Genetic disorder, "trisomy 21"
Episode 89: #OnTheStacks in the blu door studio with Frank Bartoli, Founder and CEO of NEPA Inclusive. As a parent of a child with Down Syndrome, Frank started NEPA Inclusive, a platform of support services that gives people with intellectual disabilities the opportunity to live an inclusive life. In this episode Frank shares why he started NEPA Inclusive, the secret to his success, and what his daughter Ellie taught him about life. Please enjoy! This episode is brought to you by blu door Financial. blu door Financial helps you save money and reduce taxes to live a fuller financial life. To learn more, visit blu door Financial at www.bludoorFinancial.com. Engage with us on social media: Instagram, Facebook, LinkedIn, or visit us at www.OnTheStacks.com.
Do you ever wonder how the unexpected shifts in our story will be used for His glory? This podcast is for you! Jeff and Terra have a life-giving conversation with Amanda Cunningham, founder of The Glory Days Co., a company that provides organizational tools for parents and caregivers of children with special needs. Amanda not only shares the gift of these resources with our audience, but she shares openly about her unexpected journey with her daughter Rory. Amanda's story reveals how God weaves everything - our story, gifts, and talents - together to create something beautiful. Amanda's daughter, Aurora “Rory”, was born with an unexpected diagnosis of Down Syndrome. The early months following Rory's birth were filled with confusion and overwhelm as Amanda attended multiple doctor and therapy appointments, while wading through the newness of becoming a stay-at-home mom of two. When looking for tools to support her in this new role as a special needs parent, she found nothing. Desperate, Amanda created an organizational system that is now The Glory Days Daily Planner - the first daily planner for children with special needs. This planner launched an entire line of products which serve parents who are living the day-to-day with a special needs child in their home. Amanda and her husband live in West Virginia with their three kids. Find Amanda at: ONLINE - www.theglorydaysco.com SOCIAL - @theglorydaysco We are grateful to you for supporting and listening! When you become a subscriber to the Living Wholehearted monthly newsletters, you'll learn more about our executive coaching, counseling, wholehearted leadership cohorts or the Dear Mattsons youtube series with @christianparenting_org. Or you can pick up one of our books, Courageous: Being Daughters Rooted in Grace and Shrinking The Integrity Gap. Our most recent resource is the Shrinking The Integrity Gap eCourse as a companion to the book. We highly recommend taking the eCourse with a mentee, mentor, or your leadership team. When you subscribe to our Living Wholehearted newsletter, you receive both FREE resources and on-going discounts. Go to livingwholehearted.com to join our community of wholehearted leaders in the home, work and community. www.livingwholehearted.com Courageous: Being Daughters Rooted in Grace Shrinking the Integrity Gap Shrinking the Integrity Gap e-Course
A new bill to recognise people with Down syndrome as a specific minority group has been proposed by former Conservative cabinet member Dr Liam Fox. The condition, caused by an extra chromosome, brings many challenges usually including a degree of learning difficulties. Actor Tommy Jessop, who played Terry Boyle in the “Line of Duty” series speaks to Today's Martha Kearney about the proposals. Also speaking to the programme is Ken Ross, who is a trustee of Down Syndrome Policy Group. (Image Credit: BBC/World Production/Steffan Hill)
We continue our Dear Younger Me series in episode 75 of the Brave Together Podcast , where seasoned moms share their stories and the wisdom they've learned over the years of parenting children with special needs. This episode, hear from Carrie Wetsch and Jessica Baer, both of whom have sons with Down Syndrome.Brave Together Podcast is sponsored by BetterHelp, an organization working to make professional counseling accessible, affordable, convenient - so anyone can get help, anytime, anywhere from the world's largest network of licensed, accredited, and experienced counselors. For a 10% discount off of your first month, visit www.betterhelp.com/wearebravetogether.Join the community of We Are Brave Together.To request an episode guest or topic, please send inquiries to email@example.comPlease follow us on Instagram: @bravetogetherpodDonate to support this podcast and We Are Brave Together!
- Adrian & Pat speak with John Mack, the owner of CrossFit All Levels in Windsor, Ontario Canada.- CrossFit All Levels opened in 2013, but in 2018 they started a special class for Adaptive Athletes.- This class originally had one member who had Down Syndrome, but has significantly grown over the years.- Adrian & Pat interview John as he shares how the program started, lessons learned as it evolved, and how it looks today.
Chris Nikic is the first person with Down Syndrome to complete an Ironman Triathlon. Today, Chris and his dad Nik share their inspirational story and why they want to help others achieve their dreams and overcome mental hurdles. --- Looking for a holiday gift idea? Order our new devotional book: "The Increase 52 Week Devotional: Inspiring Stories of Faith from the World of Pro Sports."
How do you balance a career as a professional athlete and your own desire to become a mum? Matildas and Brisbane Roar player Katrina Gorry wanted both and now she's successfully navigating returning to sport with her newborn daughter. Katrina Gorry joined the W League as a teenager. Since then she's played for teams in Japan, Norway and the United States and she was part of the Matildas team for the Rio Olympics. But the international sporting life has also taken its toll on Katrina, leaving her exhausted and battling an eating disorder. Katrina joins host Sam Squiers to discuss supporting, and being supported by, her younger brother with Down Syndrome, Dylan, the growth of the Matildas, overcoming her eating disorder through pregnancy and her decision to become a single mum to her daughter Harper. See omnystudio.com/listener for privacy information.
Erica Balint, outreach coordinator for The Alliance for Infants and Toddlers, Inc., joined the podcast today to discuss Early Intervention Services for young children. What are early intervention services and how might they benefit children with Down syndrome? Listen to find out! For more information on Early Intervention Services in Pennsylvania, go to: Early Intervention (pa.gov) The Alliance for Infants and Toddlers HOME | The Alliance (afit.org) To partner in the efforts of the Down Syndrome Center: Down Syndrome Center is fundraising for Children's Hospital of Pittsburgh Foundation (justgiving.com)
How would react if you were given a diagnosis you weren't expecting? What if it was for your unborn child? Today Jen O'Hara shares her experience with her son Will receiving a neurodivergent diagnosis of Down Syndrome. Later in the episode Dean and I share how we aim to create an environmnet where our children don't fear others, and lead with acceptance.. Stick around for my 3 favourite things for the week! Thank you for being here! Explore my shop: http://www.hellofriendo.com Thank you Jen for your contribution to Friendo. Follow along on social: Instagram @hellofriendoshop Instagram @amandamuse Twitter @museamanda Facebook /museamanda YouTube AmandaMuse Advertising Inquiries: https://curiouscast.ca/advertise-with-us/ See omnystudio.com/listener for privacy information.
John's Crazy Socks is a father-son venture inspired by co-founder John Lee Cronin, a young man with Down syndrome. John's affinity for crazy socks paired with his love of making people smile made our mission clear: we want to spread happiness. We have a social mission and a retail mission, and they are indivisible. We want to show what is possible when you give someone a chance. Every day, we demonstrate what people with intellectual disabilities can do. And we believe in giving back: we donate 5 percent of our earnings to the Special Olympics as they've played a vital role in John's development. We continue to expand our charity partners by offering and creating socks with specific “awareness” themes, such as our Autism Awareness Socks and Down Syndrome Awareness Socks.
South Side native Nate Simon launched 21 Pineapples, a company that sells Hawaiian shirts, to spread awareness of the capabilities of people with different abilities. The shirts sold out in a week, and now Nate and his mom Holly have big dreams for their family and community. Host - Jon HansenReporter - Maia McDonald
The Avis family is on a mission to create a more inclusive world with an emphasis on shifting the Down Syndrome narrative. Heather Avis is a shouter of worth and narrative shifter. As an author, podcaster, speaker, influencer, and dedicated wife and mom she is on a mission to make a more inclusive world in which everyone can belong. Learn more about their work at www.heatheravis.com/ Purchase their books HERE Follow on Instagram @TheLuckyFewOffical ________ Follow along and learn more about Finding Family at www.findingfamilypodcast.com Follow Julie on Instagram HERE and Chris HERE --- Send in a voice message: https://anchor.fm/finding-family/message
(Trigger warning: infant loss, heart defect). Thanks for joining us this week as we discuss a heavy topic: organ transplant discrimination in the Down syndrome community. This topic was born out of a recent tragedy with the passing of Zion Sarmiento, who was born with DS. Zion passed away on October 8th, just a week shy of 4 months old, after being denied a heart transplant by multiple hospitals. And the reasons they were denied are heart breaking. The truth is that many medical professionals, and society as a whole, do not see the worth and value of people with Down syndrome. But thankfully, the National DS Society is working hard to change that. And today, we're telling you all the ways to take action, how to support Zion's family, and what we can do everyday to shift the narrative. Our thoughts and prayers are with the Sarmiento family. -- Read the article about Zion Sarmiento from livenation.org Check out the Facebook page: Zion's Army Learn more about the topics discussed today: Nondiscrimination in Organ Transplantation Laws & Toolkit from the National DS Society Click HERE to take action! Read the article: Lawmakers introduce federal legislation to prevent organ transplant discrimination LET'S CHAT Email firstname.lastname@example.org with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email email@example.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support
Having an Autistic child or one on the spectrum can be the toughest on the mothers. That's why in today's episode Michelle s interviewed the Founder of Differentbrains.org Hackie Reitman. Hackie started to research more about different brains when his daughter was diagnosis with Autism later in life. Being a retired orthopedic surgeon, heavyweight boxer, film maker, author and philanthropist, Hackie decided to research the various differences in our brains. When he realized that most fields dealing with different types of brains from Autism, ADHA, Down Syndrome, do not share their research, Hackie has been on a mission to change that. You will also learn about the wonderful work they're doing at Differentbrains.org hiring interns to learn various skills and help them get jobs to have a more independent life.
Francie Todd joins Crystal and Ellen to tell her family's powerful story following the diagnosis of down syndrome for one of her sons. Fancie has fraternal twins, one typical and one with down syndrome. She is on the show this week to share her journey with IVF, duodenal atresia with baby A, and the struggles she and her family faced following delivery. In this episode you will hear: What it was like to have a baby in the NICU at the start of the pandemic. How to transition to home with a newborn while having one baby still at the hospital. What life was like in the early days and how Francie and her husband got through it. Emergency surgery and the threat of a hysterectomy. Francie also talks about a very vulnerable moment and a turning point for her and Hall. She found a determination to get through whatever life threw at her—finding a new normal and finding the beauty in the journey. This is an episode you won't want to miss. Truly an incredible story and we are honored Francie came on the show to share it! About Francie Todd: I am a wife, mom, and CRNA. My family lives in Greenville, SC. I have fraternal twin boys, Hall and Barrett. Hall was diagnosed with Down Syndrome shortly after birth, while Barrett is typical. The boys are now 16 months old and quite busy. Although our journey is different than what we imagined it would look like, it has been an amazing journey. Resources mentioned in this show: Bloom by Kelle Hampton Babies with Down Syndrome: A New Parents' Guide by Susan Skallerup A Parent's Guide to Down Syndrome by Jen Jacob and Mardra Sikora IG: fmtodd KIND (Kids Including & Nurturing Differences) - “Hoping we can make a difference in a few kids and letting them know that differences are ok” Francie Todd on her nonprofit KIND. http://kindoftheupstate.org/ Follow the hosts on Instagram - @mslacilea @ellenlauletta @stl_injector Email: firstname.lastname@example.org Or you can leave us an audio message that could air on a future podcast episode! Send a voice message to Scrubcapsandsippycups Facebook: Scrub Caps and Sippy Cups Instagram: @heysmartmommas Twitter: @heysmartmommas If you loved this episode, found value, or just loved hanging out with us, please head over to Apple Podcasts and leave us a review!
