Podcasts about ehlers danlos syndrome

Soph Myers-Kelley and his mom, René Myers, have always been close. As of five years ago, they also share a diagnosis: the connective tissue disorder Ehlers-Danlos Syndrome. Soph and René were diagnosed one year apart – Soph was 25; René was 60. EDS explained symptoms they'd both been experiencing for decades, including waking up with jaw or shoulder dislocations and having chronic pain.The two talk with Anita about how their diagnoses began a new chapter of their lives, including the decision to move in together last summer.Meet the guests:- Soph Myers-Kelley is a medical librarian at East Carolina University- René Myers is Soph's mom and a retired educatorRead the transcript | Review the podcast on your preferred platformFollow Embodied on Instagram Leave a message for EmbodiedPlease note: This episode originally published February 20, 2025.

You can listen wherever you get your podcasts or check out the fully edited transcript of our interview at the bottom of this post.In this episode of The Peaceful Parenting Podcast, I interview Jessica Slice, a disability activist and the author of Unfit Parent, a Disabled Mother Challenges an Inaccessible World. We discuss the effect of Jessica's disability on her life and parenting, and what non-disabled parents can learn from her about parenting.Know someone who might appreciate this episode? Share it with them!

This week on Not Your Granny's Quilt Show, my guest is Cole Whitaker of Cole's Quilts. Cole is an educator at Bellevue College in Washington, a quilt designer, and a custom longarmer whose work is as thoughtful as it is stunning.Cole learned to sew at the age of five from his grandmother, planting a creative seed that stayed with him throughout his life. After high school, he channeled that creativity into the world of cosmetology, spending twenty years teaching and mentoring students. Over time, physical limitations led Cole to step away and seek answers, eventually receiving diagnoses of Ehlers Danlos Syndrome and autism. Leaning into his love of learning, Cole earned a Master of Science degree in Psychology and found a calling in supporting neurodivergent students in higher education.Throughout all of this, quilting remained a constant. Cole did not feel at home in traditional piecing and chose instead to trust his skills and pursue his own creative vision. That leap paid off in a big way. His quilt earned Best of Show at the International Quilt Festival in Long Beach, traveled to Houston, and later won second place for Piecing at QuiltCon. The experience was life changing and showed Cole that he could thrive in education while also creating quilts that deeply resonate with others.Today, Cole balances teaching with quilting. He designs quilt patterns, sells kits, hosts sew alongs, and provides custom longarm services. His love for the quilting community shines through in everything he does. Visit www.colesquilts.comto explore Cole's work and learn more about Cole's Quilts Academy. This is a powerful and inspiring conversation you will not want to miss.Want to see more? You can find it here: Find Podcast Merch here! nygqs.printify.me Instagram: https://www.instagram.com/notyourgrannysquiltshow https://www.instagram.com/sweetpeadesigncompany YouTube: https://youtube.com/@notyourgrannysquiltshow Get episodes ad free at Patreon: patreon.com/notyourgrannysquiltshow Want to be on the show? Send us a message

What happens to a relationship when chronic illness enters the picture?For many women in midlife, a diagnosis doesn't just affect the body, it reshapes roles, routines, identity, intimacy, and the emotional fabric of our closest relationships. And without the right support, even the strongest partnerships can quietly shift from connection to survival mode.In this episode of Message in the Middle, I'm joined by Lisa Gray, LMFT, a licensed marriage and family therapist who specializes in high-conflict couples and couples navigating chronic illness and pain. After spending a decade as an air traffic controller and peer debriefing counselor, Lisa transitioned into the mental health field and in 2009, her own diagnosis of Ehlers-Danlos Syndrome deepened and transformed her work in a powerful way.Lisa brings both professional expertise and lived experience to this conversation, along with a hopeful, grounded belief that relationships can grow stronger even in the middle of uncertainty and change. We talk about how chronic illness impacts partnership dynamics, communication, intimacy, identity, and how couples can move beyond survival toward true connection.We explore:How a chronic illness diagnosis reshapes relationship dynamicsCommunicating needs without guilt or fear of being a burdenAvoiding the caregiver–patient trap while staying supportiveNavigating changing roles and identities without resentmentRebuilding intimacy and emotional closenessRelationship NegotiationsWhat it really means to thrive, not just survive, as a coupleLisa is the author of Thriving in a Relationship When You Have Chronic Illness: Navigate Challenges and Keep Your Relationship Strong Using Acceptance and Commitment Therapy and shares practical insight, compassion, and hope throughout this conversation.If you're in a season of rediscovery, wanting to feel more rooted, more connected, and more like yourself again, this episode is for you.Connect with Lisa:Instagram - @lisagraymft and @therapybooknookPractice website - www.lisagraymft.comAuthor website - https://www.lisagrayauthor.com Connect with Marianne: Website: Message In The Middle with Marianne Message In the Middle Facebook Group: https://www.facebook.com/groups/422430469323847/ YouTube: https://www.youtube.com/@MessageInTheMiddle/playlists LinkedIn: https://www.linkedin.com/in/marianne-demello-smith-678b9966 Email: Contact | Message In The Middle with Marianne Subscribe to Message In the Middle: Apple Podcasts Spotify YouTube Leave Us a Review: If you enjoyed today's episode, please leave a review and share your favorite takeaway. Your feedback helps us reach more listeners and bring you even more valuable content.Keep the conversation going - Join us for more insightful conversations in the Message in the Middle Private Facebook Community & subscribe to Message in th...

What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care. The conversation explores the power of integrative, multidisciplinary care, the consequences of fragmented systems, and why early recognition, especially in pediatric patients, can profoundly change lifelong outcomes. Dr. Stephens and Dr. Knight discuss what patients can expect when seeking care at UVA, how research and clinical care are being built together, and why clinician education is essential to closing long-standing gaps in EDS care. The episode also features a major announcement: a new collaboration between Bendy Bodies and the UVA EDS Center, uniting global patient education with academic medicine to help reshape how connective tissue disorders are understood, taught, and treated worldwide. For anyone searching for what meaningful progress in EDS care could look like, this conversation offers a glimpse of what's possible. Takeaways: EDS care is most effective when it's coordinated, not scattered across disconnected specialties. Early diagnosis, particularly in children, can prevent years of physical and emotional harm. An “EDS home” model helps reduce gaslighting, burnout, and fragmented care. Academic medicine is beginning to catch up, creating space for evidence-informed, compassionate treatment. Education itself is a form of care, benefiting both patients and clinicians navigating complex conditions. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care. The conversation explores the power of integrative, multidisciplinary care, the consequences of fragmented systems, and why early recognition, especially in pediatric patients, can profoundly change lifelong outcomes. Dr. Stephens and Dr. Knight discuss what patients can expect when seeking care at UVA, how research and clinical care are being built together, and why clinician education is essential to closing long-standing gaps in EDS care. The episode also features a major announcement: a new collaboration between Bendy Bodies and the UVA EDS Center, uniting global patient education with academic medicine to help reshape how connective tissue disorders are understood, taught, and treated worldwide. For anyone searching for what meaningful progress in EDS care could look like, this conversation offers a glimpse of what's possible. Takeaways: EDS care is most effective when it's coordinated, not scattered across disconnected specialties. Early diagnosis, particularly in children, can prevent years of physical and emotional harm. An “EDS home” model helps reduce gaslighting, burnout, and fragmented care. Academic medicine is beginning to catch up, creating space for evidence-informed, compassionate treatment. Education itself is a form of care, benefiting both patients and clinicians navigating complex conditions. Find the episode transcript here. Want to learn more about the UVA EDS Center? For Appointments and Questions: RUVAEDSCenter@uvahealth.org UVA EDS: https://www.uvahealth.com/healthy-practice/advancing-care-through-ehlers-danlos-clinic UVA EDS FAQ: https://www.uvahealth.com/support/eds/faq UVA Pediatric Integrative Medicine: https://childrens.uvahealth.com/specialties/integrative-health Want more Dr. Dacre Knight? https://x.com/knidac Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Do you live with a chronic illness? In this episode, I talk with Nadine Pinede about softening into compassion and:  • Adjusting to a diagnosis of chronic illness as a highly sensitive person  • Listening to the body's signals with curiosity instead of frustration  • Learning to pace yourself and find community to live more sustainably • Finding the wisdom and resilience in health challenges  Nadine Pinede is the daughter of Haitian exiles, an award-winning author and poet, and a mindful self-compassion guide whose work explores healing and belonging through story and nature. A Rhodes Scholar and lifelong creative, she teaches others how to reconnect with the natural world as founder of “Coming to Our Senses” retreat in Arles, which was inspired by her recent diagnosis of Ehlers-Danlos Syndrome. Her debut novel When the Mapou Sings was named an Américas Award Honor Book. Her forthcoming publications are the anthology Earth is a Living Thing: Black Poets and the Natural World, Uprooted: A Journey in Poems, and Soundwalker: A True Story of Making Music with Nature. Keep in touch with Nadine: • Website: https://nadinepinede.com/  • Instagram: https://www.instagram.com/nadinepinede  • LinkedIn: https://www.linkedin.com/in/nadinepinede  Resources Mentioned: • Coming to Our Senses Retreat: https://www.comingtooursensesretreat.com • When the Mapou Sings by Nadine Pinede: https://bookshop.org/a/63892/9781536235661  • Uprooted: A Journey in Poems: https://www.terranovapress.com/books/uprooted   • Self-Compassion Break: https://self-compassion.org/practices/general-self-compassion-break-2  • EDS Society: https://www.ehlers-danlos.com  Thanks for listening! You can read the full show notes and sign up for my email list to get new episode announcements and other resources at: https://www.sensitivestories.comYou can also follow "SensitiveStrengths" for behind-the-scenes content plus more educational and inspirational HSP resources: Instagram: https://www.instagram.com/sensitivestrengths TikTok: https://www.tiktok.com/@sensitivestrengths Youtube: https://www.youtube.com/@sensitivestrengths And for more support, attend a Sensitive Sessions monthly workshop: https://www.sensitivesessions.com. Use code PODCAST for 25% off. If you have a moment, please rate and review the podcast, it helps Sensitive Stories reach more HSPs! This episode is for educational purposes only and is not intended as a substitute for treatment with a mental health or medical professional. Some links are affiliate links. You are under no obligation to purchase any book, product or service. I am not responsible for the quality or satisfaction of any purchase.

