Podcasts about chris o'brien lifehouse

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Best podcasts about chris o'brien lifehouse

Latest podcast episodes about chris o'brien lifehouse

Afternoons with Deborah Knight
Chris O'Brien Lifehouse celebrates 10 years with Giving Day

Afternoons with Deborah Knight

Play Episode Listen Later Nov 15, 2023 7:14


The Chris O'Brien Lifehouse is celebrating 10 years of saving and changes lives, with thousands upon thousands of patients coming through the doors for everything from simple MRIs to full-scale operations for cancer. See omnystudio.com/listener for privacy information.

SBS World News Radio
Joel has a very rare brain cancer. Here's how surgeons are saving his life

SBS World News Radio

Play Episode Listen Later Nov 10, 2023 5:00


Cancer remains a leading cause of death in Australia, with around 50,000 fatalities each year. One specialist cancer facility, that's treated more than half a million patients, celebrates a major milestone this week. The Chris O'Brien Lifehouse opened 10 years ago, fulfilling the vision of a compassionate surgeon who died of a malignant brain tumour.

SBS Vietnamese - SBS Việt ngữ
Joel bị chứng ung thư não hiếm gặp - nhưng được cứu sống nhờ các bác sĩ ở Sydney

SBS Vietnamese - SBS Việt ngữ

Play Episode Listen Later Nov 10, 2023 5:18


Ung thư vẫn là nguyên nhân gây tử vong hàng đầu ở Úc, với khoảng 50.000 ca tử vong mỗi năm. Một cơ sở chuyên khoa ung thư đã điều trị cho hơn nửa triệu bệnh nhân, sẽ kỷ niệm một cột mốc quan trọng trong tuần này. Chris O'Brien Lifehouse đã mở cửa cách đây 10 năm - cũng là tâm nguyện của một bác sĩ phẫu thuật giàu lòng nhân ái đã qua đời vì khối u não ác tính.

ung chris o'brien lifehouse ch ng ng nh
Peak Endurance
Harrison Malcolm for Go The Distance.

Peak Endurance

Play Episode Listen Later Jul 26, 2023 25:02


Cancer doesn't care that you have your whole life ahead of you. It affects everyone and can target anyone. Right now luck is still a huge part of the cancer equation. At Chris O'Brien Lifehouse we are on a mission to remove luck from the cancer equation.You can be a change in a future where treatment isn't reliant on luck. Chris O'Brien Lifehouse patients collectively travel 380,000 kms every year for their cancer treatment. This August we want you to do the same. Whether you swim, bike, run, every step counts towards life-saving research and treatment.Together we can Go the Distance this August.   Chris O'Brien Lifehouse: https://www.mylifehouse.org.au/ Go the Distance Registration: https://www.gothedistance.org.au/register/go-the-distance-2023

cancer distance go the distance chris o'brien lifehouse
Oncology for the Inquisitive Mind
54. Cancer Survivorship with Dr Ash Malalasekera

Oncology for the Inquisitive Mind

Play Episode Listen Later Jul 22, 2023 49:00


Cancer is thought of as a great killer, an indefatigable bogeyman that claims the lives of everyone it afflicts. However, advances in medicine mean that for more people than ever before, cancer is something that people can survive or at least live with for longer. While an incredible achievement, this does raise many new challenges for patients and physicians alike. And thus, the concept of Cancer Survivorship was born, a service that aims to fill the gap in service for patients who have survived, or are surviving with cancer but may feel somewhat adrift in stormy seas.In this episode of Oncology for the Inquisitive Mind, Josh and Michael interview Dr Ash Malalasekera, an oncologist working in the South Western Sydney Local Health District, Chris O'Brien Lifehouse and Concord Repatriation Hospital, who has incredible insight into this emerging and truly holistic approach to the care of patients with cancer. We ask about her experiences, the challenges of this model of care and how it can improve or, in some cases, transform how patients can embrace life with or after cancer.For more episodes, resources and blog posts, visit www.inquisitiveonc.comFind us on Twitter @InquisitiveOnc!If you want us to look at a specific trial or subject, email us at inquisitiveonc@gmail.comArt courtesy of Taryn SilverMusic courtesy of Music Unlimited: https://pixabay.com/users/music_unlimited-27600023/Disclaimer: This podcast is for educational purposes only. If you are unwell, seek medical advice. Hosted on Acast. See acast.com/privacy for more information.

