Podcasts about Foundation Center

This week on the podcast is part two of our interview with David Holmes. He's an Educational Programming Manager at Candid, where he helps nonprofits and individuals find funding. He also coordinates national trainings and educational programming for the Midwest region.​David returned to Candid in 2015 from a position as Senior Consultant at Grants Plus, writing grants and doing research for a variety of large and small nonprofit clients. In his initial nine-year tenure with Foundation Center, Dave served in various roles including Regional Training Specialist, Interim Director of Foundation Center – Cleveland, and the Director of Capacity and Leadership Development.If you've ever wanted to write a grant, learn where you can find information about grants, or learn more about the grant writing process, you won't want to miss our interview with David!  https://candid.org/

Long known as one of the world's finest Jazz Pianists, Rick DellaRatta also began to receive major recognition as a composer when his symphonic piece “Permutata” was recorded by the London Symphony Orchestra at the Beatles famed Abbey Rd., Studios in 1999, and as a unique and important vocalist in 2004 when he was included in a definitive listing of the greatest jazz singers of all time in Scott Yanow's Book “Jazz Singers”. Jazz for Peace rose from the ashes of 9/11 as a poem and is now considered "The most significant cultural event of our time!", Jazz For Peace. Rick witnessed the extraordinary events of 9/11 from his rooftop less than 1/4 mile away from Ground Zero on that fateful morning when the words of a poem titled “Jazz for Peace” that he wrote on that day went on to lead him to over 850 concerts across the Globe to help the world's most outstanding causes, educational presentations, and instrument donation programs for children.Through his life long endeavor to help advance people to their highest potential through the understanding of Jazz as well as spreading peace worldwide through his "Jazz for Peace World Tour", Rick DellaRatta is considered to be an innovator and a visionary, a designation that became known by many when he was included by The Foundation Center in their list of the top musician philanthropists of our time along with Bono (U2), Elton John, Peter Gabriel and Sting.Socials:Website: https://rickdellaratta.com/Website: jazzforpeace.orgLinkedIn: Rick DellaRatta FB: Rick DellaRatta https://jazzforpeace.wordpress.com/about/unprecedented-achievements/Enjoy the visual here on Youtube

Depression, anxiety, and apathy are common symptoms that are often overlooked in people with Parkinson's disease (PD). Nearly half of those living with PD are likely to experience depression or anxiety at some point, but these non-motor symptoms often go unrecognized and undertreated. Because their signs can overlap and mimic one another, it can be challenging to pinpoint exactly what someone is going through. Depression is known for feelings of persistent sadness or hopelessness. Anxiety might look like constant worry, excessive nervousness, or getting upset easily. Apathy, which is sometimes mistaken for depression, is the lack of motivation or interest to do things you used to enjoy. These symptoms can greatly impact your quality of life and worsen other PD symptoms.  In this episode, we speak with Lauren Zelouf, MSW, LCSW from Penn Medicine's Parkinson's Disease & Movement Disorders Center, a Parkinson's Foundation Center of Excellence. She shares how to distinguish among these different symptoms, emphasizes the importance of recognizing the signs, and offers coping strategies for managing symptoms and seeking support. Follow and rate us on your favorite podcast platform to be notified when there's a new episode! Let us know what other topics you would like us to cover by visiting parkinson.org/feedback.

This week on the podcast is part one of our interview with David Holmes. He's an Educational Programming Manager at Candid, where he helps nonprofits and individuals find funding. He also coordinates national trainings and educational programming for the Midwest region.​David returned to Candid in 2015 from a position as Senior Consultant at Grants Plus, writing grants and doing research for a variety of large and small nonprofit clients. In his initial nine-year tenure with Foundation Center, Dave served in various roles including Regional Training Specialist, Interim Director of Foundation Center – Cleveland, and the Director of Capacity and Leadership Development.If you've ever wanted to write a grant, learn where you can find information about grants, or learn more about the grant writing process, you won't want to miss our interview with David!  https://candid.org

Bev & Paul talk about putting a new lease on life and the Foundation Center.

Thinking and memory changes, also known as cognitive changes, may become more noticeable as Parkinson's disease (PD) progresses. If these symptoms begin to interfere with everyday tasks, it may be a sign of dementia. Understanding the signs of dementia in Parkinson's, along with its different names and variations, is essential for tailoring treatment options to your specific symptoms.  The early signs of dementia may be hard to notice at first. Often, it is the care partner or family member who witnesses the gradual decline in thinking abilities. Care partners play a crucial role in providing the best quality of life and support for their loved ones with Parkinson's. In this episode, Jori Fleisher, MD, MSCE and Claire Pensyl talk about Parkinson's dementia. Dr. Fleisher is a movement disorders neurologist and co-director of the Parkinson's Foundation Center of Excellence at Rush University in Chicago, where her research focuses on designing and implementing novel models of care and support for people living with neurodegenerative disorders. She is the Principal Investigator of the PERSEVERE trial, an entirely virtual, national trial to educate and empower care partners whose loved ones have Parkinson's or Lewy Body Dementia (LBD).  Claire, on the other hand, was the care partner for her husband, Ira, who had PD and LBD. She shares her experience witnessing Ira's cognitive challenges as they became more apparent and describes how she became motivated to learn more about the signs of dementia as the disease progressed. Follow and rate us on your favorite podcast platform to be notified when there's a new episode! Let us know what other topics you would like us to cover by visiting parkinson.org/feedback.

