Podcasts about ehlers danlos

What if your hand pain, numbness, weakness, or grip problems aren't actually coming from your hand or wrist? Orthopedic hand surgeon William Ericson, MD, joins Dr. Linda Bluestein to explain why people with Ehlers-Danlos syndrome (EDS) and hypermobility may experience overlooked median nerve entrapment near the elbow, carpal tunnel-like symptoms, thumb arthritis, and thoracic outlet syndrome—even when standard imaging or nerve testing doesn't reveal the answer. Dr. Ericson, co-author of the 2017 American Journal of Medical Genetics article on orthopedic management of the Ehlers-Danlos syndromes, shares what he has learned from more than three decades of treating patients with complex upper-extremity symptoms. Why can someone have significant hand pain, weakness, numbness, tingling, or loss of grip strength even when imaging or standard nerve testing looks normal? Dr. Ericson describes a pattern of proximal median nerve entrapment near the elbow that he believes is extremely common in people with EDS and may frequently be mistaken for carpal tunnel syndrome, tendonitis, or unexplained pain. He explains how median nerve dysfunction can change the way the hand pinches and grips, potentially placing excessive stress on the thumb and contributing to thumb arthritis over time. He also discusses whether identifying and treating the underlying nerve problem could help reduce that risk. The conversation expands beyond the hand and wrist to the relationship between hypermobility, shoulder instability, scapular protraction, and thoracic outlet syndrome. Dr. Ericson explains why improving shoulder and scapular mechanics may sometimes be more important than operating directly on the thoracic outlet. You'll also hear an important discussion about cortisone injections in EDS and hypermobility, including why injections may be appropriate for true tendon inflammation but potentially problematic when the underlying issue is joint instability. Just as importantly, Dr. Ericson explains why he evaluates the whole person before recommending surgery—including posture, shoulder mechanics, thoracic outlet involvement, stress, and mental health—and why persistent symptoms after surgery may sometimes reflect an unrecognized problem farther upstream. The episode closes with advice for anyone living with symptoms that have been difficult to explain: a good clinician does not have to know everything. Sometimes the most important words a healthcare professional can say are, “I don't know—but I believe you, and I'll help you figure out what comes next.” Want more of Dr. William Ericson? Website: https://www.williamericsonmd.com/ Ericson Hand and Nerve Center: https://ericsonhand.com/ Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.orgUVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinicUVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Chapter: 00:00 Median Nerve Shocker00:29 Meet Dr Erickson01:47 Why He Focuses on EDS06:14 Listening Changed Everything13:52 Common Upper Extremity Complaints19:58 Median Nerve Elbow Explained25:06 Misdiagnosis and Thumb Arthritis28:16 Surgery Decision Protocol31:30 Ergonomics and Tool Hacks33:09 When Surgery Makes Sense33:57 Thoracic Outlet Surgery Risks35:29 Scapular Protraction Fix38:26 Red Flags Before Operating45:24 Activities That Trigger Symptoms47:30 Best Exercises for EDS50:05 Clinician Pitfalls and Wrap-Up Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of GynoCurious, host Dr. Amy Novatt sits down with Dr. Mallory Stuparich, a fellowship-trained minimally invasive gynecologic surgeon based in Los Alamitos, California, to take a deep dive into endometriosis — a chronic, estrogen-dependent inflammatory condition affecting roughly 10% of women and girls of reproductive age worldwide. Dr. Stuparich describes endometriosis as a systemic, neuro-immune condition rather than a purely hormonal one, drawing connections to autoimmune disorders, Ehlers-Danlos syndrome, and POTS. The two doctors then walk through what a real diagnostic workup looks like, from the "four Ds and an I" symptom pattern (dysmenorrhea, dyschezia, dysuria, dyspareunia, and infertility) to the value of a specialized pelvic exam and transvaginal mapping ultrasound — dispelling the myth that normal imaging rules out the disease. They also cover emerging blood-based tests, the recently updated ACOG guidelines allowing clinical diagnosis without surgery, and the critical distinction between ablative and excisional surgery. Rounding out the episode, Dr. Stuparich shares lifestyle and dietary strategies — including anti-inflammatory eating patterns and the supplement NAC — that can help manage symptoms alongside medical or surgical treatment. The episode closes with a call for patients to trust their instincts, seek second opinions when something feels wrong, and never suffer in silence. Listeners looking for a specialist can find Dr. Stuparich across social media under her name, and Dr. Novatt reminds her audience that persistent pain always deserves investigation, whatever its cause. Questions of comments? Call 845-307-7446 or email comments@radiofreerhinecliff.org Produced by Jennifer Hammoud and Matty Rosenberg @ Radio Free Rhiniecliff

In this episode, Catherine talks to Dr Jessica Eccles, a consultant neurodevelopmental psychiatrist, researcher and public communicator whose work explores the connections between the brain and body.Dr Eccles co-leads the world's first neurodivergent brain–body clinic and is a leading voice in understanding the overlap between autism, hypermobility, Ehlers-Danlos syndromes, dysautonomia, pain and fatigue.Together, Catherine and Dr Eccles discuss why many autistic people may also experience physical health differences such as flexible joints, chronic pain, dizziness, fainting, gut problems, allergies, fatigue and difficulties with temperature or standing for long periods.Dr Eccles explains hypermobility using the image of connective tissue as the body's ‘cling film' - something found everywhere in the body, not just in the joints. When connective tissue is different, it can affect the joints, blood vessels, gut, skin and nervous system, which may help explain why some autistic and neurodivergent people experience a cluster of physical and emotional symptoms.They also talk about the importance of not dismissing pain, fatigue or dizziness as ‘just anxiety' or ‘just sensory sensitivity'. Instead, Dr Eccles encourages listeners to think about how the brain and body work together - and how better understanding can lead to better support, better self-advocacy and better care.Key themes Catherine and Dr Eccles discuss:- What hypermobility is and how it can show up  - What Ehlers-Danlos syndromes, or EDS, are  - Why all people with EDS are hypermobile, but not all hypermobile people have EDS  - The emerging research linking autism, ADHD, hypermobility and brain-body health  - Why autistic people may be more likely to experience chronic pain and fatigue  - How dizziness, fainting and feeling strange when standing may relate to autonomic dysfunction  - What POTS and orthostatic intolerance are  - Why symptoms can be mistaken for anxiety  - The role of interoception, alexithymia, sensory processing and masking  - Why some autistic people may mask physical pain and illness  - How schools and health professionals can better understand children who struggle with standing, walking, pain or fatigue  - Practical supports such as hydration, electrolytes, cooling strategies, compression garments and pacing  - How autistic and hypermobile people can begin to advocate for themselves in healthcare settings  - Why systemic change is needed in how services understand the overlap between neurodivergence and physical healthWhat's on at Autism Central?Explore the ⁠⁠⁠⁠⁠Autism Central website⁠⁠⁠⁠⁠ for FREE NHS-funded 1:1 coaching sessions, events and resources for families of autistic people in England and their support networks.Subscribe to our ⁠⁠⁠⁠⁠⁠FREE newsletter⁠⁠Connect with Dr Jessica Eccles Youtube / Instagram / LinkTreeFor further information on the topics discussed in this episode, listeners may want to explore resources from SEDSConnective, POTS UK, the EDS GP Toolkit, StopFainting.com and the Hypermobility Syndromes Association. Connect with Catherine Email: hellocatherineasta@gmail.comWebsite I Instagram I Art Books: Rediscovered and Still Living

What happens when doctors misunderstand Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD)? Sometimes the consequences go far beyond frustration or delayed treatment. In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by Dr. Ina Stephens, Associate Director of the UVA Health EDS and Hypermobility Disorder Center, to answer listener questions about MCAS, gut health, circadian rhythm, migraine, pediatric hypermobility, and more. They also confront a disturbing reality for some families navigating poorly understood conditions: medical gaslighting, misdiagnosis, and inappropriate Munchausen-by-proxy referrals. Can you support a healthy gut microbiome with MCAS if fermented foods trigger symptoms? Drs. Bluestein and Stephens discuss the role of dietary fiber, polyphenol-rich foods, exercise, and thoughtful antibiotic use, including why the narrowest effective antibiotic may be preferable when treatment is necessary. They also explain why resetting a disrupted circadian rhythm involves more than simply going to bed earlier, and how morning light exposure can help shift the body's internal clock. Then the conversation turns to migraine management in hypermobile patients. Dr. Stephens shares her approach to supplements and medications, including magnesium glycinate, CoQ10, and CGRP-targeting medications such as ubrogepant (Ubrelvy,) while explaining why Botox (onabotulinumtoxin A) is not usually a first-line migraine treatment and may be problematic for people with significant craniocervical instability. The episode also tackles a question with major implications for the next generation: Should children be evaluated for hypermobile EDS earlier (hEDS)? Dr. Stephens explains how delayed recognition can contribute to years of orthopedic problems, psychological distress, inappropriate diagnoses, and missed opportunities for prevention and support. Finally, the episode closes with a Hypermobility Hack on low dose naltrexone (LDN): how it may work, why benefits can take time to appear, and why patience matters when evaluating whether it is helping. Takeaways: Could the wrong antibiotic choice create problems long after the infection is gone? Why might morning sunlight matter more than forcing yourself to go to bed earlier? When could Botox actually make headaches and neck symptoms worse in someone with hypermobility? How can missed or delayed recognition of hEDS in childhood affect orthopedic and mental health outcomes years later? What happens when physicians misunderstand EDS so profoundly that a family is suspected of fabricating illness? Why can low dose naltrexone seem like it is “not working” before it has had enough time to take effect? Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Chapters: 00:00 EDS Starts Early00:34 Meet Dr Ina Stephens02:12 Fermented Foods MCAS02:39 Microbiome Support Basics10:47 Antibiotics Probiotics15:49 Medical Distrust CPS Risk29:31 Migraine Treatments Botox41:16 Feverfew Dosage Basics41:30 Avoiding Rebound Headaches43:12 CGRP Rescue Meds Explained44:51 Why Diagnose EDS Early49:05 Early Intervention and Prevention56:42 Parenting Tips and Clinic Access01:06:54 LDN Patience and Closing Resources Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Andrew Holman is a rheumatologist and the CEO of Seattle-based Inmedix, which recently received FDA clearance for the first cloud-based heart rate variability (HRV) diagnostic platform. Dr. Holman shares how a “detective” mindset led him from early interests in orthopedics and cardiology into rheumatology, fibromyalgia research, and ultimately entrepreneurship. He explains how chronic stress, the autonomic nervous system, and conditions like sleep apnea and restless leg syndrome can influence cardiovascular risk and autoimmune disease outcomes, and why measuring stress biology with medical-grade precision matters. Dr. Holman also offers hard-earned advice for physician-innovators, reflects on pivotal study results, and shares what he hopes to be remembered for: never dismissing patients in distress.  Guest links: https://www.inmedix.com | https://www.linkedin.com/company/inmedix-inc Charity supported: Save the Children Interested in being a guest on the show or have feedback to share? Email us at theleadingdifference@velentium.com.  PRODUCTION CREDITS Host & Editor: Lindsey Dinneen Producer: Velentium Medical   EPISODE TRANSCRIPT Episode 088 - Andrew Holman [00:00:00] Lindsey Dinneen: Hi, I'm Lindsey and I'm talking with MedTech industry leaders on how they change lives for a better world. [00:00:09] Diane Bouis: The inventions and technologies are fascinating and so are the people who work with them. [00:00:15] Frank Jaskulke: There was a period of time where I realized, fundamentally, my job was to go hang out with really smart people that are saving lives and then do work that would help them save more lives. [00:00:28] Diane Bouis: I got into the business to save lives and it is incredibly motivating to work with people who are in that same business, saving or improving lives. [00:00:38] Duane Mancini: What better industry than where I get to wake up every day and just save people's lives. [00:00:42] Lindsey Dinneen: These are extraordinary people doing extraordinary work, and this is The Leading Difference. Hello, and welcome back to another episode of The Leading Difference podcast. I'm your host, Lindsey, and today I'm delighted to be welcoming as my guest Dr. Andrew Holman. Dr. Holman is a rheumatologist and the CEO of Inmedix, a Seattle-based medical diagnostics company that recently received FDA clearance for the first cloud-based heart rate variability diagnostic platform. He has 25 years of clinical experience with 16 peer-reviewed papers and clinical trials demonstrating that measuring stress biology with medical grade precision can improve success rates in autoimmune diseases. All right. Andrew, welcome to the show. I'm so glad you're here today. [00:01:30] Andrew Holman: Yes, happy to be here. Thank you for inviting me. [00:01:33] Lindsey Dinneen: Course, of course. Well, I would love, if you wouldn't mind starting out telling us a little bit about who you are, what your background is, and what led you to medtech. [00:01:44] Andrew Holman: Sure. Well, I'm a, a guy from Seattle, Washington. Grew up here, but trained everywhere else, became a rheumatologist. We study autoimmune diseases, lupus, rheumatoid arthritis. I also was very interested in fibromyalgia and pain. We're the immunologists of medicine. So, I started my practice, golly, a while ago. 1992, I finished my prac- my training, and I was the main rheumatologist at a large suburban hospital at the southern end of Seattle. So hometown, circle back to the hometown. I went into rheumatology because you have many choices when you do internal medicine. You can go be a specialist in many things. But I like the puzzles. The immunology has grown and it's a, it's a particularly sort of detective-oriented specialty. So, I didn't set out to be an entrepreneur. That came 25 years later. I was an in-the-trenches doc trying to help the person in front of me with these devastating diseases that are crippling diseases, usually of young women mostly. [00:02:45] Lindsey Dinneen: Yeah. Okay, and I'm sure there's, there's much more we're gonna dive into, but one thing that really stood out really fast was you, you kind of called yourself a detective, which I really love that term. And so I'm curious, is that something that you always thought you wanted to specialize in, in medicine, or was this, you know, detectiving to come later? Was this something that, you know, you ended up learning more about while in med school and thought, "Oh, this sounds really cool. I could put really two interesting passions together"? [00:03:19] Andrew Holman: Yeah, it was-- you know, things just sort of come into play sometime. For those who are not in medicine, they may not realize it takes about ten years to go to college, med school, re- internship, residency, fellowship, you know, and then you, then you finally get to go be a doctor, and you have to go learn how to be a doctor s- a little more. The patients teach you a lot more than people realize. So I was gonna be an orthopedist. I liked orthopedics. I liked architecture, bones, joints. I thought it was a lot of fun. I just had very little aptitude for what they do. I, I don't-- I, I'm not very g- a good carpenter. I just, you know, I didn't-- just wasn't gonna be a great orthopedist. So then I thought, "I really love cardiology." Rhythm disturbances, all kinds of things. In the 1980s, when I was in medical school , all the new stents and procedures and non- less invasive things than bypass surgery were all coming up. Joint valve replacement. You know, it's really exciting. But I never... and I never took a, a f- a course in rheumatology until I was actually an intern in internal medicine program in Denver, all set to be a cardiologist. And there were 12 of us in the, in the program per year, and s- five of us became rheumatologists because of this one doctor who took us out, a guy named Daryl McCarter. Prob- maybe people who know him, he's retired recently. He would bring us in the office, and we'd see every other patient with him because in between the patients, he would give us an X-ray, say, "I want you to look at this. There's a clue here. See if you can find it." Or, "I want you to look at this pathology slide," or something. "There's a secret, you know, to figure this one out." And I go, "Wow, this is really fun stuff." And once you figured it out, we weren't as good at treating it yet, but we were getting better. We were getting better. So it was the cutting edge and very fertile ground for discovery. So, rheumatologists are called the consult of last resort for a reason. There aren't very many of us. You've usually seen everybody else first, and by the time they-- you see us, we're pretty good at figuring out the rare diseases that are not in other people's board exam. But we're also pretty good at figuring out the common disease that presents in a very strange way, you know? And, and that's what our strength is. So we may... Everybody who sees us who gets diagnosed may not have a rheumatology answer, but we try to get them an answer. And now we're really in the golden age of rheumatology in the last 20 years of really making a difference for so many people. The downside, we don't make a difference for enough people, you know? We, we... That's the problem. So we've got these very motivated doctors out there, eager, and we just need, you know, more. And that's why I became an entrepreneur, because I learned more neurology than I was supposed to know and more sleep physiology than I was supposed to know. You just follow the breadcrumbs, you know? [00:06:17] Lindsey Dinneen: Yeah. Okay, so I know you didn't start out wanting to, or maybe even being interested in being an entrepreneur, but that is the path that you chose, and I would love to hear about that, the company, and what you're all doing. And then also would love to hear about your journey into deciding that this is the next right step for me. [00:06:38] Andrew Holman: Yeah. Well, thanks for asking it. It is a little unusual. So I was actually studying and trying to help patients with fibromyalgia about 30 years ago. And fibromyalgia patients terribly dismissed till they're all making this up. There's not 10 million people that can make anything up and be consistent. I mean, they all say the same thing. So I thought that was nonsense, and I was really thrown into the crowd of, you know, "You're, you're crazy too." And I go, "Well, I'm board certified in crazy." So I w- I was interested in it, and I was irritated that these people were dismissed. And I was around other doctors in Seattle who were similarly that way, which was very, very unusual. It's unusual to find people in the '90s who had an avid interest in that disorder. And so I started doing what rheumatologists are good at, incrementally advancing ideas and therapeutics very carefully, very cautiously. We do a lot of things off-label. When I was-- finished my fellowship in 1992, half the diseases on our board exam had no FDA-approved treatment. We had to do something, right? You couldn't just say, "Well, come back when there's a couple of articles in the New England Journal of Medicine." You, you can't do that, right? People are depending on you. So rheumatologists are particularly good at that, and that's not something most doctors want to do. Most doctors find that very uncomfortable. They're very, very careful people. And, and rheumatologists are careful too, but we take this mission seriously that we need to do something for you. So basically, I was looking at off-label ideas and work on fibromyalgia, and I'll share this with your audience. I was actually pulled up-- pulled in by some senior doctors who said, "We wanna talk with you." And I'd been there about three years as a new doctor. Oh, you know, seem to be doing a good job. Maybe they wanna pat me on the back or something. No, not that. It was actually an intervention, which I had never... I mean, I had no familiarity with what an intervention was. And they said, "Look, we like you. You're a great doc, but you're gonna ruin your reputation if you believe all these people, mostly women And you really need to not take it so seriously or write prescriptions for this c-- this and that." I said, "Well, thank you very much." That's polite. That's not what I was thinking. And I, I... But it prompted me to pull all the charts and say, "You know, I think I'm making some progress here with some ideas here, and let me see if I'm getting fooled and just seeing the people who get better to come back. Let me really honestly look at my performance." And so I pulled about 200 charts. It was my first abstract at the national meeting. And you know what? We were making progress. That had morphed into more progress, following the breadcrumbs, looking at neurology, looking at the autonomic nervous system. So that was about a five-year process. Y-you know, I didn't lose my reputation, obviously. I lecture around the world now. But it led to being very careful about getting clinical evidence if I had a hypothesis. And so we were using the office, and we actually finally did a double-blind prospective study where I bought all the drug myself, had it reformulated, little capsules that, you know, and, and worked with the FDA to get permission to do the study. And that study in fibromyalgia to this day has the highest response rate of any fibromyalgia study for pain that's ever been done. Now, we don't use that treatment anymore. It's 20 years later, we have other things to do. But it did prompt Pharmacia, got bought by Pfizer, I believe, and Boehringer Ingelheim, which co-marketed the drug I was using and reporting on, to pay me $10 million for the patents that I had filed, utility patents. I didn't own the drug. I didn't use it for Parkinson's disease, but I thought there was use in fibromyalgia. So before I told the world, I filed utility patents, and they wanted to exploit that discovery. So did two other pharmaceutical companies, and they had to pay for the privilege of doing it. So at 46, I retired. So I didn't intend to do that, but I do come from a family of lawyers and judges, and so the idea of having a utility patent on a n- a new innovative idea was not a foreign concept to me. [00:10:40] Lindsey Dinneen: Yeah. [00:10:41] Andrew Holman: That is something I teach all young doctors. [00:10:46] Lindsey Dinneen: That is awesome, and I, I was thinking, okay, this is a great segue because first of all, that's an incredible story. Secondly, I, I would be very curious to know exactly that, what is your advice for some of these incredible physicians, great ideas, that are potentially going to end up becoming an entrepreneur just because that's the path that, that is sort of presented to them? What is some of your advice for that? 'Cause that can't just be... you, you had the privilege at least of, of, of knowing and having some background in that, the legal aspects of IP protection and whatnot, but what are some of the things that you tell people? [00:11:22] Andrew Holman: Well, a couple things I would say and I have these conversations often 'cause I really like the younger people coming along. I say, first of all, don't define yourself as an ent- as being an entrepreneur. Make sure you have other things in your life that are more important to you. Now, the investors are not gonna like to hear that. They, they want you to live and die on your, on your company, right? But I'm saying, you know, you don't have to tell the VCs, but have other things that matter more in your life. You still gotta work really hard because you may, you may find that it's really a slog, and it's very long, and it's very hard. But, you know, make sure that, that, that what you-- though is important, your family, you know, your integrity the scientific problem at hand, the patients, you know, they're number one. Make sure we don't lose sight of all that, and do a few things. Go for a walk. Do something for yourself. Something. I do this twenty-four seven for the last 10 years, you know, every day 'cause I love doing it. It does wear you out, though. Even if you make-- even if you're successful with milestones, it does wear you out. But that's what I tell them. I say, "You know, make sure that you take care of yourself a little bit, too." It's kinda like a analogy. What do you do for a pregnant woman who has a, who has a, a lupus? Lupus is terribly dangerous for the fetus and for the mom. Though the worst thing you do to-- for the baby is not take care of the mom. Take care of mom, [00:12:44] Lindsey Dinneen: Mm-hmm. [00:12:45] Andrew Holman: then get the baby delivered. So, you know, everybody's talking about the baby, but take care of mom. That's the most important thing you do for that baby. So that's kinda what I would say. [00:12:54] Lindsey Dinneen: Yeah. Yeah, that's great. I appreciate that. Yeah, that, that makes a lot of sense too. We've been talking, actually it's been a, a bit of a theme too lately in some of the conversations that I've been having with folks, especially leaders, to talk about that identity component and, and be aware that your job isn't the only thing that defines you or needs to. There's a lot more to your life. There's a lot more to who you are. And so also, you know, our identities change over time and how you refer to yourself and th- those are, those are good things. That's growth, that's movement. So, being comfortable with who you are outside of your career. Yeah. [00:13:33] Andrew Holman: The other thing too is, you know, people used to joke 20 years ago that participation mem- medals were like a farce and what. That's the l- that's the last thing I would say to anybody. Give yourself a pat on the back for going out there trying to attack the castle, you know. Give yourself some credit there because a lot of people just wouldn't do it. My middle daughter was a hundred-meter hurdler at Boise State. She's a Division I athlete. There's a lot of sprinters out there that don't wanna get anywhere near that hurdle 'cause it really hurts when you hit it, right? And so half of that was not-- was being brave. So be brave, be brave, you know. My other daughter was a Division I athlete at Rice. She was a h- she was a volleyball player. Yeah. So, yeah. So I, I, I, I watch other people, see how they persevere and, you know, okay, gotta pick yourself up. Gotta go. Gotta get up this morning. Gotta go. [00:14:23] Lindsey Dinneen: That's right. That-- Yeah. [00:14:25] Andrew Holman: Then remember, people are depending on you, not just your investors. I take that so seriously. But the s- the people who have decided that they're gonna hook their wagon to you. [00:14:34] Lindsey Dinneen: Yeah. [00:14:35] Andrew Holman: You know, that's a lot of responsibility. [00:14:37] Lindsey Dinneen: It is. Yeah. [00:14:38] Andrew Holman: Give yourself a little credit that you're stepping up. [00:14:41] Lindsey Dinneen: Yes. Great advice. Yeah. Okay, so all right. So let's talk about your company now. So now you're an entrepreneur, in addition to obviously the rest of who, what makes you, you. But and I know that you're also a clinical professor, and I would love to hear about both of those things if you don't mind sharing. [00:14:59] Andrew Holman: Yeah, sure. So, technically I'm an associate clinical professor at the University of Washington. A, a lot of private docs do, and they participate in helping teach the y-young residents and fellows and so forth. So it's a joy to me. I, I think my job is a job of teaching. I'm constantly talk... I'm not-- I don't see patients anymore, although I do maintain my license in malpractice 'cause I get, I get contacted for the fibromyalgia work I did. So it's, my email's on the papers, right? So I, I don't wanna let that go. People need help. But basically, we're constantly teaching patients, you know. Now, we're listening, hopefully do better and better at that, but then I have to make a case. You know, I'd, the-- I'd like you to try this or that. Why do I wanna do that and so forth. We're constantly, you know... We don't-- It, it sounds too trite to call it selling something. We're not doing that. We're in there with you. We're collaborating. But I have to be, I have to have a reason and be persuasive and all that, so that, that academic teaching part's kind of fun. Now, sometimes I go into the lion's den. I will tell you, it's a little nerve-wracking to give rheumatology grand rounds at Harvard. Yeah, yeah, okay. You know, and the University of Washington, they're a little friendlier. It's my hometown. But Guy's Hospital in London and the Hospital for Special Surgeries, I... My first rheumatology grand rounds came at the HSS in 2009. I get there, I completely bomb. All these famous people are in the front row. I'm... They're, they're just not buying any of this thing we call immunoautonomics and how stress affects the immune system. I'm quoting the NIH. I'm doing everything I... I know how to do it, right? Pathology slides, I'm there. Then I find out the way they pick the speakers is the fellows get to find something interesting, and they pick the speakers, not the not the high mucky-mucks. So the only reason I was there is because the fellows, the young folks, thought, "This is an interesting topic. We'd like to hear more." And it turns out they were 15 years ahead of the rest of the world, because this is the most fascinating topic of how the immune system affects the autonomic nervous system affects the immune system, so it inflames it. [00:17:03] Lindsey Dinneen: Yeah. Oh my gosh. Actually, that is one thing I wanted to talk about, 'cause I, I noticed on your LinkedIn profile there was, you know, a reference to how much stress affects cardiovascular health maybe particularly chronic stress. And I would just love to hear more about that and, and maybe some ways... I know there's like, y- of course you always get your standard, "Here are some things that you could do to lower your stress." But, but from your perspective as a physician who's studied this, I'd love to hear more from you about, okay, how does this affect health, especially cardiovascular health, and then really what are some practical things that we can do? [00:17:39] Andrew Holman: Yeah, let me see what I can do. Now I wish I could fast-forward because we will have some magnificent things in the next five to 10 years based on what's being discovered now. But the bottom line is, stress and pain are awful things, but they have a purpose in the near term. So pain is good because it'll keep you from putting your hand back in the fire, right? Just don't do that again. But chronic pain is terrible and not productive. Stress is the same thing. You wanna get away from the lion. You, you, you need to perform. If your child needs you, whatever, you, you need to perform on it instant. But chronic stress is not productive. The problem with the stress response is it's controlled in the brain by the autonomic nervous system, which is called the ANS, and it's divided into two components, the sympathetic fight or flight, which we all know what that feels like. You know, ooh, scary. And the other is the parasympathetic, which is getting more talk now, which is the opposite, which is related to rest, restorative, sleep, recovery, growth hormone, all these things. And both of these systems are on simultaneously all the time, but they jockey for predominance depending on what the demands are around you, right? So turns out the sympathetic part has a significant negative impact on cardiovascular health, as you might expect, right? If you're driving your car at five thousand RPMs-- now, nobody has a stick shift anymore-- but if you're driving at five thousand RPMs, you're gonna wear down your engine, even if you go at the same speed as someone who has a two thousand RPMs, right? It, it's, it's what's going on inside the hood there is really important. So stress responses chronically do have measurable, tangible, well-published effects on cardiovascular mortality in long prospective studies. So if we had a magic something, we would do something to lower that epinephrine adrenaline response. Unless, of course, you're in the military, where someone's-- you need every heightened, m-- you know, response that you can get to survive. But for the rest of us, it's better that that system does not ramp up and activate. And we all have a different propensity to how powerful it is and how much it turns on, and also how poorly it turns off. So the stress response, we think of it like epinephrine, adrenaline. That's the easiest way to do it. So what you'd wanna do is to make sure this magnificent part of your brain that is your-- does all your housekeeping functions, this autonomic nervous system, the command and control center that you just wanna work, you don't wanna think about it, is not on a turbocharged, right? And there are people I take care of that they were just born that way. A lot of them, by the way. So things like all the wellness opportunities you can think of are, are targeted just to simply calm the autonomic nervous system. Tai chi, meditation, diet, exercise, all these things have been around for thousands of years because of that. That's what they do. And the practitioners will share that with you. I mean, the there are monks that can lower their heart rate, you know, to like, you know, what would seem lethal to the rest of us, right? That's the parasympathetic drive that lowers heart rate, lowers blood pressure. So those wellness opportunities are real. It will be important that you can manage whether the-- what you're doing is working or not. [00:21:04] Lindsey Dinneen: Mm-hmm. [00:21:04] Andrew Holman: Right? And that's where my company comes in. But the other is things like obstructive sleep apnea. You might think heavy guys... See, someone's gonna send me for a sleep study for sure, but they're not gonna send you. Big mistake, because it turns out that fifty-three percent of Japanese women with rheumatoid arthritis have unexpected obstructive sleep apnea. Oops. And, and we were just taught that we wouldn't even check those people. Well, turns out sleep apnea untreated is a major cardiovascular risk factor equal to cigarette smoking, according to the Sleep Heart Health Study in 2004. That's a big deal. And also, we learned in rheumatoid arthritis, getting back to my work, world, that patients with rheumatoid arthritis don't die from joint disease, they die from premature heart disease. They can also get cancers. So why is that? Well, there's been a lot of effort to try to figure that out in the last twenty-five years, and their risk factors for cardiovascular disease are not explained by the Framingham risk factor of hypertension, cholesterol, smoking, and all the things we, we look, see. But nobody looked at sleep apnea. [00:22:15] Lindsey Dinneen: Mm-hmm. [00:22:17] Andrew Holman: The other reason it's so relevant, though, is sleep apnea is a potent sympathetic arousal. It, it-- You struggle to breathe, right? You kind of obstruct. And what part of your brain tells you to breathe? Your autonomic nervous system. Breathe, right? And it stimulates this adrenaline response over and over and over, and it pounds your heart over the years, and it can lead to sudden death and arrhythmias. So there's a, there's a link there. Never miss sleep apnea. The other one is we found in our office and published about restless leg syndrome. You know, people tap their toes in the airport or they kick the covers around at night. It's pretty benign for most people, but it looks like it very well might be a sympathetic arousal, and there may be relevance there. The therapies for that may have relevance to what we're talking about. Again, very off-label. We're not talking about FDA-approved here. But it-- You ask what can you do? The other one that's coming is vagus nerve stimulation. That is FDA-approved now for rheumatoid arthritis, and they're going to other opportunities to, again, to, to increase the parasympathetic and to lower the sympathetic, right? So that background activity doesn't harm you. The autonomic nervous system may be the primary reason that two patients respond differently to the same treatment. What you bring to the table. It's no different than if I have two people coming to me for a back problem. One is five foot three and one is seven foot three. The way their spine is designed makes it a whole lot harder to treat the seven-foot back, right? I'm not surprising anybody here. So there are things that the patients can bring to the table that matter. Here's the irony. Ninety-seven percent of patients with rheumatoid arthritis in a survey in England said that stress affected their disease activity. It's no surprise to them. And sixty-five percent said they thought it predated getting the disease, that it actually contributed to getting it in the first place. And now there's evidence to suggest that may be true. [00:24:17] Lindsey Dinneen: Oh, boy. [00:24:19] Andrew Holman: So we can't miss sleep apnea just out there. We can't miss restless leg. We can't miss Ehlers-Danlos type three hypermobility type where people can... you can't see me here, but my fingers can bend backwards. But it's, it basically it's very, very common, and those people tend to have increased sympathetic activity naturally. [00:24:39] Lindsey Dinneen: Fascinating. [00:24:39] Andrew Holman: So yeah, so we're, we're waking up a little bit to some very important features here of individuals that may help us do better with the diseases they also come in. [00:24:50] Lindsey Dinneen: Yeah. Wow. [00:24:52] Andrew Holman: Sorry, long answer. Sorry, but there's a lot. [00:24:54] Lindsey Dinneen: No, that's great. I appreciate it, and yeah, well, then there you go. Managing stress is critical to, to your health. It's not just a nice to have, like yeah, yeah, kind of thing. Okay. Whew. [00:25:07] Andrew Holman: Good learning. [00:25:08] Lindsey Dinneen: Okay, awesome. Yeah, so, I'm curious... Okay, so, so again, I like, I like looking at guests' LinkedIn profiles and, and learning more about, you know, what makes you tick outside of your career as well, and I noticed some very fun things that you have listed. So we've got creative writing, horsemanship, golf, and vintage passenger rail cars. I feel like this warrants... [00:25:33] Andrew Holman: Yeah, it's called... Yeah, the American Association of Private Railcar Owners. Yeah. I get ribbed a lot for that, but they're a great bunch. There are about --I don't know if I know all the numbers now, but about 75 to 80 vintage cars from the '20s, '30s, '40s, '50s, who tag on the back of Amtrak, and Amtrak drags them around, and you can actually go rent them, stay in them, whatever. And they have a a annual meeting where they just get on a private train, and they go on tracks that you wouldn't go on naturally, like private rails in the, you know, middle of nowhere. So that's what they like to do. And it's just a lot of fun, especially the dome cars. [00:26:12] Lindsey Dinneen: Okay. That's so cool. [00:26:14] Andrew Holman: I've been a handful of times. I've got a lot of friends there. I don't own a car, but boy, I'd sure like to have one. [00:26:19] Lindsey Dinneen: Yeah. Okay. That is so cool. And then how about horsemanship? How did you... Have you been riding horses your whole life, or how did that come about? [00:26:29] Andrew Holman: So I went to a high school called Thatcher School in Ojai, California, where there are 50 in a class, and there was a requirement, this is over 100 years old, this school, that you had to have a horse. And they would say s- that something about the "outside of a horse is good for the inside of a boy," right? I was the last all-male class in 1977. Now young women get to go there too. It's of note that I have 15 people from Thatcher investing as family and friends in, Inmedix. So, th-they that, that's pretty special. But it's a boarding school. I was there for four years. My dad had gone there, so I'd heard of it. But I got a tremendous education. Th-there aren't a lot of prep schools on the West Coast, but there are some. And, and that's where I learned how to ride a horse like riding a bicycle. My sister is a thoroughbred horse trainer for 40 years. She's retired. She had three or four or five horses, a har-- not the fancy kind of stuff at the Derby. But they, you know, get up at 4:00 a.m. and ride, you know, that kind of... Tough life, but she loved horses. So yeah, I, I'm as, I'm more comfortable on a horse than I am around anything, probably. [00:27:34] Lindsey Dinneen: That's so cool. Okay. Well, this has been really fun to, to get to hear your incredible life story so far, and I'm excited to see where the company continues to advance medical technology. So, you know, I really appreciate everything you're doing. But I do want to ask, is there a moment that stands out to you along your career path so far where you just thought, "Wow, I am in the right industry at the right time"? [00:28:02] Andrew Holman: Yeah, I'd, I'd say there probably was. When we unblinded the prospective double-blind study that we did looking at this five-minute next generation heart rate variability, this HRV we got through the FDA last year. When we unblinded the study, and although that's not part of the FDA clearance, it was a very important moment for me because it showed that it predicted a year in advance who would respond to treatment of rheumatoid arthritis with ninety percent sensitivity, ninety-five percent specificity. So I wanna emphasize that is not what it's cleared for. It's cleared as an HRV tool that doctors can use at their discretion. But that study is what you asked me to answer. And when you unlock a study and you see the results, two things happen. One is we were happy that I was on the right track. That was nice. You know, positive study. Your hypothesis is valid. But it completely changed the view of immunology, [00:28:58] Lindsey Dinneen: Hmm. [00:28:59] Andrew Holman: Because we would have a test now that could measure the autonomic nervous system with exquisite precision. Nobody cared except me. About 10 years ago, we were waiting for better biologics, the things on TV, right? They asked, "Ask your doctor if it's good for you." Nobody realizes that they work about twenty-five percent of the time in terms of disease control. That's a big gap, but it looks like it's the brain that monitors inflammation. The inflammation the immune system is not firewalled against everything. The brain c-controls it, and it's not the endocrine so much with cortisol, it's the autonomic that works in milliseconds that, that epinephrine response. So that's a... You know, you're pretty nervous when you un-- when you-- someone tells you, "Okay, here is the results." [00:29:48] Lindsey Dinneen: Yeah. Wow. [00:29:50] Andrew Holman: And, and, and that was it. And then it turned out in 2015, the other moment was when I was going through the airport at Seattle and I saw the cover of of Scientific American, Bioelectric Medicine, Setpoint Medical's vagus nerve stimulation, hacking the the vagus nerve to fix the autonomic nervous system to reduce the burden of rheumatoid arthritis. I go, "Okay, now it's time." We had the patent on it. Okay. Ten years forward, we're where we are now. We're launching in June, and we have a software juggernaut here and a literally a vital sign. So, th-the doctors decide what to do with this, but we've put it in their hands, and it's paid for by insurance. So yeah. [00:30:34] Lindsey Dinneen: Amazing. Well, that's, that's so cool. Congratulations on that. That's fantastic. Okay, so to pivot the conversation a little bit just for fun, [00:30:43] Andrew Holman: Hmm? [00:30:43] Lindsey Dinneen: imagine that you were to be offered a million dollars to teach a master class on anything you want. What would you choose to teach? [00:30:53] Andrew Holman: Well, I, I learned that you've all had professors that didn't probably know as much as they should about a subject, but they thought it was just fun. I would probably stick with what I know. So I would do a master class on fibromyalgia because you can actually treat it. And there's published data, but it's very-- it's not widely known. We will be using Inmedix and autonomic testing to do research to validate and get that problem finally solved and put to bed. And then the other is this thing called immunoautonomics. It, the term-- I made up the term 15 years ago. It's in the medical literature. So that's what I would teach. Teach what I know. [00:31:27] Lindsey Dinneen: I love that. Okay, excellent. And how do you wish to be remembered after you leave this world? [00:31:34] Andrew Holman: Well, I, you know, it all come... I define myself by what the patients, how they do and what they say. It's not about five stars and all that, you know, you know, there's plenty of those. But it's, it's... I made a, a commitment if somebody says anything about me, I made a commitment when I was a rheumatologist with all these mostly young women upset, that I would never leave the room with them crying. Didn't matter how far behind I was, didn't matter. We went through a lot of Kleenex. There's a l- it's devastating to get these diseases when you're a young woman. And they can put that on my tombstone, not to dismiss people. We had a saying in the office, "It's gotta be something." You know? It's, it's always something. Drives me crazy when doctors will say, "Oh, that's nothing." Well, well, first of all, we know it's not nothing. It, it is always something, and there's something that defines your success, and there has to be things that define your failure. So let's figure out what the something is, but let's not argue that there's nothing there. So let's not dismiss people who are frightened and worried, and maybe they don't tell the story as clearly as we'd hope. But you know what? It's not, it's not their fault. They're in distress. It's amazing what people are like after you help them with their chronic pain. [00:32:45] Lindsey Dinneen: Yeah. Yeah. That is really cool and makes so much sense. Yeah. Thank you. Okay, and then final question: what is one thing that makes you smile every time you see or think about it? [00:32:59] Andrew Holman: It's making me smile right now. When I talk to the young fellows that are in their training and they're finishing up, so they've done three years or four years of medicine, three years of internal medicine after that, and then they do three or two, three, four years of rheumatology, and then they're gonna go out, I tell them how jealous I am of what they're gonna see. The, the last, the last 40 years we had these young men mostly coming in with terrible weight loss and immune systems, falling apart, and these strange tumors, and they're dying of, of infections like yeast and candida that, you know, everybody did fine with, and it was HIV, right? It had to be figured out. Now HIV is a chronic disease. It's like diabetes. We had so many people die in the '80s. Hepatitis C was... You'd have liver enzymes up, and it wasn't hepatitis A 'cause we could test for that, and it wasn't hepatitis B 'cause we could test for that. So we just called it non-A, non-B. Literally, that's what we called it. And then that got to be called hepatitis C, right? 'Cause it was too embarrassing to call it n- what it wasn't. And now hepatitis C is curable with antiviral agents in, like, three weeks. I mean... And then the biologics showed up. They're not perfect, but they were a big step. And then this immunoautonomics and, and understanding how pain and sleep and the autonomic nervous system work. I'm just really jealous of what those young clinicians are gonna get to see. [00:34:27] Lindsey Dinneen: Yeah. Yeah, that's really... Yeah, I can see why. But it sounds like you are, you know, keeping, keeping your what, what would they say? Like, toe in the water or something so that you're able to, to watch some of this as well and be a part of that next [00:34:40] Andrew Holman: I feel like I'm a ne- I feel like I'm neck deep and I'm just hoping I don't go down any lower. [00:34:47] Lindsey Dinneen: Fair enough. [00:34:48] Andrew Holman: 'Cause I have to find a way to pay for it. [00:34:50] Lindsey Dinneen: Oh, yeah, yeah, yeah. The details, you know. Yeah, yeah. [00:34:53] Andrew Holman: You got those details, yeah. [00:34:54] Lindsey Dinneen: Yeah. Oh my gosh. Well, this has been an incredible conversation. I really appreciate your time today and sharing your insights and, and stories and, yeah, I'm so excited to see the future of medicine, and I appreciate perspectives of, like yours, where you just, you share a lot of hope and optimism, and you're actively working to change lives for a better world. So, thank you. [00:35:16] Andrew Holman: Yeah, I, I irritate a lot of people with that optimism, but I'm sorry, it's just there. I can't fix it. [00:35:22] Lindsey Dinneen: Brilliant. Well, I love it. It makes my heart happy, so thank you so much again, and I hope you have the best rest of your day. [00:35:31] Andrew Holman: Thank you so much. Thanks for having me. [00:35:32] Lindsey Dinneen: Of course. [00:35:34] Dan Purvis: The Leading Difference is brought to you by Velentium Medical. Velentium Medical is a full service CDMO, serving medtech clients worldwide to securely design, manufacture, and test class two and class three medical devices. Velentium Medical's four units include research and development-- pairing electronic and mechanical design, embedded firmware, mobile app development, and cloud systems with the human factor studies and systems engineering necessary to streamline medical device regulatory approval; contract manufacturing-- building medical products at the prototype, clinical, and commercial levels in the US, as well as in low cost regions in 1345 certified and FDA registered Class VII clean rooms; cybersecurity-- generating the 12 cybersecurity design artifacts required for FDA submission; and automated test systems, assuring that every device produced is exactly the same as the device that was approved. Visit VelentiumMedical.com to explore how we can work together to change lives for a better world.

