Metaphor for the reduced amount of energy available for tasks due to ego depletion, fatigue, and other factors
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Jamila's craniopharyngioma had been growing for years, unbeknownst to her. In hindsight, it was her son who gave the first clue, when he stopped breastfeeding overnight at 11 months old.Today Jamila is an author, a broadcaster and the deputy managing director of Future Women, dedicated to achieving gender equity in Australian workplaces.A few years back, her life was on a powerful trajectory — she had been the chief of staff for a federal MP, written best-selling books and was a regular guest on TV panel shows.Then in 2017, she realised something was wrong with her health.At first she wasn't worried. Then, at 31 she was diagnosed with craniopharyngioma — a rare and recurring brain tumour.When Jamila left the world of the well, her life changed completely, in funny, strange, and harrowing ways.Jamila's book Broken Brains: For anyone who's been sick or loved someone who was is co-authored with Rosie Waterland and published by Penguin Random House.This interview was produced by Alice Moldovan. Conversations' EP is Nicola Harrison. The presenter was Richard Fidler.Conversations Live is coming to the stage! Join Sarah Kanowski and Richard Fidler for an unmissable night of unforgettable stories, behind-the-scenes secrets, and surprise guests. Australia's most-loved podcast — live, up close, and in the moment. Find out more on the Conversations website.
This episode is personal but relatable as I unpack a recent realisation I had in a psychiatry session. It helped me to understand depletion and burnout, through a different lens. I share how this led me to re-visit concepts like The Spoon Theory and energy budgeting, I talk about the invisible toll of certain types of communication, the difference between restorative rest and numbing out, and why some days feel impossible even when we “haven’t done that much.” This episode weaves in both personal reflection and practical, evidence-backed tools that have helped me start to rebuild: from dopamine resets and nature breaks, to small but powerful shifts in how I move through the day. If you’ve ever felt like you’re running on empty in a world that keeps asking for more.I hope this conversation gives you both comfort and clarity. Access EXCLUSIVE & AD FREE EPISODES here: apple.co/iam Be part of the inner circle on Sunroom @kylielately Follow me on IG @kylielately & TikTok @kylielatelySee omnystudio.com/listener for privacy information.
Are you a practitioner struggling to balance patient care with your own health needs? In this mini episode, Dr. Aimie looks at the biology behind the Spoon Theory and how practitioners can manage their own health while helping others heal. She answers a listener's question about why she feels drained after certain client sessions and the actionable steps she can take to keep her energy levels up. Dr. Aimie's will build on her conversation with Helga Byrne from Episode 118, where they discussed navigating professional responsibilities while managing personal health challenges. You'll hear more on: What the Spoon Theory is How trauma impacts the body's mitochondria What happens to the your cells when you go into overwhelm Why practitioners experience brain fog and fatigue while helping others How your nervous system sends signals to either boost or reduce your energy levels throughout the day Practical ways to manage your “spoons” of every daily If you're struggling to manage your energy while caring for others, this episode will provide insights on how to maintain energy levels while still being an effective practitioner. If you'd like to go deeper into this topic, listen to the full conversation with Helga Byrne on Episode 118: How Practitioners Can Navigate Their Own Chronic Illness & Healing Journey.
In this episode of The Health Advocates, we’re joined by Gaile Valcho, founder and president of the Brady Valcho Autism Foundation. Gaile shares her powerful story as the mother of a child with autism and her journey to address a gap in community resources in Holly Springs, North Carolina. She opens up about the challenges and triumphs of caregiving while living with lupus, the importance of community support, and her foundation’s work to build inclusive, joyful spaces for neurodiverse families. Tune in for a conversation about resilience, empathy, and the everyday ways we can show up for one another. Among the highlights in this episode: 01:30: Gaile shares how a lack of local autism resources motivated her to create the Holly Springs Autism Acceptance Day event 05:07: Zoe and Gaile discuss the emotional impact and validation of community showing up to support the event 06:01: Gaile explains how other families found crucial resources and joy through the event 08:00: Zoe highlights the importance of community support when navigating chronic conditions 10:23: Gaile describes how her lupus diagnosis intersected with caregiving for her son and changed her daily life 14:35: Gaile shares how treatments have helped manage her lupus and how her son Brady supports her 15:37: Gaile discusses the Spoon Theory and how it helps her communicate about energy and limits 19:53: For more information about the Brady Valcho Autism Foundation visit: https://bva.foundation/ 20:27: Tune in to our Clinical Trials Talks podcast, visit https://creakyjoints.org/clinical-trials Whether you’re ready to see if you qualify for a lupus clinical study, have questions about safety, benefits, and preparation, or simply want to hear real stories from other lupus patients, caregivers, and trusted providers who’ve been through it, visit https://creakyjoints.org/lupus-help-center/ 21:41: Zoe reflects on her time with the podcast and thanks Steven and listeners Contact Our Host Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org A podcast episode produced by Ben Blanc, Director, Digital Production and Engagement at GHLF. We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org Catch up on all our episodes on our website or on your favorite podcast channel.See omnystudio.com/listener for privacy information.
In this episode, I introduce the concept of Spoon Theory, originally articulated by Christine Miserandino, to explore the experiences of individuals living with chronic illness and disability. Through my reflections and the reading of Miserandino's article, I emphasize the importance of understanding personal capacity and the systemic challenges faced by healthcare professionals with disabilities. The conversation advocates for compassion and awareness within the healthcare system, encouraging listeners to recognize their own limits and those of their colleagues.Early-bird registration from Creating Space 2025 is opening ONLY for the month of March! Head to joanchanmd.com/space to book your connection call and benefit from the early-bird payment plan and bonus coaching session
I'm excited to bring you this bonus episode with my friend Michelle Byrd from The Busy Vibrant Mom podcast and a regular guest on Moms Overcoming Overwhelm. It's the first installation of Coffee and Tea with M&E! We talk about our life in the mom “trenches” and how we've been pivoting lately, including: = > dealing with major mom guilt during a recent trip = > the mental chatter of motherhood = > resenting our family members when they don't do things the way we do or we perceive they aren't helping around the house = > managing our energy efficiently and using Spoon Theory to help us = > what's making us smile :)...and much more! Hope you enjoy this honest conversation between two moms who GET IT! *** I help moms declutter their homes, heads, and hearts. Contact - > info@simplebyemmy.com Podcast -> https://www.simplebyemmy.com/podcast Learn -> https://www.simplebyemmy.com/resources Connect -> Join our free Facebook group Decluttering Tips and Support for Overwhelmed Moms Instagram -> @simplebyemmy and @momsovercomingoverwhelm *** Don't Know Where to Start? *** 5 Steps to Overcome Overwhelm -> https://simplebyemmy.com/5steps/ 5 Mindset Shifts for Decluttering -> https://simplebyemmy.com/mindset/ Wanna work with me to kick overwhelm to the curb, mama? There are three options for you! Step 1: Join a supportive community of moms plus decluttering challenges to keep you on track at the free Facebook group Decluttering Tips and Support for Overwhelmed Moms Step 2: Sign up for the weekly Decluttering Tips and Resources for Overwhelmed Moms Newsletter and see samples here: https://pages.simplebyemmy.com/profile Step 3: Get more personalized support with in-person or virtual decluttering and organization coaching! https://www.simplebyemmy.com/coaching
Ever feel like you're constantly running on empty, struggling to explain why simple tasks sometimes feel impossibly hard with Hashimoto's? Living with Hashimoto's can feel like an endless battle with your energy levels, especially when others don't understand why you can't "just push through." This episode introduces the Spoon Theory created by Christine Miserandino. It's a simple yet profound way to understand and talk about your daily energy that will change how you navigate life with Hashimoto's. Join me as we explore: how this theory can help communicate our invisible battles to family and friends. how to ask for support when we run out of "spoons." tips to manage fatigue better and discuss how understanding our energy limits is a strength, not a weakness! Listen now, because understanding your energy limits isn't weakness, it's wisdom. The Spoon Theory PDF by Christine Miserandino https://cdn.totalcomputersusa.com/butyoudontlooksick.com/uploads/2010/02/BYDLS-TheSpoonTheory.pdf Find all links on my resource page: https://healthwithhashimotos.com/resources/ ABOUT THE PODCAST & ESTHER: The Health with Hashimoto's podcast will help you explore the root causes of your autoimmune condition and discover holistic solutions to address your Hashimoto's thyroiditis. It is hosted by Esther Yunkin, a registered nurse, holistic health educator, and Hashimoto's warrior. This podcast is for informational and educational purposes. Please discuss any questions or concerns with your healthcare professional.
