Caregiving Podcast Network

Claire Day shares updates on how to manage a family member with dementia while worrying about coronavirus. Claire is Chief Program Officer for the Alzheimer's Association Northern California and Northern Nevada Chapter. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Beth, who cared for her father, shares how she’s giving herself peace of mind as we worry about the impact of the coronavirus. Beth supports family caregivers through her business, Caregiving Pathways. She’s a Certified Caregiving Consultant, Educator and Facilitator and End of Life Doula. Connect with Beth on her website, https://caregivingpathways.com. You can download your state's advance directive forms from the AARP website: https://www.aarp.org/caregiving/financial-legal/free-printable-advance-directives/ --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Nansi Gregor-Holt, RN, MSN, MPH, NP from UNC Neurology. Nansi will answer questions recieved through ftdpodcastquestions@yahoo.com we will take as many questions as we have time for during the broadcast --- Send in a voice message: https://anchor.fm/caring-conversations/message

Ellen, our wealthness expert, will talk out how we stay connect to our coping strategies when we're faced with uncertain times. About Ellen Rogin, CPA, CFP® and Abundance Activist® Ellen has made her life’s work educating, counseling, and guiding people to grow their prosperity and to use it as a force for good in their lives and in the world. She is the co-author of NY Times best-seller, Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality. Ellen speaks across the globe on creating success and abundance. Chock full of “left-brain” credentials (MBA, CPA, CERTIFIED FINANCIAL PLANNER™), Ellen also walks on the “right” side, balancing values, big picture ideas, meditation and a sense of humor with her professional training. She’s as comfortable talking about the power of compound interest as she is the power of belief. Ellen is a TEDx presenter, and her work has been quoted in such national publications as The New York Times, Money, Time.com, Forbes.com, and The Huffington Post. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Theresa Wilbanks, Certified Caregiving Consultant™, Certified Caregiving Educator™, joins Denise to talk out their plans for the unexpected, including the coronavirus. Theresa cares for her 98-year-old father and Denise helps her 88-year-old father and 85-year-old mother.  Visit CareGiving.com and SustainableCaregiving.com for more insights and resources. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Rebekah Wilson, MSW, https://www.agingcarecoach.com/ to discuss the hard decisions we need to make in the care of those with Frontotemporal Dementia (FTD). When do I take away the car keys? When do I consider placement? How do I decide on when to call hospice? How do I brace myself for end of life decisions like when to no longer give antibiotics? These are the questions that haunt us as care partners to those with FTD. We hope this podcast will give you some guidance and support in making those hard decisions. The emotions can be overwhelming and we second guess ourselves. This podcast will put those doubts in perspective. Join our FTD Care Chat every Monday and Saturday at 7:00pm ET on caregiving.com to talk to other care partners. --- Send in a voice message: https://anchor.fm/caring-conversations/message

When we feel like we're in the midst of a financial crisis, how do we find our calm?  Ellen Rogin joins me to share tips to help us calm the panic when we're struggling to get enough. Ellen wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Denise’s guest is Angie Ardolf, who cares for her daughter, Ruby. In 2017 a video of Angie and Ruby went viral on Instagram which created a new role for Angie — social media disability advocate. Angie shares photos, videos and stories on her social media channels to help shift the narrative about disability issues and to make the world a kinder, more accepting and inclusive place for all. Angie’s YouTube channel, Angie and Ruby, now numbers 164,000 subscribers. --- Send in a voice message: https://anchor.fm/caring-conversations/message

At our Fourth Annual National Caregiving Conference, we awarded Life Solutions, the maker of ChuckMates, the winner of our Fourth Annual National Caregiving Technology and Product Pitch Event. Lauren Somma, President of Life Solutions, joins us to share about the inspiration for ChuckMates and her mission to help family caregivers and professional caregivers. ChuckMates is placed under a cloth or disposable Chuck, which is game-changing when it comes to providing in-bed patient care. ChuckMates help prevent back injuries by significantly aiding caregivers while maneuvering all bedridden patients. Thus providing caregiver solutions far beyond helping with elderly care alone. ChuckMates create huge boost in caregiver confidence when it comes to  rotations, repositioning, and all other in-bed patient maneuvering. To learn more, visit https://chuckmates.com. --- Send in a voice message: https://anchor.fm/caring-conversations/message

