Podcast appearances and mentions of Regina Holliday

In this episode of the ISavethatPodcast, Judy welcomes Todd Heslep, DTEAM Chair for our conference. Together we talk to Regina Holliday who is the Keynote speaker this year in Denver, Colorado September 28th. Support the Show.

Heading to Portugal. Ready. Listen to last episode from '19 Spanish Camino. Sounds of tapping of my canes, white storks, cathedral bells chiming. Stay tuned. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on transcript) Proem.. 1 Advantages of progressive illness 03:20. 1 Heading out shortly 04:45. 2 Week 2 06:01. 2 Inspired 07:14. 2 Quieting my mind 09:31. 3 Tap, tap, tap of my two canes 11:58. 3 Mobility package 15:45. 3 White storks in Portomarin 16:14. 4 Santiago de Compostela Cathedral 16:39. 4 Heading home to Boston 17:35. 4 Reflection 17:56. 4 Links Rien MacDonald's Hope Initiative podcast Maria Xenidou's Impact Learning podcast Regina Holliday's Cinderblocks conference Marly Camino Guided Tours Related podcasts Camino de Santiago Episodes Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to David Bourne, Carole Blueweiss, Rien MacDonald, Maria Xenidou, Regina Holliday, Mary Lawler, Ann Boland, Mike and Linda DeRosa, Kate Higgins, Cynthia Meyer About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to the blog https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I'm getting ready to go on a pilgrimage to Portugal and Spain. It's the Camino de Santiago. And for those of you who've been following me, know I've been podcasting about it. I've been podcasting about my previous trip in 2019 when we went to Spain and my training. I've gotten a lot of comments on these episodes, and mostly they're attaboy comments, but some asked me if I'm afraid. Aren't I scared? I think that's a good question. At first, I just wanted to dismiss it. What could happen? I'm going with friends, lots of other people are on this pilgrimage. It was safety uneventful in 2019 when we went. But to be honest with you, yes, I have some fear. I have a “what if” kind of thing. What if this, what if that, what if I have an exacerbation of my MS? What if I fall?

US worse in maternal mortality among rich nations. Black women 2.5x more likely to die than white women. Drs. Whitt & Masinter discuss fragmented care and info. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Drs. Whitt and Masinter 04:58. 2 Disparities in access to outpatient maternal health 07:08. 3 Transitions of Care and outcomes in maternal healthcare 13:37. 4 A long-known, worsening, unsolved problem 17:26. 5 Pushing up regulations and financial incentives hills 24:51. 7 Clinicians that look like you 25:36. 7 Research what we know or study potential solutions? 27:12. 7 Low-hanging fruit gone 29:50. 8 Hyper-local solutions 31:40. 9 Holes in our data, gaps in our knowledge 33:49. 9 How can we, mere mortals, participate? 37:38. 10 Wave your magic wand and do what? 40:23. 11 Health Information Exchanges HIEs 41:39. 11 Integrating public health/community resource use 43:36. 12 Reflection 47:24  13 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Julia Skapik, Lillie Rizack, Maria Michaels, Ellen Schultz, Linda DeRosa, Anica Madeo, Bevin Croft, Bonnie Englebart, Liz Salmi, Regina Holliday, Jane Sarasohn-Kahn, Ame Sanders Sponsored by Abridge Links CDC Maternal Mortality Federally Qualified Health Centers OCHIN, the Oregon Community Health Information Network. Alliance Chicago, advancing community health through collaboration, technology, and research Health Populi What Poor Birth and Maternity Outcomes in the U.S. Say About American Healthcare & “Infrastructure” United States core data for interoperability United States Core Data for Interoperability (USCDI) The United States Core Data for Interoperability (USCDI) is a standardized set of health data classes and constituent data elements for nationwide, interoperable health information exchange. Review the USCDI Fact Sheet to learn more. Adams Announces MOMS Act and Maternal CARE Act to Conclude Black Maternal Health Week The MOMS Act would expand the Alliance for Innovation on Maternal Health (AIM) program, which develops standardized maternal safety best practices to prevent maternal mortality and morbidity and would establish a new grant program to provide states and hospitals with the resources and training needed to implement the best practices to prevent maternal death and complications before, during, and after childbirth. AMERICA IS FAILING ITS BLACK MOTHERS from the Harvard Chan School Business Model Innovation for Inclusive Health Care Delivery at the Bottom of the Pyramid This article investigates business models innovation for delivering health care at the base of the pyramid (BoP). The examination of six health care organizational cases suggests that co-creation of patient needs, community engagement, continuous involvement of customers, innovative medical technology, focus on human resources for health, strategic partnerships, economies of scale, and cross-subsidization are business model innovation strategies that enable inclusive health care delivery. Based on these findings, we propose a four-dimensional framework. A process of value discovery, leading BoP patients and communities to recognize a health need and seek for an acceptable treatment, precedes the identification of a successful value proposit...

