Podcasts about public policy conference

When you look at a list of the typical symptoms associated with perimenopause, you'd think you were looking at a list of MS symptoms. And, for women living with MS, that's where the confusion begins. With an estimated 30% of the current MS population now in peri- or post-menopause, researchers are beginning to focus on how menopause and MS interact and the best ways to treat symptoms.   Dr. Riley Bove, a neurologist and founding director of the Sex and Gender-Enriched (SAGE) Neurology Program at the University of California San Francisco, joins me to talk about the things you need to know when you're managing MS while you're managing menopause. We'll also tell you about this year's winner of the John Dystel Prize for Multiple Sclerosis Research. We'll share a deeply personal poem written by a friend who's been living with MS since 1988. And we'll tell you about the results of a study that should be a reminder of the importance of starting disease-modifying therapy and the value of early intervention. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're in Washington, D.C., at the National MS Society's Public Policy Conference  :22 Dr. Amit-Bar-Or is the winner of the 2025 John Dystel Prize for Multiple Sclerosis Research  2:26 Magician Wayne Dobson's poem  7:07 STUDY: Cognitive impairment is prevalent among people living with untreated MS  10:23 Dr. Riley Bove talks about the things you need to know when you're managing MS while you're managing perimenopause and menopause  14:18 Share this episode  32:56 Have you downloaded the free RealTalk MS app?  33:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/395 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org RealTalk MS 2025 ACTRIMS Forum YouTube Playlist https://www.youtube.com/playlist?list=PLATxgj1uHpxNEoc2-9_7-Wzmr96B7wt2C Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 395 Guests: Dr. Riley Bove Privacy Policy

Next week, a couple of hundred MS activists will gather in Washington, D.C. for the National MS Society's Public Policy Conference. As we're seeing devastating cuts in funding for MS research, layoffs in every major governmental agency that impacts our healthcare, including the National Institutes of Health, the FDA, CDC, Health and Human Services, and the Department of Veterans Affairs, and even Medicaid funding is at serious risk, advocacy has never been more important than it is right now.    I'm devoting this entire episode to a conversation with Steffany Stern, the National MS Society's Vice President for Advocacy, who joins me to assess the current legislative climate in Washington, D.C., and give us a preview of the issues that will take center stage at this year's Public Policy Conference.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Is there anything more urgent and important to discuss than advocacy?  :22 Steffany Stern discusses the current legislative climate in our nation's capitol, and gives us a sneak peek at next week's National MS Society Public Policy Conference  2:16 Share this episode  25:40 Have you downloaded the free RealTalk MS app?  26:08 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/394 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: msactivist@nmss.org RealTalk MS 2025 ACTRIMS Forum YouTube Playlist https://www.youtube.com/playlist?list=PLATxgj1uHpxNEoc2-9_7-Wzmr96B7wt2C Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 394 Guests: Steffany Stern Privacy Policy

We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study. Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them. We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference.  It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS. And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar  :22 This Week: The patient perspective on participating in an MS research study  1:38 Live! From the Natinal MS Society's Public Policy Conference  2:28 People with MS weign in on the impact of several ECTRIMS presentations  10:17 Catch the video replay of the International Progressive MS Alliance webcast  11:35 Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study   12:11 Share this episode  27:18 Have you downloaded the free RealTalk MS app?  27:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/342 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER: ACTRIMS Post-Forum Patient-Centered Webinar https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS https://youtu.be/eWoZLF4bZmo VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study https://www.youtube.com/watch?v=UtGtCnNkYOY VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions https://www.youtube.com/watch?v=J83jlqMbsZo VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience https://www.youtube.com/watch?v=_fRLW69Xc1A VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey https://www.youtube.com/watch?v=oZDdp8JumFg VIDEO: International Progressive MS Alliance Webcast Replay: Emerging Treatments for Progressive MS https://www.youtube.com/watch?v=W4hxtl38MBQ The TEAAMS Study https://projectteaams.ahs.uic.edu Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 342 Guests: Chiquita Shepard-Knight and Earl Sneed Privacy Policy

