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My guest today is Kim Marsh. Kim watched her mother experience multiple cancers as she was growing up, and then was diagnosed with cancer herself. She shares her own cancer journey, as well as taking care of her mom, and ultimately saying goodbye. You can connect with Kim at lowiodinedietitian.comFor more information about thyroid cancer and a low iodine diet, please go to www.ThyCa.orgI want to get to know you!! Please let me know about you and any takeaways you've gotten from this episode or any other. You can reach me on Instagram @melissagrosboll, email me at drmelissagrosboll@gmail.com, or text me at 720-201-4292.
Happy thyroid cancer awareness month! Becky Johnson and Daria Jerauld join Jessie for this episode where they discuss the low iodine diet (LID) and radioactive iodine treatment (RAI). Becky and Daria lead a LID support group through ThyCa and discuss resources they recommend such as the LID cookbook. Becky and Daria provide an overview of LID, numerous tips around how to navigate the LID period, and discuss their experiences with RAI. Daria went through RAI in 1996, Becky in 2010 and Jessie in 2021 so they share their various experiences with the treatment. Links to resources discussed in the podcast episode:-LID cookbook/app: https://www.thyca.org/pap-fol/lowiodinediet/-LID support groups: https://www.thyca.org/sg/sig-lid/-ThyCa conference (Oct 13-15 2023): https://thyca.org/support/conferences/Please note: This podcast is unedited and represents the opinions, experiences and views of those speaking. Please consult your own medical doctor(s) or therapist for all matters involving your health and medical care.
In this episode, Brittany shares her story about being diagnosed with papillary thyroid cancer at age 13 after losing her voice and then going through a full thyroidectomy followed by 2 additional surgeries for an implant to create a functioning voice for her. She shares about what it felt like to be given this diagnosis at such a young age for both her and her parents, with the added challenge of not knowing any other teens with this diagnosis. She also shares about the impact of being told she was "strong" by others, the pressure this created for her emotionally, and how looking back she wishes she shared more of the difficult emotions that she felt at the time. She is now a facilitator of the ThyCa teen group and is a science policy analyst for a cancer research company.Link for ThyCa support group for teens: https://www.thyca.org/sg/sig-teens/Please note: This podcast is unedited and represents the opinions, experiences and views of those speaking. Please consult your own medical doctor(s) or therapist for all matters involving your health and medical care.
Julie joins me for this episode talking about her journey to diagnosis of PDTC (Poorly Differentiated Thyroid Cancer) around the time of COVID shutdown. She talks about how scared her and her husband felt when they first found out, all the questions they had, and how alone they felt because they didn't know anyone else with PDTC. Julie is now a facilitator for the PDTC support group through ThyCa and talks about the importance of finding support, advocating for yourself, and not reading articles beyond a couple years old. Julie talks about her own process of emotionally adjusting to living with a chronic disease. Link to page for support and email contact (pdtc@thyca.org): https://www.thyca.org/sg/sig-poorly-differentiated/Please note: This podcast is unedited and represents the opinions, experiences and views of those speaking. Please consult your own medical doctor(s) or therapist for all matters involving your health and medical care.
In this episode Gary Bloom (executive director of ThyCa) shares his experience of being diagnosed with thyroid cancer 27 years ago, when treatment for the disease looked very different than it does now. Having initially been diagnosed with sleep apnea, the road to diagnosis took some time and then the treatment for his cancer took about 3 years. He shares about the difficult experience of having to be separated from his newborn daughter and his young son for several months after having had his first dose of RAI. Gary talks about his approach of living life without second guessing, the role of his family as his primary source of support, what it's like to look back on his treatment 27 years ago, and his appreciation for support group members and medical professionals throughout his journey.ThyCa conference is September 16-18 2022, link for details/registration: https://thycaconference.vfairs.com/Gary's email: gbloom@thyca.orgPlease note: This podcast is unedited and represents the opinions, experiences and views of those speaking. Please consult your own medical doctor(s) or therapist for all matters involving your health and medical care.
Join Jessie as she hears from Becky, a papillary thyroid cancer survivor who has been cancer free for 11years. As the local ThyCa support group leader and ThyCa volunteer, Becky has wisdom to share not only from her own experience, but also her experience providing support to others in their cancer journey for the past 10 years. Becky shares about how doing your own research can be empowering, how vital support from others is, and how to maintain a positive outlook during this difficult journey.Visit https://www.thyca.org/ for more information about thyroid cancer, Radioactive Iodine, and support groups (many of which are virtual right now!). Please note: This podcast represents the opinions, experiences and views of those speaking. Please consult your own medical doctor(s) or therapist for all matters involving your health and medical care.
This interview is with Tiquette Bramlett. She shared about growing up with food and wine around the table where she observed the culture and conversation that surrounded it. She went to Chapman University where she studied music and was around more wine. After college, she shared that she was diagnosed with cancer, and later in the interview she explained the concept behind Redolent Tiquette's Piquette wine which her friends started and raises money for ThyCa. Tiquette told the story of how she ended up in Oregon, and what brought her to Anne Amie where she worked for five years in the tasting room and as a Brand Ambassador. She shared what her time at Anne Amie was like, and then moved on to speak about her role at Abbey Creek Cellars. Tiquette finished the interview by describing her work with Assemblage, and her successful start with her own organization, Our Legacy Harvested. She shared her hopes and goals for the future, and concluded with what wine's role in society is. This interview was conducted by Rich Schmidt at Mac Market in McMinnville on March 9, 2021.
