NETs Get Real

This episode we speak with Oncology Dietitian, Rachel C. Miller from the University of Kentucky!Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with Sarah B. White, MD, a professor of radiology in the Division of Vascular Interventional Radiology from the Medical College of Wisconsin!Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak to NET Patient and Advocate, Kris Brazen. He discusses his diagnosis, getting involved with the community, navigating moving all around the country for work while still keeping his treatment regiment, keeping busy, mental health and so much more!Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak to NET Patient and Advocate, Julie DeClercq. She discusses her diagnosis, getting involved with the community, tips for staying positive and mental health! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak to NET Patient, Rosemary Wellner. She discusses the little tweaks she does with her life to stay on a positive track after her diagnosis especially the mental health side of navigating her journey! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak the husband and caregiver for past guest Alexandria Jungling, PJ Jungling! He talks about his perspective on being the support system for a patent going through their NET journey and what he does to keep positive! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with an interventional radiologist, Dr. Charles Nutting, from Image Guided Therapy in Greenwood Village, CO. He talks all about Liver Directed Therapies for NETs! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode of NETs Get Real is an encore presentation of our interactive Livestream Q&A with Leigh Anne Burns, MS, RDN - Nutritionist on September 4th, 2024. About Leigh Anne Burns, MS, RDN A specialist in the area of nutrition support for nearly 30 years, Leigh-Anne earned a BS from Northeastern Louisiana University and an MS from Louisiana Technical University. As a member of The Cancer Center, she joined the statewide disease management team for cancer prevention and early detection. She taught medical students, residents, and fellows various areas of nutrition and participated in both research and patient care in the area of oncology and cancer prevention. She specialized in the clinical practice care of oncology patients for nearly 20 years and has been an vital to the NET community for most of that time. Rapid Transit and Meal Plan discussed in this show: https://drive.google.com/file/d/1Xksz8xIJUa5Mx365Y4tLEguwkOsL3j4o/view?usp=sharingFor more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the returning oncologist from the University of Illinois Cancer Center, Dr. Shikha Jain. She talks all about Carcinoid Heart Disease! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating!For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode of NETs Get Real is brought to you by TerSera Theraputics and ITM Radio Pharma and we speak with Dr. Aman Chauhan from the University of Miami and he shares The Truth About PRRT! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware And visit our sponsors: TerSera Theraputics: https://tersera.com/ ITM Radiopharma: https://www.itm-radiopharma.com/home/

