Podcasts about Pulmonary fibrosis

How does ILD typically present in women vs. men? Any noticeable difference in symptoms? Are there types of ILD that are more common in women than in men? These are the questions we discuss in this episode of the 'Pulmonary Fibrosis' podcast! Jen Wescoe and Dr. Rachel Kriner of Temple Lung Center discuss women and ILD, the mental health of women battling ILD, and great resources you can use to join clinical trials to help beat this disease! The 'Pulmonary Fibrosis' podcast is brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

Summary/Outline: *Introduction and Context: The focus is on Denise Clanin's personal experience with the loss of her brother, Garrett, who was diagnosed with a rare disorder called NF2 *Personal Recollections: Denise shares fond memories of her brother, highlighting his love for music and his contagious sense of humor. She also discusses his academic skills and intelligence. *Brother's Diagnosis and Impact: Garrett was diagnosed with NF2 at 11, which led to the loss of certain abilities over time. Denise reflects on how this condition affected her family dynamics and her own feelings of being secondary in focus. *Coping with Challenges: Denise talks about the gradual changes in family dynamics and her personal journey through grief. She discusses the importance of giving oneself grace and the role of faith in navigating these challenges. *Faith and Identity: The conversation touches on the role of faith in dealing with suffering and the challenges of maintaining one's identity amidst family and personal upheaval. Denise emphasizes the importance of keeping one's identity rooted in God. *Writing as a Path to Healing: Denise shares how writing her book, "Among the Stars," helped her process grief and pay homage to her brother. The book serves as a medium to explore themes of hope and personal growth. *Family and Community Support: The importance of community support and family connections is highlighted, especially through shared experiences like charity events. *Future Aspirations: Denise discusses her plans for future writing projects and how she wants to continue exploring themes of identity and personal growth. *Overall Message: The conversation ends with a message of hope. Denise encourages finding hope and blessings even in difficult times and emphasizes the significance of prayer and faith in providing strength and direction. Podcast Intro: My guest is Denise Clanin, a wife, mom and author. She and I connected because of her willingness to share her personal story about losing her brother, Garrett to a rare mutation known as NF2. This disorder caused tumors to grow throughout his body, and that resulted in degrees of loosing his quality of life such as his ability to speak and hear; two of the major ways we communicate! I can't even fathom that slow separation from your loved ones. At the time of the diagnosis Denise was 9 and Garrett 11. At the time of Garrett's passing he was 29. My conversation with Denise weaved together loss, resilience, and faith and the fact that grief can be very transformative in powerful ways. Faith was the cornerstone for Denise as she navigated what it meant to have a sibling who was experiencing a gradual decline in health and in quality of life. We talked about how she felt as her parents naturally gravitated to Garrett's ever increasing dependency. I was curious about that because at 9 years old she's in elementary school, and then through middle and high school and into college; crucial years for a young girl, a young woman. As we talked, I felt I heard in her voice (and the way she shared about this part of the journey) healing and acceptance saturated with grace. With the ever morphing process of the family dynamic we talked about identity and how that is impacted, and how everything about our life is based on identity and so what do we do when things are shifted and we lose titles, responsibilities, relationships? Denise talked about God's ability to use the tragedy of life for transformation in us and how He moves us into a greater purpose using the pain of life. We talked about the book she authored, Among the Stars and how she blended parts of her life to create a family friendly read that has an uplifting message for the heart and the mind. We folded into the conversation, how therapeutic writing/journaling can be in the grief process. And she's started on her next book that will develop one of the characters found in the first book. I love a series where you can engage in more than one book. Listen in and I hope you'll be encouraged by Denise's desire to share her experience into the complexities of grief, the importance of community, and the enduring power of hope, faith, and love. Live Loved and Thrive! @alifeofthrive.com Sherrie Pilk Related topics (podcast and/or blog): Sara Salazar - Autoimmune Disease, Pulmonary Fibrosis and Faith: https://alifeofthrive.com/2021/09/01/autoimmune-disease/ Sherrie Pilkington - Here's How Psalm 23 Showed Me God's Faithfulness: https://alifeofthrive.com/2022/08/17/heres-how-psalm-23-showed-me-gods-faithfulness/ Genetic Testing and Prophylactic Mastectomy, with Erin Simon: https://alifeofthrive.com/2023/02/01/genetic-testing-and-prophylactic-mastectomy-with-erin-simeone/ Connect with Denise: FB: https://www.facebook.com/profile.php?id=100092102171844 Bio: Denise had always dreamed of writing her book. As a child, she loved to write stories with memorable characters and positive themes. She carried this passion for writing into her adolescence and early adulthood, hoping to publish one of her stories someday. However, as with any story plot, there were obstacles to reaching this goal. At Pepperdine University, she began to study accounting, a degree that required intense concentration and countless hours of studying and memorization. In addition, it was around that time when her older brother's chronic medical condition took a turn for the worse – leaving him in almost constant pain and removing his ability to hear, speak, and see well. His parents transitioned into full-time caregivers who sacrificed their time and energy so that their son could live another day. For Denise, this devastating life change meant taking a step back from her hobbies, instead focusing on her family and establishing herself in her career. Sadly, her brother succumbed to the complications of his condition five years after her college graduation. She appreciated the precious time she had with him and the positive impact he left behind. Although she continued her accounting profession after his passing, she knew the corporate world wasn't where she wanted to remain. A few years later, Denise and her husband moved from sunny San Diego to the forested terrain of Post Falls, Idaho, to plant their roots – buying their first home and expanding their family. That was when she finally found the inspiration to pen her first book, “Among the Stars” – originally an idea she wrote for her creative writing class in college. From there, she continued to push forward despite a decade-long writing hiatus and several bouts of writer's block. She is thankful that God has provided her with the words to share with others through her book, touching on the themes of forgiveness, redemption, and hope – while also paying homage to the notable people in her life, including those who have passed. She hopes this tale of first love, friendship, and family connection will bring joy and encouragement to those who need it.