I received the latest installment of Sigma Comics title, Calico #3. If you want to get caught up on the whole series you can watch my review of Issue #1 and Issue #2 Humans have superheroes. Animals don't. That is they didn't until now! The title character, Calico, has some high powered backers in his pursuit to seek vengeance against those that have wronged animals. The first two issues gave us a high level view of the world of Calico. Issue three takes us in closer for some more detail. They start to paint the Calico picture with more color and different brushes. We are introduced to one of the big Kingpins on New York, who just happens to have Down Syndrome. We meet up with a gang of thieves who are all little people. There is also an ally of Calico that has had both legs amputated, but can still shred on a skateboard. That's a lot of diversity, but it does NOT feel forced. They feel like they belong in the story rather than a gimmick. I love how they fit seamlessly in the story. I found them so interesting, I'd love to see them get their own series after Calico finishes up with issue #8. As careful as Calico is, he has the attention of a clandestine group. Issue #3 ends with that group making contact with Calico. We will have to wait for a future episode to see if this group's intents align with Calico's or if they will become an obstacle in his path for Animal Vengeance. SUBSCRIBE to watch more videos like this one! LET'S CONNECT! -- Talk Nerdy to Me Facebook -- Zia Comics Facebook -- Zia Comics Twitter -- Zia Comics Instagram -- Talk Nerdy to Me website -- Zia Comics website LISTEN TO OUR PODCAST! - iTunes - RSS Feed - Stitcher - Google Play - Podbean - Spotify - Tune In/Alexa - Pandora #ziacomics #calico #hhgerman #sigmacomics
0:00 - Dan & Amy touch on the state of coaching in high school sports 10:22 - Dan & Amy lay out their case for Glenn Youngkin 29:19 - Dan & Amy speak with Dr. Jeffrey Steel, who's daughter Sofia has Down Syndrome and was forced to wear a mask by her school. DONATE HERE TO SOFIA'S RIGHTS FOR LEGAL EXPENSES –givesendgo.com/SofiasRights. Join the movement – stopmaskingkids.com 46:24 - Bill Maher to Sen Coons: “the pandemic is over” 01:02:37 - Lt. Col. James Carafano, Vice President of the Kathryn and Shelby Cullom Davis Institute for International Studies at The Heritage Foundation, explains the role governments should play in the supply chain. Purchase Jim Carafano's book, Brutal War: Jungle Fighting in Papua New Guinea, 1942, here 01:33:30 - US Senator from WI, Ron Johnson, discusses Biden's falling poll numbers, COVID and CRT. Follow Senator Ron Johnson on twitter here 01:47:10 - Audio: St. Louis Mayor Tishaura Jones and KC Mayor Quinton Lucas in St. Louis to “work on” peace 01:49:56 - Joel Zinberg, M.D., J.D., senior fellow at the Competitive Enterprise Institute in Washington D.C. and an associate clinical professor of surgery at the Mount Sinai Hospital in New York, explains why Joe Biden can't mandate vaccinations.Read Dr. Zinberg's article here See omnystudio.com/listener for privacy information.
Trisomy 21, or Down Syndrome, is the most common chromosomal abnormality in live births. Some of the most common issues associated with it are cardiac defects, intellectual disability and low muscle tone. Overall, prognosis has come a very long way in the past few decades. Follow us on Instagram @yourekiddingrightdoctors Our email is email@example.com (This isn't individual medical advice, please use your own clinical judgement and local guidelines when caring for your patients)
This is the 77 episode of PILLARS -- and sometimes the number doesn't pop because I like Roman Numberals, which can be helpful. While processing this podcast, it donned on me that Dave Flynn's number was 77. That might say it all. This is Tribute Season and for the last 8 years Erin and Brendan have thrown the experience that is Tribute 21 to raise awareness and money for Down Syndrome. Erin and Brendan have done this to the tune of over half-million dollars -- with everything going exactly where it needs to go -- 26 different non-profits dedicated to improving the lives of Down Syndrome.Erin talks with courage and conviction about Flynn and I try to keep up. Thanks, Erin, for being you and inspiring us all. https://www.tribute21.org/https://www.youtube.com/watch?v=Biex1XR_mpohttps://www.facebook.com/watch/?extid=CL-UNK-UNK-UNK-IOS_GK0T-GK1C&v=10156969708563132The world kneels before love — it is in awe.PS — 77 is a coincidence?!
On this MADM, Kelly Johns with Down Syndrome Alabama is sharing her thoughts on the community coming together for their Step Up for Down Syndrome Walk and misconceptions about individuals with Down syndrome. I hope you will listen and share. Sponsor: Alabama Music Hall of Fame
Hello Friends! This week we continue our series on dealing with the hard things in life. Whether it is the pandemic, a health issue, or a parenting challenge, we are ALL going through something. In this episode, I sit down with my new friend, Amanda Cunningham, special needs mom and owner of Glory Days Co. Since October is Down Syndrome Awareness Month, We talk about Amanda's journey, the unexpected Down Syndrome diagnosis of her daughter, and how she created a business while trying to manage the overwhelm as a new special needs mom. Amanda Cunningham is the founder of The Glory Days Co., a company that provides organizational tools for parents and caregivers of special needs children. Amanda's daughter Aurora “Rory” was born with an unexpected diagnosis of Down Syndrome. Amanda and her husband live in West Virginia with their three kids. Listen in to learn more about : Amanda shares the journey of Rory's birth and all the emotions that came along with that. Debunking the myths around why Down Syndrome is such a dreaded diagnosis Ways to support those who are raising a special needs child and how to serve them well Why she created the Glory Days planner and how it helps manage all the chaos of doctor visits, therapy appointments, and more. Want to connect with Amanda: Website- www.theglorydaysco.com Instagram- @theglorydaysco Resources Order your Glory Days Planner Today! with
The Renegade Twins are your NEW Mission Pro Wrestling Tag Team Champions of the World! Listen as Charlette and Robyn open up about how it feels to win their first championship, the various Veterans in Pro Wrestling who have helped train them, reflection on their supportive Parents and Rock Star Brother, what it's like having 5 dogs including one that has Down Syndrome and much more. The Renegade Twins also make it clear they expect to make a big splash together all over the Wrestling World including CCW and AEW. This is one conversation you won't want to miss! AXS TV's Katie Daryl drops by to discuss season 4 of her hit tv series The Top Ten Revealed on AXS TV! Katie shares her secret to her staying power including her 20+ year career at AXSTV, who's music would be playing if her life had a soundtrack and her trademark Curly Hair. Katie also opens up about how her wonderful Husband has been a key thought partner as she's continued to share her creativity with the world. Make sure you tune in to The Top Ten Revealed every Sunday 8pm EST starting October 31st on AXS TV!! *Check out this episode and more by visiting the Duke Loves Rasslin podcast page on iTunes, Spotify, iHeart Radio App, Youtube and other leading podcast apps!*Support this show http://supporter.acast.com/dukelovesrasslin. See acast.com/privacy for privacy and opt-out information.
Dr. Stephanie Santoro with the Mass General Down Syndrome Program joined the podcast to discuss a relatively newly recognized condition called by several names including Unexplained Regression in Down Syndrome (URDS), Down Syndrome Disintegrative Disorder (DSDD), or Down Syndrome Regression Disorder (DSRD). Dr. Santoro will discuss the signs of the condition and the treatment options currently being found to be helpful in the latest research. More Information https://www.nature.com/articles/s41436-019-0706-8 Does My Loved One with Down Syndrome Have This Condition? Check Out This Regression Checklisthttps://static-content.springer.com/esm/art%3A10.1038%2Fs41436-019-0706-8/MediaObjects/41436_2019_706_MOESM2_ESM.docx Find a Regional Down Syndrome Center Near You Down Syndrome Clinic Listing | National Down Syndrome Congress (ndsccenter.org)
“When disability ministry starts to take hold in the heart of a church, it's like hitting the refresh button on the gospel in that church.” Have you considered how including people with disabilities might positively impact your church's culture? Stephanie Hubach is on the podcast to share the importance and value of including everyone in ministry.Stephanie is a research fellow in disability ministries at Covenant Theological Seminary and visiting instructor in the seminary's educational ministries program. Previously she served as the director of Mission to North America's Special Needs Ministries. She is also a speaker and author of a new devotional called Parenting and Disabilities: Abiding in God's Presence.People of all abilities have spiritual gifts to offer at your church. Listen as Stephanie talks about the importance of building a social ramp so that even gifts that are packaged differently can be employed in the body of Christ. As we're saturated in the gospel and develop more of a biblical worldview, we will look expectantly for God-given gifts in other people, including those with disabilities. Learn how you can encourage people of all abilities to be full participants in the body and life of your church!Resources:Follow Stephanie on FacebookOrder Parenting and Disabilities: Abiding in God's Presence and Same Lake, Different BoatExplore all of Joni and Friends' Church Training ResourcesWatch Joshua's Story Questions or comments? Email Crystal at firstname.lastname@example.orgSupport Joni and Friends to help make this podcast possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Join us in answering the call in Luke 14:21-23... until his house is full! Founded by author and international disability advocate Joni Eareckson Tada, the ministry provides Christ-centered care that serves needs and transforms hearts through Joni's House, Wheels for the World, and Retreats and Getaways. Joni and Friends also equips individuals and churches with disability ministry training and provides higher education courses and internships through the Christian Institute on Disability. Find more encouragement through Joni's radio podcast, daily devotional, or by following us on Facebook, Instagram, and YouTube.
We may know of someone with Down syndrome, but how much do we really know about their challenges? Does our society do a good enough job of equipping them with resources? Click to hear from Casey’s Dream Owner and CEO […]
DeSantis to Pay Police Out-of-State Police to Come to Florida | Biden Builds $455K Fence Around Beach House | School CAUGHT Tying Mask to Down Syndrome Child's Face! | Massive Brooklyn Bridge Protest Against Mandates Please Support me here https://www.patreon.com/join/JoeySalads This is the Joey Saladino show where Joey goes over everything in the news. This is a Republican / Conservative News Commentary show. See omnystudio.com/listener for privacy information.
