That's So Chronic

Um, hiiii! Firstly, I want to say a huge sorry for leaving you all in the lurch here on the That's So Chronic podcast feed! Like I explain in this update episode, I really did not anticipate this big of a break between new episodes, hence why I didn't let you know ahead of time! In this episode I try to explain where the heck I've been and how I've been feeling, a little bit more of an insight into the different parts of my identity, the exciting things I've been working away on, and the plan for That's So Chronic moving forward! Really looking forward to being back in your ears again in early 2025, but for now, I would love to connect over on IG, Tiktok or Substack: @thatssochronic I really miss bringing you these stories every Tuesday morning, so I feel really sad to be taking such a big break! But, I hope you will all understand. Thank you so much for supporting That's So Chronic! @thatssochronic | @jessssbrien | #thatssochronic Sing up to the newsletter: thatssochronic.substack.com Application form to share your story next season: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

It's the final Tuesday of the month which means it's time for a That's So episode! A chance to chat about a piece of content that's in our That's So Chronic world. Today, we're chatting about the feature documentary Designer $hit directed by Saffron Cassaday. In Designer $hit, director Saffron Cassaday, who has suffered from ulcerative colitis for nearly a decade, sets off on a journey to determine whether FMT (or fecal microbiota transplant) could potentially cure her of this disease. It's a great mix of patient experiences, scientific information, Saffron's personal experience, and honest reactions from everyone involved. In this episode, I get the chance to sit down with Saffron and chat all about her experience of not only living with UC and going through FMT for herself, but recording it all at the same time… Links to click on! Official website: https://www.designershitdocumentary.com Social media: @designershitdocumentary And you can always find me over on Instagram and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com) or a DM on instagram Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! When I was passing through London, UK in July I was able to sit down and chat with Miranda Allen about her diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) In this episode, Miranda looks back with hindsight and explains where it's possible her symptoms began, the years of not really knowing what was going on, how she got a diagnosis, what on earth ME even is, her day to day symptoms, how she manages them and her latest creative endeavours. Some of you might remember Miranda from a previous That's So episode (That's So: Unrest documentary) but we didn't get to chat too much about her story then, so I'm really excited to be able to bring you this episode with a lot more information today! Watch Miranda on Penn & Teller: youtube.com/watch?v=CfGGIQbsrrE EeZeeGo website: https://www.eezeego.co.uk Symptom tracking app Visible: www.makevisible.com And don't forget to connect over on IG and Tiktok, I'm @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today - in the middle of the Edinburgh Festival Fringe - I was able to sit down with comedian Markus Birdman, to chat about his experience of having two strokes, as well as living with a diagnosis of homonymous hemianopia. In this episode Markus explains how it it felt for him going through stroke number one and then stroke number two ten years later, what happens after you arrive at the hospital, how he navigates living with 50% eyesight, and the feelings he had when he was told that this is a disability. And then I get to ask Markus all about incorporating his experiences into his stand up comedy, including a little behind the scenes glimpse into what it's like performing comedy about strokes to millions of people as a semi finalist on Britian's Got Talent! Follow Markus on Instagram: @markusbirdman And watch him on Britain's Got Talent! www.youtube.com/watch?v=RirB3Z1K58s To book tickets to Markus' show PLATNUM, or find out more about his upcoming gigs, check out markusbirdmantour.com Thanks for listening! Don't forget to rate, review and press follow! You're the best! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! It's the final Tuesday of the month which means it's time for a That's So episode, where we chat about something that's in our That's So Chronic world. Today, we're chatting about The Surgeons' Hall Museums and the Blood & Guts: The Twists and Turns of Edinburgh's Medical History Walking Tour that I was able to check out while I was in Edinburgh, Scotland during August. Here are all of the links… MedCrimes podcast episode: S1Ep24: Burke and Hare Blood & Guts walking tour tickets Surgeons' Hall Museums website: museum.rcsed.ac.uk and social media: @surgeonshall And you can always find me over on Instagram and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com) or a DM on instagram Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic!. Today I am chatting to psychiatrist, comedian, and author Dr Jo Prendergast about her diagnosis of breast cancer, as well as her latest book When Life Sucks. In this episode, Jo talks us through her breast cancer diagnosis and what happened next. We chat about the amount of decisions you have to make after a diagnosis, the stark differences between public vs private health care here in New Zealand, and I have a revelation about life insurance. We also discuss how she incorporates her cancer journey into her stand up comedy, and all about her latest book titled When Life Sucks - a first-aid manual for supporting your teen's mental health. To find about more about When Life Sucks, head to: drjoprendergast.com Follow Dr Jo on Instagram: @drjoprendergast.whenlifesucks and for all of her comedy information, follow @joghastly For more information about Jo's comedy show “Cancer and Cartwheels” check out her comedy website: joghastly.com Cold capping information: hairtodayandtomorrow.co.nz And you can always find me over in Instagram and Tiktok: @thatssochronic Thanks for listening and supporting! You're my fave! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today I am joined by Dr Saimun Singla and we are discussing her diagnosis of rheumatoid arthritis as well as her work as a paediatric rheumatologist and integrative medicine physician. In this episode, Dr Saimun shares her story of working for years in rheumatology and then going through her own rheumatoid arthritis diagnosis process. We chat about how she felt suddenly becoming a patient of her own expertise, how she manages her symptoms, the art of saying no, and how she navigates working as a doctor, running her own clinic, being a mum and living with RA. Find out more about Dr Saimun's clinic Rheum To Grow: www.rheumtogrowtx.com Follow on Instagram: @rheum.to.grow.tx And if you need a reminder… Those three C's were CATCH, CHALLENGE & CHANGE. You're welcome! If you have any questions, or just want to connect, you can find me on IG and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic. It's the final Tuesday of the month, which means it's time for another That's So episode. Today I am chatting to Olivia Shivas, the editor of The D*List - the home of disability culture in Aotearoa. The D*List is an online culture magazine that creates space for disabled people to tell their own stories through features, columns and news reporting. It's quickly becoming one of my favourite places on the internet… so I was very excited to chat to Olivia! In this episode, Olivia explains what it is that an editor does, what inspired the creation of The D*List, what the reception has been like since launching the website, why this space is important, and how people can reach out if they would like to contribute. Check out the website now: https://thedlist.co.nz And don't forget to follow on Instagram @thedlistnz and over on substack: https://thedlist.substack.com Thanks for listening! Sorry it was a couple of days late this week! Feel free to reach out on Instagram or Tiktok: @thatssochronic, and subscribe to the free monthly newsletter: thatssochronic.substack.com @thatssochronic | @jessssbrien | #ThatsSoChronic These That's So: episodes are released on the final Tuesday of every month. They are a chance to showcase a piece of content (books, films, interviews, literally anything and everything!) that is in the That's So Chronic world. If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com) or send a DM on instagram. Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

Today I am chatting to Nick Allen who is living with a diagnosis of functional neurological disorder (FND) and fibromyalgia. However, this was not always the case… In this episode Nick talks us through the long process of initially being diagnosed with primary progressive multiple sclerosis, and the lifestyle changes that he implemented to manage his condition (one of these being the overcoming MS lifestyle). Nick then explains the adventure he eventually embarks on in the Himalayas, which inspires the creation of Mastering Mountains - a charitable trust helping others achieve their adventure dreams and connect with community. But, of course, as you have probably realised, his story doesn't end there. Several years later Nick realises he has been misdiagnosed, and suddenly finds himself navigating the world of living with FND… Follow Nick on Instagram: @nick_allen And check out Mastering Mountains: masteringmountains.org.nz Find That's So Chronic on IG and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

It's my favourite day of the week again! Welcome back to That's So Chronic! Today's episode is with Audrey Zannese and we are discussing her diagnosis of multiple sclerosis (MS). In this episode Audrey opens up about how in denial she was when she first heard that her symptoms might be MS, and then the journey it took for her to make the decision to begin treatment. She also talks us through the practice of sophrology - a mind body practice that is extremely popular in France and other European countries - and how finding this practice has benefited her symptoms of living with MS. Step Into Sophrology: www.stepintosophrology.co.uk The UK Centre of Excellence in Sophrology: www.sophroacademy.co.uk Connect with Audrey on Facebook and Instagram: @stepintosophrologyAaaaand you can always find me over on IG and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic! Today I am chatting to Sophie Ricketts, and she talks us through a hymenectomy surgery that she had while she was at drama school. In this episode Sophie explains the process of discovering that she had a thick hymen, which involves several people telling her “she wasn't ready” for sex, a gut feeling that wasn't initially followed through, and a gynaecologist drawing a picture. This diagnosis resulted in a hymenectomy, a surgery that removes a part of the hymen. But, Sophie's story doesn't just end there. While going through this process she made a decision to share her story publicly, and she tells us exactly how that went down. Feel free to connect over on IG or Tiktok, I'm @thatssochronic Thanks for listening! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today's episode is with Dr Kara Wada, MD, and we are discussing her diagnosis of Sjogren's syndrome and her work as an allergist, immunologist, and lifestyle medicine physician. In this episode Dr Kara shares her diagnosis story, as well as the symptoms that - with hindsight - are also pieces of the Sjogren's puzzle. She explains what Sjogren's is (spoiler: it isn't the name of a table at IKEA), her symptoms, and how she manages them. This leads us nicely into chatting more about her work as an allergist, immunologist, and lifestyle medicine physician, as well as what “Become Immune Confident” means to her. Oh! And she also gives me all the details about Dr America - a pageant for Doctors. This (as well as Sjogren's actually!) was something that I know not a lot about so I was really excited to learn more! Find out more about Dr Kara on her website: www.drkarawada.com And follow on social media: @crunchyallergist Dr World: www.drworldproductions.com And find out more about That's So Chronic at thatssochronic.com and on instagram and tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic. It's the final Tuesday of the month, so we take a break from regular interviews. For today's Spotlight On episode, I'm chatting to pain researcher and sole Survivor, Dr Hayley Leake. In this episode Hayley chats about the pain research work that she is working on, her PhD, what excites her about the future of pain research, and of course, we chat about how she was able to incorporate her knowledge in pain science to play (and ultimately win!) Survivor Australia. Follow Hayley on Instagram or Twitter: @hayleyleake_ And don't forget to check out The Chronic Pain Project on Instagram: @chronic_pain_project For behind the scenes content about That's So Chronic, head to IG and Tiktok: @thatssochronic If you have a company, product, or exciting venture you would like to talk about on That's So Chronic, send an email to hello@jessbrien.com @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today's episode is with Elizabeth, and we are chatting about her diagnosis of multiple sclerosis (MS). In this episode Elizabeth shares the diagnosis process that eventuated after a bout of optic neuritis, how she felt when her symptoms had a name, her management plan including diet and Natalizumab/Tysabri infusions, and why she felt inspired to share her story today. This episode feels extra special, because what you will soon learn throughout the interview is that Elizabeth doesn't really talk about her diagnosis a lot, but she wanted to share her story with all of you today. People choosing me and That's So Chronic to help share their stories is something that I never take for granted! If you want to see more, feel free to connect over on IG and Tiktok: @thatssochronic And sign up to the monthly newsletter here: thatssochronic.substack.com @thatssochronic | @jessssbrien | #thatssochronic Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Yay! It's Tuesday! Which means a brand new episode of That's So Chronic! Today's episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder). In this episode, Ruby starts by sharing her story of her ME/CFS diagnosis, and takes us through how she got a diagnosis amongst lockdowns, she describes her symptoms and how she manages them, as well as explaining how she navigated going to university at the same time. We then discuss her diagnosis of endometriosis, which - probably comes as no surprise to a lot of listeners - came with a bit of a negative experience of the healthcare system. And then, of course, we chat about all things ADHD and how this diagnosis fits into her life. Feel free to connect over on IG and Tiktok, I'm @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Ahhhh!!!! WE'RE BACK! BRAND NEW EPISODES! Sorry for shouting but I'm SO EXCITED! Welcome back! Today's episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. In this episode, Allie takes us all the way back to the beginning and explains the countless surgeries that she went through up until the age of 19. She then talks us through how even though she swore that she would never step foot in a hospital as a patient ever again, she ended up spending months there after suddenly becoming unwell at the end of 2021. Allie explains the diagnosis process of CIDP, how she manages her symptoms, and how life is looking for her now. Side note: big apologies for the knocking on the microphone throughout the episode! Allie's story is so captivating, I'm hoping you will hardly notice :) Follow Allie on Tiktok: @alex__sharples And connect with me on IG or Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic (or if you're a long time listener, welcome back!) a weekly podcast where Jess Brien (@jessssbrien) interviews people from around the world who are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries, and potentially disastrous diagnoses... all while having a laugh along the way. You can expect new patient stories every Tuesday, and on the final Tuesday of the month, we chat about anything and everything that's in our That's So Chronic world. Whether that be a That's So episode focusing on a book, film, or another type of content, or a Spotlight On episode where we deep dive into a person or an organisation making waves in the chronic illness and disability space. Follow on IG and Tiktok: @thatssochronic Sign up to the free monthly newsletter on Substack: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 And feel free to reach out over at www.thatssochronic.com or send me an email: hello@jessbrien.com Episodes featured in the trailer (in order of appearance): • Emily Spink & Crohn's Disease • Abbie Madden & Congenital Glaucoma • Oliva Odey & Complex Regional Pain Syndrome (CRPS) and Neural Sensitisation Syndrome • Joshua Phillips & Obsessive Compulsive Disorder (OCD) • Lee Weir & Type 2 Diabetes • Hayley Sproull & Polycystic Ovarian Syndrome (PCOS) • Sam Smith & Relapsing Remitting Multiple Sclerosis (RRMS) • Tatjana & Attention Deficit Hyperactivity Disorder (ADHD) • Carlyn Reed & Hodgkin's Lymphoma • That's So: The Uncertainty Myth by Dr Toni Lindsay • Spotlight On: Get Well Circus • Spotlight On: Exsurgo • That's So: Why Does It Still Hurt? by Dr Paul Biegler Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

It's the final Tuesday of the month which means a That's So episode! Today I am chatting about Dr Paul Biegler's latest book Why Does It Still Hurt? Throughout the book Paul begins to unpack the reasons behind why it might still be hurting, using his own chronic pain journey, as well as other patients' stories, and interviews with some of the top pain researchers, scientists and doctors in the world. In this episode, I sit down with Paul, and we talk about his process of creating the book, some examples of the studies, and why he made the transition from emergency medicine to journalism. Find out more about Paul: paulbiegler.com Why Does It Still Hurt is available in stores and online, or at your local library. Don't forget to connect over on Instagram or Tiktok, @thatssochronic. I always love hearing from you all! Sign up to the monthly newsletter: thatssochronic.substack.com @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today, after a couple of technical difficulties, I'm joined by singer songwriter Annie Vander, and we're talking all about her diagnosis of complex regional pain syndrome (CRPS) In this episode Annie shares the accident that subsequently changed the course of her career, the diagnosis process, her definition of CRPS, how she manages her symptoms, the inspiration behind her latest single Falling Into Nashville and I learn about an amazing therapy technique with a mirror. Also, a fun behind the scenes fact... I uploaded this episode using inflight wifi while I was on my way back to NZ from Australia. Wifi in the air will never not get old for me!! Find Annie on Facebook facebook.com/AnnieVanderMusic and on Instagram: @annie_vander And search ‘Annie Vander' wherever you stream your music! Don't forget to connect with That's So Chronic on Instagram and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic! Today's episode is with Natasha Godetz, and we are chatting about her diagnosis of juvenile idiopathic arthritis and the journey that led her to a double hip replacement. In this episode, Natasha explains what it was like receiving a diagnosis when she was 10 years old, the effects university had on her health, the ups and downs of moving overseas and exploring the world on immunosuppressants (which side note does involve shingles, strep throat, a parasite, and dengue fever), the impact holistic health practices has had on her journey, and of course the big one… what it's like having a double hip replacement at age 32. You can connect with Natasha on instagram @natashagodetz or on her website natashagodetz.com And don't forget to follow That's So Chronic on instagram and tiktok! @thatssochronic Thanks for listening! See you next week! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

