Podcasts about National Multiple Sclerosis Society

Last week, the National Multiple Sclerosis Society and the European Committee for Treatment and Research in Multiple Sclerosis convened a meeting in Dublin, Ireland, to dive deeper into what a new framework for describing MS might look like.   There's still a tremendous amount of work to be done here. But, considering that whatever language is eventually adopted will affect every person living with MS, I want to keep you fully informed on this important work. So I'm devoting this entire episode of the podcast to sharing conversations I had with three of the attendees at the meeting in Dublin.    First, you'll hear from Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research. Then, you'll hear from Dr. Daniel Ontaneda, a neurologist specializing in MS at the Cleveland Clinic, and, finally, you'll hear from Kathy Smith, who's lived with MS for the past 20 years.   As you listen to these conversations, I think you'll hear three slightly different perspectives, but you'll also hear some of the broad concepts and ideas around which there was a high level of agreement at our meeting. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: A meeting to discuss moving to a biologically based description of MS  :22 Dr. Bruce Bebo discusses how a new framework for describing MS could impact MS research and people living with MS  3:45 Dr. Daniel Ontaneda describes some of the shortcomings of the current MS course descriptors and discusses how a new framework for describing MS could impact   people living with MS  17:34 Kathy Smith explains how current MS course descriptors fail to fully capture her experience as someone living with MS, and explains how new course descriptors could benefit people living with MS  26:24 What's next in the work to develop new course descriptors for MS  35:20 Share this episode  35:44 Have you downloaded the free RealTalk MS app?  36:03 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/403 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279 RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 403 Guests: Dr. Bruce Bebo, Dr. Daniel Ontaneda, Kathy Smith Privacy Policy

In this episode of the Nonprofit Leadership Podcast, host Rob Harter welcomes Tim Coetzee, CEO of the National Multiple Sclerosis Society, to discuss the ...

Welcome to the award-winning The Hill Country Podcast. The Texas Hill Country is one of the most beautiful places on earth. In this podcast, Hill Country resident Tom Fox visits with the people and organizations that make this the most unique area of Texas. This week, Tom welcomes Dr. Alan Peterson back to discuss their mutual passion for the MS 150 bike ride, a major National Multiple Sclerosis Society fundraiser. Alan shares the historical context of the event, which began in Minneapolis in 1980 and is now most prominent in Texas. The ride has raised over $1.3 billion for MS research. Alan reveals his motivation for participating in the event, rooted in his mother's battle with the disease. He emphasizes the significant advancements in MS treatments funded through these initiatives and touches on the unique experiences of the ride, including the camaraderie at La Grange and the multiple routes participants can choose from. Alan and Tom also reminisce about their past participation and the importance of individual and corporate sponsorships in making the event successful. Key highlights: Overview of the MS 150 Details of the MS 150 Trek The La Grange Experience Fundraising Efforts and Impact Resources: Alan Peterson Facebook Page Nancy Huffman Fine Art Other Hill Country Focused Podcasts Hill Country Authors Podcast Hill Country Artists Podcast Texas Hill Country Podcast Network Alan Peterson QR Code for Donation

Do you know someone living with Multiple Sclerosis? This week is MS Awareness Week and currently 2.9 people in the world have MS. Multiple sclerosis (MS) is a chronic autoimmune disease that affects the central nervous system (brain and spinal cord). RAGBRAI Ride Director Matt Phippen is one of those people living with MS. On this special episode, Matt talks about his MS journey. We also have special guests: Matt's physician, Dr Hughes who is the Medical Director at MercyOne Neurosciences, and also Kathleen O'Donnell, the Upper Midwest Chapter President of the National Multiple Sclerosis Society. https://www.nationalmssociety.org/ Bike MS: https://events.nationalmssociety.org/index.cfm?fuseaction=cms.page&id=1232&language=en RAGBRAI Gives: https://ragbrai.com/gives/ Registration for RAGBRAI LII is open! www.ragbrai.com Watch, or listen on our Just Go Bike YouTube channel. https://www.youtube.com/@JustGoBikePodcast Have a topic for a future episode? Message us at justgobikepodcast@gmail.com.

In this episode of the Health and Wellness Coach Journal Podcast, Dr. Jessica Singh interviews Liz Kiniry, NBC-HWC, a National Board Certified Health and Wellness Coach who specializes in working with clients living with multiple sclerosis. Liz's journey into coaching was shaped by her background as a chef, her passion for health and wellness, and personal experiences with chronic disease in her family. She worked as a coach with the National Multiple Sclerosis Society and coaches in private practice, helping people build confidence, resilience, and strategies for managing their health. In her conversation with Dr. Singh, Liz shares how she transitioned into coaching and the unique role health and wellness coaches have in supporting individuals with MS. Together, Dr. Singh and Liz explore the challenges that people with MS face. Liz shares coaching insights, discussing the importance of active listening, meeting clients where they are, and helping them navigate challenges. Liz also highlights how coaches serve as a vital bridge between patients and healthcare providers, empowering individuals to implement medical guidance in a way that aligns with their unique situations, values, and goals. Listen in to learn how health and wellness coaches can support for people with multiple sclerosis, become an integral part of the healthcare team, and foster empowerment in the face of life's challenges. For detailed show notes, resources, and information to connect with Liz Kiniry, visit: https://www.centerforhealthandwellnesscoaches.com/blog/how-coaching-can-benefit-people-with-multiple-sclerosis-featuring-liz-kiniry For more information about multiple sclerosis, visit the National Multiple Sclerosis Society: https://www.nationalmssociety.org/ To be notified of new episodes, subscribe here: https://www.centerforhealthandwellnesscoaches.com/stay-connected Timestamps: 0:00 – Introduction1:05 – Liz's Journey To Becoming A Coach3:02 – How Liz Became A Coach For People With Multiple Sclerosis7:35 – Multiple Sclerosis 10112:37 – How Coaching Can Benefit People With Multiple Sclerosis16:39 – Coaching Bridges Gaps In Healthcare24:33 – Navigating MS: Building Care Teams & Finding Resources 27:32 – MS Challenges: Understanding The Journey33:09 – Liz's Experience Of Fulfillment Through Coaching39:17 - Takeaways

Lisa Johnson serves as the CEO for Girl Scouts of Southeast Florida, which serves over 10,000 members in Broward, Palm Beach, Martin, St. Lucie, Indian River and Okeechobee Counties. She has worked in non-profit leadership for 33 years, working with the American Red Cross and the National Multiple Sclerosis Society before coming to Girl Scouts in 1996. She is the Immediate Past Chair for the Girl Scouts of Florida Association and serves on multiple Girl Scouts of the USA Committees.

In this unique episode, we bring together two sets of twin brothers - Alex and Elliott Perry host Jonathan and Rob Rosenberg - for an intimate discussion about the special bond between twins. Through games, stories, and candid conversation, they explore how their twin relationships have shaped their lives, from navigating childhood moves to building successful businesses. The brothers discuss the unwritten rules between twins, like never letting romantic interests come between them, and share how they've maintained their close bonds while developing individual identities. Both sets of twins reveal the challenges and advantages of having a built-in best friend, including their experiences with competition, shared friend groups, and being mistaken for each other. The episode offers unique insights into twin dynamics while celebrating the power of sibling relationships.About Our Featured Charity:This season, Alex Perry On Fire is making a monetary contribution to each guest's charity of choice. The Rosenberg twin's charity isNational Multiple Sclerosis Society. The National Multiple Sclerosis Society is a nonprofit organization dedicated to advocating for individuals with multiple sclerosis (MS) and funding research to find a cure. It also provides support services and resources to improve the quality of life for those affected by MS.Your turn to start the fire.Like what you heard today on Alex Perry on Fire? Tell us about it. Want to share what has helped you on your journey? We want to hearabout that, too.Comment on social, DM us or give us a call.Instagram:@alexperryonfire   TikTok:@alexperryonfireCall: 214-506-8023

Tim Coetzee, CEO of the National Multiple Sclerosis Society, brings a unique view on the intersection of science, policy and community care in tackling this widespread and complex disease. Tim joins Greg to discuss the vital role of partnerships in creating meaningful resources and services for the MS community, and how the Society is building these connections.

CATHERINE FILLOUX (BOOK) is an award-winning playwright who has been writing about human rights and social justice for twenty-five years.  Filloux is the librettist for three produced operas, NEW ARRIVALS (Houston Grand Opera, composer John Glover), WHERE ELEPHANTS WEEP (Chenla Theatre, Phnom Penh, Cambodia, composer Him Sophy) and THE FLOATING BOX (Asia Society, New York City, composer Jason Kao Hwang).  WHERE ELEPHANTS WEEP was also broadcast on national television in Cambodia, and THE FLOATING BOX was a Critic's Choice in Opera News and is released by New World Records.  Catherine is the co-librettist with composer Olga Neuwirth for the opera ORLANDO, which premiered at Vienna State Opera. In development:  Thresh's L'ORIENT (composer Kamala Sankaram, choreographer Preeti Vasudevan); MARY SHELLEY (composer Gerald Cohen, dramaturg Cori Ellison, Black Tea Music).  Her plays have been produced around the U.S. and internationally.  She has been honored with the 2019 Barry Lopez Visiting Writer in Ethics and Community Fellowship; the 2017 Otto René Castillo Award for Political Theatre; and the 2015 Planet Activist Award.  JIMMY ROBERTS  (MUSIC & LYRICS) composed the music for I LOVE YOU, YOU'RE PERFECT, NOW CHANGE, second longest running Off Broadway musical in New York theater history. Written with playwright Joe DiPietro, I LOVE YOU received both the Drama Desk and Outer Critics Circle nominations as Best Musical. It has since played in fifty states, twenty-five countries around the world, and is a major motion picture in Hong Kong. His second Off Broadway musical, THE THING ABOUT MEN, won the 2003 New York Outer Critics Circle award for Best Musical. Jimmy's songs were featured in two other Off Broadway shows: A…MY NAME IS STILL ALICE and PETS! His children's musical, THE VELVETEEN RABBIT, toured the United States for well over a decade. Jimmy is also a sought-after performer. In entertaining programs that combine classical and popular music, he has appeared at Merkin Concert Hall, the Time Warner Center, the 92nd Street Y, Steinway Hall, and the National Arts Club. A graduate of the Manhattan School of Music, where he studied with noted pianist, Constance Keene, Jimmy Roberts is also a poet, whose work has appeared often in the New York Times Metropolitan Diary, as well as TROLLEY, the journal of the NYS Writers Institute. JOHN DAGGETT (BOOK & ADD'L LYRICS) is a differently-abled actor who has starred Off-Broadway in the critically acclaimed plays LEMKIN'S HOUSE, TEAHOUSE OF THE AUGUST MOON, and LOVE LEMMINGS.  Other New York credits include: ROME, PORTRAIT OF A PRESIDENT, AN ARTIST'S LIFE, THE WITCHES TRIPTYCH, and his one-man show FLYING BY THE SEAT OF MY PANTS (Theatre Row).  Regional: Guthrie, Merrimack Rep, Jewish Repertory Theatre, Portland Stage, Roxy Theatre, Odyssey Theater, Kavinoky Theatre and H.T.Y.  Numerous roles for Pennsylvania Shakespeare, Orlando Shakespeare, Shakespeare in Delaware Park, Lake Tahoe Shakespeare and Sherwood Shakespeare.  John served as a member of the Government Relations Committee of the National Multiple Sclerosis Society. Welcome to the Big Dipper What defines home, family, and identity? Joan Wilkes confronts these questions when she must sell The Big Dipper Inn, near Niagara Falls in upstate New York, known for its music and African American heritage. She's all set to sign the contract when a blizzard lands a group of Amish folks and a busload of men in dresses on her doorstep. For three days and nights, they wait out the storm. Cultures clash, romance crackles, and Joan struggles for answers, as a houseful of strangers becomes an unexpected community.

Established in 2022 under the Ministry of Community Development, the National Multiple Sclerosis Society (NMSS) is an Abu-Dhabi based NGO created to better the lives of people living with Multiple Sclerosis (MS) and their communities in the UAE through education, advocacy and advancing global efforts to finding a cure for MS. Listen to #Pulse95Radio in the UAE by tuning in on your radio (95.00 FM) or online on our website: www.pulse95radio.com ************************ Follow us on Social. www.instagram.com/pulse95radio www.facebook.com/pulse95radio www.twitter.com/pulse95radio

D.C. Anderson is a film/tv and theater actor raised in Elyria, Ohio and based in New York. Film/tv roles include Mariama Diallo's MASTER, Judy Sam Roman's RICH BOY RICH GIRL, Joseph Cedar's NORMAN, Nathan Adloff's MILES, Kevin Arbouet and Judy San Roman's FAIR MARKET VALUE and television's BILLIONS, EXTRAPOLATIONS, THE ENEMY WITHIN, THE BLACKLIST, LADY BLUE and THE MYSTERIES OF LAURA. Theatre credits include Broadway's THE PHANTOM OF THE OPERA and Off Broadways QUEEN OF THE MIST and STORYVILLE. National tours of THE PHANTOM OF THE OPERA, MARTIN GUERRE, THE LIFE AND ADVENTURES OF NICHOLAS NICKLEBY. Regional acting work with the Guthrie, Steppenwolf, Goodspeed, Great Lakes Shakespeare Festival, Ogunquit Playhouse, Florida Studio Theatre, Northlight, Skid Road Theater, Conservatory Theater, Apollo Theater and Wellfleet Harbor Actor's Theater companies, Penobscot. Developmental projects at Rep Theater of St Louis and Asolo Rep. Projects include FOUNTAIN, THE DISAPPEARING MAN, THE ASTONISHING TIMES OF TIMOTHY CRATCHIT and DUST AND SHADOW. His first theatrical performance was as Gideon's young son, Jether, in GIDEON by Paddy Chayefsky at the Black River Playhouse. High school theater followed: 'Sancho' in MAN OF LA MANCHA, 'Tevye' in FIDDLER ON THE ROOF. Then came college at Baldwin Wallace College (now Baldwin Wallace University) : 'John' in THE LION IN WINTER, 'Tom' in THE GLASS MENAGERIE, 'Curly' in OKLAHOMA, 'El Gallo' in THE FANTASTICKS, 'Pavlo' in THE BASIC TRAINING OF PAVLO HUMMEL. Graduate School: 'Frank Strang' in EQUUS, 'Proteus' in TWO GENTLEMEN OF VERONA. D.C. has 13 full length albums of original songs and covers available for listening and purchase on internet music services including FOOL MOON, TIME WAS, YOU WERE THERE, THE BOX UNDER THE BED, ALL IS CALM ALL IS BRIGHT, I AM STILL, BALLAD, OUR STORY, BLUE SUMMER DAY, CLOSE COMPANIONS, COLLECTED, SARASOTA and HOUSE CONCERT (2022). In 2023 he will release I ONCE WAS CLAY. He was also the man behind the very first Broadway Cares/Equity Fights AIDS benefit Christmas recording - 1993's CABARET NOEL. His next benefit recording project was for the National Multiple Sclerosis Society in 2010 - it's called 'IN MY ROOM'. Click for CD info, including tracks, artists' bios, etc. Listen on Spotify, Apple and YouTube

In this "Ask the Expert" episode titled, "Self Identity and Finding Meaning Following Diagnosis," Krissy Dilger of SRNA spoke with Susan Y. Wegener, LCSW, a licensed clinical social worker, about coping with a chronic diagnosis and its emotional adjustments, referencing Kübler-Ross' stages of grief [00:03:45]. Susan discussed the importance of self identity transformation post-diagnosis and the need for patience and self-compassion in finding new ways to move forward [00:08:34]. The value of inner strength, setting priorities, and support groups for reducing isolation and fostering compassion was emphasized [00:15:20]. The discussion concluded with a focus on post-traumatic growth, highlighting greater life appreciation and mental flexibility as key coping strategies [00:16:01]. Susan Y. Wegener, LCSW is a licensed clinical social worker who maintains a private psychotherapy practice in Austin, TX. Her clinical practice specializes in work with individuals coping with chronic medical diagnoses. She completed her undergraduate degree, in Psychology, from Skidmore College, Saratoga Springs N.Y., 1993 and her graduate degree, in Social Work from Columbia University, New York City in 1995. In addition to her private practice, she has worked in multiple medical settings throughout her career and helped to empower and support individuals from diagnosis through the adjustment process. She became a Partner in Care for the National Multiple Sclerosis Society in 2017 and is passionate about her work with individuals diagnosed with MS and various other neurological diagnoses. In her free time, she enjoys singing in a local chorus, cooking, swimming, and spending time with her family. Please see the following link to her workbook “Hold on to Hope.” https://www.amazon.com/Hold-Hope-Overview-Strategies-Chronic/dp/1512218715 00:00 Introduction to the Podcast 00:37 Meet the Expert: Susan Wagner 01:00 Coping with a Chronic Diagnosis 01:47 The Emotional Adjustment Process 05:36 Understanding Self Identity Post-Diagnosis 08:34 Dealing with Denial 10:39 Coping Strategies for Shifting Self Identity 14:08 Finding Meaning and Purpose 14:26 Exploring the Impact of Diagnosis 15:25 Reflecting on Values and Strengths 16:06 Coping Strategies for Finding Meaning 16:29 The Role of Relationships and Support Systems 18:05 Prioritizing Self-Care and Realistic Goals 20:04 Finding Meaning in Suffering 20:15 The Concept of Post-Traumatic Growth 24:52 The Importance of Stillness and Self-Compassion 28:31 Mental Flexibility and Creative Thinking 30:02 Conclusion and Final Thoughts

On this episode of The Living Strong Podcast, Kym is joined by Julie Leggett, President of the Ohio chapter of The National Multiple Sclerosis Society to discuss her work and visions of a MS free future.