As part of the March issue, the European Respiratory Journal presents the latest in its series of podcasts. Deputy Chief Editor Don Sin interviews Associate Editor Yet Khor about the generalisability of pharmaceutical randomised controlled trial eligibility criteria for progressive pulmonary fibrosis.

The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers. Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.

Pulmonary Fibrosis. A debilitating disease that restricts a person's lung capacity, controllable with drug therapies, but it's only “cure” is a double lung transplant. Researchers at TGen have released the results of a study that investigated the disease on a cellular level. Using advanced spatial transcriptomics, they identified hidden disease markers in seemingly healthy lung tissue—offering hope for earlier, more personalized treatments. Targeting these early disruptions could improve lung function and outcomes. With current PF treatments only slowing decline, this discovery, published in Nature Genetics, marks a step toward preventing irreversible damage. In this episode of TGen Talks, Nicholas Banovich, Ph.D., discusses the Nature Genetics finding and the new spatial map of gene expression in lung cells. Instead of blending tissue together and analyzing it, scientists can now examine individual cells and pinpoint where molecular changes happen. We'll break down what this means, how it's done, and why it could change the way we study lung disease.

In this Healthed lecture, Associate Professor Nicole Goh outlines the key features of pulmonary fibrosis from presenting and distinguishing signs, testing, and diagnosis to the latest evidence-based treatments. She will also provide an update on the current prognosis and natural history of pulmonary fibrosis as well as the GP's role in managing patients with this not uncommon condition.See omnystudio.com/listener for privacy information.

What is the difference between Palliative Care & Hospice, and why important to discern the difference?! Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey. It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.

Dr. Mohleen Kang chats with Dr. Margaret Salisbury and Dr. Anna Podolanczuk about their articles, "Progressive Early Interstitial Lung Abnormalities in Persons at Risk for Familial Pulmonary Fibrosis: A Prospective Cohort Study" and "Big Things Have Small Beginnings: Clinical Implications of Early Interstitial Lung Disease." 

Cork family who lost a husband & dad to pulmonary fibrosis Hosted on Acast. See acast.com/privacy for more information.

In this episode, Susan shares her story of dying now that she has entered hospice for comfort care related to a progressive disease with no cure. She hopes to die peacefully at home surrounded by her loved ones while sharing tall tales and laughter.Susan McCue is a licensed clinical social worker who has worked in the field of death, dying, and bereavement since 2005. Her career began first as a hospice social worker, then as a hospice bereavement counselor. After obtaining her LCSW, Susan opened a private therapy practice specializing in grief and loss, mainly focusing on bereavement needs following the immediate death of a loved one.During this time, Susan also provided grief and loss presentations at the community, state, national, and international levels on topics including the difference between the natural process of grief and more complicated grief responses.Susan's personal background includes multiple deaths in her immediate family, which led to Susan's interest and passion for the field of death, dying, and bereavement. She is one of nine children born in an Irish-American family. Her father died at age 64, her mother at age 69, and six of their nine children (Susan's siblings) died in their 50s and 60s.Susan finds her personal and professional life coming full circle now that she has entered hospice for comfort care related to her diagnosis of Pulmonary Fibrosis, a progressive disease with no cure. Susan's brother and sister also died of this disease. Susan volunteers as a Pulmonary Fibrosis Foundation Ambassador to participate in PF research and to share her story with other PF patients, families, and loved ones affected by the disease. She hopes to die peacefully at home surrounded by her loved ones while sharing tall tales and laughter.Support the show

Self-described pulmonary fibrosis warrior and former journalist, Teresa Barnes, joins host and former CNN news anchor Patti Tripathi for the premiere episode of ATS Breathe Easy, the Latest. Ms. Barnes is chief executive of Pulmonary Fibrosis Warriors and former chair of the ATS Public Advisory Roundtable. PAR is comprised of 12-15 executives of respiratory-related patient interest organizations like the Pulmonary Fibrosis Warriors. 