In this episode of the Fund The People Podcast, you'll get an inside view of one foundation's journey to investing in healthy nonprofit executive transitions - and helping other funders to do the same. Host Rusty Stahl sits down withLiz Sak, Executive Director ofCricket Island Foundation, andHana Sun, a consultant who manages the Foundation's Leadership Transition Fund. They discuss Cricket Island Foundation's approach to supporting nonprofit leadership transitions, particularly for small, grassroots organizations focused on youth organizing. The foundation provides three-year grants of $45,000 per year to help organizations navigate the before, during, and after phases of executive transitions.Often funders unintentionally create barriers to healthy grantee leadership transitions, with many nonprofit leaders hesitant to openly discuss their plans to leave due to fears of lost or postponed funding. Cricket Island Foundation addressed this by publicly signaling their supportive stance toward transitions, creating a firewall between the foundation and grantees through an external consultant, establishing peer-learning cohorts for transitioning leaders, and developing resources for both nonprofits and funders through the Leading Forward initiative.The discussion emphasizes that successful transitions require long-term planning, adequate resources, and a supportive funding ecosystem. We also talk about the importance of normalizing conversations about transitions and creating safe spaces for leaders to explore their future plans.Resources:Cricket IslandLeading Forward Leadership Learning CommunityBuilding Movement Project “Could Term Limits for Nonprofit Leaders Ease the Burnout Crisis?” by Chitra Aiyar,Chronicle of Philanthropy, Jan. 7, 2025“Supporting Nonprofit Leadership Transitions: A Foundation's Journey” July 2024ciftransitions@gmail.comLiz SakLiz Sak became the second Executive Director of the Cricket Island Foundation in 2008, overseeing all aspects of the Foundation's management including finance, program development, grantmaking, and field-building.Prior to joining the foundation, Liz spent more than two decades running non-profit organizations. This work included securing millions of dollars of public investment in youth development work in the South Bronx which culminated in her securing funding for the Phipps Beacon School, a multi-service initiative serving young people and families; Liz served as the inaugural director of that program. She has since led organizations at the intersection of youth-organizing, the arts, and youth-development, developing public-private partnerships in support of that work. Since her move to philanthropy in 2008, Liz has focused on the development of strategies that are grounded in principles of social justice philanthropy, organizational strengthening, and partnership. She recently co-authored an article on evaluation for The Foundation Review and her writing has appeared in the Chronicle of Philanthropy, Foundation Center, and numerous blogs.Liz holds a BA in political science from Lehigh University and an MBA from the Yale School of Management.Hana SunHana has 15 years of experience in facilitation, curriculum design, community building, and organizational leadership. She has held previous roles at New Economy Coalition, Third Wave Fund, Global Action Project, Mozilla Foundation, Cricket Island Foundation, Coalition for Asian American Children and Families, Hawaii Public Schools, and more. She has a master's degree from Columbia University School of Social Work and a bachelor's degree in Literature and Dance Studies from Smith College.You can find all the episodes of this podcast plus our blog, toolkit and other resources at ⁠⁠⁠⁠⁠⁠⁠fundthepeople.org⁠⁠⁠⁠⁠⁠⁠. And we invite you to learn from all the amazing past guests of Fund the People - A Podcast with Rusty Stahl at ⁠⁠⁠⁠⁠⁠fundthepeople.org/ftp_podcast⁠⁠⁠⁠⁠⁠.

Today, our special guest is Whitney Hess, Founder and Executive Coach of Vicarious Partners Inc. We discuss the power of bravery, vulnerability, and personal growth. Discover how to overcome fear, cultivate self-awareness, and embrace failure as a stepping stone toward success. With practical tips and inspiring stories, this podcast is a must-listen for anyone looking to live a more courageous and purposeful life. Highlights include: 0:00-4:25 - Whitney discusses her perspective on failure 04:26-8:17 - Whitney shares her backstory, including living on a sailboat 08:18-14:03 - The importance of being present and fully engaged with clients 14:04-19:48 - A closer look at the power dynamics in coaching relationships 19:49-24:12 - Whitney shares a personal anecdote 24:13-29:45 - More on coaching, UX, and the challenges facing the field 29:46-33:58 - Whitney's perspective on the risks of pursuing the management track  33:59-38:20 - Coaching dynamics and the importance of an opt-in relationship 43:03-46:26 - Brendan and Whitney highlight the importance of self-reflection Who is Whitney Hess Whitney Hess is a coach, writer, and designer on a mission to put humanity back into business. She believes empathy builds empires, and she helps progressive, creative leaders design their careers and accelerate their missions. Her techniques help people gain self-awareness, identify blind spots, navigate obstacles, and bring their whole selves to their work.   Whitney has been a user experience (UX) consultant for over a decade, hired to make technology easier and more pleasurable. She has been recognized for her work with the United States Holocaust Memorial Museum, the Martin Luther King Jr. Center for Nonviolent Social Change, Foundation Center, Seamless, Boxee, and WNYC. She is named as a co-inventor on a U.S. patent with American Express.   Whitney is a two-time Carnegie Mellon University graduate with a Master's in Human-Computer Interaction and a Bachelor's in Professional Writing and HCI. She is a Certified Integral Coach through New Ventures West and a Professional Certified Coach (PCC) with the International Coaching Federation. She writes on her blog Pleasure & Pain, co-hosts the podcast Designing Yourself, and speaks at conferences and corporations worldwide.   Find Whitney Here: Whitney Hess on LinkedIn Whitney Hess Website Whitney Hess Blog Vicarious Partners Inc. on LinkedIn Whitney Hess Email   Subscribe to Brave UX Like what you heard and want to hear more? Subscribe and support the show by leaving a review on Apple Podcasts (or wherever you listen). Apple Podcast Spotify YouTube Podbean Follow us on our other social channels for more great Brave UX content! LinkedIn Instagram Brendan Jarvis hosts the Show, and you can find him here: Brendan Jarvis on LinkedIn The Space InBetween Website

Carbidopa-levodopa is considered the “gold standard treatment” for Parkinson's disease. Levodopa works to replace levels of dopamine in the brain, thereby alleviating PD symptoms, while Carbidopa works to reduce adverse effects in the rest of the body. Although years have passed since the creation of this treatment, it is still commonly known to be an effective drug for reducing PD symptoms in a majority of people living with Parkinson's. In this episode, we hear from Dr. Emily Peron, PharmD and Dr. Leslie Cloud, MD from Virginia Commonwealth University*. They discuss how and why carbidopa-levodopa continues to be a standard treatment for PD, long-term use considerations, its different forms, and when to recognize the need for potential medication adjustments. *Denotes a Parkinson's Foundation Center of Excellence