Why can you feel almost functional one day and completely wrecked the next with hypermobile EDS, HSD, POTS, or MCAS? And how do you know whether you need more treatment, more rest, more movement, or an entirely different approach? In this special episode of Bendy Bodies with the Hypermobility MD, producer Aron Korney turns the tables on Dr. Linda Bluestein, asking questions submitted by the hypermobility community about some of the most frustrating and misunderstood parts of living with hypermobile Ehlers-Danlos syndrome (hEDS), hypermobility spectrum disorder (HSD), mast cell activation syndrome (MCAS), POTS/dysautonomia, joint instability, chronic pain, and related conditions. Dr. Bluestein breaks down why symptoms can fluctuate so dramatically from day to day and explains the physiology that may be driving those changes. Sleep quality, hormones, hydration, immune and mast cell activation, physical activity, cumulative stress, and other factors can all influence how someone feels from one day to the next. The conversation also tackles something that is rarely discussed enough: the shame, guilt, and self-doubt that can come with unpredictable chronic illness. Dr. Bluestein shares practical ways family members, partners, and friends can offer support without minimizing symptoms, giving advice that wasn't requested, or assuming they know what the person needs. They also explore two professionals who are often missing from a hypermobility care team: pelvic floor physical therapists and mental health professionals who truly understand chronic illness. Drawing from The Book of Questions: Living with Chronic Illness by Brianna Greenspan and Dr. Gregory Stock, Dr. Bluestein discusses a powerful self-advocacy question: “Despite how I'm feeling in this exact moment, what can I do to best support myself starting now?” Sometimes the most useful intervention isn't a complicated new treatment. It may be drinking water, eating something, changing position, putting on compression, asking for help, modifying an activity, or simply doing one small thing that moves you forward. And then things get rapid-fire. Dr. Bluestein reveals some of her favorite and most underrated treatments for hypermobility, the misconceptions about joint instability she encounters most often, and what she considers one of the most dangerous myths in EDS and HSD care: that surgery is always the answer for an unstable joint. They discuss why joint stability is more complicated than ligaments alone, how systemic issues such as mast cell activation may influence symptoms and stability, and why optimizing the entire person before pursuing surgery can matter. The episode closes with a simple strategy for anyone who feels overwhelmed by a long list of health problems: don't try to fix everything at once. Start small, build momentum, and keep moving in the right direction. Whether you're living with hEDS, HSD, POTS, MCAS, chronic pain, dysautonomia, or another complex connective tissue disorder, this episode offers practical strategies for understanding symptom variability, building a better care team, advocating for yourself, and making progress without needing a perfect plan. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Chapters: 00:00 Fatigue Battery Analogy 01:15 Episode Goals and Community 04:08 Family and Friends Variability 06:26 Why Symptoms Fluctuate 12:26 Spoon Theory and Energy 15:14 Supportive Accommodations 30:38 Care Team Unsung Heroes 33:24 Micro Massive Self Support 36:38 AI Tools And Privacy 38:55 Rapid Fire Myths And Treatments 47:36 One Next Step Hack 53:20 Goodbye And Final Resources Learn more about your ad choices. Visit megaphone.fm/adchoices

Lipedema: The Painful Fat Disorder Doctors Keep Calling Obesity You've done the diets. You've done the exercise. Maybe you've done hormone therapy, and maybe you've even tried GLP-1 medications. And the weight in your legs will not move. It hurts to be touched. It bruises for no reason. And every doctor you've asked has looked at you and told you to eat less and move your body more. There's a name for what might be happening, and it is not obesity and it is not your willpower. Erika Schlick spent nearly a decade being told the same thing. She had already survived a two-year fight to get diagnosed with Lyme disease. Then, after stem cell therapy, she gained more than 50 pounds that no diet, no workout, and no medication would touch. It took eight more years to get an answer: lipedema, a connective tissue and adipose disorder that affects an estimated 1 in 9 women, was first described in 1940, and is still barely taught in medical school. In this episode she walks Dr. Terri through the hallmark signs most doctors miss, why lipedema fat behaves nothing like ordinary fat, how surgical treatment differs from cosmetic liposuction, and what it actually takes to manage the condition long term. What you'll discover: 04:35 — The tick bite in 2012 that started a fourteen-year health journey 05:27 — Lyme remission, and the weight gain that started right after stem cell therapy 06:18 — Eight more years, and why a second undiagnosable condition felt like a Rubik's Cube 07:16 — Four lipedema removal surgeries in 2024, and what recovery actually looked like 08:30 — What lipedema is, why researchers now suspect a connective tissue disorder, and why it resists diet and exercise 09:39 — The hallmark signs: disproportionate fat distribution, swelling, easy bruising, and hands and feet that are spared 10:52 — The nodular texture that gets dismissed as cellulite, and the blame patients absorb instead of a diagnosis 12:54 — Why lipedema surgery is circumferential and lymphatic-sparing, and why a cosmetic surgeon is the wrong choice 15:07 — Post-surgical management: compression, lymphatic drainage, pneumatic pumps, and an anti-inflammatory diet 17:16 — Hormones as the trigger, starting at puberty, and why the condition tracks life stage changes 18:53 — Mold, environmental toxins, and why men carry the gene but rarely express the condition 20:11 — The mast cell and Ehlers-Danlos overlap that keeps showing up in lipedema patients 22:36 — The gut as another layer of connective tissue 25:53 — Building muscle after surgery, identifying trigger foods, and a hotel room in Mexico that caused five pounds of swelling in 24 hours 27:36 — Why diagnosis is still clinical, and what a specialist actually looks for 28:39 — How to find a provider who can diagnose, operate, and manage aftercare 29:22 — Lipedema versus lymphedema, and why the distinction matters when choosing a doctor 35:24 — You know your body best. Why self-advocacy is still the deciding factor. If you have spent years being told your legs are a discipline problem, this episode gives you the language to ask a different question. The Dr. Terri Show is presented by EVEXIAS Health Solutions. For more, visit: https://www.evexias.com Connect with Dr. Terri:

Een nieuwe aflevering van Uniek Sporten Vandaag gemist? Met Fonds Gehandicaptensport directeur Nike Boor als sidekick, sprak Robert Denneman deze aflevering met de gasten over het belang van sporthulpmiddelen, over het project 'This Ability' en over het meedraaien in de wereldtop van drie sporten met Ehlers-Danlos-syndroom. Te gast waren René Martens, CCO van Medux, die zelf als kind na een ongeval een dwarslaesie opliep; sportfluencer Rowan Kilian en zijn broer Mycha, waarbij Rowan vijftig kilometer in een rolstoel gaat afleggen om meer awareness en acceptatie te creëren voor mensen met een beperking; en Esther de Roo, a.k.a. E.D.S.ther, die ondanks EDS meedraait in de wereldtop van het Crossfit, Hyrox en gewichtheffen. Uniek Sporten Vandaag hoor je elke tweede donderdag van de maand tussen 13:00 en 14:00 uur. In een uur tijd wordt je helemaal bijgepraat over alles wat met aangepast sporten te maken heeft. Met het laatste nieuws, interviews en studiogasten, van topsport tot breedtesport. Het programma is live te horen op ALLsportsradio en is na afloop als podcast beschikbaar via de bekende podcastkanalen. Uniek Sporten Vandaag wordt gemaakt in samenwerking met Fonds Gehandicaptensport.

This episode covers Ehlers-Danlos syndrome.Notes: https://zerotofinals.com/paediatrics/rheumatology/eds/Questions: https://members.zerotofinals.com/Books: https://zerotofinals.com/books/The audio in the episode was expertly edited by Harry Watchman.