YAY! We're BACK! Thank you for being so patient while I took a break for the summer holidays here in NZ! Today's episode is with Shana Pereira, and we are discussing her heart and kidney transplant, and honestly, at times you will think it is actually the plot of a movie... But more on that towards the end of the episode! In this episode Shana talks us through her story that starts on Christmas eve 2015, how she felt when she discovered that her kidneys were failing, how the organ transplant process works, and the series of events that led to a Christmas miracle in 2020. Shana also chats about the importance of faith, holding on to hope, and being the COO of your medical team. *content warning* Shana does discuss her near death experience, which may be uncomfortable for some listeners, so please take care while listening! Connect with Shana here: shanapereira.com And don't forget to follow That's So Chronic on Instagram and Tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Hello! Here is a sneaky lil bonus episode to finish the year! A 2022 That's So Chronic wrapped episode, if you will! I thought why not lean into the end of year vibes, and share 22 moments that have made up my (and the pod's!) 2022. These are mostly highlights and achievements that feel fun to celebrate, with some challenging aspects thrown in too. If you would like to support the work I do here at That's So Chronic by “shouting a coffee” you can do that here: www.jessbrien.com/shoutacoffee But another way to support the pod (and it REALLY helps!!!) is to press follow wherever you're listening from today. In the meantime, while you're waiting for new episodes in the New Year, don't forget to follow That's So Chronic on Instagram and Tiktok as well @thatssochronic And sign up to the newsletter on Substack right here: thatssochronic.substack.com THANK YOU SO MUCH for being here listening! As always it is a pleasure to be in your ears every week. See you next year! @thatssochronic | @jessssbrien | #thatssochronic Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

It's the final (regular) That's So Chronic episode of the year! How is that even possible!? Seeing as it's the final Tuesday of the month it's a That's So episode. Today we are chatting about the two latest films to be released on Netflix all about serial killer Charles Cullen. It is of course The Good Nurse and Capturing The Killer Nurse …and I have got a lot of fun facts to share with you all!!! The Good Nurse is directed by Tobias Lindholm and stars Jessica Chastain and Eddie Redmayne. “Nurse Amy Loughren is shocked when Charlie Cullen, one of her colleagues, is found responsible for the murder of dozens of patients over a period of sixteen years, across two states and nine hospitals, without being charged.” Capturing The Killer Nurse is a documentary film directed by Tim Travers Hawkins and “reveals how investigators proved ICU nurse Charles Cullen was killing patients — and how close he came to getting away with murder.” All the links! Amy Loughren's website: amythegoodnurse.com and socials @amythegoodnurse The Atlantic article by Shirley Li New York Times article by Dave Itzkoff Two interesting interviews with Tobias Lindholm in WhyNow and Deadline Jessica Chastain's interview with IndieWire Find That's So Chronic on IG and Tiktok: @thatssochronic and don't forget to sign up to the newsletter: thatssochronic.substack.com Thanks for listening! Love ya! @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome to That's So Chronic. Today's episode is with Olivia, who shares her journey navigating symptoms and trying to find a diagnosis. Olivia has been diagnosed with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) but refers to that as a blanket diagnosis that doesn't really explain the full picture. In this episode Olivia talks us through her symptoms that started about a year ago, how her medical team arrived at the diagnosis of ME/CFS, how she feels when she gets told she isn't “bad enough” to warrant further testing, how she manages university study including the importance of lecture recordings, and we learn about her love for grocery shopping! As always, feel free to reach out over on Instagram or Tiktok, I'm @thatssochronic And thanks for listening! You're the best! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today's episode is with Monica Foster, and we are talking about her diagnosis of cushing's disease (hypercortisolism). In this episode Monica shares her diagnosis journey, the ups and downs that came with countless tests from various different medical professionals, the decision to go through with brain surgery for the tumours on her pituitary gland, an expensive medication, travelling to different places for these treatments, and how she's feeling after bilateral adrenalectomy surgery. Thanks for listening! Feel free to reach out over on instagram or tiktok, I'm @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Yay! Happy Tuesday! Today's episode of That's So Chronic is with Natalie Meyers and her mom Dr. Laurie, and we're chatting about Natalie's diagnosis of rheumatoid arthritis, lupus and pericarditis. ** We had a couple of technical difficulties getting this video call to work, so thanks in advance for being understanding about the sound quality! ** In this episode, we basically talk about everything! Natalie and Dr Laurie take us through Natalie's diagnosis of rheumatoid arthritis when she was a freshman in high school, the eventual diagnosis of pericarditis and lupus, what it was like growing up being the one who always puked on family car trips, the challenges that come with chronic illness, and why it's important to