Podcasts about ms society

Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS." I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee  :22 Share this episode  28:32 Have you downloaded the free RealTalk MS app?  28:52 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/361 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 361 Guest: Dr. Tim Coetzee Privacy Policy

Pete is joined by Ben and Jason to preview upcoming Star Wars fan event Dorchester Strikes Back (DSB): Saturday 3rd August will see Dorchester Strikes Back arrive at Brewery Square, a fun family day for Star Wars fans. Hosted by the Jedi Archives and The Star Bores Podcast the day will encourage costumers and fans to enjoy the day in this awesome location. The 501st UK Garrison, Rebel Legion and Mandalorian Mercs will be on hand to keep everyone in check. On the stage Star Bores very own Jason “Hondo” Ling will be interviewing guests including the Guinness World Records holder Jez Allinson aka The Running Storm Trooper. Jez will be telling us about his time raising money for charity and how it all happened. As well as chats there will be an opportunity to win prizes for best costumes. The event has come about after Jason and Ben, proprietor of the Jedi Archives discussed that there are very few Star Wars events in the South, With the amazing surroundings of Brewery Square it was decided to put the call out. The aim is for the event to grow and hopefully occur annually with this year the charities being supported are The MS Society and Children's services at Dorset County Hospital Charity. Throughout the day thee will be lots of fun for all the family  and chances to meet characters from the world of Star Wars. For further information contact Jason Ling on 07944995029 or e-mail dsb@jediarchives.store Follow us: X (twitter) https://twitter.com/BoresStar TikTok http://tiktok.com/@starborespodcast Instagram https://www.instagram.com/starborespodcast/ YouTube www.youtube.com/channel/UCLmtO6_i6WBBlVIm2h0V-qw FaceBook https://www.facebook.com/StarBoresPodcast

On this Episode... Ben Mills, Sharon Burriola and Charlotte Wise, the organizers of the upcoming "Benefit For MS Society" were in the CobraCast Studio for one helluva an episode to say the least... The benefit is on Saturday August 10th at Hanovers in Plugerville Texas... To say this was a fun episode would be an understatement, we had a blast and hopefully we can all get together to do it again soon... For more info on the "Benefit for the MS Society", please go to https://www.facebook.com/events/364676152996279 Much Love, Enjoy ;) Recorded on July 15th, 2024 Sponsored By The #1 Distillery in Austin, Texas Iron Wolf Ranch and Distillery https://ironwolfranch.com/

In this Brain & Life podcast episode Dr. Daniel Correa is joined by Phil Keoghan, host of The Amazing Race. Phil shares his love for movement and adventure and how he has used that passion to raise funds and awareness for Multiple Sclerosis (MS). Dr. Correa is then joined by Dr. Jessica Stulc, neurologist who specializes in MS. She discusses the importance of exercise for all, especially patients with MS, and the impact advocacy work like Phil Keoghan's has.   Additional Resources Phil Keoghan Home Exercise Tips for People with Multiple Sclerosis Hiking the Appalachian Trail for Multiple Sclerosis Multiple Sclerosis 101: What Patients Need to Know   Other Brain & Life Podcast Episodes on This Topic Cheryl Hile is Running Around the World with Multiple Sclerosis Voices from the Multiple Sclerosis Community Colors of Multiple Sclerosis with Artist Lindsey Holcomb   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media:   Guest: Phil Keoghan @philiminator Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this episode, I speak with Joe Ramsden, Two years ago, on the very day of this year's London Marathon, Joe found himself hospitalized for the first time amidst a series of visits, gripped by the debilitating symptoms of MS. Struggling to walk or see, and plagued by relentless bouts of vomiting upon attempting to open his eyes, Joe's condition left medical professionals perplexed. After a harrowing ordeal, he was finally diagnosed with a severe form of Multiple Sclerosis (MS). Joe suffered two relapses but Joe made his wellbeing and lifestyle balance a priority. He made a recovery and decided to run the London Marathon with a 360-degree camera strapped to him to raise money for two fantastic charities, The MS Society and Mind. All links to follow Joe, donate, and show him your support on social media can be found via the link below. linktr.ee/readysteady_joe

March is National Multiple Sclerosis Awareness Month and I had the chance to chat with the President of the Greater DC - MD Chapter of the  National MS Society, Chartese Berry, as well as local resident Bernie Lucas, who has been dealing with an MS diagnosis for 9 years now.  nationalmssociety.org

Register for the Women's History Month Panel -- https://docs.google.com/forms/d/e/1FAIpQLScYbuAzlEglmBD5spYMJQ8zxI-J6JXGmzs8RbQVaS9pcg6uHA/viewform?fbclid=IwAR1-cKRYMLnWTSZ4q3HlrBsIP5V4xQvy2QcGmWrBOyOzvKmZguB-JH_tg3Y 

Janice Dean, Fox News Senior Meteorologist, host of the Janice Dean Podcast, and NYT Bestselling Author of I Am the Storm, joined the Guy Benson Show today to discuss an update on a previously reported story of a 90-year-old being fired from a volunteer gig with the MS Society for asking a question about pronouns. The MS Society has since apologized... but Dean said they didn't go far enough in their backtracking. Learn more about your ad choices. Visit megaphone.fm/adchoices

Hour 1: Illinois Congressman Mike Bost joins Mark Reardon to discuss the latest on Ukraine and Israel funding, the Southern Border, and his recent endorsements. Then, Missouri State Senator Mary Elizabeth Coleman joins Mark Reardon to discuss the latest on the Missouri Initiative Petition reform bills moving forward in both chambers.

Steven Gobbledegook is an electric train wreck. Research on DEI initiatives shock no one. FloridaCop shoots out an acorn. The details about CBC's failed lawsuit against the conservatives are finally released. The MS Society wrecks itself.This week's sponsor is AMC Electrical. They are hiring in Rocky Mountain House. Go to amcelectrical.ca

A 90-year-old woman who had been working at the National MS Society for 60 years has been fired for not using proper pronouns. 

Hour 2 - Jamie was supposed to meet up with Chewy for a drink yesterday. However they were both waiting on each other to hit the other up. Who should've made the first move? A 90 year old woman who had been working at the National MS Society for 60 years was fired for not using proper pronouns. Frog turns 6 this weekend! There is a new Bob Marley coming out this weekend. Miley Cyrus might replace Katy Perry on American Idol. 

East Coast Host Gary K4AAQ had volunteered to do radio at a local Christmas parade. As he was lacing up his sneakers, about to leave home, wife Cyndi KD4ACW called to dispatch him to the hospital where mom had been taken with chest pains. Gary had planned to do some video and interviews at the event for today's show. Instead Gary and West Coast Host David W0DHG talk about how to weigh conflicting obligations to family and community (and Podcasting). (Mom didn't have a heart issue, but it was still something serious. She's OK now)David also had comments on how his favorite event, the Baker to Vegas charity run, has decided to replace ham radio with communications from Verizon (while still urging them to volunteer for other jobs). There's more to that story, and it's not isolated to that event. The MS Society is using ham radio less for smaller, more urban walks. And in the Emcomm arena, Auxcom leaders have been saying that hams should be cross-trained for communication on other systems. That's something to dig into on a future show.Meanwhile, we noted that the new FCC rule dropping the data-rate restriction of ‘300 baud' on the HF bands, replacing it with a 2.8 kHz bandwidth limit, has finally been published in the Federal Register, and will take effect on January 8, 2024. So not quite the Christmas present we expected, but Happy New Year! And a FNPRM (Further Notice of Proposed Rulemaking) clock is ticking for comments on how to handle data rate/bandwidth of the VLF, VHF and UHF bands. That spectrum is not covered by the new HF data bandwidth rule. Finally, no news on the Netflix Watch. HRN Episode 506, How Can We Podcast with All This Light?, is still dark on YouTube due to Netflix's copyright complaint. Check Episode 506 for details, and listen to the audio version while the video is down.