Afternoons with Deborah Knight
'So inspiring': Chris O'Brien Lifehouse kicks off Go The Distance campaign

Afternoons with Deborah Knight

Play Episode Listen Later Jul 10, 2023 8:18


Chris O'Brien Lifehouse has launched its Go The Distance campaign, with Gail O'Brien speaking to Deb about it.See omnystudio.com/listener for privacy information.

TOGA Podcast
NSCLC and KRAS Mutations

TOGA Podcast

Play Episode Listen Later Jun 6, 2023 20:12


In this TOGA Podcast, Australian medical oncologist, Associate Professor Chee Lee, St George Hospital, Kogarah, is joined by medical oncologist Dr Tristan Barnes, Royal North Shore Hospital, Sydney, and Dr Alex Davis, PhD candidate and medical oncologist at Chris O'Brien Lifehouse, Sydney. They discuss treatment of patients with non-small cell lung cancer with KRAS mutations, the role of co-mutations, and biomarkers that are negative predictors of response. Furthermore, the speakers give an update on current clinical research and approval status of KRAS inhibitors as well as the clinical need for the availability of KRAS inhibitors in Australia.

TOGA Podcast
Treatment Considerations in ALK-Positive NSCLC

TOGA Podcast

Play Episode Listen Later Apr 21, 2023 22:04


In this TOGA Podcast, Australian medical oncologist Dr Jenny Lee at Chris O'Brien Lifehouse, Sydney, is joined by medical oncologist Professor Nick Pavlakis, from Royal North Shore Hospital in Sydney and Lisa Briggs, Stage IV lung cancer survivor, Author, Osteopath and Exercise Physiologist who provides her own personal experience after being diagnosed with ALK+ non-small cell lung cancer in 2014. They discuss treatment of patients with non-small cell lung cancer with ALK mutations, the latest updates on ALK targeted therapies, the emergence of resistance, and how the choice of ALK inhibitor should be made between clinician and patient, taking into account potential side-effects, their management and the impact on the particular patient's lifestyle.

Research Round-up
November 2022 - Assoc. Prof Dani Margalit & Dr Rebecca Venchiarutti

Research Round-up

Play Episode Listen Later Oct 31, 2022 22:57


Dr Kristi Milley speaks with Associate Professor Dani Margalit from Harvard Medical School. She specialises in Head and Neck Cancer Treatment and is also the Director of Radiation Oncology at the Dana-Farber/Brigham Merkel Cell Cancer Centre. We also welcome back Dr Rebecca Venchiarutti onto the podcast, a Head and Neck Research Fellow at Chris O'Brien Lifehouse and at the University of Sydney. Dani and Rebecca are part of a team that has published a new systematic review about interventions for head and neck cancer survivors in the journal Head and Neck.

RNZ: Nine To Noon
The Certainty Myth: tips for coping with anxiety

RNZ: Nine To Noon

Play Episode Listen Later Oct 4, 2022 18:20


Dr Toni Lindsay is a clinical and health psychologist, and author of The Certainty Myth; a guide for anyone struggling with uncertainty in their life. Whether it's caused by the pandemic, a relationship breakdown, job loss, illness or something else, uncertainty can often lead to anxiety. But Dr Toni Lindsay has practical tools to help manage the anxiety that can come about when our lives feel chaotic and uncertain. She currently works at the Chris O'Brien Lifehouse cancer treatment centre in Sydney, working both adults and adolescents.

That's So Chronic
That's So: The Certainty Myth by Dr Toni Lindsay (an interview with Toni!)

That's So Chronic

Play Episode Listen Later Sep 26, 2022 33:46


How is it the end of September already?! I'm excited to share this months That's So episode, because today we're chatting about The Certainty Myth by Dr Toni Lindsay. ** a content warning: while we share a lot of laughs, we do touch on the subject of death, so please take care while listening ** Dr Toni Lindsay is a clinical and health psychologist who has been working with both adults and adolescents for over 10 years. Currently she is working at Chris O'Brien Lifehouse in the oncology service and is a specialist in the care of adolescents and young adults with cancer. In her third book The Certainty Myth, she shares her knowledge as well as stories from her patients, to help give readers the tools to help manage the anxiety around uncertainty. It's not full of jargon (which I loved!) and has a relaxed and friendly tone. I can be a bit of a brat, but I immediately jumped on board, and I got a lot out of it! In our interview, Dr Toni talks about her work, the inspiration behind writing the book, her love of metaphors, and what she hopes readers will take away from reading The Certainty Myth. Find out more about Dr Toni: tonilindsay.com.au And grab a copy of The Certainty Myth: exislepublishing.com/product/the-certainty-myth Sign up to the free monthly newsletter: thatssochronic.substack.com Big thanks to @exislepublishing for the advanced copy of this book. @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

google dm drop myth acast chris o'brien lifehouse
Research Round-up
April 2022 — Dr Rebecca Venchiarutti

Research Round-up

Play Episode Listen Later Mar 31, 2022 16:51


Today we are speaking with Dr Rebecca Venchiarutti, a Head and Neck Research Fellow at Chris O'Brien Lifehouse and an academic at the University of Sydney. Rebecca has published a new survey of general practitioners in the Australian Journal of Rural Health about the Geographic variation in referral practices for patients with suspected head and neck cancer.

Healthed Australia
Advances in Prosthetics for Post-Cancer Surgery Patients

Healthed Australia

Play Episode Listen Later Feb 2, 2022 18:27


In this Healthed lecture, plastic and reconstructive surgeon, Dr Joseph Dusseldorp, Chris O'Brien Lifehouse, Concord Hospital, will update health professionals on what can now be done to repair ear deformities, even very severe ear deformities. He will describe how new technology is enabling better pre-surgery planning, providing new options in prosthetics and helping restore function which is resulting in remarkable outcomes for patients. See omnystudio.com/listener for privacy information.

patients advances prosthetics cancer surgery concord hospital chris o'brien lifehouse
PRS Global Open Keynotes
“Periosteal Free Flaps for Facial Reconstruction” with Bruce Ashford PhD, Lyndel Hewitt PhD, and Jonathan Clark FRACS

PRS Global Open Keynotes

Play Episode Listen Later Jan 11, 2022 21:21


In this episode of the PRS Global Open Keynotes Podcast, Bruce Ashford PhD, Lyndel Hewitt PhD, and Jonathan Clark FRACS examine potential periosteal free flap donor sites.This episode discusses the following PRS Global Open article: “Defining the Dimensions of Periosteal Free Tissue Transfer Harvest Sites” by Lyndel Hewitt, Takako Yabe, James Wykes, Darryl J. McAndrew, Clark, Jonathan R. Clark and Bruce G. Ashford.Read the article for free on PRSGlobalOpen.com:https://bit.ly/PeriostealFreeFlapsDr. Ashford is an Associated Professor of Surgery at the University of Wollongong in Wollongong, Australia.Dr. Hewitt is a Senior Research Fellow affiliated with the University of Wollongong in Wollongong, Australia.Dr. Clark is a Clinical Professor of Surgery at the University of Sydney and Director of Head and Neck Research at Chris O'Brien Lifehouse in Camperdown, Australia.Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Surgery at the University of Sydney in Australia.#PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

PRS Global Open Keynotes
“Periosteal Free Flaps for Facial Reconstruction” with Bruce Ashford PhD, Lyndel Hewitt PhD, and Jonathan Clark FRACS

