Podcasts about willebrand disease

This talk goes over the most common causes of inhirted bleeding disorders. There are two major types of hemophilia – deficiency in factor VIII and IX – which predominant occur in men. Hemophilia A is deficiency of factor VIII and is the most common form of hemophilia treated with factor concentrate. Hemophilia B is less common but treatment principles are the same. There are multiple types of von Willebrand Disease as this is a complex molecular that both carries factor VIII and forms large multimers essential for platelet function. Mild forms of vWD can be treated by desmopressin but von Willebrand factor is needed for more severe types.

Diagnosed with Type 3 von Willebrand Disease as a baby, Michelle has grown up and navigated various life stages with this disorder. Now a mother of 2, listen in as we discuss how Michelle has managed her bleeding disorder sypmtoms from childhood through to pregnancy and delivery. As well as the exciting, new treatment option that she is beginning, and the importance of addressing mental health issues that can stem from dealing with a chronic disorder and medical trauma. Feel free to reach out and connect to Michelle on her instagram page @meesh_igan Here is a great list of resources in the US for further information on bleeding disorders. https://www.hemophilia.org/   httpshttps://hfmich.org/       Music - reCreation by airtone (c) copyright 2019 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/airtone/59721

  Bleeding Disorders, also known as Hemophilia, von Willebrand Disease, Coagulation Disorders, Blood Clotting Disorders, Clotting Factor Deficiencies ​Bleeding disorders are rare disorders affecting the way the body controls blood clotting. If your blood does not clot normally, you may experience problems with bleeding too much after an injury or surgery. This health topic will focus on bleeding disorders that are caused by problems with clotting factors, including hemophilia and von Willebrand disease. Clotting factors, also called coagulation factors, are proteins in the blood that work with small cells, called platelets, to form blood clots. Any problem that affects the function or number of clotting factors or platelets can lead to a bleeding disorder. A bleeding disorder can be inherited, meaning that you are born with the disorder, or it can be acquired, meaning it develops during your life. Signs and symptoms can include easy bruising, heavy menstrual periods, and nosebleeds that happen often. Your doctor will review your symptoms, risk factors, medical history, and blood test results to diagnose a bleeding disorder. Your doctor may recommend medicines or clotting factor replacement therapy to treat the bleeding disorder. Some bleeding disorders are lifelong conditions, and some can lead to complications. Even if you do not need medicine to treat the bleeding disorder, your doctor may recommend taking precautions before a medical procedure or during a pregnancy to prevent bleeding problems in the future. (credits to NIH)   TRANSCRIPT Lita T  00:07  Hello and welcome to another episode of PodcastDX. The show that brings you interviews with people just like you whose lives were forever changed by a medical diagnosis. I'm Lita. Ron  00:18  I'm Ron Jean  00:19  and I'm moving to Hawaii. Lita T  00:21 No, she's not Jean  00:22   it snowed again last night. Lita T  00:23  I know but Ron  00:24  and today Jean  00:25  and today Lita T  00:26  still not moving to Hawaii. Jean  00:27  ohhh moving to Hawaii Lita T  00:28  Remember when you said you cannot shovel lava? Jean  00:30  Lava  Lita T  00:31  Okay, Jean  00:31  this is true. Lita T  00:32  We're staying here. Jean  00:33  Okay. Lita T  00:33  Collectively we're the host of podcast dx. March is bleeding disorders Awareness Month, although bleeding disorders may be acquired. On today's show, we're going to be talking about the most common inherited bleeding disorder, von Willebrand disease, Jean  00:53  someone with (unitelligable) the blah...blah Lita T  00:55  What? Jean  00:56   Someone living with a bleeding disorder has blood, which does not clot properly. Ron  01:02  When someone is injured and bleeding, a blood clot forms to hopefully...to hopefully stop that person from losing too much blood. This process requires both blood platelets and clotting factors which clump together to form something like a dam to stop the bleeding. Lita T  01:20  Right?  