Send us a textDr. Akilah Cadet is all the hyphenates: CEO of Change Cadet (creating meaningful change behind some of the biggest brands you use everyday), leader, speaker, creative director, producer, writer (White Supremacy is all Around: Notes from a Black Disabled Woman in a White World), co-owner of the Roots and Soul soccer teams, and podcast host of Humane Rights, to name a few.We sit down virtually to talk the magic of Oakland, the importance of harmony over balance, suffering from Ehlers-Danlos Syndrome, how she became a sports team owner, and why it is more important than ever to support BIPOC and marginalized voices and businesses.Buy Akilah's book White Supremacy is all Around: Notes from a Black Disabled Woman in a White WorldListen to Humane RightsFollow Dr. Akilah Cadet on IGSupport the showThanks for listening and for your support! We couldn't have won Best of the Bay Best Podcast in 2022 , 2023 , and 2024 without you! -- Fight fascism. Shop small. Use cash. Fuck ice. -- Support Bitch Talk here! Subscribe to our channel on YouTube for behind the scenes footage! Rate and review us wherever you listen to podcasts! Visit our website! www.bitchtalkpodcast.com Follow us on Instagram, Threads, and Substack Listen every Monday at 7 am on BFF.FM

In this episode look at some rarer diagnoses, how they come to light and how they can be hard to live with and diagnose.Links: Pyrrole Disorder (not recognised in conventional medicine): https://www.healthline.com/health/pyrrole-disorderAcademic analysis of pyrroles (deep dive): https://academic.oup.com/labmed/article/55/3/334/7271490Patent foramen ovale: https://www.mayoclinic.org/diseases-conditions/patent-foramen-ovale/symptoms-causes/syc-20353487Migraines and PFO: https://www.migrainedisorders.org/diving-into-the-connection-between-migraine-and-patent-foramen-ovale/Ehlers-Danlos Syndrome: https://my.clevelandclinic.org/health/diseases/17813-ehlers-danlos-syndromeSave your life in slow motion and those of others by subscribing now and sharing. Thank you for listening and for your support. It means a lot to me. Hosted on Acast. See acast.com/privacy for more information.

In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when everything looks “normal,” why convergence problems and visual fatigue are so common, and how conditions like POTS, mast cell activation, Chiari malformation, and cervical instability quietly affect how we see. They also talk about dry eye, visual snow, glare sensitivity, elevated intracranial pressure without papilledema, and why so many EDS patients are sent down expensive treatment paths that may not actually help. This conversation is part science, part myth-busting, and part reality check for anyone who's been told their symptoms don't make sense. If you've ever felt dismissed, confused, or overwhelmed by eye and vision issues in connective tissue disorders, this one's for you. Takeaways: Normal eye exams don't mean your vision problem isn't real, especially for people with EDS. Many vision symptoms in EDS are collateral damage, not primary eye disease. Convergence issues are often blamed, but fatigue, cognition, and neck instability may be the real drivers. Dry eye in EDS is more complex than “use drops”, especially with mast cell involvement. The neck may be the missing piece in vision, brain fog, headaches, and reading difficulty. Find the episode transcript here. Want more Dr. Eric Singman? https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when everything looks “normal,” why convergence problems and visual fatigue are so common, and how conditions like POTS, mast cell activation, Chiari malformation, and cervical instability quietly affect how we see. They also talk about dry eye, visual snow, glare sensitivity, elevated intracranial pressure without papilledema, and why so many EDS patients are sent down expensive treatment paths that may not actually help. This conversation is part science, part myth-busting, and part reality check for anyone who's been told their symptoms don't make sense. If you've ever felt dismissed, confused, or overwhelmed by eye and vision issues in connective tissue disorders, this one's for you. Takeaways: Normal eye exams don't mean your vision problem isn't real, especially for people with EDS. Many vision symptoms in EDS are collateral damage, not primary eye disease. Convergence issues are often blamed, but fatigue, cognition, and neck instability may be the real drivers. Dry eye in EDS is more complex than “use drops”, especially with mast cell involvement. The neck may be the missing piece in vision, brain fog, headaches, and reading difficulty. Find the episode transcript here. Want more Dr. Eric Singman? https://www.umms.org/find-a-doctor/profiles/dr-eric-lowell-singman-md-1881654804 Want more Dr. Linda Bluestein, MD? Website: https://www.hypermobilitymd.com/ YouTube: https://www.youtube.com/@bendybodiespodcast Instagram: ⁠⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠⁠ X: ⁠⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠⁠ LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠⁠ Newsletter: ⁠⁠⁠⁠https://hypermobilitymd.substack.com/ Shop my Amazon store ⁠⁠⁠ https://www.amazon.com/shop/hypermobilitymd Dr. Bluestein's Recommended Herbs, Supplements and Care Necessities: https://us.fullscript.com/welcome/hypermobilitymd/store-start Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Theo Newbold featured in a 2022 careers article about sizeism in science which discussed some accommodations that could make a difference in the workplace. Some follow-up comments on the discussion platform Reddit questioned whether Newbold and other interviewees in the article were suited to a career in academia.Newbold, a PhD student in plant pathology and diversity, equity and inclusion advocate at Pennsylvania State University in University Park, says the feedback made her feel “as someone who doesn't want to be perceived as the complaining fat person.”They are joined by Katharine Hubert, who was diagnosed by Ehlers Danlos Syndrome, a connective tissue disorder, shortly after starting a PhD at the University of Wisconsin Madison in 2019. The two researchers discuss some of the workplace accommodations and attitudinal changes that could make academia a more welcoming environment.This is the third episode of Off Limits, a podcast series exploring topics that are often perceived as taboo in the workplace.Previous episodes feature activist academics who join campus protests and civil disobedience activities. Future episodes will include the experiences of religious scientists at work, and bereavement. Hosted on Acast. See acast.com/privacy for more information.

When Patricia Weltin's daughters were diagnosed with Ehlers-Danlos Syndrome after years of uncertainty, she turned her frustration into a global movement. In this episode of Sounds of Science, Patricia shares the story behind Beyond the Diagnosis, a powerful art and advocacy initiative that uses portraiture to humanize rare diseases and inspire empathy in medical professionals, students, and communities around the world. From medical schools to courthouses and even Parisian galleries, the traveling exhibit is reshaping how we see children with rare diseases—not as diagnoses, but as vibrant individuals with stories worth telling. Tune in to hear how Patricia's mission is bridging the gap between science and compassion, and how you can help carry it forward.Show NotesFrom Mystery to Medicine: The Science Behind a Mother's Search | PodcastTaking a Customized and Collaborative Approach to Therapeutic Development | PodcastRare Disease Research for Drug Development | Charles RiverRare Disease | Charles RiverDiscovery | Charles RiverBeyond The Diagnosis

Why You Should Listen:  In this episode, you will discover how addressing parasites and dental issues can unlock better health and why real healing is rarely an Accidental Cure. About My Guest: My guest for this episode is Dr. Simon Yu.  Simon Yu, MD combines internal medicine with integrative medicine at Prevention and Healing, Inc., in St. Louis, MO.  As an HMO regional medical director, he saw the limits of a medication-management approach to patients with complex chronic illness.  He studied integrative and biological medicine, took 300 hours of medical acupuncture training, and researched dental, fungal, and parasite problems.  He served as a medical officer in the U.S. Army Reserve for 25 years, retiring as a full colonel.  Dr. Yu lectures in the US and abroad. He offers Acupuncture Meridian Assessment (AMA) Training to help detect problems for doctors and dentists in St. Louis and in Germany.  He has an MD from the University of Missouri School of Medicine, has an MS in Immunology, is certified by the American Board of Internal Medicine, a member of American College of Physicians, and is on the advisory board of the International College of Integrative Medicine.  Key Takeaways: Where does Artificial Intelligence fit in addressing complex, chronic illnesses? What are the more common patterns of meridian dysregulation observed? How are most parasites acquired? Are parasites always bad for the body? What are the more common medications used to address parasites? Does mold in the external environment impact parasite treatment or dental interventions? Are all parasites that impact health physical? How is the treatment of fungal issues approached? Should patients test their home for mold? What types of dental issues are most commonly impacting patients? How does testing for the DNA of oral pathogens inform treatment? What long-term oral hygiene strategies may be helpful? Are implants appropriate after an extraction? How has treating complex patients changed with COVID? Is spike protein detoxification now part of the healing approach? Do EMFs negatively impact health? Are conditions such as Ehlers-Danlos Syndrome and Morgellons approached differently? What are some top detoxification strategies? Is "autoimmunity" the result of chronic infections? What is the best approach for optimizing the microbiome? What are some of the emerging treatment interventions from SOZO Brain Clinic? Connect With My Guest:  PreventionAndHealing.com Related Resources: Book - Accidental Cure 3: AI vs. Ancient Intelligence Interview Date: January 7, 2026 Transcript: To review a transcript of this show, visit https://BetterHealthGuy.com/Episode227. Support the Show: To support the show and Buy Me a Coffee, visit https://betterhealthguy.link/BuyMeACoffee. Additional Information: To learn more, visit https://BetterHealthGuy.com. Follow Me on Social Media: Facebook - https://facebook.com/betterhealthguy Instagram - https://instagram.com/betterhealthguy X - https://twitter.com/betterhealthguy TikTok - https://tiktok.com/@betterhealthguy Disclaimer:  The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority. 

