Podcasts about king baudouin foundation

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Allie Weis is Community Manager and Ethics Coordinator at Howest DAE, she studied psychology at the Loyola University in Maryland and the KU Leuven. With this podcast we want to spike conversations, so students know when en where to ask for help when in need of counsel or a conversation. We break taboos by telling real stories. Cup of Care is project by STUVO Howest, in partnership with Howest University of Applied Sciences, together with Medialab Quindo and with the support of the Warmste Week-fund, by King Baudouin Foundation. If you have any questions after listening to this episode, make sure to visit howest.be/karavaan.

Els Elout is the coordinator of the Gender Team and the Center of Sexology and Gender at the Ghent University Hospital. With this podcast we want to spike conversations, so students know when en where to ask for help when in need of counsel or a conversation. We break taboos by telling real stories. Cup of Care is project by STUVO Howest, in partnership with Howest University of Applied Sciences, together with Medialab Quindo and with the support of the Warmste Week-fund, by King Baudouin Foundation. If you have any questions after listening to this episode, make sure to visit howest.be/karavaan.

With this podcast we want to spike conversations, so students know when en where to ask for help when in need of counsel or a conversation. We break taboos by telling real stories. Cup of Care is project by STUVO Howest, in partnership with Howest University of Applied Sciences, together with Medialab Quindo and with the support of the Warmste Week-fund, by King Baudouin Foundation. If you have any questions after listening to this episode, make sure to visit howest.be/karavaan.

With this podcast we want to spike conversations, so students know when en where to ask for help when in need of counsel or a conversation. We break taboos by telling real stories. Cup of Care is project by STUVO Howest, in partnership with Howest University of Applied Sciences, together with Medialab Quindo and with the support of the Warmste Week-fund, by King Baudouin Foundation. If you have any questions after listening to this episode, make sure to visit howest.be/karavaan.

INTRODUCTIONWhen a big supermarket chain changes something, it has a huge impact! That's why I interviewed Charlotte De Vroey, the Sustainability Manager at Delhaize Belgium. Charlotte shared what is behind their Lion's Footprint initiative: less plastic, less CO2, and less food waste. Do you know why they are focused on ‘less' instead of ‘more'? Do you wonder how they tackle the interlinked challenges of packaging and food waste? Are you curious about what is laser printing?I really liked how Delhaize is involving its multiple stakeholders in its vision. Nobody is put on the side: we talked about investors, buyers, colleagues, suppliers, and even regulators!If you are selling or buying products from big grocery stores, would you want to be part of this journey? ABOUT CHARLOTTE DE VROEY FROM DELHAIZE BELGIUMWith almost 15 years of experience in sustainability, Charlotte De Vroey leads the sustainability team at Delhaize (a chain of 800 food supermarkets in Belgium and Luxembourg). Her focus is to propose healthy food and to maintain a healthy planet. Before, she worked in making product supply chain more sustainable thanks to certification.She studied economics, ethics, and more recently, sustainable supply chains at the Cambridge University for Sustainability Leadership. WHERE TO FIND CHARLOTTE AND DELHAIZE BELGIUMThe Delhaize Lion's Footprint website where everyone is welcome to share ideas: https://www.delhaize.be/fr/better/planet/lionsfootprintCharlotte De Vroey on LinkedIn: https://www.linkedin.com/in/charlotte-de-vroey-87981829/ LITTLE NOTES In order to offset its own emissions that Delhaize cannot completely eliminate, it has created - in collaboration with major suppliers such as Unilever, Mondelez, and Henkel - the Lion's Footprint Fund, which supports ecological projects managed by the King Baudouin Foundation. RiverCleanup was one of the initiatives supported which has a link with packaging. PODCAST MUSICSpecial thanks to Joachim Regout who made the jingle. Have a look at his work here. I am happy to bring a sample of our strong bonds on these sound waves. Since I was a child, he made me discover a wide range of music of all kinds. I am also delighted he is a nature lover and shares the Look4Loops 'out of the box philosophy'. He is an inspiring source of creativity for me. 

