Podcasts about darvocet

The Food and Drug Administration (FDA) prevented Darvocet from being prescribed since 2010.https://recoverypartnernetwork.com/drug/opioid/darvocet-darvon-addiction

The decision to recall the drug was put forth by the FDA after concluding that the serious cardiac side effects of the drug overshadow the treatment efficacy of the painkillers. https://recoverypartnernetwork.com/drug/opioid/darvocet-darvon-addiction

Darvocet is used to alleviate mild to moderate pain with or without fever.https://recoverypartnernetwork.com/drug/opioid/darvocet-darvon-addiction

They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC. Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Brooke is a mom, TSC advocate, Adult Regional Coordinator for the TS Alliance, and also Hairstylist. Check out her Facebook here: https://www.facebook.com/brookey21 Jill Woodworth. (Human being. Writer,) Podcaster. Chronicler of being human. Parent of 5, 3 of whom have Tuberous Sclerosis Complex, each with varying effect Committed to giving voice to the underdog, the oppressed, those for whom being heard is crucial to survival and quality of life. If you are part of my world, which is everyone willing to take an honest look at their lives and discuss how the direst and desperate of situations often led to the most understanding and personal growth and compassion plus an inner motivation to work toward social good, then join my network! Let me know if you have a story to tell or if you need help to connect with this growing market. Contact me on linked in or drop me a note on https://tsctalks.com/ or pjlacy6@gmail.com. Offering podcast sponsorship, advertising, consulting, research, speaking and more. Here is an excerpt from the transcript, click link for full transcript: https://otter.ai/u/Y6Z9mem7vmGFueMlLMBQnPsaV34 “we've done our best to advocate and support our daughters, we've had to make tough decisions, lean on mental health services to keep them safe, preserve our own safety. And sometimes these choices are sorely inadequate. Sometimes our resources run out before we can get our loved ones into a situation where they can take advantage of supports and services and start to forge their own lives. Sometimes group homes are a good option, and ideally should be a good option for more. But again, we are dependent, or they're dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience. Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like, honestly, I was in Darvocet in the basement, and like watch real world and just said My mind was just junk. Because I just like might as well live vicariously through someone else. Since I can't leave my basement. Moving on, I ended up getting pregnant have a daughter with Tuberous sclerosis complex your directory, I was told that basically, you should have an abortion because your body will fight the fetus off anyways. But for me, I chose not to everybody has a different view on that. And that's fine. But that's something I wanted to have to live with. And then having her she was good for about the first four months. And you know, it's just, it's a whole long story when you have to see and I could break down every single little bit of our lives. But I then was pregnant for my son after she started seizing and went to Canada for infantile spasms. I mean, if you I know we've all been through a different differently. We're on a different boat, Jill has different stories with her children that I'll have with my daughter. But listen, that boat was sinking” They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC and others who are dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience. Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like, honestly, I was in Darvocet in the basement, and like watch real world and just said My mind was just junk. Because I just like might as well live vicariously through someone else. Since I can't leave my basement. Moving on, I ended up getting pregnant have a daughter with Tuberous sclerosis complex your directory, I was told that basically, you should have an abortion because your body will fight the fetus off anyways. But for me, I chose not to everybody has a different view on that. And that's fine. But that's something I wanted to have to live with. And then having her she was good for about the first four months. And you know, it's just, it's a whole long story when you have to see and I could break down every single little bit of our lives. But I then was pregnant for my son after she started seizing and went to Canada for infantile spasms. I mean, if you I know we've all been through a different differently. We're on a different boat, Jill has different stories with her children that I'll have with my daughter. But listen, that boat was sinking..." Brooke’s links: https://www.instagram.com/_b3mor34u_/ YouTube: https://www.youtube.com/channel/UCdP1KUfMBhO2l4bDHaciM0w Jill: https://linktr.ee/jillwoodworth

