Pulmonary Fibrosis Podcast

How does ILD typically present in women vs. men? Any noticeable difference in symptoms? Are there types of ILD that are more common in women than in men? These are the questions we discuss in this episode of the 'Pulmonary Fibrosis' podcast! Jen Wescoe and Dr. Rachel Kriner of Temple Lung Center discuss women and ILD, the mental health of women battling ILD, and great resources you can use to join clinical trials to help beat this disease! The 'Pulmonary Fibrosis' podcast is brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers. Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.

What is the difference between Palliative Care & Hospice, and why important to discern the difference?! Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey. It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.

Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF. This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you can participate in the studies! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.

2024 was an AMAZING year for the 'Pulmonary Fibrosis' podcast! We have been downloaded in 74 countries around the world, and can't wait to continue to explore all avenues that connect the ILD community! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss some of the tremendous moments of 2024, and what's in store for 2025! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD? Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD! It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease? Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there! It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease? How does the family dynamic help in managing this part of one diagnosis? Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What is Pulmonary rehab? How has rehab changed thanks to the virtual world? This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What defines a "rural" area? What step has to been taken to assess rural healthcare & ILD needs? Find out in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! This episode, we're joined by Dr. Teja Kulkarni of UAB and Dr. Jessica Shore of the Pulmonary Fibrosis Foundation to discuss the impact on patients living in rural areas! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey? Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What is Patient Engaged Research? What is PCORI? Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF. It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

Delightful. That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen! Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What are ILD guidelines? How are they developed, and what major role do patients play in the process? Dr. Sindhu Johnson of the University of Toronto joins Crockett to discuss the ins-and-outs of ILD guidelines in this episode of the Pulmonary Fibrosis podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What a year it was! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss the wonderful and enlightening moments of 2023, and what exciting things are in store for 2024 in the Pulmonary Fibrosis podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit paipfsupportnetwork.org!See omnystudio.com/listener for privacy information.

What role does nutrition play for patients and caregivers battling ILD? Dr. Gautam George of Jefferson Health joins Crockett to discuss how one can prioritize their nutrition on a daily basis, specific foods that can help, and the role calories play! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

In what ways have Veterans been affected by Interstitial Lung Diseases? What resources do Veterans have, and how can the VA help? We're joined by Dr. Mary Porteous, the Director of the Interstitial Lung Disease and Sarcoidosis Program at the Corporal Michael J. Crescenz VA Medical Center and Penn Medicine, to discuss Veterans living with ILD in the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find the Pulmonary Fibrosis podcast wherever you get your podcasts!See omnystudio.com/listener for privacy information.

What are telomeres? What role do they play in understanding IPF? We discuss these questions and more in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Dr. Jonathan Alder and Dr. Daniel Kass of UPMC join Crockett to discuss current research on telomeres, and the impact it is having on the IPF community! Find the Pulmonary Fibrosis podcast wherever you get your podcasts!See omnystudio.com/listener for privacy information.

What is the role of a Genetic Counselor?! Why is a genetic counselor needed for a person living with IPF? We find out in this month's episode of the PULMONARY FIBROSIS podcast! We're joined by Janet Talbert of Vanderbilt University Medical Center to discuss the important roles of Genetic Counselors! Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!! Find the PULMONARY FIBROSIS podcast wherever you get your podcasts!!See omnystudio.com/listener for privacy information.

What is UNOS? And what role do they play for a patient waiting for a lung transplant? Dr. Marie Budev of the Cleveland Clinic, and the OPTN Lung Transplantation Committee Chair joins the PULMONARY FIBROSIS podcast to discuss these questions and more! Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!! Find the PULMONARY FIBROSIS podcast wherever you get your podcasts!!See omnystudio.com/listener for privacy information.

