Podcasts about ftd

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Best podcasts about ftd

Show all podcasts related to ftd

Latest podcast episodes about ftd

Full Time DEVILS Podcast
'Terminator Could ACTUALLY Happen!' | The Brew w/ Kae Kurd

Full Time DEVILS Podcast

Play Episode Listen Later May 9, 2025 55:58


Technical difficulties may have stopped this one being live, but that wasn't preventing the lads from steering off topic. Stephen Howson and Jay Motty are joined by comedian Kae Kurd to talk conspiracy theories and more on this week's episode of The Brew! Become a member! - https://www.youtube.com/channel/UC7w8GnTF2Sp3wldDMtCCtVw/join Stretford Paddock has content out EVERY DAY, make sure you're subscribed for your Man United fix! - https://bit.ly/DEVILSsub

I'm Dying to Tell You
Elin Adcock - Her Journey Facing ALS and FTD Together

I'm Dying to Tell You

Play Episode Listen Later May 6, 2025 49:24


Here, Elin Adcock shares her powerful journey through her husband's ALS and frontotemporal dementia (FTD) diagnoses—and how she's now leading the charge to support families facing the same fight.  When Elin's husband, Larry was diagnosed with both ALS and FTD, her world changed forever.  In this episode, Elin shares how she navigated the overwhelming challenges of caregiving through two devastating and progressive diseases—often without a clear roadmap or coordinated support. After her husband's passing, Elin turned her grief into action, becoming a fierce advocate for families facing similar dual diagnoses. Her story is one of love, resilience, and the power of transforming personal loss into lasting impact. Whether you're a caregiver, healthcare professional, or someone seeking hope amid hardship, this conversation offers insight, inspiration, and a call for greater awareness.  Thanks for listening and sharing with a friend.  Hugs, Lorri!Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

Remember Me
Holly

Remember Me

Play Episode Listen Later May 6, 2025 57:59


Today's episode feels like a conversation between 3 old friends. New friend, Genessee, openly shares her unique experience with her mother's complex mental health issues and her eventual diagnosis of frontotemporal dementia (FTD). For the first time we really dive into the topic of infertility -- and what it's like to navigate a fertility journey alongside the grief and challenges having a loved one with FTD. We loved this conversation - and the special peice of Holly at the end. Thank you, Genessee for sharing your story with us!An extended version of this episode is available now on Patreon - join us www.patreon.com/remembermecommunity - you get exclusive content and it's a great way to support the show!If you're curious about anything RM, we'd love to connect with you on ⁠⁠⁠⁠Instagram, and visit ⁠our website at⁠⁠⁠⁠ www.remembermeftd.com⁠⁠⁠⁠, all the latest updates! ------Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

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UK Health Radio Podcast
96: Confessions of a Reluctant Caregiver with JJ Elliott Hill, Natalie Elliott Handy & Emilie Elliott - Episode 96

UK Health Radio Podcast

Play Episode Listen Later Apr 30, 2025 47:34


Episode 96 - Allyson Schrier shares her journey as a caregiver for a husband with FTD - from early signs to misdiagnosis, emotional toll, and finding support. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Remember Me
Russ

Remember Me

Play Episode Listen Later Apr 29, 2025 65:59


Continuing on our theme of family dynamics - a long-time listener and friend of the podcast, CJ, comes forward to share her story. We talk a lot about navigating motherhood alongside her father Russ' FTD journey, with all the family dynamics and challenges that come along the way. CJ tells her story with so much love and honesty, it is sure to touch your heart. Thank you, CJ, for sharing your story with us.If you're curious about anything RM, we'd love to connect with you on ⁠⁠PATREON⁠⁠, our website at⁠⁠ www.remembermeftd.com⁠⁠, or on Instagram for all the latest updates!Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

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The HoneyDew with Ryan Sickler
331: Kelsey Cook and the Dementia Hat Trick: Jokes, Genes, and Greif

The HoneyDew with Ryan Sickler

Play Episode Listen Later Apr 28, 2025 61:09


My HoneyDew this week is comedian Kelsey Cook! Check out her latest special, Mark Your Territory, now available on YouTube and Hulu, and her podcast, Pretend Problems, co-hosted with comedian Chad Daniels. Kelsey joins me in the studio this week to highlight the lowlight of her mother's battle with frontotemporal dementia (FTD). We dive into the emotional and financial rollercoaster of caregiving, and how genetic testing plays a role in shaping future plans. Plus, Kelsey shares what it's like trying to land jokes in the world's saddest room. SUBSCRIBE TO MY YOUTUBE and watch full episodes of The Dew every toozdee! https://youtube.com/@rsickler SUBSCRIBE TO MY PATREON - The HoneyDew with Y'all, where I Highlight the Lowlights with Y'all! Get audio and video of The HoneyDew a day early, ad-free at no additional cost! It's only $5/month! AND we just added a second tier. For a total of $8/month, you get everything from the first tier, PLUS The Wayback a day early, ad-free AND censor free AND extra bonus content you won't see anywhere else! https://www.patreon.com/TheHoneyDew What's your story?? Submit at honeydewpodcast@gmail.com Get Your HoneyDew Gear Today! https://shop.ryansickler.com/ Ringtones Are Available Now! https://www.apple.com/itunes/ http://ryansickler.com/ https://thehoneydewpodcast.com/ SUBSCRIBE TO THE CRABFEAST PODCAST https://podcasts.apple.com/us/podcast/the-crabfeast-with-ryan-sickler-and-jay-larson/id1452403187 SPONSORS: GhostBed -Head to https://www.GhostBed.com/honeydew and use code HONEYDEW to get an extra 10% off your entire order Cure Hydration -Get 20% off your first order! Stay hydrated and feel your best by visiting https://www.curehydration.com/HONEYDEW and using promo code HONEYDEW

Confessions of a Reluctant Caregiver
Caring Through Chaos: A Journey with Frontotemporal Dementia

Confessions of a Reluctant Caregiver

Play Episode Listen Later Apr 22, 2025 60:03 Transcription Available


“I was in therapy, that was a lifeline.” - Allyson SchrierThis is a powerful one! Natalie and JJ sit down with Allyson Schrier as she opens up about her deeply personal and emotional journey caring for her husband, who was diagnosed with Frontotemporal Dementia (FTD).Allison candidly shares the early signs of FTD, the heartbreaking misdiagnosis, and the uphill battle of navigating a complex healthcare system. From the shifting family dynamics to the emotional weight of caregiving, this conversation pulls back the curtain on what it really means to care for a loved one with dementia.