Listen to Regina Greer-Smith, pioneer and master of research without fear. Strong women leading research. Engagement, dissemination, implementation. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Web/social media coach, Kayla Nelson Thanks to these fine people who inspired me for this episode: Neely Williams, Lisa Stewart, Kristin Carman, Thomas Scheid, Alexis Snyder, Apriani Oendari, Ruth Nabisere, Sue Sheridan, Freddie White-Johnson, Regina Holliday, Mike Herndon, Gwen Darien Links Fair Housing Rally in Cicero, IL, in 1966 Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Data Research Network (CDRN), Pastors4PCOR, ArthritisPower Patient Powered Research Network (PPRN) also known as CreakyJoints. PCORI Patient Engagement Advisory Panel PCORI Engagement Rubric, We Shall Overcome AHIMA (American Health Information Management Association) Dr. Quentin Young S.T.A.R. program Building the capacity of faith-based communities to engage in health research initiatives Southland Ministerial Health Network. Faith-based manual on Amazon Barbara Sher Related podcasts and blogs https://health-hats.com/minister-to-community-spirit/ https://health-hats.com/equity-more-to-achieve-the-same/ https://health-hats.com/a-gift-that-keeps-giving/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Remember where you were when Martin Luther King was assassinated when the planes hit the Twin Towers?  These events shape us and connect us as a community, as a society, as a world. Remember where you were when your Mom/Dad/Sib died suddenly. These events in life mold and bind us individually and across communities.  Think about the 400,000+ deaths of COVID-19. Sometimes, we live through events, and years pass before we know the profound impact they have on us. For me, attending the Fair Housing Rally in Cicero, IL, in 1966 was such an event. Martin Luther King was there. I didn't meet him, but my parents' civil rights activism that brought us there affected me deeply. Introducing Regina Greer-Smith I didn't meet my guest, Regina Greer-Smith, at that Fair Housing Rally,

Listen to Regina Greer-Smith, pioneer and master of research without fear. Strong women leading research. Engagement, dissemination, implementation. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Web/social media coach, Kayla Nelson Thanks to these fine people who inspired me for this episode: Neely Williams, Lisa Stewart, Kristin Carman, Thomas Scheid, Alexis Snyder, Apriani Oendari, Ruth Nabisere, Sue Sheridan, Freddie White-Johnson, Regina Holliday, Mike Herndon, Gwen Darien Links Fair Housing Rally in Cicero, IL, in 1966 Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN) Clinical Data Research Network (CDRN), Pastors4PCOR, ArthritisPower Patient Powered Research Network (PPRN) also known as CreakyJoints. PCORI Patient Engagement Advisory Panel PCORI Engagement Rubric, We Shall Overcome AHIMA (American Health Information Management Association) Dr. Quentin Young S.T.A.R. program Building the capacity of faith-based communities to engage in health research initiatives Southland Ministerial Health Network. Faith-based manual on Amazon Barbara Sher Related podcasts and blogs https://www.health-hats.com/minister-to-community-spirit/ https://www.health-hats.com/equity-more-to-achieve-the-same/ https://www.health-hats.com/a-gift-that-keeps-giving/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Remember where you were when Martin Luther King was assassinated when the planes hit the Twin Towers?  These events shape us and connect us as a community, as a society, as a world. Remember where you were when your Mom/Dad/Sib died suddenly. These events in life mold and bind us individually and across communities.  Think about the 400,000+ deaths of COVID-19. Sometimes, we live through events, and years pass before we know the profound impact they have on us. For me, attending the Fair Housing Rally in Cicero, IL, in 1966 was such an event. Martin Luther King was there. I didn’t meet him, but my parents’ civil rights activism that brought us there affected me deeply. Introducing Regina Greer-Smith I didn’t meet my guest, Regina Greer-Smith,

