Podcast appearances and mentions of rose reif

On season 8, episode 6 of The LowDOWN: A Down Syndrome Podcast, Rose Reif gives us the lowdown on helping people with Down syndrome process grief.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.

How do we help people with Down syndrome during times of grief and grieving?  Dr. Rose Reif, LCMHC, CRC, BC-TMH and owner of Reif Counseling Services, PLLC joined the podcast today to discuss her perspective. For more information on Dr. Reif, go to https://rosereif.com/about/. For more information on this topic, check out Dr. Reif's book https://www.amazon.com/Helping-Child-syndrome-Understand-Death/dp/B0BXN5TFCC/. Dr. Reif's recommended this resource by Fred Rogers as well https://www.amazon.com/s?k=when+a+pet+dies+by+fred+rogers&crid=2E7G8G1J0JF8M&sprefix=when+a+pet%2Caps%2C96&ref=nb_sb_ss_ts-doa-p_1_10 If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast.     

Mary talks with Rose Reif, a Licensed Clincical Mental Health Counsellor, about a topic we don't hear about too often-grief. Rose provides insight and tips on how to handle and manage the grief of our child's diagnosis. Rose talks about several things around grief-including that your grief does not mean you don't love your child and why it can be important to schedule time to be sad and so much more.  To learn more about Rose, visit RoseReif.com We apologize for Mary's mic problems at the beginning of the interview. It couldn't be fixed "in post".

Rose Reif is a therapist who helps adults with disabilities who are struggling with anxiety, depression, transitions, and other challenges - and - she counsels parents of kids with disabilities who are overwhelmed by guilt, fear, isolation, and who are finding it impossible to care for themselves. Jessica and Rose talk about the difference between burnout and compassion fatigue, and a few practical shifts that may lead us to healing from both. Find Rose at https://rosereif.comJOIN the international community of We Are Brave Together here.Donate to our Retreats and Respite Scholarships here.Donate to keep this podcast going here.Can't get enough of the Brave Together Podcast?Follow our Instagram Page @wearebravetogether or on Facebook.Feel free to contact Jessica Patay via email: jpatay@wearebravetogether.orgIf you have any topic requests or if you would like to share a story, leave us a message here.Please leave a review and rating today! We thank you in advance!

ONCE UPON A GENE - EPISODE 103 How We Can Balance and Understand the Unique Struggles We Face with Caregiver Fatigue, Compassion Fatigue and Decision Fatigue with Counselor Rose Reif Rose Reif is a therapist with over 20 years experience specifically tailored to those with disabilities and caregivers and she's back to share her knowledge about the three types of fatigue we face and how we can find more balance. EPISODE HIGHLIGHTS What can we do as caregivers when the things we're doing for ourselves aren't enough? Ask someone devoted to you and ask what they see you doing that could be delegated to someone else. Usually it's not the things you're doing for yourself that's a problem, but it's the things you're doing to maintain everyone else. While we as humans like routine, we also get bored easily, so consider if the things you're doing for yourself aren't fulfilling or valuable anymore.  How do you handle potentially negative feedback if you get it? I encourage people to think of their lives as a compelling story where they're the hero. If we think of all the heroes we love, the characters have a guide and every hero needs a guide and truths along the way. Remember there's a reason you've gotten to the point you are where you're burned out and tired and acknowledge the greatness of having people in your life who speak honestly and make suggestions.  Can you explain what self care is? It's not the weekend mountain retreat doing yoga. Self care is boring. Self care is sitting down and doing a budget at the beginning of the month so you have accountability, can make wise decisions for yourself and avoid money stress through the month. Self care is brushing your teeth, making yourself doctor's appointments and committing to little acts through the day to care for yourself.  What is compassion fatigue? Compassion fatigue is when you experience a secondary traumatization, spending so much time with people who have gone through traumatic events that a person inherits the trauma experience. Compassion fatigue has physical ramifications in overall health and has a physical drain on the body. Compassion fatigue leads to an experience of trauma responses, dis-associating and going numb, losing the ability to care. Compassion fatigue is being newly studied in parents raising disabled kids. Can you describe Decision Fatigue? It has more to do with the decision maker and their wellbeing than the decision at hand. I encourage people to pre-make decisions and find ways to cut down on how many decisions you have to make in a day, especially where big decisions may be ahead. RESOURCES MENTIONED ONCE UPON A GENE - EPISODE 027 - Therapy Check-in with Rose Reif Taking Care with Rose Reif on The Disorder Channel Reif Counseling Services TUNE INTO THE ONCE UPON A GENE PODCAST Spotify Apple Podcasts Stitcher Overcast CONNECT WITH EFFIE PARKS Website Twitter Instagram Built Ford Tough Facebook Group Once Upon a Gene on Clubhouse