As the youngest of her parents’ 16 children, and the only one who went into the healthcare profession, Margaret Fitzpatrick was the natural choice to be a caregiver to both of her parents as they aged into their 90’s. Additionally, Margaret is the healthcare POA for several of her siblings who are dealing with health challenges (end-stage Multiple Sclerosis, complications from alcoholism and heart disease). Margaret has been a critical care nurse for over a decade and a nurse anesthetist with her Master’s degree in anesthesia for ten years. She is a leader in the movement to help patients and families to set individual healthcare goals that reflect their values for the last chapter of their lives. She is dedicated to helping people make better decisions, have less stress and to prevent suffering for themselves and for the loved ones for whom they are caring. Mark Servais’ professional life has been about creating technical solutions for companies around content, branding, and marketing efforts. As a technology leader and a 5-time Sitecore Technical MVP, Mark has created solutions that fit customer needs and abilities. He current works for Humana providing guidance and expertise with the content managment platform. Mark’s non-professional life consists of being a full-time co-caregiver to his son with Duchenne Muscular Dystrophy. For the past 16 years, Mark and his family have learned to adapt and find ways to solve challenges as Mark's son's condition has progressed. Mark’s technical background along with his caregiver role has spawned effective solutions to challenges with daily activities using elements of home automation with his family needs to help assist in those daily activities of care giving activities. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Jeff joins us at this year's conference to talk about grieving, coping and finding your way during tough times. Jeff cared for his “Lyme Warrior” wife Cherie who amazed him daily with her courage in fighting this horrible disease. Jeff was also a co-caregiver for his father for 5 years, during his battle with Idiopathic Pulmonary Fibrosis. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Nansi Greger-Holt, RN, MPH, MSN, a Geriatric and Family Nurse Practitioner, BC, at UNC Neurology Clinic in the Cognitive Disorders Division, in Chapel Hill, NC. She has been helping patients and their family/caregivers navigate, understand, manage, and treat symptoms of their dementia to maximize their quality of life since 2012, when she started specializing in dementia care. Nansi has been an RN in North Carolinafor over 40 years,  and a Family and Geriatric Nurse Practitioner for 22 of those years. She graduated from the University of Vermont with a B.A. in Psychology  and an A.S in Nursing in 1978.  She is a  NC Tarheel and has earned a Master of Public Health in Health Education in 1986 and Master in Nursing in 1997 from UNC- Chapel Hill.  She has worked in hospitals, longterm care, geropsych, home health, hospice, geriatrics and primary care. --- Send in a voice message: https://anchor.fm/caring-conversations/message

We may think our prosperity begins with our bank account. Ellen Rogin, our wealthness expert, believes it begins with our mind. She'll help us see what's possible as we picture our prosperity. About Ellen Ellen Rogin, CPA, CFP® and Abundance Activist® has made her life’s work educating, counseling, and guiding people to grow their prosperity and to use it as a force for good in their lives and in the world. She is the co-author of NY Times best-seller, Picture Your Prosperity: Smart Money Moves to Turn Your Vision into Reality. Ellen speaks across the globe on creating success and abundance. Chock full of “left-brain” credentials (MBA, CPA, CERTIFIED FINANCIAL PLANNER™), Ellen also walks on the “right” side, balancing values, big picture ideas, meditation and a sense of humor with her professional training. She’s as comfortable talking about the power of compound interest as she is the power of belief. Ellen is a TEDx presenter, and her work has been quoted in such national publications as The New York Times, Money, Time.com, Forbes.com, and The Huffington Post. She was the founder and president of a wealth management firm in the Chicago area, and currently serves on the Board of Directors for Metropolitan Capital Bank in Chicago and The Ghana Scholarship Fund. Ellen wants to live in and help create a world where everyone is a rock star at handling their money, everybody’s life’s work is filled with meaning, generosity and abundance, and kids think their moms are forever cool. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Bobbi Carducci shares about her presentations at this year's National Caregiving Conference. You can meet Bobbi and learn more about her work here: https://www.caregiving.com/ncc19/presenters/bobbi-carducci/ --- Send in a voice message: https://anchor.fm/caring-conversations/message