Valronica Scales faced a long, difficult cancer journey, but she survived Papillary Thyroid Carcinoma. Now, with the aid of ThyCa, a global support group, she flourishes as an advocate for those battling thyroid cancer.
Dr. Jeanine Cook-Garard and Gina Peter learn about Thyroid Cancer with their guests, Abby Melendez, a thyroid cancer survivor, and her husband Miguel. Both Abby and Miguel are Facilitators of ThyCa Long Island, the Thyroid Cancer Survivor Association.
This week's episode is about the LID diet and Radioactive Iodine Treatment. When you have to have injest a pill that is radioactive but have to starve your body of iodine before you do it you can find yourself in a three week struggle of helping your loved one prepare and then endure the isolation of the quarantine. If you haven’t been through this then you don’t know quarantine the way thyroid cancer survivors do. Listen to how I helped my husband prepare for his treatment and hear about the wins and the struggles we both survived those three weeks. Find more support and podcast information at www.caregiverconnectionpodcast.com
My husband has his six month check up this week? How do you feel in the days leading up to these appointments? What do you do to cope? There is always so much anxiety coming into the week of an appointment. Listen to today’s episode to find out what we do to prepare for his day of thyroid cancer scans and doctors appointments at Mayo Clinic. Find more information and support at www.caregiverconnectionpodcast.com
The cancer with the highest and fastest rise since 1970 is thyroid cancer. It is disproportionately affecting women. According to the American Cancer Society, about 56,870 new cases of thyroid cancer (42,470 in women, and 14,400 in men) are diagnosed each year. In 2010, I was one of those patients. The disease is a bit of a mystery, so, I spoke with Dr. Naifa Busaidy, an Associate Professor in the Department of Endocrine Neoplasia and Hormonal Disorders at The University of Texas MD Anderson Cancer Center in Houston, TX. I became aware of her work through a great talk she gave for ThyCa (http://thyca.org/). Dr. Busaidy gave me some great info, which proves even 7 years into the disease, there are still things to learn. Share it with some who needs it. Dr. Busaidy's ThyCa presentation: https://www.youtube.com/watch?v=ljVS_c1wsuU
In this episode, we hear from Judy O'Reilly. Judy was diagnosed with thyroid cancer in 2011. Following surgery, Judy speaks about the frequent challenges, including adjusting medication dosages, hypothyroidism, and her energy levels hitting the wall during daily activities. For Judy, the cancer diagnosis forced the conversation of talking about death with her children and husband. A singer and musician, the thyroid cancer and resulting surgery has caused vocal challenges. In this episode, we hear from Judy O'Reilly. Judy was diagnosed with thyroid cancer in 2011. Following surgery, Judy speaks about the frequent challenges, including adjusting medication dosages, hypothyroidism, and her energy levels hitting the wall during daily activities. For Judy, the cancer diagnosis forced the conversation of talking about death with her children and husband. A singer and musician, the thyroid cancer and resulting surgery has caused vocal challenges. She is the founder and former facilitator of THYCA Atlanta. Prior to starting the once/month support group held at Emory University’s Winship Cancer Institute, Judy O'Reilly offered email and phone support. Judy began her involvement/volunteering with THYCA one year after diagnosis/surgery/RAI. Prior to thyroid cancer, Judy O’Reilly had been a music educator and an entertainer. She was the female vocalist for the Atlanta Blue Notes Big Band, as well as their Combo. As a solo performer (piano/vocals), Judy specialized in senior care facilities offering up an extensive selection of the great American songbook. Ms. O’Reilly resigned/retired from performing soon after a second surgery - a completion of a previous partial thyroidectomy - due to complications. In 2015 Judy began a return to entertaining as a volunteer in the grand piano lobby of the Winship Cancer Institute, Atlanta.
