportunity for end-of-life care planning. So we really wanted to focus on those who had the poorest prognoses. Dr. Shannon Westin: It's a really large group of people and, I think, hopefully fairly representative. I guess my question is, when you're looking at the group that you were able to kind of pull from in this retrospective database, which I think can sometimes be limited, do you feel like it was fairly representative of the population that's out kind of across the States, let's say? Dr. Chun Chao: So I think it's a real strength that we included two different care settings in this study, so a tertiary cancer center and community-based cancer care. Therefore, patients who seek care in each of these settings are representative in our study. I think this design really increased the generalizability of our findings. And on a further note, in this study, we actually observed very similar care patterns across all three study settings. So that was quite reassuring. Dr. Shannon Westin: So reassuring. And I think it brings up a point that I wanted to make, and I also agree was a strength of your study, is having that across the academic center and then a large integrated health plan. And I guess I'm just curious how your collaboration came to be to kind of come across different groups and, of course, the inclusion of Mallory from the patient advocate side. I think this is a testament to your powers of collaboration. I'd just be interested in how that kind of came to be. Dr. Chun Chao: So this goes back to almost 10 years ago. I think, at that time, people started to really recognize that adolescent and young adults with cancer were a very understudied group, but they are also very challenging to study. So, for example, AYA cancers, adolescent and young adult cancers, are fortunately not very common. Although the number is increasing, you do need a large population base to study them. So, at that time, researchers at Integrated Health Systems started to really see that we had an opportunity here to really contribute to this knowledge gap, leveraging the resources that we had at these health systems, especially the ones that have a very large membership and a long-term retention of these members and also a comprehensive electronic medical record system.  At that time, my colleague and I published a study that demonstrated the feasibility of using these resources to do follow-up studies of long-term health outcomes of AYAs with cancer. And I think that we might have attracted people's attention to utilizing the resources at these health systems to do such studies. So Jenny was the one who really saw the need or the lack of data or the need of high-quality data to really improve care for our AYAs who are at that end-of-life stage. So she reached out to a research network called the Cancer Research Network, who I think that the people there connected Jenny with me because I was also starting to work on long-term health outcomes of AYA cancer survivors, adolescent and young adults. After we talked, we were like, “We have to get this funded. We have to get these questions answered. These questions are so important.” So, as Jenny mentioned, we did a pilot study that really showed there is a lot of burden of medical intensive care at the end of life for our young patients. And, as often is true with research, this opens up a lot more additional questions that we needed answers for. So we have been working together since then.  Mallory Casperson: I came into this group sort of by accident. My background is in engineering. I was about halfway through a PhD when I needed to leave a couple years outside of my first cancer diagnosis. And I was at ASCO staffing a booth for my organization and just happened to meet a researcher from Kaiser Permanente Northern California, and the rest is history. That introduction sort of got me into this world, and, once you know one person, you get to meet others. And it's just been a really, really wonderful opportunity to help, I think, insert the patient voice. But also, for me, I just love research and data. And so getting to help advance the conversations happening around adolescent and young adult care in this research setting and in these settings where we are getting to look at very large datasets has just been really, really wonderful. Dr. Shannon Westin: These are my favorite parts of these podcasts, these stories of how things kind of came to be. And, at the risk of taking too much time there, I love the story, and I'm so in awe of you guys.  I guess, let's get to the bottom line. What did you guys find? Did you find what you expected in regards to advanced care planning and goals of care in this population? Dr. Jennifer Mack: So we felt that most patients had documented discussions about prognosis, about goals of care, about palliative care, hospice, and their preferred location of death before they died. Dr. Shannon Westin: So I was actually kind of impressed at that. It seemed like a lot. I was expecting—I don't know what I was expecting, but I think I was expecting less documented discussions because, in my own practice, I don't necessarily think I do a great job of this. So was that in line? Were you expecting to see such kind of high levels of documentation? Dr. Jennifer Mack: I really agree with you. I was impressed with the fact that most patients had these discussions. Many of them had more than one discussion about their goals of care. So their providers were going back and having follow-up discussions, making sure that their goals of care were the same and weren't changing over time. So I agree. I was pleasantly surprised with how often these were happening.   I would say I'd love to see these discussions either happening with everyone or at least offered to all patients so that they can say whether they want to have them or not. So, in this study, 17% of patients never had a discussion about goals of care. And non-white and Hispanic patients had lower rates of discussions than white patients. So there are some potentially important gaps here that need attention. But I also think you're right; there's a lot of good news here. Clinicians are making consistent efforts to talk with patients about their wishes for care, and then they're documenting them, which is an important thing because it allows those wishes to be known by everybody on the care team and helps to ensure that they're going to be carried out. Dr. Shannon Westin: I was also intrigued by the finding of the younger patients having earlier discussions around advanced care planning and hospice and goals of care. Any thoughts as to why that might be? Again, I felt like it was a little bit opposite of what I was expecting, not having a ton of background in the area.  Dr. Jennifer Mack: I was surprised, too. We had to check the numbers a couple of times just to be sure because it wasn't what I was expecting. And we don't know for sure what the reason for this is, but I think one possibility is that some of these discussions with the youngest patients, or for the youngest patients, are happening with family members, maybe their parents. And it's possible that clinicians are a little more comfortable or more likely to talk with parents than with the young patients themselves. And so that could actually increase rates of discussions for that group.  