Podcasts about Child Life

What happens when the healthcare professional becomes the parent sitting on the other side of the diagnosis? In this episode, Katie Taylor sits down with Melissa Apa—a clinical pharmacist, diabetes educator, and mom—to share her family's journey navigating both celiac disease and type 1 diabetes with her young son. Melissa opens up about the emotional overwhelm of receiving life-changing diagnoses, even with years of medical expertise behind her, and how her family learned to adapt, advocate, and find stability in the chaos. From replacing every pot and pan in her kitchen overnight to teaching her six-year-old how to manage his insulin pump, Melissa shares the realities of parenting a child with chronic illness while balancing work, marriage, caregiving, and the emotional toll of always being "on." Together, Katie and Melissa explore the invisible mental load medical parents carry, the importance of empowering kids to advocate for themselves, and why support systems matter just as much as medical education. This conversation is honest, practical, and deeply hopeful for any parent navigating a chronic diagnosis with their child. What You'll Hear in This Episode: The unexpected appointment that changed everything with a celiac diagnosis Why Melissa says her entire career prepared her to care for her son The emotional impact of becoming both a healthcare provider and a medical mom How type 1 diabetes and celiac disease are often connected The pressure parents feel around "good" and "bad" numbers in diabetes care Why medical parents need systems, routines, and "go bags" to survive daily life Teaching children to advocate for themselves in school and healthcare settings The realities of never fully stepping away from caregiving responsibilities How Melissa and her husband creatively protect their relationship and mental health Why diabetes management can become more manageable with support and practice Key Takeaways: Chronic illness management is emotional—not just medical Blood sugar numbers are data, not moral judgments Kids are capable of learning and advocating for themselves earlier than we think Systems and routines can reduce overwhelm for families Caregivers deserve support, too The beginning of a diagnosis journey is often the hardest part—but it won't always feel this overwhelming About Our Guest: Melissa Apa is a clinical pharmacist, diabetes educator, podcast host, and mom of two from Buffalo, New York. After diagnosing her son with type 1 diabetes and navigating celiac disease as a family, Melissa shifted her focus toward helping families manage chronic illness with more confidence, support, and sustainable systems. Through coaching, education, and advocacy, she helps parents move from survival mode to feeling empowered in everyday life. Resources & Links: Connect with Melissa on Instagram: @melissaapa_ Listen to her podcast: Insulin Inspired Learn more about Melissa's coaching and resources on her website Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources!   Medical information shared in this episode is not a substitute for professional medical advice. Please consult your care team for guidance specific to your child and family. Keywords: type 1 diabetes, celiac disease, parenting a child with diabetes, diabetes mom, medical parenting, chronic illness parenting, pediatric diabetes, celiac diagnosis, type 1 diabetes support, caregiver mental health, diabetes advocacy, medical mom podcast, child chronic illness support, parenting through diagnosis  

"I kept telling her, 'We've got this.' And inside, I had no clue what was coming next." What does it look like to be "the strong one" when your world is falling apart? In this episode, Katie Taylor sits down with Jared Muscat—dad, surfer, and self-proclaimed "dad-vocate"—to share his family's unexpected journey into the NICU after a high-risk pregnancy. From a routine 20-week appointment to welcoming his son Ollie at just 25 weeks, Jared opens up about fear, resilience, and what it means to show up as a partner and father in crisis. He shares the emotional weight of protecting his family while processing his own grief, the importance of finding support, and how small rituals—like late-night NICU visits and lullabies—helped him bond with his son. This is an honest, heartfelt conversation about fatherhood, vulnerability, and the strength it takes to keep going when nothing feels certain. What You'll Hear in This Episode: The moment everything changed during a routine pregnancy appointment Navigating uncertainty, fear, and decision-making as a dad and partner The emotional experience of becoming a NICU parent overnight How Jared balanced supporting his wife, caring for his older son, and coping himself The power of routines, community, and finding other dads who understand What bonding looks like in the NICU—and the moment it finally clicked Life after the NICU and adjusting to a new normal at home   Key Takeaways: Dads experience deep emotional strain in the NICU—often quietly You don't have to carry everything alone—finding support is essential Small, consistent rituals can create stability in chaos Bonding doesn't always happen immediately—and that's okay The NICU feels endless, but it won't last forever About Our Guest: Jared Muscat is a father of two, a marketing agency owner, and a passionate advocate for NICU dads. Through his own experience, he now supports other families navigating complex medical journeys. Resources to Support NICU Families  The NICU Dad Listen to Alex's Story here. March of Dimes Hand to Hold Connect with Jared Instagram Website Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team.   Keywords: NICU dad, NICU father support, NICU dad mental health, premature baby dad, NICU parenting for dads, NICU dad podcast, NICU journey dad, father of preemie, NICU support for fathers, dad in the NICU    

In this episode of Inside the Children's Hospital, Katie Taylor sits down with Dr. Matt Goldstein—physician, biotech leader, and father—who shares the story of his daughter, Havi, and her diagnosis with Tay-Sachs disease. Despite both parents undergoing genetic screening before starting their family, a testing error led to a missed diagnosis. Javi appeared to develop typically at first, but over time, subtle changes led to a life-altering realization: she had a rare, fatal neurodegenerative condition. As a physician, Matt was trained to solve problems. As a parent, he was driven to protect his child. But in the face of a disease with no cure, he and his wife had to redefine what "doing everything" truly meant. From navigating complex medical decisions to choosing presence over intervention, Matt shares how their family embraced a different path—one centered on love, connection, and living fully in the time they had. This conversation is a powerful reflection on grief, meaning, and the transformative impact of parenthood. You'll hear: What it was like to receive a Tay-Sachs diagnosis after reassuring genetic testing How a medical error changed the course of their family's life The emotional tension between medical training and parental instinct What it means to "do everything" in a non-medical way How Havi communicated joy, preferences, and personality without words The role of community and parent-to-parent connection during grief How the family created meaningful traditions, including weekly "Shabirthdays" The impact of loss on identity, purpose, and career direction   What You'll Learn in This Episode: What Tay-Sachs disease is and how it affects the body The limitations—and importance—of genetic screening Why preventive genetics is one of the most powerful tools in modern medicine How families can approach decision-making when facing life-limiting diagnoses The importance of redefining quality of life beyond clinical outcomes How grief and love can coexist—and shape the way we live   Resources Mentioned E-motion-Non-profit organization created by Myra that supports bereaved mothers JScreen (Genetic Testing & Education) 57 Fridays (memoir by Myra Sack) Emory University's JScreen Program National Tay-Sachs & Allied Diseases Association (NTSAD)   Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team.   Keywords:  Tay-Sachs disease, Tay-Sachs awareness, rare disease podcast, pediatric rare disease, genetic disorder, infant Tay-Sachs, neurodegenerative disease, parenting a medically complex child, caregiver support, special needs parenting, navigating rare disease, pediatric neurology, genetic testing, childhood illness, family medical journey, emotional support for families, healthcare podcast, Child Life On Call Podcast, family resilience, living with Tay-Sachs

What happens when a diagnosis labeled "lethal" doesn't tell the full story? In this episode of Inside the Children's Hospital, Katie Taylor sits down with Nicole, a mom of five, who shares her daughter Charlotte's journey with Trisomy 13—a diagnosis often associated with limited survival and quality of life. After receiving devastating news over the phone while at work, Nicole and her husband were told their daughter likely wouldn't survive. But instead of accepting that narrative, they sought out information, second opinions, and a care team willing to partner with them. From navigating medical bias and a complicated NICU stay to bringing Charlotte home without nursing support, Nicole shares what it really looks like to parent a medically complex child—and the joy that exists alongside the challenges. This conversation highlights the importance of advocacy, informed decision-making, and viewing each child as an individual—not just a diagnosis. You'll hear: What it was like to receive a Trisomy 13 diagnosis unexpectedly and over the phone How Nicole and her husband navigated conflicting medical opinions and bias The critical role of second opinions and finding the right care team What life looks like caring for a child with a trach, ventilator, and G-tube How siblings adjusted and built meaningful relationships with Charlotte The reality of parenting without in-home nursing support Why quality of life is often misunderstood—and deeply personal This is a story of advocacy, resilience, and redefining what's possible What You'll Learn in This Episode What Trisomy 13 is and how it can present differently in every child Why it's important to ask questions and advocate within the healthcare system How medical bias can impact care decisions—and how to navigate it The value of support groups and connecting with other families What daily life can look like for families of medically complex children How siblings adapt and grow in families with high medical needs Why "quality of life" is subjective and should center the family's perspective Key Takeaway A diagnosis does not define a child's life—and when families are given the space, support, and information to make informed decisions, they can create a path filled with joy, connection, and meaning. Resources Mentioned SOFT (Support Organization for Trisomy 13, 18, and Related Disorders) Extra to Love Hope for Trisomy Emersynn Isla Shining Star Foundation Asher's Answer Trisomy 13 & 18 Parent Support Groups (Facebook communities) Understanding Trisomy 13 Genetic and Rare Diseases Information Center (GARD) https://rarediseases.info.nih.gov AAP Article: Guidance for Caring for Infants and Children with Trisomy 13  Follow Charlotte on Facebook This episode is a powerful reminder that behind every diagnosis is a child, a family, and a story that deserves to be fully seen and understood. If you liked this episode, listen to these Inside the Children's Hospital Episodes: A daughter with Trisomy 18 Trisomy 21 Story   Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! The medical information provided is not a substitute for professional advice; please consult your healthcare team. Key Search Terms Trisomy 13, Patau syndrome, Trisomy 13 prognosis, Trisomy 13 life expectancy, Trisomy 13 baby thriving, Trisomy 13 and 18 support, SOFT organization Trisomy, NIPT high risk results, amniocentesis Trisomy 13, medical advocacy NICU, DNR without consent NICU, hospital transfer NICU, medically complex child at home, trach and ventilator at home baby, pediatric rare diagnosis, child life specialist NICU siblings, NICU sibling visits, postpartum depression NICU, Trisomy 13 quality of life, rare chromosome disorder support, AAP Trisomy 13 standards of care  

