Podcasts about ehlers danlos

Most people think about heart disease and metabolism when they talk about longevity, but too few talk about joint health. In this episode, you'll discover how to biohack your joints to prevent pain, reverse damage, and move like you're decades younger. Host Dave Asprey reveals how functional movement, core stability, and recovery can transform joint health, helping you maintain pain-free performance for life. Watch this episode on YouTube for the full video experience: https://www.youtube.com/@DaveAspreyBPR Dr. Jason Snibbe is a globally recognized, board-certified orthopedic surgeon and a pioneer in advanced, minimally invasive, and robotic surgeries of the shoulder, elbow, hip, and knee. Fellowship-trained in Sports Medicine and Robotic Joint Reconstruction, he has achieved the lowest complication rate at Cedars-Sinai Medical Center and is the official orthopedic surgeon for the Los Angeles Clippers. He also serves as an orthopedic consultant for the Los Angeles Lakers, Los Angeles Sparks, Los Angeles Angels of Anaheim, and Los Angeles Kings. As a founding and managing partner in DOCS Spine and Orthopedics and Docs Surgical Hospital, Dr. Snibbe lectures and trains surgeons around the world in his specialized techniques. Host Dave Asprey and Dr. Snibbe uncover how weak glutes, poor core engagement, and bad footwear accelerate joint aging, and how functional movement training and fascia care can protect your body from surgery. You'll learn why proper biomechanics are central to human performance and longevity, how hypermobility and fascia impact neuroplasticity, and the latest biohacking tools for recovery and joint regeneration. You'll Learn: • The real cause of joint damage and how to prevent it • How to build a stronger core and glutes for long-term joint stability • Why footwear choices can make or break your movement quality • The truth about fascia, stretching, and strength training • When to use PRP, stem cells, and biologics for healing • How hypermobility affects your joints, brain, and longevity • Daily mobility and recovery habits that prevent future surgery They explore how biologics like PRP, stem cells, and exosomes are changing orthopedic recovery and joint repair, and why functional medicine is moving beyond surgery toward regeneration. You'll hear how precision movement, fascia work, and strength training protect your joints and enhance human performance and longevity. This is essential listening for anyone serious about biohacking, hacking human performance, improving mobility, and extending longevity. You'll also learn how neuroplasticity, metabolism, and brain optimization all connect to the way you move. Dave Asprey is a four-time New York Times bestselling author, founder of Bulletproof Coffee, and the father of biohacking. With over 1,000 interviews and 1 million monthly listeners, The Human Upgrade brings you the knowledge to take control of your biology, extend your longevity, and optimize every system in your body and mind. Each episode delivers cutting-edge insights in health, performance, neuroscience, supplements, nutrition, biohacking, emotional intelligence, and conscious living. New episodes are released every Tuesday, Thursday, Friday, and Sunday (BONUS). Dave asks the questions no one else will and gives you real tools to become stronger, smarter, and more resilient. Keywords: Joint biohacking, Orthopedic regeneration, Functional movement patterns, Core stability training, Glute activation exercises, Fascia mobility, Hypermobility syndrome, Ehlers-Danlos collagen disorder, Foot biomechanics, Pronation and supination, Arch support orthotics, Barefoot gait training, Stem cell joint repair, PRP knee therapy, Exosome orthopedic recovery, Meniscus tear alternatives, Robotic joint surgery, Posture correction, Gait analysis technology, Pain-free longevity Thank you to our sponsors! TRU KAVA | Go to https://trukava.com/ and use code DAVE10 for 10% off. BON CHARGE | Go to https://boncharge.com and use code DAVE for 15% off. OneSkin | For a limited time, try OneSkin for 15% off with code DAVE at https://www.oneskin.co/DAVE Business of Biohacking Summit | Register to attend October 20-23 in Austin, TX https://businessofbiohacking.com/ Resources: • Learn more about Dr. Snibbe's work: https://www.drjasonsnibbe.com/ • Danger Coffee: https://dangercoffee.com/discount/dave15 • Dave Asprey's BEYOND Conference: https://beyondconference.com • Dave Asprey's New Book – Heavily Meditated: https://daveasprey.com/heavily-meditated • Upgrade Collective: https://www.ourupgradecollective.com • Upgrade Labs: https://upgradelabs.com • 40 Years of Zen: https://40yearsofzen.com Timestamps: • 0:00 — Trailer • 1:28 — Introduction • 2:38 — The Kinetic Chain • 9:34 — Core and Glutes • 12:18 — Stretching and Fascia • 17:32 — Sleep and Recovery • 18:49 — Vibration Therapy • 23:47 — Gait and Compensation • 30:47 — Robotic Surgery • 34:28 — Future of Medicine • 39:23 — Footwear Mistakes • 48:48 — Wearables and Tech • 55:13 — Stem Cells and Biologics • 1:01:20 — Final Takeaways See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Dr. Brennan Spiegel, author of Pull: How Gravity Shapes Your Body, Steadies the Mind, and Guides Our Health, reveals how gravity shapes everything from our digestive health to our emotional wellbeing in this fascinating exploration of "biogravitational medicine." He presents the revolutionary concept that conditions like IBS and depression may be tied to how well our body resists gravity.• Gravity resilience refers to how well your body manages Earth's gravitational force• People with hypermobility conditions like Ehlers-Danlos syndrome often experience gut issues when their internal suspension systems are compromised•  The gut hangs from a suspension system like ‘ornaments on a Christmas tree,' and if it weakens, the intestines can sag, leading to digestive issues • Our language around emotions reflects our relationship with gravity – we feel "down" when sad and "up" when happy• Most serotonin (90–95%) is made in the gut with help from our microbiome, where it helps regulate muscles and systems that manage our body's relationship with gravity • Strategies to strengthen gravity resilience • Hypopressive exercises that draw the belly upward can improve internal organ support• The STACK TEN diet focuses on tryptophan-rich foods to support serotonin production• Mental and physical resilience share similar concepts - the ability to "bend without breaking"Check out Dr. Spiegel's new book "Pull" releasing October 7th, which explores how gravity affects human health and how building gravity resilience can help us find balance, stand stronger, and live longer.References and Resources:The Gravity Doctors Podcast LinkBrennan Spiegel MD's book, Pull (This is an affiliate link. We may earn a small commission at no extra cost to you and only recommend products we trust.)Effect of diet on serotonergic neurotransmission in depression. Neurochem Int. 2013;62(3):324-329.Tryptophan-rich diet is negatively associated with depression and positively linked to social cognition. Nutr Res. 2021;85:14-20.J. Wurtman: Brain serotonin, carbohydrate-craving, obesity and depression. Obes Res. 1995;3 Suppl 4:477S-480S.Research on sleep & tryptophan Sleep and Diet: Mounting Evidence of a Cyclical Relationship. Annu Rev Nutr. 2021 Oct 11;41:309-332.Amy Cuddy's paper on "The Power Pose" highlights how adopting confident postures can boost mood, increase self-assurance, and positively influence how others perceive you!Learn more about Kate and Dr. Riehl:Website: www.katescarlata.com and www.drriehl.comInstagram: @katescarlata @drriehl and @theguthealthpodcastOrder Kate and Dr. Riehl's book, Mind Your Gut: The Science-Based, Whole-body Guide to Living Well with IBS. The information included in this podcast is not a substitute for professional medical advice, examination, diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider before starting any new treatment or making changes to existing treatment.

Check out the collection of fidgets Team Shiny loves! Is the 'overdiagnosing' of ADHD, autism, and other neurodevelopmental conditions a 'danger,' and to whom? Isabelle and David continue taking some common myths and misperceptions, questioning who and how we gatekeep 'neurodiversity' (including the idea that maybe there really is no 'neurotypical')--and how one group's fears that these labels harm us cannot negate the fear neurospicy folks have that they will be in trouble, or judged, or stigmatized for being who they are and unmasking. Also using the power of compassion and inviting more conversations, while not jumping to cancelling anyone--because everyone gets to fart in an elevator once or twice. -----Isabelle is coming in hot. She continues to explore her reaction to a podcast episode she listened to recently, Armchair Expert with guest Suzanne O'Sullivan on overdiagnosis, which went from covering seizure disorders to ADHD and autism, especially high-masking autism, real quick.  She is so frustrated that a non-expert on ADHD—someone like O'Sullivan, whose expertise is working with epilepsy and seizure disorders, has now spent so much time talking about ADHD and autism when that is not an area of expertise. David names that he thinks this is an important conversation to have, because we are validating the other perspectives. There is a medical model of disease sets us up to want to oppose or eradicate the ‘disease;' where things like neurodevelopment conditions like ADHD and autism are not something to be ‘cured' or ‘fixed.” David makes the comparison, its like a bunch of people sitting and talking about going to Mexico when no one has ever been there—cultural representation. For example, someone has mild amounts of anxiety throughout the day. They understand this anxiety as having ADHD. They use ADHD interventions to help them and they found a community, and it makes sense and they feel better, it works for them. And then someone comes up with a reason to say that person does not have ADHD, that this definition does not apply—why are we being so careful when it comes to gatekeeping diversity, including neurodiversity?  This wonderful person that David met at a training, named Shay, asked: is there anyone that is neurotypical? We could think of the difference between traits and states. And then he thought about personal examples. He doesn't know if there is someone "neurotypical." Would it to be less shocking that people have different neurological needs or educational differences if we recognized that there may be no 'one' baseline or group to compare everything to? And how quickly we dismiss difference--like knowing that because David listened to books, the argument that what he did was not 'reading'--but we get back to actual question, which is...what was the task, and did it get done?  Often, talking about the fantasy of how ADHD looks or how its supposed to be, it's more about other people. A lot of people with ADHD believe that if its easy for them, they're cheating. Because its supposed to be hard. Do most non-ADHD people think that way?  The debates are now that anxiety, bipolar disorder, OCD—these are neurological differences—they are also looking at causal factors to all these conditions that are not chosen. So is the only person who is ‘normal' the person who has no feelings, reactions, or responses?  Someone who has no big responses to stimuli, someone who is antisocial? Isabelle does fall into the categorizing and black and white thinking, and how its a part of learning, to categorize and generalize. This is not dissimilar to how people talk about race, gender, and about culturally defined parts of experiences because we collectively make them a thing—maybe its myth making and collective storytelling. There is a gravitational pull to the idea of being neurotypical or mentally ‘well' and then there's good and bad. Isabelle wonders where the compassion goes? David speaks up—they have compassion. People are scared. People are scared and when we're scared, we have a reflexive reactions. People have found safety or comfort in the label of ‘normal' or ‘neurotypical,' and they see difference as not good, and they're really trying to, in their mind, help people in their messaging. Terror management theory: when you're scared, you find a group of people who are like you and you band together to be less scared. So, there are a chunk of people out there who are getting very specific about who is in or out of the group.  David can have a lot of compassion for that fear, that fear about who gets to belong. But he also wants to speak to the neurodivergent person who is doing something you tell them will help—and it hurts them? It's a real fear we carry. David uses the example of his mom—bless her heart (see the Southern US use of this phrase on many levels below)—who grew up being told the importance of having arch support in shoes, and so when David had flat feet, she had him use these inserts—David is not blaming his mom, she did the best she could—lots of people are told not to touch things, don't go into the light. Every neurodivergent person has to have the fear “I'm doing this wrong, I'm in trouble, I'm doing something bad!” To little David: you know, you have flat feet, you have more stability around corners—but another voice would say “don't tell anyone you have flat feet, it's bad.” He has compassion for the fear people have that want everyone to be the same, to not stand out or be different, and there is also a fear that neurodivergent people sit with every day about whether or not they're allowed to act the way they act. Isabelle names that the podcasters were saying “oh, these diagnoses are an excuse to then act in ways that are socially awkward.” Ahem. Isabelle describes how this feels like when she describes her inner workings to someone in all the steps she takes when she sits down next to someone, wondering if this is the right physical distance, is she staring at their eyebrows too long, is she pausing appropriately, etc.—and when she unmasks and reveals this, the person considers it a compliment to say “I couldn't tell.” It's the idea that someone outside of you knows more about your experience than you do. The way that diagnoses connect to power and gatekeeping for services and Isabelle makes the point that those who are saying “over diagnosis is dangerous”—to whom? On what planet are folks who are neurospicy getting enough of the supports and services and resources and access that they need? The system is already failing most of us. David names: this isn't cancer, this isn't people getting chemo erroneously. There is no danger in identification, it's about getting our needs met. What do we do as a society to neglected people, and the more you know about your needs, the less of a danger being neglected becomes. This is a question of someone who knows a lot about things wandered over into another area and made bold statements without the expertise. Isabelle was extra miffed that she also dismissed the intersections of Autism, ADHD, POTS, hyper mobile Ehlers Danlos, and MCAS and ‘nonexistent' —so damaging and harmful. These are real things, the interconnectedness of them is being actively researched, just because you are new to the party does not make something false or untrue. As David puts it, in the 70's or 80's, the APA took a vote to decide if being gay was good or bad, essentially (“do we keep gayness as a disorder?” Yes folks, this was that recently. GAH.). Now imagine someone was asleep for ten years and missed that memo and is now walking around looking at pride flags wondering “why are there so man...