One thing we didn't assess was who was there for the discussions. It's not always documented. There's more to learn there about who was there and more about what was discussed. But that was our guess is that these may be family discussions more so than patient discussions. Dr. Shannon Westin: That really makes a lot of sense. And then I guess the next natural question is when we have these earlier goals-of-care discussions or when we have these discussions at all, what did you guys see on the impact of those kind of medical interventions that happened after? Dr. Jennifer Mack: Yeah. We found that when goals-of-care discussions happened earlier, more than a month before death, that adolescents and young adults were less likely to receive some of these intensive measures that we've talked about, so less likely to receive late-life chemotherapy, care in the intensive care unit and emergency room, and less likely to be hospitalized in the last month of life. So, even though these findings were observational, it creates the potential that having discussions earlier can help reduce some of these intensive measures and refocus care on palliation, if that's what patients are looking for. Dr. Shannon Westin: I think that's a really important point because we often bring our own thoughts and beliefs into the care of our patients and think, “Well, I wouldn't want those things.” And I think making sure we know where the patient is—and Mallory, I'd just be interested to get your thoughts here. How do we best approach those things and try to avoid—you know, we want to give advice where advice is needed, and we want to make it clear what the goals or what the potential successes might be. But I'd be really interested to hear your thoughts around framing those discussions and making sure that people understand what can be gained from those types of intensive treatments. Mallory Casperson: Yeah. I think it's important with patients in this situation—and it was discussed in the paper, but the idea of timing, how frequently are we having these care preference types of conversations, and how often are we reframing things with the patient based on how goals might be changing? I think that's a huge piece of the equation because, especially when we're talking about 30 days before death, 60 days before death, things might change quite rapidly from week to week and so having some of those things in mind.  And then it wasn't discussed as much on this paper, but it definitely has been in other work by both of these authors, as well as other just end-of-life research, but this idea of who is in the room for these conversations, I think, is another really important piece of this. Because a caregiver might have different preferences and goals than a patient. If a patient is 15 versus a patient is 25 versus a patient is 39 is also going to change things, and it's going to change the perspective that their caregivers bring to the equation. And so I think who is in the room and how are we doing that very difficult thing of weighing people's opinions in the situation, I think, is very complicated and also very important to figure out. Dr. Shannon Westin: And I think that that leads to my next question: How do we get more of that information? What do you think are the next steps for this particular work? And also, I would just say, how do we guide that? I mean, I struggle with these conversations. It doesn't matter if my patient is 22 or 82. I think trying to meet people where they are is one of the critical pieces. So what's next for this work? How do we help inform these discussions for the caregivers and for their providers? Dr. Jennifer Mack: I think you're right that we do think an important next step is promoting earlier discussions about goals of care and advanced care planning, partly because it gives patients time to reflect on what's important to them, to digest the news, and then make thoughtful decisions that are best for them. But from a research perspective, I think, as we do that, we need to understand more deeply what adolescents and young adults want from these conversations. What topics should be addressed, with whom, and how should they be discussed? And we've also learned from other work, including work that the three of us have done together, that goals of care for adolescents and young adults aren't always as simple as wanting care focused on palliation or prolonging life, this kind of binary thing. Often, there are these other equally important goals, like making sure their loved ones are okay, what's going to help them the most, having opportunities to nurture and deepen their relationships, and finding ways to attain their life goals and meaning while they're living with advanced disease.  So all of these different aspects, which aren't always a typical part of goals-of-care conversations, could be integrated to help support the kind of wider goals that are held by adolescents and young adults with cancer.   Mallory Casperson: I think, too, adding to that, we've talked about how AYA patients' goals of care have changed over time. So I think timing is a thing that could be added into future work, which is a difficult thing, I think, to gather from some of these records sometimes. But also, I think thinking through what these different words mean to different populations and how we're defining them is really important, too. So just an example outside of end-of-life care: When you tell a 30-year-old who's going through cancer that exercise is important during treatment and you talk to a 70-year-old going through cancer that exercise is different, that means different things, and they themselves have different context around what that word means in their normal life. And so I think when we throw out words like “palliation,” “palliative care,” and just general end-of-life conversations, that the same context applies. When an AYA agrees that maybe palliative care is the goal, what does that mean to them, and what are they bringing to the conversation in terms of their younger perspective than an older population that we're potentially more used to working with? So I think framing these ideas and how they might differ between populations is another thing that would serve as future work in this AYA end-of-life care space. Dr. Shannon Westin: Great. Well, thank you all so much. The time just flew by. This was such a great discussion of an incredible topic, and I just want to thank you all again for your hard work in this space.   And thank you to all of our listeners. Again, we were discussing the manuscript “Discussions About Goals of Care and Advanced Care Planning Among Adolescents and Young Adults With Cancer Approaching the End of Life.” And this is published in the JCO, so go check it out. And please do go check out our other podcast offerings and tell us what you think on Twitter. We'll see you next time. The purpose of this podcast is to educate and to inform. This is not a substitute for professional medical care and is not intended for use in the diagnosis or treatment of individual conditions. Guests on this podcast express their own opinions, experience, and conclusions. Guest statements on the podcast do not express the opinions of ASCO. The mention of any product, service, organization, activity, or therapy should not be construed as an ASCO endorsement.