Remaining curious is essential, especially when seeking answers to improve our health. Asking questions is necessary, but challenging when we don't know what questions to ask. Empowering ourselves with the knowledge and strength required to tackle our daily struggles with chronic illness. Fitness Coach Marnie Bothmer, who thrives with MS, knows that curiosity is necessary to open her mind to other ways of viewing the world. Let's chat it up with Marnie! marniebothmer@gmail.com Instagram: @mbstrength4life www.marniebothmer.com https://thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast  

Alexis Martinez first appeared on TOSP in Episode 71. She shared what it was like for her to manage her own MS and care for her mother who has early onset Alzheimers. This time we discussed her new job and how taking on something new has impacted her daily life and self-worth. Now that I've gotten to meet Alexis in person, it no longer felt like an interview. It was more like catching up with my friend.    Instagram: @itsallinmyhead Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com  

2023 marks 30 years since the very first MS disease-modifying therapy received FDA approval. To say that changed everything would be an understatement. Two of the top MS experts in the world have published a reflection, looking back at how MS research and treatment has progressed over the past 30 years and looking ahead at the challenges that remain in solving the riddle of MS. Joining me this week are the authors of that reflection, Dr. Fred Lublin and Dr. Stephen Krieger. Dr. Lublin participated in the development of the very first disease-modifying therapy approved for treating MS and, since that time, he has been involved in the development of nearly all of the DMTs available today.  Dr. Krieger has developed a game-changing theory that MS is a single disease that evolves along a continuum, rather than the four separate categories that neurologists have used to describe MS for the past couple of decades. We'll also introduce you to The Community Review of MS Research Committee. We'll share what very well may be the single most important development to come out of the Pathways To Cures Global Summit. We'll tell you about the outcome of a study that may point to a potential MS treatment for women that has also been shown to trigger myelin repair. We'll explain the method for accurately measuring remyelination that was just recently confirmed by a UCSF research team. And we'll tell you where you can catch the video replay of the webcast that was live-streamed from last month's International Progressive MS Alliance Scientific Congress. We have a lot to talk about! Are you ready for RealTalk MS??! I'm back from the Community Review of MS Research Committee meeting  :22 This Week: 30 Years Later....looking back (and ahead!)  4:08 The first-ever Global Research Strategy Framework has been announced   5:26 Don't miss the video replay of the webcast that was live streamed from last month's International Progressive MS Alliance Scientific Congress  2:55 A study shows that the hormone estriol reduces MS severity and promotes myelin repair   9:54 A UCSF research team has developed a method of accurately measuring remyelination   13:16 Dr. Fred Lublin and Dr. Stephen Krieger review the progress that's been made since the approval of the first MS disease-modifying therapy and they look ahead at the challenges that remain in solving the riddle of MS   17:23 Share this episode  30:08 Have you downloaded the free RealTalk MS app???  30:27 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/305 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 297: The Pathways To Cures Global Summit (Part 1) https://realtalkms.com/297 RealTalk MS Episode 298: The Pathways To Cures Global Summit (Part 2) https://realtalkms.com/298 Video Replay: Ending MS Progression: Research Advances That Could Lead to Breakthrough Treatment https://www.youtube.com/watch?v=p9OQ_hvVpfA STUDY: Neuroprotection in Cerebral Cortex Induced by the Pregnancy Hormone Estriol https://sciencedirect.com/science/article/pii/S0023683723001320?via%3Dihub RealTalk MS Episode 189: Research on Sex Differences in MS Leads to Potential Treatment Options with Dr. Rhonda Voskuhl https://realtalkms.com/189 STUDY: MWF of the Corpus Callosum Is a Robust Measure of Remyelination: Results from the ReBUILD Trial https://pnas.org/doi/10.1073/pnas.2217635120 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 305 Guests: Dr. Fred Lublin and Dr. Stephen Krieger Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Just a couple of weeks ago, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including people affected by progressive MS, to report and review the progress being made in developing new, effective treatments for progressive MS. In Part 2 of our coverage, we're taking you back inside this Scientific Congress, where you'll hear from some of the top MS researchers in the world who participated in this game-changing event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: More from the International Progressive MS Alliance Scientific Congress  :22 Professor Xavier Montalban shares his perspective on the role of the Alliance and the presentations that we saw and heard on Day One of the Scientific Congress  1:32 Professor David Leppert explains how a biomarker for MS progression will impact MS research and MS treatment  8:04 Dr. Anne Cross discusses some of the presentations that we saw and heard on Day One of the Scientific Congress   16:20 Philanthropist Monia Joblin explains why the work of the International Progressive MS Alliance is important to her and to other families affected by progressive MS  26:13 Share this episode  39:19 Have you downloaded the free RealTalk MS app???  39:40 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/304 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The International Progressive MS Alliance https://progressivemsalliance.org RealTalk MS Episode 303: The International Progressive MS Alliance Scientific Congress (Part 1) https://realtalkms.com/303 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 304 Guests: Prof. Xavier Montalban, Prof. David Leppert, Dr. Anne Cross, and Monia Joblin Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Last week, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including people affected by progressive MS, to report and review the progress being made in developing new, effective treatments for progressive MS. In Part 1 of our coverage, we're taking you inside this Scientific Congress, where you'll hear from some of the top MS researchers in the world who participated in this game-changing event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The International Progressive MS Alliance Scientific Congress  :22 Dr. Robert Fox shares an overview of the Alliance and a preview of this Scientific Congress  3:17 Vanessa Fanning explains the role of the Alliance People Affected by MS Engagement Coordination Team  16:49 Professor Tanja Kuhlmann discusses the critical importance of identifying the mechanisms that drive MS progression  26:01 Remyelination is a natural process. Professor Robin Franklin explains why it stops working for people with MS  35:24 Professor Olga Ciccarelli tells us where we are in understanding remyelination and shares some of her cutting-edge research  41:48 Share this episode  53:01 Please remember to take our listener survey!  53:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/303 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The International Progressive MS Alliance https://progressivemsalliance.org RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279 RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee  https://realtalkms.com/280 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 280 Guests: Dr. Robert Fox, Vanessa Fanning, Prof. Tanja Kuhlmann, Prof. Robin Franklin, and Prof. Olga Ciccarelli Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

When you're living with MS, air travel can sometimes get complicated. We're heading into the summer vacation season, so the timing couldn't be better to talk with Dr. Scott Crawford. Dr. Crawford is a neuropsychologist who lives with MS and has extensive experience as a passenger on commercial airlines. Dr. Crawford is also an MS Activist and he's joining me to walk us through how to de-stress airline travel and to explain your rights as an airline passenger if you're living with a disability. You're also going to meet MS patient advocate Julie Stamm and Dr. Jenny Woo, the two difference-makers behind a project called 52 Essential Inclusion Skills: An A-to-Z Guide to Kindness, Compassion, and Respect for Diverse Abilities. We'll give you your last reminder to sign up for the Black MS Experience Summit. It's happening virtually this Wednesday and Thursday, June 14th and 15th. And we'll also tell you where you can sign up for the global webcast that I'll be hosting this Thursday, June 15th, from the International Progressive MS Alliance Scientific Congress in Vienna, Austria. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: De-Stressing Air Travel If You're Living with MS  :22 June 14th and 15h -- It's the Black MS Experience Summit  1:19 June 14th -- Don't miss the webcast from the International Progressive MS Alliance Scientific Congress live from Vienna, Austria   2:17 Julie Stamm and Dr. Jenny Woo share 52 Essential Inclusion Skills: An A to Z Guide to Kindness, Compassion, and Respect for Diverse Abilities  2:55 Dr. Scott Crawford discusses how to de-stress air travel if you're living with MS   19:29 Share this episode  38:00 Have you downloaded the free RealTalk MS app???  38:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/302 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com 52 Essential Inclusion Skills: An A-to-Z Guide to Kindness, Compassion, and Respect for Diverse Abilities https://mindbrainemotion.com/products/52-essential-inclusion-skills REGISTER for the Black MS Experience Summit https://nmss.6connex.com/event/BlackMSExperienceSummit/login REGISTER for the International Progressive MS Alliance Scientific Congress LIVE Webcast https://msif.org/join-us-for-the-june-2023-webcast-on-ending-ms-progression Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 302 Guests: Julie Stamm, Dr. Jenny Woo, and Dr. Scott Crawford Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Last week, the Consortium of Multiple Sclerosis Centers brought together over 2,000 neurologists, MS nurses, rehabilitation specialists, and other healthcare professionals in Aurora Colorado, for their annual conference. This week, we're taking you inside the meeting and sharing our conversations with some of the difference-makers in the MS Movement. Next week, we're traveling to Vienna, Austria to attend the International Progressive MS Alliance Scientific Congress, where we'll hear updates on some of the cutting-edge progressive MS research that the Alliance is funding. And during the conference, we're hosting a live webcast that you won't want to miss! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're at the Consortium of Multiple Sclerosis Centers Annual Conference  :22 Dr. Kathy Zackowski gives us an overview of some of the presentations that caught her eye  1:03 Dr. Anthony Feinstein talks about emerging research focused on the impact of mental health issues on people with MS  22:10 President and CEO of the National MS Society, Cyndi Zagieboylo discusses some of the Society's game-changing initiatives  31:30 Next week: I'll be in Vienna, attending the International Progressive MS Alliance Scientific Congress.  Don't miss our live webcast from Vienna!  47:03 Share this episode  48:08 Have you downloaded the RealTalk MS app???  48:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/301 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Register for the Live Webcast from the International Progressive MS Alliance Scientific Congress in Vienna, Austria https://msif.org/join-us-for-the-june-2023-webcast-on-ending-ms-progression Download What to Expect from Mental Healthcare: A Guide for People with MS https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/brochures/ce_pubs_mentalhealthguidnce_0422_final.pdf Download What to Expect from Rehabilitation Care: A Guide for People with MS https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/brochures/brochure-rehabilitation-care.pdf Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 301 Guests: Dr. Kathy Zackowski, Dr. Anthony Feinstein, and Cyndi Zagieboylo Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Welcome to the 300th episode of RealTalk MS! Yikes! In last week's episode of the podcast, Dr. Bruce Bebo walked us through the latest research on the prevalence of MS in the United States, and the data serves as a clear reminder that anyone can get MS.  However, not everyone with MS receives the same quality of care. My guest today is clinician-researcher Dr. Lilyana Amezcua, and we're discussing her work in exploring healthcare disparities among minority populations. In addition to celebrating our 300th episode, we're also celebrating World MS Day! We'll let you know where you can join the virtual festivities. And, as our RealTalk MS Listener Survey ends, we're announcing the winner of a $100 Amazon Gift Card. Can Do MS is hosting a day-long in-person and virtual More About MS program this Friday, June 2. We'll give you the details and tell you how you can register for this free event. And the International Progressive MS Alliance has announced a large-scale research program focused on developing solutions to some of the most challenging symptoms that people living with progressive MS face. We're sharing the details. We have a lot to talk about! Are you ready for RealTalk MS??! Welcome to our 300th episode!  :25 It's World MS Day!  1:55 Congratulations to the winner of a $100 Amazon gift card!  2:56 Details and registration info for the Can Do MS More About MS Program  3:43 The International Progressive MS Alliance announces a large-scale research program  5:17 Dr. Lilyana Amezcua discusses healthcare disparities among minority communities   7:51 Share this episode  32:12 Thanks for listening, and here's to the next 300!!  32:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/300 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com World MS Day on the Web https://worldmsday.org World MS Day on Facebook https://facebook.com/worldmsday REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance https://journals.sagepub.com/doi/pdf/10.1177/1352458521999970 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 300 Guests: Dr. Lilyana Amezcua Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky problem to solve. Yet, it's important that the numbers reflect everyone living with MS and no one is left behind.   This week, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, is on hand to walk us through the just-published results of a study that provides a more granular estimate of the prevalence of MS in the United States, analyzing it by race, ethnicity, age, sex, and geographic region. We're also reminding you that this is the final week for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and, maybe, win a $100 Amazon gift card. On June 14th and 15th, the National MS Society is hosting the virtual 2023 Black MS Experience Summit. And we're sharing all the registration info. Can Do MS is hosting a day-long in-person and virtual More About MS program on June 2. We'll tell you how you can register for this free event. We'll give you the details about the latest advocacy win for people living with MS. And we'll tell you about the new MS Society in the UAE. We're sharing the results of a study that analyzed the benefits of virtual reality therapy for improving balance among people living with MS. And we'll tell you about the somewhat puzzling results of a study of the incidence of MS in the U.K. We have a lot to talk about! Are you ready for RealTalk MS??! Next Week: Episode 300 (Yikes!)  :22 FINAL WEEK: Take the RealTalk MS listener survey...you might win a $100 Amazon gift card!  1:36 This Week: A deep dive into the prevalence of MS in the United States  2:31 Registration info for the 2023 Black MS Experience Summit   3:12 Registration info for the Can Do MS More About MS Program  4:12 An advocacy win!  6:13 An MS Society in the UAE   10:40 STUDY: Virtual reality therapy is shown to improve balance for people living with MS  12:34 STUDY: The incidence of MS in the U.K. has not changed for almost two decades  16:25 Dr. Bruce Bebo walks us through  anewly-published study that takes a granular look at the prevalence of MS in the United States   21:09 Share this episode  34:05 Please remember to take our listener survey!  34:26 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/299 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey STUDY: Population-Based Estimates for the Prevalence of Multiple Sclerosis in the United States by Race, Ethnicity, Age, Sex, and Geographic Region https://jamanetwork.com/journals/jamaneurology/fullarticle/2805038 REGISTER for the National MS Society's 2023 Black MS Experience Summit https://nmss.6connex.com/event/BlackMSExperienceSummit/login REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration Advocate For Change -- Become an MS Activist https://nationalmssociety.org/advocacy The National MS Society in the UAE https://www.nationalmssociety.ae STUDY: Virtual Reality-Based Therapy Improves Balance and Reduces Fear of Falling in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis of Randomized Controlled Studies https://jneuroehgrehab.biomedical.com/articles/10.1186/s12984-023-01174-z STUDY: Incidence, Prevalence, and Co-Occurrence of Autoimmune Disorders Over Time and by Age, Sex, and Socioeconomic Status: A Population-Based Cohort Study of 22 Million Individuals in the U.K. https://thelancet.com/journals/lancet/article/PIIS0140-6736(23)00457-9/fulltext Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 299 Guests: Dr. Bruce Bebo Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Don't miss the second installment of our Pathways To Cures Global Summit coverage. For this unprecedented event, the National MS Society brought together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years.  In Part 2 of our coverage, we're taking you back inside this historic meeting, where you'll hear from more of the top MS experts in the world who participated in this remarkable event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We wrap up our coverage of the Pathways To Cures Global Summit  :22 We've learned more about the prevalence of MS in the United States   1:22 Dr. Anne Helme discusses the wide variance in MS treatment  5:13 Dr. Paula Zaratin talks about the importance of research governance  11:01 Dr. Peter Calabresi discusses the uncertainty of living with MS  18:19 Dr. Daniel Ontaneda suggests how people living with MS should be thinking about the Pathways To Cures global research initiative  24:57 Dr. Mitzi Joi Williams discusses the importance of ensuring that the Pathways To Cures initiative doesn't leave anyone behind  30:15 Summing up the Pathways To Cures Global Summit  35:16 Share this episode  36:05 Please remember to take our listener survey!  36:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/298 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1) https://realtalkms.com/297 RealTalk MS Episode 125: From the Pathways To Cures Think Tank  https://realtalkms.com/125 RealTalk MS Episode 238: The Pathways To Cures Research Roadmap  https://realtalkms.com/238 Pathways To Cures https://nationalmssociety.org/pathways-to-cures RealTalk MS Episode 81: The Prevalence of MS with National MS Society CEO Cyndi Zagieboylo, Dr. Bruce Bebo, and Dr. Ruth Ann Marrie  https://realtalkms.com/81 Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 298 Guests: Dr. Anne Helme, Dr. Paula Zaratin, Dr. Peter Calabresi, Dr. Daniel Ontaneda, and Dr. Mitzi Joi Williams Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

This past week, the National MS Society hosted the Pathways To Cures Global Summit, bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry, and people affected by MS to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years.  In Part 1 of our coverage, we're taking you inside this historic meeting, where you'll hear from some of the top MS experts in the world who participated in this remarkable event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Pathways To Cures Global Summit  :22 My conversation with a distinguished group of CEOs representing 5 major MS Societies   3:04 Tim Coetzee discusses the current state of MS care and the work ahead  9:20 Kathy Smith offers her perspective on the Pathways To Cures Global Summit  14:32 Dr. Anne-Katrin Probstel talks about stopping MS  22:52 Dr. Naila Makhani discusses detecting MS early  33:54 Share this episode  39:17 Please remember to take our listener survey!  39:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/297 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey RealTalk MS Episode 125: From the Pathways To Cures Think Tank  https://realtalkms.com/125 RealTalk MS Episode 238: The Pathways To Cures Research Roadmap  https://realtalkms.com/238 Pathways To Cures https://nationalmssociety.org/pathways-to-cures Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 297 Guests: Cyndi Zagieboylo, Dr. Pam Valentine, Prof. Des Graham, Nick Moberly, Klaus Holm, Tim Coetzee, Kathy Smith, Dr. Anne-Katrin Probstel, and Dr. Naila Makhani Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

