Podcasts about serious illness

ShownotesWhen we lose a loved one, it is often thought of as the end of their life and, therefore, the end of them being present in our lives. The pain and suffering that come along with the grief and sorrow tend to make us feel as though they are gone forever. But what if we changed the way we look at death? What if we take a different perspective by looking at it as a new beginning rather than the end? After all, if we truly believe death does not get the final word, we must maintain hope that in dying, our loved ones will be restored to their glory in Heaven, right?Our GuestSr. Maria of the Trinity was born in Oklahoma and grew up in Minnesota. Blessed with a wonderful Catholic family, she responded to God's call to consecrated life. She has degrees in Philosophy from the University of Dallas, Nursing from the University of San Francisco, and Hospice and Palliative Care from the University of Paris. Responding to a call within her call 12 years ago, she began the Gospel of Life Dwellings in Oklahoma and Texas to care for those in need at the end of their life. Now, as an emerging Franciscan ecclesial family, the Gospel of Life Disciples are beginning dwellings in Georgia and Guatemala. The members seek a deep prayer life and live the corporal and spiritual works of mercy with the elderly and terminally ill on their journey home to God.Links from the show A Birth Unto Hope: Reflections on the Gospel of Life at Death The nun who left France to create special homes for the elderly poor in the U.S. Gospel of Life Dwellings (GOLD) Intensive Caring: A Practical Handbook for Catholics about Serious Illness and End-of-Life Care by Natalie King, MDScripture The Gospel of the Good Shepherd, Matthew 18:12 Deuteronomy 26:55Prayer for :The deceased residents of G.O.L.D. and Brett**Since the recording of this episode, Brett has since passed. Our deepest condolences his beloved friends and family.Journaling Questions What touched you the most from this week's episode? Have you ever spent time with someone through their journey at the end of their life? How did it impact you? Have you ever experienced anticipatory grief? What is your mourning Glory?Be sure to check out our website, www.mourningglorypodcast.com. There you will find links to all of our episodes as well as resources to help you on your journey.

In this episode of TCN Talks, host Chris Comeaux interviews Bree Owens, a licensed clinical social worker and co-founder of The Holding Group. They discuss Bree's journey in the healthcare field, particularly in palliative care. Bree shares insights on having learned the importance of having meaningful conversations with patients and families about their care options, which led her to the unique model of The Holding Group.  Her organization has held space, hence the name The Holding Group, for a patient-centered approach, helping patients and their families find the right care at the right place at the right time. Bree emphasizes the significance of informed consent and the role of social workers in facilitating these discussions to improve patient outcomes and satisfaction.Chris and Bree also delve into the evolution and current state of palliative care, highlighting the challenges and innovations in the field.  Bree emphasizes the importance of integrating social work into healthcare, particularly in serious illness and dementia care.  They also discuss the upcoming GUIDE model, which aims to provide comprehensive support for dementia patients and their caregivers.This is a great listen for staff, leaders, and Boards of Hospice and Palliative Care organizations.  Join us, this is timely and relevant.Guest: Bree Owens, Licensed Clinical Social Worker and Co-Founder of The Holding Group Host: Chris Comeaux, President / CEO of TCN/TCGTeleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast

Today we're going to be taking about being financially prepared for life events. This is important because it's so easy to make progress with your finances, only to have the rug pulled out from under your feet by something unexpected. Or even something that IS expected… Shownotes: https://meaningfulmoney.tv/YC3 Everything You Need To Know 03:00 Life events – like what? 03:55 Marriage 04:43 Having a Child 05:09 Buying a Home 05:24 Career Advancement 06:02 Starting a Business 07:47 Receiving an Inheritance 08:44 Job Loss or Career Change 09:10 Divorce or Separation 10:04 Serious Illness or Disability 10:41 Death of a Family Member 11:36 Caring for Aging Parents 12:25 Children's Education Costs 12:53 Relocation 13:45 Retirement 14:14 Unexpected Large Expenses 15:15 Being prepared means mastering the 3F's – Foundation, Forward-looking, Flexibility.   Everything You Need To Do 17:03 Foundation – Emergency fund, workplace benefits and personal insurance. LifeSearch - affiliate agreement. 28:38 Forward-looking – consider what may happen and what is likely to happen. 43:02 Flexible – keep things flexible so that we can be able to make changes as needed. 51:47 If big events happen – take your time, seek help.   53:35 Podcast Review

Unlock the transformative potential of palliative care as we sit down with Torrie Fields, the innovative founder and CEO of TFA Analytics. Torrie's unique blend of expertise as a health economist and actuary is driving new approaches to palliative care, particularly through the use of data analytics. Join us as Tori shares her journey from a C-TAC conference meeting to reshaping Medicare guide programs and creating comprehensive care models for patients with serious illnesses. Her insights are changing the way healthcare providers think about aligning patient care with personal goals and reducing unnecessary treatments.Explore the future of palliative care reimbursement and the significant strides being made by pioneering figures like Janet Bowles and Diane Myers. With an eye on 2025, we delve into the exciting developments in healthcare policy and innovative payment models. Discover how collaborative efforts with CMS are shaping a new era in community-based palliative care, and why hospice leaders must urgently adapt to these changes. We dive into the bipartisan nature of palliative care and the importance of educating health insurance companies on its value, ensuring a seamless integration into standard healthcare practices.Witness the evolution towards a co-management model in palliative care, as specialists and primary care providers navigate the challenges of large patient panels. Torrie and I discuss the need for a multidisciplinary approach that supports overwhelmed providers while delivering tailored care. We explore the complexities of integrated healthcare systems and the essential role of palliative care in improving patient experiences and outcomes. Through engaging stories and thought-provoking discussions, this episode celebrates the visionary leaders pushing the boundaries of healthcare solutions, ensuring patients receive the right care at the right time.Teleios Collaborative Network / https://www.teleioscn.org/tcntalkspodcast

Founded by actor/philanthropist Paul Newman in 1994 to “press play” for children affected by serious illness, Barretstown serves thousands of young people and families at its magical County Kildare castle and beyond with impactful programs across Ireland and the UK.Our guest Dee Ahearn has been the driving force behind the Barretstown success story, joining in 2010 as CEO after an international career in marketing and communications with a stint as chairperson of the Make A Wish Foundation Ireland.In this holiday episode Dee shares heartwarming stories of transformation, saying:“Many parents will say that when they're on the drive out the gates of Barretstown, the conversation with their children is when can we come back? Why do we have to leave? This is better than Disney World! And the teenagers want to know how quickly I can come back, what age I need to be to become a volunteer. ”But the serious fun of swimming, canoeing, horseback riding, arts & crafts, and putting on plays rests on a foundation of solid governance, a quality that attracted our additional guest Tony Dunne, Bank of Ireland's US CFO, COO & US Country Manager, to chair the friend-raising and fundraising-focused Barretstown Foundation USA. The conversation underscores the importance of community and international support, including the cross-Atlantic support from American families and volunteers, and wraps with Dee's invitation to you to get involved and help Barretstown provide even more “serious fun.” LinksBarretstownWebsiteDonateLinkedInInstagramFacebookYouTubeTwitterXTikTokBarretstown Foundation USAInstagramFacebook Year End AppealDee AhearnLinkedInTony Dunne, CFO, COO & US Country Manager at Bank of Ireland USLinkedInEpisode Details: Season 6, Episode 22; Total Episode Count: 102