Regina Holliday inspires me. A learning dynamo she takes her skills - painting, connection, spirit, whatever – to catalyze whoever touches someone she has touched. She’s a gift that keeps giving. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:46. 1 Enmeshed. Maintain the fire. Keep listening 03:39. 2 Enmeshed with community 15:17. 4 Eureka, the Walking Gallery 17:20. 4 Seminary, calling, mitzvah 25:13. 6 Covid, masks, gardens 29:35. 6 Reflection 33:19. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Benjamin Berlin, Amy Edgar, Marsha Goodman-Wood, Alex Fair, Mark Johnson, Michael Mittleman, Josh Rubin, Claire Sachs, Colin Hung, Ileana Balcu, Julie Arnheim, Jan Oldenburg Links Walking Gallery Cinderblocks 73 Cents, A Film Danny McGinnis, Jr. PFA Network Bellin Health Chiara Bell Kaiser Permanente Center for Total Health Clinovations Related podcasts and blogs https://www.health-hats.com/cinderblocks4-medical-advocacy-at-its-best/ https://www.health-hats.com/building-capacity-building-power-citizen-power/ https://www.health-hats.com/advocacy_pearls/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Regina Holliday inspires me because she is a learning dynamo. She takes her skills - painting, connection, spirit, whatever – to catalyze whoever touches someone she has touched. She’s a gift that keeps giving. Proem Regina Holliday, known worldwide for her Walking Gallery, lives in God’s country near the Cumberland Gap, Maryland, close to my old stomping grounds in West Virginia. The Walking Gallery is hundreds of jackets painted by Regina and her artist colleagues. The backs of the jackets tell our stories, our advocacy, and life stories. The painting is free; we supply the jacket. We agree to wear the jacket at conferences and meetings. Advocacy can often be lonely work, swimming upstream. When I spot someone else with a jacket, I know immediately that this is my peap. When I wear my jacket, people come up to me and want to hear my story. I know you’ll be surprised to hear that I have the story ready. The first time I met Regina in person,

Regina Holliday inspires me. A learning dynamo she takes her skills - painting, connection, spirit, whatever – to catalyze whoever touches someone she has touched. She's a gift that keeps giving. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 00:46. 1 Enmeshed. Maintain the fire. Keep listening 03:39. 2 Enmeshed with community 15:17. 4 Eureka, the Walking Gallery 17:20. 4 Seminary, calling, mitzvah 25:13. 6 Covid, masks, gardens 29:35. 6 Reflection 33:19. 7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Benjamin Berlin, Amy Edgar, Marsha Goodman-Wood, Alex Fair, Mark Johnson, Michael Mittleman, Josh Rubin, Claire Sachs, Colin Hung, Ileana Balcu, Julie Arnheim, Jan Oldenburg Links Walking Gallery Cinderblocks 73 Cents, A Film Danny McGinnis, Jr. PFA Network Bellin Health Chiara Bell Kaiser Permanente Center for Total Health Clinovations Related podcasts and blogs https://health-hats.com/cinderblocks4-medical-advocacy-at-its-best/ https://health-hats.com/building-capacity-building-power-citizen-power/ https://health-hats.com/advocacy_pearls/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Regina Holliday inspires me because she is a learning dynamo. She takes her skills - painting, connection, spirit, whatever – to catalyze whoever touches someone she has touched. She's a gift that keeps giving. Proem Regina Holliday, known worldwide for her Walking Gallery, lives in God's country near the Cumberland Gap, Maryland, close to my old stomping grounds in West Virginia. The Walking Gallery is hundreds of jackets painted by Regina and her artist colleagues. The backs of the jackets tell our stories, our advocacy, and life stories. The painting is free; we supply the jacket. We agree to wear the jacket at conferences and meetings. Advocacy can often be lonely work, swimming upstream. When I spot someone else with a jacket, I know immediately that this is my peap. When I wear my jacket, people come up to me and want to hear my story. I know you'll be surprised to hear that I have the story ready. The first time I met Regina in person, she blew me away.

