Podcasts about ehlers danlos syndrome

In this powerful episode, hosts Heather and Matthew are joined by Sydney Severance, a young woman and former competitive athlete whose life changed dramatically when she unexpectedly became wheelchair-bound. After a painstaking journey to her diagnosis of Ehlers-Danlos Syndrome and Craniocervical Instability, Sydney partnered with the Medical University of South Carolina and Dr. Sunil Patel to help others have a more accessible path to a diagnosis. Hear how she launched “Operation Upright,” a campaign that successfully brought an Upright MRI machine to MUSC, and learn about the impact of this life-saving technology. Tune in for Sydney's inspiring story of turning personal adversity into advocacy!

Ehlers-Danlos Syndrome is a group of 13 conditions which all affect connective tissue (collagen) in the body. Most are rare, but one type called hypermobility EDS is common. Because the intestines are made from soft tissue, EDS affects digestion and often causes IBS symptoms. It is a major risk factor for developing SIBO, because it slows down motility. If you have EDS and SIBO, you will be chronic - but you can still live well! And we'll get to that in the bonus lesson with Dr Allison Siebecker. And just to hammer this point home about the connection between EDS and IBS, one study of 228 IBS patients found 48% also had EDS.Now the reason why I want to bring EDS to your attention is because I am seeing it more and more in my clients with both endometriosis and SIBO.Despite these statistics, to my knowledge, most experts do not consider EDS and endometriosis to be significantly connected. At present, it is thought that most of the period pain and menstrual problems of those with EDS is not caused by endometriosis, but EDS itself. However, I have spoken to multiple health care practitioners who do see a connection and see the two conditions together in patients, and because EDS can cause gut problems and SIBO, I think it's worth raising here.  Need more help or want to learn how to work with me?Free resources:This podcast! Endometriosis Net ColumnEndometriosis News ColumnNewsletterInstagramWays to work with me:This EndoLife, It Starts with Breakfast digital cookbookMasterclasses in endo nutrition, surgery prep and recovery and pain reliefLive and Thrive with Endo: The Foundations DIY courseOne to one coaching info and applicationThis episode is sponsored by BeYou Cramp Relief Patches. Soothe period cramps the natural way with these 100% natural and discreet menthol and eucalyptus oil stick on patches. Click here to find out more and to shop: https://beyouonline.co.uk/pages/how-it-worksProduced by Chris Robson

This week on The TV Dudes, Les is joined by actress Carey Cox, who portrays Rose Blaine in The Handmaid's Tale. Introduced in Season 5 as the wife of Nick, Rose is an unusual character in Gilead due to her visible disability — congenital hip dysplasia. This mirrors Carey's real-life experience living with Ehlers-Danlos Syndrome. As a disabled actor and advocate, Carey brings authenticity and nuance to her roles, challenging outdated perceptions of disability in the entertainment industry. We chat about her career path, her work on The Handmaid's Tale, and much more. #TheHandmaidsTale #CareyCox #TheTVDudes 

The NEW 2025 MomAdvice Summer Reading Guide includes 56 titles, including upcoming releases, new releases, and backlist gems. Browse 39 pages of bookish fun to prepare for your best summer stack.Welcome to one of my favorite episodes of the year- the official reveal of the 2025 MomAdvice Summer Reading Guide! This year's guide features 56 handpicked titles across every genre to help you find the perfect book for your summer reading mood.In this special episode of Book Gang, I'm revealing the inspiration behind this year's Summer Reading Guide. A recent health challenge shifted how and why I read, making this season's selections more intentional, joy-filled, and personal than ever before.From the ninety-eight books I read for this season, I'm spotlighting four unforgettable debut novels that stole my heart and should be at the top of your TBR. These fresh new voices are ones I'll be championing all season long, and I hope they become new favorites for you, too.Don't miss my special announcements on three upcoming projects I have in the works for online AND local friends to create even MORE bookish fun for your reading year. Grab a notebook (or open your Libby app!) to reserve all these gorgeous books for this year's fun, and let's deep dive into the WHY behind this year's selections.Browse the 2025 MomAdvice Summer Reading Guide (with ads) or receive the 39-page reading guide download ($7) to support our show. If you are a show patron, check your inbox for your copy as part of your member benefits- thank you for supporting my small business!  Editor's Note: We have switched from Bookshop.org to direct sales with three featured bookshops to ensure they keep every penny of the profit. Meet Amy Allen ClarkAmy Allen Clark is the founder of MomAdvice.com, a vibrant online community she has nurtured since 2004. Through this platform, Amy shares practical advice on recipes, DIY projects, and book recommendations for her readers.In 2013, Amy authored The Good Life for Less, published by Penguin, and provided families tips for running their household on a shoestring budget.Amy launched the Book Gang Podcast in 2021. The book podcast celebrates debut authors, explores backlist titles, and highlights under-the-radar book selections. Through engaging conversations with writers and fellow book enthusiasts, Amy's goal is to connect you with your new favorite book.Residing in Indiana, Amy is a mother of two who has shared her journey living with Ehlers-Danlos Syndrome to raise awareness and support others facing similar health challenges. Connect With Me:Buy the 2025 Summer Reading GuideConnect with Amy on Instagram, TikTok, or MomAdviceSupport the Show With a Tip on Buy Me a Coffee

Sue from South Africa shared her experience with Ehlers-Danlos syndrome and multiple health challenges. Although she was diagnosed with Ehlers-Danlos syndrome only six years ago, she described being a fragile child with several physical abnormalities that went unnoticed by doctors. These included an indented sternum and a skin issue at the base of her spine. Growing up, she struggled with physical activities and faced bullying due to her abilities, which contributed to her emotional distress.Her health challenges continued into adolescence, exacerbated by a severe dog bite that led to post-traumatic stress disorder (PTSD), which was not recognized at the time. During her teenage years, she also battled insomnia, anxiety, and depression. Sue developed Lyme disease after a hiking trip, which led to chronic fatigue syndrome (ME/CFS) and other health issues linked to Ehlers-Danlos syndrome.Despite her struggles, Sue pursued education, ultimately earning degrees in psychology. Throughout her journey, she has become more aware of her physical and psychological challenges, working to advocate for herself and understand her conditions better.

Do you get full body pain? Does it affect your muscles, nerves or joints? Do you find that you need to rest after walking or find you tired more easily than others?It might not just be endometriosis. Ehlers-Danlos Syndrome is a group of 13 conditions which all affect connective tissue (collagen) in the body. Most are rare, but one type called hypermobility EDS is common - and out of those with this type of EDS, 6-23% have endometriosis. But that's not where the connection ends…32-77% of those with EDS have vulvodynia and or pain with sex.33-75% have heavy menstrual bleeding. 73-93% have painful periods.Additionally, histamine intolerance caused by Mast Cell Activation Syndrome is a co-condition of Ehlers-Danlos syndrome, and we also know that overactive mast cells play a role in endometriosis. Not only can this cause more painful periods, but it can also create problems like allergies and eczema to name a few.Ehlers-Danlos Syndrome is also a huge risk factor for SIBO, and as you may now know, at present SIBO is estimated as affecting 80% of the endo population.I could go on with the overlapping symptoms and connections, but instead, I'll let you hear it first hand from Natalia Kasnakidis who is not only an endometriosis warrior, but is also living with Ehlers-Danlos syndrome, histamine intolerance and potentially postural tachycardia syndrome.In this episode we talk about:What the Ehlers-Danlos Syndromes are and how common they are.The signs and symptoms to look out for and Natalia's own experience with her symptoms.The journey she tool to diagnosis and her tips for getting diagnosed. The co-conditions of EDS and their symptoms. Her key strategies for living well with endometriosis and EDS.Show noteshttps://www.thelondonhypermobilityunit.co.ukhttps://join.sibosos.com/purchase/74117-Joint-Hypermobility-Syndromes?_ga=2.165935037.2051281346.1639065076-1956767515.1601293146Need more help or want to learn how to work with me?Free resources:This podcast! Endometriosis Net ColumnEndometriosis News ColumnNewsletterInstagramWays to work with me:This EndoLife, It Starts with Breakfast digital cookbookMasterclasses in endo nutrition, surgery prep and recovery and pain reliefLive and Thrive with Endo: The Foundations DIY courseOne to one coaching info and applicationThis episode is sponsored by BeYou Cramp Relief Patches. Soothe period cramps the natural way with these 100% natural and discreet menthol and eucalyptus oil stick on patches. Click here to find out more and to shop: https://beyouonline.co.uk/pages/how-it-worksProduced by Chris Robson

How can dance teachers and studio owners truly support their most flexible students? In this essential episode host Loren Dermody welcomes back Dr. Linda Bluestein, renowned physician, former dancer, and expert in hypermobility, for her sixth appearance during Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. Dr. Bluestein reveals why early recognition of connective tissue disorders is critical in dance, sharing practical signs teachers can spot, from difficulty building muscle to recurring injuries and even digestive issues. She explains why standard screening tools like the Beighton score often fall short for dancers, and offers actionable advice on what really works in the studio. Learn how to recognize the subtle signs of hypermobility, prevent common injuries, and empower your dancers to thrive. Whether you're a studio owner or passionate teacher, this episode will give you the knowledge to make a real difference in your dancers' lives. Don't miss this insightful conversation with Dr. Linda Bluestein, exclusively on The Acrobatic Arts Podcast! Important Links Bending Boundaries: The Role of Joint Hypermobility in Dance About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies If you'd like more amazing content more tips and ideas check out our Acrobatic Arts Channel on YouTube. Subscribe Now! Connect with Acrobatic Arts on your favourite social media platform: Instagram: https://www.instagram.com/acrobaticarts/ Facebook: https://www.facebook.com/Acroarts Twitter: https://twitter.com/acrobatic_arts/ Learn more and register for our programs at AcrobaticArts.com

Husband-and-wife music duo, Kenny and Claire Hilliard both grew up in the upstate of South Carolina before God took them the long way around to finally settle in Nashville, TN.  In 2015, during Kenny's tenure as a senior pastor and worship leader in Asheville, North Carolina, he was diagnosed with a brain tumor. Shortly after successful surgery to remove the tumor, Kenny received a second diagnosis, Ehlers Danlos Syndrome—a degenerative genetic disease that left him temporarily impaired. The couple embraced a return to music during Kenny's recovery, founding a music teaching studio and penning modern hymns for their home congregation. Kenny and Claire also share some of their travel experiences from being on the road six months of the year touring with their 3 kids in an RV across the country. This special couple is honest about the struggles they've endured and continue giving God glory via their music through it all. If you'd like to be part of the Building Strong Homes Community sign up for my email list here where you'll also receive my baked spaghetti recipe here. You can also click to sign up to become part of my free Facebook community. Watch on YouTube Are You Weary? A Musical Duo's Story of Hope Through Life's Storms with Kenny and Claire Hilliard

Send us a text"I was told that maybe I would never walk properly again. Hearing that, something in my mind clicked and I said, no, that's never going to happen."These powerful words from Stuart capture the essence of resilience that defines both his personal journey and his approach to helping others at Ideal Fitness. After suffering a devastating back injury just as he was transitioning from a 12-year corporate career to pursue his passion for fitness and rehabilitation, Stuart faced a crossroads that would shape everything that followed.Instead of accepting limitations, Stuart spent two years rehabilitating himself while simultaneously building his business. This dual journey transformed his understanding of what clients truly need, shifting his focus toward helping people with medical conditions, chronic pain, and those over 40 who feel intimidated by traditional fitness environments. Today, his studio serves clients with Ehlers-Danlos Syndrome, Parkinson's, joint replacements, and those who have never exercised before.At the heart of Stuart's methodology is his "Walk of Wants" system—a remarkably simple yet effective framework that helps clients achieve what seems impossible by breaking goals into manageable daily or weekly steps. Stuart believes in keeping things straightforward: "Making it difficult is only going to make it a real challenge for anybody. They're going to turn away."Perhaps most telling is what you won't find in his studio: mirrors. This conscious decision reflects Stuart's deep understanding of client psychology, as many have thanked him for creating a space where they don't have to confront their reflection while working out. Similarly, he often avoids scales, focusing instead on measurements, functional improvements, and quality-of-life indicators that truly matter to his clients.Stuart's story reminds us that true transformation—whether in health or business—requires vision, consistency, and a willingness to approach challenges differently. His journey offers a blueprint for anyone facing seemingly insurmountable obstacles or seeking to help others overcome their own.Have you been trying to force yourself into a fitness approach that doesn't feel right? Perhaps Stuart's client-centered philosophy is the missing piece in your own wellness journey. Follow Ideal Fitness on Facebook, Instagram, or visit www.idealfitness.co.uk to learn more.Support the showSubscribe to our Newsletter: https://creatitive.com/fit-to-grit-cast/

In this episode, Dr. Taves dives deep into a lesser-known but critical contributor to chronic headaches and migraines—Ehlers-Danlos Syndrome, or EDS. This connective tissue disorder often goes undiagnosed but may be at the root of persistent head and neck pain, jaw dysfunction, and migraine symptoms. If you've been told “everything looks normal” or that it's “just stress,” this episode is for you.Novera: Headache Center

This week on Not Your Granny's Quilt Show, we're chatting with the incredibly inspiring Luci Camorani of Sea Garden Sewing! By day, Luci works as a services coordinator supporting families through her county's developmental disabilities services—an area she's deeply passionate about, especially as someone living with Ehlers-Danlos Syndrome. By night (and weekend!), Luci is a colorful creative force in the quilting world. Since picking up quilting in 2019, she's been blending bold, bright fabrics with classic quilt blocks for a fresh, modern twist. Luci shares how a pattern writing course sparked her love for reimagining the traditional—and how being a Riley Blake Influencer keeps her trying new things. Tune in for a heartwarming conversation about advocacy, creativity, and finding joy in the unexpected.Check out Luci's work on Instagram @seagardensewing and visit her shop at seagardensewing.com!Want to see more? You can find it here: NYQGS Merch Shop: nygqs.printify.me Patreon: patreon.com/notyourgrannysquiltshow Instagram: https://www.instagram.com/notyourgrannysquiltshow https://www.instagram.com/sweetpeadesigncompany YouTube: https://youtube.com/@notyourgrannysquiltshow Want to be on the show? Send us a message!

We've all heard of miraculous stories of divine healing but what about those who God doesn't heal? In this episode of the Woman Alive podcast Tola-Doll Fisher is joined by two women with disabilities. Danielle Finch is a Woman Alive writer who talks openly about faith and parenting. She has Ehlers Danlos Syndrome which makes the collagen in her limbs to become weak and stretchy and is now a wheelchair user. Find her on Instagram @thisdisabledfamilylife.com Jade Reynolds has been paralysed since the age of 12 due to an autoimmune condition which means she also uses a wheelchair. She is a writer and with her husband John hosts the faith-based podcast Bring to Light. The Great Sexpectations dilemma this episode is: 'How can I overcome the pain of betrayal from my mum?' https://www.womanalive.co.uk/opinion/great-sexpectations-how-can-i-overcome-the-pain-of-betrayal-from-my-mum/18960.article The producer of the Woman Alive podcast is Rachel Huston. Special offer! Podcast listeners get 50% off Woman Alive magazine:

When Gwen first went to the doctor for stomach pain, she didn't expect to leave with a diagnosis of Ehlers-Danlos Syndrome—let alone a growing list of conditions including POTS and Mast Cell Activation Syndrome. In this episode, the gang explore what it's like to get too many answers too quickly, how chronic illness reshapes identity, and why the system often fails patients with complex needs. From medical gaslighting to becoming a voice for disability advocacy, Gwen's story is as sharp as it is eye-opening. It's a reminder that “invisible” doesn't mean imaginary—and that the fight for proper care can be just as exhausting as the illness itself.Follow Sickboy on Instagram, TikTok and Discord!