Remember Me
Peggy

Remember Me

Play Episode Listen Later Apr 15, 2025 56:42


A young son and family member from NYT Magazine's “The Vanishing Family” speaks with us on today's episode. In what may be one of our most powerful interviews, Ansel shares the origins of his mother Peggy's journey with FTD and their family's discovery of the MAPT FTD mutation through their incredible efforts to contribute to FTD research. You can read Ansel's recent piece A Hand of Poker and Our Family Curse published in Medium here. Learn more about Ansel's advocacy at CureMAPTFTD ⁠here⁠.Thank you, Ansel for sharing your story with us.------If you're curious about anything RM, we'd love to connect with you on ⁠PATREON⁠, our website at⁠ www.remembermeftd.com⁠, or on Instagram for all the latest updates!Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

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AlzAuthors: Untangling Alzheimer's & Dementia
When Dementia Tests the Bonds of Marriage with Debra Tann, Ed.D

AlzAuthors: Untangling Alzheimer's & Dementia

Play Episode Listen Later Apr 15, 2025 59:20


Do you want to gain a deeper understanding of the impact of dementia on marriages? If you're seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support.Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed.Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships.Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one.Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra's expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra's AlzAuthors blog post Visit Debra's website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Remember Me
Mike

Remember Me

Play Episode Listen Later Apr 7, 2025 52:29


A beautiful blended family-- Janet's husband Mike was diagnosed with FTD during the pandemic -- and she shares with us how she navigates the heartache and grief through the beautiful blended family her and Mike formed together. Janet thought it was important this season featured a story of how families can come together too -- and we're so glad. Thank you, Janet for sharing your story with us and the whole RM community.If you're curious about anything RM, we'd love to connect with you on ⁠PATREON⁠, our website at⁠ www.remembermeftd.com⁠, or on Instagram for all the latest updates!Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at hello@remembermeftd.com for more details.Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

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Connected Parenting
Death & Dying: A Conversation With Sonia Cacciacarro | CP203

Connected Parenting

Play Episode Listen Later Apr 4, 2025 30:57


In this powerful and deeply personal episode of Connected Parenting, I sit down with Sonia Cacciacarro —registered psychotherapist and member of the Connected Parenting team—for an honest and compassionate conversation about grief, loss, and how to talk to children about death and dying.Sonia shares her journey from fitness expert and mom of three to psychotherapist, and how her husband's diagnosis and passing from FTD and ALS shaped her passion for helping families navigate bereavement and loss. Together, we explore why our culture struggles with death, why it's so hard for parents to talk about it with their kids, and how we can support our children (and ourselves) through the grieving process.Whether you're walking through grief right now or want to build the emotional resilience your child will one day need, this episode offers deep insights, practical strategies, and loving support for some of life's hardest moments.Jennifer's Takeaways:Sonia's Journey into Grief and Death Counseling (02:38)The Importance of Talking About Death and Dying (04:14)Children's Understanding and Coping with Death (16:48)Navigating Social Interactions and Support Systems (17:09)The Role of Empathy and Sympathy in Grief (17:30)Preparing Children for Future Losses (18:37)The Impact of Cultural and Personal Beliefs on Grief (20:10)Conclusion and Final Thoughts (27:30)Meet Sonia Cacciacarro Sonia began her career in the health and fitness industry, working in corporate fitness and country clubs before launching her own fitness consulting and personal training business. After becoming a mother of three, she transitioned to being a stay-at-home mom. This period of family life led her to a journey of self-discovery, ultimately guiding her to pursue a career in psychotherapy.Sonia became a Registered Psychotherapist in 2016, founding her own private practice, and joined the Connected Parenting team in 2018, where she works with children, teens, adults, couples, and families. In April 2021, Sonia's life took a dramatic turn when her husband was diagnosed with Frontotemporal Dementia (FTD) and ALS. She took a break from her practice to care for him until he died in October 2022. Sonia credits her education, work experience, and personal resilience for helping her navigate this challenging period. Now, her professional focus has expanded to helping families cope with grief, bereavement, death, and dying.Website: https://therapybysonia.ca/Instagram: https://www.instagram.com/therapybysonia/Facebook: https://www.facebook.com/profile.php?id=100063605529221#LinkedIn: https://www.linkedin.com/in/sonia-cacciacarro-275292127/Meet Jennifer KolariJennifer Kolari is the host of the “Connected Parenting” weekly podcast and the co-host of “The Mental Health Comedy” podcast. Kolari is a frequent guest on Nationwide morning shows and podcasts in th US and Canada. Her advice can also be found in many Canadian and US magazines such as; Today's Parent, Parents Magazine and Canadian Family.Kolari's powerful parenting model is based on the neurobiology of love, teaching parents how to use compassion and empathy as powerful medicine to transform challenging behavior and build children's emotional resilience and emotional shock absorbers.Jennifer's wisdom, quick wit and down to earth style help parents navigate modern-day parenting problems, offering real-life examples as well as practical and effective tools and strategies.Her highly entertaining, inspiring workshops are shared with warmth and humour, making her a crowd-pleasing speaker with schools, medical professionals, corporations and agencies throughout North America, Europe and Asia.One of the nation's leading parenting experts, Jennifer Kolari, is a highly sought- after international speaker and the founder of Connected Parenting. A child and family therapist with a busy practice based in San Diego and Toronto, Kolari is also the author of Connected Parenting: How to Raise A Great Kid (Penguin Group USA and Penguin Canada, 2009) and You're Ruining My Life! (But Not Really): Surviving the Teenage Years with Connected Parenting (Penguin Canada, 2011).

The Dinner Table: A Southern Cannibal Podcast
7 TRUE Scary Deep South Horror Stories | Episode 582

The Dinner Table: A Southern Cannibal Podcast

Play Episode Listen Later Apr 4, 2025 41:09


The South can really be an interesting place... BUY MY MERCH PLEASE!  https://southern-cannibal-shop.fourthwall.com/? Send your TRUE Scary Stories HERE! ► https://southerncannibal.com/  OR Email at southerncannibalstories@gmail.com LISTEN TO THE DINNER TABLE PODCAST! ► https://open.spotify.com/show/3zfschBzphkHhhpV870gFW?si=j53deGSXRxyyo9rsxqbFgw Faqs about me ► https://youtube.fandom.com/wiki/Southern_Cannibal Stalk Me! ► Twitter: https://twitter.com/iAmCanni ► Instagram: https://instagram.com/iamreallycanni ► Merch: https://southern-cannibal-shop.fourthwall.com/? ► Scary Story Playlist: https://www.youtube.com/playlist?list=PL18YGadwJHERUzNMxTSoIYRIoUWfcGO2I ► DISCLAIMER: All Stories and Music featured in today's video were granted FULL permission for use on the Southern Cannibal YouTube Channel!  Huge Thanks to these brave folks who sent in their stories! #1. - u/dannicalliope #2. - Anonymous #3. - BS #4. - Anonymous #5. - FTD #6. - Anonymous Redditor #7. - MM Huge Thanks to these talented folks for their creepy music! ► Myuuji: https://www.youtube.com/c/myuuji ♪ ► CO.AG Music: https://www.youtube.com/channel/UCcavSftXHgxLBWwLDm_bNvA  ♪ ► Kevin MacLeod: http://incompetech.com ♪ ► Piano Horror:  https://www.youtube.com/PianoHorror ♪ https://creativecommons.org/licenses/by/3.0/us/