Denial. Substance use. Venting. Positive reframing. Humor. Acceptance. All of these are ways we cope with stressful situations. Some we may consider healthy or unhealthy coping strategies, but are they really that easy to categorize? Isn't it more important to ask whether a particular coping behavior is adaptive or not for a particular person,in a particular time or situation? We are going to tackle this question and so many more about coping on this week's podcast with Dani Chammas, a recurring GeriPal guest, psychiatrist, and palliative care doc at UCSF, and Amanda Moment, a Palliative Care Social Worker at Brigham and Women's Cancer Center. There are so many take-home points for me on this podcast, including this one on a framework for assessing coping in serious illness: nonjudgmentally observe their coping wonder about the impacts of their coping prioritize helping patients maintain their psychological integrity mindfully think through how we can serve their coping in ways that they can tolerate, always calibrating based on the person, the moment, and the setting in front of us. Here are some more resources we've discussed in the podcast Dani's NEJM article on coping: “Should I Laugh at That? Coping in the Setting of Serious Illness” Dani's GeriPal podcast with us on “Improving Serious Illness Communication By Developing Formulations” A great journal article on “Formulation in Palliative Care: Elevating Our Potential for Therapeutic Communication” A study on how palliative care may work by enhancing patients' ability to access adaptive coping - “Role of Patient Coping Strategies in Understanding the Effects of Early Palliative Care on Quality of Life and Mood ** NOTE: To claim CME credit for this episode, click here **  

Podcast guest Andrew Hendricks director: https://www.hencoz.co.nz/ Chapters 00:00 Growing Up in Africa: A Challenging Childhood 03:10 The Impact of Fatherlessness on Identity 06:12 Finding Purpose: The Turning Point of Fatherhood 09:15 Navigating Early Career Challenges 12:15 From Factory Work to Corporate Success 15:11 Insights from Underwriting: Understanding Risk 22:06 Understanding the Role of Advisors and Underwriters 23:32 Managing Client Expectations in Underwriting 25:19 Building Context for Underwriting Decisions 29:29 Navigating Health Conditions and Insurance Premiums 33:16 The Impact of Insurance on Life and Grief 37:01 The Reality of Serious Illness and Financial Strain 38:49 Personal Experiences with Cancer and Caregiving 45:41 Supporting Families During Health Crises 49:35 Checklist for Choosing the Right Insurance Coverage

In this episode, we speak with Well-Being Consultant Tracy Heath. Tracy is a seasoned investment professional with over 30 years of experience in estate planning and generational wealth transfer. As a multiple award-winning expert, she has become a trusted advisor for those facing the challenges of a loved one's serious illness. Tracy's journey has been marked by profound loss, having lost both her parents to cancer in her twenties, three siblings-in-law to ALS, and her brother to cancer at the age of 47. These experiences have forged her into a resilient and empathetic guide, uniquely equipped to navigate the turbulent waters of serious illness with grace and wisdom. A respected speaker and educator, Tracy empowers financial advisors, medical professionals, and individuals with the knowledge they need to plan for the future while embracing the present moment. Her qualifications include diplomas in acupuncture and orthomolecular nutrition and certifications in coaching, positive psychology, mindfulness, and meditation. Her groundbreaking book, "Before Goodbye: Your Emotional, Physical, and Financial Guide When a Loved One is Diagnosed with a Serious Illness,” is set to be released in October 2024. Tracy's unique blend of professional expertise and personal insights makes her an invaluable resource for individuals, families, and professionals seeking guidance during life's most challenging moments. Tracy's book is a culmination of her personal experiences with death, loss, and trauma, including her struggles with her health and the passing of family members. Through her financial background and emotional insights, Tracy offers a holistic approach to navigating the challenges of illness and loss, emphasizing the importance of balance in emotional, physical, and financial aspects. The podcast dives into Tracy's writing process, highlighting the challenges of staying true to her vision amidst editing and feedback. Tracy's dedication to providing practical tools and checklists in her book reflects her commitment to supporting individuals through difficult times, such as anticipatory grief and the need for joy and pleasure amidst sorrow. HIGHLIGHTS: 00:02:26-00:06:52 - Book Launch and Story Background 00:07:57-00:12:58 - Personal Experience with Loss in 20s 00:12:58-00:14:56 - Transition to Financial Sector 00:15:30-00:21:41 - Continued Experience with Loss 00:22:03-00:34:20 - Writing Experience and Editing Challenges 00:34:20-00:40:12 - Importance of Providing Tools and Checklists 00:40:12-00:44:44 - Permission for Joy and Anticipatory Grief Connect with Tracy Instagram: https://www.instagram.com/tracy_m_heath/ Email: Tracy@tracymheath.comWebsite: https://www.tracymheath.comLinkedIn: https://www.linkedin.com/in/tracy-heath-89b0964/ Marsha Vanwynsberghe — NLP Storytelling Trainer, OUTSPOKEN NLP Coaching Certification, Author, Speaker, and Podcaster Join the next cohort of OUTSPOKEN NLP Coaching Certification (kick-off in September 2024) HERE Learn more about changing the Stories We Tell Ourselves Digital Program HERE. Use Code PODCAST to receive 20% off.  Tap the “Follow” button never to miss a show, and if you love the show, please feel free to tag me on social media, share it with a friend, or leave me a rating and review. This really helps the show grow! Website: www.marshavanw.comConnect on IG click HERESubscribe on YouTube click HERE  

Were you born under a lucky Star? Where's Jupiter in your Astro chart? Dean Radin Real Magic https://amzn.to/4d4YuFp   Links mentioned: Kelli Fox old site https://web.archive.org/web/20130602161751/http://theastrologer.com/about-kelli-fox/index.php Kelli old youtube https://www.youtube.com/@KTtheAstrologer/ Kelli new site https://astrology.tv/ Kepler College https://www.keplercollege.org/   Alan Vaughan Cap Ascendant, Sun conjunct Jupiter in Cap in 12th all conjunct Asc Moon Cancer in 7th   Solar Arc chart for starts chanelling Li Sung Death transits   Marie Currie Sagittarius Asc, Sun conjunct Moon in Sagittarius in 12th Very clustered chart! releases popular single Kelli Fox Leo Asc, Sun Leo conjunct Jupiter to Asc/first house Moon in Sagittarius in 5th house   'near death' Serious Illness