Tobin Ward, a market research manager with Genworth, joins us to discuss the focus groups she’ll hold  at the Fourth Annual National Caregiving Conference. You can join us at the conference virtually or in person on November 7-10 in Chicago at the Chicago Marriott O’Hare, 8535 W. Higgins. While you’re attending our conference, please consider joining Tobin during one of her one-hour focus groups. You’ll receive a $30 Visa gift card for sharing your insights and experiences in one of the focus groups. To learn more, visit https://www.caregiving.com/ncc19/focus-groups/ --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Rebekah Wilson, MSW, www.agingcarecoach.com for this podcast on helping diminish the "anti-social" behavior and re-engage the FTDer. We will discuss why they disengage and what a care partner can do to get them to socialize anfeel comfortable in day centers, etc. . --- Send in a voice message: https://anchor.fm/caring-conversations/message

Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, join us to discuss this question: How do we cope when our caregiving experience could increase our risk for dementia? --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Nansi Greger-Holt, RN, MPH, MSN, a Geriatric and Family Nurse Practitioner, BC, at UNC Neurology Clinic in the Cognitive Disorders Division, in Chapel Hill, NC. She has been helping patients and their family/caregivers navigate, understand, manage, and treat symptoms of their dementia to maximize their quality of life since 2012, when she started specializing in dementia care. Nansi has been an RN in North Carolinafor over 40 years,  and a Family and Geriatric Nurse Practitioner for 22 of those years. She graduated from the University of Vermont with a B.A. in Psychology  and an A.S in Nursing in 1978.  She is a  NC Tarheel and has earned a Master of Public Health in Health Education in 1986 and Master in Nursing in 1997 from UNC- Chapel Hill.  She has worked in hospitals, longterm care, geropsych, home health, hospice, geriatrics and primary care. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to share updates from this year's Alzheimer's Association International Conference®. --- Send in a voice message: https://anchor.fm/caring-conversations/message

My guest, Warren Hebert, and I share our thoughts about our most crucial caregiving conversations. About Warren Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Kara joins us to share how she manages the care of her brother, Rafe, and her career.  Rafe has a serious and persistent mental illness, which has been exacerbated by his loss of vision. His daily and ongoing needs are complex and unique. Following an incident, while he was hospitalized at a reputable psychiatric hospital, in which he blinded himself, he spent many months at a second large mental hospital with insufficient psychiatric support. This hospital was unable to provide comprehensive therapeutic and transitional care required for Rafe to progress in his recovery. Kara was able to find an out-of-network, private mental health facility in Connecticut, Silver Hill Hospital, which agreed to meet Rafe, and ultimately accepted him into their program. Kara has been a tireless caregiver for Rafe, unabashedly using all of her resources to help get him the best care available and making sure there is wrap-around care to address his very complicated needs. She also cares for more personal things, like buying him a guitar for Christmas (he loves playing!) and making sure he can get his hair and nails cut, too. There is nothing too big or too small when it comes to Kara caring for Rafe and his overall well-being. Read more about Kara: https://www.caregiving.com/ncc19/coty-kara-guerriero/ --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Teresa Webb, the founder of FTDARN. She will discuss how FTDARN came into existence, what its mission is, and how they have helped FTD families. She will also make a very exciting announcement that will show how much this small, all volunteer, non-profit is reaching out to help FTD families. This is the organization that produced the brochure many of you use, listing the symptoms of FTD and featuring the Johnson Family, Teresa, and another board member, Amy Shives. They know what it is like to live FTD and they know the financial burdens that can come with FTD. To learn more, or donate to their efforts, visit www.ftdarn.org and join us for the big reveal!!! --- Send in a voice message: https://anchor.fm/caring-conversations/message

