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The first of a three-part series featuring maternal fetal medicine specialist, Dr Glenn Gardener, this episode explores diagnosis and treatment of Twin to Twin Transfusion Syndrome.TTTS affects identical twins who share a placenta and carries a high risk of fetal death if left untreated.Dr Gardener, Director of the Mater Centre for Maternal Fetal Medicine, discusses diagnosis, treatments and patient outcomes, as well as the role of GPs in providing shared care of mothers.To find out more about Mater's specialists and services, visit mater.org.auGP Education activity log:- Podcast title - sMater: Twin to Twin Transfusion Syndrome- Provider - Mater Misericordiae Ltd Date published - February 7, 2025- Certificate of completion - sMater Certificate of Completion____00:00 - Introduction01:35 - Diagnosis of TTTS3:30 - Dangers of TTTS06:08 - Treatment of TTTS09:20 - Questions from GPs14:43 - The future of TTTS15:40 - The Check Up----#TTTS #twinpregnancy #pregnancyhealth #healtheducation #smater #materTo learn more about Mater, visit https://www.mater.org.au/
In part 2 of this Healthful Woman Podcast episode, Dr. Nathan Fox continues his conversation with Lauren Burstein regarding her experience with Twin to Twin Transfusion Syndrome. She discusses the aftermath of her laser surgery and the delivery of her twins.
Welcome to the Healthful Woman Podcast! On this episode, Dr. Nathan Fox speaks with Lauren Burstein about her pregnancy journey with her twins. She discusses being diagnosed with stage 2 Twin to Twin Transfusion Syndrome and the subsequent surgery to correct the issue.
In this episode, we review the high-yield topic of Twin-Twin Transfusion Syndrome from the Obstetrics section. Follow Medbullets on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets
In this week's episode, we are joined by Bailee, who experienced Twin to Twin Transfusion Syndrome, fetal surgery, and the loss of her son, Everett. Bailee shares the story of her twin boys Everett and Wells, who were monochorionic twins, and required fetal surgery at 21 weeks due to Twin to Twin Transfusion Syndrome. She delivered her twin boys just past 32 weeks and they spent several weeks in the NICU. The morning after their car seat checks, Everett's health quickly declined and he wasn't able to recover. Everett died on July 4th, 2022. He has forever left an impact on those who loved and cared for him. If you have a birth trauma story you would like to share with us, click this link and fill out the form!For more birth trauma content and a community full of love and support, head to my Instagram at @birthtrauma_mama.Learn more about the support and services I offer through The Birth Trauma Mama Therapy & Support Services.
Welcome to That NICU Mum, a podcast sharing the stories from New Zealand parents who have had a baby in neonatal units across the country.This episode features Lily, whos identical twin boys were born at 35 weeks after a pretty straightforward pregnancy due to a slow in growth that turned out to be Twin to Twin Transfusion Syndrome.Lily talks about how her first birth with daughter Lucy actually ended up being a bit more traumatic than her twin birth and subsequent NICU stay, and talks about the struggles her husband had to bond with the babies.A huge thank you again to Lily for chatting and I hope you all enjoy listening!Shan x x Hosted on Acast. See acast.com/privacy for more information.
The Bender Family Bender Bags ProjectMike and Chelsea Bender faced a difficult road when they were told the twin boys they were expecting, Aiden and Owen, were having complications. The identical twin boys were experiencing Twin to Twin Transfusion Syndrome. This meant that one baby was surrounded by too much fluid, while the other didn't have enough. One baby was receiving too many nutrients, while the other baby was receiving too few. This complication meant that if the babies were not delivered, they would both pass away. At 27 weeks, Chelsea was rushed into the operating room and both babies were delivered by c-section and rushed to the Mercy Hospital NICU. The boys weighed in at 1lb 14oz (Owen), and 2lb 11oz (Aiden). The NICU became a second home for the Bender family for the next 80 days. Chelsea and Mike did their best to balance time at the hospital, at work, and with their 2 year old daughter, Emerson. Through the ups and downs of life in the NICU, Chelsea and Mike leaned into the Lord and relied on their friends and family, and even kind strangers, for prayer and support. They were overwhelmed by the kindness that was shown to them.While there, the Benders met many families who were sharing similar journeys. They rejoiced as babies reached the strength to go home, and they grieved when a child would pass away. It was very difficult to see families lose such hard fought battles. After Aiden and Owen were released from the hospital, Chelsea decided that she and her family would make it a priority to continue to support families who spend time at the NICU. Each year as the boys' birthday approaches, the family collects items to put into gift bags. Things like lotion, gum, small snacks, special tag blankets, baby books, and more. Then, on the twins' birthday, they go together to deliver 50 bags to Mercy NICU to be handed out as families are admitted. Mike and Chelsea also make it a priority to pray for the families, especially those who leave the hospital without their children. They also pray for the doctors, nurses, and other staff who fight daily for the lives of these children.Watch or listen to the full interview to hear them talk about their story, and the heart behind their Bender Bag Project.