PRS Global Open Keynotes

Play Episode Listen Later Jan 11, 2022 21:22


In this episode of the PRS Global Open Keynotes Podcast, Bruce Ashford PhD, Lyndel Hewitt PhD, and Jonathan Clark FRACS examine potential periosteal free flap donor sites. This episode discusses the following PRS Global Open article: “Defining the Dimensions of Periosteal Free Tissue Transfer Harvest Sites” by Lyndel Hewitt, Takako Yabe, James Wykes, Darryl J. McAndrew, Clark, Jonathan R. Clark and Bruce G. Ashford. Read the article for free on PRSGlobalOpen.com: https://bit.ly/PeriostealFreeFlaps Dr. Ashford is an Associated Professor of Surgery at the University of Wollongong in Wollongong, Australia. Dr. Hewitt is a Senior Research Fellow affiliated with the University of Wollongong in Wollongong, Australia. Dr. Clark is a Clinical Professor of Surgery at the University of Sydney and Director of Head and Neck Research at Chris O'Brien Lifehouse in Camperdown, Australia. Your host, Dr. Damian Marucci, is a board-certified plastic surgeon and Associate Professor of Surgery at the University of Sydney in Australia. #PRSGlobalOpen #KeynotesPodcast #PlasticSurgery

TOGA Podcast
ALK treatment considerations in NSCLC

TOGA Podcast

Play Episode Listen Later Dec 8, 2021 29:24


Welcome to the Thoracic Oncology Group of Australasia Podcast series. Today Mal Itchins, Medical Oncologist from Royal North Shore Hospital discusses ALK therapy choices & considerations when treating ALK NSCLC. Mal is joined by Steven Kao, Medical Oncologist from the Chris O'Brien Lifehouse and Lisa Briggs who has her own personal experience with ALK lung cancer having been diagnosed in 2014, when only limited treatment options were availableWe have seen rapid transformation in treating ALK lung cancer with emerging therapies and new indications over the last decade. We discuss how to choose one treatment over another, optimizing sequencing as well as addressing potential side effects associated with each of the options. Patient preferences, needs and wants are also considered.Two of the associated TOGA trials, ASPiRATION and ALKternate are exploring how molecular testing can monitor emerging mutations and influence treatment decisions, as well as exploring liquid biopsy to search for emerging mechanisms of resistance.https://thoraciconcology.org.au/clinical-trials/Thank you to Pfizer for sponsoring this Podcast.Disclaimer: The opinions, beliefs and viewpoints expressed by the various authors and participants contained in this message do not necessarily reflect the opinions, beliefs and viewpoints of TOGA or official policies of TOGA. Dosage & administration of any treatments mentioned during TOGA medical education may differ between Regions. Please refer to your local prescribing information for further details.

Healthed Australia
Craniomaxillofacial Prosthetic and Advanced Reconstructive Translational Surgery (CMF PARTS)

Healthed Australia

Play Episode Listen Later Oct 15, 2021 17:01


Restoring facial function and form to patients who have to undergo cancer surgery or have had previous surgery with outcomes that are unacceptable or incomplete The virtual surgical planning for new patients begins before the surgery and is comprehensive in its scope planning down to minute detail what is required for a good cosmetic and functional outcome for the patient The CMF-PARTS clinic at the Chris O'Brien Lifehouse is a world first multidisciplinary collaboration- It is an Australia-wide service and the clinic is accepting referrals now   Host: Dr David Lim | Total time: 17 mins Guest: Dr Joe Dusseldorp, Specialist Plastic Surgeon; Chris O'Brien Lifehouse, North Shore Private, Hunters Hill Private and Concord Hospital Register for our fortnightly FREE WEBCASTS Every second Tuesday | 7:00pm-9:00pm AEST Click here to register for the next one See omnystudio.com/listener for privacy information.

The Vet Vault
#44: The C-word. With Dr Penny Thomas.