Could lumping every type of Ehlers-Danlos syndrome under one umbrella actually be doing more harm than good? In this thought-provoking episode, host Dr. Linda Bluestein, the Hypermobility MD, is joined by Abbey Phillipson, who was born with COL5A1 classical Ehlers-Danlos syndrome, survived the first recorded non-traumatic pediatric spondyloptosis, and now serves as Head Strength Coach for Paralympic and Adaptive Sports at the University of Michigan and founder of the Collagen Advocacy Network. Inspired by Abbey's powerful presentation at the UVA Research Symposium, this conversation challenges long-held assumptions about how we define, discuss, and advocate for Ehlers-Danlos syndrome. Although hypermobile EDS has dramatically increased public awareness, Abbey argues that people living with rare and ultra-rare EDS types, representing just 1 to 3 percent of the community, are too often overlooked in research, funding, clinical care, and even public conversations. Together, Dr. Bluestein and Abbey explore whether the different EDS types should continue to share a single name, why distinguishing hypermobile EDS from the genetically defined types could ultimately benefit everyone, and how naming disorders by their underlying gene and predominant manifestation might improve diagnosis, research, and patient care. Abbey also shares deeply personal stories that illustrate what's at stake, including a friend who spent 35 years carrying the wrong diagnosis before genetic testing revealed kyphoscoliotic EDS. Their conversation highlights why genetic counseling matters, the limitations of direct-to-consumer testing, and how assumptions in medicine can unintentionally delay appropriate care. The episode closes on a message of hope and empowerment. After her neurosurgeon prescribed strength training, Abbey transformed from experiencing monthly full-joint dislocations to having none. Today, she helps athletes and people of all abilities discover that movement can be adapted, strength can be built, and disability does not define potential. She also shares why advocacy is most effective when it channels frustration into meaningful, solution-focused action, plus one of her favorite protein-packed hypermobility hacks. Takeaways: People with rare and ultra-rare EDS types make up only about 1 to 3 percent of the community and are frequently left out of decisions about research, funding, and care. Clearly distinguishing hypermobile EDS from the genetically defined types benefits everyone; naming a condition by its gene and predominant manifestation could improve medical clarity and care. The "invisible illness" framing can cause genuinely visible rare types to be overlooked, and comfort with a clinical diagnosis can lead to decades-long misdiagnoses that genetic testing would catch. Genetic testing and counseling are essential, especially before starting a family; direct-to-consumer testing carries real limitations and should be interpreted cautiously. Strength training can be transformative: after her neurosurgeon prescribed it, Abbey went from frequent full dislocations to none, and movement can be tailored to activities people love rather than being purely prescriptive. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Abbey Phillipson? Instagram: @abbeyphillipson @definedbycollagen Website: collagenadvocacynetwork.org Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.orgUVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinicUVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. Learn more about your ad choices. Visit megaphone.fm/adchoices

Could lumping every type of Ehlers-Danlos syndrome under one umbrella actually be doing more harm than good? In this thought-provoking episode, host Dr. Linda Bluestein, the Hypermobility MD, is joined by Abbey Phillipson, who was born with COL5A1 classical Ehlers-Danlos syndrome, survived the first recorded non-traumatic pediatric spondyloptosis, and now serves as Head Strength Coach for Paralympic and Adaptive Sports at the University of Michigan and founder of the Collagen Advocacy Network. Inspired by Abbey's powerful presentation at the UVA Research Symposium, this conversation challenges long-held assumptions about how we define, discuss, and advocate for Ehlers-Danlos syndrome. Although hypermobile EDS has dramatically increased public awareness, Abbey argues that people living with rare and ultra-rare EDS types, representing just 1 to 3 percent of the community, are too often overlooked in research, funding, clinical care, and even public conversations. Together, Dr. Bluestein and Abbey explore whether the different EDS types should continue to share a single name, why distinguishing hypermobile EDS from the genetically defined types could ultimately benefit everyone, and how naming disorders by their underlying gene and predominant manifestation might improve diagnosis, research, and patient care. Abbey also shares deeply personal stories that illustrate what's at stake, including a friend who spent 35 years carrying the wrong diagnosis before genetic testing revealed kyphoscoliotic EDS. Their conversation highlights why genetic counseling matters, the limitations of direct-to-consumer testing, and how assumptions in medicine can unintentionally delay appropriate care. The episode closes on a message of hope and empowerment. After her neurosurgeon prescribed strength training, Abbey transformed from experiencing monthly full-joint dislocations to having none. Today, she helps athletes and people of all abilities discover that movement can be adapted, strength can be built, and disability does not define potential. She also shares why advocacy is most effective when it channels frustration into meaningful, solution-focused action, plus one of her favorite protein-packed hypermobility hacks. Takeaways: People with rare and ultra-rare EDS types make up only about 1 to 3 percent of the community and are frequently left out of decisions about research, funding, and care. Clearly distinguishing hypermobile EDS from the genetically defined types benefits everyone; naming a condition by its gene and predominant manifestation could improve medical clarity and care. The "invisible illness" framing can cause genuinely visible rare types to be overlooked, and comfort with a clinical diagnosis can lead to decades-long misdiagnoses that genetic testing would catch. Genetic testing and counseling are essential, especially before starting a family; direct-to-consumer testing carries real limitations and should be interpreted cautiously. Strength training can be transformative: after her neurosurgeon prescribed it, Abbey went from frequent full dislocations to none, and movement can be tailored to activities people love rather than being purely prescriptive. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Abbey Phillipson? Instagram: @abbeyphillipson @definedbycollagen Website: collagenadvocacynetwork.org Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.orgUVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinicUVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. Learn more about your ad choices. Visit megaphone.fm/adchoices

Ehlers-Danlos syndrome, or EDS, is a genetic connective tissue disorder that can affect nearly every system in the body. Yet many people spend years living with unexplained pain, frequent injuries, gastrointestinal concerns, cardiovascular symptoms, and other challenges before receiving a diagnosis.In this episode, Corey speaks with physical therapist Dr. Emma McCauley about the difference between hypermobility and EDS, why diagnosis can take more than a decade, and how racial disparities can make that journey even longer for people of color.Dr. McCauley also explains how physical therapy can help people improve joint stability, body awareness, movement, and quality of life. The conversation highlights the importance of listening to patients, building diverse healthcare professions, and helping people find ways to live full lives while managing chronic conditions.Show NotesEhlers-Danlos syndrome is often associated with flexibility, but the condition can affect far more than a person's joints.Dr. Emma McCauley joins The Healthy Project Podcast to explain how EDS affects connective tissue throughout the body and why symptoms can look different from one person to another.Corey and Dr. McCauley discuss the long road many patients face before receiving a diagnosis. They also explore why pain reported by Black patients and other patients of color may be dismissed, contributing to even longer delays in receiving answers and care.Dr. McCauley explains the role physical therapists can play in recognizing patterns, helping patients understand their bodies, and connecting them with other healthcare professionals.In This EpisodeWhat Ehlers-Danlos syndrome isThe difference between EDS and general hypermobilityWhy an EDS diagnosis can take 10 to 12 years or longerHow racial bias and pain dismissal affect diagnosisWhy EDS is not only a white person's conditionHow EDS can affect the cardiovascular, gastrointestinal, nervous, and musculoskeletal systemsThe connection between hypermobility and neurodivergenceHow physical therapy improves proprioception, stability, and body awarenessWhy movement may feel awkward when patients learn new patternsHow physical therapists help patients make long-term lifestyle changesWhy representation matters within the physical therapy professionHow Iowa's direct-access laws may allow patients to see a physical therapist without a referralEpisode Timestamps00:48 – Dr. Emma McCauley's path to physical therapy02:22 – How she began working with patients with EDS03:53 – Understanding EDS and hypermobility04:58 – The long road to receiving a diagnosis06:43 – Why EDS is not a white person's disease08:06 – Racial disparities in pain treatment and diagnosis09:13 – Diversity and representation in physical therapy11:52 – Why physical therapists may have more time to listen13:18 – Proprioception, joint stability, and body awareness16:55 – EDS and the aging process17:13 – Comorbidities, mental health, and neurodivergence19:28 – Helping patients experience more of life21:02 – Physical therapy as long-term lifestyle management22:20 – How to begin seeking physical therapy services24:10 – How to connect with Dr. Emma McCauleyAbout Dr. Emma McCauleyDr. Emma McCauley is a physical therapist at Kinetic Edge Physical Therapy in the Des Moines area. Her work includes helping people with hypermobility and Ehlers-Danlos syndrome better understand their bodies, build stability, manage pain, and improve their quality of life.Connect with Dr. Emma McCauleyKinetic Edge Physical Therapy6000 Grand AvenueDes Moines, IowaEmail: emma@kineticedgept.com ★ Support this podcast ★

Chuck and Chris have a potpourri of topics including CMS proposed changes for 2027 (not good for hand surgery), cases, and two listener submitted topics: board preparation and caring for patients with ligamentous laxity/ Ehlers Danlos.Chuck references Christian Pean's Substack called 'Techy Surgeon' as a great resource for value based care and all things tech including AI insights.See www.practicelink.com/theupperhand for more information from our partner on job search and career opportunities.The Upper Hand Podcast is sponsored by Checkpoint Surgical, a provider of innovative solutions for peripheral serve surgery. To learn more, visit https://checkpointsurgical.com/.As always, thanks to @iampetermartin for the amazing introduction and concluding music.For additional links, the catalog.  Please see https://www.ortho.wustl.edu/content/Podcast-Listings/8280/The-Upper-Hand-Podcast.aspx

Comparing Marfan Syndrome, Loeys-Dietz Syndrome, and Vascular EDS   Guest: Juan Bowen, M.D. Host: Paul Friedman, M.D.   Marfan syndrome, Loeys-Dietz syndrome, and vascular Ehlers-Danlos syndrome are clinical problems seen in an aortic clinic. Thoracic aortic aneurysm is a common feature, but the three conditions differ in the severity of aortic and arterial disease and in the types of extracardiac problems that require management. Making an accurate diagnosis is an essential first step in their successful management.   Topics Discussed: What mutations cause Marfan syndrome, Loeys-Dietz syndrome, and the vascular Ehlers-Danlos syndrome? What is the natural history of these three conditions? How is aortic and vascular disease managed in these three conditions? What are the non-cardiac problems most often encountered in these three conditions?   Connect with Mayo Clinic's Cardiovascular Continuing Medical Education online at https://cveducation.mayo.edu or on Twitter @MayoClinicCV and @MayoCVservices. LinkedIn: Mayo Clinic Cardiovascular Services Cardiovascular Education App: The Mayo Clinic Cardiovascular CME App is an innovative educational platform that features cardiology-focused continuing medical education wherever and whenever you need it. Use this app to access other free content and browse upcoming courses. Download it for free in Apple or Google stores today! No CME credit offered for this episode.   Podcast episode transcript found here.   Recorded on: 17-February-2026

Why do some people with hEDS or HSD report meaningful relief with medical cannabis, while others feel worse, notice no benefit, or experience side effects? And what might these varied responses teach us about pain, the autonomic nervous system, gut function, and nervous system sensitization? In this episode, host Dr. Linda Bluestein, the Hypermobility MD, is joined by Professor David Nutt, a neuropsychopharmacologist at Imperial College London, and Lucy Stafford, a PhD researcher in clinical neuroscience with lived experience of hypermobile Ehlers-Danlos syndrome. This is not a hype episode, a recommendation to use cannabis, or medical advice. Instead, it is a careful, curiosity-driven conversation about what is known, what is still emerging, and what remains uncertain about medical cannabis in hEDS and HSD. Lucy shares her experience of severe illness, high-dose opioid treatment, a feeding tube, repeated ICU stays, and eventually coming off opioids, an experience that helped shape her path into cannabinoid research. Professor Nutt explains the discovery of the endocannabinoid system and why this system may be relevant to pain processing, stress responses, autonomic regulation, immune signaling, and gut function. Together, they explore how cannabinoids may influence a sensitized nervous system, why responses vary so widely, and why medically complex patients need individualized guidance rather than shame, dismissal, or unsupported promises. The conversation covers many of the practical questions patients often ask, including the difference between CBD and THC, full-spectrum products, terpenes and the entourage effect, routes of administration, absorption differences, and the importance of a cautious “start low, go slow” approach when cannabis is being considered under appropriate medical supervision. They also address important safety considerations, including contraindications, drug interactions, psychiatric risk, impairment, dependence, and why cannabis is not appropriate for everyone. The episode closes with a broader discussion of stigma, the emerging science of psychedelics for chronic pain, and the human and financial costs of undertreated complex illness. The Bendy Bodies podcast is for educational purposes only and is not a substitute for personalized medical advice. Laws, product quality, dosing, and individual risks vary, so patients should consult a qualified healthcare professional before using cannabis or changing any treatment plan. Takeaways: The endocannabinoid system is an important regulatory system involved in pain processing, stress responses, immune signaling, gut function, and nervous system homeostasis, yet it receives relatively little attention in medical and neuroscience training. Cannabinoids do not work like opioids. Rather than simply “blocking” pain, they may influence pain modulation, nervous system sensitization, autonomic tone, and gut motility, though much remains to be studied specifically in hEDS and HSD. CBD and THC have different effects, benefits, and risks. CBD may reduce some unwanted THC effects for certain people, but responses vary, and dosing should be individualized. A cautious “start low, go slow” approach is especially important for medically complex patients, particularly those with dysautonomia, medication sensitivity, MCAS-like symptoms, anxiety, or multiple medications. Individual responses to cannabis vary widely. Differences in absorption, metabolism, product composition, route of administration, and underlying physiology may help explain why one person improves while another worsens or notices no effect. Cannabis is not right for everyone. Extra caution is warranted for people with a history of psychosis, paranoia, substance use disorder, significant cognitive impairment, fall risk, pregnancy, or medications metabolized through overlapping liver pathways. Patients deserve balanced information: neither stigma and dismissal nor exaggerated promises. The goal is thoughtful, evidence-informed, individualized decision-making. Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. Head to http://www.cozyearth.com and use my code BENDY for an exclusive 20% off. Want more Professor Dave Nutt & Lucy Stafford? X / Twitter link. Profdavidnutt@twitter.com & @lucystaffie BleuSky:profdavidnutt@bluesky.com Instagram: @lustaffordphd, @drugscienceuk, @Drug_Science & @EmbodiedNeuro Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Why do some people with hEDS or HSD report meaningful relief with medical cannabis, while others feel worse, notice no benefit, or experience side effects? And what might these varied responses teach us about pain, the autonomic nervous system, gut function, and nervous system sensitization? In this episode, host Dr. Linda Bluestein, the Hypermobility MD, is joined by Professor David Nutt, a neuropsychopharmacologist at Imperial College London, and Lucy Stafford, a PhD researcher in clinical neuroscience with lived experience of hypermobile Ehlers-Danlos syndrome. This is not a hype episode, a recommendation to use cannabis, or medical advice. Instead, it is a careful, curiosity-driven conversation about what is known, what is still emerging, and what remains uncertain about medical cannabis in hEDS and HSD. Lucy shares her experience of severe illness, high-dose opioid treatment, a feeding tube, repeated ICU stays, and eventually coming off opioids, an experience that helped shape her path into cannabinoid research. Professor Nutt explains the discovery of the endocannabinoid system and why this system may be relevant to pain processing, stress responses, autonomic regulation, immune signaling, and gut function. Together, they explore how cannabinoids may influence a sensitized nervous system, why responses vary so widely, and why medically complex patients need individualized guidance rather than shame, dismissal, or unsupported promises. The conversation covers many of the practical questions patients often ask, including the difference between CBD and THC, full-spectrum products, terpenes and the entourage effect, routes of administration, absorption differences, and the importance of a cautious “start low, go slow” approach when cannabis is being considered under appropriate medical supervision. They also address important safety considerations, including contraindications, drug interactions, psychiatric risk, impairment, dependence, and why cannabis is not appropriate for everyone. The episode closes with a broader discussion of stigma, the emerging science of psychedelics for chronic pain, and the human and financial costs of undertreated complex illness. The Bendy Bodies podcast is for educational purposes only and is not a substitute for personalized medical advice. Laws, product quality, dosing, and individual risks vary, so patients should consult a qualified healthcare professional before using cannabis or changing any treatment plan. Takeaways: The endocannabinoid system is an important regulatory system involved in pain processing, stress responses, immune signaling, gut function, and nervous system homeostasis, yet it receives relatively little attention in medical and neuroscience training. Cannabinoids do not work like opioids. Rather than simply “blocking” pain, they may influence pain modulation, nervous system sensitization, autonomic tone, and gut motility, though much remains to be studied specifically in hEDS and HSD. CBD and THC have different effects, benefits, and risks. CBD may reduce some unwanted THC effects for certain people, but responses vary, and dosing should be individualized. A cautious “start low, go slow” approach is especially important for medically complex patients, particularly those with dysautonomia, medication sensitivity, MCAS-like symptoms, anxiety, or multiple medications. Individual responses to cannabis vary widely. Differences in absorption, metabolism, product composition, route of administration, and underlying physiology may help explain why one person improves while another worsens or notices no effect. Cannabis is not right for everyone. Extra caution is warranted for people with a history of psychosis, paranoia, substance use disorder, significant cognitive impairment, fall risk, pregnancy, or medications metabolized through overlapping liver pathways. Patients deserve balanced information: neither stigma and dismissal nor exaggerated promises. The goal is thoughtful, evidence-informed, individualized decision-making. Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. Head to http://www.cozyearth.com and use my code BENDY for an exclusive 20% off. Want more Professor Dave Nutt & Lucy Stafford? X / Twitter link. Profdavidnutt@twitter.com & @lucystaffie BleuSky:profdavidnutt@bluesky.com Instagram: @lustaffordphd, @drugscienceuk, @Drug_Science & @EmbodiedNeuro Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Alex Morgan founded theautisticwoman.co.uk, the UK's only comprehensive online autism resource written by an autistic woman. Mothertongue: A Meditation on Memory, Truth and Love (Thorn & Haw, 2026), her memoir about spending almost sixty years with undiagnosed autism, was shortlisted in the Northern Writers' Awards. A journalist on national newspapers and magazines for forty years, she blogs about autistic joy on Substack and can also be found on Instagram and Facebook. Her first novel, Tandem (Hookline, 2014), won the Hookline Novel Competition judged by book groups from around the UK, and she co-authored A Practical Guide to Camping (White Owl, 2022). Alex lives with hypermobile Ehlers-Danlos and Mast Cell Activation syndromes. She organises her bookshelves by the colour of the spines and loves pattern, detail and order. When not reading, swimming, rowing or doing yoga, she is working on a second novel. Website: theautisticwoman.co.ukBuy Mothertongue: theautisticwoman.co.uk/books-on-autismSubstack: @theautisticwomanInstagram: @the_autistic_womanFacebook: Alex Morgan – The Autistic WomanThis podcast is for anyone who has ever felt out of the box or isolated by society's expectations. This is a space for creatives going it alone, entrepreneurs, and anyone who feels they are on a different path. Join Caroline as she shares her personal journey and delves into the interconnected experiences of Autism and ADHD as well as creative differences.I believe that our unique story, our lived experiences and the understanding of our mind's unique wiring, are the steps to uncovering our soul's true purpose. This podcast is now a companion to my book, “The Neurodivergent Soul” where I explore the sacredness of difference and the beauty of the neurodivergent mind. Through personal stories, expert interviews, and a deep sense of compassion, you'll find a community of people who truly understand and a path to embracing your authentic self.This podcast is for you if you're looking to:Join a community for creatives, entrepreneurs, and anyone who thinks ‘out of the box.'Find conversations on Neurodivergence and difference.Learn how to use your unique wiring for a purposeful life.Visit Middle Earth Medicine to learn more and connect with me, Caroline.The views expressed by guests on this podcast are their own and do not necessarily reflect my perspectives. My aim is to create a space for open enquiry, diverse experiences, and thoughtful conversation. As always, I invite you to reflect on what resonates, question what doesn't, and trust your own wisdom.Your donations directly fuel the growth of this podcast! They allow me to bring in even more wonderful and inspiring guests, expanding my reach to uplift even more listeners. Please show your support and become part of the magic! Donations of any amount are deeply appreciated. You can make a secure donation through PayPal using the link below.Every contribution, big or small, makes a difference! paypal.me/carolinecarey60 Thank you for your support in spreading the light of soul journeys. Hosted on Acast. See acast.com/privacy for more information.

Can a single infection permanently change your health, or does it simply reveal something that was already there? In this episode, host Dr. Linda Bluestein, the Hypermobility MD, welcomes back Dr. Ina Stephens, Associate Director of the UVA Health EDS & Hypermobility Disorders Center, for an in-depth discussion about Long COVID, post-infectious syndromes, and their connection to Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and immune dysfunction. Dr. Stephens explains why post-infectious illnesses are real and have been recognized for more than a century, tracing the pattern from the 1917 influenza pandemic and encephalitis lethargica to modern conditions including Long COVID, reactivated Epstein-Barr virus (EBV), Lyme disease, Babesia and other tick-borne infections, and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). She shares the detective work behind her Diagnostic Dilemma Clinic, how a comprehensive history and targeted evaluation uncover hidden diagnoses, and why so many patients with complex chronic illness also have hypermobility. The conversation explores emerging research showing that people with hypermobility are approximately four times more likely to develop Long COVID, with an even greater risk in those with postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS). Dr. Stephens and Dr. Bluestein discuss the underlying biology, including immune dysregulation, autonomic nervous system dysfunction, vagus nerve dysfunction, mitochondrial dysfunction, and the ways connective tissue disorders may influence recovery after infection. They also review evidence-informed treatment strategies, including supporting mitochondrial health with coenzyme Q10 (CoQ10), glutathione, and N-acetylcysteine (NAC); the role of low-dose naltrexone (LDN); optimizing iron and vitamin C status; when antiviral medications may be appropriate; intravenous immunoglobulin (IVIG); and glucagon-like peptide-1 (GLP-1) receptor agonists. Finally, they explain why gradually increasing muscle mass and strength may have a greater long-term impact than any single supplement and share practical strategies for supporting recovery and strengthening your regimen at the first sign of illness. Whether you're living with EDS, HSD, Long COVID, POTS, MCAS, ME/CFS, Lyme disease, or another post-infectious condition, this episode offers practical, science-based insights into why these conditions overlap and what you can do to support healing. Takeaways: • Can a virus, Lyme disease, or another infection permanently change your health? Learn why post-infectious syndromes have been documented for more than a century and how infections can trigger chronic illness through immune dysregulation and autoimmunity. • Why are people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) so much more likely to develop Long COVID? Discover the research linking hypermobility, POTS, mast cell activation syndrome (MCAS), and prolonged recovery after infection. • What do Long COVID, Lyme disease, ME/CFS, POTS, and other post-infectious conditions have in common? Explore the shared biology of immune dysfunction, autonomic and vagus nerve dysfunction, and mitochondrial dysfunction that may explain multisystem symptoms. • Which treatments actually help? Hear the evidence behind coenzyme Q10 (CoQ10), glutathione, N-acetylcysteine (NAC), low-dose naltrexone (LDN), iron and vitamin C, antiviral medications, intravenous immunoglobulin (IVIG), and glucagon-like peptide-1 (GLP-1) receptor agonists. • Could building muscle be one of the most powerful treatments for chronic illness? Learn why increasing muscle mass and strength may have a greater long-term impact than any single supplement, plus Dr. Stephens' practical strategy for boosting your regimen at the first sign of infection. Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Can a single infection permanently change your health, or does it simply reveal something that was already there? In this episode, host Dr. Linda Bluestein, the Hypermobility MD, welcomes back Dr. Ina Stephens, Associate Director of the UVA Health EDS & Hypermobility Disorders Center, for an in-depth discussion about Long COVID, post-infectious syndromes, and their connection to Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and immune dysfunction. Dr. Stephens explains why post-infectious illnesses are real and have been recognized for more than a century, tracing the pattern from the 1917 influenza pandemic and encephalitis lethargica to modern conditions including Long COVID, reactivated Epstein-Barr virus (EBV), Lyme disease, Babesia and other tick-borne infections, and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). She shares the detective work behind her Diagnostic Dilemma Clinic, how a comprehensive history and targeted evaluation uncover hidden diagnoses, and why so many patients with complex chronic illness also have hypermobility. The conversation explores emerging research showing that people with hypermobility are approximately four times more likely to develop Long COVID, with an even greater risk in those with postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS). Dr. Stephens and Dr. Bluestein discuss the underlying biology, including immune dysregulation, autonomic nervous system dysfunction, vagus nerve dysfunction, mitochondrial dysfunction, and the ways connective tissue disorders may influence recovery after infection. They also review evidence-informed treatment strategies, including supporting mitochondrial health with coenzyme Q10 (CoQ10), glutathione, and N-acetylcysteine (NAC); the role of low-dose naltrexone (LDN); optimizing iron and vitamin C status; when antiviral medications may be appropriate; intravenous immunoglobulin (IVIG); and glucagon-like peptide-1 (GLP-1) receptor agonists. Finally, they explain why gradually increasing muscle mass and strength may have a greater long-term impact than any single supplement and share practical strategies for supporting recovery and strengthening your regimen at the first sign of illness. Whether you're living with EDS, HSD, Long COVID, POTS, MCAS, ME/CFS, Lyme disease, or another post-infectious condition, this episode offers practical, science-based insights into why these conditions overlap and what you can do to support healing. Takeaways: • Can a virus, Lyme disease, or another infection permanently change your health? Learn why post-infectious syndromes have been documented for more than a century and how infections can trigger chronic illness through immune dysregulation and autoimmunity. • Why are people with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) so much more likely to develop Long COVID? Discover the research linking hypermobility, POTS, mast cell activation syndrome (MCAS), and prolonged recovery after infection. • What do Long COVID, Lyme disease, ME/CFS, POTS, and other post-infectious conditions have in common? Explore the shared biology of immune dysfunction, autonomic and vagus nerve dysfunction, and mitochondrial dysfunction that may explain multisystem symptoms. • Which treatments actually help? Hear the evidence behind coenzyme Q10 (CoQ10), glutathione, N-acetylcysteine (NAC), low-dose naltrexone (LDN), iron and vitamin C, antiviral medications, intravenous immunoglobulin (IVIG), and glucagon-like peptide-1 (GLP-1) receptor agonists. • Could building muscle be one of the most powerful treatments for chronic illness? Learn why increasing muscle mass and strength may have a greater long-term impact than any single supplement, plus Dr. Stephens' practical strategy for boosting your regimen at the first sign of infection. Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Looking for further guidance and support on ADHD Women's Wellbeing? Check out my resource library here. The 'ADHD Women's Wellbeing Workshop Series' is on offer this July. Head here to learn more about the workshops and use code JULY to get 35% off.If you've been told your pain is growing pains, anxiety or just something you need to live with, this episode might be the beginning of finally understanding what's actually been going on in your body.On this week's episode of The ADHD Women's Wellbeing Podcast, I'm joined by Alexandra Orfanides, a London-based hypermobility specialist osteopath and founder of Hypermobility HQ.Alexandra hosts the Help! I'm Hypermobile podcast and is the author of the book of the same name. She believes that "incurable" does not mean "untreatable," and she's on a mission to help the hypermobile community feel seen, supported, and informed.In this episode, Alex and I talk about the significant overlap between hypermobility and neurodivergence, why so many women spend decades being dismissed or misdiagnosed, and what it actually means to understand your body through this lens. We also get into the difference between osteopathy and physiotherapy, how to recognise signs of hypermobility in children, and why self-treatment strategies are such a crucial part of managing a connective tissue condition day-to-day.In this episode, we cover:What hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder actually are, and why the terminology mattersWhy growing pains are not a real diagnosis, and what to look for in children insteadThe strong correlation between hypermobility, ADHD and neurodivergenceHow conditions like endometriosis, PCOS and dysmenorrhea overlap with hEDS and HSDWhy gastrointestinal issues in children should never just be dismissed as IBSThe difference between osteopathy and physiotherapy, and how to find the right practitionerHow chronic pain, headaches and migraines can be connected to hypermobile connective tissueWhy rhythmic movement, including swimming and dancing, can be so regulating for hypermobile and neurodivergent bodiesThe importance of self-treatment strategies for people who can't always access clinic appointmentsWhy a diagnosis is a privilege, and how Help! I'm Hypermobile was written to reach the people who couldn't afford oneTimestamps: 00:00 - Welcome, and introducing Alexandra Orfanides 01:40 - Alex's personal story: growing up with undiagnosed pain 05:52 - From English literature to osteopathy 09:45 - Why hypermobility patients kept finding their way to Alex's clinic 11:46 - The overlap between hypermobility, ADHD and neurodivergence 14:12 - Osteopathy vs physiotherapy: what's the difference? 17:36 - Terminology: hEDS, HSD, condition vs disorder 20:30 - What patients are coming in knowing, and what they're not 23:57 - Signs to look for in children: growing pains, gut issues and more 28:15 - Endometriosis, PCOS and hormonal conditions in hypermobile bodies 30:39 - Migraines, headaches and the connection to the neck and connective tissue 36:32 - The gatekeeping problem and self-treatment strategies 39:24 - Working as a team with your patients 43:35 - Why Alex wrote Help! I'm Hypermobile 45:42 - How to work with Alex and what to expectLinks and Resources:Find my popular ADHD workshops and resources on my website [here].Follow the podcast on Instagram: @adhd_womenswellbeing_pod Visit Alexandra's website: hypermobilityhq.comConnect with Alexandra on Instagram, YouTube, TikTok and Pinterest: @hypermobilityhqListen to Alex's podcast: Help! I'm HypermobileGet Alex's book: Help! I'm Hypermobile: Your How-To Guide for hEDS, HSD, and Life in a Hypermobile BodyResearch: Gynaecological conditions in hEDS and HSD (Daylor et al., 2025): https://doi.org/10.3390/jcm14165636Research: Defining growing pains — a scoping review (O'Keeffe et al., 2022): https://doi.org/10.1542/peds.2021-052578Kate Moryoussef is a women's ADHD lifestyle and wellbeing coach and EFT practitioner who helps overwhelmed and unfulfilled newly diagnosed women with ADHD find more calm, balance, hope, health, compassion, creativity, and clarity.

