Genetic disorder, "trisomy 21"
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On a "Best of Chris Fabry Live," we're going back to World Down Syndrome Day, which was celebrated in March. On that day we opened the phone lines and asked listeners to respond to this question: How has your life been affected by someone with Down Syndrome? How have you been enriched by someone who has an extra copy of chromosome 21? The joy that came from those calls is something special—hear them on Chris Fabry Live. Resource mentioned:Made with Love video of Joy and Stephan November thank you gift:The Little Christmas Carol Coloring & Activity Book by Joe Sutphin and Erik M. Peterson Chris Fabry Live is listener-supported. To support the program, click here. Care NetBecome a Back Fence Partner: https://moodyradio.org/donateto/chrisfabrylive/partnersSee omnystudio.com/listener for privacy information.
In this episode, Kathleen and Chris Vander Woude reflect on the extraordinary life of Tom Vander Woude — a devoted husband, father, and disciple of Christ. As Chris shares personal stories of his father, the conversation honors Tom's quiet heroism, deep Catholic faith, and unwavering love for his family. Tom gave his life to save his son Joseph, who has Down Syndrome. With discussions on fatherhood, faith, and pro-life convictions, this episode also explores the inspiring legacy that has led to early steps toward Tom's potential canonization. Chris Vander Woude is the 5th of 7 sons born to Tom and Mary Ellen Vander Woude. He has worked in Catholic education for 18 years, serving as Dean of Students and Athletic Director. Chris lives in Virginia with his wife of 18 years, Katie, and daughter Zellie.
Welcome to the Pinkleton Pull-Aside Podcast. On this podcast, let's step aside from our busy lives to have fun, fascinating life giving conversation with inspiring authors, pastors, sports personalities and other influencers, leaders and followers. Sit back, grab some coffee, or head down the road and let's get the good and the gold from today's guest. Our host is Jeff Pinkleton, Executive Director of the Gathering of the Miami Valley, where their mission is to connect men to men, and men to God. You can reach Jeff at GatheringMV.org or find him on Facebook at The Gathering of the Miami Valley.Aaron Shust's fascination with music—with unique sounds, melodies, progressions, and techniques—has always been a salient part of who he is. From an early age, Aaron has felt most at home in front of a piano. Just as innate to Aaron is his love of God's Word—of wrestling with the Scriptures, with the hard and beautiful things they say, and the way they foretell and fulfill a picture of a suffering servant, King Jesus.You'll hear these twin loves in Shust's music, from his debut success with “My Savior My God,” winning the 2007 New Artist, Songwriter and Song of the Year. Later, as he grappled with a surprise Down Syndrome diagnosis for one son and waged a war with chronic illness for two, he continued to declare “My Hope is in You,” a song which spent 14 weeks at #1, and “Ever Be,” which debuted at #3 on the NCA chart. Over the past several years, Aaron has delved deeply into friendship with Messianic Jews, both in Nashville and Israel, as well as into the Hebrew Scriptures and Jewish tradition that they yield. Shust, a native of Pittsburgh, makes his home in Nashville with his wife Sarah and their sons Daniel, Nick, and Michael, as well as a growing menagerie of pets.
Transcript: rmad.ac/AIAe081This week's podcast guest is Jordan Burk. Jordan is the author of the Kelly And Kelso Children's book series and the creator of Kelly and Friends, an animated series currently in development that's set to be the first US cartoon with a lead character who has Down syndrome. Inspired by his late Uncle Kelly, Jordan writes stories that celebrate kindness, friendship, and the value of every child. Known to students as, That Koala Guy, thanks to Professor Kelso, his six-foot plush sidekick, Jordan brings laughter and life lessons to schools, libraries, and stages across the country. He's been recognized nationally for his work, but at the heart of it all, his mission is simple to remind us that being different is something to celebrateConnect with Jordan: Discover Kelly & Kelso Series - Inspiring Stories of Special Needs Advocacy by Jordan BurkKelly and Kelso | FacebookKelly & Kelso ™ (@kellyandkelso) • Instagram photos and videosConnect with the Rocky Mountain ADA Center at RockyMountainADA.org or find us on social media. Don't forget to subscribe, rate and review us on Apple Podcasts, Stitcher, Spotify, or anywhere else you get your podcasts!
On Season 11, Episode 9 of The LowDOWN: A Down Syndrome Podcast, Sarah and Carlo Paqueo give us the lowdown on life with their son Ronin.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Our guest this week is Greg Corey of Highland Park, IL a wealth manager at Ameriprise Financial Services and father of three children including a son with Down Syndrome.Greg and his wife, Carly, have been married for 10 years and are the proud parents of three children: Ashton (4), Frankie (6) and Presley (8), who has Mosaic Down syndrome, which was not detected or diagnosed until he was three years old. We also learn about a host of organizations that Presley has benefited from including: Northern Suburban Special Recreation Association (NSSRA)Kick Start Therapeutic Day Care, andGigi's PlayhouseIt's an uplifting story about commitment to family and service to others all on this episode of the SFN Dad to Dad Podcast. Show Links - Phone - (847) 847-2134 Email – gregorycorey@gmail.comEmail - greg.corey@AMPF.com LinkedIn – https://www.linkedin.com/in/gregoryjcorey/ Website – https://www.ameripriseadvisors.com/gregory.corey/Special Fathers Network -SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/ SFN Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Special thanks to SFN Mentor Father, SFN Mastermind Group dad and 21CD board member Shane Madden for creating the SFN jingle on the front and back end of the podcast..
Chalee and Chelsea have been away for awhile so we get back to business talking about current events and trends from a homeschool biblical worldview. Also we try a new fall treat. Come along!