We're discussing the effects of AIR POLLUTION on this episode of the PULMONARY FIBROSIS podcast! What research is being done to help us understand the effects of pollution on the general public and people living with Pulmonary Fibrosis and Interstitial Lung Disease? Dr. Gillian Goobie of the University of British Columbia joins host Kevin Crockett to discuss her studies in air pollution, and how the Pulmonary Fibrosis community can help make the future of air quality better! Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!! Find the PULMONARY FIBROSIS podcast wherever you get your podcasts!!See omnystudio.com/listener for privacy information.

What role does sleep play for patients when dealing with ILD? What are some ways to help manage sleep with ILD? Dr. Maria Vega-Sanchez of Temple Lung Center joins Kevin Crockett to discuss the correlation between sleep and lung diseases! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFSUPPORTNETWORK.org!See omnystudio.com/listener for privacy information.

What is a Pulmonary Function Testing? Why is this information important for patients and caregivers living with lung diseases? We discuss these questions and more, with Dr. Kartik Shenoy of Temple Lung Center, in this episode of the PULMONARY FIBROSIS podcast!! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!Learn more at PAIPFSUPPORTNETWORK.org!!See omnystudio.com/listener for privacy information.

One thing we've talked about quite a bit in this podcast is how far things have come in battling IPF in just the last two decades. Our guest this episode is Eamonn Costello, the Co-Founder and CEO, patientMpower, who discusses the key advances in TECHNOLOGY that are making a BIG TIME impact!In what ways can we share the benefits of technology with patient care? What does he envision as the future of patient care through technology? We discuss this, and more, in the PULMONARY FIBROSIS podcast! Brought to you by the PAIPF Support Network – visit paIPFsupportnetwork.org! And by the Wescoe Foundation for Pulmonary Fibrosis! Find the Pulmponary Fibrosis podcast wherever you get your podcasts!See omnystudio.com/listener for privacy information.

What is Pulmonary Rehabilitation? What are the benefits? Crockett is joined by Lorri Snyder and Emily Pettit of Wellspan York to discuss these questions and more in this episode of the PULMONARY FIBROSIS podcast! Brought to you by the PAIPF Support Network – visit paIPFsupportnetwork.org! And by the Wescoe Foundation for Pulmonary Fibrosis! Find the Pulmponary Fibrosis podcast wherever you get your podcasts!See omnystudio.com/listener for privacy information.

What a year it has been for the PULMONARY FIBROSIS PODCAST!! Jen Wescoe, of the Wescoe Foundation for Pulmonary Fibrosis, joins Crockett and reflects on the year that was, the AMAZING steps the PAIPF Community has taken in recent years, and what we can look forward to in 2023! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!! Find the 'PULMONARY FIBROSIS' podcast on Google, Spotify, Apple podcasts - wherever you get your podcasts - or at PAIPFSupportNetwork.org!!See omnystudio.com/listener for privacy information.

What is an acute exacerbation? Are there different types of exacerbation related to Idiopathic Pulmonary Fibrosis? Dr. Nathaniel Marchetti of Temple Lung Center joins host Kevin Crockett to discuss acute exacerbation and more! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!! Find the 'PULMONARY FIBROSIS' podcast on Google, Spotify, Apple podcasts - wherever you get your podcasts - or at PAIPFSupportNetwork.org!!See omnystudio.com/listener for privacy information.

There really isn't an easy way to have the conversation... Families facing IPF, or any terminal diseases, ultimately need to start talking about the issues that may arise with the end of a loved one's life. Colleen Pellegrino, a Licensed Clinical Social Worker, joins Crockett to disucss the way to begin those conversations, the timing of them, and there may even be a lighthearted pop-culture reference or two in there to break the ice. It's the ‘PULMONARY FIBROSIS' PODCAST!! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFSUPPORTNETWORK.org!!See omnystudio.com/listener for privacy information.

It takes a village when someone is battling a disease like Pulmonary Fibrosis. The patient, the Medical Teams -- and of course -- the caretakers! Karen Carns joins Crockett to discuss the role of the caretaker, reflecting on the path she has taken with her husband Jim. It's the ‘PULMONARY FIBROSIS' PODCAST!! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFSUPPORTNETWORK.org!!See omnystudio.com/listener for privacy information.

