Got Any Spoons?

Of course approaching the one year anniversary of losing someone very important, our thoughts turn to grief. In this episode we discuss grief as it pertains to chronic illness patients and even try to apply it to how the doctor's feel/act.We've also added a resource to every discription which is the most elaborate checklist of symptoms associated with Ehlers-Danlos. You have to school a bit past some technical jargon but the checklist is there and easy to read.  We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comHere is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdfIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Tis the season! What season? Struggle Bus Season! And it doesn't just pertain to Spoonies but Amberlyn and Ann discuss the reality of the struggle and some ways to manage it. Hint: supportive friends and humor. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library. Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your shoes handy and ready to go. And remember that part of prepping is thinking about the worst case scenario. You don't need to plan every detail in the event of a death, but it's a good idea to share basic wishes with your loved ones. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Yes, we're a few days late, but we discussed some "Good News" that was shared on Rare Disease Day, February 29th. We'd love to hear what you think.We also got a new mascot and are in the process of naming them. (We are all inclusive so our mascot uses they/them pronouns.) Listen in to find out who the mascot could possibly be. Big surprise: it's NOT A ZEBRA! We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Ann has experience having a service dog and Amberlyn wants to know more so why not have the discussion on the podcast, right?You may notice the new name: Tale of Two Zebras. Amberlyn aka Mrs. Labeezy and Ann aka Elder Zebra are making this thing official so you'll be noticing our efforts to make this brainchild a reality.  Like so many things involving chronic illness, it will take baby steps and time to fully reach 100% official status. Thank you for joining us on our journey. Glad you're here. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Thank you to our special guest this episode. We had a lot of fun talking about POTS, living with chronic illness, and sharing stories. There were a lot of resources mentioned and I will be adding them to the episode description asap. TBH: It was much harder editing the recording than I expected. It is one thing to live with health challenges, it is another to listen to others validate the experience. Listening back to the recording I was moved to tears and I need some time to process my feelings before finishing all the notes and details for reference. Thank you for your patience and understanding.Very soon we will be doing an official intro to our "new" podcast: The Tale of Two Zebras. Amberlyn and I feel it is a better reflection of our podcast topics and discussions. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Sleep is suppose to be restorative but for EDS Zebras, it is often every but restorative. Who knew there was an illness where sleeping can actually be painful? Pillows quickly become friends. There are also higher risks of serious issues and it is strongly recommended that sleep troubles be discussed with  medical professionals. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. With it being the month of February and Valentines Day in the week, Mrs. Lazbeezy and Ann decided to discuss friendships and the challenges presented by being a spoon.Here's a link to the reel that talked about 8 minute friends: https://www.instagram.com/reel/C3BM8ZkpMIG/?utm_source=ig_web_copy_linkWe gave a shout out to the our TikTok creator friend, eryykc, and his brilliant life hack to remember what he needs to bring with him for the day and how to make sure those items get home. Here's the link to hear his idea from the source: https://www.tiktok.com/@eryykc/video/7332858626647854379?is_from_webapp=1&sender_device=pc&web_id=7173368752716793390Mrs. Labeezy highlighted a Zebra "must have": handwarmers that are rechargeable, don't burn, and are highly portable. Here's a link and she is eligible for commission if you use the link: https://www.amazon.com/dp/B0CMQMYBK7?starsLeft=1&ref_=cm_sw_r_apin_dp_2DQG2WTP3K5B8D7V0KND&th=1 Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at GotAnySpoons@gmail.com