In this episode of That Chronic Thing, we welcome Jessica Graham, a trauma resolution guide, meditation teacher, author, and filmmaker. Celebrating the release of their latest book, Being (Sick) Enough, Jessica explores themes of invisible illness, chronic pain, childhood trauma, and resilience. They share their personal experiences with chronic illnesses and how it has influenced their life and work. ➡️ Get Being (Sick) Enough
This week on It's a Spectrum, Rian chats with comedian Lara Beitz about navigating life as an autistic adult. From getting diagnosed later in life to how autism shapes their comedy and communication, they dive deep into the challenges and insights of neurodivergence. They discuss stigma, Spoon Theory, coping mechanisms, and even autistic representation in media. Don't miss this candid, hilarious, and "eye-opening" conversation! Follow Lara Beitz: Join our Patreon: https://www.patreon.com/unpoquitopod Join our Discord: https://discord.gg/eDAhPfZZ8n Merch Store: https://www.etsy.com/listing/1429951216/un-poquito Follow Us: Rian Reyes https://linktr.ee/RianReyes Un Poquito Podcast https://linktr.ee/unpoquitopod
In Episode 22 of Neurotypicals Don't Juggle Chainsaws, Kate Fox and Nic King dive into “spoon theory” and how it applies to neurodivergent and chronically ill individuals. They break down the concept as “energy accounting,” explaining how each activity—no matter how small—requires energy or “spoons” and why managing these resources is vital. Don't forget to leave us a review and get in touch via www.neurotypicalsdontjugglechainsaws.co.uk
The one idea that was REVOLUTIONARY in my marriage and parenting - how to not take behaviour personally, how to avoid conflict and resentment, how to let go of feeling like your partner is being lazy... and so much more.If you've ever felt like you're running on empty, or wonder why your kids hit a wall in the afternoons... tune into this episode of The Emotionally Intelligent Parenting Podcast. I'm digging into Spoon Theory - a simple yet powerful way to understand and manage our energy and capacity.We'll talk about how you and your partner can support each other on those low-energy days, how to help your kids recognise their limits, and why this metaphor can make a big difference in your family's day-to-day life. If you've ever wished for a better way to explain why everyone needs a break sometimes, this one's for you!Psst! Looking for more tools to thrive as a parent?My self-paced online courses are here to help! From raising emotionally intelligent kids to decoding challenging behaviours, they're packed with practical strategies to make parenting easier.Courses include:Raising Emotionally Intelligent KidsDecoding and Defusing Challenging BehavioursSupporting Anxious and Sensitive KidsEFT Tapping (Emotional Freedom Techniques)From Reactive to Responsive Parenting (aka How to Stop Shouting at Your Kids)Right now they're a massive 50–89% off, so grab them while they're hot!Check them out on the Course page at www.stephaniepinto.com*** If this resonates with you, I'd love to hear from you. Email us at hello@stephaniepinto.com and send me your thoughts, feedback or questions! Have you joined my Facebook Group for parents? There are over 130,000 parents in the community!
As we head into the giving season, that feeling of burnout can start to creep in. We feel an obligation to give even if it is outside our means. Let's discuss how to give in a way that doesn't deplete us and instead gives us more life! Here's more of what we talk about in this episode: Is giving the key to happiness? Is giving also causing burnout? Spoon Theory and how it relates Energetic currency that can come from giving Giving from obligation vs giving from overflow How to find energy leaks and plug them up Giving in alignment with who you are Where can you delegate tasks to conserve your mental energy Related Resources: Ep. 107 - Opting Out of Family Gatherings Ep. 104 - You Don't Need Time Management, You Need Energy Management! Essentialism by Greg McKeown Additional Resources:
Let's explore the concept of Spoon Theory, a framework often used to understand energy levels and limitations, especially in relation to chronic illness. But Spoon Theory can be helpful for everyone, as it sheds light on how our energy boundaries shift based on our moods, circumstances, and overall mental load. By tuning into these daily changes, we can set boundaries that better honour our energy and support our emotional wellness. Knowing our “spoon” count can help us communicate needs and limits within relationships. When we acknowledge our changing energy levels, we're able to bring empathy and understanding into our interactions, knowing that each day holds different capacities. Don't forget to subscribe, like, and share with a friend who needs a space to feel in
In episode 105 of the One Thing Podcast, Dr. Adam Rinde interviews Dr. Sandra Paulsen, a renowned psychologist and author, about her professional journey and expertise in psychotherapy, focusing on her work with autism and Eye Movement Desensitization and Reprocessing (EMDR). Dr. Paulsen discusses her own experiences with autism, her approach to treating trauma in autistic patients, and the need for gentle, tailored interventions due to their sensitive nervous systems. She also touches on the complexities and gifts of autism, the importance of recognizing emotional and physical sensations in therapy, and her use of visual aids and cartoons. Throughout the episode, Dr.Paulsen addresses controversial topics in the autism field, talks about her newest book, 'The Beauty and Burden of Autism,' and shares insights on the unterconnectedness of autism with other conditions like anxiety, PTSD, and OCD. Dr. Rinde and Dr. Paulsen reflect on the challenges and future prospects for those on the autism spectrum, emphasizing the importance of support and tailored therapeutic approaches. In the event the podcast exceeds 300 views (YouTube and Podcasts plays) in the first 30 days The One Thing Podcast will donate at least $100 @emdrhap Humanitarian Assistance Program https://www.emdrhap.org/ Time stamps: 00:00 Introduction to the Podcast and Guest 04:31 Dr. Sandra