What role does a Rheumatologist play in the diagnosis and theraputic process when it comes to Interstitial Lung Diseases? Crockett is joined by Dr. Giorgos Loizidis - a Rheumatologist from Jefferson Health, in a NEW episode of the ‘PULMONARY FIBROSIS' PODCAST!! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFSUPPORTNETWORK.org!!See omnystudio.com/listener for privacy information.

Are you or someone you know living with Idiopathic Pulmonary Fibrosis?! We have got a GREAT episode this time around with excellent information on the patient and caregiver experience from a patient living with IPF. Jim Carns joins Crockett to tell us about the patient experience of living with IPF, and about lung transplants. It's the 'PULMONARY FIBROSIS' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis, and the PAIPF Support Network! Learn more at PAIPFSUPPORTNETWORK.org!!See omnystudio.com/listener for privacy information.

What is Familial IPF? What is genetic counseling, and how is it a useful resource? It's a BRAND NEW episode of the 'PULMONARY FIBROSIS' podcast - brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Crockett is joined by Dr. Namrata Patel from the University of Pennsylvania to discuss Familial IPF, and how it's diagnosed! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

We are ONE YEAR into the 'Pulmonary Fibrosis' podcast! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis discusses all that we've accomplished this year, and what we can expect in the year to come! Brought to you by the the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis! Find the 'Pulmonary Fibrosis' podcast on Spotify, Apple Podcasts or wherever you get your podcasts - and learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

What is Interstitial Lung Disease (ILD)? Dr. Ross Summer, a board certified pulmonary and critical care physician, joins Crockett to discuss the intricacies of this disease. It's the PULMONARY FIBROSIS podcast! Brought to you by the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis! Find the 'Pulmonary Fibrosis' podcast on Spotify, Apple Podcasts or wherever you get your podcasts - and learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

What is the right time for you to see a Respiratory Therapist? What is the role of a respiratory therapist in pulmonary rehabilitation? We discuss all this and more in this episode of the PULMONARY FIBROSIS podcast! Crockett is joined by Dalia Al-Daoud, a Registered Respiratory Therapist (RRT) at Geisinger Medical Center to talk about the process for patients and caregivers. Brought to you by the the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis! Find the 'Pulmonary Fibrosis' podcast on Spotify, Apple Podcasts or wherever you get your podcasts - and learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

Facing a diagnosis of Pulmonary Fibrosis can be difficult for the patients and their caregivers. What are some of the BEST resources a family can utilize when facing IPF?! Crockett is joined by Talia Giordano, a Licensed Certified Social Worker from Gift of Life Family House, discusses the impact they make for not only the patients, but for the caregivers and family as well! Brought to you by the the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis! Find the 'Pulmonary Fibrosis' podcast on Spotify, Apple Podcasts or wherever you get your podcasts - and learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

What a first year it has been! We've gotten to know SO MUCH about Idiopathic Pulmonary Fibrosis, and this whole idea for an informational podcast started with Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis! She tells us about what exciting things we can expect from the show in 2022 in this episode of the PULMONARY FIBROSIS PODCAST! Brought to you by the the Pennsylvania IPF Support Network and the Wescoe Foundation for Pulmonary Fibrosis! Find the 'Pulmonary Fibrosis' podcast on Spotify, Apple Podcasts or wherever you get your podcasts - and learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

It's a part of the conversation when you're talking about Pulmonary Fibrosis. When might be the right time to start talking about a lung transplant, and who do you and your loved ones talk to? Crockett is joined by the Pennsylvania IPF Support Network and Nurse Practitioner Kevin Carney, a Certified Clinical Transplant Coordinator from Temple Lung Center with what you need to know about lung transplants! It's the 'Pulmonary Fibrosis' podcast - Brought to you by the Wescoe Foundation for Pulmonary Fibrosis! Find the 'Pulmonary Fibrosis' podcast on Spotify, Apple Podcasts or wherever you get your podcasts - and learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