This episode we speak with NET Patient and Author of The Final Victory, Roger Jones. He talks about his aggressive approach to his NET journey, staying active, finding community, his new book The Final Victory and so much more! Order the book at the link below: https://thefinalvictorypreorder.com/ Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient, Alex O'Connor. She talks about her being diagnosis while her away on deployment, her strong support system in the face of adversity, living her life, the importance of getting the right information, her first NCAN conference and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient, Noura Dakka. She talks about her incredible journey of her diagnosis, her strong opinions on second, third and fourth opinions, forging forward in spite of her diagnosis and minsdiagnosises and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with Dr. Michael Demeure from Hoag Medical Group in California talking about his multidisciplinary team, the importance of coming to the NCAN 2024 NET Patient Conference in San Diego and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient, Kelly Baughman. She talks about the journey across the country trying to identify her diagnosis, being shooed by doctors, finally finding the right one moving forward and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with newly diagnosed NET Patient, Christine DuPerry. She talks about the journey as a pharmaceutical professional, diagnosis, support system and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with newly diagnosed NET Patient, April Whetsell. She talks about her journey of being just recently diagnosed, how being a medical professional affected her journey in positive and negative ways, trying to decide her next moves, staying positive, her future as an advocate and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with newly diagnosed NET Patient, Katie Gilmore. She talks about her journey of being diagnosed in the first trimester of her pregnancy, visiting several doctors and trying to decide her next move, staying positive, her future, advocating for herself and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient and Advocate, Ronda Ayala RN about her NET journey, creating the Whipple Warriors, the ins and outs of a Whipple Surgery, her involvement in NCAN and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient and Advocate, Gigi Baker about her NET journey in the height of the COVID-19 pandemic, tips for new NET patients, importance of seeing a NET specialist, being lucky enough to live near a NET Specialty Center and more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the oncologist from UH Cleveland Medical Center, Dr. Amr Mohamed. He talks about the importance of finding a NET specialist, why advocacy is so important and the collaborative efforts doctors in the NET field. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient and leader of the Nebraska NCAN Support Group, Julie Riecken. She talks about her NET journey, her involvement in the NET community, discovering resources and assistance for patients and so much more. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with NET Patient and Advocate, Alexandria Jungling. She talks about the misconceptions of being diagnosed at a young age, doctors unexpected and sometimes unprofessional reactions and so much more. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with Dr. Sam Mehr and Scott Dengenhardt from Nebraska Cancer Specialists, two major point people on the research team about PRRT now and in the future! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the oncologist from the Fox Chase Cancer Center in Philadelphia, PA, Dr. Namarta (Neena) Vijayvergia. She talks all about biomarkers and testing for NETs! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the oncologist from the University of Iowa Dr. Chandrikha Chandrasekharan. She talks all about the importance of a multidisciplinary team and working with centers with high volumes! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with a leader in the NET support community, a mom, a vet, an advocate and a leader of her own chapter of NCAN, Wendy Knoll! We hear all about how her NET diagnosis journey, why she wanted to get so involved with serving the NET community, the upcoming Zebra Gala in Raleigh, NC and so much more! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with a high-grade NET patient, Shari Schultz! We hear all about how her NET diagnosis journey changed her outlook on life and created her philosophy of "Buy the Ticket." Special Guest-Co-Host Maryann Wahmann. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the oncologist from the University of Illinois Cancer Center, Dr. Shikha Jain. She talks all about Cardiac Complications from Neuroendocrine Tumors! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the oncologist from Mayo Clinic in Jacksonville, FL, Dr. Jason Starr. He talks all about Neuroendocrine Cancer Myths, Terms and Facts! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with the founder of NETs Mexico, Michel DeQuevedo! We hear all about his nearly decade-long NET diagnosis journey, finally being diagnosed in 2021, advocating for himself, the lack of information and support available in South America and how his mother inspired him to create NETs Mexico. Find NETs Mexico on all social media platforms @netsmexico and at netsmexico.com Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Eric Liu, Dr. Aman Chauhan and comedian/NET patient Steve Mazan discuss the importance of getting involved in the NET community LIVE from the 2022 NET Patient Conference in Atlanta, GA! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Heloisa Soares joins the show today and talks about the Recurrence Risk in pNETs. She also lets us know about how he got into NETs and other important tips for patients! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Robert Ramirez joins the show today and talks about an Overview of Pulmonary Carcinoid Tumors. He also lets us know about how he got into NETs and other important tips for patients! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware You can contact him at his email: robert.ramirez@vumc.org

Dr. James Howe joins the show today and talks about Management of Small Bowel Neuroendocrine Tumors. He also lets us know about how he got into NETs and other important tips for patients! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Satya Nanu Das joins the show today and talks about PRRT. He also lets us know about how he got into NETs and other important tips for patients! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Dr. Jaydira Del Rivero from NIH in Maryland joins the show today and talks about Identifying Novel Anticancer Drugs for Neuroendocrine Neoplasias or NENs. She also lets us know about how she got into NETs and other important tips for patients! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode highlights our first NET expert that happens to be a patient. At only 11-years-old, Mark Patton was diagnosed with a cancerous lung tumor. He overcame, grew up, lived his life, got married and then 11 months later, at the age of 27 was diagnosed with a NET tumor...15 years later he shares his story of building a family, career, keeping a positive mindset and overall success in spite of living with NETs! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