One of the only comprehensive fetal centers in the country, The Chicago Institute for Fetal Health at Lurie Children's, treats patients with complex pregnancies. Among the rarest and most serious condition they see is twin to twin transfusion syndrome, a complication that affects 10 to 15 percent of identical twins. In this condition, the twins share a placenta which can lead to extreme prematurity and significant injury to major organs or even death. Fetal surgeons like our guest Dr. Amir Alhajjat are sometimes able to correct this condition in utero. Today, we talk with him about this serious condition and treatment for it.
Our guest, Amber, sits down with Kelli to share her experience of being diagnosed with twin-to-twin transfusion syndrome (TTTS). Amber discusses how she advocated for herself and her unborn twin girls throughout the treatment of TTTS. Amber also shares more about her family's experience in the NICU, and how her girls are doing today. Introduction of twin-to-twin transfusion syndrome by Dr. Moise. Dr. Moise is a Fetal Medicine Specialist and is also the Co-Director at the Comprehensive Fetal Care Center at Dell Children's in Austin, Texas. - The NICU is hard. We're here to help. Hand to Hold® is a national nonprofit dedicated to providing neonatal intensive care unit (NICU) parents with personalized emotional support, educational resources and community before, during and after their baby's NICU stay. NICU support is available at no cost to NICU parents in English & Spanish. Learn more or get support at handtohold.org Follow Hand to Hold: facebook.com/HANDtoHOLD Instagram: @handtohold Twitter: @NICUHandtoHold
In this honest and raw episode, Zoe speaks to Julie Audette, a business owner and mother. Julie opens up about her experience with Twin-Twin Transfusion syndrome which her beautiful boys Elias And Zach were born with. Listen in to hear a story of sadness, faith and incredible strength. KEY TAKEAWAYS Julie got married to her husband in 2013 and Julie became pregnant in 2014. At her first scan she got a ‘double congratulations' from the Dr and found out she was pregnant with two boys. The beginning of the pregnancy was normal and Julie was carrying on with life normally. Julie was given extra monitoring because it was a twin pregnancy with a shared placenta but she didn't feel any different. At week 21 Julie found she started to feel differently, she was in a lot of pain and was suffering with severe swelling. Julie went to see her obstetrician, had a scan and was referred to a specialist that day. They discovered that her twin boys had twin-twin transfusion syndrome and they would need an operation. Julie had already decided that she was going to give birth in Canada where she is from, so she reached out to the specialists after the diagnosis to see who could do the procedure needed for her twin boys. She was advised to fly to Canada as soon as possible. On the flight, Julie started deteriorating and was rushed straight to hospital on arrival to be stabilised. After a procedure to reduce her amniotic fluid she was able to leave the hospital but unfortunately had to go back in after deteriorating again. It was only week 23 but the decision was made to have an emergency C-section to deliver the twins, for their safety as well as Julie's life. The boys were delivered by C-section but they went straight to NICU, 20 minutes later Julie was sadly informed that Elias had died and Zach was fighting hard for his life. Julie and her husband's faith helped them deal with this devastating life event. It helped give them the strength to support Zach, who had to have a 5 month stay in hospital due to being born so premature and a heart condition. At 5 months, they had to make the difficult system to remove him from respiratory support and he sadly died a short time after. Julie and her husband have been supported a lot by their friends and family, it's this as well as their faith, therapy and their attitude towards life that has helped them ‘come out the other side'. Since this incredibly difficult and tragic time, they have had another child, their daughter, who they are so thankful for. BEST MOMENTS “It was just a beautiful announcement and we were double happy” “You see other people fighting…you have to accept and say this is your journey, this is life and this is what god intended for us” “We're a family full on sunshine” “We would not be able to heal without our family and friends” VALUABLE RESOURCES https://www.rmhc.org Twin-to-Twin Transfusion Syndrome (TTTS) Parents - Peer support for families who have gone through, are going through or seeking more information about Twin to Twin Transfusion: https://www.facebook.com/Twin-to-Twin-Transfusion-Syndrome-TTTS-Parents-Arabia-1699149873687130 ABOUT THE GUEST Julie Audette @julie.audette julie@coethical.com @coethical @themovement.ae https://www.rmhc.org Twin-to-Twin Transfusion Syndrome (TTTS) Parents - Peer support for families who have gone through, are going through or seeking more information about Twin to Twin Transfusion: https://www.facebook.com/Twin-to-Twin-Transfusion-Syndrome-TTTS-Parents-Arabia-1699149873687130 ABOUT THE HOST Zoe Cresswell Devoted mother of two (and a big hairy dog), UK trained midwife, doula and personal trainer, specialising in pre and postnatal fitness. Zoe was born in the UK and before moving to Dubai in 2013 and worked as a midwife in central London, both in a birth centre and a very busy NHS hospital. Although late to the scene, Zoe is an aspiring athlete having won numerous triathlons and representing Great Britain where she placed within the top 10 on the world stage. With her husband James, the couple will soon be launching their cloth nappy company, Bop & Bee, where they hope to inspire families to swap a few disposable nappies a day for the more planet friendly option of cloth. Zoe's goal is to share her knowledge and experience, tell real life stories, manage expectations and open up those often difficult conversations. Zoe's own motherhood journey has been full of twists and turns as she put everything on hold and went through numerous miscarriages and rounds of IVF. CONTACT DETAILS Instagram : @zoecresswell_me Facebook: Zoe Cresswell LinkedIn: www.linkedin.com/in/zoe-cresswell See omnystudio.com/listener for privacy information.