In this episode, Rick DellaRatta and I revisit his experience being an eye witness to 9/11 from only a quarter mile away… He shares how he immediately had the desire and the words to turn this tragedy into a peace mission. A poem written in that devastating moment turned into ‘Jazz for Peace.'   Rick DellaRatta is now considered by many to be one of the finest Singer/Pianists performing today and one of only a handful of Jazz Artists who can make a successful musical presentation to a large audience without having to abandon the true art form of Jazz. Rick is considered to be an innovator and a visionary through his lifelong endeavor to help advance people to their highest potential through the understanding of Jazz as well as spreading peace worldwide through his "Jazz for Peace World Tour."  Included in the tour were historic performances in the US, Europe, Africa, and Brazil as well as his landmark Jazz for Peace concert at the United Nations in New York in 2002 uniting Israeli, Palestinian and American musicians in concert is now considered one of the most significant cultural events of our time! This U.N. Concert has led to a benefit concert series that has gone on to raise funds, publicity, and awareness for over 700 non-profit organizations, garnered support and praise from distinguished Americans and was attended and enjoyed by ambassadors, celebrities, humanitarians, and music lovers worldwide!  Jazz Pianist, vocalist and composer Rick DellaRatta was included by The Foundation Center in their list of top musician philanthropists of our time along with Bono (U2), Elton John, Peter Gabriel and Sting.   I am your host, Marci Nettles. I have had a lifetime of opportunities where I had the choice to Breakdown or Breakthrough. It is my hope this Podcast may become your light in the darkness, as you listen to the stories of people I consider “heroes.” Each one had a point where they too had to choose to either Breakdown or Breakthrough! Working from home, with my husband/business partner, helping people around the world find new levels of success in their health and wellness, is part of what makes me tick! If you are open to opportunity, let's connect!    Thank you for listening! Please connect with Rick: jazzforpeace.org Facebook: facebook.com/profile.php?id=100063540363794   Find Marci at marcinettles.com Don't forget to claim your FREEBIE from Rick by going to Marcinettles.com/freebies While you are there, make sure to subscribe to receive the YBWN Podcast Newsletter, ‘Making Mondays,' that will give insight to each episode and give you a heads up on what is coming next!  

Since routine outpatient procedures may pose special needs and risks for someone with Parkinson's disease (PD), extra planning is in order for the period before, during, and after the procedure. The procedures may be medical or dental, for example, teeth cleanings, colonoscopy, or magnetic resonance imaging (MRI).   Fortunately, the Parkinson's Foundation has developed a course that highlights key recommendations and strategies to promote optimal care and health outcomes for people with PD during planned and unplanned hospital stays, which can include inpatient, outpatient, and emergency department hospital encounters.   In this podcast episode, movement disorders neurologist Muhammad Nashatizadeh, MD of the University of Kansas Medical Center in Kansas City, a Parkinson's Foundation Center of Excellence, discusses how people with PD can incorporate this same safety protocol to ensure optimal outcomes when they plan for and have routine outpatient healthcare procedures.

Besides being a movement disorder and affecting other physical functions, such as the digestive system, blood pressure control, and sleep, Parkinson's disease (PD) can alter cognition, other mental functions, and mood. Apathy can be part of the disease, resulting in a lack of interest, enthusiasm, or motivation. It can result in a vicious cycle, decreasing one's motivation to exercise and follow medication schedules, which are essential components of managing PD, including mood.   In this episode, movement disorder neurologist Nabila Dahodwala, MD, MS, Director of the Parkinson's Foundation Center of Excellence at the University of Pennsylvania, describes what apathy is, how it can affect a person's life, and ways to help alleviate it and gain motivation to move through exercise.

A common misconception is that palliative care implies hospice, when in fact, palliative care can and should be a component of the treatment of any serious disease, including Parkinson's. The word “palliation” means providing relief from pain and other symptoms, with a goal of improving quality of life. Individuals receiving palliative care also may receive other treatments, with curative intent if available. On the other hand, palliation can be a part of hospice, but in hospice, a person no longer has curative options or chooses not to pursue them. In this episode, Maggie Ivancic, MSW, LCSWA, the Clinical Social Worker and Parkinson's Foundation Center of Excellence Coordinator at the University of North Carolina at Chapel Hill, discusses aspects of palliative care – how it differs from hospice, its intent, and how and where to access it.

Historically and even today, Parkinson's disease (PD) is a clinical diagnosis, wherein a physician observes signs of the disease and an individual reports symptoms. In routine practice, there is no blood test, other biomarker, or machine to make the diagnosis or to track progression of the disease. But given advances in computing power and through computer analysis of massive amounts of data, artificial intelligence (AI) may add a valuable tool to the diagnostic process. In one form of AI, a computer analyzes a stream of input data to discern patterns that represent an outcome of interest.   A recent study used AI to non-invasively collect and analyze data on breathing patterns, using one night of breathing signals from 7,671 individuals with PD as they slept. One of the co-authors of the study was Aleksander Videnovic, MD, MS of Harvard Medical School and Massachusetts General Hospital, where he is Chief of the Division of Sleep Medicine. The hospital is a Parkinson's Foundation Center of Excellence. In this episode, he explains how the study was done, its findings, and how AI may be useful for diagnosis of PD, gauging its severity, following its progression, and possibly, in the future, assessing risk of PD before its clinical diagnosis.

“Off” episodes can become a troubling aspect of Parkinson's disease (PD), especially as the disease progresses. These are periods in the day when the effect of levodopa medication wears off, either suddenly or gradually, with a return of motor or non-motor symptoms.   The good news is that there are several ways to try to minimize “off” episodes, including medication timing, medication adjustments, and add-on medications. In this podcast episode, Dr. George Kannarkat, a movement disorders fellow at the University of Pennsylvania in Philadelphia, a Parkinson's Foundation Center of Excellence, discusses “off” episodes, their causes, strategies that people can use today to minimize them, and what new technologies are here or coming along to help lessen them.

Parkinson's disease (PD) depression may be a biological part of the disease itself, resulting from PD-related changes in brain chemistry. Untreated depression and other mood disorders can have a greater impact on well-being than even common motor symptoms.   Depression affects at least 50 percent of people with PD sometime in the course of their disease, but it is often under-recognized and, therefore, under-treated, even though effective treatments exist, both pharmacologic and nonpharmacologic. Treating depression can be a significant way to improve quality of life.   Veronica Bruno, MD, MPH, a neurologist specializing in movement disorders at the University of Calgary in Alberta, Canada, a Parkinson's Foundation Center of Excellence, discusses depression, the problem of under-diagnosis, and the benefits of recognition and treatment.