On this episode hosted by Natalie Cordero, the Director of the Center for Biologics Evaluation and Research (CBER) at the Food and Drug Administration, Dr. Peter Marks, joins us to discuss how the FDA is keeping adolescents and young adults in mind as they continue to tackle vaccine development.  

From the beginning of the COVID-19 pandemic to now, the world has experienced an immense amount of change in our healthcare systems. One important lesson remains: vaccinations save lives. On this episode of FACTSinnated, Dr. Walter A. Orenstein discusses the importance of staying up-to-date on COVID-19 immunizations and booster shots, where and when adolescents and young adults can get vaccinated, and recurrent themes in vaccine hesitancy. Join us for this exciting new episode, streaming now!  Resources provided by Dr. Orenstein: Plotkin's Vaccines - Seventh Edition, Dr. Walter A. Orenstein Centers for Disease Control and Prevention International Vaccine Access Center Vaccinate Your Family National Adult and Influenza Immunization Summit Vaccine Education Center at CHoP National Foundation for Infectious Diseases Visit our website and connect with us on the following platforms:                                                                        Twitter, Instagram, TikTok, Youtube, LinkedIn, and Facebook. 

Leeanne West became the President of the International Children Advisory Network in 2018. This non-profit has 36 chapters in the United States, Canada, and Africa and its focus is to help empower children, adolescents, and young adults to make their own decisions concerning their individual health care battles. These chapters all have a Youth Council, a Young Professionals Group, a Siblings Group, and a Parents Group.  The chapters are associated with hospitals near where they are located, and are very supportive of the goal in helping these patients gain the knowledge and experience that they will need as they try and control as many of the decisions that have to be made in their individual health situations. Many of these situations involve Pediatric Cancer. 

Adolescents and young adults are a critical age group for preventive healthcare and vaccination. On this episode of FACTSinnated, we welcome Dr. John Santelli to discuss the importance of teen health outcomes, specifically in the context of clinical preventive services and routinely recommended vaccines, and how parents and healthcare providers can support and advocate for the access to these services. Follow Unity Consortium on LinkedIn, Instagram, Facebook, TikTok, Youtube, and Twitter, or visit our website at www.unity4teenvax.org.

I haven't worked with many adolescents and young adults (AYA, roughly teens to twenties).  But when I have, I find that they're often some of the hardest patients to care for.  Why?  We talk about why it's so hard with Abby Rosenberg (chief of PC at DFCI and Boston Childrens), Nick Purol (clinical social worker at DFCI and Boston Childrens), Daniel Eison (pediatric PC doc and co-host of PediPal).  We are grateful to Andrea Thach (PC doc at Sutter East Bay) for bringing this topic to our attention and for asking questions as a guest host.  Here are just a few of the explanations for why it's so hard: They are closer in age to some of us (younger clinicians).  Countertransference hits hard. There's an in-between space between adolescence and adulthood - and there's something that we identify with in that in-between space, tugging at our heart strings Everyone has been a teenager.  Everyone has lived through their early 20s.  Every member of the interdisciplinary team.  Adolescence and young adulthood is a romanticized time of life in our culture.  We remember bucking the rules, figuring out who you are, hair on fire, feeling invulnerable, trying to figure out who you are - and now those adolescents are stuck in the hospital, with doctors and parents telling them what to do, having their autonomy crushed by the medical institution, realizing they're not invulnerable. We talk about these issues and more - what resources to leverage, how to cope as a team.  We in geriatrics and adult palliative care clinicians have so much to learn from our colleagues in pediatrics - and though many of these lessons are specific to adolescents and young adults - many of the lessons are valuable for the care of patients in older life stages. Links to resources for working with AYA, from Nick Purol): The Courageous Parents Network has a wealth of information/resources/videos/articles on many overlapping issues and topics related to caring for children/adolescents/young adults with serious illness (from both the provider and clinician perspective): https://courageousparentsnetwork.org Courageous Parents Network Empowering parents caring for children with serious illness through video, shared community, professional guidance, and palliative care. You are Not Alone. courageousparentsnetwork.org   Voicing My Choices is a wonderful tool for discussing goals/wishes and introducing advance directives in the context of serious illness. It's based off 5 Wishes and validated for AYA through direct feedback from the population: https://store.fivewishes.org/ShopLocal/en/p/VC-MASTER-000/voicing-my-choices The Oxford Textbook of Palliative Social Work has several chapters relating to working with AYA (either due to family illness or their own), with many psychosocial clinicians in our field contributing: https://www.amazon.com/Oxford-Textbook-Palliative-Social-Work/dp/0197537855 Same is true for the Interdisciplinary Pediatric Palliative Care Textbook: https://www.amazon.com/Interdisciplinary-Pediatric-Palliative-Joanne-Wolfe/dp/0190090014/ref=sr_1_1?crid=33YG2UAKDZ8DO&keywords=interdisciplinary+pediatric+palliative+care&qid=1682288312&s=books&sprefix=interdisciplinary+pediatric+palliative+car%2Cstripbooks%2C101&sr=1-1&asin=0190090014&revisionId=&format=4&depth=1 -@AlexSmithMD

The mental health of young people in the US has been an issue of increased concern in recent years. In this podcast, author Tanner Bommersbach, MD, MPH, assistant professor in the Department of Psychiatry and Psychology at the Mayo Clinic in Rochester, Minnesota, and Greg Rhee, PhD, a health services researcher and pharmacoepidemiologist at the University of Connecticut, join JAMA Senior Editor Kristin Walter, MD, MS, in a discussion about mental health-related emergency department visits in the US among children, adolescents, and young adults from 2011-2020. Related Content: National Trends in Mental Health–Related Emergency Department Visits Among Youth, 2011-2020

