Podcasts about from danny

This week on “Talk About Las Vegas With Ira,” Ira sits down with Andrew Davies Gans, director of the new documentary, "Voices: The Danny Gans Story," premiering June 20 at the 28th Annual Dances With Films festival at the iconic TCL Chinese Theatre in Hollywood. The film honors the remarkable yet often overlooked legacy of Danny Gans, a legendary Las Vegas entertainer whose name was once synonymous with the Strip. Though his star burned brightly during his lifetime, his passing on May 1, 2009, left only a fleeting memory in the city he helped define. Andrew shares why now—over a decade later—felt like the right time to tell his father's story. He opens up about the emotional journey behind the camera, the challenges of wrangling a complex production delayed by COVID, and how a project he thought would take two years turned into a nearly five-year labor of love. Featuring heartfelt interviews with Louie Anderson, Donny Osmond, and Las Vegas entertainment columnists Norm Clarke and John Katsilometes, the film sheds light on Danny's extraordinary talent, unmatched work ethic, and the pain he kept hidden behind his smile. From Danny's deep admiration for Sammy Davis Jr. to his relentless drive, athletic mind-set, and close relationship with his own father, Voices explores the man behind the Vegas marquee. Despite his enormous popularity within Las Vegas, Danny remained a relative unknown beyond it—largely by choice, relying on word-of-mouth rather than flashy marketing. Now, this powerful and intimate documentary aims to restore Danny Gans to his rightful place in entertainment history—and introduce him to a global audience for the first time. (Also Watch Full Podcast Video)

Send us a textThe dinner party where your partner's other partner shows up. The wedding where you're trying to explain your relationship structure to curious relatives. The community gathering where you're juggling attention between multiple partners.Social events in non-monogamous relationships present unique challenges that most relationship advice completely ignores.In this raw and practical episode, I sit down with Danny to unpack exactly how to navigate these complex situations with confidence. Drawing from our combined experiences, we share the strategies that actually work when theory meets reality.What You'll Learn:Proven pre-event communication strategies that prevent misunderstandingsReal-world techniques for managing jealousy when it hits unexpectedlyHow to balance attention between partners without keeping a mental scorecardPost-event reconnection rituals that strengthen all your relationshipsReal Stories, Real SolutionsWe don't just share theory - we open up about our own awkward moments, painful lessons, and eventual breakthroughs. From Danny's first swinger party anxiety to my own experience navigating family gatherings with multiple partners, we offer the kind of honest insights that only come from lived experience."The goal isn't to never feel uncomfortable," I explain. "It's to have tools to handle the discomfort when it inevitably shows up."Communication is Key: We discuss why talking about your fears and expectations before an event can make all the difference. It's not just about setting rules in your non- monogamous relationships – it's about understanding each other's needs and concerns.Navigating Different Dynamics: From swinger parties to polyamory gatherings, we explore how to handle various social situations with multiple partners. Learn how to balance attention and manage different relationship structures in public settings.Building Confidence: Discover how each social event is an opportunity to grow more secure in your open relationships and yourself. We share personal stories of overcoming anxiety and building resilience.Want the Non-Monogamy Card Game? Get your discount with coupon code NOPE10 https://www.thenonmonogamycardgame.com/products/the-gameRemember, feeling nervous about these situations is completely normal. The key is learning how to work through those feelings and create positive experiences for yourself and your partners.Join us for an honest, sometimes humoroushttps://elleciapaine.com/callSupport the show

Merry Christmas Everyone!  From Danny and Wanda

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Introducing you to my new Patreon page so that I can earn some revenue to help me keep the lights on. Fans can pay a $small amount each month for bonus rewards. About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. We respect Listeners, Watchers, and Readers. Show Notes at the end. Watch on YouTube Read The same content as the podcast, but not a verbatim transcript. A newsletter-like version with images. Could be a book chapter. download the printable transcript here Episode Notes Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors, or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Hey there. As one of my blogging, podcasting, and vlogging cronies, I'm excited to share a sneak peek of a big upcoming launch with you and see what you think. For the past few weeks, I've been working on a Patreon page so that I can earn some more ongoing revenue through my fans to help me keep the lights on. With Patreon, fans can pay a small amount of money each month in exchange for some bonus rewards. The "About" tab tells you more. Free will remain an option. https://health-hats.com/free/ I've launched my page, but it isn't finalized. Go here. https://www.patreon.com/user?u=8382489. Click on the "About" and "Membership" tabs. I'd love to hear any feedback you have about it before I make it live for the world. Specifically, Does everything make sense? Is it clear what Patreon is and what fans get out of joining my community? What do you think of the rewards? Do any, in particular, stand out as things you would join Patreon for? Is there anyone you think I should connect with to help spread the word once I launch? Thanks for letting me know what you think. I'm excited to get this off the ground and couldn't do it without the support of friends, and family like you. I'll be sending out an email to my mailing list subscribers once I launch. So feel free to add your email here  https://health-hats.com/free/ if you'd like to stay in the know. I'm looking forward to incorporating your feedback into my final page. Thanks.

Costa Rica welcomes travelers with disabilities. Juve Acuna, travel guide, spent a week with us sharing his expertise in flora, fauna, history, & disabilities. Blog subscribers: Listen to the podcast here. Scroll down through the show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Podcast intro 03:58. 2 Grandfather of disability travel 04:33. 2 Capabilities and preferences 07:07. 3 Building a network 08:30. 3 Preparation 10:51. 4 National Tourism Board 12:48. 4 Building infrastructure for accessibility 13:44. 5 The network for accessibility 16:39. 5 Pride 17:30. 5 Possibilities, safety 19:42. 6 A word from our sponsor, Abridge 21:14. 6 Photo highlights of the trip 21:57. 7 Swimming in the Pacific Ocean 22:16. 7 Howler and white-faced monkeys 23:17. 8 Reflection 24:02. 8 Podcast Outro 24:53  8   Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger  Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Photo by Iswanto Arif on Unsplash Photos taken by Ann Boland, Paul Boland, Juve Acuna, and Danny van Leeuwen The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Ann Boland, Linda and Mike DeRosa, Kate Higgins, Mary Lawler Links Il Viaggio Travel Costa Rica - Plan your trip to Costa Rica with us (ilviaggiocr.com) Where to Go Bird-Watching in Costa Rica - Tripadvisor Arenal Hanging Bridges | Experiencing Costa Rica From The Treetops (parenthoodandpassports.com) Related podcasts Camino | Danny van Leeuwen Health Hats (health-hats.com) About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show To see the transcript with images download the printable transcript here Proem Figure 1: Skywalk hanging bridge in Arenal National Park, Costa Rica Figure 2: Danny in his chair with our guide, Juve Just stay in the middle.

Matt Neil, teacher, offers a hopeful story. Not focusing on mental health per se but on belonging and inclusion in a typically lonely time – high school. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings Proem Podcast intro 01:46 Health is fragile 02:20 Health class 03:35 Introducing Ambassadors 04:53 Sustaining the Ambassadors program 06:42 Three points of contact 07:52 New student defined 08:27 Back to school after a life-changing event 09:30 Kathy's table 13:50 Prevention is invisible 15:26 A word from our sponsor, Abridge 18:18 Support and continuity 19:00 Continuity and diversity 21:23 Team leadership 22:42 Ninth grade 23:55 Perhaps they don't want help 25:04 A lesson from failure 25:51 Standardization, data 27:53 Social health, a safe place 29:21 Loneliness, belonging, hope 30:50 Captain, CEO of your health team 32:48 What can we do to help young people? 33:42 Wisdom shared 36:06 Reflection 39:53 Nuggets from the Mine 40:42 What's next? 41:18 Dr. Bonnie Engelbart, Primary Care 41:38 Podcast Outro 43:44 to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Proem and Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Image of emerging adult with mental illness and community collaboration from DALL.E Photo by Alex Simpson on unsplash Photo by Trung Thanh on Unsplash High school The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Karl Madeo,  Marc Lefebvre, Bonnie Engelbart, Ruben van Leeuwen, Kathy Bloom Links Related podcasts Series: Emerging Adults with Mental Illness https://health-hats.com/a-learning-community-for-ceos-of-your-health/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem

Annie Schneider with Bipolar II, experiencing abrupt and slow simmering transitions from home, hospital, school. Develops agency, control, and trust. Powerful! Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings Proem Introducing Annie Schneider 02:18 Podcast intro 03:18 Something's wrong 04:07 Self-reflection 06:49 Something helps! 07:47 Diagnosis 09:32 Who is ‘we'? 11:31 Underwater 13:15 Friends 14:43 Hospital friends/peers 16:17 Not a medical hospitalization 16:47 Abruptly in 17:21 Survivor's guilt 21:45 Abrupt hospital exit – discharge 22:46 Abrupt re-entry back to school 24:21 Familiar with what others may be experiencing 26:06 Just get over it 27:07 A word from our sponsor, Abridge 30:15 Toolbox 30:58 Physical tools – medications 32:56 Tools: sunshine, friends, and pets 34:26 Alcohol 35:29 Apps 36:27 What change would you make for best life? 37:57 Reflection 43:03 Next episode: Matt Neil 43:46 Podcast Outro 45:09 to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Image of emerging adult with mental illness from DALL.E Photo by Stormseeker on Unsplash underwater Photo by Khamkéo Vilaysing on Unsplash reentry Photo by Colton Sturgeon on Unsplash Meditation Photo by Trung Thanh on Unsplash High school The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Emeka Chima, Erika Blair, Sue Donnelly, Matt Neil, Bonnie Englebart Links Bipolar II Headspace's website:  https://www.headspace.com/ Related podcasts Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Series: Emerging Adults with Mental Illness About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show

#3: Erika Blair, proud of son, Emeka Chima. Found professionals with lived experience, integrated teams, positive support & a sense of hope from other parents. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Challenges of multi-media. A note to followers. 01:14 Podcast intro 02:48 Health is fragile 03:22 Proud of your son 04:19 Getting to diagnosis 04:50 Help in school 06:33 First psychotic break 07:36 Finding integrated help for the family 09:03 Goal-based care 10:44 IEP finally 11:18 Transitioning back 12:17 A word from our sponsor, Abridge 13:00 Freaking out together 13:44 Questions for professional helpers 14:51 Do professionals have lived experience? 16:19 Giving back 17:14 Hope 18:10 Family on the team 18:49 Early intervention 20:15 Students with Psychosis 22:29 Positive support for parents 25:02 Reflection 27:09 Annie Schneider 29:19 Matt Neil 30:23 Podcast Outro 32:13 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram, Twitter, Mastadon to @healthhats Credits Music on intro and outro by permission from Joey van Leeuwen, Drummer, Composer, Arranger including Moe's Blues for Reflection Web and Social Media Coach, Dissemination Kayla Nelson @lifeoflesion Intro photo of Vulture Couple by Rich Rieger used with permission Photo by Nick Fewings on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Matt Neil, Annie Schneider,  Links IEP (Individualized Education Plan) Asperger's Syndrome DSM V Johns Hopkins Bayview Johns Hopkins' Early Psychosis program National Association of Mental Illness Students with Psychosis Related podcasts Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Series: Emerging Adults with Mental Illness About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My privilege offers little experience with the loneliness of severe illness without reliable support.