They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC.Brooke has had huge success utilizing Thrive-THRIVE Experience is an 8-week premium lifestyle plan, to help individuals experience and reach peak physical and mental levels. Brooke is a mom, TSC advocate, Adult Regional Coordinator for the TS Alliance, and also Hairstylist. Check out her Facebook here: https://www.facebook.com/brookey21Jill Woodworth. (Human being. Writer,) Podcaster. Chronicler of being human. Parent of 5, 3 of whom have Tuberous Sclerosis Complex, each with varying effect Committed to giving voice to the underdog, the oppressed, those for whom being heard is crucial to survival and quality of life. If you are part of my world, which is everyone willing to take an honest look at their lives and discuss how the direst and desperate of situations often led to the most understanding and personal growth and compassion plus an inner motivation to work toward social good, then join my network! Let me know if you have a story to tell or if you need help to connect with this growing market. Contact me on linked in or drop me a note on https://tsctalks.com/ or pjlacy6@gmail.com. Offering podcast sponsorship, advertising, consulting, research, speaking and more.Here is an excerpt from the transcript, click link for full transcript: https://otter.ai/u/Y6Z9mem7vmGFueMlLMBQnPsaV34 “we've done our best to advocate and support our daughters, we've had to make tough decisions, lean on mental health services to keep them safe, preserve our own safety. And sometimes these choices are sorely inadequate. Sometimes our resources run out before we can get our loved ones into a situation where they can take advantage of supports and services and start to forge their own lives. Sometimes group homes are a good option, and ideally should be a good option for more. But again, we are dependent, or they're dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience.Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like, honestly, I was in Darvocet in the basement, and like watch real world and just said My mind was just junk. Because I just like might as well live vicariously through someone else. Since I can't leave my basement. Moving on, I ended up getting pregnant have a daughter with Tuberous sclerosis complex your directory, I was told that basically, you should have an abortion because your body will fight the fetus off anyways. But for me, I chose not to everybody has a different view on that. And that's fine. But that's something I wanted to have to live with. And then having her she was good for about the first four months. And you know, it's just, it's a whole long story when you have to see and I could break down every single little bit of our lives. But I then was pregnant for my son after she started seizing and went to Canada for infantile spasms. I mean, if you I know we've all been through a different differently. We're on a different boat, Jill has different stories with her children that I'll have with my daughter. But listen, that boat was sinking”They also discuss alternative medicine options that they each have utilized and for which they feel strongly can be useful for those living with TSC and other chronic life-threatening conditions. Long term polypharmacy issues are incredible and waiting for pharmaceutical formulations of cannabis is not an option. We are witnessing suffering and mental/physical health issues that can be addressed in part through other modalities. Jill is a strong advocate for affordable access to cannabinoid medicine for those living with TSC and others who are dependent on funding and disconnects between providers and often not able to implement and implement enough surrounding support services that would enable individuals to be more successful learn from the group home living situation and move into a less restrictive environment. So, you know, I think my point is that I think they can work. I think there's a lot of challenges. So Brooke, why don't you go ahead and give me a little bit of your background and talk about your experience.Okay, I know this is part two. So if you watch part one, you can hear a lot. I mean, we could reshare that somewhere. So speaking on that I was diagnosed at 18 with TSC. And I had kidney tumors, basically was dealing with a lot of kidney stones, urinary tract infections, that type of thing at the age of like, 17 ish, probably a little bit after my hormones got to use, you know, used to my body, and were like, Hey, we're not gonna let you do life anymore. I was a cheerleader I skater, singer traveling singing group for a Christian. It was called Youth for Christ, stuff like that. I was very, very involved in a lot of things. So for me to be told at 18 I be in the wheelchair by the age of 30 was very detrimental to my mental health. Being told I could never have