You've probably heard me say more than once that the things people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials. That's why advocacy is so critically important. The National MS Society's Public Policy Conference gets underway on March 4th, and joining me with a preview of this year's conference is the MS Society's Vice-President of Advocacy, Steffany Stern. We're also taking a deep dive into a paper just published by a group of MS experts detailing the current status of progressive MS research, identifying lessons learned along the way, and calling out the remaining challenges to better understanding MS progression.  We're sharing the details of how and where to register for this week's global webcast being hosted by the International Progressive MS Alliance. And I'm remembering my wife, Jeanne, on the fourth anniversary of her passing. We have a lot to talk about! Are you ready for RealTalk MS??! Jeanne's Story  :22 This Week: Inside MS advocacy and this year's Public Policy Conference  8:36 Experts publish an update on progressive MS research, identify lessons learned, and call out the  remaining challenges  9:35 The International Progressive MS Alliance hosts a global webcast this Thursday  17:22 MS Society's Vice-President of Advocacy, Steffany Stern, gives us a peek at this year's Public Policy Conference   18:54 Share this episode  31:51 Have you downloaded the free RealTalk MS app?  32:10 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/338 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society: Become an MS Activist https://nationalmssociety.org/advocacy PAPER: Clinical Trials for Progressive Multiple Sclerosis: Progress, New Lessons Learned, and Remaining Challenges https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(24)00027-9/abstract RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee  https://realtalkms.com/280 RealTalk MS Episode 193: Managing the Emotional Fallout of the Pandemic with Dr. Gayle Lewis https://realtalkms.com/193 WEBCAST: New Treatments for Progressive MS: Recent Advances and Promising Research https://www.msif.org/treatments-webcast/ Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 338 Guest: Steffany Stern Privacy Policy

Last week in San Diego, the Americas Committee for Treatment and Research in Multiple Sclerosis convened their annual meeting, the ACTRIMS Forum. One of the highlights of this meeting is the presentation of the Barancik Prize, awarded in recognition of exceptional innovation in MS research. This year's winner of the Barancik Prize is Dr. Ruth Ann Marrie, a clinician scientist at the University of Manitoba. The Barancik Prize is administered by the National MS Society, and this year's award recognizes Dr. Marrie's landmark discoveries that deepen our understanding of how and when MS evolves.  During the ACTRIMS Forum, Dr. Marrie joined me to discuss her groundbreaking research and the impact it's had on MS care. If you're a regular listener, you've probably heard me say that the things that people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials at the state and federal level.  That's why advocacy is a high priority for people affected by MS. The National MS Society's Public Policy Conference takes place next week, March 6-8, in Washington, D.C. Joining me to discuss how advocacy makes a real difference in influencing pending legislation, while giving us a preview of what we can expect to see and hear at this year's conference, is the National MS Society's Executive Vice-President for Advocacy and Healthcare Access, Bari Talente. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're back from the ACTRIMS Forum and a conversation with this year's winner of the Barancik Prize for innovation in MS research  :22 Dr. Ruth Ann Marrie discusses some of her groundbreaking research and its impact on MS care  1:57 We are one week away from the National MS Society's Public Policy Conference in Washington, D.C.  17:18 Bari Talente, the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, discusses the importance of advocacy, while sharing a preview of the legislative issues that MS activists will be advocating for next week on Capitol Hill    18:18 Share this episode  32:25 Have you downloaded the free RealTalk MS app?  32:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/287 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 287 Guests: Dr. Ruth Ann Marrie and Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

If you're living with MS, there's a good chance that, at some point, you're going to deal with depression, cognitive issues, or both of these common MS symptoms. We're taking a deep dive into how these symptoms can impact your everyday life at home and at work with the author of Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis, Dr. Anthony Feinstein. We're also highlighting some of the MS research that was presented two weeks ago at the ACTRIMS Forum, the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis.  You'll hear how artificial intelligence is being used to predict how someone will respond to different disease-modifying therapies. You'll learn about the efficacy of stem cell therapy in treating aggressive MS. And we'll share the results of a research project designed to calculate the economic burden of MS in the United States. We have a lot to talk about! Are you ready for RealTalk MS??! Thanks for participating in the Public Policy Conference!  :22 Why we talk about depression and cognitive issues on this podcast  :47 AI helps predict treatment response in primary progressive MS  3:02 Stem cell therapy shows benefits in treating aggressive MS  6:28 Study measures the economic burden of MS  8:32 Dr. Anthony Feinstein discusses how mind, mood, and memory impact MS  12:31 Share this episode  28:34 Download the RealTalk MS app for your iOS or Android device   28:56 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/236 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance "Mind, Mood, and Memory: The Neurobehavioral Consequences of Multiple Sclerosis" on Amazon.com  https://www.amazon.com/Mind-Mood-Memory-Neurobehavioral-Consequences-ebook-dp-B099NXZMMS/dp/B099NXZMMS/ref=mt_other STUDY: A Comprehensive Assessment of the Total Economic Burden of Multiple Sclerosis in the United States https://ectrims2021.abstractserver.com/program/#/details/presentations/557 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 236 Guests: Dr. Anthony Feinstein Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