In this podcast, author Paula Chagas discusses her paper 'Development of children, adolescents, and young adults with cerebral palsy according to the ICF: A scoping review' The paper is available to read here: https://onlinelibrary.wiley.com/doi/10.1111/dmcn.15484  Subscribe to our channel for more:   https://bit.ly/2ONCYiC    ___  Listen to all our episodes:  https://bit.ly/2yPFgTC   __  DMCN Journal:  Developmental Medicine & Child Neurology (DMCN) has defined the field of paediatric neurology and childhood-onset neurodisability for over 60 years. DMCN disseminates the latest clinical research results globally to enhance the care and improve the lives of disabled children and their families.    DMCN Journal - https://onlinelibrary.wiley.com/journal/14698749  ___    Watch DMCN videos on our YouTube channel:  https://bit.ly/2ONCYiC    Find us on Twitter!  @mackeithpress - https://twitter.com/mackeithpress 

https://psychiatry.dev/wp-content/uploads/speaker/post-11217.mp3?cb=1671157429.mp3 Playback speed: 0.8x 1x 1.3x 1.6x 2x Download: Psychotropic Medication Use and Psychiatric Disorders During the COVID-19 Pandemic Among Danish Children, Adolescents, and Young Adults – Mette Bliddal et al.Full EntryPsychotropic Medication Use and Psychiatric Disorders During the COVID-19 Pandemic Among Danish Children, Adolescents, and Young Adults –

In this podcast, we talk to Dr. Jessica Hamilton and Dr. Peter Franzen about their recent co-authored JCPP paper, ‘Sleep influences daily suicidal ideation through affective reactivity to interpersonal events among high-risk adolescents and young adults'.

Dr. Archie Bleyer is a well known and highly respected member of the Cancer Community.  On today's podcast Dr. Bleyer will talk about his 10 years as the Chair of the Children's Cancer Group in the 1990's and some of the accomplishments that he oversaw during this time period. Dr. Bleyer will then discuss his focus that began over 20 years ago on the issues that the "forgotten" age group of 18-39 Adolescents and Young Adults that are diagnosed with different forms of cancer each year have to deal with. In the United States, there are 90,000 AYA's that fall into this category. 

https://psychiatry.dev/wp-content/uploads/speaker/post-9444.mp3?cb=1662481157.mp3 Playback speed: 0.8x 1x 1.3x 1.6x 2x Download: Sexual and Reproductive Health in Adolescents and Young Adults With Psychotic Disorders: A Scoping Review – PubMed Mark L Vickers et al.Full EntrySexual and Reproductive Health in Adolescents and Young Adults With Psychotic Disorders: A Scoping Review – PubMed

Adolescence is a unique and formative time. Protective and supportive environments in the family, at school and in the wider community are important for developing social and emotional habits important for mental well-being. In Denmark, there are a number of ways that support can be found for ensuring good mental health for the youth in our communities. On the podcast today, our mental health expert Meghna Sckerl talks with Psychologist Pernille Ertner who has specialised in helping young adults thrive in their everyday life. We find out more about Pernille's work of over 20 years and also tips on accessing and navigating the system in Denmark. Hope you enjoy the show and support us with a like, follow or comment. * * * You can reach Pernille Ertner on the following links: Web: https://pernilleertner.dk/ Facebook: www.facebook.com/pernilleertnercom/ Instagram: www.instagram.com/pernilleertner/ * See below some of the links we talked about during the podcast: Headspace.dk - Voluntary organisation that offers someone to talk to for young people between the age of 12 and 25 years (this is a different organisation from Headspace.com) Ventilen: National voluntary organisation tackling loneliness among the young. https://ventilen.dk/ Specialist Associations (In Danish 'Foreninger') ADHD Forening: adhd.dk Autism Spectrum: www.autismeforening.dk OCD: ocd-foreningen.dk Look for qualified Psychologists and Psychiatrists on Sundhed.dk (Ydre number means that the specialist takes references from the doctor and payment is made by the state.) Look for qualified Psychotherapists on psykoterapeutforeningen.dk/find-terapeut/ * You can reach Mental Space on the following Links: Web: greendooraps.wixsite.com/mentalspace Facebook: www.facebook.com/mentalspacedk Instagram: www.instagram.com/mental.space.dk/ * You can reach Tremella Community on tremellaradio.dk or tremellaradio.eu * You can reach Meghna Sckerl on the following links: Web: www.green-door.com Facebook: www.facebook.com/TherapyIsForEveryone Instagram: www.instagram.com/its.psycho.logical * Photo by Devin Avery on Unsplash

Alberto Costa (Case Western Reserve University, Cleveland, OH, USA) discusses his study on the use of memantine in adolescents and young adults with Down syndrome, which is published in the January issue of The Lancet Neurology.Read the full article:https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(21)00369-0/fulltext

Today we talk to Andrea Smith (again, and what a pleasure) @andidsmith (Twitter: @AndreaD_Smith) about food and drink preferences in adolescents and young adults, as well as the the work she did on the RESIST trial, about cutting sugar in tea presented at ECO in Glasgow in 2019 “Cutting sugar in tea -late breaking abstract poster LBP1.23” https://eco-newsletter.co.uk/media-highlights-from-monday-29-april/ Hoy hablamos con Andrea Smith (de nuevo, y que placer) @andidsmith (Twitter: @AndreaD_Smith) sobre las preferencias alimentarias y de bebidas en los adolescentes y adultos jóvenes, así como el trabajo que hizo en el ensayo RESIST, sobre la reducción de azúcar en el té presentado en ECO en Glasgow en 2019 "Cortar el azúcar en el té: póster abstracto para romper el tarde LBP1.23" https://eco-newsletter.co.uk/media-highlights-from-monday-29-april/ You can watch this video on YouTube/Puedes ver este video en YouTube: Or listen to it on your favourite podcast platform/ o escuchar en tu plataforma de podcast favorita: Don't forget to see/watch this episode of #alimentosyemocionespodcast, like the video/podcast, activate the notificationsand leave a comment. No se les olvide escuchar/ver este episodio de #alimentosyemocionespodcast, darle like video/podcast, activar las notificacionesy dejar un comentario. Remember/Recuerda: #nosseguimosnutriendo #wecontinuetonourisheachother #alimentosyemociones #podcast #alimentosyemocionespodcast #appetitivetraits #rasgosdelapetito #appetite #apetito #appetitequestionnaires #BEBQ #CEBQ #AEBQ