Remember Me
Dominic

Remember Me

Play Episode Listen Later Apr 1, 2025 72:09


We plunge head first into family dynamics with our extraordinary guest, Niki. Niki shares the story of her father, Dominic, detailing his journey with FTD - including the difficulties of balancing the reality and gravity of the diagnosis alongside the overwhelming decisions for his care. All while navigating family conflicts, and of course, the emotional and psychological toll it takes. Niki talks all about her journey as a new mom and new entrepreneur while navigating it all. We bond over the survival mode of it all - and learning how to trust your gut, establish boundaries, and find your "people". Thank you to Niki for sharing your story with us and the whole RM community.If you're curious about anything RM, we'd love to connect with you on PATREON, our website at www.remembermeftd.com, or on Instagram for all the latest updates!Thinking about joining our Family Dynamics class in May? We'd be happy to chat—just drop us an email at hello@remembermeftd.com for more details.Remember Me Podcast + Community is here to offer hope + human connection for families, caregivers, and individuals impacted by Frontotemporal Dementia (FTD). Always, always accept the good.

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The Digital Deep Dive With Aaron Conant
The Future of Onsite Search With Charlie Cole

The Digital Deep Dive With Aaron Conant

Play Episode Listen Later Mar 27, 2025 37:43


Charlie Cole is the President of XGEN AI, a composable AI platform for eCommerce. As a seasoned eCommerce executive, he has over two decades of experience leading digital transformations for global brands. Before XGEN AI, Charlie served as the CEO at Tribute Technology and FTD and held leadership positions at Samsonite and TUMI, where he drove significant digital growth. In this episode… Online commerce search has long frustrated both brands and consumers. Whether it's typing in a detailed query and getting zero results or sifting through hundreds of irrelevant products, traditional search engines can't keep up with consumers' evolving shopping habits. As search behavior evolves and expectations rise, how can brands deliver a shopping experience that feels intuitive, personal, and helpful? According to digital executive and eCommerce operator Charlie Cole, generative AI presents unique opportunities for search personalization. These tools can understand natural language, learn from user behavior, and surface relevant results — even for complex, descriptive queries. Charlie urges companies to invest in technologies that apply AI image recognition, contextual search, and predictive merchandising. By focusing on genuine customer needs and creating frictionless, conversational experiences, brands can drive loyalty and revenue. In the latest episode of The Digital Deep Dive, Aaron Conant speaks with Charlie Cole, the President of XGEN AI, about revolutionizing eCommerce search with generative AI. Charlie discusses the future of search marketing, how to capitalize on industry events like Shoptalk, and how XGEN AI's platform powers innovative search solutions.

Neurology Minute
Frontotemporal Dementia Differential Diagnosis in Clinical Practice

Neurology Minute

Play Episode Listen Later Mar 14, 2025 3:12


Dr. Trey Bateman and Dr. Amy Brodtmann discuss referrals for frontal network impairment and FTD, highlighting the most helpful information for reaching a final diagnosis after evaluation. Show reference: https://www.neurology.org/doi/10.1212/CPJ.0000000000200360   

Neurology® Podcast
Frontotemporal Dementia Differential Diagnosis in Clinical Practice

Neurology® Podcast

Play Episode Listen Later Mar 13, 2025 27:57


Dr. Trey Bateman talks with Dr. Amy Brodtmann about the complexities of diagnosing FTD and related disorders, emphasizing the need to understand frontal network impairments and the importance of behavioral assessments and psychiatric history in clinical practice. Read the related article in Neurology® Clinical Practice. Disclosures can be found at Neurology.org.

Innovation and the Digital Enterprise
Impatience, Impact, and Exceeding Expectations with Jay Topper

Innovation and the Digital Enterprise

Play Episode Listen Later Mar 13, 2025 50:39 Transcription Available


In today's episode Patrick and Shelli welcome Jay Topper, Chief Customer Officer at Fabric, to discuss his extensive career, leadership practices, and retail trends in 2025. In our wide-ranging discussion, Jay emphasizes the importance of curiosity, self-awareness, and a 'hero culture' within organizations to foster quick and effective change. As an advocate for rapid execution and overcoming complacency, he offers practical advice for leaders to push their teams, but not push them away. Jay unpacks how to strike a balance between speed and thoughtful decision-making to achieve attainable and sustainable successes.(00:23) Welcome Jay Topper(02:15) Jay's Role at Fabric(03:47) Retail Industry Insights for 2025(09:00) Navigating Technology and AI in Retail Tech(14:30) Pushing for Speed in your Teams(23:56) Building a Hero Culture(26:36) Handling Crisis with Levity(29:11) Building Trust in a New Company(41:42) Embracing Impatience(44:31) The Value of Being Proven Wrong(49:02) Closing ThoughtsJay Topper, Chief Customer Officer at Fabric, is a US Army and Coast Guard veteran, who earned a Bachelors degree at the US Coast Guard Academy, and a Masters degree at NYU Tandon School of Engineering. After a decade serving our nation, he's had an exceptional 30 year civilian career, holding technology leadership roles like Chief Digital Officer, Chief Information Officer, Chief Technology Officer at Chico's FAS, FTD, Vitacost, and Rosetta Stone. He hosts his own podcast for Fabric exploring leadership and retail tech, called “Chiefly Digital.”If you'd like to receive new episodes as they're published, please subscribe to Innovation and the Digital Enterprise in Apple Podcasts, Spotify, or wherever you get your podcasts. If you enjoyed this episode, please consider leaving a review in Apple Podcasts. It really helps others find the show.Podcast episode production by Dante32.

Full Time DEVILS Podcast
Why We Can FINALLY Be Excited! | Off The Bar

Full Time DEVILS Podcast

Play Episode Listen Later Mar 12, 2025 49:57


Click the link below and use the code [PADDOCK45] for 45% OFF your at home test! - https://www.manual.co/testosterone-replacement-therapy/initial-testosterone-blood-test?coupon=PADDOCK45&utm_source=youtube&utm_medium=influencer&utm_campaign=stretfordpaddock It's been a CRAZY 48 hours in the history of Manchester United, as Jim Ratcliffe has two blockbuster interviews, then designs for a new state-of-the-art stadium. Jay, Joe & Gaz Drinkwater break it all down! Become a member! - https://www.youtube.com/channel/UC7w8GnTF2Sp3wldDMtCCtVw/join Chapters: 0:00 - Video Start 1:02 - New Stadium 16:50 - Manchester Split 20:55 - Stadium Wider Impact 28:46 - Ratcliffe Comments 42:15 - Optimism Stretford Paddock has content out EVERY DAY, make sure you're subscribed for your Man United fix! - https://bit.ly/DEVILSsub

I'm Dying to Tell You
Carrying an ALS Gene: Mindy Uhrlaub's Story of Hope & Action

I'm Dying to Tell You

Play Episode Listen Later Mar 5, 2025 49:53 Transcription Available


What happens when you learn that your DNA carries the same mutation that led to a loved one's battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic.We dive into the mental and emotional impact of her hereditary disease, the stigma surrounding genetic conditions, and how humor, advocacy and community can help navigate these uncertainties. Mindy also talks about her work with End the Legacy, a patient led organization dedicated to the needs and interests of the Genetic ALS & FTD community.This powerful conversation is a reminder that while genetics may shape our path, they don't define who we are. Tune in for an honest, hopeful discussion about fear, resilience and finding purpose in the face of the unknown.  Listen in and share with a friend.  Hugs, LorriFollow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.