Parkinson's disease (PD) affects several automatically regulated bodily functions, such as digestion, bowel activity, sweating, and blood pressure control, together known as autonomic functions. Low blood pressure, or hypotension, is common in PD, and high blood pressure (hypertension) can also occur. They may be a result of the disease itself or be caused by some of the medications to treat it. Hypotension, in particular, can be dangerous, leading to dizziness, fainting, falls, and fractures.   Up to 60% of people with PD may experience orthostatic hypotension at some point, which is a drop in blood pressure within three minutes of changing to a more upright position, that is, from sitting to standing or from a lying position to sitting or standing.   In this episode, Jeni Bednarek, RN, BSN, ACRP-CP, nurse team coordinator and associate director of education of the Parkinson Center of Oregon in the Parkinson's Center and Movement Disorders Program of the Oregon Health and Science University in Portland, a Parkinson's Foundation Center of Excellence, discusses several ways for individuals with PD to cope with blood pressure problems, including pharmacologic and non-pharmacologic methods, as well as working with their health care providers to reach a good blood pressure balance.

193: Social Impact Strategies for Nonprofit Leaders (Jacob Harold)SUMMARYMany nonprofit leaders have social impact amongst their chief objectives, but do you know what social impact truly means and how to measure the impact you're having? In episode #193 of Your Path to Nonprofit Leadership, social change strategist Jacob Harold shares his tools to help you transform your corner of the world. A former GuideStar and Candid executive, Jacob talks about the importance of collaboration, transparency, communication and comprehensive storytelling to assure a nonprofit's success. He discusses his two laws of nonprofit communication: no story without numbers and no numbers without stories. Jacob shares his book, The Toolbox: Strategies for Crafting Social Impact where he identifies 9 different ways of thinking about social change and the essential lessons of each.ABOUT JACOBJacob Harold is a social change strategist, author, and executive. His story parallels the intellectual arc of The Toolbox: he's traveled from farm to monastery to jail to laboratory to boardroom, all in search of the best ways to do good. From 2012 to 2021, Harold served as President & CEO of GuideStar and co-founder of Candid. Fast Company called Candid “the definitive nonprofit transparency organization.” Each year, over 20 million people use its data on nonprofits, grants, and social sector practice. The merger of GuideStar and Foundation Center formed candid in 2019. Harold co-led the $45 million capital campaign to launch Candid, wrote Candid's guiding strategy document, Candid 2030, and served as EVP during post-merger integration. During his tenure leading GuideStar, Harold oversaw a financial turnaround, a tripling of GuideStar's reach, and major partnerships with organizations ranging from Google to the Gates Foundation. In 2013, Harold launched the Overhead Myth campaign to shift attention from nonprofits' financial ratios to their programmatic results. Since then, over 200,000 nonprofits have used GuideStar's Profile Program to tell their full story to the world.EPISODE TOPICS & RESOURCESThe Ministry for the Future: A Novel by Kim Stanley Robinson​​​​​​​Learn more about Jacob, his book, and related Field Guide here​​​​​​​Check out Patton's new book Your Path to Nonprofit Leadership: Seven Keys to Advancing Your Career in the Philanthropic Sector

Researchers are accumulating evidence about how the environment affects our health and our diseases – both our internal and external environments. A significant part of our internal environment is the gut microbiome, that is, the bacteria, fungi, and viruses that naturally inhabit our intestinal tracts. The external environment is everything around us that we eat, inhale, or come into contact with, including industrial chemicals and pesticides.   Studies have shown that people with Parkinson's disease (PD) harbor distinct gut microbiomes. Environmental exposures and genetic factors can affect the composition of the microbiome. Exposure to pesticides is a leading environmental risk for many neurological diseases, including PD. Tim Sampson, PhD, a cell biologist at Emory University in Atlanta, Georgia, a Parkinson's Foundation Center of Excellence, received one of the Foundation's Stanley Fahn Junior Faculty Awards to study how genetics and Parkinson's-linked pesticides affect the gut microbiome. The aim is to see how these interactions may trigger Parkinson's symptoms within the gut as well as those originating in the brain, with a goal of gaining insight at the earliest stages of the disease to better prevent PD and develop new therapeutic targets.

Adult children of a parent with Parkinson's disease (PD) often want to help their parent but do not know how to begin. If they get involved early, they can detect changes that need to be addressed later on. A good first step is learning about the disease, its symptoms, treatment, and course. From there, they may want to become an active part of the support team that each person with PD should have from the time of diagnosis. Adult children can help schedule doctor's appointments; attend them with their parent, navigate insurance and other financial concerns, and keep their parent moving and socially involved by engaging in sports and activities with them. This all depends on the parent's willingness to have their children help out with some aspects of their lives.   In this episode, Social Worker Kelly Arney, MSSW, outreach coordinator for the Parkinson's Foundation Center of Excellence at Vanderbilt University Medical Center in Nashville, has several good pieces of advice for different situations, including communicating with the parent about how much help they will accept without giving up their autonomy.

The news of a Parkinson's diagnosis can be overwhelming. So many questions arise, including how it will change the person's life, what lies ahead, and what to do first. Social workers can be a vital resource in helping a newly diagnosed person, care partner, and family navigate the road ahead, as well as provide ongoing support through the course of the disease. They are the health professionals who know and can coordinate many of the most helpful resources. Or as social worker Lance Wilson, LSW, C-SWHC, ASW-G, the education outreach coordinator for the Jefferson Health Comprehensive Parkinson's Disease and Movement Disorder Center in Philadelphia, a Parkinson's Foundation Center of Excellence, puts it, social workers are the Yellow Pages for health care, tying people into the resources they need. He says social workers can help put people's minds at ease by assessing their needs and lining up professionals who can provide medical, mental health, spiritual services, and more.

The Children's Health Rett and Related Disorders Clinic is a designated International Rett Syndrome Foundation Center of Excellence. Learn how they achieved this outstanding designation.

Medical problems often do not follow a schedule, and it can be frustrating to get them addressed when the next doctor appointment is weeks or months away. It's important to have a plan about what to do for support between clinic appointments. A good first step is to discuss the issue with your health care team and to arrange to have a designated person or point of contact should such a situation arise. Heather Russell, RN, Coordinator of the Parkinson's Foundation Center of Excellence at the London Health Sciences Centre in London, Ontario, Canada, is that person for her clinic. In this episode, she describes how she helps her patients when they have a medical problem related to their Parkinson's disease and their next scheduled clinic visit is some time away.