Learn from a sibling's perspective, that of Nick Giallourakis, about the cancer diagnosis of his brother Steven at age 15.   The family came together and established the Steven G. Cancer Foundation to raise money for cancer research. Nick now serves as Executive Director of Elephants and Tea,  a media company designed to build awareness of and help adolescents and young adults with cancer.  Now, 16 years later, Steven has survived four cancer diagnoses...and the family continues to work together to help teens and young adults with cancer. Listen to the Don't Give Up on Testicular Cancer podcast from the Max Mallory Foundation.  Support the show (https://www.patreon.com/bePatron?u=60247613)

Join us for the second episode in the two-part pediatric series Kids Coping with COVID-19: Adolescents and Young Adults. Host Dr. Vanessa Raabe welcomes Nancy Larson, Behavioral and Mental Health Nurse at Children's Healthcare of Atlanta, to discuss the ongoing impact of the COVID-19 pandemic on adolescents and young adults today. Together they highlight various strategies and resources that parents, teachers, and healthcare workers can use to help adolescents and young adults cope with the difficult challenges they face during this crucial time in their development. Questions or comments for NETEC? Contact us: info@netec.orgFind us on the web: netec.orgHostVanessa N. Raabe, MDAdult and Pediatric Infectious Disease PhysicianNYU Grossman School of MedicineGuestNancy LarsonBehavioral and Mental Health NurseChildren's Healthcare of AtlantaResourcesCOVID-19-Associated Orphanhood and Caregiver Death in the United States: https://pediatrics.aappublications.org/content/early/2021/10/06/peds.2021-053760National Alliance on Mental Illness: https://www.nami.org/HomeNETEC COVID-19 Novel Coronavirus Resources: https://repository.netecweb.org/exhibits/show/ncov/ncovNETEC COVID-19 Webinar Series Playlist: https://www.youtube.com/playlist?list=PL5JyGXQ8MP0TZXU2Ldy-jzjLuUNfFX8JZNETEC Resource Repository: https://repository.netecweb.org

From the 26th and 29th of October, I will be co-hosting the EPF Congress 2021, brought to you by the European Patients' Forum. This year's topic is the digital transformation of healthcare. Speakers from across Europe and organisations such as WHO, German Federal Ministry of Health, European Medicine's Agency, EIT Health, BMJ and more are going to discuss the state of digitalization in Europe, with a heavy focus on the patient perspective. The event will be moderated by me and Ivett Jakab, who is the president of the European Patients' Forum's Youth group. In this short special episode, you will get to know Ivett, who was diagnosed with a rare disease called Wilson's disease at the age of 16 and underwent a liver transplant as a consequence. In this episode, Ivett shared her story, the meaning and power of the EPF Youth group and why patients between 15 and 29 are such an underserved group, what are the specifics of this age group and more.  If you're working in pharma or digital health and would like to work with the EPF Youth Group, learn more about EPF by visiting www.eu-patient.eu. To learn more about the EPF YG: https://www.eu-patient.eu/about-epf/about-us/Youth-Strategy/ Young patient employment project (WAYS) results: https://www.eu-patient.eu/about-epf/about-us/Youth-Strategy/ways/ Contact the EPF YG via youthgroup@eu-patient.eu  Registration and Programme details for the EPF Congress 2021 at www.epfcongress.eu Follow the Congress on Twitter by following #EPFCongress2021

Adolescents and Young Adults with Sickle Cell Disease with guest Dr. Cece Calhoun August 29, 2021 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095

Adolescents and Young Adults with Sickle Cell Disease with guest Dr. Cece Calhoun August 29, 2021 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095

Adolescents and Young Adults with Sickle Cell Disease with guest Dr. Cece Calhoun August 29, 2021 Yale Cancer Center visit: http://www.yalecancercenter.org email: canceranswers@yale.edu call: 203-785-4095

Nurse practitioners Audrey Stevenson and Mary Koslap-Petraco speak with two members of the Meningitis B Action Project about how this disease has impacted their lives and steps we can take to protect our young adults.   Resources from this episode: Free CE Course: aanp.org/menb Health Promotion Resources: aanp.org/clinical 2021 AANP Fall Conference: aanp.org/fall21   Join AANP Today: join.aanp.org   This activity is supported by an educational grant from GlaxoSmithKline.

Gender Dysphoria: A Therapeutic Model for Working with Children, Adolescents and Young Adults (Phoenix Publishing House, 2021) by Susan and Marcus Evans is an uncomfortable book on the politically and clinically contested subject of gender dysphoria in young people. From their psychoanalytically informed perspective, gender dysphoria is a developmental disorder that looks to control ordinary developmental processes by employing primitive psychological mechanisms, much like a psychic retreat in John Steiner's sense. By firmly asserting basic psychoanalytical tenets like the inevitability of psychic pain in coming to terms with the developing sexual body or the need to take psychodynamic account of so called comorbidities, they question a one-size-fits-all affirmative approach to adolescent gender dysphoria and the wish to transition. Rather they offer a model of psychotherapeutic treatment for the complex difficulties faced by some gender-dysphoric teens that they elaborate in a rich array of case descriptions. There are many issues with their approach that are being discussed in the interview: What is the use of offering psychotherapy, let alone psychoanalysis, to a population that wants no part of it? How do we stay in an analytic position of curiosity, doubt and uncertainty when faced with demands to act either in favor or against medical transitioning? And why do they focus almost exclusively on de-transitioners in their clinical narrative? Listen to the conversation to hear their perspective on these and other problems. Sebastian Thrul is a psychiatrist and psychoanalyst in training in Germany and Switzerland. He can be reached at sebastian.thrul@gmx.de. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/new-books-network