When Gwen first went to the doctor for stomach pain, she didn't expect to leave with a diagnosis of Ehlers-Danlos Syndrome—let alone a growing list of conditions including POTS and Mast Cell Activation Syndrome. In this episode, the gang explore what it's like to get too many answers too quickly, how chronic illness reshapes identity, and why the system often fails patients with complex needs. From medical gaslighting to becoming a voice for disability advocacy, Gwen's story is as sharp as it is eye-opening. It's a reminder that “invisible” doesn't mean imaginary—and that the fight for proper care can be just as exhausting as the illness itself.Follow Sickboy on Instagram, TikTok and Discord!

On today's episode of The Wholesome Fertility Podcast, I am joined once again by Katie Beecher @katiebeecher_medical_intuitive, a licensed professional counselor and medical and emotional intuitive. With over 35 years of experience, Katie has a unique ability to create detailed physical, emotional, and spiritual reports and even symbolic paintings using just a person's name and age. In this powerful conversation, we dive into how fertility challenges are deeply tied to the body's messages, unresolved trauma, and even spiritual guidance. Katie shares insight into Ehlers-Danlos Syndrome as a hidden factor in infertility, the emotional layers of miscarriage and loss, and the importance of connecting with spirit babies. We also explore how symptoms are not something to fear—but invitations to tune in and heal. Whether you're on a fertility journey or simply seeking a deeper connection to your body and intuition, this episode is filled with wisdom and compassion. Key Takeaways: Symptoms are not your enemy they are messages from your body and spirit. Anxiety, trauma, and stress disconnect us from our bodies, blocking healing and fertility. Spirit babies often communicate with future parents and may arrive through various paths—including adoption or donor eggs. Conditions like Ehlers-Danlos Syndrome can go undiagnosed but play a significant role in reproductive health. Empowering your intuition and setting boundaries are crucial for emotional and spiritual readiness for parenthood. Healing is not about control—it's about partnership with your body, your spirit, and the wisdom within. Guest Bio: Katie Beecher is a licensed professional counselor and renowned medical and emotional intuitive with over 35 years of experience. Known for her unique ability to create detailed wellness reports and symbolic paintings using just a person's name and age, Katie has been featured in over 200 media outlets including Goop, Poosh, and Kora Organics. She is also the author of Heal from Within: An Intuitive Guide to Wellness, a practical guide that teaches readers how to access their own intuition, cultivate self-love, and heal holistically. Katie's work is deeply informed by her personal healing journey from bulimia, Lyme disease, and depression—an experience that began when she courageously sought help as a teenager and has since inspired her life's mission. Websites/Social Media Links: Katie's InstagramKatie's FacebookWatch her on YoutubeGet her book: Heal From Within: A Guide to Intuitive WellnessRead here blog: The Common, Frequently Overlooked Disorder That May Connect All of Your Mystery Symptoms—------------- For more information about Michelle, visit www.michelleoravitz.com  To learn more about ancient wisdom and fertility, you can get Michelle's book at: https://www.michelleoravitz.com/thewayoffertility  The Wholesome Fertility facebook group is where you can find free resources and support: https://www.facebook.com/groups/2149554308396504/  Instagram: @thewholesomelotusfertility  Facebook: https://www.facebook.com/thewholesomelotus/ Disclaimer: The information shared on this podcast is for educational and informational purposes only and is not intended as medical advice. Please consult with your healthcare provider before making any changes to your health or fertility care.   Transcript: # TWF: Katie Beecher (audio) [00:00:00] Episode number 3 32 of the Wholesome Fertility Podcast. My guest today is Katie Beecher. Katie is a licensed professional counselor and medical and emotional intuitive. With over 35 years of experience, Katie is featured in over 200 media outlets including Goop, Courtney Kardashian's website and Miranda Kerr's Gora Organics blog and has taught a week long workshop. At the Omega Institute, she has a unique way of working with clients, creating a detailed, individualized, physical, emotional, and spiritual report and symbolic painting before ever seeing them, talking with them, or seeing a photograph using only their name and age. Katie's first book. Heal from within. An intuitive guide to wellness uses practical tools and techniques Katie uses in her own medical and spiritual intuitive readings. The book teaches you to be your own medical intuitive, using [00:01:00] Katie's revolutionary step-by-step process for connecting to intuition and spirit, finding self-love and empowerment as well as to heal physically, emotionally, and spiritually. Heal from within is filled with remarkable stories of healing from her years of experience, as well as her own healing from bulimia, Lyme disease and emotional illness at the age of 16, without telling anyone, including her parents, Katie contacted her pediatrician and began therapy for a severe eating disorder and suicidal depression. She has been healed for over 35 years. Welcome to the Wholesome Fertility Podcast. I'm Michelle, a fertility acupuncturist here to provide you with resources on how to create a wholesome approach to your fertility [00:02:00] journey. **Michelle Oravitz:** Welcome back to the podcast, Katie. I'm so happy to have you back. **Katie Beecher:** This is a really great topic and I work with it a lot, so it's nice to, uh, podcast. **Michelle Oravitz:** So good. So I remember our first podcast episode. We talked about how about your gift really, and how you also incorporate art, which I thought was so cool. **Katie Beecher:** Yes. **Michelle Oravitz:** and so now since then you've started to see a lot of people. With fertility, like specifically fertility people are coming to you like about loss miscarriage and also spirit babies, like future babies and babies who have, yeah. **Katie Beecher:** I mean, I've, I always worked with a little bit but yeah, lately, like the past six months or so, I've really been getting a lot of fertility people. And, and I really, really, my heart goes out to them. **Michelle Oravitz:** Yeah, for sure. And I feel like it's kind of like you're being called, you're being summoned. **Katie Beecher:** Yes. **Michelle Oravitz:** it's like a need, it's like a need in that world to really [00:03:00] become a messenger in that space. I wanted to get your thoughts, like, why do you feel like we're living at this time right now? Like this time it seems to be more needed than ever. Like the, the fertility space, like there a lot more people are experiencing that. There's a lot more of that happening now, and I wanted to get, get your take on it. **Katie Beecher:** Yeah, I mean, I think some of it gets down to just lifestyle changes and people having children getting married later, having children later, you know, decide to do that. And that's kind of. Age isn't necessarily a fertility block as we know, but it definitely can complicate things, you know? So I think that's a piece of it. I don't know if there's more stress than in the past. It feels like it, **Michelle Oravitz:** Yeah  **Katie Beecher:** for sure. So, and we all know that stress plays a big part in it with the cortisol and the, you know, effects on the immune system and, and all those kind of things. So I think that's also it. And [00:04:00] I feel like people have more of a need to communicate with spirit in terms of their own personal relationship with their intuition. Their body and a lot of people for various reasons are kind of out of body and,  **Michelle Oravitz:** Right. It's true.  **Katie Beecher:** it's really hard to know what your body needs for fertility or anything else if you are not in it or if you feel like it's your enemy or you can't listen to the signals it gives you in terms of self care, for example. You know, so.  **Michelle Oravitz:** Yeah, I agree. I also like noticed, I remember I read your book and it's, I feel like with you, it's what's cool. What I really like is that. You not only are connected to spirit, which I think that most people who don't really understand it think it's kind of like somewhere up in the clouds or it's not like real, or I not, it's hard to like kind of, look at because it's not something that could be looked at. It's something that's more experienced. But what I find that's interesting about you is that you [00:05:00] really pull it into the body **Katie Beecher:** Mm-hmm. Mm-hmm. **Michelle Oravitz:** you kind of like the intelligence in your body. It's almost like the, the messages that your body's giving to you. And that could be considered Yeah. Like intuitive, but that's actually like something we all have. **Katie Beecher:** Yeah, no, it's true. I try to, you know, make it not woo woo because it's really not, and we all have medical intuition. We use it all the time. Like, you know, if you get a stomach ache, it's, you immediately start thinking. and problem solving. Like, was it something I just ate? Do I need to have crackers? Do I need to get some seltzer? Do I, you know, have to, aol, do I need to lay down? Do I need to go to the hospital? So whether it's you or your kids, right? Because we're, we do it for our family members also. so I think it's something that naturally happens. My abilities take it to the, you know, nth degree, which is different, but it doesn't mean that people don't have medical intuitive abilities who don't do what I do. **Michelle Oravitz:** 100%. I think so too. It's, [00:06:00] not I think it's something that we've all been given because we need to have it. We need to know what's going on with our body and we can have it too. It's not something, and I think that sometimes we also give the power away. I. To other people to dictate kind of what we should do with our own bodies, and we also overlook our own intuition on what our bodies are telling us because we don't trust that. I mean, it really kind of goes on and on. **Katie Beecher:** It, it really does. And I think people, if you have trauma or illness or something, the thought is that these, these feelings in your body, are scary or that there are enemies or we have to fix them and obsess about them. And a, I think a more practical way of looking at it is what is my body telling me? What is my intuition telling me? You know, if my chest is tight, that may be my intuition yelling at me that I need to do something different or whatever. Even like anxiety [00:07:00] is so big and I look at anxiety as number one. It's very natural. It's a survival mechanism, right? We've always had it. We've always needed it. And it's letting, it's letting you know that something isn't right. So it may be danger or it may be that you're letting people take advantage of you, or not setting boundaries, or that you're not doing self-care or you're doing something against yourself, or it just means something's wrong that we need to take a look at. And the more you push it down, the stronger it gets. So then it becomes this big thing in and of itself, you know? **Michelle Oravitz:** But it's actually just trying to guide you. It's kind of trying to get your attention and that's why I always say like symptoms, it's so funny 'cause we get really annoyed with symptoms. But symptoms are our best friends. They're the best things that we could have. It's such a, a, genius design of our bodies is to let us know what's going on and to guide us. It's when we fight with the symptoms, they grow bigger and bigger and then they become like really hard to manage. **Katie Beecher:** And then what happens [00:08:00] is the more we ignore, the worse they get and the more that they need to interfere with our help, our happiness, and our help, and, and it's not even necessarily our faults because. We have a culture of just, you know, grin and bear it, kind of get through it, you know, just don't even, you know, and, and there's something to be said for that as well, but like, you can't ignore what your body is telling you. And then also expect to be healthy and happy because you, you're either here or you're out here.  And if you're out here. It's impossible to be present. Most of us live in between, like I, I live out there too, so, but I be here, you know, in order to function and and help people too. **Michelle Oravitz:** Yeah. And then so talk to me about some of the cases that you've seen of late. You know, 'cause you've been talking to more people. I know we were talking before [00:09:00] about a lot of loss, and I think that that's a really important topic because it's so confusing, it's heartbreaking. It's just really hard for people, especially because not a lot of attention goes on that type of loss. Like pregnancy loss. It's not given a ceremony. It's not unless the couple decides to do it. So I think that, and then the community, sometimes couples go through it alone, so I think that it's a very unique type of loss in that way. It could be really, really difficult because of that. **Katie Beecher:** like I said, I really feel for people and a lot of it is, things that some, if you haven't been through it, like a miscarriage or, or whatever, or a fertility journey. Right. If you haven't been through that, just like if you haven't been through anything, it can be hard to understand what a person's going through. But I was working with somebody recently and she been trying to get pregnant for. I guess like five years now. And she's in her forties. And she's gotten pregnant through [00:10:00] various means, but they were all chemical pregnancies, so they only lasted about a week or so. And then even with the egg retrieval all of her embryos have seemed to have some abnormality, so. There's nothing that she can do, you know, in terms of, of fixing that. And then the, the question is like, does that mean that every time I try to get pregnant, there's gonna be something wrong with the baby? And is there something wrong with me and is there something wrong with my body? And just like, and this person, I really feel for her 'cause she's doing it alone. She doesn't have a partner, you know, and so there's not even anybody to help. Kind of support you and pick up that slack, you know? And that, that loss just then turns, I think, to sheer terror of, ah, and then  **Michelle Oravitz:** right. Every single time you have to go through it, you're, you're not gonna be able to feel safe. **Katie Beecher:** and there's A-P-T-S-D [00:11:00] component to it of, do I get my hopes up? What if I get hurt again? What if I, and, and all of those feelings of grief and loss and everything come back every time you even think about doing it again. You know, **Michelle Oravitz:** Right. **Katie Beecher:** and I just, like you said, it's not, and I think things like your show and other things have helped people be able to talk about it more. You know, but it is a foreign concept to a lot of people. **Michelle Oravitz:** For sure. And so what do you see, do you see like a spiritual component to it? Is there some message or something that they need to like address that they feel um, at least to get through it, you know, to get them stronger? Mm-hmm. **Katie Beecher:** so it's, I I pick up a really mixed bag of things. It's not uncommon for me to pick up. Physical or emotional issues that need to be addressed before a healthy pregnancy can take place. And so, things [00:12:00] like Lyme, because Lyme can get passed on, you know, to your kids. And if you have that, there's a lot of reasons why you need to heal as much as possible, you know, before you can have healthy pregnancy. What I pick up on a lot is something called ER Danlos syndrome. Have you heard of that before? **Michelle Oravitz:** No. **Katie Beecher:** So Ler Danlos, the, one of the most prominent symptoms of it is hypermobility. So being ultra flexible, but even that can, can be different in every person. But it's a connective tissue disorder and it's collagen and elastin that are always inflamed in your body. So you have this ongoing inflammation, but EDS impacts virtually every area of the body. **Michelle Oravitz:** Wow. **Katie Beecher:** It's really, really crazy. I have it, my daughter have it has it also. So I feel like a Guinea pig, you know, having, and then I can help a lot more other people, which is. Is good. And then I end up helping a lot of families 'cause it's genetic. So people are like, oh, I didn't know I had it. That [00:13:00] sounds like my mom, but that sounds like my sister. Or, you know. But the thing about it is that because your organs can be lax because there's inflammation, because all sorts of things and it screws up your hormones. It a million things that can be a real, a hidden cause of infertility. **Michelle Oravitz:** Wow, that's crazy. 'cause I've never heard about. **Katie Beecher:** Yeah, it's not uncommon. It used to be considered a rare disease and there's 13 different types, so all except the most common type are pretty rare. But the most common type is not rare at all. I pick it up all the time and it's been getting more media attention, which is good. Because doctors are really bad at diagnosing it. 'cause there's all these symptoms and so when you go to a doctor, usually all insurance allows them to pay for, is that one symptom? Like, which is crazy because you need to look at the whole body  to  **Michelle Oravitz:** Wow, that's so crazy. And what could you do about it? **Katie Beecher:** So, you can't [00:14:00] cure it, but there's a lot you can do. And so a lot of it is like testing for histamine sensitivities, for example, histamines come into it. They do all sorts of different, you know, testing for autoimmune things and just that kind of thing is, is valuable. But what was the most helpful to me in my treatment was getting to work with physical therapists who were specialists in EDS. And I was able to see like which parts of my body were really stiff. 'cause you can be stiff, not just  flexible, right? It all, it moves around your body all the time. 