There are two main types Types of Twins twins when it comes to pregnancy, dizygotic twins and monozygotic twins. In this episode, we review these different types. Types of Twins [0:45] There are two types of twins: Monozygotic and Dizygotic. Each has its own subcategories. (Di) means two; (Mono) means one; Zygote is a fertilized egg. Dizygotic means two fertilized eggs, and Monozygotic means one fertilized egg that split into two. Dizygotic is commonly known as fraternal twins, which means non-identical twins. With Monozygotic, it would be identical twins that split into two. [1:50] You can have twins one of two ways. With Dizygotic, you can have a woman ovulate two eggs at the same time, which is uncommon. That means each ovary ovulates an egg, and they both find their way into the uterus and get fertilized, so you have two pregnancies going at the same time. Basically, they're siblings, but instead of carrying two years apart, your body decided that you're just going to carry two at the same time, getting a two for one. The other type of twins, which is less common for every two or three cases, is Monozygotic. This is where one egg gets fertilized for whatever reason. [5:48] With Monozygotic, there's one egg that splits itself and turns into “Monozygotic Twins” or identical twins. If that egg splits very early, then each piece of the egg develops a completely separate pregnancy with a completely separate placenta. Early Conception of Twins [6:55] If the egg splits within the first three days, you have two separate placentas and two separate pregnancies. With twins, there are two separate layers called the Chorion and Amnion. These are the two layers of the placenta. The one that is further inside is the Amnion, and the one that is on the outside is the Chorion. With normal pregnancies, both act as a single layer. But with twins that are completely separate, they will have two of both layers. [8:34] If the egg separates after the first three days, but not after the first seven days, then each baby will develop its own Amnion even though they will share a placenta. That means each baby has a cord running to the same placenta on different sides of the amniotic separation, which is that wall between them. That wall is a membrane that prevents the twins from entangling their cords. If the baby separates after that seven-day zone, then they not only do share a Chorion, but also an Amnion. This means that both Chorion and Amnion are shared by the twins. Monochorionic and Dyamniotic Twins [10:15] Monochorionic and Diamniotic twins have special considerations and special risks. If it was actually two eggs, and they both get fertilized, then it's Dizygotic. But if it happens to be a Monozygotic twin that developed early, it will act like a Dichorionic. So how do you know what you are dealing with? You got to look early because early on, it's very clear on ultrasound if you got two eggs in there that got fertilized or one egg that split in half. [11:16] Even if you have one egg and one sperm that got fertilized that split into two, if they split early enough, they are going to have their own two pregnancies. It's going to be their separate pregnancies. If there had been two eggs that get fertilized, it would act the same way. They will be genetically identical. [12:12] 7% of Monozygotic twins are Monochorionic or Diamniotic. But the majority of twins are Dizygotic, which means they come from two separate eggs that are fertilized early in pregnancy. With ultrasound, it's very easy to see early on the two separate sacks that are almost not touching your or very little touching. There's a sack, and there's a baby on this side. Those sacks are going to grow, and they're going to merge. If one placenta isn't attached to each other or they are within two separate locations, then you are dealing with Diamnitoic twins. Managing and Identifying Twin Pregnancies [14:57] To figure out what type of twin pregnancy a woman has, their placenta is looked at using ultrasound. The points that are looked at are if the twins are sharing a placenta or if the placenta is in the same place. Currently, you cannot tell on ultrasound if it's one placenta or two that are just against each other. Sometimes, placentas grow to each other, and there won't be any separation between them. At this point, it's very important to know if it is Dichorionic or Monochorionic because each is managed differently. [16:04] Another way to identify a twin pregnancy is to look at the twin membrane. You then magnify that, and then you measure it. If it's above point two millimeters, then it's a sign that it's a Dichorionic. But if it's less than .12, then it's a sign that it is a Mono. [17:12] Once you have techniques, you don't get rid of them. Even if a better technology comes along, you will learn to accept it. But sometimes you can't see it that well. If the patient's hard to scan or the memory is not in line well, the best way is to scan the membrane, and you zoom in on it. You count the layers, and if you see two layers, that means that the baby has one outer sac and two inter sac. But if the baby has two outer sacs and two inter sacs. Twin Transfusion Syndrome [18:08] When you have a Monozygotic twin, there is a possibility that one twin can thrive more in the uterine environment than the other twin. With Monochorionic twins, there is a 15% chance of something called Twin Transfusion Syndrome. This is where one baby is getting too much blood back from the placenta, and the other baby is getting too