Since AI dissemination exploded in 2022, I wanted to create my holiday letter using a variety of AI apps. May you all have adventures, rest, and inspiration. Love ya. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Better to watch than listen   Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 00:43 Or as CHAT CPG translated as a Shakespearean sonnet 01:19 Boland van Leeuwen family 02:16 Health 02:43 Music, my life 02:54 Multimedia publishing 03:27 A word from our sponsor, Abridge a la ee cummings 04:00 Advocacy 04:36 Reflection 04:36 Podcast Outro 05:53 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Photo by Rich Rieger Photo by Diane Feil on Unsplash Images by DALL.E  https://labs.openai.com/e/qK0AYWzbfbstxmhUIXpDUNXu/CUf17lDwAbvALkZwa9zuHi2M https://labs.openai.com/e/sgimC5lsgZBWobq2ZIgFQD1i/aDAs9Tgmuk4yfhdAk0aBtkLh https://labs.openai.com/e/v8iDSCzKlD13AVPPwjiAQ7v2/0YGebq0qdijNJTcxXHgQbggz https://labs.openai.com/e/rrb28KfkM47oki5Ju9BQnwAN/kDDr4QrrDO1GnXH16T6QXSpk Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to all of you Links I'll be using two versions of Descript's AI created overdubs of my voice, reading scripts created by CHAT CPG(2020), with images drawn by DALL.E, and my avatar done in Remini. Related podcasts https://health-hats.com/pod105/ https://health-hats.com/engaging-with-sax-good-as-i-am-merry-holidays/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem May the New Year surround you with empathy, equanimity, spirit, and gratitude. You're hearing me speak in my own voice. Since AI dissemination exploded in 2022, I wanted to create the rest of my holiday letter using a variety of the AI apps out there I'll be using two versions of Descript's AI created overdubs of my voice, reading scripts created by CHAT CPG(2020), with images drawn by DALL.E,

We need our emerging adults healthy in spirit, mind, body. How can we learn more about their exploding mental illness? Start with people with lived experience. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Podcast intro Four stories to set the stage Behavioral health managed care 00:34 Adolescent advisory panel at Children's Hospital 02:52 Integrated community approach 04:33 Lived experience on the Board of Directors 06:56 Engagement and partnerships with those with lived experience 10:41 Healthy emerging adults 11:13 Far from young adulthood myself 14:10 A word from our sponsor, Abridge 15:26 Introducing the podcast series 16:09 Introducing some guests 17:40 Emika Chima 18:03 Erika Blair 19:31 Annie Schneider 22:05 Nuggets from the mine -CURESZ.com 23:42 Podcast Outro 24:57 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion Photo by Nick Fewings on Unsplash Photo by Kat J on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Bethany Yeiser, Robert Doherty, Jim Bulger, Chris Gordon, Greg Fredo, Sneha Dave, Betsy Neptune, Sue Donnelly Links   Nuggets from the Mine CURESZ.org Comprehensive Understanding via Research and Education and Schizophrenia Related podcasts Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care  Young Adults, Parents, alone, together. High school, college, professionals, parent. Plus physician, teacher https://health-hats.com/pod178/   https://health-hats.com/pod174/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Podcast intro Welcome to Health Hats, the Podcast. I'm Danny van Leeuwen, a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot of our very little. We will listen and learn about what it takes to adjust to life's realities in t...

Time for gratitude and appreciation for what is. Update on Health Hats, the person, family, music, connection, and activism. New feature: Nuggets from the Mine Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) The awesome circus of life Podcast intro 02:11 Young adults with mental illness 02:46 Health communication 04:24 A word from our sponsor, Abridge 05:34 Video skills 06:18 My health 07:21 Nuggets from the mine 08:03 Remembering Michael Funk 09:55 Podcast Outro 11:20 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion Photo of 2 wheel minivan from Unsplash. Couldn't find reference. Photo by Elijah Hiett on Unsplash Photo by Nick Fewings on Unsplash The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Ann Boland, Simon, Ruben, Oscar, Leon van Leeuwen, Kate Gleeson, Jessica Conaway, Anica Madeo Links Alt-Text as poetry strabismus surgery Nuggets from the Mine Those Nerdy Girls on Substack, Facebook, and website. Related podcasts https://health-hats.com/covid-19-people-living-safely/ https://health-hats.com/pod146/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show The awesome circus of life My dear readers, listeners, and watchers, do your heads spin as mine does in this awesome circus of life? So much to take in, process, and react to - or not. I don't even pretend to keep up. My curiosity and fascination with life, people, stories, motivation, and connections continue unabated. I'm grateful to discover gobs of inspiring work almost every day. However, every few days, I need to integrate the shiny objects I discover and re-prioritize my activities. Before I tell you about some of my ongoing and upcoming projects, my activism focus has shifted. Not off patients and caregivers but realizing that I'm old.  If I could have changed the world, it would have happened already.

Patient advocates from the Healthe Voices 2022 conference describe how they recognize success in their advocacy.. Snapshots of diverse lived experiences. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 01:51 Estella Mata 02:26 Jason Jepson 02:43 Sharnae Smith 03:08 Jim Sneeden 03:31 Christine Von Raesfeld 04:32 Jason Crum 05:02 Brooke Abbott 05:27 Bethany Yeiser 05:41 Ken Taylor 06:11 Cindy Chmielewski 07:17 A word from our sponsor, Abridge 08:51 Jesus Guillen 09:34 Christopher Quimbar 10:22 Stephanie Chuang 10:57 Michele Nadeem-Baker 11:55 Jenna Green 13:02 Jasmin Pierre 14:18 Sam Seavey 14:39 Rachel Star Withers  15:25 Reflection 16:19 Podcast Outro 17:35 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaiser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang, Rachel Star Withers Links Raw, unedited transcript of all responses to question #2 Healthe Voices website Facebook Phyllisa DeRoze website re: Diabetes Diagnosed Not Defeated Bethany Yeiser CURESZ (Comprehensive Understanding via Research and Education in Schizophrenia). Mind Estranged: My Journey from Schizophrenia and Homelessness to Recovery Paperback – July 10, 2014 Ken and Barby's International Pain Foundation Stephanie Chiang The Patient's Story @thejennagreen Instagram Kara Beck @karabear_rny Instagram Books on Alzheimer's by Ryan Williams Sam Seavy's The Blind Life YouTube Channel Andrew Schorr Patient Power YouTube Video of this episode Related podcasts https://health-hats.com/pod180/ https://health-hats.com/but-you-can-total-self-care-at-13/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeu...

Mighty Casey Quinlan, Healthcare Is Hilarious continues to cope with her breast cancer #MetsParty. We co-produce when her audience clammers for news and wit. SEE LINK TO YOUTUBE VERSION BELOW Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 00:29 What's new for Health Hats? 01:09 Casey's health-kidney function 03:26 Casey's health - chemo and radiation 06:00 Casey's spiritual health 09:30 A word from our sponsor, Abridge 10:59 Recognizing success in advocacy 11:40 System change 13:24 Quantitative versus qualitative 17:13 Advice, oh wise woman? 17:59 Reflection 21:28 Podcast Outro 23:09 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Geri Lynn Baumblatt, Jan Oldenburg, Janice Tufte, Regina Holliday Links Healthcare Is Hilarious Related podcasts https://health-hats.com/pod139/ https://health-hats.com/pod127/ https://health-hats.com/pod173/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My dear friend, Mighty Casey Quinlan, of Healthcare Is Hilarious fame, continues to cope with her breast cancer #MetsParty. We co-produce an episode when Casey doesn't feel well, and her audience clammers for news and wit. I recorded conversations that we both could use for our podcasts twice before. Let's jump right into our chat. Podcast intro Welcome to health hats, the podcast I'm Danny van Leeuwen a two-legged cisgender old white man of privilege who knows a little bit about a lot of healthcare and a lot of our very little. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all of this. What's new for Health Hats? Mighty Casey: Hello, dear. How are you? What's new? Health Hats: What's new?

26 patient advocates from the Healthe Voices 2022 conference describe the moment when they realized health was fragile. Snapshots of diverse lived experiences. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 2 Podcast intro 01:46. 2 Estella Mata 02:23. 2 Sharnae ‘Nae” Smith 02:42. 3 Jim Snedden 03:28. 3 Christine Von Raesfeld 03:48. 3 Hetlena Johnson 04:42. 3 Jason Crum 05:22. 4 Jason Jepson 05:57. 4 Brooke Abbott 06:26. 4 Phyllisa DeRoze 07:28. 4 Bethany Yeiser 07:49. 4 Ken Taylor 08:20. 5 Cindy Chmielewski 09:35. 5 Jesus Guillen 10:35. 5 Christopher Quimbar 12:31. 6 Stephanie Chuang 13:06. 6 Michelle Nadine Baker 6 Jenna Green. 6 Kara Beck. 6 Jasmin Pierre. 7 Sue Rericha. 7 Alexis Newman. 7 Ryan Williams 7 Sam Seavey. 7 Andrew Shore. 8 Howard Chang. 8 Reflection. 8 Podcast outro. 8 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaeser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang Links Healthe Voices website Facebook YouTube Video of this episode Related podcasts https://health-hats.com/lead-by-example/ https://health-hats.com/but-you-can-total-self-care-at-13/ https://health-hats.com/gratitude-in-loss-together/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Hi. Each of us can remember a moment, an event, or a time in our life when we realized the fragility of health.

