Podcasts about stanford medicine x

Doug Lindsay has spent the last two decades investigating and tackling rare, complicated medical conditions – first in himself and his family and now through his Personal Medical Consultant service. An innovator, Doug partners with clients and experts to make new things happen. He works to get clients who are stuck in the medical system unstuck. To aid him in his work, he strives to understand healthcare from all levels of organization, from the individual to health systems, public health, and global health. Doug's dogged, indefatigable ability to chase down answers to an individual's complex problems makes him a special asset as a teammate and Personal Medical Consultant. In addition to his Personal Medical Consultant service, Doug Lindsay • Co-chairs PCORI's Congressionally-mandated Rare Disease Advisory Panel (RDAP) • Co-chairs Washington University School of Medicine's Community Advisory Board for the Institute for Clinical and Translational Sciences and the Institute for Public Health (ICTS & IPH). • Is Community Advisory Board member for the National Institutes of Health's ACTIV-1 IM trial. (ACTIV is the US government's public/private/nonprofit collaboration for Accelerating COVID-19 Therapeutics and Vaccines research.) • Is member of the National Institutes of Health's ten-person ACTIV COVID Biospecimen Prioritization Committee. (NIH) • Is member of Academy Health's Global Health Interest Group. • TEDx talk Operation: Adrenal Gland can be found at TED.com • Was speaker in the panel kicking off Academy Health's Datapalooza, 2019 • Has twice been an ePatient Scholar at Stanford Medicine X (2017, 2019) • Appeared on The Dr. OZ Show in fall 2019 as example of The Power of 1 (to make a difference). • Was the first patient invited to give a fireside chat for the Health Management Academy, which hosts C-Suite education conferences for the nation's 100 biggest hospital systems, 2017. • Co-chaired aviation humanitarian nonprofit Wings of Hope's “Taste of Hope” fundraiser • Has been keynote speaker for national organizations like AHIMA, for healthcare conferences like the Society for Participatory Medicine, and at internal corporate events for firms like Pfizer. • Graduated with honors from Rockhurst University's Honors College with a BS in biology in 2016. • CNN online feature “This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself” on his story was the #3 article globally across all media platforms for all of 2019 for time readers spent reading it.

Increasing evidence indicates a key role for the oral microbiome in autoimmune diseases. We learn about the importance of the oral microbiome and systemic health from Bonnie Feldman, DDS, MBA, Chief Collaboration Officer, DrBonnie360/Your Immunity Connection. With her unique experiences as a healthcare provider, researcher, analyst, scientist, and patient, Dr. Feldman bridges diverse industries and helps propel the growing convergence of science, tech, and patient demand towards individualized autoimmune care through her consulting, writing, and speaking. Dr. Feldman has spoken at TEDx, SXSW, and Stanford Medicine X. Support for GW Integrative Medicine Podcast comes from our sponsor Blis Technologies, makers of advanced oral probiotics for a healthy mouth and throat. Information on how Blis Technologies is transforming health care is at blisprobiotic.com/. ◘ Related Content Dr. Feldman's bio https://bit.ly/3CbZVD0 Visual Annotated Oral Microbiome Research Bibliography https://bit.ly/3Py6anV "The Oral Microbiome: The Next Frontier" https://bit.ly/3CdgYER TEDx Talk: "The Single Most Valuable Legacy We Can Pass On" https://bit.ly/3QvY6VP Stanford Medicine X: "The Lonely University of Autoimmune Disease" https://bit.ly/3AtTyK7 ◘ Transcript https://bit.ly/3CajMCN ◘ This podcast features the song “Follow Your Dreams” (freemusicarchive.org/music/Scott_Ho…ur_Dreams_1918) by Scott Holmes, available under a Creative Commons Attribution-Noncommercial (01https://creativecommons.org/licenses/by-nc/4.0/) license. ◘ Disclaimer: The content and information shared in GW Integrative Medicine is for educational purposes only and should not be taken as medical advice. The views and opinions expressed in GW Integrative Medicine represent the opinions of the host(s) and their guest(s). For medical advice, diagnosis, and/or treatment, please consult a medical professional.

Did you know that it is possible to transform your health data into artistic expression? Justus is here to tell you how having something tangible about your body's information helps in healing healthcare. In today's episode of The Create and Grow Podcast, we speak with Justus Harris.Justus Harris is the epitome of what it means to combine disciplines to make a greater impact in the world. They are an artist, educator, and health advocate.  After their Type 1 Diabetes diagnosis, Justus founded MedSculp, which from 2016-2020 used the expertise of doctors, entrepreneurs, and technologists to create data visualization experiences for patients to better understand their complex medical history.  Justus Harris has taken this initiative into patient-experience consulting work with clients in clinical trials such as Medidata, where he is a Patient Insights Board member.  In corporate consulting Justus is a facilitator specializing in the patient perspective in design-thinking, empathy, and using creativity in multi-disciplinary teams.   Their international art practice has taken them to the Kennedy Center as a Citizen Artists Fellow and Berlin as a European Commission Recipient. As an educator, Justus focuses on public speaking and facilitation, including features at TEDx and Stanford Medicine X.  Justus supports individuals 1x1 through coaching with professionals in career transition who are prioritizing their creative practices to transform their lives and the world. Topics Covered on this episode of The Create and Grow Podcast: 06:20 A Creative Skill called Transformation09:30 Dr. Daniel Siegel: Interpersonal Neuro-Biology11:25 Art Transforming Health14:30 Third Gem of Intercultural Creativity: Observation15:40 Draw to Increase Observational Skills17:12 Redefining Creativity18:48 Transforming Diabetes 1 Data into Artistic Expression22:30 Highlighting the sculpture with Dr. Katz' Keeping Your Brain Alive24:29 Build Your Creative Space to Innovate Any Workplace25:05Justus' Sculptures on Exhibits26:48 Art is Solving the Problem28:16 Tips from Justus for People to Dive in Their Artistic Creativity Subscribe:  Spotify | YouTube  Connect with Genein Letford: Visit CAFFE Strategies Visit GeneinLetford.com Follow Genein on Facebook  Connect with Justus Harris: Website:  JustusHarris.com  TEDx Talk: https://www.ted.com/talks/justus_harris_artists_are_key_to_healing_healthcare LinkedIn:  https://www.linkedin.com/in/justusharris/  #PowerOfJournaling #PerspectiveShifting #SeeingYourLifeFromAnOutsidePerspective #CAFFEStrategies #Intercultural #Diversity #InterculturalCreativity #Creativity #InterculturalCreativity #innovation #Mental Health #WhyArtistsAreaKeyToHealingHealthcare