Pamela from the United States shares her journey with hypermobile Ehlers-Danlos syndrome (hEDS) and mast cell activation syndrome (MCAS), detailing how Low Dose Naltrexone (LDN) transformed her quality of life.She recalls being frequently ill as a child with chronic sore throats, fevers, and unexplained rashes, treated repeatedly with antibiotics, which left her with long-term side effects. In adulthood, she experienced worsening joint pain, migraines, back and neck problems, and multiple orthopedic challenges, especially after childbirth and through menopause.After learning about LDN from Ehlers-Danlos support groups and a physiatrist, Pamela started treatment at 0.5 mg, later increasing to 3 mg. Initial side effects (constipation and nausea) subsided after two weeks, followed by significant improvements in pain levels, energy, and immune function—she hasn't caught illnesses that previously plagued her.She describes a clear decline when she was off LDN for 11 days, reinforcing its benefits. Pamela now enjoys more stability, less pain, better post-menopause symptoms, and greater day-to-day functionality.Her advice: LDN is worth trying for chronic pain and autoimmune-related conditions, as it may improve both symptoms and general health with minimal side effects for most people.

Welcome back to the Mortal and Strong podcast! In this episode, Dr Liz is joined by the wonderful soul that is Holly. Holly shares her story of chronic health issues, beginning all the way in childhood when her chronic pain first set in. Holly talks frankly about her Ehlers-Danlos syndrome (EDS), hyper-mobility, Atrial Fibrillation (AF), and cluster headaches. She candidly shares what it's truly like living with these conditions, while also managing to remain hopeful, positive and finding continuous joy in the every day!Holly also tells of her heart wrenching experience of Meningitis; from the very first symptoms, the long wait to be diagnosed, all the way up to now... 5 years on. She shares her raw insight into experiencing this major brain infection, and importantly shares how an illness like Meningitis doesn't end when you leave the hospital. Holly discusses life after meningitis, recovery, and tells Dr Liz of how she is a completely different person than she was before. Holly is a perfect example of what it means to be Mortal and Strong, and we are so thankful to her for being another wonderful Voice for our Scars of Gold campaign!Scars of Gold is a health awareness campaign sharing the voices of 100 women facing their mortality at a young age with life changing or incurable health conditions. Produced by charity @mortalandstrong (No.1209448).#podcast #podcastprevious #interview #mortalandstrong #scarsofgold #kintsugi #meningitis #eds #ehlersdanlossyndrome #cardiacarrhythmia #artialfibrillation #hypermobility #chronichealth #chronicpain Hosted on Acast. See acast.com/privacy for more information.

Host: Darryl S. Chutka, M.D. Guests: Christopher Francois, M.D. The risk of thoracic aortic dissection increases as the diameter of the aorta widens. A diameter greater than 5 cm is associated with an increased risk of dissection in the general population. Patients with Marfan Syndrome have defective connective tissue and dissection commonly occurs with diameters less than 5 cm. Other health conditions associated with aortic dilation and potential dissection include Ehlers Danlos and those with bicuspid aortic valves.  It therefore becomes extremely important to accurately assess the aorta. Fortunately, we now have a variety of imaging tools available and several of these tools are relatively new. My guest for today's podcast is Dr. Christopher Francois, from the Department of Diagnostic Radiology at the Mayo Clinic and he'll bring us up to date regarding the most recent imaging techniques as we continue our series on vascular medicine. We'll discuss who's at risk for an aortic aneurysm, when some of the more traditional imaging is indicated and when we should consider some of the newer imaging tools. Mayo Clinic Talks: Vascular Medicine Series | Mayo Clinic School of Continuous Professional Development Connect with us and learn more here: https://ce.mayo.edu/online-education/content/mayo-clinic-podcasts 

We break down pneumothorax: risks, diagnosis, and management pearls. Hosts: Christopher Pham, MD Brian Gilberti, MD https://media.blubrry.com/coreem/content.blubrry.com/coreem/Pneumothorax.mp3 Download Leave a Comment Tags: Chest Trauma, Pulmonary, Trauma Show Notes Risk Factors for Pneumothorax Secondary pneumothorax Trauma: rib fractures, blunt chest trauma (as in the case). Iatrogenic: central line placement, thoracentesis, pleural procedures. Primary spontaneous pneumothorax Young, tall, thin males (10–30 years). Connective tissue disorders: Marfan, Ehlers-Danlos. Underlying lung disease: COPD with bullae, interstitial lung disease, CF, TB, malignancy. Technically, anyone is at risk. Symptoms & Differential Diagnosis Typical PTX presentation: Dyspnea, chest pain, pleuritic discomfort. Exam clues: unilateral decreased breath sounds, focal tenderness/crepitus. Red flags (suggest tension PTX): JVD Tracheal deviation Hypotension, shock physiology Severe tachycardia, hypoxia Differential diagnoses: Pulmonary: asthma, COPD, pneumonia, pulmonary edema (SCAPE), ILD, infections. Cardiac: ACS, CHF, pericarditis. PE and other acute causes of dyspnea. Diagnostics Bloodwork: limited role, except type & screen if intervention likely. EKG: reasonable given chest pain/shortness of breath.

Holly Griffin is an inspiring woman based in Atlanta, originally hailing from the vibrant city of Las Vegas, Nevada. After spending significant time in the bustling streets of New York City, Holly has embraced her unique journey as a yoga-teaching hairdresser, blending her passion for wellness and creativity into her daily life. Despite facing the challenges of Sjögren's syndrome, Ehlers-Danlos syndrome, and Lupus, Holly remains a beacon of positivity, navigating her health struggles with resilience and grace. Her early experiences, including two unexpected strokes that left medical professionals puzzled, have only strengthened her resolve to live life fully. When she isn't working her magic with hair or sharing her journey on TikTok, Holly cherishes quality time with her beloved pups, family, and friends. She believes in the power of connection and community, finding solace in the support of those around her. With each day, Holly continues to inspire others with her uplifting spirit, demonstrating that even on the toughest days, joy and laughter can be found in the simplest moments.   Her TikTok https://www.tiktok.com/@holly_halina?_t=ZT-8zAvGIiygU2&_r=1

Hi and welcome to How Humans Heal. I'm Dr. Doni Wilson, and today I'm excited to introduce you to Jane Hogan, a functional medicine certified health coach and wellness educator. She's the author of the best-selling book "Pain-Free on Purpose." I love that name. The subtitle is "Use Your Mind to Heal Your Body and Get Your Life Back," which sounds amazing and so helpful. I can't wait to hear all about this new book. I was sharing with Jane, and a lot of the How Humans Heal listeners know my story and health journey - I spent so many years in pain - pain migraines, and from having Ehlers Danlos syndrome and joint hypermobility, as well as pain from chronic arthritis. So I understand what it's like to be in pain and how it feels to want to get out of pain. Often as humans, we have not just physical pain but emotional pain, and often they go together. When we are in physical and emotional pain, we tend to reach for substances to get us out of pain, even if it's temporarily, and even if there are side effects or addictions. What Jane is here to share with us is how she was able to get herself out of pain without medications, and without side effects or addictions. We're here to help you! LINKS FROM THE EPISODE:   Rewire for Relief Webinar: https://www.thewellnessengineer.com/a/2148118558/BdFiTEQq    Pain-Free on Purpose Book Promotion: https://www.thewellnessengineer.com/a/2148129908/BdFiTEQq    Take Dr. Doni's Stress Type Quiz: https://doctordoni.com/quiz/stress-quiz/   Menopause Program with Dr. Doni: https://dv296.infusionsoft.com/app/orderForms/Menopause    Sign up For Dr. Doni's Masterclasses: https://doctordoni.com/masterclasses/    Schedule A Chat With Dr. Doni: https://intakeq.com/new/hhsnib/vuaovx    Read the full episode notes and find more information: https://doctordoni.com/blog/podcasts/ MORE RESOURCES FROM DR. DONI:   Quick links to social media, free guides and programs, and more: https://doctordoni.com/links     Disclosure: Some of the links in this post are product links and affiliate links and if you go through them to make a purchase I will earn a commission at no cost to you. Keep in mind that I link these companies and their products because of their quality and not because of the commission I receive from your purchases. The decision is yours, and whether or not you decide to buy something is completely up to you.