MadLit Musings with Jaime Jo Wright
Living with Dementia, Grief, and Laughter - with Author Melody Carlson

MadLit Musings with Jaime Jo Wright

Play Episode Listen Later Mar 4, 2025 27:24


In this heartfelt conversation, Jaime Jo and Melody Carlson discuss Melody's new book, 'Welcome to the Honey B &B,' which is inspired by her personal experiences with her husband's battle with frontal temporal dementia (FTD). Join them as they chat about the complexities of caregiving, the emotional journey of dealing with illness and grief, and the importance of family and community support during a time of loss. It's a gentle and vulnerable chat, with a book at the center that brings lighthearted humor and hope to the weighty moments in our lives!

Fading Memories: Alzheimer's Caregiver Support
Love, Loss & FTD: A Daughter's Journey

Fading Memories: Alzheimer's Caregiver Support

Play Episode Listen Later Feb 25, 2025 51:48


Frontotemporal dementia (FTD) affects an estimated 50,000 to 60,000 people in the United States, robbing individuals of their personality, language, and ultimately, their memories. This devastating disease presents unique challenges, often impacting behavior and emotions long before memory loss becomes apparent. In this episode, we explore the complexities of love and loss through the lens of FTD. Our Guest: Katie, shares her love and loss story as a caregiver for her mother, who battled FTD. Katie, now a filmmaker, has captured her mom's journey in a poignant film that delves into the love and loss woven through the different stages of life, from middle age to the twilight years. With raw honesty, Katie confronts the messy and complicated emotions that accompany the long road of grief and caregiving. Join us as we discuss the unique challenges of FTD, the power of storytelling, and the enduring bonds of love that persist even in the face of devastating loss. Learn More About Katie & Wake Up Maggie Here ++++++++++++++++++++++++++++++++++++++++ Related Episodes: Dance and Memories: Dementia Engagement Music in Dementia Care Stress Relief to Moments of Joy ++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. ++++++++++++++++++++++++++++++++++++++++ Please Support Our Sponsors So We Can Continue To Bring The Show to You For Free - Thank You ++++++++++++++++++++++++++++++++++++++++ Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve I've been focusing a lot on taking care of my brain health, & I've found this supplement called RELEVATE to be incredibly helpful. It provides me with 17 nutrients that support brain function & help keep me sharp. Since you're someone I care about, I wanted to share this discovery with you. You can order it with my code: FM15 & get 15% OFF your order. With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram Twitter LinkedIn  Facebook Contact Jen at hello@fadingmemoriespodcast.com Or learn more at Our Website

Midlife with Courage
From Caregiving to Filmmaking: Katie Prentiss' Midlife Transformation

Midlife with Courage

Play Episode Listen Later Feb 18, 2025 32:51


Send us a textIn this episode of Midlife with Courage, Kim welcomes Katie Prentiss, a filmmaker and actor from Portland, Oregon, who shares her extraordinary journey of embracing creativity and caregiving in midlife. Katie talks about her transition from being a stay-at-home mom and portrait photographer to diving into the world of acting and filmmaking. She discusses her mother's battle with frontal temporal dementia (FTD), her midlife pivot to acting, and her ambitious project, 'Wake Up Maggie,' which aims to raise awareness for this lesser-known type of dementia. Katie's story is a testament to resilience and the pursuit of passion, highlighting the courage required to navigate life's unexpected turns. Listen to this inspiring conversation filled with valuable insights and words of encouragement.00:00 Welcome to Midlife with Courage00:26 Meet Katie Prentiss01:17 Katie's Courageous Journey02:14 From Stay-at-Home Mom to Entrepreneur05:49 The Acting Leap15:46 Creating Her Own Work22:44 Raising Awareness for FTD29:27 Final Thoughts and EncouragementFollow Katie on her WEBSITE to learn more about her.  If you want to learn more about her new movie "Wake Up Maggie" you can go to her Instagram account. You will find updates about the movie's progress and learn how you can support her mission of bringing awareness to FTD. Get your free ebook called Daily Habits for Hormonal Harmony by going to my website. This free guide will help you balance your hormones through some easy daily activities. Just add your email to the popup and your guide will be on its way to your inbox.From morning until bedtime, you can help yourself feel better! Support the showKim Benoy is a retired RN, Certified Aromatherapist, wife and mom who is passionate about inspiring and encouraging women over 40. She wants you to see your own beauty, value and worth through sharing stories of other women just like you.Would you like to get a "sneak" listen to each podcast? Subscribe to my website to get my weekly inspirational message and a link to that week's podcast a day ahead of everyone else! Just click the link below to get on the list! SUBSCRIBE WEBSITEFACEBOOK

Remember Me
BONUS | Grief & Genetic Testing with Erynn Gordon, MS, CGC, Progranulin Information Navigator

Remember Me

Play Episode Listen Later Feb 5, 2025 50:42


Surprise... another BONUS ep! The grief convo in Season 9, we felt, really needed to include the genetic piece of this disease, and so we are HONORED to have Erynn Gordon - a board certified genetic counselor with 20 years of clinical, research, and industry experience with us to dive into this topic. Erynn SO thoughtfully breaks down genetics and testing and chats with us all about a new resource the Progranulin Information Navigator. Let us know what you think of this bonus episode and please check out our sponsor ⁠⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. For all things Remember Me, visit remembermeftd.com For bonus content + connection, join us on Patreon www.patreon.com/remembermecommunity --- Remember Me is a podcast that shares stories of people with Frontotemporal Dementia (FTD) and their loved ones. The podcast's goal is to help people accept the good in life and to remember the people they love for who they were before the disease. 

Bob Barry's Unearthed Interviews

Valentine's Day is next week.  You can say it with flowers, but be careful. Sure, a bouquet might seem like a no brainer, but did you know that flowers have meanings. Sending the wrong ones might send your Valentine running for the hills. On my wedding day, a former girlfriend sent my wife a bouquet of black roses. Not good. They symbolize death and farewell. So, before you call FTD, listen to this podcast and make sure your flowers always send the right message. 