Host: Sharon Brubaker, Grief Specialist Description: Welcome to Healing Starts with the Heart, where grief meets resilience. In this deeply personal episode, host Sharon Brubaker shares her journey through a serious health diagnosis and its emotional impact. Sharon dives into the unexpected grief that accompanies serious illnesses or injuries, offering insights, support, and a heartfelt personal story to guide listeners through their own experiences. Episode Highlights: Introduction Sharon introduces the topic and its personal significance. The transformative journey of coping with a serious illness or injury. Personal Story Sharon recounts her experience from April 7th, 2024. The initial symptoms, misdiagnoses, and eventual discovery of a 95% blockage in the widowmaker of her heart. The emotional rollercoaster: fear, numbness, frustration, and realization. The Unique Experience of Women The differences in heart attack symptoms between men and women. Sharon's persistence in seeking the correct diagnosis despite normal test results. The importance of advocating for oneself in the medical field. Emotional Impact The range of emotions faced: fear, worry, sadness, and numbness. Sharon's fear of leaving her husband behind. The shift from fear of death to acceptance and planning. Coping Mechanisms The role of journaling in processing emotions and thoughts. Sharon's strategy of writing down important information for her family to reduce anxiety. The calming effect of preparedness. Grief and Loss The grief associated with losing health and the old way of life. Feeling powerless, isolated, and facing one's own mortality. The importance of pausing and reflecting on emotions and thoughts. Journal Questions for Reflection Primary emotions experienced due to illness or grief. Intensity and physical location of these emotions in the body. Sharon encourages listeners to use these questions to gain deeper insights into their emotional state. A Message to Women Encouragement to seek medical help if something feels off. Advocating for better understanding and treatment of women's heart health. Griever's Guide and Free Videos Sharon shares the story of Austin's loss and her mission to understand grief. Free resources: The Griever's Guide ebook and videos on various grief-related topics. Closing Thoughts Sharon's gratitude for having more time and her dedication to supporting others through grief. A reminder that Sharon sees, understands, and supports her listeners in their healing journey. Resources: Download The Griever's Guide Call to Action: If you've been touched by today's episode, please share it with someone who might benefit from hearing Sharon's story. Subscribe to Healing Starts with the Heart for more episodes on grief, healing, and resilience. Contact Information: Website: The Grief School Email: info@thegriefschool.com Follow Sharon on Facebook and Instagram Thank you for joining us on this journey. Remember, you are not alone in your grief, and together we can find healing.

“Anxiety is a lot like a toddler. It never stops talking, tells you you're wrong about everything, and wakes you up at 3 a.m.”  I'm not sure who wrote this quote, but it feels right to me. We've all had anxiety, and probably all recognize that anxiety can be a force of action or growth but can also spiral to quickly take over our lives and our sleep. How, though, do we navigate anxiety and help our patients who may end up in the anxiety spiral that becomes so hard to get out of? On today's podcast, we've invited Alex Gamble and Brianna Williamson to talk to us about anxiety. Alex is a triple-boarded (palliative care, internal medicine, and psychiatry) assistant professor of medicine at Stanford. Brianna is one of UCSF's palliative care fellows who just completed her psychiatry residency. We start by defining anxiety (harder said than done), move on to talking about when it becomes maladaptive or pathologic, and how DSM5 fits into all of this. We then walk through how we should screen for anxiety and how we should think about a differential.  Lastly, we talk about both non-pharmacologic and pharmacologic treatments. It's a lot to cover in 45 minutes, so for those who like to take a deeper dive, here are some of the references we talked about: Alex Sable-Smith's great BATHE video on YouTube:  Two books that Alex Gamble often recommends to patients can help build up your capacities to sit with anxiety (per Alex, both are from an Acceptance and Commitment Therapy framework) Things Might Go Terribly, Horribly Wrong: A Guide to Life Liberated from Anxiety The Reality Slap  

I always find cachexia in serious illness puzzling. I feel like I recognize it when I see it, but I struggle to give a clear definition or provide effective ways to address it. In today's podcast, we had the opportunity to learn from a renowned expert in palliative care, Eduardo Bruera, about cachexia and anorexia in serious illness. Eduardo established one of the first palliative care programs in 1984, created the Edmonton Symptom Assessment Scale (ESAS), and significantly contributed to the evidence base for palliative care symptoms that many of us rely on daily. During our discussion with Eduardo, we delved into how we can define cachexia and anorexia, why they occur in conditions like cancer, how to assess for them, and explored the interventions that are helpful and those that are not in the treatment of these conditions.

On Wednesday's Morning Focus, Alan Morrissey was joined by Tommy Corbett from Carey Corbett Financial Solutions. This week, Tommy provided Alan and our Morning Focus listeners with advice on critical illness, serious illness and specified illness cover.

As Eric notes at the end of today's podcast, we talk about many difficult issues with our patients.  How long they might have to live. Their declining cognitive abilities. What makes their lives meaningful, brings them joy, a sense of purpose.  But one issue we're not as good at discussing with our patients is sexual health. On today's podcast Areej El-Jawahri, oncologist specializing in blood cancers at MGH, says that sexual health is one of the top if not the top issue among cancer survivors.  Clearly this issue is important to patients.  Sharon Bober, clinical psychologist at DFCI, notes that clinicians can get caught in an anxiety cycle, in which they are afraid to ask, don't ask, then have increased anxiety about not asking.  Like any other conversation, you have to start, and through experience learn what language is comfortable for you.  Don Dizon, oncologist specializing in pelvic malignancies at Brown, suggests speaking in plain language, starting by normalizing sexual health issues, to paraphrase, “Many of my patients experience issues with intimacy and sexual health. Is that an issue for you? I'm happy to talk about it at any time.”  All guests agree that clinicians feel they need to have something they can do if they open Pandora's box.  To that end, we talk about practical advice, including: The importance of intimacy over and above physical sexual function for many patients Common causes and differential diagnoses of sexual concerns in patients with cancer and survivors Treatments for erectile dysfunction - first time the words “cock ring” have been uttered on the GeriPal Podcast - and discuss daily phosphodiesterase 5 inhibitor therapy vs prn The importance of a pelvic exam for women experiencing pain What is “pelvic physical therapy?” Treatments for vaginal dryness and atrophy ACS links, NCCN links, Cancersexnetwork, and a great handout that Areej created And I get to sing Lady Gaga, also a first for GeriPal!  And let me tell you, there's nothing like the first time (sorry, I couldn't help it!).