I talk with Elke Briers who manages the KBF Business Partnership Facility. Should you apply? Here are the basic requirements: 1 year of financial statements, 50% cofinancing required, €50,000- €200,000 in funding, 5-10 awards per round, 2 calls for proposals per year and all sectors accepted. But more than that, Elke gives feedback on previous applicants and what she wants to see more of in applications. Find more here: https://kbfafrica.org/bpf-call-for-projects/

In this episode, we are joined by Professor Petrus de Vries, Sue Struengmann Professor of Child & Adolescent Psychiatry, Academic Head: Child & Adolescent Psychiatry, University of Cape Town, South Africa and Alexis Minnaar, English and Geography tutor at DawnCroft Alexis was diagnosed with Tuberous Sclerosis Complex, at the age of two. Prof. de Vries and Alexis graciously joined me to engage in a discussion on TAND, a phrase coined by Professor de Vries himself, which is an acronym for Tuberous Sclerosis Associated Neuropsychiatric Disorders and its one of the most challenging aspects of managing a TSC diagnosis and is a clinical manifestation of TSC, along with the other manifestations. Recently, Professor de Vries’ along with Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) were awarded funding from the Tuberous Sclerosis Association and the King Baudouin Foundation for the TANDem project, which will bring together a worldwide team of families affected by TSC, researchers and clinicians to provide scientific evidence for greater TAND intervention and treatment. The two-part project will first focus on the development of a self-report TAND checklist and identification smartphone app, to measure how people are affected by TAND. The second part of the study will investigate the best ways to treat TAND, including agreement on suitable clinical guidelines for TAND. Following this work in identifying and treating TAND, the TANDem Project will help to prepare a global team of TAND researchers to raise awareness and lead future research into TAND. Bringing both Alexis and Professor de Vries together to discuss their lived experiences with TAND in a Q & A session to bring to light the perspective of patient, doctor and a parent, to hash out the very different experiences. Professor de Vries coined the term TAND when in need of a succinct way to sum up the grouping of symptoms in a way that is easier for families also to talk to others about. “It can be easier to say; “I have, or my child has epilepsy or I've got something on my skin or got a kidney thing” than to talk about anxiety, about mental health issues and about learning issues and about all sorts of stuff like that. So, the journey to share often takes even longer for people about those kinds of things. And that's why it was so important for us to find a way of building a kind of a language around TAND. And to give the message, the simple message to people is that TAND is as much part of tuberous sclerosis complex as all the other things are. And therefore, it's not something to be ashamed about or shy about or embarrassed about. This is something that we need to know about them that we can do something about. And so that really is, you know, you you're talking about how do we how do we put down on a level playing field with all the other things, it's just as important and just the same as all these physical health problems that people have learned to talk about and have learned to treat in a better way. And so for many decades, very little research was done on behavior and psychiatry and mental health. It was, in 2012, when we had the consensus conference in the US to revise the diagnostic criteria and to revise the treatment guidelines that we the neuro psychiatry group that said, What? We've been trying to tell people to do these things, and nobody has been doing anything. What can we do to make it simple, so that people might start to listen to us? And the one thing we realized was, we've been talking about know, you have to think about the behavioral issues and the psychiatric issues and the academic issues and the intellectual issues and the psychosocial issues. And you know, by the time I said that whole sentence, people aren't listening to me anymore. And so that was why we decided we needed to come up with a simple term that puts all these things together. And that was the birth of the word TAND, which stands as you know, for TSC, associated neuro psychiatric disorders across all those different levels. We wanted a simple word that you and I can talk about TAND in one word, and then we can start to break it up, rather than to talk about all these fuzzy words that in a psychiatrist often like to talk about, that nobody follows. Right? So that was really the reason to give us that you can talk about it.” Alexis shares her own lived experience with TAND as well; “(my mother) She said I was having temper tantrums at school starting at about age seven. And she actually got to a point where she had to speak to my doctor say, look, you