children. If I did, my body would fight the fetus off. So I just gave up and like, honestly, I was in Darvocet in the basement, and like watch real world and just said My mind was just junk. Because I just like might as well live vicariously through someone else. Since I can't leave my basement. Moving on, I ended up getting pregnant have a daughter with Tuberous sclerosis complex your directory, I was told that basically, you should have an abortion because your body will fight the fetus off anyways. But for me, I chose not to everybody has a different view on that. And that's fine. But that's something I wanted to have to live with. And then having her she was good for about the first four months. And you know, it's just, it's a whole long story when you have to see and I could break down every single little bit of our lives. But I then was pregnant for my son after she started seizing and went to Canada for infantile spasms. I mean, if you I know we've all been through a different differently. We're on a different boat, Jill has different stories with her children that I'll have with my daughter. But listen, that boat was sinking..."Brooke’s links: https://www.instagram.com/_b3mor34u_/ YouTube: https://www.youtube.com/channel/UCdP1KUfMBhO2l4bDHaciM0w Jill: https://linktr.ee/jillwoodworth

In this podcast I discuss the schedule of drugs and some other random drug facts! •Schedule of drugs https://www.dea.gov/drug-scheduling •Book I reference: https://www.amazon.com/Drugs-Society-Human-Behavior-Carl/dp/1259913864 Prevent access to drugs vs teaching someone the correct facts. •When schedule of drugs was created: -1970- War on Drugs began/ DEA (drug enforcement administration) was given more funding -1914- Harrison Act * 5 schedules were created - Schedule 1: Schedule I drugs, substances, or chemicals are defined as drugs with no currently accepted medical use and a high potential for abuse. Some examples of Schedule I drugs are: - heroin, lysergic acid diethylamide (LSD), marijuana (cannabis), 3,4-methylenedioxymethamphetamine (ecstasy), methaqualone, and peyote •1937- Reefer Madness, Targeting Hispanics with laws on marijuana - Schedule 2: Schedule II drugs, substances, or chemicals are defined as drugs with a high potential for abuse, with use potentially leading to severe psychological or physical dependence. These drugs are also considered dangerous. Some examples of Schedule II drugs are: - Combination products with less than 15 milligrams of hydrocodone per dosage unit (Vicodin), cocaine, methamphetamine, methadone, hydromorphone (Dilaudid), meperidine (Demerol), oxycodone (OxyContin), fentanyl, Dexedrine, Adderall, and Ritalin Barbiturates- CNS depressants, to use to reduce anxiety: sedative (Xanax- which is schedule 4, Ativan), Xanax and alcohol mixed would cause death due to short respiratory rate - Schedule 3: Schedule III drugs, substances, or chemicals are defined as drugs with a moderate to low potential for physical and psychological dependence. Schedule III drugs abuse potential is less than Schedule I and Schedule II drugs but more than Schedule IV. Some examples of Schedule III drugs are: Products containing less than 90 milligrams of codeine per dosage unit (Tylenol with codeine), ketamine, anabolic steroids, testosterone 18:14 - Schedule 4: Schedule IV drugs, substances, or chemicals are defined as drugs with a low potential for abuse and low risk of dependence. Some examples of Schedule IV drugs are: Xanax, Soma, Darvon, Darvocet, Valium, Ativan, Talwin, Ambien, Tramadol 24:30 Schedule 5: Schedule V drugs, substances, or chemicals are defined as drugs with lower potential for abuse than Schedule IV and consist of preparations containing limited quantities of certain narcotics. Schedule V drugs are generally used for antidiarrheal, antitussive, and analgesic purposes. Some examples of Schedule V drugs are: - cough preparations with less than 200 milligrams of codeine or per 100 milliliters (Robitussin AC), Lomotil, Motofen, Lyrica, Parepectolin 28:42- Opioids were a major cause of addiction in 1910, 1914 Harrison Act- putting taxes on drugs, Rockefeller drug laws 33:31- Alcohol and example of how it leads to wanting more. 36:24- Ketamine - strong antidepressant, horse tranquilizer Thank you for listening to my podcast! Follow me on Instagram! Living.wild.with.em

Episode 42. The Orange County episode. One of many more to come because the OC has some serious demons to unpack. Just ask Gary (who would prefer to remain anonymous for obvious reasons.) From flashing crowds at punk rock shows to smoking meth at Knott’s Berry Farms. From the “Meth That Makes You Cum” to Darvocet cupcakes and Hessian stepdads. Plus! Gary’s own secret DIY dildo recipe. This episode has it all. In fact we couldn’t even fit it all in here. Part II with Gary is gonna drop next Monday. Oh and Reno makes a surprise return halfway through. Enjoy!