I remember watching Grey's Anatomy. Ron  01:22  (Chuckle) Lita T  01:23  Okay, we need more platelets, right? Jean  01:26  I don't watch Grey's Anatomy...but sure I could see them saying that. Lita T  01:28  Yeah, cuz you know, somebody is bleeding. They need more platelets! Jean  01:31  Right Ron  01:31  That's not scripted. Lita T  01:33  No, it's not. Jean  01:33  No. Lita T  01:35  Someone with a bleeding disorder may notice that they bruise easily bleed; excessively during medical or dental procedures or when cut; have unexplained nosebleeds and bleeding gums and internal bleeding. And when I was on blood thinners...no Jean  01:54  Here we go... Lita T  01:54  Right? Wait was I am blood thinners or aspirin? I was either on blood thinners or a baby aspirin at one time. And I was outside gardening. And I grabbed a thorn bush.  Right? I was clipping and the thorn punctured something on my wrist. And I'm watching it and it's going: squirt, squirt, squirt, and I'm just watching it. I like Isn't that interesting? As it squirting like a squirt gun every you know it would like with my pulse. Squirt, squirt, squirt. And then finally I said: "Okay, better stop this." So, I put pressure on it to stop it. But um, yeah. Jean  02:24  We're all surprised she's still here. (Chuckle) Lita T  02:36  (Boisturious laughter) Ron  02:36  But you definitely painted a picture. Lita T  02:38  Yeah. Right. So that's what it would be like, if you have a bleeding disorder. Jean  02:41  I don't know if that's exactly what it would be like, that sounds like an arterial spray that squirting in very, very dangerous. Lita T  02:47  Okay, that's a bleeding disorder. Jean  02:49  Bleeding problem. Ron  02:50  So Lita T  02:51  yeah. Ron  02:52  In addition to obtaining a complete medical history, your healthcare provider may order a complete blood count, a bleeding time test and or a platelet aggregation test to help diagnose your condition. Jean  03:07  And have you guys ever had a bleeding time test? Ron  03:10  Me personally? No. Jean  03:11  Oh, they like cut your, nick, your ear and then stand there and wait to see when it stops bleeding. Lita T  03:18  (chuckling) Jean  03:19  That's what I remember. Lita T  03:19  like watching. paint dry? Ron  03:20  I don't like your doctor's. Jean  03:21  Yeah, well, that wasn't my doctor. That was my mom. Oh, no, just kidding. Okay. Um, treatment for bleeding disorders will likely depend on the severity and cause of the specific bleeding disorder an individual has. Lita T  03:33  Right. And although I had never heard of it before, today, the most commonly inherited bleeding disorder is von Willebrand disease. Ron  03:45  Well I can say that approximately 1% of the population here in the US are affected by von Villa brain disease. And it's characterized by an insufficient amount of a protein. Ironically, the von Willebrand factor or VFW Jean  04:03  VWF Lita T  04:04  The VFW hopefully doesn't. It's causing you to bleed you're going to the wrong  VWF Ron  04:11  Did I say I do glasses. I'm sorry, the von Willebrand factor or v w F, which aids in the clotting, Lita T  04:18  right? There are three forms of von Willebrand disease. Jean  04:24  We're gonna say it differently every time you say Lita T  04:26  Yes, okay. Individuals with type one have less VWF than average and may have associated bleeding issues. Jean  04:37  Were and those living with type two von Willebrand disease have enough v wF in their system, but their Vidya wF does not function correctly or is incorrectly formed. And Ron  04:49  type three, v w.f Jean  04:52  Vwd  willen brand disease Oh, tight as opposed to von Willebrand factor. Oh, Okay, Lita T  05:00  okay. So type three v WD. Ron  05:03  Okay? So type three v WD is very serious individuals with this form of von Willebrand disease, do not make v w f at all. Oh, yeah, right. And their platelets cannot clot and this is very This is a very serious