Tyler Susko, Ph.D., knows a thing or two about walking a mile in the shoes of people with walking difficulties. So much so, he is making their experiences better… one step at a time. Tyler is the Chief Technology Officer and Founder of Cadense, the company that's revolutionizing the way the world thinks about adaptive footwear. We mean, that's what happens when a person with mechanical engineering expertise and a compassionate heart pursues his passions and builds a team that combines robotic design, neurorehabilitation, and functional biomechanics. They create groundbreaking adaptive solutions like Cadense Adaptive Shoes. Join us for this episode of A Couple Takes on MS Podcast as we sit down and have an engaging conversation with Tyler about his work that is impacting so many people's lives. Tyler, who earned his Ph.D. in Mechanical Engineering from MIT, has focused on developing mobility products for people with disabilities for over a decade. He is an active professor of teaching at UC Santa Barbara where he teaches nine courses in product and machine design. In our chat with Tyler, we step into everything from the: • Cutting-edge science behind Cadense Adaptive Shoes • New form of robotic gait therapy—the MIT Skywalker—he designed, fabricated and tested while at MIT • High school experience Tyler had that sparked his commitment to improving the quality of life for people with movement challenges • Vision he has for the future of adaptive technologies Here are links to sites to help you continue this conversation: • Cadense – Website for Cadense, where you can learn more about the shoes and their adaptive technology, reviews of the shoes, and ways that you can order them. • Shoes for Drop Foot: Help Prevent Trips/Falls with these shoes for foot drop! – YouTube video where Dr. Gretchen Hawley, physical therapist and MS-certified specialist, evaluates the impact of Cadense Adaptive Shoes on people's waling abilities. • How Multiple Sclerosis Affects Gait and Walking – Article from the National Multiple Sclerosis Society that looks into how the disease causes challenges with walking and the strategies people can use to improve their gait and movement. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

From Episode 350 of the RealTalkMS podcast with John Strum from the National Multiple Sclerosis Society. May 2024There are more than 20 disease-modifying therapies available to treat MS today. Some are considered high-efficacy, some are considered moderately effective, and each has its own risk profile and side effects to consider. So, how do you choose?How much homework should someone living with MS do? Where should you look for reliable information? And what if you and your neurologist don't necessarily agree?Dr. Barbara Giesser joins John Strum of the RealTalkMS podcast from the National Multiple Sclerosis Society to talk about your role when it comes to choosing the right DMT through shared decision-making with your neurologist. An internationally recognized clinician and award-winning educator, Dr. Giesser has specialized in the care of people with multiple sclerosis since 1982, a full decade before there was even a single disease-modifying therapy available to treat MS.Listen to learn more.https://www.pacificneuroscienceinstitute.org/brain-health/conditions-treatment/multiple-sclerosis/Consultation: https://www.pacificneuroscienceinstitute.org/brain-health/schedule-a-consultation-multiple-sclerosis/Clinic: 310-582-7613

Dr. Adrienne Boissy, MD, MA, is a pioneering executive in healthcare innovation, currently serving as the Chief Medical Officer of Qualtrics, an experience management company. She is also a staff neurologist at the Cleveland Clinic and is the former Chief Experience Officer there. During her tenure, she led transformative global initiatives to enhance the experience of humans who touch healthcare, introducing evidence-based communication skills training that redefined patient experience standards, novel metrics, best practice implementation, and research. Dr. Boissy's impact extends to fostering global dialogue as the prior co-chair of the Empathy and Innovation summit, the largest independent summit on patient experience in the world, and as Editor Emeritus of the Journal of Patient Experience. She is also a frequently sought speaker and accomplished author, known for her insightful publications on patient experience innovation, consumerism, telehealth, empathy, and burnout. With a strong academic foundation, earning her Doctor of Medicine from Penn State College of Medicine, a bachelor's degree from Boston University, and a Master's in Bioethics from Case Western Reserve University, Dr. Boissy embodies a holistic approach to healthcare. She has received prestigious grants from the National Multiple Sclerosis Society and the Arnold P. Gold Foundation, furthering her dedication to ethical and humanistic healthcare. Dr. Boissy's influence as a speaker and thought leader is evident in her TED talks and publications featured in renowned outlets, like The Wall Street Journal and Forbes, showcasing her relentless pursuit of improving the patient and provider experience on a global scale. Join us as we explore Dr. Adrienne Boissy's multifaceted contributions to neurology, bioethics, and experience in healthcare. Welcome, Dr. Boissy!

In Episode 77, Dan (and he admits it) was struggling cognitively. But was his scatteredness because he was tired? Age? Doing too much? Living with Multiple Sclerosis? In response to these questions, we can answer potentially, maybe, possibly and perhaps. It's hard to tell what the cause was, but MS seems to lead the pack in reasons why. It turns out that cognitive problems are a common issue of MS, affecting 40 to 60% of people at some point in their disease course. These problems can vary from person to person. According to the National Multiple Sclerosis Society, some common cognitive deficits include:  • Learn and remember information • Process incoming information • Organize, plan, problem-solve and make decisions • Focus, maintain and shift attention • Act on information and communicate it to others • Find words • Relate visual information to the space around you (accurately perceiving your environment) • Perform calculations Join us for this episode as we open up about the cognitive challenges we each have encountered and brainstorm (pun totally intended) about what the underlying reasons for our involuntary missteps in mindfulness. Here are links to the sites we discussed in our conversation: Comprehending cog fog • What is Cog Fog (Cognitive or Brain Fog) and How to Deal with This MS Symptom – Link to Healthline article that addresses the science behind this reality and tips to see your way through the fog. • Can Stimulants Help With MS Fatigue? – MyMSTeam article about using stimulants to provide energy and manage MS fatigue. And then there is this (ugh, because I AM getting older) • Many women have cognition issues during menopause – UCLA Health Q & A that provides insights and advice to a patient asking about hormone replacement therapy in dealing with menopause. So, with MS and age, how do we keep sharp? • Tips for dealing with memory and thinking problems – Story from MS Society UK that offers simple ways and exercises to improve your memory and thinking skills. • How Does Cognitive Rehabilitation for MS Work? 4 Ways It Can Help – Article from MyMSTeam that highlights a type of therapy that can help boost your memory, attention, and processing of information. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Not every person could seamlessly tie together the concepts of Step Therapy Reform and the Crap Gap. You just need to leave it to A Couple. Because to us it makes perfect sense to connect: • A bill in the Michigan House of Representatives that will ensure people with Multiple Sclerosis can get the medications they need without detrimental delays to • The stretch between disease-modifying therapy (DMT) infusions when MS symptoms seemingly feel worse. Seriously. We originally thought we were just run down from doing so much over the last several weeks — from traveling to Columbus, Ohio, for a Bruce Springsteen concert to participating in a Walk MS event in Frankenmuth, Dan hurting his back while transferring Jennifer, and everything else we do to make it through each day. Then we realized we each were within several weeks of our scheduled DMT infusion. Could our exhaustion be a direct result of this supposed Crap Gap? Speaking of DMT infusions and the Crap Gap, we capped off our busy few weeks with the virtual MS State Action Day for the National Multiple Sclerosis Society where we addressed legislation for Step Therapy Reform in the State of Michigan (Hint: MS DMTs often are the targets for step therapy). Join us for this conversation where we tackle these topics and offer insights into how our listeners who live in Michigan can get involved in advocating for Step Therapy Reform. Here are links to the sites we discussed in our conversation: • Support Step Therapy Reform – Link for Michigan residents to contact your State Representative urging them to support HB 5339 so individuals living with MS can have access to their doctor-prescribed medications in a timely manner. • What Is the ‘Crap Gap' Between MS Infusions? – MyMSTeam article describing this experience when MS symptoms feel worse in weeks leading up to a DMT infusion. • Talking about the Crap Gap – AnCan Multiple Sclerosis Virtual Support Group, which Jennifer serves as a moderator, recording where members discuss the Crap Gap (among several other engaging topics). • How Springsteen softened this Wolverine to embrace the Buckeye State – Get insights into why Jennifer is emotionally conflicted after what likely is the Bruce Springsteen concert she's ever seen… it just happened to be in Ohio (IYKYK). • Hoyer Lift – Information about the medical equipment we used to transfer Jennifer into and out of bed while Dan recovered from injuring his back. • Stand assist lift devices – Information about the medical equipment we used to transfer Jennifer in the restroom while Dan recovered from injuring his back. • Frankenmuth Walk MS – Learn more about this event and how you can donate to support our team – Team MonsterS. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Since her MS diagnosis in September 2019, Brittany Quiroz—also known as a “A Hot MS”— has been a powerful voice in the Multiple Sclerosis community. Brittany is an author, speaker, MS activist and a talented singer/songwriter. Whew! Did we say she's a powerful voice? She figuratively AND literally is! Her recently released single “Never Have My Soul” is a powerful, empowering and inspirational masterpiece that encapsulates the triumph every person living with MS strives for each day. We are thrilled to share a snippet of her single to kick off our engaging and point-blank honest conversation with Brittany. Join us as we get a glimpse into the matter-of-fact and motivational mind of A Hot MS. Hear what led to her diagnosis, what keeps her going and why she encourages others to, “Celebrate Your Mess!” Here are links to the sites we discuss in our chat with Brittany: • “Never Have My Soul” – Follow this link to purchase and download Brittany's single, which she is generously donating all of its proceeds back to the National Multiple Sclerosis Society. • A Hot MS – Catch up with Brittany through her website. • All The Odds ­– Catch this podcast to listen in on Brittany's conversations with others who have risen above the challenges they're facing. ***** Remember to rate, review and subscribe to A Couple Takes on MS Podcast for two insightful perspectives on this one multifaceted disease.

Multiple sclerosis (MS) is the most common, though complex, disabling neurological disease in young adults, starting as early as age 20. Worldwide, there are over 2.8 million people with MS, and in the United States, nearly 1 million. According to National Multiple Sclerosis Society multiple sclerosis is a disease that impacts the brain, spinal cord, and optic nerves, which make up the central nervous system and controls our muscle functions. While the exact cause of MS is still not clear we do know that “something” triggers the immune system to attack the central nervous system. Researchers may now have found this “trigger”! Gut dysbiosis is common in MS, but until now no specific causative species was identified as a possible “trigger”. Now several studies have been published strongly suggesting Clostridium perfringens strains (Type B) in the gut are biologically plausible pathogens in MS that trigger inflammatory demyelination of the nerves! The strains of this opportunistic pathogen are known to secrete over 20 identified toxins. We will discuss this amazing breakthrough and offer a safe and REAL answer to this horrible disease.

Multiple sclerosis (MS) is the most common, though complex, disabling neurological disease in young adults, starting as early as age 20. Worldwide, there are over 2.8 million people with MS, and in the United States, nearly 1 million. According to National Multiple Sclerosis Society multiple sclerosis is a disease that impacts the brain, spinal cord, and optic nerves, which make up the central nervous system and controls our muscle functions. While the exact cause of MS is still not clear we do know that “something” triggers the immune system to attack the central nervous system. Researchers may now have found this “trigger”! Gut dysbiosis is common in MS, but until now no specific causative species was identified as a possible “trigger”. Now several studies have been published strongly suggesting Clostridium perfringens strains (Type B) in the gut are biologically plausible pathogens in MS that trigger inflammatory demyelination of the nerves! The strains of this opportunistic pathogen are known to secrete over 20 identified toxins. We will discuss this amazing breakthrough and offer a safe and REAL answer to this horrible disease.

Top headlines for Tuesday, February 20, 2024In today's episode, we first delve into the U.S. Department of State's plan to implement President Biden's executive order promoting equity throughout the federal government – a move that also aims for advancing gender equality. We'll then discuss a complex issue where the National Multiple Sclerosis Society dismissed a volunteer over a misunderstanding about email pronouns – a decision creating ripples in discussions about diversity and inclusion. Next, we scrutinize the controversy surrounding rapper Kanye West's self-proclaimed title as the new Jesus in his recent album 'Vultures 1' and the backlash it has stirred. Lastly, we share an interview with Michael Wear, former Obama administration official, offering perspective on the current political climate in the U.S. and its impact on Christian communities. Subscribe to this PodcastApple PodcastsSpotifyGoogle PodcastsOvercastFollow Us on Social Media@ChristianPost on TwitterChristian Post on Facebook@ChristianPostIntl on InstagramSubscribe on YouTubeGet the Edifi AppDownload for iPhoneDownload for AndroidSubscribe to Our NewsletterSubscribe to the Freedom Post, delivered every Monday and ThursdayClick here to get the top headlines delivered to your inbox every morning!Links to the NewsState Dept. releases foreign policy 'equity action plan' | Politics NewsMS Society forces 90-y-old volunteer out over trans pronouns | U.S. NewsKanye West claims to be 'the new Jesus' in new album | Entertainment NewsIran targeted Bible distributors during 2023 wave of arrests | World NewsUK Parliament raises questions about conversion therapy ban | World NewsPresidents Day: 7 myths about George Washington | U.S. NewsChurch of England to tackle parishioners ‘bullying' clergy | Church & Ministries NewsMichael Wear on whether Biden will run 'post-Christian' campaign | Politics News

Blackened American History Part 4 - Our Fried Banana RepublicWebsite: http://www.battle4freedom.comNetwork: https://www.mojo50.comStreaming: https://www.rumble.com/Battle4Freedomhttps://www.dailymail.co.uk/news/article-13088097/Japan-volcano-erupts-ash-cloud-boulders-residents-warned-evacuate.htmlJapanese volcano erupts, sending ash cloud 16,000ft into the air and launching boulders nearly a mile as residents are warned they may have to evacuateSakurajima, in the south of the country, began erupting on Wednesday eveninghttps://www.dailymail.co.uk/news/article-13082897/teen-shoots-dad-brother-urge-kill-nevada.htmlNevada girl, 17, shoots dead her dad and four-year-old brother while her toddler sister cowers in a locked bedroom and then tells cops: 'I just couldn't resist the urge to kill somebody'Mashenka Ann Marie Reid is accused of killing her dad and brother and attempting to kill her two-year-old sisterShe told police she was depressed about her mom running off and had become frustrated with her brother's screamingThe teen also told officers she had been watching YouTube videos which gave her thoughts about torturing peoplehttps://www.dailymail.co.uk/news/article-13087353/student-arrested-planning-shooting-southern-california-high-school.htmlColumbine-obsessed California boy, 18, is arrested 'for plotting school shooting with six intended targets on 25th anniversary of Colorado school bloodbath, after researching how long it would take cops to arrive'https://www.dailymail.co.uk/news/article-13089591/fbi-informant-charged-hunter-joe-biden-burisma.htmlFormer FBI informant CHARGED with lying about Hunter and Joe Biden getting $5 million bribes from Burisma and faces 25 YEARS in prisonSpecial counsel David Weiss charged Alexander Smirnov with lying about Biden after he became a presidential candidate Smirnov was arrested at the airport in Las Vegas on ThursdayThe charges undercut the Republican claims of Biden benefitting financially from his son's business dealings in Ukrainehttps://www.dailymail.co.uk/news/article-13088701/biden-student-loans-forgiven-president-debt.htmlBiden announces MORE Americans could have their student loans forgiven: Here's who would qualify as the president moves to add to the $136.6 billion in debt he has already wipedDraft proposal outlines outlines who would qualify due to financial hardshipProposal could provide relief for 'tens of millions of student loan borrowers'Biden administration going through rulemaking process to cancel student loan debt after Supreme Court struck down original planhttps://www.dailymail.co.uk/news/article-13086191/California-woman-90-FIRED-MS-nonprofit-pronouns.htmlElderly California woman, 90, FIRED from her volunteering position of 60 years at MS nonprofit because she 'did not understand pronouns' despite previously winning multiple awardsFran Itkoff, 90, says she was forced to step down from the National Multiple Sclerosis Society because she did not understand what pronouns meant Itkoff had volunteered for the nonprofit support group for multiple sclerosis patients for 60 yearsAn email from the group accused her of violating the MS Society's Diversity, Equity, and Inclusion guidelineshttps://www.dailymail.co.uk/yourmoney/article-13090511/Americas-tax-refund-worker-receive-IRS-2024.htmlAmerica's tax refund shock: Average worker to receive 29% LESS this year from the IRS - so how much should you expect?The average refund check through February 2 is worth $1,395 this year, 29 percent less compared to the $1,963 received on average last year The IRS does not appear alarmed, noting 'a strong start to filing season 2024'The tax season started on January 29, seven days later compared to last yearhttps://www.dailymail.co.uk/news/article-13085999/Putin-Tucker-Carlson-interview-softball-questions.htmlPutin complains that fired Fox News host Tucker Carlson asked 'softball' questions in interview that left Russian leader 'unsatisfied'https://tuckercarlson.com/the-vladimir-putin-interview/The Vladimir Putin Interview

This episode released on Valentine's Day so of course it embraces a theme related to maintaining loving relationships when you or your significant other are living with Multiple Sclerosis. Just think about it: all committed relationships present their share of challenges. Throw a chronic progressive disease into the mix, and this love connection suddenly presents a different sort of sclerotic dynamic. This disease literally has a lot of nerve tangling up these loving relationships! Join us as we – A Couple Takes on MS – offer our perspectives and tips into what it takes to build and strengthen a caring and committed relationship when MS (or any other challenge for that matter) tries to take the focus off the love you're looking for or the love you and your partner share. We talk about the places people have found love (reminder: we met at a National Multiple Sclerosis Society event) and delve into the elements that help lead to successful relationships, including honesty, empathy, gratitude, and, yes, love. Lots and lots of love. Here are some links we reference that offer more insights into dating and loving relationships in spite of MS : • Living Well with MS/Relationships – National MS Society article • Young, Single, and Diagnosed With MS: Your Dating Questions, Answered – Everyday Health article • 10 Dos and Don'ts for Dating With Multiple Sclerosis – Marriage.com article • Intimacy and MS: Make It Your Own – MS Focus essay

The MSMilan Patient Community Day was designed for people living with multiple sclerosis and related neurological diseases and their caregivers to stay updated and involved in the advancements being made on their journey towards managing their conditions. In this episode, Tim Coetzee, Chief Advocacy, Services & Science Officer and Bonnie Higgins, Director of the National Multiple Sclerosis Society in the United States discuss their experiences at MSMilan Patient Community Day, their roles, and why they believe it is important to put people living with MS and other neurological conditions at the centre of everything that we do. 

Dr. Aviva Gaskill is another example of something which I didn't know existed until a short while ago. Dr. Gaskill is a Clinical Psychologist who specializes in treating MS patients. Not only that, she is a designated Partner in MS Care for the National Multiple Sclerosis Society.Dr. Gaskill's interest lies in the convergence of medical issues and psychology. So in this interview we talk about Depression, Anxiety, Insomnia, and Sexual Issues as they relate to MS. Links and resources:Visit Aviva Gaskill Visit PsyPactYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgymHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store2 items = $20 savings3 items = $30 savings

In our final episode with Jeremy Di Piazza, we shift focus to the man behind the numbers. Jeremy shares personal anecdotes, highlighting his passion for community service and the driving forces behind his involvement with organizations like the National Multiple Sclerosis Society in Birmingham and Fraternus Inc. We discuss the balance between a demanding professional life and community engagement and the role of values in shaping business decisions. Jeremy also offers advice for the next generation of business leaders, drawing from his rich experiences in both the banking and construction sectors. As we wrap up this three-part series, join us for an intimate conversation that melds business acumen with personal purpose, all rooted in the heart of Alabama.For more information about the Culverhouse College of Business visit our website https://culverhouse.ua.edu.Stay up to date with the collegeFacebook: https://facebook.com/culverhouseuaTwitter: https://twitter.com/culverhouseuaInstagram: https://instagram.com/culverhouseuaLinkedIn: https://linkedin.com/school/culverhouse-college-of-business

In this episode of BAMA Means Business, we talk with Jeremy Di Piazza, CFO of Hoar Construction. Before joining Hoar in 2006, Jeremy sharpened his financial acumen as EVP of a regional bank, leading significant M&A assignments and a multi-billion-dollar credit group. At Hoar, he's been pivotal in navigating financial challenges and innovating with a holding company structure that birthed five operating businesses. A proud alumnus of The University of Alabama, Jeremy's also deeply involved in community service, having chaired the National Multiple Sclerosis Society in Birmingham and currently serving as Vice Chair of Fraternus Inc. Dive in as we explore his journey, the financial dynamics of construction, and Alabama's overall business landscape.For more information about the Culverhouse College of Business visit our website https://culverhouse.ua.edu.Stay up to date with the collegeFacebook: https://facebook.com/culverhouseuaTwitter: https://twitter.com/culverhouseuaInstagram: https://instagram.com/culverhouseuaLinkedIn: https://linkedin.com/school/culverhouse-college-of-business

The annual economic burden for the nearly 1 million people living with Multiple Sclerosis in the U.S. is, wait for it … $85.4 billion. That's billion. With a “b.” The $85.4 billion, according to a report from the National Multiple Sclerosis Society, is the total cost to all of society, which includes people living with MS; employers; health insurers; and federal, state and local government. Join us for this episode of A Couple Takes on MS Podcast as we bring awareness to the high-cost realities of what it takes to live with MS and a disability. The reality is that there is nothing cheap about living with MS. Whether it's having to pay for a hotel room while visiting friends and family because their homes aren't handicapped accessible, covering costs for purchasing and maintaining a power wheelchair and accessible van, or all the added supplements and heath care products, life with MS is expensive. And we haven't even mentioned the astronomical costs for disease-modifying therapies. How astronomical? As of February 2022, the median annual price of the brand MS DMTs is close to $94,000. Six of the MS DMTs, all on market since 2009 or earlier, have increased in price more than 200% and nine DMTs are now priced at over $100,000. The sad thing is that the aforementioned figures are from studies released last year, so Lord knows how much annual increases and inflation have ballooned the costs related to having MS. And, as we note in our podcast, we aren't talking about this to complain or go on a rant; rather, it's to increase awareness about the seemingly unfair financial facts of life with MS that so many of the nearly 1 million people in the U.S. living with the disease are just expected to deal with and accept. Here are the links to the articles we discussed: • Cost of Multiple Sclerosis • The Economic Burden of Multiple Sclerosis in the United States

Welcome aboard, fellow BoatCasters! We're beyond thrilled to announce that the incredibly talented Art Alexakis of Everclear is joining us on this special Labor Day edition of the show. Art's indomitable spirit and passion for music have always been a beacon of inspiration for us, and we're sure his story will resonate with you too. So, brace yourselves for an exciting journey, as we dive deep into the world of Everclear and Art's personal resilience.Everclear, a renowned band hailing from California, has been rocking the music scene since the early '90s. With Art Alexakis at the helm as lead vocalist and lyricist, the band's unique fusion of alternative rock, grunge, and post-grunge has garnered a dedicated following. Their poignant lyrics, coupled with their dynamic, raw sound, have always held a mirror to society, making them a force to be reckoned with in the music industry. Art takes us on a deep dive into the origins of some of his most iconic songs - and could not be more excited to announce the upcoming release of their first double live album "Live at The Whiskey A Go Go".Art's journey has been one of resilience and courage, as he has been battling Multiple Sclerosis. Despite his personal struggles, his drive and commitment to his craft remain unwavering, inspiring us all. The BoatCast deeply admires Art's strength and have made a donation in conjunction with our sponsor, The FIT Collective, to support Art and others fighting this battle. For BoatCast Mark, this was particularly meaningful as his grandmother had battled MS for years.We invite our listeners to join us in this cause and help give hope and strength to those living with Multiple Sclerosis by supporting the National Multiple Sclerosis Society or Sweet Relief Musicians Fund.Check out Everclear online at: Website: https://www.everclearmusic.com/Facebook:https://www.facebook.com/everclear/Instagram: https://www.instagram.com/everclearTwitter: https://twitter.com/EverclearBandYouTube: https://www.youtube.com/@EverclearBand/featurediTunes: https://music.apple.com/us/artist/everclear/549623Spotify:https://open.spotify.com/artist/694QW15WkebjcrWgQHzRYF?si=IJilHUuaTZO0cPnJsDC-2ABandsInTown: https://www.bandsintown.com/a/612-everclear?came_from=257&utm_medium=web&utm_source=home&utm_campaign=search_barLinktree: https://linktr.ee/everclearbandThe BoatCast would like to thank our sponsors, www.TheFITCollective.com for supporting us in promoting Rock Boat Artists. If you want to get the word out about these artists and are interested in sponsoring The Boatcast, please email Chris at: ChristopherRhoad@gmail.com.

Alie takes a teeny tiny break from her vacation to reintroduce you to this laid back, super helpful fan favorite episode. Listen in for: Pomodoro timers! Bullet journals! Apps, tips, tricks and philosophies. Also: the most mellow episode ever, recorded late at night in a guest room. Like a cozy duvet of wisdom, this one is full of life hacks for remaining productive & healthy during distracting times. I asked Ologites their best strategies for keeping their brains less burdened and organizing everything from schedules to leftovers to sock drawers. In quick 5 chapters: Your Hot Bod Needs ThisHome is Where the Hard IsWrestling with Father TimeTricking Your Brain to Trick Your BrainEmo Stuff Whether you're neurotypical or not, this follow up to the ADHD series is a catalogue of strategies to make future you happier. More episode links and resourcesDonations went to the National Multiple Sclerosis Society and International Myeloma FoundationSponsors of OlogiesTranscripts and bleeped episodesSmologies (short, classroom-safe) episodesBecome a patron of Ologies for as little as a buck a monthOlogiesMerch.com has hats, shirts, masks, totes!Follow @Ologies on Twitter and InstagramFollow @AlieWard on Twitter and InstagramSound editing by Jarrett Sleeper of MindJam Media and Mercedes Maitland of Maitland Audio ProductionsTranscripts by Emily White of The WordaryWebsite by Kelly R. DwyerTheme song by Nick Thorburn

If a bill goes before Congress and you never told members how their actions will impact you, how confident are you that they will vote in your favor? As two people living with Multiple Sclerosis, this isn't a chance we're willing to take. This is why we continue to advocate for ourselves – plus the nearly 1 million other Americans who have MS – and the reason we encourage other people (like you!) to get involved. There is no better time to connect with your U.S. Senators and U.S. Representatives than when they are back in their home districts during August recess. And through the National Multiple Sclerosis Society's advocacy efforts, we have two issues – one relating to accessible air travel and one to reform access to prescription drugs – to bring to their attention. Join us for this episode of A Couple Takes on MS Podcast as we delve into the details of these issues, stress the importance of MS activism, and demonstrate how easy it is for you to get involved as an MS activist. Action items we will take to our legislators after we schedule meetings with them or their in-district legislative aides are to: Address barriers to air travel accessibility by including provisions in the 2023 FAA Reauthorization that address access standards and the DOT's complaints process for people with disabilities. Pass comprehensive pharmacy benefit manager reform this year that improves access to treatments that people need. To help get you fired up about advocacy, we open the episode reading an excerpt from Jennifer's Op Ed piece, Why Congress must pick up where the ADA got grounded with airline accessibility, that appeared in the Morning Sun newspaper. Here are the links we reference for you to follow up on: • Jennifer's Op Ed: Airline accessibility is an equal rights issue – Read the full text of Jennifer's Op Ed essay. • Barriers to air travel accessibility fact sheet – Details about the importance of addressing this issue. • Pharmacy Benefit Manager informational fact sheet – Background about why this legislation is needed • Become an MS activist – Get specifics on how you can get involves with the National MS Society as an MS activist

Heat is akin to kryptonite when it comes to many people who are living with Multiple Sclerosis. In fact, studies have shown that this “many” accounts for 80% of us all, including the two of us. Summer officially launches on June 20, and with this season of fun and sun comes heat waves and temperature spikes that challenge many in the MS community to keep their cool. Join us in this episode as we lead off with the heat-induced moment that prompted Jennifer to get “snippy” with Dan (which rarely ever happens!) and then open up the bag of tricks we use to tame the heat in the dogdays of summer. Here are some heat-related links for you to follow up on: • MS and Heat: What Heat Sensitivity Feels Like and How To Manage It ­– MyMSTeams article highlighting what you need to know to avoid heat sensitivity complications • 7 Suggestions for Summer Fun with Chronic Illness – Our essay for Mango Health that provides some of our top tips for making the most of the summer while still controlling the heat • Heat & Temperature Sensitivity – Article from the National Multiple Sclerosis Society offering insights into the reasons behinds heat sensitivity strategies to ease the effects the warm temperatures

Nearly one million people are living with MS in the United States, according to a study funded by the National Multiple Sclerosis Society. This is more than twice the original estimate and means solutions for MS are now twice as important. Researchers used to believe that Hispanics/Latinx in the United States were virtually untouched by multiple sclerosis. Studies have found that, compared to others with the disease, Hispanics/Latinx are diagnosed at a much younger age and are more likely to have more severe MS and an earlier onset of symptoms, such as mobility issues and optic neuritis. This episode, Louis and Melissa share their MS journey and educate us on how to support the National MS Society. https://www.nationalmssociety.org Learn more about your ad choices. Visit megaphone.fm/adchoices

The Big Peach Ride + Run Podcast is hosted by Big Peach Running Co. Director of Marketing, Dave “D2” Martinez. We're joined by Rachael Fenich, President of the Georgia Chapter, of the National Multiple Sclerosis Society to talk about MS and how to manage it through medication as well as through exercise and diet.

There is a lot of momentum and several firsts in this episode: • It starts with Jennifer sharing insights into her experiences modeling in Central Michigan University's Threads Fashion Show that featured accessible fashion for the first time. • It ends with the first time we feature a special guest – 8-year-old Maximus Miedema – who came to our house with a list of insightful questions to interview us about what MS is and why it's important for us to participate in Walk MS on May 13. About Threads Accessibility was in fashion at CMU, and Jennifer was part of it. “… I was included. Non-traditional 48-year-old, plus-size me. Non-walking, power wheelchair driving me. They wanted to include me. …” We discuss why this was such an incredible experience for her and other models who use assistive devices and, and we imagine how it likely was the same for all the students who designed fashionable accessible clothing. About Maximus and Walk MS What can we tell you about our 8-year-old friend Maximus? In a nutshell, he is: • A dynamic person with a kind and huge heart who has participated as a member of our Walk MS team – Team MonsterS – long before he could walk. • The son of our great friends Adam and Erica Miedema, who have joined us as members of Team MonsterS long before Maximus was born. • Among the top 25 fundraisers at last year's Walk MS in Frankenmuth, Michigan, raising a total of $1,080. Maximus gets behind the mic and turns the interview tables on us to hit us with questions as fundamental as, “What is Multiple Sclerosis?” to as hard-hitting as, “Are you guys famous at the MS Walk?” Here are the links we reference for you to follow up on: • Inside accessible fashion: My modeling moments – Take a few minutes to check out this photo/video essay to get inside Jennifer's mind as she rolled down the runway and to follow the path that made her a model. • Taking on Threads & accessible fashion – Join us for this episode of our podcast where we have an engaging conversation with Ian Mull, the Threads advisor and CMU Fashion Merchandising and Design faculty member. • Walk MS – Learn more about this National Multiple Sclerosis Society event and how you can register to participate or donate to support the effort. • Donate to Maximus Miedema – Follow this link to directly donate to our friend Maximus and help him reach his $1,000 fundraising goal for this year's Walk MS.

The ATO is proud to welcome 911 Calltaker/Police/Fire/Teletype Dispatch Supervisor Gillian Ethridge to the stage to shed some light on one of the most crucial components to the first responder world: communications. Gillian was born in Dallas in 1988 and she and her family moved to Fairfax, Virginia where she had dreams of becoming a firefighter as a teen and some of the best times of her life was when she was an explorer for the fire department. Her dream was to be in the fire department but life, as it often does, takes you down several turns that you do not wish to take.  So, she started as a 911 call taker and fell in love with the faster pace and found her niche in problem solving and critical thinking behind the headset. She applied for Dallas PD Communications as a police dispatcher in 2015 and thrived in the fast-paced city of Dallas, Texas.  But once again life took a different turn and Gillian and her new girlfriend decided to move back to Fairfax as both dove back into communications, and also dove into love as they married in 2017. Gillian promoted to supervisor in 2020 and subsequently won an award for Excellence in Supervision for her agency her first year in. Her story isn't just about call taking and dispatching, the necessity for always being the quarterback for her officers when a “tone” comes out, an inaudible shriek calling for help, or being the one that calms the airwaves as chaos erupts. This story is also about resiliency….extreme mental and physical resiliency in professional and personal life. She is dedicated to her profession, to her wife Jam, to her twin sister Dallas Detective Kristen Greene, and to the many first responders she assisted over her life. Gillian Ethridge is truly the Heart Under the Headset. What is MS? | National Multiple Sclerosis Society (nationalmssociety.org)  

Jennifer and Dan Digmann have been married since 2005 and have lived with Multiple Sclerosis throughout their relationship - Jennifer was diagnosed in 1997, Dan in the year 2000. They met at a National Multiple Sclerosis Society event in 2002, and since then, they have dedicated their lives to MS activism and helping others to live their best lives. In the final part of this two-part interview, Dan & Jennifer talk about the effect that COVID has had on their advocacy work, and their plans for the future, including their podcast and YouTube channel. We also chat about the difficulty of finding support and the opportunities that are available for younger generations with regards to advocacy.DISCLAIMERThe information contained in this podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Visit A Couple Takes on MS and listen to the podcast  Visit Dan & Jennifer's YouTube channel  Email aCoupleTakesOnMS@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programVisit MS DisruptedYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Jennifer and Dan Digmann have been married since 2005 and have lived with Multiple Sclerosis throughout their relationship - Jennifer was diagnosed in 1997, Dan in the year 2000. They met at a National Multiple Sclerosis Society event in 2002, and since then, they have dedicated their lives to MS activism and helping others to live their best lives. In the first part of a two-part interview, Dan & Jennifer share the story of their diagnosis, their relationship, and how they got started in advocacy. They also talk about the different DMTs they have taken, the equipment that Jennifer uses, and - of course - the importance of exercise.DISCLAIMERThe information contained in this podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Visit A Couple Takes on MS and listen to the podcast  Visit Dan & Jennifer's YouTube channel  Email aCoupleTakesOnMS@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

Sara Garden Armstrong: Layered Scapes February 11 – March 11, 2023 Installation View with artist at Steffany Martz, ONWARD Series 49 East 78th Street, Suite 2B, New York, NY 10075 photo credit: George Kondogianis Sara Garden Armstrong is a visual artist whose decades-long practice embraces a wide range of scales and techniques, from large site-specific sculpture to artist's books. Lyrical, nature-based biomorphic abstraction characterizes the work, focusing on life processes and systems. It addresses organic change and transformation, while exploring properties of materials. Breathing is a major concern, as are mechanical support systems of the body. Other recurrent themes are water and time, with its elements of decay, chance, and shifts of reality. Recent atrium commissions have focused on scientific phenomena and their interactions with the human condition such as the installation for the National Multiple Sclerosis Society, Alabama-Mississippi Chapter, at the University of Alabama Birmingham (UAB) Medical Center. A past recipient of a Joan Mitchell Foundation CALL (Creating a Living Legacy) grant through Space One Eleven, Armstrong has exhibited nationally and internationally for over 40 years. Her artist's books can be found in the collections of the Museum of Modern Art, New York, and the Victoria and Albert Museum, London, among others. The monograph SARA GARDEN ARMSTRONG: Threads and Layers, published in 2020, reveals the influences and concepts that run through her diverse body of work. It coincides with a traveling exhibition of the same name, incorporating site-specific work. The exhibition made its final stop at the Gadsden Museum of Art, January 2023. The Museum published a catalog documenting the history of the exhibition. Armstrong received her Master of Fine Arts from the University of Alabama and a Master of Art Education from UAB. After living in New York City for 36 years, in 2017 she returned to Birmingham, where she currently lives and works. She has recently received the 2022 Artist of the Year Award from the Birmingham Museum of Art Collectors Circle. Find her on Instagram. Layered Scape 9, 2021 Acrylic and pigmented fiber on canvas 48” x 60” photo credit: George Kondogianis Sara Garden Armstrong: Layered Scapes Installation View photo credit: George Kondogianis Sentient Matrix, installed 2014, Abaca and kozo paper fiber, acrylic, gel medium, programmable light-emitting diodes, microcontroller, aluminum, stainless steel, and PVC. Approx. 16' x 20' x 21' Photo credit: Hugh Hunter SARA GARDEN ARMSTRONG: Threads and Layers Gadsden Museum of Art November 4, 2022 – January 26, 2023 Artwork in Image: Abaca Wall Backs 1 – 4 Sprayed abaca forms, plastic hoses, incandescent lights 24” x 98” x 12” Photo credit: Savannah Lowery

These three thoughts keep going through Jennifer's mind after ever since Dan turned 50 in September: “Here we go again.” “If it is worth doing, it is worth doing again.” “Nothing worth having is easy to get.” Seeing Dan hitting the half-century mark reminded Jennifer that her 50th will be here before she knows it. This inspired her to commit to losing some weight. Join us as we have an honest discussion about the challenges that come with striving to lose and maintain a healthy weight when you're living with Multiple Sclerosis. Oh yeah, and how it's that much more difficult when you no longer are able to walk. But fear not! As we say several times in each episode, “Together, we're moving forward.” Listen to hear what is keeping us motivated (hint: it includes us flying in an airplane, Jennifer venturing into some modeling and trying a new weight loss program) to control our health and reach our targeted weight loss goals. Here are the links we reference for you to follow up on: • Managing Weight for MS ­­– This Healthline article addresses ways to maintain a moderate weight when living with Multiple Sclerosis • Noom – This is the weight loss program Jennifer is using to help her change her habits and mindset when it comes to food (and no, she isn't being compensated to talk about or mention this program) • Take Control of Your Weight – An article from the National Multiple Sclerosis Society is centered on giving insights to help you set realistic weight loss goals and manage a healthy weight

We celebrated with the Multiple Sclerosis community as TG Therapeutics announced in the final days of 2022 that the FDA approved Briumvi (ublituximab-xiiy), putting the number of available MS disease-modifying therapies to more than 25. Hooray, right? Of course! But deep down we, as A Couple Takes on MS, still felt somewhat shortchanged. We selfishly wondered, “When will the announcement come that researchers have developed something (think myelin repair) that can help fix the damage MS has caused to our nervous system over the past two decades?” Join us in this episode as we discuss the beauty of what Briumvi brings to MS treatment options and then dig into what lies beyond DMTs in the world of what's next in MS repair and treatment research. Here are the links to the resource we reference for you to follow up on: • Repairing What's Been Lost – National Multiple Sclerosis Society overview of efforts to help restore function. • Diabetes drug metformin promotes myelin repair in rats – Post from MS Society UK about research that showed how fasting and a diabetes drug had a positive impact in repairing myelin. • Promising potential of precision medicine in MS care – Post from our blog about the CureTalks online event Transforming Multiple Sclerosis Care Through Precision Medicine where we, along with fellow MS patient advocate and author Melissa Cook, served on a patent panel with Dr. Amit Bar-Or, MD.

Following the loss of her father to a drunk driver in 2009, Heather Geronemus took a leadership role with Mothers Against Drunk Driving of Broward County, ultimately becoming the chair of MADD's National Board of Directors and establishing the Annual Walk Like MADD and MADD Dash Fort Lauderdale event which has raised more than three million dollars for the organization. Heather also actively serves a myriad of other nonprofit organizations including the National Multiple Sclerosis Society, the Cystic Fibrosis Foundation, and American Heart Association. Professionally, Heather's role as Senior Director of Social Equity, Opportunity and Impact at UKG (Ultimate Kronos Group), where she drives the strategic direction of the company's global philanthropic investments and initiatives focused on accelerating equity, opportunity and impact worldwide. Heather has been with UKG (formerly Ultimate Software) for more than a decade, serving in various marketing, PR, and community relations leadership roles.To learn more about the Walk Like MADD & MADD Dash Fort Lauderdale 5K, visit:Website: http://www.walklikemadd.org/fortlauderdaleIG: https://www.instagram.com/madddash5k/Twitter: https://twitter.com/madddashTo learn more about UKG philanthropy and volunteering, visit:https://www.ukg.com/about-us/esg/ukg-philanthropy-and-volunteeringFor more information on the Jason Taylor Foundation, visit:www.JasonTaylorFoundation.orgTwitter & Instagram: @JTFoundation

It's one thing to connect with a mental health provider when you're living with a chronic medical condition, but it's even better when you find one who truly understands the realities you're facing. Dr. Meghan Beier gets it, and the psychologist at Johns Hopkins University School of Medicine (who specializes in Multiple Sclerosis) is on a mission to improve this level of provider understanding. Join us as we have a conversation with Dr. Beier about her passion for improving care for people living with challenging medical conditions and what led her to create Find Empathy, an online resource that provides: • An engaging podcast • A free directory of mental health providers who specialize in working with medical populations • Continuing education for mental health professionals focused on how best to serve patients who live with MS or other life altering illnesses Dr. Beier completed her Ph.D. in Clinical Psychology, Health Emphasis, from Yeshiva University. Following that, she received a postdoctoral fellowship at the University of Washington where she focused on rehabilitation, cognition and mental health in individuals living with MS. She has been featured as a consultant and speaker for organizations such as National MS Society, Can Do Multiple Sclerosis and more. Dr. Beier's research interests include neuropsychological outcomes for individuals living with MS; cognitive rehabilitation; and behavioral approaches to wellness.

More than 22 years have passed since the first time we each heard the life-altering phrase, “You have Multiple Sclerosis.” That's more than two decades, so conversations about being newly diagnosed with MS really have nothing to do with either one of us, right? Not so fast, we say. Join us as we take a matter-of-fact honest look into the realities of living with an ever-changing unpredictable disease of the central nervous system. See why – with the experiences we've had – we conclude that no matter how long you have lived with MS, in many ways you forever can consider yourself newly diagnosed. Here are the links to helpful MS resources we reference for you to follow up on: • nmss.org – National Multiple Sclerosis Society • msfocus.org – Multiple Sclerosis Foundation • mymsaa.org – Multiple Sclerosis Association of America • msviews.org – MS Views and News • realtalkms.com – Real Talk MS podcast • bezzyms.com – MS peer support community • mymsteam.com – MS peer support community • care.twill.health – MS health information

Carla Rosenberg is Senior Vice President of Charity & Events Management for global sports marketing agency SPORTFIVE and is part of the leadership team. Based in Dallas, Carla runs the Charity and Events Management practice and offers additional event and production capabilities alongside Rooftop2 Productions, the agency's New York-based experiential marketing and production division. Carla's team also provides philanthropic expertise to many of SPORTFIVE'S more than 250 athlete clients looking to build or enhance their charitable activities. Prior to joining SPORTFIVE, Carla founded Matchpoint Agency and served as Chief Visionary Officer, working with athletes, professional sports teams and nonprofit clients to achieve their philanthropic goals. In May 2018, Matchpoint Agency joined Lagardère Plus, the global partnership marketing agency of Lagardère Sports and Entertainment, which was rebranded to SPORTFIVE in May. Carla's first entrée into the agency setting was as Sports Marketing Director for SCA Promotions. Before that, she spent eight seasons in the professional sports industry. Carla began her career working for the President of the Texas Rangers Baseball Club and later served as Senior Director of Community Marketing for the Dallas Stars Hockey Club and Executive Director of the Dallas Stars Foundation. These experiences, along with her natural business acumen, introduced her to new people, big ideas and winning strategies that helped inspire the evolution of Matchpoint. While helping athletes manage their Foundations and having her finger on the pulse of the professional sports landscape and philanthropic scene, her ability to maximize revenue opportunities and execute championship-level charity events has earned her notoriety as a game changer in the industry. From professional tennis tournaments to galas, she and her team have planned and executed some of the nation's highest-profile events. In 2019, Carla was selected as a recipient of Sports Business Journal's Game Changers Awards, which honors a select group of women who are having a major impact in transforming the sports business industry. Carla currently serves as President on the board of Dallas Influencers Sport & Entertainment (DISE) and sits on the Board of Directors for PwC SMU Athletic Forum, Nancy Lieberman Charities, and The Sandlot Children's Charity. She is on The University of Dallas MBA Advisory Board and The Dallas Stars Hockey Hall of Fame Nomination Committee. She volunteered her time as a former Board of Trustee member for ten years with The National Multiple Sclerosis Society. Born and raised in South Africa, Carla holds a Bachelor of Science in Kinesiology from the University of Illinois at Urbana-Champaign, where she played four years of tennis on an NCAA Division-I Athletic Scholarship. She graduated with highest honors, as well as Academic All-American and All-Big Ten accolades. She also achieved her Master of Business Administration in Marketing/Sports & Entertainment Management from the University of Dallas in Irving, Texas. In this episode, we discuss: - Carla's love of tennis and her journey through NCAA as a D1 athlete - How Carla began her business journey in sports marketing while completing her MBA - Why saying yes to the hard things has the biggest results - How Carla started her own agency, and why saying "no" to certain projects allowed Matchpoint to scale - Story behind Matchpoint acquisition, and key takeaways for current business leaders - How Carla leveraged the pandemic to rethink and come out stronger

Troy Finn leads campaign and fundraising efforts for the University of New Hampshire across 13 colleges and schools, athletics, centers, and institutes. He joined UNH in 2017 from Development Guild DDI where he provided campaign and fundraising counsel to institutions ranging from large, research-intensive public universities to private liberal arts colleges, schools, and non-profit organizations. Having been a member of fundraising teams during campaigns of historic magnitude at Harvard Chan School of Public Health, Columbia University Medical Center, and Dana-Farber Cancer Institute, Troy has led both front-line philanthropy efforts and back-end development operations. Troy obtained a master's degree in Management and Finance from Harvard University Extension School and a bachelor's degree in philosophy from the College of the Holy Cross. He's the youngest of ten kids and loves exploring the northern New England coast with his husband and their German Shepherds, Candide and Cunegonde.Debbie Dutton has served for the past nine years as the Vice President of Advancement and President of the Foundation at the University of New Hampshire (UNH) where she leads a team of 130 advancement professionals in the leadership phase of capital campaign that follows the University's most ambitious and successful capital campaign to date, Celebrate 150, the Campaign for UNH. During this effort, UNH has surpassed all previous records in fundraising and engagement and just closed the campaign June 2018 at $308M well above the $275M goal. Prior to this role, she served as vice president for development and alumni relations at Colby College. During her six-year tenure at Colby, and before being promoted to vice president, she served as campaign director and led the school's largest fundraising effort, the Reaching the World campaign, which surpassed its goal to raise $376 million when it concluded in 2010.Debbie's career in development began at the Maine chapter of the National Multiple Sclerosis Society. She has held development positions in major gifts and senior management at three Harvard teaching hospitals: the Massachusetts Eye and Ear Infirmary, Children's Hospital, and the Joslin Diabetes Center. She also was a senior leadership giving officer at Bates College.Debbie earned a Bachelor of Arts degree in journalism from the University of Maine and a Master of Science degree in business management from Lesley College. She lives in Kennebunk, Maine with her husband and their two children.

Welcome to the Three Part Series of Diagnosis Vs. Defeat- Speaking with special guests about their medical diagnosis, their strength to discover treatment & not accepting defeat as the answer. This episode discusses Multiple Sclerosis, motherhood & learning how to adapt to a diagnosis with a new outlook on living!Sponsor: The Candle Company LLC (https://thecandlecompanyllc.com)Special Guest: Haley Perrone (TT: ms.chic/ IG: haleyperrone)National Multiple Sclerosis Society: (https://www.nationalmssociety.org)Mom's With MS National Team/Find Your Local Chapter: (https://www.nationalmssociety.org/Chapters?_ga=2.108744130.1749426377.1655747065-1297681513.1655747065)Multiple Sclerosis Foundation Support Groups: (https://gatherms.com/phoenix/services/multiple-sclerosis-foundation-ms-focus-support-groups)

Dr. Justin Abbatemarco talks with Dr. Bruce Bebo about the estimated economic burden of multiple sclerosis in the US, highlighting direct and indirect cost drivers. Read the full article in Neurology. Please be sure to check out the National Multiple Sclerosis Society's "MS Navigator" resource, which connects patients with MS and their family members to experts who can help them navigate the challenges of MS, from making workplace accommodation requests to case management assessment.

Pomodoro timers! Bullet journals! Apps, tips, tricks and philosophies. Also: the most mellow episode ever, recorded late at night in a guest room. Like a cozy duvet of wisdom, this one is full of life hacks for remaining productive & healthy during distracting times. I asked Ologites their best strategies for keeping their brains less burdened and organizing everything from schedules to leftovers to sock drawers. In quick 5 chapters: Your Hot Bod Needs ThisHome is Where the Hard IsWrestling with Father TimeTricking Your Brain to Trick Your BrainEmo Stuff Whether you're neurotypical or not, this final follow up on the ADHD series is a catalogue of strategies to make future you happier. Also: some end-of-episode life updates from Dadward on why you've gotten re-runs for two weeks. More episode links and resources Donations went to the National Multiple Sclerosis Society and International Myeloma FoundationSponsors of OlogiesTranscripts and bleeped episodesSmologies (short, classroom-safe) episodesBecome a patron of Ologies for as little as a buck a monthOlogiesMerch.com has hats, shirts, masks, totes!Follow @Ologies on Twitter and InstagramFollow @AlieWard on Twitter and InstagramSound editing by Jarrett Sleeper of MindJam MediaTranscripts by Emily White of The WordaryWebsite by Kelly R. DwyerTheme song by Nick Thorburn