The Vet Vault

Play Episode Listen Later Jun 1, 2021 77:01


Dr Penny Thomas' career has taken her from working as a nurse in a specialist clinic while she was doing her vet degree, to a stint in mixed practise after graduating from the University of Sydney in 2011, and all the way to gaining registration as a Specialist in Veterinary Oncology in 2019. Penny is a member of the Veterinary Cancer Society and has also obtained her Memberships of the Australian College of Veterinary Scientists in small animal medicine. She has a keen interest in haematological cancers and has published papers on multiple myeloma, anal sac cancer in cats and chemotherapy for T cell lymphoma in dogs, and is a regular participant in continuing education talks to general practitioners. On her journey to becoming a specialist Penny did a 2-year internship programme followed by a residency at SASH in Sydney. During her training, she spent time at Colorado State University, the University of Madison Wisconsin, The Chris O'Brien Lifehouse and the Animal Health Trust in the UK. And it's this part of her career - the internship years - where we start our conversation with Penny. She talks us through the decision-making process around whether doing an internship is for you, and gives us advice on what to look for in a good internship programme, and how to choose the RIGHT internship programme. As usual, the conversation strays into all sorts of interesting places, like masochistic work cultures where working crazy hours is worn like a badge of honour, helping your clients make end-of-life decisions for their animals, and we talk about the risk of having pre-conceived ideas around what is best for our patients without giving our clients ALL of the options and making decisions for them. And of course, we have to dig into what it's like being a veterinary oncologist - all the good and all the bad and all the stuff that you probably didn't know. Enjoy! If you like listening to Penny then you should definitely check out the oncology series that we're doing with her over on the medicine stream on The Vet Vault Clinical. We started with a 3 part series on mast ell tumours that has answered all of the questions I've had for decades about these often tricky cancers, including a run-down of all the newest therapies that are becoming available to us. Our clinical podcasts live at https://vvn.supercast.tech/ with a free 2-week trial when you subscribe. Go to https://thevetvault.com/podcasts/ for the show notes and to check out our guests' favourite books, podcasts and everything else we talk about in the show. We love to hear from you. If you have a question for us or you'd like to give us some feedback please leave us a voice message by going to our episode page on the anchor app (https://anchor.fm) and hitting the record button, via email at thevetvaultpodcast@gmail.com, or just catch up with us on Instagram. (https://www.instagram.com/thevetvault/) Andf you like what you heard then please share the love by clicking on the share button wherever you're listening and sending a link to someone who you know will enjoy listening. --- Send in a voice message: https://anchor.fm/vet-vault/message

Healthed Australia
Oral Cavity Cancer

Healthed Australia

Play Episode Listen Later Apr 13, 2021 23:13


In this Healthed podcast, Clinical A /Prof Carsten Palme Otolaryngology Head Neck Surgeon; Associate Professor, University of Sydney; Director, Head Neck Surgery, Chris O'Brien Lifehouse, explains that  oral cancer rates are climbing steadily and they are one of the most common cancers in the world. The majority are linked to reversible risk factors and many, if discovered and referred earlier, can be better treated. The proportion associated with HPV also seems to be growing!  See omnystudio.com/listener for privacy information.

The Medical Journal of Australia
Episode 412: MJA Podcasts 2021 Episode 11: Prostate cancer treatments, with Prof Henry Woo and Dr Amy Teh

The Medical Journal of Australia

Play Episode Listen Later Apr 7, 2021 21:11


Vol 214, Issue 6: 5 April 2021. Dr Henry Woo is Director of Uro-Oncology at the Chris O'Brien Lifehouse. Dr Amy Teh is a radiation oncologist at Icon Cancer Centre. They discuss the merits and down sides of prostate cancer treatments and why men choose the treatments they do. With MJA news and online editor, Cate Swannell.

TOGA Podcast
Practical Perspectives: Shifting the Needle in Small Cell Lung Canceer

