Podcasts about mended little hearts

Send us a textCan an unexpected adventure in Kraków teach you about resilience and support? Join me, Anna Jaworski, as I recount a thrilling axe-throwing escapade with my husband, Frank, which became an unexpected metaphor for our family's journey with our courageous daughter, Hope, who battles a congenital heart defect. In this episode of Heart to Heart with Anna, we spotlight the power of belief and community support, drawing parallels between personal adventures and the challenges of raising a child with CHD. Dive into the exciting plans for Heart Month, where Mended Little Hearts takes center stage with the "Rock your Scar" photo contest and the "Share your HeArt" art competition, igniting awareness and solidarity within the CHD community.Our journey doesn't stop there. Reflecting on the Top Ten Episodes of 2024, discover the inspiring stories of resilience and advocacy from amazing individuals. Hear about Hope's passion for writing and the unwavering strength of heart moms like Rita Scoggins. Be inspired by advocates such as Deanna Altomara and Meagan Houpt, who continue to break barriers. Celebrate fitness and perseverance with Ben Johnson's triumph over tetralogy of Fallot, and witness Marina Lohri's transformation from survivor to heart community supporter. This episode serves as both a heartfelt reflection and an exciting preview of what's to come on Heart to Heart with Anna in 2025.Top Ten Episodes:#10 https://tinyurl.com/H2HAnna446 #9 https://tinyurl.com/H2HandChapter1 #8 https://tinyurl.com/H2HwAnna431#7 https://tinyurl.com/H2HwAnna442#6 https://tinyurl.com/H2HMeaganHouptCh3and4 #5 https://tinyurl.com/H2HwAnna444 #4 https://tinyurl.com/H2HwAnnaE434#3 https://tinyurl.com/H2HwAnna466#2 https://tinyurl.com/H2HwAnna443#1 https://tinyurl.com/MarinaLohriLink to Mended Little Hearts Heart Month Activities: https://tinyurl.com/MLHFeb2024Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Welcome twin sister Regina and her husband Shane In this episode of "Pushing Forward with Alycia | A Disability Podcast," Alycia Anderson invites her twin sister, Regina Weinstein, and brother-in-law, Shane, to share their poignant journey with their daughter Ella, who was born with Congenital Heart Defect (CHD). As we observe American Heart Month and Congenital Heart Defect Awareness Week (CHD), their story serves as an offering of hope, boundless strength, and the unbreakable love of family in the face of life's challenges. Through Ella's journey, Alycia and Regina reflect on their twin connection, as if the shared strength flows through her. Key Highlights:

Dana Henning is mother to Evan Henning, who is a 12-year-old Heart Warrior born with a critical congenital heart defect. Evan has has multiple procedures and open-heart surgeries. His life is very full of therapy appointments, homeschool activities, and extra-curricular activities such as Special Olympics and track.Dana is musically gifted. She is a former music teacher and choir director. These days she homeschools Evan and works as the Mended Little Hearts Austin Coordinator. She also works with the Parent Faculty Advisory Counsel at Dell Children's Hospital in Austin, Texas. She serves on the Cardiac Patient & Family Partners team and her family is a member of the Dell Children's Trust.In this episode, Dana talks to Anna about what Mended Little Hearts does for the congenital heart defect community, how she is involved, and some of the activities the Austin Mended Little Hearts organization participates in. Of special note is an event occurring at an ice skating rink in Cedar Park in April 2023.Links mentioned in this broadcast:Dana's other Heart to Heart with Anna appearance:https://www.buzzsprout.com/62761/770246Mended Little Hearts National page:https://mendedhearts.org/about-us/about-mended-little-hearts/Austin Mended Little Hearts Facebook page:https://www.facebook.com/MendedLittleHeartsAustinEmail:mendedlittleheartsaustin@gmail.comThe Heart Dialogues:https://theheartdialogues.substack.com/Support the showAnna's Buzzsprout Affiliate LinkBaby Blue Sound CollectiveSocial Media Pages:Apple PodcastsFacebookInstagramMeWeTwitterYouTubeWebsite

Valentine's Day may be behind us, but we've still got hearts on our minds...tiny hearts, that is! In today's episode, we will be learning about congenital heart defects - these happen when a child's heart does not develop properly before birth.Book:Hank the Heart - by Dr John Hutton and Dr Ryan MooreResources:Mended Little Hearts - a nonprofit organization providing hope and support, creating awareness and being a strong voice for CHD families everywhere.MyHeart Visit - a peer support network for patients and families"Sometimes patients, parents and caregivers need to talk to someone who has already faced a similar diagnosis, procedure or surgery, or has learned to live with heart disease or a congenital heart defect—someone who truly understands them. Now, you can request a “visit” from a trained volunteer who can listen and give support because they are patients, parents and caregivers themselves."Support:Consider sending a 'Bravery Bag' to a family. -  "The Mended Hearts, Inc. began the Bravery Bag Program in 2014 under its Mended Little Hearts® program to support families with children in the hospital for heart surgery or other medical procedures. Bravery Bags are filled with toiletry items, comfort items, fun items, and educational resources. The provide families with some of the things they may need during a hospital stay, but more importantly, they let the family know they are not alone—that there are people out there who care about them and are there to support them."