Paulson's Professional Journey 07:36 Discovering and Embracing Autism 09:42 The Beauty and Burden of Autism 17:27 Controversies and Misconceptions in Autism 31:35 Exploring Autism in Women 32:09 Challenges in Relationships 34:20 Masking and Camouflage 37:44 Spoon Theory and Terminology 39:36 Overlap of Conditions 42:31 Managing Sensory Overload 44:03 Therapeutic Approaches 46:45 Understanding Alexithymia 51:56 Diet and Environmental Factors 53:51 Future Hopes and Insights 01:00:09 Conclusion and Resources About our Guest Sandra Paulsen, Ph.D., is an international instructor, author and illustrator of principles and procedures for using EMDR with complex trauma including structural and somatic dissociation and trauma held in implicit memory. Her books include coediting The Neurobiology and Treatment of Traumatic Dissociation: Toward an Embodied Self. She wrote and illustrated Looking Through the Eyes of Trauma: An Illustrated Guide for EMDR Therapists and Clients; and When There Are No Words: EMDR for Very Early Trauma in Implicit Memory, and coauthored We're Listening Body: Integrating EMDR, Somatic and Ego State Therapies. 2024 publications will include: The Beauty and Burden of Autism: An Illustrated Guide and Workbook, and Indigenous Trauma and Dissociation: Healers, Psychotherapies and the Drum, with Shelley Spear Chief. She also coauthored and illustrated a children's book that is also useful for dissociative adults called All the Colors of Me: My First Book on Dissociation. Sandra is a Fellow of the International Society for the Study of Trauma and Dissociation. --- Support this podcast: https://podcasters.spotify.com/pod/show/onethingpod/support
Today I'm joined by Dr. Pau Abustan and Dr. Shayda Kafai to discuss the intersections of queerness, disability justice and mentorship for BIPOC scholars. The episode covers the principles of disability justice, personal strategies for self-care, and the importance of building supportive communities and mentorship networks. Our guests also open up about the challenges that queer, crip, BIPOC scholars face and provide insights into advocating for inclusive and accessible educational spaces. You can reach Dr. Pau on Instagram @dr_pau_phd and Dr. Shayda on Instagram @shaydakafai and on her website: shaydakafai.com Here are the names and links to people and concepts mentioned on the show: -Margaret Price (Mad at School) -Molly Benitez (affects of labor) -Patty Berne -Leroy F Moore Jr -Leah Lakshmi Piepzna-Samarasinha -10 Principles of Disability Justice: https://www.sinsinvalid.org/blog/10-principles-of-disability-justice -Sins Invalid: https://www.sinsinvalid.org/ -Crip time: https://dsq-sds.org/index.php/dsq/article/view/5824/4684 -Spoon Theory: https://butyoudontlooksick.com/category/the-spoon-theory/ -access is love: https://disabilityvisibilityproject.com/2019/02/01/access-is-love/ One more spot left for my limited time 50% off coaching. Book a consultation and reserve your spot today! Order my new co-authored graduate school admissions book for first-gen BIPOCs by going to isgradschoolforme.com. Book me to speak at your upcoming professional development event. Get my free 17-page Grad School Femtoring Resource Kit, which includes essential info to prepare for and navigate grad school. Follow me on your favorite social media platforms: Instagram, LinkedIn, YouTube, Facebook, TikTok, and Twitter. Support our free resources with a one-time or monthly donation. To download episode transcripts and access more resources, go to my website: https://gradschoolfemtoring.com/podcast/ This podcast is a proud member of the Boundless Audio Podcasting Network. *The Grad School Femtoring Podcast is for educational purposes only and not intended to be a substitute for therapy or other professional services.* Learn more about your ad choices. Visit megaphone.fm/adchoices
Stride one, stride two, stride three, toe stub, legs wobble, arms spin, feet planted, and recovered. Time to catch up. Stride one, stride two, stride three, legs of molasses, gravity winning against my upright poster, maximum effort to raise my knees, and I stop. Watching first-time runners outpace me was unbelievable. Stride for stride, matching their jog was beyond my capability. Why!? The running skills I developed over a decade should easily match pace with new runners. That was the first day my spoons were notably depleted in the moment. I hadn't yet been diagnosed with Multiple Sclerosis or exposed to spoon theory. Months later, while reading a magazine article, much like this one, I was introduced to Spoon Theory. That article taught me more than a concept, but a shared language and terminology commonly used between groups struggling with a consistent deficit of energy, like me. This article aims to inform those unaware of “Spoon Theory” about its concept and origin. Featured in 'The Roads Edition' of AwareNow Magazine (www.awarenowmagazine.com). Written & Narrated by: Fox Rigney Music by: The David Roy Collective Produced by: AwareNow Media --- Support this podcast: https://podcasters.spotify.com/pod/show/awarenow/support
Summer projects and improvements are happening, Amanda is leaning towards an all-chambray wardrobe, and Brooke has some harsh words about a recent purchase that got immediately returned. The ladies also discuss Spoon Theory as a visual way to represent and think about your total daily energy.Amanda then shares a joy-sparking family ritual, and Brooke is doing her future self a favor that maximizes sales but minimizes Target order pickups.Visit www.goodenoughish.com for links to everything mentioned on the show.Support the podcast: Good Enough-ish on PatreonSnag Some Merch: goodenoughish.com/shopJoin the Good Enough-ish™ conversation in our private FB group: Good Enough-ish private Facebook groupIf you like this episode, please take a moment to share a positive review on Apple Podcasts, and share with others who may enjoy Good Enough-ish!We'll be back each week with new topics, stories, tips, and personal experiences, as well as some good old friendly banter and lots of laughter. Don't forget to find us on Instagram @goodenough.ish, or contact us with your episode ideas, questions, and comments.