What does it look like when life changes in an instant—and a family learns to navigate the unimaginable? In this episode of Inside the Children's Hospital, Katie Taylor sits down with Marah, a mom of four, who shares her daughter Abigail's journey after a cardiac arrest at just nine days old. What began as a healthy twin pregnancy quickly shifted into a complex medical path involving a NICU stay, life support, and long-term care needs. As Marah and her husband entered the world of medical parenting, they faced fear, uncertainty, and overwhelming decisions. Through it all, they leaned on their care team, family support, and each other—learning how to advocate, adapt, and ultimately find moments of joy within the journey. This conversation highlights the realities of raising a medically complex child, the power of community, and how resilience is built over time. You'll hear: What it was like navigating a sudden cardiac arrest in a newborn The early days in the NICU and learning to care for a medically complex child How Marah advocated for family presence and support during hospitalization The transition from crisis to confidence in managing trach and G-tube care How community, connection, and shared experiences shaped their journey The emotional realities of ongoing medical challenges, including epilepsy This is a story of advocacy, growth, and finding strength in the most unexpected places. What You'll Learn in This Episode Why learning CPR and emergency preparedness can be life-saving for families How to advocate for your child and communicate your needs with care teams The role of multidisciplinary care in managing complex medical conditions What life at home can look like with medical equipment and home nursing support How community and peer support impact long-term coping and resilience The importance of asking for help and building a sustainable support system How perspectives can shift from grief to gratitude over time   Key Takeaways Even in the most overwhelming moments, support, advocacy, and connection can carry families forward—and help transform crisis into a new kind of strength.   Connect with Marah Instagram: In Good Complexity Resources Mentioned Emergency Preparedness for Families Infant & Child CPR (American Red Cross) https://www.redcross.org/take-a-class/cpr/performing-cpr/child-baby-cpr Trach & G-Tube Care Resources Feeding Tube Awareness Foundation https://www.feedingtubeawareness.org Building Community & Support Parent to Parent USA https://www.p2pusa.org Trach Support Mom's of Trach Babies https://www.facebook.com/groups/momsoftrachbabies/   Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Pediatric Health, Medical Parenting, NICU Journey, Infant Cardiac Arrest, Medically Complex Child, Children's Hospital, Pediatric Critical Care, Family-Centered Care, Patient Advocacy, Tracheostomy, G-Tube Feeding, Epilepsy in Children, Special Needs Parenting, Caregiver Support, Resilience

Interview with child life specialists Abby Loehrke and Rachel Stinson

Whatsapp/Call: +91 9902606453 Email: info@febaonline.org 

What happens when your child seems sick, but everything keeps coming back normal? For a lot of parents, the scariest part isn't the diagnosis. It's the not knowing. It's being told everything looks fine when your gut is telling you something is off. This week, Katie sits down with Kayleigh, a medical assistant and mom of three, to share the story of her daughter Kanessa. Almost a year after a freak eye injury that seemed to heal, Kanessa suddenly got sick. At first, it looked like a simple virus. But within days, things escalated fast. Kaylee shares what it was like trying to make sense of symptoms that didn't quite add up. Normal test results. A child who seemed okay one minute and not the next. And that moment when everything changed with one scan. From there, their world shifted quickly. A brain bleed. A diagnosis of bacterial meningitis. Emergency surgery. A 40-day hospital stay. Kaylee talks about what it took to keep going through all of it, while also caring for a newborn and being away from her other child. She also shares how she supported Kanessa through it all. Being honest about what was happening. Preparing her for procedures. Letting her ask questions. And leaning on Child Life in a way that made a huge difference for both of them. If you've ever wondered if you're overreacting or if you should push for more answers, this episode will stay with you. Kaylee's story is a reminder to trust yourself and keep advocating. This episode is sponsored by Gebauer PainEase®. We're so grateful for their support. To learn more about this product, visit their website. This is our 300th episode, which feels pretty surreal. We're so grateful you're here. Special Giveaway ☕️Your support means so much to us, and we're truly grateful for this community. As a small thank you, we're offering a $10 Starbucks gift card to the first 20 listeners who leave a review. If the podcast has made an impact on you, we'd love to hear your thoughts. Simply screenshot your review and email it to podcast@childlifeoncall.com to claim your gift. Thank you for being part of this journey with us

EP 142: Living Proof: How A Transplant at 7 months Sparked a Life of Impact     Episode Summary Haley Williamson's life began with a fight—and it turned into a mission. In this episode of This Thing Called Life, Haley shares her experience of receiving a liver transplant as an infant and how that second chance shaped her path. Now at 27 years old and working with Network for Hope, she connects with communities, spreading awareness and encouraging others through her story. This is a conversation about resilience, purpose, and making every day count. Episode Highlights Host Andi Johnson welcomes Haley Williamson, a liver transplant recipient whose journey began at just seven months old. Haley shares that she was diagnosed with biliary atresia shortly after birth, leading her family to quickly explore transplant options, including the possibility of her mother becoming a living donor. Although her mother was approved to donate, Haley ultimately received a liver from a deceased donor. She reflects on growing up post-transplant and how, despite taking daily medication, she has been able to live a largely healthy and active life. Andi and Haley discuss a common misconception—that transplant recipients immediately return to “normal”—while acknowledging that every journey is different and often includes ongoing challenges. Haley shares how her early medical experiences influenced her career path, leading her to roles in healthcare and eventually to Network for Hope, where she now works in community outreach and education. She opens up about the emotional challenges of body image, particularly growing up with a visible surgical scar, and how her mother supported her in building confidence and self-acceptance. Haley reflects on the maturity she developed over time, including navigating social situations—such as college environments—while making choices aligned with her health. She expresses deep gratitude for both her mother's willingness to donate and the selfless gift from her donor's family, recognizing the duality of loss and life in transplantation. During an internship, Haley had the opportunity to mentor patients awaiting transplants, offering encouragement and perspective from someone who has lived through the experience. Andi highlights Haley's gift for breaking down complex topics around organ donation, making them more approachable for individuals who may feel hesitant or unsure. Haley shares how education helps dispel fear, noting that many people become more open to donation once they truly understand the process. Beyond her advocacy work, Haley shares glimpses of her personal life—including her love for concerts (especially One Direction and Taylor Swift) and her recent interest in tennis and pickleball. The episode closes with Andi recognizing Haley as living proof of the impact of organ donation and celebrating her role in spreading hope and awareness. Key Takeaways A Second Chance Can Become a Life of Purpose Haley's journey shows that transplantation is not just about survival—it can inspire a life dedicated to helping and uplifting others. Education Reduces Fear and Builds Trust Many misconceptions about organ donation come from a lack of understanding. Honest conversations and real stories can change perspectives and encourage action. Resilience Is Built Over Time—With Support From navigating body image to making health-conscious decisions, Haley's story highlights the importance of family support, self-acceptance, and personal growth. Tweetable Quotes “I think it is really a testament to how much medicine has improved since then, because now we have a ton of transplant centers near us, so that's great.” Haley Williamson “I've been very fortunate. I've lived a very normal life. I honestly don't think about it most of the time, unless it comes up, and then I'm able to share my story with people. But I know that's not the norm for everyone, so I hope, if nothing else, I can be a voice of hope for people who are awaiting a transplant, or their child's going through something, that there is good on the horizon, and you can live a normal life after a transplant.” Haley Williamson “So, Child Life is a program that they have in hospitals for kids. Okay, it's to help improve morale, but also to help things not seem so scary. And other examples are like putting a baby doll through an MRI, so kids know what to expect. They see that their dolls are going through it, so it's not that scary. And so I'm like, I really like this. I enjoy being in this environment.” Haley Williamson “I love getting to really break down organ donation to people. I've experienced a lot of hesitancy from people just in my day-to-day life. And so it can be scary going in to talk to people and thinking they're automatically going to say, No, I'm not interested, right? But as soon as you explain things to people, they're like, Oh, this is like, I had no idea. This is what was really going on.” Haley Williamson “My scar did not say the same size it was when I was a baby. It has stretched with me. It goes all the way across my stomach, and it's been like, that'd be hard. Yes, it's been like that my whole life. So, especially like in elementary school, for sure, other kids don't understand, right?” Haley Williamson Resources: Donatelifeky.org https://getoffthelist.org/ https://www.networkforhope.org/ https://www.networkforhope.org/about-us/ https://www.networkforhope.org/stories-of-hope/ https://www.facebook.com/NetworkForHopeOPO https://www.youtube.com/@NetworkforHope. https://aopo.org/ RegisterMe.org/NetworkforHope

What happens when your child already senses something life-changing—before anyone has found the words to say it out loud? When serious illness enters a family, children often understand more than we realize. And for caregivers, the challenge becomes not only navigating medical decisions, but also finding the right way to support their children through it all. This week, Katie sits down with Anna Lonon, founder of the Lonon Foundation, to share her family's story of navigating cancer when her husband Michael was diagnosed with stage three head and neck cancer at just 29 years old. While raising a young son and later welcoming a newborn daughter, Anna faced the unimaginable reality of caregiving, loss, and parenting through profound uncertainty. Anna opens up about what it looked like to balance hospital visits, therapies, and daily life, and the emotional toll of making impossible decisions while trying to hold her family together. She shares powerful moments, including the realization that her young son understood far more about his father's illness than anyone had explained, and how that shaped the way she approached communication in the years that followed. After later facing her own cancer diagnosis, Anna made a different choice—seeking out child life support early to guide honest, developmentally appropriate conversations with her children. Through her experiences, she highlights the importance of listening to children's cues, trusting your instincts as a parent, and creating space for both grief and resilience. If you've ever struggled with how to talk to your child about illness, felt overwhelmed as a caregiver, or wondered how to support your family through uncertainty, this conversation offers validation, insight, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Resources from today's episode: Visit the Lonon Foundation website Pickles Group Wonders & Worries Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team.   Keywords: parent cancer child support, talking to kids about cancer, caregiver mental load, parenting through illness, child life specialist support, family coping with cancer, grief and parenting, pediatric emotional support, supporting children through loss, caregiver burnout, trauma-informed parenting, childhood understanding of illness, cancer impact on families  