I had the extreme honor of interviewing Brooke Alisha, TSC Advocate, Parent, Adult Living with TSC, Adult Regional Coordinator for Adult Support Region 5, LeVel Promotor. She has quite a story of challenges and hurdles, traumatic events, and heartache but also MUCH resilience, inner fortitude, a heart of love and hope. Diagnosed with Tuberous Sclerosis Complex (TSC is a condition that causes benign tumors to grow in different organs of the body) at the age of 18, Brooke gives us a picture, “I was very active. I was a cheerleader. I was in a precision ice skating team. I was very active in my church. I was in a traveling singing group. We had so many things. So for me, my life was.. always on the go and involved in something, a part of something and suddenly, I was on Darvocet and it literally brought me to my knees. I was in the middle of hair school. I had just started after I graduated. And I missed three months. I had to take medical leave because I couldn't get up. I was afraid to hurt my kidneys and the stent and that whole thing and then on top of it being on that medication. That was the start of everything really for me.” She talks of the utter devastation that followed post-diagnosis, “you looked at Google, you know, or Web MD or something. And it was like, awful. And I'm like, how can my life go from this to this? How am I supposed to (go on) and that it just made it worse”? After moving in with her boyfriend and withdrawing, there was more challenging news, “And so when I went to go see about the cysts on my ovaries, I actually found out I was two months pregnant with my daughter. So I did have this on my ovaries, but they're like, um, you're pregnant, and we're going to put you on Prozac because we don't know if you'll handle the baby or if you'll keep it or anything” To make things more challenging, she now had doctors weighing in, “She told me she advised an abortion and I wasn't okay with that. It wasn't how I grew up personally. And I thought, there's a reason I'm having her. So, I'm going to just have her and I'm going to get through it. And if I lose her, then it's meant to be I had to live with myself personally.” Her baby daughter started having infantile spasms at 4 months and diagnosed with TSC. She gives us a look at the inner experience of these circumstances and more challenges, “I guess I was so young, you know, I was scared to death of what was to come and she had just got diagnosed with Tuberous sclerosis complex, she has the seizures and they started to get more intense. And they were up to about 10 to 12 times a day, we started to have to digest that. Then I found out I was pregnant with my son, so it was a lot.” Listening to Brooke and reflecting on my own experience, “I can relate to some of that, you know, I was getting pregnant and finding out at while I had other kids with TSC, and you know, I think back on those times that I don't remember the details. It's like talking to you, I just kind of remembered that craziness. You know, it was always like kind of living through at the moment and getting through the day and, you know, putting out brush fires one thing after the other, so I don't know if it was like that for you, but I didn't have a lot of like time to really reflect on what was happening and how I was. It was just so much action-reaction.” Brooke shares more of her experience with her daughter, “she had brain surgery, a lot of people know the intensity of that, it's a six-month thing. To get tested and all of this stuff done and, you know, it kind of all becomes a blur and then you spend about a month in the hospital because they’ve got to do two surgeries. And we did get social security disability income for that month that I was off, but it was exhausting. I had a son at home. She wasn't going to the bathroom by herself. They told me about the social regression, they removed her right frontal lobe of the brain, all the executive decision making” She also discusses waking up to an understanding of TAND, Tuberous Sclerosis Associated Neuropsychiatric Condition, both personally and with her daughter. 