Dr. Kiame Mahaniah, CEO, values his FQHC staff; feels for pts' life challenges; understands what he can control & can't; & weeps for under-realized potential. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 2 Introducing Dr. Kiame Mahaniah 01:40. 2 Health Hats, the Podcast process and status 02:40. 2 Podcast intro 03:57. 2 Health is fragile. Falling through the cracks. 04:34. 2 The health system. Not random. 06:47. 3 Performance improvement - opportunities in the cracks 07:56. 3 CEO: care that meets people where they are 10:33. 4 CEO: setting priorities 13:08. 4 CEO: cheerleader 13:46. 5 CEO data and safety 14:47. 5 Getting stuff out of staff's way 15:29. 5 Progression to CEO 17:31. 6 Integration of behavioral and physical health 19:51. 6 Succeeding 60% of the time 23:16. 7 One-on-one visits - why? 24:40. 7 Impact of snow removal or not 25:30. 7 Sponsor 26:43. 8 Staff retention. Pay, fatigue, epidemic 27:24. 8 Long queues for services 31:00. 9 The stress you can manage 31:53. 9 Staff morale - can't help everyone who needs help 33:05. 9 Investing in training, like cops and soldiers 33:56. 9 Free market? 34:57. 10 Miss being a frontline clinician? 36:29. 10 Staying in touch with the front lines 38:24. 11 Reflection 40:02. 11 Outro 41:10. 11 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Ellen Schultz, Janice John, Jamila Xible, Kerstin Meisinger, Bevin Croft, Russell Bennett,  Lisa Masinter, and Michele Whitt. Links Lynn Community Health Center Health Resources and Services Administration (HSRA) Abbott and Costello's Who's on First Related podcasts https://health-hats.com/pod133/ https://health-hats.com/pod112/ https://health-hats.com/pod155/ https://health-hats.com/pod150/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

Building a powerhouse advocacy org for young adults with chronic conditions, Sneha Dave shares her path & vision: skill building, peer support, events, policy. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Introducing Sneha Dave 00:57 Podcast intro 02:04 Health is fragile 03:01 Transition from pediatric to adult medical care 04:47 Transition in agency, decision making 06:28 Transition from navel-gazing to community focus 08:39 Building community - Generation Patient 10:21 Managing yourself while advocating 12:54 Yikes, it's a business, too 15:31 Scope - Higher education 18:35 Scope - Peer support 19:33 Scope – Events 21:21 Scope – policy 23:43 Policy - FDA User Fee Agreements 25:22 Policy - Direct-to-consumer advertising 26:47 Policy - State-based drug pricing 27:47 Crohn's and colitis young adults' network 28:18 Patients launching research 29:44 The challenge and benefit of keeping your ear to the ground 38:00 Reflection 41:48 Podcast outro 42:47 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Janice Tufte, Robin Newhouse, Aaron Carroll, Sara Lorraine Snyder, Morgan Gleason, Marlajan Wexler, Fatima Muhammed Ighile, Lauren Reimer-Etheridge, Mallory Smith, Jill Woodworth, James Harrison Links Generation Patient, Empowering Young Adults with Chronic Medical Disabilities A New Generation in the Fight for Fair Drug Prices Inflammatory Bowel Diseases Camp Oasis, a camp for kids with Crohn's and colitis Ehlers Danlos Syndromes Postural orthostatic tachycardia syndrome Helmsley Charitable Trust PDUFA prescription direct user fee agreements 2022 PCORI Annual meeting ICER's Midwest CPAC Midwest Comparative Effectiveness Public Advisory Council Aaron Carroll's Incidental Economist Janice Tufte of Hassanah Consulting Related podcasts https://health-hats.com/ya_transition/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.

Chat with Isabelle Barbour, Truth teller Consulting, about partnerships, community advocacy, privilege, disparities, trust, and being your best self. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 2 Introducing Isabelle Barbour 01:11. 2 Intro 02:23. 2 Health Improvement Collaborative of Southeast Connecticut 02:59. 2 Writer's Block & SCORE 04:59. 3 Collaborations 06:32. 3 Partnership grants - Mini-grant Funding 08:14. 4 Partners, grantees, power - Be the change 11:25. 4 Needing help, asking for help, accepting help 14:11. 5 Vulnerability, humility 17:50. 6 Earn respect. Practice being our best selves 22:20. 6 Disparities in research 26:14. 7 Leveraging privilege 27:25. 7 I already drank the Kool-Aid. Now what? 31:23. 8 Partnerships between communities and researchers 33:48. 8 Move at the Speed of Trust 36:59. 9 Maternal health 39:32. 10 Vulnerability and partnerships 40:52. 10 Truth Teller Consulting 42:17. 10 Take a step back to reflect 43:02. 10 Keeping my ear to the ground 44:32. 11 Managing with my brain as it is 46:30. 11 Nourishing the brain 48:50. 12 Try something else 50:04. 12 Reflection 53:12. 13 Outro  13 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Ellen Schultz, Neely Williams, Fatima Muhammed Ighile, Jan Oldenburg, Jodyn Platt, Dr. Lisa Masinter, Dr. Michele Whitt, Kristin Carman Links Truth Teller Consulting Health Improvement Collaborative of Southeastern Connecticut. Robert Wood Johnson Foundation Writer's Block SCORE PCORI solutions to create, catalog, and disseminate public engagement tools   Related podcasts https://health-hats.com/pod133/ https://health-hats.com/minister-to-community-spirit/ https://health-hats.com/trust-willing-to-be-vulnerable-worth-the-investment/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

5 Life Changing QuotesFive Lessons from Roald Dahl – Matthew KellyGet Matthew's 60 Second Wisdom delivered to your inbox: https://www.matthewkelly.com/subscribeVideo Transcript:“My favorite movie as a child was Willy Wonka and the Chocolate factory. Roald dahl was one of the great storytellers of the 20th century. If he were alive today, he would be 105 years old. Here are five quotes and five lessons he taught me:1. From Charlie and the Chocolate Factory: “A little nonsense now and then, is cherished by the wisest men.”Lesson: Life can get very serious at times. Lightheartedness and humor are essential ingredients for thriving and therefore cherished by the wise.2. From Danny the Champion of the World:“I will not pretend I wasn't petrified. I was. But mixed in with the awful fear was a glorious feeling of excitement. Most of the really exciting things we do in our lives scare us to death. They wouldn't be exciting if they didn't.”Lesson: We are often most afraid when we are on the brink of great new achievements and experiences. 3. From The Twitts:“You can have a wonky nose and a crooked mouth and a double chin and stick-out teeth, but if you have good thoughts it will shine out of your face like sunbeams and you will always look lovely.”Lesson: Few things have more impact on our lives than our thoughts. Spend as much time as possible thinking about beauty, goodness, and wisdom. 4. From The Witches:“Real witches dress in ordinary clothes and look very much like ordinary women. They live in ordinary houses and they work in ordinary jobs.”Lesson: There are some people in this world who will intentionally try to hurt you, but they can be hard to spot at first. 5. From The Minpins:“Those who don't believe in magic will never find it.”Lesson: Life is constantly unveiling new opportunities, new ideas, new experiences, and new possibilities. Stay open!Five quotes. Ten sentences. A lifetime of lessons. He was an amazing storyteller.”If you have not read LIFE IS MESSY, order your copy today: https://amzn.to/2TTgZKn Subscribe to Matthew's YouTube Channel today! https://www.youtube.com/c/MatthewKellyAuthor/featured?sub_confirmation=1https://www.matthewkelly.comGet Matthew's 60 Second Wisdom delivered to your inbox: https://www.matthewkelly.com/subscribe The Best Version of Yourself and 60 Second Wisdom are registered trademarks.#MatthewKelly #BestVersionOfYourself #BestVersion

Music in my life. Adjusting to changing abilities with my bari sax. An experiment in multimedia sharing. Listen, watch, read. Best to watch the YouTube video. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player This episode is best watched on YouTube Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Danny on Bari sax music playing in the background, sitting, using a strap to hold the horn Proem Playing and not playing with Multiple Sclerosis 03:53 Eureka, a Sax Stand 06:06 Reading sheet music with double vision 10:10 Need help, ask for help, get help 14:12 Looking ahead 15:13 Lechuga Fresca 16:24 Prequel 18:11 Cold Sweat 21:20 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Jeff Harrington, Joey van Leeuwen, Kayla Nelson, Kristina Johnson, Larry Mazza, Peter Cicco, Dan Fox, Glen Alto, Josh Rosenstock, Betsy Neptune, Andrea Condit, Cornell Coley, Stephen Debenectis, Jon Fraser, Bruce Hoppe, Gabrielle Pitman, Eric Solomon, Ryan Vasios, Karen Welling, Harry Wolfson, Cynthia Meyer, Cherie Binns, Carol Band, David Bourne.  OMG, what a list! Links Enabled Disabled Project Lechuga Fresca - Cool as a Cucumber Morningside Studios Second Wind Movement Al Gallodoro Related podcasts https://health-hats.com/listen-to-the-music/ https://health-hats.com/pod134/ https://health-hats.com/pod146/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Danny on Bari sax music playing in the background, sitting, using a strap to hold the horn Proem I recently joined the Enabled Disabled Community, hosted by Gustavo Serafini. They asked me to tell them more about my sax playing as a person with disabilities. Aha, a podcast episode! What a challenge – audio, video, and print media all in one for people who follow me and those who don't know me. Here goes. For those who don't know me, I'm a bald, hat-wearing, two-legged, cisgender,

Research matters to people where they live, work, play, worship, and learn. What questions do they ask? Will Parente, a bridge between firefighters and research Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Will Parente 02:17. 1 Research topic #1: Carcinogens in fire retardants 04:22. 2 #2 The cost of healthcare for first responders 07:02. 3 Burn pit PACT bill for veterans 08:58. 3 First responder and researcher hats 10:09. 3 Research to inform policy 11:28. 4 Community firefighter, wildland firefighter 13:36. 4 Funding for firefighting research 16:10. 5 The bridge again, between research and first responders 17:57. 5 Reach out to legislators and decision-makers 20:20. 6 Reflection 22:17  7 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Garth Roberts, Laura Marcial, Ellen Schultz, Russell Bennett, Matthew Hudson, Kirsten Meisinger Links RTI International HEART-HEALTHY FIREFIGHTER PROGRAM PFAS or PFOA National Fallen Firefighters Foundation US Fire Academy NFPA Research Foundation. National Fire Protection Association National Institute Standards and Technology North Carolina Department of Insurance HERO Fund America FEMA Emergency Management Institute:  https://training.fema.gov/ DHS Disaster Response and Recovery:  https://www.dhs.gov/disaster-response-and-recovery FirstNet:  https://www.firstnet.com/ wildland-urban interface Related podcasts https://health-hats.com/pod137/ https://health-hats.com/pod133/ https://health-hats.com/zen_relationshipcentered_measure/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem My son, eight or nine years old, called me at work.  “Dad, everybody's OK, but you need to come home. There's been a fire.