Fred Holliday was diagnosed with metastatic kidney cancer in 2010. At one point, his wife Regina asked to see Fred's medical records. Fred and Regina were astonished by what they experienced – how difficult, and in some cases impossible, it was to access crucial personal health data. Fred passed away in mid-June of that year, at only 39 years old. In one of his final messages, he passed a handwritten note to his wife that read, “Go After Them Regina, Love Fred.”As an artist, Regina was able to express her grief and frustration through her paintings. She was invited to create a mural on the back of a gas station on Connecticut Avenue in Washington, DC. She titled the piece “73 Cents,” because that was the quoted price per page for Fred's paper medical record. Less than a month after beginning the mural, Regina was talking to members of the US Senate and to reporters around the world. The painting, which can still be seen today in the nation's capital, helped make patient access to data become a core measure in the Meaningful Use legislation in 2010. From this tragic experience was born “The Walking Gallery.” After the mural became widely known, Regina began painting patient and family stories on the back of jackets and blazers. These stories often come from a place of deep pain; such as the death of a loved one or a chronic condition that they a patient battles every day. There are now 466 members wearing jackets painted by 52 artists. Regina herself has painted over 400 jackets! At HIMSS20 next week - and other healthcare events - you'll see members of the Walking Gallery strolling around the conference. Niko Skievaski spoke with Regina Holliday about the Walking Gallery and her ongoing quest to ensure patients and families can access data when they need it. 02:11 – Regina's shocking experience trying to access her husband's patient data 04:38 – The “horrific” conditions fueled her advocacy 06:22 – An AMA meeting attendee asks for a painted jacket – the start of the Walking Gallery 10:40 – Having access to data is empowering for the patient 18:51 – The “ripple” impact of the Walking Gallery 21:07 – How can people get a painted jacket? 23:32 – If you see someone wearing a Walking Gallery jacket, feel free to ask the person their story Regina Holliday travels the globe spreading her message of patient empowerment and inclusion in healthcare decision making. Our thanks to Regina for sharing her story on The Redox Podcast.

Rare Patient Voice: Gateway to paid Patient Advocacy. Diagnosis-based experience brokers. Interview with Wes Michael. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Wesley Michael 00:50. 1 Market research from Wheaties™ to healthcare 06:34. 2 Diagnosis-based experience brokers 10:11. 3 Health equity? 12:57. 4 Waving a magic wand 17:50. 5 Paying for lived experience 20:03. 5 Focused and growing 22:16. 6 Caregivers sharing their voice 24:37. 6 Reflections 28:13. 7 Joey van Leeuwen “Up” 29:28  7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Jack Barrette, David Goldsmith, Andrew Hopper, Jen Horonjeff, Joey van Leeuwen, Thatcher Hussain, Greg Merritt, Grace Cordovano, Regina Holliday, Pat Mastors, Libby Hoy, Geri Lynn Baumblatt, Mary Anne Sterling Links Rare Patient Voice WEGO Health Savvy Coop Patient Family-Centered Care Partners   Related podcasts and blogs https://health-hats.com/e-patients-experts-with-lived-experience/ https://health-hats.com/teachable-spirit-patient-family-advisors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Wesley Michael I attended yet another session with healthcare experts, where I heard clinicians and academics say, “we're all patients.” If I spoke to them as Patient Smith rather than Dr. Smith, would they embrace their inner patient? I don't know. I didn't test it. Lived experience takes many forms - advocacy, coaching, expert panels, advisory panels, informing research and more. Many patient experts and advisors struggle with the tension of receiving payment for their lived experiences. What's the value if their expertise is successful living with a medical condition? What if they were business, marketing, advocacy, policy consultants without lived experience? What would they be paid? What's the value of this combined expertise in the market? Wesley Michael, a marketing entrepreneur, founded a company, Rare Patient Voice, to offer companies and researchers panels of ran...