https://frequencyspecific.com    https://fsmsports365.com Carolyn McMakin, MA, DC - contact @ frequencyspecific.com Kim Pittis, LCSP, (PHYS), MT - info @ fsmsports365.com 01:50 Custom Care Mode Bank Updates 03:25 Discussion on Joint and Extremity Protocols 09:58 Lymphatic System and Infections 17:11 Root Canal Issues and Dental Health 24:00 Radiation Treatment and Side Effects 31:55 Introduction to Practitioner Types and Black Box Protocols 32:38 Case Study: Kathleen's Nasal Surgery and Mold Exposure 33:10 Mold Nasal Spray Recipe and Treatment 36:34 Discussion on Binders and Mold Colonization 48:54 Parasites and Their Impact on Health 57:29 Masterclass Announcement and Conclusion Revisiting Treatment Protocols Due to evolving knowledge and practical advancements, it is crucial for practitioners to continuously update their FSM treatment protocols. Recently, significant updates were made to the FSM standard protocols, with new additions designed to address various health concerns. These include comprehensive protocols for conditions like Ehlers-Danlos syndrome, which incorporate frequency combinations such as 40 and 10 to optimize treatment duration and efficacy. Targeting Joint Health New considerations suggest separating protocols for acute and chronic conditions affecting extremity joints. Practitioners should consider whether to maintain generalized protocols or expand categories to include specific injury types, such as ankle sprains or shoulder injuries. This specificity can make FSM applications more targeted and effective for patient recovery. Addressing Infections and Lymphatic Health Managing infections with FSM involves understanding the underlying issues that exacerbate conditions like swollen and sore lymph nodes. Practitioners should assess any historical surgical interventions, like tonsillectomies, and consider potential infections as underlying causes. Comprehensive evaluations, including complete blood count (CBC) tests, are recommended to determine appropriate FSM interventions or the necessity of traditional medical treatments, such as antibiotics. Supporting Post-Radiation Recovery FSM practitioners must carefully consider the specific needs of patients undergoing or recovering from radiation treatments. Reducing inflammation and preventing scar tissue formation are critical. FSM treatments should focus on collateral tissue damage in areas affected by radiation, like the bladder or rectum, and utilize specific frequencies to minimize pain and promote healing without enhancing tumor growth. Managing Parasites and Mold Exposure Practitioners encountering patients with parasite-related conditions or mold exposure must employ FSM as part of a broader treatment strategy. While FSM can modulate symptoms, it is essential to combine it with appropriate pharmaceutical or holistic interventions. Soucing effective antifungal nasal sprays and utilizing oral binders like Chlorella or bentonite clay can significantly support patient recovery. Dealing with Cardiac Arrhythmias In cases of atrial fibrillation or supraventricular tachycardia, especially those with a traumatic onset, FSM can play a vital role in treatment. Practitioners should concentrate on optimizing vagus nerve function to stabilize heart rhythms. Continued treatment and careful adjustment of frequencies—particularly those associated with the vagus nerve—may help decrease arrhythmic episodes and improve heart health. Implementing FSM into medical practice requires an ongoing commitment to learning and adapting treatment protocols to meet the diverse needs of patients. Through continuous education and the refinement of techniques, practitioners can leverage FSM to address complex medical issues effectively, ultimately enhancing their practice and patient satisfaction.

In this special bonus episode, Dr. Linda Blustein (Bendy Bodies https://bit.ly/m/BendyBodies) addresses listener questions about Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders. 00:00 – Introduction 00:59 – Can PCPs diagnose hEDS without a geneticist? 03:19 – Limitations of the Beighton Score 05:40 – 2017 hEDS criteria & upcoming revisions 10:29 – How to find a knowledgeable provider 12:52 – SVT vs POTS in a patient with EDS family history 19:53 – How to ask your provider if they're comfortable treating dysautonomia 22:17 – MTHFR variants and hEDS 29:23 – Celiac, gluten sensitivity & EDS 31:48 – Food allergy vs sensitivity testing 34:11 – Lipoedema and hypermobility 39:00 – LDN, Ketotifen, and Cromolyn 43:41 – Medication sensitivity in EDS/POTS/MCAS patients 45:47 – Wrap up and resources ​FIGS Get 15% off your first order at wear figs.com with the code FIGSRX Locumstory ​Locumstory.com is simply a free, unbiased educational resource about locum tenens Grammarly Download Grammarly for free at Grammarly.com/PODCAST

On this transformative episode of the “Better Than Fine” podcast, host and wellness coach, Darlene Marshall, helps us rethink everything we know about self-care. Tired of the endless influencer-driven trends, fluffy hashtags, and the message that wellness is something you buy? Darlene takes us back to the roots, uncovering how self-care originated in social justice and chronic illness spaces, and how it became a commodity in recent years. Darlene shares her personal journey with Ehlers Danlos syndrome and explains why real self-care isn't found in supplements or spa days, but in consistently meeting your foundational needs. Using a fresh, evidence-based approach, she introduces the powerful concept of applying systems thinking—typically used in business and design—to your own wellbeing. Discover how habits, routines, and feedback loops can work together to support your physical, emotional, and higher order needs without cognitive overload or decision fatigue. You'll learn why self-care isn't selfish and how it enables you to show up more powerfully for yourself and others. Darlene walks through Maslow's hierarchy of needs with a twist: it's not about climbing a pyramid but sending ripples of positive impact out into the world, starting with the essentials like sleep, nutrition, and boundaries.Packed with practical tips and compassionate insights, this episode is a must-listen for anyone ready to reclaim self-care from marketing trends and build lasting, meaningful systems for a better, more balanced life. If you like what you just consumed, leave us a 5-star review, and share this episode with a friend to help grow our NASM health and wellness community! The content shared in this podcast is solely for educational and entertainment purposes. It is not intended to be a substitute for professional advice, diagnosis, or treatment. Always seek out the guidance of your healthcare provider or other qualified professional. Any opinions expressed by guests and hosts are their own and do not necessarily reflect the views of NASM. Introducing NASM One, the membership for trainers and coaches. For just $35/mo., get unlimited access to over 300 courses, 50% off additional certifications and specializations, EDGE Trainer Pro all-in-one coaching app to grow your business, unlimited exam attempts and select waived fees. Stay on top of your game and ahead of the curve as a fitness professional with NASM One. Click here to learn more. https://bit.ly/4ddsgrm

In this conversation, Augustine Colebrook shares her journey as a midwife and functional medicine specialist, discussing her experiences in India and the challenges faced in maternity care. She delves into her personal health struggles, discovering the carnivore diet, and how it transformed her health. Augustine emphasizes the importance of nutrition, particularly for pregnant women, and advocates for a high-fat, high-protein diet to support maternal and fetal health. The discussion also touches on the impact of dietary choices on chronic illnesses and the need for a shift in understanding nutrition.Follow her on her IG - @carnivoremidwife

Follow Amanda's journey on Instagram @chronically._.creative and discover how art becomes both healing and revolutionary in the hands of someone determined to increase representation through creativity.-From the 2025 Abilities Expo in Chicago comes a powerful SpeedCast that packs an emotional punch in just under eight minutes. Meet Amanda Peters, the creative force behind "Chronically Creative," whose journey through over 100 surgeries has transformed into an artistic mission to increase wheelchair representation in digital art.Amanda candidly shares her life with spina bifida, Ehlers-Danlos syndrome, and hydrocephalus—challenges that kept her frequently hospitalized yet sparked a creative awakening. "I started getting into design once I entered a bit more of a healthy era," she explains, noting her disappointment at the scarcity of wheelchair-inclusive artwork despite millions of Americans who use mobility devices. What makes Amanda's art distinctive is her digital approach. Using an iPad with a stylus, she overcomes hand tremors through digital filtering tools, allowing her to create whenever inspiration or health permits. This adaptive technique emerged during COVID when she found herself with fewer surgeries and more creative energy. Her mother introduced her to crafting as therapy—a way to focus on creation rather than pain.Perhaps most striking is Amanda's perspective, summed up by her t-shirt: "Chronically ill, I prefer medically fascinating." This outlook culminates in her parting wisdom that resonates far beyond disability communities: "Try to take different risks and do new things, even if you're not quite sure you're going to be able to do it, because chances are you're going to be surprised at what you actually are capable of." 

https://frequencyspecific.com Carolyn McMakin, MA, DC - contact-at-frequencyspecific.com Kim Pittis, LCSP, (PHYS), MT - info-at-fsmsports365.com 00:25 Case Study: Ehlers-Danlos Syndrome 04:44 Case Study: Cavernous Hemangioma 09:35 Case Study: Mysterious Weight Loss 10:25 Technical Difficulties and Patient Expectations 15:34 Running and Patient Care Analogies 21:39 Emotional Challenges in FSM Practice 31:13 Unexpected Osteoporosis Diagnosis 32:00 Gratitude for the FSM Community 34:16 Achilles Tendon Pain and Treatment 41:20 The Magic of Frequency 124 46:19 Exploring the Sarcomere and Connective Tissue 49:47 Fascia and Nerve Connections 54:48 Upcoming Events and Conferences **Understanding and Addressing Hypermobility** Hypermobility can often be an elusive factor, affecting conditions like anxiety and digestive difficulties. One approach is to start with physical assessments that reveal a patient's range of motion issues, such as hypermobility in the joints, which can be linked to underlying conditions like Ehlers-Danlos Syndrome. Treatment can focus on using FSM to manage symptoms by targeting body pain and anxiety through precise frequency combinations, considering the biochemical and physical aspects of the patient's issues.  **Managing Cavernous Hemangioma and Stroke Recovery** When dealing with patients recovering from strokes, especially when there are complications from conditions such as cavernous hemangioma, FSM can assist in addressing nervous system injuries. By using experimental frequencies aimed at promoting neural recovery, practitioners can help reduce facial spasticity and overall body tightness. This approach emphasizes the importance of understanding brain anatomy and leveraging FSM to stimulate appropriate brain functions. **The Mysterious Weight Loss Case** Managing complex cases like unexplained weight loss after childbirth requires comprehensive analysis beyond standard fibro and spine pain diagnoses. Practitioners should consider underlying conditions such as osteoporosis and employ FSM not just for symptomatic relief but also for targeting potential anatomical issues causing the discomfort. The approach prioritizes a balanced nutritional plan to support recovery alongside FSM-based interventions. **Building Practitioner-Patient Relationships** A significant aspect of applying FSM successfully is the development of a strong practitioner-patient relationship. By explaining the interconnectedness of different bodily systems and setting realistic expectations, medical practitioners can provide valuable reassurance to their patients. It's crucial to communicate the patient's role in their treatment progress and ensure they understand the reasoning behind each step in their care. **Innovations in Pain Management** For pain management, particularly in sports injuries or post-exercise recovery, FSM provides a way to explore non-invasive treatments that focus on reducing delayed onset muscle soreness (DOMS) and enhancing muscle healing. Practitioners can utilize FSM tailored to specific muscle structures and response patterns, encouraging athletes and active patients to incorporate this technology into their recovery routines.

Is Scoliosis Hereditary? Exploring the Genetic Link and Why It May Not Matter for Treatment Receiving a scoliosis diagnosis often sparks a cascade of questions:“How did I get this?”“Did I inherit it?”“What can I do about it?” In this episode of the Scoliosis Treatment podcast, Dr. Tony Nalda breaks down one of the most common concerns—whether scoliosis is hereditary—and explains why discovering the “why” may not always impact how we treat the condition. Family History vs. Genetic Cause Patients frequently share that scoliosis “runs in the family.” But does that mean it's genetic? Dr. Nalda explains that scoliosis tends to cluster in families, but no single gene has ever been definitively linked to idiopathic scoliosis. Even identical twins—who share the exact same DNA—may have different outcomes, with one developing scoliosis and the other not. This strongly suggests that while there may be hereditary tendencies, scoliosis is not directly caused by genetics alone. Different Types of Scoliosis (And Their Causes) To understand where heredity may play a role, it's important to look at the four main types of scoliosis: Idiopathic Scoliosis Makes up 80% of cases Cause: Unknown (idiopathic) Most often seen in adolescents Believed to be multifactorial, possibly involving environmental, developmental, and minor genetic influences Neuromuscular Scoliosis Associated with conditions like cerebral palsy, Marfan syndrome, or Ehlers-Danlos syndrome More likely to have a genetic or systemic origin Congenital Scoliosis Present at birth due to malformed vertebrae (e.g., hemivertebra) Truly genetic/developmental in nature Degenerative or Traumatic Scoliosis Caused by injury or wear and tear Often appears in adulthood Not hereditary—these result from physical changes over time Why “Cause” Doesn't Always Change the Outcome Dr. Nalda uses a powerful analogy: “If an earthquake causes a building to collapse, we may study the cause—but the most urgent need is to rebuild the structure.” Similarly, scoliosis—regardless of the cause—becomes a structural problem that must be corrected. Many cases are diagnosed long after the original cause (if any) occurred, and chasing the “why” doesn't usually change how the curve affects the spine today. Can Idiopathic Scoliosis Be Treated Without Knowing the Cause? Yes.Dr. Nalda emphasizes that effective scoliosis treatment doesn't depend on knowing the exact cause. At the Scoliosis Reduction Center, idiopathic cases are treated with a multimodal approach, including: Scoliosis-specific chiropractic care Customized physical therapy and rehab Scoliosis-specific exercises Corrective bracing These strategies focus on correcting the structural changes in the spine—not just the symptoms—and help stop curve progression over time. Bottom Line: Focus on the Solution, Not Just the Source While the question "Is scoliosis hereditary?" is understandable, the better question might be: What can I do now to manage it? Whether the root is genetic, environmental, or unknown, scoliosis can be treated effectively—especially when addressed early and proactively.