If you could listen to just one conversation about Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), what would you need to know? In this listener Q&A episode, producer Aron Korney puts host Dr. Linda Bluestein, the Hypermobility MD, in the hot seat to answer the questions patients ask most about hypermobility, connective tissue disorders, genetic testing, medications, and managing complex chronic illness. Dr. Bluestein explains why EDS, HSD, POTS, and MCAS are whole-body conditions rather than isolated joint disorders, and how connective tissue affects nearly every organ system. She shares why "less is more," why small, consistent improvements create meaningful long-term progress, and how the placebo and nocebo effects can influence healing. The conversation also covers the U.S. Food and Drug Administration (FDA) black box warning for fluoroquinolone antibiotics, including ciprofloxacin, levofloxacin, and moxifloxacin, explaining why people with connective tissue disorders should discuss safer alternatives with their healthcare providers when appropriate. Dr. Bluestein then tackles one of the most confusing topics in EDS: genetic testing. She explains why a negative genetic test does not rule out every rare subtype of EDS, how variants of uncertain significance (VUS) and direct-to-consumer genetic reports can be misleading, and why clinical evaluation remains essential, especially when vascular EDS is suspected. Finally, she discusses how mast cell activation syndrome (MCAS) can amplify pain, migraines, gastrointestinal symptoms, dysautonomia, and other multisystem symptoms, how to obtain accurate laboratory testing, and why she casts a wider diagnostic net when evaluating complex patients. The episode concludes with a simple hypermobility hack that uses vagus nerve activation to help calm a constant fight-or-flight response. Whether you're newly diagnosed with EDS or HSD, wondering if you have POTS or MCAS, trying to understand genetic testing, or looking for practical strategies to improve your health, this episode delivers the essential concepts every patient should know. Takeaways: • Think EDS only affects your joints? Discover why Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), POTS, and mast cell activation syndrome (MCAS) are whole-body conditions that can affect nearly every organ system. • Could doing less actually help you feel better? Learn why "less is more," how stacking small wins leads to meaningful progress, and how the placebo and nocebo effects can influence your symptoms and recovery. • Are antibiotics like ciprofloxacin safe if you have EDS or another connective tissue disorder? Understand the FDA black box warning on fluoroquinolones, the risks of tendon rupture, nerve injury, and aortic complications, and when it's worth asking about alternatives. • Can a negative genetic test still mean you have a rare type of EDS? Learn why clinical features, family history, and red flags often matter as much as laboratory results, especially when vascular EDS is a possibility. • Could mast cell activation syndrome be making your symptoms worse? Discover how MCAS can amplify pain, migraines, gastrointestinal symptoms, and dysautonomia, why testing is often misunderstood, and the biggest mistakes patients should avoid. Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. Head to http://www.cozyearth.com and use my code BENDY for an exclusive 20% off. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

If you could listen to just one conversation about Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), what would you need to know? In this listener Q&A episode, producer Aron Korney puts host Dr. Linda Bluestein, the Hypermobility MD, in the hot seat to answer the questions patients ask most about hypermobility, connective tissue disorders, genetic testing, medications, and managing complex chronic illness. Dr. Bluestein explains why EDS, HSD, POTS, and MCAS are whole-body conditions rather than isolated joint disorders, and how connective tissue affects nearly every organ system. She shares why "less is more," why small, consistent improvements create meaningful long-term progress, and how the placebo and nocebo effects can influence healing. The conversation also covers the U.S. Food and Drug Administration (FDA) black box warning for fluoroquinolone antibiotics, including ciprofloxacin, levofloxacin, and moxifloxacin, explaining why people with connective tissue disorders should discuss safer alternatives with their healthcare providers when appropriate. Dr. Bluestein then tackles one of the most confusing topics in EDS: genetic testing. She explains why a negative genetic test does not rule out every rare subtype of EDS, how variants of uncertain significance (VUS) and direct-to-consumer genetic reports can be misleading, and why clinical evaluation remains essential, especially when vascular EDS is suspected. Finally, she discusses how mast cell activation syndrome (MCAS) can amplify pain, migraines, gastrointestinal symptoms, dysautonomia, and other multisystem symptoms, how to obtain accurate laboratory testing, and why she casts a wider diagnostic net when evaluating complex patients. The episode concludes with a simple hypermobility hack that uses vagus nerve activation to help calm a constant fight-or-flight response. Whether you're newly diagnosed with EDS or HSD, wondering if you have POTS or MCAS, trying to understand genetic testing, or looking for practical strategies to improve your health, this episode delivers the essential concepts every patient should know. Takeaways: • Think EDS only affects your joints? Discover why Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), POTS, and mast cell activation syndrome (MCAS) are whole-body conditions that can affect nearly every organ system. • Could doing less actually help you feel better? Learn why "less is more," how stacking small wins leads to meaningful progress, and how the placebo and nocebo effects can influence your symptoms and recovery. • Are antibiotics like ciprofloxacin safe if you have EDS or another connective tissue disorder? Understand the FDA black box warning on fluoroquinolones, the risks of tendon rupture, nerve injury, and aortic complications, and when it's worth asking about alternatives. • Can a negative genetic test still mean you have a rare type of EDS? Learn why clinical features, family history, and red flags often matter as much as laboratory results, especially when vascular EDS is a possibility. • Could mast cell activation syndrome be making your symptoms worse? Discover how MCAS can amplify pain, migraines, gastrointestinal symptoms, and dysautonomia, why testing is often misunderstood, and the biggest mistakes patients should avoid. Go http://www.AquaTru.com now for 20% off (your purifier) using promo code BENDY. Head to http://www.cozyearth.com and use my code BENDY for an exclusive 20% off. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Nicole Woodruff, OTD, OTR/L, is an Occupational Therapist, pelvic health specialist, educator, author, and the founder of Intuitive Therapies & Pelvic Health in Tampa, Florida. She specializes in helping people navigate hypermobility (hEDS/HSD), dysautonomia/POTS, chronic pain, and pelvic floor dysfunction. After facing her own journey with hypermobile Ehlers-Danlos syndrome, pelvic health challenges, and a complex postpartum recovery, Nicole became passionate about bridging the gap between traditional rehabilitation and whole-person healing. Her work focuses on helping clients move beyond symptom management to rebuild trust in their bodies through education, nervous system regulation, lifestyle strategies, and compassionate, evidence-based care.  Sponsored By: → PUORI | Go to https://puori.com/HEALINGTHESOURCE and use the code HEALINGTHESOURCE at checkout to get 32% off your first Puori Grass-fed Whey Protein subscription order and get a free shaker worth $25. Resources: Nicole's Instagram Nicole's TikTok Nicole's Facebook Free Nervous System Regulation Made Simple Guide OT Private Practice & Virtual Coaching: intuitivetherapiespelvichealth.com Follow the host, Claudia, on Instagram, check out Elham's Liquid Gold 100% Organic Castor Oil, and enjoy her deep-dives on Substack

In this episode of The Rebel MT, Allison reflects on a session she had as a newbie therapist that shaped how she approaches anatomy, particularly in relation to Ehlers-Danlos syndrome (EDS). She explores what bodyworkers need to know about EDS, what interventions can be meaningfully helpful, and why the lessons learned from early mistakes can become some of our greatest strengths.   Host Bio:           Contact Allison Denney: rebelmt@abmp.com             Allison's website: www.rebelmassage.com                      Allison Denney is a certified massage therapist and certified YouTuber. You can find her massage tutorials at YouTube.com/RebelMassage. She is also passionate about creating products that are kind, simple, and productive for therapists to use in their practices. Her products, along with access to her blog and CE opportunities, can be found at rebelmassage.com.                           About our Sponsors:   Rebel Massage Therapist: My name is Allison. And I am not your typical massage therapist. After 20 years of experience and thousands of clients, I have learned that massage therapy is SO MUCH more than a relaxing experience at a spa. I see soft tissue as more than merely a physical element but a deeply complex, neurologically driven part of who you are. I use this knowledge to work WITH you—not ON you—to create change that works. This is the basis of my approach. As a massage therapist, I have worked in almost every capacity, including massage clinics, physical therapy clinics, chiropractor offices, spas, private practice, and teaching. I have learned incredible techniques and strategies from each of my experiences. In my 20 years as a massage therapist, I have never stopped growing. I currently have a private practice based out of Long Beach, California, where I also teach continuing education classes and occasionally work on my kids. If they're good. website: www.rebelmassage.com FB: facebook.com/RebelMassage IG: instagram.com/rebelmassagetherapist YouTube: youtube.com/c/RebelMassage email: rebelmassagetherapist@gmail.com   Anatomy Trains is a global leader in online anatomy education and also provides in-classroom certification programs for structural integration in the US, Canada, Australia, Europe, Japan, and China, as well as fresh-tissue cadaver dissection labs and weekend courses. The work of Anatomy Trains originated with founder Tom Myers, who mapped the human body into 13 myofascial meridians in his original book, currently in its fourth edition and translated into 12 languages. The principles of Anatomy Trains are used by osteopaths, physical therapists, bodyworkers, massage therapists, personal trainers, yoga, Pilates, Gyrotonics, and other body-minded manual therapists and movement professionals. Anatomy Trains inspires these practitioners to work with holistic anatomy in treating system-wide patterns to provide improved client outcomes in terms of structure and function.        Website: anatomytrains.com               Email: info@anatomytrains.com           Facebook: facebook.com/AnatomyTrains                   Instagram: www.instagram.com/anatomytrainsofficial YouTube: https://www.youtube.com/channel/UC2g6TOEFrX4b-CigknssKHA    Precision Neuromuscular Therapy seminars (www.pnmt.org) have been teaching high-quality seminars for more than 20 years. Doug Nelson and the PNMT teaching staff help you to practice with the confidence and creativity that comes from deep understanding, rather than the adherence to one treatment approach or technique. Find our seminar schedule at pnmt.org/seminar-schedule with over 60 weekends of seminars across the country. Or meet us online in the PNMT Portal, our online gateway with access to over 500 videos, 37 NCBTMB CEs, our Discovery Series webinars, one-on-one mentoring, and much, much more! All for the low yearly cost of $167.50. Learn more at pnmt.thinkific.com/courses/pnmtportal!  Follow us on social media: @precisionnmt on Instagram or at Precision Neuromuscular Therapy Seminars on Facebook.   At Heights Wellness Retreat, we believe every person is an unstoppable force, whether navigating daily demands, pursuing goals, or striving to be their best. This drives everything we do. We go beyond traditional spa services by creating a purpose-driven environment where wellness professionals are empowered, valued, and positioned to grow. With steady clientele, support, and a wellness-forward culture, Heights Wellness Retreat is where therapists build meaningful, sustainable careers while shaping the future of the wellness industry.  www.massageheightscareers.careerplug.com/jobs  www.heightswellnessretreats.com  https://www.instagram.com/heightswellnessretreat/  https://www.facebook.com/heightswellnessretreat/              

Too many diagnoses. Too many opinions. Too many tabs open. Not enough clarity. If you've ever felt overwhelmed trying to navigate Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorder (HSD), POTS, MCAS, chronic pain, or other complex health issues, you're not alone. In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by physician assistant Rebecca Gluck, PA-C, who brings specialized genetics experience from working alongside Dr. Clair Francomano and serves on the Ehlers-Danlos Society's Medical and Scientific Advisory Board and Road to 2026 Research Committee. Together, they discuss how patients and families can move from information overload to a clearer, more practical plan. They explore how to evaluate online communities, AI tools, direct-to-consumer genetic testing, and conflicting medical opinions without becoming even more overwhelmed. Rebecca and Dr. Bluestein explain why diagnosis is often the beginning, not the end, of the journey, and why there is no single "EDS expert" who can solve every problem in one visit. They also walk through how to prioritize symptoms, identify the most functionally limiting issues, avoid unnecessary "whack-a-mole" interventions, and build a collaborative care team. This conversation is for anyone who has too many diagnoses, too many opinions, too many tabs open, and no clear next step. If you are trying to make sense of EDS, HSD, hypermobility, mast cell activation, POTS, chronic pain, genetic testing, AI-generated health information, or proposed procedures, this episode offers practical guidance to help you pause, sort through the noise, and move forward with more clarity. Takeaways: • Information overload is real, especially for people with EDS, HSD, POTS, MCAS, chronic pain, and complex multisystem symptoms. • More information does not always mean more clarity. The key is learning what applies to you, right now. • AI tools and direct-to-consumer genetic testing can help organize questions, but they are not diagnostic and can make uncertain findings sound more certain than they are. • A diagnosis can provide validation and shared language, but it is usually the start of building a plan, not the finish line. • Hypermobile EDS (hEDS) and HSD currently do not have a confirmatory genetic test. • No single clinician can be the expert in everything. Progress often comes from a collaborative care team and a clinician willing to listen, learn, and help prioritize. • When multiple diagnoses and procedures are on the table, focusing on the most functionally limiting symptoms can help prevent unnecessary or poorly timed interventions. • Addressing underlying contributors such as mast cell activation, dysautonomia, sleep, nutrition, pain, and deconditioning may sometimes reduce the need for more invasive steps. • The goal is not to chase every possible diagnosis at once. The goal is to identify the next best step. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Too many diagnoses. Too many opinions. Too many tabs open. Not enough clarity. If you've ever felt overwhelmed trying to navigate Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorder (HSD), POTS, MCAS, chronic pain, or other complex health issues, you're not alone. In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by physician assistant Rebecca Gluck, PA-C, who brings specialized genetics experience from working alongside Dr. Clair Francomano and serves on the Ehlers-Danlos Society's Medical and Scientific Advisory Board and Road to 2026 Research Committee. Together, they discuss how patients and families can move from information overload to a clearer, more practical plan. They explore how to evaluate online communities, AI tools, direct-to-consumer genetic testing, and conflicting medical opinions without becoming even more overwhelmed. Rebecca and Dr. Bluestein explain why diagnosis is often the beginning, not the end, of the journey, and why there is no single "EDS expert" who can solve every problem in one visit. They also walk through how to prioritize symptoms, identify the most functionally limiting issues, avoid unnecessary "whack-a-mole" interventions, and build a collaborative care team. This conversation is for anyone who has too many diagnoses, too many opinions, too many tabs open, and no clear next step. If you are trying to make sense of EDS, HSD, hypermobility, mast cell activation, POTS, chronic pain, genetic testing, AI-generated health information, or proposed procedures, this episode offers practical guidance to help you pause, sort through the noise, and move forward with more clarity. Takeaways: • Information overload is real, especially for people with EDS, HSD, POTS, MCAS, chronic pain, and complex multisystem symptoms. • More information does not always mean more clarity. The key is learning what applies to you, right now. • AI tools and direct-to-consumer genetic testing can help organize questions, but they are not diagnostic and can make uncertain findings sound more certain than they are. • A diagnosis can provide validation and shared language, but it is usually the start of building a plan, not the finish line. • Hypermobile EDS (hEDS) and HSD currently do not have a confirmatory genetic test. • No single clinician can be the expert in everything. Progress often comes from a collaborative care team and a clinician willing to listen, learn, and help prioritize. • When multiple diagnoses and procedures are on the table, focusing on the most functionally limiting symptoms can help prevent unnecessary or poorly timed interventions. • Addressing underlying contributors such as mast cell activation, dysautonomia, sleep, nutrition, pain, and deconditioning may sometimes reduce the need for more invasive steps. • The goal is not to chase every possible diagnosis at once. The goal is to identify the next best step. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Send Zorba a message!Zorba digs into a new study that shows taking vitamin D during pregnancy can lead to better cognitive health for the child. He also helps a caller with questions about Ehlers-Danlos syndrome. And he answers emails about rosacea, Raynaud's syndrome, and we get some listener-sourced Sven and Ole jokes.Support the showProduction, edit, and music by Karl ChristensonSend your question to Dr. Zorba (he loves to help!):Phone: 608-492-9292 (call anytime)Email: askdoctorzorba@gmail.comWeb: www.doctorzorba.orgStay well!

Send Zorba a message!Zorba digs into a new study that shows taking vitamin D during pregnancy can lead to better cognitive health for the child. He also helps a caller with questions about Ehlers-Danlos syndrome. And he answers emails about rosacea, Raynaud's syndrome, and we get some listener-sourced Sven and Ole jokes.Support the showProduction, edit, and music by Karl ChristensonSend your question to Dr. Zorba (he loves to help!):Phone: 608-492-9292 (call anytime)Email: askdoctorzorba@gmail.comWeb: www.doctorzorba.orgStay well!