Rare Patient Voice: Gateway to paid Patient Advocacy. Diagnosis-based experience brokers. Interview with Wes Michael. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Introducing Wesley Michael 00:50. 1 Market research from Wheaties™ to healthcare 06:34. 2 Diagnosis-based experience brokers 10:11. 3 Health equity? 12:57. 4 Waving a magic wand 17:50. 5 Paying for lived experience 20:03. 5 Focused and growing 22:16. 6 Caregivers sharing their voice 24:37. 6 Reflections 28:13. 7 Joey van Leeuwen “Up” 29:28  7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Jack Barrette, David Goldsmith, Andrew Hopper, Jen Horonjeff, Joey van Leeuwen, Thatcher Hussain, Greg Merritt, Grace Cordovano, Regina Holliday, Pat Mastors, Libby Hoy, Geri Lynn Baumblatt, Mary Anne Sterling Links Rare Patient Voice WEGO Health Savvy Coop Patient Family-Centered Care Partners   Related podcasts and blogs https://www.health-hats.com/e-patients-experts-with-lived-experience/ https://www.health-hats.com/teachable-spirit-patient-family-advisors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Introducing Wesley Michael I attended yet another session with healthcare experts, where I heard clinicians and academics say, “we’re all patients.” If I spoke to them as Patient Smith rather than Dr. Smith, would they embrace their inner patient? I don’t know. I didn’t test it. Lived experience takes many forms - advocacy, coaching, expert panels, advisory panels, informing research and more. Many patient experts and advisors struggle with the tension of receiving payment for their lived experiences. What’s the value if their expertise is successful living with a medical condition? What if they were business, marketing, advocacy, policy consultants without lived experience? What would they be paid? What’s the value of this combined expertise in the market? Wesley Michael, a marketing entrepreneur, founded a company, Rare Patient Voice,

Depicting the need for clarity and transparency in medical records through painting

At HiMSS 2018 we gain roved the floor and selectively spoke with people or technology of interest. In this chat, I speak with Regina Holliday aka 'Little Miss A' a characterization of Regina's passion for her then very sick (and dying) husband by a rather paternalistic surgeon who objected to her involvement and engagement on behalf of he late husband Fred. Learn more about what drives Regina, her vision with and for the Walking Gallery and what she's up tp. Filmed in OneView's booth. Follow via @OneViewHC.  

Depicting the need for clarity and transparency in medical records through painting

A Miner Detail is LIVE on Sunday, April 30, 2017, the 101st day of Trump's presidency, at 9:00 p.m.! Topics include:  9:00 - 9:30 p.m. - Former Washington County Board of Education candidate Henry House joins the show to discuss the demise of Harshman's career and the final chapter in the nearly 8-month-long nightmare saga.  9:30 p.m. - ? - Grantsville, Maryland mayoral candidate Regina Holliday joins the show to recap the Western Maryland Democratic Summit that was held this weekend at Rocky Gap Casino Resort in Allegany County, just east of Cumberland, Maryland.  

Rohan Kulkarni and Clayton Nicholas of Conduent Health discuss patient empowerment with Regina Holliday, Dave deBronkart and Joe Ternullo.

In the second part of our interview with Regina Holliday, we hear about the scope of the Walking Gallery movement, how pop culture fits into her work, and meeting President Obama. Part 2 of 2

Regina Holliday, a nationally recognized patient advocate and founder of The Walking Gallery, joins Explore The Space to discuss her meteoric rise and the power of protest art, social media, and true passion as tools for bringing tangible change. Part 1 of 2.

The second gathering of Cinderblocks was convened in historic Grantsville, MD on June 4-6th 2015. Organized by the passionate and determined Regina Holliday (@reginaholliday), the event was dubbed by some as the 'Burning Man' for healthcare disruptors. Cinderblocks2 prooved to be an optimum setting for an eclectic gathering of patients, patient adovcates, family caregivers, heath wonks, clinicians (including practicing physicians and advanced practice nursing, as well as nutritionists, and fitness gurus) and a very talent pool of artists, musicians and others committed to advancing a sustainable health[care] economy. Those of us in attendance witnessed some definite magic and here is just one example! Meet @ePatientDave aka 'Dave deBronkart'.      Filmed, produced and edited for Health Innovation Media by Gregg Masters @2healthguru. Enjoy!

Regina Holliday is an unstoppable force for good. An activist, artist, speaker an author, she has become an advocate for patients and their stories, as well as a local tour de force in her community. Some people have even called her the Rosa Parks of Health Care. You might see her at a health conference, like we were able to at HIMSS, painting what she hears from the patient view. She is part the movement known as participatory medicine. She and others in this movement believe that the patient is a partner with their provider and both should work together as a team.