Gender Dysphoria: A Therapeutic Model for Working with Children, Adolescents and Young Adults (Phoenix Publishing House, 2021) by Susan and Marcus Evans is an uncomfortable book on the politically and clinically contested subject of gender dysphoria in young people. From their psychoanalytically informed perspective, gender dysphoria is a developmental disorder that looks to control ordinary developmental processes by employing primitive psychological mechanisms, much like a psychic retreat in John Steiner's sense. By firmly asserting basic psychoanalytical tenets like the inevitability of psychic pain in coming to terms with the developing sexual body or the need to take psychodynamic account of so called comorbidities, they question a one-size-fits-all affirmative approach to adolescent gender dysphoria and the wish to transition. Rather they offer a model of psychotherapeutic treatment for the complex difficulties faced by some gender-dysphoric teens that they elaborate in a rich array of case descriptions. There are many issues with their approach that are being discussed in the interview: What is the use of offering psychotherapy, let alone psychoanalysis, to a population that wants no part of it? How do we stay in an analytic position of curiosity, doubt and uncertainty when faced with demands to act either in favor or against medical transitioning? And why do they focus almost exclusively on de-transitioners in their clinical narrative? Listen to the conversation to hear their perspective on these and other problems. Sebastian Thrul is a psychiatrist and psychoanalyst in training in Germany and Switzerland. He can be reached at sebastian.thrul@gmx.de. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/psychology

Gender Dysphoria: A Therapeutic Model for Working with Children, Adolescents and Young Adults (Phoenix Publishing House, 2021) by Susan and Marcus Evans is an uncomfortable book on the politically and clinically contested subject of gender dysphoria in young people. From their psychoanalytically informed perspective, gender dysphoria is a developmental disorder that looks to control ordinary developmental processes by employing primitive psychological mechanisms, much like a psychic retreat in John Steiner's sense. By firmly asserting basic psychoanalytical tenets like the inevitability of psychic pain in coming to terms with the developing sexual body or the need to take psychodynamic account of so called comorbidities, they question a one-size-fits-all affirmative approach to adolescent gender dysphoria and the wish to transition. Rather they offer a model of psychotherapeutic treatment for the complex difficulties faced by some gender-dysphoric teens that they elaborate in a rich array of case descriptions. There are many issues with their approach that are being discussed in the interview: What is the use of offering psychotherapy, let alone psychoanalysis, to a population that wants no part of it? How do we stay in an analytic position of curiosity, doubt and uncertainty when faced with demands to act either in favor or against medical transitioning? And why do they focus almost exclusively on de-transitioners in their clinical narrative? Listen to the conversation to hear their perspective on these and other problems. Sebastian Thrul is a psychiatrist and psychoanalyst in training in Germany and Switzerland. He can be reached at sebastian.thrul@gmx.de. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/psychoanalysis