The man... the myth... the legend... ARIK ANCELIN! Arik has many passions, but his favorite is definitely creating music! Arik has 1.5 million followers on Tik Tok and just recently went on tour!! I asked Arik if he ever gets nervous on stage and he said, "No, I'm a natural performer". This dude grinds everyday, and is proof anyone can chase their dreams. Arik and I️ talk about haters, fame, new music, and more. I️ think you guys are gonna enjoy this one! Thanks again Arik! RIP Juice World! (Arik's favorite rapper) I️nstagram: arik_the_rapper Tik Tok: akamrstealyourgirl Spotify and Apple Music: Arik Ancelin
Terah Belle is the mother of a very special little girl named Indy Llew, who stole the hearts of thousands of people across the globe. Indy was born with down syndrome in May of 2016, and although it was a scary and unexpected diagnosis at first for Terah, she says it turned out to be the best thing about Indy. Terah shares what it's like to have a daughter with down syndrome, and then what it was like watching Indy go through chemotherapy to stop early stages of Leukemia, only to have it return later and her to fight cancer for a second time. Indy's earthly life ended far too early, in June of 2021 just after her 5th birthday, but her story and her light and joy and courage continues to inspire and touch the lives of thousands of people. This interview felt like a sacred gift, a tender and raw and heart-felt journey between a mother and a daughter. Terah shared with me so many miracles and tender mercies and little ways that she sees Indy all the time in her life, and I felt the warmth and truthfulness of that as we talked about her sweet Indy. I wish we could've had Indy speak today too, but this next sound clip will give you a tiny piece of the magic of Indy Llew. This week's episode is sponsored in part by Ana Luisa Jewelry. Treat yourself and your loved ones to beautiful sustainable jewelry. Go to shop.analuisa.com/mintarrow and use code MINTARROW for 10% off. This episode is also sponsored by Away. Start your 100-day trial and shop the entire Away lineup of travel essentials, including their best-selling suitcases, at awaytravel.com/mintarrow. Time Stamps: [01:10] - Listen to this next sound clip that gives you a tiny piece of the magic of Indy Llew. [04:08] - Terah Belle shares the moments right after Indy Llew's birth when she learnt of her daughter having Down syndrome. [06:10] - How long did it take for Terah and her husband to accept the Down syndrome diagnosis? [08:44] - Terah talks about the travel adventures of mommy, daddy, and joyful Indy Llew. [10:57] - Why did Terah get the feeling she needed to share the story of Indy Llew as the family developed on this journey? [13:12] - These were the first signs that there may be more going on with Indy Llew. Terah shares her thoughts about the red flags she noticed. [15:12] - After moving to a new location for Indy Llew's health, Terah says Indy Llew showed signs of Lukemia. [18:08] - Terah describes the back and forth of trying to confirm Indy Llew's cancerous diagnosis. [20:33] - What did the family do to make the hospital like a home? [22:20] - Terah talks about the blessings and pleasant surprises in the middle of Indy Llew's journey. [25:01] - What kind of big sister was Indy Llew after Terah gave birth to new baby girl Birdy? [27:34] - Terah and her family are very intentional about protecting Indy Llew's presence and memory. [29:33] - Terah agrees that the ones who are no longer with us on Earth are able to be present with us in a whole new way. [31:17] - Terah recaps the two years before Indy Llew's passing and describes the sequences of events that no one could predict. [34:04] - What happened when a seemingly successful transplant procedure took a turn? [35:42] - Terah says this was the moment she realized Indy Llew had one foot on either side of life. [37:58] - People pulled together to support Indy Llew and her family. Terah describes the miracle her daughter experienced as others kept Indy Llew in their thoughts. [39:59] - Indy Llew became a light for others during the global pandemic. [42:42] - Terah talks about the shock of a drastic turn in Indy Llew's health. [45:14] - Listen to Terah share the mindset behind a tough decision right before the final moments of spending time with joyful Indy Llew. [48:13] - What moments made Terah feel less alone? How did Indy Llew's story impact people who followed her journey? [50:58] - Here is the ultimate reason Terah shares the legacy of Indy Llew. [52:39] - Remember, the veil between either side of life does not separate us as much as we think. Terah says her journey with her family brought her closer to heaven. [55:10] - The journey of Terah and her family continues. Supporting Resources: Instagram @terahbelle Facebook @terahbelle Terah Belle
Bagi Carys Mihardja menghargai karya seni anak-anak dengan Downs adalah penting untuk menghargai orang yang terlahir dengan kromosom extra tidak butuh dikasihani tapi dianggap setara dengan orang lain umumnya. Tamu kita kali ini punya gagasan untuk membentuk Carys Cares, sebuah inisiatif untuk menyorot kemampuan para seniman dengan Down Syndrome yang terkumpul dalam group POTADS -- Perkumpulan Orang Tua Anak Downs Syndrome. Carys menggunakan gambar seniman dengan Downs sebagai design untuk tas, kipas, gelas, masker yang kemudian dijual dan keuntungannya disumbangkan ke POTADS. Merchandise Carys Cares ini sedemikian populer diperjualbelikan di toko-toko online dan juga di SOGO retail stores di Jakarta. Ceritanya tidak kekurangan semangat dan niat baik untuk membantu sesama. Untuk informasi lanjut bisa diikuti IG @carys.cares --- Support this podcast: https://anchor.fm/jandabecanda/support
"[The Russian Emperor's] power is more far-reaching than God's, for God makes only the future, while the Czar remakes the past." -Prince Peter Koslovsky Any company which says "Safety is our #1 priority" is lying. Down Syndrome goes up after 35, says the Mayo Clinic website. No, Down Syndrome goes up always. Nothing remarkable about 35. “[They were] lies only by implication (the most effective kind, not only because they can be disavaowed when exposed, but because the implicit is always more effective than the explicit.” -Theodore Dalrymple
It's hard to imagine that schools would discriminate against students with disabilities, but Saadia Qureshi leaves us breathless as she discusses her fight to obtain inclusive education for her daughter with Down syndrome. The system is not designed to help our disabled students succeed, and the “separate but equal” model is anything BUT.Learn not just about the emotional weight of a diagnosis without community or medical support, but how we can do better by insisting on equity in our educational settings. We pay for them, so they may as well serve us and our kids! Links:Follow Saadia on IG: @ketomuslimmomEmail Saadia: email@example.comGet involved with advocacy work for Down syndrome: https://www.ndss.org/programs/national-advocacy-public-policy/Find a Buddy Walk near you: https://www.ndss.org/play/national-buddy-walk-program/ Web: www.mommyingwhilemuslim.comEmail: firstname.lastname@example.orgFB: Mommying While Muslim page and Mommyingwhilemuslim groupIG: @mommyingwhilemuslimpodcastYouTube: https://www.youtube.com/channel/UCrrdKxpBdBO4ZLwB1kTmz1w
How do you handle stressful situations? Everyone's built a little different — some people can take their hits on the chin and come out smiling. But not everyone can take those hits. The pandemic has taken its mental toll on so many people. Others might still be struggling with past traumas and dealing with anxiety. Their situation keeps them in a state of constant worry and hypervigilance. That state of mind doesn't only harm their mental and emotional health — it can make them sick and more prone to physical diseases. More than ever, it's time to begin mental healing from past traumas, so we can better cope with our daily stresses. Dr Don Wood joins us again in this episode to talk about the TIPP program and how it facilitates mental healing. He explains how our minds are affected by traumas and how these can affect our health and performance. If we want to become more relaxed, we need to learn how to go into the alpha brainwave state. Since mental healing is not an immediate process, Dr Don also shares some coping strategies we can use in our daily lives. If you want to know more about how neuroscience can help you achieve mental healing, then this episode is for you. Here are three reasons why you should listen to the full episode: Learn how trauma can put you in a constant state of survival and affect your performance and daily life. Understand that it's not your fault. Achieving mental healing will require you to learn how to go into an alpha brainwave state. Discover healthy habits that will keep you from entering survival mode. Resources Gain exclusive access and bonuses to Pushing the Limits Podcast by becoming a patron! A new program, BOOSTCAMP, is coming this September at Peak Wellness! Listen to other Pushing the Limits episodes: #183: Sirtuin and NAD Supplements for Longevity with Dr Elena Seranova #189: Understanding Autophagy and Increasing Your Longevity with Dr Elena Seranova #199: How Unresolved Trauma Prevents You from Having a Healthy Life With Dr Don Wood Check out Dr Don Wood's books: Emotional Concussions: Understanding How Our Nervous System is Affected By Events and Experiences Throughout Our Life You Must Be Out Of Your Mind: We All Need A Reboot Connect with Dr Don Wood: Inspired Performance Institute I Facebook I LinkedIn Get Customised Guidance for Your Genetic Make-Up For our epigenetics health programme, all about optimising your fitness, lifestyle, nutrition and mind performance to your particular genes, go to https://www.lisatamati.com/page/epigenetics-and-health-coaching/. Customised Online Coaching for Runners CUSTOMISED RUN COACHING PLANS — How to Run Faster, Be Stronger, Run Longer Without Burnout & Injuries Have you struggled to fit in training in your busy life? Maybe you don't know where to start, or perhaps you have done a few races but keep having motivation or injury troubles? Do you want to beat last year's time or finish at the front of the pack? Want to run your first 5-km or run a 100-miler? Do you want a holistic programme that is personalised & customised to your ability, goals, and lifestyle? Go to www.runninghotcoaching.com for our online run training coaching. Health Optimisation and Life Coaching If you are struggling with a health issue and need people who look outside the square and are connected to some of the greatest science and health minds in the world, then reach out to us at email@example.com, we can jump on a call to see if we are a good fit for you. If you have a big challenge ahead, are dealing with adversity, or want to take your performance to the next level and learn how to increase your mental toughness, emotional resilience, foundational health, and more, then contact us at firstname.lastname@example.org. Order My Books My latest book Relentless chronicles the inspiring journey about how my mother and I defied the odds after an aneurysm left my mum Isobel with massive brain damage at age 74. The medical professionals told me there was absolutely no hope of any quality of life again. Still, I used every mindset tool, years of research and incredible tenacity to prove them wrong and bring my mother back to full health within three years. Get your copy here: https://shop.lisatamati.com/collections/books/products/relentless. For my other two best-selling books Running Hot and Running to Extremes, chronicling my ultrarunning adventures and expeditions all around the world, go to https://shop.lisatamati.com/collections/books. Lisa's Anti-Ageing and Longevity Supplements NMN: Nicotinamide Mononucleotide, an NAD+ precursor Feel Healthier and Younger* Researchers have found that Nicotinamide Adenine Dinucleotide or NAD+, a master regulator of metabolism and a molecule essential for the functionality of all human cells, is being dramatically decreased over time. What is NMN? NMN Bio offers a cutting edge Vitamin B3 derivative named NMN (beta Nicotinamide Mononucleotide) that can boost the levels of NAD+ in muscle tissue and liver. Take charge of your energy levels, focus, metabolism and overall health so you can live a happy, fulfilling life. Founded by scientists, NMN Bio offers supplements of the highest purity and rigorously tested by an independent, third party lab. Start your cellular rejuvenation journey today. Support Your Healthy Ageing We offer powerful third party-tested, NAD+ boosting supplements so you can start your healthy ageing journey today. Shop now: https://nmnbio.nz/collections/all NMN (beta Nicotinamide Mononucleotide) 250mg | 30 capsules NMN (beta Nicotinamide Mononucleotide) 500mg | 30 capsules 6 Bottles | NMN (beta Nicotinamide Mononucleotide) 250mg | 30 Capsules 6 Bottles | NMN (beta Nicotinamide Mononucleotide) 500mg | 30 Capsules Quality You Can Trust — NMN Our premium range of anti-ageing nutraceuticals (supplements that combine Mother Nature with cutting edge science) combats the effects of aging while designed to boost NAD+ levels. Manufactured in an ISO9001 certified facility Boost Your NAD+ Levels — Healthy Ageing: Redefined Cellular Health Energy & Focus Bone Density Skin Elasticity DNA Repair Cardiovascular Health Brain Health Metabolic Health My ‘Fierce' Sports Jewellery Collection For my gorgeous and inspiring sports jewellery collection, 'Fierce', go to https://shop.lisatamati.com/collections/lisa-tamati-bespoke-jewellery-collection. Episode Highlights [06:05] The Pandemic-Induced Mental Health Crisis The pandemic forced many people into a state of freeze mode, not the typical fight or flight response. As people get out of freeze mode, there will be a rise in mental health issues. Teenagers are robbed of the opportunity to develop social and communication skills during this time. [08:24] How Dr Don Wood Started Studying Traumas Dr Don's wife grew up in a household with an angry father who instilled fear. He used to think that she would be less anxious when they started to live together, but she struggled with mental healing. She had an inherent belief that misfortune always follows good things. Her traumas and fears also led to a lot of health issues. She also was hyper-vigilant, which she used as a protective mechanism. However, this prevented her from being relaxed and happy. A person's environment can dictate whether they go into this hyper-vigilant state, but genetics can also play a factor. [15:42] How Trauma Affects the Brain Trauma is caused by a dysregulation of the subconscious. If your brain is in survival mode, it will access data from the past and create physiological responses to them. These emotions demand action, even when it is no longer possible or necessary. This dysregulation prevents you from living in the present and initiating mental healing. In this state, people can be triggered constantly, which interferes with their day-to-day life. [21:07] The Role of the Subconscious Your conscious mind