Podcasts about cfers

Are you tired when you wake up in the morning after a normal nights sleep? Do you need to nape in the morning or afternoon?The CDC estimates that one million people in the US have Chronic fatigue Syndrome a.k.a. CFers and as many as 17-24 million people worldwide have CFS. A recent UK biobank study places that estimate at 30 million.We will discuss the commonly known and the less known causes of this serious health condition and offer real, safe and effective ways to eliminate it and get your life back again.

Are you tired when you wake up in the morning after a normal nights sleep? Do you need to nape in the morning or afternoon?The CDC estimates that one million people in the US have Chronic fatigue Syndrome a.k.a. CFers and as many as 17-24 million people worldwide have CFS. A recent UK biobank study places that estimate at 30 million.We will discuss the commonly known and the less known causes of this serious health condition and offer real, safe and effective ways to eliminate it and get your life back again.

Is Kyle Schwarber more loved across MLB fans than we realize?  Plus we give our rankings of the top center fielders to ever play with the Phillies.  Jamie Lynch, Renee, Washington, and Tyler Zulli discuss the latest around MLB and the Philadelphia Phillies.  Learn more about your ad choices. Visit podcastchoices.com/adchoices

Bean Corcoran, and Will Corcoran.  Mother and son.I met Bean Corcoran when we were doing a science and innovation campaign, and we became friends!  I learned a little bit about her son Will, who has CF.  Bean is very involved in the CF community.  She is the President of the CFF Connecticut Chapter and the Bridge of Hope Communications Director volunteer.  We did a podcast in the past about the Bridge of Hope and what they do, so feel free to go back and listen to that if you want to find out more. She is also a Patient Family Partner and Quality Improvement Leader on the Pediatric CF Care team at Columbia Presbyterian Hospital in New York City since 2017. Bean is also an artist who paints endangered animals in oils and works in pottery. Bean and her husband live with their dog Rosie.Today we're talking about Bean and her son Will. Will cannot take the CF modulator, and we discuss what it does to you mentally and physically.  Will is 26-years old and lives in Chicago. Will was diagnosed with CF at 3 months old, received a liver transplant at age 15, and is unable to benefit from modulators due to his mutations. Will does four breathing treatments a day, rarely has more than two weeks without antibiotics, and battles hemoptysis. Will has been seen at five different CF centers. He is also an advocate. He works on family advisory boards, speaks with younger CFers, and currently sits on the Adult Advisory Council for the CFF. Will enjoys time outside with his dog Stanley, watching Philadelphia sports, and works as a fundraiser for an environmentally focused non-profit.I am grateful for Bean, (which is her nickname) and to her son Will for being so honest about how CF has impacted their lives.Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website: https://thebonnellfoundation.orgBonnell Foundation email: thebonnellfoundation@gmail.comThanks to our sponsors:Vertex:  https://www.vrtx.comGenentech: https://www.gene.comViatris: https://www.viatris.com/en

Ingrid chats to CFNZ Chief Executive, Lisa Burns. They discuss what CFNZ does for CFers and their families throughout their lives and what the organisation's plans are for the future to make sure no one is left behind now that Trikafta is funded. There's still no cure, and not everyone can take Trikafta, so CFNZ want all in the community to know that they are there for everyone. Listen to end to hear an exclusive fundraiser coming up from Lisa for Sweatember! --- Send in a voice message: https://podcasters.spotify.com/pod/show/what-the-cf-pod/message

Carrie Gobble has been living past her original life expectancy with cystic fibrosis after receiving a bi-lateral lung transplant at age 27. She learned the importance of in-person mentorship for people with cystic fibrosis “CFers” from her now husband, Gary. In addition to mentoring, she is also passionate about organ donation and is grateful for the family she has found in her donor Andrew's family.    National Donor Registry: https://donatelife.net/ Andy Lipman, author of Alive at 25: https://www.cfwarriorproject.org/meet-andy/ Five Feet Apart on Netflix: https://www.netflix.com/title/80236271 Connect with Carrie: https://www.instagram.com/eyeceebeauty https://www.facebook.com/carrie.seratigobble/   Donate to the podcast: https://ko-fi.com/introducingmepodcast  Want to share your story and be a guest? Email: introducingmepodcast@gmail.com    Find all the podcast social media and more on the website: https://www.introducingmepodcast.com    Artwork: instagram.com/vashaundesigns  Music/Editing: youtube.com/colemanrowlett

Epstein-Barr Virus(EBV) a.k.a. “Mono” or the “Kissing Disease”, Cytomegalovirus (CMV), and the lessor known Adenovirus (AV) (all are forms of Herpes Virus), have been the cause of misery and suffering for decades, even centuries in people around the world. They are leading causes Chronic Fatigue Syndrome a.k.a. “Cfers” and cause a host of symptoms from severe fatigue to muscle and joint pain, well the list is very long. One method of Intravenous Ozone Therapy has been proven over the last three decades to eliminate it, permanently, completely, once and for all and even CURE it!