It's a new year and we are finding out about the hopes and aspirations of three young disabled people around the UK. At 17, Niamdh is School Captain at her college in Scotland and hoping for a career in politics. She took her council to court not too long ago and won a case which now ensures she gets adequate BSL support in the classroom - since then, she's been flying. Seren has just started a new job in social media and is loving it. She has 750k of her own followers. But being blind means it hasn't always been easy to get companies to take her seriously when she applies for jobs. Seren gives some thoughts on when you should declare your disability on a job application and how she has landed a job in a supportive company. And Izemrasen is 27 and working as a personal trainer in a gym. He's adapted his aspirations and career goals over the years due to creeping Ehlers Danlos Syndrome - a connective tissue disorder. He has become a regular wheelchair user and gives some top tips on how to find your voice and ask for the support you need. Plus, BBC journalist Kit Taylor gives analysis on the bigger picture for young people. Presented by Emma Tracey Sound mixed by Dave O'Neill Produced by Alex Collins Series producer is Beth Rose Editor is Damon Rose

Tim Kaufman's journey is nothing short of remarkable. Diagnosed with Ehlers-Danlos Syndrome—an inherited condition affecting collagen that impacts the heart, joints, and tendons—Tim found himself in a dark place by 2011, struggling with food, alcohol, and painkiller addiction, compounded by morbid obesity. His inspiring recovery through a plant-based diet led him to complete the Lake Placid Ironman in 2024 while sustaining an incredible 200 lb weight loss. Tim shares his transformative story in his book Escape. Learn more about his journey at fatmanrants.com.

Today we are featuring two articles that relate to moving genetics into mainstream healthcare. In our first segment, we discuss polygenic risk scores and the transition from research to clinical use. Our second segment focuses on hypermobility Ehlers Danlos Syndrome and the triaging of clinical referrals.    Segment 1: Readiness and leadership for the implementation of polygenic risk scores: Genetic healthcare providers' perspectives in the hereditary cancer context   Dr Rebecca Purvis is a post-doctoral researcher, genetic counsellor, and university lecturer and coordinator at The Peter MacCallum Cancer Centre and The University of Melbourne, Melbourne, Australia. Dr Purvis focuses on health services delivery, using implementation science to design and evaluate interventions in clinical genomics, risk assessment, and cancer prevention.   In this segment we discuss: - Why leadership and organizational readiness are critical to successful clinical implementation of polygenic risk scores (PRS). - How genetic counselors' communication skills position them as key leaders as PRS moves from research into practice. - Readiness factors healthcare systems should assess, including culture, resources, and implementation infrastructure. - Equity, standardization, and implementation science as essential tools for responsible and sustainable PRS adoption. Segment 2: A qualitative investigation of Ehlers-Danlos syndrome genetics triage   Kaycee Carbone is  a genetic counselor at Boston Children's Hospital in the Division of Genetics and Genomics as well as the Vascular Anomalies Center. Her clinical interests include connective tissue disorders, overgrowth conditions, and somatic and germline vascular anomaly conditions. She completed my M.S. in Genetic Counseling at the MGH Institute of Health Professions in 2023. The work she discusses here, "A qualitative investigation of Ehlers-Danlos syndrome genetics triage," was completed as part of a requirement for this graduate program.    In this segment we discuss: - Why genetics clinics vary widely in how they triage referrals for hypermobile Ehlers-Danlos syndrome (hEDS). - How rising awareness of hEDS has increased referral volume without clear guidelines for diagnosis and care. - The ethical and emotional challenges genetic counselors face when declining hEDS referrals. - The need for national guidelines and clearer care pathways to improve access and coordination for EDS patients. Would you like to nominate a JoGC article to be featured in the show? If so, please fill out this nomination submission form here. Multiple entries are encouraged including articles where you, your colleagues, or your friends are authors.   Stay tuned for the next new episode of DNA Dialogues! In the meantime, listen to all our episodes Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Dialogues”.    For more information about this episode visit dnadialogues.podbean.com, where you can also stream all episodes of the show. Check out the Journal of Genetic Counseling here for articles featured in this episode and others.    Any questions, episode ideas, guest pitches, or comments can be sent into DNADialoguesPodcast@gmail.com.    DNA Dialogues' team includes Jehannine Austin, Naomi Wagner, Khalida Liaquat, Kate Wilson and DNA Today's Kira Dineen. Our logo was designed by Ashlyn Enokian. Our current intern is Stephanie Schofield.

Dr. Mitch Shulman can be heard every weekday morning at 7:50 on The Andrew Carter Morning Show.

Sydney Elliott is FRANK. She went from being in a band to going solo a couple years ago and she tells us about how she made that decision, being diagnosed with Ehlers-Danlos Syndrome, and her "zoo" of animals that she and her husband have rescued. Plus, we talk about her new song "Sick Of Yourself", having the support of your family, and her favorite tattoo! See omnystudio.com/listener for privacy information.

In this week's episode of Full of Beans, I'm joined by Ailidh Musgrave, an eating disorder campaigner, whose story spans years of misdiagnosis, medical trauma, and being repeatedly told she was “too complex” to treat.Ailidh was diagnosed with anorexia at 13, and spent her teens and early adulthood in a cycle of nine inpatient admissions, severe depression, self-harm, sepsis, multiple surgeries and even temporary paralysis. Alongside her eating disorder, she lives with autism and Ehlers-Danlos Syndrome, which went misunderstood or dismissed for years.Now, two years out of hospital, back in education and moving in with her partner, Ailidh is using her experience to push for safer, more compassionate care and to challenge the Assisted Dying Bill through the #DyingForTreatment campaign.In this conversation, Ailidh shares what it's like to be rejected from over 20 hospitals, labelled “too complex”, and still find her way back to life – and why she believes no one with anorexia should ever be put on a palliative pathway.This week, we discuss:Misdiagnosis, gastrointestinal symptoms and the long road to an EDS diagnosisThe dramatic shift from CAMHS to adult servicesHow autism and neurodivergence were misunderstood in eating disorder treatmentBeing turned away by over 20 hospitals and the “postcode lottery” of careWhy Ailidh is speaking out against the Assisted Dying Bill and the risk for people with anorexiaThe power of time, trust and being truly listened to in recoveryHow her mum held onto hope when she couldn't – and why hope is the most important thing clinicians can offerLived experience and family perspectives are essential if we want eating disorder care to be truly compassionate, person-centred and safe. Ailidh's story is a powerful reminder that no one is beyond help, no matter how long or how complex their journey has been.Timestamps:01:20 – Ailidh's Experience of Inpatient Admissions05:50 – CAMHS vs Adult Inpatient Care09:40 – Autism and Misunderstanding14:10 – EDS Diagnosis and Medical Trauma18:30 – 9 Admissions in 13 Years24:20 – Community Aftercare and Service Gaps29:00 – Concerns About The Assisted Dying Bill36:40 – Finding Internal Motivation For Recovery43:10 – The Impact On FamilyResources & LinksConnect with Ailidh on LinkedInConnect with Us:Subscribe to the Full of Beans Podcast hereFollow Full of Beans on Instagram hereCheck out our website hereListen on YOUTUBE here⚠️ Trigger Warning: Mentions of eating disorders. Please take care when listening.If you enjoyed this episode, don't forget to subscribe, rate, and share the podcast to help us spread awareness.Sending positive beans your way, Han

In this week's episode I sat down with Hillary Wool. Hillary is a disabled business strategist, model, and advocate reshaping how we think about ambition, style, and wellness for chronically ill and disabled women. As a partner at Boston Consulting Group, she led global research on the disabled workforce experience, which was covered in outlets including The New York Times and Forbes. She has also modeled in national campaigns with Target and Marshalls. Online, she shares her disability journey living with ankylosing spondylitis and Ehlers-Danlos Syndrome, including intentional style and adaptive fitness. We discuss being a disabled woman at the intersection of style and advocacy, good girl grief, navigating between what's right with our bodies and what's right for our careers and much, much more.All proceeds from purchasing this episode on my Patreon will be split between City Harvest and Food Bank For NYC. Join The Patreon: ⁠HERE⁠Follow Hillary: Instagram: @hilla_rose TikTok: @hilla_roseFollow Me: Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠@jill_ilana⁠⁠⁠⁠⁠⁠⁠⁠⁠ , ⁠⁠⁠⁠⁠⁠⁠⁠⁠@alwayslookingup.podcast⁠⁠⁠⁠⁠⁠⁠⁠⁠ TikTok: ⁠⁠⁠⁠⁠⁠⁠⁠⁠@jillian_ilana⁠⁠⁠⁠⁠⁠⁠⁠⁠ Website: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.jillianilana.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Email: ⁠⁠⁠⁠⁠⁠⁠⁠⁠alwayslookingup227@gmail.com⁠⁠⁠⁠⁠⁠⁠⁠⁠Read With Me:⁠⁠⁠⁠⁠⁠⁠⁠⁠Goodreads⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠The StoryGraph⁠⁠⁠⁠⁠⁠⁠⁠⁠All episodes are edited and produced by Ben Curwin.Support Those Impacted By The Cutting Of SNAP Benefits:Feeding America: ⁠⁠https://www.feedingamerica.org⁠⁠World Central Kitchen: ⁠⁠https://wck.org⁠⁠No Kid Hungry: ⁠⁠https://www.nokidhungry.org⁠⁠List Of NYC Food Pantries: ⁠⁠https://www.nyc.gov/site/dycd/services/food_pantries.page⁠⁠Support Immigrant Communities (all links came from ⁠⁠⁠⁠⁠⁠⁠⁠⁠@chnge⁠⁠⁠⁠⁠⁠⁠⁠⁠):The Coalition for Humane Immigrant Rights of Los Angeles (⁠⁠⁠⁠⁠⁠⁠⁠⁠@chirla_org⁠⁠⁠⁠⁠⁠⁠⁠⁠): ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.chirla.org/donatenow/⁠⁠⁠⁠⁠⁠⁠⁠⁠Immigrant Defenders Law Center (⁠⁠⁠⁠⁠⁠⁠⁠⁠@immdef_lawcenter⁠⁠⁠⁠⁠⁠⁠⁠⁠): ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.immdef.org⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Inland Coalition 4 Imm Justice (⁠⁠⁠⁠⁠⁠⁠⁠⁠@ic4ij⁠⁠⁠⁠⁠⁠⁠⁠⁠): ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://secure.actblue.com/donate/jornaleros⁠⁠⁠⁠⁠⁠⁠⁠⁠Relief For Disabled People Impacted By The Los Angeles Fires:Richard Devylder Disaster Relief Fund: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://disabilitydisasteraccess.org/rd-relief-fund/⁠⁠⁠⁠⁠⁠⁠⁠⁠United Spinal Disaster Relief Grant: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://unitedspinal.org/disaster-relief-grant/⁠⁠⁠⁠⁠⁠⁠⁠⁠Inevitable Foundation Emergency Relief Fund: ⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.inevitable.foundation/erf⁠

