The Axial Spondyloarthritis Podcast

In this episode, I just give a short talk about where I have been and the journey I hope some of you will do with me.

In this episode I discuss an article from myspondylitisteam.com that discusses headaches and AS. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article . Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoHere is the link to Michael Mallinson's episode: Episode 51Here is the link to Dr. Napier's interview where she discusses research she is doing: Episode 187All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from myspondylitisteam.com that discusses some things that may be causes of spondylitis. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article . Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoHere is the link to Michael Mallinson's episode: Episode 51Here is the link to Dr. Napier's interview where she discusses research she is doing: Episode 187All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from myspondylitisteam.com that discusses some things to monitor if you start a biologic. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article . Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from axialspondyloarthritis.net that discusses some things the auther wishes she was told when diagnosed. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). She brings up some fantastic things to consider. Here is a link to the article by Sarah Lee. Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from Myspondylitisteam.com that discusses some things to consider about getting a tattoo. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article. Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I interview Dr Ruth Napier, a rare disease and Immunologist who is studying Axial Spondyloarthritis. We discusses the research Dr Napier is doing regarding genetics and AS. As always, this is designed to help you increase your knowledge of AS. Here is a link to the discussing the research on mice and Card9. Here is a link to Dr. Napier's lab page.To make a donation to Dr. Napier's Lab and fund her research, click here.Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from axialspondyloarthritis.net that discusses some things to consider about biologics. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article. Here are the links to the YouTube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss a quiz from the My Spondylitis Team that discusses how much you may know on DMARDs. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article and quiz. Here are the links to the Youtube channels for:Yoga for ASAlex Levine, Fitness Alex's Full Workout VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the My Spondylitis Team that discusses limb weakness and numbness. As always, this is designed to help you plan the conversations you may need to have with your doctor(s). Here is a link to the article. Here are the links to the Youtube channels for:Yoga for ASAlex Levine, Fitness Alex's Stretching VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Ankylosing Spondylitis and Axial Spondyloarthritis The Facts Series by Dr. KhanUberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website Wiley Online Library. It looks at the authors study dealing with current aspects for treatment of AS. Here is a link to the article. Here are the links to the Youtube channels for:Yoga for ASAlex Levine, Fitness Alex's AS Diagnosis VideoAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website Creaky Joints. It looks at the authors journey to grieve their past life. Here is a link to the article. Here are the links to the Youtube channels for:Yoga for ASAlex Levine, FitnessAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at tips to do when giving yourself a shot. Here is a link to the article. Also, see the link to Alex's video below.Here are the links to the Youtube channels for:Yoga for ASAlex Levine, FitnessAlex Levine - How I Improved My Flexibility and Strength With Inflammatory Arthritis.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at some ideas on what to do after visiting your rheumatologist. Here is a link to the article. Here are the links to the Youtube channels for:Yoga for ASAlex Levine, FitnessAlex Levine - Dealing with Ankylosing Spondylitis FatigueAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at giving you some ideas on Vitamin D and Spondyloarthritis. Here is a link to the article. Interesting article on Vitamin D.Last week we lost another member of the AS community. Here is a link to Rachel Tew's profile from The Faces of AS Website.Here are the links to the Youtube channels for:Yoga for ASAlex Levine, FitnessAlex Levine - Getting Started All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at managing spondylitis pain. Here is a link to the article.Interview with Alex Levine on exercise - LinkAlex Levine YouTube episode - LinkYoga for AS episode - LinkAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this second episode on exercise with Alex, I expand my talk with Alex Levine of Alex Levine Fitness. Alex has Axial Spondyloarthritis and runs a personal training business. In this we discuss how he was diagnosed, working out, and some of the challenges he encountered. About Alexander Levine and Alex Levine Fitness LLCAlexander Levine owns and operates a virtual personal training business, Alex Levine Fitness LLC, which specializes in 1 on 1 personal training for those with Ankylosing Spondylitis and Axial Spondyloarthritis around the world. He is a certified personal trainer, fitness nutrition specialist, and senior fitness specialist through the National Academy of Sports Medicine. He also holds a Master's Degree in Sports Leadership from Northeastern University. Alex is on Instagram @AlexLevineFitness and YouTube @AlexLevineFitness sharing his journey and health and fitness tips for people living with Ankylosing Spondylitis. To learn more about his virtual personal training business check out his website alexlevinefitness.com.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I have discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at how biologics work. Here is a link to the article.Interview with Alex Levine on exercise - LinkInterview with Jennifer Visscher - LinkYoga for AS episode - LinkAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at the progression of Ankylosing Spondylitis. Here is a link to the article.Interview with Alex Levine on exercise - LinkInterview with Jennifer Visscher - LinkYoga for AS episode - LinkAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at invisible pain associated with Axial Spondyloarthritis. Here is a link to the article.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I have a long overdue chat with Alex Levine of Alex Levine Fitness. Alex has Axial Spondyloarthritis and runs a personal training business. In this we discuss how he was diagnosed, working out, and some of the challenges he encountered. About Alexander Levine and Alex Levine Fitness LLCAlexander Levine owns and operates a virtual personal training business, Alex Levine Fitness LLC, which specializes in 1 on 1 personal training for those with Ankylosing Spondylitis and Axial Spondyloarthritis around the world. He is a certified personal trainer, fitness nutrition specialist, and senior fitness specialist through the National Academy of Sports Medicine. He also holds a Master's Degree in Sports Leadership from Northeastern University. Alex is on Instagram @AlexLevineFitness and YouTube @AlexLevineFitness sharing his journey and health and fitness tips for people living with Ankylosing Spondylitis. To learn more about his virtual personal training business check out his website alexlevinefitness.com.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I have discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at giving you some ideas on adding to your treatment plan. Here is a link to the article.A few weeks ago we lost another member of the AS community. Here is a link to Shawna's profile from The Faces of AS Website.Here are the links to the Youtube channels for:Yoga for ASAlex Levine, FitnessAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