TOGA Podcast

Play Episode Listen Later Apr 1, 2021 23:44


Welcome to the Thoracic Oncology Group of Australasia Podcast series. This TOGA Podcast focuses on Small Cell Lung cancer (SCLC) – a type of lung cancer with the poorest prognosis of any lung cancer. SCLC patients make up about 13% of new lung cancer diagnoses that are characterized by early & rapid spread with only modest progress in its treatment over the last decades. Immunotherapy continues to radically change the way we treat many types of lung cancer and today we explore what these treatments mean for the SCLC patient and the practical implications of using immunotherapies in the clinic. We also discuss future combinations and novel agents in clinical trial development.Our guests today include Dr Steven Kao, Medical Oncologist from the Chris O'Brien Lifehouse in Sydney Australia, Associate Professor Stephen Liu, Director of Thoracic Oncology & Director of Developmental Therapeutics at the Lombardi Comprehensive Cancer Centre of Georgetown University and also Dr Rebecca Tay, a Medical Oncologist from the Royal Hobart Hospital in Tasmania, having recently completed a Clinical Research Fellowship at the Christie NHS Foundation Trust in Manchester.Thank you for joining us and also thank you to Roche for sponsoring this Podcast.Useful link: https://www.frontiersin.org/articles/10.3389/fonc.2020.01074/full Disclaimer: The opinions, beliefs and viewpoints expressed by the various authors and participants contained in this message do not necessarily reflect the opinions, beliefs and viewpoints of TOGA or official policies of TOGA. Dosage & administration of any treatments mentioned during TOGA medical education may differ between Regions. Please refer to your local prescribing information for further details.

TOGA Podcast
Dreaming of Better Treatments for Mesothelioma

TOGA Podcast

Play Episode Listen Later Feb 16, 2021 18:24


Australia has one of the highest incidence rates of mesothelioma in the world.Mesothelioma is a form of cancer that most often affects the thin linings of the organs in the chest (pleura) and abdomen (peritoneum). Mesothelioma is closely linked with asbestos exposure either at work or among family members of workers and people living in neighbourhoods near asbestos factories and mines. The risk is lifelong.TOGA, the Thoracic Oncology Group of Australasia, is working to positively change the outcome for patients with mesothelioma through an innovative clinical trials program and by providing medical education & awareness.In this Podcast, we talk with Professor Anna Nowak, Pro Vice Chancellor at UWA, Medical Oncologist and Director of the National Centre for Asbestos Related Diseases and Medical Oncologist Dr Steven Kao from the Chris O'Brien Lifehouse with a special interest in predictive and prognostic factors in mesothelioma, about emerging treatments for mesothelioma patients and the DREAM3R trial.In a successful partnership spanning US, Australia and New Zealand, TOGA investigators are collaborating with PrECOG and NHMRC CTC and have opened a Phase III trial called DREAM3R investigating the addition of immunotherapy to chemotherapy in patients with newly diagnosed malignant pleural mesothelioma. Australia has one of the highest incidence rates of mesothelioma in the world, and new promising therapies are desperately needed. The DREAM3R trial follows on from the exciting Phase II clinical trial results in PrECOG's PrE0505 trial https://rb.gy/q44it3 and the Australian DREAM trial https://rb.gy/lrkhvo that both showed early promising results with the chemotherapy and durvalumab combination. More information on the DREAM3R trial can be found here: https://rb.gy/2h9f5v and https://rb.gy/rkznyt' Further trial information available here:https://rb.gy/2h9f5v and https://rb.gy/rkznyt

ohitscancer
Dr Cindy Mak

ohitscancer

Play Episode Listen Later Jan 18, 2021 40:33


Today I am thrilled to be joined by a total boss lady, Dr Cindy Mak. Cindy is my breast surgeon, and has been an instrumental part of my breast cancer journey. Now when I say she's a total boss I mean it – she is the head of department for Breast Surgery at the Chris O'Brien Lifehouse here in Sydney, she's part of the team at The Mater, she works closely with the Sydney Breast Cancer Foundation to raise valuable funds for patient care, medical equipment and education and uses her voice where it counts to speak about women's health and breast cancer alike.   Join me on Instagram @ohitscancer

mater breast surgery chris o'brien lifehouse
ohitscancer
Exercise Physiology

ohitscancer

Play Episode Listen Later Nov 2, 2020 41:48


When you're undergoing cancer treatments, it can feel like you've had so much taken from you. Exercise is one of the things that can help you regain your sense of self. Shelley Kay, my exercise physiologist at Chris O'Brien Lifehouse, joins me for a chat about the role of exercise in enabling you to deal with the side effects that accompany many cancer treatments. Join me on Instagram: https://www.instagram.com/ohitscancer/