little. The continuous pump where one baby continuously gets more and the other one gets less makes the other baby struggle. One baby cannot keep up with the volume and is overloaded, while the other one is struggling because it's not getting enough blood. [20:32] If the twins are identified as Monozygotic and Monochorionic, then one of them is going to be given more blood. When blood goes to the placenta, it is shared equally between the twins. But if the arterial supply of the placenta is a bit different than the return, then both babies don't get the same amount of blood. Instead of each baby having the same amount of return channels, both get different supplies of blood. One is automatically going to get less and the other one a little more. Then the sequence of Twin Transfusion begins. One baby's getting overloaded, the other one's not getting enough. [24:05] The earlier Twin Transfusion happens, the bigger the problem. If it happens late in the game, then you deliver the babies. But if it happens early in the game, you can't deliver because they're too premature, and they can't survive. So if it happens early, you have to stop this vicious cycle from continuing. Most of the time, people will lose a baby because of the twin transfusion sequence if it's left untreated because the fluid is so great. The excessive fluid will cause pre-term labor, and the patient will just lose the pregnancy because they go into labor early. Even if they carry long enough to get into viability, one baby will get heart failure because it can't handle all the fluid. [25:00] **of note The correct term is reverse in this episode. The correct information is as follows: The fetus with more blood flow is called the recipient twin, and the fetus with less is called the donor twin Velamentous Cord Insertion [29:06] Velamentous Cord Insertion is when the umbilical cord hits the placenta and branches into a spiderweb-like structure, and they drop into the placenta at different points. And that's how all the blood is getting everywhere. But if that separation happens, then it can become a major problem. It's a common complication in any pregnancy because you don't want those vessels exposed, especially if they're in front of the cervix. With twin pregnancies, Velamentous Cord Insertion is a more common phenomenon where you have that cord insertion. Often, it is tied to a twin transfusion sequence. Treating Velamentous Cord Insertion [30:33] You can go in with a scope, and you can identify the vessels. It mainly involves a lot of ultrasound and targeting. Then you either ablate with a laser or radio waves. Oblate means you are sealing or coagulating them off. You are taking the vessels that run from A to B or B to A, and you are dividing the placenta, so it's going to function like two separate placentas instead of one. If you overdo it, then you end up with the reverse where the other baby is getting too much. This is because you go in with instruments, and therefore there's a risk of pre-term labor or amniotic fluid membrane rupture. Monoamnionic Twins [35:04 Twin Transfusion doesn't happen with Mono twins because there's only one membrane on one side. The problem is that the cords are tangled, which happens early on. As soon as locomotion happens within 12 weeks, babies start swimming. This is the rarest and highest risk type of twin. What happens with those twins is you don't do anything until 24 weeks because you can't do anything. You just hope for the best. Once you get viable, you basically put them in a hospital and watch them, and you monitor them several times a day. Once you start seeing fetal heart rate decelerations, you get everything ready and get them delivered. If nothing bad happens, depending on how conservative you are in 34 weeks, just go in by C-Section and deliver them. Conjoined Twins [37:21] The egg doesn't split until day 11 or 12. If it doesn't split within that period, you will get conjoined twins. That is a really big deal because now you have a team of surgeons figuring out if you could separate them and depending on where they're separated. Sometimes they share vital organs, and you can't separate them. But these conjoined twins happen very rarely. Managing Risks for Twin Pregnancies [39:02] If you have monozygotic twins, but they're Monochorionic and Diamniotic, then they have two separate rooms. In this case, you just have to monitor them every week. You monitor them every other week because even the simplest, least complicated twins are high risk because there's growth discordance where one baby grows better than the other. There is a risk of pre-term labor, which is much more common with twins. There's also the risk of placenta abnormality, where the placenta is in the wrong place. There are all kinds of risks that go up, so you need to get ready for double risks. Twins with Different Birthdays [42:23] Every once in a while, you might find twins that have different birthdays. These types of twin pregnancies are always C-Section. So whenever you encounter twins with different birthdays, it is assured that they were delivered through C-Section. Least Popular Calendar days to deliver at Hackensack [46:06] The first date is September 11, the second is October 31, and the last one is a leap year, which is February 29. www.truebirthpodcast.com Maternal Resources Social Facebook: https://www.facebook.com/maternalresourceshackensack |nstagram: @maternalresources Subscribe to the podcast on Apple Podcasts, Spotify, Google Podcasts, & Stitcher and leave a review!