This week's episode is based upon an email from Cookie about Walk Your AS Off. This a fun way for you to help spread awareness of Axial Spondyloarthritis. Here is the text from Cookie's February 9th email:Today I joined Walk Your AS Off! I miss being a part of something. I miss working towards a goal, hell who am I kidding I miss being inspired to even have a goal!I have wanted to participate for a long time, but life and I got in the way. Plus, I didn't have it in me to be committed to anything or anyone and I damn sure didn't want to let my team or anyone down.I mean honestly how much of a difference would my 1000 plus steps a month make? Well? A lot to be honest not only to myself but to my team and to the goal of reaching Mars. One step at a time, all of us working together.You see I have spent most my life missing out because I didn't think I would do it perfectly or I would be an embarrassment or let people down especially myself. I am never going to run a marathon or hell even crawl one. But I can be a part of something and enjoy being involved and excited about goals being met! No matter how big or small they maybe, they still matter. My only goal at this moment is just to remember to keep up with my steps and hopefully I will be able to make the goals of going one step further each day.What I love most about Walk Your AS Off is that for one it is free! Who doesn't love “free!” I am not pressured to donate any money or time unless I want to. I can join or stop at any time! I love the fact that I have NO GOAL TO SET OR MAKE! I love the fact that I am the only one who is setting the goal for myself and that no one knows that goal but me! I am under no obligation I can do it if I want to or not! I don't have to be a walker, runner or in any certain type of shape. I just got to be ME! And I can do that! AND the greatest thing is getting to meet new people and hopefully make lasting friendships! I know I have.I think it is about 2000 steps to make a mile. I figured with any luck I will manage that in one week! Heck maybe even 2023 steps! I have always been a goal maker, which set me up for failure or not even giving myself a chance to try. Because I wanted to be perfect or the best at everything I did. I missed out on a lot. Ankylosing Spondylitis has taken a lot away from me, more than you will ever know but one thing I have gained with this disease is learning to have compassion for myself. I try to remind myself my best is my best. Period. It may not look like anyone else's best or what others think it should look like, but I know I am doing the best that I can and that is enough for me.So, today I begin tracking my steps! I am really curious to see what they are, to be honest I am excited about doing this. I joined The Blue Apple team because I do not have it in me to be a team captain plus I wanted to be a part of a team, a community. Working together to encourage each other and reassure each other that our best is our best and together we can do this!I was dreading signing up because I struggle with technology, but it was SO SIMPLE!!!!!!!!!!!! My username is Cookie! Original right! Oh, and I asked if my family could use ONE EMAIL and ONE username to give me their steps because they do not want to have to remember to log in and do it. AND THEY CAN! So, I have a few members who are going to text me every Sunday (I think) their steps and then I will add them to the site. (Damn almost sounds like a team captain)I hope you will consider joining us in making our goal to Mars and raising awareness! Thank you for your time. I would love to publicly thank Jenna Dye Visscher for her vision and her determination to create such a wonderful community and project for all of us. Please check out the link below!Hope to see you soon!Cookie