Dr. Deb Muth 00:03What if your diagnosis isn’t actually your diagnosis? What if the fatigue, brain fog, anxiety, and inflammation you’ve been told are normal are actually signals your body is reacting to something in your environment? Something no one ever tested.What if the reason you’re not getting better is because no one is asking the right questions?Today, we’re exposing one of the most overlooked drivers of chronic illness, and why so many people are being dismissed, misdiagnosed, and left without answers.You guys can insert, one of our ads in here, that’d be great.Welcome back to Let’s Talk Wellness Now, the show where we uncover the root causes of chronic illness, explore cutting-edge regenerative medicine, and empower you with the tools to heal. I’m Dr. Deb, your medical detective. And today, we’re diving into the hidden drivers of chronic illness through the lens of functional and environmental medicine.If you or someone you love has been diagnosed with a chronic condition or is struggling with unexplained neurological symptoms, like fatigue, brain fog, numbness, or chronic pain. This episode is for you. So, grab your cup of coffee, tea, or whatever helps you unwind.Settle in, and let’s get started on your journey to deeper healing.Today, I’m joined by Dr. Kelly McCann. A board-certified physician in internal medicine and pediatrics, with advanced training in functional, integrative, and environmental medicine. She’s known for her work in mold illness, chronic infections, MCAS, and complex chronic conditions And for helping patients who have been told everything looks normal. She helps them finally get real answers. Dr. Kelly, welcome to the show. I’m so excited to have you here. Share a little bit about what you’re doing these days, and who you are, and who you’re serving with us. Kelly McCann 02:42Thank you. So, my favorite patient population is patients who deal with complex chronic illness, and I didn’t set out to deal with these kinds of patients, but I kept… needing to be able to solve the puzzles, right? So they would come in, and there would be so many things that just didn’t add up and didn’t make sense, and it started with,it started with just doing functional and integrative medicine, and GI issues, and hormone issues, and autoimmune issues, and then it was mold as a driver, and then it was Lyme disease and the other tick-borne infections, and then all of those patients, many of those patients developed mast cell activation syndrome.Which I’ve now gone on and become an expert in, because they all have it.And all the related conditions with MCAS, the Ehlers-Danlos, hypermobility syndrome, POTS, postural orthostatic tachycardic syndrome, and… The one thing that really stuck out to me over the years of treating these patients is the ones who were willing to take a deep look inside. And see how their… their belief patterns, how their thoughts how they perceived themselves, different traumas that they experienced. If they were able to reframe some of the ways that they were thinking about their illness, about themselves, their relationship to themselves, they were the ones who really healed.And not only did they heal physically, they healed emotionally, psychologically, and spiritually. I have some patients who started out disabled, and now are running their own companies. One who, again, same thing, terribly disabled, lots of emotional issues, lots of ups and downs, food sensitivities, oxalate issues, and now she’s a medical intuitive. And she’s just doing fabulously, and has blossomed, right? So, this is a missing piece that we’re not really talking about. Dr. Deb Muth 05:04Yeah, I so agree with you. I see the same thing in my practice, and I treat a lot of the same people you do, and you are so right. Like, if we can get down to a deeper level with them, and address the trauma that happened.And it may be a trauma they never even remembered, right? It could be something that’s just seated in their cells and they don’t remember it. And you don’t directly think it’s causing the illness, but it is getting in the way of them healing. If you can address those things, those are the people that tend to do so much better, I think, versus the people who are getting some mileage out of their illness. That there’s a reason they stay stuck, there’s a reason they stay sick, they’re getting something from it, even though they don’t realize it in the moment.So let’s talk a little bit, before we hopped on the recording, you and I were talking about body, emotion, spirit. A little different than what we’re used to hearing with mind, body, spirit. Talk about your philosophy on this. Kelly McCann 06:01So what I’ve really come to realize is that the mind is getting in the way. And we have this perception that our mind is who we are. Right? We really think that who I am are the thoughts that I have every day. That’s me. And when I’m not getting better, it’s because my body is not… Falling in line with what my mind and my will want to do. So we set up this adversarial relationship. And this has been the philosophy in Western culture since Descartes said, I think therefore I am. Where the mind is supreme, and it is the all-knowing, and the body is just a vehicle for the mind. And every… Therapeutic intervention, from trauma-informed therapy, from, you know, wonderful people who have committed a lot of help and given great information. Bessel van der Kolk, The Body Keeps the Score, Gabor Mate, you know, all of these folks who have done such great work in us understanding trauma I think… The next phase is really recognizing that the body is actually not against us. It is not our enemy. In fact, it is… The body that is speaking to us as the voice piece of our souls and our spirits, that is saying to us, hey. you’re not listening. The path that you are walking down and the way that you are being in the world is not really working for you. It’s not who you are. It’s not who you’re supposed to be on the planet. And we’re trying to get your attention, right? Dr. Deb Muth 07:59Yeah. Kelly McCann 07:59I mean… Dr. Deb Muth 08:00this thing, so I’m gonna talk louder. Kelly McCann 08:02Exactly, exactly! It’s like a little toddler who only can speak in so many words, right? There’s only so many ways that a younger version of ourselves, or our bodies, like, how do our bodies communicate to us? Symptoms and sensations. That’s it. Those are the ways that our bodies communicate. And if we don’t listen to sensations, well, it’s gotta turn it up, it’s gotta turn up the volume, and then we have more symptoms. And then if we’re still like, no, it’s gonna do it my way, it turns up the symptoms some more. And when… We are in this adversarial relationship, we can’t bridge that gap. Can’t bridge that gap, so… What… what happens is thatUnderneath the symptoms and the sensations are emotions. Emotions that have not been processed. Because we’ve been stuffing them down, we believe that they shouldn’t exist, we don’t want to face them, we’re afraid of them, they’re not acceptable, we’re ashamed of them, whatever the reason may be, and they’re stuck in the body. And so the way through is to actually just feel our feelings. Dr. Deb Muth 09:26That’s kind of scary for some people. Kelly McCann 09:28It’s… it’s scary for the… it’s scary for the whole planet! Dr. Deb Muth 09:32For all of this, right? Kelly McCann 09:33For all of us. When we start to feel our feelings, we don’t like it. We’ve been taught it’s not okay. Boys, it’s not okay to cry. Girls, don’t be loud, don’t be angry. You’re a B-I-T-C-H if you do that, right? So there’s so many taboos about feeling our feelings. I have patients who say, I can’t be mad at my father or my mother because I was taught to honor thy father and thy mother. Like, yes, but you’re angry, and guess what?] That ain’t going nowhere until you express it, so… you have a choice. Express it, or hold onto it, and then you just kind of stay here in this space where it’s never expressed. Dr. Deb Muth 10:19Yeah, except in your body, in your physical being, right? Kelly McCann 10:22Except in your physical being. And here’s the magic. Emotions are meant to move through us, right? Emotion. They don’t last for that long!60 to 90 seconds, really? Maybe a couple minutes? Yeah. You really, really feel them. Right? Dr. Deb Muth 10:44Yeah. Kelly McCann 10:46And we’re terrified of that 60 to 90 seconds. Dr. Deb Muth 10:50What might we do to ourselves or to someone in that 60 to 90 seconds, right? I may scream, I may cry, I may not be this person that everybody thinks I’m supposed to be. That person that holds it all together is there for everybody, holds everybody else’s space. So well put together, right? If you’re not that person, then who are you? Are you human? Kelly McCann 11:16Oh, you’re more than human. Yeah, I mean, the way that I would look at it is, I would say, well, you don’t have to put on a show, right? This is really for you. Close the door, lock the… close the windows, get out your pillow. Whatever you need to do. I mean, I have some patients who will write it out. There’s a way to just, like, freeform write, where you don’t actually read it, you just write it out, scribble it out, get it all out on paper, and then burn it, or shred it, or something like that. you can pound a pillow, you can, you know, scream, whatever it is, you can cry. I mean, I think crying is, at least for… for me. Crying is the easiest way to think about it. So, you start crying, you’ve got a few little tears, you know, it’s not too bad, and then it’s a full-on sob, and then at some point, you’re like, okay, I think I need a tissue, right? But it doesn’t last forever Dr. Deb Muth 12:22No, it really doesn’t. I had a physical therapy friend who, when I started my practice, and you know, you start your business, and everything’s just chaotic, because you don’t know what you’re doing, and you have all kinds of people that don’t know what they’re doing, and there’s always a problem. Computer, the phone, the this, the that, blah blah blah. And she brought me what was called a Dammit doll. And I had never seen one, I didn’t know what it was, and it was this really… sturdy doll that didn’t look like anything, that had two legs that you could grab onto, that you could just beat at the table whenever you needed to. And she’s like, this is how you do it. And I was like. oh my god, that’s amazing! And I would use it every couple of hours sometimes, sometimes every day, and I would just be like. And then it was over.Yeah, sure, but it was over, instead of me walking around all day long, carrying all this frustration and not having anybody to talk to about it, because you’re busy during the day. And then if you keep talking about it, it just gets worse. But I could do that, and then I’d be done, and I’d be like, okay, I got it out, let’s find the solution, now let’s move on. Kelly McCann 13:28Exactly! Dr. Deb Muth 13:29Coolest thing! Kelly McCann 13:31Exactly! That is exactly what I’m talking about, Deb. Exactly, that’s so cool. I love that. Yeah, I mean, anger is really taboo in our society. Very taboo. And, And, you know, I have a couple patients that struggle so much with expressing their anger, but it’s important. It’s important. We’ve all had so, so many instances. You know, and… of being disappointed. Dr. Deb Muth 14:08Yeah. Kelly McCann 14:08from our… from… All sorts of situations in our lives. And, you know, nobody gets out of life without any trauma. you know, little T traumas. Everybody’s got some. Even if you have the most wonderful, well-meaning parents, something’s gonna happen, and it might be the parents, it could be just life, but things happen that we misinterpret. And then we think.We make decisions about ourselves, or about our families, or about what’s okay and what’s not okay, and those things cause us to forget who we really are. Dr. Deb Muth 14:53That’s okay. Kelly McCann 14:55Because when you look at a 1-year-old or an 18-month-old, they are joy and love incarnate, right? Dr. Deb Muth 15:03Yeah, they are. Kelly McCann 15:05That’s who we are. That’s who we really are. But we forget. We forget, because of all the rules, and all the expectations, and all the disappointment, and all the misinterpretations, we forget who we really are. And… I think… A life journey, especially a health journey, is a way back to who we really are. Dr. Deb Muth 15:32It’s interesting, as we’re talking about this, because I think about people who have really traumatic life events, like life and death. They are so lucky that they’re alive. They were in an accident, or, you know, they had this horrible cancer that they survived, and they weren’t supposed to. And they come out very differently, oftentimes. Because they realize how precious life is, and it’s… they look at life now as a gift instead of whatever else we were looking at it before that time, right? But they do truly look at life differently. I… I’m curious always, like, how do they… how do they do that? But yet, if we have a chronic illness.It’s so much harder to do that same thing when there’s a chronic illness versus an acute thing, and you’ve got this second chance. Kelly McCann 16:20Right? I see it as, The chronic illness is this slow decline, right? And because it’s a slow decline, there’s never that. Wake-up call. Which people get in a car accident, in a cancer diagnosis, where all of a sudden, your life changes in front of you, and you have to really reflect. Where I think with chronic illness, it’s like, oh, this isn’t great, I don’t love this. Oh, this is a little worse. But we keep hoping… which is the part that’s connected to who we really are, right? We keep hoping it’s gonna get better. Keep hoping it’s gonna get better, but it’s getting worse, and it’s getting worse. And… And we… as a… again, as a culture, have an expectation that somebody is gonna throw us a bone or a line, and we’re… they’re gonna pull us back out. We’re gonna find the right protocol, we’re gonna find the right practitioner, we’re gonna get… have somebody else help us get out. And… As healthcare practitioners, we can help people get 50% better, 80% better, you know, sometimes 100% better, but not all the time, because it’s an inside job. Dr. Deb Muth 17:42Well, and I like to tell people, too, like, you’re never 100%, 100% of the time. there’s always going to be something that you’re not gonna like. You wake up, you’re a little more tired, you know, you slept wrong, you got a kink in your neck, whatever it is. But I think you’re really on to something here, too, because if you don’t deal with the emotional baggage, the trauma. the person who said something to you in high school. If you don’t deal with that, and you carry that around forever. you kind of keep inviting the same people into your lives to treat you the exact same way. So then you just kind of keep that same pattern going over and over and over again, and you just keep thinking, why am I the doormat? Why does everybody keep kicking me? And when we truly start to deal with what happened, you start to attract those people differently in your lives, and people aren’t walking all over you anymore. Kelly McCann 18:35Right. And… It’s very easy to get caught up in the whys. And that keeps us up here. Right, and what I’ve found with myself and, you know, many of my patients is that We have to stay in the body long enough with the sensations and the emotions to have it, you know, crescendo on the emotion, and then decrescendo. But when we pop out, and we start asking, well, why did this happen, and why am I a doormat, and why am I a victim, and why, why, why, or… or analyzing, or what have you, we… We stop the emotive process. Which halts the resolution, and we don’t actually get to where we want to be. So, you know, I was just talking to a patient today. She’s like, well, I’ve been feeling my feelings, and I’ve been feeling the fear. I’m like, yes, but did you actually stick with it the entire time, or did you start thinking about it? Because we do this, we pop into our thoughts, and we’re like… oh, yeah, I was emoting. You know, like, oh, that made me sad. And then come back up here, and then we realize, oh, we gotta, we gotta… we’re still stuck in it, we’re still stuck in it. And I’m like. Dr. Deb Muth 19:56Like, when we’re… annotate. Kelly McCann 19:59Exactly! Exactly! It’s kind of like that, yeah. And so we stay on this little, hamster wheel. Because we don’t recognize it. The solution is in the emotion. Dr. Deb Muth 20:15So how do people stay in the feeling instead of letting their mind escape to the grocery list, the kid’s to-do list, dot dot dot dot dot? How do we stay in that emotion long enough to kind of work through it? Kelly McCann 20:30It’s a good question. I think… Having the awareness that that’s what you need to do. is the first step, right? Is to really say, okay, I’m gonna, like, put my mind outside of the door, say I’ll be back in 20 minutes, and then really just give yourself the permission to stay with whatever emotion that’s coming up. And it’s practice. It is a lot of practice. This is not… it’s very, very simple. It is not easy for the vast majority of people, and especially if we’re really patterned. So, I actually started an online program to help people learn how to do this. Because it is… not easy. Dr. Deb Muth 21:16If it was easy, we wouldn’t have so many problems, right? We would just move on and keep going, but that’s where we got ourselves into a lot of trouble, is we just recognize, acknowledge, move on, and say, okay, I’m out of it, good, let’s go, next thing, next thing. Kelly McCann 21:32Yeah, which doesn’t work. Like, oh, I dealt with that. I, you know, talked to my parents before they passed, and we came to an understanding. Like, that’s not the same thing as feeling your feelings, because that 10-year-old, that 5-year-old who felt abandoned, or felt… Abused, or whatever it is that you’re feeling, they’re still in there. The adult you made this agreement with your parents that you’re gonna be okay, right? But that kid you still is upset. So…I think the first… the first thing is recognizing that emotions and thoughts are very different, and to learn the difference. So if I say, I feel like blah blah blah blah blah, that’s not a feeling, that’s a thought. Dr. Deb Muth 22:26Hmm. Kelly McCann 22:27Right? I feel like, this. I’m in… I feel embarrassed. No, that’s the thought. Dr. Deb Muth 22:34That’s not… Kelly McCann 22:35the actual feeling. Feelings are really often located in the emotions. They’re very simple. I’m afraid. I’m sad. I feel terror. I’m angry. I’m enraged. Those are feelings. I… I am mad that blah blah blah blah blah. You know, we don’t necessarily have to know why we feel the feelings. Eventually, we will understand where they’re coming from. But it’s actually just feeling the feelings, and then… oh, I love this one, too. It’s like, well, I’ve forgiven them. I’ve forgiven them for, you know, what they did to me. That’s here. Yeah. If you’ve really forgiven them. it comes from here, and it comes after the feelings. So, we still have to feel our feelings if we’re angry or upset about something, if we’re sad about something, we have to feel them first, and then the beauty is in what’s underneath the emotions. It’s quiet, it’s calm, it’s soft, it’s connected to who you really are. And at that point, then you have a much broader worldview and understanding of things, and you can have compassion for yourself. You can have compassion for other people and their choices. And when I… when it’s… when it’s held in that space, it’s… it’s such a different experience. Yeah. Dr. Deb Muth 24:18Do you think people can have compassion for others if they don’t deal with their own things? Kelly McCann 24:24It’s, again, it’s… it’s from the head, right? Dr. Deb Muth 24:28Not from the heart. Kelly McCann 24:29It’s not from the heart. It’s not from the heart. And it’s a good try, but it’s, like, a carbon copy of the real thing. It’s not really the thing. Dr. Deb Muth 24:39Hmm. What happens if people walk around thinking that they have all this, you know, great compassion and love for the world,but it is truly just coming from the head and not the heart? Kelly McCann 24:54Then, you know, they’re kind of circling and circling, and they’ll find that the thoughts and the beliefs and the things that cause them to be upset will still be there. Right? There’s a… I mean, I have to admit, I don’t really watch the news, because it is upsetting, right? Dr. Deb Muth 25:14I am. Kelly McCann 25:15And I have a number of patients who are very, very distraught about the state of the world.That’s… not seeing the bigger picture. It’s coming from here. Rather than here. And this is a really hard thing for people to grasp. But when we are triggered, By something outside of ourselves. That is because that upset exists inside of ourselves. So, for example, if I call you stupid, Deb, and there’s no part of you believes that you are stupid, it will bounce off you. You know, like you’re a rubber ball, right? Because it’s not true. It doesn’t resonate anywhere in you, so you can’t possibly be triggered by that.But if I say to you something that, you find hurtful, it’s not because of what I’ve said. It’s because that hurt, that upset, is still alive in you. And that… Opportunity, then, Is there for you to say, hmm… Clearly, there’s something inside of me that needs some attention about this.we’ve… we don’t really think about life that way. Right. We think… That person made me mad. Nobody makes you mad. It’s you. That inside of you. Right? I was talking on the phone last night with one of my colleagues whose daughter is in the hospital, and she’s been in the hospital in, like, the best Children’s Hospital, in Chicago for 2 months. Two months with gastrointestinal issues. And… They haven’t done a CT scan yet. Dr. Deb Muth 27:24What? Kelly McCann 27:25I know. I was talking with another, physician colleague of… colleague of mine last night, or this morning, at the time. How… that should have been done in the ER! Dr. Deb Muth 27:38Yeah! Kelly McCann 27:39At least… At least, or maybe the first day of the hospitalization, they didn’t do an endoscopy until Last week. 7 weeks in the hospital with an NJ tube. Dr. Deb Muth 27:53Oh my god. Kelly McCann 27:54Tube feeds. like, what is wrong with these people, right? So, I was so mad on her behalf. And of course, what I realized, too, is then, okay, well, there’s stuff inside of me, like, I have really… I have some stuff about… what is expected of other people in the world, what is expected of other physicians in the world. Like, these are the worst physicians on the planet. They clearly don’t care. They should all be fired. But there’s stuff in me that is really being triggered by this, that I have… I have work to do about. And I still think it’s wrong. Dr. Deb Muth 28:36I had that same experience last week. I had a pharmacist tell my patient they didn’t need a prescription that I had ordered, because she… didn’t fill it frequently enough because she was using it differently than what we wrote it, which so many of our patients do. It’s a hormone, it’s not a big deal, right? Kelly McCann 28:53Yeah, right. Dr. Deb Muth 28:54And… and he said to her, well, I don’t think you need this anymore. Yes. Kelly McCann 29:00choice. Dr. Deb Muth 29:01Right, and that’s what I said, I’m like… I said, who the F is he? To tell you that he thinks you need this or not? He doesn’t know you, he doesn’t know your labs, he hasn’t been taking care of you for 20 years. I have, and you’ve clearly been using it. And so I called the pharmacy, and the conversation went a little differently on his side, of course, than what the patient explained to me, but I had to sit back, too, and I looked at that, and I was like, why was I so angry that he said this to her? And I understand, it was, you know, he was undermining my authority, my knowledge base, and I knew that right away, but I was still so triggered by it, and… and she was just kind of like. Yeah, I was really surprised he said that, but I figured he knew more than me, and I’m like, so I was coming to see you, I would just tell you, and you would tell me if it was right or wrong, and I’m like. okay, that was a good way to take it, but boy, that instantly triggered for me. But again, I recognized exactly why I was triggered with that, and had to calm down a little bit and all of that, but… I think there’s a lot of that that happens. And, you know, when you work hard to know what you know, and I work hard, and we see other people doing not even the basics, it’s kind of like, what is wrong with the world? Kelly McCann 30:18Yes, yeah, yeah, yeah, and there’s stuff there, right? So why is it that I worked so hard to become the best doctor that I could? Because I didn’t feel adequate. And so, when somebody else shows up as inadequate, or I perceive them to be inadequate, that triggers that… my own inadequacy, right? Especially since it was a man, so there’s a man under my your authority. Yeah, that would just really get to me. Yeah, so there’s something around that, so I know that, you know, for me, that might be where I explore it, but yeah, it’s, Life is a journey. Dr. Deb Muth 31:00Yeah, it really is. And I think, too, from a practitioner standpoint, like, we take so many of our patients home with us, like, it’s our job to be the medical detective, figure them out.Help them find the answers, make them feel better. And not that we do it from an eco perspective, because I think most practitioners don’t. They truly do it because they care and they want to make people better, and we have this knowledge and this expertise that other people don’t have. But, boy, it gets harder and harder and harder when you get more and more chronically ill people to help them find the answers and help them be well, especially if they don’t deal with their own house, right? We don’t… if they don’t deal with their house, it’s hard for us to come in and say, let me help you deal with your house. Right. So, how does that fit into some of this? Kelly McCann 31:51You know, that’s a really good question. I had to learn that over time to be able to use my own intuition to say, how much is this person willing to do? And really evaluate their… their willingness to change, their willingness to do the hard work. And… And I… and I had to hone my intuition in order to do that, and now I see… I will see there are people that… they’re happy. in their little merry-go-round, in their whack-a-mole game. And I will do my best, and I will kind of, you know, nudge where I think it’s appropriate, but when they push back, I gotta let that go. I gotta let that go, and recognize that it’s their journey, it’s their life, and I can’t be more attached to their healing than they are. Dr. Deb Muth 32:49That’s what I’ve done, too. That’s what I tell my practitioners, my young practitioners that come in by me, too. I say the same thing. Like, I have some that are really young, and we’re all green, right? And we want to just fix the world, and I’ve got so much I can give you, and so much you can do, and then when they don’t do it, you’re like. what did I do wrong that they’re not doing it? And I have to go back and tell them the same thing. This is their journey, not yours. You’re just here to give knowledge and hold space. And they get to pick and choose what they want to do, and if it’s not exactly what we want them to do, that’s okay, it’s their journey. And every time… and I laugh because I always see my younger self in them, too, but why don’t they want to do it? This is gonna make them so much better! We have this tool! And it’s like… they’re not ready yet. It’s okay for them not to be ready yet. We have to be okay with the fact that they’re not ready yet. And I think as a provider and a practitioner, that is one of the hardest things to do, is to sit back and go, okay, you’re just not ready yet. When you’re ready, we’ll be here to hold you and hold space. But right now, you’re not there, it’s okay. Kelly McCann 33:52Yeah, it is okay. Yeah, actually, one of the women that I mentioned earlier, earlier in the podcast, it took her 18 months to get to the point where I felt like she was ready, and it was one of those things, like. You’re ready! I got so excited, and that’s exactly what I said to her. I was like, okay, here, I want you to read this book. Dr. Deb Muth 34:14And he was. Kelly McCann 34:14finally ready, and I gave her the book called How to Heal Yourself When No One Else Can by Amy B. Share, which is just so awesome. And she took that book, and she was like, I am going to do this. And she wrote out journals and journals and journals, and… did lists, and then she would clear them, and then she would clear them. She got so much better, and then it was, like. Biofield tuning, and she did, Gupta, and Amya Piggin’s work, and, you know, so many other things. And then she was doing really well, 80% better, eating all sorts of foods, and there was still this little, like. Mmm, something’s still missing. Something’s still missing. Not quite where I want to be. I still have some mood issues. And then she came and joined my Unforgetting Project program. And that was the missing piece for her. This… whole thing that we’re talking about, like, just feeling the feelings was really her missing piece, because she was clearing, you know, with using EFT, but it wasn’t working anymore, because she actually was bypassing feeling her feelings. Dr. Deb Muth 35:38Hmm. Kelly McCann 35:39So I, you know, these programs, the nervous system programs, the limbic system programs, they are fantastic, and they’re super, super helpful. And then there comes a point in time where we have to shift gears, and we have to go deeper. But it… all of those programs get people, if they’re willing to put in the time and effort, get people to the place where, like, okay, now I gotta go in. Even deeper. Yeah. Dr. Deb Muth 36:07And that can be scary for people. That can be really frightening. I did a 10-day women’s retreat in Spain, with a priestess program, and I had no clue what I was doing. I was going to my first women’s retreat in Spain, no clue, but I had to do. Kelly McCann 36:23It sounds fantastic. Dr. Deb Muth 36:25Fantastic, right? And and when I got there, it was a lot of shamanic work, deep work, and, as we’re all… there’s, like, 30 of us women going through, and all different ages, going through things. And reliving our past as a child, and reliving all these different pieces of us as women that we’ve left behind someplace else. We’ve lost. And, And just sitting in… I still remember it to this day, you know, the crying, the sobbing, the anger, the screaming, the stomping. the silence. Like, everybody had a different way of dealing with those emotions coming out, and we had to be silent from, 10 at night till 10 in the morning. You couldn’t say anything to anybody. And, and that was a little challenging for a lot of us. But it gave you that time that after you went through one of these processes. you could process. You could just sit with those feelings, sit with what came up for you, journal. And it was a really incredible time to watch a lot of women just blossom into a new version of themselves, you know? Their old version, but a new version. A healed version of themselves, in a lot of ways, yeah. Kelly McCann 37:45So what… in the languaging that I’ve come up with, it’s the, unforgetting, right? So it’s actually the remembered self, because we have let go of the things that caused us to forget. So we have unforgotten who we really are, because As you’re right, it’s… it is not new, it’s just remembered, or unforgotten. Dr. Deb Muth 38:12Yeah. Yeah. That’s really awesome. For somebody that’s listening to us have this conversation, and they’re kind of thinking, this all sounds great, but I have no clue where to start with something like this, what kind of recommendations would you give to them? Kelly McCann 38:29Well, I actually have an online program. And… it’s, it’s a 9-week online program, and…What you’re doing in community is learning how to Feel your feelings, and how to understand them, and different access points in to them, and doing it in a community, which is terrifying for some people when they start, but at the same time, it is the most loving container Because these people are also on their complex chronic illness healing journey. And they have chosen themselves, and chosen to show up, and chosen to show up for 9 weeks, which is a long time, but it’s also this beautiful, sacred time. And, half of the class is lecture, sharing, and then half of the class we spend in trios. Which means, my staff divvy up people into groups of three, and then there… each trio goes through a process. They all do the same process.And you do it 3 times, so you have a chance to be, a different role in each iteration that you go through. So one role is the explorer. Those are the people who are actually just feeling the feelings. And exploring what’s going on inside of them. One person is what we call the companion, they’re kind of like the… the, not really the guide or the therapist, but they’re just holding space with them, maybe giving some prompts to help them work through the process. And there’s a handout that works through the process, and then there’s the third person whom is the anchor. And the anchor is holding that loving battery. And it just sets up this…situation where you’re held in such an embrace that you’re able to express your feelings. And one of the things I learned early on was that vulnerability leads to intimacy. And so, when you’re vulnerable with somebody else, they feel… closer to you, and they feel more capable of being vulnerable with you, because you’ve trusted them, right? So, it builds this level of vulnerability, intimacy, and trust in the community, and then each time you do your trio with somebody, with new people, often. Dr. Deb Muth 41:16time. Kelly McCann 41:17And it’s a really, really special program where you’re practicing this, and you’re doing homework, so you take the things that you learned from the class, and then you go home and you practice it with yourself. So that’s what I have come up with to help people start to really learn how to do this. And then it’s gonna grow from there. So I have a foundational class right now. We’re on… we just started our second cohort, And then eventually there will be a second-tier class, and workshops, and the other thing that I’m doing is one-on-one, trainings with… what one-on-one… I call them unforgetting journeys with people. So, you know how you go to a therapist, and you’re in the middle of a story, in the middle of sobbing, and they’re like, oh, well, that’s 50 minutes, it’s Here’s your tissue, we’ll see you next week. Dr. Deb Muth 42:12Yes. Kelly McCann 42:13Yeah, so painful. Dr. Deb Muth 42:16Oh, bad. Kelly McCann 42:16So painful, and I understand, like, we have the same thing, too, as physicians, like, oh, I’m so sorry, your time is up, I gotta go, I have more patients waiting. The unforgetting journey, I don’t have a clock. Dr. Deb Muth 42:29Mmm. Kelly McCann 42:30It’s… we go until you feel complete. And for most people, it’s two and a half, three hours. Dr. Deb Muth 42:37Wow. Kelly McCann 42:37To really process through the emotions that are coming up. Dr. Deb Muth 42:43to get… Kelly McCann 42:43To the point where you’re… they feel… Okay. I feel… I feel complete for today. Dr. Deb Muth 42:52For now. Kelly McCann 42:53For now. Dr. Deb Muth 42:54So the next layer, kind of. shows itself, right? Yeah. Kelly McCann 42:59Yeah, yeah. And for now, the Unforgetting Journeys are for people who have gone through the program, or are in the program, because you really need to… you have to have the skills. Dr. Deb Muth 43:11So, if somebody’s interested in your online program, how do they get in touch with you? Kelly McCann 43:17The website is unforgettingproject.com. And you can sign up right there. The next cohort will start May 20th. It’ll be a Wednesday evening. From 4.30 to 6.30 Pacific time, so I tried to make it so as many people on both sides of the continent could make it. I know it’s a little late for East Coast, but, yeah. And then, you know, every month or two, we’ll start a new cohort, so if you’re interested, and if those… that time doesn’t work for you. You know, I did Fridays initially, I’m doing Mondays, this iteration. We’ll try, other dates and times for people, and try and get a few more dates, on the calendar, so that people have some options. But yeah, that would be my suggestion. You can sign up for our email list, and we’ll be sure to let you know all the happenings at the Unforgetting Project. Dr. Deb Muth 44:17That’s awesome. And for those of you who might be driving or didn’t catch that, we will have it in the show notes as well, so that you can jot it down, check it out, if it sounds like it’s something that really resonates with you. Dr. Kelly, thank you so much for your time tonight. Is there any last words you want to leave with our listeners? Kelly McCann 44:35Of course, of course. There’s always hope. And that hope that burns inside you, that…There is a different life… a different life waiting for you. That is your spirit. That is your soul. Talking to you, and spurring you on. And my encouragement is to really listen to that. Because then you will find your way to people like Dr. Deb, and other practitioners who have heart, who have the tools and the capacity to help you on the physical world journey, and then… You know, my other encouragement would be, really listen to your body. Consider the possibility with curiosity that it is on your side. And if it’s on your side, and it’s talking to you and communicating to you, what might it be saying that it needs from you? Dr. Deb Muth 45:43I love that, that’s awesome. Thank you so much for your time today. Kelly McCann 45:47You’re welcome, my pleasure. I’m so happy to speak with you and to talk with your, audience. I think it’s wonderful. Dr. Deb Muth 45:54Thank you. Boom. Wow, what an episode we just had with Dr. Kelly McCann. This is incredible. It’s a completely different way for us to think about chronic illness, and think about what our body’s actually going through, and how we can repair it from a different aspect. So, thank you for joining me today on Let’s Talk Wellness Now. If this episode resonated with you, share it with someone who’s been searching for answers and hasn’t found them yet. And if you’re enjoying our episodes of Let’s Talk Wellness now, we would love to ask the biggest favor you could do for us, which is like and subscribe and share. It goes a long way for us getting our podcasts and our episodes out into the hands of so many people Who need to hear these messages. So, if you’re feeling inclined to do that, we would love that, that affirmation from you guys. So, remember, wellness isn’t just about feeling good, it’s about thriving in every area of your life. If you’re ready to explore the root cause medicine. We can help you. Visit serenityHealthCarecenter.com or Dr. Kelly McCann, and until next time, I’m Dr. Deb, reminding you to take care of your body, mind, and spirit. Be well, and we will see you on the next episode. The post Episode 270 – Chronic Symptoms Are a Hidden Message: How to Listen and Finally Heal | Dr. Kelly McCann first appeared on Let's Talk Wellness Now.

"Exercise is good for EDS." So why do so many hypermobile people get worse when they try it? In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by co-host Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, and physical therapist Dr. Morgan Groover to discuss one of the most misunderstood aspects of hypermobility care: how to make physical therapy and exercise work for a hypermobile body. Many people with Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorders (HSD), chronic pain, POTS, and related conditions have been told to exercise more, only to experience increased pain, injury, or setbacks. Others have been told to avoid activity altogether. In this conversation, Dr. Groover explains why both approaches can miss the mark. Together, they explore how hypermobile joints, muscles, tendons, and connective tissues respond to load, why individualized physical therapy is essential, and how the right amount of strengthening can improve joint stability, function, and quality of life. Dr. Groover shares practical strategies for determining an appropriate starting point, progressing safely, interpreting pain and soreness, and avoiding the common cycle of overdoing it and crashing. They also discuss the powerful role language plays in rehabilitation, how fear of movement can contribute to disability, and why hypermobile patients can often continue participating in activities they love, including running, dancing, yoga, and sports, with the right support and guidance. Whether you're living with EDS, HSD, generalized joint hypermobility, chronic pain, or you're a clinician looking to better support hypermobile patients, this episode offers practical, evidence-informed insights that can help change the way you think about movement and rehabilitation. Takeaways: • Why physical therapy often fails hypermobile patients and what successful EDS-informed rehabilitation looks like • The difference between productive soreness and pain that signals excessive loading • How muscles and tendons adapt to exercise and support joint stability in hypermobility • Why both overloading and underloading can contribute to worsening symptoms • How to safely return to exercise, sports, dance, yoga, and other meaningful activities • Why language matters when discussing joint instability, weakness, and pain • How fear of movement can contribute to deconditioning and disability • Practical strategies for building strength, resilience, and confidence in a hypermobile body Find the episode transcript here. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Morgan Groover? Instagram: @morgan.groover.dpt Website: https://www.ehlers-danlos.com/directory/morgan-groover/ Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

"Exercise is good for EDS." So why do so many hypermobile people get worse when they try it? In this episode of Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein is joined by co-host Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, and physical therapist Dr. Morgan Groover to discuss one of the most misunderstood aspects of hypermobility care: how to make physical therapy and exercise work for a hypermobile body. Many people with Ehlers-Danlos syndromes (EDS), Hypermobility Spectrum Disorders (HSD), chronic pain, POTS, and related conditions have been told to exercise more, only to experience increased pain, injury, or setbacks. Others have been told to avoid activity altogether. In this conversation, Dr. Groover explains why both approaches can miss the mark. Together, they explore how hypermobile joints, muscles, tendons, and connective tissues respond to load, why individualized physical therapy is essential, and how the right amount of strengthening can improve joint stability, function, and quality of life. Dr. Groover shares practical strategies for determining an appropriate starting point, progressing safely, interpreting pain and soreness, and avoiding the common cycle of overdoing it and crashing. They also discuss the powerful role language plays in rehabilitation, how fear of movement can contribute to disability, and why hypermobile patients can often continue participating in activities they love, including running, dancing, yoga, and sports, with the right support and guidance. Whether you're living with EDS, HSD, generalized joint hypermobility, chronic pain, or you're a clinician looking to better support hypermobile patients, this episode offers practical, evidence-informed insights that can help change the way you think about movement and rehabilitation. Takeaways: • Why physical therapy often fails hypermobile patients and what successful EDS-informed rehabilitation looks like • The difference between productive soreness and pain that signals excessive loading • How muscles and tendons adapt to exercise and support joint stability in hypermobility • Why both overloading and underloading can contribute to worsening symptoms • How to safely return to exercise, sports, dance, yoga, and other meaningful activities • Why language matters when discussing joint instability, weakness, and pain • How fear of movement can contribute to deconditioning and disability • Practical strategies for building strength, resilience, and confidence in a hypermobile body Find the episode transcript here. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Morgan Groover? Instagram: @morgan.groover.dpt Website: https://www.ehlers-danlos.com/directory/morgan-groover/ Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

What happens when the original voices behind Bendy Bodies come back together 200 episodes later? In this special milestone episode, Dr. Linda Bluestein reunites with her original co-host, dance medicine specialist Jennifer Milner, and the very first guest ever featured on the podcast, Dr. Moira McCormack. Long before hypermobility became a topic of widespread discussion, Dr. McCormack was asking important questions. A former Royal Ballet dancer, former Lead Physiotherapist for The Royal Ballet, and pioneering researcher, she was among the earliest clinicians investigating joint hypermobility in dancers and the challenges that often accompany it. Together, they reflect on more than two decades of progress in our understanding of hypermobility, Ehlers-Danlos syndromes (EDS), and Hypermobility Spectrum Disorders (HSD), while exploring the many misconceptions that still persist today. The conversation goes far beyond flexibility. Dr. McCormack explains why many hypermobile dancers must work harder, recover more strategically, and develop greater body awareness than their peers. The discussion also dives into the often-overlooked multisystem effects of hypermobility, including fatigue, pain, dysautonomia, gastrointestinal symptoms, and mast cell activation syndrome (MCAS). Drawing on decades of experience working with elite dancers and hypermobile patients, Dr. McCormack shares practical insights on injury prevention, individualized rehabilitation, hands-on assessment, and the art of teaching movement with patience and precision. Whether you're a dancer, athlete, parent, teacher, clinician, or someone navigating hypermobility yourself, this episode offers both a fascinating look at how far the field has come and a roadmap for where we still need to go. Most importantly, it reminds us that success in a hypermobile body isn't about having the most flexibility. It's about developing the control, strength, awareness, and resilience to use that flexibility well. Key Takeaways • This episode reunites the same three people who launched Bendy Bodies with Episode 1, creating a full-circle conversation 200 episodes later. • Hypermobile dancers often work harder behind the scenes than audiences realize. Fatigue, recovery, and injury prevention are frequently bigger challenges than flexibility itself. • Flexibility without control can increase injury risk. Strength, stability, motor control, and body awareness are essential for long-term success. • Hypermobility can affect far more than the joints, contributing to symptoms involving the nervous system, gastrointestinal tract, immune system, and cardiovascular system. • Rehabilitation is rarely one-size-fits-all. Hypermobile individuals often benefit from individualized assessment, hands-on treatment, and slower, more deliberate progression. • Teachers, parents, and healthcare professionals play a critical role in recognizing early warning signs and supporting healthy development in young dancers. • One of the most powerful injury-prevention strategies may be surprisingly simple: learning to master posture and alignment before adding movement. • Moira also honors the influence of the late Professor Rodney Grahame, with whom she conducted her early research and met frequently to discuss joint hypermobility, connective tissue disorders, and the many unanswered questions that continue to shape the field today. Find the episode transcript here. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Jennifer Milner? Instagram: @jennifer.milner Website: https://www.jennifer-milner.com/ Want more Dr. Moira McCormack? https://iseh.co.uk/member/moira-mccormack Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

It's Thursday, and that means it's time to talk politics with The Times Picayune/New Orleans Advocate's Stephanie Grace. Today, we hear why New Orleans is gaining access to unspent Katrina money from FEMA. We also learn about Mayor Moreno's recent win: bringing the Sewerage and Water Board under more city control. A sports medicine physician has opened one of the world's first clinics and treatment centers specifically for Ehlers-Danlos syndrome at the Fascia Institute. Also known as EDS, Ehlers-Danlos syndrome affects the body's connective tissues, often categorized by loose skin, unstable joints and hypermobility.The doctor at the helm of the new clinic, Dr. Jacques Courseault, tells us more about the condition, why it often goes undiagnosed and how to treat it.The new documentary “GASLIT” explores how communities along the Gulf Coast are impacted by liquified natural gas export terminals. Academy Award winner and activist Jane Fonda travelled throughout Texas and Louisiana, meeting and talking with the various people who have concerns about the expansion of the industry. She met with shrimpers, cattle farm workers, former oil workers and “reluctant activists” to learn how they are banding together to protect the coastlines. The film's director, Katie Camosy, joins us with more.—Today's episode of Louisiana Considered was hosted by Bob Pavlovich. Our managing producer is Alana Schreiber. We get production and technical support from Garrett Pittman, Adam Vos and our assistant producer, Aubry Procell. You can listen to Louisiana Considered Monday through Friday at noon and 7 p.m. It's available on Spotify, Google Play and wherever you get your podcasts. Louisiana Considered wants to hear from you! Please fill out our pitch line to let us know what kinds of story ideas you have for our show. And while you're at it, fill out our listener survey! We want to keep bringing you the kinds of conversations you'd like to listen to.Louisiana Considered is made possible with support from our listeners. Thank you!