condition which makes bleeding difficult to control. Lita T  05:23  That sounds terrible. Individuals with von Willebrand disease should typically avoid taking medications which may increase their risk of bleeding such as aspirin, or non steroidal anti inflammatories. Jean  05:37  And if you have a bleeding disorder, it is vital that you inform your health care providers, including your doctors and dentists. And I would suggest if you know if it's a very serious form, that you have an ID bracelet that states that Lita T  05:50  Oh, yeah, for sure. And carry a lot of gauze. Jean  05:54  I don't get a tourniquet. I don't think you should be able to carry a tourniquet, no band aids. I think people that carry Okay, tourniquets are very serious, Lita T  06:02  right. Okay. If you would like to know more about bleeding disorder awareness, check out the link to the national hemophilia foundation Foundation's website which will be on our web page, or you may want to donate to a red tie fundraiser. Jean  06:21  And I think Haemophilia is what we've all associated with writing disorders. That's what I've heard, right? But it's very, very rare. It just gets a lot of publicity, because you hear about, you know, like Royals hat being haemophiliac and or being haemophiliacs because, Lita T  06:34  you know, that's, that's where it came from. Jean  06:37  No, it's just inbreeding, and the those, you know, because then you're passing the factor on and you're increasing the chance, or likelihood that two people with the same factor will pass it on. But Ron  06:47  that's the most common, right. No, Jean  06:49  no, no, it's not. It's very rare. von Willebrand disease is the most common. Isn't that weird? And we've never heard of that. Yeah, right. That's Yeah, it's very counterintuitive. It is very counterintuitive. But that's what the internet says, and we believe everything on the internet. Lita T  07:07  And gene would like you to know about a blood parfait recipe in case you wanted to share this with your friends. Jean  07:17  Well, the National hemophilia foundation does try to utilize different techniques to help people understand more about their blood and clotting. And to help illustrate that, they suggest that you could try to make a blood purvey, you could use a cream colored substance like vanilla ice cream, or maybe a yogurt as your base use Cheerios. And that will represent your platelets, although they're nice and round, which I don't understand. And you kind of want something like awkwardly shaped but red m&ms or red Hots, and those could be the red blood cells, white chocolate chips, or mini marshmallows. And these can be the white blood cells, pretzels. And these can be the fibrin which is the kind of the stuff that joins with platelets to form that your clot, okay. Gummy worms in the eye can actually represent the V WD. And to top it off, put on some rainbow sprinkles, and that'll represent the 13 other blood factors. Lita T  08:14  Yeah, we'll be doing that. Ron  08:18  I gotta tell you, I learned quite a bit on this. This morning.  Lita  08:21  Oh well, that's Jean  08:22  that's good. Lita T  08:23  Yeah, I'm glad somebody did. Yeah, I Jean  08:24  learned we're not moving to Hawaii. Lita T  08:26  No, we're not moving to Hawaii. Ron  08:28  Well, for our listeners, if you have any questions or comments related to today's show, you can drop us a line at podcast dx@yahoo.com through our website, podcast, dx comm on Facebook pitter pitter pitter patter pitter patter on Jean  08:47  his own app. Wow. Have you heard from somebody on Twitter? I hear they have a lot of patter. Ron  08:54  Let's try this again. Okay, through our website, podcast, dx.com on Facebook, Twitter, Pinterest, or Instagram, Jean  09:02  I can appear as a combination of Twitter and Pinterest. I like it. Lita T  09:05  Yeah. Okay. And if you have a moment to spare, please give us a review wherever you get your podcast. As always, please keep in mind that this podcast is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regime. Never disregard professional medical advice or delay of seeking it because of something you have heard on this podcast till next week.