Jaz races in the Hanse 303 and RS Venture Connect SCS classes, and sails an Albin Vega 27, in which she recently became the first wheelchair user to sail solo and unassisted around Great Britain and Ireland, and doing so confronted and overcame great difficulties. She lives with Ehlers-Danlos Syndrome,  which means her connective tissue does not function properly, and this also effects her internal organs, and her condition is terminal. Regardless, Jaz is now preparing to compete in the 2026 Worldstar, in which she will attempt to sail solo nonstop unassisted around the world. We talk about her introduction to sailing on a cold wet day in the Cornish Harbor, her obsession with the ocean, growing up with a difficult home situation, being homeless as a child and living on the street, then sleeping in the boats at the sailing club, dealing with fear, living on a shorter time line, finding a new family, comparing the Albin Vega to performance boats, heaving-to, sleeping while solo, hallucinations, breakages, preventers, Project Fear, how the circumnavigation of Britain and Ireland changed her, the extents of her mobility, foul-weather gear, beautiful moments, wildlife, running aground 50 nm from the finish and kedging off, the WorldStar 2026, and more. Photos and links are on the podcast shownotes page Support the show through Patreon

Send us a textIn this episode of The Gut Health Dialogues, Alyssa Simpson sits down with Dr. Diana Driscoll—optometrist, researcher, and author of The Driscoll Theory—to uncover connections between gut health, vagus nerve dysfunction, chronic inflammation, and conditions like POTS, SIBO, long COVID, and Ehlers-Danlos Syndrome.Dr. Driscoll shares her journey from being incapacitated by illness to discovering root causes medicine often misses. She explains how vagus nerve dysfunction affects digestion, motility, blood flow, and brain chemistry—and why real healing goes beyond symptom management.Key topics:Why vagus nerve dysfunction is the “missing link” in gut and autonomic issuesThe role of histamine, inflammation, and oxidative stress in driving symptomsHow POTS, SIBO, EDS, and long COVID overlap through nervous system dysfunctionUpper vs. lower GI motility—and why both matter for SIBO recoveryHopeful starting points for those living with chronic illnessDr. Driscoll also shares practical strategies, including how supplements like Parasym Plus® and NAC Max (links below) can support vagus nerve function, brain chemistry, and overall healing.This episode is a must-listen if you've been searching for answers to gut issues, unexplained fatigue, POTS, or connective tissue disorders and need validation that you're not “crazy” or alone.Resources Mentioned:Parasym Plus® (use code GUTHEALTH10 for 10% off)Follow Diana on InstagramDr. Diana Driscoll's WebsitePOTS Care ClinicPOTS Rebels PatreonThe Driscoll Theory BookYouTube ChannelGuest Bio:Dr. Diana Driscoll is an optometrist, researcher, and founder of POTS Care and TJ Nutrition. Known for her pioneering work on the vagus nerve and autonomic dysfunction, she authored The Driscoll Theory and developed targeted supplements like Parasym Plus®. Her work bridges the gap between science and patient care, offering hope to those with POTS, SIBO, EDS, long COVID, and chronic inflammatory conditions.Find Alyssa here: Instagram, LinkedIn, Facebook, Pinterest   DM “GUT CHECK” on Alyssa's Instagram for a personalized quiz and free meal plans & resources to kickstart your gut healing journey.Check out Alyssa's FREE Masterclass “Why your gut still isn't better. -If you're enduring uncomfortable, painful, and embarrassing GI symptoms and feel like you've tried everything, Alyssa uses a specialized approach to help people who've gone from doctor to doctor finally find relief. Book your 15-minute strategy call for FREE here.Join Alyssa's FREE Facebook Community here.The Gut Health Dialogues drops new episodes weekly to help you uncov

Researchers Evaluate Oral Health Quality of Life in Women with Ehlers-Danlos Syndrome and Temporomandibular DisordersBy Today's RDH ResearchOriginal article published on Today's RDH: https://www.todaysrdh.com/researchers-evaluate-oral-health-quality-of-life-in-women-with-ehlers-danlos-syndrome-and-temporomandibular-disorders/Need CE? Start earning CE credits today at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://rdh.tv/ce⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Get daily dental hygiene articles at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.todaysrdh.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Follow Today's RDH on Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.facebook.com/TodaysRDH/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Follow Kara RDH on Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.facebook.com/DentalHygieneKaraRDH/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Follow Kara RDH on Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://www.instagram.com/kara_rdh/

Link to the full podcast:https://youtu.be/JGHNMcDp4Bw?si=0Ak13eIWEO0fAdr3 Description:In this heartfelt account, Andy Ferguson shares his miraculous healing from Ehlers-Danlos Syndrome at a youth camp and reflects on how it shaped his lifelong faith. He contrasts that instant miracle with his ongoing battle with Addison's disease, emphasizing how both experiences deepened his trust in God. Despite physical weakness, Andy testifies to supernatural peace and divine provision. He encourages pastors and leaders facing illness or burnout to hold fast to their calling, reminding them that God equips and sustains those He chooses—even in the valley. His story is one of enduring faith, healing, and unwavering hope.  Purchase The Christian Leader Blueprint book today: https://www.ryanfranklin.org/blueprintbook Download The Christian Leader Blueprint – Short Guide (Free): https://www.ryanfranklin.org/blueprint Take the Christian Leader™ Self-Assessment (Free):https://www.ryanfranklin.org/clselfassessment Learn more about Christian Leader™ Community Coaching:https://www.ryanfranklin.org/communitycoaching YouTube and Audio Podcast: https://www.ryanfranklin.org/leaderpodcast Connect with Ryan: Email: info@ryanfranklin.orgFacebook: https://www.facebook.com/rnfranklin/Instagram: https://www.instagram.com/rnfranklin/Linkedin: https://www.linkedin.com/in/rnfranklin/ Audio mastering by Apostolic Audio: https://www.apostolic-audio.com  #leadership, #thoughtleadership, #ministry, #pastor, #pastors, #churches, #leadershiptraining, #churchleader, #churchleaders, #influence, #leadershipdevelopment, #coaching, #executivecoach, #leadershipcoaching, #productivitycoach, #productivity, #growthmindset, #theproductiveleader, #ChristianLeader, #ChristianLeadership, #LeadershipPodcast, #FaithAndBusiness, #PodcastInterview, #ChristianEntrepreneurship, #KingdomImpact, #PodcastInspiration, #LeadershipJourney, #PurposeDriven, #ChristianPodcast, #LeadershipEssentials, #LeadershipFundamentalsSend us a text

The challenges and triumphs of living with a rare disease. Leslie Baldwin shares her personal journey with Common Variable Immune Deficiency and Ehlers-Danlos Syndrome. You'll hear what fueled her passion for advocacy and the creation of Michigan Rare (MI-RARE). Together, they discuss the power of community, the importance of patient empowerment, and how collaboration with policymakers can expand access and resources for those living with rare conditions.TakeawaysAdvocacy is essential for the rare disease community.Building connections provides vital support.Patients should feel empowered to speak up for their health.Collaboration with policymakers can drive positive change.Storytelling inspires and unites the community.Engagement raises awareness and strengthens support networks.Advocacy days introduce rare disease issues to lawmakers.Recognizing unique challenges leads to better understanding.Coalitions amplify the collective voice of rare disease advocates.Empowering patients and caregivers enhances quality of life.About Leslie BaldwinA Michigan native now living in Holt, Leslie is a rare disease advocate. She co-founding MI-RARE, a foundation uniting rare disease voices across Michigan, alongside Kayla Miller, Kathi Luis, Kortney Lee, Chris Draper, and Laura Bonnell.Her advocacy experience is wide-ranging: she has worked with Autism Speaks, National Organization for Rare Disorders (NORD), The EveryLife Foundation, NIH, CMS, and the FDA. As Director of Strategic Advancement with Texas Rare Alliance, she helped pass key legislation that earned her national recognition as a finalist for the 2023 Rare Voice Award in State Advocacy.On September 30th, MI-RARE will host the Michigan Rare Disease State Advocacy Day at the Capitol, a powerful opportunity for patients, families, and caregivers to share their stories with lawmakers and demonstrate that while each condition may be rare, together we are many.To connect go to: MI-rare.org Register for Advocacy Day opens August 4th and ends September 12th, 2025.  There is a travel stipend too. Go to the MI-Rare website.To connect with Leslie Baldwin: leslie@mi-rare.org Please like, subscribe, and comment on our podcasts!Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Watch our podcasts on YouTube: https://www.youtube.com/@laurabonnell1136/featuredThanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn't), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (craniocervical instability) is a concern, and what truly drives gum disease vs “EDS-specific” issues. We also address periodontal EDS (a rare subtype), toothpaste choices (fluoride vs hydroxyapatite vs chelators), and the surprisingly powerful habit of “spit, don't rinse.” Stay to the end for practical Hypermobility Hacks you can implement tonight. Takeaways Is wisdom teeth surgery happening too often… or dangerously too late? What if the biggest risk during oral surgery isn't the tooth—but how your neck is positioned? Why do some people with EDS feel every cut and drill—even after “getting numb”? Could one cheap hack—“spit, don't rinse”—protect your teeth better than $30 toothpaste? Are sharks hiding the secret to stronger enamel in your bathroom cabinet? Find the episode transcript here. References: 2012 Paper- The effects of NICE guidelines on the management of third molar teeth: https://pubmed.ncbi.nlm.nih.gov/22955790/ 2020 RCS Guidelines on Third Molars: https://www.rcseng.ac.uk/-/media/files/rcs/fds/guidelines/3rd-molar-guidelines--april-2021-v2.pdf AAOMS Guidelines on Third Molar Management: https://aaoms.org/wp-content/uploads/2024/03/management_third_molar_white_paper.pdf Bendy Bodies Podcast on Preparing for Surgery with Linda Bluestein, MD: https://www.bendybodiespodcast.com/58-preparing-for-surgery-with-linda-bluestein-md/ GIRFT RCS TMD Document: Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf Dr. Mike Harrison's Talk on EDS Support UK: https://www.ehlers-danlos.org/information/webinar-with-dr-mike-harrison-on-why-dental-issues-occur-with-connective-tissue-disorder/ EDS and Dental Issues Talk by Ines and Ulrike: https://www.youtube.com/watch?v=Lsf0YEeps5c&t=65s EDS Society on Periodontal EDS: https://www.ehlers-danlos.com/peds/ Austrian Conversation on pEDS (PubMed): https://pubmed.ncbi.nlm.nih.gov/28836281/ Genetics Home Reference on Ehlers-Danlos Syndrome: https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome#statistics Perioperative Care in Patients with Ehlers Danlos Syndromes (SCIRP): https://www.scirp.org/journal/paperinformation?paperid=97524 Want more Dr. Audrey Kershaw? Facebook: ⁠https://www.facebook.com/audrey.kershaw.3⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Dr. Audrey Kershaw returns to chat with Dr. Linda Bluestein and demystify wisdom tooth extraction, appliances for TMJ disorder, and everyday oral health habits for people with EDS/HSD. We cover when third molars should be removed (and when they shouldn't), why local anesthetic can fail in some patients, how to approach dental procedures when CCI (craniocervical instability) is a concern, and what truly drives gum disease vs “EDS-specific” issues. We also address periodontal EDS (a rare subtype), toothpaste choices (fluoride vs hydroxyapatite vs chelators), and the surprisingly powerful habit of “spit, don't rinse.” Stay to the end for practical Hypermobility Hacks you can implement tonight. Takeaways Is wisdom teeth surgery happening too often… or dangerously too late? What if the biggest risk during oral surgery isn't the tooth—but how your neck is positioned? Why do some people with EDS feel every cut and drill—even after “getting numb”? Could one cheap hack—“spit, don't rinse”—protect your teeth better than $30 toothpaste? Are sharks hiding the secret to stronger enamel in your bathroom cabinet? Find the episode transcript here. References: 2012 Paper- The effects of NICE guidelines on the management of third molar teeth: https://pubmed.ncbi.nlm.nih.gov/22955790/ 2020 RCS Guidelines on Third Molars: https://www.rcseng.ac.uk/-/media/files/rcs/fds/guidelines/3rd-molar-guidelines--april-2021-v2.pdf AAOMS Guidelines on Third Molar Management: https://aaoms.org/wp-content/uploads/2024/03/management_third_molar_white_paper.pdf Bendy Bodies Podcast on Preparing for Surgery with Linda Bluestein, MD: https://www.bendybodiespodcast.com/58-preparing-for-surgery-with-linda-bluestein-md/ GIRFT RCS TMD Document: Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf Dr. Mike Harrison's Talk on EDS Support UK: https://www.ehlers-danlos.org/information/webinar-with-dr-mike-harrison-on-why-dental-issues-occur-with-connective-tissue-disorder/ EDS and Dental Issues Talk by Ines and Ulrike: https://www.youtube.com/watch?v=Lsf0YEeps5c&t=65s EDS Society on Periodontal EDS: https://www.ehlers-danlos.com/peds/ Austrian Conversation on pEDS (PubMed): https://pubmed.ncbi.nlm.nih.gov/28836281/ Genetics Home Reference on Ehlers-Danlos Syndrome: https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome#statistics Perioperative Care in Patients with Ehlers Danlos Syndromes (SCIRP): https://www.scirp.org/journal/paperinformation?paperid=97524 Want more Dr. Audrey Kershaw? Facebook: ⁠https://www.facebook.com/audrey.kershaw.3⁠ Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠ To check out all of my favorite products, please click on this link: ⁠⁠https://www.hypermobilitymd.com/productswelove Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority!⁠⁠ Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about your ad choices. Visit megaphone.fm/adchoices

Struggling with POTS, MCAS, or hEDS? Join the Whealth Hypermobility Program and start your path to strength today:

What do we mean when we see the word "Trifecta" ? ​In Horse Racing you would be talking about a bet where you must pick the first, second, and third-place horses in the precise order they finish.   In skincare, "The Trifecta" can refer to a set of three essential skincare products that work together for visible results, like a cleanser, serum, and moisturizer. But in this show where we discuss healthcare conditions, "medical trifecta" refers to the three specific diseases which are often found to occur together.  For today's show that means EDS, (Ehlers Danlos Syndrome)  POTs (Postural Orthostatic Tachycardia Syndrome) & MCAS (Mast Cell Activation Syndrome) and our guest is Candace Johnson.  Candace is a mom of three girls and a chronic illness advocate. She shares her journey living with what many of us call “the trifecta”: POTS, MCAS, and Ehlers Danlos Syndrome. She also has small fiber neuropathy. Her goal is to bring awareness, especially for people still searching for answers and to remind others they're not alone in this.  ​  

In this eye-opening episode of The Neurodivergent Experience, Simon Scott is joined by hypnotherapist and breathwork practitioner Ashley Bentley to explore the hidden links between Ehlers-Danlos Syndrome (EDS), hypermobility, and neurodivergence.Ashley shares her personal journey with EDS—from chronic pain and joint dislocations to navigating misdiagnosis and medical dismissal—and how it overlaps with autism, ADHD, and sensory sensitivities. Together, Simon and Ashley discuss:The everyday challenges of living with invisible illnesses like EDSThe connection between nervous system regulation and mental healthHow Spoon Theory helps manage energy and prevent burnoutSupport strategies for those living with chronic fatigue, hypermobility, and neurodivergenceThe importance of self-advocacy, self-compassion, and adapting your lifestyleWhether you're newly diagnosed, exploring possible symptoms, or supporting a loved one, this conversation offers validation, practical tips, and a reminder that you're not alone.❤️ Support the ShowIf this episode resonated with you:✅ Follow or Subscribe to The Neurodivergent Experience⭐ Leave a quick review on Apple Podcasts or Spotify

Dr. Patrick Agnew joins me for a deep dive into paediatric podiatry and the complexities of treating connective tissue disorders like Ehlers-Danlos Syndrome. With over 30 years in practice, Dr. Agnew shares how his early mentorship under Dr. James Ganley shaped his path, and why he believes more podiatrists should embrace niche work, especially with children. “You don't need 90% of your work to be niche—15% can change your career.” Today, Dr. Agnew is on the board of the American College of Foot and Ankle Pediatrics. He continues to write, speak, and advocate for greater understanding in this often-overlooked niche. According to Patrick, pediatric podiatry is an area many practitioners fear unnecessarily; mainly because the stakes seem higher and the data is often sparse. That fear is valid. But Patrick encourages curiosity over fear. “There's no competition,” he says. In fact, many podiatrists shy away from treating children because of perceived risks, parent pressure, or financial concerns. But for Patrick, those young patients are the most rewarding part of his work. If you're looking for a speaker for an upcoming event, you can email me at tyson@podiatrylegends.com or tf@tysonfranklin.com, and we can discuss the range of topics I cover. Alternatively, you can visit my speakers page - https://www.tysonfranklin.com/speaker Don't forget to look at my UPCOMING EVENTS Do You Want A Little Business Guidance?  A podiatrist I spoke with in early 2024 earned an additional $40,000 by following my advice from a 30-minute free Zoom call.  Think about it: you have everything to gain and nothing to lose, and it's not a TRAP. I'm not out to get you; I'm here to help you.  Please follow the link below to my calendar and schedule a free 30-minute Zoom call. I guarantee that after we talk, you will have far more clarity on what is best for you, your business and your career. ONLINE CALENDAR Business Coaching I offer three coaching options: Monthly Scheduled Calls. Hourly Ad Hoc Sessions. On-Site TEAM Training Days around communication, leadership and marketing.   But let's have a chat first to see what best suits you. ONLINE CALENDAR Facebook Group: Podiatry Business Owners Club  Have you grabbed a copy of one of my books yet?  2014 – It's No Secret There's Money in Podiatry  2017 – It's No Secret There's Money in Small Business  