Grieving Voices
Katie Prentiss | The Slow Goodbye: Mother Loss with Frontotemporal Dementia

Grieving Voices

Play Episode Listen Later Feb 4, 2025 54:36 Transcription Available


This week, I sit down with Katie Prentiss, a filmmaker, actress, and caregiver who transformed her most profound loss into a powerful creative mission. Katie shares her raw and inspiring journey of caring for her mother through frontotemporal dementia (FTD), a challenging form of dementia that impacts personality and communication far differently than traditional memory-loss conditions.At the age of 62, Katie's mother, Maggie, passed away from FTD. Through our conversation, we follow Maggie's transition from caregiver to actress and the filmmaking of her debut film, "Wake Up Maggie," hoping to raise awareness about dementia and caregiving.  Katie beautifully describes grief as a "slow goodbye." She shares transformative perspectives, saying that grief doesn't have to have the final word and that facing fear can become a pathway to clarity and purpose. And, my favorite: the sun is always shining above the clouds, even when we can't see it. Katie has had to learn how to embrace life fully, knowing the genetic uncertainty of FTD, following the diagnosis of another family member. But she's already learned how creative expression is a healing outlet and the importance of viewing midlife as an unraveling. Key Takeaways:Understanding the unique challenges of frontotemporal dementia.The emotional landscape of caregiving for a parent with a progressive illness.How grief can be a catalyst for personal transformation.The power of creative expression in processing loss.RESOURCES:Movie | "Wake Up Maggie"IMDbIG | Wake Up MaggieCONNECT WITH KATIE:WebsiteIGFBYouTubeSend Victoria a text message! Support the show_______NEED HELP? National Suicide Prevention Lifeline: 1-800-273-8255 Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.CONNECT WITH VICTORIA: Instagram Website LinkedIn Facebook This episode is sponsored by Do Grief Differently™️, my twelve-week, one-on-one, in-person/online program for grievers who have suffered any type of loss to feel better. Click here to learn new tools, grief education, and the only evidence-based method for moving beyond the pain of grief. Would you like to join the mission of Grieving Voices in normalizing grief and supporting hurting hearts everywhere? Become a sup...

Video Game Logic Podcast
VGL Franken Episode: The Covid Impossible Nugget

Video Game Logic Podcast

Play Episode Listen Later Jan 31, 2025 30:28


Greetings friend. Jared had a fight with his two greatest Nemeses at the same time: His ISP and his dishwasher. Service outages and FTD errors prevented him from being able to record this week. So we've gone back into the archives, and pulled out another old Franken Episode. Hope you all have a lovely week!

Linda's Corner: Faith, Family, and Living Joyfully
Frontotemporal Dementia [FTD]: Raising Awareness and Navigating Caregiving Challenges

Linda's Corner: Faith, Family, and Living Joyfully

Play Episode Listen Later Jan 28, 2025 29:37


Katie's mom was just 62 when she was diagnosed with frontotemporal dementia.  The diagnosis catapulted her family into the world of caregiving and learning about this lesser known form of dementia.  Katie Prentiss is an award winning actress and filmmaker.  She is currently working on a feature film called “Wake Up Maggie” which is a love letter to her mom.  You can reach Katie at her website https://www.katieprentiss.com or Instagram @wakeupmaggiemovie.  You can also help Katie raise FTD awareness by supporting her go fund me.  Some of the highlights Katie shares:Frontotemporal dementia [FTD] is a lesser known type of dementia that is often misdiagnosed as depression, menopause, alcoholism, or delusional disorderThe unusual symptoms of FTD - this is not like the typical memory loss of Alzheimer's FTD is the most common type of dementia for people under 65The reality of saying a "slow goodbye" to someone you loveThe reality of being catapulted into caregivingWhy we need additional research about FTDRaising awareness through filmThe concept of "unraveling" by peeling back the layers that don't serve us anymore - becoming more authenticLearning to focus on what we can control Dealing with caregiver guiltFeeling overwhelmed as a caregiverLearning to be compassionate with yourself as a caregiverAcceptance is where peace liesLiving with the thought, "What if it happens to me"Living a life filled with peace and fulfillment rather than fear and regretAnd morePlease share, subscribe, leave a rating and review, visit the Linda's Corner website at lindascornerpodcast.com and/or follow on youtube, facebook, instagram, and pinterest @lindascornerpodcast. Thanks!Also please visit the Hope for Healing website at hopeforhealingfoundation.org for free resources to increase happiness, build confidence and self esteem, improve relationships, manage stress, and calm feelings of depression and anxiety.   Become the champion of your own story as you overcome your challenges.  

Remember Me
BONUS | A Conversation on Grief with the AFTD

Remember Me

Play Episode Listen Later Jan 28, 2025 69:05


Surprise! We're back with a Season 9 Bonus Episode, and if you are so inclined, you can now WATCH this episode on Youtube. We sat down with our friends Esther Kane, MSN, RN-CDP, Support & Education Director and Sarah Lopata, Support Services Manager at the Association for Frontotemporal Degeneration to discuss the unique grief experience of FTD and many of its layers. Let us know on instagram what you think of this episode + the topics covered. Please share this episode with someone you think needs to hear it! SPECIAL THANK YOU TO THIS EPISODE SPONSOR The Association for Frontotemporal Degeneration Check out their grief resource, Walking with Grief: Loss and the FTD Journey here.

Neurology Minute
Changes in Cerebral and Hypothalamic Structure With Sleep Dysfunction in Patients With Genetic FTD

Neurology Minute

Play Episode Listen Later Jan 16, 2025 2:01


Dr. Trey Bateman, Dr. Simon Ducharme, and Tristin Best discuss changes in hypothalamic structure across the lifespan in patients with genetic FTD and whether these changes related to sleep dysfunction.  Show reference: https://www.neurology.org/doi/10.1212/WNL.0000000000209829  

Neurology® Podcast
Changes in Cerebral and Hypothalamic Structure With Sleep Dysfunction in Patients With Genetic FTD

Neurology® Podcast

Play Episode Listen Later Jan 13, 2025 15:30


Dr. Trey Bateman talks with Dr. Simon Ducharme and Tristin Best about changes in hypothalamic structure across the lifespan in patients with genetic FTD and whether these changes related to sleep dysfunction. Read the related article in Neurology. Disclosures can be found at Neurology.org.

The Midlife Makeover Show - Divorce, Empty Nest, Retirement, Financial Freedom, Midlife Crisis, Healthy Habits

In this heartfelt and inspiring episode, Wendy Valentine sits down with actor, filmmaker, and storyteller Katie Prentiss to discuss her transformative journey of caregiving, creativity, and healing. Katie shares the deeply personal story of losing her mom to frontotemporal dementia (FTD) and how it inspired her upcoming film, Wake Up Maggie. This film is more than a project—it's a mission to raise awareness about dementia, honor caregivers, and explore life's most profound moments of love, loss, and awakening. Tune in for a powerful conversation that will inspire you to embrace life, find meaning in the challenges, and live fully in the present.   What You'll Learn in This Episode: Katie's personal journey of caregiving for her mom and how it changed her life. The differences between frontotemporal dementia (FTD) and other forms of dementia, like Alzheimer's. The emotional impact of caregiving and how it can lead to personal transformation. The inspiration and process behind Katie's film, Wake Up Maggie, and how storytelling can drive awareness and change. Practical advice and uplifting words for caregivers and those impacted by dementia.   Episode Highlights: Katie's Story: From navigating caregiving challenges to rediscovering herself as a filmmaker and actor. FTD Awareness: Understanding the symptoms and challenges of frontotemporal dementia. Finding Purpose Through Grief: How Katie turned her fear and loss into a mission to inspire and educate others. Caregiver Resilience: A look at the sacrifices and joys of caring for loved ones with dementia. The Power of Storytelling: Katie's vision for Wake Up Maggie and its potential to spark conversation and change.   This episode is a must-listen for caregivers, storytellers, and anyone seeking to find light through life's darkest moments. Tune in now and be inspired!