What happens when your instincts tell you something is wrong—but you're dismissed again and again? For many parents, the journey to a diagnosis begins with a gut feeling—and the courage to persist in seeking answers. This week, Katie sits down with Nikki McIntosh, author and advocate, to share the story of her son Miles, who was diagnosed with spinal muscular atrophy (SMA) at just 18 months old. After noticing delays in his ability to stand and bear weight, Nikki followed her instincts despite initial dismissal—ultimately leading to a life-changing diagnosis. Nikki shares what those early days looked like—from navigating testing and procedures to receiving the diagnosis that changed everything. She opens up about the grief, fear, and urgency that followed, and how she quickly stepped into the role of advocate, building a care team and learning how to navigate complex medical systems in real time..  If you've ever questioned your instincts or felt lost navigating a diagnosis, this conversation offers validation, practical guidance, and hope. This episode is sponsored by Gebauer PainEase®. We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website.   Resources & Ways to Connect Visit Nikki's Website Find her book wherever books are sold (Amazon, Barnes & Noble, Target, and more) Helpful Resources Mentioned National Organization for Rare Disorders (NORD) Global Genes Cure SMA (patient advocacy organization)   Connect with Us Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: spinal muscular atrophy, SMA child story, rare disease diagnosis child, delayed milestones baby, parenting medically complex child, rare disease advocacy, navigating pediatric diagnosis, EMG test child, pediatric neuromuscular disease, child life coping tools, supporting child through medical tests, rare disease parent support, medical parent journey, hope after diagnosi    

Within minutes of arriving at the hospital, Brady and his wife were told their newborn daughter had suffered a severe brain injury. In this episode of Inside the Children's Hospital, Katie sits down with Brady Crandall, founder of Youth Crews, to share his family's journey following a diagnosis of hypoxic ischemic encephalopathy (HIE). What began as a routine pregnancy quickly turned into an emergency delivery, NICU stay, and a new reality as parents of a medically complex child. Brady opens up about: The shock and uncertainty of those early days Navigating life as a "medical dad." The balance of grief and joy that often coexist How early intervention and community shaped their path Through this experience, Brady recognized a gap many families face: a lack of dignified, age-appropriate products for children with disabilities. That realization led to the creation of Youth Crews—a brand focused on comfort, dignity, and rethinking what medical products can look like for kids. If you've ever found yourself wishing something existed to better support your child—or felt the pull to create change—this episode will leave you feeling seen, understood, and inspired. This episode is sponsored by Gebauer PainEase®We extend our sincere gratitude to Gebauer PainEase® for supporting this episode. To learn more about this product, visit their website. Resources & Ways to Connect Learn more about Youth Crews and their mission to create dignified products for kids with disabilities Follow Youth Crews on Instagram Mentioned in This Episode Hope for HIE community Anchor Center for Blind Children (early intervention services) Driven by Purpose Podcast Connect with us!  Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources!   Disclaimer: Medical information shared in this episode is not a substitute for professional advice. Please consult your care team for guidance specific to your child. Keywords: hypoxic ischemic encephalopathy, HIE baby story, NICU brain injury, medical dad perspective, parenting child with disabilities, pediatric brain injury journey, adaptive products for kids, inclusive design children, youth crews diapers, special needs parenting support, early intervention services, disability advocacy parenting, medically complex child parenting, child life support tools

In this episode of Only at Craig, hosts Scott Adams and Tyler Smith invite Amy Baczurik and Reagan Sport to spotlight Craig Hospital's Child Life program — a quietly powerful service supporting the children of patients with spinal cord and brain injuries. The conversation explores how Child Life specialists help kids understand medical realities, process big emotions, and feel a sense of normalcy during some of the hardest moments their families face. Through personal origin stories and real-world examples, this episode highlights why Child Life matters and the profound ripple effect it has on families navigating injury and recovery at Craig.Craig Hospital is a nationally recognized neurorehabilitation hospital and research center specialized in the care of individuals who have sustained a spinal cord injury (SCI) and/or a brain injury (BI). Located in Denver, Colorado, Craig Hospital is an independent, not-for-profit, 93-bed national center of excellence that has treated thousands of people with SCI and BI since 1956. Learn more: https://craighospital.orgFor more Information visit: https://craighospital.org/onlyatcraigpodcastDisclaimer: The content in this podcast is intended for general informational purposes only. Craig Hospital is not affiliated with resources that may be referenced in this podcast. Any use of this content by a corporation or other revenue-seeking or -generating organization is prohibited unless first approved by Craig Hospital.

How do you prepare a child for surgery and build trust with their medical team? This episode explores how families and healthcare providers can work together to support children through procedures like tonsillectomy and other medical challenges. This week's guest, Dr. Tali Lando, shares her perspective as a pediatric ENT surgeon, author, and mom of three teenage daughters. She and Katie discuss what it's really like for families navigating medical care with complex kids and how parents can advocate effectively while still building strong partnerships with their child's care team. If you've ever wondered how to build trust with your child's doctor, prepare your child for surgery, or understand the perspective of the people caring for your child, this episode offers meaningful insight and reassurance. Dr. Lando's message is clear: the best outcomes happen when families and providers work together as partners. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. Resources & Ways to Connect: Book: Breathless: Surgical Tales from the Brink and Back By Dr. Tali Lando  Available on Amazon Website  Instagram Connect with us!  Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: pediatric ENT surgeon, tonsillectomy preparation for kids, preparing children for surgery, pediatric airway specialist, parenting medically complex children, doctor-patient partnership, advocating for your child in healthcare, pediatric surgery preparation, airway disorders in children, Breathless Dr. Tali Lando, medical memoir pediatric surgeon, supporting families in pediatric healthcare  

What does life really look like after a child receives a kidney transplant? Many people think transplant is the end of the journey—but for families, it's often just the beginning. This week's guest, Lyndsey Fedorko, returns to the podcast to share the next chapter of her son James's medical journey—life after a kidney transplant. After years of dialysis, hospitalizations, and uncertainty, James received a life-saving kidney transplant from his aunt, marking the beginning of a new season for their family. Lyndsey and Katie reflect on the intense months surrounding transplant surgery, including relocating their family to Houston, navigating the transplant workup process, and the emotional weight of waiting while two surgeries—donor and recipient—happened at the same time. Lyndsey shares what recovery really looked like, from the long hospital stay caused by a rare complication to the daily routines required to protect James's new kidney. Lyndsey shares openly about the ongoing care James still needs, including medications, monitoring for rejection, therapies, and the unexpected challenges that came after transplant—including a rejection episode that required intensive treatments. If you've ever wondered what life after pediatric transplant truly looks like, this conversation offers an honest and hopeful look at resilience, advocacy, and the power of family support. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. Resources & Ways to Connect: Connect with Lyndsey Children's Transplant Initiative Provides housing and support for families traveling for pediatric transplant care. IROC (Improving Renal Outcomes Collaborative)- Support and Educational Resources for families navigating pediatirc Kidney Transplants Connect with us!  Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: pediatric kidney transplant, life after transplant child, dialysis in children, kidney disease in kids, transplant rejection treatment, pediatric transplant recovery, living donor kidney transplant, children's transplant initiative housing, transplant parent story, caring for medically complex child, pediatric kidney failure journey, transplant family support, child life coping tools, parenting through pediatric illness.

“What if a blood draw didn't have to feel terrifying, Abby Rose is a child life specialist. And if you have never taken advantage of all they have to offer when your child is hospitalized, you're going to want to connect with them after you listen or watch this podcast!The North American Cystic Fibrosis Conference is one of those places you attend to learn—but it's also a place where you meet people who quietly leave a lasting mark. One of those people is Certified Child Life Specialist Abby Rose.Abby works at Seattle Children's Hospital, supporting both the Cystic Fibrosis program and Pediatric Hemodialysis. Originally from Wisconsin, she earned her bachelor's degree in Psychology and Family Studies from the University of Wisconsin–Eau Claire, followed by a master's degree in Child Life from Edgewood College.In her role, Abby focuses on outpatient care, working closely with children and families to create individualized coping plans. She supports kids through procedures many of us take for granted—blood draws, throat swabs, vaccinations, while also helping families navigate pill swallowing, treatment tolerance, sibling support, and the everyday challenges that can feel overwhelming in CF care.People like Abby made a profound difference for kids like one of my daughters—children who are frightened by procedures or don't fully understand what's about to happen to them. Child Life Specialists play a critical role in hospital settings, helping children feel safer, more informed, and more in control during some of their most vulnerable moments.Today, I'm excited to talk with Abby about the work she does—and why it matters so deeply.In our conversation, we'll explore:The Beads of Courage program and why it's so meaningful to children and familiesWhy Abby is such a strong advocate for transparency, open communication, and the rights of patients and familiesWhat draws her personally to Child Life work, and why she believes in it so deeplyAnd some of the “tricks of the trade”—the practical tools and techniques she uses to help kids feel calmer and more cooperative during procedures like blood drawsThis is a conversation about care, trust, and the people who help make hard moments just a little bit easier. Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/enRead us on Substack: https://substack.com/@lstb?utm_campaign=profile&utm_medium=profile-pageWatch our trailer of Embracing Egypt: https://youtu.be/RYjlB25Cr9Y

This week's guests, perinatal mental health therapists Emily Souder and Mahaley Patel, share the story behind their book Your NICU Story: Reflecting on Your Family's Experience—a guided journal created to help families process the emotional impact of a NICU stay. Mahaley also opens up about her daughter, Sachi, who died after a NICU stay, and how storytelling and narrative healing became a lifeline in her grief. She and Emily talk with Katie about why so many NICU parents carry trauma long after discharge and how writing your story can help families reconnect with what they experienced. They also discuss the emotional weight of making medical decisions during a NICU stay, the importance of compassionate healthcare providers, and why healing sometimes begins months or even years later. If you've ever struggled to process a NICU experience—or wondered how to revisit it in a way that feels safe and meaningful—this conversation offers powerful insight and hope. Emily and Mahaley's biggest message? Your story deserves space, compassion, and time—and reflecting on it can be an important step toward healing. We extend our sincere gratitude to our sponsor for this episode, Gebauer PainEase®. We are pleased to provide more information about this product, and we invite you to learn more by visiting their website. Resources & Ways to Connect: Book: Your NICU Story: Reflecting on Your Family's Experience Available wherever books are sold, including Amazon, Barnes & Noble, and local bookstores. Emily Souder, LMFT, PMH-C Website  Instagram Mahaley Patel, LMFT, PMH-C Instagram Connect & Support from Child Life On Call: Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team.   Keywords: NICU trauma, healing after NICU, NICU parent mental health, NICU journaling prompts, birth trauma support, NICU loss support, perinatal mental health therapist, processing NICU experience, life after NICU discharge, NICU storytelling, guided journal for NICU parents, neonatal intensive care support, grief after NICU, NICU parent resources  