Dr. Kristie Marble is a pediatric hospital medicine physician at Children's Mercy Hospital in Kansas City, MO. She joined the podcast to discuss reasons why a child with Down syndrome might be admitted to a hospital and ways to advocate for them to bring them back to health before discharge. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
On this episode of the Osborne Adventure Podcast, Val and I sit down to celebrate Down Syndrome Awareness Month the best way we know how, by talking about the myths we have heard, the truth we have lived, and the moments that made us laugh along the way. From the idea that people with Down syndrome are always happy (they aren't) to the myth that everyone with Down syndrome looks the same (they don't), we share what is actually true in our world with Ren.You will hear about the letter A standoff, the epic starfish counting moment, and Ren's plan to live with his friends one day. It is real life with a side of humor, honest, personal, and full of love for the kid who keeps us on our toes and reminds us not to take anything too seriously.CLICK HERE to leave a comment or ask a question.CLICK HERE to check out our t-shirts, hoodies and hats!CLICK HERE to check out the Safe Bed Model 100 by Safe Place Bedding and use discount code "sleepwell10" for a 10% discount on anything on the site.A Huge Thanks to our Partners!Battle Born BatteriesGoDuRonstanTylaska MarineWichard GroupYacht SolutionsFor more information visit our website:www.osborneadventure.comDonate Today (Osborne Adventure is a 501c3 nonprofit):https://www.osborneadventure.com/donationsFollow Us on Instagram:www.instagram.com/osborneadventure
From fairground palmistry to the science of fingerprinting, historian Alison Bashford explores the secrets, history and psychology of the hand.Alison was in a London library when she discovered a ginormous palm print of a gorilla, taken two days after it died at London Zoo in the 1930s.She had no idea whatsoever about why someone had made this mysterious print, or why it had been kept in pristine condition for all these years.Alison plunged into researching the history of the hand, from fairground palm reading to Jungian analysis.She was transported into the magical, scientific and pseudo-scientific attitudes to markings on the body.She encountered Victorian wellness entrepreneurs, how Down Syndrome was first diagnosed in neonates, and celebrity palm readers whose influence reached all the way to former British Prime Minister, William Gladstone.Further informationAlison's book Decoding The Hand: A History of Science, Medicine, and Magic is published by The University of Chicago Press.This episode of Conversations was produced by Alice Moldovan. The Executive Producer is Nicola Harrison.To binge even more great episodes of the Conversations podcast with Richard Fidler and Sarah Kanowski go the ABC listen app (Australia) or wherever you get your podcasts. There you'll find hundreds of the best thought-provoking interviews with authors, writers, artists, politicians, psychologists, musicians, and celebrities.This episode explores gypsies, Roma, palm reading, fortune telling, psychology, psychoanalysis, Charlotte Wolff, Carl Jung, Weimar Germany, Nazi Germany, Brahmin, palmistry, cheiromancy, Cheiro, writing a book, university, Hollywood, 1930s Hollywood, celebrity, Down Syndrome, diagnosis, genetics, eugenics, Lionel Penrose, BBC, simian line, occult, Francis Galton, Ellis Family and British Institute for Mental Science.
On Season 11, Episode 8 of The LowDOWN: A Down Syndrome Podcast, Eleni Bakolias gives us the lowdown on providing truly inclusive childcare.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Send us a textWe share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward's memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence.• Red Hat Society join and conference highlights• Down syndrome and CHD awareness link• Upcoming Zoom listening session details• Live recording on transition and life stages• Ayrton's diagnosis of drug‑induced Long QT• Warning signs during exercise and daily walks• Role of wearables in spotting heart‑rate thresholds• Tapering off venlafaxine and mental health impact• Switching to citalopram and ongoing vigilance• Triggers to avoid including sudden noises and swimming• Practical safety tips including hydration and potassium• Advocacy advice and seeking second opinions• Remembering Edward and hidden electrical disordersJoin us on November 25th, 2025 at 4 p.m. Central Time for a Zoom listening event to hear Ellen Boyer's episode "Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects.” Here is the Zoom link: https://tinyurl.com/HUGZoomRoomPatrons, meet us on October 30th at 4 p.m. Central Time for our live recording on "Transition and Life Changes." Here is the Zoom link: https://tinyurl.com/HUGZoomRoomSupport the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite
Down Syndrome Awareness Month Series: “Happiness is Down Syndrome” with Misty Snyder Welcome back to the Down Syndrome Awareness Month Series! Today, we're joined by a truly inspiring guest — Misty Coy Snyder. Misty is an actor, singer, writer, entrepreneur, and a powerful advocate for the Down syndrome community. After receiving a prenatal Down syndrome diagnosis for her second son, Misty created a global platform called Happiness is Down Syndrome, promoting inclusion, awareness, and the beauty of diversity. She currently serves as the Creative Director for Global Outreach and Advancement at RODS Heroes, and in 2023, she launched her own podcast, Bold Voices, Soft Hearts, sharing moving stories of those who've found passion through pain. Get ready for a heartfelt and hopeful conversation with Misty as we celebrate the voices that are changing the world — one story at a time. Bio: Misty Coy Snyder is an actor, singer, writer, entrepreneur, content creator and advocate for the Down syndrome community. She recently accepted the role of Creative Director for Global Outreach and Advancement for Down syndrome at RODS Heroes, which seeks to uncover the superpowers of individuals with Down syndrome. Upon receiving a prenatal Down syndrome diagnosis for her second son in 2020, she created a worldwide platform to promote inclusion and awareness called, Happiness is Down syndrome. She launched her own podcast in 2023 called, Bold Voices, Soft Hearts, which features stories of those who have discovered their passion through pain. She, along with her family hope to show the beauty of diversity on a global scale! Contacts: https://youtu.be/BYQuLinx_dA?si=9xW6pFLOQjtALp8g https://www.instagram.com/happinessisdownsyndrome?igsh=YjJ2dnlxaGNtazFq&utm_source=qr