This podcast describes the findings from a population-based retrospective decedent cohort study which suggest that palliative care involvement may be associated with a decreased need for high intensity of care during the final weeks of life in adolescents and young adults with cancer.   TRANSCRIPT This JCO Podcast provides observations and commentary on the JCO article “Impact of Palliative Care Involvement on End-of-Life Care Patterns Among Adolescents and Young Adults with Cancer: A Population-Based Cohort Study” by Kassam et al. My name is Erica Kaye, and I am Director of the Quality of Life and Palliative Care Research Division at St. Jude Children's Research Hospital in Memphis, Tennessee, USA. My oncologic specialty is pediatric palliative oncology. In this paper, the authors aim to evaluate the prevalence and predictors of high-intensity end-of-life care in adolescents and young adults with cancer in Ontario, Canada, as well as assess the impact of palliative care involvement on intensity of care received at end of life. This topic is timely and important. Growing evidence demonstrates that adolescents and young adults with cancer, defined by the National Cancer Institute as patients diagnosed between the ages of 15 and 39, face a unique set of circumstances that may adversely impact their end-of-life experiences. Several single-institution studies in the U.S. have suggested that adolescents and young adults with advanced cancer disproportionately receive high intensity medical care in their final month of life compared to children or older adults, and these findings recently have been replicated in population-level studies in California and New York. These observations raise concerns about exposure of a vulnerable population to toxicity from high intensity care at a time when such interventions are less likely to offer meaningful benefit. However, these studies had several notable limitations: some involved only insured patients; others presented data only from inpatient end-of-life care; and none evaluated the impact of palliative care provision on the intensity of end-of-life care for adolescents and young adults with cancer. Moreover, findings from U.S.-centric data sets may not be generalizable to other countries. In this study, the authors assembled a retrospective decedent cohort of adolescents and young adults with cancer who died between 2000 and 2017 in Ontario, Canada using a provincial registry linked to population-based health-care data. Predicated on previously published validated metrics, they used a primary composite measure for high-intensity end-of-life care that included receipt of intravenous chemotherapy less than 14 days from death; more than one emergency department visit; and more than one hospitalization or intensive care unit admission less than 30 days from death. Secondary outcomes included measures of the most intensive end-of-life care, such as intensive care unit admission within 30 days of death, mechanical ventilation within 14 days of death, and death in the ICU, as well as palliative care physician involvement. Predictors of outcomes were determined using regression models. In a cohort of more than 7,000 adolescents and young adults with cancer across Ontario, authors found that approximately 44% experienced high-intensity end-of-life care – double the rate for adults and slightly higher than the rate for children in the region. This percentage is lower than that seen in single-site and population-level studies in the U.S., however lack of consistently defined high-intensity end-of-life indicators for adolescents and young adults with cancer make it challenging to compare findings across studies. Importantly, adolescents and young adults with hematologic malignancies were at highest risk for receipt of high-intensity care at the end of life in Ontario, affirming findings seen across pediatric and adult populations in different countries. Some hypothesize that unique pathologies specific to hematologic malignancies may increase the risk of experiencing higher intensity end-of-life care. For example, a patient with refractory leukemia often requires frequent blood transfusions to prolong life and optimize quality time; this can be challenging to coordinate in the outpatient setting and may necessitate inpatient hospitalizations at the end of life. In both the U.S. and Canada, continuation of transfusion support often precludes hospice enrollment, further preventing patients from receipt of subspecialty palliative care in the home. In this context, legislation to support concurrent provision of palliative and hospice care with cancer-directed therapy may have the potential to mitigate high-intensity end-of-life experiences for this vulnerable patient population. This study also found that palliative care physician involvement substantially reduced the odds of adolescents and young adults with cancer receiving high-intensity end-of-life care, including the most intensive experiences such as mechanical ventilation and dying in the intensive care unit. Palliative care physicians may lessen intensity of end-of-life care by promoting conversations about goals of care and advance care planning, coordinating complex medical care in the community, and providing real-time symptom management to decrease emergency visits or hospitalizations. However, further research is needed to explore these hypotheses. Ultimately, this study provides compelling evidence that palliative care involvement may lessen the risk of high-intensity end-of-life care in adolescents and adults with cancer. Unfortunately, universal access to subspecialty palliative care remains challenging, particularly in rural regions. Disparities in access to hospice and palliative care services for racialized communities remain deeply problematic as well. This study supports the need for institutional and regional programs and policies to provide equitable access to palliative care for adolescents and adults with cancer. Strengths of this study include its population-level design, large health services dataset, and use of relatively standardized indicators for defining high-intensity end-of-life care. Study limitations include its retrospective design, which inherently precludes causal inference. Additionally, involvement of a palliative care physician was used as a proxy for integration of subspecialty palliative care; however, subspecialty palliative care is an interdisciplinary field in which care may be provided by non-physicians, and the study did not account for this phenomenon.   Lastly, the study is predicated on certain assumptions about the negative ramifications of high-intensity end-of-life care. Notably, certain experiences categorized as high-intensity care, such as more than one hospitalization during the final month of life, may not be experienced as high-intensity or burdensome by patients or families. An adolescent patient may wish to be hospitalized on multiple occasions to optimize comfort at the end of life. Or a family may request hospitalization for respite, or to protect siblings from seeing suffering at end of life. Although technically high-intensity, these interventions also may represent goal-concordant comfort care, and further research is needed to determine best practices for optimizing care that aligns with the goals of adolescents and young adults at end of life. This concludes this JCO Podcast. Thank you for listening.

MIB Agents OsteoBites S2 Ep 10: Sumit Gupta, MD, PhD, FRCPC “Long Term Mental Health Outcomes in Adolescents and Young Adults with Cancer” ... Guest Information: Sumit Gupta, MD, PhD, FRCPC Hospital for Sick Children, Staff Oncologist and Clinician Investigator University of Toronto, Associate Professor Institute for Health Policy, Management and Evaluation, Associate Professor Cancer Research Program at the Institute for Clinical Evaluative Sciences, Adjunct Scientist Dr. Gupta completed a PhD in Clinical Epidemiology from the University of Toronto, during which time he was supported by a CIHR Fellowship Award. He is one of the Assistant Chairs of the Lancet Oncology Commission on Sustainable Pediatric Cancer Care in low and middle income countries. Sumit has worked extensively with pediatric oncologists and policymakers throughout Latin America, the Caribbean, and India. He currently holds grant funding from The Garron Family Cancer Centre, CIHR and the Terry Fox Research Institute.Sumit Gupta, MD, PhD, FRCPC ... Panelists Amy Woodcheke, Physicians Assistant and Childhood Cancer Survivor Mia Sandino, MIB Junior Board Member and OsteoWarriors Ann Graham, OsteoWarrior & Executive Director of MIB Agents ... Coming up next week is Dr. Ines Lohse of University of Miami, Sylvester Comprehensive Cancer Center talking with us about “Drug Sensitivity Testing for the Treatment Stratification of Cancer Patients” ... MIB Agents is a leading pediatric #osteosarcoma nonprofit dedicated to Making It Better for our community of patients, caregivers, doctors, and researchers with the goal of less toxic, more effective treatments and a cure for this aggressive bone cancer. More information at www.mibagents.org ... Register: https://bit.ly/MIBobites Osteosarcoma Resources: www.MIBagents.org/contact Link Mentioned on this episode on ASCO BLOG: Addressing the Mental Health Needs of Adolescent and Young Adult Cancer Survivors https://connection.asco.org/blogs/addressing-mental-health-needs-adolescent-and-young-adult-cancer-survivors --- Support this podcast: https://anchor.fm/mibagents/support

Dr. Akiva Perlman, PhD. Clinical Director at ODA Wellness Institute, and expert on sexual abuse, addresses the topic in a crucial and informative but sensitive manner. --- Support this podcast: https://anchor.fm/upwardcommunity/support

There is a lot of misinformation about vaccinations on the web, especially on sites like reddit. Kelly Danielpour started VaxTeen which is specifically aimed at advocating for teen's rights when it comes to vaccine information. Kelly will talk about the importance of minor's being immunized and what steps teen's themselves can take to fight against vaccine misinformation.