only takes up around 5%, while the subconscious takes up 95%. Your subconscious mind cannot tell the difference between real and imagined. In survival mode, people will keep replaying the past and think about different scenarios and decisions. You're left stuck because the subconscious mind only lives in the now. It does not have a concept of time. This process is the brain trying to protect you. [25:04] What Happens When You're Always in Survival Mode Being in survival mode will take a physical toll since it's constantly activating the nervous system, increasing cortisol and adrenaline. When you're in this state, your body and mind cannot work on maintenance and recovery. It is more focused on escaping or fixing perceived threats. Over time, this will affect your immune system and make you sick. To truly achieve mental healing, you need to get to the root cause of your problems. However, you also have to develop coping strategies to manage your day-to-day activities. [30:18] Changing Your Brainwave State Traumatic events are usually stored in a beta brainwave state. Changing your response to traumatic events starts with going into an alpha brainwave state. The beta state is usually from 15 - 30 hertz, while the alpha is lower at 7 - 14 hertz. Anything below that is the delta state, usually when you're in deep meditation or sleep. People who have trouble sleeping are usually in that beta state, which keeps processing information. It's only in the delta state that your mind and body start the maintenance phase. This phase helps not only with mental healing but also physical recovery. Learn more about Lisa and Dr Don's personal experiences with these brainwave states in the full episode! [34:30] Mental Healing and Physical Recovery Starts with the Brain Recovery is about genetics and the environment. In sleep, your mind will always want to deal with the threats first. It can only get to the delta state once it finishes processing these dangers. Your risk for developing sickness and depression rises if your brain can't do maintenance. Living in the beta state will make it difficult to focus. [41:40] It's Not Your Fault If you have a lot of trauma, you are predisposed to respond in a certain way. It's not your fault. There's nothing wrong with your mind; you just experienced different things from others. Dr Don likened this situation to two phones having a different number of applications running. Predictably, the device that runs more applications will have its battery drained faster. [44:05] Change How You Respond Working on traumas requires changing the associative and repetitive memory, which repeats responses to threats. You cannot change a pattern and get mental healing immediately—it will take time. That's the reason why Dr Don's program has a 30-day recovery phase dedicated to changing your response pattern. Patterns form because the subconscious mind sees them as a beneficial way of coping with traumas. This function of your subconscious is how addictions form. [47:04] Why We Can Be Irrational The subconscious lives only in the present. It does not see the future nor the past. It will want to take actions that will stop the pain, even if the actions are not rational. At its core, addiction is all about trying to stop the pain or other traumatic experiences. Survival mode always overrides reason and logic because its priority is to protect you. [50:57] What to Do When You're in Survival State In this survival state, we're prone to movement or shutting down completely. The brain can stop calling for emotions to protect you, and this is how depression develops. When in a depressed state, start moving to initiate mental healing. Exercise helps burn through cortisol and adrenaline. Once your mind realises there's no action required for the perceived threats, the depression will lift. [53:24] Simple Actions Can Help There's nothing wrong with you. Don't just treat the symptom; go straight to the issue. Don't blame genetics or hormonal imbalances for finding it hard to get mental healing. Find out why. Also, seek things that will balance out your hormones. These can be as simple as walking in nature, taking a break, and self-care. [56:04] How to Find a Calming Symbol Find a symbol that will help you go back into the alpha brainwave state. Lisa shares that her symbol is the sunset or sunrise, and this helps her calm down. Meanwhile, Dr Don's are his home and the hawk. Having a symbol communicates to all parts of your brain that you're safe. [59:58] The Power of Breathing Stress may lead to irregular breathing patterns and increase your cortisol levels and blood sugar. Breathing exercises, like box breathing, can also help you calm down because the brain will take higher oxygen levels as a state of safety. If you're running out of oxygen, your brain will think you're still in danger. Make sure that you're breathing well. It's also better to do nasal breathing. 7 Powerful Quotes ‘The purpose of an emotion is a call for an action. So the purpose of fear is to run.' ‘People who have a lot of trauma have trouble sleeping. Because not only is their mind processing what it experienced during the day, it's also taking some of those old files saying “Well, okay, let's fix that now. Right. Let's get that.”' ‘I was getting maximum restorative sleep. So an injury that I would have that could heal in two or three days, my teammates would two or three weeks. Because they were living in these, which I didn't know, a lot of my friends were dealing with trauma: physical, emotional, sexual abuse.' ‘There's nothing wrong with anybody's mind. Everybody's mind is fine except you are experiencing something different than I experienced so your mind kept responding to it, and mine didn't have that.' ‘That dysregulation of the nervous system. That's what we want to stop because that is what is going to affect health, enjoyment of life, and everything else.' ‘I talked about addiction as a code. I don't believe it's a disease. Your mind has found a resource to stop pains and your subconscious mind is literal. It doesn't see things as good or bad, or right or wrong.' ‘If there's a survival threat, survival will always override reason and logic because it's designed to protect you.' About Dr Don Dr Don Wood, PhD, is the CEO of The Inspired Performance Institute. Fueled by his family's experiences, he developed the cutting-edge neuroscience approach, TIPP. The program has produced impressive results and benefited individuals all over the world. Dr Wood has helped trauma survivors achieve mental healing from the Boston Marathon bombing attack and the Las Vegas shooting. He has also helped highly successful executives and world-class athletes. Marko Cheseto, a double amputee marathon runner, broke the world record after completing TIPP. Meanwhile, Chris Nikic worked with Dr Wood and made world news by becoming the first person with Down Syndrome to finish an Ironman competition. Interested in Dr Don's work? Check out The Inspired Performance Institute. You can also reach him on Facebook and LinkedIn. Enjoyed This Podcast? If you did, be sure to subscribe and share it with your friends! Post a review and share it! If you enjoyed tuning in, then leave us a review. You can also share this with your family and friends so they can learn steps to mental healing. Have any questions? You can contact me through email (email@example.com) or find me on Facebook, Twitter, Instagram and YouTube. For more episode updates, visit my website. You may also tune in on Apple Podcasts. To pushing the limits, Lisa Transcript Of Podcast Welcome to Pushing the Limits, the show that helps you reach your full potential with your host Lisa Tamati, brought to you by lisatamati.com. Lisa Tamati: Hi, everyone and welcome back to Pushing the Limits. Today, I have Dr Don Wood who, you may recognise that name if you listen to the podcast regularly. He was on the show maybe a couple of months ago, and he is the CEO and founder of The Inspired Performance Institute. He's a neuroscience guy, and he knows everything there is to know about dealing with trauma and how to get the mind back on track when you've been through big, horrible life events or some such thing. Now, when we talked last time, he shared with me his methodology, the work that he's done, how he can help people with things like addictions as well and depression, and just dealing with the stresses of life, whether they be small stressors or big stressors. We got to talking about my situation and the stuff that I've been through in the last few years, which many of you listeners know, has been pretty traumatic. From losing babies, to losing my dad, to mom's journey. So I was very privileged and lucky to have Dr Don Wood actually invite me to do his program with him. We share today my stories, how I went with that, and he explains a little bit more in-depth the neuroscience behind it all and how it all works. So if you're someone who's dealing with stress, anxiety, PTSD, depression, if you want to understand how the brain works and how you can help yourself to deal with these sorts of things, then you must listen to the show. He's an absolutely lovely, wonderful person. Now, before we get over to the show, I just love you all to do a couple of things for me. If you wouldn't mind doing a rating and review of the show on Apple, iTunes or wherever you listen to this, that would be fantastic. It helps the show get found. We also have a patron program, just a reminder if you want to check that out. Come and join the mission that we're on to bring this wonderful information to reach to people. Also, we have our BOOSTCAMP program starting on the first of September 2021. If you listen to this later, we will be holding these on a regular basis so make sure you check it out. This is an eight-week live webinar series that my business partner, my best buddy, and longtime coach Neil Wagstaff and I will be running. It's more about upgrading your life and helping you perform better, helping you be your best that you can be, helping you understand your own biology, your own neuroscience, how your brain works, how your biology works. Lots of good information that's going to help you upgrade your life, live longer, be happier, reduce stress, and be able to deal with things when life is stressful. God knows we're all dealing with that. So I'd love you to come and check that out. You can go to peakwellness.co.nz/boostcamp. I also want to remind you to check us out on Instagram. I'm quite active on Instagram. I have a couple of accounts there. We have one for the podcast that we've just started. We need a few more followers please on there. Go to @pushingthelimits for that one on Instagram, and then my main account is @lisatamati, if you want to check that one out. If you are a running fan, check us out on Instagram @runninghotcoaching and we're on Facebook under all of those as well. So @lisatamati, @pushingthelimits, and @runninghotcoaching. The last thing before we go over to Dr Don Wood, reminder check out, too, our longevity and anti-aging supplement. We've joined forces with Dr Elena Seranova and have NMN which is nicotinamide mononucleotide, and this is really some of that cooler stuff in the anti-aging, and longevity space. If you want to check out the science behind that, we have a couple of podcasts with her. Check those out and also head on over to nmnbio.nz. Right. Over to the show with Dr Don Wood. Hi, everyone and welcome back to Pushing the Limits. Today, I have a dear, dear friend again who's back on the show as a repeat offender, Dr Don Wood. Dr Don Wood: I didn't know I was a repeat offender. Oh, I'm in trouble. That's great. Lisa: Repeat offender on the show. Dr Don, for those who don't know, was on the show. Dr Don is a trauma expert and a neuroscientist, and someone who understands how the brain works, and why we struggle with anxiety, and depression, and post-traumatic stress disorder. We did a deep dive last time, didn't we, into the program that you've developed. Since then, everyone, I have been through Dr Don's pro program. He kindly took me through it. Today, I want to unpack a little bit of my experiences on the other side, s the client, so to speak. Talk about what I went through. Dr Don, so firstly, welcome to the show again. How's it all over in your neck of the woods? Dr Don: Well, it's awesome over here in Florida. COVID is basically non-existent. Oh, yeah. Well, in terms of the way people are treating it, that's for sure. Very few people you see in masks now, everything is pretty much wide open. You can't even get reservations at restaurants. It's unbelievable. The economy is exploding here. There's so much going on. Yeah, I know the rest of the country, a lot of different places are still struggling with whether they're going to put mask mandates back on and all this kind of stuff but Florida seems to be doing very well. Lisa: Well, I'm very glad to hear that because any bit of good news in this scenario is good because this keeps coming and biting everybody in the bum. Dr Don: I know. Especially down there. You guys are really experiencing quite severe lockdowns and things, right? Lisa: Yeah and Australia, more so. Australia has gone back into lockdown. I've got cousins in Sydney who are experiencing really hard times in Melbourne and we've stopped the trans-Tasman bubble at the moment. Trans-Tasman was open for business, so to speak, with Australians being able to come to New Zealand without quarantine, but it's been shut down again. So yeah, we're still struggling with it, and the economy is still struggling with it but actually, in our country, we've been very lucky that we've managed to keep it out because they've had such tight controls on the borders. But yes, it's a rocky road for everybody, and it's not over yet, I think. Dr Don: Looks like it's going to continue, and that's creating a lot of stress. Lisa: Oh, yeah, perfect. Dr Don: This is what I've said. I think we're coming up to a tsunami of mental health issues because a lot of people have gone into freeze mode as opposed to fight or flight. Some people are in fight or flight. You're hearing about that on airlines: people just losing it, and getting mad, and fighting with flight attendants and passengers, and you see a lot of that. But I think that's obviously not the majority. I think most people are in that mode of just get through this, do what they ask, don't cause any waves, and just get this over with. So that's a freeze mode, and I think when people come out of freeze, you're going to start to see some of these mental health issues. Lisa: Yes, I totally agree and I'm very concerned about the young people. I think that being hit very hard especially in the places that have the hardest lockdowns. If you're going through puberty, or you're going through teenagehood, or even the younger kids, I think, they're going to be affected massively by this because it's going to be a big before and after sort of situation for them. Dr Don: And just the social. When we were teenagers, social was everything, I suppose. Learning how to communicate, and talk, and