know, is it the TSC that's causing this or is it anger, or is it discipline issues? Or, you know, how do I deal with this? And so, my pediatric neurologist, her advice at the time was-there's no excuse for bad behavior. So, my mom had to put me on a strict discipline, freedom within boundaries sort of routine. I had strict routines in terms of schooling. Whether I was homeschooled or not, you know, you wake up at seven, you started school at eight, you work 'til two. And after that, you could do what you wanted. You took your medicine at seven, you know, they were they were structured systems in place so that I didn't have an excuse, and it's been very helpful. I did go through the TAND checklist last night, actually. And I kind of giggled because I realized I do kind of struggle to in terms of organization, I think you called it executive functioning” I am personally passionate about TAND because of the impact it had on our entire family. There tends to be a ripple effect when dealing with a lot of dysregulated and unpredictable behavior on top of seizures for long time periods and the whole family develops dysfunctional ways of coping. So when I heard Professor de Vries talk about TAND, first on YouTube and then in person at the World TSC Conference in 2017 in Dallas, the entire history of our life with TSC started to make more sense. More regarding the TANDem project; “And so what the TANDem project will do is three things: One, we're going to make a self-report version of the checklist, so that you either as a parent or caregiver or an individual that lives at TSC can fill it in yourself. Two-then we're going to put it into an app so that you can download an app and fill it in on the app. Three-And then we are going to create an expert group of people, consensus guidelines for treatment, next steps interventions for all these seven clusters of TAND difficulties. And then we're going to build them into the app so that when you sit down and you fill in the app for yourself or for your son or daughter, and you click on it, it will show you your child’s cluster profile. And you can click on it and it'll tell you what you can do about your that specific type of manifestation. And it will also tell you what the clinicians and the physicians ought to be doing as the next steps for your TAND profile. The TANDem project is just starting. We will create a website. And as soon as there are updates, we will inform people like you and the TS Alliance and the TCI, etc. So, the people just follow the story and give us input into the progress of the project over the next four years. It’s funded for four years by a Belgian foundation. It's called the King Baudouin Foundation. And they have funded us basically to develop this app, to validate the app and we will use people in the US and different parts of the world to make sure that we have something that we think is a good product that can then be launched for anybody in the world to use towards the end of the project. So that's the idea. You can see it's very practical. And it's really about empowering families and people who live with TSC. Because we know we can't wait until you can get somebody who knows about TAND- we need to give you the tools. I also don't want everyone to think that TANDem will solve all the problems of TAND in the world, but I think it's the kind of next step that we're taking in the community with people in the community that I'm really excited about.” From Alexis: “Education is where my heart lies for kids with TAND or any other genetic disorder, autism, anything else of because there is none in South Africa. All the children get sent to a special needs school and they get cheated and it’s frustrating.” Thanks for listening and many many thanks to both Professor Petrus de Vries and Alexis Minnaar for being willing to engage in this important conversation and shed some light on the lived and learned experience of TSC & TAND. WE will be watching and waiting to hear more on the TANDem project as it develops. Find us at: https://tsctalks.com Professor Petrus de Vries’ links: University of Cape Town: http://www.psychiatry.uct.ac.za/psych/staff/petrus-de-vries Centre For Autism Research: http://www.cara.uct.ac.za/petrus-de-vries TANDem press release: https://www.tsalliance.org/international-tand-research-project-awarded-funding/ Professor de Vries discussing TANDem: https://www.facebook.com/watch/?v=699529333889383 Recent article: https://www.spectrumnews.org/opinion/viewpoint/offer-support-young-autistic-children-south-africa/ Instagram: https://www.instagram.com/profpetrusdevries/ TSC South Africa: https://www.facebook.com/TSSouthAfrica/ Alexis Minnaar links: Blog: http://theycallmetsc.blogspot.com/ Facebook: https://www.facebook.com/alexisbilyard Living with TSC Facebook: https://www.facebook.com/theycallmetsc/ Instagram: https://www.instagram.com/they_call_me_tsc/ Previous podcasts on TSC Talks: https://www.spreaker.com/episode/18952329 and https://www.spreaker.com/episode/19010713