Lou talks with Whitney Hess as she discusses her vast career in UX design and transition into coaching. She breaks down the different methodologies and philosophies she utilizes with each client and how she embodies her work beyond her coaching. Together, Whitney and Lou discuss the different risks and leaps of faith she has had to take during her career and how that ultimately led her to be a more effective coach. Whitney recommends: Upperlimiting is a concept by Gay Hendricks from his book The Big Leap. Here's an article on the hidden barriers that get in the way of us moving from our Zone of Excellence to our Zone of Genius. https://experiencelife.lifetime.life/article/overcome-your-upper-limits/ Whitney Hess is a coach, writer, and designer on a mission to put humanity back into business. She believes empathy builds empires. Whitney helps creative leaders design their careers and accelerate their missions. Her techniques help people gain self-awareness, identify blind spots, navigate obstacles, and bring their whole selves to their work. For more than a decade, Whitney was a user experience consultant making technology easier and more pleasurable to use. She has been recognized for her work with the United States Holocaust Memorial Museum, Martin Luther King Jr. Center for Nonviolent Social Change, Foundation Center, Seamless, Boxee, and WNYC. She is named as a co-inventor on a U.S. patent with American Express. Whitney is a two-time graduate of Carnegie Mellon University, with a Master's in Human-Computer Interaction and a Bachelor's in Professional Writing and HCI. She is a Certified Integral Coach through New Ventures West and a Professional Certified Coach (PCC) with the International Coaching Federation. She writes on her blog Pleasure & Pain, co-hosts the podcast Designing Yourself, and speaks at conferences and corporations worldwide. A native New Yorker, Whitney lives in Maine with her partner Fredrick Selby. They are in the early stages of planning their circumnavigation.

Caregiving can be an intensive endeavor, not to mention the physical, mental, emotional, and even financial aspects of it. Just as people with Parkinson's disease need support services, so, too, do their care partners. In this episode, Social Worker Cara Iyengar, MSW, LISW, the coordinator of the Parkinson's Foundation Center of Excellence at the University of Iowa in Iowa City, discusses some of the Foundation's resources that she shares with care partners, her three-pronged approach to supporting them, some of the challenges she faces in bringing support services to people in a rural state like Iowa, and the kind of feedback that she has received from care partners. 

People often view Parkinson's disease (PD) in terms of its motor symptoms, including slow movements, tremors, and stiffness. Often, these symptoms can be controlled with levodopa or other dopaminergic drugs. But just as troubling or more so to the person with PD are the non-motor symptoms of nausea, constipation, low blood pressure, mood disturbances, sleep problems, and more. In this episode, we focus on feeling nausea with Parkinson's disease in an interview with Andrew Feigin, MD, Professor of Neurology at New York University Langone Health and director of the Fresco Institute for Parkinson's and Movement Disorders in New York City, a Parkinson's Foundation Center of Excellence. He discusses the causes of nausea, both from PD itself and from medication, and what people can do to help lessen or prevent it.

Just as people in the general population have to contend with various unrelated medical conditions, so may people with Parkinson's disease (PD). Such conditions are termed “comorbidities,” that is, diseases or conditions occurring along with, in this case, PD. Examples are cardiovascular disease, strokes, arthritis, diabetes, asthma, cancer, cataracts, other diseases of aging, as well as those that can occur at any stage of life. An important consideration is to determine which health professional would be best at addressing them and who coordinates the care. A movement disorders specialist may feel comfortable treating a general neurological condition in addition to PD, but in this podcast episode, movement disorders neurologist Ashley Rawls, MD, MS of the University of Florida College of Medicine in Gainesville, a Parkinson's Foundation Center of Excellence, emphasizes that one's time with her is best used addressing the person's PD, while comorbidities are most appropriately managed by specialists in those particular areas. For best patient outcomes, proper coordination of care and sharing of information will give each health professional a total picture of the person's medical management, including prescribed drugs and possible drug interactions.

In this episode, I get raw about my thoughts on Roe v. Wade and my personal story. I talk about the emotional, physical, spiritual aspects of my story and how I moved through it. I also chat about Jane Fonda's book "My Life So Far" and Ageism in our culture as well as the importance of grappling with the reality of death - not in a morbid way, just how important it is to think about it so we are living our lives the way we want to be while we're on the planet! In the end, I share a funny personal anecdote that you won't want to miss.Get in touch with me here: oftheessencewithliz@gmail.com Giveaway*I am offering a free 30-minute distance Reiki session to one person who reviews the podcast! Subscribe and screenshot your review before posting and email or send it to me via email or on Instagram and I will enter you in to the giveaway! Resources: -Abortionfunds.org -National Abortion Access Fund For Survivors -Planned Parenthood -The Ms. Foundation -Center for Reproductive Rights

Kris Kewitsch is the executive director of the Charities Review Council, whose mission is "building donor and nonprofit relationships for strong, vibrant, and just communities." Their work helping nonprofits improve transparency and learn brought Kris to the podcast in 2019 to talk about the original news on the merger of the Foundation Center and Guidestar to create Candid. Candid announced last week they had received a gift of $15 million in general operating support from Mackenzie Scott. Kris joins host Steve Boland to talk about a gift of this magnitude to a nonprofit sector support organization, rather than a direct service charity, and the impact such a gift may make. They talk about the progress of Candid since the merger was announced, the expense of technology platforms to help inform donors and the sector, and much more!

Parkinson's disease (PD) does not exclusively affect the older population. In fact, about four percent of people with PD in the United States developed the disease before age 50. This is called Young-Onset Parkinson's disease (YOPD). While the disease in younger people resembles in many ways PD in the older age group, it presents some unique challenges, including issues with employment, sexuality, pregnancy, family life, financial planning and parenting. In this episode, the second of two on YOPD, Dr. Bart Post of Radboud University in Nijmegen, the Netherlands, a Parkinson's Foundation Center of Excellence, focuses on some of the social and interpersonal issues, including work, family, and women's issues. He also describes the Phase of Life Dependent Support Program that he has developed at his university to meet the special needs of people with YOPD.