'cause your tendon ligaments are going like this. And so what was tight? What was loose? What was weak? Was strong. Different sides of the body are different. It ex like it can show if you have a, a loose area, other areas get tight to overcompensate for it. So, I've been able to like do things like before I do my pole dancing and aerial arts and stuff like [00:15:00] that. There's certain exercises and things that I need to do in order to not injure myself again. And even things like, it makes you more susceptible to bone density issues, right? Because it does, it can't, you can't hold up your muscles and bones with loose ligaments. So there's a lot of things. And in terms of pregnancy, right? People with EDS are more prone to things like placenta previa and all sorts of different complications, even like miscarriages and stuff. Implantation issues, just all kinds of things. Endometriosis, so many things. But during pregnancy, as you probably know, our ligaments and our hips loosen up anyway, right. So if the doctor knows that you have EDS, there's things that they can do, exercises they can give you, things that they can do to, you know, watch for. And also like maybe if things are really loose, you might need a a cesarean, you know, before another person would, or [00:16:00] even like. Anesthesia, for example. People with EDS, sometimes anesthesia works, sometimes it doesn't work, sometimes it works too much. So it's, you know, those kind of things that you can kind of prepare for knowing what conditions people  **Michelle Oravitz:** Could it impact like an incompetent cervix? That's, uh, so that's another one. You'd get a cerclage to keep it closed. **Katie Beecher:** Exactly, exactly. Yeah. It affects the whole body, 'cause connected tissues everywhere,  including the brain.  **Michelle Oravitz:** crazy. **Katie Beecher:** It is, it's really, and it's, it's so gratifying to work with people with it who have been told they have everything else, like fibromyalgia. Don't even get me started on that diagnosis. But, you know, that's what comes back a lot because  they don't know right, what the root causes are. And even like, like pots you know, like I said, histamine sensitivities, like there's so many side. Side things that are basically created when we have inflammation and when  our organs aren't doing what they  **Michelle Oravitz:** It can impact your gut. I mean, it [00:17:00] impacts so much. **Katie Beecher:** huge. Yeah. And the earlier you get diagnosed, the better. And my daughter and I have this running joke. Oh, it's EDS, you know, but I wasn't diagnosed until my fifties and she got diagnosed when she was 25. so  **Michelle Oravitz:** so crazy. Wow. That's actually eyeopening. 'cause it's not something that I've heard. I, because I, I see patients all the time. They're always giving me their doctor's diagnosis. I would've remembered it 'cause it's a very unusual **Katie Beecher:** Right, and there's a spectrum, so it, there's hypermobility and then like everything else, it's a spectrum. So even if you don't have full blown EDS,  **Michelle Oravitz:** Yeah.  **Katie Beecher:** person, it, it can still affect you. **Michelle Oravitz:** Are there any functional medicine approaches that can help it inflammation?  **Katie Beecher:** like definitely, you know, supplements that help with inflammation  and, you know, natural stuff. There's a a  **Michelle Oravitz:** Or even collagen, taking collagen or like bone broth. I don't **Katie Beecher:** yes.  **Michelle Oravitz:** are the things that I think off, off **Katie Beecher:** [00:18:00] Yeah. It's kind of a mixed bag because part of it is that we don't process collagen. **Michelle Oravitz:** Oh, I **Katie Beecher:** Right way. However,  I find taking collagen very helpful.  **Michelle Oravitz:** Okay, got It It could be also, like certain people might benefit, certain people might not. It's kind of like a, it's not a one size fits all, even if you have it. **Katie Beecher:** exactly. And like I use dma. Which is kind of a weird little thing, but I use it for hair growth, but it also is silica, so it helps your bones and, and you know, and then um, there's a supplement I like called Liga plex too, which also helps with adrenals 'cause it messes with your adrenals, messes with your nervous system, the whole whole thing. A lot of people with it are neuro neurodivergent links, eating disorders. It's, it's really, wow. really, because you don't have a. Sense of your body. So your your proprioception is off and your body image is off, and  **Michelle Oravitz:** That's interesting. It's so crazy to me [00:19:00] because um, you know, so many people go through these things and they think it's their fault. They don't realize that there is another explanation kind of lurking underneath that is causing them to feel the way they're feeling and they feel the shame and kind of guilt for getting to the place that they're getting to, but they just don't realize why. Mm-hmm. **Katie Beecher:** My daughter actually just from me being me, you know, and then the, she has the same and different symptoms, even though we have the same subtype of EDS, but she actually went to her doctor and. Told the doctor all about this stuff and the doctor's like, well, that's too rare. That doesn't, you know, it really even barely ever happens. And you know, the, just gave her medical gaslighting. And thankfully I have two stubborn adult children who, you know, she went to somebody else who had more of a background in it. She got officially diagnosed, she went back to that doctor, **Michelle Oravitz:** Yeah. Good for her because sometimes that's so frustrating. Yeah. Yeah. **Katie Beecher:** She was like, uh, this is what I have, and you told me I didn't. And like, you really need to know [00:20:00] more so you can help other people. And the  **Michelle Oravitz:** Right. Yeah, it's good. It's good. I like it when that happens. 'cause it's not, not to sort of, it's more to, to educate them like I to come back. 'cause patients educate me all the time. Like I think that as doctors, you need to let your patients educate you because that's how you learn, that's why it's called a practice. You have to connect and really listen to your patients if you really wanna become a good practitioner. In general. Yeah, **Katie Beecher:** Yeah. And I think the best practitioners have medical intuitive abilities. **Michelle Oravitz:** true. And I'll be honest, it's interesting because like, I definitely have always been sensitive. I do think that I'm intuitive. I don't like, uh, it's not something that I kind of go forward with, but it's true. Like people that work with me know that, but. I will never override another person's intuition. So if somebody tells me they don't feel right about a supplement, even if the textbook tells me that is the perfect supplement for them, I [00:21:00] will say, listen to your body. That's always, just listen to your body, you know best. And I think that, I think that that is just kind of like a do no harm. You have to really respect the person's inner intelligence that they only connect with. **Katie Beecher:** Yeah, and teach people how to trust it, like as accurate as my guides are, and it's really amazing. I tell people I don't want. You to trust my intuition over yours. Like I want you to consider what I'm saying, but it doesn't mean that like I wanna teach you how to develop your intuition. I wanna  teach you how to talk to your spirit  **Michelle Oravitz:** Well, that's your book. Your book talked a lot about that. It was like empowering your own in innate intuition. **Katie Beecher:** Exactly. And we do need other people. We do. You know, 'cause we have blinders and we have fears and all kinds of stuff that can get in the way in our own agendas and you know. **Michelle Oravitz:** Yeah. **Katie Beecher:** But I think when you talk to people and they think about times when they're in, when they trusted their intuition, they can be like, like miraculous things [00:22:00] happened. **Michelle Oravitz:** It's true. It really is true, and sometimes it's interesting. Sometimes in order to trust your intuition, you're actually. Given a very difficult choice to make. You have to like do something that is hard to do or like go against people's opinions or go against what your initial expectation was, but then it becomes so worth it, it it, you start to realize there's a reason for that. **Katie Beecher:** Yeah, I totally agree. And it's, if I hadn't gone through some of all of the stuff that I've gone through, I wouldn't have learned how to, you know, develop and trust my intuition and my weird abilities. And it was really through that diversity and. I like to tell people that other people's pain or your own pain might be the greatest gift you've received. It doesn't make it any easier, but you know, if you can respond to it and figure out what you need to do to take care of yourself and maybe learn to trust spirit instead of feeling [00:23:00] alone all the time, like. There's so many benefits to it that yeah, even though it's not an exact science and you don't always  trust it, you  **Michelle Oravitz:** Yeah, everything's so unique. I think that that's like on earth, like every person is so unique. Every path is so unique. Even if you have like this, a similar type of path, it's still unique. You were just talking about uh, EDS and how it's unique with every person that has it. And the same thing with fertility. So like people going through that, you know, going through those challenges, it's like any kind of challenge in life really. You know, where something is there. To guide you. I've seen it. I've talked to enough people. I've been doing this in, you know, the podcast since 2018. I've talked to enough people to hear stories and how their end, like the end point. They always look back and they're like, I wouldn't have changed it. But when they're in it, they're like, I don't want this. But then afterwards they're like, oh, wow. Now I see. It's like hindsight shows [00:24:00] you the reason. **Katie Beecher:** A lot of the time too, I find that people have, who are having fertility issues, they have really difficult people in their lives or they hate their job or something like that. So it requires setting boundaries. Especially if you know, you and your partner don't agree on some really important parenting issues or values or what I see a lot too is people who are concerned about their parents or in-laws. And how they're going to be with their children. And so it can be an amazing opportunity to stand up to them and set limits with stuff. Maybe you would've taken from your own parents or an in-law for yourself and you're like, no way you're treating my kids like that. Or saying that around my kids are doing, you know? I got a lot ballsier for sure when I had kids and I. **Michelle Oravitz:** Yeah, yeah, yeah. You, and then that's really, I think that that's one of the things, [00:25:00] like, I feel like fertility challenges set you up for parenting because you, you start, you start with advocating for yourself, and eventually you're gonna have to make very difficult decisions with kids and advocating for them, even in the medical com, you know, system. I, I've had it for many things. Doing things that, uh, is a little outside the box. I didn't want fluoride, my kids' teeth, and people look at you sideways, but now it's coming out that it's not good. And not being political, like I'm just saying in general, like in general, it's coming out that fluoride is not good for you and it lowers the IQ of kids. It, it is what it is. Yeah. **Katie Beecher:** I know it's, and that's, I know so many challenging things because yes, it benefits teeth, but oh my God, all the other stuff. **Michelle Oravitz:** Yeah. And there are other things that can benefit the teeth. Uh, vitamin D. Yeah. So many things. So, so it's kind of like that, like it doesn't [00:26:00] end, you know, these challenges never end. And I think that what you're saying is so important, like really setting boundaries and standing up for what you know to be right. It's really listening to your heart, your integrity, and kind of like staying in your integrity. I feel like that might be difficult at first, but it actually makes your life easier. **Katie Beecher:** Does. Yeah. **Michelle Oravitz:** It's kind of like the the trick thing that people don't realize. **Katie Beecher:** No, I, I tell people it's like training a dog, like you're setting boundaries with your dog so that they don't, you know, pee in the house or  they,  you  **Michelle Oravitz:** be happy later. **Katie Beecher:** so, and that's, that's how you parent too, and that's how you deal with, with other people in your life.  You know, it's not a negative. Maybe it'll make people angry at you. You know, maybe temporarily, maybe not, but, oh, well, Yeah. Listen, if people are angry at you, when you're not doing something to intentionally hurt them and you're just kind of speaking your truth, then that's a they problem. Oh, it. **Michelle Oravitz:** You know? It's like, you know, you're [00:27:00] not like trying to hurt anybody. You're just speaking your truth. Then that's, you know, you can't, you can't really control that. And I, and I say you have to stand, definitely stand your ground. I agree with you. I mean, that's definitely a big thing. Do you through spirit babies, like get messages for things that they want their future parents to know? **Katie Beecher:** It works a lot of different ways, so, encourage,  **Michelle Oravitz:** Right. I think that's the theme for today. It's not a one size fits all. **Katie Beecher:** No. I get messages from children who who were not able to come through as healthy pregnancies. That's a good way to put it. Even people, and it's awful. If, if you've had an abortion and now you're trying to get pregnant, there's like can be so much guilt  **Michelle Oravitz:** It could be in mind off. I know. I, I've talked to so many people **Katie Beecher:** Right. So I talk to them. I also am able to talk to babies and children who are coming to them. And it's [00:28:00] fascinating because it's, it's often biological children, but sometimes it's also children who are going to come to people through adoption or. **Michelle Oravitz:** Yes. I just got the chills 'cause it's true. Like it that it's still your child. Yeah. **Katie Beecher:** Like, I see it all the time where there's a mom or a parent, you know, parental group, whatever you wanna call them. And there's this child on the outside and they're not necessarily a baby. And that's often my signal. My guides are like, this person needs to help whoever this is. That's they're gonna connect with whoever this is. And it may come to them, they're not expecting, you know, but, and as we know there so many kids who. In need of good parenting and, and foster care system's awful. And, you know, and all those things. and it is very delicate to bring up,  **Michelle Oravitz:** Yeah, it's true. It's true because, uh, people have their own plans.[00:29:00]  **Katie Beecher:** know, and, and of course they want biological children and of course, you know, so I, I totally get that. But I am honest with people when I do my readings and I'm just like, Hey. This is coming through,  **Michelle Oravitz:** I think you have to be 'cause you're a messenger and you can't change the message if that's what it is. And I had Dr. Lisa Miller on who had gone through, actually it was very interesting. She had gone through her fertility, like a fertility challenges and. Went through so much to try to conceive and she kept getting this inner voice come to her and say, if you if you can conceive, would you adopt? Or something like that. Like, I don't remember the exact sentence, and would you still adopt? And she was like, no, I, I want my own baby. And then it kept coming to her. And then at one point she just happened to be, I think I was staying at a hotel or somewhere where. [00:30:00] There was a program on kids that were orphans, and one of them was inhaling some kind of chemical and said, the reason that he does that is because he doesn't feel love. Like he doesn't have anybody that loves him. And of course, you know, anybody has a heart and hears that their heart breaks. But for her it was like this next level of, uh, wow. Like it really shook her. And at that point it was, it. It was her and her husband, and there was a reason why the TV couldn't work and it had to be on that, and they ended up adopting in that. And the night before she went to adopt, I think it was outside of the country, she heard the voice again, the question come back to her, would you adopt if you can conceive naturally, would you adopt? She said, absolutely. And that month she also conceived. you know what I mean? And it was like those children were supposed to meet and be SI **Katie Beecher:** Yeah, exactly.  **Michelle Oravitz:** was just [00:31:00] the whole thing. So crazy. **Katie Beecher:** The person um, that I recently worked with, I saw a young boy and an older girl and I said, one of them is not going to come from you. And and I'm like. There's gonna be some child you hear about, or some show is gonna come on, or some program or something you come across on the internet, and it's going to open your eyes or open your heart to the possibility of adoption. It doesn't mean that you're not gonna be able to have your own. Biological person too. But yeah, I literally saw them together holding hands and it's, I get a lot of images through my, you know, with my guides. But I totally felt like, you know, she's like, I really don't even wanna go there. I said, I understand and I'm not telling you what to do. All I'm saying is look into the possibilities even doing a donor egg, because that might take that fear. of having, you know, a child [00:32:00] that is really disabled or something like that, you know, because, and I'm not, that's not a judgment call. She told me the first time she got pregnant, she had this overwhelming fear that there was something wrong with baby. **Michelle Oravitz:** Yeah, it was like that intuition. **Katie Beecher:** Exactly. And then it didn't, it wasn't viable, you know, so it turned out she was right. I  said, see, so your intuition's working,  **Michelle Oravitz:** Right. Although I just took this for people listening, just 'cause you have a thought like that doesn't mean it's gonna happen. There's a difference between fears and sometimes fears can trick us, but then there's also intuition and that is real. Like it's a, it's a, it feels different. **Katie Beecher:** It's true. And, and especially, I mean, any new mom or anyone, time you, you know, you get pregnant of course. You're like, I would want this to go, well, this  **Michelle Oravitz:** Yeah, you're gonna, you, and sometimes your mind goes into all kinds of places. What if it happens like this? Or that doesn't necessarily mean it's your intuition. Yeah.  **Katie Beecher:** Yeah.  There's a difference between fear and I. Yes.  **Michelle Oravitz:** It's happened to me before. Yeah. No, no. 'cause I know, like my, I, I know myself. Like if I, you know, I'd be like, oh [00:33:00] my God, well if I feel that, does that mean that it's real? And, it feels like that. Yeah, for sure. Like when you're actually going through it. But sometimes you do have like this real strong nudge, like knowing which is different. But again, it's harder for people who don't like, do what you do to really distinguish the, Difference. How can people, actually, that's a good question. How can people figure out what's my intuition and what's my fear? be a perfect person to ask. **Katie Beecher:** sot book I. And it talks about all of this stuff, but I really, I'm glad that you mentioned it because people will say to me like, how do I know it's my intuition or not just a voice in my head or something I made up right? Or fear or whatever. So what I tell people is, whatever you get when you're communicating with intuition, just allow it to be there. Write it down. It's a written technique thing. Write it down. Just allow it to be there without judgment, without fear. And then if something does come through that's scary. Then address [00:34:00] that and just be like, okay, hello voice. You know, what is this thing that I'm really afraid of? Why am I afraid of it? What can I do about it? Is this an intuitive feeling or is it just a fear? You know? So that way you are not pushing it down,  **Michelle Oravitz:** Mm-hmm.  **Katie Beecher:** addressing it. **Michelle Oravitz:** Right. Right. That's a good point. 'cause sometimes we'll push it away. **Katie Beecher:** Right. And this way you can problem solve. Like I'm, I'm really afraid you know that there's gonna be something wrong with baby. And then, so that may prompt you to be like, okay, ask your doctor if there are tests that you can do to, you know, so  **Michelle Oravitz:** you  can be proactive. Yeah. **Katie Beecher:** You know, like in my own case, I felt like something was off. We had an amniocentesis and it,  gonna get into this whole thing, but it showed like a potential, really like huge problem, like. Like still a born person. Yeah. It was really, really scary. And the doctor's, like, most of the time we don't even find this this thing with the cerebral spinal fluid, unless there's an autopsy and it [00:35:00] like, doesn't affect most people, but, but it could be worst case scenario. So they're like, you can do nothing or whatever. And I'm like, no, I want the amnio. I wanna know, do the genetic testing. And, and it was torture because at that time it took a month. Sales. But I was glad I did 'cause they're like, everything is normal.  So, yeah. And you could carry that fear or you could be like, I'm gonna do something about it and find  **Michelle Oravitz:** Exactly. Exactly. Yeah. And that's where you're being guided to resolve and that's, that's what I like about how you approach this is because you approach it from a very realistic way where you're actually using action in order to, but also intuition and you're bridging the two. **Katie Beecher:** Yeah, I like to give people actionable steps. You know, and okay, yeah, all these things are happening and you can't control them and it feels awful and you don't feel like you have any power, and, but what kind of things can you do? Even if it's just not just, even if it's, you know what? I can't control what's [00:36:00] going on right now, but I need to go take a walk, or I need to go work out, or I need to go do something creative to calm down my nervous system. Let out the stress that is an actionable response. **Michelle Oravitz:** Yes, that is true. And your nervous system. I am obsessed with the nervous system. I talk about it a lot because it's an information, it's an information system. So basically it's an antenna like, and if it's not if it's chaotic, you're not gonna get the message. It's static. **Katie Beecher:** Exactly. **Michelle Oravitz:** You need to regulate it. And that's part of the whole reason why I think stress is, you know, is such a factor. We're constantly fight or flight. We need to even it out and kind of take the other, you know, the other balance of rest and digest and kind. I think that when we do that, we're able to get the messages more clearly. **Katie Beecher:** Oh my God. Yeah, absolutely. Even my, you know, my own self if I'm feeling out of it or whatever, I'm just like, you can't go into your reading list this way. You know, you can't create your report and painting and all that. So you need to go do something to [00:37:00] chill. **Michelle Oravitz:** Yeah. **Katie Beecher:** Be in a better space. So yeah, it's not just regular people, it's also people who do this for. **Michelle Oravitz:** Oh, it's every person. Every person with a nervous system. And it also puts you in a more creative, like when your nervous system is balanced, you're also more creative. You're able to be more creative. And what is fertility? It's your physical body's creativity. **Katie Beecher:** It, it is so true. And our bodies are just so tuned in to what we are thinking and feeling. A, a quickie uterus story this actually happened to me, so going through a bunch of really intense stress with husband's job and stuff like that, so life was really freaking chaotic and I had been painting every day and I'm like. I just lost the desire and I don't paint like black daggy things anyway, so I just was like too depressed to do anything. And ended up having really bad abdominal pain for a full year. Really bad ing abdominal pain like in, in bed. [00:38:00] Never knew when it would start and like crazy. 8 million tests of course, and no one could really find anything. They did take my appendix out and found a cancerous tumor on my appendix. **Michelle Oravitz:** Oh wow. **Katie Beecher:** A rare cancerous tumor. So that obviously needed to come out. Um, So that was a good thing from all this crazy. But ultimately the doctor was finally like, okay, your uterus feels weird. And so I'm like, I, I've had my children. Well, I'm not doing this pain anymore. Please just, you know, let's end this. So, woke up from the surgery and she said, we had to take one of your ovaries too. I'm like, okay. And she said, I've never seen this before in anyone. I'm thinking, yeah, it's me. My, my fallopian tube had wrapped around my uterus, **Michelle Oravitz:** Oh my God. How can they not see that in the ultrasound? **Katie Beecher:** well, it was adhered to it, and I guess the angles, it  just  didn't, didn't show up. But I was like, I know exactly what that is. That is me. I cut off my creativity. I cut off that [00:39:00] connection to myself, so my body responded by literally choking off. Center, which is  **Michelle Oravitz:** Wow. Isn't that crazy? That is so crazy. But I see stuff like that a lot. Like, you know, a thyroid or like throat. Conditions. And the people also at the same time have a difficulty expressing themselves to the most pivotal person in their life. And you know, and sometimes just releasing that and all of a sudden tears and things come out, our bodies, you know, it's like that book. Uh, your body keeps the score. true. **Katie Beecher:** It, it's, and you know, Carl Young and other people like that have been talking about it for, I don't know, long, long, long time. And now just we're, we're just catching up now. **Michelle Oravitz:** Yeah, and it also gives you symbols. It'll give you like a reflection of metaphors. **Katie Beecher:** Exactly. Exactly. Yeah. It's, it's really fascinating and like, I like to teach people how to talk to your uterus, talk to your eggs. You know, talk to your [00:40:00] hormones, whatever's going on, and treat them as your friends. Not something that you hate or that is broken, or that you have to obsess about or even fix. Of course, the goal is to heal. But, and I did this with healing from my eating disorder, was, what do you need from me? Why is this happening?  **Michelle Oravitz:** Mm-hmm.  **Katie Beecher:** are there things I need to change in my life? What are you trying to tell me? How can I help you heal? So, treat it like a team member **Michelle Oravitz:** Yeah, I **Katie Beecher:** that is in it with you that's helping you make changes rather than feeling like it's foreign  or you're out of your body. You hate your body. It feels  like  it's.  **Michelle Oravitz:** thing. It's that, that kind of myth of the separation. **Katie Beecher:** Exactly. Exactly. So that takes so much of the anxiety out of it also. 'cause you're like, okay, I do have [00:41:00] some control over this. It's not just this, my body that's doing all these things that I don't want it to do and can't understand. Like  **Michelle Oravitz:** Right. It's, it becomes more whole, like you feel more wholeness. With that, it becomes more complete. There's more closure too because you're allowing whatever it needs to be expressed to express itself. I remember seeing Dolores Cannon, I'll see sometimes like reels or different things and she was talking about how your cells in your body, like look at you kind of like your executive function as a God and like whatever you say, it's like, oh, that must be true. And that's really how your subconscious mind works and that's why hypnotherapy works because it's kinda those suggestions. Ultimately come from the top. Your conscious mind can make those choices and then repeat it, repeat it, repeat it until it gets into the subconscious mind. Your body and your cells are part of that subconscious mind. **Katie Beecher:** It's true. And even just I'll be, you know, freaked [00:42:00] out about something, whatever, before I go to poll and, I'll have a great class burn off all this energy and I'll come back and be like, what was I even thinking about? Or a totally different perspective what was bothering me before. So, so much is our mindset. **Michelle Oravitz:** Yeah, it, it really is everything. 'cause it's like how we experience our world and you could take like 10 different people with the same exact life and they'll experience it differently. **Katie Beecher:** Yeah, it's, it's so true.  Um,  **Michelle Oravitz:** have choice. **Katie Beecher:** we do, so I'd like to encourage people who are dealing with fertility difficulties to not see their body as the enemy. To be open to all sorts of possibilities. When we release some of that anxiety and stress, we're more creative, like you said. So maybe you, you think of a, a problem solving strategy that no one's brought up before, you know, or that you haven't, [00:43:00] or maybe your body will be like. Oh wait. I thought it was this, this, and this, but maybe I need to have my hormones checked, or maybe the testing wasn't accurate or maybe like it just frees you up  to  **Michelle Oravitz:** Yeah.  **Katie Beecher:** more answers. **Michelle Oravitz:** I see it a lot of times with my patients. So what you're saying is actually very accurate, like. I think that once people, and I see it also once they do acupuncture or like dirt, certain practices, they'll start to uncover things and they'll get ideas and they're like, oh, that's interesting. Somebody said some, something about that. Or they'll listen to a podcast and hear like the guests and they're like, oh my God, I think that that's my route. And it just kind of, they start to align and then find answers. So  **Katie Beecher:** I mean, being a control freak, which I'm guilty of you **Michelle Oravitz:** All of  us.  **Katie Beecher:** freakiness. Right. And anxiety just, it interferes more than we realize, and it's almost like people are addicted to anxiety, **Michelle Oravitz:** Oh, 100%. Joe [00:44:00] Depen always talks about that, and it's true, like you could, you could be addicted to stress and like the adrenals and the, and you could get addicted to the hormones that anxiety and stress. Give you, you just are so used to it that that feels normal. And that's why, you know, abusive relationships you'll tend to gravitate 'cause that feels normal. **Katie Beecher:** And also if you're stressed out and your life is chaotic, it's impossible to think about your own needs and your own goals  **Michelle Oravitz:** Mm-hmm.  **Katie Beecher:** your own issues. So it's a way of avoidance, like every addiction is, you know, it's a way of avoiding stuff that you need to take care of or that's painful or whatever. So it's really sad that that people sort of. Choose that route, when they do have choices, it's not, not making people out to be, you know, that they're, it's their fault or anything. But we do have a lot of choice in, in what we do and how we interact with people. And just setting boundaries or not is a great [00:45:00] example, you know. **Michelle Oravitz:** I agree. I mean, I think that finding, figuring that out and kind of realizing that we actually have so much more power over our lives. I think that that's like that first step of empowerment. You're like, oh, wow. So I think that absolutely, it's true. We do have choice. Yeah. **Katie Beecher:** Right. And even like now, it's a bit of a crazy time. You know, and, and I'm sure a lot of people are feeling like. I can't change a society or, or a government, no matter what side you're on, whatever, you know, but there's too much there and I have no power. And it's, even fertility is just such a huge issue, right? But if you start being like, what can I do to take care of myself? What can I do to control my issues or when I feel like I'm spiraling? And then. Maybe I have more power than I think in terms of like getting together with like-minded people or fighting for your issues or you know, [00:46:00] something. So I just, that powerlessness is just such an awful feeling. **Michelle Oravitz:** it is, and it it all has a place too, in some weird way to teach us or to bring us back to ourselves. I always kind of have the belief that all roads lead to the light. ' cause eventually, even if it's like a really tough time, it'll eventually lead you to some kind of light. **Katie Beecher:** That's very true. And also on the subject of control, I like to tell people it's not all or nothing. So it's not like you're in control mode, all obsessed. You know your agenda. And the only alternative is to totally step back and give all that up. The way that I like to describe it is spirit intuition. It's there as a helper and letting it, like I recognize myself if I'm going too hard on an agenda or forcing something, whatever, and I can just be like, okay, this isn't working. So step back, allow intuition to come into your life [00:47:00] as a protective guiding force, and it tells me when I need to take action and what I need to  do. It gives me ideas. It helps me problem solve, so I'm not giving up any control. I'm gaining more by letting Spirit into my life. **Michelle Oravitz:** I love that. I think that's so important and I, I'm very spirit forward. It's like my, I, I can't do anything without my, I call them like my invisible assistants, and I'll tell you like when you lean on them or him, I, you know, whatever it is that you feel connected to. I see them as his team, you know, but, but yeah, I, whenever you lean on that intelligence, it always shows up. Like it almost always shows up like in incredibly miraculous ways. And I see it with my patients. I see it with my clients. Like that's the crazy thing is like the, the stories that I hear all the time. So it's real, like it's legit. And, uh, I think [00:48:00] it's so cool. So. For people listening now and they're like, okay, I wanna work with Katie. Like how, what kind of offerings do you have **Katie Beecher:** Sure. So I basically do two types of readings. One is what I call a full reading. And it comes with a four page report and an intuitive soul painting  and.  **Michelle Oravitz:** that. I think **Katie Beecher:** I know just with the name and age, I prepare the full report and the painting. I send it to them. We meet for an hour, we discuss everything I've sent and then a million things, more people can ask whatever they want and more stuff comes up. And then I also have an offering for just an hour without the report and painting. So it all depends on kind of what people want and what they can afford, and, you know, stuff like that. They're both effective. And I do sometimes offer a 30 minute too, although it's not on my schedule,  but it's an option. So yeah, those are basically the two. And then if people even like, they have questions about what we [00:49:00] talked about, I encourage them to email me after. So it's not just like you have a question, you have to make an appointment after I. **Michelle Oravitz:** That's **Katie Beecher:** Yeah, so because we talk about so much everything, emotional, physical, spiritual, that's impacting you in a positive or negative way, we talk about it. So it's a lot. But yeah, it's a pretty amazing process. I also teach people how to connect to their intuition and their bodies during the visit if that's something they wanna do.  So,  **Michelle Oravitz:** And how can people find you? **Katie Beecher:** So the easiest way is my website, katie beecher.com. but  **Michelle Oravitz:** Mm-hmm.  **Katie Beecher:** Instagram and Facebook and, and all of the  **Michelle Oravitz:** I follow your Instagram. I love her Instagram. It's so cool. And I love all the, all the things that you do. Like, uh, all the, what was it? The poll work. I think that's so cool. That's hard. That's not easy. That it, it's not as easy as it looks. I could tell you that. You, you have to use a lot of core. **Katie Beecher:** You use your whole body. It's really crazy. And when you have EDS, movement is [00:50:00] one of the most important things you can do. What I do is a bit extreme and I've had injuries because I've dislocated things, but still the best thing I've ever done for myself. And I really encourage movement for stress relief and  **Michelle Oravitz:** Yeah. Well, good for you. It's amazing. So thank you so much, Katie. This is, uh, it's always a pleasure talking to you. I really enjoy it, you know, it's really fun and I think it's important too. It's important. I really love talking about connecting to that, like the spirit or energy, you know, I think it's so important. I think it's a lost art. In a way, because we've gotten so just into science now we're coming back. Now we're bridging it, which I like. **Katie Beecher:** Yeah. No, I agree. I. **Michelle Oravitz:** Mm-hmm. **Katie Beecher:** Because you're letting your guard down in a way,  **Michelle Oravitz:** Yep.  **Katie Beecher:** you know? But  **Michelle Oravitz:** But that's where the power is. That's the portal. All right. Thank you [00:51:00] [00:52:00]   