Epstein-Barr Virus(EBV) a.k.a. “Mono” or the “Kissing Disease”, Cytomegalovirus (CMV), and the lessor known Adenovirus (AV) (all are forms of Herpes Virus), have been the cause of misery and suffering for decades, even centuries in people around the world. They are leading causes Chronic Fatigue Syndrome a.k.a. “Cfers” and cause a host of symptoms from severe fatigue to muscle and joint pain, well the list is very long. One method of Intravenous Ozone Therapy has been proven over the last three decades to eliminate it, permanently, completely, once and for all and even CURE it!

Epstein-Barr Virus(EBV) a.k.a. “Mono” or the “Kissing Disease”, Cytomegalovirus (CMV), and the lessor known Adenovirus (AV) (all are forms of Herpes Virus), have been the cause of misery and suffering for decades, even centuries in people around the world. They are leading causes Chronic Fatigue Syndrome a.k.a. “Cfers” and cause a host of symptoms from severe fatigue to muscle and joint pain, well the list is very long. One method of Intravenous Ozone Therapy has been proven over the last three decades to eliminate it, permanently, completely, once and for all and even CURE it!

Luke Kilpatrick talks about “gitStream (Way Faster ColdFusion Git Merging)” in this episode of the ColdFusion Alive Podcast with host Michaela Light. “We'll talk about cool things you can do with Git to speed up your whole merge process using a new tool called Git stream.” Show notes What is Git? Why should all CFers […]

Ingrid chats to Eilís Moroney, the author of 'Our Baby Has 65 Roses' and mum of a little person with CF -  two-year-old AibhÍn, about diagnosis and how writing a book was her coping mechanism. Listen to the podcast for your chance to win a copy of the book, and email your answer to wtcfpod@gmail.com. You can also purchase the book here. Find out more about CFNZ here to access resources. What the CF! A Cystic Fibrosis Podcast was born out of a curiosity to learn more, support others, tell stories and share experiences while we navigate our own CF journey. Series one of the podcast will focus on diagnosis and will feature conversations with Cystic Fibrosis medical experts, CFNZ, Genetic Counselling, and more. Ingrid and Ian's story: “When our son was diagnosed with Cystic Fibrosis at six months old we were shocked and devastated. The road to diagnosis took several painful weeks. What started with kisses on salty skin soon became a persistent cough prompting many GP visits and eventually an X-Ray - the results of which opened the gates to the possibility of CF.​ From the first moment seeing his foggy little lungs, we knew this was gonna be a rollercoaster and we weren't wrong. Only a week after diagnosis we were chucked into the COVID lockdown left to digest this huge news within our wee family. The overwhelm was real, and although the team at the hospital were amazing, it was the online community of CFers and their families where we found an abundance of warmth and understanding.”​ What the CF! A Cystic Fibrosis Podcast is currently seeking funding and taking donations, 10% of which will go to Cystic Fibrosis New Zealand. For more information contact Ingrid on wtcfpod@gmail.com --- Send in a voice message: https://anchor.fm/what-the-cf-pod/message

Eddie, Henry and David are all parents of little CFers. Ian chats to these three dads about diagnosis, telling friends and family, and what NOT to say to a CF parent. Thanks again to our guests for sharing so candidly and we know it's going to help others in the community. For further info visit whatthecf.com. --- Send in a voice message: https://anchor.fm/what-the-cf-pod/message

Sophie, Kayla and Jessica are all mums of little CFers born during the pandemic. Ingrid chats to these mums about diagnosis, telling friends and family and what NOT to say to a CF parent. --- Send in a voice message: https://anchor.fm/what-the-cf-pod/message

Are you tired when you wake up in the morning after a normal nights sleep? The CDC estimates that one million people in the US have CFS and as many as 17-24 million people worldwide have CFS. A recent UK biobank study places that estimate at 30 million.We discuss the commonly known and the less known causes of this serious health condition and offer real, safe and effective ways to eliminate it and get your life back again.