Remember Me
Craig

Remember Me

Play Episode Listen Later Dec 24, 2024 65:21


In our Season 9 finale we hear from our friend Anna, wife to the incredible, confident, loving girl-Dad, Craig. Anna's strength and her love is so inspiring, we hope it fills you with hope and comfort as you navigate the holidays. ------- An extended version of this amazing episode is available now on our Re-Members only Patreon. A special thank you to all of our guests, sponsors + listeners this season. We are so deeply thankful + grateful for you. Hope this season you can find some time to #acceptthegood. We are here for you. xx - R+M ------ Please check out some of our amazing sponsors: ⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠MAKE TIME WELLNESS⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Remember Me
The Phenomenon of Grief with Rachael Martinez, MA, Grief Support Specialist

Remember Me

Play Episode Listen Later Dec 17, 2024 50:57


Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet* We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instagram. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠⁠⁠MAKE TIME WELLNESS⁠⁠⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Dementia Researcher
International Symposium on ALS / MND Roundup 2024

Dementia Researcher

Play Episode Listen Later Dec 12, 2024 30:21


In this special episode, recorded in Montreal, Canada, we bring you highlights from the International Symposium on ALS/MND 2024 organised by the MND Association. Host Dr Alys Griffiths, Senior Research Fellow at the University of Sheffield, is joined by three expert guests to discuss the latest research and breakthroughs in Amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND). Dr Megan Fowler, a postdoctoral researcher from Flinders University, shares insights into her work on endogenous retroviruses and their role in ALS. Professor Eneida Mioshi, from the University of East Anglia, explores cognitive and behavioural changes in ALS and FTD and their impact on care. Dr Ahmad Al Khleifat, a group leader at King's College London, highlights advancements in genomic research and efforts to diversify ALS studies globally. Key topics include promising therapies like antisense oligonucleotides, the integration of patient voices in research, and the power of collaboration to accelerate progress. For more updates, follow #ALSMNDSymposium on social media or visit https://symposium.mndassociation.org -- Full biographies on all our guests and a transcript can be found on our website: www.dementiaresearcher.nihr.ac.uk -- Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode . -- This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer's Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support. -- Follow us on social media: http://www.instagram.com/dementia_researcher/ http://www.facebook.com/Dementia.Researcher/ http://www.twitter.com/demrescommunity http://www.linkedin.com/company/dementia-researcher http://bsky.app/profile/dementiaresearcher.bsky.social -- Download our new community app: onelink.to/dementiaresearcher

Remember Me
Diana | Part 2

Remember Me

Play Episode Listen Later Dec 5, 2024 44:44


In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief journey and her hopes for her future. Make sure you listen t o Part 1 first! Thank you Kayla for sharing your story. --- *Trigger warning: This story discusses physical and verbal abuse. Please check out the sponsor mentioned in this episode: ⁠⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Remember Me
Diana | Part 1

Remember Me

Play Episode Listen Later Dec 3, 2024 43:05


Here is part one of an episode we weren't sure what to title - and after you listen, we think you'll understand why. Kayla recounts and her 20 year experience witnessing her mom Diana's dramatic FTD journey -- starting from when she was just 8 years old. This is such an important episode and we hope it gets to the people who need to hear it. Stay tuned for part 2 dropping later this week. Thank you, Kayla for sharing your story. *Trigger warning: This episode discusses physical and verbal abuse. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠⁠MAKE TIME WELLNESS⁠⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠PATREON⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Joyful Journey
Dementia — with Keri Allen

Joyful Journey

Play Episode Listen Later Nov 29, 2024 60:21


Caring for family members with dementia can be exhausting, difficult, and can even feel hopeless. What guidance can we find in the scriptures to support those caring for individuals with dementia? In this episode, Janet and Jocelyn interview Keri Allen, a former special education teacher who served as the primary caregiver for her father from his early-onset frontotemporal dementia (FTD) diagnosis until his passing in 2024. Keri offers a biblical perspective on dementia and directs listeners to the ultimate source of hope for Christians—Jesus Christ. ⁠⁠⁠⁠⁠Episode Transcript⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Resources Books/Blogs Redeeming Memory - Matt Rehrer Keri's Caregiving Blog Guardianship Blog Post - Keri Podcast Keri's Story on the Remember Me Podcast Ben & Keri's Story of Dementia Misdiagnosis Keri's Guardianship Story on Remember Me Podcast Aging Biblically - Joyful Journey  Biblical Lament - Joyful Journey Loving Their Soul - Joyful Journey Helping the Grieving - Joyful Journey  Website Biblical Counseling Training Conferences Handout Read Through the Scripture Challenge 2024 Visit the ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Joyful Journey website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ to sign up for our newsletter, view a transcript, and search previous episodes. Emails us with questions or comments at joyfuljourneyquestions@outlook.com ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Donate to Joyful Journey Podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Joyful Journey Podcast is a ministry of Faith Bible Seminary. All proceeds go to offset costs of this podcast and toward scholarships for women to receive their⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ MABC through Faith Bible Seminary⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠.

Breakpoints
#107 – Dosing Consult: Valganciclovir

Breakpoints

Play Episode Listen Later Nov 29, 2024 77:05


Drs. Anne-Grete Märtson, Megan Wimmer, and Evan Clemens join Dr. Erin McCreary to tackle the one of the hottest debates among providers taking care of immunocompromised patients, valganciclovir dosing! Learn all about the history of valganciclovir dosing, what is valganciclovir's PK/PD target, and even valganciclovir therapeutic drug monitoring. References: Märtson AG, Edwina AE, Kim HY, Knoester M, Touw DJ, Sturkenboom MGG, Alffenaar JC. Therapeutic Drug Monitoring of Ganciclovir: Where Are We? Ther Drug Monit. 2022 Feb 1;44(1):138-147. doi: 10.1097/FTD.0000000000000925. PMID: 34610621; PMCID: PMC8746890. Wiltshire H, Paya CV, Pescovitz MD, Humar A, Dominguez E, Washburn K, Blumberg E, Alexander B, Freeman R, Heaton N, Zuideveld KP; Valganciclovir Solid Organ Transplant Study Group. Pharmacodynamics of oral ganciclovir and valganciclovir in solid organ transplant recipients. Transplantation. 2005 Jun 15;79(11):1477-83. doi: 10.1097/01.tp.0000164512.99703.ad. PMID: 15940035. This podcast is powered by Pinecast.