La'Kita Williams is the founder and principal strategist of CoCreate Work, a workplace culture consultancy guiding businesses to systems-level changes that result in measurable successes and true inclusivity. As a certified professional coach with a Masters in Social Work and 20+ years of experience, La'Kita is passionate about helping leaders perform the deep work of personal transformation, which is a critical element for organizational transformation. She firmly believes culture is not separate from strategy — it IS strategy. She has done culture-building work with organizations from small businesses to Fortune 500 companies. La'Kita has been quoted in several national outlets including The New York Times and written for Harvard Business Review. While I love and admire everything La'Kita is doing professionally, I really wanted to talk to her on a more personal level for this conversation. I'm grateful she was willing to dive in and go deep with this conversation! Listen to hear La'Kita share: How a health crisis in the middle of the pandemic upended her life and resulted in her diagnosis of Multiple Sclerosis How her diagnosis impacted her 4 children who were ages 10-20 years old at the time of her diagnosis The changes she had to make with her relationship with ambition as a result of her diagnosis How she uses Spoon Theory to manage her energy daily Her advice to other leaders or folks who are managing chronic illnesses, including what pieces and resources to get in place to protect yourself at work What needs to happen systemically to provide protection for people with chronic illnesses so that disclosing chronic illness isn't putting someone at risk of losing their job The critical importance of flexible schedules and WFH flexibility across all organizations and industries who claim to be creating accessible, inclusive workplaces and communities What her company, Co-Create, does to create a great culture in the organizations they partner with Her vision of the future of leadership Links mentioned: Connect with La'Kita and her work: cocreatework.com La'Kita's Instagram La'Kita's LinkedIn CoCreate Work Instagram CoCreate Work LinkedIn We love the sponsors that make this show possible! You can always find all the special deals and codes for all our current sponsors on our website: https://shamelessmom.com/sponsor Interested in becoming a sponsor of the Shameless Mom Academy? Email our sales team at sales@adalystmedia.com Learn more about your ad choices. Visit megaphone.fm/adchoices
Familiar faces are introduced to some new ones. Attempts at friendship are made, but in enemy territory, how do you know who you can really trust?Join the conversation at https://discord.gg/MythCraftLearn more about MythCraft at https://mythcraftrpg.com Support the Show at https://www.patreon.com/QuasiRealPublishing
Of course approaching the one year anniversary of losing someone very important, our thoughts turn to grief. In this episode we discuss grief as it pertains to chronic illness patients and even try to apply it to how the doctor's feel/act.We've also added a resource to every discription which is the most elaborate checklist of symptoms associated with Ehlers-Danlos. You have to school a bit past some technical jargon but the checklist is there and easy to read. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comHere is another checklist of common issues with EDS: https://www.orthopt.org/uploads/Management_of_Hypermobility.pdfIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
Saying something stupid isn't just for the ignorant and uneducated among us. Enjoy my most recent shame.Support the Show.Apply to be a guest: Guest ApplicationWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and TikTok Subscribe ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy
Become a monthly subscriber for just $1.99 per month and receive an additional two to three episodes per week!https://app.redcircle.com/shows/9472af5c-8580-45e1-b0dd-ff211db08a90/exclusive-contentIn this episode of The A to Z English Podcast, Xochitl and Jack talk about spoon theory:Spoon Theory: The Spoon Theory is a metaphor used to explain the limited amount of energy and resources that people with chronic illnesses or disabilities have to accomplish daily tasks and activities. It was coined by Christine Miserandino in 2003 in an essay she wrote to explain her experience with lupus to a friend.Transcript:00:00:01JackWelcome to the A-Z English podcast. My name is Jack and I'm here with my co-host social and today social and I are going to talk about something called Spoon theory and I don't really know what this is, to be honest. I am kind of ignorant on this topic, but social is going to explain.00:00:22JackThe meaning of spoon theory and then we are going to complain like a couple of old people about all of our physical ailments that we're dealing with, right? So, OK, awesome. Alright. What is spoon theory? Social.00:00:34XochitlYes.00:00:39XochitlSo spoon theory is a metaphor, and it describes the amount of physical or mental energy that you have available for daily activities. So if you live with chronic pain or chronic illness, whether it's mental or physical or both, you're kind of limited in a way that other people aren't. And so.00:00:59XochitlThe idea is that you have a set amount of spoons. Let's say you have 10 spoons for your day, and then things that other people don't realize take up energy because they have.00:01:09XochitlA more fit body do take up energy for people with chronic pain. So let's say getting up and out of bed, taking a shower, making something to eat.00:01:23XochitlEven getting ready for bed, getting dressed, all those things can put strain on your body and eat up your spoon. So maybe by the time you even get ready to go to work, you're down 5 spoons and someone who doesn't have chronic illness might have just used a spoon or half a spoon of energy to do all those.00:01:44JackYeah. And let's just, uh, quickly, uh, unpack a little bit of the vocabulary. Chronic means, like, always constant. So chronic pain means you're always in pain from the time you wake up to the time you go to bed. You have some kind of pain.00:01:54발표자Yes.00:02:04JackIssue.00:02:05JackAnd and so social was describing like, like the spoons are not literally spoons. We're not talking about real spoons. We're saying, like, they're like metaphors. Like, you got 10 spoons and.00:02:19XochitlThey're like units of energy, basically.00:02:21JackUnits of energy. Right. Exactly. And so.00:02:24XochitlLike hit points on a video game when your character has like a little green.00:02:28XochitlR.00:02:30JackYeah, right. Energy. Your power gets, you know, goes down and down and down, yeah.00:02:30XochitlAnd then yeah it.00:02:35XochitlIf your character is a healthy character, let's say they did all their tests and their bar is still green. But if your character has chronic illness, then by the time they're done with their morning routine, they might be down to yellow. They might be.00:02:47XochitlDown to half points.00:02:49JackRight. And let's say your energy level for the day for a person with chronic pain is 10 spoon.00:02:55발표자And.00:02:56JackLike social said, getting ready in the morning, making breakfast, taking a shower, getting dressed, that might be 5 spoons, which means you only have 5 left for the whole day, so you get the bus, get to work, open your computer. You know, there's three more spoons now. You've got 2 spoons.00:02:56XochitlYes.00:03:17JackLeft, you don't even have enough to get home, you know.00:03:20XochitlRight.00:03:22JackUntil you hit the wall right and you're so exhausted.00:03:22XochitlAnd.00:03:24XochitlRight.00:03:26XochitlAnd a lot of people get through their day-to-day on like a spoon deficit. So you're, but you're the concept basically suggests you're borrowing spoons. You're borrowing energy from your next day, which is how people who have chronic illness might end up pushing through of five day work week and doing 40 hours a week.00:03:46XochitlBut then on the weekend, they're just laying in bed the whole 2 days.00:03:50JackRight. They're just totally wiped.00:03:52JackThat out. OK, I love the idea of spoon theory. I think it's a really good. I'm not sure why they call it spoons. Like use spoons as the as the example, but it could be anything. Yeah.00:04:02XochitlRight. I don't know. I