BUILD provides opportunities for young adults to find their footing and self-confidence through entrepreneurship. We need them. Betsy Neptune tells us more. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Betsy Neptune 01:05. 1 BUILD, Becoming CEO of your life 04:51. 2 Pitching products, services, yourself – Life skills 06:38. 3 How do I know this could help me? 08:10. 3 Mentorship 08:52. 4 Community integration 11:05. 4 Building resilience, managing manageable stress 11:51. 4 Cushion to fail 13:43. 5 $50 seed 15:20. 5 Raw talent, practice, put in the time 15:57. 5 Universal skills – just do it, follow through 18:07. 6 The health connection 20:47. 7 Reflection 23:04. 7 Pablo Pueblo with Lechuga Fresca Latin Band 32:22. 8 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Jimmy Clare, Sara Lorraine Snyder, Jan Oldenburg, Lauren Reimer-Etheridge, Morgan Gleason Links BUILD.org national BUILD Boston Lechuga Fresca - Cool as a Cucumber Related podcasts https://health-hats.com/ya_transition/ https://health-hats.com/pod153/ https://health-hats.com/pod117/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I feel joy when my many worlds overlap, collide, and mush together. Upon reflection, of course, how could they not? Health touches everything, especially in its absence. Music feeds and soothes the soul (unless it grates). Health starts before birth and continues through actualization.  When I met Betsy Neptune as a conga player and vocalist in the Latin band Lechuga Fresca, I didn't know she was Executive Director of Boston BUILD, an entrepreneurship program for underserved high school students that teaches them how to build their own business while becoming the CEO of their own lives. Youth,

10 years of blogging and podcasting. Planting, fertilizing, growing, harvesting. Questions asked and answered about process, motivation, and future direction. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Roots, stems, and branches 01:49. 1 Fertilizer 04:02. 1 Harvest 05:14. 2 Where, from here? Creative experimentation. 07:30. 2 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Lechuga Fresca Looney Tunes: That's All Folks Photo by Jeremy Bishop on Unsplash Inspired by and grateful to Jane Sarasohn Kahn, Eric Pinaud, Jody Buckingham, Steve Heatherington and all my podcasting peeps Links Health Hats YouTube trailers Salmagundi Hat Shop in Boston Healthcare is Hilarious hosted by Health Hats Recommended podcasts Alpaca Tribe This is the place for people who connect with alpacas, so I guess that means you. The Alpaca Tribe podcast shares conversations with people on their own alpaca journey, providing wisdom, insight and great stories about alpacas. Healthcare Triage In partnership with the National Institutes of Health, we've launched a new series on the culture of science and reproducibility. Healthcare is Hilarious Snark about healthcare – who can't use some of THAT? Hansel and Gretel Code Sussing out the meaning in fairy tales Miss Panda Miss Panda Chinese makes learning Mandarin simple and playful for non-native and heritage learners from the very beginning! Talaterra  speak earth to your neighbors. create a global impact. A History of Rock Music in 500 Songs The title says it all Enabled Disabled Created for people with disabilities, as well as their families, friends, clinicians and therapists. Related podcasts https://health-hats.com/best-health-different-lens-different-point-of-view-2/ https://health-hats.com/best-spiritual-health-dying/ https://health-hats.com/pod171/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

Cost & quality. Compare & risk adjust. Measurement that serves people is complex, fraught, in its infancy. Chat with Dr. Bob Phillips to make some sense of it. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Bob Phillips 01:42. 1 Tension between accessibility and continuity 05:17. 2 Comparing and burnout 07:15. 3 Measuring what's important? 08:30. 3 Care Compare.gov. Primary care referral. 10:10. 4 Comparing quality in its infancy 11:54. 4 Trust, always trust 13:44. 5 Cost, always cost 15:26. 5 Risk adjustment for payment 18:02. 6 Risk adjustment for quality 22:39. 7 Census tracts 23:45. 7 Risk adjustment controversy - one hand gives, and the other takes away 25:36. 8 Measures across time 26:47. 8 Reflection 29:56  9 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Bill Lawrence, Matthew Hudson, Matthew Pickering, Robyn Tiger, Cheryl Damburg, Adam Thompson, Jennifer Bright Links Center for Professionalism & Value in Health Care at the American Board of Family Medicine Foundation  COGME (the Council on Graduate Medical Education) Population Health on the National Committee on Vital and Health Statistics Relationship Between Physician Burnout And The Quality And Cost Of Care For Medicare Beneficiaries Is Complex Care Compare Yelp for physicians Person-centered Primary Care Measure hospital price transparency Risk adjustment: what is it and how does it impact Healthcare for 2022. Census tracts The Joint Commission certifies hospitals and health care facilities, National Commission for Quality Assurance (NCQA) certifies health plans The Joint Commission certifies healthcare providers Related podcasts https://health-hats.com/pod145/ https://health-hats.com/pod163/ https://health-hats.com/pod160/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

2-legged, cisgender, white man of privilege turning 70 enjoying life with friends of 50+ years. Still kicking-sort of-still enjoying life. Intentional families. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Old friends, old me 00:37. 1 Podcasting to learn, connect, philosophize 02:40. 2 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to YOU Links Related podcasts https://health-hats.com/retirement-micro-stepping-with-mini-goals/ https://health-hats.com/nowhere-in-an-hour/ https://health-hats.com/gratitude-podcasting-best-health/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Old friends, old me I took a week off to vacation in wild, wonderful West Virginia. We rented a camper van, drove to our old stomping grounds in Lewis and Braxton Counties and partied with friends we've known for 50 years. My wife and I go back 50 years. Aging fascinates me. My grandson sort of thinks I'm old. I told him that the 11-year-old me looks out of these 70-year-old-eyes sometimes. He said he could understand that - sort of —what a guy. A few weeks ago, at a block party gig with Lechuga Fresca, my Latin Band, I watched three 10-11-year-old girls skipping down the street. I thought, but didn't say out loud, you might be 70 one day. The perseverance to know people for 50 years also intrigues me. Several smaller groups of this tribe grew up together in widely dispersed locations, Detroit, Buffalo, and Woodridge, NY. The groups connected happenstance – meeting while hitchhiking, at college, at concerts. We cross-pollinated and married across groups. We've been present for each other through births, deaths, marriages, breakups, diagnoses, and kids. As expected, we now talk about retirement, accessible travel, aches, pains, bodily functions, and our grandchildren, not so much politics.

Introducing 3 generations of Danny van Leeuwen's. Inclusive, blood, intentional family lore. Spiritual health can come from family. From the Holocaust to today. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)   Proem.. 2 Catching up 02:29. 2 We're all three well partnered 03:22. 2 Forgetfulness runs in the family 04:27. 3 The meaning of our name 05:07. 3 Music in our lives 07:08. 4 Uncle Danny's feeling it 09:22. 4 The team: care coordination and family 10:21. 5 Sleep 13:04. 5 The life of Danny III 14:06. 6 Joey van Leeuwen 15:16. 6 Visiting Morocco 18:06. 7 Danny III's health 20:32. 8 Travel and language 22:47. 8 More about Morocco 23:34. 9 Uncle Danny, tell us a story 24:30. 9 Opa returning from the concentration camp 26:00. 10 Israel and the Kibbutz 27:28. 10 Screwed up paperwork 29:26. 11 First meeting my Uncle Danny 30:48. 11 My dad, Ruben van Leeuwen 31:47. 12 Uncle Danny's first wedding 32:34. 12 Danny III's calming voice 33:24. 12 Uncle Danny's 90th Party 34:40. 13 Concentration camp, faith, draft counseling 35:13. 13 We're van Leeuwen's 39:40. 14 Uncle Danny in Jerusalem 42:19. 15 Reflection 45:03. 15 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Henri B, Evaline, Nathan, Kato, Leon, Ruben, Daniel, Lea van Leeuwen   Links Crescendo Baby Music on a Facebook page Danny III on SoundCloud, Fireship first recorded by (the Weavers) Peter Paul and Moses playing Ring Around the Roses. September Song. City of Chefchaouen Rabat kibbutz Unilever Kathy's Consulting Related podcasts About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I talked about the magic levers of best health in my first blog posts in 2012 – ten years and 535 posts and episodes ago—pretty mundane ...

Patients, care partners & clinicians can reduce record errors with collaborative notes. Dr. Peter Elias shares his note-writing with collaborative partners. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Peter Elias 01:41. 2 Medical documentation over the years 02:42. 2 Records go from paper to electronic 05:55. 3 Copies of doctors' notes to patients, sometimes 7:16. 3 Always 10:28. 4 Patients feel reassured 11:21. 4 Care planning and collaborative notes 12:20. 4 Challenging conversations 12:46. 4 Families, records, getting it right 14:00. 5 Using a scribe to assist with documentation 15:16. 5 Misdiagnosis and long-standing error 16:24. 5 Preserving data, accurate data, workarounds 18:02. 6 Insurance companies 20:24. 6 Open Notes, relationships with clinicians 21:27. 6 Not at your best at the doctor's office 22:13. 6 Getting the most out of it 24:10. 7 Coaching other docs 25:04. 7 Emerging issues 26:40. 8 For other clinicians 27:36. 8 Reflection 29:12. 9 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Liz Salmi, Tom Delbanco, Danny Sands, Janice Tufte, Alexis Snyder, Jan Oldenburg, Virginia Lorenzi Links Society for Participatory Medicine How accurate is the medical record? A comparison of the physician's note with a concealed audio recording in unannounced standardized patient encounters in the Journal of Informatics in Health and Biomedicine How to Correct Errors in Your Medical Records Correcting Errors In the Electronic Medical Record Impact of Electronic Health Record Systems on Information Integrity: Quality and Safety Implications Beat cancer? Your Medicare Advantage plan might still be billing for it. Related podcasts https://health-hats.com/pod168/ https://health-hats.com/opennotes-a-gold-mine-of-community-organizing/ https://health-hats.com/misdiagnosis-how-can-patients-help-doctors/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website).