This week on Ditch the Labcoat, Dr. Mark Bonta sits down with Dr. Diana Driscoll, an optometrist, researcher, and internationally recognized authority on the autonomic nervous system—who also happens to be one of the rare non-MDs to join the show. After her own sudden and life-altering health collapse, Dr. Driscoll found herself deep in the world of dysautonomia—a group of disorders affecting the autonomic nervous system, responsible for all those automatic functions in our bodies we don't usually have to think about. Finding few answers from doctors, and confronted by a system that too often shuns “invisible illnesses,” Dr. Driscoll became her own medical detective, pioneering research into conditions like Postural Orthostatic Tachycardia Syndrome (POTS) and unlocking innovative approaches to treatment.In this eye-opening conversation, Dr. Driscoll and Dr. Bonta tackle the complex, often misunderstood world of autonomic dysfunction, the science behind “mystery illnesses,” and the frustrating gaps in our medical knowledge. From the lived experience of being a patient who was told “it's all in your head,” to developing new therapeutics and advocating for others, Dr. Driscoll's story is as inspiring as it is informative.If you've ever struggled with unexplained symptoms, felt dismissed by the healthcare system, or just want to understand the evolving science behind these often-invisible disorders—this episode is for you. Plug in for a candid, practical, and hope-filled discussion that challenges the boundaries of what medicine knows today and explores the frontier where suffering finally meets science.Episode HighlightsInvisible Illness Is Real — Validation for patients with unexplained symptoms is crucial; their suffering is genuine, not imagined or "all in their head."Medicine's Knowledge Blindspots — The medical establishment often lacks answers—and even language—for complex autonomic disorders like dysautonomia and POTS.Patient-Led Discovery Matters — Dr. Driscoll's personal journey from patient to researcher demonstrates the power of self-advocacy in pushing knowledge forward.Autonomic System Ignorance — Most clinicians receive minimal training about the autonomic nervous system, leading to missed diagnoses and inadequate care.One Size Doesn't Fit All — There is no single solution for autonomic dysfunction—treatments must be individualized to each patient's complex presentation.Beyond Symptom Management — Suppressing symptoms (e.g., racing heart) without understanding the root cause can worsen patient outcomes or miss vital clues.The Inflammatory Connection — Inflammation, triggered by infections or stress, can drive autonomic dysfunction—a framework for science to pursue targeted therapies.Necessity of Clinical Innovation — When guidelines and therapies don't exist, scientific curiosity and non-traditional research can inspire new approaches and hope.The Power of Lived Experience — Practitioner-patients like Dr. Driscoll bridge gaps between science, clinical care, and compassion through firsthand understanding.Hope Through Education — Educating both patients and practitioners fosters progress—there's always hope, even if answers come step by step.Episode Timestamps04:15 – Post-COVID Dysautonomia Insights 07:12 – Invisible Illnesses and Tech Misguidance 13:07 – Central Sensitization and Unexplained Symptoms 16:44 – Nicotine Patch Stimulates Vagus Nerve 20:01 – Navigating Illness and Predatory Healthcare 20:51 – Navigating Autonomic Dysfunction Treatments 26:03 – Bridging Medical Knowledge Gaps 29:38 – Idiopathic Intracranial Hypertension Insights 31:25 – Inflammation's Impact on Heart and Vision 36:07 – Chronic Illness: The Domino Effect 41:18 – Questioning Symptom-Driven Treatments 44:22 – Unseen Illness: Recognition Grows 45:26 – Advancements in Autonomic Dysfunction Treatments 49:06 – Championing Long Covid ResearchDISCLAMER >>>>>>    The Ditch Lab Coat podcast serves solely for general informational purposes and does not serve as a substitute for professional medical services such as medicine or nursing. It does not establish a doctor/patient relationship, and the use of information from the podcast or linked materials is at the user's own risk. The content does not aim to replace professional medical advice, diagnosis, or treatment, and users should promptly seek guidance from healthcare professionals for any medical conditions.   >>>>>> The expressed opinions belong solely to the hosts and guests, and they do not necessarily reflect the views or opinions of the Hospitals, Clinics, Universities, or any other organization associated with the host or guests.    Disclosures: Ditch The Lab Coat podcast is produced by (Podkind.co) and is independent of Dr. Bonta's teaching and research roles at McMaster University, Temerty Faculty of Medicine and Queens University. 

In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone's pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person's experience.  Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community. Takeaways Why pain is always real—even when labeled “non-structural” How mast cell research intersects with autism without erasing identity Why a hEDS diagnosis matters for some patients—but not for all What the upcoming 2026 hEDS criteria changes could mean for the community How listener feedback shapes the future of Bendy BodiesWant more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In the season five finale of the Bendy Bodies Podcast, Dr. Linda Bluestein reflects on powerful listener feedback and opens up important conversations about language, intent, and identity in medicine. She clarifies the purpose behind episodes on pain neuroscience and mast cells in autism, acknowledges the concerns raised, and discusses the fine line between supporting physiology and honoring identity. She also addresses concerns raised about the neuroplasticity episode, reaffirming that the intent was never to minimize anyone's pain or suggest a one‑size‑fits‑all approach. Instead, the goal was to share information that some may find empowering while honoring the reality and validity of every person's experience.  Dr. Bluestein also revisits the ongoing “Road to 2026” diagnostic criteria update for hEDS (hypermobile Ehlers-Danlos Syndrome), highlighting why labels matter for some patients and not for others. This wrap-up episode closes the season with transparency, humility, and a call for continued dialogue in the community. Takeaways Why pain is always real—even when labeled “non-structural” How mast cell research intersects with autism without erasing identity Why a hEDS diagnosis matters for some patients—but not for all What the upcoming 2026 hEDS criteria changes could mean for the community How listener feedback shapes the future of Bendy Bodies Find the episode transcipt here. Want more Dr. Linda Bluestein, MD? Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠. YouTube: ⁠⁠⁠youtube.com/@bendybodiespodcast⁠⁠⁠  Instagram: ⁠⁠⁠https://www.instagram.com/hypermobilitymd/⁠⁠⁠  Facebook: ⁠⁠⁠https://www.facebook.com/BendyBodiesPodcast⁠⁠⁠  X: ⁠⁠⁠https://twitter.com/BluesteinLinda⁠⁠⁠  LinkedIn: ⁠⁠⁠https://www.linkedin.com/in/hypermobilitymd/⁠⁠⁠  Newsletter: ⁠⁠⁠https://hypermobilitymd.substack.com/⁠⁠⁠ Shop my Amazon store ⁠⁠⁠https://www.amazon.com/shop/hypermobilitymd⁠⁠⁠ Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at ⁠⁠https://www.bendybodiespodcast.com/⁠⁠. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: ⁠⁠https://algonot.com/coupon/bendbod/⁠⁠ FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links Learn more about Human Content at ⁠⁠⁠http://www.human-content.com⁠⁠⁠ Podcast Advertising/Business Inquiries: ⁠⁠⁠sales@human-content.com⁠⁠⁠ Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

https://frequencyspecific.com Carolyn McMakin, MA, DC - contact-at-frequencyspecific.com Kim Pittis, LCSP, (PHYS), MT - info-at-fsmsports365.com 00:25 Case Study: Ehlers-Danlos Syndrome 04:44 Case Study: Cavernous Hemangioma 09:35 Case Study: Mysterious Weight Loss 10:25 Technical Difficulties and Patient Expectations 15:34 Running and Patient Care Analogies 21:39 Emotional Challenges in FSM Practice 31:13 Unexpected Osteoporosis Diagnosis 32:00 Gratitude for the FSM Community 34:16 Achilles Tendon Pain and Treatment 41:20 The Magic of Frequency 124 46:19 Exploring the Sarcomere and Connective Tissue 49:47 Fascia and Nerve Connections 54:48 Upcoming Events and Conferences **Understanding and Addressing Hypermobility** Hypermobility can often be an elusive factor, affecting conditions like anxiety and digestive difficulties. One approach is to start with physical assessments that reveal a patient's range of motion issues, such as hypermobility in the joints, which can be linked to underlying conditions like Ehlers-Danlos Syndrome. Treatment can focus on using FSM to manage symptoms by targeting body pain and anxiety through precise frequency combinations, considering the biochemical and physical aspects of the patient's issues.  **Managing Cavernous Hemangioma and Stroke Recovery** When dealing with patients recovering from strokes, especially when there are complications from conditions such as cavernous hemangioma, FSM can assist in addressing nervous system injuries. By using experimental frequencies aimed at promoting neural recovery, practitioners can help reduce facial spasticity and overall body tightness. This approach emphasizes the importance of understanding brain anatomy and leveraging FSM to stimulate appropriate brain functions. **The Mysterious Weight Loss Case** Managing complex cases like unexplained weight loss after childbirth requires comprehensive analysis beyond standard fibro and spine pain diagnoses. Practitioners should consider underlying conditions such as osteoporosis and employ FSM not just for symptomatic relief but also for targeting potential anatomical issues causing the discomfort. The approach prioritizes a balanced nutritional plan to support recovery alongside FSM-based interventions. **Building Practitioner-Patient Relationships** A significant aspect of applying FSM successfully is the development of a strong practitioner-patient relationship. By explaining the interconnectedness of different bodily systems and setting realistic expectations, medical practitioners can provide valuable reassurance to their patients. It's crucial to communicate the patient's role in their treatment progress and ensure they understand the reasoning behind each step in their care. **Innovations in Pain Management** For pain management, particularly in sports injuries or post-exercise recovery, FSM provides a way to explore non-invasive treatments that focus on reducing delayed onset muscle soreness (DOMS) and enhancing muscle healing. Practitioners can utilize FSM tailored to specific muscle structures and response patterns, encouraging athletes and active patients to incorporate this technology into their recovery routines.