Learn how two creators each facing serious illness came together to produce an award-winning masterpiece. My guests Christina Holbrook and Walker Vreeland are joining me today to talk about their personal stories of serious illness and facing mortality in the midst of working on a creative project. Numerous synchronicities and little miracles came together to… Continue reading Ep. 457 Creativity and Serious Illness with Christina Holbrook and Walker Vreeland

Dealing with a serious illness is one of life's most difficult challenges. It's understandable to react with panic, fear and anxiety and even to ask “why me?” Managing illness or injuries is stressful, and it most certainly will affect your mood and outlook. Call 1-800-DR-LAURA / 1-800-375-2872 or make an appointment at DrLaura.comFollow me on social media:Facebook.com/DrLauraInstagram.com/DrLauraProgramYouTube.com/DrLaura

Dealing with a serious illness is one of life's most difficult challenges. It's understandable to react with panic, fear and anxiety and even to ask “why me?” Managing illness or injuries is stressful, and it most certainly will affect your mood and outlook.Call 1-800-DR-LAURA / 1-800-375-2872 or make an appointment at DrLaura.comFollow me on social media:Facebook.com/DrLauraInstagram.com/DrLauraProgramYouTube.com/DrLaura

HOPELiving Fearlessly in a Scary World ByDr. David Jeremiah   If you would like to support Teresa and Kay's Podcast monthly or make a one-time gift you can click the PayPal link below. https://paypal.me/spiritualwar17 

Learning Objectives:- Differentiate between usual care, palliative care, and hospice care- Identify patients who may benefit from palliative care or hospice- Discuss outcome data supporting early palliative care intervention- Describe opportunities for integrating palliative care into the management of the patient with serious illnessSpeakers:Dr. Paige Farinholt, Hospice and Palliative Medicine, CHI St. Luke's Health; Assistant Professor Hematology and Oncology, Baylor College of MedicineDr. Mark Beiter, Palliative Medicine, Virginia Mason Franciscan HealthPanelists:Sara Powers, NP, Adult Health Wound Care and Palliative Medicine, Mercy Regional Medical CenterDr. Anne C. RossignoDr. Gary Greensweig, Chief Physician Executive, Physician Enterprise

When Kate Middleton announced her cancer diagnosis last Friday she emphasized the time she took to tell her three children what was happening. What is the best way to talk to young people when a parent is seriously ill? Wendy Moynan Senior Social Worker at Tallaght University Hospital regularly deals with families coping with serious illness.

www.YourHealth.orgwww.SCHomeRx.comwww.thedisruptedpodcast.comwww.experiencinghealthcare.com

When someone is given a life-altering diagnosis, change is inevitable. Disease can take away so much from a person: their identity, their power, their abilities. In this episode, Dr. John Mulder and Dr. Jason Beckrow discuss how they help patients regain some of their power and agency, with Dr. Mulder touching on his own experiences from when he was diagnosed with a terminal illness and the effect the journey had on him.

This week I share the story of one of my patients and the woman he loved. Nick was a man in his 20s with an advanced cancer and caring for him touched my heart.He had to face the difficult reality in front of him in order to create the life that he wanted. He embraced acceptance and it changed his future.Come listen to a reading from Coping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself. You'll hear Nick's story and several others and you'll come to believe that acceptance is badass.My patients who practiced acceptance resolved to live their life fully, regardless of their diagnosis. Whether they were facing chemotherapy, radiation, surgery, or an end of life illness the squeezed all the juice out of life that they could.They coped courageously.This week I challenge you to consider your own life through the lens of acceptance. Let me know what you come up with.Celebrating the heart-centered healer that you are,Dr. DeliaDelia Chiaramonte, MDwww.copingcourageously.comMy book Coping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself is out! If you're a physician, clinician, or have a loved one with dementia, cancer or other serious illness or an aging parent this book is for you.My book has launched! Order your copy of Coping Courageously: A Heart-Centered Guide for Navigating a Loved One's Illness Without Losing Yourself, and buy one for a friend. www.copingcourageously.com Creating Integrative Palliative Solutions for Hospices and Clinicians Who Care for People With Serious IllnessPlease review this podcast wherever you listen and forward your favorite episode to a friend! Sign up to stay connected and learn about upcoming programs:https://trainings.integrativepalliative.com/IPI-stay-in-touchI'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

Since 1983 Hank Dunn has been ministering to patients at the end of their lives and their families. During that time he has served in a nursing home, hospice programs and a hospital. He has become an expert on the topic of helping patients and families with end-of-life decisions.He is a past president of the Northern Virginia Chapter of the Alzheimer's Association and has served on several ethics committees. Hank is a frequent speaker nationally on the topic of making end-of-life decisions and spirituality and healthcare. To help him explain end-of-life decisions to patients and families, he wrote a booklet to hand to them so they could reflect on the issues discussed. As an afterthought, he sent the book out to other institutions to see if they would be interested in purchasing it for their clients. First published in 1990, Hard Choices for Loving People: CPR, Feeding Tubes, Palliative Care, Comfort Measures, and the Patient with a Serious Illness is now in its Sixth Edition, with over four million copies sold, and it is being used in more than 5,000 hospitals, nursing homes, faith communities and hospice programs nationwide. His second book, Light in the Shadows: Meditations While Living with a Life-Threatening Illness, is a collection of reflections on the emotional and spiritual concerns at the end of life.Hard Choices for Loving People- https://www.amazon.com/Hard-Choices-Loving-People-Palliative/dp/099726120X/ref=sr_1_1?crid=8EZKO1XG9ULE&keywords=hard+choices+for+loving+people&qid=1705748342&sprefix=hard+choices+for+%2Caps%2C346&sr=8-1Light in the Shadows- https://www.amazon.com/Light-Shadows-Meditations-Life-Threatening-Illness/dp/1928560059/ref=sr_1_1?crid=2Z46OWPQM7Y5Y&keywords=light+in+the+shadows+hank+dunn&qid=1705748501&sprefix=light+in+the+shadows+hank+dun%2Caps%2C586&sr=8-1Send questions for Back Channel with Foth to aaron.santmyire@agwmafrica.org

The CDC's Guideline for Prescribing Opioids for Chronic Pain excludes those undergoing cancer treatment, palliative care, and end-of-life care. In doing so, it seems to give the impression that pain seen in cancer is inherently different than pain seen in other conditions and that those with cancer may not have the same risk for opioid use disorder as compared to other conditions. Today's podcast tackles these issues and more with three amazing guests: Katie Jones, Jessica Merlin, and Devon Check.   We start off the conversation by talking about whether patients with cancer and cancer pain are really that different, and their paper that was just published on January 11th in JAMA Oncology showing that substance use disorder is not uncommon in individuals with cancer. After discussing screening options for substance use disorder, we go on to talk about both the treatments for it and the issues that arise.  In particular, we talk about Katie's and Jesica's paper in NEJM titled “Juggling Two Full-Time Jobs — Methadone Clinic Engagement and Cancer Care,” which described the difficulty in managing cancer pain and methadone for opioid use disorder. Lastly, we discuss Katie's paper on substance use disorder in an aging population and how one can incorporate the 5 Ms (ie, matters most, medications, mind, mobility, and multicomplexity) into a framework for age-friendly care for older adults with substance use disorder. If you want to do a deeper dive, here are some other references we talk about in the podcast: Previous podcasts on substance use disorder Buprenorphine Use in Serious Illness: A Podcast with Katie Fitzgerald Jones, Zachary Sager and Janet Ho  Substance Use in Older Adults: A Podcast with Ben Han  Palliative Care, Chronic Pain, and the Opioid Epidemic: GeriPal Podcast with Jessie Merlin    Expert consensus-based guidance Expert consensus-based guidance on approaches to opioid management in individuals with advanced cancer-related pain and nonmedical stimulant use Consensus-Based Guidance on Opioid Management in Individuals With Advanced Cancer-Related Pain and Opioid Misuse or Use Disorder Expert Panel Consensus on Management of Advanced Cancer-Related Pain in Individuals With Opioid Use Disorder  

Drs Bethany Uhl and Megan Schaefer visit the studio as we explore Flying Horse Farms: A SeriousFun Camp for Kids with Serious Illness. Learn what it takes to offer a summer camp for children with chronic and complex conditions… and discover how your family can support their work. We hope you can join us!