Dr. Nahla Khalek is an OB-GYN from the Children's Hospital of Philadelphia who works in a specialized surgical center for fetal diagnosis and treatment. In this episode, she explains twin-twin transfusion syndrome, a unique diagnosis in which two fetuses share a placenta in such a way that one baby receives “a tremendous amount of blood volume” while the other receives insufficient blood volume. Dr. Khalek reviews diagnostic options, signs to look out for, and more.
Dr. Nahla Khalek is an OB-GYN from the Children's Hospital of Philadelphia who works in a specialized surgical center for fetal diagnosis and treatment. In this episode, she explains twin-twin transfusion syndrome, a unique diagnosis in which two fetuses share a placenta in such a way that one baby receives “a tremendous amount of blood volume” while the other receives insufficient blood volume. Dr. Khalek reviews diagnostic options, signs to look out for, and more.
My guest today is Kylie Kelchen, who shares about the journey of her pregnancy with twins; which was high risk because of “twin to twin transfusion syndrome”. Kylie and her husband Travis received joyous news of expecting twins yet also were told that because of the conditions of the placenta, it could result in the birth of 1 baby or no babies all in the same appointment. Her pregnancy involved the need for immediate decision making, heavy monitoring, and a high volume of doctor visits and even surgery. Kylie reaffirms the importance to be an advocate for yourself! No mater what type of hardship or battle you are experiencing, advocate for yourself and lean on everyone who wants you to lean onto them. I was so inspired by the actions and perspective of Kylie and Travis and I hope this episode lifts you up as well!
Nat chats with Amanda Blankenship about learning at 25 weeks gestation that her mo/di identical twins had Twin to Twin Transfusion Syndrome (TTTS) in utero and needed emergency laser ablation surgery. Twin to Twin Transfusion Syndrome is a rare condition that can occur when abnormal blood vessel connections form in the twins’ shared placenta, creating an uneven blood flow between the babies. This episode is sponsored by Dr. Brown's.Amanda Blankenship is the mother of 3 boys, 21-month-old Identical twin boys and a 3.5-year-old boy. She is a registered nurse in Southern California, working on a busy med-surg floor.Twiniversity MembershipsProper Care for Your Identical Twin PregnancyHow to Cope with a TTTS DiagnosisTwin to Twin: From High-Risk Pregnancy to Happy Family, a memoir about a TTTS experience by Twiniversity MoM Squad member Crystal DuffyTTTS FoundationTAPS SupportThe Surgeon's Cut on NetflixTwiniversity YouTube ChannelCONTACT USVISIT Twiniversity.com for tons of free twin tips!FOLLOW us on Facebook, Instagram, Pinterest, YouTube, and Twitter.SUBSCRIBE to our email newsletter!Subscribe for FREE to our other podcast, the Twins Tale Podcast, giving you an inside look at feeding schedules, sleep struggles, and all the highs and lows of raising twins from birth to college age.Take a class! Twiniversity offers online expecting twins classes, a breastfeeding twins class, and a baby safety class including CPR, first aid, car seat safety, and childproofing. Click here to check out our online classes.
This week we chat to Louise known as @loss_motherhood_etc on IG. We chatted about the loss of one of her babies due to Twin to Twin Transfusion Syndrome and the NICU experience with the other twin. She talks about how she used @twinstrust for the bereavement befriending service and has advised that @blisscharity is useful for the NICU information and support. We further discuss her pregnancy after loss and delve into the ugly feelings once more. This episode is sponsored by The Fertility Method - an online fertility preparation plan - find them on Instagram and download your free supplements guide or visit their WEBSITE. Use code GIRL GANG for a cheeky discount at checkout.--------------------------------Thanks for listening to the podcast. Please don't forget to subscribe, rate, review and share.Contact us via social media platforms or email info@theworstgirlgangever.co.ukYou'll find us on...FacebookInstagram Twitter or you can join the TWGGE Facebook Support GroupIt's time to break the silence and open up the dialogue around the topics of miscarriage and pregnancy loss. No more shame, no more taboo, lets ditch it for our children; the ones that will come, the ones that are and the ones that never came to be.
When Diana Nicolls was ten weeks pregnant, she found out she had Twin to Twin Transfusion Syndrome - a rare pregnancy where twins share one placenta and a network of blood vessels. Her complicated pregnancy took a huge toll on her mentally and physically, and the grief and anxiety still lingers three years later. Diana, who is also a personal trainer and marathon runner, has now released a book about her experience called 30 Weeks and 1 Day and she joins us to share her story. See omnystudio.com/listener for privacy information.