Want to fall in love with your ADHD brain and make it work for you? Learn more about my patented program, Your ADHD Brain is A-OK Academy  here: programs.tracyotsuka.com/signup___Nobody prepares you for ADHD pregnancy brain. Decisions become impossible when choosing between 200 strollers for a baby you've never met, how appointments can completely derail your routine, and focus. The brain fog that hits like a wall, or the surprising clarity that some women experience when hormones align just right with their neurodivergent wiring.Dr. Kalin Johnson is back, and this time she's sharing what she learned from experiencing pregnancy, childbirth, and early motherhood with ADHD firsthand. Diagnosed with ADHD, autism, PTSD, and hypermobile Ehlers-Danlos Syndrome in adulthood, Kalin recently welcomed her daughter Indie Rue—and discovered just how much the medical system doesn't prepare ADHD women for this journey.In this episode, Tracy and Kalin explore the hormonal rollercoaster of each trimester, why some ADHD women experience incredible focus during pregnancy while others struggle with brain fog, and how conditions like MCAS, dysautonomia, and hypermobility intersect with ADHD. They dive deep into medication decisions, the realities of postpartum life, and why being kinder to yourself isn't optional—it's essential for being the parent you want to be.Whether you're thinking about pregnancy, currently pregnant, or supporting someone who is, this conversation will give you the real talk nobody else is having—and the science to back it up.Resources:Website: https://www.kalinjohnson.com Instagram: https://www.instagram.com/kalinpharmd LinkedIn: https://www.linkedin.com/in/kalin-johnsonpharmd YouTube: https://www.youtube.com/@queensoftheneuroverse?si=kuneU-Fcnz1Ea2RI&sub_confirmation=1  Spotify: https://open.spotify.com/show/4LqfhlyNcPLo1CmJXGJvEw Send a Message: Your Name | Email | Message Learn more by connecting with Tracy through Instagram, Facebook, LinkedIn, Pinterest, or visit adhdforsmartwomen.com.Are You Ready to Discover Your Brilliance? Order Now: https://adhdforsmartwomen.com/bookJoin Your ADHD Brain is A-OK: https://adhdforsmartwomen.com/aokVisit our website: https://adhdforsmartwomen.comJoin our community of ADHD For Smart Ass Women: https://www.facebook.com/groups/tracyotsuka Join What Do I Do With My Life Masterclass: spyhappy.me/classUnlock your best days with Blends: https://adhdforsmartwomen.com/blends

Ehlers-Danlos Syndrome (EDS) isn't only genetic—it can be the body's brilliant way of expressing unprocessed emotion and inherited stress. In this episode of The Mind Change Podcast, Heather McKean reveals how childhood hyper-vigilance, people-pleasing, and family trauma may wire the nervous system for chronic pain, joint instability, and fatigue—then shows how the Mind Change Method helps rewire those patterns for lasting relief.In this conversation you'll learn:

You asked. I answered. In this solo Q&A, I tackle some of the biggest and most misunderstood questions from our Bendy Bodies community. From toddlers flagged for autism to adults fighting for an EDS diagnosis, from altitude flares to functional neurologic disorder, this episode pulls no punches. I talk low-dose naltrexone (LDN), altitude hacks, medication struggles, and the quiet panic of a diagnosis that suddenly shifts under you. Plus, we look ahead to the 2026 hEDS (hypermobile Ehlers-Danlos Syndrome) classification changes and the stigma that still haunts hypermobile bodies. Whether you're a patient, a provider, or somewhere in between—you'll hear something in this episode that makes you feel seen. Takeaways: How the diagnosis of functional neurologic disorder (FND) is often misused—and what that means for bendy patients. What one family doctor learned when her toddler was flagged for autism... and EDS. The truth about low-dose naltrexone—and why it's not a quick fix. Why a change in your diagnosis doesn't change your reality. A life-saving strategy for traveling to high altitudes with EDS or POTS. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Use this affiliate link for Algonot to get an extra 5% off your entire order: https://algonot.com/coupon/bendbod/ Connect with the HypermobilityMD:  YouTube: ⁠youtube.com/@bendybodiespodcast⁠  Instagram: ⁠https://www.instagram.com/hypermobilitymd/⁠  Facebook: ⁠https://www.facebook.com/BendyBodiesPodcast⁠  X: ⁠https://twitter.com/BluesteinLinda⁠  LinkedIn: ⁠https://www.linkedin.com/in/hypermobilitymd/⁠  Newsletter: ⁠https://hypermobilitymd.substack.com/⁠ Shop my Amazon store ⁠https://www.amazon.com/shop/hypermobilitymd⁠ Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network FTC: This video is not sponsored. Links are commissionable, meaning I may earn commission from purchases made through links. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of 'Pushing Forward with Alycia,' Alycia welcomes Gigi Robinson, a creator, speaker, strategist, and chronic illness advocate. Gigi discusses her journey with Ehlers-Danlos Syndrome and endometriosis, highlighting her resilience and hope. She shares insights on navigating dynamic disabilities, balancing health and hustle, and the importance of self-advocacy. Gigi also details her path to becoming a published author with Penguin Random House, starting with her personal photo essay in college. Listeners will be inspired by Gigi's message of breaking down barriers and building bridges, reminding everyone that anything is achievable despite the challenges. Quick Timeline of Events00:00 Introduction to Pushing Forward with Alycia 00:25 Meet Gigi Robinson: Chronic Illness Warrior 01:30 Gigi's Early Life and Diagnosis 03:21 Living with Chronic Illness: Challenges and Triumphs 06:49 The Decision to Share Her Journey 14:59 Balancing Health, Hustle, and Healing 20:44 The Power of Movement and Mindfulness 25:45 Gigi's Book and Advocacy 35:40 Final Thoughts and Mantras A Quote from Gigi “If you don't change something in how people are treating you or how you let them treat you in how you show up…, nothing's going to change.” ~ Gigi Robinson Themes That Standout

Joshua Taylor, founder of the Facebook page Disabled, Not Unable, shares his personal journey with Ehlers-Danlos Syndrome, which led him from being a commercial truck driver to a full-time wheelchair user and passionate disability advocate. He speaks candidly about the grief of losing abilities, career, and long-held aspirations—but also how those shifts opened doors to new purpose, especially through adaptive sports and his involvement with Ainsley's Angels.Joshua discusses his proactive work with local government in Michigan, including speaking at a City Council meeting (post-medical procedure!) to defend Diversity, Equity, and Inclusion (DEI) efforts amid political pressures to remove them.The episode ties everything back to movement, advocacy, and dignity, spotlighting inclusion as a right—not a luxury—and how the smallest changes, like adaptive playgrounds or pop-up privacy tents, can shift someone's entire world.Interested in applying for the Ally Development Program? Click https://ainsleysangels.org/adp/. Want to run with the Marines in our nation's capital? Click, https://ainsleysangels.org/runwiththemarines/Audio version of the Together, We Shall Podcast can be found on Buzzsprout (link below), on the Apple Podcast app, as well as on Spotify, Amazon, and the Ainsley's Angels YouTube channel for those seeking closed captioning or just like to watch vice listen to podcasts. https://twspodcast.buzzsprout.com  Together, We Shall Podcast is hosted by Kim ‘Rooster' Rossiter, President and Co-Founder of Ainsley's Angels of America, and Joe Orth, Executive Vice President of Ainsley's Angels. This inclusive podcast takes you into a world of tangents and thoroughfares, focusing on a conversation to be determined. Highlighting current events, insightful antidotes and life lessons with banter, sit back and listen to a little bit of humor and a few emotional deep dives during each episode. Let's roll! If you would like to join us on the podcast, place to share/tell stories and connect, or nominate someone to join us on the podcast, email us at Podcast@AinsleysAngels.org

Mobility is a popular topic in fitness at the moment but what happens when a person has too much mobility? Hypermobility spectrum disorder and Ehlers-Danlos Syndrome or EDS are connective tissue disorders where the person's joints are looser than they should be. This creates joint instability that can lead to pain, frequent sprains and strains or joint dislocations. The goal of movement training for these clients focuses on stability, increasing body awareness and developing postural endurance to train the muscles to support the joints. If you or your clients have hypermobility, this episode will provide guidelines for successfully managing the condition.  Moving Conversations LIVE in Southern California!  September 13 – 14, 2025 Blue Moon Pilates 24194 Alicia Parkway, Mission Viejo, CA Course include: Movement for Low Back Conditions, Training Upper Body Stability and Pilates and Osteoporosis Register through Blue Moon Pilates at: https://bluemoonpilates.com/workshops We look forward to seeing you there!   Moving Conversation Socials    Brian's Book on Low Back Pain and Conditions:  Back Exercise; Stabilize, Mobilize and Reduce Pain  https://a.co/d/8IUb7L6    Email: movingconvos@gmail.com  IG: @movingconvos  FB: Moving Conversations    Brian  IG: @fit4lifedc  FB: https://www.facebook.com/brianrichey/     Nora  IG: nora.s.john.7  FB: https://www.facebook.com/nora.s.john.7 