An epidemic of burnout among health workers. Learn about the American College of Lifestyle Medicine's solutions 6 pillars and 3 teaching axioms from Dr. Robyn Tiger. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Dr. Robyn Tiger 01:05. 1 A complex case physical, mental, spiritual 02:56. 2 The practice of Lifestyle Medicine 06:09. 2 Eureka 09:00. 3 Manage manageable stress 09:50. 3 Forming good habits 12:19. 4 Should, why, how 14:33. 4 Burnout among family caregivers 16:40. 5 Accessing Lifestyle Medicine 18:52. 5 Getting to how 22:21. 6 Burnout – personal and system issues 23:46. 6 Global celebration 24:18. 7 Reflection 26:28  7 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Geri Lynn Baumblatt, Mary Anne Sterling, Lisa van Leeuwen, Mark Heyward Johnson, Smitty Heavner, Chris Friese, Jane Sarasohn-Kahn Links American College of Lifestyle Medicine stressfreemd.net to reach Dr. Robyn Tiger Lifestyle Medicine Week annual lifestyle medicine conference in Orlando NAM Clinician Well-Being Collaborative National Plan for health workforce well-being,  Health Populi As Americans Start to Return-to-Work in the Summer of COVID, Mental Health is a Top Concern Among Employers The ramifications of health care worker burnout Related podcasts https://health-hats.com/help-the-helpers-care-for-healthcare-workers-now/ https://health-hats.com/help_the_helpers_in_crisis/ https://health-hats.com/difference_collaborative/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem On the second day of my first management gig as nurse manager of an ICU, I noticed that staff nurses seldom took breaks (bathroom or meal). Surprised that this would be the reason for my first impromptu staff meeting,

Managing rural and urban travel with my set of abilities. Roots, dips, inclines, Roman roads, elevators. falls. We did 170 miles (I did 70). A hoot and a half. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Watch the video here Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)   Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Linda and Mike DeRosa, Kate Higgins, Mary Lawler, Ann Boland, Ed Lomotan, Kara Ayers, Carole Blueweiss, David Bourne, Simon van Leeuwen, Portugal Green Walks, Progressivecare, LDA Links Portugal Green Walks The Camino de Santiago for People with Disabilities Walk the Camino. Customers with Disabilities Accessible Camino   Related podcasts https://health-hats.com/pod165/ https://health-hats.com/pod164/ https://health-hats.com/pod162/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show I'm back. What an adventure along the coast of Portugal and Spain to Santiago de Compostela.  I have hours of material that I will produce over the next few months. Today, a very brief episode about accessibility. Remember, I have Multiple Sclerosis, which affects my stamina, balance, and vision.  I can stand, I can walk. Unless I'm in a small room, I need forearm crutches for walking or an electric wheelchair. I can fold my wheelchair, roll it, and assist in getting it in and out of the car. I am not wheelchair dependent. I walk a minimum of 3500 steps a day, every day. Not all at once, but in segments.  I fatigue, but I can recover relatively quickly. I manage my double vision, most of the time. I can hear with hearing aids, sometimes too much. I can breathe, talk, eat, and toilet unassisted. My disabilities and pain levels are mostly moderately annoying. I describe a personal adventure with my extended family and those I've met along the way. Clearly, your adventure would be different.

Lost my wheelchair charge on Day 1. OMG. Busted. Until angels stepped in. Grateful, grateful, grateful Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Watch the video here Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript)   Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Linda and Mike DeRosa, Kate Higgins, Mary Lawler, Ann Boland, Ed Lomotan, Carole Blueweiss, David Bourne Links The video version of this episode Related podcasts https://health-hats.com/pod156/ https://health-hats.com/pod154/ https://health-hats.com/days-6-12-camino-de-santiago-rejuvenated-inspired-not-yet-peaked/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Okay, let me see if I could tell you a story while I'm going. So it's the story of angels. And I started the first day on our trip. I realized that for whatever reason, I didn't have my charger and I had a Plan A, Plan B and a Plan C. With a Plan A was that we find somebody in Porto that could sell a charger that was appropriate. Plan B was somebody who would rent me a chair that had a charger. And I just take the charger and Plan C I guess I had a plan D. Plan C was to take just to rent a chair, another chair, and then the plan was to have my son Simon get one from. The plan D was, he did get the charger from the company in Austin. When I got my truck, well plan, they didn't work. Nobody had plan B didn't work because. Like there's nothing to rent because I would've had to bring the chair back to the Porto from Santiago de Compostella. Plan D was that the company ForceMech couldn't ship it directly because they weren't allowed. So I, we ended up calling like all these different companies. I didn't, I actually, I called nobody, my wife, Linda few people call companies the hotel that we were staying at. Nothing. So I started arranging with my son to have the chargers sent to him in Boston,...

Heading to Portugal. Ready. Listen to last episode from '19 Spanish Camino. Sounds of tapping of my canes, white storks, cathedral bells chiming. Stay tuned. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on transcript) Proem.. 1 Advantages of progressive illness 03:20. 1 Heading out shortly 04:45. 2 Week 2 06:01. 2 Inspired 07:14. 2 Quieting my mind 09:31. 3 Tap, tap, tap of my two canes 11:58. 3 Mobility package 15:45. 3 White storks in Portomarin 16:14. 4 Santiago de Compostela Cathedral 16:39. 4 Heading home to Boston 17:35. 4 Reflection 17:56. 4 Links Rien MacDonald's Hope Initiative podcast Maria Xenidou's Impact Learning podcast Regina Holliday's Cinderblocks conference Marly Camino Guided Tours Related podcasts Camino de Santiago Episodes Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to David Bourne, Carole Blueweiss, Rien MacDonald, Maria Xenidou, Regina Holliday, Mary Lawler, Ann Boland, Mike and Linda DeRosa, Kate Higgins, Cynthia Meyer About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to the blog https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem I'm getting ready to go on a pilgrimage to Portugal and Spain. It's the Camino de Santiago. And for those of you who've been following me, know I've been podcasting about it. I've been podcasting about my previous trip in 2019 when we went to Spain and my training. I've gotten a lot of comments on these episodes, and mostly they're attaboy comments, but some asked me if I'm afraid. Aren't I scared? I think that's a good question. At first, I just wanted to dismiss it. What could happen? I'm going with friends, lots of other people are on this pilgrimage. It was safety uneventful in 2019 when we went. But to be honest with you, yes, I have some fear. I have a “what if” kind of thing. What if this, what if that, what if I have an exacerbation of my MS? What if I fall?

Engaging patients differs depending on the role. Those on national Boards lead, strategize, advocate, communicate. Adam Thompson is on the Board of NQF. Listen in. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Adam Thompson 02:38. 1 Patient-caregiver advocates on national Boards of Directors 04:21. 2 Activist, Advocate, Conduit, Leader 06:15. 3 The Ryan White HIV/AIDS Program 09:42. 4 Pulling the curtain back. Feeling our oats. 13:52. 4 The right place to make a difference and re-charge 18:26. 5 Learn, coach, mentor 20:43. 6 Listen, reveal, shout 25:50. 7 Levers of power. Drunk the Kool-Aid. Now what? 30:56. 8 Transparency. The sausage gets made. 34:17. 9 More on conduits 39:39. 10 Engage, dissemination, act 41:02. 10 Is seeking public comment enough? 42:54. 11 Reflection 45:00  11 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Nikki Montgomery, Matthew Pickering, Jan Oldenburg, Danny Sands, Matt Hudson,  Dana Gelb Safron, Nakela Cook, Christine Goertz, Kristin Carman, Luc Pelletier, Jan Oldenburg, Sharon Levine, Kara Ayers Links Adam Thompson, LinkedIn National Quality Forum (NQF) PCORI (Patient-Centered Outcomes Research Institute) Dr. David Nash Ryan White program Dolores Dockrey Dr. W Edwards Deming called it profound knowledge. Related podcasts https://health-hats.com/pod110/ https://health-hats.com/pod145/ https://health-hats.com/pod153/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As a nurse, I studied individual health. Then I became a student of organizational health. That led me to management and leadership - all with the mind to get stuff done. Done for people, with people, by people -patients, caregivers, and direct care clinicians. My role changed at each step.

Not about walking miles & managing shoes. My training includes mobility and audiovisual prep. Bear with my experiment. Podcast, YouTube, & article. A bit rough. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Watch the video here Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Training Day 1: Cold 01:21. 1 Walking, pushing my chair 05:46. 2 Day 1 Training Debrief 06:37. 2 Crossing a busy street. 07:35. 2 Reflection 08:31. 2 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Danny van Leeuwen (Health Hats) Sponsored by Abridge Inspired by and grateful to Linda and Mike DeRosa, Kate Higgins, Mary Lawler, Ann Boland, Ed Lomotan, Carole Blueweiss, David Bourne Links The video version of this episode Related podcasts https://health-hats.com/pod156/ https://health-hats.com/pod154/ https://health-hats.com/days-6-12-camino-de-santiago-rejuvenated-inspired-not-yet-peaked/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem In the background, you hear my wheelchair as I train for our 200-kilometer Portugal's north coast to western Spain hike coming up soon. I feel 10-years-old and 70.  Ten, because I'm jumping up and down in my head and want to sleep in the car till we go. Seventy because I am a two-legged, cisgender old white man of privilege who gets around with his Forcemech electric wheelchair and Ergobaum forearm crutches. My training is not about walking miles and managing my shoes but includes mobility and audiovisual prep. So, bear with me as I experiment with both. You'll be hearing about my mobility training during the podcast and video and watching the results of my audio-video experimentation. It's all a bit rough. And fun, fun, fun. I'll take you through a couple of training days in varied weather and on different paths. I'll post show notes with a transcript for you readers and a link to my YouTube channel for you watchers. Training Day 1: Cold Hey, there.