get along with other people, and good and bad. There were always struggles in school with learning how to get along with everybody but that is just sort of squashed. It's going to be fascinating to see when they do a study on the real true results of this pandemic. It's going to be a lot different than many people think. Lisa: Yes, and I think the longer you ignore stuff, is we're going to see it's not just the people are unfortunately dying and being very sick from the actual COVID, but the actual effects on society are going to be big. That's why talking about the topic that we're talking about today, dealing with anxiety, and dealing with stress, and being able to actually fix the problem instead of just managing the problem, which I know you're big on. So let's dive in there, and let's recap a little bit. Just briefly go back over your story, how you got to here, and what your method sort of entails in a helicopter perspective. Dr Don: Yeah, basically how I developed this was really because of the life that my wife led first and my daughter. My wife grew up in a very traumatic household with a very angry father that created tremendous fear. So everybody was... Just constant tension in that household. When I met her, I just realised how this was so different than my life. My life was in the complete opposite: very nurturing, loving. So I didn't experience that. I thought when she started moving in and we got married at 19, we were very young, that this would all stop for her. Because now, she's living in my world, my environment, and it didn't. She just kept continuing to feel this fear that something was going to go wrong and nothing is going to go right. She struggled with enjoying things that were going well. I would say to her, 'We've got three beautiful children. We've got a beautiful home. Everything's going pretty good; nothing's perfect. You have your ups and downs, but it's generally a pretty good life.' She couldn't enjoy that because as a child, whenever things were going okay, it would quickly end and it would end, sometimes violently. So the way she was protecting herself is don't get too excited when things are going well because you'll get this huge drop. So that was what she was doing to protect herself. I just had a lady come in here a couple months ago, who very famous athlete is her husband: millionaires, got fame, fortune, everything you want, but she had a lot of health issues because of trauma from her childhood. When I explained that to her, she said, 'That's me. Your wife is me. I should be enjoying this, and I can't get there. I want to. My husband can't understand it.' But that's really what was going on for her too. Lisa: So it's a protective mechanism, isn't it? To basically not get too relaxed and happy because you've got to be hyper-vigilant, and this is something that I've definitely struggled with my entire life. Not because I had a horrible childhood. I had a wonderful childhood but I was super sensitive. So from a genetic perspective, I'm super sensitive. I have a lot of adrenaline that makes me code for, for want of a better description, I'm very emotionally empathetic but it also makes me swung by emotional stimuli very much. So someone in my environment is unhappy, I am unhappy. I'm often anxious and upset. My mum telling me she took me to Bambi. You know the movie Bambi? From Disneyland? She had to take me out of theatre. I was in distraught. That's basically me. Because Bambi's mother got killed, right? I couldn't handle that as a four-year-old, and I still can't handle things. Things like the news and stuff, I protect myself from that because I take everything on. It's even a problem and in our business service situations because I want to save the world. I very much take on my clients' issues. I'm still learning to shut gates afterwards, so to speak, when you're done working with someone so that you're not constantly... So there's a genetic component to this as well. Dr Don: Absolutely. So yours was coming from a genetic side but that's very, very common amongst people who have had a traumatic childhood. They're super sensitive. Lisa: Yes. Hyper-vigilant. Dr Don: Hyper-vigilant. That was my wife. She was constantly looking for danger. We'd come out of the storage and go: 'Can you believe how rude that clerk was?' 'What do you mean she was rude? How was she rude?' ‘You see the way she answered that question when I asked that, and then the way she stuffed the clothes in the bag?' And I'm like, 'Wow.' I never saw her like that. She was looking for it because that's how she protected herself because she had to recognise when danger was coming. So it was protection, and I hadn't experienced that so that made no sense to me; it made perfect sense to her. Lisa: Yeah, and if someone was rude to you, you would be just like, 'Well, that's their problem, not my problem, and I'm not taking it on.' Whereas for someone your wife and for me... I did have a dad who was a real hard, tough man, like old-school tough. We were very much on tenterhooks so when they came home, whether he was in a good mood today or not in a good mood. He was a wonderful, loving father but there was that tension of wanting to please dad. Mum was very calm and stable, but Dad was sort of more volatile and just up and down. It was wonderful and fun and other times, you'd be gauging all of that before he even walked in the door. That just makes you very much hyper-vigilant to everything as well. Then, you put on, on top of that, the genetic component. You've got things like your serotonin and your adrenaline. So I've got the problem with the adrenaline and a lack of dopamine. So I don't have dopamine receptors that stops me feeling satisfaction and... Well, not stops me but it limits my feeling of, 'Oh, I've done a good job today. I can relax.' Or of reward. And other people have problems, I don't have this one, but with a serotonin gene, which is they have dysregulation of their serotonin and that calm, and that sense of well-being and mood regulation is also up and down. While it's not a predisposition that you'll definitely going to have troubles because you can learn the tools to manage those neurotransmitters and things like nutrition and gut health and all that aspect. Because it's all a piece of that puzzle, but it's really just interesting, and it makes you much more understanding of people's differences. Why does one person get completely overwhelmed in a very trivial situation versus someone else who could go into war and come back and they're fine? What is it that makes one person? Then you got the whole actual neuroscience circuitry stuff, which I find fascinating, what you do. Can you explain a little bit what goes on? Say let's just pick a traumatic experience: Someone's gone through some big major trauma. What is actually going on in the brain again? Can we explain this a little bit? Dr Don: Yeah, this is one of the things that... When I did my research, I realised this is what's causing the dysregulation: is your subconscious your survival brain is fully present in the moment all the time. So everything in that part of our brain is operating in the present. which is what is supposed to be, right? They say that that's the key, that success and happiness is live in the present. Well, your survival brain does that. The problem comes in is that only humans store explicit details about events and experiences. So everything you've seen, heard, smelled, and touched in your lifetime has been recorded and stored in this tremendous memory system. Explicit memory. Animals have procedural memory or associative memory. We have that memory system too. So we have both. They only have procedural, associative. So they learn through repetition, and they learn to associate you with safety and love, but they don't store the details about it. But we store all the details about these events and experiences. So this is where this glitch is coming in. If you've got the survival brain, which is 95% of everything that's going on, operating in the present, accessing data from something that happened 10 years ago because something looks like, sounds like, smells like it again, it's creating a response to something that's not happening. It's looking at old data and creating a physiological response to it, and the purpose of an emotion is a call for an action. So the purpose of fear is to run, to escape a threat. But there's no threat. It's just information about the threat. That disrupts your nervous system and then that creates a cascade of chemical reactions in your body because your mind thinks there's an action required. Lisa: This is at the crux of the whole system really, isn't it? This is this call for action to fix a problem that is in the past that cannot be fixed in the now. So if we can dive a little bit into my story, and I'm quite open on the show. I'm sharing the good, the bad, and the ugly. When I was working with Dr Don, I've been through a very, very traumatic few years really. Lost my dad, first and foremost, last July, which was the biggest trauma of my life. And it was a very difficult process that we went through before he died as well. And there's a lift, as you can imagine, my brain in a state of every night nightmares, fighting for his life, he's dying over, and over, and over, and over again. Those memories are intruding into my daily life, whereas in anything and at any time, I could be triggered and be in a bawling state in the middle of the car park or the supermarket. Because something's triggered me that Dad liked to to buy or Dad, whatever the case was, and this was becoming... It's now a year after the event but everything was triggering me constantly. Of course, this is draining the life out of you and interfering with your ability to give focus to your business, to your family, to your friends, every other part of your life. I'd also been through the trauma of bringing Mum back from that mess of aneurysm that everyone knows about. The constant vigilance that is associated with bringing someone back and who is that far gone to where she is now, and the constant fear of her slipping backwards, and me missing something, especially in light of what I'd been through with my father. So I'd missed some things, obviously. That's why he ended up in that position and through his own choices as well. But this load, and then losing a baby as well in the middle, baby Joseph. There was just a hell of a lot to deal with in the last five years. Then, put on top of it, this genetic combination of a hot mess you got sitting before you and you've got a whole lot of trauma to get through. So when we did the process, and I was very, super excited to do this process because it was so intrusive into my life, and I realised that I was slowly killing myself because I wasn't able to stop that process from taking over my life. I could function. I was highly functional. No one would know in a daily setting, but only because I've got enough tools to keep my shit together. so to speak. But behind closed doors, there's a lot of trauma going on. So can you sort of, just in a high level, we don't want to go into the details. This is a four-hour program that I went through with Dr Don. What was going on there. and what did you actually help me with? Dr Don: So when you're describing those things that were happening to you, what was actually happening to your mind is it was not okay with any of that. It wanted it to be different, right? So it was trying to get you into a state of action to stop your father from dying: Do it differently. Because it kept reviewing the data. It was almost looking at game tape from a game and saying 'Oh, had we maybe run the play that way, we would have avoided the tackle here.' So what your mind was saying 'Okay, run that way.' Well, you can't run that way. This is game tape. Right? But your mind doesn't see it as game tape. It sees it as real now, so it's run that way. So it keeps calling you into an action. And especially with your dad because you were thinking about, 'Why didn't I do this?' Or 'Had I just done this, maybe this would have happened.' What your mind was saying is, 'Okay, let's do it. Let's do that.' What you just thought about. But you can't do that. It doesn't exist. It's information about something that happened but your mind sees it as real. That's why Hollywood have made trillions of dollars because they can convince you something on the screen is actually happening. That's why we cry in a movie or that's why we get scared in a movie. Because your mind, your subconscious mind cannot tell the difference between real or imagined. So that's actually happening. You were just talking about the movie with Bambi, right? When you were little. 'Why is nobody stopping this from happening?' So your mind was not okay with a lot of these things that were happening, and it kept calling you to make a difference. That's what I never understood my wife doing. That before I really researched this, my wife would always be saying, 'Don't you wish this hadn't have happened?' Or 'Don't you wish we hadn't done this?' What I didn't understand at the time, because I used to just get like, 'Okay, whatever.' She'd go, 'Yeah, but wouldn't it have been better?' She wanted to get me into this play with her, this exercise. Lisa: This is going on in her head. Dr Don: Because it's going on in her head, and she's trying to feel better. So she's creating these scenarios that would make her feel like, 'Well, if I had just done that, gosh that would have been nice, thinking about that life.' And her mind seeing that going, 'Oh, that would be nice. Well, let's do that. Yes.' So she was what if-ing her life. And it was something that she did very early as a child because that's how she just experienced something traumatic with her father. In her mind, she'd be going, 'Well, what if I had to just left 10 minutes earlier, and I had have escaped that?' Or 'What if I hadn't done this?' So that's what she was doing. It made no sense to me because I hadn't experienced her life, but that's what she was doing. Her mind was trying to fix something. It's never tried to hurt you. It was never, at any point, trying to make you feel bad. It was trying to protect you. Lisa: Its job is to protect you from danger and it sees everything as you sit in the now so it's happening now. I love that analogy of these... What was it? Two-thirds of the car or something and... Dr Don: So goat and snowflake? Lisa: Goat and snowflake. And they're going off to a meeting and they're late. And what does the goat says to snowflake or the other way around? Dr Don: So snowflake, which is your conscious mind, your logical reasonable part of your mind, there's only 5, says the goat 95%, which is your subconscious mind. Who runs into a traffic jam says, 'Oh, we're going to be late. We should have left 15 minutes earlier.' To which goat replies 'Okay, let's do it. Let's leave 15 minutes earlier because that would solve the problem.' Lisa: That analogy is stuck in my head because you just cannot... It doesn't know that it's too late and you can't hop into the past