think I think because you run out, you run out. I don't know if this is true or not, but you know when you're doing dishes like you only have a certain amount of spoons and you have to do the dishes again.00:04:13JackOhh yeah, that's right that that's probably it. Yeah. I think that makes sense. Yeah, so.00:04:16XochitlYeah.00:04:20발표자So.00:04:22JackUh, I'll, I'll. I'll start with myself here first. Uh, I've been. I've been dealing with. Uh, a chronic chronic back pain for probably 20 years, I would say.00:04:34JackI had my first.00:04:36JackMy first surgery, my first back surgery for disc.00:04:42JackProblems when I was 27.00:04:45JackAnd and then, uh, probably about 10 years later, maybe 15 years later, I had another back surgery for more disc problems. And now for the last like maybe three weeks. I've been dealing with some serious chronic pain just all the time.00:05:07JackWith my back and my discs again. So what? What I find is when you're in pain all the time.00:05:16JackYou're more tired.00:05:18JackYou can't exercise, so when you eat you get bored. You just sitting around. So. So in for me, I'll eat more to, like comfort myself, which makes me.00:05:30XochitlHave something to do right? Yeah.00:05:32JackGain weight, which makes my back hurt more, which makes me more depressed, which makes me want to eat more, which makes me not exercise more and it's like a a horrible spiral. You know, as I just go down the drain, you know, and things are getting worse and worse, so.00:05:48발표자Right.00:05:50JackSo.00:05:51JackYeah. So I so I I know what the spoon theory thing you're talking about is like there are times where I go to work and I run out of spoons, you know, by the my third class, I'm just like.00:06:04JackI don't. Whatever. You know what, guys? Just take a rest and, you know, draw a picture on your paper or whatever you wanted to, you know, talk with your friend like I'm completely. I'm done. Like I I don't have the the mental capacity.00:06:15XochitlAll right.00:06:23JackOr the physical capacity to do this anymore?00:06:27JackAnd and it's a really, it's a really depressing way to live because living with pain all the time means you're kind of always thinking about the pain. It's always in your mind. And then that leaves a little bit of space for you to think about and deal with other people. So I find that I'm really short tempered.00:06:38XochitlYeah.00:06:47JackWith my wife, I'm like, short with my wife. You know, my wife will ask me a question. Like what? You know, what do you want for dinner? What? You know that. That's my response to something like that. And it's like it's so rude.00:06:59JackAnd so disgusting of a response. But it's not. It's not because I was mad at her or anything to do with her. It's just cuz I was in some pain. I'm just like not able to focus. Like what? What did you say? Like I I can't. I can't even hear what other people are saying to me. And I really hate being like this. Like it. Really.00:06:59XochitlRight.00:07:18JackIt really makes me frustrated and I and I.00:07:21JackCan't get good.00:07:22JackSleep because I can't lie on my side. It hurts if I lie on my back. It hurts if I.00:07:27JackLie on my other side, it hurts.00:07:28JackSo it's really I've I've been dealing with this and and I know that you also have understand what I'm saying, cuz I think you've dealt with some like physical issues as well.00:07:38XochitlYeah.00:07:39XochitlDefinitely, Jack. I I completely understand what you're saying. I was born with.00:07:45XochitlBorderline hip dysplasia and both hips, and that just means my anatomy is wonky, so my bone is like here instead of being here, it's like on the edge of where it's supposed to be. And every time I walk it, like beats up the other bone I.00:08:01XochitlSo it like pinches and it's really bad in one hip specifically, which has become weaker due to the pain, but it's really hard to do physical therapy with it because.00:08:09발표자MHM.00:08:14XochitlI'm in pain, so it's hard to start doing exercises around it because it hurts more and it's more tiring and I have like a very limited.00:08:25XochitlAmount of what I can do in one day.00:08:28XochitlWhich means that I'll if I feel like I have energy to do something, I'll do as much as I can in one day and then I'll end up borrowing spoons for the next day. So I'm totally crashed out the next day. I have no energy and I know what you mean. I can also get really short tempered. Uh, one thing, a lot of people don't realize is that.00:08:47XochitlIt affects your sleep.00:08:49JackRight.00:08:49XochitlSo imagine that you had really poor sleep for like a week straight. At that point, if you're only sleeping.00:09:01XochitlFar less hours a night than you're supposed to be, far less comfortably. You probably start getting confused, agitated, irritable.00:09:12XochitlAnd unfortunately, people around you suffer because.00:09:15XochitlYou can snap at them unexpectedly.00:09:18JackYou're not gonna snap at strangers. You know you're gonna snap it. You're the people that you love because you know that they can't abandon you. You know, it's like.00:09:25XochitlRight. You're comfortable with, you're comfortable around them and you're also interacting with them?00:09:29XochitlMore, yeah.00:09:30XochitlOn a daily basis than you would with any strangers, right. So.00:09:34XochitlIt does. It is really hard. It it's one of the reasons that I have a hard time.00:09:39XochitlFinding a full time job that I can do is because.00:09:45XochitlI only have so many spoons in a day and I really struggled with college when I was in college for the same reason. It's not that the work was too hard.00:09:52XochitlFor.00:09:53XochitlMe. It was that I would just get so burnt out in a day from I didn't. I like. I won't sleep well. I'm not eating well. I feel terrible. I can't walk well. Some days I really have to drag myself around.00:10:08XochitlGet anywhere and I think.00:10:12XochitlIt really puts a strain on what you can do in any given day and a lot of people just don't understand.00:10:17XochitlAnd especially when it's kind of an invisible disability. So like people like Jack and I, we might look fine to people on the outside, but we're suffering internally through all these physical and emotional stressors because it does affect your mental well-being as well.00:10:35JackYeah, chronic pain is is a it. It doesn't just affect your body, it it affects your mind as well it it. It plays games with.00:10:42JackYour.00:10:43JackWith your mind and and changes your personality and and your outlook on life and and everything so.00:10:49JackOhh yeah trying trying to overcome it. If you can find some way of dealing with like physical therapy or some kind of you know if there's a if there's a way out of it. I highly recommend pursuing it if it's possible and staying away from like painkillers and opiates and that sort of stuff.00:11:12JackBecause that stuff is.00:11:13JackJust uh masks the pain for a little while, but then that'll send you down a whole, you know, could send you.00:11:20XochitlOhh, their wormhole, right? Yeah.00:11:21JackYes, exactly, exactly so there. You know, there isn't really necessarily always a good solution to our problems. You know, sometimes they can throw painkillers at it. That's not gonna solve the problem.00:11:33XochitlYeah.00:11:34JackYeah.00:11:35XochitlIt's like seeding the monster temporarily, then it like rears its ugly head again.00:11:40JackYeah, it it gives you, you get a week of, you know, like a kind of uh. But then you're foggy, you know, you you're not yourself, you know, so.00:11:48XochitlAnd you can also get your table like as soon as you're off the pain meds or as soon as anything. Yeah, and you get dependent on them. So I think it. Yeah, I I really haven't had much. I did get an injection, A cortisol injection in my hip.00:11:52JackAll right, absolutely, absolutely.00:12:03XochitlThat worked for about two weeks, and then the pain is back, I suppose, to work for average to three to six months. So I'm like, well, totally didn't work. So I burned through that. So we shall see. But yeah, it is. It is a frustrating condition and I think.00:12:11JackYou're like, whoops.00:12:23XochitlFirst world so-called first world countries are just now starting to treat chronic pain as its own condition, not just the underlying cause, but managing it on its own. And we're just now