What happens when your child shares something that shifts the future you thought you understood?   In this episode of Inside the Children's Hospital, Katie sits down with Kelly Kemp — certified child life specialist of more than 30 years and mom of three — to talk about navigating trust, grief, advocacy, and love after her child was diagnosed with gender dysphoria and came out as transgender.   Kelly shares: The phone call that changed everything Navigating substance use and mental health concerns Grieving privately while choosing love publicly Rebuilding trust with her child Supporting siblings during a major transition Setting boundaries with extended family Finding affirming medical and mental health care Holding faith and parenting together during uncertainty This conversation is not about politics. It is about parenting inside a medical diagnosis. It is about trust. It is about grief that doesn't mean rejection. And it is about the steady, protective love that children need — especially when the world feels loud. Whether your child is navigating a medical diagnosis, identity development, or a season you didn't anticipate, this episode will remind you: Grief and love can coexist. Trust is foundational. And your child still needs you. Resources & Crisis Support:   The Trevor Project: Providing crisis intervention and suicide prevention services to lesbian, gay, bisexual, transgender, queer & questioning (LGBTQ) young people. Call: 1-866-488-7386 Text: START to 678-678 988 Suicide & Crisis Lifeline: For mental health crises in the US. Free Mom Hugs WPath (World Professional Association for Transgender Health) The Trans Family Alliance Please note: Some organizations have private social media groups. For more information on those, you are welcome to private message Kelly Kemp.   Connect & Support from Child Life On Call: Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team.  

This week's guest, Abby Horton, opens up about her journey as a Child Life Specialist working across ICU, burn, surgical, rehab, and inpatient settings—and how those experiences shaped the way she supports families navigating physical differences. From sudden trauma and accidents to limb differences, burn injuries, surgical scars, and hair loss from chemotherapy, Abby shares how parents can gently empower their children to own their story with confidence. She and Katie discuss simple, age-appropriate scripts that help children respond to questions about their bodies. Abby explains why modeling these conversations early matters, how to give kids space to answer for themselves, and why curiosity from peers is often just that—curiosity, not cruelty. If you've ever wondered how to help your child respond to stares, questions, or comments about a physical difference, this conversation offers practical tools and deep reassurance. Abby's biggest message? You're probably doing better than you think—and it's not about having perfect words, but about helping your child feel loved and supported. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources & Ways to Connect: Website: Little Lighthouses Child Life Services Instagram: @littlelighthouseschildlife Abby offers virtual support for families navigating physical differences, medical transitions, and post-hospital adjustment. Connect & Support from Child Life On Call: Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team.   Keywords: physical differences in children, limb difference support, burn survivor child, surgical scars in kids, hair loss from chemotherapy, child life specialist, five cent story, five dollar story, resilience in children, bullying vs curiosity, parenting medically complex child, body confidence in kids, hospital to home transition, psychosocial support for families, sibling advocacy, Little Lighthouses Child Life

This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vincent, but their entire family, including his older brother. She reflects on what helped her cope during long NICU days, how she advocated for herself using her healthcare background, and what she wishes she had known about the "medically complex" label sooner. This episode explores sibling bonding in the NICU, the impact of a truly integrated care team, the importance of addressing social determinants of health, and how resilience can grow in the smallest of patients. Anna's story is a beautiful reminder that families may not remember every name—but they will always remember how they were made to feel. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources Mentioned Today's Episode: Hand to Hold March of Dimes Ronald McDonald House Caringbridge Connect with Anna: Anna is open to connecting with other NICU families—please email us at podcast@childlifeoncall.com if you would like to connect with her! Connect & Support from Child Life On Call: Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: micro preemie, NICU journey, 25 week preemie, medically complex child, chronic lung disease in children, antepartum hospitalization, emergency C-section, sibling support in NICU, child life specialist, Ronald McDonald House, Hand to Hold, March of Dimes, NICU discharge, parenting after the NICU, medical motherhood, resilience in children, premature birth support, Midwest NICU mom

When tube feeding enters your life—whether at birth, in childhood, or adulthood—it can feel overwhelming, isolating, and misunderstood. In this special live episode of Inside the Children's Hospital, we center the voices of those with lived experience to explore what tube feeding really looks like beyond the diagnosis and discharge instructions. Host Katie Taylor is joined by parent advocates, a young adult patient, and a pediatric dietitian to share honest, unfiltered perspectives on NG tubes, G-tubes, GJ tubes, and blended feeds. Together, they discuss early fears and misconceptions, navigating medical systems and insurance, advocating for better options, and how tube feeding can ultimately bring relief, stability, and freedom. This conversation highlights the power of community, the importance of being believed, and what compassionate, family-centered support truly looks like—for patients, parents, and professionals alike. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings.   Resources from today's episode: Oley Foundation  Infusing Hope Conference Join Oley for Community, Education, and so much more! Blended Tube Feeding Instagram  Luma Clean Cares A SXSW Short Film on the reality of tube-feeding, called 'Unholy' Connect with Guests from Today's Episode: Kelsey Ward – Parent advocate and medical parent, Follow Kelsey on TikTok Brady Crandall – Parent advocate and founder of YouthCrews Alexa Quintero – Patient advocate and young adult with lived tube feeding experience Hilarie Geurink, RD – Pediatric dietitian specializing in flexible, real-food tube feeding, Founder of Blended Tube Feeding Connect & Support from Child Life On Call: Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources!   Keywords: Tube feeding awareness, G-tube parenting, NG tube experience, GJ tube support, Medical parent advocacy, Pediatric nutrition support, Blended tube feeding, Real food tube feeding, Feeding tube myths, Medical trauma and advocacy, Young adult chronic illness, Child life support, Family-centered care, Hospital parent support, Living with feeding tubes Medical information provided is not a substitute for professional advice—please consult your care team.

When your child's life is shaped by medical complexity, childhood can quickly become defined by hospital stays, procedures, and limitations. In today's episode, we explore how medically supported camps transform that narrative—creating space for joy, belonging, and healing for children, families, and even healthcare providers themselves. Katie Taylor is joined by Dr. Laura Blaisdell, Chief Medical Officer of SeriousFun Children's Network, and Jamie Gentille, Child Life Specialist Leader and former camper, to share the life-changing impact of camp for children with serious illnesses. From zip-lining with oxygen tubing to late-night cabin chats that build confidence and identity, this conversation highlights how thoughtfully designed camp experiences allow kids to be kids—without compromising medical safety. This episode explores the power of positive childhood experiences, how camps seamlessly integrate complex medical care behind the scenes, the role of child life specialists and medical volunteers in creating safe spaces for play, and why camp is just as healing for providers as it is for children. You'll also hear Jamie's personal journey from camper to child life specialist and why camp will always feel like home. Explore Child Life On Call's directory of medical and disability-friendly summer camps for kids! This resource helps families find inclusive summer camp options that support children with medical needs and disabilities, making it easier to plan fun, safe, and engaging summer experiences. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources from today's episode: Medical & Camp Support: SeriousFun Children's Network Hole in the Wall Gang Camp Painted Turtle Camp Medical volunteer opportunities through SeriousFun  Connect & Support from Child Life On Call  Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to search stories and episodes easily Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Keywords: Medically complex children, Pediatric medical camps, SeriousFun Children's Network, Child life specialist, Positive childhood experiences, Pediatric chronic illness support, Medical trauma healing, Camp for children with illness, Family-centered care, Pediatric resilience, Provider burnout prevention, Therapeutic play, Sibling support, Pediatric healthcare community Medical information provided is not a substitute for professional advice—please consult your care team  

When your child survives one medical emergency only to face another, parenting becomes a constant act of advocacy and courage. Today's guest joins us to share her daughter's journey with rare and complex medical conditions, from early respiratory failure and unexplained hospitalizations to epilepsy, lung disease, and life with medical uncertainty. As a military spouse navigating deployments, Brittany shares what it means to walk this path largely alone, trust her instincts as a mother, and fight to be believed by medical professionals. This episode explores navigating rare disease without clear answers, the life-changing impact of compassionate child life support, supporting siblings through medical trauma, and how rituals, play, and community help families find hope and meaning in the midst of chaos. Download our free Children's Hospital Passport to help empower your child and family during hospital stays. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org.   Resources from today's episode: Medical Support:  Stanford Children's Health  Undiagnosed Diseases Network Nonprofit & Community Support: Live Like JoJo Foundation The Meg Foundation (Pediatric Pain & Poke Plans)  Brave Bears Club (Epilepsy Support) Child Life Mommy CHYP  Connect with Brittany Follow Brittany's journey as she shares life as a medical mom, military spouse, and advocate.    Connect & Support from Child Life On Call  Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to easily search stories and episodes Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources!   Keywords: Rare disease parenting, Medical motherhood, Medically complex child, Pediatric lung disease, Pediatric epilepsy, Intractable epilepsy, PICU parent experience, Military family healthcare, Parent advocacy in healthcare, Child life specialist support, Sibling support during hospitalization, Parenting after medical trauma, Coping with chronic illness, Undiagnosed disease journey, Hospital parent support Medical information provided is not a substitute for professional advice—please consult your care team  

When your newborn is healthy one moment and rushed to the PICU the next, life can change in an instant. Today's guest joins us to share her son's journey with severe hemophilia—from unexpected bleeding after a routine circumcision to a spontaneous brain bleed, emergency surgery, and a months-long PICU stay. This episode explores being thrust into medical motherhood, learning to advocate under unimaginable stress, and how community, child life, and modern medicine help families navigate life with a complex diagnosis. Download our free Children's Hospital Passport to help empower your child and family during hospital stays. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org. Resources Medical Support: Mayo Clinic Children's Center & Hemophilia Treatment Center, Rochester, MN Nonprofit & Community Support: Hemophilia Foundation of Minnesota & the Dakotas Connect with Sami Follow Sami and Cooper's journey on Instagram  Connect & Support from Child Life On Call  Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to easily search stories and episodes Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips. Leave a Review: It helps other families find us and access our resources! Keywords: Severe hemophilia, Hemophilia in infants, Newborn hemophilia diagnosis, Infant brain bleed, Pediatric hemophilia, Medical motherhood, PICU parent experience, Emergency brain surgery infant, Rare disease parenting, Bleeding disorders in babies, Hemophilia treatment center, Parent advocate in healthcare, Life after a NICU or PICU stay, Medically complex child, Child life specialist support, Coping with a chronic diagnosis, Parenting after medical trauma, Hemophilia A awareness, Infant seizures medical emergency, Hospital parent support Medical information provided is not a substitute for professional advice—please consult your care team.