From a very unexpected pregnancy to navigating a challenging first birth experience, Shannon joins us today to share the steps she took to achieve a successful VBAC. Shannon describes pregnancy with Ehlers–Danlos Syndrome and insufficient glandular tissue (IGT). She was able to seek support and get the proper progesterone supplementation with her second pregnancy to help with her breastfeeding goals. Though she hadn't had a prior history of high blood pressure, Shannon was medically induced at 38 weeks for high readings. With the help of her incredible doula and a patient team, Shannon was able to make wise decisions around her induction plan. Her labor was over 48 hours, but she pushed for just 30 minutes! Even with some tearing and postpartum hemorrhaging after birth, Shannon has been thrilled with her VBAC outcome and postpartum recovery this time around.How to VBAC: The Ultimate Prep Course for ParentsThe VBAC Link Doula DirectorySupport this podcast at — https://redcircle.com/the-vbac-link/donationsAdvertising Inquiries: https://redcircle.com/brands

Join us for a deeply moving conversation with Ashley Spalla, as she recounts her extraordinary journey living with Ehlers-Danlos Syndrome and hip dysplasia. From a seemingly benign basketball injury in college, Ashley quickly found herself facing a challenging medical path that culminated in 49 surgeries over a decade. Her story, filled with determination, resilience, and hope, offers valuable insights not just into the challenges of navigating chronic illness, but also the importance of advocacy, community support, and self-empowerment.Ashley passionately discusses how her struggles led her to a fulfilling role as an advocate for others experiencing similar challenges. Discover her work with Miles for Hips and how she is committed to raising awareness and improving the patient experience in the healthcare system. She speaks candidly about her experiences with medical professionals and the crucial lessons she learned along the way, emphasizing the importance of seeking second opinions and being an active participant in one's own healthcare journey.Moreover, the podcast explores Ashley's love for adaptive sports, highlighting how her passion for skiing has brought her joy and a sense of freedom despite her physical limitations. Listeners will find inspiration in Ashley's perspective: that living with chronic illness doesn't mean giving up on your passions – rather, it can lead to discovering new avenues for joy and personal growth.Through her heartfelt story, Ashley invites you to connect, reflect, and perhaps share in the triumphs and trials that accompany living with a chronic illness. It's a conversation that speaks to the core of what it means to overcome adversity and emerge stronger on the other side. Don't miss this uplifting episode filled with wisdom, humor, and hope! Subscribe, share, and connect with us in our communities!Send us a text Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.Let's Get Started - Rare Patient Voice Support the showSupport:https://rarepatientvoice.com/Myspooniesisters/https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)Website:https://myspooniesisters.com/ Discount Codes: GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off

HEY GUYS, Kelly has Ehlers Danlos Syndrome, The gang goes to the foxfire room, the upcoming trip to Vegas, Kelly's Sugar Baby Date, Searching your phone at the border, the country pronouns song, San Jose womens volleyball, Guns, and getting killed by your spouse. Join the conversation and leave us a comment below or call the hotline at 323-272-3908

Today we discuss: Cerebrospinal Fluid (CSF) leaksAgenda:  1. Dr. Cardenas: Tell us your story!  2.     So, what is a CSF leak? a.     What is leaking? From where? Why do leaks happen? b.     Common symptoms? Uncommon symptoms? c.     Why don't more people know about this?  3.     Okay, so let's go back to basic anatomy & let's go from general to specific- talk to us about: a.     connective tissueb.     vasculaturec.     central nervous system flow: CSF, lymph, bloodd.     Relationship with bones like CCI, Eagle's, others?e.     Relationship with the vasculature/ flow in the rest of the body like pelvic venous congestion 4.     How do we evaluate for this?b.     Imagingc.     Blood patches d.     Embolization  5.     How do we TREAT this? a.     Immediate: Blood patches/ embolization/ pressure adjustments (meds, etc) b.     Counter facial strain. What is it & how does it help? Role for other physical tx like PT/ chiro?Bio: Dr Brianna Cardenas is a Physician Assistant, a certified athletic trainer and the founder of Healed and Empowered, an organization that specializes in optimizing health among those living with chronic illness. She has recently joined the team at NeuroVeda Health where she brings 13 years of healthcare experience. She is also a patient living with Ehlers-Danlos Syndrome, an “invisible” condition that can be hard to diagnose and often discounted by healthcare providers as a result. Brianna's lived experience as a patient informs her work as a healthcare provider to others.Bio: Dr. Maxwell is a Board Certified Pediatric Cardiologist and Pediatrician. He received his medical degree from Johns Hopkins Medical School and a Residency in Pediatrics at The University of California at San Francisco followed by clinical and research fellowships in Pediatric Cardiology at Lucile Salter Packard and Stanford Hospitals and Children's Hospital of Philadelphia. His research interests include study of endothelial control of vasomotor tone, nitric oxide, sports cardiology, dysautonomia, hypermobility syndromes, & mast cell activation syndrome and their relationships to environmental toxins. For his research he received an American Heart Association Award for Research in Molecular Biology and was an American College of Cardiology Young Investigator Award finalist. He has published many articles and book chapters on these subjects. For his clinical work, he has been voted by his peers as a Top Doctor in Northern California annually since 2017.Resources/ Links/ Articles: ·       https://www.eds.clinic/articles/spiky-leaky-syndrome·       https://www.medicalandresearch.com/current_issue/1962

This episode shines a light on the tricky subject of parental burnout, which isn't widely discussed in relation to the challenges of raising neurodifferent kids. Mark chats with the magnificent Liz Evans of "The Untypical OT Talks" podcast, who is a parent of a 14-year old boy (undiagnosed neurotypical) and a 13-year old boy (diagnosed autistic, with sensory processing difficulties and suspected Ehlers Danlos Syndrome). Liz discusses her own experiences of parental burnout, and shares her knowledge of how to spot the signs of impending burnout, before offering guidance on strategies we can implement to avoid it happening to us - because let's face it, many parents of neurodivergent kids are constantly dancing around the edges of it.   LINKS TO STUFF WE MENTION IN THIS EPISODE: Together For Send Conference, Bristol - https://www.bristolparentcarers.org.uk/events/togetherforsend2025/ The Untypical OT website - https://the-untypical-ot.co.uk/ The Untypical OT podcast - https://open.spotify.com/show/0L6K6RwcErY5Z9tggI40F3?si=d32fc06ab7ca4c60 The Untypical OT podcast (Heidi Mavir episode) - https://open.spotify.com/episode/49CtSzTKt8WStCL6bo8d5h?si=gVjZWlSgSj23eHJoMIGxWA Workplace Burnout - https://www.who.int/news/item/28-05-2019-burn-out-an-occupational-phenomenon-international-classification-of-diseases Brené Brown short film on Empathy - https://youtu.be/1Evwgu369Jw?si=nRHnjrN2pb4jZ-W7 Super Good Bikers For Autism - https://www.supergoodbikersforautism.com/ The Stimming Pool - https://www.thestimmingpool.com/     CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you've been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn't Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Petra Klinge, a renowned neurosurgeon specializing in tethered cord syndrome (TCS), Chiari malformation, and cerebrospinal fluid (CSF) disorders. They dive deep into occult tethered cord syndrome, a condition where MRI scans appear normal, yet patients still experience neurological symptoms, chronic pain, and bladder/bowel dysfunction. Dr. Klinge explains how tethered cord affects EDS patients, the role of connective tissue disorders, and what makes someone a good candidate for surgery. Whether you've been struggling with undiagnosed spinal issues or are considering tethered cord release surgery, this episode is packed with valuable insights and cutting-edge research. Takeaways: Tethered Cord Can Be “Occult” (Hidden on MRI) – Many patients with classic tethered cord symptoms are dismissed because their MRI appears “normal.” A clinical diagnosis is key. EDS Patients Are at Higher Risk – Changes in collagen and the extracellular matrix make individuals with Ehlers-Danlos Syndrome more prone to tethered cord syndrome, which can be congenital or acquired. Tethered Cord Syndrome Affects the Entire Spine – While traditionally thought to impact only the lower body, new research suggests TCS can cause upper body pain, weakness, and neurological dysfunction. Surgery Isn't Always the First Step – Physical therapy, craniosacral therapy, and manual techniques may help some patients, but progressive neurological decline may require surgical release. Retethering is Possible After Surgery – Around 7% of patients may need a second surgery due to scar tissue reattaching the spinal cord, but new surgical techniques are improving long-term outcomes. Articles referenced in the episode: https://pubmed.ncbi.nlm.nih.gov/38489815/ https://pubmed.ncbi.nlm.nih.gov/38202013/ https://pubmed.ncbi.nlm.nih.gov/35307588/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Petra Klinge Website: https://www.brownhealth.org/providers/petra-m-klinge-md-phd Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, I have the pleasure of chatting with Jayne Mattingly, an inspiring figure in the realms of chronic illness and disability advocacy. We dive into the concept of body grief and explore its seven stages, offering insights and strategies that can resonate deeply with those living with multiple sclerosis (MS). Jane shares her personal and professional journey, highlighting how acknowledging body grief can lead to healthier coping mechanisms and a more resilient approach to managing chronic illnesses. Our discussion provides valuable perspectives aimed at improving your quality of life with MS while navigating the challenges it may bring. Tune in for a heartfelt and insightful conversation filled with expertise and encouragement for your MS journey! About our guest: Jayne Mattingly, 33, is an Eating Disorder therapist turned, Chronic Illness and Disability Advocate, Author and Body Acceptance social Media Influencer and Artist. Jayne is a leader who speaks up for those that are disabled, chronically ill, struggling with eating disorders, and/or mental illness. Her vulnerable, open, and honest content breaks barriers for those who are left out and unseen in an ableist-focused world. She holds a Master's Degree in Clinical Mental Health Counseling from The Chicago School of Professional Psychology, specializing in eating disorder recovery and body image struggles. Jayne candidly shares her learnings, hardships, and growth, all while breaking stigmas and normalizing body grief. Her content, mission, upcoming book; This is Body Grief (published by Penguin Random House) and newsletter, Body Grief (on Substack), non-profit, provide a safe space and support for an unseen and unheard community. Jayne is also newly disabled by her progressive and degenerative illnesses; Ehlers Danlos Syndrome, intracranial hypertension, and now a severe allergy to the metal that has been implanted in her body and as a result has had more than 19 brain procedures and total hysterectomy. She relies on her rollator, wheel chair and her service dog Wheatie. Jayne is a Chicago, Illinois, native and now lives in Charleston, South Carolina, with her husband and pets. Connect with Jayne: Website: https://www.jaynemattingly.com/ Resources mentioned in the episode: Jayne's book, This Is Body Grief - https://www.jaynemattingly.com/the-book Jayne's substack: https://jaynemattingly.substack.com/ Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: hello@doctorgretchenhawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

20% of the population is on the hypermobile spectrum and can struggle with chronic pain because of it. At the more extreme end of the spectrum is Ehlers-Danlos Syndrome (EDS), a genetic disorder that affects not not muscles and joints but the whole body in ongoing feedback loops. Perhaps most significantly, 80% of people with EDS have generalized anxiety. Most doctors or practitioners seeing people with vague symptoms from chronic pain, allergies, SIBO, IBS, brain fog, POTS, autoimmunity, anxiety, and more are often unaware that EDS can be the cause. Even less know about holistic ways to intervene in the cycle of dysregulation. So I spoke with a specialist in EDS, Dr. Derik Andersen to get some answers.In this episode we discuss:what is Ehlers-Danlos Syndrome?the mast cell activation and EDS cyclewhat are the symptoms and how can someone test themselves?why are anxiety and nervous system issues associated with it?research on the Autonomic Nervous System and HRVneurodivergence and EDSholistic treatment approachesfocused shockwave therapynutritional interventionsbreathwork for the nervous sustemwhat practitioners should knowBioDerik S. Anderson, DC, CPT, CSN is the Clinic Director of the Muscle and Joint Clinic in Northern California. He helps his patients be healthier by utilizing his education and personal and professional backgrounds. Dr. Anderson grew up wanting to help people and initially planned to go to business school to work in energy conservation. But, after a good friend's life was positively changed by chiropractic care, he had a change of heart. His friend spent two years with horrific intestinal problems and saw over a dozen providers, but no one could help her – until she saw a chiropractor. The chiropractor knew that the vertebra and muscles around them affected the nerves that controlled the intestines. After treatment, she was no longer bed-ridden and went back to teaching, traveling and leading an active life. Dr. Anderson realized that health care was his calling and his passion for helping people was channeled into chiropractic.Education:Life Chiropractic College West, Doctor of ChiropracticUniversity of California, Santa Barbara, Bachelor of Arts, EconomicsCompleted more than 1,000 hours of post-doctoral educationSports Nutritionist, CertifiedPersonal Fitness Trainer, CertifiedActive Release Technique, Certified 2011FAKTR, CertifiedMyofascial Decompression, CertifiedIronman® Healthcare ProviderThe Clinic: https://musclejointclinic.com/Resources:Dr. Jessica Eccles https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspxhttps://tmsforacure.org/ Links: Find videos and bonus episodes: ⁠DEPTHWORK.SUBSTACK.COM⁠Get the book: ⁠⁠Mad Studies Reader: Interdisciplinary Innovations in Mental Health⁠Become a member: ⁠The Institute for the Development of Human Arts⁠Train with us: ⁠Transformative Mental Health Core CurriculumSessions & Information about the host: ⁠⁠JazmineRussell.com⁠⁠Disclaimer: The DEPTH Work Podcast is for educational and entertainment purposes only. Any information on this podcast in no way to be construed or substituted as psychological counseling, psychotherapy, mental health counseling, or any other type of therapy or medical advice.