Dean Regan and Frank McKenna have been together for 23 years and married in 2008. They live in a 3-bedroom midcentury ranch home in San Fernando Valley of Los Angeles. Recently Dean’s mother and sister moved in with them creating a household of senior citizens. They use their love for one another and their faith to establish and nurture this new family dynamic. Through their business, “Living in Concert with Life!,” Dean and Frank have a personal commitment to supporting people’s choices for living their best life. The four use these principles along with their faith to work through this big transition for the family. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Brenda, one of our Certified Caregiving Consultants™, is also now a Certified Caregiving Educator™ and Certified Caregiving Facilitator™. Brenda is also one of our 2019 Family Caregiver of the Year Award winners. Brenda is the proud and passionate caregiver of her 25-year-old daughter, Nikki, who has significant physically and developmental disabilities that make her medically fragile and dependent on technology for survival. Brenda was part of the first Family Faculty at her regional children’s hospital, teaching healthcare providers and students about the needs of children with health challenges and their families. She participated in the inaugural healthcare and caregiver collaboration aimed at enhancing the transition of children from pediatrics to adult healthcare services. Most recently, she started Coaching for Caregivers Canada in an effort to provide support and guidance to caregivers whose needs are often overlooked in their caregiving journeys. Above all else, Brenda’s meaning, wisdom, and inspiration is found in being mother to Nikki, a young lady who brings infectious love and laughter to the world everyday! --- Send in a voice message: https://anchor.fm/caring-conversations/message

Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter join us to discuss the latest release of Alzheimer's Disease Facts and Figures. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Rebekah Wilson, MSW (agingcarecoach.com), to discuss what makes families scratch their heads and be resentful, anosognosia. When someone is diagnosed with FTD, they often say there is nothing wrong with them, you are just trying to make them sick. They insist they can drive, grocery shop, work, and be totally independent. Yet, they have accidents, bring home only cookies from the store, get fired due to someone else's fault, and leave the front door wide open when they leave the house. We will discuss this weird word, anosognosia, and give advice on how to work around it when you have an FTDer who is "just fine" and will not give up driving, independence, or applying for jobs.We will realistically discuss what "might" work and definitely discuss what will "never" work. --- Send in a voice message: https://anchor.fm/caring-conversations/message

The kitten roar of a gentle breeze sweeping past you. The trumpet blasts of car horns on a busy urban street. The hymns you hum to yourself without even realizing. These are the songs of life that surround you. I pray that your soul finds peace in the harmony that surrounds you today. --- Send in a voice message: https://anchor.fm/caring-conversations/message

A 30+ year caregiver for his wife, Gracie, who lives with severe disabilities, Peter Rosenberger understands the caregiver’s journey, and is on a mission to strengthen the family caregiver.  Through his books, music, and weekly radio show heard on more than 200 stations, Peter demonstrates an unswerving commitment to those who put themselves between a vulnerable loved one and even worse disaster. --- Send in a voice message: https://anchor.fm/caring-conversations/message

So often, the end of the day can bring with it the weight of guilt as you think on all of the promises you made that were unfulfilled. But when guilt threatens to overwhelm, there is the promise of love and grace to sustain you another day. This episode is a prayer for you to rest in that promise. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Mike Eidsaune created Carely, a free mobile app designed for caregivers, in order to create a purposeful communication environment that empowers family caregivers to come together around the care of their loved one. In planning for the business, Mike made the decision that, no matter what, the app would always be free for families to use. After five years, and multiple iterations, that decision still holds true. The Carely family app is available on any smart device and can be utilized by families for free. Families use Carely to communicate, coordinate, make decisions, and support one another. It helps families, who are often busy with work or spread apart geographically, answer the simplest questions: “Who saw mom/dad last?”; “Who’s going to see her/him next?”; and “How did those visits go?” --- Send in a voice message: https://anchor.fm/caring-conversations/message