Although people often think of Parkinson's disease (PD) as one affecting the elderly, approximately one in 25 people living with PD in the United States received their diagnosis before age 50. This is known as Young-Onset Parkinson's disease (YOPD). While it shares many motor and non-motor symptoms with typically older onset disease, it does differ in some ways, particularly in terms of speed of progression, reaction to medications, life circumstances and underlying genetic risk factors.   In this episode, the first of two on YOPD, Dr. Bart Post of Radboud University in Nijmegen, the Netherlands, a Parkinson's Foundation Center of Excellence, describes some of the physical characteristics of YOPD. In the second episode, he will focus on some of the social and interpersonal issues, including work, family, and specifically women's issues. He will also describe a program that his university has developed for people with YOPD.

The cause of most cases of Parkinson's disease (PD) is unknown. Researchers have found genes or genetic variants that are associated with risk for the development of PD, but genetic causes are thought to play a role in only a minority of cases. However, accumulating evidence from epidemiologic studies, laboratory basic research, and animal models indicates that exposure to environmental toxins can increase risk of the disease. These substances include pesticides, solvents, metals, and other environmental pollutants. In this episode, Samuel Goldman, MD, MPH, Professor of Occupational and Environmental Medicine and Neurology at the University of California, San Francisco, a Parkinson's Foundation Center of Excellence, reviews what has been learned so far and explains some of the complexities of doing research on environmental causes of PD.

Tune in to hear EIG Director of Community Outreach, Jill Economou, discuss organizations that support grassroots and faith-based groups and prepare high performing urban teachers and leaders. Guests this week include: Christine Cznernejewski | The Bradley Foundation Jose Rosario & Krysta DeBoer | Center for Urban Teaching

Tune in to hear EIG Director of Community Outreach, Jill Economou, discuss organizations that support grassroots and faith-based groups and prepare high performing urban teachers and leaders. Guests this week include: Christine Cznernejewski | The Bradley Foundation Jose Rosario & Krysta DeBoer | Center for Urban Teaching

Restorative sleep is vital for optimal physical, mental, and emotional health. Sleep problems affect a large proportion of the general population and take many forms, so the consequences of poor sleep are widespread. In particular, sleep disturbances affect more than 75 percent of people with Parkinson's disease (PD). And according to our expert guest, Dr. Aleksandr Videnovic of Harvard Medical School and Director of the Division of Sleep Medicine at Massachusetts General Hospital, a Parkinson's Foundation Center of Excellence, these problems are under reported by patients and under diagnosed by health professionals. The causes of sleep problems include recurrent symptoms of PD, disordered breathing, REM sleep behavior disorder, restless leg syndrome, and periodic limb movement disorder, among other factors and may be multifactorial. In this episode, Dr. Videnovic addresses some of the most frequent sleep problems – insomnia, REM sleep behavior disorder, and daytime sleepiness.

People with Parkinson's disease (PD) may experience mental health problems, such as depression, apathy, and anxiety more frequently than the general population. Psychosis, such as delusions or hallucinations, may occur as part of the disease or from medications used to treat it. Fortunately, these conditions are treatable if recognized. Unfortunately, clinicians may not screen for them, and therefore, the problems may be missed. In addition, people with PD may come to their clinic visits with a list of physical problems, so they may not make mental health a priority.   In this episode, geriatric psychiatrist Dr. Mary Hart Bryan of the Medical University of South Carolina in Charleston, a Parkinson's Foundation Center of Excellence, explains some of the mental health conditions that people with PD may experience, and she emphasizes the importance of recognizing these conditions and seeing the proper health care professional for treating them, using psychotherapy, cognitive behavioral therapy, medication, or combinations of these approaches. She shares how care partners, too, often have mental health needs that should be recognized and addressed.

Welcome to The Nonlinear Library, where we use Text-to-Speech software to convert the best writing from the Rationalist and EA communities into audio. This is: SIAI - An Examination, published by BrandonReinhart on the LessWrong. 12/13/2011 - A 2011 update with data from the 2010 fiscal year is in progress. Should be done by the end of the week or sooner. Disclaimer I am not affiliated with the Singularity Institute for Artificial Intelligence. I have not donated to the SIAI prior to writing this. I made this pledge prior to writing this document. Notes Images are now hosted on LessWrong.com. The 2010 Form 990 data will be available later this month. It is not my intent to propagate misinformation. Errors will be corrected as soon as they are identified. Introduction Acting on gwern's suggestion in his Girl Scout Cookie analysis, I decided to look at SIAI funding. After reading about the Visiting Fellows Program and more recently the Rationality Boot Camp, I decided that the SIAI might be something I would want to support. I am concerned with existential risk and grapple with the utility implications. I feel that I should do more. I wrote on the mini-boot camp page a pledge that I would donate enough to send someone to rationality mini-boot camp. This seemed to me a small cost for the potential benefit. The SIAI might get better at building rationalists. It might build a rationalist who goes on to solve a problem. Should I donate more? I wasn't sure. I read gwern's article and realized that I could easily get more information to clarify my thinking. So I downloaded the SIAI's Form 990 annual IRS filings and started to write down notes in a spreadsheet. As I gathered data and compared it to my expectations and my goals, my beliefs changed. I now believe that donating to the SIAI is valuable. I cannot hide this belief in my writing. I simply have it. My goal is not to convince you to donate to the SIAI. My goal is to provide you with information necessary for you to determine for yourself whether or not you should donate to the SIAI. Or, if not that, to provide you with some direction so that you can continue your investigation. The SIAI's Form 990's are available at GuideStar and Foundation Center. You must register in order to access the files at GuideStar. 2002 (Form 990-EZ) 2003 (Form 990-EZ) 2004 (Form 990-EZ) 2005 (Form 990) 2006 (Form 990) 2007 (Form 990) 2008 (Form 990-EZ) 2009 (Form 990) SIAI Financial Overview The Singularity Institute for Artificial Intelligence (SIAI) is a public organization working to reduce existential risk from future technologies, in particular artificial intelligence. "The Singularity Institute brings rational analysis and rational strategy to the challenges facing humanity as we develop cognitive technologies that will exceed the current upper bounds on human intelligence." The SIAI are also the founders of Less Wrong. The graphs above offer an accurate summary of SIAI financial state since 2002. Sometimes the end of year balances listed in the Form 990 doesn't match what you'd get if you did the math by hand. These are noted as discrepancies between the filed year end balance and the expected year end balance or between the filed year start balance and the expected year start balance. Filing Error 1 - There appears to be a minor typo to the effect of $4.86 in the end of year balance for the 2004 document. It appears that Part I, Line 18 has been summed incorrectly. $32,445.76 is listed, but the expected result is $32,450.41. The Part II balance sheet calculations which agree with the error so the source of the error is unclear. The start of year balance in 2005 reflects the expected value so this was probably just a typo in 2004. The following year's reported start of year balance does not contain the error. Filing Error 2 - The 2006 document reports a year start balance of $95,105.00 when the expected year start balance is $165,284.00, a discrepancy of $70,179.00. This amount is close to ...