https://www.instagram.com/mistycoysnyder/profilecard/?igsh=NWg4OGJncDdkenoy For a family raising a child with special needs, life can be difficult. There are many storms to weather and struggles to address, and we often feel isolated and alone due to the nature of our circumstances. Families have a need to connect and find resources, a need to be encouraged, and a need for hope as we walk down what can be a very hard road at times. Hope on the Hard Road Special Needs Podcast was created for this purpose. Our vision is to grow a thriving community, where families with children of all ages with special needs can feel connected, be encouraged, and find hope for the road ahead. Connect with Us: If you enjoy this podcast please share us with others and be sure to follow us so won't miss an episode. We'd love to hear from you so please leave us a comment or rating and connect with us on social media or on our website. Email us: info@hopeonthehardroad.org Website: https://hopeonthehardroad.org/ Instagram: https://www.instagram.com/hopeonthehardroad/ Facebook: https://www.facebook.com/hopeonthehardroad/ Facebook Group: https://www.facebook.com/groups/2621447987943459 Free Youtube Resource Library: https://www.youtube.com/playlist?list=PLsSAfvTkSy87X-fEqtVR2qvo7w9UQBuxz Disclaimer: The views and opinions expressed by guests on this podcast are their own and do not necessarily reflect those of Hope on the Hard Road, Inc. This podcast is for informational purposes only and is not intended as professional, medical, or legal advice.
When Rachel Hill's son, who has Down Syndrome, left school there were limited options for his employment, education and training.
Stella Herbert and Amy Campbell join Tubes to chat about Down Syndrome Tasmania’s inaugural Spring Fling at the Moonah Arts Centre this Saturday, a night of music, performances, art, and fundraising.See omnystudio.com/listener for privacy information.
Love Is Blind: Jim is sharing more trash tv as he has some clips from the latest season of Netflix's Love Is Blind. You're gonna PEG Anton?! Andy Richter DWTS: We keep the trash tv talk going as we check in on our boy Andy Richter on Dancing With The Stars during Disney Night. Circus Queen: Adrien Skye's new single has been revealed! She is the CIRCUS QUEEN aka Jared Leto Joker Girlfriend. And Gothspel release at the end of the month. THE BEAR!, FUCK YOU, WATCH THIS!, CARRY ON MY WAYWARD SON!, KANSAS!, SUPERNATURAL!, DOWN SYNDROME!, VICTORIA'S SECRET!, VAPE CALL!, LOVE IS BLIND!, NEW SEASON!, SEASON 9!, AWKWARD!, CRINGE!, PATRICK!, PODS!, NETFLIX!, TRANSFORMATIVE!, TRASH TV!, POD SEX!, VOCAL FRY!, BABY SEAL!, FLIRTY!, SHANE GILLIS!, LET'S GO!, PROPOSAL!, SPARKLE MEG!, EMMA!, ANDY!, RATATOUILLE!, GLEB!, HILARIA BALDWIN!, STAR WARS!, GALAXY'S EDGE!, ALEC BALDWIN!, THEME PARK TALK!, GLEB OVERRATED!, GUYLINER!, COREY'S TWITTER!, GRAMMY'S!, CONSIDERATION!, ADRIEN SKYE!, MIKE G!, PRODUCER!, VAMPIRE'S BALLAD!, SING A LONG!, I WANT TO PLAY A GAME! You can find the videos from this episode at our Discord RIGHT HERE!
In this incredibly personal and moving episode, we sit down with Teejay and Jon, the authors of the gentle children's book Clemence, to share the full, raw story of their daughter, Nadiya. Their journey began with an unexpected connection—a transatlantic online romance between Teejay in Australia and Jon in Canada—that quickly turned into a marriage grounded in a shared life and purpose. With Teejay's extensive background in early childhood development and their experience fostering a young man with Down syndrome, they felt prepared when Nadiya was diagnosed with Trisomy 21 (Down syndrome) early in the pregnancy. However, Nadiya's complications were severe: a complete AVSD (Atrioventricular Septal Defect), a heart condition that made survival a constant battle. Teejay and Jon open up about the grueling reality of Nadiya's three-month, extended NICU stay. They speak candidly about the sheer exhaustion, the mental toll of the incessant alarms and machine noise, and the profound isolation of making life-and-death decisions under unimaginable pressure. We explore the difficult but necessary truth of grieving alongside a partner who processes loss in a completely different way. Jon, an extrovert, sought normalcy and company, while Teejay, an introvert, needed space and quiet isolation. They explain how establishing mutual respect and seeking professional counseling were the key foundations that saved their marriage during this seismic time. Finally, they share the powerful mission behind their book, Clemence. Written to honor Nadiya's memory, it provides a crucial tool for families, helping them talk to children about baby sibling loss. They reveal plans for a sequel to address the unique grief of the "neglected mourners"—the subsequent children born after a loss who never met their older sibling. This conversation is an essential listen for anyone in the NICU community, processing loss, or seeking resources for pediatric grief support. Note: We recognize this episode addresses Infant and Pregnancy Loss Awareness. We stand with all families who have experienced loss and hope this conversation brings comfort and community. Episode Highlights & Timestamps Time Topic 00:05:48 Nadiya's Diagnosis: Trisomy 21 and the severe complete AVSD Heart Condition. 00:07:07 The NICU Reality: Coping with the three-month extended stay and constant medical crisis. 00:11:05 Profound Kindness: The stranger's DoorDash order that helped them survive the crisis. 00:13:28 Nadiya's Spirit: Her curiosity, determination, and "badass" personality that charmed the nurses. 00:22:10 Grief in Marriage: Navigating different coping styles (Introvert vs. Extrovert) to stay together. 00:24:25 What Helps? The power of presence and what to say (and what NOT to say) to grieving parents. 00:30:46 A Continuing Legacy: Writing the sequel for Clemence to support subsequent siblings. Connect & Resources Connect with Authors Teejay & Jon: You can find their children's grief book, Clemence, available on [Amazon, Barnes & Noble, Indigo (Canada), and all major book retailers]. Support & Grief Resources: For additional support and resources mentioned in the episode, please visit: Canuck Place Children's Hospice Kids Grief Support (Jessica Correnti) Support the Host & Show If you found value in this conversation, please check out host Katie Taylor's work and community resources: Join Katie Taylor's Substack for in-depth insights and articles: Join here Find community and support with the SupportSpot App (a helpful resource for organizing and receiving support during difficult times): Check it out Listen & Subscribe!