Carolyn McMakin, MA, DC - frequencyspecific.com/start Kim Pittis, LCSP, (PHYS), MT - fsmsports365.com In this episode of the Frequency Specific Podcast, Carolyn McMakin and her co-host Kim Pittis discuss various aspects of Frequency Specific Microcurrent (FSM), covering topics like the importance of realistic patient expectations, the challenges of being a perfectionist in the medical field, and detailed case studies.  They stress the significance of thorough physical exams and correct diagnosis, highlight the synergy between different practitioner techniques, and share practical advice for FSM practitioners. Other fascinating discussions include FSM's impact on complex cases like cancer pain management and its potential in distance treatments. 00:15 Bandwidth Issues and Presentation Prep 00:35 Case Study: Comprehensive Patient Care 01:36 Managing Patient Expectations 02:15 Challenges in Patient Treatment 03:44 The Importance of Accurate Diagnosis 04:50 Learning from Failures 05:21 FSM: A Versatile Tool for Various Professions 06:05 The Role of Proper Assessment in FSM 07:10 Addressing Misinformation about FSM 08:35 The Importance of Safety in FSM 09:10 Case Study: Knee Patient 11:21 The Value of a Thorough Examination 13:48 Teaching FSM and Ensuring Safety 20:43 Recognizing Patterns in Patient Symptoms 26:19 The Importance of Physical Exams 29:40 The Importance of Physical Exams in FSM 30:18 Understanding Shoulder Mechanics 32:58 Connecting Reflexes and Pain 35:06 FSM Practitioners' Unique Approach 35:32 Continuing Education and Assessment 39:59 Treating Terminal Pain with FSM 44:21 Distance Treatment and Magnetic Fields 47:30 Resources for Treating Complex Conditions 51:55 Upcoming Events Innovative Strategies for Medical Practitioners: Insights from Dr. McMakin and Kim Pittis Medical practitioners constantly face the challenge of meeting patient expectations, while also dealing with complex cases that require careful and innovative approaches. Dr. McMakin and Kim Pittis share their expert insights and practical strategies that can be integrated into your practice to enhance patient care and outcomes. **Patient Success: Beyond Perfection:** Often, as medical professionals, we aim for perfection in patient care. Dr. McMakin and Kim Pittis emphasize focusing on patient success stories and improvements rather than striving for absolute perfection. When patients see noticeable improvements, even small ones, it underscores the success of our treatments. Practitioners should guide their expectations realistically rather than reaching towards distant ideals, reminding us that achieving even partial goals lead to substantial satisfaction. **Comprehensive Patient Assessment:** Understanding the root causes of symptoms is paramount. In conversations, Dr. McMakin highlights that patient expectations might not always align with their medical history. Thus, it's crucial to pursue a comprehensive patient assessment. For complicated surgical histories leading to unexpected pain, examining both primary and secondary symptoms ensures a complete understanding of a patient's health. Emphasizing non-invasive diagnostic tools like urine dipsticks or physical exams can reveal larger systemic issues early. **Treating Chronic and Complex Conditions:** Handling patients with chronic pain or multifaceted conditions like Ehlers-Danlos Syndrome requires a multidisciplinary approach. Dr. McMakin and Kim Pittis discuss methodologies where frequent assessments, understanding diverse medical backgrounds, and maintaining patient dialogues are crucial. Particularly, strategies for using was frequency specific microcurrent therapy tailored to various starting points in treatment protocols. **The Role of Practitioner-Patient Communication:** Effective communication extends beyond diagnosing; it's about educating and involving the patient in their journey. Dr. McMakin stresses the importance of clear communication, delivering information in patient-accessible language, and providing written notes when directing patients to seek further medical imaging or tests. This not only strengthens patient cooperation but promotes empowerment and compliance in their health management. **Innovating Treatment with Distance Therapies:** One intriguing concept, as mentioned by Dr. McMakin and developed further by practitioners like Harry Van Geller, involves remote treatment via electromagnetism. Although theoretical and not widely accepted, this discussion inspires practitioners to explore non-conventional treatment avenues for patients unwilling or unable to access direct care. **Continuing Education and Practitioner Growth:** Practitioners must continually update their knowledge and techniques to offer the best care. Specialized courses or seminars in both established and emerging medical techniques are critical. Dr. McMakin and Kim Pittis shed light on their ongoing learning and teaching journeys, suggesting that integrating newfound knowledge into practical applications is indispensable for effective patient care. Dr. McMakin and Kim Pittis provide invaluable insights for advancing medical practice. By focusing on realistic patient goals, comprehensive assessments, multi-faceted treatments, strong communication, and continuous education, practitioners can significantly enhance patient outcomes. Integrating these strategies can transform complex challenges into manageable cases leading to overall improved patient satisfaction.

This week we discuss the basics about a topic several of our guests have spoken about- Ehlers Danlos Syndrome or EDS.   ​Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body. ​The Ehlers-Danlos syndromes received a major overhaul in 2017 and this is what we now know: EDS are heritable connective tissue disorders affecting the quality of collagen in every part of the body. There are now 13 recognized subtypes of EDS, 12 of which are genuinely rare and have the aberrant gene identified. Hypermobile EDS (hEDS) and hypermobility spectrum disorder (HSD) is by far the most common type; these conditions are part of a spectrum and the distinction is hoped to be useful for research, but is otherwise academic. hEDS/HSD is a multi-system disorder which can have a marked impact on health and which may help us to explain apparently mysterious multiple symptoms. Don't let the changing terminology confuse you. 3.4% of the population have generalized joint hypermobility and chronic widespread pain (a proxy for the now obsolete diagnosis of joint hypermobility syndrome (JHS). Patients who in the past received a diagnosis of JHS (or Benign JHS), EDS-Hypermobility Type or EDS Type III would now be categorized as having hEDS or HSD. “If you can't connect the issues, think connective tissues” Non-specific and medically unexplained symptoms are usually real and should not be dismissed It can be easy to make a big difference to the quality of life of some of your most complex patients with a few simple and inexpensive measures, but the journey starts with recognition. The median time from symptom onset to seeking a GP opinion is 2 years and the median time to diagnosis 10 years. If we make an early diagnosis and manage the conditions appropriately, there may be potential to reduce long term disability which can occur from EDS. Enquire about family members; these are hereditary disorders of connective tissue so positive family histories are common. Although no gene has yet been identified, hEDS is primarily of autosomal dominant inheritance. Children can present with symptoms of hEDS/HSD, including abdominal symptoms or growing pains. They may also present with neurodevelopmental disorders such as hyperactivity, inattention, dyspraxia, autistic spectrum disorder, sleep, and food issues, emotional problems, hypersensitivity and anxiety. A low Beighton score does not exclude hEDS/HSD,. Patients stiffen with age so their Beighton score may decrease, although pain may worsen. The extent of multi-system symptoms is not related to the Beighton score. Consider co-existing conditions; In recent years, we have begun to understand more about associated or co-morbid conditions which are frequently found in people with hEDS, including autonomic dysfunction (postural tachycardia syndrome (PoTS) and symptomatic low blood pressure), mast cell activation syndrome (MCAS) and gastrointestinal dysfunction. (Credits: GPTOOLKIT)

Soph Myers-Kelley and his mom, René Myers, have always been close. As of five years ago, they also share a diagnosis: the connective tissue disorder Ehlers-Danlos Syndrome. Soph and René were diagnosed one year apart – Soph was 25; René was 60. EDS explained symptoms they'd both been experiencing for decades, including waking up with jaw or shoulder dislocations and having chronic pain.The two talk with Anita about how their diagnoses began a new chapter of their lives, including the decision to move in together last summer.Meet the guests:- Soph Myers-Kelley is a medical librarian at East Carolina University- René Myers is Soph's mom and a retired educatorRead the transcript | Review the podcast on your preferred platformFollow Embodied on Instagram Leave a message for Embodied

In this exciting episode of the podcast, Dr. Jennie Berkovich interviews Dr. Sarah Cohen, an expert in dysautonomia, to explore the complexities of this often misunderstood condition. Dr. Cohen shares insights into the types of patients she typically works with and how her journey led her to specialize in dysautonomia. They discuss common misconceptions physicians and medical professionals have about patients with dysautonomia and explore potential risk factors, including early signs that may predict the development of the condition. The conversation delves into the gap in Western medicine when it comes to treating dysautonomia and offers an explanation of Ehlers-Danlos Syndrome (EDS), its typical presentations, and the conditions associated with it. Dr. Cohen also reflects on how treatments for dysautonomia have evolved over the years, providing listeners with the latest updates in care. The episode further explores whether there are any preventive measures available for dysautonomic conditions or ways to slow their progression. This episode is a must-listen for anyone interested in dysautonomia, whether you're a healthcare professional or simply curious about the condition. Tune in for expert insights and a deeper understanding of this important health topic! Sarah Cohen Solomon, MD FAAP is the ABP Board Certified Pediatrician at PRISM Spine and Joint, where she specializes in caring for patients with hypermobile Ehlers Danlos Syndrome and related conditions, including Dysautonomia (POTS) and Mast Cell Activation Syndrome. This interest stems from her own lifelong experience with these conditions. After graduating from Sidney Kimmel Medical College of Thomas Jefferson University, Dr. Cohen Solomon remained at the affiliated Nemours Hospital for Children, where she was awarded the Pediatric Academic Excellence Award for Outstanding Research, Education, and/or Advocacy in General Pediatrics for her work expanding the Advocacy curriculum for their residency program. Dr. Cohen Solomon is passionate about breaking down barriers to healthcare and education, by providing children with appropriate accommodations so they can thrive at school among their peers and mentoring medical students with disabilities. _________________________________________________ Sponsor the JOWMA Podcast! Email digitalcontent@jowma.org Become a JOWMA Member! www.jowma.org Follow us on Instagram! www.instagram.com/JOWMA_org Follow us on Twitter! www.twitter.com/JOWMA_med Follow us on Facebook! https://www.facebook.com/JOWMAorg Stay up-to-date with JOWMA news! Sign up for the JOWMA newsletter! https://jowma.us6.list-manage.com/subscribe?u=9b4e9beb287874f9dc7f80289&id=ea3ef44644&mc_cid=dfb442d2a7&mc_eid=e9eee6e41e

Jo Phillips has a disability called Ehlers Danlos Syndrome, hypermobility type, that gives her chronic pain. She was recently diagnosed with autistic ADHD. Jo struggled for years with employment, but now has her own greeting card company. Jo Phillips. I'm 48 years old. I'm married to Danny. I have four stepchildren and two grandchildren. My stepchildren are grown up now, and my husband and I have a 5-month-old kitten. I was late diagnosed autistic ADHD, and I am also dyslexic. I also have a physical disability called Ehlers Danlos Syndrome, hypermobility type, and this gives me chronic pain. In 1976 I was born in Ipswich, UK. I was a very creative child and my favorite class was art, this was followed closely by design. I loved to paint, to draw and make things. Anything creative, At 16yrs old, I went to Amersham college to study a GNVQ in Art & Design.I then went on to Norwich to study a HND course in graphic design. It was here that I was identified and diagnosed as dyslexic. I continued on to a degree in Illustration and focused on my art. I loved it. I struggled for years with employment in my chosen career including spending 7 years in the Police service resulting in medical retirement at age 33. I also went on to do a Masters (MA) in Illustration. I started my own greeting card company because I was unable to gain employment in illustration. My health deteriorated and developed chronic migraines. In 2020 I was diagnosed autistic and in 2023 with ADHD Contact Jo Phillips: PaperlyUK - selling handmade and speciality papers on Etsy: Etsy Shop www.etsy.com/shop/paperlyuk 10% Off Code: CREATE2DAY Instagram: www.instagram.com/paperly.uk FaceBook: www.facebook.com/profile.php?id=61559886059408 Pinterest: www.pinterest.co.uk/PaperlyUK Freelance Illustration and Design: My folio of illustration work - /theaoi.com/folios/jo-phillips/ Instagram: www.instagram.com/jophillipsdesigns Facebook: https://www.facebook.com/profile.php?id=61558404112753 LinkedIn: www.linkedin.com/in/jo-phillips-infinity-designer book ‘Beyond the Ordinary' https://mandynicholson.co.uk/beyond-the-ordinary/ Dr. Kimberley Linert Speaker, Author, Broadcaster, Mentor, Trainer, Behavioral Optometrist Event Planners- I am available to speak at your event. Here is my media kit: https://brucemerrinscelebrityspeakers.com/portfolio/dr-kimberley-linert/ To book Dr. Linert on your podcast, television show, conference, corporate training or as an expert guest please email her at incrediblelifepodcast@gmail.com or Contact Bruce Merrin at Bruce Merrin's Celebrity Speakers at merrinpr@gmail.com 702.256.9199 Host of the Podcast Series: Incredible Life Creator Podcast Available on... Apple: https://podcasts.apple.com/us/podcast/incredible-life-creator-with-dr-kimberley-linert/id1472641267 Spotify: https://open.spotify.com/show/6DZE3EoHfhgcmSkxY1CvKf?si=ebe71549e7474663 and on 9 other podcast platforms Author of Book: "Visualizing Happiness in Every Area of Your Life" Get on Amazon: https://amzn.to/3srh6tZ Website: https://www.DrKimberleyLinert.com Please subscribe, share & LISTEN! Thanks. incrediblelifepodcast@gmail.com Social Media Links LinkedIn: https://www.linkedin.com/in/dr-kimberley-linert-incredible-life-creator/ Facebook: https://www.facebook.com/kimberley.linert/ The Great Discovery eLearning Platform: https://thegreatdiscovery.com/kimberley

Send us a textIn this episode of The Gut Health Dialogues, we're diving deep into the transformative power of myofascial release with our guest expert, Nelin Krull. Nelin shares practical techniques and expert insights into how myofascial release can relieve abdominal adhesions, reduce chronic pain, and support digestive health. From self-care practices you can try at home to understanding how fascia restrictions affect your body, this conversation is packed with actionable advice for anyone seeking better gut health or relief from discomfort.Whether you're new to myofascial release or looking for targeted solutions for issues like SIBO, bloating, or chronic pain, this episode will guide you on how gentle, sustained techniques can help you achieve lasting results.What You'll Learn in This Episode:The role of fascia in gut health and overall wellnessEasy self-care techniques using myofascial tools like foam rollers and ballsTips for addressing abdominal adhesions and reducing pain at homeThe connection between connective tissue disorders (like Ehlers-Danlos Syndrome) and digestionHow myofascial release differs from visceral manipulationAbout Our Guest:Nelin Krull is the co-owner and Clinic Director of Myofascial Release Mississauga. With a Master's of Science in Physical Therapy from the University of Toronto and years of experience working in hospital settings, Nelin has helped patients across a variety of specialties. She is passionate about improving the lives of people with chronic pain and digestive issues through education, lifestyle changes, and myofascial release. After transitioning from hospital work to entrepreneurship, Nelin co-founded a practice dedicated to personalized care, helping clients unlock the healing potential of their own bodies.Find Alyssa on: Instagram, LinkedIn, Facebook, PinterestFind Nelin Krull on: InstagramResources mentioned:Freedom from Pain Program: Learn myofascial release techniques from Nelin's comprehensive DIY course. Follow Nelin and her team for daily tips and advice on Instagram: @MyofascialMississauga or @MyofascialCanadaTune in and Subscribe to "The Gut Health Dialogues" for inspiring client transformation stories and expert insights into gut health. Leave a review—Your support will help me empower more people with knowledge and tools to take control of their gut health and reclaim their lives. Looking for a supportive Gut Health community? I'm building a community committed to helping people overcome their digestive symptoms by addressing the root cause using food and nutrition. Join my FREE community here.If you're enduring uncomfortable, painful, and embarrassing GI symptoms and feel like you've tried everything, I've got you covered. I use a specialized approach to help people who've gone from doctor to doctor finally find relief. Book your 15-minute strategy call for FREE here.

Carrie managed complications related to Ehlers Danlos Syndrome and POTS, severe joint pain, inflammation, chronic fatigue, and brain fog on a keto diet. Timestamps: 00:00 Trailer and introduction 03:39 Severe Ehlers-Danlos dislocations 07:11 Lack of holistic healthcare 11:23 Living with Ehlers-Danlos 13:09 Keto diet for POTS relief 18:15 Keto diet improved health 22:21 Carnivore diet Ehlers-Danlos relief 25:26 Relocating to Nicaragua 28:14 Research journey 32:52 Navigating diet and social norms 35:18 First experience eating meat 37:29 Managing Ehlers-Danlos with lifestyle adjustments 43:22 US prescription culture vs. rest of the world 46:35 Managing EDS through everyday ergonomics 48:47 Ehlers-Danlos improvement through lifestyle changes 52:18 Coping with parental loss Revero Clinic for treating chronic diseases: https://revero.com Join Revero Now to transform your health: https://revero.com/membership Join the Revero team (medical providers, etc): https://revero.com/jobs ‪#Revero #ReveroHealth #shawnbaker  #Carnivorediet #MeatHeals #AnimalBased #ZeroCarb #DietCoach  #FatAdapted #Carnivore #sugarfree Disclaimer: The content on this channel is not medical advice. Please consult your healthcare provider. ‪#revero #shawnbaker #Carnivorediet #MeatHeals #HealthCreation   #humanfood #AnimalBased #ZeroCarb #DietCoach  #FatAdapted #Carnivore #sugarfree  ‪

Why You Should Listen:  In this episode, you will learn about Ehlers-Danlos Syndrome and effective approaches to treatment. About My Guest: My guest for this episode is Dr. Derik Anderson.  Derik Anderson, DC, CPT, CSN helps his patients be healthier by utilizing his education and personal and professional backgrounds.  Dr. Anderson grew up wanting to help people and initially planned to go to business school to work in energy conservation.  After a good friend's life was positively changed by chiropractic care, he had a change of heart. His friend spent two years with horrific intestinal problems and saw over a dozen providers, but no one could help her – until she saw a chiropractor.  The chiropractor knew that the vertebra and muscles around them affected the nerves that controlled the intestines. After treatment, she was no longer bed-ridden and went back to teaching, traveling and leading an active life.  Dr. Anderson realized that health care was his calling and his passion for helping people was channeled into chiropractic.  Dr. Anderson lives what he practices.  He is an avid runner, nationally competitive sailor, surfs, and is a youth coach.  Dr. Anderson eats a diet high in vegetables, low in starch, and drinks several quarts of water each day. Why? Food is our bodies' fuel and muscles consume 70% of that fuel (the brain consumes another 20%), so to reach our maximum potential, our food chain needs to be clean, appropriate, and healthy for our needs. Key Takeaways: What is the overlap between hypermobility and EDS? What conditions are people often diagnosed with when they are dealing with EDS? What symptoms are observed in those with EDS? Is EDS genetic? How is EDS diagnosed? What are the physical, chemical, and emotional aspects of this whole-body disorder? What is the overlap with CVID and autoimmunity? What role do MCAS and POTS play in EDS? Does mold or vector-borne infections play a role? What is the role of glyphosate in EDS? Do oxalate lead to more pain in those with EDS? How does stress impact the condition? What is the overlap between EDS and CCI? What are the components of the Release, Remobilize, and Restore approach to treatment? How might Shockwave Therapy benefit patients? What does living with EDS look like with adequate care? Connect With My Guest:  http://MuscleJointClinic.com Interview Date: January 8, 2025 Transcript: To review a transcript of this show, visit https://BetterHealthGuy.com/Episode210. Additional Information: To learn more, visit https://BetterHealthGuy.com. Disclaimer:  The content of this show is for informational purposes only and is not intended to diagnose, treat, or cure any illness or medical condition. Nothing in today's discussion is meant to serve as medical advice or as information to facilitate self-treatment. As always, please discuss any potential health-related decisions with your own personal medical authority. 

Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that presents differently in each individual. For Emily, it significantly affected her digestive system. During her first pregnancy, she struggled with severe hyperemesis, unable to keep any food down at all.  In this episode, Emily shares one of the most unique and challenging stories of pregnancy, birth, and postpartum I have ever encountered. Her journey is a powerful testament to the resilience of the mother-baby bond and her incredible strength.  Despite the hardships she faced, Emily has recovered and found joy in the small but profound moments of motherhood. She recalls the first time her baby smiled at her—a moment when her heart truly felt light for the first time.  Tune in to hear Emily's inspiring story of determination, love, and healing.  If you love the show, I would greatly appreciate a review on  Spotify or Apple Podcasts!  Follow me on Instagram @healingbirth Do you have a birth story you'd like to share on the podcast, or would like to otherwise connect? I love to hear from you! Send me a note at contactus@healingbirth.net Check out the website for lots of other birth related offerings, and personalized support: www.healingbirth.net Intro / Outro music: Dreams by Markvard

Riley Rees chats with Mamak Shakib who dives into the fascinating world of Postural Neurology and holistic health. As a licensed Chiropractic Physician with expertise in Neurokinesiology and Pelvic Floor Dysfunction, Dr. Shakib explores the intricate connection between the brain, movement, and stability. She shares practical insights on addressing pelvic health and joint challenges, particularly for individuals with connective tissue disorders like Ehlers-Danlos Syndrome. Tune in to discover innovative approaches to achieving balance, mobility, and overall well-being.In this episode, we chat about:The brain's role in movement and joint stabilityHow Postural Neurology can uncover the root causes of movement challengesPractical strategies for addressing pelvic floor dysfunction without invasive interventionsThe importance of external pelvic stability for overall healthMisguided Approaches in Modern HealthcareHolistic tips for enhancing mobility, balance, and well-beingEpisode resources:Dr. Mamak Shakib's Instagram (Instagram)Hypermobility Therapy Website (Website)Find Pelvic Floor Services (Website)Sign up for Tai Chi, Qigong, meditation, mindfulness, and Yoga live classes with Prime (get free trial)Thank you so much for tuning in! If you enjoyed the content, we would love it if you took 2 minutes to leave a 5-star review!The Sofia Unfiltered by Sofia Health is for general informational and entertainment purposes only and does not constitute the practice of medicine, nursing, or other professional healthcare services, including the giving of medical advice. No doctor/patient relationship is formed. The use of information on this podcast or materials linked from this podcast is at the user's own risk. The content of this podcast is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Users should not disregard or delay in obtaining medical advice for any medical condition they may have. For any health concerns, users should seek the assistance of their healthcare professionals.

Mark welcomes back the phenomenal Heidi Mavir, who is an  author, a neurodivergent advocate, activist, public speaker and Mum of a neurodifferent son (20, diagnosed autistic with a tic disorder, as well as suspected dyslexia and  Ehlers Danlos Syndrome). They pick up on a topic they very briefly touched on in the previous episode they recorded, which is whether there's any truth to the commonly-held belief that autistics don't feel empathy (spoiler alert - that view is abject nonsense). They dissect the very concept of empathy to try and understand why it's viewed as so important to neurotypicals, what "the double empathy problem" is and why our kids' way of displaying and responding to empathy is so varied. This is a genuinely insightful episode that gives a lot of food for thought when considering whether our own kids are able to feel empathy.   LINKS TO STUFF WE MENTION IN THIS EPISODE: Heidi Mavir EOTAS Matters website - https://www.heidimavir.com/ "Your Child Is Not Broken" by Heidi Mavir - https://amzn.eu/d/8di4y0X "Why Can't I Just Enjoy Things?" by Pierre Novellie - https://amzn.eu/d/fd51tDR "How To Win Friends and Influence People" - https://amzn.eu/d/fd51tDR The Double Empathy Problem - https://reframingautism.org.au/miltons-double-empathy-problem-a-summary-for-non-academics/ "I Didn't See You There" by Charlotte Gail - [Available end of January. Link will be added here later] Sesame Street Introduce Autistic Character - https://youtu.be/dKCdV20zLMs Muppet Christmas Carol - https://youtu.be/JXaVI60BFJM Heidi Mavir on TikTok - https://www.tiktok.com/@heidimavir   CONTACT US If you have any feedback about the show, ideas for topics, suggestions for neurodiversity champions or any "What the flip?" moments you'd like to share, you can email: hello@neuroshambles.com FOLLOW US Instagram: www.instagram.com/neuroshambles TikTok: www.tiktok.com/@neuroshamblespod Facebook: www.facebook.com/Neuroshambles Threads: www.threads.net/@neuroshambles CREDITS The Neuroshambles theme tune was created by Skilsel on Pixabay: https://pixabay.com/ 

What's it like raising a child who can see spiritual things? Join me for a fascinating interview with singer/songwriter Katherine Perry. Katherine has also published music to raise awareness for Ehlers-Danlos Syndrome, which we also discuss.

The year 2024 feels like an absolute whirlwind. Where did the time go?Today's episode was inspired by one of my podcast producers, Alison, who told me she loves episodes this time of year that take you behind the scenes, which feels good to me; I want to catch you up on what's been going on.As you may know, I've been struggling with health issues this year, so much of what you've been listening to was pre-recorded. But finally, in early November, I got diagnosed with a trio of chronic illnesses: Ehlers-Danlos Syndrome, Mast Cell Activation Syndrome, and Dysautonomia.I had hoped to get more done in 2024, but getting closure on some long-standing issues has been a very good thing. And, even though I didn't have capacity to work on the podcast very much, it has grown, with listeners from 138 countries and almost 4,000 cities. There's much in store for 2025, but I need your help. Please take my two-minute survey. Do you like solo episodes? Interviews? Grouped topics? Let me know so I can provide the content you crave. I hope the end of your year is filled with ease. See you in 2025.In this episode you'll hear about:What this last year has looked like: being ill and finally getting diagnoses; moving; wonderful friendship momentsMy goals 2025: health stability, more investment in my community, and more connection to listeners via social media/internetThings to get out into the world in 2025: Freebies! Printed guides! Audio guides! And also, the book I keep talking about!Stats about the podcast (which has grown without any traditional marketing techniques!) and what I'd like to focus on in the coming year Resources & LinksPlease complete my survey so I can provide the kind of content you're looking for in 2025.Check out YearCompass, which helps you reflect on the past year and set goals for the next. Listen also to Episode 101 and Episode 108.Like what you hear? Visit my website, leave me a voicemail, and follow me on Instagram and TikTok!Want to take this conversation a step further? Send this episode to a friend. Tell them you found it interesting and use what we just talked about as a conversation starter the next time you and your friend hang out!

Delanie Fischer is joined by Sharon Okin, who shares about her experience with Lyme Disease and Ehlers-Danlos Syndrome— the symptoms she's experienced over the years, why it took so long to diagnose, and what's helped her feel better, manage daily responsibilities, and pursue passion projects. If you, or someone you love, is experiencing a chronic illness, this episode has so much to offer, and is part of our series, "Subscriber Stories."Plus:+ An Epic Toolbox of 50+ Tips And Resources+ The #1 Modality That Changed Everything+ A Move That Was 25 Years In The MakingMore episodes related to this topic:Living With A Chronic Illness (Type 1 Diabetes) with Walt Drennan: https://www.selfhelplesspodcast.com/episodes/episode/3588b4cf/living-with-a-chronic-illness-with-walt-drennanA Shocking Connection Between Trauma And Thyroid Health with Judith Gonzalez: https://www.selfhelplesspodcast.com/episodes/episode/22ae66d2/a-shocking-connection-between-trauma-and-thyroid-health-with-judith-gonzalezMy Dad Was Diagnosed With Lewy Body Dementia with Erika Martin: https://www.selfhelplesspodcast.com/episodes/episode/21b228bf/my-dad-was-diagnosed-with-lewy-body-dementia-with-erika-martinYou can submit and vote on episode topics here: https://www.patreon.com/selfhelplessYour Host, Delanie Fischer: https://www.delaniefischer.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Welcome back, dear listener. In today's episode, I got to chat with another dear friend and colleague, Petra Schmider. And I'm so excited to have Petra on the podcast to talk about a condition that is getting a lot more attention lately, but that is also surrounded by a lot of confusion and conflicting information. Petra has a deep body of knowledge and understanding about Ehlers Danlos Syndrome, or EDS, because she herself was diagnosed with EDS. She's also a mind-body practitioner who has used mind-body techniques to recover from debilitating pain associated with EDS. And she's going to take us deeply into the complexities of how a genetic and incurable condition like EDS can be intertwined with neuroplastic pain, which very much can be reduced or even eliminated through the use of mind-body techniques. It's a fascinating conversation that can be applied to many other conditions as well, not just EDS, and I can't wait for you to hear this. You can find Petra at:Website: https://www.painawaycoach.com/our-story Email: painawaycoach@gmail.com Petra's recovery story on The Curiosity Cure podcast: https://podcasts.apple.com/us/podcast/s2e29-petras-pain-recovery-dream-life/id1595415545?i=1000661834736   And you can find me at: Instagram: ⁠⁠⁠⁠⁠⁠@anna_holtzman⁠⁠⁠⁠⁠⁠ Email: anna@annaholtzman.com Website: ⁠⁠⁠⁠⁠⁠www.annaholtzman.com⁠Journaling Course: www.annaholtzman.com/writingtorelease --- Support this podcast: https://podcasters.spotify.com/pod/show/from-chronic-pain-to-pass/support

In this episode of The Writing Glitch, Cheri Dotterer is joined by Lindsey Ball, an athletic trainer and biomechanics expert, to discuss her experience living with Ehlers-Danlos Syndrome (EDS), a connective tissue disorder. Lindsey shares her personal journey, the challenges EDS brings to everyday tasks like writing, and how she navigates athletic training and academic pursuits. Whether you're a parent, teacher, or someone interested in biomechanics and EDS, this episode offers invaluable insights into recognizing and managing connective tissue disorders, especially in children and athletes.***************************************************************************DisabilityLabs.com sponsors this video podcast. We are committed to IMPACT the journey of 200K teachers (3M students) by 2030 so they can reignite their passion for teaching.*****************************************************************************RESOURCES FROM THIS EPISODEhttps://www.ehlers-danlos.com/wp-content/uploads/2017/05/hEDS-Dx-Criteria-checklist-1.pdfhttps://www.ehlers-danlos.com/resource-category/printable-brochures-and-materials/https://www.ehlers-danlos.org/what-is-eds/https://www.ehlers-danlos.com/****************************************************************************TIMESTAMPS00:00 Introduction to Lindsey Ball and Ehlers-Danlos Syndrome (EDS)02:30 Overview of EDS: Diagnosis and Different Types05:00 How EDS Affects Writing and Everyday Tasks08:00 Writing Challenges and Hand Pain in EDS Patients11:00 Adaptations for Writing Tools and Techniques14:00 Keyboarding and Mousepad Adaptations17:30 Importance of Accommodations in Higher Education19:00 The Role of Assistive Technology in Writing and Studying20:00 Closing Thoughts and Lindsey's Future Research****************************************************************************BOOKSHandwriting Brain Body DISconnect Digital Version: https://disabilitylabs.com/courses/hwbbd On Amazon: https://www.amazon.com/Handwriting-Br...*****************************************************************************SUBSCRIBE and LISTEN to the Audio version of the podcast here on YouTube or your favorite podcast app.APPLE: https://podcasts.apple.com/us/podcast/the-writing-glitch/id1641728130?uo=4SPOTIFY: https://open.spotify.com/show/5rU9kLxjkqJE5GbyCycrHEAMAZON MUSIC/AUDIBLE: https://music.amazon.com/podcasts/894b3ab2-3b1c-4a97-af60-b1f2589d271fYOUTUBE: https://www.youtube.com/@TheWritingGlitchPodcast*****************************************************************************MISSIONDotterer Educational Consulting, a Therapy Services, LLC company: To provide professional development to improve writing skills through efficient lesson planning for regular education classrooms.************************************************************************WORK WITH US:Self Study Dysgraphia Course: Dotterer Dysgraphia Method: https://disabilitylabs.com/courses/dotterer-dysgraphia-method*************************************************************************Other ways to connect with Cheri Linked In: https://www.linkedin.com/in/cheridott...FB: https://www.facebook.com/groups/tier1...IG: https://www.instagram.com/cheridotterer/X: https://twitter.com/CheriDottererTikTok:

Unfortunately, research on the lived-experience for those with Ehlers-Danlos Syndrome shows us that we as a profession need to be doing a better job.People with Ehlers-Danlos Syndrome report:A lack of reliable information for themselvesSocial stigma from peers.Lack of awareness of EDS in the healthcare communityAs occupational therapy professionals, there is much we can contribute to supporting this population. And, today we'll look at a self-management program that is grounded in behavior change theory and we co-designed with people with lived experience of EDS.Next week we will welcome to the podcast, an occupational therapist who has EDS and also treats EDS clients in her clinical practice, Emily Rich, PhD, OTR/L. Emily and I will discuss self-management, along with assessment and treatment of EDS.You can find more details on this course here:https://otpotential.com/ceu-podcast-courses/ot-and-ehlers-danlos-syndromeHere's the primary research we are discussing:Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): an analysis informed by behaviour change theory.Support the show

In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you're dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions. Takeaways: Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body's natural healing processes. Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery. Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery. PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues. Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. John Pitts: IG: @johnpittsmd & @centenoschultzclinic Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