Dr. Diana Morelen is a clinical psychologist and professor at ETSU. She researches maternal and infant mental health - so you can imagine the surprise that came with her own mental health struggles as she became a mother. Diana had a miscarriage and even shares her journal entry about that day with us on this episode. Diana later became pregnant with twins and gave birth at 31 weeks due to twin-to-twin transfusion syndrome. The twins stayed in the NICU for a time, and one of the babies needed heart surgery. Diana shares about her strong community and how she actually felt elevated once she became a mother. She shares, "We're not meant to do it alone." --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/hereandnowmotherhood/support
Instagrammer and mum of twins Jayde White joins Mia to discuss just how she does it! Plus Jayde shares all about suffering from Twin Transfusion Syndrome during her pregnancy. And of course, Mia gives Chloe Patton from Teen Mom UK a call for a catch up.
October is Pregnancy and Infant Loss Awareness month. Mom & Mind honors all of the loss families who are grieving the loss of a child. There is no timeline and no right way to grieve, so we hold your loss with tenderness and love. In this episode, Sarah Arcotta talks about the loss of one of her twins from Twin to Twin Transfusion Syndrome, a condition we haven’t yet covered on the show. Sarah shares the difficult grief from her experience and shares her healing and supportive message for other families. Sarah is an artist and educator who lives just north of Boston. You can find her exploring tide pools with her two young children or making art. She advocates for arts education while earning her Master’s degree in Leadership in Education. Sarah shares her story of loss, postpartum depression, and recovery to bring awareness to a serious condition affecting twin pregnancies. Show Highlights: How Sarah’s story begins 14 weeks into her second pregnancy, when she found out she was having identical twins At 16 weeks, she was diagnosed with twin-to-twin transfusion syndrome (TTTS), which occurs in 10% of twin pregnancies What is TTTS? It occurs when twins share the placenta but have separate amniotic sacs; one twin (recipient) receives too many nutrients due to the blood vessel formation, and the other (donor) doesn’t receive enough nutrients How Sarah lived with fear and anxiety in every single moment, having twice-weekly ultrasounds to check the babies because of the unpredictability of TTTS How Sarah was ill and uncomfortable during the pregnancy, having to have amniotic reduction, but the fluid came right back At 22 weeks, Sarah had laser ablation surgery to try to correct the blood vessel placement How the ultrasounds showed her recipient baby was receiving too much fluid, which put a strain on her heart After making it to 28 weeks, an emergency C-section brought her daughters; the donor baby lived only 45 minutes, and the recipient baby went straight to NICU How Sarah functioned in survival mode with a heightened sense of fear and anxiety every single minute 85 days later, her daughter was still in NICU, and her fear and anxiety remained When her daughter finally came home, a tsunami of emotions hit Sarah, including rage and depression How she felt out of control and tried to push down the rage; when she couldn’t, she turned to alcohol to try to deal with her emotions How Sarah lost her father unexpectedly just a few days after the loss of her daughter and she didn’t feel like herself for about a year How Sarah continues to integrate healing work into her family How Sarah tries to use her experience to enrich her life better How meditation, mindfulness, and creativity help Sarah to feel emotions and have compassion for herself Hopeful messages from Sarah: “This is a very difficult, heartbreaking, and stressful experience, but it’s also something that will enrich and grow your life. It will inform who you are and the kind of family you raise. You can create strength from this hard situation.”
On this episode I speak to Lala, a mother of 4 and certified birth and postnatal doula & hypnobirthing and antenatal educator. Lala's passion for support arose following the birth of her four children, and in particular her identical twins who were born preterm following a pregnancy complicated by Twin to Twin Transfusion Syndrome. She is passionate about support for every family, whatever their circumstances. I enjoyed every single part of my chat with Lala. I am so inspired by her work as well as (what she calls) her 'heart-funded work' which serves to support women in their toughest moments, irregardless of their circumstances. Lala is a true inspiration and I am so thrilled to share this chat with each of you!