Andrea Wilson Woods is a writer who loves to tell stories, and a patient advocate who founded the nonprofit Blue Faery: The Adrienne Wilson Liver Cancer Association. Andrea is the CEO and co-founder of Cancer University, a for-profit, social-benefit, digital health company. With Cancer U, Andrea synergizes her talents of coaching, writing, teaching, and advocacy. For over ten years, Andrea worked in the education field as a teacher and professor for public and private schools as well as universities. Andrea obtained her master's degree in professional writing from the University of Southern California; her nonfiction writing has won national awards. Her new book, a medical memoir titled Better Off Bald: A Life in 147 Days, is a #1 Bestseller on Amazon in multiple categories.Andrea Bio:In 2002, Andrea founded Blue Faery: The Adrienne Wilson Liver Cancer Association after losing her 15-year-old sister Adrienne, whom she raised for seven years, to stage IV liver cancer. Blue Faery's mission is to prevent, treat, and cure primary liver cancer, specifically hepatocellular carcinoma (HCC), through research, education, and advocacy. Andrea established the articles of incorporation; wrote the bylaws, mission statement, and goals; and developed the organizational structure of the corporation. Currently, she attends board meetings, serves on committees, stays informed about liver cancer, and governs the organization. Andrea represents Blue Faery and its mission at conferences, seminars, and special events. Blue Faery has been honored for community service by U.S. Congressman Adam B. Schiff, California State Senator Jack Scott, and the County of Los Angeles, and was inducted into the Burbank Business Hall of Fame for receiving the Best of Burbank Charity Award from 2013 – 2017.Since serving on an HCC Patient Advisory Board for Eli Lilly in 2014, Andrea has received numerous scholarships to attend various conferences around the country to tell her story, increase her knowledge, advocate for more funding, and continue her professional development. Organizations that have granted scholarships/sponsorships include Academy Health, American Association for Cancer Research, American Society of Clinical Oncology, American Liver Foundation, Caring Ambassadors, Conquer Cancer Foundation, Global Liver Institute, National Comprehensive Cancer Network, National Viral Hepatitis Roundtable, and more.In 2017, Andrea won an e-Patient scholarship for Stanford Medicine X where she presented her talk, “How Euphemisms Help Us Deal With Death.” More recently, she spoke to more than 100 liver cancer researchers at the Hepatobiliary Cancers: Pathology and Translational Advances conference sponsored by Virginia Commonwealth University School of Medicine. Her presentation titled “Why We Need To Choose To Cure Liver Cancer” left the room speechless.As a patient advocate, Andrea serves on many committees and advisory boards including NCI Hepatobiliary Task Force, Target Pharma Solutions HCC Advisory Board, and ASCO's Systemic Therapy for Advanced Hepatocellular Carcinoma Guideline Panel. She is a patient advocate representative on the Mayo Clinic Hepatobiliary SPORE, which is devoted to improving the diagnosis and treatment of liver cancer and bile duct cancer. Andrea serves as a Consumer Reviewer on the Department of Defense's Peer-Reviewed Cancer Research Program. Andrea represents Blue Faery as a member of AASLD, ASCO, Deadliest Cancers Coalition, and GI Cancers Alliance. She was formerly a member and co-chair of the awareness group of the Liver Cancer Roundtable. Currently, Andrea is the only American serving on the Canadian Cancer Survivor Network's Liver Cancer Advisory Council. She is also a WEGO Health Expert and member of the International Coach Federation.

Patient Advocate, Interdisciplinary Artist, Innovation Consultant Devoted to Connection and Repair. Liza Bernstein, a Third Culture Kid who is NED (No Evidence of Disease) after three cancers is a patient advocate, interdisciplinary artist, and innovation consultant devoted to connection and repair. Liza Bernstein's advocacy serves a global audience via social media, conference attendance, speaking and media engagements, peer mentoring, and relationship-building. She also collaborates, co-designs, and advises across the multi-stakeholder healthcare spectrum to break down silos, foster understanding, promote education and empowerment, and accelerate change. In late 2010, Liza began to explore the worlds of breast cancer and healthcare innovation on Twitter and never looked back. Her work at the intersection of healthcare innovation, technology, and human-centered design has made impact at groundbreaking companies and organizations including Cure Forward, Science 37, CanSurround, Symplur, Medidata, Omicure, and BioNews. Liza's background in human-centered design includes projects with RGA/LA, IDEO, Bruce Mau, and Medicine X Design Studios. A Stanford Medicine X founding ePatient scholar, advisor, and former board member, Liza has given talks internationally on topics including Patient-Centered Design; Dignity in Healthcare; Mental Health and Cancer; Death and Bereavement; Social Media and Patient/Clinician Relationships; and Shared-Decision Making. Liza, who is also an interdisciplinary artist (ceramics, Capoeira Angola, writing), is a TCK (Third Culture Kid) who grew up in South Africa, France, and the US. She is passionate about connecting and collaborating across vastly differing cultures and digs deep into her life experience and expansive creative training to do whatever it takes to facilitate understanding and communication—she's no stranger to improv, which has the added benefit of yielding lots of laughs. Recently, Liza executive produced, directed, and hosted A Window Into Rare, Rare Disease Day Panel Discussion at BioNews, where she was the Senior Director of Patient and Community Engagement. She is currently preparing a talk on Innovation in Surgery from the Patient Point of View for the Inworks Innovation Initiative, University of Colorado Anschutz Medical Campus.

Sneha graduated from Indiana University in May 2020 where she majored in chronic illness advocacy as well as journalism. She created the Health Advocacy Summit (HAS) and its program the Crohn's and Colitis Young Adults Network (CCYAN) with support from foundations such as the Helmsley Charitable Trust to create support systems for adolescents and young adults with chronic medical disabilities across the U.S. and internationally. She is proud to work with a team composed entirely of young adults with chronic medical disabilities and also to keep the HAS and CCYAN and independent from the pharmaceutical and insurance industries. Sneha has completed an undergraduate research fellowship in health policy at Harvard T.H. Chan School of Public Health. She has also interned at numerous places such as Pfizer Global Headquarters in health economics and outcomes research for Inflammation and Immunology. Sneha has spoken on Capitol Hill, featured nationally on C-SPAN, and is a past contributor for U.S. News and World Report. She has served on the Democratic National Committee Disability Policy Subcommittee and recently joined the Midwest Comparative Effectiveness Public Advisory Council, an independent appraisal committee of the Institute for Clinical and Economic Review. Sneha was awarded two academic fellowships with the Association of Health Care Journalists. She was previously a national policy fellow at RespectAbility and now serves as the youngest director on the board for the national nonprofit. Sneha has spoken at the Democratic National Convention, Stanford Medicine X, the National Academies of Medicine, and other major avenues. For her work, Sneha was selected as one of the most influential teenagers in 2018 by the We Are Family Foundation and was recognized as an American Association of People with Disabilities Emerging Leader in 2020.

If you're new to the chronicpreneur world, then this episode is packed full of info-bombs!Julie Croner is on a mission to advocate for ALL advocates. A psoriatic arthritis patient leader, she's also the Vice President of the Patient Leader Network at WEGO Health and has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. Julie is one busy chronicpreneur, as well as being a very involved mom! Listen in to find out what drives her, as she talks about her own journey to make her passion her career, before covering her work at WEGO Health and the support that their incredible community of patient leaders offers. In this episode:Julie's struggle to accept her diagnosis and subsequent depressionHow she began connecting with patients online as a way to educate herselfHow a fateful trip to Florida relocated her badass gene and why she started her blog the very next day The benefit of putting yourself out there as you never know where it will leadHow Julie gradually realized that she could get paid work because of her experiences, not despite themInformation about how Julie became involved with WEGO Health and her work thereWhere to go to find out more about Julie and WEGO HealthResources:Visit the Patients Getting Paid website to learn more about and JOIN the PGP communityJulie's blog, ItsJustABadDay.comIt's Just A Bad Day on Twitter, Facebook, and InstagramVisit WEGO Health and connect on Twitter, Facebook, and Instagram**Be sure to join us on the Patients Getting Paid Facebook and Instagram pages AND get on the PGP email list to stay updated on all things PGP!Special thanks to Steve Woodward at PodcastingEditor.com

In this fun, Instagram live we interviewed Robert Pugliese, who is the Director of Innovation Design at Thomas Jefferson University, and Jefferson Health where he co-founded the Health Design Lab, a creative space built with the purpose of merging together design-studio ethos with science-oriented discipline to foster innovation in healthcare. As usual, we started our conversation with his early career, the path to founding Health Design Lab, and how 3D printing played a role in all that. Robert's 3D printing lab does not have fancy 3D printers, and he is a firm believer that having excellent design holds the key to solutions and 3D printing is a great tool to achieve that design. We were also fortunate to have a brief virtual tour of Robert's lab and talked about a few super cool clinical cases Robert is working on at the moment.Full show notes and video recording: Robert Pugliese: Design for Healthcare with 3DPrintingInstagram account: @healthdesignlabAbout our Guest Robert Pugliese:Robert S. Pugliese is Director of Innovation Design at Thomas Jefferson University and Jefferson Health where he co-founded the Health Design Lab, a creative space built with the purpose of merging together design-studio ethos with science-oriented discipline to foster innovation in healthcare. As somebody who enjoys empowering future health care providers to be change makers, Robert leads programs that train students to be health design thinkers and innovators. A Doctor of Pharmacy (PharmD), Robert has spent over ten years practicing and teaching in Emergency Medicine. He believes that including both the patient and provider voice is vital to healthcare design, and he brings each of these perspectives to his work through his experience as a clinician and through his own journey coping with insulin-dependent diabetes. Robert has presented on the intersection of healthcare and design at national venues such as SXSW and Stanford Medicine X and in 2019 he was selected as a Philadelphia Business Journal 40 Under 40 honoree. Throughout the COVID-19 pandemic Robert has used his unique experience to lead critical response efforts to overcome supply chain shortfalls and respond to community needs for testing and vaccination. In his spare time, Robert produces a weekly podcast and enjoys spending time with his wife and three daughters.Support the show (https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=STF9STPYVE2GG&source=url)