RARE MAMAS RISING - EPISODE 5 Lighting the Way with Once Upon Gene Podcast Host & Rare Mom Effie Parks   When Effie's son Ford was born with an extremely rare genetic condition called CTNNB1 syndrome, not only did she dive into the world of advocacy, but she launched the Once Upon a Gene podcast, a podcast that explores the world of raising children with disabilities and rare genetic disorders. Effie also hosts the Once Upon a Gene TV show on the Disorder Channel. In this episode, we discuss the challenges parents face on the rare disease road and Effie offers ideas and tips to light the way.   EPISODE HIGHLIGHTS   Can you tell us about your son Ford and tell us a bit of your story? When Ford was born, he had a really low birth weight and feeding issues. After 3 months, our pediatrician said, “I'm worried about Ford; you need to take him to Children's.” We heard words like failure to thrive, hypotonia, microcephaly, and we left with an NG tube. We got connected with a geneticist. They said it was CTNNB1, and there were 30 kids in the world with it.   How did your experience lead you to create the Once Upon a Gene podcast? In the beginning, feeling like nobody knew what I was going through and feeling so isolated. I found some comfort in a couple of podcasts, The Two Disabled Dudes being my main one. I was so inspired by what they were doing, and I noticed it was healing me and relaxing me, and it was giving me so much hope. I was so incredibly thankful, and ultimately, I wanted to do the same thing for someone else. I knew it was a piece of my purpose.   What are some of the common challenges you hear people up against? Self-care is such a big one. It can be confusing, intimidating, and overwhelming. I draw four oxygen tanks and put something in each one that I have to do each day, no matter what. I learned box breathing, and that was life-changing to learn. Check out Rose Reif, a therapist for people who have disabilities and their caregivers. She teaches that self-care is the small, consistent things that you make habits that you do every single day no matter what.   What is another pain point you hear from parents? Feeling alone, feeling isolated, feeling misunderstood. That's when people start to look for books, podcasts, blogs, and following advocates to feel less alone.  Find what makes you feel warm and gives you energy. Go find your people. We can't do this alone.   What about Inclusion? What tips do you have to help others include our children?  You have to create boundaries for yourself. It's a muscle that we have to work. We should come at it with the intention of grace and educating, and just being kind. I'm always trying to get Ford involved. There's a resource called the Friendship Circle that is all over the country, and I highly recommend it.   What other pain points? We are talking about money a lot and how expensive our life is.  The Disorder Channel and I just did an episode on the financial stuff. There are groups on Facebook in your neighborhood, and there are sites for parents like you who swap equipment or give away extra supplies or old equipment. I highly recommend finding those groups to take a little bit of the burden of paying for some of this stuff off your shoulders.   Any parting words to our listeners, mama to mama? Accept all of your emotions. They're valid. Notice them. Work through them and let them go. Keep moving and find hope anywhere you can. Find whatever your purpose can be from this to help someone else. Once you can find a glimmer of hope, don't let go of it and find out what you can do with it because there is nothing that can stop a rare disease parent.   LINKS & RESOURCES MENTIONED   https://effieparks.com/ https://www.thedisordercollection.com/ https://rosereif.com/ https://www.friendshipcircle.org/   CONNECT WITH NIKKI   Facebook https://www.facebook.com/RareMamas1/ Instagram https://www.instagram.com/Rare_Mamas/ Website https://raremamas.com/ Email info@raremamas.com

Rose Reif is a Licensed Clinical Mental Health Counselor and Board Certified in providing Telemental Health. She primarily works with "disabled adults, special needs parents, and spousal caregivers coping with anxiety, depression, and other challenges". She visited with us on the podcast last year when COVID 19 initially hit and provided us with some Mental Health Strategies on Episode 17. Today Rose sits down and chats about: 04:00 What is Anxiety and Depression? 06:00 Acknowledging your symptoms: "Powering through It" vs "Naming it to Tame it" 09:00 When is it time to seek help? 09:30 Evolution of Emotions faced by a parent of a child with developmental delay and/or disability. Discussion of Attachment Theory. 15:00 Working with your child to develop their self-esteem. 20:00 How much help to give or not to give your child? 23:00 How to communicate regarding your child's disability? 25:00 How to respond "When people say mean things about your child". Here is the link to the resource article on Rose's website which she references https://rosereif.com/someone-says-something-mean-about-your-child/ This episode is brought to you by First Citizens National Bank. --- Send in a voice message: https://anchor.fm/marsh-naidoo/message