because it only lives in the now. This is 95% of how our brain operates. That's why we can do things like, I was walking, I was at a strategy meeting in Auckland with my business partner two days ago. We were walking along the road and he suddenly tripped and fell onto the road, right? My subconscious reacted so fast, I grabbed him right, and punched him in the guts. I didn't mean to do that but my subconscious recognised in a millimeter of a second, millionth of a second, that he was falling and I had to stop him. So this is a good side of the survival network: stopping and falling into the traffic or onto the ground. But the downside of it is that brain is operating only in the now and it can't... Like with my father, it was going 'Save him. Save him. Save him. Why are you not saving him?' Then that's calling for an action, and then my body is agitated. The cortisol level's up. The adrenaline is up, and I'm trying to do something that's impossible to fix. That can drive you to absolute insanity when that's happening every hour, every day. Dr Don: Then that's taking a physical toll on your body because it's activating your nervous system, which is now, the cortisol levels are going up, adrenaline, right? So when your mind is in that constant state, it does very little on maintenance. It is not worried about fixing anything; it's worried about escaping or fixing the threat, because that's the number one priority. Lisa: It doesn't know that it's not happening. I ended up with shingles for two months. I've only just gotten over it a few weeks ago. That's a definite sign of my body's, my immune system is down. Why is it down? Why can that virus that's been sitting dormant in my body for 40-something years suddenly decide now to come out? Because it's just becoming too much. I've spent too long in the fight or flight state and then your immune system is down. This is how we end up really ill. Dr Don: We get sick. I was just actually having lunch today with a young lady and she's got some immune system issues. And I said, 'Think about it like the US Army, US military is the biggest, strongest military in the world. But if you took that military and you spread it out amongst 50 countries around the world fighting battles, and then somebody attacks the United States, I don't care how big and strong that system was, that military system was. It's going to be weakened when it gets an attack at the homefront.' So that's what was happening. So all of a sudden, now that virus that it could fight and keep dormant, it lets it pass by because it's like, 'Well, we can let that go. We'll catch that later. Right now, we got to go on the offensive and attack something else.' Lisa: Yeah, and this is where autoimmune, like your daughter experienced... Dr Don: About the Crohn's? Yep. Lisa: Yep. She experienced that at 13 or something ridiculous? Dr Don: 14, she got it. Then she also got idiopathic pulmonary hemosiderosis which is another lung autoimmune disorder where the iron in the blood would just cause the lungs to release the blood. So her lungs just starts filling up with blood. They had no idea what caused it, that's the idiopathic part of it, and they just basically said, ‘There's no cure. She just needs to live close to a hospital because she'll bleed out if she has another attack.' Only 1 in 1.2 million people ever get that. So it's very rare so there's no research being done for it. They just basically say, ‘If you get it, live close to a hospital.' That's the strategy. Lisa: That's the way of fixing it. Dr Don: And so both of those are autoimmune, and ever since we've gone to the program, she's hasn't had a flare-up of either one of those. Because I think our system is directly now able to address those things. Lisa: Yeah, and can calm down. I think even people who haven't got post-traumatic stress like I've had or whatever, they've still got the day to day grind of life, and the struggle with finances, and the mortgage to be paid, and the kids to feed, and whatever dramas we're all going through. Like we talked about with COVID and this constant change that society is undergoing, and that's going to get faster and more. So this is something that we all need to be wary of: That we're not in this. I've taught and learned a lot about the coping and managing strategies, the breathing techniques, and meditation, the things, and that's what's kept me, probably, going. Dr Don: Those are great because they're... Again, that's managing it but it's good to have that because you've got to get to the root of it, which is what we were working on. But at the same time, if you don't have any coping, managing skills, life gets very difficult. Lisa: Yeah, and this is in-the-moment, everyday things that I can do to help manage the stress levels, and this is definitely something you want to talk about as well. So with me, we went through this process, and we did... For starters, you had to get my brain into a relaxed state, and it took quite a long time to get my brainwaves into a different place. So what were we doing there? How does that work with the brainwave stuff? Dr Don: Well, when we have a traumatic event or memory, that has been stored in a very high-resolution state. So in a beta brainwave state because all your senses are heightened: sight, smell, hearing. So it's recording that and storing it in memory in a very intense state. So if I sat down with you and said, 'Okay, let's get this fixed.' And I just started trying to work directly on that memory, you're still going to be in a very high agitated state because we're going to be starting to talk about this memory. So you're going to be in a beta brainwave state trying to recalibrate a beta stored memory. That's going to be very difficult to do. So what we do is, and that's why I use the four hours because within that first an hour and a half to two hours, we're basically communicating with the subconscious part of the brain by telling stories, symbols with metaphors, goat and snowflake, all the stories, all the metaphors that are built-in because then your brain moves into an alpha state. When it's in alpha, that's where it does restoration. So it's very prepared to start restoring. And then, if you remember, by the time we got to a couple of the traumatic memories, we only work on them for two or three minutes. Because you're in alpha, and so you've got this higher state of beta, and it recalibrates it into the same state that it's in. So if it's in alpha, it can take a beta memory, reprocess it in alpha, takes all the intensity out of it. Lisa: So these brain waves, these beta states, just to briefly let people know, so this is speed, and correct me if I'm wrong, but it's the speed at which the brain waves are coming out. So in beta, like you'd see on ECG or something, it's sort of really fast. I think there's a 40 day... Dr Don: It's 15 to 30 hertz. Lisa: 15 to 30 hertz and then if you're in alpha, it's a lot lower than that? Dr Don: 7 to 14. Lisa: 7 to 14, and then below that is sort of when you're going into the sleep phase, either deep meditative or asleep. Dr Don: You're dreaming. Because what it's doing in dreaming is processing. So you're between 4 and 7 hertz. That's why people who have a lot of trauma have trouble sleeping. Because not only is their mind processing what it experienced during the day, it's also taking some of those old files saying, 'Well, okay, let's fix that now. Right. Let's get that.' That's where your nightmares are coming from. It was trying to get you into a processing to fix that. but it couldn't fix it. So it continues, and then when you go below 4 hertz, you go into delta. Delta is dreamless sleep and that's where the maintenance is getting done. Lisa: That's the physical maintenance side more than the... Dr Don: Physical maintenance. Yeah, because that's not processing what it experienced anymore. What it's really now doing is saying, 'Okay, what are the issues that need to be dealt with?' So if you're very relaxed and you've had a very... Like me, right? I played hockey, so I had six concussions, 60 stitches, and never missed a hockey game. The only reason now that I understand I could do that is because I'm getting two or three times more Delta sleep than my teammates were. Lisa: Physical recuperative sleep. Dr Don: Yeah, I was getting maximum restorative sleep. So an injury that I would have that could heal in two or three days, my teammates would two or three weeks. Because they were living in these, which I didn't know, a lot of my friends were dealing with trauma: physical, emotional, sexual abuse. I didn't know that was going on with my friends. Nobody talked about it. I didn't see it in their homes, but they were all dealing with that. Lisa: So they are not able to get... So look, I've noticed since I've been through the program. My sleep is much better, and sometimes I still occasionally dream about Dad. But the positive dreams, if that makes sense. They're more Dad as he as he was in life and I actually think Dad's come to visit me and say, ‘Hi, give me a hug' rather than the traumatic last days and hours of his life, which was the ones that were coming in before and calling for that action and stopping me from having that restorative sleep. I just did a podcast with Dr Kirk Parsley who's a sleep expert, ex-Navy SEAL and a sleep expert that's coming out shortly. Or I think by this time, it will be out, and understanding the importance, the super importance of both the delta and... What is the other one? The theta wave of sleep patterns, and what they do, and why you need both, and what parts of night do what, and just realising...Crikey, anybody who is going through trauma isn't experiencing sleep is actually this vicious cycle downwards. Because then, you've got more of the beta brainwave state, and you've got more of the stresses, and you're much less resilient when you can't sleep. You're going to... have health issues, and brain issues, and memory, and everything's going to go down south, basically. Dr Don: That's why I didn't understand at the time. They just said 'Well, you're just super healthy. You heal really fast.' They had no other explanation for it. Now, I know exactly why. But it had nothing to do with my genetics. It had to do with my environment. Lisa: Just interrupting the program briefly to let you know that we have a new patron program for the podcast. Now, if you enjoy Pushing the Limits if you get great value out of it, we would love you to come and join our patron membership program. We've been doing this now for five and a half years and we need your help to keep it on here. It's been a public service free for everybody, and we want to keep it that way but to do that, we need like-minded souls who are on this mission with us to help us out. So if you're interested in becoming a patron for Pushing the Limits podcast, then check out everything on patron.lisatamati.com. That's patron.lisatamati.com. We have two patron levels to choose from. You can do it for as little as 7 dollars a month, New Zealand or 15 dollars a month if you really want to support us. So we are grateful if you do. There are so many membership benefits you're going to get if you join us. Everything from workbooks for all the podcasts, the strength guide for runners, the power to vote on future episodes, webinars that we're going to be holding, all of my documentaries, and much, much more. So check out all the details: patron.lisatamati.com, and thanks very much for joining us. Dr Don: That's, at the time, we just thought it was all, must have been genetics. But I realised now that it was environment as well. So maybe a genetic component to it as well, but then you take that and put that into this very beautiful, nurturing environment, I'm going to sleep processing in beta what I experienced that day and then my mind basically, at that point, is 'What do we need to work on? Not much. Let's go. Let's start now doing some maintenance.' Because it wants to address the top of item stuff first. What is it needs to be taken care of right now? Right? Those are the threats. Once it gets the threats processed, then it can then start working on the things that are going to be the more long-term maintenance. So then it'll do that. But if it never gets out of that threat mode, it gets out for very little time. Then, if you're getting 30 minutes of delta sleep at night and I'm getting two hours, it's a no-brainer to figure out why I would heal faster. Lisa: Absolutely, and this is independent of age and things because you've got all that that comes into it as well. Your whole chemistry changes as you get older and all this. There's other compounding issues as it gets more and more important that you get these pieces of the puzzle right. Do you think that this is what leads to a lot of disease, cancers, and things like that as well? There's probably not one reason. There's a multitude of reasons, but it's definitely one that we can influence. So it's worth looking at it if you've got trauma in your life. People were saying to me 'Oh my God, you don't look good.' When you start hearing that from your friends, your people coming up to you and going, 'I can feel that you're not right.' People that are sensitive to you and know you very well, and you start hearing that over and over, and you start to think, 'Shit, something's got real. Maybe I need to start looking at this.' Because it's just taking all your energy your way, isn't it, on so many levels. The restorative side and the ability to function in your life, and your work, and all of that, and that, of course, leads into depressive thoughts and that hyper-vigilant state constantly. That's really tiresome rather than being just chill, relax, enjoying life, and being able to... Like one of the things I love in my life is this podcast because I just get into such a flow state when I'm learning from such brilliant... Dr Don: You're in alpha. Lisa: I am. I am on it because this is, 'Oh. That's how that works.' And I just get into this lovely learning in an alpha state with people because I'm just so excited and curious. This is what I need to be doing more of. And less of the, if you'd see me half an hour ago trying to work out the technology. That's definitely not an alpha state for me. Dr Don: That's where they said Albert Einstein lived. Albert Einstein lived in alpha brainwave state. That's why information just float for him because there was no stress. He could then pull information very easily to float into. But if you're in a high beta brainwave state, there's too much activity. It has trouble focusing on anything because it's multiple threats on multiple fronts. So when we have a traumatic event, that's how it's being recorded. If you remember, what we talked about was there's a 400 of a millionth of a second gap in between your subconscious mind seeing the information and it going to your consciousness. So in 400 millionths of a second, your subconscious mind has already started a response into an action even though your conscious mind is not even aware of it yet. Lisa: Yeah. Exactly what I did with rescuing