I've always believed that the things people affected by MS want most -- things like access to quality healthcare, affordable prescription medications, and funding for MS research -- are all functions of public policy. The people who decide whether we get those things are our elected officials at both the state and federal level. That's why advocacy is a priority. The National MS Society's Public Policy Conference is taking place on March 7th. Joining me with a preview of what we can expect to see and hear at this year's conference, as well as how you can register to participate, is the MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente. Last week, the America's Committee for Treatment and Research in Multiple Sclerosis convened the 2022 ACTRIMS Forum, their annual research conference. One of the highlights of the ACTRIMS Forum is the presentation of the Barancik Prize for Innovation in MS Research. This year's recipient of the Baranick Prize is Dr. Amit Bar-Or, who was recognized for his pioneering work in uncovering how the immune system drives MS and his cutting-edge research focusing on precision medicine to achieve long-term remission and, ultimately, prevent MS progression. Dr. Bar-Or also joins me on this episode of the podcast to talk about his innovative work aimed at improving outcomes for people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Why talking about MS advocacy is so important  :22 Greetings from the 2022 ACTRIMS Forum  1:47 My conversation with Dr. Amit Bar-Or  3:54 We're just days away from the PPC  12:43 Bari Talente discusses the value of MS advocacy and the legislative issues that we'll be talking about at the Public Policy Conference  13:19 Share this episode  27:25 Download the RealTalk MS app for your iOS or Android device   27:49 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/235 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Register for the MS Society's Public Policy Conference Text "PPC" to 52886 or visit https://nmss.6connex.com/event/PPC/login Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 235 Guests: Bari Talente and Dr. Amit Bar-Or Tags: MS, MultipleSclerosis, MSResearch, MSSociety, ACTRIMS2022, RealTalkMS Privacy Policy

Research shows that about 50% of the people living with MS will develop another chronic health condition, or comorbidity, in their lifetime. Whether it's high blood pressure, diabetes, or something else, living with comorbid conditions adds extra challenges to living with MS. Joining me to discuss how comorbidities affect people living with MS and what you can do to avoid developing some of those comorbidities is one of the leading experts on the subject, Dr. Ruth Ann Marrie.  We're also talking about why a Phase 2 clinical trial for a prospective MS disease-modifying therapy got a do-over. We'll share some very encouraging news about how the enrollment for a new study turned out. We'll also share results from a study in the U.K. that remind us why everyone living with MS needs to be vaccinated and boosted. We'll give you the registration info for this year's series of First Descents (no cost!) outdoor adventures for young adults living with MS. And we'll tell you how to register for the National MS Society's virtual 2022 Public Policy Conference. We have a lot to talk about! Are you ready for RealTalk MS??! GeNeuro completes Phase 2 clinical trial for Temelimab -- again!  1:29 The CONNECT study connects with all the right participants  3:56 U.K. study results provide one more reason for everyone with MS to be vaccinated  5:57 Registration is now open for First Descents outdoor adventures for young adults living with MS  7:56 MS Society opens registration for this year's virtual Public Policy Conference  9:32 Dr. Ruth Ann Marrie discusses comorbidities and MS  11:56 Share this episode  28:10 Download the RealTalk MS app for your iOS or Android device   28:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/232 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS National MS Society Public Policy Conference Registration https://nmss.6connex.com/event/PPC/login STUDY: Recovery from COVID-19 in Multiple Sclerosis: A Prospective and Longitudinal Cohort Study of the United Kingdom Multiple Sclerosis Register https://nn.neurology.org/content/9/1/e1118 First Descents Program Information https://firstdescents.org/programs/ms-programs/ Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 232 Guests: Dr. Ruth Ann Marrie Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