In this episode I talk with Jennifer Visscher about Walk AS One. Jennifer is the Founder and President of Walk AS One, an all volunteer 501c3 non-profit organization that mobilizes and motivates a global community to raise awareness and address the challenges of those affected by Ankylosing Spondylitis/Axial Spondyloarthritis and its family of related diseases. Walk AS One's main goal is to encourage and motivate those with Ankylosing Spondylitis to be more active through walking and regular exercise. Walking is known to have great health benefits, especially for those with AS/AxSpa. Each May, Walk AS One holds their month-long virtual walk event Walk Your AS Off during Arthritis Awareness Month. Walkers from all corners of the globe come together as a community to track and log steps as teams and individuals - a goal to collectively take over 316 Billion steps (or the amount of steps it would take to reach Mars). This is a far reaching goal that will take years to accomplish and no contribution is too small. Each step counts from all levels and there is no cost to participate.Jennifer invites you to join her team, The Blue Apples, or form your own team. You may add your steps just in May or year round but we always make extra effort during awareness month and for World AS Day that happens the first Saturday of May. Jennifer's passion is growing Walk AS One but she is also an accomplished artist. Her work can be found at JenniferVisscher.comAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I have discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at 5 things to keep in mind when switching treatments. Here is a link to the article.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at neck pain associated with Ankylosing Spondylitis. Here is a link to the article.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

Check out The Faces of Ankylosing Spondylitis. Here is a link to website. I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. The three people mentioned that we lost are:0005 Jackie0034 Nicole0100 JohnPlease read Jackie, Nicole, and John's profile.In this episode I discuss an article from the website My Spondylitis Team. It looks at What You Can't See On Imaging. Here is a link to the article.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this bonus episode I discuss a recent post in the Facebook community Ankylosing Spondylitis Community: Support, Resources & Discussion.Steff Di Pardo episodeLisa Marie Basile episodeAll the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at Spinal Surgery and Ankylosing Spondylitis. Here is a link to the article.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at Weather and Axial Spondyloarthritis. Here is a link to the article.All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website My Spondylitis Team. It looks at getting an Axial Spondyloarthritis diagnosis. Here is a link to the article.Also, here is a link to Episode 162 about 8 Things A Woman Needs To Know.The Reddit Page mentioned: https://www.reddit.com/r/ankylosingspondylitis/All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website Everyday Health. It looks at 8 items women with AS need to be aware of. Here is a link to the article.Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to website. I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this.The Reddit Page mentioned: https://www.reddit.com/r/ankylosingspondylitis/All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website Spondylitis Association of the United States. It looks at flares associated with AS. Here is a link to their website.Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to website. I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this.The Reddit Page mentioned: https://www.reddit.com/r/ankylosingspondylitis/All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

In this episode I discuss an article from the website myspondylytisteam.com. It looks at depression associated with AS. Here is a link to the article.Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to website. I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this.The Reddit Page mentioned: https://www.reddit.com/r/ankylosingspondylitis/All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 Here is the Bean Bag neck warmer https://amzn.to/3uN6mcgBiofreeze - https://amzn.to/33gygBSCane - https://amzn.to/3uN9ftsHeating Pad - https://amzn.to/3Bjd5vzWeighted Blanket - https://amzn.to/36RCdi7Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScAAll My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx

n this episode I discuss an article from the website myspondylytisteam.com. It looks at fatigue associated with AS. Here is a link to the https://www.myspondylitisteam.com/resources/fatigue-and-spondylitis (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. The Reddit Page mentioned: https://www.reddit.com/r/ankylosingspondylitis/ (https://www.reddit.com/r/ankylosingspondylitis/) All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from the website myspondylytisteam.com. It looks at memory loss for AS. Here is a link to the https://www.myspondylitisteam.com/resources/memory-loss-and-spondylitis?utm_source=iterable&utm_medium=email&utm_campaign=spondylitis_roc (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from the website National Axial Spondyloarthritis Society. It looks at biologic use for AS. Here is a link to the https://nass.co.uk/managing-my-as/medication/biologic-therapy/ (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from the website VeryWell Health. It looks at delayed diagnosis for women with AS. Here is a link to https://www.verywellhealth.com/ankylosing-spondylitis-symptoms-in-women-5090710?utm_campaign=17328398598-de35d7c71d6b11&utm_source=googleawpaid&utm_medium=con&utm_content=600229841473&utm_term=g-ankylosing%20symptoms&gclid=Cj0KCQjwjvaYBhDlARIsAO8PkE3hLtmTDVAQ8D-1VRsHWPyV0xxMpbEXMc-U_n4kyd2FL_UmxKjCbysaAngZEALw_wcB (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from the Spondylitis Association of America called Battling Our Demons: The Emotional Impact of Life With Spondylitis. https://spondylitis.org/wp-content/uploads/2020/06/battling-our-demons.pdf (Article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

I wanted to say Thank you to everyone that reached out.