Mental health strategies are a big part of the equation for patients and caregivers dealing with the life changes that come with a diagnosis of Pulmonary Fibrosis. Dr. Deborah Gillman from the Simmons Center for ILD at UPMC joins the 'Pulmonary Fibrosis' podcast to discuss the best approaches with mental health when battling IPF! Brought to you by the Pennsylvania IPF Support Network!! Find the ‘PULMONARY FIBROSIS’ podcast wherever you get your podcasts – and learn more at paipfsupportnetwork.org!See omnystudio.com/listener for privacy information.

When it comes to facing a diagnosis of Pulmonary Fibrosis, it takes a TEAM to communicate and work together to make this life transition as smooth as possible. What are the Palliative Care benefits for Idiopathic Pulmonary Fibrosis? We take a deep dive in the ‘PULMONARY FIBROSIS’ podcast!! Crockett is joined by the PA Pulmonary Fibrosis Support Network and Dr. Patricia Fogelman, the System Director of Palliative Medicine with the Guthrie Clinic, to discuss the benefits of palliative care. Find the ‘PULMONARY FIBROSIS’ podcast wherever you get your podcasts – and learn more at paipfsupportnetwork.org!See omnystudio.com/listener for privacy information.

In this episode, we're talking all about rehabilitation for Idiopathic Pulmonary Fibroisis! Host Kevin Crockett is joined by Dr. Doug Corwin from the St. Lukes University Health Network discussing different rehabilitation options, as well as the important role caregivers provide! Brought to you by the PA Pulmonary Fibrosis Support Network and the Wescoe Foundation for Pulmonary Fibrosis - learn more at paipfsupportnetwork.org!!See omnystudio.com/listener for privacy information.

Welcome to episode 4 of the 'Pulmonary Fibrosis Podcast'! How does oxygen affect Idiopathic Pulmonary Fibroisis? Dr. Scott Blumhof from the Lehigh Valley Health Network joins Crockett to discuss all things OXYGEN! The 'Pulmonary Fibrosis Podcast' is brought to you by the PA Pulmonary Fibrosis Support Network - visit paipfsupportnetwork.org for more! Kindly subscribe/download/review wherever you get your podcasts!!See omnystudio.com/listener for privacy information.

The battle against Idiopathic Pulmonary Fibrosis continues!! Dr. Daniel Kass, an Associate Professor of Medicine at the University of Pittsburgh and the Director of the Dorothy P. & Richard P. Simmons Center for ILD, joins host Kevin Crockett to discuss managing the symptoms of IPF, and how the Pennsylvania IPF Support Network is helping to take on the disease! Check out episode THREE of the PULMONARY FIBROSIS PODCAST! Visit: https://paipfsupportnetwork.org/ for more information! Kindly like/subscribe/download/review wherever you get your podcasts!See omnystudio.com/listener for privacy information.

The passion to fight Idiopathic Pulmonary Fibrosis is STRONG in Dr. Rebecca Bascom!! Dr. Bascom, from Penn State Medical Center of Hershey, joins host Kevin Crockett to discuss IPF treatments, and what the Pennsylvania IPF Support Network is doing to help fight his disease! It's episode two of the PULMONARY FIBROSIS PODCAST! Visit: https://paipfsupportnetwork.org/ for more information! Kindly like/subscribe/download/review wherever you get your podcasts!See omnystudio.com/listener for privacy information.

Do you know someone living with Idiopathic Pulmonary Fibrosis? Kevin Crockett is joined by Dr. Gerard Criner of Temple Lung Center and Senator Pat Browne, a tireless champion of those living with Pulmonary Fibrosis, to learn what IPF is; and what the Pennsylvania Pulmonary Fibrosis Support network is doing to help! Visit: https://paipfsupportnetwork.org/ for more information! Kindly like/subscribe/download/review wherever you get your podcasts!See omnystudio.com/listener for privacy information.