Mindy shares her two postpartum experiences.  Going into her first birth, she was hoping for a natural labor, but ended up being induced and getting an epidural.  She felt present and in control, but still had to overcome feeling like this wasn't a “real” birth experience.  Her postpartum bliss was interrupted when doctors heard a murmur in the baby's heart, and he was diagnosed with a congenital heart defect, specifically VSD (ventricular septal defect), PFO (patent foramen ovale), and mitral valve malformation.  He went on to have open heart surgery at 13 months old.She became pregnant with her second baby in February 2020, a month before the pandemic lockdown began.  She describes her postpartum experience, and that baby, as so easy.  She said the biggest challenge was parenting her first, who of course was used to having all the attention on him.Here are a few of the resources mentioned in the episode:The Children's Heart Foundation: https://www.childrensheartfoundation.org/Their "It's My Heart" book is available here:https://www.childrensheartfoundation.org/about-chds/resources.htmlThe support group that gave her a gift bag in the waiting room is Mended Little Hearts: https://mendedhearts.org/The Facebook group she found very early in her journey:Babies and children with VSD (ventricular septal defect) and CHD support https://www.facebook.com/groups/268526583311618Mindy's email is: mindyseamail (at) gmail (dot) com  Join us on the Facebook group to talk more about this episode and all things postpartum: https://www.facebook.com/groups/fourthtrimesterpostpartumstories/

Today I talk with my friend Katie, and her unique birth experience being a "medical mom" x 2 (both sons went to the NICU, and both are now thriving!), coupled with her unique infant feeding journey as an exclusive pumper. Though her journey is unique in many ways, she shares many commonalities with the American birth experience, including: not knowing what you don't knowfeeling alone and unsupportedbeing dismissed and gaslighted by the medical community (your water didn't break, your clothes are dry, it was probably pee)not knowing how to accept help as a postpartum momShe also shares how "lucky" she was to have had extra services and postpartum medical support for her second son... things she wishes everyone had access to (without the requirement of having a heart warrior baby in the NICU for a month!) Connect with Katie:Facebook: https://www.facebook.com/katie.ambrosestoutEmail: kca.stout@gmail.com Learn more about Mended Little Hearts:https://mendedhearts.org/https://www.facebook.com/MendedLittleHeartsNationalOrganization/ Questions? Comments? Suggestions? Want to be a guest on the show? Email me at thepostpartumrevolutionpodcast@gmail.comSupport the show (https://ko-fi.com/thepostpartumrevolution)

Hearts Unite the Globe is full of news! Tune into this episode of Heart to Heart with Anna to hear about all of the activities in which HUG members are participating. In this episode of Heart to Heart with Anna, learn about upcoming training opportunities/retreats being sponsored by HUG -- retreats in Central Texas, Jerusalem, Israel, and Tuscon, Arizona!You'll also hear about a special award presented to Anna Jaworski (Host of Heart to Heart with Anna and HUG's Executive Director) during the Mended Little Hearts annual CHD Symposium. Tune in to discover what CHD conferences will be held during the rest of 2019 and locate information about the conferences on https://www.hug-podcastnetwork.com/scheduled-events-calendar.html. In this episode, you'll also discover why Anna chose to create a Facebook birthday fundraiser and how it turned out. Also, tune in to hear about why Michael Liben (Host of Heart to Heart with Michael) decided to volunteer to work with HUG and why he continues to work with HUG 3 years later.In the final segment of the program, you'll discover why people enjoy volunteering with HUG. You'll also find out why HUG has a Patreon page and how you, too, can be a HUG Patron by visiting https://www.patreon.com/HearttoHeart and signing up to be a member!Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)

Mended Little Hearts National Program Director Jodi Smith joins Anna in this episode to discuss the upcoming 2019 Mended Little Hearts Symposium and Leadership Summit in Milwaukee, Wisconsin. The Leadership Summit will occur on July 12th and the Symposium will occur on July 13th. You can register for the event here: https://mendedhearts.org/chd-symposium/In this episode, Jodi tells Anna about how the Keynote Speaker was selected, why people should attend the Leadership Summit and Symposium and what benefits they can derive from attending. She details what it has been like for her as a parent of a child with a heart defect and how others can not only help themselves but help others, too, by being part of this organization.With professional training from Parent-to-Parent of Wisconsin and Ex Fabula, the Leadership Summit will be a must-attend event for those who wish to promote congenital heart defect awareness. The symposium will feature speakers and panel discussions sure to assist parents and Heart Warriors alike.Please take a moment to follow us on your preferred social media platforms:iTunes: https://itunes.apple.com/us/podcast/heart-to-heart-with-anna/id1132261435?mt=2Facebook: https://www.facebook.com/HearttoHeartwithAnna/YouTube: https://www.youtube.com/channel/UCGPKwIU5M_YOxvtWepFR5ZwInstagram: https://www.instagram.com/hugpodcastnetwork/If you enjoy this program and would like to be a Patron, please check out our Patreon page: https://www.patreon.com/HeartToHeartSupport the show (https://www.patreon.com/HearttoHeart)