In this episode, we are joined by Professor Petrus de Vries, Sue Struengmann Professor of Child & Adolescent Psychiatry, Academic Head: Child & Adolescent Psychiatry, University of Cape Town, South Africa and Alexis Minnaar, English and Geography tutor at DawnCroft Alexis was diagnosed with Tuberous Sclerosis Complex, at the age of two. Prof. de Vries and Alexis graciously joined me to engage in a discussion on TAND, a phrase coined by Professor de Vries himself, which is an acronym for Tuberous Sclerosis Associated Neuropsychiatric Disorders and its one of the most challenging aspects of managing a TSC diagnosis and is a clinical manifestation of TSC, along with the other manifestations.Recently, Professor de Vries’ along with Anna Jansen (UZ Brussel – Vrije Universiteit Brussel) were awarded funding from the Tuberous Sclerosis Association and the King Baudouin Foundation for the TANDem project, which will bring together a worldwide team of families affected by TSC, researchers and clinicians to provide scientific evidence for greater TAND intervention and treatment. The two-part project will first focus on the development of a self-report TAND checklist and identification smartphone app, to measure how people are affected by TAND. The second part of the study will investigate the best ways to treat TAND, including agreement on suitable clinical guidelines for TAND. Following this work in identifying and treating TAND, the TANDem Project will help to prepare a global team of TAND researchers to raise awareness and lead future research into TAND.Bringing both Alexis and Professor de Vries together to discuss their lived experiences with TAND in a Q & A session to bring to light the perspective of patient, doctor and a parent, to hash out the very different experiences. Professor de Vries coined the term TAND when in need of a succinct way to sum up the grouping of symptoms in a way that is easier for families also to talk to others about.“It can be easier to say; “I have, or my child has epilepsy or I've got something on my skin or got a kidney thing” than to talk about anxiety, about mental health issues and about learning issues and about all sorts of stuff like that. So, the journey to share often takes even longer for people about those kinds of things. And that's why it was so important for us to find a way of building a kind of a language around TAND. And to give the message, the simple message to people is that TAND is as much part of tuberous sclerosis complex as all the other things are. And therefore, it's not something to be ashamed about or shy about or embarrassed about. This is something that we need to know about them that we can do something about. And so that really is, you know, you you're talking about how do we how do we put down on a level playing field with all the other things, it's just as important and just the same as all these physical health problems that people have learned to talk about and have learned to treat in a better way. And so for many decades, very little research was done on behavior and psychiatry and mental health. It was, in 2012, when we had the consensus conference in the US to revise the diagnostic criteria and to revise the treatment guidelines that we the neuro psychiatry group that said, What? We've been trying to tell people to do these things, and nobody has been doing anything. What can we do to make it simple, so that people might start to listen to us? And the one thing we realized was, we've been talking about know, you have to think about the behavioral issues and the psychiatric issues and the academic issues and the intellectual issues and the psychosocial issues. And you know, by the time I said that whole sentence, people aren't listening to me anymore. And so that was why we decided we needed to come up with a simple term that puts all these things together. And that was the birth of the word TAND, which stands as you know, for TSC, associated neuro psychiatric disorders across all those different levels. We wanted a simple word that you and I can talk about TAND in one word, and then we can start to break it up, rather than to talk about all these fuzzy words that in a psychiatrist often like to talk about, that nobody follows. Right? So that was really the reason to give us that you can talk about it.”Alexis shares her own lived experience with TAND as well; “(my mother) She said I was having temper tantrums at school starting at about age seven. And she actually got to a point where she had to speak to my doctor say, look, you know, is it the TSC that's causing this or is it anger, or is it discipline issues? Or, you know, how do I deal with this? And so, my pediatric neurologist, her advice at the time was-there's no excuse for bad behavior. So, my mom had to put me on a strict discipline, freedom within boundaries sort of routine. I had strict routines in terms of schooling. Whether I was homeschooled or not, you know, you wake up at seven, you started school at eight, you work 'til two. And after that, you could do what you wanted. You took your medicine at seven, you know, they were they were structured systems in place so that I didn't have an excuse, and it's been very helpful. I did go through the TAND checklist last night, actually. And I kind of giggled because I realized I do kind of struggle to in terms of organization, I think you called it executive functioning”I am personally passionate about TAND because of the impact it had on our entire family. There tends to be a ripple effect when dealing with a lot of dysregulated and unpredictable behavior on top of seizures for long time periods and the whole family develops dysfunctional ways of coping. So when I heard Professor de Vries talk about TAND, first on YouTube and then in person at the World TSC Conference in 2017 in Dallas, the entire history of our life with TSC started to make more sense. More regarding the TANDem project; “And so what the TANDem project will do is three things: One, we're going to make a self-report version of the checklist, so that you either as a parent or caregiver or an individual that lives at TSC can fill it in yourself. Two-then we're going to put it into an app so that you can download an app and fill it in on the app. Three-And then we are going to create an expert group of people, consensus guidelines for treatment, next steps interventions for all these seven clusters of TAND difficulties. And then we're going to build them into the app so that when you sit down and you fill in the app for yourself or for your son or daughter, and you click on it, it will show you your child’s cluster profile. And you can click on it and it'll tell you what you can do about your that specific type of manifestation. And it will also tell you what the clinicians and the physicians ought to be doing as the next steps for your TAND profile. The TANDem project is just starting. We will create a website. And as soon as there are updates, we will inform people like you and the TS Alliance and the TCI, etc. So, the people just follow the story and give us input into the progress of the project over the next four years. It’s funded for four years by a Belgian foundation. It's called the King Baudouin Foundation. And they have funded us basically to develop this app, to validate the app and we will use people in the US and different parts of the world to make sure that we have something that we think is a good product that can then be launched for anybody in the world to use towards the end of the project. So that's the idea. You can see it's very practical. And it's really about empowering families and people who live with TSC. Because we know we can't wait until you can get somebody who knows about TAND- we need to give you the tools. I also don't want everyone to think that TANDem will solve all the problems of TAND in the world, but I think it's the kind of next step that we're taking in the community with people in the community that I'm really excited about.”From Alexis: “Education is where my heart lies for kids with TAND or any other genetic disorder, autism, anything else of because there is none in South Africa. All the children get sent to a special needs school and they get cheated and it’s frustrating.”Thanks for listening and many many thanks to both Professor Petrus de Vries and Alexis Minnaar for being willing to engage in this important conversation and shed some light on the lived and learned experience of TSC & TAND. WE will be watching and waiting to hear more on the TANDem project as it develops. Find us at: https://tsctalks.com Professor Petrus de Vries’ links:University of Cape Town: http://www.psychiatry.uct.ac.za/psych/staff/petrus-de-vriesCentre For Autism Research: http://www.cara.uct.ac.za/petrus-de-vriesTANDem press release: https://www.tsalliance.org/international-tand-research-project-awarded-funding/Professor de Vries discussing TANDem: https://www.facebook.com/watch/?v=699529333889383Recent article: https://www.spectrumnews.org/opinion/viewpoint/offer-support-young-autistic-children-south-africa/Instagram: https://www.instagram.com/profpetrusdevries/TSC South Africa: https://www.facebook.com/TSSouthAfrica/Alexis Minnaar links: Blog: http://theycallmetsc.blogspot.com/Facebook: https://www.facebook.com/alexisbilyardLiving with TSC Facebook: https://www.facebook.com/theycallmetsc/Instagram: https://www.instagram.com/they_call_me_tsc/Previous podcasts on TSC Talks: https://www.spreaker.com/episode/18952329 and https://www.spreaker.com/episode/19010713