Neuropathy is a broad category of non-motor symptoms of Parkinson's disease (PD), basically resulting from damage or dysfunction of one or more nerves. It typically may result in numbness, tingling (“pins and needles”), pain, or weakness in the area served by the specific nerve or nerves. Some pain sensations may be sharp, burning, or throbbing. According to the Cleveland Clinic, about 25% to 30% of Americans will be affected by some degree of neuropathy over their lives, especially as they age. Common risk factors are diabetes, metabolic syndrome, heavy alcohol use, as well as tasks requiring repetitive motions. Neuropathies frequently start in the hands or feet but may occur in other body sites as well.   Neuropathy occurs more frequently among people with PD compared to those without PD, and the reasons are not entirely clear. PD itself may be a factor in neuropathy, and levodopa may contribute to lower vitamin B12 levels, leading to neuropathy. However, not all neuropathies experienced by people with PD are necessarily part of the disease or its treatment, so it is important to have a good medical work-up to determine the cause of the symptoms, some of which may be treatable.   Nurse Practitioner Ellen Walter, MSN, CNP works in the Movement Disorders Section of the Center for Neurological Restoration at the Cleveland Clinic in Ohio, a Parkinson's Foundation Center of Excellence. In this episode, she identifies the general kinds of neuropathies and then focuses on peripheral neuropathies and why it is important to try to identify their causes as a possible path to treatments.

When people think of Parkinson's disease (PD), they often think of tremor, possibly because that is how the multi-talented English surgeon James Parkinson first described the disease in the early eighteenth century. In reality, tremor does not have to be present to receive a PD diagnosis. About 70% of people with PD experience this symptom sometime during the course of their disease, mainly affecting their hands and usually when the hands are at rest. Other sites of tremor are the lower lip, jaw, and leg. Obviously, tremors can interfere with daily activities, especially ones requiring fine motor control, such as shaving, dressing, writing, and various hobbies.   Several drugs can control tremor, with levodopa being one of the most effective. If levodopa alone is insufficient, it can be combined with other anti-Parkinson's medications. Beyond drugs, various other treatments are available, including deep brain stimulation and focused ultrasound. But not to be forgotten, exercise is as important as medication, and stress management can be beneficial. In this podcast episode, movement disorders neurologist Dr. Muhammad Nashatizadeh of the University of Kansas Medical Center, a Parkinson's Foundation Center of Excellence, discusses several ways to control tremor. Looking beyond today's therapies, one of his research objectives is to identify new treatment options for debilitating movement disorders.

Prescott Regional Opportunity Foundation (PROF), a not for profit 501(c)(3) company, has a mission to educate and execute upon the benefits of incubating, accelerating, and attracting companies to the Prescott Region and Yavapai County in order to improve average wages and decrease the average age of the workers. The first almost six months of 2021 have brought significant successes, among them are: We have attracted Mike McCormack, CEO of CP Technologies USA, to join the board of directors We signed a multi-year lease agreement with the City of Prescott for ~3500 sq ft of office space We have signed sublease... For the written story, read here >> https://www.signalsaz.com/articles/prescott-regional-opportunity-foundation-center-for-the-future-project/

Is free speech being limited? Should social media companies be held liable for speech posted on their sites?  These are some of the issues that concern conservatives with regard to "Big Tech."  In this edition of the Communicators, Kara Frederick, Research Fellow at the Heritage Foundation Center for Technology Policy, discusses how some conservatives view the future of tech policy including big tech censorship, Section 230 and related telecom issues. Learn more about your ad choices. Visit megaphone.fm/adchoices

Palliative care is a specialized model of care incorporating medical, psychological, social, and spiritual aspects, all with a goal of relieving the burdens of a serious illness. The palliative care model can well be applied to most diseases to improve the quality of life for both patients and families. A “transdisciplinary” team of a doctor, nurse, social worker, and chaplain assess patients based on their needs, not on their prognosis. Although hospice incorporates this form of care near the end of life, palliative care is appropriate at any stage of a serious illness, including right from the point of diagnosis. While it addresses physical symptoms, it also aims to minimize emotional trauma and suffering from stress and to enhance spiritual wellness throughout the course of a disease, as an additional layer of support for the patient and family.   In this second podcast of our two-part series on palliative care and hospice, Adriana Gonzalez, LCSW of the University of California, San Diego, a Parkinson's Foundation Center of Excellence, talks about the benefits of palliative care, the ongoing relationship of the care team with the patient and family, and how this form of care can specifically address the needs of people with Parkinson's disease, including their non-motor symptoms.

As Parkinson’s disease (PD) progresses into its advanced stages, symptoms can become increasingly difficult to manage. At some point, the person with PD and care partners may consider hospice services, which can optimize the quality of life for the person and the family. Whether the person resides at home, in an assisted living facility, or in a nursing home, hospice can come to them. Hospice is really part of palliative care, which aims to relieve the burden of a disease not only near the end of life but all along its course. Both the terms “palliative care” and “hospice” are often misunderstood, and certain myths surround them.   This podcast is the first of a two-part series on hospice and palliative care. In this first episode, Jessica Shurer, MSW, LCSW, Clinical Social Worker and Center Coordinator of the Movement Disorders Center at the University of North Carolina at Chapel Hill, a Parkinson’s Foundation Center of Excellence, helps to dispel some of the misunderstanding about hospice. She describes what hospice is, how it operates, and when and how to consider it. Moreover, she highlights the medical, psychological, and logistical benefits it can bring to the person with PD and to care partners.