my partner with the glass falling off the thing. I hadn't reached that logically. Dr Don: It's funny because that's one of the things that I talked about ,which is sort of, give us all a little bit of grace. Because if you've had a lot of trauma, you're going to respond a certain way. How could you not? If your mind's filtering into all of that, of course you're going to respond with that kind of a response because your mind is prone to go into that action very, very quickly. So we can give ourselves a little bit of grace in understanding that of course, you're going to do that, right? And not beat ourselves up. Because you know what I talked about with everybody, there's nothing wrong with anybody. There's nothing wrong with anybody's mind. Everybody's mind is fine except you are experiencing something different than I experienced so your mind kept responding to it, and mine didn't have that. So you had multiple... Think about we have a hundred percent of our energy on our phone when we wake up in the morning, right? Fully powered up. You fire the phone up and eight programs open up, right? And mine has one. Lisa: Yeah. You're just focusing on what you need to. Dr Don: Then noon comes, and you're having to plug your phone back in because you're out of energy. Lisa: That's a perfect analogy. You're just burning the battery. My all is a hundred windows open in the back of my brain that is just processing all these things and so now, I can start to heal. So having gone through this process with you, like you said, we worked on a number of traumatic experiences, and I went through them in my mind. And then you did certain things, made me follow with my eyes and track here, and my eyes did this, and then, we pulled my attention out in the middle of the story and things. That helped me stay in that alpha state, brainwave state as I probably now understand while I'm still reliving the experience. That's sort of taking the colour out of it so that it's now sort of in a black and white folder. Now, it can still be shared, and it hasn't taken away the sadness of... Dr Don: Because it is sad that these things happen but that's not the response for an action which is that fear or anger, right? That dysregulation of the nervous system. That's what we want to stop, because that is what is going to affect health, enjoyment of life and everything else. Lisa: Wow, this is so powerful. Yeah, and it's been very, very beneficial for me and helped me deal. For me, it also unfolded. Because after the four hour period with you, I had audiotapes and things that are meditations to do every day for the next 30 days. What were we doing in that phase of the recovery? What were you targeting in those sort of sessions? Dr Don: So if you remember what we talked about, we have two memory systems. The explicit memory is what we worked on on that four hours. That's detail, events, and experiences. Once we get the mind processing through that, then we have to work on the same memory animals have, which is that associative repetitive memory. So you've built a series of codes on how to respond to threats, and that has come in over repetition and associations. So the audios are designed to start getting you now to build some new neural pathways, some new ways to respond because your mind won't switch a pattern instantly. It can switch a memory instantly, but a pattern is something that got built over a period of time. So it's like a computer. If I'm coding on my computer, I can't take one key to stop that code. I have to write a new code. Yeah, so what we're doing over the 30 days is writing new code. Lisa: Helping me make new routines and new habits around new neural pathways, basically. Dr Don: You don't have that explicit memory interfering with the pathways. Because now, it's not constantly pulling you out, going back into an action call. It's basically now able to look at this information and these codes that got built and say, 'Okay, what's a better way? So do we have a better way of doing it?' Or 'Show me that code. Write that code.' If that code looks safer, then your mind will adopt that new code. Lisa: This is why, I think for me, there was an initial, there was definitely... Like the nightmares stopped, the intrusive every minute, hour triggering stopped, but the process over the time and the next... And I'm still doing a lot of the things and the meditations. It's reinforcing new habit building. This is where... Like for people dealing with addictions, this is the path for them as well, isn't it? Dr Don: Yeah. Because I talked about addiction as a code. I don't believe it's a disease. Your mind has found a resource to stop pains, and your subconscious mind is literal. It doesn't see things as good or bad, or right or wrong. It's literal. 'Did that stop the pain? Let's do that.' Because it's trying to protect you. So if you've now repeated it over and over, not only have you stopped the pain, but you've built an association with a substance that is seen as beneficial. Lisa: Because your brain sees it as medicine when you're taking, I don't know, cocaine or something. It sees it as essential to your life even though you, on a logical level, know that, ‘This is destroying me and it's a bad thing for me.' Your subconscious goes, 'No, this is a good thing and I need it right now.' Dr Don: Because it's in the present, when does it want the pain to stop? Now. So it has no ability to see a future or a past. Your subconscious is in the moment. So if you take cocaine, the logical part of your brain goes, 'Oh, this is going to create problems for me. I'm going to become addicted.' Right? Your subconscious goes, ‘Well, the pain stopped. We don't see that as a bad thing.' I always use the analogy: Why did people jump out of the buildings at 911? They weren't jumping to die. They were jumping to live because when would they die? Now, if they jump, would they die? No. They stopped the death. So even jumping, which logically makes no sense, right? But to the subconscious mind, it was going to stop the pain now. Lisa: Yeah, and even if it was two seconds in the future that they would die, your brain is going... Dr Don: It doesn't even know what two seconds are. Lisa: No. It has no time. Isn't it fascinating that we don't have a time memory or understanding in that part of the brain that runs 95% of the ship? Dr Don: It's like what Albert Einstein said, ‘There's no such thing as time.' So it's like an animal. If an animal could communicate and you say, 'What time is it?' That would make no sense to an animal. 'What do you mean? It's now.' 'What time is it now?' 'Now. Exactly.' Lisa: It's a construct that we've made to... Dr Don: Just to explain a lot of stuff, right? When something happens. Lisa: Yeah, and this is quite freeing when you think of it. But it does make a heck of a lot of sense. So people are not being destructive when they become drug addicts or addicted to nicotine, or coffee, or chocolate. They're actually trying to stop the pain that they're experiencing in some other place and fix things now. Even though the logical brain... Because the logical brain is such a tiny... Like this is the last part of our evolution, and it's not as fully... We can do incredible things with it at 5%. We've made the world that we live in, and we're sitting here on Zoom, and we've got incredible powers. But it's all about the imagination, being able to think into the future, into the past, and to make correlations, and to recognise patterns. That's where all our creativity and everything, or not just creativity, but our ability to analyse and put forth stuff into the world is happening. But in actual, we're still like the animals and the rest of it. We're still running at 95%, and that's where we can run into the problems with these two. Dr Don: Because you got two systems. You got a very advanced system operating within a very primitive system, and it hasn't integrated. It's still integrating, right? So if there's a survival threat, survival will always override reason and logic, because it's designed to protect you. So there's no reason and logic that will come in if there's a survival threat. It's just going to respond the way it knows, does this Google search, 'What do we know about this threat? How do we know to protect ourselves, and we'll go instantly into survival mode.' Again, there's the reason and logic. Why would you jump out of a building, right? If you applied reason and logic, you wouldn't have jumped, right? People will say, 'Well, but they still jumped.' Yes, because reason and logic didn't even come into the process. It was all about survival. Lisa: Yeah. When the fire is coming in it was either... Dr Don: 'Am I going to die out now or I'm going to move and not die now?' Lisa: Yeah, and we're also prone to movement when we're in agitation and in an agitated state, aren't we? Basically, all of the blood and the muscles saying, 'Run, fight, do something. Take action.' Dr Don: That's why when people get into depression, it's the absence of those emotions. Lisa: Yeah, and people feel exhaustion. Dr Don: Yeah. The mind kept calling for an action using anger, for example, but you can't do the action because it's not happening, so it shuts down to protect you and stops calling for any emotion, and that's depression. So the key to get out of depression is actions. It's to get something happening. So in a lot of people who are depressed, what do I tell them to do? 'Start moving. Start exercising. Get out. Start doing things.' Right? Lisa: So I run ultras. Dr Don: Exactly. Perfect example, right? Lisa: Yeah, because I was. I was dealing with a lot of shit in my life at the time when I started doing ultra-marathons. To run was to quiet the pain and to run was to be able to cope and to have that meditative space in order to work through the stuff that was going on in my life. And I know even in my husband's life, when he went through a difficult time, that's when he started running. So running can be a very powerful therapeutic, because there is a movement, and you're actually burning through the cortisol and the adrenaline that's pouring around in your body. Therefore, sitting still and that sort of things was just not an option for me. I had to move. And it explains what, really. It's calling the movement. Like it was a movement because I couldn't fix the other thing. Dr Don: That's what they'll tell you to do. To get out of depression is to move. What I say is the way to get out of depression is to get your mind to resolve what it's been asking for. Lisa: It's going a little deeper. Dr Don: Yeah. So it's going down and saying, 'Okay, why has it been getting you angry and now, it shut down from the anger?' Because it's been trying to get you in your situation. 'Don't let Dad die. Don't let this happen.' Right? So because you couldn't do it, it just shuts down. Makes perfect sense but when we get to the resolution that there is no action required, there's no need for the depression anymore. The depression will lift because there's no more call for an action. Lisa: I can feel that in me, that call. Anytime that anything does still pop up, I sort of acknowledge the feeling and say, 'There is no call for action here. This is in the past. This is a memory.' So I do remind myself that when things do still pop up from time to time now, as opposed to hourly. I go, 'Hey, come back into the now. This is the now. That was the then that's calling for an action. This is why you're doing thing.' Even that understanding
Abbie and Rick are parents to three boys, and Noah, their oldest son, has down syndrome. They talk about what it was like when they first found out about his diagnosis, and how talking to another family a few years ahead of them gave them hope for Noah's future. That journey inspired them to help connect more parents raising children with down syndrome through an organization called https://hopestory.org (HopeStory). Follow more of Noah's story https://www.facebook.com/NoahsDadcom (here) or https://www.instagram.com/noahsdaddotcom/?hl=en (here)!
Where is God in your journey of parenting a child with disabilities? In celebration of Down Syndrome Awareness Month, Stephanie Hubach is sharing the joys and challenges of parenting a child with intellectual disabilities. She's a visiting instructor and research fellow in disability ministries at Covenant Theological Seminary and previously served as the Director of Mission to North America's Special Needs Ministries. Listen as Stephanie offers wisdom from her leadership experience in disability ministry as well as personal insight from raising two sons to adulthood, Freddy and Tim who has Down syndrome. Hear how her role as a mother has changed throughout the years, the steps she's taking to prepare for the future, and how the church can meet the biggest needs for children and adults with intellectual disabilities. Follow Stephanie on Facebook to see Tim's latest recipes Order Parenting and Disabilities: Abiding in God's Presence and Same Lake, Different Boat Questions or comments? Email Crystal at firstname.lastname@example.orgSupport Joni and Friends to help make this podcast possible. Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Join us in answering the call in Luke 14:21-23... until his house is full! Founded by author and international disability advocate Joni Eareckson Tada, the ministry provides Christ-centered care that serves needs and transforms hearts through Joni's House, Wheels for the World, and Retreats and Getaways. Joni and Friends also equips individuals and churches with disability ministry training and provides higher education courses and internships through the Christian Institute on Disability. Find more encouragement through Joni's radio podcast, daily devotional, or by following us on Facebook, Instagram, and YouTube.
October is Down Syndrome Awareness Month, and today But Not All At Once dives into the story of Katie Alice Walker and her beautiful third baby, Jayne.Katie Alice walks us through the shock and grief of an unexpected diagnosis and the joy of meeting a child whose name has been spoken by an entire community in prayer.There's beauty to be found even in the uncertain, unforeseen and just plain hard; Katie Alice's words are a testament to that. Whether your family has faced similar news, you want to support a friend in the trenches, or you hope to be an example of inclusion in your community, this discussion is for you.A few books Katie Alice recommends:Authentically AddieYou're All Kinds of WonderfulDifferent - A Great Thing to Be!Almost Twins: A Story About Friendship and InclusionIf you're a parent who wants to connect with the Walkers, you can reach Katie Alice at @kacwalker on Instagram. As always, you can reach Anne at butnotallatonce.com or @butnotallatonce across social platforms. To support the podcast and hear monthly bonus episodes, subscribe to Patreon.com/ButNotAllAtOnce.If you enjoy But Not All At Once, would you please leave a five-star rating and review on Apple Podcasts? It elevates the podcast, gives potential guests a window into the show, and means the world!