Host Scott Hennen and "Uncle Kev" return with an explosive Monday update on the escalating "Minnesota Madness." The episode leads with a major scoop regarding potential back-channel communications between Minneapolis Mayor Jacob Frey and the President as the city searches for an "off-ramp" from the ongoing civil unrest. Tensions reached a new high over the weekend as protesters—followed by former CNN host Don Lemon—invaded a St. Paul church service, leading to a federal civil rights probe. The duo breaks down staggering new statistics from DHS Secretary Kristi Noem, who reveals that 10,000 criminal illegal aliens have now been arrested in Minnesota, including a surge of 3,000 in just the last six weeks. From the "fentanyl bomb" to the massive "voter voucher" schemes, this episode pulls no punches. Later, North Dakota Department of Health and Human Services Commissioner Pat Traynor discusses innovative rural healthcare grants, and we hear a heartwarming look at Sanford Health's Child Life program. Standout Moments & Timestamps [00:00:15] Scoop: Mayor Frey's Off-Ramp? Scott shares exclusive details from a Minneapolis business icon regarding a requested call between Jacob Frey and President Trump to turn down the heat in the Twin Cities. [00:04:45] The 10,000 Arrest Receipt Breaking down Kristi Noem's latest report: 10,000 arrests in Minnesota since operations began. Scott reads the "receipts" on specific heinous crimes involving child predators and murderers now off the streets. [00:07:45] The Fentanyl Collapse A local emergency room physician reports a miraculous drop in fentanyl overdoses—from 12 a day down to nearly zero—crediting recent border and interdiction policies. [00:13:30] Invasion of the Sanctuary Bill Glahn from the Center of the American Experiment recaps the shocking footage of protesters disrupting a Baptist church service in St. Paul while searching for an ICE agent who wasn't even present. [00:20:45] Pro-Deportation Polls Scott reveals a new Rasmussen poll showing that 79% of all voters—including 69% of Democrats—support the deportation of illegal immigrants who commit crimes. [00:26:15] Jason Lewis: "Thelma and Louise on Steroids" Former Congressman Jason Lewis joins the show to discuss the "political suicide" of Minnesota Democrats and why the business community is in a "full-fledged panic." [00:29:45] The $700 Million Luggage Discovery A discussion on reports that TSA flagged $700 million in cash leaving the Minneapolis airport in the luggage of Somali couriers over the last two years. [00:36:30] Virtual Reality in the Hospital Melissa Schmaltz, a Child Life Specialist at Sanford Health,…

When your child receives a new medical diagnosis, it can feel like the world shifts beneath your feet. Today's guest joins  Katie Taylor to share her daughter's Type 1 Diabetes journey—from dismissing "textbook" symptoms to navigating the financial challenges of families when it comes to chronic illness. This episode explores how one Mom moved from denial to "work mode" and how the HealthWell Foundation helps families afford life-saving medications. Sponsored in part by HealthWell Foundation—learn how you can help families afford life-saving medications at healthwellfoundation.org. Download our free Children's Hospital passport to empower your child to feel comfortable in the children's hospital. Resources Medical Support: Sanford Children's Hospital, Sioux Falls, SD. Nonprofit Support: HealthWell Foundation (Pediatric Assistance Grant). Community & Education: Children with Diabetes (10-year coins) and Stacey Simms (Diabetes Connections), Headstrong Foundation Connect with Alicia directly  Connect & Support Subscribe: Never miss an episode on Apple Podcasts or Spotify. Visit insidethechildrenshospital.com to easily search stories and episodes Follow us on Instagram for updates and opportunities to connect with other parents Download SupportSpot: receive Child Life tools at your fingertips.  Leave a Review: It helps other families find us and access our resources! Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: Type 1 Diabetes, T1D diagnosis, HealthWell Foundation, pediatric healthcare, medical financial assistance, insulin costs, child life specialist, diabetes symptoms in kids, middle class healthcare help, medical debt, Dexcom, Omnipod, childhood chronic illness, parenting a diabetic child, Sanford Childrens Hospital, co-pay assistance, pediatric grants, medical parenting, T1D symptoms, diabetes advocate.

Hear the story behind Child Life on Call's transformation into Inside the Children's Hospital. Discover what's next for families seeking support and real hospital stories. Listen to more stories at insidethechildrenshospital.com. Medical Legal Disclaimer: This podcast is for informational purposes only and does not constitute medical advice. Always consult your healthcare provider for guidance about your child's health.

December 8, 2025 ~ Kathleen Grobbel, Moonbeams co-leader and Child Life program manager, joins Marie Osborne to talk about the Moonbeams for Sweet Dreams event at Corewell Health Children's Hospital Hosted by Simplecast, an AdsWizz company. See https://pcm.adswizz.com for information about our collection and use of personal data for advertising.

Chance joins his Child Life Specialist, Katy, to share how the Child Life and Creative Therapies team at Manning Family Children's brings comfort, joy, and understanding to kids facing medical challenges. Katy explains the vital role Child Life plays—especially for long-term patients—while Chance offers his own perspective on how the team has made his hospital experience brighter. Together, they highlight why listener support is essential to sustaining these therapeutic, transformative services.

Scoot and Ian Hoch share stories of courage, creativity, and community from families and partners supporting Manning Family Children's. They speak with Alicia and her daughter Camille about their craniofacial journey, hear from Angel Beery about the mission behind Kids Join The Fight and the legacy that inspired Walker's Imaginarium, and connect with Meredith Seacrest Leach on the transformative impact of Seacrest Studios. Patient Chance also joins to share how the Child Life team has brightened his hospital experience, offering listeners a heartfelt reminder of why their support matters.

Child Life Specialist Bailey joins patient Abigail—this year's Manning Family Children's holiday parade queen—and her mom Christina to share how Child Life brings comfort, understanding, and joy to kids in the hospital. Bailey reflects on why she chose this meaningful work and the critical role her team plays, while Christina and Abigail describe the compassionate care and support they've experienced firsthand. Together, they look forward to parade day and offer messages of hope to families walking similar journeys.

On Sunday we wrapped up our vision series, Join the Family, with a message on the identity of a child.  God's answer to a world filled with lack, is the establishment of a family. Abraham and his family were to trust God unto blessing the nations. This was ultimately fulfilled in Christ's life, death and resurrection, where we now are invited to join the family of God through the blood of Jesus.  Our new identity as God's child changes everything. We now have the security, access, and abundance of our Father. Being a part of God's family means that you are so secure in His love that you don't need to manipulate or control other family members to address lack. This frees you up to truly love and serve your brothers and sisters, and is the foundation of Christian community.

00:00:00 Opening banter & Halloween jokes 00:04:30 Introduction of Monroe Carell Hospital guests 00:08:45 Christmas Angel Fund recap – year 1 & 2 impact 00:14:20 Graydon joins to discuss gaming therapy 00:19:00 How video games support emotional healing 00:26:00 Behind the scenes of Child Life and patient support 00:32:30 Showcasing equipment funded last year (Xbox, PC, 3D printer) 00:38:00 Announcing the 2025 goal and mobile recording studio project 00:43:30 Emotional moment with IJ's story and community tributes 00:48:00 Music therapy cart details & equipment discussion 00:54:00 Adaptive gaming for kids with limited mobility 01:00:00 Live donation segment & real-time goal tracker 01:08:00 Family programs and whole-child care philosophy 01:15:00 Community stories & hospital partnership growth 01:23:00 Recap of fundraising tools and anonymous donor options 01:40:00 Switch to Star Trek Fleet Command game updates 01:55:00 Vengeance blueprints and G7 discussion 02:15:00 Community wrap-up & final thank-you messages 02:35:00 Closing remarks and end of show

Game on! Host Bo McMillian sits down with Child Life Specialist Matt Flynn on the latest episode of the Young & Healthy Podcast to talk about video games, screen time and healthy gaming habits. They talk about the game worlds kids love and balancing them with the real world.  Matt explains the difference between passive scrolling on TikTok and active video gaming. He also shares his thoughts on how electronics and games can both support and challenge childhood development. Spoiler, there are skills kids can learn from gaming that can be applied to real-life situations. Listeners will learn how to keep their kids safe in online gaming and make sure that their children are connecting instead of isolating themselves. Whether you're a parent, educator, or gamer, this episode offers practical insights on screen time, healthy gaming habits, and childhood growth. Power up, grab a seat and dive in for an insightful conversation.  Resources:  To learn more about Child Life at Cincinnati Children's, visit Child Life | Child and Adolescent Psychiatry  To learn more about game ratings, visit the Entertainment Software Rating Board (ESRB) website ESRB Ratings | Entertainment Software Rating Board  For other media and entertainment information to keep your family up to date on all things media, visit the following websites:  Common Sense Media: Age-Based Media Reviews for Families | Common Sense Media  TechCrunch | Startup and Technology News  WIRED - The Latest in Technology, Science, Culture and Business | WIRED  Chapter Markers:  00:00:53 – What is a Child Life Specialist?  00:02:31 – Is There a Difference Between Scrolling and Playing Games?  00:05:21 – In What Ways Do Electronics and Games Support Childhood Development?  00:07:25 – How Can Skills Learned from Games Apply to Life?  00:11:37 – Do Video Games Negatively Impact Childhood Development?  00:13:22 – Are There Signs Screen Time Is Affecting Your Child?  00:17:15 – How Can Parents Decide if a Game Is Appropriate for Their Child?  00:22:10 – How Can Parents Keep Kids Safe in Online Games?  00:26:48 – How Can Families Make Games Feel Connecting, Not Isolating?  00:28:15 – Final Thoughts and Wrap Up. 

