Podcasts about cfrd

Life with CF is different for everyone. We have a lot of the same challenges, but we do grow with the disease differently.  Heather Trammell, CF Mom to 7 year old Charlie is married to Christopher, (for 13 years now). Heather is a legal assistant in the compliance department at Credit Acceptance.  Heather has so much CF Mom wisdom. I am glad to call her a friend. In 2019 Heather became a member of the family advisory board at C.S.Motts Children's Hospital in Ann Arbor, and is a Parent Family Partner through the CFLN with the CF clinic at Motts for just over a year.Heather is also a mentor in The Bonnell Foundation's Hand in Hand mentoring program.  Heather and her husband Christopher recently spoke at The Bonnell Foundation Night of Hope Gala.  We were lucky to have them!Heather on FB: https://www.facebook.com/share/xkiJ9yoitqvTUEsV/?mibextid=LQQJ4dHeather on IG:  https://www.instagram.com/heather61811/profilecard/?igsh=MWxwOTR5d3N0dHh1OQ==  Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Thanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

Shortly after we did this podcast Matt died from complications of cystic fibrosis.  With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about concern for his health.  Thanks to Jenn, his family and to Matt for all he gave to the world and especially the CF community. You are missed and will never be forgotten.From his sisters Molly McBryan and Ame Austin:"After an extremely long hard fought battle with cystic fibrosis, Matt McCloskey succumbed to this terrible disease on February 7th, 2024. He was a beloved husband, son, brother, uncle, and friend to many.   He will be remembered for a lot of things; one of which was his passion for the Take A Breather foundation in which he started.The concept of Take A Breather started for Matt in 2012, when his own health battle with CF really took a turn. Knowing first hand what it is like to live with this disease, it was his dream and vision to offer families living with cystic fibrosis, a temporary escape, a breather, from the everyday struggles and emotional burdens of their disease. Matt put his heart and soul into this Foundation and is truly what drove him despite his own health issues.  Because of Matt, thousands of lives have been forever impacted due to his selflessness of wanting to bring joy to so many living with CF. He worked tirelessly and countless hours for the Take A Breather Foundation and the CF community.  Throughout the years, we heard from  many recipients/families the huge impact Matt's mission had on their lives but we know there were countless others whom we did not hear from because he also worked quietly behind the scenes to motivate, answer questions, or just listen. There are no words to express the profound impact this loss will have on all those who knew and loved him and to the CF community."This was written prior to his passing:Matt and Jen have a great story to tell. Two people with CF, living their separate lives, and then they began working together to make a difference in the lives of people with CF.Matt McCloskey was born in 1968 and grew up in Philadelphia, he has several other siblings, and one he never met because he died from CF at 2 months old.In 2015 Matt received a lung transplant. Matt's in his 50's now, but his life expectancy was 6 years old.He is currently running the Take A Breather Foundation.Jen Bleecher, who is 52 years old, is the Community Outreach Volunteer for Take a Breather.  Jen is married, and has a 27-year-old daughter . Jen worked as a nurse for over 20 years. Jen had a double lung transplant, she has pivoted to volunteering some of her time helping with the Community Outreach initiatives, such as building relationships within the CF and broader communities, assisting in planning of fundraising events, and overseeing Take A Breather's School Club program. To contact Matt and Jen: https://takeabreatherfromcf.orgPlease consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website: https://thebonnellfoundation.orgBonnell Foundation email: thebonnellfoundation@gmail.comThanks to our sponsors:Vertex:  https://www.vrtx.comViatris: https://www.viatris.com/en Please like, subscribe, and comment on our shows, wherever you get your podcasts.Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Thanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

Endocrine Review Course Episode  9 Learning Objectives: Know the prevalence, screening age and treatment for CFRD and Post transplant diabetes. 