Warren Hebert and Denise shares their thoughts on how we can make good for good days when the bad days seem to be never-ending.  About Warren Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall will be joined by Rebekah Wilson, MSW, www.agingcarecoach.com for this podcast on connecting to those living with dementia. Can you connect to the person you married or a family member in a different way after diagnosis? Should you? Many care partners had a very rocky pre-diagnosis time. Some dealt with firings over inappropriate behavior, some with affairs, some with loss of a life savings, some with arrests, gambling, drinking, and reckless behavior and even violence. Some dealt with law suits over auto accidents, sexual harrasment, shoplifting and other legal issues. How do you heal those awful wounds of betrayal? Can you just "shut off" the negative feelings and accept these issues were driven by a dying brain? Many people struggle to "love" the person they care for after they caused devastation in their lives. We will discuss what love means before and after diagnosis and how it might change. We will talk about how you can survive and even thrive, even after events that broke you in ways that seemed irreperable. We will talk about surviving and thriving during this diagnosis. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Rachel has been the primary caregiver for her grandmother for three years, and has used the knowledge and experiences gained over the past twelve years building a career helping disabilities at the individual, organizational, and systems levels to help her grandma have a good life and age in place. She also cared for her dear friend, Calvin, who died last year. Calvin’s death changed Rachel’s perspective on how she wanted to live. She now lives to help and support fellow family caregivers. To learn more about Rachel, visit her website, https://takingcareofgrandma.com. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Ellen Rogin, our wealthness expert, helps us form a story about our money that works. Ellen wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Through her company, Kikupal, Naomi is on a mission to change the way we give and receive help. Naomi launched her company after caring for her husband, Greg, while she managed her career and raised their two young children. Naomi is changing the way we support caregivers in the most significant way -- by helping them delegate daily tasks. On average, caregivers spend 13 days a month on tasks such as shopping, food preparation, housekeeping, laundry, transportation, and giving medication. By delegating these tasks, a family caregiver can use time more effectivey on what matters most. Kikupal helps family and friends gift helpful services by purchasing KikuPoints, which can be redeemed to help the family caregiver with meals, house cleaning, and more. For more information, visit https://www.kikupal.com. --- Send in a voice message: https://anchor.fm/caring-conversations/message

My guest, Warren Hebert, and I share our thoughts about how to effectively communicate our stress. About Warren Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon and Tia Powell, MD will discuss bringing joy into dementia caregiving. There is a lot of life between diagnosis and end stages and we need to live with joy. Sharon Hall cares for her mother and her husband. Her husband has FTD and lives at home. Sharon is an active advocate for FTD and those families living with the diagnosis. Dr. Tia Powell directs the Center for Bioethics and Masters' in Bioethics at Montefiore Health Systems and Albert Einstein College of Medicine. She holds the Shoshanah Trachtenberg Frackman chair in biomedical ethics and is Professor of Epidemiology and Psychiatry. Her bioethics scholarship focuses on dementia, public health policy, end of life care, and bioethics education. She served four years as Executive Director of the New York State Task Force on Life and the Law, the state bioethics commission. She has worked with the National Academies of Medicine on many projects, and served as an advisor to the CDC, and to Health and Human Services and its National Alzheimer's Project Act. She is frequently invited to speak at professional meetings (APA, ASBH, AAIC) at medical schools (Albert Einstein, Columbia, Cornell, Harvard, NYU, Yale), and colleges (Vassar, Princeton). She is a board-certified psychiatrist and Fellow of the New York Academy of Medicine, the American Psychiatric Association and The Hastings Center. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Shawn, who cares for her husband, launched a non-profit called Caregivers on the Homefront. Through her non-profit, Shawn leads Caregiver Mental Health and Wellness Restorative Weekends. "One of the things that we teach in our restorative weekends is how caregiving is a role that we play," Shawn says. "It is NOT our identity. When we lose our identity that is when the stress of caregiving can step in a wreak havoc on our lives. It is a hard enough journey in itself. We must find a way to not lose ourselves in the process." Read more of Shawn's story here: https://www.caregiving.com/ncc19/cva-shawn-moore/. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Monika Gross, a 2019 Caregiving Visionary Award Winner, developed The Poise Project to help family caregivers build their resilience. Monika joins us to share her vision for supporting family caregivers around the world.  You can learn more about Monika through her website, www.thepoiseproject.org. --- Send in a voice message: https://anchor.fm/caring-conversations/message