In this episode of the Healthy, Wealthy, and Smart Podcast, host Karen Litzy welcomes Dr. Linda Bluestein, a recognized expert in hypermobility disorders and founder of Hypermobility MD and Bendy Bodies Podcast. Dr. Blustein shares her journey with hypermobility, detailing how health issues impacted her early aspirations of becoming a ballet dancer. After years as an anesthesiologist, she discovered her connection to connective tissue disorders, which led her to focus on this patient population. Together, Karen and Dr. Bluestein dive into the complexities of hypermobility disorders, the importance of research, and the support available for individuals affected by these conditions. Tune in for valuable insights and information that can help those navigating hypermobility disorders.   Time Stamps:  [00:01:27] Personal journey to hypermobility focus. [00:05:00] Joint hypermobility disorders explained. [00:10:43] Generalized joint hypermobility assessment. [00:12:22] Ehlers-Danlos syndrome overview. [00:15:52] Patient education on EDS concerns. [00:19:40] Connective tissue and its importance. [00:25:08] Research funding for EDS. [00:29:27] Misconceptions about hypermobility and talent. [00:30:59] Forced hypermobility in dancers. [00:34:27] Chronic pain and validation. [00:38:20] Treatment for connective tissue disorders. [00:42:05] Importance of recognizing hypermobility. [00:47:40] Believe in yourself. [00:48:42] Self-compassion and personal growth.   More About Dr. Linda Bluestein, MD: Dr. Linda Bluestein, MD, is a multifaceted professional renowned for her expertise in hypermobility disorders. As the founder of Hypermobility MD, she offers specialized medical care to individuals grappling with these conditions. Additionally, Dr. Bluestein is the driving force behind Bendy Bodies, a worldwide coaching practice aimed at empowering and supporting individuals with hypermobility.  Her influence extends beyond clinical practice. Dr. Bluestein is the founder and host of the esteemed podcast, "Bendy Bodies with the Hypermobility MD," where she shares valuable insights and resources, enriching the lives of her audience.  Dr. Bluestein's dedication to advancing knowledge and awareness of hypermobility disorders is evident in her extensive publications and international lectures. Notably, she contributed two chapters to the influential book, "Disjointed – Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders."  In addition to her clinical and coaching endeavors, Dr. Bluestein actively engages in advocacy and research. She serves on the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Medical Advisory Board for Standing up to POTS, and the Board of Directors for both the Bridge Dance Project and EDS Guardians.   Dr. Bluestein's commitment to education and mentorship is exemplified through her involvement in initiatives such as the creation of the first online EDS Continuing Medical Education (CME) program with Chronic Pain Partners. She also volunteers as a medical consultant for the organization.   As an assistant professor at the Medical College of Wisconsin, Central Wisconsin, Dr. Bluestein has played a pivotal role in directing the RISHI Healer's Art Program, nurturing compassionate healthcare providers.  For more information about Dr. Bluestein and her comprehensive approach to hypermobility care, please visit her website at www.hypermobilitymd.com. Resources from this Episode: July 17th Jane Q&A Webinar Bendy Bodies Podcast Dr. Bluestein on Instagram Dr. Bluestein's Website Dr. Bluestein on Substack Dr. Bluestein on TikTok Dr. Bluestein on X Dr. Bluestein on YouTube   Jane Sponsorship Information: Book a one-on-one demo here Mention the code LITZY1MO for a free month   Follow Dr. Karen Litzy on Social Media: Karen's Twitter Karen's Instagram Karen's LinkedIn   Subscribe to Healthy, Wealthy & Smart: YouTube Website Apple Podcast Spotify SoundCloud Stitcher iHeart Radio

Gigi Robinson grew up with Ehlers-Danlos syndrome, a disease that turns your joints into overcooked spaghetti. Instead of letting it sideline her, she built a career out of telling the truth about invisible illness. We talk about what it takes to grow up faster than you should, why chronic illness is the worst unpaid internship, and how she turned her story into a business. You'll hear about her days schlepping to physical therapy before sunrise, documenting the sterile absurdity of waiting rooms, and finding purpose in the mess. Gigi's not interested in pity or polished narratives. She wants you to see what resilience really looks like, even when it's ugly. If you think you know what an influencer does, think again. This conversation will challenge your assumptions about work, health, and what it means to be seen.RELATED LINKSGigi Robinson Website: https://www.gigirobinson.comLinkedIn: https://www.linkedin.com/in/gigirobinsonInstagram: https://www.instagram.com/itsgigirobinsonTikTok: @itsgigirobinsonA Kids Book About Chronic Illness: https://akidsco.com/products/a-kids-book-about-chronic-illnessFEEDBACKLike this episode? Rate and review Out of Patients on your favorite podcast platform. For guest suggestions or sponsorship inquiries, email podcast@matthewzachary.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

KEY LINKS:  Learn more about sepsis HERE  Listen to Jackie's 1:20 Podcast HERE  Connect with Jackie on Instagram HERE  Jackie's GoFundMe page is HERE  What does it really mean to start over—after nearly everything has been taken away?  In this powerful and deeply inspiring conversation, I talk with journalist and advocate Jackie Duda, who shares her extraordinary journey through chronic illness, disability, and survival. Once a thriving writer, Jackie's life took a sharp turn when she was diagnosed with autoimmune and connective tissue disorders including Hashimoto's thyroiditis, Crohn's disease, POTS, and Ehlers-Danlos syndrome. But it was a near-fatal bout of sepsis in 2021, triggered by a colon perforation, that changed everything.  Jackie opens up about the physical and emotional toll her health battles took on her and her family—and how she slowly, courageously found her way back. Now, she's using her voice to raise awareness about sepsis, chronic illness, and osteoporosis, and to help others reclaim joy despite life's hardest moments.  WHAT YOU'LL LEARN:  What sepsis is—and why awareness could save your life  How chronic conditions like Crohn's, POTS, and Ehlers-Danlos can derail a life  The emotional impact illness has on families  Why osteoporosis should be taken seriously—at any age  How writing became a lifeline and tool for advocacy  The importance of community, joy, and owning your health journey  FOLLOW ‘AGE BETTER':  To join this adventure, remember to subscribe or follow the "Age Better with Barbara Hannah Grufferman" podcast on platforms like Apple Podcasts, Spotify, and YouTube. Yep, you can watch it or just listen!    WE WANT TO HEAR FROM YOU!   Your questions have spurred many episodes, so please keep them coming! Share your ideas for topics and guest suggestions at agebetterpodcast@gmail.com  Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Dr. Valentin Fuster discusses a landmark study from the Montalcino Aortic Consortium revealing how genetic differences in Marfan syndrome, Loeys-Dietz syndrome, and vascular Ehlers-Danlos syndrome distinctly influence the risk and location of arterial events. The findings highlight gene-specific patterns—thoracic aortic complications in Marfan and Loeys-Dietz, and peripheral arterial issues in Loeys-Dietz and Ehlers-Danlos—paving the way for personalized surveillance and management strategies.

In this JACC podcast, Dr. Valentin Fuster presents five key studies, including new insights into arterial aneurysms in genetic aortopathies like Loeys-Dietz, Ehlers-Danlos, and Marfan syndromes, the implications of post-exercise troponin elevations in athletes, and 35-year outcomes of staged surgery for hypoplastic left heart syndrome. The episode also features a state-of-the-art review on heart failure with improved ejection fraction, highlighting emerging challenges and clinical strategies in this evolving phenotype.

Welcome to Dr. M's Women and Children First, where we dive into the latest insights on health and wellness for women and children. Today, we're honored to have Dr. Peter Rowe, a world-renowned expert from Johns Hopkins University, joining us to unravel the complexities of chronic fatigue.  Dr. Peter Rowe is a Professor of Pediatrics at the Johns Hopkins University School of Medicine. He is the inaugural Sunshine Natural Wellbeing Foundation Professor of Chronic Fatigue and Related Disorders and serves as the Director of the Chronic Fatigue Clinic at Johns Hopkins Children's Center. His areas of clinical expertise include chronic fatigue syndrome and other disorders characterized by fatigue and orthostatic intolerance. Dr. Rowe and his colleagues were the first to describe the relationship between chronic fatigue syndrome (CFS) and treatable orthostatic intolerance syndromes, as well as the association between Ehlers-Danlos syndrome and CFS. In this episode, Dr. Rowe and I dive deep into CFS and long Covid for both the parent and the clinician. We set the stage for a better understanding of this complex disorder in order to encourage earlier diagnosis and better therapy. From its impact on daily life to cutting-edge approaches for management, Dr. Rowe brings decades of expertise to help us understand this challenging condition.  Please Enjoy, Dr. M  

In this episode of the On the Runs podcast, hosts Eric and Erika welcome Ellen Hunter Gans (12:32), a passionate runner who shares her experiences with the Boston Marathon and her journey through various races. Ellen discusses the importance of community support, the challenges she has faced, and her aspirations for the future. With humor and insight, she reflects on her running journey, emphasizing the mental resilience required to overcome obstacles and the joy of celebrating small victories along the way. In this engaging conversation, the speakers explore the profound connections formed through running, particularly in the context of ultra marathons and the 777 challenge. They share personal experiences from races in Antarctica, Cape Town, and Australia, highlighting the beauty and challenges of each location. The importance of community, humor, and mental toughness in endurance sports is emphasized, along with the significance of writing about these experiences as a form of personal expression. From dealing with a painful spider bite during a race to the cultural insights gained from running in Istanbul, Ellen's stories are filled with humor and resilience. She discusses her journey with Ehlers-Danlos syndrome, the impact it has on her life and running, and her reflections on completing an Ironman. The conversation highlights the importance of community, humor, and the drive to push through challenges in pursuit of personal goals.Thank you to our supporters and new partnerships with My Race Tatts and Wright Socks. Check them out in the links below!Chapters00:00 Introduction and Catching Up12:32 Guest Introduction: Ellen Ganz01:51:58 Listener Engagement and Community Updates01:54:48 Discussion on 'The Pitt' Series02:02:14 Wrap-Up and Final Thoughts02:04:09 BlooperMy Race Tatts Affiliate Page - 15% of your purchase goes towards our TEAM FORCE Fundraising efforts for the NYC Marathon Wrightsock Affiliate Page - 15% of your purchase goes towards our TEAM FORCE Fundraising efforts for the NYC Marathon Eric's NYC Marathon Fundraiser - Team FORCE, a dynamic organization that supports the hereditary cancer community Erika's Chicago Marathon Fundraiser - for American Foundation for Suicide Prevention in memory of her brother, Nick Strava GroupLinktree - Find everything hereInstagram - Follow us on the gram YouTube - Subscribe to our channel Patreon - Support usThreadsEmail us at OnTheRunsPod@gmail.com