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.Our main topic of discussion this week is mobility aids. It's a hot topic and often a rough one with generational challenges of who, when, & why people should use them.Trigger Warning: we do talk about depression and mention suicidal ideation along with giving specifics to our weight as it relates to some mobility aids.Please visit Mrs. Labeezy's Amazon Link to see our Zebra "Must Haves". She is eligible for a small commission if you purchase by following the link.https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_AQWPX1V8SSS04G2WRF8ALast week I mentioned the Body Braid and shared the video that helps me get the most support out of my braid. I forgot to share a link to purchase the Body Braid, so let me correct that here: https://bodybraid.com/pages/products Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.The episode is a bit random and is a great example of our general randomness dealing with our chronic illness. I had never heard of the Ladle Theory so join in Amberlyn teaching me neat things. Please visit Mrs. Labeezy's Amazon Link to see our Zebra "Must Haves". She is eligible for a small commission if you purchase by following the link.https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_4QNC0KVCS7YE81PGMVVWI mentioned the Body Braid. You can find this product here.Here's the woman who's video who helps me every time I put mine on.https://youtu.be/_WzD6WJ6tQ8?si=jlo1rq_30lwUqGq5 Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Welcome Mrs. Labeezy and the New Year. Had some technical difficulties but we should be good to go both here and on YouTube. Mrs. Labeezy covers the Beighton Scoring System found on the EDS Society website here. We cover some other Zebra basics and have fun relating with our unique zebra experiences. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

To learn more about the origins of the opioid crisis, check out HBO- MAX: The Crime of the Century.You can learn more about Brent David Slone and his wife's fight for justice at https://youarewithinthenorms.com/2022/03/26/they-killed-my-husband-brent-david-slone-2016-cdc-opioid-guidelines%EF%BF%BC/If you want to read about the Elliots' tragic demise, visit https://www.cato.org/commentary/after-crackdown-pain-clinic-tragic-double-suicide Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Mrs. Labeezy and Ann discuss clothing options that have worked to support the bendy zebra bodies. Links to come so check back. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I am so excited to have Mrs. Labeezy back on the show.  I will add links soon so please stop back by if you're looking for those. You can also find Mrs. Labeezy on the clock app.Here is Mrs. Labeezy's "Must Haves" on her Amazon storefront. Check it out:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_A0TB8S5PEQ474SPJKQMH Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It can be a real challenge to stay warm for many who struggle with chronic illnesses and pain. I hope some of the ideas are helpful and would love to hear your best tips and trick to staying warm. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's the most challenging time of the year. I share some of my tips and tricks for the season and I share some brutal truths in my life right now. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I am so excited to have Mrs. Labeezy on the podcast this week. We have big plans to continue working together in the new year.  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Dr. Erin Nance has completed a series for the month of October where each day she covers a diagnosis that disproportionately affects women and is often missed or misdiagnosed as something else.On day 21, Dr. Nance covered MCAS - Mast Cell Activation Syndrome and mentioned its nasty sidekicks it is often with; Ehlers-Danlos Syndrome and POTS/Dsyautonomia.You can find more information about MCAS at GARD - Genetic and Rare Disease Information Center, along with NORD - the National Organization of Rare Diseases. Feel free to look up Ehlers-Danlos while on the sites as it is also classified as rare at this point.  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Depression, I believe, is an unavoidable state for people with chronic illness and pain. It may not visit often or stick around long, but preparing for isn't a bad idea. Keep track of what works for you, note what works for others, and grow your toolbox.  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

There's a lot on my plate right now and things are stacking so I've been seeking ways to mitigate the heavy load when letting it go isn't an option.I address self-care and the challenges learning to love yourself can present if there's some conditioning to battle. Sarah Jarvis covers the Backdraft Effect in this article.Then I go into a discussion of a new trend called Glimmers. They are the opposite of triggers. Here's a brief bullet point I covered to better define a glimmer.I also share a well done (and free) resource on self-care through somatic movement. You can find the article here and it links to the YouTube videos that guide you through the practice.And lastly, I am reinstating the season and episode numbers. I'm not sure when I stopped that or why, but they're back. This is season 4 and great things are on the way. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Y'all, I have so many thoughts on this subject. I literally recorded a full episode every day this week. I did research and wanted to offer something that would be helpful. In the end, the thing I find most helpful is the reason I started this podcast - knowing I'm not alone and spreading love.I know I sound rough and it's appropriate for the week that included two er visits, one complete with an ambulance ride, another funeral of a beloved person in our life, new physical therapy, and weather that challenges the best of them.Dear friend, you are not alone. Not in the darkest of times, ever. I will use a ladder and sit in the well if you need it. Promise me, we'll make a date to watch the sunrise.  Call or text 988 - https://988lifeline.org/ Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Food Allergies are hard at any time of year. And like with most other things, the holidays have a way of ramping up the stress to maximum amounts. I discuss ways to identify food sensitivities, hidden sources, and helpful products.1) The Teal Pumpkin Project2) Alpha-Gal Syndrome3) ALCAT Food Sensitivities Right now there's a great Groupon for a huge discount on this particular test4) Everlywell5) Nima Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Oh how I wish the holidays weren't all about food, but alas - they totally are. I cover some gifts for spoonies as well as some ways to bring back the art of conversation. Which I forgot to mention: Whenever someone asks me "What do you eat then?" I respond with, "My favorite conversation."It's okay not to attend some events. Do what is best for you. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