We're less than one week away from the National MS Society's Public Policy Conference. This year, the Public Policy Conference is virtual, which means that you have an opportunity to attend and learn how you can advocate for change on important policy issues affecting the MS community.       Joining me to talk about the Public Policy Conference and the issues that MS Activists will be discussing with our congressional representatives in the days following the conference is the Executive Vice-President of Advocacy and Healthcare Access for the National MS Society, Bari Talente. This is Episode #185 of RealTalk MS, which means our 200th episode will be here before you know it. We're inviting you to help us figure out how to celebrate that milestone! Developing breakthrough treatments for progressive MS? We'll share the info about a video replay of an International Progressive MS Alliance global webcast that you won't want to miss. We're also talking with a biopharmaceutical company that's conducting clinical trials to investigate a solid gold nanomedicine treatment for remyelination. And we'll tell you about a study that shows how an adaptive video game that you can play on your tablet provides a reliable measure of cognitive function for people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Episode 200 of RealTalk MS is coming...what should we do???  :22 Thank you, Dave Bexfield and ActiveMSers!  1:14 You can support the RealTalk MS RealWalkers WalkMS Team   3:41 The Progressive MS Alliance Webcast Replay  6:45 Nanotechnology to solve remyelination?  8:20 My interview with Clene Nanomedicine's Chief Medical Officer, Dr. Robert Glanzman  9:45 Can video game technology make MS cognitive assessment easier, faster, and more accessible?  23:44 My interview with the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, Bari Talente  26:46 Share this episode  38:11 Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  38:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/185 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) National MS Society COVID-19 Vaccine Guidance for People Living with MS National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines Register for the 2021 National MS Society Public Policy Conference ActiveMSers Webcast Video Replay: Accelerating Breakthrough Treatments in Progressive MS STUDY: Application of an Adaptive, Digital, Game-Based Approach for Cognitive Assessment in Multiple Sclerosis: Observational Study   Support the WalkMS RealTalk MS RealWalkers Team Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 185 Guests: Dr. Robert Glanzman, Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, PPC2021, Nanotechnology, RealTalkMS Privacy Policy

We're just a week away from the National MS Society's Public Policy Conference in Washington, D.C. And my guest is Diane Kramer, an MS Activist from State College, Pennsylvania, who will be attending the Public Policy Conference for the first time.   Diane has experienced some of the same obstacles and frustrations that so many people living with MS experience -- insurance companies preventing her from getting the disease-modifying therapy that her neurologist prescribed, having the high cost of her MS medication force her to make nearly impossible financial choices, even skipping treatment. But whether she's knocking on the doors of neurologists' offices in her area so that she can connect them with resources from the MS Society, or starting an MS support group in her community when she found there wasn't one, Diane is a force to be reckoned with.    Jon also has some difficult news to share. And we'll tell you how you can support Jon in this year's Walk MS.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Greetings from the ACTRIMS Forum   :22 Some Difficult News  :58 You Can Support Jon in WALK MS  2:36 My Interview with Diane Kramer  3:58 Share This Episode  26:37 Reminder...Please Donate to Walk MS  27:02 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/130 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 130 Hosted By: Jon Strum Guests: Diane Kramer Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, MSPPC20, RealTalkMS Privacy Policy

In just two weeks, the National MS Society is hosting its annual Public Policy Conference in Washington, D.C. The centerpiece of that conference is our Day On The Hill when 300 MS Activists meet with our Congressional Representatives and Senators to discuss the legislative issues that are most important to people affected by MS. My guest is Bari Talente, the Executive Vice President of Advocacy for the National MS Society and we're talking all about this year's Public Policy Conference and the value and importance of advocacy.     We'll also let you know how and where to sign up for Discovering Life-Changing Treatments for Progressive MS, the global webcast from the International Progressive MS Alliance. (You have to hurry! It's happening in 2 days!)    You'll hear about an encouraging study of the effectiveness of stem cell therapy for some people living with secondary progressive MS.  We're also talking about why you might want to support Jon in this year's Walk MS. And you'll learn about a non-invasive breakthrough technology that provides a detailed assessment of the status of MS progression and the effectiveness of disease-modifying therapy...in 10 seconds.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Sharing Some Crazy Statistics   :44 We're Just 2 Weeks Away From the Public Policy Conference  2:27 Register for the Global Webcast: Discovering Life-Changing Treatments for Progressive MS   3:39 You Can Support Jon in WALK MS  4:54 HSCT Shows Benefits in Some People with Secondary Progressive MS  6:23 New Eye-Tracking Tech Uses AI to Monitor MS  9:09 My Interview with Bari Talente  11:54 Share This Episode  26:03 Reminder...Please Donate to Walk MS  26:28 Download the RealTalk MS App  27:03 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/129 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Register for the International Progressive MS Alliance Global Webcast: Discovering Life-Changing Treatments for Progressive MS Low-Intensity Lympho-Ablative Regimen Followed by Autologous Hematopoietic Stem Cell Transplantation in Severe Forms of Multiple Sclerosis: A MRI-Based Clinical Study BEAT-MS Clinical Trial C. Light Technologies Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 129 Hosted By: Jon Strum Guests: Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS Privacy Policy

To mark the first anniversary of cannabis legalization, Canada 2020 hosted a number of cannabis industry moguls at the Canadian Grown Conference in Toronto. During the two day event, Canada 2020's Alex Paterson and Jay Rosenthal of The Business of Cannabis, sat down with several people from the industry - from policymakers and researchers to cannabis business owners. In this episode, you'll hear about the challenges of legalization in year one, hopes for the coming year, and what it will take for Canada to maintain its first-mover advantage in the cannabis industry. Voices include Hon. A. Anne McLellan, co-chair of the Government of Canada's Task Force on Cannabis Legalization and Regulation, Chuck Rifici, Chairman at Auxly and CEO at Nesta, Ruth Ross, Professor and Chair of the Faculty of Medicine at the University of Toronto, and many more.

In this episode, we chat about our trip to Washington D.C. for the National MS Society's annual Public Policy Conference. We share about our experience, recognize a few fellow activists as well as elected officials and of course, information you need to know about Capitol Hill.

In this episode, we discuss the National MS Society’s annual Public Policy Conference in Washington, D.C. from March 3 - 5. We will be joining over 300 activists on Capitol Hill on Tuesday, March 5. We also chat about the policies that we will be discussing with our legislators not only on Hill Day, but also throughout the year. Visit the NMSS’s Current Advocacy Issues page to learn more about each issue. Interested in becoming an MS activist, learn about the different options available through the NMSS Become an MS Activist page. To learn more about PCORI, visit their multiple sclerosis page.

Over the past year, we've seen our access to affordable, quality healthcare come under unprecedented attack. We've seen a federal judge declare the Affordable Care Act to be unconstitutional. And we continue to see our access to affordable prescription medications -- the medications that have been shown to delay the progression of MS and extend the quality of life for everyone living with MS -- that access remains threatened by the constant skyrocketing cost of those medications. That's why advocating on behalf of our own interests is so important to the MS community.     My guest this week is Bari Talente, the Executive Vice-President of Advocacy for the National Multiple Sclerosis Society. We're talking about the National MS Society's upcoming Public Policy Conference, the legislative issues that affect people living with MS in the United States, and the importance of MS advocacy.   We have a lot to talk about! Are you ready for RealTalk MS?!   ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.com Phone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review National Multiple Sclerosis Society: Advocate For Change ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 78 Hosted By: Jon Strum Guest: Bari Talente Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, RealTalkMS

The following podcast features a lecture delivered Robert Fitzgerald AM at Social Policy Connections ‘Churches & Public Policy Conference, held at the Abbotsford Convent on July 19th 2011. Robert Fitzgerald is a full-time Commissioner with the Australian Government’s Productivity Commission, where he leads the current inquiry into Caring for Older Australians and the commissioned study examining the workforce of the Early Childhood Development Sector. He is the convenor of the Indigenous Disadvantage Working Group of the Steering Committee for the Review of Government Service Provision which produces the Overcoming Indigenous Disadvantage: Key Indicators report.

Dr. Maria Torres and Professor Philip Grauberry of the UMass Boston Gaston Institute