A deadly double/A possession that ruined a life Fan Art by Cretin Cave Productions https://www.youtube.com/watch?v=2L0aE1yXH7U   Patreon (Get ad-free episodes, Patreon Discord Access, and more!) https://www.patreon.com/user?u=18482113 PayPal Donation Link https://tinyurl.com/mrxe36ph MERCH STORE!!! https://tinyurl.com/y8zam4o2 Amazon Wish List https://www.amazon.com/hz/wishlist/ls/28CIOGSFRUXAD?ref_=wl_share   Links: Redditors who have worked around death/burial, what's your best ghost story? : r/AskReddit (Doopleganger Death Double Death Body Bag Suicide Look A Like story) https://www.reddit.com/r/AskReddit/comments/10o8hqn/comment/j6edndv/ what's the scariest thing you've ever experienced that you still can't explain? (UK Possessed By Castle Worker story) https://www.reddit.com/r/Paranormal/comments/1ier0uf/comment/maco1n2/ Trying to find a job while applying for disability benefits-US https://www.reddit.com/r/disability/comments/1ka1sdp/trying_to_find_a_job_while_applying_for/ What is EDS? https://www.ehlers-danlos.com/ Ehlers-Danlos syndrome https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptoms-causes/syc-20362125 u/Ok-Recognition1752 https://www.reddit.com/user/Ok-Recognition1752/submitted/ Archive https://archive.ph/tmzrs   ------------------------------------------------ Logo Art By Ash Black Opening Song: "Atlantis Attacks" Closing Song: "Bella Royale" Music By Simple Rabbitron 3000 created by Eerbud Thanks to Chris K, Founder Of The Golden Rabbit Brigade Dead Rabbit Archivist Some Weirdo On Twitter AKA Jack Youtube Champ: Stewart Meatball Reddit Champ: The Last747 The Haunted Mic Arm provided by Chyme Chili Forever Fluffle: Cantillions, Samson, Gregory Gilbertson, Jenny The Cat Discord Mods: Mason http://www.DeadRabbit.com Email: DeadRabbitRadio@gmail.com Twitter: https://twitter.com/DeadRabbitRadio Facebook: www.Facebook.com/DeadRabbitRadio TikTok: https://www.tiktok.com/@deadrabbitradio Dead Rabbit Radio Subreddit: https://www.reddit.com/r/DeadRabbitRadio/ Paranormal News Subreddit: https://www.reddit.com/r/ParanormalNews/   Mailing Address Jason Carpenter PO Box 1363 Hood River, OR 97031   Paranormal, Conspiracy, and True Crime news as it happens! Jason Carpenter breaks the stories they'll be talking about tomorrow, assuming the world doesn't end today. All Contents Of This Podcast Copyright Jason Carpenter 2018 - 2025   ------------------------------------------------ Logo Art By Ash Black Opening Song: "Atlantis Attacks" Closing Song: "Bella Royale" Music By Simple Rabbitron 3000 created by Eerbud Thanks to Chris K, Founder Of The Golden Rabbit Brigade Dead Rabbit Archivist Some Weirdo On Twitter AKA Jack Youtube Champ: Stewart Meatball Reddit Champ: The Last747 The Haunted Mic Arm provided by Chyme Chili Forever Fluffle: Cantillions, Samson, Gregory Gilbertson, Jenny The Cat Discord Mods: Mason http://www.DeadRabbit.com Email: DeadRabbitRadio@gmail.com Twitter: https://twitter.com/DeadRabbitRadio Facebook: www.Facebook.com/DeadRabbitRadio TikTok: https://www.tiktok.com/@deadrabbitradio Dead Rabbit Radio Subreddit: https://www.reddit.com/r/DeadRabbitRadio/ Paranormal News Subreddit: https://www.reddit.com/r/ParanormalNews/   Mailing Address Jason Carpenter PO Box 1363 Hood River, OR 97031   Paranormal, Conspiracy, and True Crime news as it happens! Jason Carpenter breaks the stories they'll be talking about tomorrow, assuming the world doesn't end today. All Contents Of This Podcast Copyright Jason Carpenter 2018 - 2025

What if your symptoms weren't isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won't prescribe—it's all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn't just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one's talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here's why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein's Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS  and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at ⁠http://www.human-content.com⁠ Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links.

What if your symptoms weren't isolated… but signals in a much larger system breakdown? In this wide-ranging solo Q&A, Dr. Linda Bluestein uncovers the hidden threads connecting uncontrolled pain before surgery, unexplained eye issues, MCAS, multiple chemical sensitivity, Alpha-gal syndrome, and even autism risk. From the scar tissue no one warned you about to the medication that works—but doctors won't prescribe—it's all here. Dr. Bluestein shares eye-opening research on TILT (Toxicant-Induced Loss of Tolerance), fragrance-triggered flares, and why standard pre-op care fails patients with connective tissue disorders. And woven throughout it all? The heavy, frustrating stigma that people with Ehlers-Danlos syndromes and hypermobility spectrum disorders know too well—being dismissed, doubted, and disbelieved. This episode doesn't just give answers. It reveals what questions you should have been asking all along. Takeaways: This one over-the-counter product might be behind your chronic eye issues—and no one's talking about it. Considerations and cautions for taking cromolyn A “safe” eye ointment led to lasting damage—here's why. Doctors say no to pain meds before surgery… but do they know the full risk? A tick bite and subsequent food allergy changes everything—even your shampoo. Find the episode transcript here. Reference Links: EP 140 with Dr. Brayden P. Yellman: https://youtu.be/mMMM7gmyrbk EP 127 with Dr. Emily Bohan: https://youtu.be/9ngUY9VPRcc EP 125 with Dr. Satish Raj: https://youtu.be/2WuDkH1TDns EP 120 with Wendy Wagner: https://youtu.be/YeRfTiGkDuA EP 109 with Dr. Tina Wang: https://youtu.be/w6iGZzRa-Q0 EP 108 with Katie and Andrew Dettelbach: https://youtu.be/hu907Z4Ldk4 EP 92 with Dr. Lillian Holm: https://youtu.be/QR9PZoA2ku0 EP 83 with Jill Miller: https://youtu.be/e86nO9PlKfQ EP 81 with Lisa Ralston: https://youtu.be/PKMcEUGcDWY EP 75 with Dr. Patty Stott: https://youtu.be/C5cATkq1a_k Check out Refresh Celluvisc Eye Gel, OcuSoft Lid Scrub and the book, Holistic Pain Relief as well as her other favorites at Dr. Bluestein's Amazon Store https://amzn.to/3RAjueJ https://www.amazon.com/shop/hypermobilitymd Toxicant Induced Loss of Tolerance (TILT) Tests https://tiltresearch.org/self-assessment/ TILT Resources https://tiltresearch.org/resources/ Assessing Chemical Intolerance in Parents Predicts the Risk of Autism and ADHD in Their Children - PubMed Food Compatibility List https://www.twoalphagals.com/ https://www.veganmed.org/ YouTube Playlist on Moving with EDS  and HSD https://youtube.com/playlist?list=PLX9StmpQKW30miVUD3DHWXjLq_Vs2VKrF&si=qU66cuujtCG_PH1f Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: youtube.com/@bendybodiespodcast  Instagram: https://www.instagram.com/hypermobilitymd/  Facebook: https://www.facebook.com/BendyBodiesPodcast  X: https://twitter.com/BluesteinLinda  LinkedIn: https://www.linkedin.com/in/hypermobilitymd/  Newsletter: https://hypermobilitymd.substack.com/ Shop my Amazon store https://www.amazon.com/shop/hypermobilitymd Learn more about Human Content at ⁠http://www.human-content.com⁠ Podcast Advertising/Business Inquiries: ⁠sales@human-content.com⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices

Carolyn McMakin, MA, DC - contact@frequencyspecific.com 00:59 Seminar Stories: A Week of Learning and Healing 02:32 Case Study: Herniated Disc and Muscle Recovery 10:08 Treating Ehlers-Danlos Syndrome 14:35 Exploring Charcot-Marie-Tooth Disease 22:46 Understanding Myasthenia Gravis 24:57 Breakthrough in Scleroderma Research 27:52 Encouraging vs. Harassing: A Gentle Approach 28:01 Diagnosing and Treating Ehlers-Danlos Syndrome 30:21 Understanding TMJ and Its Treatment 33:42 Benign Prostatic Hypertrophy and Root Canals 35:34 Pudendal Neuralgia and Pelvic Floor Issues 41:42 Detoxifying from Airborne Toxins 46:11 Root Canals: Risks and Solutions 50:33 Upcoming Events and Reflections Herniated Discs: A Path to Healing A herniated disc can be a painful and debilitating condition. One case involved a patient with a herniated disc impacting the S1 nerve root. The patient experienced muscle weakness and numbness in the foot. Through FSM, we used a frequency combination tailored specifically for this condition, which led to remarkable recovery. The treatment helped the muscles regain strength and improved the patient's foot sensation. This case highlights FSM's potential in restoring nerve functionality and relieving symptoms of herniated discs. Ehlers-Danlos Syndrome: Managing the Challenges Ehlers-Danlos Syndrome (EDS) presents unique challenges due to its impact on connective tissues. Patients often suffer from joint pain and hypermobility. Through FSM, we address these challenges by focusing on balancing the autonomic nervous system and improving connective tissue function. For instance, a patient with EDS experienced significant relief by treating both nerve dysfunction and connective tissue issues. This holistic approach can substantially enhance quality of life for those with EDS. Genital Neuralgia: Finding Relief Genital neuralgia, often misunderstood and misdiagnosed, can be extremely distressing. FSM can offer relief by targeting the nerve roots and reducing inflammation. In a case involving pudendal neuralgia, the patient benefited from specific frequencies that eased nerve pain and muscle tension. Proper diagnosis and a targeted FSM approach can help alleviate symptoms and improve daily functioning. Addressing Autoimmune Conditions FSM also shows promise in treating autoimmune conditions like scleroderma and myasthenia gravis. By modulating the immune response and reducing inflammation, FSM can help manage these complex disorders. Understanding the triggers and underlying causes of autoimmune dysfunction is crucial in tailoring effective treatment strategies. The Importance of a Tailored Approach One of the key takeaways in applying FSM is the importance of a personalized treatment plan. Each condition and patient requires a unique combination of frequencies and a thorough understanding of their specific challenges. The ability to adapt and modify treatment protocols is what makes FSM a valuable tool in integrative medicine. Continuous Learning and Innovation FSM training is vital for practitioners eager to expand their treatment options. As our understanding of frequency-specific applications grows, so does the potential to provide relief for patients with challenging conditions. Staying informed and embracing new techniques is crucial for practitioners dedicated to offering holistic care solutions.

Sue from South Africa shared her experience with Ehlers-Danlos syndrome and multiple health challenges. Although she was diagnosed with Ehlers-Danlos syndrome only six years ago, she described being a fragile child with several physical abnormalities that went unnoticed by doctors. These included an indented sternum and a skin issue at the base of her spine. Growing up, she struggled with physical activities and faced bullying due to her abilities, which contributed to her emotional distress.Her health challenges continued into adolescence, exacerbated by a severe dog bite that led to post-traumatic stress disorder (PTSD), which was not recognized at the time. During her teenage years, she also battled insomnia, anxiety, and depression. Sue developed Lyme disease after a hiking trip, which led to chronic fatigue syndrome (ME/CFS) and other health issues linked to Ehlers-Danlos syndrome.Despite her struggles, Sue pursued education, ultimately earning degrees in psychology. Throughout her journey, she has become more aware of her physical and psychological challenges, working to advocate for herself and understand her conditions better.

Send us a textCould there be a deeper connection between hypermobility, fatigue, and your autoimmune symptoms?In this episode, I unpack the lesser-known links between Ehlers-Danlos Syndrome (EDS) and autoimmune conditions—exploring why so many people with joint hypermobility also struggle with gut issues, immune reactivity, fatigue, and nervous system dysregulation.We dive into:Why connective tissue fragility can lead to leaky gut and immune activationThe role of mast cell activation, POTS, and vagal nerve dysfunctionHow your family history (think scoliosis, frequent injuries, clicky joints) may hold important cluesWhy gluten can be an issue, even without coeliac diseaseMy go-to food, supplement, and lifestyle strategies for supporting this overlapYou'll also hear practical tips on bone broth, slow-cooked meals, magnesium, vagus nerve support—and how to reframe your diagnosis as a doorway to deeper healing.Mentioned in this episode:Ossa Organics Bone Broth – use code VJ10 for 10% offNurosym vagus nerve stimulation – code VJ10 for 10% offBodyBio supplements – including magnesium and butyrate for gut + tissue support: Click here for UK / Click here for US (discount code VJ15)Join the conversation inside The Autoimmune Forum Whether you've been diagnosed with EDS, suspect hypermobility, or simply want to understand your autoimmune body more deeply—this one's for you.Thanks for listening! You can join The Autoimmune Forum on Facebook or find me on Instagram @theautoimmunitynutritionist.

Do you get full body pain? Does it affect your muscles, nerves or joints? Do you find that you need to rest after walking or find you tired more easily than others?It might not just be endometriosis. Ehlers-Danlos Syndrome is a group of 13 conditions which all affect connective tissue (collagen) in the body. Most are rare, but one type called hypermobility EDS is common - and out of those with this type of EDS, 6-23% have endometriosis. But that's not where the connection ends…32-77% of those with EDS have vulvodynia and or pain with sex.33-75% have heavy menstrual bleeding. 73-93% have painful periods.Additionally, histamine intolerance caused by Mast Cell Activation Syndrome is a co-condition of Ehlers-Danlos syndrome, and we also know that overactive mast cells play a role in endometriosis. Not only can this cause more painful periods, but it can also create problems like allergies and eczema to name a few.Ehlers-Danlos Syndrome is also a huge risk factor for SIBO, and as you may now know, at present SIBO is estimated as affecting 80% of the endo population.I could go on with the overlapping symptoms and connections, but instead, I'll let you hear it first hand from Natalia Kasnakidis who is not only an endometriosis warrior, but is also living with Ehlers-Danlos syndrome, histamine intolerance and potentially postural tachycardia syndrome.In this episode we talk about:What the Ehlers-Danlos Syndromes are and how common they are.The signs and symptoms to look out for and Natalia's own experience with her symptoms.The journey she tool to diagnosis and her tips for getting diagnosed. The co-conditions of EDS and their symptoms. Her key strategies for living well with endometriosis and EDS.Show noteshttps://www.thelondonhypermobilityunit.co.ukhttps://join.sibosos.com/purchase/74117-Joint-Hypermobility-Syndromes?_ga=2.165935037.2051281346.1639065076-1956767515.1601293146Need more help or want to learn how to work with me?Free resources:This podcast! Endometriosis Net ColumnEndometriosis News ColumnNewsletterInstagramWays to work with me:This EndoLife, It Starts with Breakfast digital cookbookMasterclasses in endo nutrition, surgery prep and recovery and pain reliefLive and Thrive with Endo: The Foundations DIY courseOne to one coaching info and applicationThis episode is sponsored by BeYou Cramp Relief Patches. Soothe period cramps the natural way with these 100% natural and discreet menthol and eucalyptus oil stick on patches. Click here to find out more and to shop: https://beyouonline.co.uk/pages/how-it-worksProduced by Chris Robson

Hannah is still trying to live her life as any other 22 year old would, dancing with friends, enjoying the outdoors, and loving the cows on her family farm. She hopes to share this positive view of life with chronic illnesses on her public Instagram page beyond.the.label_0 to help show other young people with challenging diagnosis that joy and a life worth living are still possible.  In this episode of the Major Pain podcast, she took a few minutes to talk to us about her journey with vascular Ehlers-Danlos syndrome from a lake near her home in Tennessee. Hannah started life as a perfectly healthy kid playing basketball, softball, cheerleading, and getting into trouble on the farm.  Even then she watched her brother struggle with seizures and a difficult road to diagnosis that ended with Chiari malformation and tethered cord syndrome.  When she got a concussion at the age of 13 everything seemed to change, and Hannah was also diagnosed with both Chiari and tethered cord, in addition to vascular Ehlers-Danlos syndrome (VEDS). She would later be diagnosed with postural orthostatic tachycardia syndrome (POTS) and is exploring the possibility that she may have mast cell activation syndrome (MCAS).  Her doctors narrowed in on the vascular form of EDS when she was 16 and began having pain, fever, and illness with her periods which became unpredictable, either missing months at a time or lasting up to a year of continuous bleeding. After many surgeries to release the Chiari, fuse vertebrae, release the tethered cord, and a difficult decision to have a hysterectomy at age 19 to resolve her constant bleeding, Hannah still would not change a thing.  Though she used to wonder why god would do this to her, she now sees the good that can come from perseverance.  She talks us through her history with VEDS, tells us about her medications and coping mechanisms, as well as how her chronic illness journey has strengthened her faith.  With her long term boyfriend and service dog at her side, Hannah is a resource for other patients going through similar life challenges as she continues to find what her future will bring. PlayWatch the episode on YouTube, or listen on your favorite podcast platform.

Why do some patients struggle with anesthesia, requiring multiple cartridges just to get numb? Could your TMD patients have an underlying systemic condition that's been missed? Are you overlooking the signs of a connective tissue disorder? https://youtu.be/gaoJKPTV_Z0 Watch PDP222 on Youtube ”When you can't connect the issue, think connective tissue!” Dr. Audrey Kershaw joins Jaz for a fascinating deep dive into the world of connective tissue disorders and their hidden impact on dentistry. Together, they explore how hypermobility, unexplained joint issues, and even a history of spontaneous injuries could be key indicators of an underlying disorder. They also break down why dentists play a crucial role in screening and identifying these conditions, ensuring better patient outcomes and a more holistic approach to care. Because sometimes, when things don't seem connected… they actually are. Protrusive Dental Pearl: Don't just take a "relevant" medical history—take a comprehensive one! Encourage patients to share all health issues, even those they don't think relate to dentistry. You might uncover important clues about conditions like connective tissue disorders or sleep-disordered breathing, leading to better care and stronger patient trust. Key Take-aways Ehlers-Danlos Syndrome is often misunderstood and underdiagnosed. Patients with connective tissue disorders often face skepticism from healthcare providers. POTS is a common condition associated with EDS that affects blood pressure regulation. Many TMD patients may have undiagnosed connective tissue disorders. Awareness and education about EDS are crucial for better patient outcomes. The healthcare system can be challenging for patients seeking diagnoses. Research on local anesthetic effectiveness in EDS patients is lacking. Personal experiences can help in understanding and diagnosing connective tissue disorders. Collaboration between healthcare professionals is essential for patient care. Genetic testing is crucial for diagnosing rare types of Ehlers-Danlos. Dental professionals should be aware of the signs of connective tissue disorders. Diagnosis can empower patients to understand their health better. Holistic care is vital in managing symptoms associated with EDS and TMD. Medical histories should be seen as relevant in dental practice. Highlights of this episode: 02:17 Protrusive Dental Pearl 04:21  Dr. Audrey Kershaw's Journey and Insights 09:45 Personal Experiences and Professional Observations 11:55 Diagnosis and Management of Connective Tissue Disorders 13:31 POTS (Postural Orthostatic Tachycardia Syndrome) 15:30 Understanding Ehlers-Danlos Syndrome (EDS) 24:55 Hypermobile EDS and the Need for Awareness 27:53 International Consortium of EDS GP Checklist 28:34 Genetic Testing and Red Flags 31:44 The Role of Dentists in Identifying EDS 40:32 Journey to Diagnosis 43:47 The Value of a Diagnosis 48:43 Dental Implications of EDS 55:00 Final Thoughts and Resources "If you know one case of EDS, you only know one. Every case is different. Many are severely debilitated, unable to work or carry out daily tasks, often denying their struggles after years of being dismissed." - Dr. Audrey Kershaw Promised Resources Podcast Recommendation: Linda Blustein's Podcast (about POTS and connective tissue disorders) Specialists & Research: Dr. Alan Hakim – A specialist in Ehlers-Danlos Syndrome (EDS) research based in London. Norris Lab (U.S.) – Researching genetic markers for hEDS Local Anesthesia Information Resources for Screening & Diagnosis:  Diagnostic Criteria for Hypermobile Ehlers-Danlos SyndromeDownload 5-part-questionnaire-for-hypermobilityDownload Symptomatic Joint-Hypermobility GuideDownload Red Flag PatientsDownload Educational Conferences & Talks: Scottish Dental Show – Audrey is involved in raising awaren...

There's a bit of a parental feel about this week's podcast. Two mums from Nottingham were categorised in a hospital computer system as having learning disabilities and, they say, received poor treatment as a result. Claire Whyte and Elizabeth Jones are autistic but their local NHS trust only has the ability to (inappropriately) categorise them as having a learning disability, because there is no neurodivergent box to tick on the system. They say they were spoken to in simplified language and had decisions about their care made without consulting them. As a result, they felt patronised and left out of their own maternity care. Presenter Emma Tracey speaks to them and we get a response from the NHS and the company, System C, who make the app. Emma also speaks to Jessica Slice, author of newly published and ironically titled book Unfit Parent: A Disabled Mother Challenges an Inaccessible World. In it she maintains that disabled people are unusually placed to have the skills to be parents. She says her life as someone with POTS and Ehlers-Danlos syndrome, has made her more resilient, patient, tolerant of pain, and thinks disabled people shouldn't be written off as mums and dads ... and a whole lot more. Presenter: Emma Tracey Producer: Beth Rose Sound recording and mix: Dave O'Neill Editor: Damon Rose

"Susan Birth, Chief Executive of Ehlers-Danlos Support UK, explores the challenges faced by individuals with Ehlers-Danlos syndromes and hypermobility spectrum disorders, touching on symptom management, NHS navigation, and promising new research."

In this interview, Christie Uipi, LCSW, sits down with world-renowned mindbody physician Dr. Howard Schubiner to explore the limitations of the traditional medical model in treating conditions like POTS, Ehlers-Danlos syndrome, chronic Lyme disease, Epstein-Barr virus (EBV), mast cell activation syndrome (MCAS), ME/CFS, and Long COVID. Together, they discuss how a mindbody approach can bring clarity to these often confusing conditions - and offer a hopeful path forward for those seeking relief.