On World Alzheimer’s Day 2016, Julie Fleming launched The Purple Sherpa, a nonprofit organization that’s designed to educate, encourage, and support dementia family caregivers. Today there are 65,600 followers on Facebook, almost 4100 members in the online closed support group, and almost 450 members in the closed The Purple Sherpa Grief Support Group. Julie described her seven-year caregiving experience for her father as “the most exhausting, frightening, and loving experience I’ve ever had.” Learn more about Julie's story and her work. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Marcia Burr, one of our 2019 Caregiving Visionary Award nominees, joins us to share how caring for her wife with Alzheimer's drives her to help and support those who currently care for a family member with Alzheimer's. Marcia formed a support group in her community and recently launched a new playlist on her YouTube Channel called Care Partners Tip of the Day.  You can read more of her story on CareGiving.com. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall, an FTD care partner and Rebekah Wilson, MSW, The Aging Care Coach (agingcarecoach.com) will discuss what has been in the news a lot lately, intimacy and love in the middle of dementia. B Smith has Alzheimer's, and a recent article about her husband having a female companion who he brings into their home and who also helps with B's care has caused quite a curfuffle. This subject is brought up a lot in the FTD community because so many are so young and have a full life ahead of them, beyond care parterning for their spouse. Let's get this out in the open and talk about it. Rebekah has talked about sex and dementia and she will share her insights. Sharon will share how she feels about this, as well. Join us for an open, honest discussion. If this is not your cup of tea, please understand this will be R rated. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Denise Brown and her guest, Warren Hebert, and I share our thoughts about how to effectively communicate about the challenging and overwhelming days. About Warren Warren Hebert, DNP, RN, CAE, is an alumnus of the Robert Wood Johnson Foundation’s Executive Nurse Fellows Program. Hebert is Chief Innovation Officer for a home health analytics company. He is also a family caregiver, home health nurse, nursing professor, and executive director of the HomeCare Association of Louisiana. Attaining his Doctor of Nursing Practice degree (DNP) in 2015, Hebert joined his alma mater, Loyola New Orleans, in 2016, as lead faculty for health policy, Care of Vulnerable and Aging populations, health care ethics, and he teaches doctoral students about systems change and innovation. Hebert has hosted the radio program/podcast, Family Caregiving, for seven years. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Sharon Hall and Janelle Drake, who both have husbands diagnosed with FTD, will discuss what we had to learn the hard way and what we want people newly diagnosed to know that will help them deal with this diagnosis. No one can know what it is like to live through a frontotemporal dementia diagnosis better than those who have been there. Sharon and Janelle will share their trials and tribulations that followed the diagnosis. It takes an average of 4 years to get a frontotemporal diagnosis. During that time, the frustration and the feeling of not being heard becomes overwhelming. When we finally get a diagnosis, the relief and grief set in and we then say, now what? We will try to address the now what question, by telling you what we found to be the most valuable information. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala  Episode 32 with Crystal Kelliher  I had a great time interviewing Crystal Kelliher with www.DoYouMama.com on my Empowered Family Caregiver podcast. We talked about her journey as a mom and entrepreneur. Time management tips, working through emotions, self-care and three steps to simplify your schedule and life await in this episode. Catch our blog interview highlights and learn more about Crystal HERE.  I invite you to join our private and supportive Facebook group, especially for family caregivers HERE. --- Send in a voice message: https://anchor.fm/caring-conversations/message