advocate for yourself or for your child. Aaaaand of course, Dr Laurie also shares some funny moments of Natalie's childhood with all of us as well! Natalie is the first to recognise that not everyone has the privilege of having a doctor for a mum, but her mum has been there through her health journey, so we thought why not share and celebrate this part of her story today! Don't forget to connect with That's So Chronic over on Instagram or Tiktok: @thatssochronic And sign up for the free monthly newsletter: thatssochronic.substack.com @thatssochronic | @jessssbrien | #thatssochronic Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Today's episode of That's So Chronic is with Chelsea Haughton and we are talking about her diagnosis of polycystic ovarian syndrome (PCOS), premenstrual dysphoric disorder (PMDD), and hypermobile ehlers danlos syndrome (hEDS). In this episode, Chelsea shares her experiences of seeking a diagnosis which includes flying to a different city for an appointment, how each of these conditions affect her, the importance of talking about periods, and how validating it can be talking to someone who understands. Connect with Chelsea and see her embroidery creations on IG: @sewnearyetsewfar And as always, feel free to reach out and connect over on IG or Tiktok, I'm @thatssochronic Thank you for listening and supporting! You're the best! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic! Today we are shining a spotlight on Hear Your Song, a non-profit organisation that is empowering children and teens with serious illnesses and complex health needs to make their voices heard through collaborative songwriting. If you know a bit about me, you'll know that this is my cup of tea, so I was very excited to learn more and help share their story today! In this episode I'm chatting to co-founder and executive director Dan Rubins, as well as music director Sofía Campoamor. They share the story behind Hear Your Song, what a session entails, and what they've learnt along the way. Annie, Piper, Zippy, and Elliot explain what they love about being a part of this project, and we also hear about Hear Your Song's recent concert at 54 Below in NYC, where Broadway performers collaborated with the kids to perform their songs! Oh, and we get to listen to some of the songs! Find out more and support the work at Hear Your Song: www.hearyoursong.org Follow HYS on social media @hearyoursonghys And listen to all of the songs on their youtube channel: youtube.com/channel/UCcn-79DuKg3Rx0RD6gcfkvA If you've got something you would like That's So Chronic to shine a spotlight on, feel free to reach out on Instagram @thatssochronic, or send me an email hello@jessbrien.com @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Today I am chatting to Finn Iles/Violet Tendencies all about her diagnosis of hypermobile ehlers danlos syndrome (hEDS), as well as a variety of comorbidities that come along with this. In this episode, Finn explains the journey to get to a diagnosis (which is still continuing!), what on earth EDS is, and how medicinal cannabis has helped her symptoms. Finn also takes us through the amount of advocacy work, research, and time they have had to do in order to get to where they are now, and the plans for the future support. Please note we do talk about some elements of the NZ health system that may be different now due to the reform, or not applicable to where you are based. Connect with Finn over on IG: @violetyouareturningviolet And you can find me on IG & Tiktok: @thatssochronic I would also really appreciate a rating or a review wherever you're listening to this pod! That really helps TSC reach more ears around the world - so thank you! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Hi! Today's episode is a little bit different. If you're not following That's So Chronic over on instagram you might have missed that recently I was a guest on Ben Hampton's podcast A Gluten Free Podcast. You might remember Ben from his interview episode here on That's So Chronic where he shared his story of being diagnosed with coeliac disease. I really enjoyed getting to chat to Ben all about my gluten intolerance diagnosis. It's something that I haven't really talked about before on mic, so I thought what a great opportunity to share a little bit more of my health story with all of you! In this episode I talk about the symptoms I was experiencing when I was 15 that eventually led to a gluten intolerance diagnosis, I express my love for the gluten free foods in Australia, a recap on my MS diagnosis (for all of you OG listeners), and a little bit of advice for anyone on their chronic illness journey. Big thanks to Ben for facilitating and sharing this interview with me! You can listen to Ben over on A Gluten Free Podcast wherever you listen to your pods, and connect over on instagram @a.gffamily and on tiktok @aglutenfreefamily And you can find me behind @thatssochronic on IG and Tiktok! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

How is it the end of September already?! I'm excited to share this months That's So episode, because today we're chatting about The Certainty Myth by Dr Toni Lindsay. ** a content warning: while we share a lot of laughs, we do touch on the subject of death, so please take care while listening ** Dr Toni Lindsay is a clinical and health psychologist who has been working with both adults and adolescents for over 10 years. Currently she is working at Chris O'Brien Lifehouse in the oncology service and is a specialist in the care of adolescents and young adults with cancer. In her third book The Certainty Myth, she shares her knowledge as well as stories from her patients, to help give readers the tools to help manage the anxiety around uncertainty. It's not full of jargon (which I loved!) and has a relaxed and friendly tone. I can be a bit of a brat, but I immediately jumped on board, and I got a lot out of it! In our interview, Dr Toni talks about her work, the inspiration behind writing the book, her love of metaphors, and what she hopes readers will take away from reading The Certainty Myth. Find out more about Dr Toni: tonilindsay.com.au And grab a copy of The Certainty Myth: exislepublishing.com/product/the-certainty-myth Sign up to the free monthly newsletter: thatssochronic.substack.com Big thanks to @exislepublishing for the advanced copy of this book. @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others Hosted on Acast. See acast.com/privacy for more information.