On Season 11, Episode 7 of The LowDOWN: A Down Syndrome Podcast, Hilary Gauld gives us the lowdown on promoting Down syndrome visibility through photography.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Kathy Bostjancic, chief economist at Nationwide and the chair of the Outlook Survey for the National Association for Business Economics, says the latest survey, released Monday, showed higher expectations for economic growth for the rest of the year and into 2026, with GDP growth -- which had been pegged at roughly 1.3% -- now expected to grow by 1.8%. Bostjancic cautioned that the improved growth forecasts don't make for a frothy economy, but rather seem to reduce the chances of recession. She says that economists improved their outlook, largely because they were too pessimistic earlier this year as they forecast the impacts of tariffs and expected more of a drag on growth than we have seen in the last six months. In the Market Call, hedge fund manager Nitin Sacheti of Papyrus Capital discusses his long/short approach to stocks, and how he hunts out "special situations" that he believes are poised for above-average growth. Sacheti is a "Tiger Cub," a disciple of Julian Robertson, a legendary hedge fund manager. Plus, Chuck answers a question from a listener who, like himself, has a new grandchild, but who has very different concerns because that baby has been diagnosed with Down Syndrome. Rich Yam, director of wealth strategy/wealth and tax planning at Wealthspire Advisors, helps Chuck examine the various considerations that a special-needs family should have, and how grandparents can provide real help for a lifetime.
Country singer and songwriter John Paul Von Arx joins Oscar for a heartfelt and uplifting conversation about what it truly means to see the image of God in every person. We talk about human dignity, authentic respect, and how to move beyond superficial inclusion when engaging with people who have Down syndrome or other disabilities. From lessons learned in MMA fights to everyday encounters that challenge our perceptions, this episode invites you to see others—especially those the world overlooks—with new eyes and a fuller heart. We would love it if you could leave a written review on Apple and share with your friends! Editing provided by Forte Catholic (https://www.fortecatholic.com/)
Unlock the keys to compassionate communication and discover transformative support for families with newborns diagnosed with Down syndrome. Join us for an inspiring conversation with Silvia Segales-Angel, an early intervention specialist from Down Syndrome Ireland, and Emer O'Sullivan, mother of the spirited Maisie. We'll shed light on the powerful Tell it Right program, which aims to guide healthcare professionals in delivering a Down syndrome diagnosis with empathy and clarity. Emer shares her candid experience, emphasizing the profound impact of language and early support on her journey with Maisie. Through this episode, we offer guidance on navigating the overwhelming influx of information, fostering a supportive environment where families can thrive together. For more information: https://downsyndrome.ie/ Sponsored by: www.happytummy.ie Learn more about your ad choices. Visit megaphone.fm/adchoices
Life brings Luke Wolf, a war veteran, back to his hometown, where his sister is, who has Down Syndrome. Things are different, or maybe it's just that now he's different. After years of running from his problems, Luke must face his monsters. MONSTERS WITHIN was written, directed, produced, and stars Devin Montgomery (Worm). The film was executive produced by Curtis Gardner and also stars Kendall Cavener (The Last Rodeo), Skeeta Jenkins (Puppet Master: The Littlest Reich, Jakob's Wife, Satanic Panic), Daniella Montgomery, Brandon Stewart (Sovereign) who was also the DP, and Samuel French (Killers of the Flower Moon, Fear The Walking Dead) in his final starring role before his tragic death. French has won several Best Supporting Actor awards for his intense performance in MONSTERS WITHIN, and the film is dedicated to him. The character of "Elle," who is the main character's sister and the heart and soul of the movie, is played by Devin Montgomery's actual sister, Daniella Montgomery. She has performed at several events for the Down Syndrome Associations and Special Needs choir in Oklahoma. The story of the bond between a brother and sister, with one having special needs, being portrayed as authentically and real as possible, was very important to both Devin and Daniella Montgomery. This award-winning film has screened at numerous film festivals including WorldFest-Houston International Film Festival - WON BRONZE for BEST FIRST FEATURE FILM, Edinburgh Independent Film Festival - WON BEST LEAD ACTOR (Devin Montgomery), Stockholm City International Film Festival - WON BEST ACTOR (Devin Montgomery), Cowpokes International Film Festival - WON BEST SUPPORTING ACTOR (Samuel French), Bare Bones International Film Festival - WON AUDIENCE CHOICE FOR BEST FEATURE FILM and BEST ACTOR (Devin Montgomery), Red Dirt International Film Festival - WON BEST FEATURE FILM, Indie Vegas Film Festival - WON BEST HORROR/THRILLER FEATURE FILM, Massachusetts Independent Film Festival - awarded an OUTSTANDING ACHIEVEMENT FOR FIRST FEATURE FILM, among many other festivals. MONSTERS WITHIN has a running time of 100 minutes and will not be rated by the MPAA. Buffalo 8 will release the film on digital platforms on October 3, 2025. The film will premiere on Cineverse's Screambox on November 7 in time for Veterans' Day. To view the trailer, go to: https://www.youtube.com/watch?v=ZWHJj4P6N7E For more information, go to: https://www.monsterswithinmovie.com/ Social Media Handles: https://www.instagram.com/monsterswithinmovie/ Tik Tok: https://www.com/@monsterswithinmovie/ YT: Watch the Full Interview on https://youtu.be/Dxq7S2Ck7Uw Stay conneted with me: https://www.chonacas.com/links/