On the November 26th, 2014 at 1PM Eastern/10AM Pacific we chat with Regina Holliday the curator of The Walking Gallery and the emerging Center for Arts and Healing. More about the Center: The center will have a gallery space available for rental, classroom space for art, music, fitness and dance. The building will initially have two bedrooms and one small studio/apt for artists in residence, recovering cancer patients or visiting patient advocates. The building will also have a gathering space that will assist community socializing and learning through play. In addition, our goal is to host corporate retreats, conference events and health camps with many of the major voices involved in the participatory medicine. The Center will host The Walking Gallery of Healthcare’s annual gathering. For more information on Regina click here and for more information on the The Walking Gallery Center for Arts and Healing see: 'The Walking Gallery Center for Arts and Healing A project by Regina Holliday' on Medstartr.  More on Regina's efforts via HealthInnovationMedia.com/ Join us for an fascinating chat with an amazing women tirelessly committed to making a difference in the lives of us impacted by disease, illness or trauma.  

Painful experiences can be the impetus for meaningful change. On this show, hear from Regina Holliday, an activist, artist, speaker and author who began an advocacy movement called “The Walking Gallery” after her late husband's struggle to get appropriate cancer care. You'll also hear from Eunita Winkey, founder of ATWINDS Foundation, a public school teacher and a member of The Walking Gallery, who became an advocate after medical errors harmed her family.

I'm joined by Regina Holliday this week as we talk about art as therapy, art as advocacy, Regina's patient story, and most importantly The Walking Gallery. We also discuss her past experiences at Stanford Medicine X including her keynote presentation in 2012, 2013 Flash Mob, and participation in the #WhatifHC Panel. Enjoy! You can follow Regina on Twitter @ReginaHolliday and reginaholliday.blogspot.com/. Run Time - 34:48 Send your feedback to feedback@justtalkingpodcast.com.

Join host, Craig H. Lipset, Head of Clinical Innovation, R&D, Pfizer lead a discussion on what it really means to partner with patients in clinical trials. Guests include: Jeri Burtchell, Founder, Partners in Research Regina Holliday, Artist and Medical Advocate For more information on Jeri's new launch, visit: Healthivibe.com and for Regina walking gallary, google Regina Holliday, walking gallary. For more information on the topic of Patients as Partners, visit www.theconferenceforum.org. The Conference Forum presented a program in March 2014 fully dedicated to understanding the journey a patient takes in clinical trials. Also take a look at Disruptive Innovations to Advance Clinical Trials scheduled for September 11-12, 2014 in Boston. This event addresses significant innovation to help improve a patients experience in a clinical trial.  

On the Wednesday, February 5th 2014 broadcast at 10AM Pacific/1PM Eastern, we continue our special series 'Countdown to HiMSS14' with a tireless warrior advocating for patient centric healthcare, and founder of the 'art as message' virtual Walking Gallery Regina Holliday. For details on Regina click here and a beautifully done video of The Walking Gallery here. Regina once tagged 'little miss A' is a powerful keynote speaker at healthcare conferences who carries the water for a patient centric healthcare system that leverages e-connectivity resources to provide the right care at the right time for the right patient. A mission born from the tragic loss of her husband to delayed if not mis-diagnosis of renal cancer, Regina is determined to not let Fred's death fade from memory while the healthcare ecosystem continues its predominant 'business as usual' siloed care management models. For an informative interview as to Regina's passion and motivation see last year's clip from HiMSS13 here. Join us!  

Wednesday, November 28th at noon PT/3PM ET, my special guest is the talented Jane Sarasohn-Kahn aka @HealthyThinker. We'll discuss the ACO market from her global and in some respects granular take of a rather frenetic development pace. Jane is a health economist and management consultant that serves clients at the intersection of health and technology. In addition to her twitter presence, she also publishes the popuilar blog HealthPopuli. A frequent speaker and moderator on the healthcare innovation front, Jane is also a member in good standing of 'The Walking Gallery' as curated by Regina Holliday. Jane's clients include all stakeholders in health, including providers, payors, plans; companies in biopharma, medical devices, financial services, technology and consumer goods, non-profits & NGOs.  

Regina Holliday is a DC-based patient rights arts advocate. Regina began painting a series of murals depicting the need for clarity and transparency in medical records. This advocacy mission was inspired by her husband, Frederick Allen Holliday, II, and his struggle to get appropriate care during eleven weeks of continuous hospitalization at five facilities. After his death resulting from kidney cancer on June 17, 2009, she began painting a mural entitled "73 cents."