On this episode we welcome Dr. Michael Soulen, Professor of Radiology at the Hospital of the University of Pennsylvania. He talks about becoming a part of the NETs community over 30 years almost by accident and highlights Liver Directed Therapy. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This episode we speak with a NETs specialist in his own right, Tom Wilson, leader of the Wisconsin Neuroendocrine Cancer Connection Group. In 2015, his wife Lynn was diagnosed with NETs and became heavily involved in her journey navigating the complexities of care and dealing with insurance company denials. Co-author of the book "Negotiate Anything! Secrets to Make Businesses Treat You Fairly," he speaks on the important skills needed to make sure your insurance company will pay for your important treatments. This is a MUST LISTEN episode for so many! Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

This is the relaunch of NETs Get Real! This episode we have Mary A. Maluccio, MD, MPH, FACS talking to us about Clinical Trials and why they are so important. She is Professor of Surgery and Medical Director of the New Orleans Louisiana Neuroendocrine Tumor Specialists program, NOLANETS, a strategic partnership between Louisiana State University and Ochsner Medical Center-Kenner and we couldn't be happier to have her on the show. Please make sure to follow us on your preferred streaming platform and give us a 5 star rating! For more information please go to our website: http://www.netcancerawareness.org and follow us on social media @netcanceraware

Leigh-Anne Burns, RD has practiced medical nutritional therapy for over 20 years. A specialist in the area of nutrition support, she earned a BS from Northeastern Louisiana University and an MS from Louisiana Technical University. She spent fifteen years practicing as a Nutritionist for the E. A. Conway LSU Health Sciences Center in Monroe and serving as an Instructor for there LSU School of Medicine in Shreveport, where she cared for the critically ill, including oncology patients. She has dedicated much effort to cancer prevention and early detection. She teaches medical students, residents, and fellows various areas of nutrition and participates in both research and patient care in the area of oncology and cancer prevention. She has specialized in the clinical practice care of oncology patients, spending much of the last seventeen years caring for patients with neuroendocrine carcinoid cancer. --- Send in a voice message: https://anchor.fm/ncan/message

This interview was recorded live on Zoom with an audience of NET cancer patients and caregivers. In part 2 of the interview, Dr. Chauhan continues his discussion of issues that impact NET patients and answers live questions directly from patients. Dr. Aman Chauhan is board certified in internal medicine and specializes in the treatment of neuroendocrine tumors. He is a member of the medical oncology team at the UK Markey Cancer Center dedicated to multidisciplinary evaluation and treatment. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and non-small cell lung cancer. As Markey's director of NET Theranostics, Dr. Chauhan will identify NET patients who qualify for Lutathera® (Lutetium 177 DOTATATE) treatments for gastroenteropancreatic neuroendocrine tumors. --- Send in a voice message: https://anchor.fm/ncan/message

In this episode, Dr. Chauhan discusses many issues that impact NET patients, including COVID-19. Dr. Aman Chauhan is board certified in internal medicine and specializes in the treatment of neuroendocrine tumors. He is a member of the medical oncology team at the UK Markey Cancer Center dedicated to multidisciplinary evaluation and treatment. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and non-small cell lung cancer. As Markey's director of NET Theranostics, Dr. Chauhan will identify NET patients who qualify for Lutathera® (Lutetium 177 DOTATATE) treatments for gastroenteropancreatic neuroendocrine tumors. --- Send in a voice message: https://anchor.fm/ncan/message

Dr. Eric Liu is an internationally-recognized neuroendocrine tumor surgeon with the Rocky Mountain Cancer Centers in Denver, Colorado. --- Send in a voice message: https://anchor.fm/ncan/message

Dr. Joseph Dillon, an endocrinologist and neuroendocrine cancer expert, is part of the faculty at the University of Iowa Holden Comprehensive Cancer Center, a Center of Excellence for the treatment of NETs. In this show he will be answering some critical questions regarding how neuroendocrine cancer patients can receive the best care possible. --- Send in a voice message: https://anchor.fm/ncan/message