Are you struggling with unexplained allergic reactions, chronic inflammation, rashes, fatigue, anxiety, or gut issues? You may be dealing with Mast Cell Activation Syndrome (MCAS)—a complex and often misunderstood immune system condition.In this episode of Root Cause Radio, functional medicine dietitian and hormone specialist Lacey Dunn and Anya Rosen dive deep into:What is MCAS and how it differs from histamine intoleranceCommon MCAS symptoms like hives, flushing, brain fog, IBS, POTS, and moreKey root causes including mold toxicity, chronic infections (like Lyme or EBV), SIBO, stress, and traumaHow to identify triggers and reduce mast cell degranulationThe best natural supplements and low-histamine diet tips to stabilize mast cellsHow to start to address gut health, detox , and nervous system dysregulationHere is a time-stamped outline of the key points discussed in the meeting, organized by minutes:0-1 minute: Introduction to the topic of mast cell activation syndrome (MCAS)1-2 minutes: Anya discusses the increasing prevalence of MCAS diagnoses and the differences between histamine intolerance and MCAS2-3 minutes: Lacey defines what mast cells are and how MCAS develops, as well as the differences between histamine intolerance and MCAS3-5 minutes: Lacey outlines the wide range of MCAS symptoms across different body systems5-7 minutes: Anya discusses the diagnostic criteria for MCAS7-8 minutes: Lacey and Anya discuss mold as a common root cause for MCAS8-9 minutes: Lacey identifies other potential root causes like infections, GI issues, genetics, and trauma/stress9-10 minutes: Anya emphasizes the importance of stabilizing the nervous system before addressing root causes10-12 minutes: Lacey and Anya recommend various natural supplements and medications for MCAS management12-13 minutes: Lacey cautions about potential side effects of certain supplements like quercetin13-15 minutes: Anya and Lacey discuss the role of lifestyle factors like reducing toxic exposures15-17 minutes: Lacey notes connections between MCAS, POTS, and Ehlers-Danlos Syndrome, and advises against what can hold you back from healing17-18 minutes: Lacey and Anya wrap up and encourage listeners to reach out for supportIdentifying root causes beyond just mold @ 15:07Emphasizing stabilizing the nervous system first @ 16:40Discussing connections to other conditions like POTS and EDS @ 30:09Need one on one help?Lacey's info:My Website & Work with Me: Instagram: ⁠www.instagram.com/faithandfit⁠⁠www.upliftfitnutrition.com⁠Email for coaching & phone consults: laceydunn@upliftfitnutrition.com & fitandfaith@gmail.comMy Supplement Company:Order my book "The Women's Guide to Hormonal Harmony" on amazon! Anya Rosen's info:Website: Instagram: Email: anya@birchwell.clinic

Grace Nuhfer, was a junior swimmer at the University of Akron and has overcome significant physical challenges to compete at the collegiate and international level. She is legally blind due to Brittle Cornea Syndrome, a rare form of Ehlers-Danlos Syndrome.   The eye doctor said “no balls, bats, or rackets, and my connective tissue disorder made the other options, like dance and track, too painful to continue. There have been countless unexpected injuries, sprains, and random joint pain alongside numerous tests for glasses and hearing aids. In 2023, Nuhfer represented the United States at the Parapan American Games in Santiago, Chile, after qualifying and breaking the American record in the 200-meter Butterfly.  Grace is the USA Paralympic women's 100m butterfly S13 silver medalist with her eyes now set on the LA 2028 games! Grace's Instagram  Grace's VSCO Page Grace's Facebook Here _____________________________ Follow me on my Instagram or Facebook Podcast Facebook page here Check out KristiCapel.com Email: Kristicapelpodcast@gmail.com      

Ehlers-Danlos Syndrome is a group of 13 conditions which all affect connective tissue (collagen) in the body. Most are rare, but one type called hypermobility EDS is common. Because the intestines are made from soft tissue, EDS affects digestion and often causes IBS symptoms. It is a major risk factor for developing SIBO, because it slows down motility. If you have EDS and SIBO, you will be chronic - but you can still live well! And we'll get to that in the bonus lesson with Dr Allison Siebecker. And just to hammer this point home about the connection between EDS and IBS, one study of 228 IBS patients found 48% also had EDS.Now the reason why I want to bring EDS to your attention is because I am seeing it more and more in my clients with both endometriosis and SIBO.Despite these statistics, to my knowledge, most experts do not consider EDS and endometriosis to be significantly connected. At present, it is thought that most of the period pain and menstrual problems of those with EDS is not caused by endometriosis, but EDS itself. However, I have spoken to multiple health care practitioners who do see a connection and see the two conditions together in patients, and because EDS can cause gut problems and SIBO, I think it's worth raising here.  Need more help or want to learn how to work with me?Free resources:This podcast! Endometriosis Net ColumnEndometriosis News ColumnNewsletterInstagramWays to work with me:This EndoLife, It Starts with Breakfast digital cookbookMasterclasses in endo nutrition, surgery prep and recovery and pain reliefLive and Thrive with Endo: The Foundations DIY courseOne to one coaching info and applicationThis episode is sponsored by BeYou Cramp Relief Patches. Soothe period cramps the natural way with these 100% natural and discreet menthol and eucalyptus oil stick on patches. Click here to find out more and to shop: https://beyouonline.co.uk/pages/how-it-worksProduced by Chris Robson

This week on The TV Dudes, Les is joined by actress Carey Cox, who portrays Rose Blaine in The Handmaid's Tale. Introduced in Season 5 as the wife of Nick, Rose is an unusual character in Gilead due to her visible disability — congenital hip dysplasia. This mirrors Carey's real-life experience living with Ehlers-Danlos Syndrome. As a disabled actor and advocate, Carey brings authenticity and nuance to her roles, challenging outdated perceptions of disability in the entertainment industry. We chat about her career path, her work on The Handmaid's Tale, and much more. #TheHandmaidsTale #CareyCox #TheTVDudes 

The NEW 2025 MomAdvice Summer Reading Guide includes 56 titles, including upcoming releases, new releases, and backlist gems. Browse 39 pages of bookish fun to prepare for your best summer stack.Welcome to one of my favorite episodes of the year- the official reveal of the 2025 MomAdvice Summer Reading Guide! This year's guide features 56 handpicked titles across every genre to help you find the perfect book for your summer reading mood.In this special episode of Book Gang, I'm revealing the inspiration behind this year's Summer Reading Guide. A recent health challenge shifted how and why I read, making this season's selections more intentional, joy-filled, and personal than ever before.From the ninety-eight books I read for this season, I'm spotlighting four unforgettable debut novels that stole my heart and should be at the top of your TBR. These fresh new voices are ones I'll be championing all season long, and I hope they become new favorites for you, too.Don't miss my special announcements on three upcoming projects I have in the works for online AND local friends to create even MORE bookish fun for your reading year. Grab a notebook (or open your Libby app!) to reserve all these gorgeous books for this year's fun, and let's deep dive into the WHY behind this year's selections.Browse the 2025 MomAdvice Summer Reading Guide (with ads) or receive the 39-page reading guide download ($7) to support our show. If you are a show patron, check your inbox for your copy as part of your member benefits- thank you for supporting my small business!  Editor's Note: We have switched from Bookshop.org to direct sales with three featured bookshops to ensure they keep every penny of the profit. Meet Amy Allen ClarkAmy Allen Clark is the founder of MomAdvice.com, a vibrant online community she has nurtured since 2004. Through this platform, Amy shares practical advice on recipes, DIY projects, and book recommendations for her readers.In 2013, Amy authored The Good Life for Less, published by Penguin, and provided families tips for running their household on a shoestring budget.Amy launched the Book Gang Podcast in 2021. The book podcast celebrates debut authors, explores backlist titles, and highlights under-the-radar book selections. Through engaging conversations with writers and fellow book enthusiasts, Amy's goal is to connect you with your new favorite book.Residing in Indiana, Amy is a mother of two who has shared her journey living with Ehlers-Danlos Syndrome to raise awareness and support others facing similar health challenges. Connect With Me:Buy the 2025 Summer Reading GuideConnect with Amy on Instagram, TikTok, or MomAdviceSupport the Show With a Tip on Buy Me a Coffee

When Gwen first went to the doctor for stomach pain, she didn't expect to leave with a diagnosis of Ehlers-Danlos Syndrome—let alone a growing list of conditions including POTS and Mast Cell Activation Syndrome. In this episode, the gang explore what it's like to get too many answers too quickly, how chronic illness reshapes identity, and why the system often fails patients with complex needs. From medical gaslighting to becoming a voice for disability advocacy, Gwen's story is as sharp as it is eye-opening. It's a reminder that “invisible” doesn't mean imaginary—and that the fight for proper care can be just as exhausting as the illness itself.Follow Sickboy on Instagram, TikTok and Discord!

From a very unexpected pregnancy to navigating a challenging first birth experience, Shannon joins us today to share the steps she took to achieve a successful VBAC. Shannon describes pregnancy with Ehlers–Danlos Syndrome and insufficient glandular tissue (IGT). She was able to seek support and get the proper progesterone supplementation with her second pregnancy to help with her breastfeeding goals. Though she hadn't had a prior history of high blood pressure, Shannon was medically induced at 38 weeks for high readings. With the help of her incredible doula and a patient team, Shannon was able to make wise decisions around her induction plan. Her labor was over 48 hours, but she pushed for just 30 minutes! Even with some tearing and postpartum hemorrhaging after birth, Shannon has been thrilled with her VBAC outcome and postpartum recovery this time around.How to VBAC: The Ultimate Prep Course for ParentsThe VBAC Link Doula DirectorySupport this podcast at — https://redcircle.com/the-vbac-link/donationsAdvertising Inquiries: https://redcircle.com/brands