You have been diagnosed with thyroid cancer, and contrary to your doctor's advice, you choose to not proceed with surgery. Is this a patient trend, and how often are patients making this decision? In a qualitative analysis, Dr. Louise Davies reports on the experience of US patients who self-identify as having an over-diagnosed thyroid cancer. How likely is death as result of thyroid cancer? In a study by H. Harach, he sites that when reviewing random autopsies, thyroid cancer was prevalent in 34% of the cadavers. Dr. Davies states, if diagnosed with thyroid cancer, important questions to ask, include: How big is the tumor? How was the tumor discovered? Are there any symptoms? Dr. Davies says those who choose to opt for no surgery are sometimes called stupid by those who know them, and end up feeling isolated and anxious, with little or no support. Louise Davies, MD, MS, FACS is an Associate Professor at Geisel School of Medicine and Dartmouth Institute for Health Policy & Clinical Practice (TDI). She is Chief, Otolaryngology at Veterans Administration, White River Jct., VT Dr. Davies is an otolaryngologist - head & neck surgeon whose thyroid related research is aimed at defining and documenting the problem of rising thyroid cancer incidence and developing management approaches to the problem in ways that are safe and effective. Clinically, Dr. Davies cares for patients with both head and neck and thyroid cancer and general otolaryngology problems primarily at the VA hospital, with a limited practice at Dartmouth Hitchcock Medical Center. Her career is defined by her goal of helping patients and physicians make good decisions for their cancer care by providing clear, helpful data in useful formats at the needed time and place. NOTES: JAMA Abstract: Dr. Davies Thyroid Stories Project Dr. Michael Tuttle, from Sloan Kettering Yasuhiro Itoa and Akira Miyauchi Nonoperative management of low-risk differentiated thyroid carcinoma
Dr. Aime Franco is professor at the University of Arkansas. She leads a research group investigating the role of thyroid hormones in tumorigenesis. She is also actively involved, both locally and nationally, advocating for the importance of biomedical research and the importance of engaging patients and survivors in cancer research. After, completing her Ph.D. in Cancer Biology, she became a thyroid cancer research fellow at Memorial Sloan-Kettering Cancer Center in the Human Oncology and Pathogenesis Program. Dr. Franco is a survivor of thyroid cancer, and balances her research as a mom and competitive triathlete. in this interview we explore the following: Does thyroid cancer have a good prognosis compared to other cancers because its different or because we are aggressive with surgery and radiation therapy? What were some personal insecurities when facing thyroid cancer surgery? What are the questions in regard to TSH that the medical community is overlooking? Which prescription medication works best? How often and when should thyroid blood markers be tested? You may find Dr. Franco here, http://physiology.uams.edu/faculty/aime-franco/
Katie Ward—actress, writer and host of The Enthusiasm Enthusiast podcast—joins the moms to discuss Angie’s B.O., child-sized harps, mediocre horses and a literal lump in the throat. Plus, a game of gastrointestinal “Would You Rather?” Check out Katie's podcast at: https://theenthusiasmenthusiast.com September is Thyroid Cancer Awareness Month. Visit the American Cancer Society or ThyCa to learn about risk factors, symptoms, treatment, support and more.
The Cast - Christine Warner, Melanie Bounds, Ian Mitchell, John Yaglenski- Guess Who reference gets us started - New Festival of Fantasy parade - our twitter account killed it today with incredible shots. Follow us on twitter @intercot. Christine gives a complete rundown.- See the full parade on our YouTube channel: http://youtu.be/geyksDpqAwo- Flower and Garden festival opens- The Guess Who show was great!- The Cheshire Cafe - White Chocolate Rabbit!- John's blind auction story. Controversy follows him around.- Water is gone in the Magic Kingdom.- RunDisney and #runICOT events and the price of events.- #runICOT is going to run to support THYCA (www.thyca.org) and Thyroid Cancer Awareness and Survivors. Registration will open April 22, 2014 at Noon EST for the Walt Disney World® Marathon Weekend! Details coming soon.- Goodbye to a national hero - Wild Bill Guarnere from Band of Brothers.- Take It or Leave It! Turkey Legs and Bubble Gum. Mel - Bubble Gum Yes, Turkey Legs No. Christine - Turkey Legs and the sticks No, Bubble Gum Yes. Ian - Turkey Legs No, Gum No. John - Turkey Legs No, Gum Yes.- Travolta Screw Ups - Frozen.- Rock Your Disney Side.- Hub Reconfiguation - Big changes coming.- Starbucks in Downtown Disney- Star Wars Weekends and Special Fireworks!- Fantasmic - How old is it? Can we get some HD projectors and new content?
It all goes back to Stupid Cancer, or it least it seems like it does. It was at OMG 2011 in NYC where I met thyroid cancer survivor, Chris Prestano. I knew she was an advocate like me but until this show I had no idea how passionate she is. Not only does she advocate for Stupid Cancer, she also volunteers for ThyCa, a thyroid cancer organization and writes for Everyday Health.
SURVIVOR SPOTLIGHT JON FILBERT Young Adult Survivor, Lung & Thyroid Cancer Regional Ambassador i[2]y Dallas/Fort Worth Chapter STEVEN I. SHERMAN MD Department Chair Endocrine Neoplasia and Hormonal Disorders MD Anderson Cancer Center KAIROL ROSENTHAL Young Adult Survivor, Thyroid Cancer Healthcare Blogger, Everything Changes Author, Everything Changes: The Insider's Guide To Cancer In Your 20s and 30s See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
SURVIVOR SPOTLIGHT JON FILBERT Young Adult Survivor, Lung & Thyroid Cancer Regional Ambassador i[2]y Dallas/Fort Worth Chapter STEVEN I. SHERMAN MD Department Chair Endocrine Neoplasia and Hormonal Disorders MD Anderson Cancer Center KAIROL ROSENTHAL Young Adult Survivor, Thyroid Cancer Healthcare Blogger, Everything Changes Author, Everything Changes: The Insider's Guide To Cancer In Your 20s and 30s