Psychologist and heart-transplant recipient Dr. Brittany Clayborne shares how her own medical journey prepared her to guide her son Micah through sudden heart failure, an LVAD, and a life-saving transplant. She unpacks the family's rare Danon's disease diagnosis, post-transplant cancer (PTLD), and the everyday realities after transplant—meds, setbacks, and hope. You'll learn Dr. Brittany's BRAVE framework for hard moments, how rituals sustain connection during long hospital stays, and how Micah turned his experience into action with Transplant Teens and My Brave Journal. This conversation is packed with concrete tools, compassion, and the reminder that “hope is a team sport.” You do not want to miss this week's episode. Featured moments: 00:00 — Why families need “somewhere to be brave.” 04:50 — Brittany's peripartum cardiomyopathy, ICU wait, and LVAD. 10:05 — PTLD diagnosis and becoming the psychologist she needed. 12:50 — Micah's chest pain → HCM crisis and transplant path. 24:00 — The BRAVE acronym families can use today. 44:00 — “Hope is a team sport.” Transplant Teens' vision. Key takeaways: Use BRAVE in tough conversations: Breathe • Realize feelings • Accept them • Vent/Vulnerable with a trusted person • Elevate above it. Build predictable touchpoints (calls/visits) to anchor kids during long hospitalizations. Teens heal better with peers; if the group doesn't exist yet, create it. Resources mentioned: Transplant Teens (free peer support for grades 7–12) Transplant Teens Instagram My Brave Journal (and transplant edition) by Micah — on Amazon. Contact Dr. Brittany: @DrBrittanySpeaks; offers limited free virtual sessions with referrals for ongoing care.

In this conversation, Nicole Gebhardt shares her profound journey of transformation from pain to purpose after experiencing significant loss and trauma. She discusses her spiritual awakening, the importance of community, and the healing power of sharing stories. Nicole emphasizes the need for support groups for women who have experienced loss and offers insights into her unique 12-step program that incorporates emotional healing techniques like Reiki and Emotion Code. Throughout the discussion, she highlights the importance of embracing one's worth and the power of connection with angels and spirituality in the healing process. More about Nicole: Nicole B. Gebhardt, MS, CCLS, CECP is a highly accomplished best selling author, speaker, and transformational coach with a passion for helping families heal and find peace after experiencing pregnancy and infant loss. She also is a huge advocate for individuals struggling with addiction. With a Master's degree in Human Development & Family Studies, specializing in Child Life from the University of Alabama, and a Bachelor's degree in Business Communications from Florida State University, Nicole combines academic excellence with extensive hands-on experience in human development and mental health. A Certified Child Life Specialist (CCLS), Nicole also holds certifications as a Sacred Usui Reiki Master, Holy Fire III® and Karuna 2® Reiki Master, and Certified Emotion Code Practitioner. As an active member of the National Speakers Association, she is a sought-after speaker. Nicole's dedication extends beyond her professional credentials. As a military spouse herself, she was recently named 2025 Washington, D.C. National Guard Spouse of the Year. She has volunteered in various leadership roles with the National Guard Bureau Spouses' Club, the Air Force Officers' Spouses Club of Washington, D.C., the Eielsen Air Force Base Spouses Club and other military support organizations. She has also served as a support group leader for infant loss and miscarriage across the country. Her extensive career includes positions as Executive Director at two private preschools, the CEO and Founder of The Worthy Femme and a recognized expert in Pregnancy and Infant Loss Awareness. Nicole is also a licensed teacher, demonstrating her lifelong commitment to child welfare, family support, and making a difference in the lives of others. For more information about Nicole and her work, visit www.nicolebgebhardt.com and https://spirituallighthousehealing.com/nicole-b-gebhardt-author-coach-and-reiki-healing/ and emotioncodereiki.com Broken Wings Broken Dreams: A Mother's Life After Infant Loss and Miscarriage: https://www.amazon.com/Broken-Wings-Dreams-Miscarriage-Meaningful/dp/B0DPT5FMCV/ The Healing Cocoon : A Mother's Emergence After Infant and Pregnancy Loss: https://www.amazon.com/dp/B0DJZSR8WG “The Queen's Companion Book: Rule Your Throne. Own Your Queendom” available to purchase on Amazon here:  https://www.amazon.com/dp/B0CMWQLNM1 https://www.facebook.com/nicolebgebhardt https://facebook.com/nicolebgebhardtofficial https://www.linkedin.com/in/nicolegebhardtheals https://www.instagram.com/nicole.gebhardt Learn more about your ad choices. Visit megaphone.fm/adchoices

In this conversation, Nicole Gebhardt shares her profound journey of transformation from pain to purpose after experiencing significant loss and trauma. She discusses her spiritual awakening, the importance of community, and the healing power of sharing stories. Nicole emphasizes the need for support groups for women who have experienced loss and offers insights into her unique 12-step program that incorporates emotional healing techniques like Reiki and Emotion Code. Throughout the discussion, she highlights the importance of embracing one's worth and the power of connection with angels and spirituality in the healing process. More about Nicole: Nicole B. Gebhardt, MS, CCLS, CECP is a highly accomplished best selling author, speaker, and transformational coach with a passion for helping families heal and find peace after experiencing pregnancy and infant loss. She also is a huge advocate for individuals struggling with addiction. With a Master's degree in Human Development & Family Studies, specializing in Child Life from the University of Alabama, and a Bachelor's degree in Business Communications from Florida State University, Nicole combines academic excellence with extensive hands-on experience in human development and mental health. A Certified Child Life Specialist (CCLS), Nicole also holds certifications as a Sacred Usui Reiki Master, Holy Fire III® and Karuna 2® Reiki Master, and Certified Emotion Code Practitioner. As an active member of the National Speakers Association, she is a sought-after speaker. Nicole's dedication extends beyond her professional credentials. As a military spouse herself, she was recently named 2025 Washington, D.C. National Guard Spouse of the Year. She has volunteered in various leadership roles with the National Guard Bureau Spouses' Club, the Air Force Officers' Spouses Club of Washington, D.C., the Eielsen Air Force Base Spouses Club and other military support organizations. She has also served as a support group leader for infant loss and miscarriage across the country. Her extensive career includes positions as Executive Director at two private preschools, the CEO and Founder of The Worthy Femme and a recognized expert in Pregnancy and Infant Loss Awareness. Nicole is also a licensed teacher, demonstrating her lifelong commitment to child welfare, family support, and making a difference in the lives of others. For more information about Nicole and her work, visit www.nicolebgebhardt.com and https://spirituallighthousehealing.com/nicole-b-gebhardt-author-coach-and-reiki-healing/ and emotioncodereiki.com Broken Wings Broken Dreams: A Mother's Life After Infant Loss and Miscarriage: https://www.amazon.com/Broken-Wings-Dreams-Miscarriage-Meaningful/dp/B0DPT5FMCV/ The Healing Cocoon : A Mother's Emergence After Infant and Pregnancy Loss: https://www.amazon.com/dp/B0DJZSR8WG “The Queen's Companion Book: Rule Your Throne. Own Your Queendom” available to purchase on Amazon here:  https://www.amazon.com/dp/B0CMWQLNM1 https://www.facebook.com/nicolebgebhardt https://facebook.com/nicolebgebhardtofficial https://www.linkedin.com/in/nicolegebhardtheals https://www.instagram.com/nicole.gebhardt Learn more about your ad choices. Visit megaphone.fm/adchoices

Safari West is a for profit facility.  It's a 400 acre wildlife preserve with primarily African animals.  They provide in person safari style tours throughout the property on refurbished International Scouts that were used during the Korean War.     The Safari West Wildlife Foundation is Safari West's nonprofit.  It operates on the same property but they are technically two separate entities.  The program, Safari West LIVE, is 1 of 3 programs fully funded by the Safari West Wildlife Foundation via the generosity of donors.  The Safari West LIVE program provides virtual livestream safaris, at Safari West, to children's hospitals for kids in long term care.  We have about 68 hospitals we partner with all across the country, and have reached approximately 24,000 children's hospital beds so far this year.     The distinction is important because donations would be made to the Safari West Wildlife Foundation, not Safari West.  Another important distinction would be our focus is on the hospitalized children first.  The animals are wonderful, of course.  Working with them is wonderful.  But, the passion of the Safari West LIVE team lies in what we are providing to kids, and their families, that are dealing with far more than any child or family should ever have to manage in their lives.   There are many testimonials from Child Life professionals all across the country talking about the incredible impact Safari West LIVE has on kids dealing with long term hospitalization and life threatening, sadly sometimes fatal, illness. SPECIAL THANKS TO THE TEAM: MARLEE, DENISE, CHRIS and ERIC for your committment to the CHILDREN   SPECIAL NOTE: THE HOSPITALS DO NOT PAY FOR THE SAFARI WEST LIVE PROGRAM THAT'S WHY YOUR DONATIONS ARE SO VITAL Zoolife Live Camera Safari West https://safariwest.com › live-camer     Stay Wild, Marlee Wellington  Safari West LIVE Program Manager (707) 919-6244 safariwestlive@safariwestfoundation.org   PODCAST contact VALERIE HAIL valerie@allinourminds.com, www.allinourminds.com  

“I was pumping in the NICU, feeling completely disconnected—and my husband looked at me and said, ‘Can you invite her in?' That moment changed everything. A nurse handed me a swab, I gave my baby colostrum for the first time, and I thought, ‘I'm a mommy.'” – Tanisha NICU mom and advocate Tanisha shares her deeply moving journey through an unexpected fetal diagnosis, a 157-day NICU stay, and the powerful moments that helped her reconnect with motherhood. Diagnosed at 20 weeks with Lower Urinary Tract Obstruction (LUTO)—a rare, life-threatening condition—Tanisha's son Jaleel faced impossible odds. From transferring care to Cincinnati Children's Hospital, navigating in-utero surgery, to forming a life-saving care team that included her husband and child life specialists, Tanisha's voice is a beacon of strength, love, and resilience.