This week, we're in New York, attending the Pathways To Cures Global Summit. The National MS Society is convening the world -- bringing together the best and brightest minds in MS research, the CEOs of major MS Societies, representatives from the pharmaceutical industry and people affected by MS -- to update the scientific foundation of the Pathways To Cures research roadmap and set the global MS research agenda for the next 3-5 years. Don't miss next week's episode of RealTalk MS, when you'll hear from many of the experts on hand for this historic meeting. In this week's episode, we're talking about exacerbations, flares, attacks -- these are just some of the words we use when we're describing an MS relapse. Relapses impact over 85% of the people living with MS. And today, we're reviewing the things you need to know when it comes to MS relapses with Dr. Sam Hooshmand, the Director of the Multiple Sclerosis Clinic at the Milwaukee Veterans Affairs Medical Center, and Assistant Professor of Neurology at the Medical College of Wisconsin. We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're adding some motivation to that invitation by giving you an opportunity to win a $100 Amazon gift card. We'll introduce you to a remarkable MS research scientist and the Chair of the National MS Society's Scientific Advisory Committee, Dr. Tika Benveniste.  We're sharing the outcome of a study that compared the benefits of yoga and physical therapy for people living with MS. And we'll tell you about a first-of-its-kind collaboration between Cariloop and Walgreens that's designed to support MS caregivers. We have a lot to talk about! Are you ready for RealTalk MS??! Greetings from the Pathways to Cures Global Summit  :22 Take the RealTalk MS listener survey...you might win a $100 Amazon gift card!  2:09 This Week: Everything you should know about MS relapses  2:49 Meet the Chair of the National MS Society's Scientific Advisory Committee, Dr. Tika Benveniste   3:35 Study compares the benefits of yoga and physical therapy for people living with MS  16:53 Cariloop and Walgreens announce collaboration to support MS caregivers  21:19 Dr. Sam Hooshmand reviews everything you should know about MS relapses  24:13 Share this episode  34:09 Please remember to take our listener survey!  34:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/296 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey RealTalk MS Episode 125: From the Pathways To Cures Think Tank  https://realtalkms.com/125 RealTalk MS Episode 238: The Pathways To Cures Research Roadmap  https://realtalkms.com/238 RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 1 https://realtalkms.com/barancik1 RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 2 https://realtalkms.com/barancik2 STUDY: Yoga vs Physical Therapy in Multiple Sclerosis: Results of a Randomized Controlled Trial and the Training Protocol https://journals.sagepub.com/doi/full/10.1177/09727531231161994 Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 296 Guests: Dr. Tika Benveniste and Dr. Sam Hooshmand Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

In this week's episode, we're talking about a set of MS symptoms that can range in intensity from mildly annoying to completely debilitating. These symptoms include numbness, tingling, pain, that "electric shock" feeling you might experience traveling down the back of your neck, and the infamous MS hug.  Joining me to walk us through how to best manage these sensory symptoms is Dr. Jeffrey Hernandez. Dr. Hernandez is a doctorally prepared nurse practitioner who specializes in multiple sclerosis.  We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're adding some motivation to that invitation by giving you an opportunity to win a $100 Amazon gift card. And we're inviting you to get up close and personal with some of the most brilliant MS researchers in the world in Parts 1 and 2 of our two-part special podcast series, Barancik Prize Conversations.  We'll share an amazing essay about living with progressive MS that was written by author and artist, Elizabeth Jameson, and published in the San Francisco Chronicle. You'll hear my recent conversation with one of the leading experts in the world on autologous hematopoietic stem cell therapy (aHSCT), Dr. Jeffrey Cohen. And we'll tell you about how you can participate in the Targeted Exercise for African-Americans with Multiple Sclerosis (TEAAMS) study. We have a lot to talk aboJut! Are you ready for RealTalk MS??! Take the RealTalk MS listener survey...you might win a $100 Amazon gift card!  :34 This Week: Managing MS Sensory Symptoms  1:13 Don't miss Parts 1 and 2 of our special series, Barancik Conversations   2:08 Elizabeth Jameson's essay in the San Francisco Chronicle  4:26 Dr. Jeffrey Cohen discusses innovation in MS research and autologous hematopoietic stem cell transplantation (aHSCT)  13:23 How you can participate in the Targeted Exerecise for African-Americans with Multiple Sclerosis (TEAAMS) study   25:34 Dr. Jeffrey Hernandez talks about managing numbness, tingling, pain, and other MS sensory symptoms   28:48 Share this episode  41:59 Please remember to take our listener survey!  42:20 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/295 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 1 https://realtalkms.com/barancik1 RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 2 https://realtalkms.com/barancik2 Project TEAAMS Information and Registration https://projectteamms.ahs.uic.edu PHONE: (833) 727-1887 Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 295 Guests: Dr. Jeffrey Cohen and Dr. Jeffrey Hernandez Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Welcome to Part 2 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research.  The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with this remarkable group of MS research all-stars.  Part 2 of Barancik Prize Conversations features the 2018, 2020, and 2022 Barancik Prize winners. Dr. Katerina Akassolgou, of the Gladstone Institute of Neurological Disease, was awarded the Barancik Prize in 2018 for her work understanding the role of fibrin-related nerve damage in MS and designing potential therapies to prevent neurodegeneration. Dr. Dwight Bergles, of Johns Hopkins University, received the Barancik Prize in 2020 in recognition of his pioneering research in understanding the brain cells involved in myelin repair. Dr. Ruth Ann Marrie, of the University of Manitoba, is the 2022 recipient of the Barancik Prize in recognition of her groundbreaking contributions to our understanding of MS. We have a lot to talk about! Are you ready for RealTalk MS??! About the Barancik Prize Conversations  :18 Dr. Katerina Akassoglou  2:03 Dr. Dwight Bergles  10:00 Dr. Ruth Ann Marrie  20:58 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/barancik2 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode: Barancik Prize Conversations -- Part 2 Guests: Dr. Katerina Akassoglou, Dr. Dwight Bergles, and Dr. Ruth Ann Marrie Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Disclosing your MS to your employer is an important decision that can sometimes be tricky and can sometimes lead to unintended consequences. Joining me to discuss some of the things you want to be thinking about when it comes to disclosing your MS in the workplace is a Manager on the Benefits, Employment, and Insurance Team at the National MS Society, Christina Forster.  We're also extending an invitation for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and we're adding some motivation to that invitation by giving you an opportunity to win a $100 Amazon gift card. And we're inviting you to get up close and personal with some of the most brilliant MS researchers in the world in Part 1 of our two-part special podcast series, Barancik Prize Conversations.  While we're talking about brilliant MS researchers, we're also revealing this year's recipient of the John Dystel Prize for MS Research. We'll share some of the details surrounding the partial hold that the FDA has imposed on three different Phase 3 clinical trials for a new category of MS disease-modifying therapy. We'll tell you about a small clinical trial that demonstrated the benefit of telerehabilitation in improving MS-related bladder problems. And we'll tell you about an upcoming clinical trial for the first MS disease-modifying therapy to be formulated as a nasal spray. We have a lot to talk about! Are you ready for RealTalk MS??! Take the RealTalk MS listener survey...you might win a $100 Amazon gift card!  :22 This Week: Disclosing your MS in the workplace  1:15 Don't miss Part 1 of our special series, Barancik Conversations   2:07 And the winner of the John Dystel Prize for MS Research is...  4:05 The FDA has put a temporary hold on three Phase 3 clinical trials for a new category of MS disease-modifying therapy  5:42 STUDY: Telerehabilitation shown to be successful in managing MS-related bladder problems   8:39 Tiziana Life Scences announces Phase 2 clinical trial for Foralumab, the first MS disease-modifying therapy to be formulated as a nasal spray   12:05 Christina Forster reviews the things you'll want to consider when you're thinking about disclosing your MS to your employer   14:11 Share this episode  30:01 Please remember to take our listener survey!  30:21 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/292 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Take the RealTalk MS Listener Survey  https://realtalkms.com/survey RealTalk MS Special Podcast Series: Barancik Prize Conversations Part 1 https://realtalkms.com/barancik1 STUDY: Effects of Pelvic Floor Muscle Training Applied with Telerehabilitation in Patients with Multiple Sclerosis Having Lower Urinary Tract Symptoms: A Randomized Controlled Study https://tandfonline.com/doi/abs/10.1080/07399332.2023.2190593 Take the RealTalk MS Listener Survey  https://realtalkms.com/survey Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 294 Guests: Christina Forster Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Welcome to Part 1 of a special two-part RealTalk MS series highlighting conversations with past recipients of the Barancik Prize for Innovation in MS Research.  The Barancik Prize is awarded at the annual meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis, a meeting better known as the ACTRIMS Forum. Several past Barancik Prize winners gathered at the 2023 ACTRIMS Forum to celebrate the 10th anniversary of the Barancik Prize, and I took that opportunity to chat with this remarkable group of MS research all-stars.  Part 1 of Barancik Prize Conversations features the 2014 and 2016 Barancik Prize winners. Dr. Philip De Jager, of Columbia University, was awarded the Barancik Prize in 2014 for applying powerful analytic approaches to better understanding how genes and the environment interact, with the goal of developing personalized treatments for MS and, ultimately, disease prevention. Dr. Daniel Reich, of the NIH Institute of Neurological Disorders and Stroke, received the Barancik Prize in 2016 for innovating approaches to imaging MS disease activity, creating new pathways to better treatments. We have a lot to talk about! Are you ready for RealTalk MS??! About the Barancik Prize Conversations  :18 Dr. Philip De Jager  2:03 Dr. Daniel Reich   19:49 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/barancik1 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Bonus Episode: Barancik Prize Conversations -- Part 1 Guests: Dr. Philip De Jager and Dr. Daniel Reich Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