In this 2nd Bonus episode, I discuss my need to reach out to deal with out of control depression.

In this episode I discuss an article from the CreakyJoints called Ankylosing Spondylitis is Probably Hurting Your Relationships and Ability to Work, But Too Few Patients Tell Their Doctors About It. Here is a link to the https://creakyjoints.org/about-arthritis/axial-spondyloarthritis/axspa-healthy-living/ankylosing-spondylitis-affects-work-and-relationships/ (Article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this short Bonus episode I discuss the last month and in particular, the last week (8.22.22 - 8.25.22). My partner moved out and my emotions are all over the place. I have Anxious Attachment style, and I am needing to learn to fix. How has anyone else dealt with this?

In this episode I discuss an article from the Healthline called 8 Things That May Be Making Your Ankylosing Spondylitis Worse. Here is a link to the https://www.healthline.com/health/beyond-back-pain-with-as/habits-to-avoid (article). https://www.youtube.com/c/TheKneesovertoesguy/featured (Knees Over Toes Guy) Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from the National Library of Medicine called A Road Map of the Axial Spondyloarthritis Continuum. Here is a link to the https://pubmed.ncbi.nlm.nih.gov/34801248/ (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from the Arthritis Foundation called Adjusting to a new Axial Spondyloarthritis Diagnosis. Here is a link to the https://www.arthritis.org/health-wellness/healthy-living/emotional-well-being/emotional-self-care/adjusting-to-new-axial-spondyloarthritis-diagnosis (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I I wanted to just say "Thank you" for listening. Without you, this show would not have hit 150 episodes. Everyones feedback and participation has taught me so much. Your giving pushes me to keep putting out episodes. Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from Myspondyloarthritisteam.com called How Does Ankylosing Spondylitis Affect the Body? Here is a link to the https://www.myspondylitisteam.com/resources/how-does-ankylosing-spondylitis-affect-the-body?utm_source=google&utm_term=&utm_campaign=&utm_content=&utm_medium=ppc&gclid=Cj0KCQjw2MWVBhCQARIsAIjbwoNrMaZuwQqMoVOQV0oFseaqKFZevZly2nZuJqV4y2vE44LtqQ8TXuYaAqmgEALw_wcB (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

In this episode I discuss an article from Myspondyloarthritisteam.com on HLA-B27. Here is a link to the https://www.myspondylitisteam.com/resources/hla-b27-and-the-genetics-of-spondylitis?utm_source=iterable&utm_medium=email&utm_campaign=spondylitis_roc (article). Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. Also in this episode, I refer to an article about finding support and here is the link to the article. All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)

Make sure to check out The Faces of Ankylosing Spondylitis. Here is a link to https://thefacesofankylosingspondylitis.com/?blogsub=confirming#subscribe-blog (website). I'm number 158 if you are curious. If you are not part of this wonder page, submit your story. Cookie wants to get to 2700 people on the site, but I bet we can get her way past this. In this episode, I review an article about fatigue and what some others do to offset the fatigue they get. Here is the link to the https://creakyjoints.org/research/arthritis-fatigue-interferes-with-daily-activities/ (article). All the below links are affiliate links. If you purchase any of the items, I may earn a small commission. It does not change the price of items. Get paid to take tests. Here is a link to Rare Patient Voice. If you take participate in a study, you can get paid (amount varies). https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/ (https://rarepatientvoice.com/TheAxialSpondyloarthritisPodcast/) Here are some links to Amazon showing some of the items I discussed. Uberlube - https://amzn.to/3i604N2 (https://amzn.to/3i604N2) Here is the Bean Bag neck warmer https://amzn.to/3uN6mcg (https://amzn.to/3uN6mcg) Biofreeze - https://amzn.to/33gygBS (https://amzn.to/33gygBS) Cane - https://amzn.to/3uN9fts (https://amzn.to/3uN9fts) Heating Pad - https://amzn.to/3Bjd5vz (https://amzn.to/3Bjd5vz) Weighted Blanket - https://amzn.to/36RCdi7 (https://amzn.to/36RCdi7) Steff Di Pardo's new book - I Am Not Invisible - https://amzn.to/3JpDScA (https://amzn.to/3JpDScA) All My Ankylosing Spondylitis Shit: Pain and Symptom Tracker by Kinsella Love https://amzn.to/34CHhpx (https://amzn.to/34CHhpx)