Remember Me
David

Remember Me

Play Episode Listen Later Nov 26, 2024 56:23


Today's episode is told by Liz, who was 12 years old when her father passed away from FTD-ALS. Her perspective was both fascinating and inspiring and we felt so honored to hold space for her and her dad, David. We hope this episode of love and resilience helps carry you through Thanksgiving week. Take good care. Please send this episode to someone you think needs to hear it. Please check out the amazing sponsors mentioned in this episode: ⁠⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠⁠MAKE TIME WELLNESS⁠⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Remember Me
Evan

Remember Me

Play Episode Listen Later Nov 12, 2024 52:06


Today's episode is the first one this season told from the spouses perspective... and Allyson is such a special spouse to her husband Evan. From misdiagnosis of adult onset ADHD to the final diagnosis of FTD was a long, long journey. But Allyson's love for Evan shines throughout. This is a very special episode that is so raw and honest about the awfulness of this disease..but also such a beautiful example of love and commitment. We hope this episode finds someone who needs to hear it! Please check out the amazing sponsors mentioned in this episode: ⁠⁠PROGRANULIN INFORMATION NAVIGATOR⁠⁠ A resource for FTD clinical trial and genetic testing info. ⁠MAKE TIME WELLNESS⁠ (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ____ The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠PATREON⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Remember Me
Rosetta

Remember Me

Play Episode Listen Later Nov 5, 2024 57:01


Ready to dive into all the feels? This may be our favorite convo on grief to date. In today's episode Aisha tells us about her mother's journey with FTD - and because we know Aisha, we felt like we were able to dive deep into all the things we wish people knew about our grief journeys. Thank you Aisha for sharing your story with us! We hope this episode reaches someone who needs to hear it, so please share with a friend! Please check out the amazing sponsors mentioned in this episode: ⁠PROGRANULIN INFORMATION NAVIGATOR⁠ A resource for FTD clinical trial and genetic testing info. MAKE TIME WELLNESS (Use code REMEMBERME for 25% off your order -- we personally love the Rhodiola gummies!) ------ For all things RM, join us over on PATREON soon, visit our website www.remembermeftd.com or follow us on Instagram! --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

rm ftd rhodiola rememberme
TCBCast: An Unofficial Elvis Presley Fan Podcast
TCBCast 337: That's The Way It Is Rehearsals, Part 1

TCBCast: An Unofficial Elvis Presley Fan Podcast

Play Episode Listen Later Nov 5, 2024 67:38


Justin and Bec begin to explore the recordings that remain from the rehearsals leading up to the August 1970 concerts that would become the centerpiece of the 1970 documentary film "That's The Way It Is." The film's director, Denis Sanders, was fascinated by Elvis as a creative force and wanted audiences to get a glimpse of his working process - some of which briefly appeared in the final film, some surfaced in the MGM collection "The Lost Performances" and further material in the Special Edition re-edit of the film from 2001 - but despite several official releases of select material and numerous bootlegs over the years, it wasn't until 2020 that Sony's FTD sub-label officially released the vast majority of the audio of the TTWII rehearsals for the most ardent fans to hear and learn from. In this first part, the duo only cover the first two days of rehearsals filmed & recorded, July 14-15, 1970, but also lay the groundwork for the more dense back portion of the rehearsals. Our next episode will cover the rest from July and August 1970 as well as Songs of the Week from Gurdip and Justin. If you enjoy TCBCast, please consider supporting us with a donation at Patreon.com/TCBCast. Your support allows us to continue to provide thoughtful, provocative, challenging and well-researched perspectives on Elvis's career, his peers and influences, and his cultural impact and legacy.

Full Time DEVILS Podcast
United Players Want Ruud Van Nistelrooy To STAY?! | Paddock Podcast

Full Time DEVILS Podcast

Play Episode Listen Later Nov 4, 2024 59:25


Get 20% Off and Free Shipping with the code PADDOCK24 at https://www.manscaped.com Join Joe and Jay for a dive into wether Ruud will stay following Amorim's appointment! Become a member! - https://www.youtube.com/channel/UC7w8GnTF2Sp3wldDMtCCtVw/join Stretford Paddock has content out EVERY DAY, make sure you're subscribed for your Man United fix! - https://bit.ly/DEVILSsub

Gather, Darlings
BRING YOUR BESTIE | Go-Mo girls—Sandra and Diana Gonzalez-Morett, Filmmaker & Caregivers

Gather, Darlings

Play Episode Listen Later Nov 1, 2024 82:14


We're diving deep with the Go-Mo girls—Sandra and Diana Gonzalez-Morett—two badass sisters who turned their caregiving story into advocacy and art with their film Pedacito de Carne. After 7 years as full-time caregivers for their mom, Diana, they're here to spill on the highs, the heartbreaks, and the bonds that only sisters could handle. From navigating FTD (Frontotemporal Degeneration) to finding joy, love, and even play in the darkest of times, these women are redefining what it means to care and live fully. Tune in for sharing of  resilience, sisterhood, mental health, ADHD and why self-care is the ultimate act of rebellion.   "Pedacito de Carne" is a short drama film that follows Sandra, a young millennial caregiver for her mother, Antonia, who is living with Frontotemporal Degeneration (FTD). Inspired by the real-life experiences of Diana and Sandra Gonzalez-Morett with their mother's FTD journey, the film portrays the challenges and emotional complexities of caregiving. It illustrates a day in Sandra's life, highlighting themes of love and connection amidst adversity.    Connect with the Go-Mo sisters at: @sandygomo @dianalaurengm @PedacitodeCarnefilm   Learn more at https://www.theaftd.org/ Beyondd Project: https://beyonddproject.org/     We'd love for you to subscribe, rate and review!  Follow us on Instagram HERE and Join our Facebook Group HERE.    Come as you are!    We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.      

Remember Me
Eugene

Remember Me

Play Episode Listen Later Oct 29, 2024 62:47


Long-time listener and "Re-member" Liz, shares her father Eugene's journey with FTD. A year plus since his passing, Liz shares her experience with grief, how it manifests for her - and how she keeps herself tethered to the memory of who he was before FTD. We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠⁠⁠www.remembermeftd.com⁠⁠⁠⁠ | ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our ⁠⁠Re-Members Only group⁠⁠ or contact us about ⁠⁠partnerships⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

The CyberWire
UnitedHealth breach numbers confirmed.