80-90% of individuals with a diagnosis of TSC will have some degree of TAND, manifesting in a myriad of different ways, encompassing the entire mental health diagnostic umbrella! “And you just fix it and you figure it out. But you know, for the longest time, everything would defeat me. Because, you know, for me, 80% of people with TSC have a mental illness, TAND is something I didn't even know what it was, and I feel like it's not talked about enough. It's not expressed enough. It's not shown to families like okay your child might have TSC but look out for TAND, they need to be pre warned for this because you have no idea it will come hit you like a bus.” Here’s an excruciating narrative outlining a TAND incident, “It seems like with these medications, so for her anti-psychotics make her psychotic. And we were like afraid to drive home. We were hoping a cop saw us and said let me take her from you. I have never been that mom that wishes anything on my children ever, ever ever in my life. I know I talked previously about not dreaming of being that mother or that Betty Crocker person, but I definitely am a person that when I have something, I go all out and I go all in. If I'm going to take care of something, I'm going to take care of it the way it needs to be taken care of. How do you take care of that? I didn't know how to take care of that situation. That moment. everybody's lives are in danger. My son was being choked from the back. It was very traumatic.” So clearly, Brooke is a survivor, with resilience like no other. She narrates example after example of circumstances that are unimaginable and yet she continues to rise. “And you know, for the longest time I lived as that victim like …victim, victim victim and I decided I wasn't going to live there anymore. And once you decide that you must be at a really big place where you're like, you know, I'm ready. Because you're going to get tested and you're going to get tried, and it's going to try to break you, but you have to just rise up really. But you have to be at that place, and I can't tell you how to get there other than feeding your mind with happy things and good things. I started working out. So I started to try to do things that would help my mental health I went seek counseling. I just I started to really like being a hairstylist too, you’re also a therapist. So, you need to have an out. I needed a healthy out for sure.” Brooke uses premium nutrition, and continues to talk with her doctors, and this system has worked for her, “a premium lifestyle plan to help individuals experience and reach peak physical and mental levels” and has great results. She continues to promote this product as a side business to supplement her work as a hairstylist/beautician” and focuses on helping people feel beautiful inside and out. Having the opportunity to give her clients a little bit more in terms of offering a product she has had success with and believes in has been a wonderful way of infusing her work with her own lived experience and positive energy. This episode is chock full of inspiration and hope despite multiple and ongoing challenges. I’ll leave you with this final quote, and encourage you to listen and share this incredible testimony to the power of the human spirit, faith and deep passion and love for her family, friends, committed to doing her best to push the needle of knowledge, education, and support for those living with TSC forward daily! “I mean, there's been lots of like little miracles, you know, like as you go on, like, Oh, she can read now. And for me, my tumors went from four and a half centimeters down to nothing. So yes, so that's been amazing, but just the miracle of being 36 now and being told at 30 I'd be in a wheelchair like that's a miracle. And when people see me and do that stuff, I want them to know that it's never too late. You still have a life to live!” Bravo Brooke! Brooke’s links: Instagram: https://www.instagram.com/_brookealisha_/ Facebook: https://www.facebook.com/brookey21 Twitter: @BrookeAlisha Adult Regional Coordinator-FB group: https://www.facebook.com/TsAllianceOfOhio/ TS Alliance Regional Coordinators: https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/ Brook’s hair services: https://www.facebook.com/brookesbliss13hair/ https://www.facebook.com/thecolourpalettesalon/ Thrive/Le-Vel: https://brooke2330.le-vel.com/

I had the extreme honor of interviewing Brooke Alisha, TSC Advocate, Parent, Adult Living with TSC, Adult Regional Coordinator for Adult Support Region 5, LeVel Promotor. She has quite a story of challenges and hurdles, traumatic events, and heartache but also MUCH resilience, inner fortitude, a heart of love and hope.Diagnosed with Tuberous Sclerosis Complex (TSC is a condition that causes benign tumors to grow in different organs of the body) at the age of 18, Brooke gives us a picture, “I was very active. I was a cheerleader. I was in a precision ice skating team. I was very active in my church. I was in a traveling singing group. We had so many things. So for me, my life was.. always on the go and involved in something, a part of something and suddenly, I was on Darvocet and it literally brought me to my knees. I was in the middle of hair school. I had just started after I graduated. And I missed three months. I had to take medical leave because I couldn't get up. I was afraid to hurt my kidneys and the stent and that whole thing and then on top of it being on that medication. That was the start of everything really for me.”She talks of the utter devastation that followed post-diagnosis, “you looked at Google, you know, or Web MD or something. And it was like, awful. And I'm like, how can my life go from this to this? How am I supposed to (go on) and that it just made it worse”?After moving in with her boyfriend and withdrawing, there was more challenging news, “And so when I went to go see about the cysts on my ovaries, I actually found out I was two months pregnant with my daughter. So I did have this on my ovaries, but they're like, um, you're pregnant, and we're going to put you on Prozac because we don't know if you'll handle the baby or if you'll keep it or anything”To make things more challenging, she now had doctors weighing in, “She told me she advised an abortion and I wasn't okay with that. It wasn't how I grew up personally. And I thought, there's a reason I'm having her. So, I'm going to just have her and I'm going to get through it. And if I lose her, then it's meant to be I had to live with myself personally.” Her baby daughter started having infantile spasms at 4 months and diagnosed with TSC. She gives us a look at the inner experience of these circumstances and more challenges, “I guess I was so young, you know, I was scared to death of what was to come and she had just got diagnosed with Tuberous sclerosis complex, she has the seizures and they started to get more intense. And they were up to about 10 to 12 times a day, we started to have to digest that. Then I found out I was pregnant with my son, so it was a lot.”Listening to Brooke and reflecting on my own experience, “I can relate to some of that, you know, I was getting pregnant and finding out at while I had other kids with TSC, and you know, I think back on those times that I don't remember the details. It's like talking to you, I just kind of remembered that craziness. You know, it was always like kind of living through at the moment and getting through the day and, you know, putting out brush fires one thing after the other, so I don't know if it was like that for you, but I didn't have a lot of like time to really reflect on what was happening and how I was. It was just so much action-reaction.”Brooke shares more of her experience with her daughter, “she had brain surgery, a lot of people know the intensity of that, it's a six-month thing. To get tested and all of this stuff done and, you know, it kind of all becomes a blur and then you spend about a month in the hospital because they’ve got to do two surgeries. And we did get social security disability income for that month that I was off, but it was exhausting. I had a son at home. She wasn't going to the bathroom by herself. They told me about the social regression, they removed her right frontal lobe of the brain, all the executive decision making”She also discusses waking up to an understanding of TAND, Tuberous Sclerosis Associated Neuropsychiatric Condition, both personally and with her daughter. 80-90% of individuals with a diagnosis of TSC will have some degree of TAND, manifesting in a myriad of different ways, encompassing the entire mental health diagnostic umbrella!“And you just fix it and you figure it out. But you know, for the longest time, everything would defeat me. Because, you know, for me, 80% of people with TSC have a mental illness, TAND is something I didn't even know what it was, and I feel like it's not talked about enough. It's not expressed enough. It's not shown to families like okay your child might have TSC but look out for TAND, they need to be pre warned for this because you have no idea it will come hit you like a bus.”Here’s an excruciating narrative outlining a TAND incident, “It seems like with these medications, so for her anti-psychotics make her psychotic. And we were like afraid to drive home. We were hoping a cop saw us and said let me take her from you. I have never been that mom that wishes anything on my children ever, ever ever in my life. I know I talked previously about not dreaming of being that mother or that Betty Crocker person, but I definitely am a person that when I have something, I go all out and I go all in. If I'm going to take care of something, I'm going to take care of it the way it