Everyone can have a role in the Pulmonary Fibrosis community! Whether that's as a patient, a caregiver and beyond -- information is key to helping tackle all things PF. This episode, we're joined by John Marshall and Dr. Ilene Hollin of Temple University Lung Center to discuss the importance of patient engaged research, and how you can be involved in the research as well!! We'll learn more about PCORI and Convene-PF, and how you can participate in the studies! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!See omnystudio.com/listener for privacy information.

2024 was an AMAZING year for the 'Pulmonary Fibrosis' podcast! We have been downloaded in 74 countries around the world, and can't wait to continue to explore all avenues that connect the ILD community! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss some of the tremendous moments of 2024, and what's in store for 2025! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

How is the Veteran community impacted by Interstitial Lung Disease? What are some helpful resources to help Veterans navigate ILD? Dr. Dean (Trey) Kellogg of UT Health San Antonio joins the show to discuss Veterans and ILD! It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What is the role of a Research Coordinator in clinical trials? Why are clinical trials so important -- especially when discussing Interstitial Lung Disease? Rachel Nwafo of Temple Lung Center tells us about her role, and the path she took to get there! It's the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

How can spirituality, in all denominations and perspectives, be beneficial for one managing Interstitial Lung Disease? How does the family dynamic help in managing this part of one diagnosis? Dr. Patricia Fogelman, and Author/Pastor/Double Lung Transplant recipient Tim Cox join the show to discuss the role spirituality can play when battling disease in the 'Pulmonary Fibrosis' podcast! Hosted by Kevin Crockett. Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What is Pulmonary rehab? How has rehab changed thanks to the virtual world? This episode, we're joined by David Junga, RRT, PAS with Pulmonary Rehabilitation Associates, LLC to discuss the great benefits of virtual rehab! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

What defines a "rural" area? What step has to been taken to assess rural healthcare & ILD needs? Find out in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! This episode, we're joined by Dr. Teja Kulkarni of UAB and Dr. Jessica Shore of the Pulmonary Fibrosis Foundation to discuss the impact on patients living in rural areas! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

Drs. Vela and Adegunsoye explore the intersections of patient education, community engagement, and healthcare policies, particularly in addressing the needs of underrepresented racial groups. Monica emphasizes the value of long-term patient-physician relationships in primary care, the necessity of interrupting physician biases, and the importance of systemic changes to facilitate more comprehensive patient interactions. Deji highlights the need for community-based outreach and clinical trial participation to address health disparities, particularly in Black communities. Both underscore the importance of innovative communication strategies to build trust and educate communities about diseases affecting them disproportionately. Their conversation envisions a brighter future with more effective and inclusive healthcare practices.

Drs. Vela and Adegunsoye delve into the racial disparities in the diagnosis and progression of pulmonary fibrosis, particularly within the black population. They discuss the role of environmental and occupational exposures, and the impact of cultural and autoimmune factors on the disease's prevalence in black communities. Dr. Adegunsoye emphasizes that black individuals are at a higher risk for autoimmune disorders, which can lead to pulmonary fibrosis. Moreover, he highlights the flaws in lung function tests that use race adjustments, often masking the real health conditions in black patients. The discussion also addresses the critical issue of delayed diagnosis, which adversely affects the prognosis of pulmonary fibrosis. Both presenters stress the importance of early screening, equitable access to care, and policy changes to improve outcomes for marginalized populations. They conclude by noting the need for action plans to address these disparities, pointing out that black individuals often get diagnosed and die from pulmonary fibrosis at an earlier age compared to other racial groups.

Drs. Vela and Adegunsoye delve into the racial disparities in the diagnosis and progression of pulmonary fibrosis, particularly within the black population. They discuss the role of environmental and occupational exposures, and the impact of cultural and autoimmune factors on the disease's prevalence in black communities. Dr. Adegunsoye emphasizes that black individuals are at a higher risk for autoimmune disorders, which can lead to pulmonary fibrosis. Moreover, he highlights the flaws in lung function tests that use race adjustments, often masking the real health conditions in black patients. The discussion also addresses the critical issue of delayed diagnosis, which adversely affects the prognosis of pulmonary fibrosis. Both presenters stress the importance of early screening, equitable access to care, and policy changes to improve outcomes for marginalized populations. They conclude by noting the need for action plans to address these disparities, pointing out that black individuals often get diagnosed and die from pulmonary fibrosis at an earlier age compared to other racial groups.

Drs. Vela and Adegunsoye share their insights into racial disparities in pulmonary fibrosis, including the impact of characterizing groups based on skin color or race, the concept of cultural humility, and best practices for diagnosing ILD while taking into account these disparities.