Hello and Welcome to the Urology COViD Lecture Series Podcast! Brought to you by the UCSF Department of Urology. In today's episode, we have Dr. Anne Dudley from Connecticut Children's Medical Center and University of Connecticut School of Medicine talking about Urologic Care of Adolescents and Young Adults. Learn more by visiting our website! urologycovid.ucsf.edu.

Unique challenges for young people with NETs Facing a diagnosis of neuroendocrine cancer, when you are a teenager or young adult, presents unique medical, social, financial, and even fertility challenges. How do you navigate the healthcare system? Who do you tell about your illness and when? Will you be able to have a career? Can […] The post Episode 11: AYA (Adolescents and Young Adults) and NETs appeared first on NETRF.

It has long been a habit of dentists and oral and maxillofacial surgeons to prescribe narcotics following surgeries such as third molar extraction, with many prescribing as many as 20-30 tablets. A recent study of 105 patients who underwent third molar extraction saw 8 surgeons prescribing 1,773 opioid units, with only 38.4% of those units […]

Social participation, described as taking part in, being involvement and engaged with, and doing or being with others, is an important health outcome. Adolescents and young adults with neurodisability are often restricted in their social participation, particularly if they experience social and executive functioning challenges. A scoping review was conducted to examine interventions aimed at improving social participation in adolescents and young adults with neurodisability characterized by these challenges.

In today’s episode, Althea covers a paper about metacognitive monitoring and differences between adolescents (ages 11-12) and traditional university-aged adults (ages 18-25) when using different learning strategies.

Link to bioRxiv paper: http://biorxiv.org/cgi/content/short/2020.08.20.259697v1?rss=1 Authors: Moutoussis, M., Garzon, B., Neufeld, S., Bach, D., Rigoli, F., Neuroscience in Psychiatry Network,, Guitart-Masip, M., Dolan, R. J. Abstract: Decision-making underpins many important facets of our lives. Here, we assessed if a general ability factor underpins decision-making abilities. Using factor analysis of 32 decision-making measures in 830 adolescents and young adults, we identified a common factor we refer to as 'decision acuity' that was distinct from IQ and reflected advantageous decision-making abilities. Decision acuity decreased with low general social functioning and aberrant thinking. Crucially, decision acuity and IQ had dissociable neural signatures in terms of resting-state functional connectivity involving specific neural networks. Finally, decision acuity was reliable and its relationship with functional connectivity was stable when measured in the same individuals 18 months later. We conclude that our behavioural and brain data demonstrate a new cognitive construct encapsulating ability to perform decision-making across distinct domains, and that the expression of this construct may be important for understanding psychopathology. Copy rights belong to original authors. Visit the link for more info

Link to bioRxiv paper: http://biorxiv.org/cgi/content/short/2020.08.06.236596v1?rss=1 Authors: Baranger, D. A., Lindenmuth, M., Nance, M., Guyer, A. E., Keenan, K., Hipwell, A. E., Shaw, D. S., Forbes, E. E. Abstract: Background: The use of functional neuroimaging has been an extremely fruitful avenue for investigating the neural basis of human reward function. This approach has included identification of potential neurobiological mechanisms of psychiatric disease and examination of environmental, experiential, and biological factors that may contribute to disease risk via effects on the reward system. However, a central and largely unexamined assumption of much of this research is that neural reward function is an individual difference characteristic that is relatively stable over time. Methods: In two independent samples of adolescents and young adults studied longitudinally (Ns = 145 & 153, 100% female & 100% male, ages 15-21 & 20-22, 2-4 scans & 2 scans respectively), we tested within-person stability of reward-task BOLD activation, with a median of 1 and 2 years between scans. We examined multiple commonly used contrasts of active states and baseline in both the anticipation and feedback phases of a card-guessing reward task. We examined the effects of cortical parcellation resolution, contrast, network (reward regions and resting-state networks), region-size, and activation strength and variability on the stability of reward-related activation. Results: Overall, stability (ICC; intra-class correlation) across 1-2 years was modest. In both samples, contrasts of an active state relative to a baseline were more stable (e.g., Win>Baseline; mean ICC = 0.13 - 0.33) than contrasts of two active states (e.g., Win>Loss; mean ICC = 0.048 - 0.05). Additionally, activation in reward regions was less stable than in many non-task networks (e.g., dorsal attention), and activation in regions with greater between-subject variability showed higher stability in both samples. Conclusions: These results show that functional neuroimaging activation to reward has modest stability over 1-2 years. Notably, results suggest that contrasts intended to map cognitive function and show robust group-level effects (i.e. Win > Loss) may be less effective in studies of individual differences and disease risk. The robustness of group-level activation should be weighed against other factors when selecting regions of interest in individual difference fMRI studies. Copy rights belong to original authors. Visit the link for more info

Dr. Hunter is a board-certified psychiatrist in Santa Monica. His private practice offers a variety of services including individual psychotherapy, cognitive behavioral therapy, family therapy, and medication management. Dr. Hunter's expertise is based on rigorous training, extensive knowledge, and a commitment to the highest ethical standards. He has a reputation for compassionate, thoughtful and insightful care, serving children, adolescents, and adults with mood disorders, anxiety disorders, attention-deficit hyperactivity disorder, post-traumatic stress disorder, substance use disorders, and host of other clinical concerns including stress and sleep problems.

Interview with Michael Silverstein, MD, MPH, USPSTF member and coauthor of Primary Care–Based Interventions to Prevent Illicit Drug Use in Children, Adolescents, and Young Adults: US Preventive Services Task Force Recommendation Statement

Sujata Patel—clinical assistant professor of psychiatry and behavioral sciences at Stanford—gives guidance on how to manage difficult topics with kids and teens.

With guest Sujata Patel. How to manage difficult topics with kids and teens. Originally aired on SiriusXM on May 23, 2020.

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