making strides and.00:12:37XochitlMaking accommodations for it in the workplace, and I think we're making big leaps, but yeah, I'm curious to know about your guys's experience as listeners. Do any of you suffer with chronic pain or chronic health conditions? Obviously, only share as much as you're comfortable sharing, but yeah, I'm just curious to know what, what are things like in your country?00:12:56XochitlUM, how does it operate in your country and your culture?00:12:59XochitlThere.00:13:01XochitlYeah, I'm very interested to know. So leave us a comment down below at AZ englishpodcast.com. Shoot us an e-mail at at ozenglishpodcast@gmail.com.00:13:10XochitlAnd make sure to join the we chat and WhatsApp groups to talk to us directly. If you can spare $1.99 Jack and I are making exclusive episodes for subscribers. This really helps us to be able to increase the level and amount of content that we're making. So we really appreciate your support and thank you so much to those of you who have subscribed.00:13:31XochitlReady. And I'll see you the next.00:13:33XochitlTime. Bye bye.00:13:34JackBye bye.Podcast Website:https://atozenglishpodcast.com/topic-talk-spoon-theory/Social Media:WeChat: atozenglishpodcastFacebook Group: https://www.facebook.com/groups/671098974684413/Tik Tok: @atozenglish1Instagram: @atozenglish22Twitter: @atozenglish22A to Z Facebook Page:https://www.facebook.com/theatozenglishpodcastCheck out our You Tube Channel:https://www.youtube.com/channel/UCds7JR-5dbarBfas4Ve4h8ABecome a member of Podchaser and leave a positive review!https://www.podchaser.com/podcasts/the-a-to-z-english-podcast-4779670Join our Whatsapp group: https://forms.gle/zKCS8y1t9jwv2KTn7Intro/Outro Music: Daybird by Broke for Freehttps://freemusicarchive.org/music/Broke_For_Free/Directionless_EP/Broke_For_Free_-_Directionless_EP_-_03_Day_Bird/https://creativecommons.org/licenses/by/3.0/legalcodeSupport this podcast at — https://redcircle.com/the-a-to-z-english-podcast/exclusive-contentAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
Despite being outdated and ableist, the term "wheelchair-bound" is still used by a lot of people — including the medical profession. Let's nip that in the bud.Support the Show.Apply to be a guest: Guest ApplicationWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and TikTok Subscribe ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy
Tis the season! What season? Struggle Bus Season! And it doesn't just pertain to Spoonies but Amberlyn and Ann discuss the reality of the struggle and some ways to manage it. Hint: supportive friends and humor. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
Co-host Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and co-host Holly Knotowicz, a speech-language pathologist living with EoE, who serves on APFED's Health Sciences Advisory Council, have a conversation about the Spoon Theory. In this episode, Ryan and Holly discuss the origin of the Spoon Theory, their experiences, and what the Spoon Theory means in their lives. Listen to this episode to learn how the Spoon Theory could work for you. Disclaimer: The information provided in this podcast is designed to support, not replace the relationship that exists between listeners and their healthcare providers. Opinions, information, and recommendations shared in this podcast are not a substitute for medical advice. Decisions related to medical care should be made with your healthcare provider. Opinions and views of guests and co-hosts are their own. Key Takeaways: [:50] Ryan Piansky and co-host Holly Knotowicz introduce the topic of today's episode, the Spoon Theory. Both Ryan and Holly will discuss their experiences. [1:39] About ten years ago, fatigue became a challenge for Holly. As she researched options for managing her fatigue, Holly came across the Spoon Theory, a tool she uses and teaches now in conferences and talks. [2:05] The Spoon Theory is a story written and copyrighted by Christine Miserandino in 2003 to help explain how chronic illness affects the amount of physical and or mental energy a person has available for daily activities and tasks and how it can be limited. [2:28] About a year ago, in a Community Conversations episode of APFED's podcast, guest Ashley Spencer discussed EGPA. Ashley and Holly brought up the Spoon Theory. Ryan calls the Spoon Theory a digestible way to convey the effect of living with fatigue from chronic illness. [2:46] Holly shared how Christine Miserandino developed the Spoon Theory while at brunch with a friend. Her friend asked Christine how she was coping living with lupus. Christine grabbed all the spoons from the table and explained that each task throughout the day costs a spoon. [3:21] Christine asked her friend to walk through every activity of her morning. As her friend started talking about the different things she does, Christine would remove a spoon from her pile of 12 spoons. When dinnertime came, there was only one spoon. That limited her choices for dinner; this was long before dinner delivery services. [4:19] Through this exercise, Christine's friend learned how chronic illnesses use up a lot of energy just from existing. For listeners who want to read more, please check out Christines' website, ButYouDontLookSick.com, linked in the show notes. [4:33] Ryan sees the Spoon Theory as an easy way to convey what living with a chronic illness is like. He asks, why is it 12 spoons? Does everyone have the same number of spoons? In interviews, Christine has said 12 was the number of spoons on the table but it is a good representation of the limited supply people with chronic illnesses have. [5:07] According to the theory, healthy people have an “unlimited” supply of spoons, while people with chronic illnesses have to ration their spoons to get through the day. Everybody's number is slightly different but the theory uses 12. [5:22] Ryan shared a story about seeing his sister during the holidays. She doesn't have a chronic illness. She seems to have unlimited spoons for activities she plans, while Ryan may run out of spoons around 10:00 a.m. [5:46] Ryan asks if it is always the same number of spoons per day. Holly says your baseline number is about 12 spoons. It can vary if you borrowed spoons from the day before or if you have spoons left over from the day before. Some say on a good day, you might wake up with 20 spoons but a bad day would start with 12 spoons. [6:34] Holly explains about borrowing spoons. If you run out of spoons on one day, before you finish your activities, you might borrow spoons from the next day by canceling a planned activity for the next day. Holly also explains it to people as a lending library. [7:49] When Ryan was young, he attended the APFED patient education conference every year. He recommends it. His parents warned him not to overextend himself but to take it easy and rest during the day. At every conference, he just kept going for 12-plus hours. When he got home, he would crash for a day. He had used up all his spoons! [8:36] Ryan asks what happens when you run out of spoons. Holly shares that when you run out of spoons, your body might have a flare-up, or be more susceptible to getting sick because you've become rundown. [9:10] It can also lead to comparison with others and feeling sad or anxious because you don't have the energy that healthy people around you have. For the average person with chronic illness, cooking from scratch from a recipe could be three or four spoons. [9:51] For someone with a specialized diet, that could double. You're not just reading the recipe, you have to think about substitutions and go buy them. You have to know if the recipe will taste good with substitutions. It's mentally exhausting to follow recipes for specialized diets. [11:04] Holly is an extrovert but sometimes being with people can take too many of her spoons, so she carefully plans her socializing. Being with good friends might take three spoons. Presenting at a conference takes more spoons. Walking a dog could take two spoons. Taking medication or brushing her teeth could take one spoon. [12:10] For children with chronic illness, going to school might take four of their spoons. Playing soccer might take five spoons, so at times they don't have the energy. This can result in absences from school because they want to have typical social lives but don't have the energy and reserves to do