This week we will discuss the most common type of Ehlers-Danlos syndrome – the hypermobile type (hEDS, formerly also described as EDS type III or joint hypermobility syndrome), this is the type that most commonly presents to gastroenterology services.   ​ As connective tissue is present throughout the body, many different structures around the body including the digestive tract can be affected by EDS. Connective tissue is present in the digestive tract and is essential to the passive mechanical movements needed to complete digestion. It has been suggested that any abnormalities in the connective tissues in the digestive tract are likely to alter the way in which it moves, which could contribute to the range of symptoms experienced by people with hEDS. Connective tissue is also present around the nerves of the digestive tract and abnormalities of this can potentially make the gut more sensitive. It is important to remember that whilst differences in the digestive tract function are likely to be present in hEDS, as yet diagnostic biomarkers have not been identified and more research is needed to better understand the nature and impact of connective tissue within the digestive system, particularly in the other subtypes of EDS. ​ The digestive tract starts at the mouth, and ends at the anus. Many aspects of the digestive tract can potentially be affected, including both the upper digestive tract (oesophagus, stomach and duodenum) as well as the lower digestive tract (small intestine, large intestine, colon and rectum). We frequently see patients who mainly have symptoms related to either the upper or the lower digestive tract only, and some research studies have found that a significant proportion of people with hEDS experience some kind of gastrointestinal symptoms. ​ What sort of gut problems can occur? ​ The type, frequency and severity of digestive symptoms can vary greatly from person to person as everyone with hEDS is different. The most frequently reported problems affecting the upper digestive tract are acid reflux and chronic/recurrent indigestion with pain or discomfort and early fullness after meals. The lower digestive tract can present problems such as constipation, abdominal pain, bloating, diarrhoea and a feeling of general abdominal discomfort.  Nausea and vomiting can occur alongside any of the symptoms described above.   Delayed gastric emptying / dysmotility The term dysmotility is often used to describe abnormal movements (e.g. sluggish movements or spasm) of the gut. Some hEDS sufferers can have a sluggish stomach, which means that there is a delay in the emptying of stomach contents into the small bowel, and this is often referred to as delayed gastric emptying. Delayed gastric emptying can range in severity from mild to severe, with the most severe form called gastroparesis (paresis = paralysis). A portion of hEDS sufferers do have delayed gastric emptying, however only a few will be severe enough to be diagnosed with gastroparesis. Patients with a lot of bloating and/or fullness after meals or nausea and vomiting can be tested for delayed gastric emptying, but it is important to note that so far a link between hEDS and gastroparesis has not been categorically established. ​ In other patients increased sensitivity of the stomach may be a more common problem. Both dysmotility and increased sensitivity of the stomach can be associated with symptoms such as acid or bile reflux, bloating, early fullness during meals/extended fullness after meals and nausea.   Heartburn / reflux There is some preliminary research that suggests that people with hEDS are slightly more likely to have a small hiatus hernia at the lower end of the oesophagus. This means that the upper end of the stomach slips into the chest cavity through a small hole (hiatus) in the diaphragm (the large muscle that separates the chest cavity from the abdominal cavity). This is quite a common finding and is usually not dangerous, but it can mean that the muscle that closes to stop food or liquid contents of the stomach from escaping back up into the oesophagus is somewhat inefficient, resulting in the acid reflux and/or heartburn symptoms, and this is called gastroesophageal reflux disease (GERD or GORD). However, it is also possible to experience reflux and/or heartburn symptoms without having a hiatus hernia. These symptoms can be associated with dysmotility, increased sensitivity of the oesophagus, or be experienced in isolation with none of these underlying causes.   Bloating Abdominal bloating is a common symptom in people with hEDS, and although the underlying causes are not fully understood, it is thought that dysmotility may be a contributing factor. Overgrowth of bacteria of the small bowel can occur if there is stagnation within the bowel (i.e. constipation) and this can lead to excessive fermentation of food leading to production of gas, which can also be associated with bloating. A link between hEDS and bacterial overgrowth has not been categorically established and further research is required.   Constipation Chronic constipation in adults is a common and debilitating problem and it is estimated that around 12 to 19% of the general population experience this, with females and the older population being more prone. Constipation is also common in patients with EDS and it is thought that a sluggish colon and difficulty with evacuation of the bowel are key causes. However there are often many factors inter-linked which can contribute to constipation such as diet, metabolic (hormone) or neurological (nerve) conditions, side effects of prescription medications, particularly opioid-based painkillers, or physical disorders such as prolapse of the bowel. ​ Rectal and genital prolapse are recognised as potential problems for some people with hEDS, and can be a factor contributing to constipation. Prolapse of the rectum means that the lining (mucosa) of the rectum (called a partial prolapse) or the entire rectal wall (called a complete prolapse) protrudes into the rectum, which interferes with the ability for a stool to be passed. Prolapses of the rectum usually occur during bowel movements, and then recede, but more advanced rectal prolapses can occur upon standing as well. However, in most cases prolapses tend to be small and do not require any active interventions. If a significant prolapse is diagnosed upon testing, and it is thought to be contributing to your gastrointestinal problems, your physician will refer you to a surgeon.   Functional gastrointestinal disorders Sometimes people with hEDS who have symptoms such as reflux, heartburn, constipation or nausea may not have an identifiable cause of their symptoms on any medical testing and these patients are then given a diagnosis of functional gastrointestinal disorder (FGID). Patients who have symptoms with no underlying cause found account for more than a third of new referrals to gastrointestinal specialists, and so this is a common occurrence. A preliminary study amongst patients who were referred to a specialist because no cause of their symptoms could be found, demonstrated that over a third of those patients met the criteria for joint hypermobility and many of them had previously received a diagnosis of irritable bowel syndrome (IBS) or functional dyspepsia. IBS is the most common example of a FGID, and is characterized by recurrent abdominal pain and frequent changes in bowel habits. Functional dyspepsia is another type of FGID and relates to symptoms of upper abdominal pain, fullness, nausea and bloating, frequently following meals. (Credits: Ehlers Danlos . Org)

In this episode, Heather welcomes Jamie Bomtempo, a former student and myofascial release therapist who owns Zest Myofascial Release in Jacksonville Beach, Florida.  Jamie  believes that "anyone can benefit from myofascial release, especially people with hypermobility."  Tune in as she shares her personal journey of living and working with hypermobility and Ehlers-Danlos syndrome (EDS), shedding light on how these conditions impact her practice and treatment approach.  Heather and Jamie also  discuss the broader implications of working with clients who have hypermobility or EDS, highlighting the need for therapists to stay curious, ask deeper questions, and adhere to the principles of myofascial release. They also touch on the significance of creating a sustainable and fulfilling practice that aligns with your physical and mental health needs. This episode is packed with practical advice and inspiration. Tune in to learn how Jamie has successfully built a thriving practice despite her diagnosis, and gain valuable insights into treating clients with hypermobility.   GUEST INFO — Jamie Bomtempo, Owner of Zest MFR in Jacksonville Beach, Florida | Website | Instagram   FEATURED ON THE SHOW — Join the Foundations Coaching Program today and get access to over 200 videos and lessons designed to support your growth. Visit www.themfrcoach.com/foundations to learn more and enroll.   FOLLOW ME — Facebook - https://www.facebook.com/TheMFRCoach/  Instagram - https://www.instagram.com/themfrcoach/  Website - https://www.themfrcoach.com/    RATE, REVIEW, & SUBSCRIBE ON APPLE PODCASTS – If you love the content that I am providing, please consider rating and reviewing my show! This helps me support more people — just like you — build a fully booked MFR Practice.    Click here, scroll to the bottom, tap to rate with five stars, and select “Write a Review.” Then be sure to let me know what you loved most about the episode!  Also, if you haven't done so already, please consider subscribing to the podcast. New episodes drop weekly, and if you're not subscribed, there's a good chance you'll miss out.   **This podcast is not medical advice and is not a substitute for consultation with an appropriate medical professional. We make no representations as to any physical, emotional, or mental health benefits that may be derived from listening to our podcast. Likewise, we do not make any representations or guarantees as to any possible income, business growth, additional clients, or any other earnings or growth benefits that may be derived from our podcast. Any testimonials, examples, or other results presented are the experiences of one client. We do not represent or guarantee you will achieve the same or similar results. You understand and agree you are solely responsible for any decisions you make from the information provided.**   The MFR Coach's Podcast includes affiliate links in its show notes. This means we may earn a commission if you click on or make purchases via the links in our show notes.

Welcome Jess Gregory In this episode of Pushing Forward with Alycia | A Disability Podcast, Alycia Anderson chats with Jess Gregory, a disabled poet, writer, and patient advocate who uses her experiences with Ehlers Danlos Syndrome (hEDS) and medical gaslighting to fuel her poetry and advocacy work. Jess, author of Burns Unit: Poetry to Heal the Wounds of Medical Gaslighting, shares her journey from undiagnosed illness to becoming a powerful voice in the disability community. She discusses the challenges of living with a rare condition, the importance of believing patients, and how she channels her experiences into her writing to inspire and educate others. Jess opens up about her diagnosis of Ehlers Danlos Syndrome, a complex connective tissue disorder that is often misdiagnosed or undiagnosed. She recounts her struggles with the medical system, where her symptoms were frequently dismissed or misunderstood, leading to years of pain and uncertainty. Through her poetry, Jess found a way to process her experiences and advocate for better understanding and treatment of chronic illnesses. This episode also explores Jess's advice for others facing similar challenges and her hopes for how her work can influence both the medical community and the general public. Her poetry serves not only as an outlet for her own experiences but also as a beacon of hope for others who feel silenced by their conditions. Key Moments: –Jess's Journey with Ehlers Danlos Syndrome –The Inspiration Behind "Burns Unit" –Using Poetry to Heal and Advocate –Challenges in the Medical System –Advice for Patients and Medical Professionals  Skip to: [3:12] - Jess shares her journey with undiagnosed Ehlers Danlos Syndrome and the impact of medical gaslighting. [10:45] - The inspiration behind Burns Unit and how writing became a form of therapy for Jess. [15:30] - Jess discusses the importance of disability-informed therapy and finding the right support. [21:20] - A powerful reading from Burns Unit that resonates with many living with chronic illness. [28:55] - Jess's advice for the medical community on how to better support patients with rare diseases. Quote: "Your shame will turn to rage. Your rage will turn to action. Your action will turn to change. Your change will turn to progress." - Jess Gregory Connect with Jess Gregory: Jess Gregory's Website | Instagram | Burns Unit Book: Purchase on Amazon Connect with Alycia: Instagram | LinkedIn | Book Alycia for Speaking | Book Alycia to Train Your Employees in Disabling Ableism | Alycia's DEI Micro Learning Video Series | Feedback Learn more about your ad choices. Visit megaphone.fm/adchoices

On this week's show we are speaking once again with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two)  During our discussion I mentioned how I picture complex diagnoses as being like an over-spooled fishing reel, you don't know where to start to unravel the different aspects of the condition, but you know it's all connected! ​ ​ ​Heeeeere's Kristine! Allow me to introduce myself

Lisa is joined by Influence Gigi Robinson who talks about chronic illness, body image, and mental health along with some great advice on social media.   Gigi Robinson is an accomplished digital artist, educator, and advocate with a concerted focus on chronic illness, body image, confidence and mental health. She holds a Bachelor in Fine Arts in Design and Photography from the University of Southern California, where she is currently pursuing a Master of Science in Innovation Design, Business, and Technology. With nearly 134,000 followers on TikTok and more than 16,000 followers on Instagram, Gigi Robinson has made a significant impact as an influencer on issues that relate to body image and overall physical and psychological wellness. A member of Gen Z who embraces its most noble values, she has demonstrated a particular ability to connect with people across this vital and sought-after demographic.At age 11, GiGi was diagnosed with Ehlers Danlos Syndrome, Mast Cell Activation Syndrome, and Postural Orthostatic Tachycardia Syndrome. Living with chronic illnesses, Robinson often experiences pain and flare-ups on a day-to-day basis. GiGi left her 9-to-5 to focus on scaling her LLC and trying to work on her health. She has experienced fewer symptoms and transformed the quality of her life, improving her pain, energy, and sleep by working with several medical teams and re-centering her mindset. She regards her own physical and psychological challenges as key components of her journey as a master content creator. GiGi credits her core belief in the power of positivity with her ability to overcome adversity and deliver impactful messages to diverse audiences with an infectious vibrancy.To date, Everything You Need is Within has attracted more than 100,000 listeners who appreciate its straight talk on essential matters of concern to the modern listener. In light of the tremendous social, environmental, and medical challenges that we all face today, the podcast has a relevance that reverberates worldwide.

What are the common misconceptions about Ehlers-Danlos Syndrome that lead to misdiagnosis?   How can physical therapy be tailored to effectively manage Ehlers-Danlos Syndrome, considering its complexity? Welcome to the Uncaged Clinician Podcast! I'm your host David Bayliff is joined by Jen Bambrough, a physical therapist from Chattanooga, Tennessee, who brings both professional expertise and personal experience to the discussion on Ehlers-Danlos Syndrome (EDS). They dive into the intricacies of EDS, exploring the challenges in diagnosis, the importance of personalized treatment, and the various symptoms associated with the syndrome. In this episode, we'll cover the following topics with you: Introduction of special guest, Jen Bambrough Basic understanding of Ehlers-Danlos Syndrome (EDS) Discussing the symptoms and complexities in diagnosing EDS Strategies for treatment and management of EDS The role of exercise and physical therapy in managing EDS Exploring the challenges and comorbidities associated with EDS If you found value in this episode, don't keep it to yourself! Share it with a friend and spread the inspiration. Tune in to future episodes for more conversations on UNCAGING YOUR Potential for Achieving Success.   Do you have questions about starting or even optimizing your current practice? We invite you to schedule a 30-minute growth strategy call with us Here! https://api.leadconnectorhq.com/widget/booking/FYWtsvC5j16lmvKbDg9H Additional Resources: When you are ready…Here are ways that we can help you to grow your practice:   If you are looking for guidance and accountability as you begin to grow your practice, or even if you are already established, we have a program that is right for you. To learn more about the ways we can help you, fill out our application.   PATHWAY  https://api.leadconnectorhq.com/widget/form/Y6ABODFCd53KLdo9SPfy   Join the UNCAGED Clinician Facebook community. YES, you have a community that you can immediately plug into where you can learn to grow a six-figure practice: https://facebook.com/groups/113576786080229

We welcome Jennifer Obel, an oncology physician, who shares her personal journey of retiring from a fulfilling medical career due to Ehlers-Danlos Syndrome. Reflecting on the recent presidential debate and the health concerns surrounding President Biden, Jennifer draws compelling parallels between her experience and the challenges faced by leaders in the public eye. We delve into the importance of transparency and accountability in assessing the health of political figures, the implications for national security and public trust, and the balance between personal health and public responsibility. Jennifer's insights offer a unique perspective on the intersection of medicine, leadership, and the difficult choices that come with chronic illness. Jennifer Obel is an oncology physician. She discusses the KevinMD article, "My body's decline forced me to leave my job. Joe Biden needs to do the same." SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RECOMMENDED BY KEVINMD → https://www.kevinmd.com/recommended GET CME FOR THIS EPISODE → https://www.kevinmd.com/cme I'm partnering with Learner+ to offer clinicians access to an AI-powered reflective portfolio that rewards CME/CE credits from meaningful reflections. Find out more: https://www.kevinmd.com/learnerplus