The CyberWire

Play Episode Listen Later Oct 25, 2024 26:42


UnitedHealth confirms breach numbers. Patient privacy pains. Amazon vs. APT29. CDK vulnerability threatens user security. Fog and Akira take aim at SonicWall. Level up or log off. LinkedIn in hot water. Open source, closed doors.  Watt's the risk? Today, we are joined by Itzik Alvas, Entro Security's CEO and Co-Founder, discussing their research team's work on non-human identities and secrets management. And Muni Metro hits Ctrl+Alt+Delete on floppy disks! Remember to leave us a 5-star rating and review in your favorite podcast app. Miss an episode? Sign-up for our daily intelligence roundup, Daily Briefing, and you'll never miss a beat. And be sure to follow CyberWire Daily on LinkedIn. CyberWire Guest Today, we are joined by Itzik Alvas, Entro Security's CEO and Co-Founder, discussing their research team's work on non-human identities and secrets management. You can learn more here.  Selected Reading UnitedHealth: 100 Million Individuals Affected by the Change Healthcare Data Breach (Heimdal) OnePoint Patient Care data breach impacted 795916 individuals (Security Affairs) Amazon identified internet domains abused by APT29 (AWS Security Blog)  RDP configuration files as a means of obtaining remote access to a computer or "Rogue RDP" (CERT-UA#11690) (CERT-UA)  AWS Cloud Development Kit flaw exposed accounts to full takeover (The Register)  Arctic Wolf Labs Observes Increased Fog and Akira Ransomware Activity Linked to SonicWall SSL VPN (Arctic Wolf)  Lazarus Group Exploits Chrome 0-Day for Crypto with Fake NFT Game (Hackread)  LinkedIn hit with $335 million fine for using member data for ad targeting without consent (The Record)  Linux creator approves de-listing of several kernel maintainers associated with Russia (The Record)  U.S. CISA adds Cisco ASA and FTD, and RoundCube Webmail bugs to its Known Exploited Vulnerabilities catalog (Security Affairs) Cybersecurity Isn't Easy When You're Trying to Be Green (Dark Reading)  Goodbye, floppies - San Francisco pays Hitachi $212 million to remove 5.25-inch disks from its light rail service (TechSpot) Share your feedback. We want to ensure that you are getting the most out of the podcast. Please take a few minutes to share your thoughts with us by completing our brief listener survey as we continually work to improve the show.  Want to hear your company in the show? You too can reach the most influential leaders and operators in the industry. Here's our media kit. Contact us at cyberwire@n2k.com to request more info. The CyberWire is a production of N2K Networks, your source for strategic workforce intelligence. © N2K Networks, Inc. Learn more about your ad choices. Visit megaphone.fm/adchoices

TCBCast: An Unofficial Elvis Presley Fan Podcast
TCBCast 335: "From Here to the Great Unknown" Final Thoughts

TCBCast: An Unofficial Elvis Presley Fan Podcast

Play Episode Listen Later Oct 22, 2024 119:34


Olivia joins Justin for their thoughts on the TV special Riley Keough did with Oprah, filmed at Graceland, Riley's Graceland Q&A, and the rest of Lisa Marie's book now that things have started to finally settle. The duo also answers a bunch of listener feedback, discuss dialogue edits on "The Last Tours, Volume 1" FTD, and a recent video Olivia watched about one of Elvis' Ed Sullivan performances of Hound Dog. For Song of the Week, Justin selects Elvis's cover of the Waylon Jennings hit "You Asked Me To," and ponders the implications of a minor lyrical change Elvis made in his final version. Olivia highlights Elvis's 1976 recording of Larry Gatlin's "Bitter They Are, Harder They Fall."  If you enjoy TCBCast, please consider supporting us with a donation at Patreon.com/TCBCast. Your support allows us to continue to provide thoughtful, provocative, challenging and well-researched perspectives on Elvis's career, his peers and influences, and his cultural impact and legacy. 

Remember Me
Jerry

Remember Me

Play Episode Listen Later Oct 8, 2024 47:16


Today's story is shared with the perspective of 20 years in the rear view mirror. Cindy joins us to tell the story of her father Jerry's journey with early onset Alzheimers, which he was diagnosed with in the late 80s. With many years of reflection, Cindy shares her perspectives on her grief journey and her relationship with her sweet Dad. Cindy recently authored a book with reknown FTD expert Dr. Bruce Miller called Finding the Right Words, which chronicals her father's disease but also focuses on remembering Jerry for who he was before the diesase (you know we love that!). We hope this episode helps you feel less alone. Spread the word + share this episode with someone you think needs to hear it today. --- All things Remember Me FTD Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠ Ways to support our podcast: follow us on Instagram | leave an apple review | join our Re-Members Only group or contact us about partnerships. Speaking of... Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

Remember Me
Steve

Remember Me

Play Episode Listen Later Sep 24, 2024 48:09


Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless. We hope that Season 9 helps you feel less alone. Spread the word + share this episode with a friend for World FTD Awareness Week. --- All things Remember Me Community + Advocacy: ⁠www.remembermeftd.com⁠ | ⁠@remembermepodcast⁠ Holding Space Course Begins 10/7: Register ⁠here⁠. Check out our friends at ⁠Wake Up Maggie Film⁠. --- Support this podcast: https://podcasters.spotify.com/pod/show/rememberme/support

All Home Care Matters
The Association for Frontotemporal Degeneration (AFTD) with Esther Kane & Debbie Elkins

All Home Care Matters

Play Episode Listen Later Jul 16, 2024 48:29


All Home Care Matters and our host, Lance A. Slatton were honored to welcome Esther Kane and Debbie Elkins from The Association for Frontotemporal Degeneration (AFTD).   About The Association for Frontotemporal Degeneration (AFTD):   Online at theaftd.org, AFTD is the largest national nonprofit devoted to providing resources to help families affected by FTD today, and advancing research to foster accurate diagnosis, treatments, and a cure. Our volunteer founded organization – driven by thousands of volunteers and donors – reflects a community's profound determination to #endFTD. With the FTD Disorders Registry, we are proud to partner with families, researchers, biopharma companies, state and federal policymakers, and health professionals across the country to improve care for people and families facing FTD – efforts that could ultimately be importance to all facing dementia or neurodegenerative disease.     About Esther Kane, MSN, RN-CDP:     Esther Kane, MSN, RN-CDP joined AFTD as its Director of Support and Education in November 2020. Previously, Esther served as Director of Wellness at CareOne Management, a company that provides elder-care services throughout the Northeast U.S. She brings clinical, educational, managerial, and marketing skills along with a passion for quality care for those who are living with neurological conditions. Her work reflects a strong commitment to the importance of education and training throughout the spectrum of diagnosis and delivery of quality care.     At AFTD, Esther ensures that support services and educational programs advance early diagnosis and improve access to quality care and effective support, and that that clinical information provided to healthcare professionals and the AFTD community is current and evidence-based.     Debbie Elkins, RN and AFTD Ambassador for West Virginia:     After her husband's journey to an FTD diagnosis, Debbie became an AFTD volunteer and hosted her first Food for Thought fundraiser. With a passion to raise awareness in her community and to make connections with others in rural areas of West Virginia and southeast Ohio, Debbie was invited to become an Ambassador in 2023.     Working with AFTD staff, she began provider outreach visits hoping to connect the local medical community and others to AFTD. As a registered nurse, Debbie hopes to use her voice to bring FTD awareness to the public, provide education, and point families to the “gold mine” of resources and support that AFTD offers.