Joey Williamson is on the podcast this week. He is a congenital heart defect survivor, a mentor to many and an all around inspirational person to be around.Joey and Bri actually met in the Mended Little Hearts group back in 2014 because Bri also has a congenital heart defect. Joey talks about his body image in relation to his scar from his surgery. He explains how his 6th grade teacher was the most impactful person in his life and helped him learn not to care what others said about his scar. He also gives people advice to keep persevering through life and to find someone that’s doing what you want to do and ask if they would be your mentor.Joey also has his own blog called Hollywood’s World of Sports and this month is it’s 15th anniversary. He talks about his sports passion, but also about his own personal life journey here as well.Joey is really an inspirational person to follow. You can follow him on instagram and facebook.

S1 E7 Life can SUCK & at TIMES we ESCAPE Listen to the stories that keep us grounded, adventurous, SANE, keeping our identity while living through the good times and the bad, find more photo's of this story or any past episodes, find our Blog, Pateron, Instagram, Facebook, Itunes, Stichter, Twitter, listen, read, review, donate, share, and message us. Stepping out of our comfort zone sharing are well lived and difficult life stories. Enjoy us sharing good times through the years. volunteering, concerts, mini trips, goals, and intentions of future adventures. An upcoming event on August 4, 2018, Mended Little Heart Picnic at Seneca Park Zoo, Rochester NY. Check out Mended Little Hearts of Rochester NY on Facebook or google for more information on how to participate or donate to MLH! Be A BOSS BITCH and having fun doing it.

Toks sits down with longtime pal and best gal Valerie Azlynn. They talk shattered childhood dreams, rainbows (not that kind of rainbow) and Toks yells at her producer (it's ok, she's married to him... #BallAndChain) You can follow the podcast on Twitter and Instagram at @teafortwopod You can follow Val on Twitter and Instagram at @ValerieAzlynn You can follow Toks at @ToksOlagundoye on Twitter and @Tolykay on Instagram, and on Facebook at https://m.facebook.com/ToksOlagundoye/ You can find out more about the Pets Of The Homeless (and donate) at petsofthehomeless.org and follow them on Twitter at @petsofhomeless You can find out more about Mended Little Hearts (and donate) at mendedlittlehearts.org and follow them on twitter at @MLH_CHD or on Facebook at https://m.facebook.com/MendedLittleHeartsNationalOrganization And pledgeling.com is a great way to link a charity to your Evite for guests to give a donation to the charity of your choice in lieu of a gift! Closing song is titled "There Will Be Nowhere" by Meghan Wolf. Full album available on iTunes here: Theory of Gravity by Meghan Wolf https://itun.es/us/L6lGt For more info visit: http://Meghanwolfmusic.com Thanks for listening!

This week on the podcast, Jennifer talks about losing her first child at 27 weeks in the pregnancy and then losing her second child to CHD. She talks about how the loss of her two children motivated her to help other families who have lost their child. Plus, she now educates parents about blood clots in CHD babies and children.  On this podcast:  Jenifer talks about when her second child was first diagnosed with Congenital Heart Disease.  She also talks about the fetal intervention used to help her son.  Jennifer talks about how her body was affected due to complications from the delivery.  In addition, she talks about the complications that led to her son passing away.  Jennifer then talks about navigating the grieving process and how this led her to help other children with CHD. She shares how losing two children affected her marriage Jennifer also talks about how she started the Angel Box Program with Mended Little Hearts for parents who have lost their child.  Finally, Jen talks about specific things that she did to help her heal from losing both of her children. Join us as Jennifer shares her story! 

Rebecca shares her story about her daughter who has Dilated Cardiomyopathy. She talks about how her daughter's heart disease was not discovered until she was four months old. Plus, Rebecca talks about her journey in the hospital and having her daughter placed on the heart transplant list. Rebecca shares her experience of having her daughter on the heart transplant list and everything that entails. She talks about how her daughter is doing today – after working her way off the heart transplant list. Rebecca shares how she explained to her other children that their sister has chd. She talks about how her daughter's twin brother developed differently and then reveals some of her daughter's developmental delays. Plus, Rebecca talks about her job as a physical therapist and how she helps children with developmental delays. She emphasizes why it is important for parents to be the #1 advocates for their child in regards to getting services for any developmental delays. And finally, Rebecca briefly talks about Mended Little Hearts and how she lead the local chapter in Central Virginia.

Host Sarada Connors talks to Darla Allgood from Mended Little Hearts of Colorado Springs

Congenital heart defects are the most common birth defect in the U.S. nearly 1% of―or about 40,000―births per year. Andrea Baer is VP of Mended Little Hearts and National Committee Chair. After the birth of her 3rd child, he was diagnosed with a Congenital Heart Defect. He needed open heart surgery to survive. Andrea says that she was very afraid and alone and almost immediately after his surgery, she felt compelled to make a difference in the lives of families who were facing the same journey. Listen to Joni live M-F at 2:00 p.m. ET on www.W4CS.com. www.JoniAldrich.com