Today's episode is with comedian Maria Williams, and I must admit, I did have a moment where I cried with laughter while editing this episode! Maria is also a teacher, and lives with a diagnosis of ADHD, or attention deficit hyperactivity disorder. In this episode, Maria shares the journey of her ADHD diagnosis, from a diagnosis in Hawai'i that she was convinced was a misdiagnosis to an eventual diagnosis at age 32. She also shares her symptoms and how she manages them, her frustrations in why it took so long, and leaves us all with some advice. Maria also talks about why she's so passionate about spreading awareness, and gives us a bit of an insight into her upcoming comedy shows! GET YOUR TICKETS FOR ‘ANXIETY: THE MUSICAL' IN WELLINGTON 15-19 NOV: bats.co.nz/whats-on/anxiety-the-musical/ And follow Maria on twitter @mariawilliamsnz for updates on her next show ADHD: The Musical. As always, feel free to connect over on instagram and tiktok, I'm @thatssochronic. @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

It's Tuesday! Which means another episode of That's So Chronic! Today is the first in person interview for a little while (thanks to you know what) and I'm chatting to Caitlyn McMillan about her diagnosis of achalasia. In this episode, Caitlyn shares her diagnosis story, the symptoms she experiences, the decision to go through with surgery to her oesophagus and stomach, how she managed uni and her mental health throughout all of this, and why she was inspired to share her story with me today. If you too have been diagnosed with achalasia, I am sure Caitlyn would love to hear from you! Feel free to send me an email or a message over on IG (@thatssochronic) and I'll connect you! Thank you for supporting That's So Chronic. Without all of your reviews, ratings, follows and shares this podcast literally wouldn't exist! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

How is it the end of August already?! Today we are taking a break from regular interview episodes to share another That's So episode. That's So is a monthly series where we dive deeper into a piece of content - be that a book, film, tv series, interview, literally anything! - that's in our That's So Chronic world. Today I am talking to Karra Eloff about her book titled The Chronic Pain Couple. The Chronic Pain Couple is a book for all of those living with chronic pain who wants to have a remarkable relationship. Australian health entrepreneur Karra Eloff has drawn on academic research and her own pursuit of joy in spite of suffering to develop this trailblazing, compassionate, low-energy and practical path to a remarkable new normal, delivering much-needed solutions to couples living with one partner's chronic pain. In this episode I share some of my thoughts, and Karra explains what it is she does, a bit about her diagnosis of spondyloarthritis (and why I found that so important when reading this book!), the process of writing (and rewriting as was the case for the mental health chapter!) and why she's dedicated to helping people live remarkable lives. You can find more about Karra on her website: www.chronicpaincouple.com or on social media: @chronicpaincouple Grab your copy online, or where all good books are sold! A big thanks to Exisle Publishing for my copy of The Chronic Pain Couple and supporting That's So Chronic. They've given me some copies to giveaway, so head to @thatsschronic on instagram to be in to win! Also, heads up, there is a bit of a sound issue in some of the audio during the interview. Thanks for being understanding! @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome to That's So Chronic! Today's interview is with Sean Prenter, and we're talk about his experience living life after sustaining a traumatic brain injury. In this episode, Sean talks us through the moment when he fell off a balcony, the recovery process, as well as how recovery looks when you're a student, how he managed to complete a goal by being able to ski again, and why he wants to share his story. Sean is also a co-founder of the Otago Disabled Students' Association (@otagodsa on instagram, and facebook) so of course we chat about that too. But just a heads up, there is little issue with the sound quality in this episode compared to other episodes. I hope you don't mind! SIGN UP TO THE FREE THAT'S SO CHRONIC NEWSLETTER: thatssochronic.substack.com (Sorry for shouting, I'm just excited!) And as always, you can find TSC over on instagram and tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Yay! It's Tuesday! Which means another interview here at That's So Chronic. Today we are heading to the UK, and hearing from Rosie Wilson. Rosie is living with a diagnosis of coeliac disease and multiple sclerosis (MS) which is what we are chatting about today. In this episode, Rosie takes us through her coeliac diagnosis (as well the important questions like what her final meal would be if suddenly the world ended in the next five minutes) before getting to the big one: when she started experiencing symptoms of MS, the four day hospital stay that resulted in a diagnosis, her treatment plan, what she has had to change, and the pressure that comes with being a teacher. Rosie offers a unique perspective, as she hasn't been living with her diagnosis of MS for very long, and I really appreciated her willingness to share her story while she was still coming to terms with it herself. You can find Rosie on instagram: @cynicalcoeliac And as always, you can find me over on instagram & tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today I was able to sit down with Amber Tresca from the AboutIBD podcast to talk about her diagnosis of ulcerative colitis. In this episode Amber talks us through her diagnosis of UC, the effects not having insurance had on her level of care, the decision to go through with J-pouch surgery, why she does the work that she does, and some excellent advice for anyone out there who has just been diagnosed with a chronic illness. If you want more of Amber (don't blame ya!) make sure you check out her podcast AboutIBD, her website aboutibd.com and over on social media (instagram @about_IBD, and facebook & twitter @aboutIBD) The link to find out more about IBD Moms is here: ibdmoms.org And don't be afraid to reach out - you can find me over on instagram and tiktok: @thatssochronic Thank you for listening. If you enjoyed this episode, why not share it with someone who you think would enjoy it as well! Have a great week! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That's So Chronic! Today I was able to sit down with Ben Hampton from A Gluten Free Podcast to talk about his diagnosis of coeliac disease. In this episode Ben runs us through his journey to a diagnosis, what coeliac disease even is, the somewhat silver lining of being diagnosed in the middle of a global pandemic, what he's found the most difficult, and the importance of finding a community. You can listen to Ben over on A Gluten Free Podcast wherever you listen to your pods, and connect with him over on instagram @a.gffamily and on tiktok @aglutenfreefamily And you can find me on instagram and tiktok: @thatssochronic. I love hearing from you so don't be afraid to reach out. Thanks for listening and supporting! Don't forget to press follow and leave a review. You're the best! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday friends! For today's Spotlight On episode, I'm chatting to Richard Little from Exsurgo - A company that combines neuroscience, engineering and data analysis to help treat a range of neurological conditions without the use of pharmaceuticals. In this episode we're talking about what inspired Richard to begin working in this space, his definition of chronic pain, what the latest piece of technology Axon is all about, and some advice for anyone out there with an idea to make a change in the medical industry. Don't forget to head to their website www.exsurgo.com for more information, and keep an eye on their social media (instagram, facebook, twitter and linkedin) @exsurgoneuro. The Spinoff article I mentioned at the beginning of the episode: thespinoff.co.nz/partner/25-08-2021/fighting-chronic-pain-by-controlling-brain-waves If you have a company, product, or exciting venture you would like to talk about on That's So Chronic, send me an email: hello@jessbrien.com @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

We made it! It's Tuesday! Another That's So Chronic episode! Today we are hearing from Cheyenne Welham, and we are talking about her diagnosis of hypermobile ehlers danlos syndrome (hEDS) and living life with an ostomy bag. In this episode Cheyenne explains what EDS is, the 10 year journey to her getting a diagnosis, the life changing decision to go through ileostomy surgery, the toll this has had an her mental health, and why she's dedicated to sharing her story. If you would like to find out more about Cheyenne, you can head to her instagram: @cheyber_space And you can find me on instagram and tiktok: @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome to That's So Chronic! Today I was able to catch up with Megan, to talk about her diagnosis of vulvodynia, endometriosis and adenomyosis. In this episode Megan talks us through her diagnosis story, what it was like being a part of the PIPI programme at Burwood Hospital, the importance of finding a good GP, her experience navigating the private v public aspect of the NZ health system, and everything in between! Megan shares her story so openly, and I'm grateful that I could help her share her story with all of you. If you're a new listener - Hi! Welcome! I would love you to hit that follow button (and maybe even a cheeky 5 star review?!) wherever you're listening. Love you the most! You can find That's So Chronic on instagram and tiktok: @thatssochronic See you next week! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

YAY! WE'RE BACK! Today's episode is with Logan Donnelly (@_kiwidad) and we are chatting about his diagnosis of secondary hypogonadism, and what that means for his fertility. In this episode Logan talks about his diagnosis, the decisions he made in regards to treatment, how wildly different specialists' opinions can be, why he poured so much time and energy into becoming an expert on his own condition, and what motivated him to keep trying even though a lot of people were saying it wouldn't be possible. You can find Logan on instagram: @_kiwidad You can also join the testosterone replacement New Zealand facebook group here: https://www.facebook.com/groups/730371087688492 And if you're interested in hearing more about Logan and Charlie's birth story, listen to his interview over on Kiwi Birth Tales Make sure you're following That's So Chronic on instagram and tiktok: @thatssochronic, and don't forget to press follow on Spotify or Apple pods if you're new around here! PS… Thanks for being patient while I took a little breather, it's so good to be back! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday friends! Yep, another PSA… Interviews are going on a little break while I get caught up again! Thanks for being so understanding. I hope you don't forget about me and That's So Chronic! But, this reminds me… Here's the application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Don't forget to sign up to the free monthly newsletter: thatssochronic.substack.com Aaaaand follow That's So Chronic on instagram & tiktok: @thatssochronic Miss you already! See you soon xx @thatssochronic | @jessssbrien | #thatssochronic Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That's So, a monthly series here at That's So Chronic where we get to chat a little bit deeper on a piece of content (book, film, interview, etc!) that's in our That's So Chronic world. Today… The Invisible Kingdom by Meghan O'Rourke. The Invisible Kingdom - Reimagining Chronic Illness, blends New York Times best seller Meghan O'Rourke's own experiences of searching for answers/a diagnosis, as well as interviews between health professionals, patients, researchers, and public health experts, to unpack “invisible” illnesses. In this episode we get to hear from Meghan to learn about what goes into writing a book, what the response has been, and similarities between the New Zealand and American health system (sorry, but WHY are we still using FAX MACHINES?!) This book took me on a ride, and I can't wait to share my thoughts with you all! “The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.” “Remarkable.” – The New York Times Follow Meghan O'Rourke on twitter and instagram: @meghanor, and over on facebook. You can also find out more at: meghanorourke.com Add The Invisible Kingdom to your GoodReads, and purchase your copy online, on Google Books or Kindle, or borrow from your local library. @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! As always it's such a treat to have you here. Today I am sitting down with Sarah Cahill to talk about all things chronic migraine. In this episode Sarah explains what chronic migraine is (spoiler alert… it's not *just* a headache!), what inspired her to start sharing her story on her blog www.migrainedownunder.com, how she manages migraine attacks, what treatments are out there (and whether they're available in New Zealand…) and then we get to hear all about the work she's doing starting a not-for-profit incorporate society for people living with migraine. For more information: migrainefoundation.org.nz Sarah's blog: migrainedownunder.com