Are you tired when you wake up in the morning after a normal nights sleep? The CDC estimates that one million people in the US have CFS and as many as 17-24 million people worldwide have CFS. A recent UK biobank study places that estimate at 30 million.We discuss the commonly known and the less known causes of this serious health condition and offer real, safe and effective ways to eliminate it and get your life back again.

Are you tired when you wake up in the morning after a normal nights sleep? The CDC estimates that one million people in the US have CFS and as many as 17-24 million people worldwide have CFS. A recent UK biobank study places that estimate at 30 million.We discuss the commonly known and the less known causes of this serious health condition and offer real, safe and effective ways to eliminate it and get your life back again.

The final results for the 2019 State of the CF Union survey are out. Thanks to all the CFers who filled it out this year. Discover what most developers use for tools, languages, database and development methods. Before we begin with the results, we’d like to thank everyone who participated and responded to this year’s […] The post 097 State of the CF Union 2019 Survey, with Brad Wood (in-depth analysis) appeared first on TeraTech.

Dee Sadler talks about “Design Thinking for CFers (10 tips for better apps)” in this episode of the CF Alive Podcast, with host Michaela Light. Episode highlights Design thinking Hands-on UX problem solving, human-centered, iterating loop Ideating, prototyping, development, usability testing Goes well with Agile MVP (Minimum Viable Product) vs perfect So get user feedback Design […] The post 084 Design Thinking for CFers (10 tips for better apps) with Dee Sadler appeared first on TeraTech.

Filling in for Gunnar, Somer Love returns to the podcast and joins the Salty Cysters in a chat about social media in the cystic fibrosis community. They dive into why they use social media, how it has helped CF communication and friendships, and the positive influences it has brought to all three of them. Whether you are an active member on social media, looking to start a personal or CF account, or you’re a bystander on social media & you are just now looking into branching out & making connections with your fellow CFers, this episode offers something for everyone & gives great advice on how to use social media to make it the best & most positive experience for you!

Raymond Camden talks about “Progressive Web Apps (A Gentle Intro for CFers who are scared of PWAs)” in this episode of ColdFusion Alive podcast with host Michaela Light. By our nature web developers are prone to anxiety. Episode Highlights What is a Progressive Web App (PWA) from a high level The next level from Web 2.0 […] The post 073 Progressive Web Apps (A Gentle Intro for CFers who are scared of PWAs) with Ray Camden appeared first on TeraTech.

We interview an amazing influencer in the Cystic Fibrosis community. Somer Love, aka Love to Breathe, chats with us about making a difference in the CF community. From fundraising to facetiming young CFers while they do their vest treatments. She inspires others through educational and motivational talks and speeches. An advocate not just for her own health but many others, she lives to spread awareness and love as much as she can. Rima and I giggle away in-between being in awe of this brilliant, strong, intelligent woman who is making lives better with her love and kind soul.

Nolan Erck talks about “051 Git ColdFusion Source Control (Getting Started and Best Practices)” in this episode of ColdFusion Alive Podcast, with host Michaela Light. Episode highlights: What is “source control” and when / why all CFers need it? Repository = library for your code with versions baked in For Windows, Mac, Linux dev For […] The post 051 Git ColdFusion Source Control (Getting Started and Best Practices) with Nolan Erck appeared first on TeraTech.

Luis Majano talks about “CommandBox + ForgeBox: ColdFusion Code, Package, Share, Go!” in this episode of ColdFusion Alive podcast with host Michaela Light. Episode highlights Why he created CommandBox three years ago Then there were better tools with other languages and other CFers were moving He took the lead in creating better CF tooling Tired of […] The post 044 CommandBox + ForgeBox: ColdFusion Code, Package, Share, Go! with Luis Majano appeared first on TeraTech.

Ray Camden talks about “Why Programming in Node is so Powerful (how CFers can learn)” in this episode of ColdFusion Alive Podcast with host Michaela Light. He is also one of the speakers at CFObjective Conference. In this talk, Raymond will introduce ColdFusion developers to Node.js development. This will be a high-level talk more focused on […] The post 025 Why Programming in Node is so Powerful (how CFers can learn), with Ray Camden appeared first on TeraTech.