Laura Mattie and Alex Barkhimer from the school of Speech and Hearing Science at the University of Illinois joined the podcast to talk about the exciting Speech Accessibility Project to help Big Tech companies create devices that can understand people with speech differences. To find more about the project, go to https://speechaccessibilityproject.beckman.illinois.edu. If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
Join me for some very special guests, TEAM IRON WILL, who celebrate the perseverance of children with Down syndrome and their families. We will be discussing the intrinsic value of people with Down Syndrome and why we need to advocate for them.Go HERE to learn more and support families and children with Down Syndrome:https://www.teamironwill.org/TRIVITA:Use my TRIVITA link to get started on your wellness journey: https://bit.ly/restored-healthORCALL: 800-991-7116 and use gift card number: RSCBSQRJ PIN: 5398 Covenant Eyes: If you want to protect yourself and your loved ones from the dangers of p*rn, get Covenant Eyes: https://bit.ly/Restore-CovenantUSE CODE RESTORE30 at checkout to get your first 30 days FREE when you use the link ✅Other ways for you to support the ministry:
On Season 11, Episode 6 of The LowDOWN: A Down Syndrome Podcast, Jeni Carcamo and Ana Lazcano give us the lowdown on supporting Latin Down syndrome families.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
A Dover woman has been detained in a psychiatric unit after randomly attacking a stranger in the street with a kitchen knife.The victim was taken to a London hospital for treatment after she was stabbed in the back while walking down Biggin Street in January.The KentOnline Podcast has been told 90% of retailers in Tunbridge Wells have complied with new rules around single use vapes since they were introduced in June.That's 10% higher than in other parts of the county.The town was the first in Kent to take part in a 'Local Vape Action' scheme where experts work with shops.A man who drove from Dartford to Maidstone to meet a child he'd been sending explicit messages to on Snapchat has been jailed.The 47-year-old had arranged a meeting in February but was intercepted by police who spotted his van being repeatedly driven in and out of a car park.A Kent charity says Ellie Goldstein's appearance on Strictly is showing the world what people with disabilities can achieve.Before taking to the dancefloor this season, Ellie made history by becoming the first model with Down Syndrome to feature in British Vogue. Hear from We Are Beams which supports young people and their parents in north Kent.A mum from Walderslade says she was inspired to take up a career in funeral arranging, following the death of her baby.Delphine Craig went into early labour with her son and sadly lost him at around 21 weeks in 2006.Despite working for 13 years as a martial arts teacher - the 47-year-old is now working at the Co-op Funeral Care in Sittingbourne High Street.And in sport, Gillingham are in EFL Trophy action tonight as they travel to take on Colchester United.It follows back-to-back defeats in the league after a record breaking run of 21 games unbeaten. Hear from defender Logan Dobbs. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.
We've got some multi-tasking, multiple-hat-wearing filmmakers on this week's BEHIND THE LENS as we're looking at two indie gems with two wonderful filmmakers – LISA BRENNER, who is discussing her feature narrative screenwriting debut, ONE BIG HAPPY FAMILY, which she also produces and in which she stars alongside Linda Lavin in her final big screen performance; and DEVIN MONTGOMERY, who makes his feature directorial debut with the drama MONSTERS WITHIN. And like Lisa, he also stars in his film, as well as serving as writer and editor. ONE BIG HAPPY FAMILY, which is based on Lisa's own life, explores themes of family, identity, and unity, all done with heart and laughter. On her 40th birthday, Rachel is grappling with a looming midlife crisis and the nerve-wracking task of delivering a speech at her daughter's Bat Mitzvah. But when a DNA test unexpectedly reveals that she's only half-Jewish and her beloved father isn't her biological parent, Rachel's life is thrown into disarray, and suddenly, she's embarking on a hilarious journey with her eccentric mother Lenore to find out who she really is. And as if you hadn't already guessed, Linda Lavin plays eccentric mother Lenore to Lisa's Rachel. Then we go a bit darker with DEVIN MONTGOMERY and MONSTERS WITHIN, the story of Luke Wolf, a war veteran, who returns to his hometown, where his sister Elle is, who has Down Syndrome. Things are different, or maybe it's just that now he's different. After years of running from his problems, Luke must face his monsters. Written, directed, produced, edited, and starring Devin as Luke Wolf, MONSTERS WITHIN also stars Samuel French, Skeeta Jenkins, Daniella Montgomery, Kendall Cavener, and Katy Hayes. http://eliasentertainmentnetwork.com
Send us a textCasey and her son, Cannon, talk about how fun being a big brother to someone with Down Syndrome is!Support the show
Twin and special needs mom Missy Haughery shares her journey of raising twins—one with Down syndrome—and the lessons she wishes she'd known from the start. She is as candid about the struggles, in parenthood and marriage, as she is about the lessons and the joy. It all helped shape the family she loves. If you've ever gotten a diagnosis that feels overwhelming, you'll be empowered by Missy's story of encouragement, perspective, and practical advice for parents navigating a similar path.
On Season 11, Episode 5 of The LowDOWN: A Down Syndrome Podcast, Kailey and Sam DeLucry give us the lowdown on friendship and psychological well-being for children with Down syndrome.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Down syndrome, also known as Trisomy 21, is a common genetic condition affecting roughly 1 in 700 live births in the United States. A recent study that came out in February 2025 that studied skin cells from an individual with Down syndrome to determine if it was possible to genetically engineer the extra chromosome out of the DNA. This study's aim was to see if it was possible to use CRISPR-CAS9 (a technology used to modify genetic code and expression), to be able to completely knock out a chromosome. The reason these researchers used the DNA from an individual with Down syndrome was because the third chromosome is a clear marker that they can see easily to determine if they were successful or not. However, one Press Release article covering this research wrote a piece that incorrectly frames the study as a possible way to "cure" Down syndrome, which is not at all what the researchers were attempting to do. This week, Dr. Jonathan Karp and student producer Kaya Basatemur go through the details of this study, what the scientists' goals were, and why the Press Release article did not accurately describe anything that the researchers did. Tune in to find out more about this interesting study, possible future research, and practical uses of CRISPR-CAS9 genome editing technology!
Meredith Peterson joined the podcast to talk about the Parent Education & Advocacy Leadership (PEAL) Center. Since 2005, the PEAL Center has been committed to serving families and professionals across Pennsylvania. Today PEAL works with families, youth and young adults with disabilities and special health care needs to help them understand their rights and advocate for themselves. Through our unwavering commitment to inclusion and our guiding values, we empower families and individuals to be included in their home schools and access high quality, coordinated physical and behavioral health care. PEAL's services are provided at no charge to families as they are funded by private donations and federal, state, and private grants. For more information: PEAL Center: https://www.pealcenter.org/ CIPIR (Center for Parent Information and Resources) https://www.parentcenterhub.org/ - where to find your state's PTI Upcoming Wrights Law Training on 9/18/25: https://www.tfaforms.com/5171156?tfa_2400=PEAL If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
Steve Chatman is Vice President of Rising Above Ministries and host of the Rising Above Dads Podcast. Steve and his wife Lori have five children and four grandchildren. Steve is a special-needs dad as two of his children are living with Down Syndrome. Steve spent 30 years in church ministry before joining Rising Above Ministries in 2022. He loves encouraging and equipping families and churches. In this episode we chat about:Timeline: 00:46 Introduction and Steve's Bio.02:46 Rising Above Ministries04:00 Weekend Respite Program By the Brook & Base Camp.06:00 How do wives give permission for husbands to rest. "What special needs dads want you to know but don't tell you about"11:26 Communication between partners. How do you ask for a break or respite?15:15 Find 30 minutes a week (suggestive but by no means minimum) to connect regard scheduling and updating partners17: 00 Rising Above Dads Podcast22:00 ConclusionRelated Episode 146
In this week's episode, we'll learn more about relationships between Epstein-Barr virus genomic variants and human diseases, including hematological malignancies; the presence and timing of somatic GATA1 mutations and their relationship to a Down syndrome-specific form of leukemia; and new definitions for high-risk multiple myeloma that emphasize the presence of two or more high-risk cytogenetic abnormalities.Featured Articles:Association of Epstein-Barr virus genomic alterations with human pathologiesClinical significance of preleukemic somatic GATA1 mutations in children with Down syndromeBiallelic antigen escape is a mechanism of resistance to anti-CD38 antibodies in multiple myeloma
On Season 11, Episode 4 of The LowDOWN: A Down Syndrome Podcast, Tabish Shazad gives us the lowdown on the Karachi Down Syndrome Program.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Russ Ewell says, "Fortune smiled on me the day I became a father of a family with disabilities. Human limits became real as I watched my sons fight to overcome Autism and Down Syndrome. Their inspired efforts increased the intensity of purpose shared by my wife and me. We learned to live differently."Significant numbers of people fear being different. Disability has served to help my family and I overcome this fear. It has clarified what's important and freed us from convention. The struggle has consistently opened our eyes to the discovery necessary to overcome our family's human limits.This has been my personal journey. As a minister, I've applied what I've learned from my family's experience to my spiritual life and process, constantly looking for ways to grow and refusing to settle for tradition or convention. This type of transformative thinking is something I believe a relationship with God should do for everybody.Russ joins Dale on today's podcast to help us understand how to think differently in our leadership when it comes to reaching the next generations. This is a lively conversation that you will find to be very helpful.Show Notes: https://www.95network.org/learning-how-to-lead-differently-w-russ-ewell-episode-304/Support the show
Join us today for a return visit with the marvelous Ebbe as she discusses an upcoming celebration of Down Syndrome… and reveals on air for the first time a fascinating secret about her connection to Alika and Emille…