This time of year can be challenging for the healthiest of people. I offer some tips, tricks, life hacks, and paradigm shifts that I hope are helpful to my fellow spoonies. Also, so food for thought if you are trying to accommodate a special Spoonie in your life.Here are a couple of experience based gift lists:https://www.cosmopolitan.com/style-beauty/fashion/g34565548/best-experiences-to-gift/https://modernminimalism.com/best-experience-gifts-for-kids/https://www.washingtonpost.com/wellness/2022/12/01/gift-guide-disability-chronic-illness/ Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Losing people in the chronic illness community isn't a rare thing, sadly. The story of Stephanie Aston found here in the New Zealand Heard, is especially hard because doctors refused to treat her illness choosing to believe she was making it all up and making herself sick.Ehlers-Danlos Syndrome is so very tricky as it can, and often does, affect the entire body. It likes to jump around and keep everyone on their toes and guessing what body part will hurt most on any given day. It is a difficult beast to treat and there is no cure.I did promise a playlist and here's the link to various music that gets me going, keeps me going, and is not all inclusive.  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I don't know too many people who have cruised through life without enduring a single trauma. For the chronic illness/pain world, there are usually multiple and they often have to do with the medical care/treatment they have received. As I am coming up on a big medical trauma anniversary, I would spare you the details and skip to the helpful parts: self care tips during a trauma flare.I did mention Allison Tennyson @microcatmachine on TikTok. She shares relatable content and a lot of wisdom. I recommend you check out her posts. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

We spoonies have a lot of experiences and going to the ER happens frequently. It can be fraught with triggers and I find it best to have a set of criteria to help make the decision on whether or not to go. I talk about my most recent ER visit and how knowing my body best came into play in a huge way and I hope it encourages others to advocate for themselves because we know our bodies best.I also shared a great quote from the TikTok creator Allison Tennyson:"Being chronically ill does not make you a burdenHaving chronic illness is a burden on you." Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I'm working hard to reduce my stress because stuff is heavy and I need to let it go. What are your tips for reducing stress? I'd love to hear them. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's a bouncing episode going from one thing to the next, not at joined, but sometimes that's life.I talked about questions to ask kids besides "how was school?" Here's the link to the Parent mag article I mentioned.I also mentioned How to Fall Out of Love Madly by Jana Casale. Here's a link to that book. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

it's been a hard summer and I've been in a depression. I talk about a little but try to focus on the path out and resources I've found. One of which is the Cleveland Clinic's National Consultation Service. Here's the link.We also attended the Oley Foundation conference. They have posted some of the main presentations and I encourage everyone to check out this amazing resource. Here's the link.I'm back and looking forward to sharing positive momentum.  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