so. It's the same for adults but it's a hard fact for children. [12:53] Ryan was diagnosed with EoE at age two. Ryan thinks back to high school. He woke up at 6:15 every day to get to high school before 8:00. Getting to school on time probably took most of his spoons. The rest of the day was exhausting. He never did any extracurriculars in high school. By 3:00, he was down for the count. [13:50] If Ryan's friends wanted to spontaneously do something after school, he often had to refuse. He needed a few days to prepare physically and mentally for extra activities. Having something sprung on him at the last minute drained more of his spoons. He would like to have had the Spoon Theory to explain it to his friends. [14:52] Holly says there is a mental aspect to having a chronic illness. You have to think about things in advance, especially people living with eosinophilic diseases and/or those who have specialized diets. To consider going out to a meal, you might have to research a restaurant in advance or even talk to the chef. Thinking about and making these phone calls requires spoons. [16:06] Recently Ryan planned to go out with friends. After they picked a restaurant and Ryan chose what he would order, the friends decided to try a different restaurant. Ryan had to check the menus of six other restaurants before they settled on the original one. The extra effort depleted Ryan's energy and he just sat quietly during dinner. [19:14] Ryan didn't push himself to be social because it would have eaten into his reserve spoons for the following day. As it was, he slept in the next day. [20:07] Ryan has had days where he has had to use up the next day's spoons, and then had the next day be equally busy. [20:28] The Spoon Theory can be applied to different chronic illnesses. Most of them are invisible illnesses. It makes sense that Christine's website is named ButYouDontLookSick.com. [21:29] Holly loves that the Spoon Theory provides a visual representation of how our energy works and how we can manage it. Because many chronic illnesses are invisible, people don't always understand why we have to cancel, abort, or decline plans. We often have to prioritize activities to protect our health. It's a different standard. [22:10] We prioritize activities to protect our health and how we feel. Holly uses the Spoon Theory to explain why she declines plans in advance when she has too many things scheduled. She wouldn't be her best self. Holly rarely schedules anything for after an eight-hour workday. [22:55] Holly thinks of herself as a dynamic person who brings a lot to the table. She doesn't want to be in an activity where she can't participate fully. It reflects on how much her diagnosis seeps into her life. She doesn't like to share her EoE with everybody, even though many people in her life know it and she does this podcast! [23:25] Over the last six months, Holly's goal has been to map out her week to keep her energy consistent. She plans when to work out in the morning, when to see patients, and when to fly for international conferences. She gives herself a rest day after the flight or she stumbles and mumbles during the presentation. This means she often declines dinner invitations. [24:45] Holly will accept invitations to destination weddings but then will not book anything extra for a week afterward or she knows she will get sick. It's a pattern. [25:28] Ryan says sometimes people can tell when he's not at his best, but for the most part, he looks relatively healthy. He's up and about, at meetings and conferences but it's such a limited amount of energy that he has available. It's hard for people with unlimited spoons to gauge how many spoons Ryan has left. [25:57] Holly often presents at medical conferences about feeding therapy, eosinophilic diseases, food allergies, FPIES, and tube feeding, and she incorporates the Spoon Theory into some of her talks. She has spoons at the podium and starts dropping them as she goes, holding one or none by the end. That's when questions come. [27:25] Holly likes people to know that when they're working with kids with chronic illness, it's important to pace out their therapy. For example, give a patient two things to work on until the next time, not ten, to be successful. [28:50] Ryan clusters his multiple specialist annual visits at the start of the fall semester and at the beginning of the spring semester. That means he misses some classes and lectures at the beginning of each semester. It is draining. Tests eat up half his spoons for the day. [30:35] Holly shares how applying the Spoon Theory impacts managing her health. The Spoon Theory helps her create and maintain boundaries. She adamantly tries to stick to a schedule that rarely depletes her spoons per day. It's still a work in progress. Holly has a therapist who is helping her work on it. [31:08] Holly schedules social things on days when she has little to no other obligations. She has to maintain that schedule. She has good days and sometimes great weeks which leads her to add more to her plate, but then she runs out of spoons more quickly because she's borrowing from the next day. Eventually, she has no spoons to borrow. [31:42] Holly went on vacation for her birthday and then last week she was doing great, taking some urgent referrals for babies. This week, she had to cancel things. She is learning that she needs to schedule time to recharge and rest even on good days. [32:26] Holly has learned there are ways to increase your number of spoons. The most important things are to be compliant with treatment and follow a specific diet (if recommended). A lot of chronic illnesses have a specific researched diet to help you stay healthy. When you have a cheat day, you're harming yourself by taking spoons from your next day. [33:31] Working out helps with anxiety and depression. There are physical and mental health benefits. Holly started tracking over the last eight months how many spoons working out earned for her, compared to the spoon it took from her. She finds that it adds three to five spoons to her daily reserve. The endorphins boost her energy. [34:14] Ryan agrees. He goes to the gym at least twice a week. If he misses a day, he feels worse. He goes out for a walk on days he's not going to the gym just to get moving and he feels better after that. Being stuck inside all day is mentally draining as well. Going for a walk takes extra effort but it does feel better. [35:32] Ryan and his mother have similar food allergy issues so they both carefully stick to their diet. If they vary their diets on vacation, even without eating triggers or allergens, they feel physically bad for a few days until they get back to their usual diets. [36:28] Once Holly learned about this theory and was making new contracts, she realized that there may be times when she might have to cancel and reschedule. When she sends an email about an engagement, she includes an article on the Spoon Theory and describes what she is struggling with, in case she has to reschedule. [37:42] The Spoon Theory is a good way to describe to friends or family why the person with the chronic illness isn't hosting the holiday but may need to go to a room and rest at the host's home. It's a tool to inform loved ones and friends so they can be supportive. It's a different way to share our struggles with our chronic illness. [38:27] When Ryan meets people and tells them about his health issues, he might say he has food allergies but then also explain how his conditions lead to a limited supply of energy, and then tell about the Spoon Theory. It's a helpful tool we can all use, going forward. [39:08] Our listeners can learn more about the Spoon Theory by going to Christine Miserandino's website, ButYouDontLookSick.com. [39:47] To learn more about eosinophilic disorders, visit APFED.org. If you're looking for a specialist who treats eosinophilic disorders, use APFED's specialist finder at APFED.org/Specialist. [40:05] To connect with others impacted by eosinophilic diseases, please join APFED's online community on the Inspire Network at APFED.org/Connections. [40:14] Ryan thanks Holly for sharing information about the Spoon Theory. It means a lot to Holly that we have a platform to reach a lot of people. Holly hopes if you are struggling with a chronic illness that you are not alone and you can use this tool to bring your loved ones