On this edition of TWMS, I have retired teacher Tony Garcia joining me! Tony recently had a post go viral as he wrote a letter to students challenging them to share kindness. In addition to that, Tony just finished the Boston Marathon and we'll talk some about that as well. Tony also has a former co-worker, Liz McGrew, who currently needs a kidney donor and we are getting that message out as well. After my conversation with Tony, I'll have Down Syndrome Alabama Executive Director Kelly Peoples to share about DSA and the upcoming Step Up for Down Syndrome Walk! I hope you will listen and share.
October is Down Syndrome Awareness Month. April Titler interviews podcast guest, Lauren Robinson, mother of an amazing 5 year old with Down Syndrome. Lauren is passionate about advocating for inclusion for people with disabilities of all types. #WelcometoHolland Welcome to Holland Poem: https://www.stepsautismtreehouse.org.au/blogs/2019/6/2/welcome-to-holland-an-inspirational-poem Resources: Down Syndrome Association of Greater Richmond https://dsagr.org/ National Down Syndrome Society https://www.ndss.org/ National Down Syndrome Society's
This week's episode is a replay from last year. It is with my friend David Marmon and we discuss his miracle daughter Maddox. Maddox has Down Syndrome and is a dadgum world changer. Some really important information to learn about people who have Down Syndrome and the people who love them. Tune in and please share! PS-shoutout to David Marmon also for sending me a mic after we recorded last year that really fixed up my audio game! A huge thank you to my sponsors! -Apparel Lab for all your shirts, hats, mugs hoodies, or WHATEVER you want to put your logo or ideas on! https://apparellab.co/ Plus make sure to check out their new Merch Catalog -Go refinance that house with Dominic Garver! Call 256.714.1429 or visit his website http://www.RocketCityMortgageGuy.com -Take a flight on Breeze Airways! http://www.FlyBreeze.com -To get a copy of my Amazon Best Selling Book "Relentless Positivity" I read from in this episode - https://cutt.ly/Nj7jqNN Thanks as always to zerodegreez for the beats! Follow him on Instagram @prod.by.henryy --- Send in a voice message: https://anchor.fm/relentlesspositivity/message
The Lucky Few is a social awareness brand on the mission to make a more inclusive and loving world with an emphasis on shifting the Down syndrome narrative. Heather Avis is the founder and chief visionary officer of The Lucky Few and mom of three adopted children, two of which have Down Syndrome. She is on the show chatting about her children's book titled “Different—A Great Thing To Be!” (WaterBrook & Multnomah, imprints of Penguin Random House). Join us as Heather shares about learning to value the "different" in all people, leading the way to a more inclusive, kinder world in which our differences are celebrated and warmly embraced. This week's love offering is to say to ourselves and to say to those around us “who you are, exactly as you are, you are loved and you are worthy. Who I am, exactly as I am, I am loved and I am worthy to be loved.” Connect with Heather: https://www.heatheravis.com https://instagram.com/theluckyfewofficial
According to Trista Kutcher, the key to being a #bosslady is feeling special and confident, and we totally agree. Trista is a self-advocate with Down syndrome, a business owner, a hip hop extraordinaire, and an IRL friend of the Avis fam! Trista and her business (Trista's Sunshine Company) are based in Charleston, South Carolina. Not only does she sell products online, she recently got her products into stores in her area! When she's not being a #bosslady, she's advocating for DS, hanging out with her family, busting a move, and listening to the Jonas Brothers (honestly, same). Friends! You do NOT want to miss this amazing episode with Trista Kutcher (and a very special surprise guest host..Macy Avis!). Trista has an important message for parents of kids with DS and for individuals with DS who want to start their own business. (Hint: positivity is key). __ Follow Trista Kutcher! Instagram: @tristathebarista Website: tristasunco.com Facebook: facebook.com/trista.kutcher Learn more about Peace Love Hip Hop! Check out Cindy Eckert's IG - she helped Trista gain her following! 2021 HOLIDAY GIFT GUIDE! Every year we put together an episode with the most amazing (& world-changing) gifts of the season. Apply HERE to have your products/business featured in this year's gift guide! LET'S CHAT Email email@example.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email firstname.lastname@example.org for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support
Everyone is a sinner in desperate need of a Savior, even a child with a disability. It is crucial for parents, and the church, to introduce children with disabilities to Christ in ways that they can truly meet and know him. Thankfully, God's mercy is available to all who call on him.
Jess Quarello was born in Sweden but raised in North Carolina. She started singing at the age of 5 years old and pursued a career in music, modeling and performance. She received her BFA in Music Theatre from Elon University and after graduation moved to NYC to continue her career. She had some great successes which included national commercials, a beauty campaign printed in Vogue Magazine, a recording contract and even working with Timbaland and Snoop Dog. She met her husband Matt on a rooftop bar in Manhattan and they were engaged 9 months later. She decided to switch gears in her career and pivoted to the other side of the modeling industry, fashion! Jess worked as a lead stylist for a style-subscription company, moved into marketing for an international branding agency and most recently worked for a non-profit consultancy, on the sales and marketing business side. In 2020 she gave birth to Adeline, who at birth was diagnosed with Down Syndrome. What started as a traumatic and scary diagnosis has propelled her into a life of advocacy and passion for her daughter and the Down Syndrome Community. She currently resides in Hoboken, NJ with her 3.5 year old daughter Charlee, Adeline (14 months) and husband Matt. She hopes to inspire others facing a Down Syndrome diagnosis to not fear the future but to embrace a new beautiful perspective. Taryn Lagonigro is a mom of four girls, a business consultant and co-owner of Extra Lucky Moms and Iris Yoga in North Jersey. Her youngest daughter was born with Down syndrome and a heart defect in March 2020 which threw Taryn into the world of advocacy for children in the special needs community. Taryn dedicates time to several charities including the Down Syndrome Diagnosis Network and 321 Sunshine Nonprofit. Please click the like button above and leave a review if your favorite podcast app has that ability. Thank you! Visit http://drlaurabrayton.com/podcasts/ for show notes and available downloads. © 2021 Dr. Laura Brayton
Our guest this week is Paul Mannino of Libertyville, IL, who is CFO at the Archdiocese of Chicago and the father of four, including Sofia (18) who has Down syndrome. Paul talks very openly and authentically about his career, which included overseas assignments, his family and recent divorce. We'll hear Paul's story on this Special Fathers Network Dad to Dad Podcast. LinkedIn - https://www.linkedin.com/in/paulvmannino/ Western DuPage Special Recreation Association - https://www.warrenvilleparks.org/programs/wdsra/ Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations. Special Fathers Network: https://21stcenturydads.org/about-the-special-fathers-network/Please support the SFN. Click here to donate: https://21stcenturydads.org/donate/
Alright friends, you asked for it.. and now it's time to talk about potty training! And who better to learn from than Dr. Lina Patel? (Psychologist, DS expert, and author of Potty Time for Kids with Down Syndrome: Lose the Diapers, Not Your Patience). She's breaking it all down for us today.. because there's more to potty training than we even realize (hint: medical challenges, cognition, language, and motivation)! We're talking about when to NOT start potty training, why traditional techniques might not work for our kiddos, and of course- all the strategies to use when it's time! Our #1 tip? Dr. Patel's book! Oh and if you've ever felt yourself stuck in some weird unspoken competition on who's kid is potty trained first, so have we. So we're chatting about that too! __ SHOW NOTES Learn more about Dr. Lina Patel here. Buy Potty Time for Kids with Down Syndrome: Lose the Diapers, Not Your Patience on Amazon.com or woodbinehouse.com Check out this wooden stool and training toilet Micha is using for potty training her son, Ace. LET'S CHAT Email email@example.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email firstname.lastname@example.org for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support
Today on Exploring the Marketplace, Shawn Bolz & Bob Hasson interview, Author, Illustrator & Down Syndrome Awareness Advocate, Jordan Burk. Jordan travels to schools sharing the message of love, acceptance and kindness everywhere he goes. Tune in as Shawn, Bob & Jordan share his story of being a caregiver for 14 yrs to his Uncle Kelly who had Down Syndrome who inspired him to create the Kelly and Kelos series to teach children to see value in others who look or act differently. Jordan shares his journey of writing books that was confirmed through a prophetic word and the way he is keeping his uncle's memory alive by writing more Kelly & Kelso stories.
Hi Friends, Before we get into today's episode, will you please take a moment to fill out our short listener survey? Today I am joined by Amanda Cunningham, founder of The Glory Days Co., a company that provides organizational tools for parents and caregivers of special needs children. Amanda shares her story of giving birth to her beautiful daughter Aurora “Rory” and finding out upon her arrival that she had Down Syndrome. She walks us through the early months following Rory's birth and speaks candidly about how she struggled with feelings of overwhelm. From attending weekly doctors and therapy appointments, to wading through the unexpected newness of becoming a stay-at-home mom. When looking for tools to support her in this new role as a special needs parent, she couldn't find anything that encompassed everything Rory needed. So Amanda created her own planner filled with checklists, calendar, daily tasks and a robust notes section to document the countless appointments and therapies required to help Rory thrive, and now helps parents everywhere do the same. During our conversation we talk about: Her unexpected transition to stay-at-home caregiver from working professional The role that both physical and calendar organizers play in raising a child with special needs The importance of routines to help everyone to flourish October is National Down Syndrome Awareness Month, I encourage you to check out The Glory Days Co-for free downloads, articles and some amazing products. CONNECT WITH AMANDA WEBSITE | INSTAGRAM | BLOG AMANDA'S BOOK RECOMMENDATIONS RISING STRONG | THE BLESSING | THE LUCKY FEW Please support us! FOLLOW TOL to have new episodes downloaded each week! REVIEW Social influence is the most impactful way to help others find our show! Struggling with Clutter? Click HERE to take our FREE clutter quiz! Stop feeling like a Hot Mess! HOT MESS: A Practical Guide to Getting Organized is my witty little survival guide that helps you get to the root of your clutter. Learn about the 3 types of clutter, Physical, Emotional, and Calendar, along with how to avoid the 5 Clutter Pitfalls. Now is the time to reclaim time, find freedom, and feel empowered from the “stuff” that is holding you back. Available on amazon ,barnes & noble or wherever books are sold. Connect with Me WEBSITE | FB | IG | PINTEREST
Alright friends, it's time to talk SOCIAL STORIES, those magical little books that help our kiddos with Down syndrome understand what's expected of them in a new environment. Social stories are game changers when it comes to managing behaviors and transitions.. but don't just take it from us. We have a social story expert on the show today! Dr. Lina Patel is a speaker, consultant, researcher, professor, and psychologist with almost 10 years of experience in the DS world. She's breaking down the basics including the key elements (visuals, first person language, problem solving, and simplicity!) + she's sharing some of her favorite resources for creating social stories. And maybe most importantly, we're chatting about WHY certain behaviors occur and what we can do to support our kiddos in moments of stress. If you've ever thought about creating a social story, this is a good place to start! __ SHOW NOTES Learn more about Dr. Lina Patel here. For more information on social stories, head to carolgraysocialstories.com Check out some sample social stories on teacherspayteachers.com For social stories on the go, check out the special stories app LET'S CHAT Email email@example.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email firstname.lastname@example.org for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support