Nat chats with Jenna Morton about learning at 19 weeks gestation that her identical twins had Twin to Twin Transfusion Syndrome (TTTS) in utero and needed fetoscopic laser ablation surgery. Twin to Twin Transfusion Syndrome is a rare condition that can occur when abnormal blood vessel connections form in the twins’ shared placenta, creating an uneven blood flow between the babies. Sponsored by Baby Trend and CBR (use the code DUO2 for special CBR twins pricing) Jenna Morton is a Canadian journalist with more than two decades of work in print, broadcast, and digital media. She’s been featured nationally by Today’s Parent, the Globe and Mail, Global TV, CBC Radio, and extensively throughout regional media. Her parenting resource, Pickle Planet Moncton, has been connecting families with each other and their community for five years. She is the contributing editor of Family 1st/Famille en premier, New Brunswick’s free, bilingual parenting magazine, and co-host of the Pickle Planet Podcast, aired daily on RogersTV in New Brunswick. Jenna is mom to three children: Clara, Alasdair, and Rory. Alasdair and Rory are identical twin boys, born at 32 weeks, after surviving Twin-to-Twin-Transfusion Syndrome (TTTS) thanks to a fetoscopic laser ablation surgery performed at Toronto’s Mount Sinai Hospital at 20 weeks. (That hospital is 1,500km (930 miles) away from their home.) The twins spent 35 days in the neonatal intensive care unit at the Moncton Hospital before coming home with very few residual impacts of TTTS. They are now seven years old, while their older sister is about to turn nine. Find Jenna on Facebook and Instagram. CONTACT USVISIT Twiniversity.com for tons of free twin tips!FOLLOW us on Facebook, Instagram, Pinterest, YouTube, and Twitter.SUBSCRIBE to our email newsletter!Subscribe for FREE to our other podcast, the Twins Tale Podcast, giving you an inside look at feeding schedules, sleep struggles, and all the highs and lows of raising twins from birth to college age.
Dr. Emanuel "Mike" Vlastos discusses the algorithm for diagnosing and trading twin to twin transfusion syndrome.
The one where Mandy and Kate talk multiple pregnancies, Twin to Twin Transfusion Syndrome and the scary reality of giving birth before your due date. Plus this weeks moments that made them cry and laugh Support this show http://supporter.acast.com/too-peas-in-a-podcast. See acast.com/privacy for privacy and opt-out information.
Twin-twin transfusion syndrome (TTTS) is a rare, serious condition that can occur in pregnancies when identical twins share a placenta. Abnormal blood vessel connections form in the placenta and allow blood to flow unevenly between the babies. One twin − called the donor – becomes dehydrated; and the other − called the recipient − develops high blood pressure and produces too much urine and over fills the amniotic sac. Without treatment, this condition can be fatal for both twins. Dr. Bebbington, a leading fetal interventionist with 15 years of experience in open fetal surgery and fetoscopic-based interventions, joins the show to discuss twin-to-twin transfusion syndrome, and why fetal surgery is sometimes necessary to save one or both babies.
In Episode 19 I speak with Joi about the birth of her Identical Twin Boys Jaxon and Byron. Jaxon and Byron were born at 28 weeks and 2 days via elective C-Section and Joi had been under close observation by the Fetal Med team at Auckland hospital for the better part of her pregnancy due to suspected growth restriction and possible Twin-to-Twin-Transfusion Syndrome. During the last scan it was discovered Jaxon had a problem with his heart, so a C-Section was scheduled in order for Jaxon to receive the medication and care her needed. Both boys needed to go straight into NICU, where Jaxon was extremely unstable for the first week and needed to be resuscitated at 6 days. After this Jaxon made steady improvements and was the first twin to leave NICU. They spent over 3 months in NICU/SCBU/Starship with Byron, who then spent another 5 months on oxygen at home. Jaxon and Byron are now busy, beautiful 2 year olds who keep their parents on their toes! Joi does a wonderful job of recounting her birth story and journey with the boys, and I'm grateful she took the time to talk with me. If you want to check out Joi and her family on Instagram you can do so @joiful.me
Untamed Podcast: Wildly Disrupting the Dialogue on Food, Body and Womxnhood
Thanks for checking out Episode 8 of the Untamed Podcast with guest Ashlee Dean Wells. Ashlee Dean Wells is an internationally acclaimed photographer, published author, producer, feminist and storyteller currently calling Chicago home. Mama to Xavier (11) and identical twin daughter’s Nova (4) and Aurora (stillborn due to Twin to Twin Transfusion Syndrome); she is also an advocate for visibility in differing abilities and shattering the stigmas surrounding peri and postnatal loss. In addition to her commercial and lifestyle photography work, Ashlee is the founder of the 4th Trimester Bodies Project and is always excited to share her message of positivity and self-love. Listen on: || iTunes || Stitcher || Google Play || YouTube || EPISODE DETAILS: 3:00 Special Announcement – WORK WITH... The post UNTAMED 008: On Motherhood + 4th Trimester Bodies with Ashlee Dean Wells appeared first on LU|EATS.