Laura Bonnell, the Host of the Living with cystic fibrosis podcast, does a solo podcast this time around. This is her story, life without CF, diagnosis (here comes CF ready or not) and starting a Foundation.  It turns out that her path was always aligned with cystic fibrosis, from meeting Dr. Francis Collins (former director of the NIH and one of the scientists who discovered the gene that causes CF).From news reporter to CF advocate.The Bonnell Foundation website: https://thebonnellfoundation.orgBonnell Foundation email: thebonnellfoundation@gmail.comThanks to our sponsors:Vertex:  https://www.vrtx.comGenentech: https://www.gene.comViatris: https://www.viatris.com/en

Campus Abierto UdeC y su aporte al debate constitucional. Junto a Ruth Pérez (Coordinadora General Formación Permanente UdeC) y Leonardo Letelier (Jefe Unidad de Recursos Didácticos CFRD). 

När man har diagnosen cystisk fibros så kan man också få en typ av diabetes kallad cystisk fibros-relaterad diabetes mellitus (CFRD). Den finns hos 20 procent av dem som har cystisk fibros och är ett mellanting mellan typ 1, som man annars vanligtvis ser hos unga personer, och typ 2 som är vanligt hos äldre. Sanna och Natalie är två tjejer som förutom CF också lever med CFRD och som vill dela med sig av sina erfarenheter i detta avsnitt. Vi har också glädjen att få intervjua Elin Cederbrant som lever med typ 1 diabetes. Det är ett härligt samtal med många skratt och mycket igenkännande. 2016 grundade Elin den ideella organisationen Together Against Diabetes1, T.A.D.1. T.A.D.1 arbetar med att stötta, stärka och underlätta livet för personer som lever med eller drabbas av typ 1 diabetes. Elin engagerar sig även mycket i frågor kring jämlik vård i landet och tillgänglighet på medicinteknik. Sommaren 2020 utökade Elin för första gången sitt team och team-T.A.D.1 består idag av 3 personer. Sedan starten 2016 har T.A.D.1 genomfört en rad projekt både inom insamling, informationsspridning och stöd till drabbade. Elin har också varit med och tagit fram T1D-appen - en guide till typ 1 diabetes. För alla som lever med och runt T1D. Vad är skillnaden mellan CFRD och typ 1 diabetes? Hur är det att leva med osynliga sjukdomar?   TACK Elin för att du ville vara med i podden Osynligt sjuk!

17 year old Flynn Gill is one of less than 4,000 Australians living with cystic fibrosis - a genetic disorder that severely impacts the lungs and digestive system. Flynn was diagnosed with CF just a few weeks after birth and then with CF related diabetes (CFRD) at age 12. It’s a limitation that’s made his life complicated and often uncomfortable. COVID-19 has made things even tougher for Flynn, forcing him out of school and into isolation with the threat heightened for those with CF. Flynn’s been in hospital more times than he can count and has to take dozens of medications every day to try and stay healthy. It's stunted his growth and his social life and left him battling anxiety and depression. But Flynn’s not letting all the obstacles stop him working towards being the man he wants to be. He’s about to finish school, he’s already started his own business and with the help of his family and organisations like Cure4CF, he’s optimistic of finding a cure. --------- This episode is proudly brought to you by Beyond Bank Australia, one of Australia’s largest customer owned banks. Beyond Bank has a strong focus on supporting some of the broader challenges that impact our community and young people today - like cystic fibrosis, together with their customers they support Cure4CF to help them find a cure.

Marge Carfora is back with the Breathe In duo for her the final episode of her April residency. This time the group tackles a Buy or Sell episode. Slippers vs Socks in the hospital, CFer vs person with CF, a debate over the use of Cyster/Fibro, CFRD topics, mobile vests, mobile nebuilzers, nebulizer cups and more!

In the latest CF podcast, 53-year-old Gary Klausner shares his unique story. He is 20 years post double lung transplant, married with two children, and living his life to the fullest. He discusses how his positive attitude has gotten him through the difficult times, including post-transplant complications like CFRD, kidney issues, skin cancer, and rejection.

Amanda Varnes, 23 with cystic fibrosis, joins the podcast to talk about CFRD, double lung retransplantation and fungal infections. Amanda's battle with CF has been nothing short of inspiring, and is clearly evident in her amazingly bubbly personality. Amanda contracted a pan-resistant fungal infection at an early age, which led to her first double lung transplant in 2015. Rejection led her to a second transplant in 2017. The podcast also dedicates time to CFRD, which Amanda was diagnosed with when she was 16. Amanda talks about the emotional and physical burden that CF put on her in high school and offers some advice to families new to the world of CFRD.

Volume 7, Issue 10.In this podcast Andrea Granados, MD describes the clinical impact of the early diagnosis of glucose abnormalities in people with CF, summarizes the limitations of alternative modalities for screening and diagnosing CFRD, and and identifies the current recommendations for the management of CFRD.Take our post-test to claim CME credits:Physician post-testNurse post-testTo read a companion newsletter click here.The post Screening and Diagnosis of CFRD appeared first on DKBmed Radio. Hosted on Acast. See acast.com/privacy for more information.

Screening and Diagnosis of CFRD

Aufgrund der steigenden Lebenserwartung von Patienten mit cystischer Fibrose (CF) nimmt die Prävalenz einer gestörte Glukosetoleranz (IGT) und eines CF-assoziierten Diabetes mellitus (CFRD)kontinuierlich zu. In der vorliegenden Arbeit wurde die Prävalenz von Glukosestoffwechselstörungen und deren Einfluss auf den klinischen Status in einer nicht vorselektionierten Gruppe von erwachsenen CF Patienten (n=34) im Vergleich zu neu-diagnostizierten Patienten mit Typ 2 Diabetes (n=9) und gesunden Kontrollpersonen (n=10) mittels oGTT untersucht. Desweiteren wurde durch Messung von Insulin, intaktem Proinsulin, intaktem GLP1 und der Bestimmung verschiedener Indices für die ß-Zellfunktion und die Insulinresistenz mögliche pathophysiologische Mechanismen in verschiedenen Stadien der Glukosetoleranzstörung untersucht. Bei den CF Patienten (Alter 30,2±8 Jahre, BMI 20,9 ±2,5 kg/m2) zeigten 50% der Patienten eine gestörten Glukosetoleranz (12% IFG, 23% IGT, 15% neu diagnostizierter CFRD). Im oGTT war der maximale Insulinpeak und die totale Insulinsekretionskapazität nicht unterschiedlich in den CF-Gruppen (AUCinsulin0-120min NGT: 3296±547 μU/ml, IFG: 3694±809 μU/ml, IGT: 3337±535 μU/ml, CFRD: 2387±318 μU/ml) und den Kontrollpersonen(3704±335 μU/ml). Bei CF-Patienten war ähnlich wie bei DM2 Patienten eine verminderte erste Phase der Insulinsekretion und eine zeitliche Verschiebung des Insulinpeaks nachweisbar, die mit der Verschlechterung der Glukosetoleranz assoziiert war (Stumvoll-FPIR NGT:450±291; IFG:252±203; IGT:309±254; CFRD:18±41; Kontrollen:950±388). Die Insulinsekretion korrelierte invers mit dem Glukoseprofil, so dass bei IFG und IGT hohe postprandiale Glukosespiegel innerhalb der ersten 60 Minuten und ein Blutzuckerabfall nach 120-180 min zu beobachten waren. Die Proinsulinspiegel und die GLP-1 Spiegel im oGTT waren nicht unterschiedlich im Vergleich zu den gesunden Kontrollen. Im Gegensatz zu den DM2 Patienten konnte bei CF Patienten keine deutliche Insulinresistenz festgestellt werden. Bei den CF Patienten war eine Verschlechterung der Lungenfunktion und des Ernährungszustandes mit zunehmender Glukoseintoleranz zu sehen. Hohe maximale Glukosespiegel(rs=-0,50, p=0,002), der Insulinogenic Index (rs = 0,36, p

Volume 2, Issue 2.In September of 2009, the Cystic Fibrosis Foundation held a third CFRD consensus conference, co-sponsored by the American Diabetes Association and the Lawson Wilkins Pediatric Endocrine Society, providing a new set of recommendations for treating cystic fibrosis-related diabetes. Johns Hopkins provided evidence review so there can be evidence-based guidelines. Diagnostic & treatment criteria are presented in this podcast.The post Featured Cases: Cystic Fibrosis–Related Diabetes appeared first on DKBmed Radio. Hosted on Acast. See acast.com/privacy for more information.