All Home Care Matters and our host, Lance A. Slatton were honored to welcome the team from the National Down Syndrome Society as guests to the show. About Margot Rhondeau: Margot Rhondeau is the Senior Director of Health & Wellness for the National Down Syndrome Society (NDSS) where she leads the creation of resources and programming to improve health and wellness within the Down syndrome community. Margot joined NDSS in 2020, bringing 14 years of experience working in the health space, both internationally and nationally, to overcome barriers to care and increase health services and programs for underserved populations. Margot is the proud mother of a child with Down syndrome. She enjoys hiking, taking her children on adventures and advocating for inclusion and acceptance. About Charlotte Woodward: All Home Care Matters and our host, Lance A. Slatton were honored to welcome the team from the National Down Syndrome Society as guests to the show. About Margot Rhondeau: Margot Rhondeau is the Senior Director of Health & Wellness for the National Down Syndrome Society (NDSS) where she leads the creation of resources and programming to improve health and wellness within the Down syndrome community. Margot joined NDSS in 2020, bringing 14 years of experience working in the health space, both internationally and nationally, to overcome barriers to care and increase health services and programs for underserved populations. Margot is the proud mother of a child with Down syndrome. She enjoys hiking, taking her children on adventures and advocating for inclusion and acceptance. About Charlotte Woodward: Charlotte Woodward is the Education Program Associate for the National Down Syndrome Society (NDSS) where she supports the development of education-related resources and educational policy initiatives. Charlotte was born with Down syndrome, as well as a heart condition, and had four open-heart surgeries when she was young. She is one of the very few people born with Down syndrome to receive a life-saving heart transplant, and she regularly shares her story to educate and advocate for others. Charlotte holds an associate degree from Northern Virginia Community College and recently graduated Suma Cum Laude from George Mason University with a bachelor's degree in sociology with a concentration in inequality and social change. About Anna Fedewa: Anna Fedewa is the Senior Manager of Government Relations for the National Down Syndrome Society (NDSS) where she leads and directs the organization's work to influence federal, state, and local policies and regulations that impact people with Down syndrome. Anna's passion for advocacy and disability rights grew from the friendships she made with individuals with Down syndrome and other disabilities as a young child and was further cultivated during her time teaching high school special education and working with her alma mater's inclusive post-secondary program. About the National Down Syndrome Society (NDSS): Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. NDSS engages grassroots advocates at the federal, state, and local levels and creates resources to support individuals with Down syndrome, their families, and caregivers across the lifespan on topics including education, employment, health and wellness, and aging. NDSS founded the National Buddy Walk® Program in 1995 and hosts community engagement events throughout the country including the New York City Buddy Walk® and Times Square Video, the NDSS Adult Summit, and the Down Syndrome Advocacy Conference. Visit www.ndss.org to learn more. Advocacy & Policy: NDSS advocates for federal, state, and local policies and regulations that positively impact people with Down syndrome across the country and affirm their human rights. Through grassroots advocacy, NDSS empowers community advocates to work with Congress and federal agencies, as well as state and local officials, to develop and improve policies and regulations for the benefit of the Down syndrome community. NDSS further empowers individuals with Down syndrome, their families, and other community members to influence policy at the NDSS Down Syndrome Advocacy Conference in Washington, D.C. The NDSS legislative agenda spans the life of individuals with Down syndrome from birth to adulthood including healthcare, education, employment, and economic self-sufficiency. Resources & Support: NDSS is committed to providing individuals with Down syndrome, their families, caregivers, and the public with information to support them from birth to end of life. Through events, videos, publications, and our website, NDSS provides free resources on a variety of topics including health, wellness, education, employment, adulthood and aging, financial wellness, and information for new and expectant parents. Our Adult Summit conference addresses the needs of teens and adults with practical resources and educational opportunities for individuals with Down syndrome, families, caregivers, and professionals. Community Engagement: NDSS community engagement events and activities celebrate our loved ones with Down syndrome, raise awareness among the public, and connect individuals and families within the community. Through our scholarships, grants, and awards program, NDSS supports individuals with Down syndrome in pursuing their dreams. Connect with the National Down Syndrome Society: Official Website: https://ndss.org
9.18: Louder Than Life, Jimmy Kimmel suspension, and Down Syndrome Louisville.
On Season 11, Episode 3 of The LowDOWN: A Down Syndrome Podcast, Karen Gaffney, Zack Gottsagen, Charlotte Woodward, and Melissa Hart give us the lowdown on Down Syndrome Out Loud.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Last year a really cool non-profit was started by Jacob Esser to help connect dads like him who are navigating parenthood with kids who have down syndrome and he shares the story behind ‘DOD's - Dads of Down Syndrome and an upcoming event on Friday and how you can visit him at Hilltop!
It's tough to keep up with all the changes going on at the Federal level or understand how that might impact people with Down syndrome in our local areas. We were joined on the podcast by two experts in policy and advocacy from the National Down Syndrome Congress (NDSC). Heather Sachs is the Policy & Advocacy Co-Director for the NDSC and Jawanda Mast is the Grassroots Advocacy Manager for the NDSC. On the podcast, we discuss how the Medicaid changes at the federal level will impact those with disabilities at the state and local level. This is Part 2 of a two part series looking at Policy and Advocacy at the Federal level. For more information: National Down Syndrome Congress (https://www.ndsccenter.org) Information and application for NDSC's National Down Syndrome Advocacy Coalition https://ndsccenter.org/policy/national-down-syndrome-advocacy-coalition-ndac/about-ndac.html Advocacy Training and Resources. Templates, one-pagers, toolkit and presentations. https://ndsccenter.org/policy/training-resources.html -Changes to Medicaid, Medicare, and Affordable Care Act: https://publichealth.jhu.edu/2025/the-changes-coming-to-the-aca-medicaid-and-medicare -Closer look at work requirements in HR1: https://www.kff.org/medicaid/a-closer-look-at-the-work-requirement-provisions-in-the-2025-federal-budget-reconciliation-law -Impact of Medicaid cuts on Home and Community Based waiver Services: https://www.healthaffairs.org/content/forefront/history-repeats-faced-medicaid-cuts-states-reduced-support-older-adults-and-disabled -Impact of Medicaid cuts on students and schools: https://healthyschoolscampaign.org/dev/wp-content/uploads/2025/03/How-Medicaid-Cuts-Will-Harm-Students-Schools.pdf If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.