Decision aids with Dr. Daniel Matlock. Complexity of decisions, agency of decision-makers, timing, the black box, answering questions as they arise. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The fragility of life strengthens 01:50. 1 Early health decisions for the family 04:22. 2 Endless questions about decision aids. Who, why, what, how? 06:18. 3 Stakeholder participation developing decision aids 10:17. 4 Biased to what? 11:08. 4 As the stakes go up, enter the caregiver & family as stakeholder 11:35. 4 Changing level of agency. So many decisions, like putting in a kitchen 13:12. 5 Who are decision aids for? 15:07. 5 Shared decisions 16:21. 5 One-time decisions, ongoing communication 18:50. 6 Tracking decisions and their impact 19:51. 6 We decided what? How'd it gone? A black box 25:35. 7 Design decisions – in the clinic or outside 27:32. 8 Where do I go to get questions answered when I have them? 27:32. 8 Reflection 31:49  9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Joey van Leeuwen Quartet playing Mou's Blues Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Geri Baumblatt, Jodyn Platt, Josh Richardson, Janice McCallum, Lacy Fabian, Michelle Lenox, Michael Mittleman Links All of our team's decision aids are freely available at www.patientdecisionaid.org. Dan Matlock's email Sharing Decisions About Systemic Therapy for Advanced Cancers Related podcasts Health Hats Series: Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care Health Hats Series: Choices About Your Health with Your Team About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Welcome to another installment in my series on medical decision-making. I doubt this series will ever end. How can it? Our experiments of one or societal experiments of medica...

Why measure health outcomes? What information comes from outcome data? What action does the information motivate? How do disparities figure in? Why risk adjust? Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Knowing enough to be dangerous 02:21. 1 Why measure health outcomes?  04:28. 2 Information from measurement 05:20. 2 Action from information (plus money) 06:07. 2 How do disparities fit in? Look past your nose. 08:12. 2 Risk adjustment 10:29. 3 Reflection 11:44  3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Joey van Leeuwen Quartet playing Black Narcissus by Joe Henderson Web and Social Media Coach Kayla Nelson @lifeoflesion Photo by Elise Wilcox on Unsplash The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Matthew Pickering, Cary Sanders, Rebekah Angove, Lina Walker, Adam Thompson, Ben Zola, Amanda Brush, Ellen Schultz, Laura Marcial, Juhan Sonin, Jennifer Bright, William Lawrence Links Risk Adjustment - Factors Affecting Adjustment CMS Physician Cost Measurement and Patient Relationship Codes Technical Expert Panel National Academy of Medicine DIgital Health Learning Collaborative, National Quality Forum's Cost and Efficiency Standing Committee  GoInvo Determinants of Health Related podcasts https://health-hats.com/pod145/ https://health-hats.com/pod140/ https://health-hats.com/pod133/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Can grasping risk adjustment contribute to a profound understanding of health inequities and motivate action to improve? Whaaattt are you talking about, you ask? As I write this episode, I'm preparing to join an NQF (National Quality Forum) Risk Adjustment Special Populations focus group. Understanding health disparities through measurement and experience and then acting on that information to improve equity ranks high on my list of advocacy priorities. I'm holding my nose,

Rare diseases as a health equity group. Rare doesn't mean never. Commonalities & differences.Learning from tiny populations. Chat with Doug Lindsay. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The fragility of health for Doug Lindsay 01:57. 1 Personal medical consultant finding answers 04:10. 2 Rare disease as an equity challenge 05:31. 2 Commonalities of people with rare diseases 09:46. 3 Helicopters, zebras, interns' disease in physician training 11:13. 4 Undiagnosed disease programs 14:24. 4 Categories of differences across rare diseases 15:28. 5 Comparative effectiveness methodologies 17:31. 5 Using existing models in new fields. Learning from tiny populations 20:59. 6 Leave us with something 23:59. 7 Rare doesn't mean never. Questions mean an opening 25:21. 7 Rare disease as a health equity group 27:04. 7 More than 25-30 million people have a rare disease 28:11. 8 Rare Disease Day 28:48. 8 NORD National Organization for Rare Diseases 30:45. 8 Reflection 33:07. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Lynne Becker, Morgan Gleason, Marnie Cartelli, Jill Johnson-Young, Adriana Mallozzi, Wesley Michael, Lauren Reimer-Etheridge, Sara Lorraine Snyder, Alexis Snyder, Jill Woodworth, CJ Rhodes, Rebecca Archer, Shiri Ben Arzi, Lisa Deck Links Doug Lindsay LinkedIn Opinion piece Rare Disease Day PCORI (Patient-Centered Outcomes Research Institute)'s Rare Disease Advisory Panel. Castleman's disease, David Fajgenbaum, the physician at UPenn who found his own cure and wrote the book Chasing My Cure NORD National Organization of Rare Diseases Esquilax Related podcasts https://health-hats.com/rare_disease_research/ https://health-hats.com/lead-by-example/ https://health-hats.com/a-zebra-not-a-horse-rare-patient-voice/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com.

Data is not info is not action. Data, cooked into Info could lead to action. People add context, values, culture, experiences, history, biases to data and info. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Bryn Rhodes and Laura Marcial 04:02. 2 Realizing the fragility of health 06:41. 2 We made which decision? How did it turn out? 09:52. 3 End point? Decision, action, continual learning? 13:26. 4 What data to collect? When to collect it? 14:32. 4 Who does this work for in real life? 15:48. 4 Context matters for blood pressure 18:14. 5 Ongoing learning post research 22:32. 6 Spanning the gulf between specialized expertise 23:52. 6 Data needs infrastructure to become information 26:15. 6 Summarizing for the Public 30:17. 7 Hubris. Satisfied with stopping at results. 33:45. 8 Reflection 39:21. 9 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Lauren McCormack, Bill Lawrence, Lygeia Ricciardi, Cynthia Cullen, Juhan Sonin, Cheryl Damberg, Jack Needleman, Matthew Pickering, Aaron Carroll, Greg Merritt, Wesley Michael Links Health eDecisions Clinical Quality Framework Initiatives (CQF) FHIR® (Fast Healthcare Interoperability Resources). Healthcare Triage Podcast Triage Science Culture and Reproducibility Series An excellent series about the challenges of research industrial complex values and priorities. So much to learn here even for me, eyeball deep in research funding. Related podcasts Health Hats episodes about Clinical Decision Support https://health-hats.com/clinical-decision-support-technology-still-human/ https://health-hats.com/humanity-before-technology-clinical-decision-support/ https://health-hats.com/a-zebra-not-a-horse-rare-patient-voice/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem

Healthcare decisions affect you and others. Complicated for everyone. Knowledge waiting to be implemented. Join this chat with Dr. Talya Miron-Shatz. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Dr. Talya Miron-Shatz 00:50. 1 Genetic counseling and medical decision-making 04:27. 2 Personal goals, exploration, universal truths, and decision-making 06:52. 2 Consequences, risks, benefits, and alternatives 11:22. 3 Decisions with family caregivers 16:21. 4 Cost of decisions 20:37. 5 COVID, vacation, depression 28:48. 7 Tracking decisions and outcomes over time 29:52. 7 Action, implementation, rather than a new study 35:54. 9 Top three takeaways 39:03. 9 Reflection 41:22  10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion Sponsored by Abridge Inspired by and grateful to Adrian Gropper, Janice McCallum, Michelle Lenox, Amy Price, Ginny Meadows, Lauren McCormack, Glyn Elwyn, Gregory Makoul, Z Colette Edwards Links Linkedin:  https://www.linkedin.com/in/talya-miron-shatz/ Twitter: @TalyaMironShatz Website Buy Your Life Depends On It Deliberation before determination: the definition and evaluation of good decision making https://pubmed.ncbi.nlm.nih.gov/22618581/. Shared Decision Making: A Model for Clinical Practice Nobel Prize Winner Richard Thaler Z Colette Edwards Related podcasts Health Hats episodes about Clinical Decision Support About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem The COVID pandemic highlights the impact of our choices about health and habits on ourselves and each other as well as the impact of others' choices on us. Think crowding, masking, vaccinations, collaborative problem-solving. Our lives depend on the choices we and others make. Sometimes our choices have little impact; rather, policy, employers, community culture, work and home settings,

I found myself on a pilgrimage of sounds. Disabled. Left out. Mobile. Podcasting in Spain from my wheelchair in 2019. Portugal Camino next. Anything different? Buen Camino Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on transcript) Proem.. 1 Eureka! It's a Pilgrimage 02:21. 1 Sound sampler 03:08. 2 Missed sounds. Still a story. 04:33. 2 Travelogue 06:26. 2 Day 1 to 2 Madrid to Villafranca del Bierzo 06:44. 2 Day 2 to 4 Villafranca del Bierzo to Trabadelo to Herreras 08:41. 3 Handicapped. Mobility or language? 11:06. 3 Day 5-6 Herrerias and O'Cebreiro 12:55. 4 Left out 14:28. 4 Pilgrimage – handicaps, feeling left out 16:33. 4 Rooster crows 07:15. 5 Reflection 17:25  5 Links Camino de Santiago Camino de Santiago Forum Marly Camino Guided Tours Notes Grateful to and inspired by Linda DeRosa, Mary Lawler, Ann Boland, Mike DeRosa, Kate Higgins, Cynthia Meyer, Ed Lomotan Credits Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Photo by Linda DeRosa About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  We will listen and learn about what it takes to adjust to life's realities in healthcare's Tower of Babel.  Let's make some sense of all this. To subscribe go to the blog https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem As I gear up for another international adventure, I feel my aging, disabled, optimistic, fearful white man of privilege self. Our insanely successful 2019 trip to the Spanish Camino opened my eyes even more to the possibilities of travel with disabilities. Our success as a travel team rested on our flexibility, compassion, and gratitude plus planning. Working with the Carly Camino Travel Agency we booked just barely accessible accommodations, drivers with translation apps so we could communicate, and GPS WhatsApp so drivers could find me when I got lost (twice).  ‘We see you, stay where you are, we'll find you.' My cronies and I have all struggled through ailments, surgeries, infections, and pain over the past three years, so realism tempers our optimism. This time we're pooling resources for a support van available whenever we're not in lodging. A theme of this reprised episode was feeling left out. Gratefully, feeling left out hasn't lasted or resurfaced. Eureka! It's a Pilgrimage I find myself on a pilgrimage. I thought I was tagging along with my wife's hiking group through rural, Northern Spain as a disabled person. But one of our companions, Mary, has been talking about the pilgrimage that the Camino de Santiago has been for centuries and is for her. I didn't take that in at first.  Since I can't hike,