This podcast is hosted by Sharon Hall, whose husband has been diagnosed with bvFTD. It was created to give FTD families a resource for valuable information that deals with having FTD present in your life. All episodes are archived by subject, so if this month's subject is not something you need now, you can listen in the future. This month we will discuss Palliative and Hospice care. Sharon will be joined by Rebekah Wilson, MSW,  www.agingcarecoach.com and Tina Ketchie Stearns, www.itsabouthowyoulive.com to discuss why palliative care is important and how hospice works and the 5 myths of hospice. To contact Sharon, email sharonhall419@yahoo.com. You can suggest topics to be covered on the podcast, or tell us how you like, or dislike, this format. We enjoy hearing from our listeners. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala  Episode 31 Interview with Beth Scibienski    Welcome to the Empowered Family Caregiver Podcast with Tandy Elisala  Episode 31 Interview with Beth Scibienski I had the distinct pleasure of interviewing Beth Scibienski on my Empowered Family Caregiver podcast. We talked about her journey with her late husband, Pete and the power of compassion and vulnerability. We also discussed Beth’s new book, Who Is God When We Hurt? and what inspired her to write this book. Beth shares a useful and thoughtful tip about the power of having a sacred inner circle. We also talked about how difficult things can be during the holiday. Hear Beth’s advice to reduce caregiver stress, how she found her best during what seemed like her worst, what she is grateful for and her advice for keeping hope alive.  Beth Scibienski is the pastor of Grace Presbyterian Church, a vibrant congregation in central NJ, who loves, learns and laughs together. She started working at Grace one month before her late husband was diagnosed with Secondary Progessive Multiple Sclerosis. Learn more about Beth here: www.bethscib.com I invite you to join our private FB group here: https://www.facebook.com/groups/empoweredfamilycaregiver/ --- Send in a voice message: https://anchor.fm/caring-conversations/message

Many people believe that addiction and substance abuse are only problems young people struggle with. That is sadly, a huge misconception. In reality, substance abuse in baby boomers and older generations is a growing public health concern and can cause havoc in families and much stress in caregivers. My guest today is Dr. Julie Davelman who is a Clinical Psychologist with Abrams Psychological Services. Dr. Davelman and I discuss such important topics as how large a problem is this, what arethe warning signs families should be aware of, unique triggers in an older person and how can families raise this issue and begin seeking help. You can learn more about Dr. Davelman and connect with her for further questions and advice by visiting her website at www.abramspsychservices.com and read her blog at https://drdavelman.wordpress.com/ I will also be posting some further resources on my Facebook Page - "On The Frontlines of Caregiving" - www.facebook.com/FrontlinesofCaregiving --- Send in a voice message: https://anchor.fm/caring-conversations/message

When it doesn't look like we have enough, how do we believe we have enough? About Ellen Ellen Rogin wrote the New York Times bestseller on turning your vision into reality, Picture Your Prosperity. She’s an acclaimed speaker, TEDx presenter, blogger, a 20-year veteran of the financial services industry, and a Certified Financial Planner®. Ellen’s appeared on CNBC’s Nightly Business Report, ABC News, and PBS, and has been quoted in The New York Times, Money, Time, Forbes, The Huffington Post, US News & World Report, the Chicago Tribune, and Crain’s Chicago Business. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Does the thought of the upcoming holidays fill you with dread instead of joy? Does seeing all the sparkly commercials with bright eyed children playing pianos and cute dogs snuggled by the fireplace wearing hats make you question your own life? Well - you're not alone!! The holidays can be wonderful, joyous times, but for caregivers also come with unique stresses and feelings of loss. On today's show, I have a great conversation with Rick Lauber who is the author of 2 caregiving books - "Caregivers Guide for Canadians" and "The Successful Caregivers Guide." We discuss some down to earth tips to help you navigate this time and hopefully reduce your stress. Rick also is offering free copies of  his book "The Successful Caregivers Guide" as a gift to you. Head on over to: Facebook Page: "On the Frontlines of Caregiving" In the comments section - post a picture of your stress-busting pet or write 1 way you have found useful to combat holiday stress Rick and I will select three lucky winners and your book will be shipped to your home. Good luck and I sincerely hope you can carve out some time for yourselves and your holidays bring you joy and peace. Lynette --- Send in a voice message: https://anchor.fm/caring-conversations/message

Claire E. Day, Chief Program Officer for the Alzheimer's Association Northern California and Northern Nevada Chapter, joins us to share tips on coping with dementia care during the holidays. --- Send in a voice message: https://anchor.fm/caring-conversations/message