Speech Language Pathology: Continuing Education Courses by SLP Nerdcast Course Title: SLPs Role in Palliative Care and How to Have Serious Illness ConversationsGet .1 ASHA CEU and view the full course landing page: https://courses.slpnerdcast.com/courses/slps-role-in-palliative-care-and-how-to-have-serious-illness-conversations-abje0127Earning Speech-Language Pathology CEUs Online is Simplified with SLP Nerdcast. On SLP Nerdcast you'll find SLP Continuing Education Courses, Masterclasses and Clinical Resources. To learn more about our services visit ▶ https://bit.ly/SLPNERDCAST To learn more about our membership and save 10% on your first year of membership visit ▶ https://bit.ly/SLPNerdcastMembership use code “YouTubeNerd” to save.Learning Objectives:1. Define palliative care2. Describe knowledge and skills specific to the SLP role that can benefit patients/caregivers/clinicians navigating serious illness3. Identify at least one communication tool that uses patient-tested, person-centered language as a framework for discussions about serious illnessReferences & Resources:Serious Illness Guide from Ariadne LabsAmerican Geriatrics Society statement re: feeding tubes in patients with advanced dementiaEAT-10MDADI Honeycomb Speech Therapy Motivational Interviewing Cheat Sheet

Dog cancer mom Molly Jacobson has been helping thousands of people facing dog cancer since 2007, and she's got a perspective on dog cancer that will help you every second of every minute you have left with your dog. Join our Facebook support group at https://facebook.com/groups/dogcancersupport Call +1 808-868-3200 to leave a question on our Listener Line for a future show! Related Videos:            Podcast episode with more dog cancer tips on how to handle change: https://www.youtube.com/watch?v=lHWVGRjUjjc Related Links: Read Molly's article about this topic: https://www.dogcancer.com/perspectives/stress-and-finances/number-one-dog-cancer-tip/ Chapters: 00:00 Start 00:03 Intro 00:16 About Molly 00:56 What Happened to Your Brain When You First Heard Your Dog Has Cancer 01:30 There Is a Lot You Can Do for Cancer 01:58 Quality of Life Helps 02:37 Don't Let Cancer Take Your Dog 03:21 Dr. Demian Dressler's Reason for Writing 04:17 Cancer is a Serious Illness to Manage 04:46 Get Help for Yourself 05:23 Dogs Don't Know They Have Cancer 05:40 Keep Their Routines 07:10 Outro -- Get to know Molly Jacobson: https://www.dogcancer.com/people/molly-jacobson/ For more details, articles, podcast episodes, and quality education, go to the episode page: https://www.dogcancer.com/podcast/ Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Kaishauna Guidry is keeping it real when it comes to difficult conversations about hospice, dying, and death.  As the host of the Dr. G at the Heart of Healthcare podcast, she's teaching her listeners about challenging healthcare issues.  She's a fierce advocate for quality care, and empowers others to get the best from their care.  She's comfortable with the hard topics, discussing what people and caregivers need at end of life.  Her mobile medical service provides care for patients who may have been discharged from hospice but still need a medical provider wherever they call home.  Dr. G also provides consulting and mentoring for other physicians and organizations who need to improvise their physician documentation.  Her book Dr. G's H.O.S.P.I.C.E. Guide:  7 things Hospice Physicians Need to Know to Be Ready for Work provides support for doctors working in end of life care.  She's also the author of The Real Deal about Hospice: Short Stories Highlighting the Advantages of Hospice Care for Patients and Families.   Storyteller, advocate, mentor, and physician - Dr. G's voice is strong and so necessary for today's healthcare system.  Find out more about Mourning Dove Medical at mourningdovemedical.com.   Listen to the Dr. G at the Heart of Healthcare podcast here. Connect with Dr. G on social media. Facebook IG Twitter   LinkedIn Get your copy of Dr. Guidry's books here.     If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.   Need a dynamic speaker for your event or conference?  Book podcast host Helen Bauer to speak by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.        

AP correspondent Ed Donahue on Fear of Illness

www.YourHealth.orgwww.SCHouseCalls.comwww.HouseCallsGA.comwww.MainStreetPhysicians.comwww.SCHomeRx.comwww.thedisruptedpodcast.comwww.experiencinghealthcare.com

This week, in honor of Thanksgiving here in the US, I share a brief conversation with Hospice Chaplain Hank Dunn. He reads two moving pieces from his book, Light in the Shadows: Meditations While Living with a Serious Illness, and we talk about “letting go” versus “letting be.” For more information on Best Life Best Death please visit our website at ⁠⁠www.bestlifebestdeath.com⁠⁠ Follow us on our social channels to receive pertinent and helpful resources on death, grieving, and more at: Facebook: ⁠⁠www.facebook.com/bestlifebestdeath⁠⁠ Instagram: ⁠⁠www.instagram.com/bestlifebestdeath⁠⁠

Sickness, grief, and loss are inevitable. All of us will experience or walk with close loved ones through sudden loss, or the complexities of a serious or life-threatening illness.Jane Butler, our dear friend, graphic designer for Famous at Home, and Co-Founder of Near, joins us to talk about her husband's brain cancer, how they navigated two brain surgeries, and how she manages to continue to walk alongside him and her young kids as they face hard things.In this episode, Jane shares her deep passion and wisdom about the intersection of life, marriage, parenting, serious illness, and grief and her new passion as the co-founder of Near, an organization offering support for those going through difficult times. Here are some takeaways:When someone you love receives a diagnosis and you don't know what to doSupporting and organizing care for our hurting friends during a crisisHow to shy away from "toxic positivity"and not dismiss someone else's painThe best way to show compassion for someone experiencing a crisisHow to lead your young family in the midst of loss, grief, and difficult seasonsShow Notes:Learn more about Near:https://staynear.coApply now for The Leader's Heart Men's Cohort:https://www.famousathome.com/theleadersheartInterested in group coaching with Josh or Christi? Click here for interest form:https://www.famousathome.com/groupcoachinginterestOrder a copy of Famous at Home by Dr. Josh and Christi:https://amzn.to/3y1jJFzWatch this episode on YouTube:https://www.youtube.com/@FamousatHomepodcast