In the first part of our four part Case Files series diving into the upcoming lawsuit against Rady Children's in San Diego, Andrea and Dr. Bex start with looking into preteen Madison Meyer's string of diagnoses like Ehlers-Danlos syndrome, POTS, CRPS, and more. They break down what these conditions are and why they - coupled with Madison's rapid decline - raised red flags.  *** Follow Dr. Bex on instagram: @secretdoctorbex Order Andrea's new book The Mother Next Door: Medicine, Deception, and Munchausen by Proxy.  Click here to view our sponsors. Remember that using our codes helps advertisers know you're listening and helps us keep making the show!   Subscribe on YouTube where we have full episodes and lots of bonus content.  Follow Andrea on Instagram: @andreadunlop Buy Andrea's books here.  For more information and resources on Munchausen by Proxy, please visit MunchausenSupport.com The American Professional Society on the Abuse of Children's MBP Practice Guidelines can be downloaded here. Learn more about your ad choices. Visit podcastchoices.com/adchoices

What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn't stop there. You'll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it's working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn't what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

What happens when illness hijacks your love story? In this raw and revealing episode, Dr. Linda Bluestein sits down with therapists and real-life couple Melissa Dickinson and Tom Query, who know firsthand how Ehlers-Danlos syndrome can test—and transform—a relationship. From secret diagnoses to unexpected intimacy challenges, they open up about their personal journey navigating chronic illness, caregiving, trauma, and neurodivergence while maintaining connection, humor, and purpose. But it doesn't stop there. You'll hear about the surgery that changed everything, a community built from the ground up, and what it means to reclaim agency in a body that feels like it's working against you. Whether you're chronically ill, caregiving, or just curious—this episode will stay with you. Takeaways: What if the love of your life was diagnosed after your wedding… would you stay? This surgery gave her legs—and her life—back. They gave their illness a name… and it changed how they fought it. The hardest part of caregiving isn't what you think. Sometimes, even therapists need help decoding each other. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Melissa Dickinson & Tom Query: Melissa: Facebook: https://www.facebook.com/melissadickinsonEDSofGA/ LinkedIn: https://www.linkedin.com/in/melissadickinsonlpc/ Website: www.MelissaDickinson.com Tom: Facebook: https://www.facebook.com/wellspringcounselingintown Website: https://www.tomquery.com Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Caller Questions & More: Marc discusses the fine print, asking the hard questions to get insight before jumping into relationships.  I'm miserable in my marriage and have become emotionally divorced from my husband who doesn't feel led to lead.  I have Ehlers-Danlos syndrome, have had seventeen surgeries, and am in so much pain.  Is it […]

Send us a textIn this episode of the Next Level Human Podcast, Dr. Jade Teta interviews Natalie Pendergrass, who shares her inspiring journey of overcoming chronic pain and trauma through resilience, yoga, and mindfulness. Natalie discusses her experience with Ehlers-Danlos syndrome, the healing power of yoga, and the importance of mental health in managing physical pain. She emphasizes the need for proper breathing techniques and strength training for those with hypermobility disorders, and how acceptance and clearing toxic relationships can lead to empowerment and healing.00:01:25 Natalie's Childhood and EDS Diagnosis00:08:32 Living with Chronic Pain and Abuse00:14:50 Discovering Yoga and Unexpected Flexibility00:21:40 The Power of Proper Breathing00:28:00 Finding Solutions Through Adversity00:35:36 Keys to Healing: Mindset and Movement00:44:05 Creating a Life Beyond Limitations Looking for a Next Level Human Coach? Get on the waitlist and get access to the brand-new science of quantum metabolism and identity restructuring with Dr Jade and the team.http://nextlevelhuman.com/human-coaching Want to become a Next Level Human Coach? Get on the waitlist. Go to: http://www.nextlevelhuman.com/human-coach Connect with Next Level HumanWebsite: www.nextlevelhuman.comsupport@nextlevelhuman.comConnect with Dr. Jade TetaWebsite: www.jadeteta.comInstagram: @jadeteta

An episode that turns the hands of time. Here's what's in store for today's episode: * On today's episode of The Autistic Culture Podcast, Matt and Angela take a deep dive into executive functioning and how it shifts over time as we age.* Our hosts explore the evolving demands on executive functioning, from managing basic hygiene and meals to handling responsibilities like paying rent, bills, driving, and working as we grow older.* We discuss how advancements in technology and evolving systems have increased executive functioning demands—such as navigating self-checkout, managing multiple streaming service payments, and handling other modern responsibilities.* Then, we dive into unsolicited neurotypical advice on managing executive function—like “just use a calendar” or the dreaded “think positively!”—and why these suggestions often miss the mark.* We then explore the connection between executive functioning and autistic inertia, as well as how body doubling can be a helpful strategy.* Next, we discuss masking in the corporate world and why it simply doesn't work for autistic individuals.* Our hosts share their personal unmasking journeys and discuss how to navigate the shift toward authenticity.* We then dive into the often comorbid health conditions that commonly accompany autism, including but not limited to PMDD, POTS, Ehlers-Danlos syndrome, and Mast Cell Activation Syndrome.* Finally, we discuss the impact of trauma and CPTSD on autistic lives, as well as the intersection of autism and menopause.“When you get older and you have the kids and you have the house and you have the job and the responsibilities - that's when the executive functioning fails.” - Matt“This is also a reason why the unemployment rate for autistics is much higher than for neurotypicals. It doesn't mean that you're a bad person. It doesn't mean that you're lazy. It doesn't mean that you don't have intellectual functioning ability. It's just that you're working with a lot more system requirements. You can't play the game that other people play because your PC is maxed out with all these other system requirements and other people aren't.” - MattDid you enjoy this episode? We explored executive functioning in autistic lives, from shifting responsibilities as we age to the impact of masking, comorbid conditions, and trauma. Tune in as we discuss strategies like body doubling and unmasking, and share your thoughts using #AutisticCultureCatch!Show Notes:https://autismspectrumnews.org/the-complexities-of-aging-addressing-the-unique-needs-of-autistic-elders/ https://aidecanada.ca/resources/learn/asd-id-core-knowledge/shared-stories-shared-experiences-international-research-on-autism-and-menopauseRelated Episodes:Productivity is AutisticMeat Body MaintenanceFollow us on InstagramFind us on Apple Podcasts and SpotifyLearn more about Matt at Matt Lowry, LPPJoin Matt's Autistic Connections Facebook GroupLearn more about Angela at AngelaKingdon.com Angela's social media: Twitter and TikTokOur Autism-affirming merch shop This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit www.autisticculturepodcast.com/subscribe

In this episode, Molly shares her unique journey of living with an ostomy, starting from her childhood struggles with chronic constipation to her eventual ileostomy surgery. She discusses the challenges she faced, the importance of community support, and how her perspective on life has changed since her surgery. Molly emphasizes the significance of mental health and acceptance in navigating life with an ostomy, and she inspires listeners to embrace their journeys and seek support.TakeawaysMolly's journey began with chronic constipation from birth.She faced numerous medical challenges before her ileostomy surgery.The ostomy community is supportive and empowering.Living with an ostomy has improved Molly's quality of life.Mental health is crucial in the journey of acceptance.Finding a support system can help process emotions.Molly's condition is linked to Ehlers-Danlos syndrome.She encourages others to share their stories and connect.Ostomy is not a death sentence, but a life sentence.Authenticity and openness can inspire others.

If your body is super reactive… even the tiniest change can set off awful symptoms – then you should consider the spectrum of mast cell activation diseases.What most people find enjoyable, like healthy foods, exercise, or even sunlight, can make some feel horrible. Often these symptoms are beyond just “histamine intolerance symptoms.”And while others around you might think you're just “being dramatic” or “making a mountain out of a molehill,” it's clear to you that your body is extremely more reactive than others.It can be hard to get a clear diagnosis and help if you are struggling with mast cell activation diseases – including those with hypermobility syndrome issues like Ehlers-Danlos.If your life feels like you're constantly navigating a minefield of unexpected symptoms to the smallest things, I'm joined by Michelle Shapiro, RD, to talk about what causes you to have a “highly sensitive body.”Michelle Shapiro, RD is an Integrative/Functional Registered Dietitian in NYC who has helped over 1000+ clients reverse their anxiety, heal long-standing gut and immune issues, and approach their weight in a loving way. Michelle has a virtual private practice of 5 nutritionists where she and her team work one-on-one towards these goals. She is the host of the Quiet the Diet Podcast, where she helps listeners bridge the gap between body positivity and functional nutrition.If you've been searching for answers about your own body's unpredictable reactions or want to better understand these complex conditions, let's dive in!In This Episode:What's a “highly sensitive body” problem (that you'll be stuck with forever)?The role of mast cells as “guards” of your immune systemHistamine intolerance symptoms (and why a histamine intolerance diet doesn't help long-term)Histamine intolerance versus Mast Cell Activation DiseasesThe surprising link between MCAS, POTS, and hypermobility syndromeWhy POTS isn't a heart problemThe long COVID–histamine intolerance connectionPractical tips for managing symptoms histamine intolerance symptomsQuotes“Highly sensitive bodies often react in ways we don't expect—things that are supposed to be good for you, like healthy foods or exercise, can make you feel worse.”“Histamine issues don't just cause rashes or itchy skin; they can trigger severe insomnia, anxiety, and even psychosis.”LinksFind Michelle online | InstagramMichelle's podcast, Quiet the DietMichelle's Highly Sensitive Body Hub WaitlistHealthy Skin Show ep. 319: Mast Cell Activation Syndrome: What is MCAS + Why It's So DevastatingHealthy Skin Show ep. 166: Mold + Histamine ConnectionReady to figure out your skin's root causes so you can finally fix your skin + break free from meds to manage your skin?My virtual clinic works with adults worldwide struggling with eczema, psoriasis, rosacea, urticaria, hives, dandruff, perioral dermatitis + more.Trusted by over 1000 clients, we get results WITHOUT restrictive elimination diets.Schedule an assessment call at https://skinrepaircall.com/

This week we discuss the basics about a topic several of our guests have spoken about- Ehlers Danlos Syndrome or EDS.   ​Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. ​The Ehlers-Danlos syndromes received a major overhaul in 2017 and this is what we now know: EDS are heritable connective tissue disorders affecting the quality of collagen in every part of the body. There are now 13 recognized subtypes of EDS, 12 of which are genuinely rare and have the aberrant gene identified. Hypermobile EDS (hEDS) and hypermobility spectrum disorder (HSD) is by far the most common type; these conditions are part of a spectrum and the distinction is hoped to be useful for research, but is otherwise academic. hEDS/HSD is a multi-system disorder which can have a marked impact on health and which may help us to explain apparently mysterious multiple symptoms. Don't let the changing terminology confuse you. 3.4% of the population have generalized joint hypermobility and chronic widespread pain (a proxy for the now obsolete diagnosis of joint hypermobility syndrome (JHS). Patients who in the past received a diagnosis of JHS (or Benign JHS), EDS-Hypermobility Type or EDS Type III would now be categorized as having hEDS or HSD. “If you can't connect the issues, think connective tissues” Non-specific and medically unexplained symptoms are usually real and should not be dismissed It can be easy to make a big difference to the quality of life of some of your most complex patients with a few simple and inexpensive measures, but the journey starts with recognition. The median time from symptom onset to seeking a GP opinion is 2 years and the median time to diagnosis 10 years. If we make an early diagnosis and manage the conditions appropriately, there may be potential to reduce long term disability which can occur from EDS. Enquire about family members; these are hereditary disorders of connective tissue so positive family histories are common. Although no gene has yet been identified, hEDS is primarily of autosomal dominant inheritance. Children can present with symptoms of hEDS/HSD, including abdominal symptoms or growing pains. They may also present with neurodevelopmental disorders such as hyperactivity, inattention, dyspraxia, autistic spectrum disorder, sleep, and food issues, emotional problems, hypersensitivity and anxiety. A low Beighton score does not exclude hEDS/HSD,. Patients stiffen with age so their Beighton score may decrease, although pain may worsen. The extent of multi-system symptoms is not related to the Beighton score. Consider co-existing conditions; In recent years, we have begun to understand more about associated or co-morbid conditions which are frequently found in people with hEDS, including autonomic dysfunction (postural tachycardia syndrome (PoTS) and symptomatic low blood pressure), mast cell activation syndrome (MCAS) and gastrointestinal dysfunction. (Credits: GPTOOLKIT)