What happens when the original voices behind Bendy Bodies come back together 200 episodes later? In this special milestone episode, Dr. Linda Bluestein reunites with her original co-host, dance medicine specialist Jennifer Milner, and the very first guest ever featured on the podcast, Dr. Moira McCormack. Long before hypermobility became a topic of widespread discussion, Dr. McCormack was asking important questions. A former Royal Ballet dancer, former Lead Physiotherapist for The Royal Ballet, and pioneering researcher, she was among the earliest clinicians investigating joint hypermobility in dancers and the challenges that often accompany it. Together, they reflect on more than two decades of progress in our understanding of hypermobility, Ehlers-Danlos syndromes (EDS), and Hypermobility Spectrum Disorders (HSD), while exploring the many misconceptions that still persist today. The conversation goes far beyond flexibility. Dr. McCormack explains why many hypermobile dancers must work harder, recover more strategically, and develop greater body awareness than their peers. The discussion also dives into the often-overlooked multisystem effects of hypermobility, including fatigue, pain, dysautonomia, gastrointestinal symptoms, and mast cell activation syndrome (MCAS). Drawing on decades of experience working with elite dancers and hypermobile patients, Dr. McCormack shares practical insights on injury prevention, individualized rehabilitation, hands-on assessment, and the art of teaching movement with patience and precision. Whether you're a dancer, athlete, parent, teacher, clinician, or someone navigating hypermobility yourself, this episode offers both a fascinating look at how far the field has come and a roadmap for where we still need to go. Most importantly, it reminds us that success in a hypermobile body isn't about having the most flexibility. It's about developing the control, strength, awareness, and resilience to use that flexibility well. Key Takeaways • This episode reunites the same three people who launched Bendy Bodies with Episode 1, creating a full-circle conversation 200 episodes later. • Hypermobile dancers often work harder behind the scenes than audiences realize. Fatigue, recovery, and injury prevention are frequently bigger challenges than flexibility itself. • Flexibility without control can increase injury risk. Strength, stability, motor control, and body awareness are essential for long-term success. • Hypermobility can affect far more than the joints, contributing to symptoms involving the nervous system, gastrointestinal tract, immune system, and cardiovascular system. • Rehabilitation is rarely one-size-fits-all. Hypermobile individuals often benefit from individualized assessment, hands-on treatment, and slower, more deliberate progression. • Teachers, parents, and healthcare professionals play a critical role in recognizing early warning signs and supporting healthy development in young dancers. • One of the most powerful injury-prevention strategies may be surprisingly simple: learning to master posture and alignment before adding movement. • Moira also honors the influence of the late Professor Rodney Grahame, with whom she conducted her early research and met frequently to discuss joint hypermobility, connective tissue disorders, and the many unanswered questions that continue to shape the field today. Find the episode transcript here. Go to AirDoctorPro.com and use promo code BENDY_ to get UP TO $300 off today! Want more Jennifer Milner? Instagram: @jennifer.milner Website: https://www.jennifer-milner.com/ Want more Dr. Moira McCormack? https://iseh.co.uk/member/moira-mccormack Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Discover 5 key autoimmune triggers hiding in your past. From COVID and herpes simplex to staph, Epstein-Barr, and strep infections, Nurse Doza breaks down how past infections can reprogram your immune system to attack your own tissue — and what gut health has to do with it all. Gut (L-Glutamine) by MSW Nutrition Gut, featuring 4 grams of pure L-Glutamine per scoop, is the primary fuel source for the cells that line your intestinal wall. When past infections, antibiotics, or chronic stress compromise your gut barrier, your immune system loses its most important line of defense — creating the conditions where autoimmune triggers thrive. Gut helps repair the gut lining, reduce digestive inflammation, and support the immune cells that depend on a healthy gut to function properly. Whether you're managing an existing autoimmune disorder or working to prevent one, healing your gut is where it starts.

In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by novelist and disability advocate Sabina Nordqvist. Sabina discusses her personal 12-year battle with idiopathic intracranial hypertension (IIH), POTS, and Ehlers-Danlos syndrome. She shares the profound impact of misdiagnosis, the importance of self-advocacy, and how her experiences in support groups led her to write a novel called It's All in Your Head that puts disabled characters front and center. Dr. Peters is then joined by Dr. Jeremy Cutsforth-Gregory, an Assistant Professor of Neurology at Mayo Clinic in Rochester, Minnesota, working in the Division of Neurologic Education. Dr. Cutsforth-Gregory explains cerebrospinal fluid and IIH, highlighting the treatments that are available and where research is going next.   Additional Resources Sabina Nordqvist- It's All in Your Head Understanding the Mysteries of POTS and Other Autonomic Disorders A Swimmer Returns to the Pool After Ehlers-Danlos Syndrome Diagnosis   Brain & Life Podcast Episodes on Similar Topics Parenting and Writing While Disabled with Jessica Slice Outdoors Woman Crystal Gail Welcome on Nature and Chronic Pain Author Samantha Lee Schmall on Life Beyond the Shunt   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? ·       Record a voicemail at 612-928-6206 ·       Email us at BLpodcast@brainandlife.org   Social Media Guests: Sabina Nordqvist @nordqvistbooks; Dr. Cutsforth-Gregory @mayoclinic Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Send us Fan MailIn this past episode of the Ella-Go Podcast, Coach Lisa interviews Sarah Hutcherson, a breath work expert from Slow Breathworks. They discuss Sarah's journey into breath work, the importance of breathing techniques for physical and emotional well-being, and how breath work can enhance your runs. Sarah shares insights on the science behind breathing, the benefits of extending exhales for anxiety relief, and the transformative power of breath work in community settings. BONUS: The episode concludes with a practical breathing exercise for listeners.About Sarah:Sarah Hutcherson of Slo Breathworks is a breath guide and educator. She guides brilliant breathers living with dysautonomia and anxiety to LIVE through accessible, integrated breathwork that honors each person's unique journey with chronic illness. After years of being defined by POTS, Ehlers-Danlos, and anxiety, Sarah understands how chronic conditions can trap you in cycles of stress, fear, and pain. She combines this lived experience with extensive training under breathing experts like Dr. Arielle Schwartz, Reis Paluso, and Luke Weitzman, as well as a Master's in Sustainability, to help brilliant breathers remember their thriving selves through conscious breaths.TakeawaysBreath work can significantly improve physical and emotional well-being.Extending the exhale is key to down-regulating anxiety.Breath techniques can enhance performance in sports and daily activities.Understanding your body's breathing patterns is essential for improvement.Breath work can help release stored emotions and stress.Community breath work fosters connection and shared experiences.Breath work is not just for athletes; it's beneficial for everyone.Personalized breath work sessions can lead to significant shifts in health.Breath work can be practiced anywhere, even during walks.Daily micro doses of breath work can create lasting change.CONNECT WITH SARAHINSTAGRAMWEBSITESupport the showIf you like this episode, please be sure to subscribe everywhere you listen to podcasts!FOLLOW ME on INSTAGRAMCheck out the WEBSITEHelp support this podcast by buying me a cup of coffee. I need it to stay awake editing!BUY ME COFFEE

To have Dr. Morse answer a question, visit: https://drmorses.tv/ask/ All of Dr. Morse's and his son's websites under one roof: https://handcrafted.health/ Facebook Page: https://www.facebook.com/handcrafted.health 00:00:00 - Intro - Diet - Spirituality 00:07:07 - Ehlers-Danlos Syndromes (EDS) - Acid Reflux - Sleep Apnea - Premature Ventricular Contractions (PVCs) - Premature Atrial Contractions (PACs) - POTS - Lax (Painful Joints) - Thoracic Outlet  syndrome (TOS) - Mast Cell Activation Syndrome (MCAS) 00:27:49 - Chronic Strep Throat 00:42:25 - AERD - Asthma - Chronic Sinusitis with Nasal Polyps - Bronchitis  - Bronchiectasis 01:08:42 - Depersonalization/Derealization - Social Anxiety - Shyness - Low Self-Esteem  01:31:27 - Parkinson's Disease - Breast Cancer - Hashimoto's Disease 00:07:07 - Ehlers-Danlos Syndromes (EDS) - Acid Reflux - Sleep Apnea - Premature Ventricular Contractions (PVCs) - Premature Atrial Contractions (PACs) - POTS - Lax (Painful Joints) - Thoracic Outlet  syndrome (TOS) - Mast Cell Activation Syndrome (MCAS) The breathing and heart issues are scary. 00:27:49 - Chronic Strep Throat After all the antibiotics, I had a really bad flare-up and struggle with fatigue. 00:42:25 - AERD - Asthma - Chronic Sinusitis with Nasal Polyps - Bronchitis  - Bronchiectasis I am currently taking steroid medications. 01:08:42 - Depersonalization/Derealization - Social Anxiety - Shyness - Low Self-Esteem  I have also experienced depression, paranoia, fear, intrusive thoughts, chronic fatigue, and irritability—the whole nine yards. 01:31:27 - Parkinson's Disease - Breast Cancer - Hashimoto's Disease I want to start your program. I didn't do chemo or radiation.

Most people with EDS or HSD have been told to "exercise more," "eat better," and "sleep on a schedule," usually by someone who has never tried to do any of those things in a hypermobile, pain-flaring, dysautonomic body. This episode is different. Dr. Linda Bluestein and Dr. Dacre Knight break down the foundational layer of the MENS PMMS treatment algorithm, a structured framework built specifically for the complexity of Ehlers-Danlos syndromes and hypermobility spectrum disorders. MENS stands for Movement, Education, Nutrition, and Sleep. This conversation goes far beyond surface-level advice to explain what each category actually means when your connective tissue, nervous system, and autonomic function are all working against you at once. You will learn why standard physical therapy can set EDS patients back and what to look for in a provider who actually understands joint protection. You will understand central sensitization at a biological level, not just as a buzzword, and why reframing pain as a nervous system state rather than a structural inevitability changes everything. You will hear why nutrition conversations for the EDS population need to start with GI dysfunction and malabsorption, not calories and BMI. And you will finally get a clear explanation of why pain and poor sleep feed each other in a vicious cycle, and what interrupts it. Whether you are a patient who has heard "your labs are normal" one too many times, or a clinician building a practice that actually serves this community, this episode gives you a concrete starting point. The body you are working with is not broken. It just needs a different playbook. Takeaways: Why most PT makes EDS worse before it makes it better, and the "slow and low" approach that actually builds joint stability without triggering a flare. The neuroscience of "no plastic" pain. Central sensitization is not in your head. Understanding how the nervous system learns to amplify pain is the first step toward teaching it something different. Nutrition beyond BMI. In EDS and HSD, postprandial distress, malabsorption, and GI dysmotility are often the bigger drivers of health outcomes than anything showing up on a standard nutrition screening. The pain-insomnia trap. Pain activates your sympathetic nervous system. A revved-up sympathetic nervous system blocks restorative sleep. Poor sleep amplifies pain sensitivity. Here is how to break the cycle. Motion is lotion, done right. Low-impact, recumbent movement is not a consolation prize. It is one of the most effective tools for stabilizing autonomic function in this population. Go AquaTru.com now for 20% off (your purifier) using promo code BENDY. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Most people with EDS or HSD have been told to "exercise more," "eat better," and "sleep on a schedule," usually by someone who has never tried to do any of those things in a hypermobile, pain-flaring, dysautonomic body. This episode is different. Dr. Linda Bluestein and Dr. Dacre Knight break down the foundational layer of the MENS PMMS treatment algorithm, a structured framework built specifically for the complexity of Ehlers-Danlos syndromes and hypermobility spectrum disorders. MENS stands for Movement, Education, Nutrition, and Sleep. This conversation goes far beyond surface-level advice to explain what each category actually means when your connective tissue, nervous system, and autonomic function are all working against you at once. You will learn why standard physical therapy can set EDS patients back and what to look for in a provider who actually understands joint protection. You will understand central sensitization at a biological level, not just as a buzzword, and why reframing pain as a nervous system state rather than a structural inevitability changes everything. You will hear why nutrition conversations for the EDS population need to start with GI dysfunction and malabsorption, not calories and BMI. And you will finally get a clear explanation of why pain and poor sleep feed each other in a vicious cycle, and what interrupts it. Whether you are a patient who has heard "your labs are normal" one too many times, or a clinician building a practice that actually serves this community, this episode gives you a concrete starting point. The body you are working with is not broken. It just needs a different playbook. Takeaways: Why most PT makes EDS worse before it makes it better, and the "slow and low" approach that actually builds joint stability without triggering a flare. The neuroscience of "no plastic" pain. Central sensitization is not in your head. Understanding how the nervous system learns to amplify pain is the first step toward teaching it something different. Nutrition beyond BMI. In EDS and HSD, postprandial distress, malabsorption, and GI dysmotility are often the bigger drivers of health outcomes than anything showing up on a standard nutrition screening. The pain-insomnia trap. Pain activates your sympathetic nervous system. A revved-up sympathetic nervous system blocks restorative sleep. Poor sleep amplifies pain sensitivity. Here is how to break the cycle. Motion is lotion, done right. Low-impact, recumbent movement is not a consolation prize. It is one of the most effective tools for stabilizing autonomic function in this population. Find the episode transcript here. Go AquaTru.com now for 20% off (your purifier) using promo code BENDY. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

A free guide to FSM training is available there for licensed practitioners. https://frequencyspecific.com/how-to-choose-your-fsm-core-training Hosts: Carolyn McMakin, MA, DC, &  Kim Pittis, LCSP, (PHYS), MT 00:00 Confidence Before Change 00:56 Podcast Intro and Hosts 02:44 Hero Pose and 40/89 03:32 Objective Calm Markers 05:38 Wipe and Load Method 06:24 Gait Confidence Cues 07:44 Pain Center Reset Story 09:23 Balance Retraining Flow 12:49 Standing Protocol Mix 14:33 When 40/89 Backfires 17:58 Pain Suppression Athletes 22:28 Catastrophizing Language 27:24 Nobody Believes Pain 29:15 Healthcare Incentives Critique 29:33 Why Every Detail Matters 30:50 Time Limits and ICD Codes 31:45 Designing Realistic Protocols 32:58 Nighttime Programs for EDS 34:52 Skepticism and Proof 36:19 EDS MCAS and Vagus 38:35 Stomach Acid and Enzymes 41:35 Rapid Fire Q and A 45:31 Liver Failure Red Flags 49:17 Diaphragm Frequency Debate 50:52 Wrap Up and Disclaimer In this Frequency Specific Microcurrent (FSM) podcast episode, Dr. Carol and Kim Pittis discuss how FSM protocols can change nervous system state, emphasizing that patient confidence and feeling safe are key markers for shifting movement and pain patterns. They describe using frequencies such as 40/89 to reduce fear/panic and alter pain processing, noting observable changes like slower speech, lower voice pitch, relaxed posture, and improved balance and gait. They share clinical examples including concussion/vagus protocols, athletes with strong pain-suppression, fibromyalgia-related pain center changes, and cases where prolonged 40/89 increased pain and was reversed with 81/89. The conversation also covers catastrophizing language as a response to not being believed, practical treatment programming (short vs. long, daytime vs. nighttime with converters), Ehlers-Danlos with MCAS and vagal dysfunction, digestive issues tied to low stomach acid and long-term acid blockers, and brief Q&A on electrodes, diaphragm frequencies, liver enzymes, and urgent high heart rate.