exercise exercise physiology chris o'brien lifehouse
ohitscancer
Cancer Psychology

ohitscancer

Play Episode Listen Later Sep 10, 2020 37:58


Looking after your mind throughout and beyond cancer treatment is so important.   Julie Black, my psychologist at Chris O'Brien Lifehouse, joins me for a chat about the role of a psychologist in enabling you to deal with the mental health side of cancer.   Join me on Instagram https://www.instagram.com/ohitscancer/

psychology cancer chris o'brien lifehouse
ohitscancer
A word from the doctor

ohitscancer

Play Episode Listen Later Feb 25, 2020 40:55


I had the pleasure of speaking with Dr Sanjeev Kumar, my medical oncologist at the Chris O'Brien Lifehouse here in Sydney, Australia. We discuss the different types of breast cancer, treatment options and learn more about what medical oncology is. This information is general in nature - advice on individual situations should come from your own treating medical professional.  Join me on Instagram: ohitscancer

australia doctors sanjeev kumar chris o'brien lifehouse
Simplify Cancer
Episode 010: How Tracking Your Symptoms Can Help You Live Longer

Simplify Cancer

Play Episode Listen Later Apr 17, 2018 22:26


If there one thing that I regret throughout my cancer adventure, it's not being properly prepared.  There's a lot going on and it's easy to forget about your symptoms. You forget to tell your specialist what's bothering, so to help you with that, in this episode you're going to find out about Cancer Aid, a mobile application that helps you track your symptoms and so much more. I'm talking to Raghav Ganesh-Murali, COO of CancerAid and in this episode, we cover: The importance of logging and sharing your symptoms Being empowered and making better decisions Having the support of your champions through treatment Trends and symptom changes that integrate into patient's medical record Online platform to share and connect via stories Links CancerAid CancerAid Wins $500,000 on Shark Tank (YouTube) Simplify Cancer First Visit Oncologist Checklist Full Transcript Joe:                 Raghav, how did Cancer Aid come about?  What problem were you guys trying to solve? Raghav:          Yes, so CancerAid is basically a solution to a problem that we save whilst working in clinical practice.  My background is as a radiation oncology specialist.  I trained here in Sydney.  Basically, when we saw patients, we often were able to see the same problems time and time again for each of these patients.  We did a survey of a few patients at the hospital we work at.  We work in Chris O'Brien Lifehouse.  We saw four main problems.  To start with cancer patients and some of their diagnosis, they were looking for the right information.  During treatment, they wanted tools to help them manage their illness. They wanted to be able to connect with other people, their family, their friends and share with them their experiences, so they didn't have to repeat themselves.  Lastly, they wanted to connect with other patients that have gone through similar experiences and reduce the isolation that was perceived.  We took those problems onboard and came up with a solution to try and address some of those problems.  It took about a year to design it and Cancer Aid was released in August 2016.  To answer the four problems, we provide patients with the right information, peer-reviewed, medically reliable information. The second part, we give patients a personal journal and a symptom journal, so they can record their experiences and log their symptoms.  The logging of the symptoms was especially important because patients were better engaged for health with better outcomes.  Very recently, there has been some strong randomized evidence that has suggested that patients who logged symptoms share that with their clinicians, actually can potentially live longer, which is very exciting. The third solution, which was connecting family and friends, we've got a component inside the app called the Champion's Feature, so a patient who we call the hero going through their treatment can nominate a friend or family, a caregiver through the app and they get a deep link.  They click on the deep link and they're able to access the hero, which is a patient's profile and can read what the journals they are logging are. That helps with motivating a patient who's going through a tough time, so they can log their journal and then they can share with the people that they choose to read with them.  Lastly, the community, we've got a static community, not a dynamic community, which means patients can read about stories from other patients that have gone through similar experiences.  Eventually, this will become a more dynamic community, where they can track other patients, but right now, it's simply reading stories.  There are a couple of reasons we haven't done that yet, but it's in our pipeline, we'll get to it over 2018. Joe:                 That's fantastic that it works on so many levels.  It benefits the patients, it benefits the doctors, it also benefits the community people who want to help out.