An episode that checks all the vital signs.Here's what's in store for today's episode: * Today, our hosts dive into part two, a follow-up to our previous episode on autistic medical needs.* Autistic people often experience comorbid conditions, many of which stem from the distressing effects of navigating a neurotypical world. These can include POTS, MCAS, PMDD, PCOS, PTSD, and Ehlers-Danlos syndrome, among others. On the bright side, we're at a lower risk for cancer!* Living in a world designed for neurotypicals is inherently traumatic for autistic people, often leading to chronic stress that impacts our physical health. This distress can contribute to comorbid conditions like POTS, MCAS, and Ehlers-Danlos syndrome, making medical advocacy a crucial but often exhausting necessity.* We discuss the pathological demand compliance that neurotypicals seem to exhibit, blindly following societal expectations without questioning them. This tendency contrasts with autistic people's need to understand the why behind demands, making medical self-advocacy even more challenging.* Bottom-up processing means we're constantly researching and analyzing potential medical issues, often coming to our own conclusions before seeing a doctor. However, the medical system doesn't always operate this way, making it frustrating when our self-advocacy is dismissed or misunderstood.* Neurotypical doctors, due to the intensity and nature of their training, can carry a lot of internalized ableism. As a result, they don't always react well to autistic patients who have done their own research and come prepared with information about their condition.* We talk about the issue of medical gaslighting and how it happens frequently to autistic people, where our symptoms and concerns are dismissed or belittled by healthcare professionals.* Additionally, systemic racism remains rampant in the medical field alongside ableism, further complicating the already difficult experience for multiply marginalized autistic people seeking proper care and recognition of their needs.* Our hosts discuss the issues with medication, highlighting how it's often more hit or miss than many would like to believe, especially when it comes to finding the right treatment for autistic individuals.* We talk about how frustrating it is when you have to be assertive about your needs at the doctor's, only to have it perceived as aggression, even though you're just advocating for your health.* There is an importance now more than ever to teach neurotypical healthcare providers how to properly interact with their neurodivergent patients, ensuring they feel heard, understood, and respected in their medical care.* We discuss the struggle of having to mask in doctor's offices and the importance of doing your own research to accompany doctor's visits, as it's often necessary to ensure your concerns are taken seriously.* Going to the doctor's is a masterclass in masking—showing just the right amount of emotion and care to avoid being seen as too detached or overly emotional, all while trying to communicate your needs effectively.* Our hosts discuss how to "fake" being neurotypical by understanding the intricacies of top-down processing, where we learn to mimic expected behaviors and responses, even if they don't come naturally to us.* Having autistic connections is so important because when we find a provider who is autism-affirming or discover medical information that could help our community, we need to shout it from the rooftops to ensure everyone has access to that support.* In times like these, especially with medical situations and the ongoing DEI crisis, we need to lean on our communities more than ever for support, knowledge, and solidarity.“We like to be in the background. We like to be in the shadows. We like to not be judged, because it's safer there. Because otherwise, there is a chance that we will be judged, we will be left out, people will actively dislike us. But, if we are invisible, there's no chance for that to happen.” - Matt“Living in a neurotypical world is inherently traumatic for us. The CPTSD rate is so high for autistic people that neurotypical people can't tell what's CPTSD and what's autism traits. That's the thing about the anxiety and the depression and the gastrointestinal distress and all of this stuff. It's not normal autistic stuff. It's autistic distress cues.” - Matt“The bias is that, ‘if there's a way to fix it easily, then let's fix it easily.' And I don't think that's wrong, but it ends up feeling a whole lot like gaslighting and being pushed away when we know real things are happening.” - Angela “But here's the thing, because you don't know you as well as this doctor knows you, because this doctor has a degree and went to school and they know all the things. They are God-like.” - MattDid you enjoy this episode? We dive into the challenges of navigating a neurotypical world with a neurodivergent brain, exploring the medical hurdles and advocacy we face. From medical gaslighting to the struggles of masking in doctor's offices, we discuss how these issues impact our health and well-being. Let us know your thoughts in the comments, and use #AutisticCultureCatch to share your experiences and connect with others on social media!Related Episodes: Autistic Medical NeedsReady for a paradigm shift that empowers Autistics? Help spread the news!Follow us on InstagramFind us on Apple Podcasts and SpotifyLearn more about Matt at Matt Lowry, LPPJoin Matt's Autistic Connections Facebook GroupLearn more about Angela at AngelaKingdon.com Angela's social media: Twitter and TikTokOur Autism-affirming merch shop This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit www.autisticculturepodcast.com/subscribe

Soph Myers-Kelley and his mom, René Myers, have always been close. As of five years ago, they also share a diagnosis: the connective tissue disorder Ehlers-Danlos Syndrome. Soph and René were diagnosed one year apart – Soph was 25; René was 60. EDS explained symptoms they'd both been experiencing for decades, including waking up with jaw or shoulder dislocations and having chronic pain.The two talk with Anita about how their diagnoses began a new chapter of their lives, including the decision to move in together last summer.Meet the guests:- Soph Myers-Kelley is a medical librarian at East Carolina University- René Myers is Soph's mom and a retired educatorRead the transcript | Review the podcast on your preferred platformFollow Embodied on Instagram Leave a message for Embodied

In this episode, Lindsey sits down with Michelle Miller, a service-driven storyteller and educator, a trauma-informed University Professor, an advocate for neurodiversity and autoimmune accommodations in education and entertainment, and a mentor who meets students and clients where they are. Tune in for a deeply nourishing conversation about self-acceptance, healing from trauma, neurodiversity and more!Ahead, Michelle shares her journey through neurodiversity, getting diagnosed with Ehlers-Danlos, and experiencing complex PTSD, describing how these experiences shaped her approach to life and teaching. Lindsey reflects on her own struggles with self-abandonment and neurodivergence.They also touch on the transformative power of artistic expression, the impact of social media on our nervous systems, and the significance of maintaining personal boundaries. Learn to embrace the beauty of your sacred and non-linear path with this gem of a convo!Morning Microdose is a podcast curated by Krista Williams and Lindsey Simcik, the hosts and founders of Almost 30, a global community, brand, and top rated podcast.With curated clips from the Almost 30 podcast, Morning Mircodose will set the tone for your day, so you can feel inspired through thought provoking conversations…all in digestible episodes that are less than 10 minutes.Wake up with Krista and Lindsey, both literally and spiritually, Monday-Friday.If you enjoyed this conversation, listen to the full episode on Spotify here and on Apple here.

Carrie managed complications related to Ehlers Danlos Syndrome and POTS, severe joint pain, inflammation, chronic fatigue, and brain fog on a keto diet. Timestamps: 00:00 Trailer and introduction 03:39 Severe Ehlers-Danlos dislocations 07:11 Lack of holistic healthcare 11:23 Living with Ehlers-Danlos 13:09 Keto diet for POTS relief 18:15 Keto diet improved health 22:21 Carnivore diet Ehlers-Danlos relief 25:26 Relocating to Nicaragua 28:14 Research journey 32:52 Navigating diet and social norms 35:18 First experience eating meat 37:29 Managing Ehlers-Danlos with lifestyle adjustments 43:22 US prescription culture vs. rest of the world 46:35 Managing EDS through everyday ergonomics 48:47 Ehlers-Danlos improvement through lifestyle changes 52:18 Coping with parental loss Revero Clinic for treating chronic diseases: https://revero.com Join Revero Now to transform your health: https://revero.com/membership Join the Revero team (medical providers, etc): https://revero.com/jobs ‪#Revero #ReveroHealth #shawnbaker  #Carnivorediet #MeatHeals #AnimalBased #ZeroCarb #DietCoach  #FatAdapted #Carnivore #sugarfree Disclaimer: The content on this channel is not medical advice. Please consult your healthcare provider. ‪#revero #shawnbaker #Carnivorediet #MeatHeals #HealthCreation   #humanfood #AnimalBased #ZeroCarb #DietCoach  #FatAdapted #Carnivore #sugarfree  ‪

In this episode, Lindsey sits down with Michelle Miller, a service-driven storyteller and educator, a trauma-informed University Professor, an advocate for neurodiversity and autoimmune accommodations in education and entertainment, and a mentor who meets students and clients where they are. Tune in for a deeply nourishing conversation about self-acceptance, healing from trauma, neurodiversity and more! Ahead, Michelle shares her journey through neurodiversity, getting diagnosed with Ehlers-Danlos, and experiencing complex PTSD, describing how these experiences shaped her approach to life and teaching. Lindsey reflects on her own struggles with self-abandonment and neurodivergence. They also touch on the transformative power of artistic expression, the impact of social media on our nervous systems, and the significance of maintaining personal boundaries. Learn to embrace the beauty of your sacred and non-linear path with this gem of a convo! We also talk about: Techniques for resetting the vagus nerve  The addictive nature of phones + social media Embracing self-forgiveness as a pathway to success The impact of societal norms on individual authenticity Sensory processing challenges, ADHD, and neurodivergence The importance of personal boundaries + sacred choices The role of AI + technology in creativity Overcoming health struggles through self-awareness + self-care practices Resources: Instagram: @yourlittlebitofgood TikTok: @yourlittlebitofgood Facebook: Your Little Bit of Good YouTube: YourLittleBitofGood Sponsors: Fatty15 | Get an additional 15% off their 90-day subscription Starter Kit by going to fatty15.com/ALMOST30 and use code ALMOST30 at checkout. Lolavie | Get 15% off LolaVie with the code A30POD15 at https://www.lolavie.com/A30POD15.  Cymbiotika | Go to Cymbiotika.com/Almost30 and use code ALMOST30 for 20% off sitewide.  Birch Living | Get 25% off ALL mattresses and 2 free eco-rest pillows at birchliving.com/Almost30.  To advertise on our podcast, please reach out to sales@advertisecast.com or visit https://www.advertisecast.com/Almost30.  Learn More: almost30.com/learn almost30.com/morningmicrodose almost30.com/courses  Join our community:facebook.com/Almost30podcast/groups Podcast disclaimer can be found by visiting: almost30.com/disclaimer.  Find more to love at almost30.com! Almost 30 is edited by Garett Symes and Isabella Vaccaro. Learn more about your ad choices. Visit podcastchoices.com/adchoices