Parents struggle to balance life, self, and relationships while caring for a child with special needs. The Trauma/PTSD that parents who are raising a special needs child experience may often go undiagnosed.  As a counselor, Rose Reif helps parents manage their trauma, she joins Osiris and Nina explains how ignoring their pain can have long-lasting effects.Produced by podCONX

Parents struggle to balance life, self, and relationships while caring for a child with special needs. The Trauma/PTSD that parents who are raising a special needs child experience may often go undiagnosed. As a counselor, Rose Reif helps parents manage their trauma, she joins Osiris and Nina explains how ignoring their pain can have long-lasting effects.Produced by PodConX

Rose Reif is a Licensed Clinical Mental Health Counselor, a Certified Rehabilitation Counselor, and a Qualified Developmental Disability and Mental Health Professional. She's also Board Certified in providing Telemental Health. Rose supports people with disabilities and the people who love them in her counseling practice in Cary, North Carolina, and also works with clients throughout North Carolina online. You can learn more by visiting RoseReif.com. We know you will enjoy this episode!

Being autistic can be really hard. Especially when societal norms are working against nuerodiverse acceptance and the common traits associated with autism. This episode looks at how to move beyond the stigma of masking, negativity, obsessions and motivation to use them as advocacy tools for a more neurodiverse culture. For this episode Kim collected questions from the @journey2lomah instagram community and presented them to Rose Reif, LCMHC, CRC, BC-TMH. Rose Reif is a Licensed Clinical Mental Health Counselor, a Certified Rehabilitation Counselor, and a Qualified Developmental Disability and Mental Health Professional. She's also Board Certified in providing Telemental Health. Rose supports people with disabilities and the people who love them in her counseling practice in Cary, North Carolina. You can learn more by visiting RoseReif.com Mentioned in this Episode Fogg Behavior Model Transtheoretical Stages of Change Model Blog Post: Special Needs Parents and Corona Virus Stress Blog Post: 4 Reasons I Don’t Demand Eye Contact From Autistic Patients Related Episodes Episode 90 - Teen to Adult Transition Insights from a Self Advocate Episode 74 - Caregiver Emotional & Mental Health (w/ Rose Reif) Episode 70 - Do This Not That: Lessons from a Self Advocate Episode 61 & 62: Inclusive Housing & Social Change Episode 54: Virtual Reality Social Cognition Training Episode 04: The Caregiving, Celebrating Balancing Act  

ONCE UPON A GENE - EPISODE 032 Beyond Quarantine: Acceptance, Empathy and a Better Normal Dan DeFabio, Co-Founder of Disorder: The Rare Disease Film Festival is joining me again. He recently wrote a blog post about the connection the masses now have to the rare disease community surrounding the quarantine. A lot of families have dealt with these aspects of sheltering in and it hasn't been as unfamiliar as it's been for others. In this episode, I'm chatting with Dan about how the Covid-19 quarantine hasn't felt that different for families affected by this on a day-in and day-out basis. The isolation is familiar and real. Quarantining isn't shocking and isn’t unrelatable. EPISODE HIGHLIGHTS  You wrote a blog post that really resonated with me and I'd like to talk about that. What sparked that idea? In the early days of the shutdown, a friend posted how she was struggling and didn't know if she could get through the day and the next day. I started thinking if something in the rare disease community had prepared me for this and I realized this was new territory for everybody, but it's a little less new for anyone who has faced fatal illness, chronic illness or rare disease. Rare disease families have in some way adjusted their mental space to this reality in advance. Rose Reif said in a recent episode that the way to get through this is to lower the bar. I think it's great that you've become a lifeline to those who haven't been exposed to so much uncertainty. The way you've done this in the blog is a beautiful transformation. By now, we've all gotten used to talking about flattening the curve, and flattening the number of cases. In the rare disease mindset experience, we have another curve we've flattened, the fear of a disease or of a death. We didn't just start facing that in February 2020. We've faced it from our diagnosis day. For me, that's 10 years of the same amount of fear, spread out over 10 years. In the article, I referred to the Kübler grief cycle. I think a lot of people are stuck in anger or denial, but maybe we can come out of this with more acceptance and more of the positive attributes.  What has changed with everyone in quarantine that you hope stays around when things go back to normal? People have more time on their hands, they're maybe reflecting and reevaluating. Stress shows weaknesses, so what's not working we're able to better see. If we don't snap back fast, we can maybe take time to look at things differently and question how different they should be. We need to look at advantages and disadvantages and everyone equally. I hope all lives are worth saving and that leads to a better healthcare system where the medicine you can afford isn't the only medicine you get and where we take care of everybody. I feel like people have been forced to open up lately, that they're more vulnerable and I've seen empathy and understanding happening.  The rare disease club is a club no one wants to be a part of, but once you're in it you're in touch with people doing amazing things and they're inspiring people. Tragedy can bring out the best in people. In the midst of a global tragedy, it's bringing out the best of people and you're finding a commonality where we're all feared for our life or a loved one's life. A lot of compassion and generosity can come out of that. What further insight can you leave us with? Try to be okay with this. As it feels the worst, it won't last long. There are waves of bad times and not-so-bad times. Realize what you can let go of and be okay with it.   LINKS AND RESOURCES MENTIONED We Are All Rare Disease Families Now https://www.rarediseasefilmfestival.com/blog/2020/4/4/were-all-rare-disease-families-now How Parenting a Dying Child Changed All My Expectations https://themighty.com/2015/01/how-parenting-a-dying-child-changed-all-my-expectations/ EPISODE 027 - Therapy Check-in with Rose Reif https://effieparks.com/podcast/008-tanjs-akayy-jr78y-ja2e8-zanza-njkxy-83esr-z2wkz-kx2a4-3zgjf-9n7e6-f4dl9-34pey-khhl4-plbpy-y5jw6-w4tay-9d7t9 Dan DeFabio Facebook https://www.facebook.com/daniel.defabio.3 The Home Office https://www.facebook.com/daniel.defabio.3/videos/10159534528084606/ Your Only is My Everything - A Short Film about EDS Warriors https://www.youtube.com/watch?v=FkBD_FeAKhQ&fbclid=IwAR3fS__gRC2fgA_zWd2O-bxmzCXPs-GEY9VnJIQRciTXzO1L8khlGhYBR7E Disorder: The Rare Disease Film Festival https://www.rarediseasefilmfestival.com/ TUNE INTO THE ONCE UPON A GENE PODCAST Spotify Apple Podcasts Stitcher Overcast CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/

Rose Reif is a licensed clinical mental health counselor, located in Cary, NC. She provides invaluable strategies on how to mentally cope during the coronavirus pandemic. Rose discusses her approach to explaining the pandemic to children and offers some key takeaways. As always as part of keeping it real, we did have a gatecrasher :) during the podcast! Rose's advice from the podcast is transcribed in part, to the blog. Here is the link https://www.raisingkellan.org/quarantine-strategy-series-part-1-mental-health/ I also recommend that you read her Mental Wellness and Disability Blog at https://reifpsychservices.com/ --- Send in a voice message: https://anchor.fm/marsh-naidoo/message