Bon Ku, M.D. (@BonKu) is the Assistant Dean for Health and Design and an Associate Professor at the Sidney Kimmel Medical College at Thomas Jefferson University. He is the founder and director of JeffDESIGN, a first-of-its-kind program in a medical school that teaches future physicians to apply human-centered design to healthcare challenges. Since we recorded this episode back in 2018, Bon has started his own podcast, Design Lab, co-authored a book, and practiced medicine through a global pandemic. Bon has spoken widely on the intersection of health and design thinking (TEDx, South by Southwest, Mayo Clinic Transform, Stanford Medicine X, Association of Collegiate Schools of Architecture) and serves on the Design and Health Leadership Group at the American Institute of Architects. In 2016, he received the Health Care Innovators Award from the Philadelphia Business Journal. In addition to all this, he still practices emergency medicine, serving in the Emergency Room 2 nights a week. In this episode, Bon tells the story of his immigrant family beginnings, how he became inspired to turn medical school on its head using Design Thinking, and what he and his program is doing today to solve Philadelphia's biggest health problems. This Episode is supported by Crossbeam. Crossbeam is hiring! Check out their available positions here.

Specific topics include:Julie’s experience with multiple knee surgeries Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 monthsHow a trip to Disney World led to Julie’s epiphany that she should share her story and start a blogHow Julie put her Information Technology (IT) degree to use while tracking her symptoms and discovering her unique inflammation triggersHow Julie discovered the most important tools for living a healthy, full life with PSAJulie’s current role as a patient advocate with WEGO healthHow PSA affected Julie’s dating life and how she met her now husbandJulie’s experiences with pregnancy and parenting with PSAThis episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Speaker Bios:Julie Croner, a psoriatic arthritis patient leader, is on a mission to advocate for ALL advocates. She's the Vice President of the Patient Leader Network at WEGO Health and was named to MM&M's inaugural class of 40 Under 40 in 2020. Julie has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.Episode links:Julie’s sites:Blog: Itsjustabadday.com Twitter: twitter.com/justagoodlife Facebook: Facebook.com/itsjustabaddaynotlife Instagram: Instagram.com/itsjustabaddaynotlife LinkedIn: www.linkedin.com/in/juliecerrone  Blog Email: justabaddaynotlife@gmail.com Work email: Julie.croner@wegohealth.com  Organizations mentioned in this interview:WEGO HealthMothertoBaby - research studies of medications and pregnancy / breastfeedingMindful Mamas AppArthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook groupCheryl’s Arthritis Life freebies:Free Handout: Cheryl’s Master Checklist for Managing RAFree Training: Arthritis Life Hack Crash CourseArthritis Life Program LinksJoin the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.Cheryl’s Arthritis Life social media pages:Cheryl &  Arthritis Life on InstagramCheryl’s website: Arthritis LifeArthritis Life Tiktok: @ArthritisLife Arthritis Life Facebook PageCheryl’s Twitter: @realcc Arthritis Life Youtube channelMedical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Here's the show breakdown:1:00 - Introduction to Julie.2:00 - Julie’s winding journey to a psoriatic arthritis diagnosis: knee surgeries / swelling from fifth grade until after college and during work as an Information Technology (IT) consultant.4:55 - Julie gets the adult diagnosis of psoriatic arthritis (PSA) and her rheumatologist helps get it under control. She’s able to connect the dots of her chronic health issues in retrospect and see how it all relates to psoriatic arthritis (PSA).8:24 -  Julie also experiences avascular necrosis in the femur bone (leg) which led to complex regional pain syndrome (CRPS). She started connecting to other patients online, got medication for PSA and started exploring diet and lifestyle. 9:48: Julie researches anti-inflammation lifestyle approaches, and uses her IT consultant skills to make an excel spreadsheet to track everything (food, movement, mood, medications, etc) for 6 months and discovered her unique inflammation and flare  triggers. 10:55 The BEST thing she did in her journey!11:20 - Julie discovers that her body is sensitive to food triggers. She discovers that gentle movement, meditation and mindfulness helps her. She continues going on and off medications when needed. 12:40 - Cheryl reflects on the importance of discovering your own unique triggers and not thinking there is a one size all solution. 14:00 - Julie’s worst food triggers for joint inflammation. (15:12) 15:44 - Julie is bedridden for 6 months due to her Avasular Necrosis and is depressed. Her parents take her to DisneyWorld and she has an epiphany after doing a singing competition!  She decides to share her story through starting a blog: “It’s just a bad day not a bad life.”19:20 - After being on disability for four years, she decides to focus on a career in patient advocacy rather than IT consulting.20:30 - Julie starts working for WEGO Health, a network of patient leaders. She helps patients and loved ones use their story and get connected to companies wanting their insights.23:40 - Why Julie thinks it’s so important for patients to share our stories: how she found an answer to her avascular necrosis due to seeing another patient’s story online.26:50 - How Julie’s health conditions affected her dating life, and how she met her husband. Her husband said, “You talk like you USED to be great, and the person I see IS really great! (28:13)”30:00 - How did PSA affect her family planning with her spouse who is in the army. When pregnant she felt very nervous and overwhelmed.  She signed up for a MothertoBaby study.33:45 - During her first pregnancy PSA went into remission, psoriasis in 1st trimester. Second pregnancy didn’t go into remission. 35:15 - What helped her when babies were little: asking for help, planning ahead, pacing yourself. 37:15: How Julie copes with big emotions while parenting: Headspace app and Mindful Mamas app. 39:36 - Julie’s best advice for newly diagnosed patients - empower yourself and be a partner with your medical team.40:45 - Cheryl and Julie’s advice to patients who are overwhelmed when “doing their own research” - how to evaluate which resources are high quality information and which are low quality or dangerous. Reflections on how to navigate disease-specific Facebook groups.44:15: Julie’s concluding thoughts: if you are dealing with an autoimmune disease, you are not alone. 

Larry Chu, MD is a Professor of Anesthesiology, Perioperative and Pain Medicine and Director of the Stanford Anesthesia Informatics and Media (AIM) Lab. Dr. Chu is an NIH-funded clinical researcher and is Executive Director of Stanford Medicine X, the world's longest-running and most-discussed academic program on patient-centered emerging technology and medicine. He has written eight books, over 50 papers and over 50 book chapters in academic anesthesiology. He is a member of the editorial advisory board for The BMJ, one of the most influential general medical journals in the world. Bon and Larry talk about flattening hierarchies, creating safe spaces in healthcare, co-designing with patients and embracing curiosity in the culture of Medicine.

Robert S. Pugliese is Director of Innovation Design at Thomas Jefferson University and Jefferson Health where he co-founded the Health Design Lab, a creative space built with the purpose of merging together design-studio ethos with the science-oriented discipline to foster innovation in healthcare. As somebody who enjoys empowering future health care providers to be change-makers, Robert leads programs that train students to be health design thinkers and innovators. A Doctor of Pharmacy (PharmD), Robert has spent over ten years practicing and teaching in Emergency Medicine. He believes that including both the patient and provider voice is vital to healthcare design, and he brings each of these perspectives to his work through his experience as a clinician and through his own journey coping with insulin-dependent diabetes. Robert has presented on the intersection of healthcare and design at national venues such as SXSW and Stanford Medicine X. In 2019, Robert was selected as a Philadelphia Business Journal 40 Under 40 honoree. Health design lab https://www.healthdesignlab.com/ Health Design Thinking, co-written by Ellen Lupton and Dr. Bon Ku, will be published by Cooper Hewitt, Smithsonian Design Museum and MIT Press in March 2020. https://mitpress.mit.edu/books/health-design-thinking Health Design Lab - Robert's role and Vision How will newer technologies impact pharmacy in the next 5-10 years? The transition from EM clinical practice to your role? --- Support this podcast: https://anchor.fm/empharmd/support

This episode features Ruchin Kansal. He currently leads the School of Business' Center for Leadership Development. His professional journey has included stints as an Air Force cadet, an architect, a strategy & transformation consultant with Ernst & Young/Capgemini and Deloitte, founding leader of the first Business Innovation & Transformation unit at Boehringer Ingelheim, and Senior Vice President and global head of digital strategy at Siemens Healthineers. He had the privilege to serve as a board member for Stanford Medicine X and was recognized with the Top 40 Healthcare Transformers Award by Medical, Marketing & Media in 2016, and Boehringer Ingelheim President's Award for developing the company's first Patient Engagement Strategy. Redefining Innovation: Embracing the 80-80 Rule to Ignite Growth in the Biopharmaceutical Industry

This week's episode is with Nick Dawson. Nick is a leader in health care human centered design. Nick has worked with organizations like Stanford Medicine X and Kaiser Permanente to embed human centered design techniques and philosophies into the health care delivery system. He is also an avid runner and outdoorsman with a huge passion for skiing. Nick and his fiance recently said goodbye to the Bay Area (for now) to explore and find inspiration in the Montana wilderness. Some highlights from our conversation: How running helps us tap into our state of flow and “negative space” that allows for the best design work to happen How human centered design in health care went from being a carve-out, niche thing to something that is now considered essential to any health care organization The nuances between US health care and overall attitudes towards health vs. that of other countries The challenges of tying health insurance to employment, especially for professional athletes What it would mean to become a “Healthist” Finding community in unexpected places and how to design for that The power of organizations who take the time to clearly articulate their values and stand behind them Follow Nick on Twitter @nickdawson, on Instagram @nickpdawson, and follow his training on Strava. You can find us on Instagram and Twitter @Runnersofthebay Check out our website www.runnersofthebay.com and send us an e-mail at runnersofthebay@gmail.com. This week's episode with Nick Dawson is brought to you by UCAN. Visit ucan.co/discount/ROTB/ for 15% off your order! Music is California by The Spectacular Fantastic.

Yoko K. Sen is an ambient electronic musician and the founder of Sen Sound, with a vision to transform the sound environment in hospitals. As a classically trained musician, sensitive to sound, she was disturbed by noise she had experienced in hospitals as a patient. Since then, she has embarked on a mission to humanize hospital experience by improving its sound. Yoko is a former citizen artist fellow at Kennedy Center, a former artist-in-residence at Johns Hopkins Sibley Innovation Hub and Stanford Medicine X, and KP Innovation at Kaiser Permanente. Sen Sound has helped medical device companies such as Medtronic and Johnson & Johnson to reimagine the sound experience design, and presented the importance of sound and clinician wellbeing at Northwell Health, Vanderbilt University Medical Center, and Lurie Children's Hospital of Chicago. Yoko has presented nationally and internationally, including TEDMED (2018) and Aspen Ideas Festival: Health (2019), and her work has been featured in New York Times, BBC, and STAT. Sen Sound's initiative, “My Last Sound,” was selected as a Top Idea by Open IDEO's End of Life challenge, involving hundreds of people from around the world sharing the last sound they wish to hear. Born and raised in Japan, Yoko was classically trained in piano from age three. Yoko had produced the album, “012906,” which was nominated for “Best Album in Electronica” by the 6th Independent Awards. She then produced the album “Heaven's Library,” for which she received the Washington Music Association Awards for “Best Electronica Artist.” As a self-proclaimed “sound alchemist,” Yoko aspires to create music, which is, to quote Beethoven, “the mediator between the spiritual and sensual life.” Photo credit: Standford Medicine X.

In this installment of the Future Grind podcast host Ryan O'Shea sits down with well known data liberation advocate Hugo Campos. Hugo lives with an Implantable Cardioverter Defibrillator, or ICD, which monitors his heart and helps keep him alive. However, the lack of transparency coming from the medical community about his device and the data it collects has lead Hugo on decade plus mission to advocate for data liberation and patient engagement. Hugo has been honored as a White House Champion of Change for Precision Medicine by President Barack Obama, and works with Stanford Medicine X, which is Stanford's premier program on emerging technology and medicine, focusing on patient-centered innovation. Hugo has also shared his story in a TEDx talk at Harvard in 2011. Today Hugo is a participant ambassador for the All of Us Research Program, an initiative from the NIH focused on building a diverse health database featuring over 1 million participants which will drive future scientific and medical breakthroughs. They discuss the value of data, inherent issues in the medical industry, the importance of autonomy, opportunities presented by the All of Us program and much more. Show Notes: https://futuregrind.org Subscribe on iTunes: https://itunes.apple.com/us/podcast/future-grind-podcast-science-technology-business-politics/id1020231514 Support: https://futuregrind.org/support Follow along - Twitter - https://twitter.com/Ryan0Shea Instagram - https://www.instagram.com/ryan_0shea/ Facebook - https://www.facebook.com/RyanOSheaOfficial/

This week, join me in listening to a conversation with Nisha Pradhan. She grew up thinking that she was congenitally anosmic but in recent years, has started to regain some sense of smell, meaning she's mostly likely hyposmic. We talk about her recent bouts of parosmia and what it was like to also experience good smells for the first time. To watch her Stanford Medicine X speech "Your Dirty Socks Smell Like Peppermint to Me" click here. To read the paper she co-authored titled "Validation of the Olfactory Disorders Questionnaire for English-speaking Patients With Olfactory Disorders" click here. To read the NPR article she was interviewed for titled "With No Sense Of Smell, The World Can Be A Grayer, Scarier Place" click here. You can connect with Nisha on Twitter @nisha_pradhan or via email at nishapradhan@gmail.com --- Send in a voice message: https://anchor.fm/thesmellpodcast/message Support this podcast: https://anchor.fm/thesmellpodcast/support

A senior at Indiana University majoring in chronic illness advocacy and journalism, Sneha Dave is no stranger to #SpoonieLife. Diagnosed at the age of six with ulcerative colitis (UC), she is the founder of Health Advocacy Summit (HAS), an organization that hosts events in various cities around the country to provide education, insight, and community to an often underserved patient population affected by chronic illness: young adults transitioning from pediatric to adult care. HAS’s sister organization, the Crohn’s and Colitis Young Adults Network (CCYAN), connects the IBD youth community around the world. An advocate through and through, Sneha has spoken on Capitol Hill, featured nationally on C-SPAN, and contributed to U.S. News and World Report, Yahoo! News, Huffington Post, and others. In 2018, the We Are Family Foundation chose her as a Global Teen Leader through its Three Dot Dash program. Sneha has completed a research fellowship in health policy at Harvard T.H. Chan School of Public Health, where she is continuing research as an undergraduate in health care related to young adults. She has also interned at the Crohn’s and Colitis Foundation Headquarters and Pfizer Global Headquarters in health economics and outcomes research for Inflammation and Immunology. She created and chairs the first disability caucus in Indiana, and has served on the Democratic National Committee Disability Policy Subcommittee and Women’s March Disability Caucus. Sneha was awarded two academic fellowships with the Association of Health Care Journalists. She was previously a national policy fellow and now serves as the youngest director on the board for RespectAbility, a nonprofit fighting stigma and advancing opportunities for people with disabilities. Sneha has spoken at Stanford Medicine X; at the Harvard Youth and Public Health Summit; the National Academies of Science, Engineering, and Medicine; and other major avenues. She is also a national ambassador for the Invisible Disabilities Association and Lyfebulb. Sneha is passionate about advancing health care in rural communities, and is an ardent proponent for greater transparency in the patient advocacy space. Tune in as Sneha shares… how she was diagnosed with ulcerative colitis, and what treatment was like in the early stages of her illness that she used the restroom up to 20 times a day in her worst flares that she weighed about 60 lbs during her freshman year of high school that she had a full colectomy in her freshman year of college (removal of her large intestine and colon) that she now lives with a j-pouch and has chronic antibiotic-refractory pouchitis —and is still seeking a viable treatment option for this condition why bowel disease is difficult to discuss as a young adult background on 504 accommodations (disability accommodations for US high school students) how Sneha’s mom has been an advocate for her over the years — and how they’ve become closer as a result how she seeks accommodations for her illness, and the barriers she’s had to surmount to do so her journey to identifying as disabled why she started Health Advocacy Summit the urgent need for peer support among young women with chronic illness, in particular why young adults have such particular needs in terms of disability support, community, and access

Being diagnosed with multiple sclerosis means learning to live with a whole new set of challenges. Rising to meet those challenges and learning how to thrive in spite of those challenges is called resilience. But resilience isn't something that you're necessarily born with. Just like a muscle, resilience is something that you can choose to develop. My guest, Dr. Brandon Beaber, specializes in treating people living with MS and he's the author of Resilience in the Face of Multiple Sclerosis, a book that profiles some of his patients who have demonstrated great resilience in the face of MS  and provides evidence-based tools on how you can develop your personal resilience. I see it as a how-to guide for living better with MS. And we'll tell you how you can get your free copy!       We're also talking about why National Voter Registration Day should be important to everyone affected by MS or any other chronic illness. And we'll tell you where to sign up for the MS Society's upcoming Facebook Live workshop.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   The Progressive MS Alliance at the Ambassadors Ball  :22 Daily Updates from ECTRIMS are Available for Binge-Listening  1:24 Presenting the Case for Adopting the Caregiver Protocol at Stanford Medicine X   1:53 National Voter Registration Day is 9/24...Why That's Important if You're Living with MS  5:26 Register for MS Society's Pathways to a Cure Facebook Live   7:02 Resilience In the Face of Multiple Sclerosis: My Interview with Author Dr. Brandon Beaber  8:16 Subscribe to RealTalk MS or Just Ask Alexa  22:34 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Get Your Free Copy of Resilience in the Face of Multiple Sclerosis by Tweeting Your Request to Dr. Brandon Beaber -- @Brandon_Beaber Give RealTalk MS a Rating & Review  ECTRIMS 2019 Day 1 Update ECTRIMS 2019 Day 2 Update ECTRIMS 2019 Day 3 Update Stanford Medicine X National Voter Registration Day: Register To Vote Join the National MS Society's MS Activist Network Pathways to a Cure Facebook Live Event Registration Give RealTalk MS a Rating & Review  Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 107 Hosted By: Jon Strum Guest: Dr. Brandon Beaber Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, ECTRIMS2019, Brandon_Beaber, RealTalkMS

This week we are featuring a reprise show with Bon Ku, the Assistant Dean for Health and Design and an Associate Professor at the Sidney Kimmel Medical College at Thomas Jefferson University, to talk about design thinking and medicine. Bon is a practicing emergency medicine physician and the founder and director of JeffDESIGN, a first-of-its-kind program in a medical school that teaches future physicians to apply human-centered design to healthcare challenges. Bon has spoken widely on the intersection of health and design thinking (TEDx, South by Southwest, Mayo Clinic Transform, Stanford Medicine X, Association of Collegiate Schools of Architecture) and serves on the Design and Health Leadership Group at the American Institute of Architects. Bon talks with us about what design thinking is, how he got into it, why he thinks physicians would benefit from learning to think in this way, and how to apply it to common primary care challenges, like walk-ins. He also directs listeners to the following resources to learn more about design thinking in medicine: the Stanford Dschool, and ideou. If you like the show, please rate and review us on itunes or stitcher, which makes the show easier for others to find; and share us on social media. We tweet at @rospodcast and are on facebook at www.facebook.com/reviewofsystems. Please drop us a line at contact@rospod.org. We’d love to hear from you.

This week we are joined by Bon Ku, the Assistant Dean for Health and Design and an Associate Professor at the Sidney Kimmel Medical College at Thomas Jefferson University, to talk about design thinking and medicine. Bon is a practicing emergency medicine physician and the founder and director of JeffDESIGN, a first-of-its-kind program in a medical school that teaches future physicians to apply human-centered design to healthcare challenges. Bon has spoken widely on the intersection of health and design thinking (TEDx, South by Southwest, Mayo Clinic Transform, Stanford Medicine X, Association of Collegiate Schools of Architecture) and serves on the Design and Health Leadership Group at the American Institute of Architects. Bon talks with us about what design thinking is, how he got into it, why he thinks physicians would benefit from learning to think in this way, and how to apply it to common primary care challenges, like walk-ins. He also directs listeners to the following resources to learn more about design thinking in medicine: the Stanford Dschool, and ideou. If you like the show, please rate and review us on itunes or stitcher, which makes the show easier for others to find; and share us on social media. We tweet at @rospodcast and are on facebook at www.facebook.com/reviewofsystems. Please drop us a line at contact@rospod.org. We’d love to hear from you.

Today we're going to learn about the oral microbiome and systemic health from Bonnie Feldman, DDS, MBA, Chief Collaboration Officer, DrBonnie360/Your Immunity Connection. With her unique experiences as a healthcare provider, researcher, analyst, scientist, and patient, Dr. Feldman bridges diverse industries and helps propel the growing convergence of science, tech, and patient demand towards individualized autoimmune care through her consulting, writing, and speaking. Dr. Feldman has spoken at TEDx, SXSW, and Stanford Medicine X. Support for GW Integrative Medicine Podcast comes from our sponsor Blis Technologies, makers of advanced oral probiotics for a healthy mouth and throat. Information on how Blis Technologies is transforming health care is at https://blisprobiotic.com/. ◘ Transcript https://www.linkedin.com/pulse/transcript-oral-microbiome-systemic-health-connection-gw-office-of/?published=t ◘ Related Content Dr. Feldman's bio https://drbonnie360.com/meet-the-team/ Visual Annotated Oral Microbiome Research Bibliography https://drbonnie360.com/2018/08/27/oral-microbiome-research-bibliography/ "The Oral Microbiome: The Next Frontier" https://www.slideshare.net/DrBonnie360/discovery-on-target-2018-the-oral-microbiome-the-next-frontier TEDx Talk: "The Single Most Valuable Legacy We Can Pass On" https://www.youtube.com/watch?v=HEF-HP2XE7E Stanford Medicine X: "The Lonely University of Autoimmune Disease" https://www.youtube.com/watch?v=MDUvywZKWsc ◘ This podcast features the song “Follow Your Dreams” (freemusicarchive.org/music/Scott_Ho…ur_Dreams_1918) by Scott Holmes, available under a Creative Commons Attribution-Noncommercial (01https://creativecommons.org/licenses/by-nc/4.0/) license. ◘ Disclaimer: The content and information shared in GW Integrative Medicine is for educational purposes only and should not be taken as medical advice. The views and opinions expressed in GW Integrative Medicine represent the opinions of the host(s) and their guest(s). For medical advice, diagnosis, and/or treatment, please consult a medical professional.