What is the Pennsylvania Rare Disease Advisory Council (PARDAC)? What are some of the important findings in their Patient Needs Assessment Survey? Marie Conley, the Co-chair of PARDAC discusses some of the important and impactful information they've gathered in this episode of the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

A person with rheumatoid arthritis and lupus develops new back pain in her mid-upper left side. It feels like “it's coming from under my ribs,” she says. First, it's diagnosed as arthritis, but interventions don't seem to make a difference. Finally, a year into this unremitting pain, a rheumatologist asks about her breathing and discovers she has developed a complication called pulmonary thrombosis, probably related to her autoimmune diseases. They start treatment and voilà, her back pain is gone. This is a good example of a case in which massage therapy was definitely NOT the best choice.   Resources: Dsouza, K.G. et al. (2023) ‘Management of interstitial lung disease in patients with autoimmune disease-related interstitial lung disease', Multidisciplinary Respiratory Medicine, 18(1), p. 890. Available at: https://doi.org/10.4081/mrm.2023.890.   Fibrosis as an autoimmune disease (no date) CPC - M. Available at: https://www.cpc-munich.de/en/research-projects/fibrosis-as-an-autoimmune-disease/index.html, https://www.cpc-munich.de/en/research-projects/fibrosis-as-an-autoimmune-disease/index.html (Accessed: 3 May 2024).   3. Gole, S. and Bankole, A. (2024) ‘Nintedanib', in StatPearls. Treasure Island (FL): StatPearls Publishing. Available at: http://www.ncbi.nlm.nih.gov/books/NBK585049/ (Accessed: 8 May 2024).   Interstitial Lung Diseases - What Are Interstitial Lung Diseases? | NHLBI, NIH (2022). Available at: https://www.nhlbi.nih.gov/health/interstitial-lung-diseases (Accessed: 8 May 2024).   5. Kašiković Lečić, S. et al. (2022) ‘Management of musculoskeletal pain in patients with idiopathic pulmonary fibrosis: a review', Upsala Journal of Medical Sciences, 127, p. 10.48101/ujms.v127.8739. Available at: https://doi.org/10.48101/ujms.v127.8739.   6. Massage & Bodywork - MAY | JUNE 2021 (no date). Available at: https://www.massageandbodyworkdigital.com/i/1358392-may-june-     Host:   Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com.        Sponsors:   Anatomy Trains: www.anatomytrains.com    Elements Massage: www.elementsmassage.com/abmp   Earthlite: www.earthlite.com  

What is Patient Engaged Research? What is PCORI? Sophia Kreider and Ilene Hollin, from Temple University College of Public Health, join Kevin Crockett to discuss the important information that patients and caregivers provide when researching a rare disease like IPF. It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

Delightful. That is the best way to describe our guest for this episode -- Dr. Aberdeen Allen! Dean, as he likes to be called, discusses the experience living with ILD, and what Patient Voice is, and means to him! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

‘'Once upon an Icelandic Highway, my father and I embarked on an unforgettable journey. With a camera securely mounted to our jeep, we ventured out into the vast untouched wilderness to capture Iceland's other-worldly landscapes on film. The rhythmic hum of the tires against the road became our soundtrack as the terrain unfolded. Each twist and turn of the highway revealed breathtaking panoramas - from rugged mountains and cascading waterfalls to frozen glaciers and majestic fjords. On our return, I got to work editing a selection of the best footage. Later, I created a soundtrack that encapsulated the lunar-like surface of this incredible place and the repetitive rhythm of the car cruising along the road. In dedicating this release to my father, I pay homage to a man whose passion for the natural world was unparalleled. In loving memory of Brendan Joyce OBE.'' - Joseph S Joyce All proceeds from this release will be donated to Action for Pulmonary Fibrosis. https://soundcloud.com/josephjoyce https://soundcloud.com/default-position Follow us on social media: https://soundcloud.com/itsdelayed https://linktr.ee/delayed https://www.itsdelayed.com https://www.facebook.com/itsdelayed https://www.instagram.com/_____delayed https://www.youtube.com/@_____delayed

You Have Time to Die and Go Broke by Linda Salerno-ForandThe healthcare system has turned into a giant labyrinth, which is extremely difficult to navigate. The thought of dealing with a serious or terminal illness is terrifying enough without having to go against the fortress of hospital administrators, health insurance companies and endless waits in doctor's queues just trying to get the care you need. But you can be empowered in learning how to deal with the complex healthcare system getting the best care possible without breaking the bank.Linda Salerno-Forand lives Massachusetts with her dog Rocky and is caregiver to her elderly mother. She was a caregiver to her mother-in-law, father-in-law, and husband. Her mother-in-in law and father-in-law died of dementia. Her husband died of Pulmonary Fibrosis during covid . This inspired her to write this book to help people get the best care they can dealing with a broken healthcare system.https://www.amazon.com/You.Have-Time-Die-Broke/dp/1669861023www.lsalernoforand.comwww.AuthorReputationPress.comhttp://www.bluefunkbroadcasting.com/root/twia/3724lsfarp.mp3   

Your health journey is all your own. I'm Annette Leonard of https://www.annetteleonard.com find me on Instagram https://www.instagram.com/theannetteleonard Several things made me think about this topic. I recently was talking about my friend Amy. She died almost exactly a year before I got my diagnosis of Pulmonary Fibrosis. She was waiting for her lung transplant and when she passed she was a frail shadow of herself. Also, my mom died with complications of several of the autoimmune diseases that I have. It's so easy -- especially when we have a difficult or unfamiliar diagnosis, to lean on Dr Google, or other peoples' experiences and let those things coopt our imagination about our illness and I think that can have some disastrous and unintended consequences. The Google will tell you that my life expectancy is 3 - 5 years. Well, here I am 9 years later. While many things COULD have led to my demise -- but tuning that out and walking my own path has been crucial. As a reforming people pleaser, as someone who values information, it's easy to be captivated by the stories people share about anyone they know who may have had something similar to what I have, how that's gone, what's worked, what remedies they've tried. Sometimes, hearing those stories can contribute to the sense that I'm doing it wrong, or add to the sense that "this is going poorly and I've already made the wrong decisions." Having done this for a while and having learned how to BE EMBODIED in this experienced: doing body scans, checking in with my thoughts and feelings, knowing when something's changed. I'm the best person to asses what's going well and when it's time to make a change. No, it isn't fun, it takes a lot of effort to tune in like that, to advocate for myself, to coordinate with my docs and insurance companies, but it's the only way to take control of my health. When I start thinking "well, she said that by this time next year things got really bad..." then I'm initiating a slew of chemicals that will lead to anxiety, fear, pain, or being addicted to my own catastrophes. Perhaps those things will happen, but perhaps they won't. But, the only guarantee is that I've robbed myself of this present moment. The idea of suffering is terrifying. I'm not trying to pretend it isn't. There is fear and anguish. But there are tools. Whether it starts with a contemplative practice, journaling, or noticing what's happening to find a skilled therapist. There are ways to keep my fear of the future from enjoying the present. This journey is YOURS ALONE, from the small to the large. But no amount of today is improved by me fixating on how bad it's going to get. Notice when you get hooked, when you start to borrow trouble. If you don't have tools, skills, or support about making change in that area, it might be time to get some. Let us know how you're making your journey your own. This is the Chronic Wellness Podcast. I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.

What are ILD guidelines? How are they developed, and what major role do patients play in the process? Dr. Sindhu Johnson of the University of Toronto joins Crockett to discuss the ins-and-outs of ILD guidelines in this episode of the Pulmonary Fibrosis podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

For the next few weeks, the guys will be re-airing some of their favourite episodes from our archives.    Today on a special episode, we will be hearing a preview of Ali's new book ‘Is There Bacon in Heaven', published by Simon and Shuster, coming out Sept 27. Before Ali gets started Asif discusses summer entertainment he has consumed including ‘Prey', ‘Archer', ‘She-Hulk', ‘Harley Quinn', ‘Rings of Power' and ‘House of the Dragon'.   Ali then treats us to a funny and poignant chapter focussing on his father's life and death. During the excerpt, they guys take a brief digression  to discuss pulmonary fibrosis, a disease which Ali's father suffered from. Asif talks about what it is, how it is diagnosed and the risk factors for developing it. He then discusses the prognosis and the limited treatments for the condition.  The opinions expressed are those of the hosts, and do not reflect those of any other organizations. This podcast and website represents the opinions of the hosts. The content here should not be taken as medical advice. The content here is for entertainment and informational purposes only, and because each person is so unique, please consult your healthcare professional for any medical questions.    Music courtesy of Wataboi and 8er41 from Pixabay   Contact us at doctorvcomedian@gmail.com   Follow us on Social media: Twitter: @doctorvcomedian Instagram: doctorvcomedian   Show Notes: Is There Bacon in Heaven: https://www.simonandschuster.ca/books/Is-There-Bacon-in-Heaven/Ali-Hassan/9781982149178 Idiopathic Pulmonary Fibrosis: https://emedicine.medscape.com/article/301226-overview

What a year it was! Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss the wonderful and enlightening moments of 2023, and what exciting things are in store for 2024 in the Pulmonary Fibrosis podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit paipfsupportnetwork.org!See omnystudio.com/listener for privacy information.

What role does nutrition play for patients and caregivers battling ILD? Dr. Gautam George of Jefferson Health joins Crockett to discuss how one can prioritize their nutrition on a daily basis, specific foods that can help, and the role calories play! It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network!Learn more at PAIPFsupportnetwork.org!See omnystudio.com/listener for privacy information.

Miranda and Jonathan chat chest radiology, mainly focusing on connective tissue disease related interstitial lung disease, but also touching on a whole bunch of other interesting topics. Frank hijacks the intro to chat about our December supporter drive. Find the lectures ► https://radiopaedia.org/courses/chest-lectures Radiopaedia 2024 Virtual Conference ► https://radiopaedia.org/courses/radiopaedia-2024-virtual-conference Become a supporter ► https://radiopaedia.org/supporters Get an All-Access Pass ► https://radiopaedia.org/courses/all-access-course-pass Andrew's Twitter ► https://twitter.com/drandrewdixon Frank's Twitter ► https://twitter.com/frankgaillard Ideas and Feedback ► podcast@radiopaedia.org   The Reading Room is a radiology podcast intended primarily for radiologists, radiology registrars and residents. 

In our final episode of 2023, the JHLT Digital Media Editors have two manuscripts from the December 2023 issue of The Journal of Heart and Lung Transplantation! Digital Media Editor Erika Lease, MD, transplant pulmonologist at the University of Washington in Seattle, hosts this episode.   First, a free-ranging conversation with first author Mark E. Snyder, MD, and senior author John F. McDyer, MD, on their team's study “Impact of age and telomere length on circulating T cells and rejection risk after lung transplantation for idiopathic pulmonary fibrosis.”   A subset of patients with idiopathic pulmonary fibrosis (IPF) have a heritable, age-adjusted short telomere length. Mutations in telomere length can manifest as T-cell dysfunction and immunodeficiency. As T-cells are involved in the development of acute cellular rejection (ACR), the authors hypothesized that the combination of age and telomere length would impact the degree of ACR burden in lung transplant recipients—and indeed, the authors found that lung transplant recipients with IPF and short telomere length had premature “aging” of their circulating T-Cells. There was a significant decline in early ACR burden with increasing age, found only in those with short telomere length.   How might these findings impact immunosuppression regimens in clinical practice? What follow-up studies to they have planned? In the discussion, Drs. Snyder and McDyer, both of UPMC in Pittsburgh, discuss all these possibilities, as well as the the work of their collaborator, Jonathan K. Alder, PhD, as inspiration for the study.   Next, the editors explored “Early optical coherence tomography evaluation of donor-transmitted atherosclerosis and cardiac allograft vasculopathy: insights from a prospective, single-center study,” in a discussion with senior author Snehal R. Patel, MD, of the Montefiore Medical Center in New York.   Cardiac allograft vasculopathy (CAV) remains a major cause of death in heart transplant recipients, and donor-transmitted atherosclerosis (defined as a maximal intimal thickness of >/= 0.5mm on baseline intravascular ultrasound (IVUS) early after transplant) is believed to carry a greater risk for the development of CAV. Dr. Patel's team, however, hypothesized that optical coherence tomography (OCT) may have advantages over IVUS as an imaging modality due to its higher resolution. In this prospective, observational study, the authors assessed the prognostic role of OCT, and found that transplant recipients whose OCT imaging showed advanced plaque characteristics had a significantly higher event rate after a mean follow up of 3.3 years. OCT was also an independent predictor of clinic events, while maximal intimal thickness of >/= 0.5mm was not.   In the episode, Dr. Patel shares the key features of OCT that may make it of clinical use, the three risk categories developed for the study, and what the follow-ups might be.   Follow along at www.jhltonline.org/current, or, if you're an ISHLT member, log in at ishlt.org/journal-of-heart-lung-transplantation.  Don't already get the Journal and want to read along? Join the International Society of Heart and Lung Transplantation at www.ishlt.org for a free subscription, or subscribe today at www.jhltonline.org.    

In what ways have Veterans been affected by Interstitial Lung Diseases? What resources do Veterans have, and how can the VA help? We're joined by Dr. Mary Porteous, the Director of the Interstitial Lung Disease and Sarcoidosis Program at the Corporal Michael J. Crescenz VA Medical Center and Penn Medicine, to discuss Veterans living with ILD in the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find the Pulmonary Fibrosis podcast wherever you get your podcasts!See omnystudio.com/listener for privacy information.

Do you know which high-resolution computed tomography (HRCT) patterns are associated with fibrosing interstitial lung disease and its progression? Credit available for this activity expires: 10/24/24 Earn Credit / Learning Objectives & Disclosures: https://www.medscape.org/viewarticle/995581?ecd=bdc_podcast_libsyn_mscpedu

What are telomeres? What role do they play in understanding IPF? We discuss these questions and more in a new episode of the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Dr. Jonathan Alder and Dr. Daniel Kass of UPMC join Crockett to discuss current research on telomeres, and the impact it is having on the IPF community! Find the Pulmonary Fibrosis podcast wherever you get your podcasts!See omnystudio.com/listener for privacy information.

Credits: 0.25 AMA PRA Category 1 Credit™   CME/CE Information and Claim Credit: https://www.pri-med.com/online-cme-ce/podcast/nhlbi-breathe-better-pulmonary-fibrosis   Overview: “Pulmonary Fibrosis: What Primary Care Providers Need to Know” is a CME podcast episode produced by Pri-Med in partnership with Learn More Breathe Better®, a program of the National Heart, Lung, and Blood Institute of the National Institutes of Health. In this episode, we are joined by Dr. Matt Craig, Chief of the Lung Biology and Disease Branch with NHLBI's Division of Lung Diseases, and Dr. Fernando J. Martinez, Chief of the Pulmonary and Critical Care Medicine Division at Weill Cornell Medicine. Today we'll be discussing pulmonary fibrosis and the role of primary care providers, including signs to look out for, diagnosis, and treatment options.

In this episode of The Nurse Practitioner Podcast, Julia Rogers, DNP, APRN, CNS, FNP-BC, FAANP discusses pulmonary fibrosis: Presentation, manifestations, and treatment. linktr.ee/TheNursePractitionerJournal Podcast Sponsored By: Dakins Wound Cleanser When it comes to treating persistent, hard-to-heal, or complex wounds, you need a solution you can trust. Dakin's Wound Cleanser is an FDA approved device for wound cleansing and management. It's powerful, cost effective, and easy to order. Studies have shown this formulation to be effective in killing 99.99999% of MRSA, VRE and biofilm-forming bacteria within 30 seconds! (Barsoumian et. al) Visit http://shop.getdakins.com/affiliates/default.aspx?Affiliate=4&Target=Home to request a sample today!

Teresa Barnes, Chief Executive Warrior She first became involved with the PF community after losing five family members to IPF. Teresa began her career in journalism and has used those skills as she has navigated the worldwide PF community, seeking out-of-the-box solutions for treating PF. Teresa was a founder of the first IPF patient organization, the Coalition for Pulmonary Fibrosis back in 2001. She has served on multiple boards, including ATS, where she spearheaded multiple advocacy efforts. A member of PF Warriors for five years, Teresa will help us to open doors around the world. PF Warriors Website https://pfwarriors.com/

We met Adam last year when he first announced he was going to climb Mr. Kilimanjaro, the fourth tallest mountain in the world. Adam was diagnosed with pulmonary fibrosis, a rare disease that affects your lungs. He will attempt to climb over 19,000 feet with one lung. Dr. Jan Kasprowicz, a training specialist, is helping him prepare for this challenge. Support Adam @adamfaatz35 and follow Dr. Jan @drjan_eptPlease subscribe and help the Towncast continue to produce these podcasts. --- Send in a voice message: https://podcasters.spotify.com/pod/show/flavio-romeo/message

In this special episode Liz tells us about her experience of living with RA-ILD, which is short for rheumatoid arthritis-associated interstitial lung disease. We explore the profound impact of this life-changing diagnosis on Liz and her loved ones as well as the need for increased awareness of the condition. Throughout Liz provides advice and strategies for maintaining a positive outlook despite the challenges RA-ILD presents.

Fibrotic lung disease is a group of around 200 entities that have inflammation and/or fibrosis in common. The “progressive” phenotype of pulmonary fibrosis has recently become more well-defined. Tejaswini Kulkarni, M.D., explains the characteristics of progressive pulmonary fibrosis (PPF). She discusses the importance of recognizing when interstitial lung disease is indeed PPF and addressing it with a combination of immunosuppressive and antifibrotic therapies. Learn about the advantages of interdisciplinary care for patients with PPF, including early recognition and management of worsening lung function; use of pulmonary rehabilitation and supplemental oxygen for better quality of life; and walking patients through the lung transplant process when necessary.

What are hiccups and what's the medical term for the phenomenon? How far to the horizon and why does it always appear to be at eye-level? What are lectins and are they harmful? What is pulmonary fibrosis, why does it happen and can it be cured? Why do bright lights make spots on my vision, and why does the colour change when I close my eyes? And as a 65 year old in good health and with 4 Covid-19 vaccines and one mild SARS-CoV-2 infection, do I need another Covid-19 booster?? Like this podcast? Please help us by supporting the Naked Scientists

What are hiccups and what's the medical term for the phenomenon? How far to the horizon and why does it always appear to be at eye-level? What are lectins and are they harmful? What is pulmonary fibrosis, why does it happen and can it be cured? Why do bright lights make spots on my vision, and why does the colour change when I close my eyes? And as a 65 year old in good health and with 4 Covid-19 vaccines and one mild SARS-CoV-2 infection, do I need another Covid-19 booster?? Like this podcast? Please help us by supporting the Naked Scientists

A retired global technology executive and former Ironman Triathlete at 62 years old, Lee Fogle contracted Covid in The first wave in January 2020. After the resulting two bouts of pneumonia he found himself unable to walk upstairs or do normal activities. He was diagnosed by CTSCAN with end-stage Pulmonary Fibrosis, less than 30% remaining lung function. He was given a life expectancy of 1-3 years unless he could get a lung transplant.   As a lifelong biohacker, Lee refused to accept this reduced life expectancy, and although he was unable to walk more than 20 steps without assistance, and required 6 L of supplemental oxygen 24 hours a day he began the process of battling back against the disease. He did exhaustive research and began a gradual, but steadily increasing program of pulmonary rehabilitation and exercise, combined with meditation, nutrition, proper sleep, breath training, and natural supplements. Today he has resumed normal activities of swimming, biking, running, playing pickle, ball and golf, and he's living, a full and active life.   He has written a book, A Matter of Life and Breath (available on Amazon) which chronicles, his dramatic health decline and ultimately recovery. He shares the 7 Steps to Recovery in his book. Today he serves as an ambassador to the Pulmonary Fibrosis Foundation, and volunteers his time in hospice and memory care facilities as a Reiki practitioner.   Here's where you can contact Lee: Lee.Fogle@injuryclaimsexpress.com http://linkedin.com/in/leefogle   https://www.facebook.com/lee.fogle.007?mibextid=LQQJ4d   Here's the link to his book:  A Matter of Life and Breath: My 7 Step Guide to Overcoming Near Death From Long CoVid and Pulmonary Fibrosis https://a.co/d/2RSUPR8   Exercise effect on pulmonary fibrosis study: https://apm.amegroups.com/article/view/74647/html    

Drs Jeffrey Swigris and Marlies Wijsenbeek discuss how to best manage care for patients with idiopathic pulmonary fibrosis using remote monitoring to address quality-of-life concerns. Relevant disclosures can be found with the episode show notes on Medscape (https://www.medscape.com/viewarticle/982423). The topics and discussions are planned, produced, and reviewed independently of advertisers. This podcast is intended only for US healthcare professionals. Resources Remote Monitoring in Idiopathic Pulmonary Fibrosis: Home Is Where the Bluetooth-Enabled Spirometer Is https://www.atsjournals.org/doi/full/10.1164/rccm.202005-1532ED Challenges in Pulmonary Fibrosis – 1: Use of High Resolution CT Scanning of the Lung for the Evaluation of Patients With Idiopathic Interstitial Pneumonias https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2117220/ Spirometry: Step by Step https://breathe.ersjournals.com/content/8/3/232

Did maternal mortality rates rise in the US in 2021? Find out about this and more in today's PVRoundup podcast.

I'm continuing to talk about my experience with COVID. I have something like 6 autoimmune disease from Sjogren's to Polymyositis. The most threatening with COVID is having Pulmonary Fibrosis (related to antisynthetase syndrome). This lung disease means that my lungs are progressively turning themselves into scar tissue. Contracting COVID was scary. Therefore, it is miraculous that I came through it. On about the 2nd day, having been in contact with my doctors, I got on antivirals. However, because of some of the pain meds I take, and because of my blood thinners, I could not take Paxlovid. I got put on Molnupiravir. Less effective than Paxlovid, Monupiravir is still saving lives. When I am at my most sick, I prioritize my medications. Monupiavir was 4 capsules 2x/day. I take 33 pills per day and when feeling nauseated, or feeling my crappiest, I prioritize my highest value meds and take out some of the things I can live without for a couple of days and swallow a fewer pills for a couple of days. At this point my dry cough had given away to wet cough and found that Sudafed was helpful. My oxygen saturation was dropping and the danger zone is when you get below 88%. Thankfully, I have an oxygen concentrator and liquid oxygen available at home. After the first few days the vomiting stopped but the nausea and intestinal symptoms continued. The pain in my body felt a lot like a fibromyalgia flare. What's dangerous about having a serious illness (an accident, times of great stress) is that our autoimmune conditions are likely to start relapsing. So COVID becomes dangerous on these other fronts. Also, ALL of my chronic illnesses began with an EBV infection so I know that I'm prone to post-viral infections. I always assumed that I'd be a candidate for long COVID. I'll talk more about my experiences in coming days and weeks about my COVID experiences. How about you -- have you had COVID? Avoided it? Had it more than once? How has it interacted with/impacted your other illnesses? Please comment! I'm Annette Leonard, speaker, coach, and sick person who believes that my illnesses do not define me. If health is the absence of disease and wellness is the presence of wholeness, then no matter what your disease status, we can work toward your wellness, your wholeness. Whether or not you are ever "healthy" on paper, you can be well. Join me and others on the path back to wholeness at AnnetteLeonard.com. Whether you are a person experiencing chronic illness or are someone who loves or serves people with chronic illness I have great resources here on this channel or on my website for you.