ONCE UPON A GENE - EPISODE 027 Therapy Check-in with Rose Reif My next guest, Rose Reif, is a very special therapist with over 20 years of experience helping people with disabilities and their families. Imagine talking to a therapist who knows your language and the jargon you use- it's comforting to know someone like her exists. She has so much understanding and her approach to mental health for our world is gentle and insightful.  EPISODE HIGHLIGHTS Tell me about what you do and why you do it. About 17 years ago, I graduated from the University of North Carolina and I was working as a case manager in an independent living department of adults with a range of disabilities. I loved the role and work, but I found there weren't many mental health services geared towards adults with disabilities. When I recognized the need, I went back to UNC, got through grad school and started a counseling practice. I originally intended to work with adults with disabilities, but I began receiving calls from parents who wanted to see me as a parent trying to support their child. All this time later, my practice is about 50% working with adults with rare genetic orders and 50% working with caregivers, parents and siblings. If you have a disability or love someone with a disability, you're welcome.  What are some warning signs that we should be looking for to indicate we should seek professional help? Parents often say that they've pushed and pushed for a finish line that was never there. This isn't a sprint, it's a marathon. Ask yourself if something could be easier, if you can be handling things better and if you could use new skills and supports? What are some simple tools or reminders that we can use when trauma and worry becomes too consuming? You cannot pour from an empty cup. You cannot keep pushing and trying to give everything you have to everyone else, to hold it together, to be the glue for your family because at some point your cup is going to crack. Parents get stuck sometimes and I always encourage a mindset shift. It could be running, yoga, scrapbooking, watching old movies-- do something that makes you feel better. The key is to believe that it's important for you to do it every day. You likely weren't expecting this in your journey as a parent or in life, so think how you can incorporate that but also keep this trajectory going.  Is there a common thread among the adults with disabilities that you talk to that we as parents can change now? Depression at a fundamental level is being stuck in the past and anxiety is being stuck in the future and unable to focus on the moment. Among a lot of the young adults I work with, their parents tried to shelter them from making difficult decisions or having to do things for themselves. With the parents I work with, I'm a big proponent of taking little steps today to help their child be independent one day. Be intentional and think about giving your child some opportunities to do for themselves and accept that it won't be perfect. In the long run, it will give them more sense of control, confidence and self-worth. What are your top tips for parents who need to create boundaries? A lot of people feel that stress but aren't brave enough to set the boundary and be willing to miss out on something. Compassion fatigue is what we call a vicarious trauma. You are not the one injured, but you're watching someone you love go through trauma. What parents generally describe is not burnout, but it's more a feeling of not getting things right, an inability to keep up, overwhelm by what's ahead and they may feel a mix of resentment and numbness. One of the best things to do if you're feeling that way is to cut back on the amount of things you have to care about. Also, don't get hung up on whatever everyone else is doing.  For parents and caregivers, how can we bring balance into our lives? A few times per day, take five minutes to observe your natural breath. Then, focus on breathing deeper as a practice. Set alarms on your phone or put notes around the house. Find little ways to keep reminding yourself to keep a positive mindset. I wrote an article on progressive muscle relaxation, which walks you through breathing deeply and tightening and releasing your muscles in a specific order. This only takes a few minutes per day and it reduces hypertension, risk of disease and anxiety. What would you like to share with caregivers and parents who are struggling right now? Find whatever it is that gives you hope, talk with a therapist or connect with another parent and get away from the noise for at least five minutes a day to breathe deeply and not focus on anything else. We live in an age where self-care is a glossy, expensive thing that's very Instagram worthy, but that's not what self-care is. Whatever you do for self-care needs to be as consistent as brushing your teeth in the morning.  LINKS AND RESOURCES MENTIONED Reif Counseling Services  https://reifpsychservices.com/ Progressive Muscle Relaxation: A Terrific Relaxation Technique for People with Disabilities https://reifpsychservices.com/progressive-muscle-relaxation/ TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast

It takes a lot of daily energy to raise a differently wired child. Sometimes we just get through the next moment. However, it's also important to think about the future. What do you think your child's future looks like? How can you start setting them up for success now? Check out this AMAZING podcast episode where Rose Reif and I talk about the 3 things to STOP doing in order to help your child be more independent.  Hugs, Holly - The Mom/Psychologist Who Gets It LEARN MORE ABOUT HOLLY LEARN MORE ABOUT ROSE

Rose Reif is a Licensed Professional Counselor Associate, a Certified Rehabilitation Counselor, and a Qualified Developmental Disability and Mental Health Professional. I’m also Board Certified in providing Telemental Health. She helps many but specializes in offering Online Counseling to help special needs parents who wish they could just relax, enjoy the moment, and dream freely about the future, but feel drained and chained by the demands of lifelong parenting. Please read more about Rose Reif and all of her contributions to the Special Needs Population at her website, www.reifpsychservices.com. --- Send in a voice message: https://anchor.fm/therapyandtech/message

We know caregiver self care is important but we don’t do it. Why? What is the missing link between knowing what we should be doing and actually doing it? Rose Reif is the owner of Reif Counseling Services. She is a Licensed Professional Counselor Associate, a Certified Rehabilitation Counselor, and a Qualified Developmental Disability and Mental Health Professional. She is also Board Certified in providing Telemental Health. Her clients are teens and adults with disabilities and caregivers. In this episode on caregiver mental and emotional health, Kim talks about her own mental and emotional struggles and success the last 15 years as Rose identifies the missing link between knowing the importance of self care and actually taking action. Links to all items discussed can be found at Related Episodes: #51 Aching Joy with Jason Hague #43 Closet Confessions of a Special Needs Parent #26 Trauma Indicators in Individuals with Special Needs

We’re in the office, on the therapist’s couch today, talking with Disabilities Counselor, Rose Reif. Among the many therapies for our children, we often forget that counseling benefits the entire family. In today’s conversation with Rose Reif, we will cover a multitude of topics that include self-care, time management and the benefits of online therapy. […] The post ABP Episode 45: Expert Advice | How to manage your time & keep your sanity as an autism parent | A conversation with Rose Reif appeared first on Puzzle Peace Counseling.

This week Jennifer and Sara are joined by Rose Reif, a professional counselor who works with families with special needs. Rose is offering her advice for special needs families trying to choose between Walt Disney World and Disney Cruise Line. Plus an update from AllEars.Net, news from around the World, and listener celebrations!