There are some do's & don'ts with just about anything involving human interaction. Here are a few "best practices" I have implemented in my health journey and they might help others too. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Brené Brown is a great researcher and author with a robust catalog of helpful material. I recently listed to her Audible "Men, Women, & Worthiness" You can follow the link, for which I receive compensation, and give it a listen. You will be happy you did.https://amzn.to/463rdrMThe young lady with a great theory is ChronicallyBee on TikTok. The clip that I referenced was created on 5/5. Here's a link Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's one of those days. Concentration be difficult and the squirrels and bunnies are highly distracting. Have fun my wonderful listeners and enjoy the chaos if just for today.All the love and don't forget to email me for the giveaway:GotAnySpoons@gmail.com Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's been a long time but I may finally have a doctor willing to work with me on a pain relief treatment plan. I am beyond excited and even a tad hopeful. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's been a difficult couple of weeks with my father-in-law passing. I will talk about it in another podcast. Today, I tried to focus on things to get you through this holiday weekend.The first thing I mentioned was making meal time more fun by going for a picnic. Here's the picnic "basket" Mr. Anderson and I picked out.  https://amzn.to/3ovMcm7 We have received it and are super excited to try it out.There are lots of places to find Mason Jar Salad Recipes but just in case you want a link to a resource, here you go: https://amzn.to/45r0Eg1As for crocheting, here's the cool hook set I found with stitch markers, scissors and tapestry needles. I love it! https://amzn.to/3ID471iIf you're wanting to check out Brené Brown's Men, Women, & Worthiness, you can find it following this link: https://amzn.to/45z440k Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I've got a hot take on mental health awareness. Let's be real; as one who has been there, done that - I call bs. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I'm sure if you asked other chronically ill people what the worst part of their illness was, you would get a variety of answers. There are certainly lots of options. For me it is memory loss. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I had another birthday and thought I'd share some what I've learned from my time on the 3 rock from the sun. Enjoy.Just in case you'd like to give The Wobbles a try, here's my share link: Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I am so thrilled to have finally had the opportunity to interview the Greatest Boss of All Time. The manager who helped this spoonie shine like the top of the Chrysler Building. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

If you don't have a living will, advance directive, and a basic will in place, I hope my story gives you the information you need to make it happen sooner than later. You can do this! Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I can be more common than one would like to think that things do go very wrong with medical procedures and such. More than a few times in my life my support system has encouraged me to take action against doctors who caused serious harm. I shared my most recent struggle on TikTok and over 10,000 people watched my 3 minute video about how doctors don't listen. Most of the comments were supportive, some had questions, and some were defending the medical staff. I tried to answer those questions and share my general thoughts on reporting staff that have harmed me. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I've got more tip, tricks, and life hacks to share in this episode. There's also a little soapbox I use to set the record straight regarding handicap car placards and plates. Another mention of some very important resources:PAF -  https://www.patientadvocate.org/NAMAPA - National Association of Medication Access & Patient Advocacy https://namapa.org/Patients Rising - https://www.patientsrising.org/ Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Another Friday is here. Time seems to be flying  by.  Let's get excited for the weekend.I can't say enough positive things about Woobles and how they teach people to crochet. Here's the Woobles Referral Link and get $5 off your first order and I get $5 off my next order. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

I fell down on the job and didn't get the description and links done before this went live. I'm sorry for those who looking for it at its time of relase.I mentioned G-Pact.org and the access cards they offer. Here's the link Click on the "Resources Tab" and the Access Cards are there.I also mentioned OneOme. Here's that link. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's going to be a great weekend. I get to see the Indigo Girls with they symphony. I'm hoping they play Virginia Woolf. I particularly enjoy the live version on the 1200 Curfews album. You can listen here on YouTube. My friend loves White Horse and he introduced me to them with this song: Emerald Isle. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

It's a constant running tally in every Spoonie's head. How many spoons do I have? How many will I need for this activity or that one? Where did all my spoons go?I mentioned FlyLady who can be found here.The following is an affiliated link and I will be compensated should you make a purchase upon following the link.And also Marie Kondo who can be found here: https://amzn.to/3mKS0Hk Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Keeping it positive and finding the fabulous things in life each Friday.Registration has opened for the Oley Foundation Conference. You can find out all about it by following this link. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Figuring out how to stay positive.  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Here's a shot of positive energy. Enjoy! Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com

Medical gaslighting is, sadly, very prevalent in the EDS Zebra community. Now there is science behind the the very real trauma patients experience. Here's the article on ScienceDirect.com  Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com