The odyssey of sustained community engagement at Cambridge Health Alliance with Janice John and Jamila Xible. Cross-pollination of expertise and employment. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Jamila Xible and Janice John 01:28. 2 Communities served by CHA 04:57. 2 Most healthcare occurs upstream from hospitals and clinics 06:47. 3 Serving communities of immigrants 08:05. 3 Investing in community health workers 10:16. 4 Behavioral health community workers 13:09. 5 Hiring from within communities 15:31. 5 Overload of information accessing care 17:18. 6 Volunteer Health Advisors 21:03. 6 Nuances of culture 23:01. 7 Closing the gap for equitable care – a bit 25:04. 8 Outreach versus engagement 27:55. 8 Cultural humility 29:14. 8 Physician Assistant, Physician Associate 30:23. 9 Barometer for inclusion and engagement 32:59. 9 The complexities of community engagement 35:32. 10 Reflection 38:02  10 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion Inspiration from Ellen Schultz, Kirsten Meisinger, Michele Whitt, Lisa Masinter, James Harrison, Russell Bennett, Ben Hamlin, Regina Greer-Smith, Tania Dutta, Uma Kotagal, Neely Williams Sponsored by Abridge Links Cambridge Health Alliance CHA Facebook Page CHA Healthy Now Blog Link to cultural humility video https://www.youtube.com/watch?v=_Mbu8bvKb_U https://lownhospitalsindex.org/hospital/cambridge-health-alliance/ https://www.challiance.org/community-health/volunteer-health-advisor-program https://www.bhchp.org/. Boston Healthcare for the Homeless Related podcasts and blogs Community engagement episodes on Health Hats, the Podcast https://health-hats.com/pod150/ https://health-hats.com/minister-to-community-spirit/ https://health-hats.com/pod133/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Welcome to the eleventh episode in Health Hats' community engagement series. I'm fascinated with communities that gather to solve a problem, their problem.

Revisit 2019 travel to Spain with disabilities. A guest in other people's lives. Differentiating between sound and noise. Heightening senses, expanding voice. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Taking stock 02:41. 1 A guest in other people's lives 03:20. 1 Glad I'm not him 03:59. 2 Mobility enhancers rule! 05:25. 2 Gazing past our navels 08:04. 3 Differentiating sound and noise 10:02. 3 Reflection 11:17. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Ann Boland, Linda and Mike DeRosa, Mary Lawler, Kate Higgins Sponsored by Abridge Links https://en.wikipedia.org/wiki/Camino_de_Santiago Maria Xenidou LinkedIn Impact Learning podcast Ame Sanders LinkedIn State of Inclusion website State of Inclusion Podcast The Podcasting Fellowship Related podcasts and blogs https://health-hats.com/camino-de-santiago-pilgrimage-of-sounds/ https://health-hats.com/days-6-12-camino-de-santiago-rejuvenated-inspired-not-yet-peaked/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem In May 2019 my wife, a couple of friends, and I went to Spain to hike the Camino de Santiago pilgrimage. Full disclosure, they hiked I road in taxis, in my electric wheelchair, and with canes. Now the same crew and two others are planning a trip in April 2022 to hike the Portugal Camino, God willing, and the creek don't rise. I thought I'd reprise the three episodes associated with the Spain adventure over the next couple of months to get myself back in the groove. Although the six of us have known each other for more than 55 years, have traveled together in various assortments and conditions including hitchhiking, foreign and domestic, we are all close to or over 70 with various aches, pains, and disabilities. Two years after the Spain Camino I am less mobile and less cocky, but all still rarin' to go. Plus, if not now, when? This episode, #19, was first aired May 3rd, 2019, six months into my now three-year podcasting journey. No sponsor yet. Less music. Again, still risk-taking and curious. Let's drop in on this flash from the past. Taking stock Hey there, glad you could join me. I'd like to pause and take stock of the past six months and look a bit to the future.

Coaching, critical to my success in life, art, politics, advocacy. Still need to do my own work & make choices. Listen to a session with one of my coaches, Jan Oldenburg. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 The start of a business relationship 03:19. 2 Managing the swirl of me 05:50. 2 Coaching as a parent of a teen 07:21. 3 Advice, reflection, self-reflection, shades of grey 09:56. 3 First, build trust 11:02. 3 New position, new relationships, new levers 12:51. 4 Measurable outcomes of a strategic plan 16:24. 4 Changing roles at PCORI 17:02. 5 Vanilla management training. No nuts 20:08. 5 Clarifying personal mission, priorities, goals 24:26. 6 Staying in touch with, leveraging, advancing my constituency 26:27. 6 Capable of a delicate balance? 29:22. 7 Rare Disease as an inequity 30:15. 7 Keeping a pulse on Board effectiveness 32:23. 7 Leadership role on the Board 34:00. 8 The rest of my life 39:11. 9 Reflection 45:42. 10 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Rumours of Light image used by permission from Sue Heatherington @theWaterside Quiet Disruptors Inspired by and grateful to: Christine Goertz, Sharon Levine, Nakela Cook, Mike Herndon, Tanisha Carino, Kara Ayers, Connie Hwang, Luc Pelletier, Caryl Carpenter, Dorothy Cucinelli, Peter Tetrault, Tim Sullivan, Cynthia Meyer Sponsored by Abridge Links Related podcasts and blogs https://health-hats.com/pod141/ https://health-hats.com/chiropractic-operating-at-peak-performance/ https://health-hats.com/retirement-micro-stepping-with-mini-goals/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Want to be a fly on the wall of a year-end session with my professional coach, Jan Oldenburg? You can hear the good, the bad, and the ugly of my process to hone and strategize my professional and personal work. Why would I share a coaching session? Is this TMI (Too much information) too private? Does it make me vulnerable? In last week's podcast, Matthew Hudson emphasized that you reveal something about yourself with the questions you ask, the problems you try to solve. Frankly, I am a bit anxious about sharing this, but you already know that I have little guile. I wear my life on my sleeve.

Embedded researcher, Matt Hudson. Partnerships, self-reflection, values, equity. Treat illness in service of community prosperity. An instruction manual. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Matthew Hudson 00:41. 1 Introducing an embedded researcher 02:58. 2 Skillset of an embedded researcher - like a musician 05:31. 2 Embedded researchers in the community 06:57. 3 Employing, partnering with a researcher 09:10. 3 Permission versus commitment to act on research 13:26. 4 Implementation science. Just do it. 14:56. 5 Embedded researcher as steward 17:20. 5 Research in the context of care delivery. Individual health, organizational health. 18:18. 5 Workforce context 20:16. 6 Continually learning what works 24:40. 7 Music, again 31:05. 8 Do we see the questions through the same lenses? Buffing out the scratches 32:29. 8 Reveal something about yourself, not easy 36:39. 9 Self-reflection, values, and health equity 38:36. 10 Partnership: engage with blind spots and strengths 42:40. 10 Reflection 45:05  11 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Rumours of Light image used by permission from Sue Heatherington @theWaterside Quiet Disruptors Inspiration from and gratitude for Geri Baumblatt, Russell Bennett, Meghan Berman, Jennifer Canvasser, Kristin Carman, Tracy Carney, Gwen Darian, Karen Fortuna, Crispin Goytia-Vasquez, Alma McCormack, Alan Richmond, Brendaly Rodriquez, Beverly Rogers, Thomas Scheid, Lisa Stewart, Freddie White-Johnson, Neely Williams Sponsored by Abridge Links Learning Health Systems by Matthew Hudson, General orders for the embedded researcher: Moorings for a developing profession. Patient-Centered Outcomes Research Institute Advisory Panel on Patient Engagement PCORI Patient Engagement Toolkit Related podcasts and blogs https://health-hats.com/pod150/ https://health-hats.com/pod148/ https://health-hats.com/pod137/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem These days, several interests swirl through my mind and heart: disparities and equity in healthcare, community-research partnerships, and continuous learning about health. Swirling sounds too pretty and neat.

Turn-around. Interview of Health Hats by Craig Constantine entitled, Rich, about my podcasting process. A ton of work to keep it fresh. Ruthless editing. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Jumping into podcasting with both feet 1 Following my nose 04:35. 2 Ton of work, keeping it fresh and manageable 06:06. 2 Ruthless editing 07:55. 3 Process of telling a story 10:08. 3 Grateful for the podcasting communities 13:56. 4 Honoring different brains 15:48. 4 Reflection 18:49. 5 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Steve Heatherington, Ame Sanders, Tania Marien, Fred Guitierrez, Jane Beddall, Curtis Cates, Amanda Blodgett, Carole Blueweiss, Katherine Cocks, Karena DeSouza, Heidi Frei, Suzanne Jones, Catherine Lynch, Alice Merry, Matt Neil, Dawn Powell Sponsored by Abridge Support Health Hats, the Podcast financially Related podcasts and blogs https://health-hats.com/pod132/ https://health-hats.com/make-a-ruckus-podcasting/ https://health-hats.com/pod143/ Links Podcasting Community Pod Buffet About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem From time-to-time readers and listeners ask me about my process for podcasting. Recently, Craig Constantine, a crony in podcasting, interviewed me about my podcasting journey. Craig's process is to record a 20-minute chat and publish it immediately without editing. For listeners, find a link to Craig's episode in the show notes. For readers, go here. Why do I republish an already published episode? I learn from different styles of production. Remember that I co-published a couple of episodes in the past few months with Mighty Casey Quinlan's Healthcare is Hilarious. I'll let you know my observations in the Reflections at the end. Jumping into podcasting with both feet Craig Constantine: Hello. I'm Craig Constantine. Health Hats: Hi Craig, I'm Danny van Leeuwen. I'm also known as Health Hats, and I'm known as Health Hats because I am a person with multiple sclerosis. I've been a care partner to several family members' end-of-life journeys. I'm a nurse, and I have led several Electronic Health Record implementations, and I've been in the C-suite of healthcare. So, I wear a lot of hats.