On Season 11, Episode 2 of The LowDOWN: A Down Syndrome Podcast, Jessica Patay gives us the lowdown on becoming brave together.Support the showThe LowDOWN: A Down Syndrome Podcast is produced by the Down Syndrome Resource Foundation. Learn more and support the podcast at DSRF.org.Follow @DSRFCanada on Facebook, Instagram, and Twitter.Leave us a rating and review on Apple Podcasts.
Melissa Hart visits with JX associate producer Charlie Zimmermann.
Having a child with Down syndrome means you're always learning about something new! And today's topic is: oral facial myofunctional therapy.. a technique used to improve the way our mouth and face muscles work! We have Irene Iskander (dental hygienist + lucky mama) on the show today to answer all of our questions:Why is mouth breathing so common amongst individuals with DS? What are the long term effects of mouth breathing?What can we do at each age to strengthen mouth and facial muscles?How is myofunctional therapy different than speech therapy or feeding therapy?We didn't realize how important this information was until we chatted with Irene! So tune in and take notes, friends!SHOW NOTESFollow Irene @fityourface_ on InstagramListen to 28 Reasons to Nasal Breathe from Ask The Dentist podcastSPONSORSNational Down Syndrome SocietyiCanShine ProgramsDown for GreensRods HeroesJOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today!
In this reposted episode, Courtney shares her journey of receiving her daughter Annie's Trisomy 21 diagnosis, navigating the NICU, and walking through open-heart surgery complicated by pulmonary hypertension. She talks about the power of community, the unexpected strength she discovered in herself, and how vulnerability and advocacy have shaped her motherhood. Courtney reminds us that love, connection, and collective wisdom can carry families through the hardest seasons while celebrating Annie's resilient and joyful spirit. Resources mentioned in this episode: Annie Louise Foundation – A resource hub for parents and caregivers Follow Courtney on Instagram Read Courtney's most recent blog post about how the Annie Louise Foundation helped with Central Texas Flood relief in Kerrville, TX
Nonprofit leadership is about balancing mission, people, and authenticity. In this inspiring episode of IMPACTability®, Frank Bartoli, founder and CEO of PA Inclusive, shares his journey from father and advocate to leader of a thriving nonprofit. Frank opens up about the challenges of staffing shortages, the shifting culture of volunteerism, and why authenticity is the most important leadership trait. He also reveals the surprising success of Coffee Inclusive—a social enterprise employing people with disabilities that has become a model for community engagement. From organizational design and Board responsibilities to evolving fundraising strategies, Frank offers invaluable insight for nonprofit leaders, staff, and Board members alike. Whether you're facing staffing struggles, engaging volunteers, or seeking new ways to stay mission-driven, this episode is packed with lessons for leading with heart and strategy. Prefer video? Watch the full episode on YouTube, https://youtu.be/nfWMofU-nwI Standout Quotes “It's harder to recruit engaged volunteers. The culture of people is really changing.” — on today's biggest nonprofit challenge (18:36) “Nonprofit CEOs need to be very well versed in organizational design.” — on what leaders must master to succeed (29:27) “Authenticity is key to our success.” — on the most important leadership trait (39:51) Chapters & Timestamps 00:00 – Welcome & Frank's Journey to Nonprofit Leadership 04:32 – Inclusion in Action: Understanding IDD Services 10:09 – What Inspires the Work: Lessons from Family & Community 14:09 – The Realities of Nonprofit Leadership 18:36 – Staffing Shortages & Volunteer Engagement Challenges 25:29 – Coffee Inclusive: A Nonprofit Success Story 29:27 – Essential Advice for Nonprofit CEOs & Boards 36:16 – Fundraising Trends & the Power of Authenticity 41:21 – Boundaries, Training, and Final Takeaways Guest Bio Frank Bartoli is the founder and CEO of PA Inclusive and Coffee Inclusive, organizations dedicated to building inclusive opportunities for people with disabilities. With more than 30 years in nonprofit leadership—including roles with The Arc, the YMCA, and multiple Boards—Frank has consistently championed innovation and community engagement. Inspired by his daughter Ellie, who has Down Syndrome, Frank created PA Inclusive to ensure that people with disabilities can live and work in truly inclusive communities. Under his leadership, Coffee Inclusive has become a successful social enterprise, training and employing people with disabilities while reshaping perceptions in the community. Frank has also served on the Governor's Advisory Committee for People with Disabilities and continues to advocate nationally for authentic leadership and inclusion. His journey offers nonprofit leaders practical lessons on staffing, fundraising, Board engagement, and the power of authenticity in driving real change. Resource Mentioned Asking (book) by Jerold Panas:
Holly and her son Nate join this week's episode! Nate is the 22-year-old founder of 21 Pineapples, a Hawaiian shirt company on a mission to spread joy, break stereotypes, and change the world with love. Nate, who has Down syndrome, shares his humor, wisdom, and heartfelt outlook on life reminding us all to “be a good human.” Holly opens up about their journey, the challenges and gifts of parenting, and her own resilience as a cancer survivor. Together, they discuss family, acceptance, and why embracing the unexpected can lead to the most beautiful parts of life. Follow Nate (21 Pineapples): @21pineapplesshirtco Follow Holly: @hollywould11 Follow Morgan: @webgirlmorgan Follow Take This Personally: @takethispersonallySee omnystudio.com/listener for privacy information.
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