You've told me that the subject of diet and MS is one of your top three interests. And a quick scan of social media platforms reveals that a lot of people living with MS agree! This week, Dr. Ilana Katz Sand, the Associate Director of the Corinne Goldsmith Dickinson Center for Multiple Sclerosis at Mount Sinai, joins me with an update on what the latest research is revealing about the impact of diet on MS, and to answer that eternal question -- Is there an MS diet?  We're also talking about the launch of OCTOPUS, a groundbreaking clinical trial for progressive MS.  We'll talk with Dr. Erin Longbrake, the principal investigator in CELLO, a national clinical trial that's focused on potentially neutralizing MS before symptoms even develop. And if you're living with MS and you're looking for one more reason to stop smoking, we're sharing some recently published sobering evidence. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: An update on the impact of Diet on MS  :22 OCTOPUS, a groundbreaking clinical trial for progressive MS launches 1:17 Principal investigator Dr. Erin Longbrake discusses the importance of the CELLO study   4:06 STUDY: People with MS who continue to smoke may be facing multiple negative outcomes over time  10:33 Dr. Ilana Katz Sand updates us on the latest research and evidence of how diet impacts MS   16:03 Share this episode  38:58 Have you downloaded the free RealTalk MS app?  39:19 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/293 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Register Your Interest in Participating in OCTOPUS https://ukmsregister.org/octopus Details about participating in the CELLO Study https://cellostudy.org STUDY: Influence of Oral Tobacco Versus Smoking on Multiple Sclerosis Disease Activity and Progression https://jnnp.bmj.com/content/early/2023/03/30/jnnp-2022-330848 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 293 Guests: Dr. Erin Longbrake and Dr. Ilana Katz Sand Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

If you've listened to this podcast before, you already know that we avoid hype, and we stick to talking about evidence-based science. So, let me say right up front -- today, the cause of multiple sclerosis is unknown. However, a research team has identified a bacterial toxin that may prove to be the cause of MS onset as well as MS relapses. Joining me for an exclusive conversation about this discovery is Dr. Timothy Vartanian, who leads the team that made the discovery, and Dr. Richard Rudick, whose career has focused on experimental therapeutics for MS, playing a key role in the development of both Avonex and Tysabri. We're also talking about a stem cell therapy called MSC-NP that, in a Phase 1 clinical trial, delivered positive outcomes among people living with progressive MS. We'll tell you about a study that demonstrated why EDSS alone does not accurately define an individual's MS journey. We're sharing news from the International Progressive MS Alliance about a new research pipeline that will focus on improving well-being for people living with progressive MS. And we'll tell you where you can catch a replay of the International Progressive MS Alliance's latest webcast, Developing Treatments to End MS Progression. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Is this the cause of MS?  :22 STUDY: MSC:NP, a stem cell therapy for MS, delivers a positive outcome among people living with progressive MS  1:33 STUDY: Does EDSS tell the whole story of your MS status?   5:03 The International Progressive MS Alliance funds a research pipeline focused on improving well-being among people living with progressive MS  8:42 Webcast Replay: Developing Treatments to End MS Progression   10:24 Dr. Richard Rudick and Dr. Timothy Vartanian discuss a new discovery that may lead scientists to the cause of MS   11:36 Share this episode  29:25 Have you downloaded the free RealTalk MS app?  29:46 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/292 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Epsilon Toxin-Producing Clostridium Perfringens Colonize the MS Gut and Epsilon Toxin Overcomes Immune Privilege https://www.jci.org/articles/view/163239 STUDY: Mesenchymal Stem Cell-Derived Neural Progenitors Attenuate Proinflammatory Microglial Activation Via Paracine Mechanisms https://futuremedicine.com/doi/10.2217/rme-2023-0005 STUDY: Cognitive Impairment, Fatigue and Depression in Multiple Sclerosis: Is There a Difference Between Benign and Non-Benign MS? https://msard-journal.com/article/S2211-0348(23)00134-7/fulltext#%20 International Progressive MS Alliance: Well-Being in Multiple Sclerosis Research Funding Opportunity https://progressivemsalliance.org/2023/03/15/well-being-in-multiple-sclerosis-research-funding-opportunity Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance https://journals.sagepub.com/doi/pdf/10.1177/1352458521999970 Webcast Replay: Developing Treatments to End MS Progression https://www.facebook.com/watch/live/?ref=watch permalink&v=748824966910470 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 292 Guests: Dr. Richard Rudick and Dr. Timothy Vartanian Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

To tell or not to tell. When it comes to disclosing your MS to friends and family, that is the question. Choosing when to disclose and to whom to disclose is a deeply personal decision. Joining me to talk about some of the risks and benefits of disclosing your diagnosis is Dr. Victoria Leavitt, a clinical neuropsychologist, researcher, and assistant professor of neuropsychology at Columbia University. Well also tell you about a just-announced collaboration to develop an Epstein-Barr Virus vaccine (and we'll tell you why that could be a huge step toward ending MS forever!) We're sharing the details behind the MS International Federation's application to have three MS disease-modifying therapies added to the World Health Organization's list of essential medicines. We'll tell you how a study that tested a fall prevention program for people living with MS who used a wheelchair or scooter full-time may have failed...and yet succeeded. We're sharing the results of a study that set out to determine whether people over 50 who were living with MS were increasing their use of health care services because of their MS or simply because they were aging. And we'll tell you about a study that focused on the psychosocial impact of MS on children who had a parent living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Disclosing Your MS  :22 Merck teams up with ModeX Therapeutics on an EBV vaccine  1:10 The MSIF applies to have 3 DMTs added to the WHO list of essential medicines   3:22 STUDY: A fall prevention program for people with MS who are full-time wheelchair or scooter users  6:47 STUDY: Health care usage among people over 50 who are living with MS  9:33 STUDY: The psychosocial impact of MS on children with a parent living with MS  12:02 Dr. Victoria Leavitt discusses the risks and rewards associated with disclosing your MS to friends and family   15:24 Share this episode  32:35 Have you downloaded the free RealTalk MS app?  32:55 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/290 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Editorial: Toward Equitable Access to Treatment for Multiple Sclerosis https://thelancet.com/action/showPdf?pii=S1474-4422%2823%2900041-8 STUDY:  Online Delivery of the Individualized Reduction of Falls Intervention for Persons with Multiple Sclerosis Who Use a Wheelchair or Scooter Full-Time: A Pilot Study https://meridian.allenpress.com/ijmsc/article/25/2/82/491441/Online-Delivery-of-the-Individualized-Reduction-of STUDY: Outcomes and Health Care Service Use in Adults 50 Years and Older With and Without Multiple Sclerosis https://meridian.allenpress.com/ijmsc/article/25/2/56/486192/Outcomes-and-Health-Care-Service-Use-in-Adults-50 STUDY: The Psychosocial Impact of Parental Multiple Sclerosis on Children and Adolescents: A Systematic Review https://meridian.allenpress.com/ijmsc/article/25/2/63/487609/The-Psychosocial-Impact-of-Parental-Multiple Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 291 Guest: Dr. Victoria Leavitt Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