Join Yvonne Brandenburg, RVT, VTS SAIM and Jordan Porter RVT, LVT, VTS SAIM as we talk about: Part 2 of our IMHA and IMTP episodes. This week we are diving into diagnostics, treatment, and our favorite; CLIENT COMMUNICATION! We discuss what to look for when managing these patients, and how to prepare clients for managing these pets at home.    For our 1 year episode. Must be in by October 11th! We’d love to hear from you! Leave us a message at 925-579-1216 and we’ll play you on the show! Sunday Oct 11th at 8:30a PST: Platelet Count Webinar Monday October 12th 10a PST/ 12p CST Royal Canin Webinar 1 hour RACE approved webinar Upping Your Tech Game: Being A Rock Star Tech register at: http://imfpp.org/rcregistration For a list of current webinars go to http://imfpp.org/webinar  Vet Tech Appreciation Week Poster: got to https://www.internalmedicineforvettechs.com/vet-tech-appreciation-week.html and download a copy to share!   Question of the Week What is your experience with IMHA/IMTP or Evans?  Leave a comment at https://imfpp.org/episode52   Resources We Mentioned in the Show   Bistner, S. I., Ford, R. B., & Raffe, M. R. (2000). Kirk and Bistner's Handbook of Veterinary Procedures and Emergency Treatment (7th ed.). Philadelphia, Pennsylvania: W. B. Saunders Company. Brandenburg, Y. (2017). Evans Syndrome: A Technician's Role. ACVIM. National Harbor: American College of Veterinary Internal Medicine. For a copy go to https://imfpp.org/ACVIM2017  Brooks, M. B., & Catalfamo, J. L. (2010). Chapter 189 Immune-Mediated Thrombocytopenia, von Willebrand Disease, and Platelet Disorders. In S. J. Ettinger, Textbook of Veterinary Internal Medicine Disease of the Dog and the Cat (7th ed., Vol. 1, pp. 772-783). St. Louis, Missouri: Sounders Elsevier. e-Clin Path. Hematology » Anemia » Mechanisms. (2020, September 27). Retrieved from https://eclinpath.com/hematology/anemia/mechanisms-of-anemia/ Garcia, J., & South-Bodiford, R. (2012). Chapter 7 Hematology. In L. Merrill, Small Animal Internal Medicine for Veterinary Technicians and Nurses (pp. 161-192). Danvers, Massachusetts: Blackwell Publishing. Immune Mediated Hemolytic Anemia in Dogs IMHA. (2017). Retrieved February 10, 2020, from Facebook: https://www.facebook.com/groups/6228146980/   Immune Mediated Hemolytic Anemia in Dogs (IMHA). (2017, 12 6). Retrieved from Facebook: https://www.facebook.com/groups/6228146980  Immune-Mediated Thrombocytopenia (IMT)~Canine Immune Disorders~Blood Clots. (2017, 12 6). Retrieved from Facebook: https://www.facebook.com/groups/ImmMediatedThrombocytopeniaCanineImmuneDisorders/  Internal Medicine For Vet Techs. (2020, February 10). Retrieved from Technician Treasure Trove: https://imfpp.org/treasuretrove  Johnson, V., & Dow, S. (2014). Chapter 60 Management of Immune-Mediated Hemolytic Anemia in Dogs. In J. D. Bongura, & D. C. Twedt, Kirk's Current Veterinary Therapy (XV ed., pp. 275-279). St. Louis, Missouri: Elsevier. Mackin, A. (2016). Immunosuppressive Therapy in Dogs and Cats: Recent Drug Development. 2016 ACVIM Forum (pp. 1113-1117). Denver: American College of Veterinary Internal Medicine. Mitchell, K., & Kruth, S. (2010). Chapter 188 Immune-Mediated Hemolytic Anemia and Other Regenerative Anemias. In S. J. Ettinger, Textbook of Veterinary Internal Medicine Diseases of the Dog and the Ca (7th ed., Vol. 1, pp. 761-772). St. Louis, Missouri: Saunders Elsevier. Mitchell, K., & Kruth, S. (2010). Chapter 188 Immune-Mediated Hemolytic Anemia and Other Regenerative Anemias. In S. J. Ettinger, Textbook of Veterinary Internal Medicine Diseases of the Dog and the Ca (7th ed., Vol. 1, pp. 761-772). St. Louis, Missouri: Saunders Elsevier. Nakamura, R. K., Tompkins, E., & Bianco, D. (2012, January 25). Therapeutic Options For Immune-Mediated Thrombocytopenia. Journal of Veterinary Emergency and Critical Care, 22(1), 59-72. doi:10.1111/j.1476-4431.2011.00705.x Neel, J. A., Birkenheuer, A. J., & Grindem, C. B. (2014). Chapter 61 Thrombocytopenia. In J. D. Bonagura, & D. C. Twedt, Kirk's Current Veterinary Therapy (Vol. XV, pp. 280-286). St. Louis, Missouri: Elsevier. Norton, A., & Roberts, I. (2005). Management of Evans Syndrome. British Journal of Haematology, 125-137. doi:10.1111/j.1365-2141.2005.05809.x Pharmacology Laboratory. (2014). Retrieved from Mississippi State University College of Veterinary Medicine: http://www.cvm.msstate.edu/animal-health-center/pharmacodynamic-laboratory  Plumb, D. (2011). Plumb's Veterinary Drug Handbook (7th ed.). Stockholm, Wisconsin: Wiley-Blackwell. Thomason, J. D., & Calvert, C. A. (2012). Chapter 5 Thrombotic Disorders in Small Animal Medicine. In L. Merrill, Small Animal Internal Medicine for Veterinary Technicians and Nurses (pp. 127-135). Danvers, Massachusetts: Blackwell Publishing. West, L. D., & Hart, J. R. (2014). Treatment of Idiopathic Immune-Mediated Hemolytic Anemia with Mycophenolate Mofetil in Five Dogs. Journal of Veterinary Emergency and Critical Care, 24(2), 226-231. doi:10.1111/vec.12121   Listen to episodes  50 Immune System: When the Body Attacks  21 Hematology Kickoff: Back to Basics 22 RBC’s Anemia to Polycythemia 23 Coag’s Balancing Hemostasis Website references: https://www.internalmedicineforpetparents.com/imha.html https://www.internalmedicineforpetparents.com/imtp.html Thanks so much for tuning in. Join us again next week for another episode!  Want to earn some RACE approved CE credits for listening to the podcast? You can earn between 0.5-1.0  hour of RACE approved CE credit for each podcast episode you listen to.    Join the Internal Medicine For Vet Techs Membership to earn and keep track of your continuing education hours as you get your learn on!   Join now! http://internalmedicineforvettechsmembership.com/   Get Access to the Membership Site for your RACE approved CE certificates Sign up at https://internalmedicineforvettechsmembership.com  Get Access to the Technician Treasure Trove  Sign up at https://imfpp.org/treasuretrove    Thanks for listening!  – Yvonne and Jordan 

Join Yvonne Brandenburg, RVT, VTS SAIM and Jordan Porter RVT, LVT, VTS SAIM as we talk about: We are scraping the surface when discussing immune mediated hemolytic anemia and immune mediated thrombocytopenia. We are discussing common symptoms we see when these patients present.    For our 1 year episode. Must be in by October 11th! We’d love to hear from you! Leave us a message at 925-579-1216 and we’ll play you on the show! Sunday Oct 11th at 8:30a PST: Platelet Count Webinar Monday October 12th 10a PST/ 12p CST Royal Canin Webinar 1 hour RACE approved webinar Upping Your Tech Game: Being A Rock Star Tech register at: http://imfpp.org/rcregistration For a list of current webinars go to http://imfpp.org/webinar  Vet Tech Appreciation Week Poster: got to https://www.internalmedicineforvettechs.com/vet-tech-appreciation-week.html and download a copy to share!   Question of the Week What do you like or dislike about IMHA or IMTP, or have you never had the pleasure of managing one of these cases?  Leave a comment at https://imfpp.org/episode51   Resources We Mentioned in the Show   Bistner, S. I., Ford, R. B., & Raffe, M. R. (2000). Kirk and Bistner's Handbook of Veterinary Procedures and Emergency Treatment (7th ed.). Philadelphia, Pennsylvania: W. B. Saunders Company. Brandenburg, Y. (2017). Evans Syndrome: A Technician's Role. ACVIM. National Harbor: American College of Veterinary Internal Medicine. For a copy go to https://imfpp.org/ACVIM2017  Brooks, M. B., & Catalfamo, J. L. (2010). Chapter 189 Immune-Mediated Thrombocytopenia, von Willebrand Disease, and Platelet Disorders. In S. J. Ettinger, Textbook of Veterinary Internal Medicine Disease of the Dog and the Cat (7th ed., Vol. 1, pp. 772-783). St. Louis, Missouri: Sounders Elsevier. e-Clin Path. Hematology » Anemia » Mechanisms. (2020, September 27). Retrieved from https://eclinpath.com/hematology/anemia/mechanisms-of-anemia/ Garcia, J., & South-Bodiford, R. (2012). Chapter 7 Hematology. In L. Merrill, Small Animal Internal Medicine for Veterinary Technicians and Nurses (pp. 161-192). Danvers, Massachusetts: Blackwell Publishing. Immune Mediated Hemolytic Anemia in Dogs IMHA. (2017). Retrieved February 10, 2020, from Facebook: https://www.facebook.com/groups/6228146980/   Immune Mediated Hemolytic Anemia in Dogs (IMHA). (2017, 12 6). Retrieved from Facebook: https://www.facebook.com/groups/6228146980  Immune-Mediated Thrombocytopenia (IMT)~Canine Immune Disorders~Blood Clots. (2017, 12 6). Retrieved from Facebook: https://www.facebook.com/groups/ImmMediatedThrombocytopeniaCanineImmuneDisorders/  Internal Medicine For Vet Techs. (2020, February 10). Retrieved from Technician Treasure Trove: https://imfpp.org/treasuretrove  Johnson, V., & Dow, S. (2014). Chapter 60 Management of Immune-Mediated Hemolytic Anemia in Dogs. In J. D. Bongura, & D. C. Twedt, Kirk's Current Veterinary Therapy (XV ed., pp. 275-279). St. Louis, Missouri: Elsevier. Mackin, A. (2016). Immunosuppressive Therapy in Dogs and Cats: Recent Drug Development. 2016 ACVIM Forum (pp. 1113-1117). Denver: American College of Veterinary Internal Medicine. Mitchell, K., & Kruth, S. (2010). Chapter 188 Immune-Mediated Hemolytic Anemia and Other Regenerative Anemias. In S. J. Ettinger, Textbook of Veterinary Internal Medicine Diseases of the Dog and the Ca (7th ed., Vol. 1, pp. 761-772). St. Louis, Missouri: Saunders Elsevier. Mitchell, K., & Kruth, S. (2010). Chapter 188 Immune-Mediated Hemolytic Anemia and Other Regenerative Anemias. In S. J. Ettinger, Textbook of Veterinary Internal Medicine Diseases of the Dog and the Ca (7th ed., Vol. 1, pp. 761-772). St. Louis, Missouri: Saunders Elsevier. Nakamura, R. K., Tompkins, E., & Bianco, D. (2012, January 25). Therapeutic Options For Immune-Mediated Thrombocytopenia. Journal of Veterinary Emergency and Critical Care, 22(1), 59-72. doi:10.1111/j.1476-4431.2011.00705.x Neel, J. A., Birkenheuer, A. J., & Grindem, C. B. (2014). Chapter 61 Thrombocytopenia. In J. D. Bonagura, & D. C. Twedt, Kirk's Current Veterinary Therapy (Vol. XV, pp. 280-286). St. Louis, Missouri: Elsevier. Norton, A., & Roberts, I. (2005). Management of Evans Syndrome. British Journal of Haematology, 125-137. doi:10.1111/j.1365-2141.2005.05809.x Pharmacology Laboratory. (2014). Retrieved from Mississippi State University College of Veterinary Medicine: http://www.cvm.msstate.edu/animal-health-center/pharmacodynamic-laboratory  Plumb, D. (2011). Plumb's Veterinary Drug Handbook (7th ed.). Stockholm, Wisconsin: Wiley-Blackwell. Thomason, J. D., & Calvert, C. A. (2012). Chapter 5 Thrombotic Disorders in Small Animal Medicine. In L. Merrill, Small Animal Internal Medicine for Veterinary Technicians and Nurses (pp. 127-135). Danvers, Massachusetts: Blackwell Publishing. West, L. D., & Hart, J. R. (2014). Treatment of Idiopathic Immune-Mediated Hemolytic Anemia with Mycophenolate Mofetil in Five Dogs. Journal of Veterinary Emergency and Critical Care, 24(2), 226-231. doi:10.1111/vec.12121   Listen to episodes  50 Immune System: When the Body Attacks  21 Hematology Kickoff: Back to Basics 22 RBC’s Anemia to Polycythemia 23 Coag’s Balancing Hemostasis Website references: https://www.internalmedicineforpetparents.com/imha.html https://www.internalmedicineforpetparents.com/imtp.html Thanks so much for tuning in. Join us again next week for another episode!  Want to earn some RACE approved CE credits for listening to the podcast? You can earn between 0.5-1.0  hour of RACE approved CE credit for each podcast episode you listen to.    Join the Internal Medicine For Vet Techs Membership to earn and keep track of your continuing education hours as you get your learn on!   Join now! http://internalmedicineforvettechsmembership.com/   Get Access to the Membership Site for your RACE approved CE certificates Sign up at https://internalmedicineforvettechsmembership.com  Get Access to the Technician Treasure Trove  Sign up at https://imfpp.org/treasuretrove    Thanks for listening!  – Yvonne and Jordan 

This month on The BloodStream Podcast, we interview actress Alex Borstein who’s best known as the voice of Lois on “Family Guy.” Alex talks about her life as an entertainer, a symptomatic carrier and a hemo mom.  In our Like Segment, Natalie introduces us to the Feldenkrais Method and how it’s being used to manage chronic pain. In our Share Segment, New York City Hemophilia Chapter member Nicole Angeles shares her story of living with von Willebrand Disease, and some of the very challenging decisions it’s forced her to make. Patrick highlights Jonathan Cohn’s excellent HuffPost piece about the ousted Iowa teen with hemophilia whose insurance expense Wellmark Blue Cross Blue Shield explicitly cited to justify pulling out of the Iowa health care markets. What does this story tell us about the future of the Affordable Care Act? Find out now on Episode 18 of The BloodStream Podcast.   Exclusive Sponsor: Shire   Like Segment: The Feldenkrais Method and Chronic Pain    Share Segment: Nicole Angeles’ “VWD & Me.”   Comment Segment: An Iowa Teenager Didn’t Wreck His State’s Health Care Market. Here’s Who Did.   Alex Borstein Interview http://variety.com/2017/tv/news/the-marvelous-mrs-maisel-amazon-amy-sherman-palladino-albert-cheng-1202614481/ Other Links of Interest FDA’s announcement about "Hemlibra" Powering Through Podcast Ask The Expert Podcast   BloodFeed: https://www.bloodfeed.com  

The BloodLine Podcast presents: von Willebrand Disease (vWD), Part 3 - The Community & The Future Patient communities have started organizing and increasing educational opportunities for people living with vWD, thanks in large part to rising awareness of the disorder around the country and the world. This episode features some profound, challenging and inspiring stories of how the vWD community is connecting, growing and changing. You'll meet patients and clinicians and hear their stories, and their perspectives on the future of vWD treatment, management, and community-building. Stream or download the episode today by visiting www.BloodLinePod.com! BloodLine is a BloodStream Media podcast series featuring deep dives into the stories that matter most. This three-episode series focuses on von Willebrand Disease, and features stories of people affected by vWD alongside interviews with clinical experts.  The series is sponsored exclusively by Shire and is intended to reduce the marginalization of people w/ vWD, increase clinical and organizational focus on vWD, and to give a voice to the diverse experiences of patients and families affected by vWD.  For more information on living with von Willebrand Disease please visit BeyondTheBleed.com

The BloodLine Podcast presents: von Willebrand Disease (vWD), Part 2 - Life with vWD vWD affects patients and their families in numerous ways. This episode, the second of three in our long-form podcast series on vWD, features powerful patient stories on the various experiences of living with the vWD, including combating stigma and the reductive outlooks on vWD. The stories run the gamut from heart breaking to uplifting and inspiring, and they'll certainly be familiar to anyone who lives with vWD or loves someone with vWD.  Stream or download the episode today by visiting www.BloodLinePod.com! BloodLine is a BloodStream Media podcast series featuring deep dives into the stories that matter most. This three-episode series focuses on von Willebrand Disease, and features stories of people affected by vWD alongside interviews with clinical experts.  The series is sponsored exclusively by Shire and is intended to reduce the marginalization of people w/ vWD, increase clinical and organizational focus on vWD, and to give a voice to the diverse experiences of patients and families affected by vWD. For more information on living with von Willebrand Disease please visit BeyondTheBleed.com 

The BloodLine Podcast presents: von Willebrand Disease (vWD), Part 1 - Diagnosis & Management What is von Willebrand Disease (vWD), how is it managed, and what is the common perception of this condition? In this podcast episode, the first of three in a new long-form audio experience on vWD, you'll hear patients and clinicians from around the world share personal stories of diagnoses, learning about vWD, and learning to manage the condition.  Stream or download the episode today by visiting www.BloodLinePod.com! BloodLine is a BloodStream Media podcast series featuring deep dives into the stories that matter most. This three-episode series focuses on von Willebrand Disease, and features stories of people affected by vWD alongside interviews with clinical experts.  The series is sponsored exclusively by Shire and is intended to reduce the marginalization of people w/ vWD, increase clinical and organizational focus on vWD, and to give a voice to the diverse experiences of patients and families affected by vWD.  For more information on living with von Willebrand Disease please visit www.BeyondTheBleed.com 

Kirstin Downie/Hemophilia of Georgia Hemophilia of Georgia (HoG) is a nonprofit organization dedicated to providing services and support for Georgians who have hemophilia, von Willebrand Disease, and other inherited bleeding disorders. The only agency of its kind in the state, HoG works to enhance clients' care and quality of life while actively pursuing a cure […] The post Kirstin Downie with Hemophilia of Georgia, Heather Schull and Jeana Edkin with G2W, and Amy Holmes with Women of Excellence Magazine appeared first on Business RadioX ®.

Editor-in-chief Shawn Kennedy and clinical managing editor Karen Roush present the highlights of the June issue of the American Journal of Nursing. This month offers two CE features: one (“Managing Menopause Symptoms”) the third installment in our series on women's health, and the other describing von Willebrand Disease, a common bleeding disorder. There are also features on interdisciplinary team training, what to do if you come under investigation by a state board of nursing, a Safety Monitor column on negative pressure wound therapy, and an article from Australia describing one hospital's reasons for and experience pursuing Magnet accreditation. And there are columns on Drug Watch, Journal Watch, Art of Nursing, Reflections, “In the News”, and more. You can listen to podcast interviews with authors of the Viewpoint on why teens shouldn't need consent to receive the HPV vaccine and the piece on nursing boards

Editor-in-chief Shawn Kennedy and clinical managing editor Karen Roush present the highlights of the June issue of the American Journal of Nursing. This month offers two CE features: one (“Managing Menopause Symptoms”) the third installment in our series on women’s health, and the other describing von Willebrand Disease, a common bleeding disorder. There are also features on interdisciplinary team training, what to do if you come under investigation by a state board of nursing, a Safety Monitor column on negative pressure wound therapy, and an article from Australia describing one hospital’s reasons for and experience pursuing Magnet accreditation. And there are columns on Drug Watch, Journal Watch, Art of Nursing, Reflections, “In the News”, and more. You can listen to podcast interviews with authors of the Viewpoint on why teens shouldn’t need consent to receive the HPV vaccine and the piece on nursing boards