When Laura's daughter was diagnosed with leukemia, her world stopped. What followed was a powerful journey through fear, resilience, and fierce advocacy. In this episode, Laura DeKraker Lang-Ree—a lifelong educator and now author of The Cancer Parent's Handbook—opens up about the most terrifying day of her life, how she transformed pain into purpose, and why parent-to-parent support is critical in the childhood cancer community. Her reflections are raw, heartfelt, and offer wisdom for every parent facing a medical diagnosis with their child. 

Send us a textToday we're welcoming Kelsey Mora, a Child Life Specialist and Therapist, to chat all about the intricacies of navigating grief with children.The conversation covers Kelsey's personal and professional journey, starting from her teenage years when she lost a friend to leukemia, to her current role in private practice. We explore the balance between honesty and hope when discussing serious health issues and death with children, and the importance of clear and age-appropriate communication.You'll gain SUCH valuable insights into effective strategies for supporting grieving children and engaging in difficult conversations about loss and illness.Connect with Kelsey:childlifetherapist.comthemethodworkbooks.com@childlifetherapist@themethodworkbooks Learn more about Micro-Moments for Transformation and begin your evolution today: https://lossesbecomegains.com/transformation Learn more about the 14-Day Relief in Your Grief experience and begin feeling more peace and healing: https://lossesbecomegains.com/transformationWork with me: Micro-Moments for Transformation: https://lossesbecomegains.com/transformation 14-Day Relief in Your Grief Challenge: https://lossesbecomegains.com/relief-in-grief Work with me one-on-one: https://lossesbecomegains.com/work-with-tara Connect with me further: Leave a voice note through Speakpipe! https://www.speakpipe.com/LifeWithGrief Instagram: https://www.instagram.com/lossesbecomegains/ Instagram: https://www.instagram.com/lifewithgriefpodcast/ Facebook: https://www.facebook.com/losses.become.gains Website: https://lossesbecomegains.com/ Shop the LBG Daily Journal: https://lossesbecomegains.com/journal By accessing this Podcast, I acknowledge that the entire contents are the property of Tara Accardo, or used by Tara Accardo with permission. Except as otherwise provided herein, users of this Podcast may ...

We'd like to extend our sincere thanks to our episode sponsor, reStickity®. Their innovative, mess-free reusable sticker sets allow families to personalize hospital spaces with familiar photos and comforting images, helping bring a sense of home to the hospital. To learn more, visit their website and use code CLOC10 for an exclusive discount available to our listeners. In this inspiring episode, we meet Sarah Michelle Boes—nurse practitioner, entrepreneur, and mom to Meadow, who was diagnosed in utero with Tetralogy of Fallot and multiple congenital heart defects. Sarah brings a powerful trifecta of perspectives: as a medical provider, mental health advocate, and dedicated heart mom. We cover: ✅ Meadow's life-saving heart surgeries and long ICU stays ✅ How Sarah navigated new motherhood with OCD and anxiety ✅ The emotional toll of being both a medical provider and a parent ✅ Creating a connection through medical play to ease doctor visits ✅ How Sarah turned survival into purpose through national advocacy Whether you're a fellow medical parent, healthcare provider, or mental health professional, this episode will leave you with real insight into the raw challenges and unexpected joys of raising a child with complex medical needs. Key Topics & Highlights [00:00] – Meet Sarah Michelle Boes Nurse practitioner, entrepreneur, and heart mom Her daughter Meadow's surprise diagnosis of Tetralogy of Fallot at 36 weeks ⏱️ [03:00] – From Business Success to Medical Crisis Selling her business weeks before Meadow's diagnosis The shock of learning Meadow had four heart defects ⏱️ [05:00] – Learning to Navigate as a Medical Parent How Sarah's medical background helped (and complicated) her parenting Teaching her husband how to advocate medically alongside her ⏱️ [07:00] – Mother's Intuition & Switching OBs Sarah felt something was wrong during pregnancy but was dismissed A new ultrasound revealed her daughter's heart looked “weird” ⏱️ [10:00] – NICU Rollercoaster Begins Meadow intubated within hours of birth due to medication side effect Sarah and her husband find strength in teamwork ⏱️ [14:00] – Advice for New Heart Parents The overwhelm of tracking vitals and data post-discharge Feeling more like Meadow's nurse than her mom ⏱️ [17:00] – The Unexpected Second Surgery & Major Setbacks Meadow's patch failed, requiring emergency open-heart surgery Her chest remained open for a week due to complications ⏱️ [21:00] – A Brain Bleed Diagnosis & Mental Health Spiral Sarah shares how uncertainty triggered her OCD Emotional trauma of seeing Meadow cold, still, and open-chested ⏱️ [25:00] – Living in the ICU Full-Time How Sarah and her husband made the hospital their home The benefits of being physically present 24/7 ⏱️ [28:00] – Discharge Shock & OCD Diagnosis Meadow is stable—but Sarah's anxiety peaks post-discharge Diagnosed with OCD just 10 days after coming home ⏱️ [32:00] – Healing Through Gratitude & Giving Back Family vacation sparks the idea for a donation The heart institute is named in Meadow's honor with a mural ⏱️ [36:00] – Sarah's Ongoing CHD Advocacy Work Advocating for the Congenital Heart Futures Act Raising awareness for adult congenital cardiology and research needs ⏱️ [40:00] – The Power of Medical Play Meadow's echos improved after doing medical play at home Sarah incorporates play to help her daughter cope with appointments ⏱️ [43:00] – Reflections & Advice for Other Parents Learning how strong her partnership with her husband is Why having the right support person changes everything ⏱️ [45:00] – Where to Follow Sarah & Continue the Journey Website, LinkedIn, Instagram, and more Connect with Sarah Michelle Boes

Child life specialists are specially trained to prepare children and family members for medical experiences and teach techniques to help reduce stress and anxiety.  Stephanie Colaberardino, MS, CCLS, CIMI joined the podcast today to talk about how a Child Life Team can be helpful for patients with Down syndrome. Children's Hospital of Pittsburgh Child Life  https://www.chp.edu/our-services/child-life/specialist-assistant Children's Hospital of Pittsburgh Adaptive Care Team https://www.chp.edu/for-parents/support-services/family-support-services   If you would like to suggest a topic for us to cover on the podcast, please send an e-mail to DownSyndromeCenter@chp.edu. If you would like to partner with the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter. We are thankful for the generous donation from Caring for Kids – The Carrie Martin Fund that provides the funding for the podcast recording equipment and hosting costs for this podcast.

What happens when your world changes with a single phone call? In this powerful reposted episode, NICU dad and advocate Alex Zavala shares his emotional journey of fatherhood after his daughter was born at just 27 weeks. From the emergency C-section and NICU stay to the emotional toll of the "NICU dad shuffle," Alex opens up about the lesser-heard experience of dads navigating medical trauma, guilt, and resilience. As the host of the NICU Dad Podcast, Alex continues to amplify the voices of fathers facing similar experiences. This conversation is an essential listen for NICU families and healthcare professionals alike, reminding us of the often unseen emotional weight fathers carry and how vital their perspective is in family-centered care.   Key Takeaways from this week's episode:   Premature birth can happen suddenly Fathers experience trauma too  The “NICU dad shuffle” is real  Life after the NICU is still challenging Community and storytelling are healing for fathers   Timestamps & Key Topics [00:00] – Welcome & Episode Intro Alex's story as a NICU dad begins with two premature daughters [04:00] – The NICU Numbers That Stay With You 27 weeks. 2 lbs. 5 oz. 67 days in the NICU—numbers you never forget [06:00] – A High-Risk Pregnancy & Sudden Crisis Despite a stable pregnancy, a 9:00 AM phone call changes everything [10:00] – The Emergency C-Section Racing to the hospital, trauma in the OR, and feeling helpless [15:00] – A Whirlwind of Fear & Responsibility Trying to stay strong for his wife and unborn child amid chaos [20:00] – The NICU Dad Shuffle Begins Managing hospital visits, home life, and caring for the rest of the family [27:00] – The Guilt of Having to Choose The emotional strain of not being able to be everywhere at once [33:00] – First NICU Visit & Early Trauma Walking into the NICU for the first time—alone, overwhelmed, and unsure [38:00] – Life After the NICU: It Gets Harder Why going home with a medically fragile baby brought even more pressure [40:00] – Dads Carry Trauma Too Postpartum stress, partner support, and being the emotional anchor [42:00] – Healing Through Storytelling Why sharing his story and connecting with other NICU dads has been life-changing [44:00] – Where to Find Support

  “You make the best decision for yourself and your family—and you stick with it.”- Kim Pena What happens when you're handed unexpected news at your child's birth—and there's no clear roadmap ahead? In this reposted episode, educator and mom Kim Pena shares her powerful journey as the parent of a child born with Microtia Atresia, a rare congenital condition affecting the ear. Kim was one of Katie's very first guests on the Child Life On Call podcast, and her story is still a listener favorite to this day. In this repost, Katie kicks off the episode by giving us a quick update about Kim's son.  From discovering her son's diagnosis at birth to making emotional, high-stakes decisions about surgery and hearing aids, Kim walks us through her family's deeply personal experience with compassion, clarity, and humor. In this episode, you'll learn: ✅ What Microtia Atresia is and how it affects children ✅ How Kim and her husband navigated hearing loss, reconstructive surgery, and insurance battles ✅ Why early intervention with hearing aids changed everything ✅ What recovery and long-term care looked like for their son ✅ How to find trusted resources and support if your child is diagnosed   Kim's story offers encouragement, practical wisdom, and a reminder that joy often shines through the hardest moments. Timestamps & Key Topics ⏱️ [00:00] – Introduction: Meet Kim and Thomas Kim's background as an educator, and how her son's birth revealed an unexpected diagnosis ⏱️ [02:00] – What Is Microtia Atresia? Definition and how it affects the outer and middle ear Kim learns about the condition immediately after birth ⏱️ [04:00] – Family History and Diagnosis Challenges The connection to Kim's brother-in-law Why this condition wasn't caught on ultrasound ⏱️ [07:00] – Building a Support System How Kim's relationship with her father-in-law became essential Finding emotional and logistical support from someone who's been there ⏱️ [09:00] – First Surgeries and Hearing Tests Understanding Thomas's hearing loss The process of getting tested, hearing aids, and early therapy ⏱️ [11:00] – Choosing the Right Surgery Exploring different surgical options, including rib graft and Medpor Why Kim's family chose a single-surgery approach ⏱️ [13:00] – Surgery Day and Recovery A 13-hour surgery and the emotional toll Why recovery in California brought unexpected connections ⏱️ [16:00] – Post-Surgery Life & Daily Care What healing looked like in the months after Kim's advice on establishing trust, prepping a toddler, and using distraction ⏱️ [20:00] – The Bittersweet Nature of Change Letting go of “his little ear” Gratitude for what the journey has taught their family ⏱️ [22:00] – Research, Advocacy & Making Confident Choices The role of online communities and navigating defensiveness Why Kim recommends aiding early—and being unapologetic about your choices ⏱️ [27:00] – A Life-Changing Hearing Aid Moment The first time Thomas could hear clearly—how it changed their world Why Kim wishes she had recorded that moment ⏱️ [29:00] – Final Reflection: Raising a “Joy Boy” Despite everything, Thomas's joy and resilience shine through Why Kim's journey is one of perspective, peace, and purpose   Resources & Links