In 2014, Bloomberg Philanthropies joined with the King Baudouin Foundation to support the Foundation Center in creating a free web portal, Equal Footing – the first-of-its-kind platform to collect, index, analyze and visualize data on past and current philanthropic efforts in Burundi, Democratic Republic of the Congo, and Rwanda. Equal Footing creates a level of transparency and accountability for organizations, and for donors. It helps identify where the greatest needs are and which organizations are making a lasting impact. Lisa Philp, senior advisor at Foundation Center, and Verna Eggleston, Bloomberg Philanthropies’ Women’s Economic Development program lead tell us more about the Equal Footing and how non-profits can learn from one another.

As asylum seekers and refugees have arrived in significant numbers in Europe and North America in recent years, many countries have struggled to address the newcomers’ basic reception needs and provide effective integration services. Young children comprise a substantial share of these arrivals, and many have experienced significant trauma and stress that pose serious risks to their cognitive, psychosocial, and physical development. Early childhood education and care (ECEC) programs present an important opportunity to mitigate many risks these children may face, improving their education trajectories and supporting longer-term success. They can also play a critical role in the integration of refugee parents and families more broadly. In many countries, however, services for young refugee children are highly limited and lack the capacity to meet their learning and development needs. This webinar marks the release of an Migration Policy Institute report examining the challenges and successes major host countries in Europe and North America are experiencing in providing high-quality ECEC services. The report draws on fieldwork conducted in nine countries: Belgium, Canada, Germany, Greece, Italy, the Netherlands, Sweden, Turkey, and the United States. It is an initiative of the Transatlantic Forum on Inclusive Early Years, a consortium of European and U.S. foundations convened by the Brussels-based King Baudouin Foundation. During the webinar, authors, Maki Park and Margie McHugh discuss the report’s findings, highlighting promising policies and practices identified in field research, as well as key areas in which ECEC services for this population need to be strengthened. They are joined by Anna Österlund, from the Swedish National Agency for Education, who highlights innovative national and local policies in Sweden that support young refugee children in their early learning experiences.

Welcome to the second Alliance Audio - recorded live from Warsaw at the 2017 European Foundation Centre conference! In this podcast Alliance editor Charles Keidan hosts a discussion with Ewa Kulik-Bielińska, outgoing Chair of the EFC and Director of the Stefan Batory Foundation, Stefan Schäfers, Head of European Affairs at the King Baudouin Foundation and Liana Varon, Deputy Secretary General at the Third Sector Foundation of Turkey. What does solidarity look like from where they are? And how is philanthropy responding to the strains between people and states across Europe. If solidarity means different things to different people, how can philanthropy help to build a shared humanity?

Herman Van Rompuy, President Emeritus of the European Council, discusses the need for a New Pact for Europe and addresses the key issues the EU is currently facing. This keynote address was recorded in Brussels on 17th June 2015. We woudl liek to thank the King Baudouin Foundation, the Bertelsmann Foundation and the European Policy Centre for allowing us to broadcast this speech.