Tara Jenkins, founder of Harmony in Dementia, is connecting patients and caregivers with meaningful music one song at a time.  As a Board Certified Music Therapist (MT-BC), Tara knows the power of music for reaching those patients dealing with Alzheimer's and dementia. She knows it takes a team of people to care for someone with dementia, working in harmony to provide quality of life.  That's where the name of her company, Harmony in Dementia, comes in.  Tara trains volunteers and caregivers to utilize music in care, and reap those benefits for patients.  She teaches that music experiences aren't universal for everyone, so being aware of the effects of music is very important. To get started with someone to provide music, Tara recommends asking the patient (person!) what they like.  Some people won't be able to answer, so Tara teaches how to look at the person's age, what music was popular during their younger years and what area they lived in.  A person's music collection (if you're caring for them in the home) might tell a lot about the music they enjoy.  Even seeing an album cover might connect with a memory.  Responses can range from tears to clapping or singing along.  It's important that caregivers be aware of those responses.  Music provides choice and expression for those who are dealing with issues related to dementia.  Music therapists can help make sense of a patient's response.  Find Harmony in Dementia at harmonyindementia.com. Check out the services that Harmony in Dementia offers here. Purchase a copy of Tara's book Music, Memory, and Meaning: How to Effectively Use Music to Connect with Aging Loved Ones here. Partner with National HME to provide medical equipment for your patients at nationalhme.com. Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.  Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

End of Life Doulas are experts in managing advance care planning conversations.  EOL Doula Pam Carter of International Doula Life Movement knows how to get those discussions going.  As an EOL Doula, Pam works with people with serious illness and their families to determine their end of life wishes.  Choices are often made by weighing benefit vs burden.  That means considering questions like “What will I get out of this?  Is this what I want to do?”, “Is this something that contributes to my quality of life?”, or  “If I spend my time like this, what will it take from me?”, and “What will I have to give up for this (energy, time with family, peace, comfort, respiratory comfort, even money)?” Pam believes advance care planning should consider all aspects of how we live.  Further treatment for an existing illness should definitely be included.  Other things to talk about for your ACP is where you want to be cared for towards the end of your life, and who you'd like to take care of you.   Here are some other things that could be included in your Advance Care Plan: Having visits from a spiritual counselor (chaplain)  Including visitors or having privacy Returning to the hospital for accidents or injuries Treatment for infections How much information you want about your health status Who will be your healthcare decision maker (Medical Power of Attorney/Healthcare Proxy) Funeral/memorial service planning Tradition funeral care, embalming, green burial, or human composting Using medications that will cause drowsiness or avoiding sedation Body/organ donation (whole body donation, forensic anthropology donation) Back-up plan if body donation is disqualified Rituals or ceremonies  That's only the beginning of the many things that can be part of an advance care plan.  Those ACP conversations should happen early and often.  It's hard to imagine all the “what ifs”, but it's valuable to talk about different scenarios that seem possible for your life or situation.   Having an end of life or death doula to facilitate those ACP discussions can help!  Want to know more about doulas, or connect with others who are doing death doula work?  Visit internationaldoulalifemovement.com.  If you're interested in becoming a certified death doula through IDLM, click here. Access all the courses that IDLM provides here. See all the events that IDLM is offering by clicking here.    Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.  Partner with National HME to provide medical equipment for your patients at nationalhme.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network and other caregiving podcasts by clicking here.    

Anna Adams, death doula and founder of International Doula Life Movement, is educating her community about how doulas support patients and families dealing with serious illness.  She's been a volunteer, a CNA, and now she's working with hospice agencies as a death doula.  Doulas bring a special set of skills to the care of hospice patients.  They support, educate, and guide patients (and caregivers) through the experiences at the end of life.  Doulas are also part of advance care planning conversations.   Exploring spiritual beliefs and rituals are part of doula work as well.  Doulas help those who are dying to identify what they believe and engage in those beliefs the way the patient wants.  In support of the family, doulas might also conduct rituals while someone is dying, or even after death.  Any support that's provided is guided by the patient or family.  Doulas are flexible in how they provide care. Want to know more about doulas, or connect with others who are doing death doula work?  Visit internationaldoulalifemovement.com.  If you're interested in becoming a certified death doula through IDLM, click here. Access all the courses that IDLM provides here. See all the events that IDLM is offering by clicking here.    Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.   Partner with National HME to provide medical equipment for your patients at nationalhme.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.                          

Communicating about a serious illness is hard. Last week's podcast we talked about the challenge around miscommunication in serious illness. This week we dive into the challenges with communication when it comes to life sustaining treatments and CPR. Take for example the simple question: “If her breathing gets any worse, she will need to be intubated.” This seems like an innocuous statement of fact, but does she really “need” to be intubated if, for example, her primary goals are to be comfortable and die at home?  Of course not.  We've invited Jacqueline Kruser and Bob Arnold on this week's podcast to talk about their recently published JAMA Viewpoint article titled “Reconsidering the Language of Serious Illness.” I love this article as it specifically discusses what's wrong with “need” statements and how we can shift our communication and thinking to create space for deliberation about patients' priorities and the best course of action.   We've also invited Sunita Puri to talk about the language of life sustaining treatments, in particular CPR. Sunita recently published a wonderful New Yorker article titled The Hidden Harms of CPR arguing among other things that these conversations “are procedures, demanding the same precision of everything else in medicine.”  So take a listen and check out some of these other links to dive deeper: Our first podcast in the series of 3 podcasts “Miscommunication” A great article on why you shouldn't ask what patients “want” Sunita's book That Good Night: Life and Medicine in the Eleventh Hour The paper Jacky talked about regarding the ingrained pattern of focusing on the “need” for specific life-sustaining interventions, typically as the reason to admit a patient to the ICU Changes in End-of-Life Practices in European Intensive Care Units From 1999 to 2016 Cardiopulmonary Resuscitation on Television — Miracles and Misinformation Code Status Discussions Between Attending Hospitalist Physicians and Medical Patients at Hospital Admission

The Sisterhood of Care is using their superpowers to create a caregiving team.  Their podcast, Confessions of a Reluctant Caregiver, is a safe space for anyone who has a role as a caregiver for someone they love.   The three sisters - JJ, Natalie, and Emilie - have created a caregiver village to support their mom, who lives with Parkinson's disease.  The journey hasn't been easy.  They've learned a lot about themselves, and how to bring their best skills to the care of their mom.  As caregivers, the women know the value of humor and offer each other grace.   Each sister has learned tough lessons about what it's like to negotiate the healthcare system, advocate for a parent, and find appropriate housing for someone who's dependent for daily care.  JJ, Natalie, and Emilie have a heart for service, and it shines through in their caregiving journey. You can connect with the Sisterhood of Care on their website confessionsofareluctantcaregiver.com. Listen to the Confessions of a Reluctant Care podcast here. Read more about the Sisterhood's story here. Join the Sisterhood of Care Advantage Club here.  The Sisterhood Advantage Club is the go-to place for savings and recommendations on products and services needed for your caregiving journey. The sisters have negotiated discounted rates to save you money and improve your quality of life. From oil changes to insurance, movie tickets to hotels, you'll find everything you need and more! Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.   Partner with National HME to provide medical equipment for your patients at nationalhme.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.                              

Amy Goyer knows a few things about caregiving.  Her journey as a family caregiver began early in her 20's, caring for great-grandparents, and then each generation after.  She holds a bachelor's degree in music therapy and has held multiple positions of advocacy for older adults, children, and families. Amy is also a Certified Aging-in-Place Specialist (CAPS).  Through the years she's balanced caregiving responsibilities and roles with her personal and professional life.  Amy currently serves as AARP's national Family and Caregiving Expert.   Amy learned lessons about caring for others and caring for herself at the same time.  Caregiving responsibilities prompted her to change jobs, use her own money to supplement her parents' care and move closer to her family to facilitate their caregiving systems.  Amy's sharing what she's learned with unpaid family caregivers across the U.S. through her books, blog, and public speaking.    You can connect with Amy at www.amygoyer.com.    Join the AARP Family Caregivers Discussion Group here.  Find Amy on LinkedIn Twitter Facebook Purchase Amy's books Juggling Work, Life, and Caregiving and Things To Do Now That You're… a Grandparent here. Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.   Partner with National HME to provide medical equipment for your patients at nationalhme.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

Dr. Sammy Winemaker is starting a social healthcare revolution with The Waiting Room Revolution podcast.  On The Waiting Room Revolution podcast, Sammy is having insightful conversations about palliative care, advance care planning, and change-making for end-of-life care with co-host Dr. Hsien Seow.  Sammy is an Associate Clinical Professor, Department of Family Medicine, in the Division of Palliative Care at McMaster University. She teaches palliative care to healthcare professionals.  Here's what The Waiting Room Revolution website says about their mission:  They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experience. They want to build a community to share deeply human stories about caring for others. Through interviews with experts, clinicians, patients, and caregivers, they are harnessing the advice of those with lived experience to better prepare those who are just starting their caring journey. They cannot do it alone. Individuals, families, and communities have to be empowered as the catalyst for change. They believe we have so much to learn from one another.  As they say in The Waiting Room Revolution, Together, we can move from being “in the dark” to being “in the know. Connect with The Waiting Room Revolution with founders Dr. Sammy Winemaker and Dr. Hsien Seow at waitingroomrevolution.com. Listen to The Waiting Room Revolution podcast here. Pre-order your copy of Hope for the Best, Plan for the Rest by Dr. Sammy Winemaker and Dr. Hsien Seow by clicking here.  Find it on Amazon, Barnes & Noble, IndieBound, or Indigo.    Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.   Partner with National HME to provide medical equipment for your patients at nationalhme.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.

What do you say if your patient comes in with a bag of supplements? What if they are on a bunch of medications but they don't tell you about all of the supplements that they take?What if you disagree with what they are doing?What if you don't know much about the complementary modalities that they are using?You may feel hesitant to talk to patients about their complimentary medicine use or just feel unsure of exactly what to say. This week you'll learn 8 tips for talking to patients about their complementary treatment use so that you can enhance your relationship with your patient and maximize their wellbeing.Let me know what you think. What else would you add?Dr. CDelia Chiaramonte, MDhttps://www.integrativepalliative.comPlease leave a review on Apple Podcasts (or wherever you listen) and share the episode with with a friend!Helping you to find joy in your work as you help your seriously ill patients to thrive. Free Guide for Clinicians:Adding Integrative Medicine To Your Practicehttps://trainings.integrativepalliative.com/pl/2147657852Free Guide for You if Your Loved One Is Ill:The 10 Best Ways to Help When Your Loved One Has A Serious Illnesshttps://trainings.integrativepalliative.com/pl/2147661904 Please review this podcast wherever you listen and forward your favorite episode to a friend! Thanks for helping me spread the word about heart-centered care for people with complex and serious illness, using all the tools that work.I'm thrilled to be listed in Feedspot's top 15 palliative podcasts!https://blog.feedspot.com/palliative_care_podcasts/

Joanne Eason, President of Five Wishes, knows it's important to document our end-of-life wishes so our voices are heard when we can't speak for ourselves.   Five Wishes was established over 25 years ago through a series of listening tours, asking people what was important to them.  From those results, the Five Wishes document was formed with guidance from the American Bar Association and other palliative care providers across the U.S.  It's designed for individuals to use when sitting down with their families, a tool for talking about what's important to the person.    Five Wishes has incorporated three questions into their Five Wishes document: How comfortable do you want to be? How do you want to be treated? What do you want those around you to know about you?  Those answers are the voice of the patient.  Where health systems use certain forms to document decision-makers and specific medical directives, Five Wishes is about not just the wishes of the person, but who they are. It can be used like a workbook and comes in both digital and paper forms.  The workbook is a living document and should be revisited as healthcare status changes or your spokesperson changes.   Five Wishes can also be utilized by hospice agencies, healthcare organizations, and businesses. It's legal in almost every state in the U.S. so it's a very flexible document.  If you live in one of only four states (New Hampshire, Kansas, Ohio, or Texas) you can still use the Five Wishes Paper but may need to take an extra step.  Five Wishes is available in 30 languages, as well as Braille. Find out more about Five Wishes at fivewishes.org.  Follow Five Wishes on Facebook, YouTube, IG, and Twitter.    Check out Five Wishes for your personal use here. Get information about utilizing Five Wishes for your patients or employees by clicking here. Visit the Five Wishes store here. Check out the free webinars from Five Wishes here. Looking for a copy of the Odonata Care Plan?  Click here to purchase it for yourself or your care agency.   NEW** - the Odonata Care Plan is now available in SPANISH - purchase it here!!  Check out the free Care Video tutorials from Odonata founders and hospice nurses Nancy Heyerman and Brenda Kizzire here.   Partner with National HME to provide medical equipment for your patients at nationalhme.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)  Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.  Follow The Heart of Hospice on Facebook,  Instagram, and LinkedIn.  Connect with The Heart of Hospice podcast on The Whole Care Network, along with a host of other caregiving podcasts by clicking here.  

How do people react when they hear they have a serious illness?  Shock, “like a car is rushing straight at me” (says Bill Gardner on our podcast).  After the shock?  Many people strive, struggle, crawl even back toward a “normal” life.  And some people, in addition or instead, engage in deep introspection on how to make meaning or live with or understand this experience of serious illness.  Today we talk with deep thinkers about this issue.  Bill Gardner is a psychologist living with advanced cancer who blogs “I have serious news,” Brad Stuart is an internist and former hospice director whose book is titled, “Facing Death: Spirituality, Science, and Surrender at the End of Life,” and Juliet Jacobson is a palliative care doc who wrote a paper finding that geriatricians do NOT consider aging a serious illness.   We have a wide ranging conversation that touches on how to place aging, disability, and multimorbidity in the context of serious illness conversations, “striving toward normal,” stoicism, existentialism, psychedelics, the goals of medicine, medical aid in dying and more.  We could have talked for hours! And I get to play a Bob Dylan song that's been on my bucket list to learn. Enjoy! -@AlexSmithMD   Additional links: Bill Gardner's article about MAID in Comment Magazine https://comment.org/death-by-referral/ Bill Gardner's articles about living with terminal cancer in Mockingbird Magazine: https://mbird.com/art/cancer-in-advent/ https://mbird.com/religion/testimony/in-the-electors-school/ Brad Stuat's website: https://bradstuartmd.com Juliet mentioned: On existential threat and terror management: The Worm at the Core: On the role of death in life by Soloman, Greenberg, and Pyszczynski On how existential threat is stored in the brain. https://pubmed.ncbi.nlm.nih.gov/31401240/   Papers on “striving toward normalcy” in the setting of serious illness https://pubmed.ncbi.nlm.nih.gov/36893571/ https://pubmed.ncbi.nlm.nih.gov/35729779/    

Kay Toombs is associate professor emerita of philosophy at Baylor University in Texas. In her work she explores the ways in which contemporary values and the context in which we live our lives impact our efforts to develop a sustainable culture and to form caring communities. In her work related to illness, disability and healthcare, she combines her training in philosophy with her experience of living with neurological disease to reflect on the experience of illness and disability, the care of the chronically and terminally ill, the relationship between health care professionals and patients, and the meaning of suffering and healing, both in the context of Western culture and within the context of intentional Christian community. Explore Books by Kay Toombs:www.homesteadheritage.com/books; www.amazon.com/booksThe Meaning of Illness: A Phenomenological Account of the Different Perspectives of Physician and PatientHow Then Should We Die: Two Opposing Responses to the Challenges of Suffering and DeathLiving at the Boundary, Healing and Incurable IllnessThe Human Dimension of Sustainable Culture Write to Kay Toombs KEY QUESTIONS:What can God show us through disability and serious illness?How can Christians turn from radical autonomy to relationship with God and others?How can Christian community create a sustainable, caring culture?How can faith enrich our experience of caregiving? KEY SCRIPTURES:Psalm 61:1–2: “Hear my cry, O God; listen to my prayer. From the ends of the earth I call to you; I call as my heart grows faint; lead me to the rock that is higher than I.”Psalm 133:1: “How good and pleasant it is when God's people live together in unity!”John 15:13: “Greater love has no one than this: to lay down one's life for one's friends.” ------- Find more encouragement on Joni Eareckson Tada's Sharing Hope podcast and daily devotional.Follow Joni and Friends on TikTok, Instagram, Facebook, and YouTube.Your support makes this podcast possible!Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Founded by Joni Eareckson Tada, we provide Christ-centered care through Joni's House, Wheels for the World, and Retreats and Getaways, and offer disability ministry training.

Insomnia. We've all had it. Lying in bed at 2 am staring at the ceiling, getting anxious every hour that you're not falling asleep as you have a busy day coming up. Insomnia sucks.  Chronic insomnia sucks even more. For those with serious illness, sleep problems and insomnia are all too common.  Instead of reflexively jumping to melatonin or ambien, on today's podcast we talk with two sleep experts, Cathy Alessi and Brienne Miner, about a better approach to sleep problems and insomnia. We will go over epidemiology of insomnia, how these experts think about work up including which medications to avoid or discontinue, non-pharmacological treatment such as cognitive behavioral therapy for insomnia (CBT-I), and what if any is the role of pharmacological therapy in including newer agents like melatonin receptor agonists (ramelteon) and dual orexin receptor antagonists (like suvorexant).

Host Johnnette Williams talks with Michelle Johnson, author of “Walking the Way of the Cross for Caregivers: How To Cope Practically, Emotionally, and Spiritually When a Loved One Has a Serious Illness.”

Host Johnnette Williams talks with Michelle Johnson, author of “Walking the Way of the Cross for Caregivers: How To Cope Practically, Emotionally, and Spiritually When a Loved One Has a Serious Illness.” Michelle answers questions like "What do you do when you or a loved one has been diagnosed with a serious illness?" & " How do you even begin to cope?" ( Re-air from July 2022)

Host Johnnette Williams talks with Michelle Johnson, author of “Walking the Way of the Cross for Caregivers: How To Cope Practically, Emotionally, and Spiritually When a Loved One Has a Serious Illness.” Michelle answers questions like "What do you do when you or a loved one has been diagnosed with a serious illness?" & " How do you even begin to cope?" ( Re-air from July 2022)

Eleven years ago, Terry Tucker learned he had an extremely unusual form of melanoma.  Since then he has had two amputations, one of his foot and later of his leg above the knee.  He recently learned he also has tumors in his lungs.  Terry has endured physical pain most of us will never know.  Yet, as he says, "Suffering is optional."  Terry has been more than resilient--he has used his experiences to gain perspectives on life that everyone can use: control your mindset and work towards continual self improvement.  In this episode, Terry shares his journey from Division I college basketball athlete to successful careers in law enforcement and business, to his current role as "cancer warrior."  He has powerful words of wisdom that you won't soon forget.In this episode:Terry explains his extremely rare form of melanoma (03:28) Terry's journey with the medication interferon, and its effect on him (05:01)  Why Terry believes it's important to ask a lot of questions, be your own best advocate, and stay curious (10:56)What led to Terry's foot needing to be amputated (12:23) His reaction when he learned his foot would be removed (14:17)What led to Terry's second above-the-knee amputation (18:54)Where Terry's motivation and positive outlook comes from (24:41)Why Terry does at least one thing every day that scares him (29:33)Terry's thoughts on people being born "full"--not "empty" (37:02)Terry's "Four Truths" (38:15)What cancer has taken from Terry--and what it has NOT taken (and never will) (45:58)Want to know more about Terry?Order his book, Sustainable Excellence, Ten Principles to Leading Your Uncommon and Extraordinary Life, here: https://www.amazon.com/dp/B08GLGVTVSCheck out his website, Motivational Check: https://www.motivationalcheck.com/  Link up with him on LinkedIn:  https://www.linkedin.com/in/terry-tucker-9b5605179/Find him on Facebook:  https://www.facebook.com/motivationalcheckTweet him on Twitter:  https://mobile.twitter.com/terrytucker201Check him out on Instagram:  https://www.instagram.com/sustainableexcellenceauthor/Want to know more about "What It's Like To..."?Sign up to be on our Insiders' List to receive our newsletters and insiders' information! Go to whatitsliketo.net (sign-ups are at the bottom of the page)Follow us on social media:InstagramFacebookTwitterLinkedInSupport the show

Black Americans are at higher risk for many serious illnesses like dementia and kidney failure. But data show they are less likely to have their pain treated and less likely to access services like hospice and palliative care that can reduce suffering, especially at the end of life.This week, we explore what stops seriously ill Black patients and their families from getting the care they want in life and in death.Guests:Deborah Brunson, PhD, Caregiver and Professor Emeritus, University of North Carolina WilmingtonKaren Bullock, PhD, LCSW, Professor, Boston College School of Social WorkLearn more and read a full transcript on our website.Want more Tradeoffs? Sign up for our free weekly newsletter featuring the latest health policy research and news.Support this type of journalism today, with a gift. Hosted on Acast. See acast.com/privacy for more information.