What if blending real food could transform your child's tube feeding experience—and your entire family's daily routine? In this inspiring episode, registered dietitian and new mom Hilarie shares how her career in pediatric nutrition led her to create Blended Tube Feeding, a platform and supportive community designed to help families explore real food options for children with feeding tubes. Hilarie and Katie have an insightful conversation about doing what works best for your family and how it is not an all-or-nothing approach when it comes to tube feeding. From clinical frustrations to practical breakthroughs, Hilarie's story is packed with insight, empathy, and encouragement for families navigating complex feeding needs.   In this episode, you'll learn: ✅ What blenderized tube feeding is—and how it helps with digestion, connection, and flexibility ✅ How Hilarie's work in a neurodevelopment clinic inspired her mission ✅ Common fears and how to overcome them when shifting from formula to real food ✅ How to start slowly and safely with blended meals (even using store-bought purees!) ✅ Where to find affordable support, recipes, and a welcoming online community   Whether you're new to tube feeding or ready to explore new options, this episode offers knowledge, support, and a hopeful outlook for the journey ahead. Timestamps & Key Topics ⏱️ [00:00] – Meet Hilarie: Registered Dietitian, New Mom, Real Food Advocate How her love of cooking, gardening, and clinical work intersected in her passion project Why food is central to her family and her mission ⏱️ [04:00] – The “Aha” Moment Behind Blended Tube Feeding Real families, real frustrations, and real improvements How small changes led to big results in digestion and quality of life ⏱️ [06:00] – Formula Isn't the Enemy: Finding What Works Why Hilarie supports a nonjudgmental approach Blended food can be part-time, full-time, or not at all—it's about what's right for your child ⏱️ [08:00] – What Getting Started Looks Like Step-by-step tips: from single-ingredient purees to homemade blends Why slow is better—and how to build confidence without overhauling everything ⏱️ [11:00] – Real Fears, Real Parents Why  many parents worry about “rocking the boat” What success looks like when routines become manageable and joyful ⏱️ [13:00] – Why Aren't Dietitians Taught This? The history behind formula becoming standard How schools and hospitals are starting to reintroduce food-based tube feeding ⏱️ [14:00] – Hilarie's Virtual Support Programs Online courses, a private community, and flexible coaching Affordable access to evidence-informed resources—starting at just $37/month ⏱️ [17:00] – Motherhood Perspective Shift How becoming a parent deepened her empathy for families Why accessibility, flexibility, and simplicity matter more than ever ⏱️ [19:00] – A Favorite Success Story One family's journey from 2-hour feeds and fear of leaving the house—to freedom, flexibility, and Panera bread - How small wins can transform daily life ⏱️ [21:00] – Where to Start: Free Resources & Community Instagram, blog articles, recipes, and real-life advice Why you don't have to figure it all out alone Resources & Links Get Free Resources: Starter tips, recipes, and blog articles: www.blendedtubefeeding.com Research on Blenderized Tube Feeding  Links to Commercial Real Food Products

Cancer impacts the entire family of a patient, including the children. To help parents help their children through these difficult time periods, the James has created a team of certified child life specialists (CCLS). “We help parents navigate these situations and conversations,” said Sami Rundo, CCLS. The help comes in many forms, Rundo explained. “It starts with understanding the medical situation [of the patient] … And then we prepare the family to navigate discussions and conversations. What does that conversation look like? And do they want our child life services to have these discussions with their children or provide the resources they can use in these conversations.” Rundo explained how these discussions can trigger emotions and that parents can “embrace the fact there will probably be some tears and the need for breaks and walks.” She also detailed why it can be important to explain the medical procedures that will take place, such as surgery and radiation treatments, and how their parent's treatment could impact a child's daily routine. The team has a doll they utilize to visually show children different medical procedures and what a port that delivers chemotherapy looks like. “We also talk about the ways in which the children can be helpers, caregivers,” Rundo said. “And what's appropriate for that child. Can I get you a blanket if you're cold, but maybe not taking care of their other siblings.” The James certified child life specialists can let parents know about cancer-themed children's book they might want to utilize in their discussion with their children, and “we can create customized books for a family,” Rundo said. The James certified child life services team is relatively new and growing. “Over time [with a family] we develop trust and an openness of communications,” Rundo said. “I've learned so much about families and to see them grow and become stronger during these difficult times is really profound.”

Knowing how to talk to kids about child abuse can feel overwhelming—but it doesn't have to be. In this impactful episode of Child Life On Call, host Katie Taylor interviews child abuse prevention advocate Jane Donovan—who also happens to be her mom. Jane shares her personal journey, sparked by a tragic event, that led to a decades-long mission to protect children and educate communities. From creating a long-running puppet program for abuse prevention to empowering kids with body safety tools, this conversation is full of actionable advice for parents, caregivers, educators, and child life specialists. This is a special repost of one of our most important and requested episodes. Whether you're hearing it for the first time or revisiting it, this conversation remains just as powerful and relevant today.   In this episode, you'll learn: How to talk to kids about child abuse in age-appropriate, non-scary ways The importance of ongoing conversations about personal safety How tools like puppets, music, and hula hoops teach children about personal boundaries What parents should know about mandated reporting and how to act on their instincts How to evaluate youth-serving organizations for child safety protocols Why Children's Advocacy Centers are essential for abuse investigation and healing Whether you're a parent, educator, or healthcare provider, this episode provides the tools and confidence you need to start meaningful conversations that protect kids and empower them. Timestamps & Key Topics ⏱️ [00:00] – Introduction: Meet Jane Donovan Katie introduces her guest (and mom), a lifelong child advocate Learn how the Child Life On Call app empowers families ⏱️ [03:00] – A Personal Story That Inspired a Mission How a child's abduction changed Jane's life Why she dedicated her career to child abuse prevention ⏱️ [06:00] – What Are Children's Advocacy Centers? A child-friendly space for reporting, healing, and justice How they support kids through forensic interviews and therapy ⏱️ [09:00] – Making Conversations About Abuse Less Scary Why it's not “the talk”—it's ongoing, age-appropriate education Teaching safety in everyday moments without fear ⏱️ [11:00] – Teaching Kids About Boundaries with Puppets Introducing the “Kids Count Players” puppet show for elementary students Using storytelling and music to make serious topics approachable ⏱️ [15:00] – Personal Space for Children: Hula Hoops & “Uh-oh” Feelings How to use visual tools to teach kids about body autonomy and boundaries The difference between “good touch” and “confusing touch” ⏱️ [22:00] – Real Impact in Schools How the puppet show helped children disclose abuse Why teachers and counselors praise the program ⏱️ [23:00] – The Adult's Role in Protecting Children Tips for keeping kids safe at camp, church, and extracurriculars How to ask youth-serving organizations about their safety policies ⏱️ [25:00] – Understanding Mandated Reporting Why professionals and caregivers must report suspected abuse How to file a report, even if you're unsure ⏱️ [29:00] – Practical Safety Tips for Parents Teach proper names for body parts Encourage privacy and reinforce their right to say “no” to unwanted contact ⏱️ [31:00] – Easy Tools & Takeaways How to start the conversation—and keep it going   Resources & Links

"We followed Dahlia's lead—and Dahlia was not going to let this stop her.” — Jessica Fein What happens when your child's diagnosis is so rare that no one—including your doctors—knows how to help? For Jessica Fein, navigating life with her daughter Dahlia's MERRF Syndrome meant redefining motherhood, finding joy in unexpected places, and transforming grief into connection and advocacy. In this honest and deeply moving episode, we explore: ✅ What it's like to go on a diagnostic odyssey, and finally get answers that bring more questions ✅ The complexity of parenting a child with medical needs, including the realities of home care and hospital stays ✅ How grief exists even while your child is alive—and what ambiguous grief means for medical parents ✅ The power of storytelling, finding meaning through writing, and connecting with community through shared experience Whether you're a parent, provider, or someone looking to better understand the emotional layers of complex care and rare disease, this episode will resonate with you. Timestamps & Key Topics ⏱️ [00:00] – Episode Intro Meet Jessica Fein and hear the quote that shaped this conversation ⏱️ [01:00] – Jessica's Story Begins Navigating the early years of parenting without answers ⏱️ [03:00] – Diagnosis & the Unknown The journey to a MERRF Syndrome diagnosis and what came next ⏱️ [09:00] – Life With a Rare Disease Hospital stays, trachs, and becoming the expert in your child's care ⏱️ [13:00] – Following Dahlia's Lead Letting joy and silliness guide the way ⏱️ [17:00] – Who Dahlia Was A peek into Dahlia's personality and how she impacted everyone she met ⏱️ [20:00] – Writing As Healing How Jessica turned to writing as an act of reflection, advocacy, and self-care ⏱️ [24:00] – What Helps in the Hospital Tangible ways friends and providers can support caregivers ⏱️ [30:00] – Grief, Then and Now Understanding ambiguous grief—and the evolution of loss after death ⏱️ [33:00] – How to Connect With Jessica Where to find her book, podcast, and writing Resources & Links from today's episode: