Lymphedema Podcast

Lymphedema is alot! Genetics is alot! We dive deep into the fascinating world of the lymphatic system and how it can go haywire with Dr. Cohen. From birthmarks to complex anomalies, we explored it all. Here's a sneak peek of what we covered: Dr. Cohen is a clinical fellow at the Siteman Cancer Center at … S5:E21 – Primary Lymphedema with Dr. Cohen Read More »

This week on the podcast we are going back in time to the very first episode “What is Lymphedema?” My hope is that this will be a refresher for anyone who listens regularly, pin this important foundational episode to the top of my content, and prepare you for the two part series that will release … Revisiting the basics…what is Lymphedema? Read More »

https://www.brylansfeat.org/campwatchme Brylan's Feat Foundation would like to sincerely thank each and everyone of our Camp Watchme sponsors for truly going above and beyond for our summer camp. We would not be able to host such a wonderful experience for the pediatric lymphedema community without Jobst, L&R USA, Airos Medical, Pure Medical, LymphaPress, Medi for Help, Juzo, … Camp Watchme Sponsor Spotlight Read More »

This episode discusses recent changes in Medicare policies regarding a four-week trial for pneumatic compression pumps, used to manage lymphedema. While there was initial confusion that Medicare removed the requirement for a four-week trial, Betty clarifies that the trial is still necessary. However, certain wording and specific anatomical measurements have been relaxed, and the requirement … Change in 4 week trial requirements Read More »

Sidney Jacobs Primary Lymphedema Journey Have you ever met someone and you hit it off immediately? It's not until later that you look back and think “I am so glad our lives crossed paths!” That is Sidney Jacobs in a few words. Sidney is the guest host for Lymphedema Podcast this week where she shares … 2023 Lymphedema Podcast Season 5: Episode 17 Read More »

Dating with Olivia & Nicole Get ready for an exciting episode of the Lymphedema Podcast this week, as our fabulous guest host Olivia Eggers takes the reins. Joining her is the incredible Nicole Faccio, and together they dive into the world of dating with lymphedema. From childhood expectations to the reality of challenges, they share … 2023 Lymphedema Podcast Season 5: Episode 15 Read More »

In this episode of the Lymphedema Podcast, host Betty welcomes the esteemed Caroline Pinney, a renowned expert from Juzo, to share enlightening insights. Brace yourself for an enthralling discussion as they delve into the exhilarating world of the recently concluded Juzo Power symposium and embark on a profound exploration of the revolutionary Juzo night garment. … 2023 Lymphedema Podcast Season 5: Episode 15 Read More »

WRAP 365 Would you bandage your affected extremity for one entire year? This week's guest has been a secondary lymphedema patient for about two decades. She decided last year, Mother's Day 2022, that she was going to do something challenging and daring. Listen to Martha's story of it's a wrap 365 challenge… It's impossible to … 2023 Lymphedema Podcast Season 5: Episode 14 Read More »

Honeymoon with Lymphedema On this episode of the Lymphedema Podcast we chat about all things lymphedema wedding & honeymoon. Kiersten & Trey were married in April. Kiersten was diagnosed with Lymphedema in 2014 and a previous guest on the podcast discussing her LVA surgery. In this special episode, we'll sit down with both Kiersten and … 2023 Lymphedema Podcast Season 5: Episode 13 Read More »

Wedding with Lymphedema On this episode of the Lymphedema Podcast we chat about all things lymphedema wedding. Kiersten & Trey were married in April. Kiersten was diagnosed with Lymphedema in 2014 and a previous guest on the podcast discussing her LVA surgery. She tells us how she planned and prepared for her wedding with lymphedema. … 2023 Lymphedema Podcast Season 5: Episode 12 Read More »

May is mental health awareness month! There are two people from the lymphedema community that embody this for me, Dominique and Juliana. Both have been vulnerable about their personal struggles with lymphedema, mental health, and physical wellness. Together they started the #sweatcheck movement for the lymphedema community. I hope you enjoy this candid conversation with three friends who … 2023 Lymphedema Podcast Season 5: Episode 11 Read More »

Student OT review of Lymphedema Clinical Rotation If I am being honest, which I have shared this before, I would have never picked Lymphedema as my career specialty or as a clinical rotation in school. Thankfully, that is not the story for this week's guest. Addison is in her final year as an student OTD … 2023 Lymphedema Podcast Season 5: Episode 10 Read More »

Guenter Klose Returns for a Candid Conversation on MLD, Myth Buster Addition – Part 2 Guenter Klose joins us for episode 9 as we continue the conversation about Manual Lymphatic Drainage. Guenter has decades of experience teaching and treating lymphedema. He is a respected pillar in the international lymphedema community and his knowledge is matched … 2023 Lymphedema Podcast Season 5: Episode 9 Read More »

Guenter Klose joins us for episode 8 of the Lymphedema Podcast as we discuss Manual Lymphatic Drainage. Guenter has decades of experience teaching and treating lymphedema. He is a respected pillar in the international lymphedema community and his knowledge is matched by few. We are so excited to have him back with us as he … 2023 Lymphedema Podcast Season 5: Episode 8 Read More »

Life Coaching for the Lymphedema Patient and Clinician, Part 2 On this episode we will continue our conversation with Ellen Faulhaber, A certified life coach. Many lymphedema patients live with depression, grief, anxiety, and suicidal ideations. Medical providers are frustrated, overwhelmed, and live in a state of chronic stress. Ellen is a Certified Life Coach … 2023 Lymphedema Podcast: Season 5- Episode 7 Part 2 Read More »

Life Coaching for the Lymphedema Patient and Clinician, Part 1 On this episode Ellen Faulhaber, A certified life coach, will join me in a discussion to encourage listeners that there is help available. Many lymphedema patients live with depression, grief, anxiety, and suicidal ideations. Medical providers are frustrated, overwhelmed, and live in a state of … 2023 Lymphedema Podcast: Season 5- Episode 7 Read More »

State of CDT with Guenter Klose This is a wrap on the March series, not all CLTs are created equal. Guenter has decades of experience teaching and treating lymphedema. He is a respected pillar in the international lymphedema community and his knowledge is matched by few. In this interview we highlight the challenges faced by CLTs, challenge CLTs … 2023 Lymphedema Podcast Season 5: Episode 4 Read More »

NOT ALL CLTs ARE CREATED EQUAL To continue the discussion for this month's topic, Not all CLTs are Created Equal, Dr. Heather Evans, Doctor of Chiropractic, Owner of Bodywork RX is joining me on the podcast Continuing the discussion that not all CLTs are created equal with Dr. Heather Evans today on the podcast! Heather … 2023 Lymphedema Podcast Season 5: Episode 3 Read More »

NOT ALL CLTs ARE CREATED EQUAL To continue the discussion for this month's topic, Not all CLTs are Created Equal, Brooke Beilman is joining me on the podcast. Brooke Beilman is a MS, CCC-SLP Clinical Doctorate Student. As a Speech Pathologist she took interest in the changes caused by internal swelling to patients swallow mechanics. … 2023 Lymphedema Podcast Season 5: Episode 2 Read More »

Welcome back my friends to the new season of Lymphedema Podcast! Happy Lymphedema Awareness month to all of the Lymphies on their journey! Episodes will release on Wednesdays this season and I will take the month of July off while away for Camp Watchme. Now that those few housekeeping items have been addressed let's jump … 2023 Lymphedema Podcast Season Premiere Read More »

Camp Watchme was such an unbelievable experience this summer! So many new friends made and so many memories we will cherish forever. Please join me and Brittany Williams, Founder and CEO of Brylan's Feat Foundation-my partner for life-and mom to Brylan, as we talk about our favorite memories from camp. Plus we share what we … Camp Watchme 2022 Review Read More »

Part 3 is ready to go!! Check out the final episode on DME, insurance claims, and why having a GREAT fitter is so important! Contact Sophie by visiting their website

Part 2 is ready to go!! If you want to contact Sophie check out their website

When you are looking for reliable advice on insurance claims, product selection, and availability it is VITAL to have someone you trust. Sophie will tell you in this episode just how qualified she is…it's too much for me to list here, lol. Check out part 1 of my series on DME, product selection, and the … Episode 111: Part 1 Durable Medical Equipment (DME), Insurance Claims, and Products with Sophie Long Read More »

I love sharing stories of people THRIVING with lymphedema, you probably know this by now, right?? Lindsay is a gust of fresh air with a contagious personality! Juzo's Feature episode this month features Lindsay Sosovec–Juzo Champion, Cancer survivor, Secondary Lymphedema patient, and adventure seeker. I know you will enjoy learning more about her and from … Episode 110: Lindsay Sosovec Juzo Champion Read More »

Do you ever wish you had a stylish option to cover up your leg compression? Stemwear is here for you. The creator of Stemwear joins me for this feature episode on her creative solution to boring beige compression that really didn't fit her personality or style. Stemwear has styles for men and women, as well … Episode 109: fashionable compression cover up Read More »

This will forever be one of my favorite stories to share, for the rest of my life! As a mom I relate so much to the struggles that Tyla has faced, as a CLT I didn't know how to standby and listen as she shared her struggles. So I invited her to fly half way … Episode 108: mama bear makes a friend Read More »

Women living with Lymphedema have a higher risk of developing genital lymphedema as a result of vaginal childbirth. This postpartum story is for any woman who may be fearful of pregnancy and childbirth due to her lymphedema diagnosis.

Dr. Jenna Wishnew is back to talk about wounds and lymphedema! Last time she joined me on the podcast we talked about how a wound care doctor is different, and it was very informative! Today we are going to talk specifics about wounds, so pop in your ear buds and take notes because this is … Episode 106: When Does a Wound Need A wound Care Doctor? Read More »

Medi USA is back on the podcast with a great interview on product selection. As a CLT it took me a very long time to feel comfortable recommending products, and I still struggle to confidently do so 6 years into this specialty. Jennifer does such a great job explaining 1) Fabric options from Medi USA. … Episode 105: A conversation on product selection Read More »

As April comes to an end so does the series of grief on the spectrum. Thank you to Marshall Lyles for being a wonderful guest! He had a concussion and injured ankle BUT STILL he pushed through and dropped so much wisdom and insight for all of us. As he mentions in the interview, Guest … Episode 104: Patient Grief Read More »

To continue this months series on grief, I want to encourage you to listen to episode 99 featuring Jen Bell. This interview reflects on statements made in episode 99 and overall it is a fantastic resource for anyone in a relationship with someone who has a chronic illness. One comment Marshall made in this interview … Episode 103: Partner/Spouse grief Read More »

Continuing the series on grief this month, listen to this powerful episode for parents! Please like and subscribe to Lymphedema Podcast on the website or on your favorite app! Share this episode with any family you think could benefit from the message.

This episode is dedicated to John Jones, Luann Jacobs, LaTonya Lomax, Michael Birmingham, Carol Rhoden, and the many other patients over the years who have a permanent place in my heart. In October/November when I was preparing to shut the podcast down for the season, I was so burnt out. Life had caught up with … Episode 101: CLT grief Read More »

This is your warning to not play this episode with your in laws or kids around, it's not *too graphic but unless you want to define vagina for your kids or blush next to your father in law…take my word and listen in your ear-buds or when alone. Trish has 12 years of experience as … episode 100: Trish' pregnancy journey Read More »

For better or for worse, in sickness and in health, til death do us part…those are the marriage vows most people are familiar with. But what about “for the few days a year I don't feel overtaken with swelling and depression, in a sickness not many doctors understand and health that isn't promised to last, … Episode 99: Spouse/Partner Perspective on Lymphedema Read More »

Medical device manufacturer medi® USA announced the launch of the new circaid® profile foam sleeve for lymphedema management at-home. The circaid profile foam sleeve is an alternative or supplement to nighttime and home-care bandaging applications that applies gradient compression to the effected limb or limbs. Engineered with first-use foam for hygenic confidence and brrr® cooling fabric proven to … Episode 98: *new* Circaid Profile Nighttime compression garment Read More »

I hope you enjoyed last weeks interview with Allison on Medical Trauma. As we learned, medical trauma is experienced and perceived differently from person to person. Listen to part 2 to learn: action steps toward helping a child (or adult) who may be suicidal, how parents and caregivers can be affected by medical trauma, and … Episode 97: Pt2 Medical Trauma Read More »

Clinically, Medical trauma is defined as a set of psychological and physiological responses to pain, injury, serious illness, medical procedures and frightening treatment experiences.1 Medical trauma can be viewed as an acute onset of a disrupted physiological system in which the ongoing threat is internal (i.e., the body) and may be long-term or permanent (e.g., … Season 3//Episode 96 Read More »

Last week we left off talking about how it is so hard as a CLT or caregiver NOT to love our patients and have a deep connection with them. Emotional burdens, compassion fatigue, stress, and anxiety that comes from work is SO hard to separate from our personal life, and vice versa. In part 2 … EPisode 95: Part 2 Emotional Wellness Ft. Adie MacKenzie Read More »

I began creating content for Lymphedema Podcast in the summer of 2018. It started with a “business plan” outlining 52 episodes to cover for a one year podcast with weekly releases in 2019. I launched the first four episodes on January 7, 2019, and although content was not always released weekly I have not stopped … Episode 95: part 1 Emotional Wellness ft Adie MacKenzie, LMT, PTA, CLT-LANA, Health and Wellness Coach Read More »

This weeks episode bring my most frequent and fun guest back to the podcast, Caroline from Juzo! We are talking all things compression wraps. What features Juzo compression wraps offer, the benefits to wearing them day and night, and the indications for using them when looking at the big picture. Meaning, do you live alone, … Episode 94: Juzo {{adjustable and REVERSIBLE}} Compression Wraps Read More »

Last week was a highlight of my career. In 2019, I presented at the NLN conference for the first time. It was both exhilarating and intimidating to present to a large audience. BUT THIS YEAR it was different. The groups were smaller, the schedule was similar to a marathon, and the audience was 100% my … Epiosde 92: NLN Conference Review Read More »

Introducing Lymphedema Podcasts resident wound expert, Dr. Jenna Wishnew! I am excited to have Dr. Wishnew with Lam Vascular as a podcast sponsor. She will feature quarterly episodes on wounds. If you have specific questions for Dr. Wishnew please email them to me at lymphedemapodcast@gmail.com or visit her website to make an appointment with her … Episode 91: When do you need a wound doctor? Read More »

To learn more about how to obtain a pump visit this website To watch the Patient Roundtables Eric and I mention, visit this link

The guest host for this week shares her story of breast cancer diagnosis and eventual Lymphedema diagnosis. Deborah's story may sound similar to your personal journey, but what she did AFTER her diagnosis is what is helping so many today thrive and find community. Conversationly Thriving with Lymphedema was launched in early 2020 by Bisa … Episode 89: Guest host Deborah Pearls Read More »

It didn't take me long to realize that Dominiques' story is about more than his process2progress initiative. This quote from our interview is still ringing in my mind “The first person I met with Lymphedema was my mom” give me chills every time! Many people go years alone on their lymphedema journey, and Dominique did … Episode 88: Juzo champion Dominique Rogers Read More »

Gerry Makoid, CEO of AIROS Medical, joins me this week to talk about their pneumatic compression devices for patients with Lymphedema and Vascular conditions. Later this week, I will release an Unboxing video for you! This is my first time using this device, and it is obvious a few times (: As a CLT I … Episode 87: AIROS Medical Read More »

Today's guest podcaster is Jean LaMantia. Jean is a registered dietitian with a virtual private practice. She is one of the co-authors of The Complete Lymphedema Management and Nutrition Guide, and the creator of Lymphedema Nutrition School. You can reach her at jean@jeanlamantia.com Here are some links you can check out Just Wellness Nutrition School The … Episode 86: Guest host Jean LAMantia, author of The Complete Lymphedema Management and Nutrition Guide. Read More »