If you're a regular listener, you've heard me say that the things that people affected by MS want the most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, functions of public policy. The people who decide whether we get these things are our elected officials at both the state and federal level. That's why advocacy should be a high priority for everyone affected by MS. Make no mistake. MS advocacy delivers real results. Joining me in exploring how advocacy drives changes that improve the lives of people living with MS, and why you may want to consider becoming an MS activist, are Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz. Ready to learn more about MS advocacy? You can take the next step from the comfort of your own home. We're sharing the details of next week's virtual MS Activist Rally.  We'll tell you about a study that found a Mediterranean Diet could have a positive impact on cognition among people living with MS You'll learn about a clinical trial that's currently underway to determine whether aerobic exercise can promote myelin repair. We're sharing the details about an upcoming International Progressive MS Alliance webcast that's focused on developing treatments for progressive MS. And we'll tell you how high school seniors or college graduates who are affected by MS can apply for an Oscar the MS Monkey academic scholarship. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're all about MS advocacy  :22 The virtual MS Activist Rally takes place March 28. Are you registered???  5:22 STUDY RESULTS: Mediterranean Diet Is associated with cognition in MS   8:01 A clinical trial is underway to determine whether aerobic exercise can promote myelin repair  9:43 The International Progressive MS Alliance is hosting a webcast focused on developing treatments for progressive MS  11:01 Oscar the MS Monkey is accepting academic scholarship applications from high school seniors and college graduates who are affected by MS  11:57 Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz discuss how advocacy makes a real difference in the lives of people affected by MS, and how you can get involved    13:49 Share this episode  27:12 Have you downloaded the free RealTalk MS app?  27:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/290 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society MS Activist Rally registration https://p2a.co/Rally2023 STUDY:  Mediterranean Diet is Associated with Cognition in Multiple Sclerosis https://aan.com/MSA/Public/Events/AbstractDetails/52954 Webcast: Developing Treatments to End MS Progression registration https://msif.org/progressiveMSwebcast Oscar the MS Monkey Academic Scholarship Application http://mroscarmonkey.org/site/Scholarship%20Application%202023.pdf Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 290 Guests: Holly Pendell and Angel Hardy Heinz Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Laurie Johnson, President of the Greater Northwest Chapter of the MS Society in Seattle and Bridgette Maryman, one of their top walk MS fundraisers join us to discuss the upcoming walk here in Seattle as we approach the one year anniversary of John Clayton's passing. Then, Shannon Drayer joins us to talk some WBC, the M's biggest storylines with the regular season just two weeks away. Plus, Justin and Salk have a Ranked themed around a potential Seahawks trade target.See omnystudio.com/listener for privacy information.

Laurie Johnson, President of the Greater Northwest Chapter of the MS Society in Seattle and Bridgette Maryman, one of their top walk MS fundraisers join us to discuss the upcoming walk here in Seattle as we approach the one year anniversary of John Clayton's passing. Then, Shannon Drayer joins us to talk some WBC, the M's biggest storylines with the regular season just two weeks away. Plus, Justin and Salk have a Ranked themed around a potential Seahawks trade target.See omnystudio.com/listener for privacy information.

For many people, one of the most challenging aspects of living with MS is living with uncertainty. Living with unanswerable questions like, "Is today the day I experience a relapse?" "Will my disability worsen?" "Will I be able to continue working?" "Will I be able to take care of my family?"    These are all very real questions, and while there may not be answers for them today, there are steps you can take and strategies you can adopt to ensure that you're managing and minimizing the uncertainty of living with MS. Joining me to talk about her journey as a mom living with MS and to share how she's learned to cope with the uncertainty of MS is MS advocate Sarah Wolfe. Also joining our conversation with specific strategies for living your best life despite the uncertainties of MS is Dr. Laura Hancock, a neuropsychologist at the University of Wisconsin School of Medicine and Public Health. It's a big topic, and I'm devoting this entire MS Awareness Week episode of RealTalk MS to my conversation with Sarah Wolfe and Dr. Laura Hancock. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's MS Awareness Week and we're talking about living with the uncertainty of MS  :22 MS advocate Sarah Wolfe and Neuropsychologist Dr. Laura Hancock discuss the many different facets of successfully living with the uncertainty of MS    3:38 Share this episode  39:55 Have you downloaded the free RealTalk MS app?  40:15 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/289 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 289 Guests: Sarah Wolfe and Dr. Laura Hancock Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

When you visit the Oceans of Hope U.K. website, it reads, "Oceans of Hope is for people with MS, led by people with MS." It goes on to say, "Our aim is to offer people from all over the world the opportunity to experience sailing as a way of learning new skills and restoring the self-confidence which can be stolen by MS." The folks at Oceans of Hope U.K. can make that claim with high confidence. My guest today is the founder of Oceans of Hope U.K., Robert Munns, who lives with MS himself. Robert had what he describes as a life-changing experience while serving as a member of the crew on what turned out to be an unforgettable sailing adventure. Robert's story is one you won't want to miss. Today, Oceans of Hope U.K. offers anyone living with MS the opportunity to experience that same personal transformation that Robert experienced. When you review your MRI scans with your neurologist, the focus is on those white matter lesions that characterize MS. However, study results announced at the 2023 ACTRIMS Forum show that white matter lesions are not the cause of severe MS disability. We're breaking down this game-changing research.  And speaking of game changers, we're sharing the details of a small, portable MRI device that can effectively image MS lesions.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: News from the 2023 ACTRIMS Forum and a story that I hope you find as compelling as I did  :22 Study results show that white matter lesions are not the cause of severe MS disability 2:22 A portable less invasive MRI device capable of imaging MS lesions  6:33 Meet Robert Munns, the founder of Oceans of Hope UK    9:25 Share this episode  37:20 Have you downloaded the free RealTalk MS app?  37:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/288 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Oceans of Hope U.K. https://oceansofhope.co.uk Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 288 Guest: Robert Munns Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Last week in San Diego, the Americas Committee for Treatment and Research in Multiple Sclerosis convened their annual meeting, the ACTRIMS Forum. One of the highlights of this meeting is the presentation of the Barancik Prize, awarded in recognition of exceptional innovation in MS research. This year's winner of the Barancik Prize is Dr. Ruth Ann Marrie, a clinician scientist at the University of Manitoba. The Barancik Prize is administered by the National MS Society, and this year's award recognizes Dr. Marrie's landmark discoveries that deepen our understanding of how and when MS evolves.  During the ACTRIMS Forum, Dr. Marrie joined me to discuss her groundbreaking research and the impact it's had on MS care. If you're a regular listener, you've probably heard me say that the things that people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials at the state and federal level.  That's why advocacy is a high priority for people affected by MS. The National MS Society's Public Policy Conference takes place next week, March 6-8, in Washington, D.C. Joining me to discuss how advocacy makes a real difference in influencing pending legislation, while giving us a preview of what we can expect to see and hear at this year's conference, is the National MS Society's Executive Vice-President for Advocacy and Healthcare Access, Bari Talente. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: We're back from the ACTRIMS Forum and a conversation with this year's winner of the Barancik Prize for innovation in MS research  :22 Dr. Ruth Ann Marrie discusses some of her groundbreaking research and its impact on MS care  1:57 We are one week away from the National MS Society's Public Policy Conference in Washington, D.C.  17:18 Bari Talente, the National MS Society's Executive Vice-President of Advocacy and Healthcare Access, discusses the importance of advocacy, while sharing a preview of the legislative issues that MS activists will be advocating for next week on Capitol Hill    18:18 Share this episode  32:25 Have you downloaded the free RealTalk MS app?  32:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/287 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 287 Guests: Dr. Ruth Ann Marrie and Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Two years ago, the National MS Society made a public commitment to do more to ensure that the MS movement was open to and reflective of everyone affected by MS. When you stop to consider issues like access to healthcare or MS clinical research, it quickly becomes apparent that diversity, equity, and inclusion aren't only organizational goals for the MS Society. They also address some of the systemic barriers that directly impact the quality of MS care for members of historically marginalized communities who are living with MS.  Joining me in exploring how the MS Society is embedding the principles of diversity, equity, and inclusion into every aspect of the MS movement is the National MS Society's Vice-President of Diversity, Equity, and Inclusion, Neisha Fredericks. We're also sharing the details of research conducted at the University of Virginia that identified a specific contributor to the autoimmune response and neuroinflammation that characterize MS. And we'll give you an up-close and personal illustration of how artificial intelligence (AI) will impact MS research and treatment. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Embedding diversity, equity, and inclusion into the MS movement  :22 Researchers identify a neuroinflammation "regulator" lurking in the gut microbiome  1:28 Artificial intelligence will have an impact on virtually every aspect of MS research and care  4:45 Neisha Fredericks, the National MS Society's Vice-President of Diversity, Equity, and Inclusion, discusses the work that's taken place and the work still to be done to ensure that the MS movement is open to and reflective of everyone affected by MS    9:38 Share this episode  32:13 Have you downloaded the free RealTalk MS app?  32:34 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/286 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY:  The Activity of the Aryl Hydrocarbon Receptor in T Cells Tunes the Gut Microenvironment to Sustain Autoimmunity and Neuroinflammation https://journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.3002000 ChatGPT https://openai.com/blog/chatgpt Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 286 Guest: Neisha Fredericks Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Between 3 and 5% of the people living with MS are diagnosed before their sixteenth birthday. In many respects, pediatric MS is just like MS in adults. But it carries with it a distinct set of what I call social complications that can feel even more challenging to navigate than MS itself. Just think back to the awkwardness of your pre-teen and teenage years. The pressures of school, friends, and dating are a lot for any kid to contend with. And that's without having to think about living with a chronic disease like multiple sclerosis. Joining me for what I consider to be a masterclass in pediatric MS is Dr. Brenda Banwell. Dr. Banwell is Chief of the Division of Neurology and Co-Director of the Neuroscience Center at Children's Hospital of Philadelphia, and one of the foremost experts on pediatric MS in the world. We're also sharing the details of very encouraging research that sheds new light, as well as provides new evidence, about primary progressive MS, suggesting a new pathway for future treatments. We'll tell you about Healthy Aging in MS, the new clinical and research initiative at the University of Texas at Austin Dell Medical School. And we'll share what the latest research is telling us when it comes to answering the question, "Should you discontinue your disease-modifying therapy once you turn 60?" We have a lot to talk about! Are you ready for RealTalk MS??! This Week: It's a masterclass in pediatric MS  :22 Researchers take a major step forward in understanding and potentially treating primary progressive MS  2:01 University of Texas at Austin Dell Medical School launches Healthy Aging in MS initiative  6:49 Is it safe to stop your disease-modifying therapy as you age? Here's what the latest research is telling us  8:58 Dr. Brenda Banwell takes us on a deep dive into pediatric-onset MS  13:05 Share this episode  37:05 Have you downloaded the free RealTalk MS app?  37:25 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/285 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY:  Cerebrospinal Fluid Immunoglobulins in Primary Progressive Multiple Sclerosis are Pathogenic https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awad031/7024973 STUDY: Discontinuation of Disease-Modifying Therapy in MS Patients Over 60 Years Old and Its Impact on Relapse Rate and Disease Progression https://sciencedirect.com/science/article/abs/pii/S0303846723000288 RealTalk MS Episode 255: Aging with MS with Dr. John Corboy https://realtalkms.com/255 PEDIATRIC MS RESOURCES: National MS Society Information and Resources on Pediatric MS https://nationalmssociety.org/pediatricms Oscar the MS Monkey In-Person Camp and Retreats for Kids with MS and Their Families https://mroscarmonkey.org Network of Pediatric Multiple Sclerosis Centers https://usnpmsc.org iConquer MS Kids & Teens https://kidsandteens.iconquerms.org/kidsandteens Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 285 Guest: Dr. Brenda Banwell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

MS can sometimes feel isolating. And the ironic thing about those feelings of isolation is that you can experience them even when you're with other people. It's the feeling that, while everyone is being supportive, nobody really gets it. They've never experienced what it's like to actually live with MS. That's why connecting with others who are living with MS can be such a difference-maker. My guests in this episode are Debby Bennett, the Manager of Community Engagement at the National MS Society, and Ricky Maxwell, an MS Society self-help group member and leader, and we're talking about how and where you can find support and connect with others who can better understand some of the things you might be going through.  We're also sharing the details of the National MS Society's latest $7.8 million dollar investment in new research projects aimed at stopping MS progression, restoring lost function, and ending MS forever. We'll tell you about a study that revealed a link between sleep and cognitive issues among people living with MS.  You'll hear about the results of a study that showed how cognitive rehabilitation therapy and mindfulness might improve cognitive dysfunction for people with MS. We'll tell you about this year's recipient of the Barancik Prize for Innovation in MS Research (and we'll explain what makes her such an outstanding choice!) The National MS Society's 2023 Pathways to Wellness virtual program is just two days away! We'll tell you how and where you can still register for the event. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The value of connecting with others who are living with MS :22 The National MS Society invests $7.8 million in new research projects  1:49 Research reveals link between sleep and cognitive issues among people with MS  4:17 Study shows that cognitive rehabilitation therapy and mindfulness are effective in improving cognition among people with MS 6:58 Dr. Ruth Ann Marrie is this year's recipient of the Barancik Prize for Innovation in MS Research  9:42 The 2023 Pathways to Wellness virtual event is two days away  12:57 Debby Bennett and Ricky Maxwell discuss how and why you'll want to connect with others who are living with MS  14:43 Share this episode  27:09 Have you downloaded the free RealTalk MS app?  27:30 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/284 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Research Summary: Fourteen New Research Projects Funded by the National MS Society https://nms2cdn.azureedge.net/cmssite/nationalmssociety/media/msnationalfiles/research/summaries-of-newly-funded-research-projects-january-2023.pdf RealTalk MS Episode 238: The Pathways to Cures Research Roadmap with Dr. Carol Whitacre and Professor Alan Thompson https://realtalkms.com/238 STUDY: Pathways Between Multiple Sclerosis, Sleep Disorders, and Cognitive Function:  Longitudinal Findings from the Nurses' Health Study https://journals.sagepub.com/doi/epub/10.1177/13524585221144215 RealTalk MS Episode 259: How Lack of Sleep Affects MS (And What You Can Do About It!) with Dr. Katie Siengsukon https://realtalkms.com/259 STUDY: Cognitive Rehabilitation and Mindfulness Reduce Cognitive Complaints in Multiple Sclerosis (REMIND-MS): A Randomized Controlled Trial https://www.sciencedirect.com/science/article/pii/S2211034823000330 Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 284 Guest: Faith Bigam Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Faith Bigam was diagnosed with MS in 2014, when she was 12 years old. She didn't know what MS was because, well, why would any 12-year-old kid know what MS is? But Faith quickly learned and just a year later, she had already become an Ambassador for the MS Society of Canada. The initial years of Faith's MS journey weren't easy, and I'm not sure how someone of any age who had less resilience might have handled them. But I'm pretty sure that next to the word "resilience" in the dictionary you'll find a picture of Faith Bigam. And I promise you, there are some things about Faith that are going to surprise you. The National MS Society's 2023 Pathways to Wellness virtual program takes place February 9th. We'll give you the details and tell you how to register for this free event.  You'll hear about L'Oreal's "smart" lipstick applicator. It's the first product in a line designed to make the task of putting on makeup accessible to people living with disabilities.  And we'll tell you what researchers discovered in a study that focused on analyzing the gut microbiome of young people living with pediatric MS.  We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Meet the embodiment of resilience and adaptability, Faith Bigam :22 Learn more and register for the 2023 Pathways to Wellness in MS virtual program  1:15 L'Oreal develops an adaptive lipstick application device (and why that matters!)  2:21 A research team analyzed the gut microbiome of young people living with pediatric MS  4:27 My conversation with Faith Bigam  7:56 Share this episode  31:07 Have you downloaded the free RealTalk MS app?  31:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/283 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness Metagenomic Analysis of the Pediatric-Onset Multiple Sclerosis Gut Microbiome Explained https://tremlettsmsresearchexplained.wordpress.com/2023/01/05/metagenomic-analysis-of-the-pediatric-onset-multiple-sclerosis-gut-microbiome-explained STUDY: Metagenomic Analysis of the Pediatric-Onset Multiple Sclerosis Gut Microbiome https://n.neurology.org/content/98/10/e1050 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 283 Guest: Faith Bigam Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

The CDC tells us that 36 million falls are reported each year, resulting in 3 million adults being transported to the emergency room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and more than 30% fall multiple times. Falling can cause broken bones, brain damage, and worse. That's why I'm dedicating this entire episode of RealTalk MS to fall prevention. Dr. Sara Migliarese joins me with tips, tools, and strategies you can use to prevent falls while keeping yourself safe and more independent. Dr. Migliarese is a Board Certified Neurologic Clinical Specialist, and a Professor in the Department of Physical Therapy at Winston-Salem State University where she is also the Director of the Neurologic Clinical Residency Program. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Fall prevention could be a life-saver  :22 Dr. Sara Migliarese shares tips, tools, and strategies for preventing falls (and tells you what to do when you can't!)  2:08 Share this episode  31:12 Have you downloaded the free RealTalk MS app?  31:32 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/282 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society: Free from Falls Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/Free-from-Falls Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 282 Guest: Dr. Sara Migliarese Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Today, we're talking about a topic that you've told me is the topic that you'd most like me to cover on this podcast -- autologous hematopoietic stem cell transplantation, or HSCT. And I'm dedicating this entire episode of RealTalk MS to a deep dive on the subject with the man who pioneered autologous HSCT as a treatment for relapsing-remitting MS, Dr. Richard Burt. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Autologous HSCT with Dr. Richard Burt  :23 Dr. Richard Burt takes us on a deep dive into autologous HSCT for MS  :57 Share this episode  54:38 Have you downloaded the free RealTalk MS app?  54:59 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/281 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Amazon: Everyday Miracles: Curing Multiple Sclerosis, Scleroderma, and Autoimmune Diseases by Hematopoietic Stem Cell Transplant by Dr. Richard Burt https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/B0BRNTJZ9X/ref=sr_1_1 National MS Society: aHSCT in MS https://nationalmssociety.org/Treating-MS/aHSCT Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 281 Guest: Dr. Richard Burt Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Last week, in Episode 279 of RealTalk MS we talked with Professor Tanja Kuhlmann about a new framework for researching, diagnosing, and treating MS that was proposed by the International Advisory Committee on Clinical Trials in Multiple Sclerosis. This proposed framework represents the next evolutionary step in diagnosing and treating MS. Joining me this week to talk about how this proposed framework will impact people living with MS is the National MS Society's Chief Advocacy, Services, and Science Officer, Dr. Tim Coetzee. For many people, the new year inspires familiar resolutions to start a diet. If you're searching for the "MS Diet", we're sharing an update on what the experts have learned about diet and MS, and what they recommend. The National MS Society's Pathways to Wellness virtual program takes place February 9th. We'll give you the details and tell you how to register for this free event.  And you'll hear about Frequency Therapeutics' remyelination project for people living with MS. Clinical trials are planned to begin this year! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: What the proposed framework for diagnosing, and treating MS means for people living with MS  :22 What experts have learned about diet and MS  1:50 Why you'll want to register for Pathways to Wellness in MS   4:56 Frequency Therapeutics remyelination project  6:02 Dr. Tim Coetzee discusses how the proposed framework for diagnosing, and treating MS will take MS care to the next level  8:43 Share this episode  30:19 Have you downloaded the free RealTalk MS app?  30:40 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/280 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279 National MS Society: Diet and MS https://nationalmssociety.org/Research/Research-News-Progress/Diet Pathways to Wellness: Emotional, Spiritual, and Social Wellness Virtual Program https://nationalmssociety.org/Resources-Support/Library-Education-Programs/PathwaystoWellness Frequency Therapeutics Multiple Sclerosis Project https://frequencytherapeuticstx.com/pipeline-programs/multiple-sclerosis-program Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 280 Guest: Dr. Tim Coetzee Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Every episode of RealTalk MS features updates and reports about emerging science. And, as you listen, some of you may wonder, 'When will these scientific achievements benefit me? When will these breakthroughs and advancements make their way from the laboratory workbench to the clinic?'   That's exactly what the panel of MS experts who comprise the International Advisory Committee on Clinical Trials in MS are proposing in a new framework that leverages what scientists are continuing to learn and re-defines how we talk about MS, research MS, diagnose MS, and treat MS.  The new framework being recommended by the committee is broadly outlined in a paper that was published about 8 weeks ago. Joining me to discuss what this proposed framework is all about is the paper's lead author, Professor Tanja Kuhlmann. We're also talking about the new high-efficacy disease-modifying therapy that received its FDA approval last week. We're sharing the details behind the FDA's approval of a Phase 3 clinical trial for Masitinib, an investigational therapy for treating progressive MS. We'll tell you about Abata Therapeutics' first T-cell treatment candidate for treating progressive MS. And you'll hear about the results of a study that compared the outcome of treating people living with secondary progressive MS with autologous hematopoietic stem cell transplantation (aHSCT) versus treatment by disease-modifying therapies. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Experts recommend a new framework for researching, diagnosing, and treating MS  :22 FDA approves Ublituximab (Briumvi), an anti-cd20 disease-modifying therapy  1:12 FDA approves Phase 3 clinical trial for Masitinib as a treatment for progressive MS  4:35 Abata Therapeutics announces its first T-cell therapy candidate to treat progressive MS  7:20 Study shows aHSCT more effective than DMTs in treating secondary progressive MS  10:14 Professor Tanja Kuhlmann discusses a new framework for researching, diagnosing, and treating MS  13:51 Share this episode  26:37 Have you downloaded the free RealTalk MS app?  26:57 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/279 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Ublituximab versus Teriflunomide in Relapsing Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2201904 AB Science https://ab-science.com RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff https://realtalkms.com/205 STUDY: Hematopoietic Stem Cell Transplantation in People with Active Secondary Progressive MS https://n.neurology.org/content/early/2022/12/21/WNL.0000000000206750 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 279 Guest: Professor Tanja Kuhlmann Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

When people ask me how I go about deciding who to interview for this podcast, my answer has always been the same. I look for difference-makers. People whose efforts are making a real difference in the MS community. They might be a researcher, clinician, rehabilitation specialist, MS Navigator, fundraiser...it's a long list. A difference-maker might also be someone who motivates and inspires all of us by the way they choose to embrace life. My favorite conversation this year was with just that kind of person. And, judging from the many thousands of you who listened to that conversation and the feedback so many of you shared with me, it was one of your favorite convesations, too. In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis. For some people, that would have been the end of the story. For Tyler, it was only the beginning. We have a lot to talk about! Are you ready for RealTalk MS??! Re-visiting my favorite conversation of 2022  :23 Tyler Campbell takes us through his transformational journey from the football field to becoming a motivational and inspirational leader in the MS movement.  1:56 Share this episode  27:40 Have you downloaded the free RealTalk MS app???  28:00 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/278 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 278 Guests: Tyler Campbell Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

For me, the holiday season is a time for joy, celebration, and reflection. And when I reflect upon the advances in MS research that we've seen in the past year, it's hard not to feel encouraged. 2022 will be remembered as the year when the National MS Society published the Pathways to Cures research roadmap, a bold initiative focused on stopping MS progression, restoring lost function, and ending MS forever. I talked about this pivotal moment in the history of MS research with Dr. Carol Whitacre and Professor Alan Thompson, and they each shared their insights into what the Pathways to Cures research roadmap was all about and what this historic initiative means for people affected by MS. My conversations with Dr. Whitacre and Professor Thompson were two of the most important conversations that I had in 2022 and, as the year draws to a close, I think they're worth revisiting. We have a lot to talk about! Are you ready for RealTalk MS??! Re-visiting the publication of the Pathways to Cures research roadmap  :22 Dr. Carol Whitcare discusses how Pathways to Cures came about and what it means for people living with MS   2:36 Professor Alan Thompson discusses the current status of MS research and what has to happen next to stop MS progression, restore lost function, and end MS forever  15:17 Share this episode  32:55 Have you downloaded the free RealTalk MS app???  33:16 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/277 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 277 Guests: Dr. Carol Whitacre and Professor Alan Thompson Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Some of you might remember that at the end of October, I was in Amsterdam, attending the 2022 ECTRIMS Congress. ECTRIMS is an acronym for the European Committee for Treatment and Research in Multiple Sclerosis, and their annual scientific congress is the largest MS research conference in the world. As the conference ended, I sat on some steps outside the conference center alongside the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo. And Dr. Bebo shared his initial impressions of some of the research that had been presented over the 3-day conference.  If you missed that episode of the podcast, you may want to listen to episode number 270 of RealTalk MS After having had a few weeks to consider all of the research that was presented at the ECTRIMS Congress, Dr. Bebo is back to share his final ECTRIMS research update, and talk about the rest of the research that caught his attention at the 2022 ECTRIMS Congress. You'll also meet the Co-Chair of the MS Society Southern California chapter's Emerging Leaders Board and this year's recipient of the Dorothy Corwin Spirit of Life Award, Kristen Karasek. Kristen was diagnosed with MS at the age of 24, but, as will become clear to you, she hasn't let MS get in her way. I think you'll find Kristen's positivity to be infectious. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Part Two of our 2022 ECTRIMS research roundup with Dr. Bruce Bebo  :22 My conversation with the Co-Chair of the MS Society Southern California Chapter's Emerging Leaders Board and Dorothy Corwin Spirit of Life recipient, Kristen Karasek  1:37 The National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, discusses the research that caught his attention at the largest MS research conference in the world  16:20 Share this episode  35:21 Download the free RealTalk MS app  35:41 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/276 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 270: From the 2022 ECTRIMS Congress with Dr. Bruce Bebo https://realtalkms.com/270 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 276 Guests: Dr. Bruce Bebo, Kristen Karasek Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Nashville is a giving community and this episode celebrates some of the great work of a number of amazing charities and nonprofit organizations both in Nashville and across the country. RJ Curtis is The Executive Director of The Country Radio Inc. which puts on one of the best conference events ever-Country Radio Seminar and he highlights the stellar work of St. Jude Hospital. Check them out here. https://www.stjude.org Martha Earls is a powerful artist manager in music city with one of the fastest rising stars in Kane Brown on her roster and she highlights two organizations-Oasis Center from Nashville https://oasiscenter.org and the Boys and Girls Club nationally https://www.bgca.org. Artist Russell Dickerson proudly supports cult2vate https://www.cul2vate.org  and amazing Artist Manager Kerri Edwards with her roster including Luke Bryan and Cole Swindell asks your support of The MS Society https://www.nationalmssociety.org