Brett records an episode without Christina and Jeff and chats with Melissa Davis (The Mac Mommy) about her start as a mommy blogger and longtime Mac podcaster, her tech-support work, and the strange lack of closure when online friends disappear. They trade mental-health and chronic-illness updates, Adderall vs. Vyvanse, difficulty finding curious doctors, and being labeled “worried well.” Don’t worry, they nerd out on mechanical keyboards, Karabiner, and remapping keys. GrAPPtitudes include Bartender 6 Pro, Sortio for AI tagging, Sketch Party TV, and Karabiner. Sponsor OneSkin improves your skincare routine with science-backed skin care products. With over 10,000 five-star reviews and validation from clinical studies, OneSkin has made a name for itself in the skincare industry. If you’re interested in trying OneSkin for yourself, you can get 15% off your order with the code OVERTIRED at oneskin.co/OVERTIRED. Chapters 00:00 Meet Melissa Davis 00:56 Early Podcast Days 02:20 Tech Support Seniors 05:52 Digital Legacy Work 06:50 Sponsor: OneSkin 08:14 Mental Health Check In 08:34 Insomnia And Focus 13:19 Doing Time Tracker 16:04 Suspenders And Stenosis 20:18 Mobility And Home Hacks 22:10 Melissa Health Update 23:25 ADHD Meds And Mutations 25:25 Curious Doctors Matter 27:59 Vyvanse Vs Adderall 30:26 Tracking Mood With Data 32:27 Cane And Somatic Therapy 36:09 Somatics For EDS 36:50 Yoga Modifications 38:19 Polycystic Liver Shock 39:20 Fatphobia In Healthcare 40:56 Pole Dancing Reality Check 41:55 Mechanical Keyboard ASMR 45:56 Nail Art And Picking 49:09 Keyboard Layout Rabbit Hole 01:00:59 Shortcuts And Muscle Memory 01:03:12 GrAPPtitude App Picks 01:14:07 Karabiner Power Tips 01:17:30 Wrap Up And Thanks Show Links hEDS Doing Timing Royal Kludge Keyboard Gamakey Silent Linear Switches EPOMAKER Switch Benefit Section EPOMAKER AegisSil Keycaps Set SketchParty TV Karabiner Sortio Bartender Pro Day One Join the Conversation Merch Come chat on Discord! Twitter/ovrtrd Instagram/ovrtrd Youtube Get the Newsletter Thanks! You’re downloading today’s show from CacheFly’s network BackBeat Media Podcast Network Check out more episodes at overtiredpod.com and subscribe on Apple Podcasts, Spotify, or your favorite podcast app. Find Brett as @ttscoff, Christina as @film_girl, Jeff as @jsguntzel, and follow Overtired at @ovrtrd on Twitter. Transcript Nails and Keys with Melissa Davis (The Mac Mommy) [00:00:00] Meet Melissa Davis Brett: Hey, this is Brett Terpstra. I am without my usual cohorts, Christina and Jeff. Um, so I, I wanted to, you know, get a, get an episode out for all of you listeners, and I reached out to Melissa Davis, known as The Mac Mommy. Um, I don’t, I, I don’t know if they’re still known as The Mac Mommy, but in m- in my lifetime they have been. Um, Melissa, why don’t you introduce yourself, let people know, like, M-Ma- long time, like Mac personality, podcaster. Tell us where you came from. Melissa: Where did I come from? Outer space. Uh, I came from being a mom. I, I, I will admit, this is hard to admit, But I will admit I started out as a mommy blogger. That’s, like, kind of a bad word nowadays. Brett: back, back, yeah, this is way Back when Melissa: [00:01:00] Yeah. Early Podcast Days Melissa: so we’re talking, like… Well, my oldest is gonna be 20, Brett. My oldest is gonna be 20 this summer. End of, end of June he’ll be 20 years old. So that’s about how long I’ve been doing podcasting. I mean, I started, I started, like, when… Well, you know what? I started listening to Adam Christianson’s The MacCast Brett: But you know what? I started Sure. Like one of the very first podcasts, Yeah. Melissa: still, I still listen to him on the Mac Geek Gab. Like, his voice is just so soothing to me. I used to… Like, that was the f- Back when I had, I had, I remember I had, like, an old G4, uh, Quicksilver Mac, and in the stinky little back room of our old house. And I used to, I used to download the podcasts, burn them on a CD, put them in my Walkman, ’cause I didn’t have an iPod yet at the time. I wasn’t that… I was never really that cutting edge. And I’d burn them on a CD, I’d put the CD in my Walkman, and then I would sit and nurse, I would nurse my baby. I, [00:02:00] and I would have to tuck the, uh, the headphones, you know, I’d have the ear- the, the wired, kinda like I have now, uh, and tuck it behind my back, like, behind my shoulder, because otherwise he’d, like, yank on the cord. And I would just listen to podcasts while I nursed. And I… And then, uh, then I met Victor Cajiao, and I started just kind of being, like, a serial podcaster, showing up here and there, and then it just kinda grew from there. Tech Support Seniors Melissa: Um, and I do… So I do tech support. I’m an IT tech s- tech support person. I… People call me their computer guru. I mostly work with, uh, the senior population, our, our vintage people, which I, I’m slowly becoming one of them. We’re all, we’re all gonna go that way. Brett: I feel like anyone who does Mac tech support deals with probably an, a, a population that skews older. Melissa: Mm-hmm. Mm-hmm. Yeah, it’s actually, it’s actually more– I will say it’s actually more difficult to work with somebody younger. Like, especially people my age or people [00:03:00] that are like, say, in their sixties I consider pretty young, 70 even. Uh, yeah, so but it’s, you know, the people are so, so interesting. You can learn so much. I love working with this population because they’re like encyclopedias, and the stories they tell you and the things you learn, it’s pretty amazing. And I could just, I could just spend– I have actually spent all day with some of them. Some of us just have really great chemistry and, you know, it’s… They– I, I’m also– I have ADHD, that’s no secret. And I think when you get older, um, not– it doesn’t affect everybody, but I do see a lot of what could be either they, they have ADHD or it’s like a– Brett: they have Melissa: of creeps in and it’s just a natural process of aging, cognitive decline. So, yep. Brett: have a lot of patience. Sure. S- some of my, some of my most interesting relationships over the last 10 years have been with, uh, Mac users in their late 70s, [00:04:00] 80s. And, uh, like they’ve been– They’re very– Like, they’re definitely… The people that I’ve known have been technically capable and very interested in learning. That’s why they follow me. That’s how I meet them, right? They’re like, they read my blog, which is just all nerd stuff. And, and so they’re, they’re technically competent, and they’re doing things that I can only aspire to be doing in my 70s and 80s. Um, I had a guy who was writing his memoirs at, in between like mountain bike rides. And so here’s the thing, though, is when you, when you know someone online and they’re in their 80s and you stop hearing from them for a Melissa: Yes. Yes. Brett: you have to assume that they have passed on. and that is sad, and you never really get any closure because you don’t know their friends or family. You [00:05:00] never get like a notice, an obituary. You don’t, you don’t know where these people go, um, and you don’t know how to check in on them once your normal channels of communication are severed. Melissa: Yeah, we’re at that age where we probably start reading the obituaries. Like, I haven’t heard from so-and-so in a while. Let me check the obits." Brett: I had, I had– Before NVUltra went on for, what’s it, like five years now, uh, without a release, um, I had a project called BitWriter with David Halter. And Melissa: remember you mentioning that, yeah. Yeah, and you wondered. Mm-hmm. Brett: he stopped responding. Melissa: you find out any at all? Any, Any, concrete… Brett: Nothing. I have put feelers out everywhere I can think of. I have no idea what happened to him. Melissa: went Richard Simmons, huh? Brett: yeah. Yeah. With less Melissa: No contact. No contact. Aw. Digital Legacy Work Melissa: I, I’m lucky that, uh, in my line of [00:06:00] work, I do typically hear from the family if they’ve passed on, because I form kind of a bond with a lot of people. I, I typically don’t lose clients unless they die, so… Brett: and you have some, like, in real life connections to Melissa: Oh, yeah. Yeah, I do, I do both. I do… I have some clients where I’ve never met them in person, I’ve only ever done remote. Uh, and then, but most of my clients are, are local, the majority of them. But I, I still s- see them remotely too, so yeah. I’ve, I’ve actually been hired by some people, um, mostly I’ve had two male clients who they got a terminal illness, they knew they were terminal, and they followed me online and they pretty much hired me to take care of their surviving spouse. So that, that was… that’s a difficult thing, but I’m just honored that they chose me to, to help them out with that. So I’ve kind of been a bit of a digital undertaker in that regard. Sponsor: OneSkin Christina: I want to take a moment to share something that has significantly improved my skincare routine, OneSkin. [00:07:00] So we all have those days when our skin doesn’t feel its best, and I’ve certainly been in that boat, especially recovering from surgery. And I was tired of navigating through endless products that promised results, but often fell short. And that’s when I discovered OneSkin. It was founded by scientists dedicated to longevity, and this brand stands out for its commitment to real science over marketing hype. They tackle the fundamental question of how to actually slow down skin aging rather than just masking it. And their groundbreaking ingredient is, uh, ZeroS01, and it’s a proprietary peptide designed to help deactivate the damaged cells that contribute to aging skin. Since incorporating OneSkin into my routine, I’ve actually been noticing some improvements. My skin feels smoother. It looks more vibrant. Um, it’s definitely more moisturized, and so this is benefiting from its focus on supporting collagen and strengthening the skin barrier. With over 10,000 five-star reviews and validation from clinical studies, OneSkin has made a name for itself in the skincare industry. If [00:08:00] you’re interested in trying OneSkin for yourself, you can get 15% off your order with the code OVERTIRED at oneskin.co/overtired. That’s 15% off at oneskin.co/overtired using the code OVERTIRED. Thank you for supporting our show by checking them out Mental Health Check In Brett: Um, so do you wanna do a mental health Melissa: Sure. Brett: I, I know, I know you’ve listened to the show before. I know you know how this works. Melissa: how this works. Brett: Would you like to start? Melissa: I think I would like to hear you start, and then I’ll, I’ll add on Brett: that sounds good. Insomnia And Focus Brett: Um, so sleep continues to be a major issue for me. Um, I actually for four days in a row last week, I got eight hours of sleep a night, which was insane. I felt so good. Um- The first night… So I take [00:09:00] Lamictal for bipolar, and if I miss my evening dose, I crash and I sleep in the next morning, and I sleep soundly. Like, it’s the best sleep I can get. And then I wake up and all of a sudden the withdrawal kicks in, and then I’m shaky and dizzy for half an hour after I take the dose. Um, but that’s after, like, a solid night of sleep, and it never works two nights in a row. And, like, I’ve tried, like, maybe if I take Lamictal in the mornings instead of the evenings, maybe I’ll sleep through the night. It doesn’t work after that first missed dose. Um, but then I just, without making any changes in my lifestyle, started sleeping, and I thought finally after, like, two years of insomnia, I had turned a corner, because I can’t remember the last time I got eight hours of sleep for more than two nights in a [00:10:00] row. And then it ended, and then I was up. I’ve been up since 2:30 today. Melissa: I wondered, yep. Brett: I mean, I went to bed at 8:00, so that’s still nine, 10, 11, 12, 11, Melissa: I actually dozed off on the couch around 8:30. Like, if only I could just be in my bed right now, just be, like, transported. Yeah. Oh. Brett: Oh, I, I wish. If I could go back to bed… Like, sometimes I’ll, I’ll lay back down around 7:00 or 8:00 and get, like, another half hour of sleep, but it’s really that, like, uninterrupted block of deep sleep that I need, not… I take naps during the day, and I can usually fall asleep for half an hour, um, given that I’m usually functioning on five hours of sleep anyway. But anyway, um, I– That, that’s just kind of par for the course for me, so, like, any, any of our listeners know that that’s gonna be the first thing I report. Melissa: are you, [00:11:00] like, kinda competing? Like, are you trying to get eight hours because that’s what’s prescribed? Have you ever thought about Brett: be- actually, what works eight and a half, like I’ve, I’ve… Back when I had the option to sleep more than five hours, like, I did a lot of kind of experimentation and Melissa: know where your sweet spot is. Brett: Well, it… See, the sweet pot- spot changes as you age, though, and you need less sleep as you get older. So, so I can’t say for sure that eight and a half hours is still my sweet spot. Um, and I think honestly, if I can sleep seven hours, I feel pretty good, and I consider seven hours a good night’s sleep. Melissa: Yeah, ’cause mine’s like between four and six. Brett: really? Yeah. See, Melissa: feel Brett: I don’t function well. Oh, I don’t function well on anything less than seven hours. Melissa: I just have a love-hate relationship with sleep. I just don’t– I just hate to sleep. I just would rather be doing other things. Life is [00:12:00] just too interesting. Brett: I get that. I– get that. I– as someone who’s bipolar and has had like manic episodes where I’m up for five days straight, like I, I love not sleeping. Um, w- when, when I have the mania to give me energy and back it up. It’s when I’m just dragging all day and feel like a zombie. The thing– The, the plus side to it is the more tired I am, up to a certain point, the better I can focus. Like my brain slows down and it’s really easy for me to get into hyperfocus. And like most mornings I’m up at, you know, 2:30, 3:00 and I just start coding. And I can not only hyperfocus, but I can switch focus between three or four different projects like simultaneously. I hit compile on one, I move on to the next one, and I can rotate [00:13:00] through them and like keep track of all of it. And then right around 10:00 AM, my ability to do that ends and suddenly I like flip to a project and I cannot for the life of me remember what I was doing, which is why I’ve spent my life building note-taking apps and, and time tracking tools. Melissa: Yep, same thing. Doing Time Tracker Brett: dude, h- d- I don’t… You might not be familiar with my project Doing. Melissa: N-no, but I– you alluded to something. that’s not what you’re working on with Dan though, is it? Brett: No, no, that’s gonna be Melissa: Dan on that too. I, I, don’t know what it is yet, but yeah, I’m, I’m Brett: Oh, it’s… Yeah, it’s gonna be cool. Melissa: that’s so exciting. Brett: no, Doing is a command line tool where you can type things like, “Doing now podcasting with Melissa,” and it starts a timer for like what I’m doing now, and then I can ask it if I leave and come back, I can say, “What was I doing?” And it’ll tell me, [00:14:00] “You’re podcasting with Melissa.” Obviously, that’s a weird example ’cause I’m not gonna leave in the middle of this. But then it can give you like totals, time, tag-based time totals, uh, for your week and everything. It can show you like what you finished yesterday. Um, it’s not so much a task tracking app as it is a tool for keeping track of what you’re doing in the moment. Um, for, for people like me who switch between four projects at once, it’s really handy. And some guy, some fucking guy Melissa: Some fucking guy. Brett: it, rewrote it in Rust, and it is really good. it is really good. Uh, he like, I- Oh yeah, I use Melissa: Okay, ’cause Brett: This is, this is separate. this is this is a little more ‘ intentional than Timing. Um, I use both. They kind of work together, and Doing can actually import Timing’s JSON exports. So you can turn your, you can turn [00:15:00] all your Timing data into command line, uh, readable Doing files. Um, but anyway, this guy rewrote it in Rust with my permission, and he gave me full credit on the page. And I think I’m switching ’cause Doing is written in Ruby, and Ruby is slow, and Rust is fast. And like my Doing file where it stores all of my current projects, like my Doing items, gets so big that it can take Doing like up to five seconds to respond when I ask it, “What was I doing today?” Which is five seconds is a long time on the command line. Um, and his Melissa: pretty instantaneous. Brett: his version is like 100 milliseconds. Boom. But anyway, Melissa: It’s almost like you built your own little AI thing. Like, what was I doing? What Brett: kinda, kinda, yeah. Melissa: you doing, Dave? Brett: This is, this [00:16:00] was built long before AI was a common thing, but the other thing that’s contributing to my mental health Suspenders And Stenosis Brett: is suspenders. Melissa: Ah, yes. Brett: So I have I have gained 100 pounds, um, not, n-not of my own choice, but like I had rapid weight gain and I recently got a stenosis diagnosis, which I hate the Melissa: telling you, I’m telling you, we’re like 23 and me here. I’ve got that too. Brett: apparently during one of my, like when I gained 50 pounds in like six weeks, my body was looking for places to store all the new fat and decided my spine might be a good place for that. Um, so I have fat in my spine and I have degrading discs. This is separate from my love of suspenders, so I’ll get back to [00:17:00] that. I, um, Melissa: Wait till you get it in your eyeballs. Brett: Oh, for real? Melissa: Yeah, you can have… I have, um, what’s it called? Cholesterol. Yeah, if you look at your eyes really close, if you see like a white kind of w- ridge around your irises, that’s cholesterol. Brett: Oh, wow. Yeah, I hope, I hope that hasn’t happened yet, but who knows? Um, Melissa: Brings out Brett: I– So I have all this, I have all this extra weight and I had a lot of trouble with belts. A, belts hurt ’cause they dig into my, my gut, and they don’t really work. I, every, every time I stood up, my butt crack showed and I had to like wiggle my pants up. And then I I tried a pair of suspenders and it was like a l- a switch had been flipped. All of a sudden my pants just stayed up without any constriction around my waist, just like they just stayed with me wherever I went. And now I can, [00:18:00] I can tuck my shirts in and it actually looks kinda cool when you got the suspenders look going on. Which means, so like for a long time I only wore one brand of shirt, um, and because they, it was, it fit my belly and it was long enough and like it wasn’t, wasn’t baggy around the top and didn’t hang off my belly like a muumuu. Melissa: Mm-hmm, Brett: And like, so I, I, I only wore this brand of shirt and I own like 15 of them, and I would just cycle through Melissa: dresses, they’re just your Walmart $10 cotton tank dress. Love it. Brett: Yeah. But now that I can tuck my shirts in and feel okay about it, I can buy those extra large nerd shirts, ones with funny slogans and stuff on them. And normally those would hang straight down off my belly, and I hate the way that looks. But now I can tuck those in, which means I can get back to wearing funny, [00:19:00] ironic T-shirts, and it, it’s like opening up a whole new world of possibilities Melissa: That is a bonus for mental health. Brett: every day now I put on my suspenders and it makes me happy. Um, Melissa: wonderful. It’s almost like a, like a mobility aid. Brett: Kinda, yeah. Melissa: yeah. Brett: of, I– So I, I have a monopod, um, like a tripod that folds up into a walking stick, and it’s nice and light and it is an adjustable height ’cause it’s designed to be used as a camera tripod. Um, and I’ve started walking with it Melissa: yeah. kinda like you’re Brett: I c- yeah. Yeah. Like one of my fat friends has s- literal like ski poles. They’re like half height ski poles and they walk with them and it helps them a ton, and I Melissa: Yeah, hikers use those. Brett: try that out. But a walking stick [00:20:00] really does help with my stenosis, but I can still, even with a stick, I can only walk for about five minutes, which is about .3, Melissa: Yeah. Brett: 3, .3 miles. Um, and then I have to stop and sit, and it’s been a real pain, literally. Mobility And Home Hacks Melissa: And is standing difficult, too? Brett: standing is worse than walking. Melissa: thing, yeah. Standing’s worse. Brett: Yeah. Like if I am in the kitchen and I’m at the stove cooking, before the onions start to brown, I have to sit Melissa: Yeah. Yep. Brett: Uh, so we now have a stool in our kitchen, Melissa: Do you have one in the shower? Brett: yes. Well, our shower, our shower has a nice, like the back of the tub is a seat. Melissa: Oh, okay. Yeah. Brett: I don’t know if this house was designed by old people or not, but, um, but it’s certainly everything is relatively [00:21:00] accessible in that way. Um, but the stool in the kitchen means I can cook dinner. Emptying the dishwasher is the worst for me. That just like bending over, picking stuff up, and then just moving back and forth, like the five feet across our kitchen. My– I, it takes me three stops, three rests to get a dishwasher emptied. Um, and then I’m kind of ruined after that. I hate it. And I hate that I Melissa: stress mat? Brett: What’s that? Oh, you mean Melissa: mat to stand on? Gotta get, gotta Brett: think that would help? Melissa: Oh, yeah. Yeah, I have Brett: used to have one Melissa: and one in front of the kitchen, and I don’t even, I don’t even, do the cooking. Brett: Ha. I used to, I used to have one of those in front of the stove when I w- when I didn’t have pain, but just because I was really getting into cooking and I was spending a lot of time, and I was starting to feel it in my knees. Um, yeah, maybe I should do Melissa: I think it’s a fatigue [00:22:00] mat, I think they call it. Brett: Yeah. Melissa: Yeah, Brett: That sounds Melissa: plus they look cool if you get little designs on them and stuff. Yeah. Oh, we could spend the day talking about just mobility aids and ergonomics and all that kind of stuff. Melissa Health Update Brett: Well, it’s your turn. Talk about whatever you like. Melissa: Yeah, you give me some ideas to talk about. Um, yeah, I struggle with a lot of the same things that you do. Um, I’m always like kinda comparing notes every time you post something. I’m like, "Oh No, ‘Cause you talked about Have you … You haven’t started the injections yet, have you? Brett: No, and they just delayed those. I don’t get them until like June 20th or something. Melissa: nervous about those for you, because I’ve had those and I’ve decided to just swear off them, so I’ll just kinda give you just a heads-up. I mean, it does raise your blood sugar, so that’s not great, and, um, it can give you the roid rage, kinda make you angry, so that’s something to watch out for, and more weight gain, so …But it’s like one of those things where you just have to kinda try [00:23:00] it and see if it works, because if it does work, then you could be more mobile and then maybe drop a few pounds and get some of that weight off of your spine. But if it doesn’t work, just know that that can happen, Brett: my doctor did not mention any of those side effects, so good to Melissa: Yeah. Yeah. It’s, it’s the chronic life, so that’s, that’s what, that’s what, uh, affects my mental health, so I’m, I’m really good at faking it. I am actually … I will say I’m actually feeling a little bit more even. ADHD Meds And Mutations Melissa: I’m on, uh … I love when you talk about different prescriptions and stuff. Uh, I just mentioned, so I’m taking Adderall. That is, ugh, it’s a mixed bag. Um, I wanted to ask you about Vyvanse, cause that’s the next thing for me, but it’s, like, super expensive, so I’m trying to make Adderall work as best I can, but I’m, I’m in the process of playing with the dosage. But I think she told me, like, the highest was 30. The thing is, uh, I’ve had genetic testing done, and [00:24:00] I have this condit- not a condition, but it’s a I’m a mutant. It’s a genetic mutation called, it’s, it’s just initials. It’s MTHFR, lovingly known as Brett: you process your, your, chemicals twice as … fast. I have Melissa: Yes, faster processing in the liver. So that’s when she told me, ’cause she started, uh, me out on methylphenidate, and I was like, “Well, what about Adderall?” Because it, I see it work for my kids, you know? The kids are chip off the old block, right? And so I’ve had them tested too, and all three of us are positive for that. It’s lovelin- lovingly known as the motherfucker gene mutation. Um, yeah, so, and it is. It’s, it’s quite a bitch, um, ’cause it causes a whole bunch of other problems. And of course, we’ve talked about Ehlers-Danlos, so I have, uh, hypermobile Eh- Ehlers-Danlos. I’m having a hard time … I’m just having a hard time with that in general, mental health wise, because there’s just not enough awareness about it, enough people, and doctors, doctors and nurses. And you know, I’ll, I’ll say I wanna, I would love to be able to get [00:25:00] to a point where I can just say, “I have H-E-D-S,” or heads or what- however they’re gonna pronounce it, and, like, somebody know what that is when I go in for an appointment. But I still have to explain it, you know? And then that, that cuts into my time. ‘Cause they only … When you’re, when you’re our age, they only give you, like, 15 minutes, if that. When you’re much older, ’cause I’ve had to take, I’ve had to take family members to the doctor, they get a whole lot more time. But, uh, you know, it’s like, "Oh, you’re, you’re too young to be this sick. You’re too young to be this old," Brett: Right. Yeah. Curious Doctors Matter Brett: Um, I did– I found that doctor for me that knew exactly what all those acronyms meant, knew exactly, like, not only did they know what POTS was, they knew like seven different kinds of POTS and what tests to use to narrow it down. And then she got called up to National Guard Melissa: Oh, I wondered, I wondered, what happened to that doctor, ’cause it sounded so Brett: I waited. I was on a, I was on– I w- I had an appointment scheduled that was gonna be six months from the time she [00:26:00] left. Um, and I had it scheduled, and it was on July 7th. And then I got a letter in the mail saying that her Guard duty had been extended, and now I can’t see her again until September. And, like, I’ve, I’ve tried seeing other doctors that work with her, but none of them have the knowledge she has, and it was such a relief Melissa: Is this the curious one? Okay. I always think about you whenever I’m either looking for a provider or in the, in the midst of, of getting, you know, shuffled around to a new provider. I’m like, “I hope they’re curious,” ’cause that made– that meant so much to me when you explained about how a doctor needs to be curious. I’m like, “That’s what I need.” I need somebody… Or even just my therapist. I have a new, a new therapist that I see, and she’s really curious, and I really, really like that about her. That’s something that helps with mental health, is when somebody’s curious, ’cause I’m Brett: it goes h- it goes hand in hand with credulousness. Like, [00:27:00] first they have to be willing to believe you, and like, especially when it comes to invisible issues like EDS. Like, you have to be willing to believe a person and then be curious enough to look for answers. Like, the first step is believing, and the second step is curiosity. Melissa: Yes. I’ve already had my patient record marked as… Have you ever heard this one? Worried well. Brett: No. Melissa: I looked it up. It’s basically hypochondriac. Brett: Yeah, that’s what I was gonna guess. That Melissa: Yep. I actually– I was proud of myself because I actually did confront the doctor about it and I said, “What does this mean?” I said, “I, I looked it up and it kinda concerns me ’cause it makes me look like a hypochondriac.” And she said, "Oh, no, no, that’s just a, a code that we use when we don’t have something else to assign to it so that insurance will pay." Bullshit. Brett: Yeah, right? I feel like that’s exactly the kind of [00:28:00] thing insurance doesn’t pay. Melissa: Mm-hmm. so Vyvanse Vs Adderall Brett: what do you wanna know about Vyvanse? Melissa: Um, a- and I know it’s different for everybody, but I just kinda wondered what your take was on it. Um, how– can you compare it to Adderall at all for me, Brett: Yeah. Melissa: no comparison? Brett: it’s basically a non-abusable, I would call it lower lying version of, of Adderall. Like, it’s in the same family of stimulant as Adderall, but it can’t– It isn’t processed or it’s… I don’t remember how the mechanics of it work, but you can’t snort it basically. Like, it doesn’t, it doesn’t do anything Melissa: Which I wouldn’t wanna do anyway ’cause there’s nothing up here. Brett: Sure. Sure. And then, yeah, I’m not suggesting that was gonna be a problem for you. Um, but it’s also, like, it’s way, um, for me anyway, it’s way calmer. [00:29:00] Um, and there are people that say it doesn’t do anything at all. Um, especially a lot of people, a lot of people say the generic version doesn’t do anything, um, and that the name brand version does, but I haven’t found that to be true. Like the generic, which you’re correct, still costs like 200 bucks a month, um, for the generic. Um, but it is– It’s not my favorite. Melissa: I wondered why– what made you stop taking it. Did it just not work for you? Brett: No, I still take Vyvanse. Um, yeah. Um, I used to take, um, Focalin, which I loved. Melissa: That really worked for my kiddo, yep. Brett: but it also triggered my mania, Melissa: Mm-hmm. Mm-hmm. Brett: so I was always walking this line of like, do I wanna be super productive and manic with like weeks of depression in between, [00:30:00] or do I just wanna be somewhat productive and stable? Um, which is why I’ve stuck with Vyvanse, and my doctor loves it enough for me that she won’t, she won’t prescribe anything else for me at this point. Like, I’ve asked about switching. I’ve asked about moving back to Adderall and things like that, but, Melissa: It seems like you’re, like you’re kinda on an evening out. Brett: Yeah, I haven’t had a manic episode for a couple years now. Tracking Mood With Data Melissa: Do you track it? Do you– Like, have you ever seen those– I keep seeing these ads for it ’cause, you know, the algorithm feeds us the stuff for wearables that are, um, called– I think it’s called Visible, so it makes your symptoms more visible instead of invisible. Like, do you track it? Do you Have you nerded out on your own data? Brett: like my mania and depression? Melissa: Yeah, like do you track it and look at graphs or anything like that to Brett: See, I’ve never had to use an external tool because I can just look at GitHub contribution graphs, and I can look at [00:31:00] my RSS feed, and I can see exactly, like for a period of like eight years, I can pinpoint exactly where my manic episodes were, um, because that data is historically preserved out there on the internet for all to see. Um, it’s, yeah, it’s– Well, and that’s, like I built tools that gathered that, those various sources of data. Um, and then there was a, a tool called, um, I forget. Melissa: cool, though? Hmm. We’ll think Brett: But it could pull, it could pull in all that data. Um, Bell Beth Cooper, Hello Code, I can’t remember the name of the app. Melissa: Yeah, it’ll come to you eventually. Brett: sure. Uh, but it could pull in like your GitHub, uh, commits along with like what the weather was at the time, how many songs you listened to that Melissa: Oh, day one sorta does that, yeah. Brett: Does it now? Melissa: A little bit, yeah, your locations, [00:32:00] um, if you turn on some of those things. Like not– I don’t think it does the music and things like that, but Brett: I haven’t used it for a while. I haven’t used it for a Melissa: I was gonna switch to the journal app. I was actually really… I held off on upgrading to Tahoe for the longest time, but that one kept nagging at me ’cause I thought, oh, you know, maybe. I mean, as much as I love Day One, I, I thought about, I thought about actually switching over, but no. I tried it. I’m, I’m gonna stick with Day One. Brett: Cool. All right. Cane And Somatic Therapy Brett: Um, so did you have, did you have more to add to your Melissa: Oh, I was gonna, I was gonna add on to what you were talking about with the suspenders. I did start… I think you probably… Well, yeah, you commented on it. Um, I started using a cane, and that I have mixed feelings about that. Um, I should have brought it in here so I could show you. I’ll show you later, ’cause, uh, anyway, it’s, it’s purple. I did get a pimp cane. That’s what my husband calls it. I thought, damn it, if I’m gonna use, like, a cane, then it’s gonna be [00:33:00] purple, and I’m gonna like looking at it, as much as I hate to use it, so. So I’ve been trying to use it. I… What you were talking about with, uh, with finding a curious doctor, I do have new physical therapist, um, so I’m really happy about that. Same kind of thing where she’s super booked. I think that’s just how it is. Like, the really good ones, they’re good, and, you know, it shows because it’s, it’s hard to get in to see them. So yeah. So I’m, I’m looking forward to that. We’re gonna be doing… Have you heard of somatic therapy? Brett: Yeah. Melissa: Yeah. So ha- have you tried it? Do, do you like it? Okay. That’s, that’s what I’m embarking on. Brett: I actually have a friend who teaches classes in it. Melissa: Oh, Al probably knows about that. Brett: y- yeah, Melissa: Yeah, I’ll, I’ll Brett: and it is, it is amazing how hard just doing things, doing motions you’re used to, but doing them very slowly and intentionally. It is like you– Just like, Just like, doing y- like a clamshell where you drop your knee, you’re [00:34:00] on your back and you drop your knee down to the side and bring it back up. Like that motion, most of us, even infirmed people can do that okay. You try to take… You try to do that and take like five breaths in each direction, and you’ll start shaking. It’s very Melissa: Ah, uh-huh. Yep. Brett: Yeah, but it’s good. Like it’s g- it really retrains your muscles. It really, it strengthens, retrains, and helps with, uh, finer motor control. Melissa: Oh, that’s interesting. Yeah, I, I’m, I’m a little bit on the skeptical end of it, so that’s why I’m, I’m glad that, that you, you vouch for it too. It’s like I know that it works, but I just… I guess I wanna understand the science of it a little bit more. Like, for example, I’ve tried, uh, acupuncture, and I just didn’t feel like it did, did anything for me. I think you have to be, like, a believer, and I just Brett: think so. Melissa: I, I, I even did that on purpose knowing that I kinda felt like it wasn’t gonna work. I was like, well, what if I just go into this? ‘Cause, [00:35:00] ’cause I talk to people and they’re like, "Well, you have to believe in it." I’m like, but what if I don’t? I just don’t, you know? I’m, I see it Brett: it’s not medicine if you have to believe in it. Melissa: Yeah. I mean, I see it work for other people. I know there’s, you know, such a thing as placebos and things like that, and I don’t know, it’s, it’s woo-woo and I, I, I like woo-woo stuff. I, it just, it didn’t do anything for me, so… It’s not to say that it doesn’t work for other people, but it just did not work for me, and I, I kind of, I, maybe I just, uh, did that on purpose when I, I try- probably just tripped myself up going into it thinking, well, I just don’t believe it, so if it works, then there must be science behind it. And then, then, I’ll believe. But it didn’t work out, so. So the, I’m a little bit on the fence about the somatic thing, but the, the, the gal that I’m working with is just so, she has EDS herself, and like, like what you were saying, like, she, she knows all about it and she could even, you know, tell me the, the type that she has, and I was like, I met, I met, actually last week I met two zebras in one week. [00:36:00] You, you’re familiar with the, the zebra mascot? If you, uh, the saying goes, if you hear hooves, think horses. But we’re not horses, are we? Yeah, so Yeah, so that’s, that’s our, our Somatics For EDS Melissa: EDS Brett: somatic– somatics you don’t have to believe in for them to work. Melissa: Okay, that is Brett: it’s an actual physical therapy method that trains the finer muscles, um, that surround your larger muscles and, and strengthens those, and it– Yeah, it’s for real. It’s, yeah, it’s not like a… It’s soma- I think, Melissa: w- totally Brett: ’cause I I had the same reaction when someone said somatics, ’cause I think, “Oh, that’s some holistic idea of the body, um, of soma,” and it’s… No, it’s, it’s got legit physical therapy behind it. Melissa: And, Yoga Modifications Melissa: you used to do a lot of yoga too, so that probably makes Brett: I still do. Melissa: Yeah? That’s [00:37:00] wonderful. Brett: it’s gotten really hard. Um, I can’t, I can’t– So I get dizzy Melissa: Yeah. Brett: going from sitting to standing, um, and my back gives out if I am in, like, horse or warrior two for more than a couple minutes. Um, and I can’t do cobras because I have a belly like a nine-month pregnancy. Um, so I have to do, like, prenatal yoga, um, which is actually a thing. Melissa: that’s a good idea. I’m glad you brought that up. I should look Brett: a- and I do chair yoga, um, where I I take the class that everyone else takes, but I modify it to work with… Like, there, there are defined moves that you do with a chair instead of. Instead of doing down dog, you do, like, a 90-degree down dog holding the back of a chair. Um, and you put, like, a knee on the chair to do warrior two, so you’re actually [00:38:00] resting. And Um, and you can do it fully seated too and get at least the arm exercises out of it. So I’ve been trying to maintain, maintain flexibility and some endurance. I’m not doing yoga the way I used to do it, but I am still Melissa: I’ve seen some of your poses. It’s pretty impressive. Brett: Yeah, back in the day. Melissa: W- when you could be upside down. Polycystic Liver Shock Melissa: I should look into that because I, you know, although I’m done having babies, like far done having babies, I have… You probably know about this too, I have polycystic liver disease, which is a really rare type of liver disease, and it’s not fatty liver. Oh my God, I have to keep telling doctors that. That’s the other thing. It’s like, it is not fatty liver. It is not. It- they’re cysts. It’s a totally different thing. I’m basically full of bubbles. So I… But it feels like that’s why I went in to get it. I didn’t actually get that checked. I found it accidentally when I went in for an heart, for a heart CT. That’s when they found it, and for a, a breast MRI, so [00:39:00] both those, those types of scans caught it. The other parts were fine, so my heart’s fine, so that’s a relief. But yeah, so this was a bit of a shock. And so I don’t know exactly what it means moving forward, um, but my entire liver is, like, engulfed in cysts, so. Right? But my blood work is, is fantastic right now, so I’m just gonna keep Brett: That’s good. Melissa: hoping it stays that way. Brett: That’s something. Fatphobia In Healthcare Brett: Um, I I have heard for a long time about, um, doctors being fatphobic and, and always assuming that, um, always assuming that your health i-issue is because you’re fat and not even looking for underlying issues, which has been an interesting experience for me because that really never happened to me. Melissa: Mm. Brett: Um, at least not once I switched to Gundersen from, like, a local clinic. Then I realized that it’s not just being fat that gets you [00:40:00] stigmatized, it’s being a fat woman. Melissa: Mm, I was gonna say try having a uterus and being Brett: yeah. Yeah. Um, like I talked to one of my best friends, April, who he’s, has been on Melissa: by, women doctors. Brett: Yeah. Yeah. And that’s, that’s what April tells me. She tells me all these horror stories. Even after finding care she trusted, she still has to deal with people saying, “Well, if you just lost some weight.” Like, she’s been fat her whole life. She’s in better shape than most skinny people Melissa: Yeah. Mm-hmm. Brett: I mean, she does sit-ups with 50-pound plates and does, like, five, 10 miles at a time on her, like, on her bike and, like, she’s in great shape and still has to walk with the ski poles, and she’s getting her second knee replaced this week. And, like, it, it’s just infuriating to hear the way that doctors dismiss Melissa: You know what the problem is, Brett? Brett: goes through [00:41:00] when Pole Dancing Reality Check Melissa: Not enough doctors have watched fat pole dancers. That is the problem right there. They need more education. Brett: Um, yeah. There’s, there are a couple of, um, queer burlesque shows Melissa: shows, yes. Brett: in my area that almost always include a plus-size pole dance, and it is amazing to Melissa: Oh, it’s mesmerizing. It should be an Olympic sport. Remind me to send you the, the link to, unless you’ve already seen it, have you seen the Deadpool pole dancer? Brett: No, I don’t think Melissa: you are in for a treat. We might just have to put that in the show notes, but I don’t know, I don’t know if your listeners are that, are into that It’s fully clothed, but it’s, there’s even blue Crocs involved. Brett: So this is nobody that you’re seeing on the Melissa: I wondered, yep. I wondered, yeah. Aw, he looks so soft. Mm. Mechanical Keyboard ASMR Brett: So you’ve [00:42:00] gotten really into mechanical keyboards. Melissa: have, I have. In fact, uh, I was gonna, I was gonna see how this might sound, but I, I brought my little box of key caps to show you so that I could say, welcome to my ASMR channel. Brett: That would… is is that a thing? I bet there are ASMR, like, key switch testing. Melissa: yeah, yeah. I’ve run across a couple of videos where, you know, they’ll have a hashtag ASMR in there, and that’s, that’s what it is. Do you experience ASMR yourself? Brett: No. Melissa: No? So when you listen to those videos you don’t get like the s- the tickling of the spine and stuff? Brett: No. Melissa: I do. It actually, it goes, it… I forget. I always forget what the acronym stands for, but it, you know, has something to do with the meridian. So if you can i- imagine your brain like split in half, and I feel it right on this side. It goes, it goes like the, down the back of my head, behind my ear, and down into my shoulder. It [00:43:00] is the funkiest feeling, and I love it. I love it so much. Even when we were talking about animals in the, in the beginning and I even had a cat that would come and just like kind of lick my ear and, oh, I just, I love that. Most people cannot stand that sound. They have the opposite condition where they can’t handle somebody chewing gum. My grandfather had that. Um, some, some kinda, it ends in a tonia. Misatonia or something like that, um, where… I don’t know. Do you have any of those like sound sensory issues? I have a lot of Brett: really don’t. I’m very, I’m very, like, sound Like, I like loud, heavy music. Like, that does something for my psyche. Um, but general sounds, they neither bo-bother me nor stimulate me. Melissa: imagine what that’s like. I just can’t. I’m So bothered, and my kids too, and you know, ugh, God, Brett: So El Melissa: has been problematic. Brett: El is, El is, definitely sensitive to sound, um, in a way that Like, even my [00:44:00] mechanical keyboards can’t be, can’t be on the same floor of the house as Elle. We pretty much live in silence, and that’s fine for me most of the time because, like, it just doesn’t affect me either way. So, like, keeping things quiet is easy, and I focus well in silence. And then when Elle’s gone, I blast my music, and w- when I’m in the car, I blast my music, and then the rest of the time I live in the quiet place. Melissa: Mm-hmm. In The Quiet Place. Brett: Yeah. Melissa: Yeah, we have- something a little similar, but m- my husband and I have, uh… We have our his and hers kind of setup here in, in the, in our den, in our inner study. So he’s got his side and I’ve got my side. So we’re together, and he does a lot of grading papers, and he’s really good about putting his, his earbuds in and just tuning the whole world out. He’s… It’s fascinating to watch that man just [00:45:00] execute. I mean, I just am so envious of people who can just execute. But the, the, the, yeah, the sensory, it’s all about the sensory stuff for me when it comes to keyboards. I actually thought about… I don’t know how popular it would be, but I also thought about making a podcast, a video podcast, that would highlight the intersection of nail art and mechanical keyboards. Because I’ll tell you, that’s actually what… I’ve always loved mechanical keyboards, but yeah, the, the one that I had, someone had given me a, a Matias, and oh, it’s, it’s so loud, but it’s like high-pitched. It’s kinda sharp. And it was even kind of annoying to me after a while. And then it does not, it’s not a mechanical keyboard in that you can’t pull the switches out, so you’re kinda stuck with what you got. Like, you might be able to change the key caps if you could find them, but couldn’t change the switches. And something happened to the S key, and I was like, “All right, it’s over,” so. But I can’t get rid of them either, so one of these days I wanna have like a display of, of keyboards. [00:46:00] Nail Art And Picking Melissa: But what got me, what got me into saying, “Okay, I’m finally, I’m just gonna invest in a keyboard because it’s ergonomically important to me,” is I have… And I can’t pronounce it, so I’m not even gonna try, but there’s a condition, and it’s a self-diagnosed thing. But I, I am a picker. I pick my skin a lot. Um, I think it’s called derma something Anyway, so I wasn’t gonna try to pronounce it. But, uh, I’ve always had that condition since I was a kid. I didn’t even know it was a thing. I just thought everybody get, uh, picks. But then during the pande- during the pandemic, it got super bad. Like, I had, I had, um, some panic attacks and, you know, as a lot of probab- people probably did. But it got so bad to the point where I had picked my fingers and they were bleeding and they were throbbing and they were hurting. And I said to one of my kids, I said to my youngest, I said, “Can you just, like, if I, if I’m picking, can you just let me know?” And then I regretted doing that because then he took it on as this, like, full-time job, you know? And it kinda [00:47:00] gave him anxiety, and I thought, “Oh, okay, that, that was a bad thing to do.” So I s- I let him off the hook. I said, “No, you don’t have to tell me anymore.” Um, because, yeah, ev- even if I went to, like, just kinda, like, clean under my nail or something. So it was actually causing a real problem for the family that I was just picking so much. And it’s not just my fingers, it’s, like, other parts of my body. So I thought to myself, “Well, what can I do about this?” And so I started putting fake nail tips on. And I hate to be all, like… I don’t know, I’m not, I try not to be, like, a very vain person, but I really started kinda falling into the nail art side of things, and I, I just recently learned how to do gel and work with, um, uh, what’s it called? Uh, not resin. So I… Oh, that’s another ASMR thing. Do you like to watch resin pours? Brett: I do, actually, yes. Melissa: that’s… Okay, so if you like resin pours, if you like to watch the viscosity and the way the, the chemicals, like, form together and when they, when they mix colors in and stuff, [00:48:00] that’s what it’s like with nail art but on more of, like, a macro level because it’s, you know, you’re working with small stuff. Like, just, just recently I learned how to do… So I’m showing Brett this on, on camera, but I recently learned how to do the kind of nail polish that you take a magnet and you run the magnet along it, and it makes this, like, a cat’s eye. Brett: Yeah, that’s cool. Melissa: I love it. So, so that, so combining nail art then, and I thought, “Well, now I’ve got these long nails,” but all of my keyboards have been these flat, really low-profile keyboards. And, you know, I just, I started to dread it. So then I was kinda caught between a crossroads. Like, either I leave nails off and I can type really, really fast and have high accuracy with no nails, but then as soon as, as soon as I get, like, a little snag or something, then I start picking and then it’s just, it’s all over then. Or I try to find a way to work with these nails. So that’s what I started thinking, “Well, maybe if I had higher keys.” And so then I just, yeah, rabbit hole. [00:49:00] Went down the rabbit hole, and I’ve, I’ve just kinda been there ever since. And, uh, it really, I think, uh… Let’s see. How long ago did this start? It’s only been about maybe like six months or something like that, so. Keyboard Layout Rabbit Hole Melissa: But in that time so I’ve started, um, building a collection of switches. So I’ve been really interested in both the key caps and the switches. Um, I’ve got my baseboards. I like my Royal Kludge the best. This is… I’m gonna show Brett my Royal Kludge. So, so this is what it’s looking like right now. Brett: Yeah. Melissa: It is very purpley. Um, I did post some pictures. I can… I don’t know if you do pictures in show notes, but I could take some pictures for you It’s got a knob. It’s got, um… Let me see if I can do it real Brett: Do you use the knob. I have a couple keyboards with knobs and even a joystick, and I never actually use them Melissa: Good question. Um, I, I use it, I try to use it for volume at [00:50:00] times, and that’s probably what I use it for the most. But this one does have a… Let’s see if I can get this into focus here, backwards and upside down. It’s gonna be upside down, but you see how you can put, you can put your logo Brett: Oh, yeah. Nice. Melissa: got my The Mac Mommy little logo on there. Otherwise, it gives you the time in military format, so that’s kind of handy to have. Um, but yeah, it’s… To be honest, I, I love the, I love this Royal Kludge because it’s nice and heavy, and I love the form factor. It’s got a number pad, um, because I’m, because I am a grown-ass adult and I need a number pad. Um, but it’s nice and heavy. It doesn’t, it doesn’t move around my desk a lot. I kind of have to type, like, kind of crooked, ’cause that’s just the way my neck goes to the wrong way and stuff like that. So I like being able to fit it on my desk. I have a, I had a larger one made by Red, uh, what is it? Redragon. This is the one that I started [00:51:00] out with. Gonna make lots of noise here. But as you can see, this one is way bigger. And it was, as much as I liked it, I mean, I fell in love with it, but what was happening was my accuracy was, like, really thrown off because I fe- I kept feeling like it just needs to be, like, a couple centimeters to the right or a couple centimeters to the left. It just wasn’t centered very well. So this one, my husband gets all the hand-me-downs, so that one went over onto his desk. Uh, and then I also have a baby keyboard here, and this is another Redragon. This is my little mini one. Brett: that’s, that’s the kind of keyboard I mostly use, like a 70% keyboard. Melissa: Yeah, I think this one’s even 60. Um… Brett: My– The one I’m using right now is, uh, 60. There’s no, there’s no function row, there’s no arrow, there’s no keypad or, like, arrow pad. Um, Melissa: No [00:52:00] arrows? How do you live without arrows? Oh, do you, you mapped your keys to something Brett: so it looks like this, Melissa: nice. I love the Brett: that the, the space bar is split in two. Yeah, my, my, my partner says it looks like, uh, gay ’80s. It’s all pink and blue and purple. Um, but the, the space bar is split, and the right half of mine functions as something called a mod key, and when I hold that down, then my I, J, K, and L keys become arrow keys. Melissa: Oh, wow. Brett: once you get used to it, you never have to take your hand off the home row. Melissa: Oh my God, that must be amazing. Brett: It– Yeah, once you get used to it, it, it’s so… Like, g- moving to a keyboard that doesn’t have that is kind of tortuous. On my MacBook Pro, I have remapped it using Karabiner so that Melissa: [00:53:00] That’s what I’m using. Brett: if I hold, the semicolon down with my pinky, then H-I-J-K-L become, Melissa: Oh, nice. Brett: become arrow keys, so I still don’t have to move my hand all the way down and to the right. Like, that’s such a inefficient movement that then I have to, like… Because I don’t have great feeling in my fingers, so finding, on a low-profile keyboard, finding the, the homing buttons again Melissa: Oh, do you use the humming buttons? See, that’s the thing, I was never taught that. I mean, I took like a ty- I took like a typewriting class back in high school, and I just didn’t like it. I, I just taught myself. I just… I’m an autodidact that way, so I just taught myself. Brett: my dad, back in 1984, we had a typing program on our PCjr, and I Melissa: It wasn’t Mavis Beacon, was it? Brett: remember. I don’t remember. All I know is, like, It taught you touch typing, and it would give you [00:54:00] these lessons, and you would basically just mirror what was on screen. And at the age of seven, I was typing at about 68 words per minute on an, on an old IBM PCjr keyboard. Um, got a lot faster through high school and everything. But yeah, I was, I was, from day one, I was raised to be a touch typist, and, and I took all the classes they had in school. Melissa: But you still touch Brett: labs. Yeah. Melissa: Uh-huh, yeah. So you don’t do the home rows. Brett: No, that is touch Melissa: Oh, touch typing, so you do feel… for the bumps. Brett: Yeah, I feel for the bumps, and then I just, like, my f- my key, my fingers never really leave the Melissa: Oh, yeah. See, I wish I could do Brett: centered home row. Yeah. It’s, it, it’s good. Um, Melissa: And you’re using the split, so my gosh. Brett: What– You get used to that too. Um, like, [00:55:00] I can’t do it with the split far apart. I’ve seen people use, like, splits, like, way out to the sides, and I can’t, my, my brain doesn’t do that. Like, my hands have to be within, like, six inches of each other. Melissa: I always thought, it would be so cool to have something where you could have it, like, raised up like this, right? And use your hands sideways. Brett: Yeah. Well, that’s I mean, that’s essentially, I have, on the bottom of this keyboard, I have these risers. Melissa: Oh, uh-huh. Oh, Brett: So it sits, right now I have it at about a 45-degree tent, tent, tent. Um, but it can go up to more like an 80-degree tent, where you’re actually Melissa: Wow. Brett: uh, almost like you’re clapping, you’re typing. Um, I don’t Melissa: of that. I have a, a, handshake mouse. Brett: Vertical mouse. Melissa: You like… Is that what you have for a mouse too? Brett: no, I, I love Melissa: Trackballs. Oh, trackpads. Oh, okay. Brett: Apple’s Magic Trackpad changed my life. I’ve never used– I’ve never gone back to a [00:56:00] mouse since the first Magic Trackpad came out. Melissa: So you’re all about the gestures then? Brett: yeah, Melissa: Yeah. Yeah, yeah. That’s great. Brett: Bet- bet- better touch tool for the win. Melissa: You know what it is for me, is because of the type of work that I do, and this is very much true for both of us, you do these things because of the type of work that you do. The type of work that I do, I’m in everybody’s homes, so I have to ty- I have to be able to type and use their mouse and, I mean, it’s actually a very dirty job. So I keep hand wipes with me everywhere. Um, that, that was why during the pandemic I was like, “I am not coming to your house and I am not touching the stuff that you just picked your nose and…” Yeah, mm-mm. But, so, so i- it’s been kind of keeping me almost like a purist in a way as far as keyboards have gone all these years. I, I finally just kind of let go and embraced this recently, th- which is why I’m so excited and why I’m just kind of nerding out on it, because when, when I worked [00:57:00] in, like, I’ll call it the industry, um, I got my f- my start in prepress. So I worked in prepress, I was a typesetter, and we had… That’s what I kind of miss. We had the old clunky beige keyboards, and I had my muscle memory such that I think my o- my Option key would have, like, the indentation of my nail on it. You know? ‘Cause I had, just like you have, keys that are programmed. I could… I was a Quark queen. I don’t know if you’re familiar with QuarkXPress? Brett: Oh, yeah. Yeah. I was a graphic designer. I I know Quark. Melissa: Yeah, I loved it. I was… And, and I used it back in the OS 9 days, OS 7 really, is when I started out. Uh, I did not like the OS X vers- OS 10 version of Quark. Did not like it at all. Brett: No, but that’s Melissa: it was slow. Brett: Adobe came out with, what was, what was Adobe’s… InDesign. Yeah. By the time I had started, by the time I had started my own ad agency, we were all InDesign. Melissa: Oh, [00:58:00] nice. Okay. I mean, it was a Brett: and none of the, none of the print shops expected Quark files Melissa: Yeah. Oh, it was so expensive. I remember I had to buy it when I was in college, and I remember it cost, like, $800. I’m probably still paying for that, damn it, in interest. Yeah, so that, that’s how I got my start originally, and that’s how I was doing… I, I went to… So I have, I have a Bachelor of Fine Arts. I went to college in order to be a designer. I wanted to be a designer designer, and that’s what I, what I thought I was good at and thought that I liked doing, ’cause, you know, “Oh, you’re a girl. Go to art school. You like to draw.” You know? I’m always bitter about that because I really wish that I would’ve been able to go… I mean, this was, you know… I’m, I’m 51, so this was back in the day where girls, girls don’t do computers and girls don’t do coding. G- girls don’t do computer science. They didn’t even call it computer science. They didn’t even call it graphic design back then. It was commercial art. Um, so I studied that and, you know, I liked it ’cause I thought, “Well, this is what I could, I could take my art and make [00:59:00] a living into it.” And then fast-forward, um, I just started to fall in love with the technical troubleshooting side of things. So as, as good as I was at the technical typesetting and the technical, like, putting prepress things together, you know, um, uh, key sheets and s- you know, things like that. Do you remember, was there, uh, did you ever use a program called Quick Keys? That was one of the ones Brett: familiar. Melissa: you could map your own keys to things. So w- when I was in prepress and doing typesetting, I used that program and I, I mapped all my keys, and I had all these quick keys and stuff so I could go really, really fast, you know? So when they wanted something done fast, they gave it to me, and I could just fly through documents with this. But then as people learned that I was good at this kind of stuff and troubleshooting, they’re like, “Oh, hey, Roger needs, you know, has a problem. Can you go help him?” So I’d go over to his cubicle, I sit down, and he’s got nothing. You know, he’s got [01:00:00] no quick keys, no nothing, and you just kinda get lost because your muscle memory just adapts to it. And I couldn’t help people the way… And, and that was what it was about for me. I really liked more helping people and troubleshooting and the technology side of things than the actual design process. So I kind of went to the other side with it. And so I just kind of, like, vowed that, okay, I’m not gonna do any kind of, like, customization on my own workstation because then I’ll, my, my muscle memory will map to it, and then when I go to sit down to help somebody else, I won’t… You know, I’ll be so much in my own world that I won’t be able to help them. And so I just kind of, like, remained a, a pu

In this episode, Ash and Dusty discuss the important topic of when worsening ADHD symptoms may actually be caused or worsened by other physiological or medical conditions. They explore how hormonal changes related to PMS, PMDD, perimenopause, and menopause can significantly impact cognition, mood, and executive function. Dusty shares her personal experience with PMDD and how medication has been life-changing in managing symptoms that overlap with ADHD but require different treatment approaches. They also highlight other health issues such as anemia, mast cell activation syndrome (MCAS), hypermobility disorders like Ehlers-Danlos, TMJ, migraines, and sleep disruptions that can mimic or exacerbate ADHD symptoms. The hosts emphasize the importance of recognizing these co-occurring or separate conditions and how ADHD coaching can support managing them by focusing on follow-through, executive functioning, and problem-solving rather than "coaching out" chronic illness itself. Ash and Dusty encourage listeners to advocate for themselves with healthcare providers, get regular checkups, and explore potential underlying causes when symptoms suddenly worsen. They also caution against dismissing new or worsening symptoms as just ADHD and stress the value of integrated care between medical treatment and coaching to improve overall functioning and quality of life. Episode links + resources: Join the Community | Become a Patron Our Process: Understand, Own, Translate. About Asher and Dusty For more of the Translating ADHD podcast: Episode Transcripts: visit TranslatingADHD.com and click on the episode Follow us on Twitter: @TranslatingADHD Visit the Website: TranslatingADHD.com

In this "MythBusters" edition of the Bendy Bodies Podcast, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight tackle the persistent misconceptions surrounding Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and their frequent companions, Postural Orthostatic Tachycardia Syndrome (POTS) and Mast Cell Activation Syndrome (MCAS). Dr. Knight, Medical Director of the UVA Health EDS and Hypermobility Disorder Center, shares why hypermobile EDS (hEDS) is a serious condition even when not life-threatening, and why a negative genetic test doesn't rule out a diagnosis. The conversation dives deep into the "invisible" impact of these disorders on long-term disability and work ability, while offering hope through a better understanding of pain processing and nociplastic pain. From debunking the idea that POTS is merely deconditioning to navigating the controversial waters of MCAS, this episode empowers patients and clinicians with the knowledge needed to look past the surface and recognize the systemic reality of bendy bodies. Takeaways: EDS Severity: Hypermobile EDS and HSD are serious, chronic conditions that cause multi-system impairment and long-term disability, regardless of whether they are immediately life-threatening. Genetic Testing Limits: Current genetic testing cannot rule out hEDS or HSD because their specific genetic markers remain unknown; diagnosis still relies on clinical history and physical assessment. POTS is Systemic: POTS is far more than simple deconditioning or a cardiac issue; it is a neurologic dysfunction of the autonomic nervous system that impacts everything from heart rate to temperature regulation. The MCAS Spectrum: While MCAS criteria are still evolving and controversial, focusing on clinical patterns and safe treatment responses can improve quality of life even when lab tests (e.g., tryptase) are negative. Pain vs. Damage: Pain is a complex, bidirectional experience; patients can experience significant pain without visible structural damage due to central sensitization and dysfunctional pain signaling. Want to learn more about the UVA EDS Center? Go AquaTru.com now for 20% off (your purifier) using promo code BENDY. For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

In this listener-inspired episode, Dr. Linda Bluestein is joined by producer Aron from Human Content to address the fundamental truths she wishes every patient knew about hypermobility. Together, they explore the "invisible" yet highly visible nature of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), providing a roadmap to help patients stop gaslighting themselves and start advocating for better care. Dr. Bluestein breaks down complex concepts like central sensitization and the "sympathetic overdrive" often experienced by bendy bodies, while offering practical strategies for organizing medical documents and communicating effectively with practitioners. From debunking the myth of "growing pains" in teenagers to identifying environmental mast cell triggers, this conversation is a masterclass in shifting from a mindset of anxiety to one of curious, proactive detection. Takeaways: You Are Not Imagining It: Learn why hypermobility symptoms like pain, fatigue, and brain fog are frequently dismissed and how to validate your own physiological experience. The Interconnected Body: Understand how connective tissue disorders affect nearly every system, from gut motility to the "dishwasher of the brain" known as the glymphatic system. The "Reporter" Mindset: Discover how to present your symptoms objectively to doctors to avoid having physical complaints misattributed solely to anxiety. The HSD/hEDS Distinction: Clarify the differences between hypermobile EDS and hypermobility spectrum disorders, including the current reality of genetic testing. Mast Cells as the First Domino: Explore why stabilizing mast cells can have widespread benefits across the GI tract, skin, and nervous system Find the episode transcript here. Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

In this highly requested follow-up, Dr. Linda Bluestein and recurring co-host Dr. Dacre Knight welcome back neuro-ophthalmologist Dr. Eric Singman to dive deeper into the complex intersection of the eyes, the brain, and Ehlers-Danlos syndrome.  Dr. Singman shares a vital triage guide for navigating the world of eye specialists, helping listeners distinguish between routine vision needs and neuro-ophthalmic emergencies. The discussion explores how intracranial pressure fluctuations, cervical spine instability, and mast cell activation can all masquerade as primary eye problems, often leading patients down expensive and ineffective "snake oil" paths.  Whether you struggle with reading endurance, "glitter" vision, or the visual impacts of POTS, this episode provides a roadmap for finding credible care and understanding the "why" behind hypermobile vision symptoms. Takeaways: The Specialty Triage: Learn how to determine if you need a retina specialist, a cornea expert, or a neuro-ophthalmologist for new or chronic symptoms. Reading Hygiene and the Neck: Discover why your "bad neck" might be the true culprit behind reading fatigue and eye strain. The Pressure Spectrum: Understand how individuals with EDS can experience both high and low intracranial pressure, and why a "normal" spinal tap might be misleading. The "Bandaid" of Prisms: Dr. Singman explains why prisms are a temporary measure and why prescribing them without a diagnosis can be dangerous. Spotting Snake Oil: Identify the red flags of vision therapies that lack clinical data and primarily target the patient's pocketbook. Want more Dr. Eric Singman?https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Want to learn more about the UVA EDS Center?For Appointments and Questions: RUVAEDSCenter@uvahealth.orgUVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinicUVA EDS FAQ: https://www.uvahealth.com/support/eds/faqUVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-healthWant more Dr. Dacre Knight?https://x.com/knidac Want more Dr. Linda Bluestein, MD?Website:  https://www.hypermobilitymd.com/YouTube: https://www.youtube.com/@bendybodiespodcastInstagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymdDr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. Learn more about your ad choices. Visit megaphone.fm/adchoices

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Jameela Jamil (The Good Place, Elio) joins us this week for a wildly honest conversation about chronic illness, passive self destruction and why she is done biohacking her life. Jameela opens up about living with Ehlers Danlos syndrome, surviving childhood abuse, the nervous breakdown that turned her into a truth teller and how EMDR therapy completely rewired her relationship to trauma and fear. We also get into her war on beauty and the unbelievable way a school bully pushed her straight into The Good Place. Thank you to our sponsors: