Podcasts about Hirschsprung

Episode 34 - Robyn Taylor joins me once again  to give an update on her daughter Charlee, as we discuss her Ace Malone procedure that she had in December. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Sharing an episode from Tom's Hirschsprung's Podcast where I share an update on how Charlee is doing after the malon surgery. Unpacking everything that led up to surgery...including the one-week notice we had (Thanksgiving week) to get to Ohio where her Doctor is! Such a whirlwind of ALL THE THINGS + emotions! So amazed by our Charlee girl and her bravery and resilience through it all. I hope you find her story inspiring. Follow Tom's Hirschsprung's Podcast for more uplifting stories of people with HD. Our mission is to serve and inspire women to live a life they love by embracing bravery and taking action in the direction of their dreams.On this weekly podcast, we feature powerful women entrepreneurs and their courageous stories. We go deep and talk about the challenges and triumphs they've experienced along their journey to entrepreneurship and beyond.Host Robyn Taylor is also taking you along her journey through motherhood, business, and life!Learn more: ⁠⁠www.robynltaylor.com⁠⁠Join us on Social here…https://www.Instagram.com/robyn_lynnehttps://www.Instagram.com/embrace_your_braveryOur brave girl continues to inspire, stay tuned!XO, Robyn

Episode 33 - I chat with Elle about living with Hirschsprung's and being diagnosed with OCD at 12. She shares how chronic illness has shaped her life in both positive and negative ways, especially socially and mentally. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 32 - Loren Harris shares her unique story of being diagnosed with Hirschsprung's disease twice. She's open about her journey and passionate about helping others facing similar challenges with insight and honesty. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 31 - Tash Jacobs joins to talk about her two sons who were both born with two different types of Hirschsprung's, despite not having any family history. We follow the journey from Manchester hospital to Alder Hey, via Italy! Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 30 - Isabelle Schnidag, the Co-Founder of REACH HD joins me to talk about how the charity started and why the dual diagnosis of Hirschsprung's and Downs Syndrome have a personal connection to her. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 29 - Anrie Gibson shares her son's journey from an unusual white forelock to a Hirschsprung's disease diagnosis. Based in South Africa, she discusses how nurses first noticed the sign and his path to thriving. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 28 - Hannah Davis shares her son's Hirschsprung's Disease diagnosis and her family's fight for answers. We also discuss how Jasper now thrives in football and running despite early challenges. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 27 - Tom's Hirschsprung's Podcast Co-Founder Louisa Shapton and I chat with Megha, who gave birth 6 weeks ago, about her daughter's Total Colonic Hirschsprung's journey and how she's adapting to their new routine. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

This episode covers Hirschsprung's disease.Written notes can be found at https://zerotofinals.com/paediatrics/gastro/hirschsprungs/Questions can be found at https://members.zerotofinals.com/Books can be found at https://zerotofinals.com/books/The audio in the episode was expertly edited by Harry Watchman.

Episode 26 - Gemma Keir, founder of The Abilities In Me Foundation, shares her journey, the inspiration behind her book series, its global impact, and how actor Denise Welch became her patron! Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 25 - The author of 'Oscar The Unstoppable', Simone Rist, joins me to talk about her son's Hirschsprung's story as well as her brilliant book, all about perseverance through Hirschsprung's disease. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 25 - The author of 'Oscar The Unstoppable', Simone Rist, joins me to talk about her son's Hirschsprung's story as well as her brilliant book, all about perseverance through Hirschsprung's disease. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

In episode 533 Lila shares her three distinctly different birth experiences, from a hospital induction to a dramatic roadside almost-birth, and finally achieving her dream homebirth. Her story takes an unexpected turn when her third baby is diagnosed with a rare condition Hirschsprung disease.See omnystudio.com/listener for privacy information.

I shared Charlee's journey with Hirschsprung's Disease on Tom's Hirschsprung's Podcast.Charlee has been having ongoing medical issues for a year and a half. We have seen multiple doctors and referred to GI Specialists who ran many tests and procedures but still could not determine the root cause. We were told by multiple doctors that it had nothing to do with her Hirschsprung's Disease. (She was diagnosed at 3 days old and had a life-saving surgery at 8 days old). After doing our own extensive research and finding a community of parents, caretakers, and people with the Disease we found the # 1 recommended  Hirschsprung's Disease doctor in the country, Dr. Wood and reached out to him. We had several phone calls with him and his team prior to our trip to Ohio and they were so knowledgeable and supportive. On September 11th, we traveled to Nationwide Children's Hospital in Columbus, Ohio to see Dr. Wood and the team at the Center for Colorectal and Pelvic Reconstruction (CCPR).  Charlee had an exam under anesthesia where Dr. Wood found that she is missing about 80% of the dentate line. We are grateful for our team at Nationwide and feel supported, finally. We are still processing what the next part of our journey looks like and we're trying to give ourselves grace along the way. To learn more about Charlee's journey, please check out an update video I shared here, www.instagram.com/robyn_lynne. I also plan to share about our experience staying at the Ronald McDonald House while in Ohio. I cannot say enough about how amazing they are. More updates to come! Our girl is so brave, and she will not be defeated.

In this episode, we review the high-yield topic⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠Hirschsprung Disease⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠from the Pediatrics section at ⁠⁠⁠⁠⁠⁠Medbullets.com⁠⁠⁠⁠⁠⁠Follow⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media:Facebook: www.facebook.com/medbulletsInstagram: www.instagram.com/medbulletsofficialTwitter: www.twitter.com/medbulletsLinkedin: https://www.linkedin.com/company/medbullets

Send us a textEpisode 32 of Season 2Another special guest today Tom Richard who has Hirschsprung's Disease and runs his own Podcast called "The Hirschsprung's hour with Tom Richard" and can be found on all Podcast platforms.Today Tom tells us all about Hirschsprung's Disease, he was diagnosed with as a newborn baby, and how it nearly took his life.  Tom's tells us openly and honestly his story, his life growing up with this disease, how he managers it today, what the future holds and how he has turned into a positive within his life through his Podcast connecting across the world with others who have this disease.What causes Hirschsprung's Disease muscles of the bowel are controlled by nerve cells called ganglion cells. In Hirschsprung's disease, ganglion cells are missing from a section at the end of bowel, extending up from the anus (the opening in the bottom that poo passes through).For some reason, the cells did not develop in that area when the baby was growing in the womb.It's not clear why this happens, but it's not thought to be caused by anything the mother did while she was pregnant.A number of genes are associated with Hirschsprung's disease and it does sometimes run in families.If you have had a child with it before, you're more likely to have another child with it.#HirschsprungsDisease#HeartTransplant#EbsteinsAnomaly#RareCondition#HealthJourney#LifeChangingDiagnosis#MentalHealth#Vulnerability#SelfCompassion#PostTraumaticGrowth#MedicalMiracle#BBCSports#Inspiration#Cardiology#Surgery#Podcast#Healthcare#HeartHealth#MedicalBreakthrough#EmotionalJourney#SupportSystem#HealthcareHeroes#PatientStories#CardiologyCare#MedicalJourney#LifeLessons#MentalWellness#HealthAwareness#InspirationalTalk#LivingWithIllness#RareDiseaseAwareness#SharingIsCaring#MedicalSupport#BBCReporter#HeartDisease#PodcastInterview#HealthTalk#Empowerment#Wellbeing#HealthPodcast#ChronicIllnessCheck out our new website at www.whostomanddick.comCheck out our website at www.whostomanddick.com

Episode 24 - Courtney Ternyila shares the power of advocacy and positivity in tough times. She reflects on her son Theo's first year with Hirschsprung's and a life-changing decision she and her husband made. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Recorded: February 23, 2025My guest is Shakeira Robinson, a 33-year-old singlemother of two boys who are facing serious health challenges. Her eldest son hasacute myeloid leukemia (AML), diagnosed in 2019, and her youngest son, who isnow 4 years old, was diagnosed with Hirschsprung disease three years ago.Shakeira's journey has been incredibly challenging, and she will share herstory with us. #leukemia #hirschsprung #helpneededDr. Canute White has provided a promotion: Get $35 offa 1-year BJ's Club Card membership!Click to redeem: https://share.bjs.com/ipbnk!b5fb531c1d!aGuest Contact Information:For serious inquiries only, please WhatsApp, call, ortext Shakeira at (876) 259-0038.Thank you for watching or listening to Dr. CanuteWhite, your host on the Canyouth's Exploration Podcast. "Your topic in apodcast" since 2020.Dr. Canute White, EdD, MSc, MPA- Organizational Leadership Consultant- Child Protection and Juvenile Justice Consultant- Notary Public, Wedding Officiant, and Signing Agent(Florida)- Serving Holly Hill, Daytona, and Ormond Beach- WhatsApp: (386) 562-2777 – Canyouth's Group ofCompaniesSocial Media: Please subscribe, follow, share, andcomment:- Facebook: Dr. Canute White (Professional)- Facebook Page: Canyouth's Exploration- YouTube: Canyouth's Exploration- Instagram: Canyouth's Exploration- X: @CanyouthsN

Episode 23 - Lexi Liljenquist joins me to share Krew's HD journey. She recalls the shock of his diagnosis and her experiences as a mom. An uplifting episode featuring her thoughts and a special influencer! Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 22 - Rachel shares her journey with Hirschsprung's disease, motherhood, and advocacy for ostomates. We discuss her guides for parents, charity work, and how she got involved in three amazing causes. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 21 - Actor, Director, and RADA alum Fred Gray shares his journey with Total Colonic Hirschsprung's, his family's experiences, and the impact of Great Ormond Street's Mr. Ed Kiely on their lives. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 20 - Welcome returning Fred Gray and Mr. Curry, whom I've not seen in 20 plus years. We discuss Mr. Curry's career at Great Ormond Street, working with Mr. Ed Kiely and Prof. Lewis Spitz, and the rewards of top-tier surgery. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 19 - Gemma Boggs talks about her daughters Hirschsprung's diagnosis and the challenges that Dorothy has overcome. She recounts 5 hectic days of hospital stay, tests, operations as well as how she was feeling at the time. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 18 - Hirschsprung's nurse specialist Karen Dick, talks about her decade plus experience as a nurse, specialising in Hirschsprung's disease. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 17 - We explore 'Parkers Journey' with Leanne Constable, discussing her candid emotions on Parker's Down's Syndrome diagnosis and later also learning about the Hirschsprung's Disease. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 16 - Entrepreneur and 'Embrace Your Bravery' podcast host Robyn Taylor shares her journey seeking answers after her daughter faced complications from Hirschsprung's Disease pull-through surgery. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 15 - We discuss unique challenges with Louise about her 12-year-old son, Jacob, starting with his Hirschsprung's diagnosis, exploring highs and lows with ADHD, and celebrating his academic and sports success. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 14 - I'm joined by new mum Georgina Merckel to discuss her son Ffredi's Hirschsprung's Disease diagnosis. She shares her first 5 months juggling motherhood and business, managing stress, and keeping up hobbies. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 13 - The founder of 'Samuel's Smiles,' Sam Bell, joins me to share his journey with a rare form of Hirschsprung's Disease, his experiences of fatherhood, and how he started his charity to support those with rare diseases. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 12 - Actor and West End star Jamie Birkett chats to me about her son and husbands' journey with Hirschsprung's Disease as well as her own personal challenges. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 11 - Three-time Ironman finisher Jodi Longdo shares her journey in sports and healthcare with Hirschsprung's Disease. As a qualified Pediatric Nurse Practitioner, she specialises in gastrointestinal disorders. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 10 - Rachel Louise discusses her unique journey through Hirschsprung's disease and motherhood. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 9 - In the second part of my interview with Steffy Little, we are joined by her daughter Samantha as we discuss sporting life with Hirschsprung's Disease. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

In this week's episode, Jared Sine sits down with Casey to share his journey from managing the challenges of Hirschsprung's disease to becoming a top legal and strategy executive at companies like Expedia, Match Group, and GoDaddy.Jared reflects on the role faith has played in shaping his career choices and personal life. He discusses balancing work, family, and staying true to his values, even in high-pressure environments. Jared also opens up about the importance of trusting in divine guidance during career transitions and personal trials, showing how faith has been a consistent anchor in his life.This episode is packed with insights on leadership, mentorship, and entrepreneurship. Jared explains how mentorship and surrounding yourself with like-minded, value-driven people can accelerate both personal and professional success, demonstrating the power of a strong community. Hosted on Acast. See acast.com/privacy for more information.