When to consider an assisted living facility or a skilled nursing facility for someone with Parkinson’s disease (PD) is a monumental decision, raising a list of questions, including quality of the facility, location, physical layout, services, staff training and experience in caring for people with PD, financial aspects, and more. A care partner is integral in helping to research facilities and evaluate their appropriateness based on their partner’s needs and preferences. But the role of the care partner does not end there. Once a person is in such a facility, the partner can help implement best care practices, letting staff know about particular symptoms, needs, habits, and preferences of the resident, as well as advocate for them when necessary.   In this podcast episode, Joan Gardner, BSN, nurse clinician, and Rose Wichmann, PT, director of the Struthers Parkinson’s Center in the Minneapolis area, a Parkinson’s Foundation Center of Excellence, explore many of the issues that are central to choosing an assisted living or skilled nursing facility as well as ensuring the best experience once someone resides there.

Parkinson’s is a multifaceted disease, and as such, there are many ways people with Parkinson’s disease (PD) can find help, including through medications, exercise, occupational and physical therapy, dance and music therapy, and meditation and mindfulness practices. Another important way is to join a support group to share experiences, learn from peers, and express problems and emotions. Such groups are not just for the person with PD, and care partners often attend and benefit.   In this episode, Allison Allen and Anne Kosem, both licensed clinical social workers and co-coordinators of the Parkinson’s Foundation Center of Excellence at Duke University in North Carolina, talk about their experiences and relate some of their knowledge derived from their years facilitating support groups. They discuss how to find a suitable group, what to expect, and how to participate. They also offer some of the considerations for starting a group if one is not already available in an area. These days, with the COVID-19 pandemic, many groups have gone online, widening the choices by opening up possibilities for choosing groups not in one’s own geographic area.

Nutrition is a vital component of maintaining and preserving good health. It may be an especially important consideration when one has a disease or other health condition that may impose certain dietary requirements or restrictions. At the same time, the standard recommendations for good health still stand – heart healthy eating, weight control, adequate fluid intake, limiting alcohol consumption, and more. With Parkinson’s disease, dietary choices and habits can help alleviate some symptoms. For example, fluid and fiber intake may help with constipation, increasing fluid intake may alleviate orthostatic hypotension, the feeling of dizziness when standing up, and a high protein meal can interfere with levodopa absorption, leading to fluctuations in medication effectiveness. In this second of two episodes with Dr. John Duda, Director of the Parkinson’s Disease Research, Education and Clinical Center at the Philadelphia Veterans Affairs Medical Center and Professor of Neurology at the University of Pennsylvania, a Parkinson’s Foundation Center of Excellence, he tells what he recommends about diet and nutrition for his Parkinson’s patients, including when to look for organically grown produce.

A major thrust of Parkinson’s research today is exploring potential ways to slow the progression of the disease. Exercise may be one way and is recommended. Another possible approach is nutrition, although the evidence is not as solid as for exercise. Nonetheless, there is evidence that good nutrition and dietary practices can have beneficial effects for people with Parkinson’s, including lessening digestive symptoms, as well as preserving quality of life by lowering the risk of heart disease, stroke, diabetes, high blood pressure, and dementia. Improving digestive function may even improve the absorption and actions of medications. Dr. John Duda, Director of the Parkinson’s Disease Research, Education and Clinical Center at the Philadelphia Veterans Affairs Medical Center and Professor of Neurology at the University of Pennsylvania, a Parkinson’s Foundation Center of Excellence, recommends a plant-based, whole foods diet. In this podcast, the first of two with Dr. Duda, he explains what a whole foods diet is, how it differs from a standard American diet, and how people can reliably and comfortably change the way they eat.

With over 1.5 million nonprofits America, it's not surprising that many of them do similar work. There has been a push within the nonprofit sector for more collaboration and partnership, but what about taking that a step further? Holly Ivel and Gabe Cohen (both formerly of GuideStar) talk about the merge between GuideStar and Foundation Center into one nonprofit called Candid. They discuss the ups and downs of merging and what that process has looked like to them. View bios, an episode summary, topic-based timestamps, and images on our show notes: https://pj.news.chass.ncsu.edu/2019/10/10/ep-40-there-has-to-be-trust/

Ralph Smith is managing director of the Campaign for Grade-Level Reading (GLR), an initiative to mobilize communities to third-grade reading proficiency for children from low-income families. The GLR network now includes more than 300 Campaign communities in 42 states. Smith has served on the boards of the Council of Foundations, the Foundation Center, Venture Philanthropy Partners, and the Wells Fargo Regional Foundation. Recently, he retired as senior vice president of the Annie E. Casey Foundation and also served as a cabinet officer for the School District of Philadelphia. Previously, Smith taught Corporations and Securities Law and Education Law and Policy as a member of the Law Faculty at the University of Pennsylvania, during which time he also served as a senior advisor to Philadelphia's mayor. Smith led efforts to design and implement the school district's landmark voluntary desegregation plan, negotiate some of the nation's first education reform-driven teacher contracts, and develop Children Achieving, a district-wide blueprint supported by the Annenberg Challenge. In this interview, we discuss how GLR is designed to help communities create solutions for kids, the concept of accountable advocacy, the role of philanthropy and state leaders, and much more. Listen, download, and share!

After the Bainbridge Library staff march in the July 4th parade, they have a month of activities in store for us. Guide to GrantSpace: Grantseeker Resources Online: On Tuesday July 7 at 2pm. Learn about the Foundation Center's vast grant seeker resources for beginners to experts, all available from home through KRL's Funding Information Network. Registration is required. Please contact Peggy Branaman by email or call 360-779-2915, ext. 9501, or stop by and register at the Bainbridge Island Library. The 1st Friday Arts Walk at the Library will occur this month on the 2nd Friday to avoid conflict with the Independence Day Street Fair. Stop at the Library on Friday July 10, 5-7pm, to see New Works by Christine Hella Thompson. See the artist's website. What Do You Know: Knowledge Explorations Led by Community Experts. The next event is Wednesday July 22, 7-9pm. Birding with Gene: Join Kitsap Audubon Society's board member Gene Bullock as he talks about the best birding places on the island and throughout Kitsap County. The Salon - A Forum for Conversation, will occur on Friday, July 24, 1:30-3pm. This is an opportunity to discuss issues that affect us as members of society and to enjoy stimulating conversation. A short article or essay to frame the current month's topic and stimulate ideas will be posted on the Library website a few days prior to the Salon. Credits: BCB host and editor: Joanna Pyle; BCB publisher: Barry Peters.