   #091 — From Doctor to CEO: A New Vision for Healthcare Our current healthcare system focuses on the disease, rather than the person. A patient spends a few minutes with a doctor, and then they’re handed a stack of prescriptions that address their symptoms. What if we stopped to ask what was causing the problem in the first place? What if we took the time to look at the whole person and create a customized plan to help them live their happiest, healthiest life? Dr. Robin Berzin recognizes that our current system is broken, and she is on a mission to design a new way of doing healthcare in our country. She made the transition from doctor to CEO to found Parsley Health, a revolutionary kind of service that integrates technology, nutrition, wellness, and prevention into innovative primary care. Today, Robin joins me to share her shift from medicine to entrepreneurship, explaining the series of events that inspired her to create this new system of primary care. She describes her experience running a company as a new mom, navigating the challenges of launching new offices in Los Angeles and San Francisco during her pregnancy and pausing the second round of funding to deliver her son. I ask Robin about the principles of functional medicine, and she discusses Parsley Health’s commitment to the happiness and health of each patient as a whole person. Listen in for Robin’s insight on fertility and IVF—and learn how she is revolutionizing healthcare in the US. FULL SHOW NOTES Get the complete show notes with episode quotes, photos, and time stamps at http://www.startuppregnant.com/091. EPISODE SPONSOR & SPECIAL OFFER Thank you to the sponsor of this episode: Aeroflow Breastpumps. They are dedicated to making the hassle of getting your breast pump a little bit easier—actually, a lot easier! Head to www.aeroflowbreastpumps.com/startup to have them help you qualify for a free breast pump through insurance. All of our sponsor offers are available on our website for you to grab the perks and discounts offered to podcast listeners: http://startuppregnant.com/sponsors. LEARN MORE ABOUT ROBIN BERZIN  Dr. Robin Berzin is the founder and CEO of Parsley Health, the only primary medical care practice with a whole-body approach to long-term health. She completed medical school at Columbia University’s College of Physicians and Surgeons and went on to a residency in internal medicine at Mount Sinai Hospital in New York City. Robin is trained in functional medicine, and she serves as an advisor for digital technology with the Institute for Functional Medicine. She is also a certified yoga instructor and meditation teacher, and Robin speaks regularly on the topic of reinventing healthcare at venues including Stanford Medicine X, Health 2.0, and Rock Health, among many others.  Parsley Health Parsley Health on Facebook Parsley Health on Instagram Robin’s Website Robin on Facebook Robin on Instagram  RESOURCES MENTIONED IN THIS EPISODE Parsley Health Blog Headspace Cureatr

Dr. Robin Berzin, MD is the founder and CEO of Parsley Health. A Summa Cum Laude graduate of the University of Pennsylvania, Robin completed medical school at Columbia University’s College of Physicians and Surgeons, and trained in Internal Medicine at Mount Sinai Hospital in New York City. She has also trained in functional medicine with the Institute for Functional medicine, where she is an advisor on digital technology. In 2011 she co-founded the physician communication app Cureatr and subsequently has advised numerous startups in the health IT space. Dr. Berzin is a certified yoga instructor and meditation teacher, writes for a number of leading health and wellness sites, and speaks regularly for organizations including Stanford Medicine X, Health 2.0, Rock Health, Summit Series, and Further Future, on how we can reinvent health care. Robin believes that we all deserve a functional, whole-body approach to our health and started Parsley Health in order to make this transformative medicine accessible to everyone through better services and smart technology. 

Michael Seres, Founder & CEO, 11 Health Michael Seres, the Founder/ CEO of 11 Health and Technologies Limited, was diagnosed with the incurable bowel condition, Crohn's Disease at the age of 12. After over 20 operations and an intestinal failure, Michael became the 11th person to undergo a small bowel transplant at the Churchill Hospital in Oxford, UK, which included becoming a stoma patient. Additionally, Michael is also a 2-time Cancer patient. In 2013, Michael founded the health tech start up 11 health and has developed sensor technology for ostomy patients. Michael, started blogging about his journey through Bowel Transplant and his blog now has over 100,000 followers. He uses social media to develop global online peer to peer communities: covering over 20,000 patients. He is now the patient lead for the main UK health twitter chat #NHSSM, a member of the NHS England Digital Services user council, a published author and a professional speaker. He is the inaugural e-patient in residence and an executive board member at Stanford Medicine X. Michael helped implement the first skype clinics in Oxford Hospital and is an ambassador to the Doctors 2.0 conference.

Elizabeth Jameson is an artist who specializes in creating a bridge between art and neuroscience. Since being diagnosed with MS, Elizabeth has transformed her brain MRI scans into remarkable and provocative images that challenge how we view the brain, disability, and illness.    In addition to creating her amazing artwork, Elizabeth is an ePatient Scholar and advisor to Stanford Medicine X, and she's written extensively about patient-centered healthcare, design, and the arts.   This week, we're standing at the intersection of art and science with my special guest, Elizabeth Jameson, talking about being an ePatient, embracing our imperfect bodies, and the importance of developing a creative narrative about living with MS. We're also talking about a new theory on the cause of MS, how artificial intelligence may change medical imaging to better detect MS, and how one doctor used a bogus MS treatment to cheat his MS patients and their insurance companies out of thousands of dollars. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Researchers Offer a New Theory on the Cause OF MS  :50 Australian Government Invests in AI Imaging Technique to Better Detect MS  5:54 A Doctor's Bogus MS Treatment Scams MS Patients and Their Insurance Companies  7:45 Market Research Company Recruiting People with Primary Progressive MS to Complete Paid Online Survey  14:19 Interview with Elizabeth Jameson  15:13 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Hypothesis: Multiple Sclerosis Is Caused By Three-Hits, Strictly In Order, In Genetically Susceptible Persons Australian Government Invests in Artificial Intelligence for Medical Imaging California Medical Board Legal Complaint Against Dr. Michael Arlata Jameson Fine Art VIDEO: Elizabeth Jameson at TedxStanford: Learning to Embrace Our Imperfect Bodies Mind On Fire (Elizabeth Jameson's Blog) Share Your Feedback About RealTalk MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 48 Hosted By: Jon Strum Guest: Elizabeth Jameson Tags: MS, MultipleSclerosis, MSResearch, AI, ElizabethJameson, RealTalkMS

Bon Ku, M.D. (@BonKu) is the Assistant Dean for Health and Design and an Associate Professor at the Sidney Kimmel Medical College at Thomas Jefferson University. He is the founder and director of JeffDESIGN, a first-of-its-kind program in a medical school that teaches future physicians to apply human-centered design to healthcare challenges. Bon has spoken widely on the intersection of health and design thinking (TEDx, South by Southwest, Mayo Clinic Transform, Stanford Medicine X, Association of Collegiate Schools of Architecture) and serves on the Design and Health Leadership Group at the American Institute of Architects. In 2016, he received the Health Care Innovators Award from the Philadelphia Business Journal. In addition to all this, he still practices emergency medicine, serving in the Emergency Room 2 nights a week. In this episode, Bon tells the story of his immigrant family beginnings, how he became inspired to turn medical school on its head using Design Thinking, and what he and his program is doing today to solve Philadelphia's biggest health problems. Support Philly Who? Venmo: @podphillywho Donate via Paypal Become a Monthly Patron Purchase a T-Shirt or Hat Become a Sponsor

Liz Salmi joins me this week to share her story of getting diagnosed with a brain tumor and multiple brain surgeries. Her patient advocacy journey includes co-creating an recurring TweetChat in #btsm, speaking at Stanford Medicine X, and advocating for increased research funding with elected officials. We also discuss her role at OpenNotes and the movement to make patient notes more open and accessible. Learn more about Liz and her work at thelizarmy.com and OpenNotes.org. Follow the National Brain Tumor Society for the latest research and advocacy updates. Keep up with the #btsm community on Twitter. And, check out Liz's Ignite Talk at Stanford Medicine X. Run Time - 50:50 Send your feedback to feedback@justtalkingpodcast.com.

Kerri MacKay joins me this week to offer up a primer on the Canadian health system, and discuss the stigma faced by people living with asthma, the challenges she faced getting an ADHD diagnosis, and the joy of seeing "Everyone Included" being fully embraced at Stanford Medicine X this year. Follow Kerri on Twitter @KerriYWG, and check out her blog, kerriontheprairies.com/, and kerrimackay.ca. Run Time - 54:32 Send your feedback to feedback@justtalkingpodcast.com.

Jamia Crockett joins me for a chat about patient advocacy, nostalgia for the Stanford Medicine X community, and most importantly a crash course on multiple sclerosis. We cover Jamia's diagnosis, the expanding treatment options available for someone living with multiple sclerosis, and the tricky nature of invisible illnesses and the concept that some people "don't look sick". Follow Jamia on Twitter at @MamaSissyKat. Run Time - 39:13 Send your feedback to feedback@justtalkingpodcast.com.