Dr. Kirsten Meisenger from the Cambridge Health Alliance engages long-standing community partners in telehealth usability with joy and grace. Deep. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Kirsten Meisinger 03:14. 2 Provider engagement, loving what you do 08:37. 3 Patient, provider, community engagement intertwined 10:51. 3 Telehealth, up in 60 seconds 12:12. 4 Long-standing patient experience partners 14:55. 4 When the world blows up 17:53. 5 Public health superpower 18:51. 5 Recognizing when it doesn't work 22:42. 6 Leadership at many levels 25:12. 7 Equity. Giving people what they need. 27:41. 8 Key points 29:41. 8 Reflection 32:27  9   Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Mary Ellen Cortizas, Neely Williams, Freddie White-Johnson, Joanna Siegel, Karen Martin, Kristin Carman, Libby Hoy, Dick Argys, Tania Dutta, Russell Bennett, Bonnie Engelbart Sponsored by Abridge Links Cambridge Health Alliance CHA Facebook Page CHA Healthy Now Blog Katie's Nutrition blog Transforming Clinical Practices Initiative National Collaborative for Health Equity (sponsored by NCQA) Related podcasts and blogs https://health-hats.com/pod122/ https://health-hats.com/minister-to-community-spirit/ https://health-hats.com/pod133/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Lately the industry chatter about patient engagement has increased. Clients ask me to advise about patient engagement. What is patient engagement?  How can we increase patient engagement? Is patient engagement worth it? Where do we find people to engage? What's the business case for engagement? As time passes, my thoughts and advice change, and, frankly, I find myself at a loss to advise, even though I say patient engagement is my passion. Engagement from whose point of view, to what purpose? A person engaged in their health – Isn't everyone engaged in their health? My symptoms affect me. I'm in pain. I can't function as I'd like to. I'm sad. I'm anxious. I react. I manage, or I don't. I can accept, deny, adapt. I suffer, I advocate, I overcome. Maybe it's my parent's health or my partner's or my child's.  It's all engagement. I'm engaged in my health. A clinician engages in their patients' health.

My son. Mike, died 19 years ago, age 26. Wasn't born with a tattoo telling him how long he had to live. Blood, married, intentional families. Love & boundaries. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem 2021. 1 Open Hearts 2018 03:27. 1 Love myself 2002 04:43. 2 He met a girl 2018 09:50. 3 Birthday wishes for the old guy 2002 11:44. 3 Spiritual health 2018 12:40. 4 Lifetime warranty 2018 17:19. 4 Not personalizing death 2018 19:32. 5 Leave me a sign 2018 27:53. 6 Reflection 2020 30:00  7 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Sponsored by Abridge Thanks to these fine people who inspired me for this episode: Robert Doherty, Simon and Ruben van Leeuwen, Ann Boland, Anica Madeo, Andrea Condit, India Duncan, Lenore Nowicky Links Related podcasts and blogs https://health-hats.com/superpower-accepting-what-is-1-99/ https://health-hats.com/best-spiritual-health-dying/ https://health-hats.com/pod138/   About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem 2021 I wasn't born with a tattoo on my ass telling me how long I have to live. Welcome to the third anniversary of Health Hats, the Podcast, episode number 149. On November 15th, 2018, the first episode honored my son, Mike Funk, who died on November 18th, 2002, nineteen years ago, age 26, of metastatic melanoma. Mike, a wise poet, found his best spiritual health in that last year of his life. Hence, the most memorable sentence in my life. I wasn't born with a tattoo on my ass telling me how long I have to live.  I'm grateful to have known Mike, my son, our brother, our friend. I resurrect this episode to celebrate Mike and celebrate family – blood family, married family, intentional family. Mike was part of our intentional family. He was our son from other parents. Mike and I mused often about family especially in his final year. As you can imagine his intense feelings about his blood family and his intentional family colored those conversations. Ever the poet, we talked about the challenge of family as unconditional love, especially when you've been treated badly, neglected, abused, and left. We spoke about boundaries, unconditional love with boundaries, standing up for yourself,

These three stories, my doctor and me, equity in health systems, care of children with severe heart problems, all contain a problem desperately needing fixing, choices – some based as research, others not – some action taken or no action. How can we continually learn from experience, share that cumulative experience to inform future choice-making and action? Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Underwhelming response to brilliance 03:41. 1 Pitches, no home runs 05:26. 2 Invoke curiosity without commitment 8:47. 2 Reflection 11:00. 3 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music, Mou's Blues by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspired by and grateful to Amy Price, Duane Reynolds, Matthew Hudson, Laura Marcial, Melissa Reynolds Sponsored by Abridge Support Health Hats, the Podcast financially Links A framework for value-creating learning health systems AHRQ About Learning Health Systems Pregnancy and Fibromyalgia by Melissa Reynolds   Related podcasts and blogs https://health-hats.com/accessible-yoga-honor-your-body/ https://health-hats.com/everyone-included-research/ https://health-hats.com/hardwiring-continual-learning/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem When first diagnosed with Multiple Sclerosis, my neurologist told me he was expert in treating groups of people (populations) with MS, but he didn't know crap about me. His job was to learn about me, and my job was to learn about MS. I shared what was important to me in my life, and he taught me about MS and treatments. We slowly learned what worked for me in care and treatment and what didn't and re-examine year after year. In last week's podcast episode, we chatted with Duane Reynolds from the Just Health Collaborative. He guides health systems in creating cultures of belonging, enabling a fair and just opportunity for everyone to achieve optimal health. I wonder what worked and what didn't among the interventions his clients tried? When I worked at Boston Children's Hospital, I was fascinated by their Cardiology Department's  Standardized Clinical Assessment And Management Plans (SCAMPs) to promote, not require, care standardization. SCAMPs “offered a clinician-designed approach to promoting care standardization that accommodates patients'...

Duane Reynolds of the Just Health Collective reflects on a layered approach to combating racism. Individuals drive organizations that live within systems. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 1 Introducing Duane Reynolds and the Just Health Collective 03:13. 2 Research into key drivers of health inequity 07:08. 3 How do root causes and interventions align? 09:53. 3 Organizations and communities operate on different time frames 12:55. 4 Individuals drive organizations that live within systems 16:06. 4 Eureka! Belonging. 18:45. 5 Reading the room 20:53. 5 Transformative change for employees 23:46. 6 Difficult conversations at home - the learning journey 26:41. 7 My education and support systems 30:45. 8 Reflection 33:34. 8   Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email DM on Instagram or Twitter to @healthhats Credits Music by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Web/social media coach, Kayla Nelson Inspiration from Fatima Muhammed Ighile, Neely Williams, Lisa Stewart, Ame Sanders, Matthew Hudson, Robert Doherty, Jason van Leeuwen, Benjamin Anderson, Nikki Montgomery, Michelle Whitt, Lisa Masinter, Janice Tufte Sponsored by Abridge Links Here is a direct link to the Just Health Collaborative website the Institute for Diversity and Health the Institute for Diversity and Health of the American Hospital Association Centering Health Equity podcast:  https://centering-health-equity.squarespace.com/ Medium:  https://medium.com/just-health-collective Just Health Collective Village Benjamin Anderson   Rural Health Equity for the Colorado Hospital Association Invisible Woman, a plastic model of the human body with a removable pregnant abdomen Related podcasts and blogs Here are some of many episodes including health equity https://health-hats.com/pod110/ https://health-hats.com/pod133/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem In 1960 I discovered that I didn't belong. I was eight. My parents supported Kennedy for President. Everyone else's parents supported Nixon. My eyes opened. My family was different. My parents were active in the Fair Housing Movement. They hosted businesspeople of color from Africa. No one else knew anyone of color who wasn't a maid or landscaper. Boys carried sweaty, folded-up pictures of scantily dressed girls they got from their older brothers and giggled about them in the restroom.

I'm not the sharpest knife in the musician drawer. Disheartening. I wish I were better. If wishes made me play better… All I can do? Keep at it. In the last two years. I've gone from “I can't do this, I'm quitting” to “I need to be better.” One foot in front of the other. If this were health, I'd advise that you never get better in a straight line- always many dips and rises. No dip, no rise. I do like the rise. Gotta live with the dips. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Please support my podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) I'm as good as I am 00:28. 1 Hiding, confidence, woodshedding 02:27. 1 Gigging, a dose of reality 04:42. 2 Peaks and valleys 05:52. 2 Please comments and ask questions at the comment section at the bottom of the show notes on LinkedIn via email DM on Instagram or Twitter to @healthhats Credits Music, Mou's Blues by permission from Joey van Leeuwen, Boston Drummer, Composer, Arranger Music, Midnight Mambo composed by Oscar Hernandez, played by Lechuga Fresca, Latin Band Web/social media coach, Kayla Nelson Inspired by and grateful to Joey van Leeuwen, Oscar van Leeuwen, Leon van Leeuwen, Kayla Nelson, Jeff Harrington, Jennifer Keeney, Cynthia Meyer Sponsored by Abridge Support Health Hats, the Podcast financially Links Related podcasts and blogs https://health-hats.com/listen-to-the-music/ https://health-hats.com/pod120/ https://health-hats.com/pod109/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare. Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge. Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements. Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show After last week's arcane episode (Arcane means understood only by a few) about Cost in Healthcare, here's something lighter and more familiar – plying a craft as a dedicated amateur, in my case, as a musician. I'm as good as I am I left for the gig determined and fearful. I've spent six to ten hours a week playing my horn since I got the new baritone sax stand. I hadn't played for eight weeks with my back pain and inability to carry the weight of the fifteen-pound horn on my shoulders and neck. The new stand holds the sax independently so I can play sitting or standing. Working with my long-time teacher, Jeff, I've made considerable progress on feeling the form of the tunes, keeping my place with decent phrasing for my solos. I've made it a point to solo on three tunes each session the band plays, a stretch for me. Our alto player couldn't make the gig; I would be one of two horn players. I was determined to solo on six tunes to fill the gap, I felt the fear about my ability or lack thereof. I'd be as good as I am – sweaty hubris, to be sure. Hiding,

Wow, this one went way off the rails and we're pretty sure it's our longest episode yet. Speaking of pretty, let's talk about this accidental best selling duo of the 1970s, Kenny Loggins and Jim Messina. From Danny's song all the way to a pretty brutal cover of Bobby Darin's "Splish Splash" these 2 cuties really run the gamut of strange folky island blues soft rock. Come learn about how this even happened, who are the coral island reefers, when the undertaker became the American badass, and we remember the golden era of the "secret song" Yikes.