And don't forget to follow the Migraine Foundation Aotearoa New Zealand on Facebook and Instagram Aaaaand of course, make sure you've pressed follow wherever you're listening from and leave a 5 star review! Thank you! Love you the most! You can find me over on instagram and tiktok, I'm @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Welcome back to That's So Chronic! Today I am chatting to the CEO of AEPIOS - a free and secure online platform that helps connect people with a shared diagnosis to one another. But what people might not know is that Christina is living with fibromyalgia and chronic migraine herself, and that's what we're chatting about today. In this episode Christina talks us through getting a diagnosis, how she managed her symptoms while studying in a double PhD programme, the challenges moving states has had on her treatment plan, and of course the story of how AEPIOS came to be. If you would like to know more about AEPIOS, check out their website: www.aepios.com And if you would like to know about That's So Chronic, you can find us on Instagram and Tiktok: @thatssochronic Don't forget to press follow, and leave a 5 star review! That REALLY helps and I will love you forever for it! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Well hello! Welcome back to That's So Chronic. Today you are in for a treat as we get to know Dr Kevin J. Payne, and he talks us through his diagnosis of multiple sclerosis, or more commonly known as, MS. In this episode Dr Payne talks about the journey of finally getting a diagnosis (and a name!) for his symptoms, how he manages these symptoms, what has inspired his work at yourlifelivedwell.co (including writing his book), he teaches me some new information about stress, and then we get to the big one… How and why he became a pro skydiver. …I KNOW! I told you you were in for a treat! For more information about Dr Payne and the work he does, check out yourlifelivedwell.co, find him on instagram at @yourllwell and @drkjpayne, or listen to his podcast (just search “Your Life Lived Well”) And if you're after that embarrassing bungy jump video… you'll have to come and find me on Instagram or Tiktok, I'm @thatssochronic As always, it's a pleasure to be in your ears! See you next week! @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Hello favourite people! Welcome to That's So Chronic! Today we're chatting about irritable bowel syndrome (IBS), polycystic ovarian syndrome (PCOS) and premenstrual dysphoric disorder (PMDD) with Emma Maguire. In this episode Emma shares the road to getting these diagnoses, how sometimes implementing an immediate management strategy like a FODMAP diet is just a little bit unsustainable, what it's like living, performing and working with multiple chronic illnesses, and some advice for pre diagnosis Emma. Find Emma on instagram @em_ma_maguire and on twitter @eph__em__era If you have any thoughts or feels don't be afraid to reach out! I'm @thatssochronic on instagram and tiktok! (Also, if you made it to the end and did that special favour, thank you SO much!!!) @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

It's the final Tuesday of the month which means a That's So: episode! Today I'm chatting with Miranda Allen and we are talking about the award winning documentary Unrest and all things myalgic encephalomyelitis (ME/CFS) Unrest was created by Jennifer Brae who is an independent documentary filmmaker based in LA. Jennifer was studying towards her PhD at Harvard, when suddenly a mysterious illness left her bedridden. She decided to turn the camera on herself, and document the process. What unfolded over the next few years was an eventual diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome. Stream Unrest now: https://unrest.film or on Netflix And as promised, here is Miranda's appearance on Penn & Teller's Fool Us: https://www.youtube.com/watch?v=CfGGIQbsrrE ... I TOLD YOU you had to see it to believe it!! Let's keep the convo going over on Instagram and Tiktok, I'm @thatssochronic I actually love making these That's So episodes! So thank you for listening! @thatssochronic | @jessssbrien | #ThatsSoChronic If you have something that you would like discussed on an upcoming That's So: episode, I would love to hear from you! Drop me an email (hello@jessbrien.com), a DM on instagram, or fill out this Google form: https://forms.gle/4RZbCiHARjV5gmcWA Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Happy Tuesday! Welcome back to That's So Chronic! Today's episode is with Rosie Roulette, and we are chatting about hypermobile ehlers danlos syndrome (hEDS), fibromyalgia, suspected postural orthostatic tachycardia syndrome (POTS), a little bit of endometriosis, and the moment when Rosie discovered they had a rare form of brain tumor (colloid cyst). In this episode Rosie talks about how these diagnoses can to be, as well as how they have shaped their creative practice, what inspires them to be so open about chronic illness and disability, and whether that surgeon was right… Would Rosie ever be a dancer again? You can find Rosie on instagram and facebook: @rosieroulette As well as their chronic illness cabaret: @chroniccabaret And of course, you can find me on instagram and tiktok: @thatssochronic Rosie was the year above me at drama school and being able to chat to them now about their journey was a great check in for me to remember that we really have no idea what's going on behind the scenes for people, even people that we might see every single day. PS there are some weird tech issues throughout this episode, so it's not your headphones breaking! Sorry! Xoxo @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Hello favourite people! Welcome back to That's So Chronic! Today we are heading all the way over to New York and hearing from Eh-den Perlove! Eh-den is living with a diagnosis of the rare autoimmune condition scleroderma, which affects the connective tissues in the body, so aka, almost everything. In this episode Eh-den takes us through the journey of actually getting a diagnosis, how scleroderma affects her and how she has had to accommodate, she also gives us a run down of the 12 specialists (!!!) she sees regularly, and to be honest she just really gives us an insight into what it's like living with a chronic illness. As scleroderma is a rare condition, if you're listening and you too have scleroderma and you feel comfortable reaching out, we would love to hear from you! For more info on SheNYC Arts: shenycarts.org And for more info on this podcast you can find That's So Chronic on instagram & tiktok: @thatssochronic Aaaaaaand click here to share your story!! https://forms.gle/csebLkwfwAjiLApK9 @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.