How do you work through your caregiving situations at work? Geri Lynn Baumblatt, Executive Director of Patient Engagement at Emmi Solutions, will share her perspectives on how caregiving affects the workplace, drawing on her experiences as she cared for her dad and now cares for her mom. Geri will also share her perspectives as a panelist at our Caregiving and the Workplace Summit on June 2 in Chicago. Register to join us in person or virtually. About Geri Geri Lynn Baumblatt, MA is the Executive Director of Patient Engagement at Emmi Solutions, which produces interactive programs and calls to empower, engage and educate patients and family caregivers. She regularly speaks at patient experience, health literacy, shared decision making, and patient advocate conferences and panels for organizations like AHRQ, The Institute for Healthcare Advancement, Stanford Medicine X, the Society for Medical Decision Making, the Cleveland Clinic, the Beryl Institute, Duke, the Brookings Institute, the ONC, and the Center for Plain Language. She is on the editorial board for the Journal of Patient Experience, a regular contributor to the Association for Patient Experience, hosts an annual Health Literacy blog series, and is an advisor for Roobrik and Helpsy Health. --- Send in a voice message: https://anchor.fm/caring-conversations/message

How do you work through your caregiving situations at work? Geri Lynn Baumblatt, Executive Director of Patient Engagement at Emmi Solutions, will share her perspectives on how caregiving affects the workplace, drawing on her experiences as she cared for her dad and now cares for her mom. Geri will also share her perspectives as a panelist at our Caregiving and the Workplace Summit on June 2 in Chicago. Register to join us in person or virtually. About Geri Geri Lynn Baumblatt, MA is the Executive Director of Patient Engagement at Emmi Solutions, which produces interactive programs and calls to empower, engage and educate patients and family caregivers. She regularly speaks at patient experience, health literacy, shared decision making, and patient advocate conferences and panels for organizations like AHRQ, The Institute for Healthcare Advancement, Stanford Medicine X, the Society for Medical Decision Making, the Cleveland Clinic, the Beryl Institute, Duke, the Brookings Institute, the ONC, and the Center for Plain Language. She is on the editorial board for the Journal of Patient Experience, a regular contributor to the Association for Patient Experience, hosts an annual Health Literacy blog series, and is an advisor for Roobrik and Helpsy Health. --- Send in a voice message: https://anchor.fm/caring-conversations/message

Today we have another guest involved with the Stanford Medicine X and Symplur Signals "Everyone Included Research Challenge," - the co-founder of Symplur itself, Audun Utengen.  As we discussed in last week's podcast, this challenge allows participants to use 'deep data' provided by Symplur to delve into issues relating social media and healthcare.  Listen in to Get Social Health as we discuss Symplur Signals with one of its co-founders. Listen to the podcast or drop in at the links below:   00:49  Introduction 01:34  Ebola 03:38  #power 05:27  Healthcare twitter growth 07:44  Conference analytics 10:04  Premium usage 11:26  Everyone Included Research Challenge 13:50  Project proposal requirements 15:39  Symplur simplified 17:06  The voices! 18:58  Challenge timeline 20:12  Symplur History 23:24  Symplur Privacy 26:20  Twitter stumble strategy 31:04  Has twitter approached you? 34:00  Healthcare civility in the Twittersphere 36:35  Exciting times ahead 37:38  Social Media Tip Todd Eury, Pharmacy Podcast 38:26  Closing Links: LinkedIn Twitter Symplur.com Submit a proposal Symplur Signals Article showing that including patients at conferences increases their social performance

Nick Dawson, Executive Director of Johns Hopkins Sibley Innovation Hub, joins me for a chat about the future of the Affordable Care Act, the continued potential of Stanford Medicine X, his eternal optimism, and tenacious pursuit for patient autonomy and equality in healthcare. There's also a bit about breaking the bowling lanes at the White House. Three different times. Follow Nick on Twitter @nickdawson Run Time - 1:02:07 Send your feedback to feedback@justtalkingpodcast.com.

Andrea Downing joins me this week to offer a primer on BRCA gene mutations, to compare and contrast our perspectives on data sharing, to celebrate patient centered design, and to share experience participating in the IDEO Design Challenge at Stanford Medicine X. Follow Andrea on Twitter @BraveBosom and bravebosom.com. Run Time - 55:28 Send your feedback to feedback@justtalkingpodcast.com.

Rare disease patients are exerting an increasing influence on every aspect of the healthcare continuum and this includes the area of academic research. The Stanford Medicine X conference, held last month, is billed as “an academic conference for everyone.” We spoke to Emma Rooney, patient advocate, storyteller, and 2016 Med X ePatient delegate, about her experience at Med X, her discussions with other rare disease patients there, and the experience rare disease patients have going from children to adults with a rare disease.

This week I'm joined by Ryan Prior for a conversation about Stanford Medicine X, his career in journalism, the growing value of fact checking, his chronic fatigue syndrome diagnosis, and the impact of his documentary, "Forgotten Plague". Follow Ryan on Twitter @r_prior. Learn more about "Forgotten Plague" at forgottenplague.com. Run Time - 45:29 Send your feedback to feedback@justtalkingpodcast.com.

Chethan Sarabu joins me for a conversation about his presentation at Stanford Medicine X 2016 discussing more effective communication opportunities between doctors and children, the diversity of incoming medical students, and how a degree in landscape architecture was his most valuable introduction into medicine. Follow Chethan on Twitter @Chethanr. Run Time - 37:24 Send your feedback to feedback@justtalkingpodcast.com.

Britt Johnson returns to the podcast to discuss her impressions of Stanford Medicine X 2016, share her thoughts on her featured panel on prescribed opioids, and make her case for including chronic pain treatment in the broader Precision Medicine Initiative. Read Britt's recap of her panel on her blog, thehurtblogger.com and follow Britt on Twitter @HurtBlogger.. Run Time - 33:36 Send your feedback to feedback@justtalkingpodcast.com.

In anticipation of Stanford Medicine X 2016, I reflect on some of the past conversations I've had related to and because of the conference and share feedback from the Medicine X event at the White House engaging participants as partners in research in support of the President's Precision Medicine Initiative. For more information about Stanford Medicine X, visit medicinex.stanford.edu and sign up for the free livestream.. Run Time - 38:42 Send your feedback to feedback@justtalkingpodcast.com.

This week I'm joined by Alice Bast, CEO of Beyond Celiac for a conversation about the challenges in achieving a proper celiac disease diagnosis, advocating for greater access to gluten free foods and products, adjusting to gluten free diets being seen as a fad instead of a medical necessity, and her upcoming presentation at Stanford Medicine X. Follow Alice on Twitter @Beyond Celiac and beyondceliac.org. Run Time - 43:50 Send your feedback to feedback@justtalkingpodcast.com.

Allison Ferlito joins me this week for a conversation about the non-existent mafia presence in Rhode Island, her journey joining the diabetes online community, how her perspective on diabetes helped her graduate school writings, and to share a preview of her upcoming panel at Stanford Medicine X. Follow Allison on Twitter @verylightnosuga, and verlighnosugar.com. Run Time - 35:08 Send your feedback to feedback@justtalkingpodcast.com.

Kevin Clauson joins me this week for a conversation about pharmacy school, the appeal of Nashville, translating health and technology trends into teachable opportunities, mobile health, and the broader state of podcasting. We also spend some time discussing the recent Stanford Medicine X event hosted at the White House. Follow Kevin on Twitter @kevinclauson, and check out our podcasting discussion that spawned from this question. Kevin shared his thoughts on the Medicine X event at the White House on kevinclauson.com. Melody Kramer's list of 200 podcast ideas can be found over on Medium. Run Time - 55:23 Send your feedback to feedback@justtalkingpodcast.com.

This week I catch up with Hugo Campos to discuss being recognized by the White House as a Champion of Change for the President's Precision Medicine Initiative, participating in a Stanford Medicine X event at the White House, the power and pursuit of patient autonomy, and the cross-disease benefits of data liberation efforts by various patient communities. Follow Hugo on Twitter @HugoOC. More details about the core principles of the President's Precision Medicine Initiative can be found here. Run Time - 50:50 Send your feedback to feedback@justtalkingpodcast.com.

This week, Charlie Blotner joins me for a conversation about organizing a recent Pop Up Event for Medicine X, the lengthy journey to diagnosing and treating their brain tumor, creating an online space for the brain tumor community to share and learn from each other in #btsm, and their presentation at last year's Stanford Medicine X conference about transgender health. Follow Charlie on Twitter @CBlotner_ and keep up with the latest from the Brain Tumor Social Media feed by following #btsm. Run Time - 1:09:25 Send your feedback to feedback@justtalkingpodcast.com.

Darci Graves joins me this week to talk about her family history with cancer, her own breast cancer diagnosis, and how her personal support network contributed to her health during and after chemotherapy. Additionally, we approach the topic of privilege and access, and how Darci's journey with breast cancer turned into both a book and a presentation at Stanford Medicine X. Follow Darci at @darcigraves and darcigraves.org. Her Stanford Medicine X presentation can be found on slideshare.net, and her book "The Art of Falling Up" is available on amazon.com Run Time - 53:05 Send your feedback to feedback@justtalkingpodcast.com.

This week I'm joined by Emily Bradley to chat about the closure she did and didn't experience at Stanford Medicine X 2015, her pursuit of Physician's Assistant degree, what happens when your patient advocacy stories are brought up during a first date, and My Chronic Pain Secret. Follow Emily at @ChronicCurve or send her an email at chroniccurve at gmail dot com. Run Time - 40:46 Send your feedback to feedback@justtalkingpodcast.com.

In this talk from SMACC Chicago 2015, Larry Chu takes a step back from the clinical side of things to discuss Innovating Medical Education.  Dr Larry Chu is an Associate Professor of Anaesthesiology and the Executive Director of Stanford Medicine X.  Medicine X is an initiative from the Stanford AIM lab. It is a project aimed at promoting new ideas for the future of medicine, healthcare and education using emerging technologies. It focuses on empowering patients to participated in their own healthcare and improving medical education and training to focus more on patient-centered medicine. Each year, Medicine X holds a conference in which they explore theses themes. In 2015 the team from Stanford held a spin-off conference called Medicine X Ed. This conference focused on the future of medical education and the role of technology in educational innovation as well as continuing the theme of the changes that are fundamental for establishing more patient-focused health care.  This conference was held in September 2015. At SMACC Chicago, Larry Chu shared a sneak-peak into some of the exciting medical education innovations that were going to be explored at Medicine X Edu. During his talk, Larry Chu shared insights into why traditional teaching methods don’t work for millennials aka gen Y, the successful educational programs being used in the US for their anaesthetics trainees and new ideas for structuring  the delivery of effective medical education. For all trainees, in particular those with impending exams, and for all teachers/lecturers/educators this is an interesting and thought provoking lecture to listen to! Yet again proving why SMACC is the most dynamic, well rounded, original conference around! 

This week I'm joined by Cathy Collet for a conversation about preparing to speak at Stanford Medicine X, ALS advocacy, the promise of the Ice Bucket Challenge, and the harsh realities of battling a disease like ALS. Follow Cathy on Twitter @ALSadvocacy, and alsadvocacy.com. Run Time - 35:53 Send your feedback to feedback@justtalkingpodcast.com.

After the excitement of Stanford Medicine X 2015, the only natural choice for this week's podcast was to ask the ePatients and attendees to call in and leave their feedback. So that's what I did. Here are some quick thoughts from a diverse group of advocates. Alan Brewington - @abrewi3010 Allison Ferlito - @verylightnosuga Britt Johnson - @HurtBlogger Denise Silber - @docotors20paris Jamia Crockett - @MamaSissyKat Leslie Rott - @LeslieRott Mark Freeman - @thepathtochange Nick Dawson - @nickdawson Run Time - 25:53 Send your feedback to feedback@justtalkingpodcast.com.

In lieu of a traditional episode of Just Talking, I present to you a brief monologue about the expansion of the My Disease Secret platform I've been working on for the past few months, and the upcoming Stanford Medicine X conference in Palo Alto. We'll resume our regularly scheduled interviews and fun next week. Among the links mentioned are: mydiabetessecret.com, mypainsecret.com, and mymentalhealthsecret.com. For more information about Stanford Medicine X, go to medicinex.stanford.edu. Run Time - 7:57 Send your feedback to feedback@justtalkingpodcast.com.

Susannah Fox returns to the podcast this week to talk about her work at the Robert Wood Johnson Foundation, sharing her son's food allergies with Stanford Medicine X, the rewarding challenge of engaging an audience on Medium, and a new exercise in empathy from people impacted by cystic fibrosis. Enjoy. Follow Susannah on Twitter @SusannahFox and susannahfox.com. Run Time - 1:02:19 Send your feedback to feedback@justtalkingpodcast.com.

This week I'm joined by Colleen Young to discuss her keynote panel at Stanford Medicine X, her work as a health community manager, the origins of the weekly #hcsmca chats, and the care required to moderate a community about end-of-life, loss and grief. Enjoy. Follow Colleen on Twitter at @colleen_young and her blog at colleenyoung.com. Run Time - 54:47 Send your feedback to feedback@justtalkingpodcast.com.

Following up on last week's call-in show, I received another batch of impressions from the Medicine X community to share with all of you. Additionally, special guest host, and love of my life Dayle hosts this week's podcast as I share my Medicine X experience with all of you, my dear listeners. Enjoy! For more information about Medicine X and the 2015 ePatient Scholarship Application, visit medicinex.stanford.edu. Special thanks to everyone who called in: @__kerri @txtngmypancreas @drmikesevilla @justagoodlife @meredithhurston @anetto Run Time - 1:05:01 Send your feedback to feedback@justtalkingpodcast.com.

I attended Stanford Medicine X this weekend, a conference billed as the intersection of medicine and emerging technologies. Because the conference took up so much of my time, I didn't have an opportunity to record a traditional podcast. Instead, I asked ePatient scholars to leave a brief comment on their experience. With a little editing magic, here you go. Enjoy! For more information about Medicine X, visit medicinex.stanford.edu. Special thanks to everyone who called in: @CarlyRM @HeatherGabel @MightyCasey @chroniccurve @HurtBlogger @abrewi3010 @anetto @nickdawson Run Time - 19:21 Send your feedback to feedback@justtalkingpodcast.com.

I'm joined by Regina Holliday this week as we talk about art as therapy, art as advocacy, Regina's patient story, and most importantly The Walking Gallery. We also discuss her past experiences at Stanford Medicine X including her keynote presentation in 2012, 2013 Flash Mob, and participation in the #WhatifHC Panel. Enjoy! You can follow Regina on Twitter @ReginaHolliday and reginaholliday.blogspot.com/. Run Time - 34:48 Send your feedback to feedback@justtalkingpodcast.com.

Carly Medosch joins me this week to discuss her experience at Health Datapalooza 2014 in Washington, D.C, her growth as a patient advocate, and upcoming panel presentation at Stanford Medicine X this fall. Enjoy! You can follow Carly on Twitter @CarlyRM and blog.chronicarly.com. Run Time - 27:13 Send your feedback to feedback@justtalkingpodcast.com.

Dr. Larry Chu, Executive Director of Stanford Medicine X and Associate Professor of Anesthesia at Stanford University's School of Medicine is on the podcast this week talking all about the inner workings of Medicine X. We discuss the initial motivations for designing Medicine X, including the other conferences that served as an inspiration and blueprint for what Dr. Chu hoped to achieve. We also cover lessons learned and briefly tease what 2013 has in store. The conversation finishes up with a brief chat about Dr. Chu's life as a doctor and we talk about the most realistic television show revolving around the practice of medicine. Enjoy. Follow Dr. Chu on Twitter at @LarryChu. You can learn more about Medicine X at medicinex.stanford.edu/. Run Time - 59:30 Send your feedback to feedback@justtalkingpodcast.com.