Have you ever wanted to write a book? Today's guest is Alexa Bigwarfe who walks through the writing and publishing process. She also talks about blocks and limiting beliefs that could be keeping you from writing a book. Alexa Bigwarfe is a mother, author, and writer entrepreneur. She has written and/or edited and self-published five books and now uses that hard earned publishing knowledge to support other writers and small businesses at writepublishsell.co. She is also passionate about women's and children's health topics and has had more than 30 articles published in regional parenting magazines around the U.S. and Canada. THIS EPISODE IS SPONSORED BY: THE PROFIT PARTY ACADEMY If you've been in business for a few years and have hit a plateau, you're ready to make more money, and you're stuck, Tonya Rineer's Profit Party Academy is designed specifically for you. She wants to help you break down limiting beliefs and mindset blocks to set you up to rock in your business. The group academy will be a mix of group calls, mastermind and calls with Tonya. If you want more information, RSVP for her Profit Party Academy. IN THIS EPISODE 2:05 Introduction to Alexa Bigwarfe and how Alexa inadvertently participated in a Louis Vuitton smuggling ring. 6:58 How Alexa has always loved writing and how she got started in her writing career. 11:50 Alexa's passion for sharing information about Twin to Twin Transfusion Syndrome and educating on how to help grieving mothers. She also shares other topics she wants to write about and desire to share about other topics. She becomes vulnerable in dealing with a father with dementia and mothering three kids at the same time. 17:11 Allowing yourself to be a little controversial and vulnerable is a mindset issue that blocks a lot of people from writing. There are also abilities to write anonymously and still be able to share your own voice. 18:10 In order for us to clear the blocks and the negativity, there's always a fear of family. We're loyal to those we love and don't want to rock the boat, it's always an underlying question and a limiting belief that keeps us from following the fire that keeps us from doing what we want to do. 19:41 Sometimes the passion that we have is not supported by our families and for Alexa, it's kept her from growing as a business owner, but she's drawn a lot of strength from her community. 22:04 Alexa walks Tonya through the process of what it looks like to write a book. Alexa serves as a book coach for writers and loves to help train others in how to write their book. Depending on the level of need of the author will determine how much Alexa works with someone. She shares how it works to have a ghost writer or to use her training or book launching services. 27:15 What goals will look like in starting to write a book and creating the beginning outline. You have to understand what you want the book to look like from day one. Creating a cover is an important first step with writing and working towards goals for writing and marketing. 31:02 The beauty of Alexa's group coaching program in having a mastermind format with writing the books together. Also, she walks through the processes for those who are working on their own. [bctt tweet="Alexas passion is to help others share their passion through writing. #profitparty" username="tonyarineer"] KEY TAKEAWAYS How Alexa has always loved writing and how she got started in her writing career. Allowing yourself to be a little controversial and vulnerable is a mindset issue that blocks a lot of people from writing. Alexa walks Tonya through the process of what it looks like to write a book. What goals will look like in starting to write a book and creating the beginning outline. EPISODE RESOURCES Alexa's Publishing and Book Marketing Online Conference starts March 28 Sunshine After the Storm: a Survival Guide for Grieving Mothers Lose the Cape: Realities from Busy Modern Moms and Strategies to Survive Free Money Mindset Training- just in case you're ready to take your profit power to the next level! CONTINUE THE PROFIT PARTY WITH ALEXA Alexa's website Write Publish Sell Alexa's Facebook page Hang out with us inside our free Facebook Community- where every day is a party!
June 2, 2016 Craig Wolfley is back in the Wolf's Den Studio at the Pittsburgh Podcast Network, covering the State of the Steelers with Five Things We Know from OTAs. Wolf then gives his take on the Pro Bowl - what it used to mean, what it is today, and how to improve it in the future. Craig closes the show with the Making a Difference segment, talking to his friend Jane Klimchak. Jane tells the tragic story of her grandson Noah Angelici, who suffered from Twin-to-Twin Transfusion Syndrome, a rare fetal disorder which eventually claimed Noah's life. Jane is on the board of directors for Noah's House of Hope, a non-profit which raises money and awareness for Twin-to-Twin Transfusion Syndrome. Craig Wolfley will be speaking at the 9th Annual Noah Angelici Memorial Golf Event, held at the Mystic Rock Golf Course at Nemacolin Woodlands Resort on Sunday, June 26, 2016. For details and registration info, go to http://www.noahshouseofhope.com/golf/ Follow Noah's House of Hope on Facebook at http://www.facebook.com/NoahsHouseOfHope The Craig Wolfley Podcast is proudly sponsored by J & D Waterproofing. Call them at 1-800-VERY-DRY or www.jdwaterproofing.com * LISTEN TO THE PODCAST: How to Listen Regularly: – All shows on the “Pittsburgh Podcast Network” are free and available to listen 24/7 On-Demand in your hand on smartphone and tablet and on your laptop and desktop. – Apple users can find it on the iTunes Podcast app or player. – Android users can find it on the SoundCloud, Google Play Music or TuneIn website or app. * SEARCH: Pittsburgh Podcast Network • iTunes • Google Play Music • SoundCloud • tunein TWITTER FOLLOWS: @CraigWolfley, @TunchandWolf, @Steelers, @SteelersNRadio, @LightOfLife, @talentnetworktv, @PghPodcast, @JDWaterproofing BOOKINGS/INQUIRIES: • David Sedelmeier • http://talentnetworkinc.com Produced by Pittsburgh Podcast Network for talent network, inc.