Episode 28 - We're talking rare diseases with guest Tom Richard, who shares his personal journey with Hirschsprung's disease and his mission to raise awareness as the presenter of The Hirschsprung's Hour. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 8 - In the first Mother and Son episode, I am joined by Nicole and Benjamin Perry. Nicole talks about the ups and downs of hospital life as well as the 22 months wait for Benjamin's HD diagnosis. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

El estreñimiento es un problema que afecta a personas de todas las edades, incluyendo a los niños; puede ser crónico y muchas veces un mal estudio conlleva a un diagnóstico errado que implicaría una cirugía. El estreñimiento es un problema funcional en el que el recto y sigmoides no funcionan bien y no se vacían adecuadamente cada 24 horas o 12 horas dependiendo de cada persona. En este episodio conversamos sobre cómo ser exitoso en el tratamiento del estreñimiento con el Dr. Luis De la Torre. El Dr. Luis De La Torre es Profesor Asociado de Cirugía Pediátrica del Children's Hospital Colorado y Doctor Asistente del Centro Internacional de Cuidado Urogenital y Colorrectal de Children's Hospital Colorado. Hace más de 25 años, el Dr. De la Torre desarrolló y realizó el primer descenso transanal endorrectal para Hirschsprung, una técnica quirúrgica publicada en 1998 y que ahora es realizada a nivel mundial. Instagram: Hirschsprung Facebook y YouTube: Luis De la Torre ¿Tienes algún comentario sobre este episodio o sugerencias de temas para un futuro podcast? Escríbenos a pediatrasenlinea@childrenscolorado.org.

Episode 7 - My guest, Aimee Morrisby, a health science and nutrition graduate and Pilates instructor, shares her journey with Hirschsprung's disease and her mission to inspire others to stay active and prioritise their health. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 6 - Harvey Haworth talks to me about his battle with Colitis, as well as his ambitions for the future - including running the upcoming Manchester Marathon! We begin the story in 2016 up to the present day. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 6 - Harvey Haworth talks to me about his battle with Colitis, as well as his ambitions for the future - including running the upcoming Manchester Marathon! We begin the story in 2016 up to the present day. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 5 - Carla Scaramella, our third Toms Hirschsprungs Podcast co-founder, has supported families in Argentina with Hirschsprungs Disease. We'll discuss her advocacy work and the creation of the Spanish HD alert card! Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

In this episode of the Pediatric and Developmental Pathology, our hosts Drs. Mike Arnold (@MArnold_PedPath) and Dr. Jason Wang speak with Drs. Raj Kapur and Caitlin Smith of Seattle Children's Hospital about their article in Pediatric and Developmental Pathology: Diagnosis of Hirschsprung Disease   Featured public domain music: Summer Pride by Loyalty Freak

Episode 4 - A very special episode of the podcast sees actor and TV star, Zoe Colletti, joins me to talk about her life with Hirschsprung's disease as well as her phenomenal acting career. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

A Halifax mother is raising awareness about a rare condition that affects about one in 5,000 babies called Hirschsprung Disease. Robin Lorway's son, Taran, was born with the condition. She joins host Jeff Douglas to talk about the condition and why she wants more people to know about it.

Episode 4 - In this weeks episode, I chat with one of the co-founders of Tom's Hirschsprung's Podcast, and her father about her experiences with having Hirschsprung's disease, as well as her achievements as a business owner. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 3 - Part 2 of my interview with Kyla Thomson, in which we continue the discussion about her daughter Bella's captivating medical adventure, as well as their phenomenal charity work. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 2 - Part 1 with the inspirational Kyla Thomson, where we discuss her daughter Bella's fascinating medical journey from the very beginning, right up until the incredible events that unfolded in August 2023! Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Episode 1 - A very special episode as Emmerdale and Hotel Portofino star Louis Healy joins us to talk about being diagnosed with Hirschsprung's disease as well as his incredible acting career. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Hirschsprung disease. Anorectal and colorectal malformations. These are some of the most challenging surgical problems encountered in young children. The precision of surgical technique required to achieve optimal outcomes takes many years, if not decades, to develop. Colorectal surgery has become a subspecialty in pediatric surgery, requiring close collaboration with other specialists. At Children's Hospital Colorado, we offer this care through our International Center for Colorectal and Urogenital Care, and our surgical team has some of the most experience in the world.  In this episode, we are joined by Andrea Bischoff, MD, and Luis De la Torre-Mondragon, MD. They both specialize in pediatric surgery at Children's Colorado and are associate professors of surgery and pediatrics with a specialty in colorectal surgery at the University of Colorado School of Medicine. Dr. Bischoff is also the Medical Director of the International Center for Colorectal and Urogenital Care here at Children's Colorado.  Some highlights from this episode include:    The importance of pediatric colorectal programs.  A discussion of when surgical intervention is necessary.  A look at what procedures are offered at Children's Colorado and how they work.  The role primary care providers can play as it pertains to identification, referral and care of patients who might need colorectal surgery.  For more information on Children's Colorado, visit: childrenscolorado.org.