needs to be taken care of. How do you take care of that? I didn't know how to take care of that situation. That moment. everybody's lives are in danger. My son was being choked from the back. It was very traumatic.”So clearly, Brooke is a survivor, with resilience like no other. She narrates example after example of circumstances that are unimaginable and yet she continues to rise. “And you know, for the longest time I lived as that victim like …victim, victim victim and I decided I wasn't going to live there anymore. And once you decide that you must be at a really big place where you're like, you know, I'm ready. Because you're going to get tested and you're going to get tried, and it's going to try to break you, but you have to just rise up really. But you have to be at that place, and I can't tell you how to get there other than feeding your mind with happy things and good things. I started working out. So I started to try to do things that would help my mental health I went seek counseling. I just I started to really like being a hairstylist too, you’re also a therapist. So, you need to have an out. I needed a healthy out for sure.”Brooke uses premium nutrition, and continues to talk with her doctors, and this system has worked for her, “a premium lifestyle plan to help individuals experience and reach peak physical and mental levels” and has great results. She continues to promote this product as a side business to supplement her work as a hairstylist/beautician” and focuses on helping people feel beautiful inside and out. Having the opportunity to give her clients a little bit more in terms of offering a product she has had success with and believes in has been a wonderful way of infusing her work with her own lived experience and positive energy.This episode is chock full of inspiration and hope despite multiple and ongoing challenges. I’ll leave you with this final quote, and encourage you to listen and share this incredible testimony to the power of the human spirit, faith and deep passion and love for her family, friends, committed to doing her best to push the needle of knowledge, education, and support for those living with TSC forward daily!“I mean, there's been lots of like little miracles, you know, like as you go on, like, Oh, she can read now. And for me, my tumors went from four and a half centimeters down to nothing. So yes, so that's been amazing, but just the miracle of being 36 now and being told at 30 I'd be in a wheelchair like that's a miracle. And when people see me and do that stuff, I want them to know that it's never too late. You still have a life to live!” Bravo Brooke!Brooke’s links:Instagram: https://www.instagram.com/_brookealisha_/ Facebook: https://www.facebook.com/brookey21Twitter: @BrookeAlisha Adult Regional Coordinator-FB group: https://www.facebook.com/TsAllianceOfOhio/TS Alliance Regional Coordinators: https://www.tsalliance.org/individuals-families/adults/adult-regional-coordinators/Brook’s hair services: https://www.facebook.com/brookesbliss13hair/https://www.facebook.com/thecolourpalettesalon/Thrive/Le-Vel: https://brooke2330.le-vel.com/

I have a strong personal interest in this topic. I have reported on this frequently because my wife, Debbie has been challenged with Rheumatoid Arthritis for over 40 years. In her case it was severe. She left her job as a teacher in 1989 and never was able to go back to work. She spent the next 15 years just trying to survive day to day by consuming 8 narcotic Darvocet doses each day. Those were tough days. So we personally know the challenge of auto immune breakdown. I have great empathy for those who suffer and their families. Our lives were turned around in 2003. There were two thing that changed her course in the most dramatic ways, drugs and nutrition. The post 291 – Nutritional Support for Auto Immune Issues – My Interview with Laurel Sterling appeared first on Health Quest Podcast.

An estimated 10 million Americans are taking Darvocet, Darvon and other medications today for their pain. Darvon and Darvocet were removed from the US market after a safety study showed heart risk. On Ringler Radio, host Larry Cohen welcomes Attorney Frank Woodson, from the Montgomery, Alabama firm of Beasley, Allen, Crow, Methvin, Portis & Miles, P.C., to take a look at the effects of Darvon and Darvocet, the FDA's role and the litigation that will follow. Larry and Frank discuss how the FDA has changed under the new Obama administration, what to do if you are experiencing side effects from these drugs and if we will see an increase in lawsuits involving Darvon/Darvocet in 2011.