and friends closer. Maybe weed out the people who aren't helping. [41:15] Holly thanks APFED's education partners, AstraZeneca, Bristol Myers Squibb, GlaxoSmithKline, Sanofi, and Regeneron, linked below, for supporting this episode. [41:26] Ryan shares how he just met his partner's friend and by discussing symptoms while picking a place to eat, it turns out she was diagnosed last year with EoE. It's unusual for him to meet people with EoE out there randomly. Ryan is glad to be creating this resource for people. Holly agrees 1,000%. Mentioned in This Episode: Christine Miserandino ButYouDontLookSick.comAmerican Partnership for Eosinophilic Disorders (APFED) APFED on YouTube, Twitter, Facebook, Pinterest, Instagram Real Talk: Eosinophilic Diseases Podcast APFED.org/Specialist APFED.org/Connections Education Partners: This episode of APFED's podcast is brought to you thanks to the support of AstraZeneca, Bristol Myers Squibb, GlaxoSmithKline, Sanofi, and Regeneron. Tweetables: “Approximately 10 years ago, fatigue became a real challenge for me and as I researched options on how to manage fatigue, I came across the spoon theory, which is what we're going to specifically discuss today.” — Holly Knotowicz “[The Spoon Theory] is such an interesting story and it feels like such an easy way to convey what living with a chronic illness is like.” — Ryan Piansky “We all have people in our lives whom we love dearly, but they could maybe be taking too many of our spoons, so you have to be thoughtful about when you plan time with them.” — Holly Knotowicz
The road to hell is paved with good intentions. Or maybe it's "God's intentions"?That whole "If God intended [fill in the blank] argument" gets under my skin these days. Here's why.Support the Show.Apply to be a guest: Guest ApplicationWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and TikTok Subscribe ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy
In this conversation, Michelle Renee and Nikita Fernandes discuss their connection in the therapy world and their passion for sexual healing. They explore the importance of platonic intimacy, body image work, and the power of touch. They also share their go-to outfits for a booty call and the things they love to receive but have a hard time asking for. The conversation ends with a discussion about the hottest things someone has said in bed. In this conversation, Michelle and Nikita discuss various topics related to sexuality and sexual health. They talk about the importance of communication and making noise during sexual encounters, as well as the significance of self-pleasure and self-care. They also touch on the stigma surrounding herpes and the need for education and support for individuals with STIs. Nikita shares her upcoming projects, including becoming a licensed therapist and speaking at a conference on sexual health and mental health. Michelle discusses Soft Cock Week and her upcoming TV appearance. They emphasize the importance of body positivity and acceptance in sexual relationships. Takeaways Platonic intimacy is essential for rekindling sexual intimacy in relationships. Body image work and exploring non-genital zones can be incredibly erotic. It's important to communicate and ask for what you want in bed. Vocalization and affirmative consent can enhance sexual experiences. Being naked in public can help overcome body image issues. Touching and exploring different pleasure points can build anticipation and desire. Communication and making noise during sexual encounters can enhance pleasure and indicate enjoyment. Self-pleasure and self-care are important aspects of sexual well-being. There is a need for education and support for individuals with STIs, particularly in reducing the stigma surrounding herpes. The conference on sexual health and mental health provides a platform for discussing the impact of STIs on mental well-being and promoting education and awareness. Body positivity and acceptance are crucial in fostering healthy sexual relationships. Nikita Fernandes (she/her) a Mental Health Therapist-LP and Sex Therapist based in New York City. She can be found at https://healingwithnikita.com or email at nikita@texgibson.com. Michelle Renee (she/her) is a San Diego-based Intimacy Guide and Surrogate Partner. Michelle's website is https://meetmichellerenee.com and can be found on social media at @meetmichellerenee. If you'd like to ask a question, for Michelle to answer on an episode, click here. To grab your own set of We're Not Really Strangers, click here. Links from today's episode: https://AASECT.org https://www.briangibney.org/ https://www.surrogatepartnercollective.org/ https://embracespt.org https://humanconnectioncoach.com/resources Asexuality episode: https://www.meetmichellerenee.com/episode/7 Spoon Theory: https://en.wikipedia.org/wiki/Spoon_theory We're Not Really Strangers XXX Adult Edition: https://amzn.to/44e7XXY Naked with Strangers Article: https://www.psychologytoday.com/us/blog/the-myths-sex/202102/spending-time-naked-strangers-can-improve-body-image Something Positive for Positive People: https://www.spfpp.org/ Something Positive for Positive People Safe Sex Expo: https://www.spfpp.org/offerings/p/safe-sex-expo STI Risk Chart: https://www.sfcityclinic.org/patient-education-resources/std-risk-chart https://softcockweek.com Sex Sells on FuseTV, Season 3 - Episode 5: https://amzn.to/3JA8Twt --- Send in a voice message: https://podcasters.spotify.com/pod/show/intimacylab/message
Both Amberlyn and Ann have some experience living in areas with severe weather and they've both gone through prepping education. While Amberlyn is much more formal with military training, Ann didn't do too shabby using using resources found at the library. Now is a great time to be talking to your providers about getting a few extra days worth of medications in case of an emergency. Don't forget to have your shoes handy and ready to go. And remember that part of prepping is thinking about the worst case scenario. You don't need to plan every detail in the event of a death, but it's a good idea to share basic wishes with your loved ones. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
Struggle and healing often go hand in hand, as Delicia's gripping tale of resilience unfolds in our latest conversation. Facing a health odyssey that begins with severe allergies and the emotional scars of childhood trauma, she takes us through her diagnosis and the powerful connection between emotional distress and physical health. Her story is a beacon of hope for anyone facing similar battles as she recounts her experiences with hay made from barley on a Swiss farm, propelling a discussion on the intertwining of past traumas and present health conditions. Delicia doesn't shy away from the raw realities of living with chronic pain, sharing the complexities of managing Crohn's disease with treatments ranging from Biologics to a holistic approach. Her journey is punctuated by surgeries and the acceptance of a permanent colostomy bag, yet it's her gratitude and unyielding spirit that captivates us. As she navigates the daily confines of the "Spoon Theory," we're reminded of the power of community, meditation, and a mindset geared towards positivity. Tune in to hear Delicia's insights on the double-edged sword of medical treatments, the risks of immunosuppressive drugs, and the essential role of therapy in her well-being. The conversation also reveals her passion for advocacy against child molestation, highlighting her determination to turn personal adversity into a source of support and awareness for others. Her trilogy memoir stands as a testament to her courage and the transformative power of storytelling, offering a raw and authentic perspective on trauma, resilience, and the relentless pursuit of purpose.Website - www.kissingasphalt.comFacebook Page - kissingasphaltmemoirInstagram - delicianiami_authorNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters
How does holistic therapy address the multifaceted aspects of chronic illness, including physical, emotional, and spiritual, to promote healing and well-being? How can practitioners begin to look at their patients with a more holistic view to treat chronic illness?MEET Christina KantzavelosChristina P. Kantzavelos is a licensed holistic psychotherapist (LCSW) writer, artist, and citizen of the world, with a home-base in Joshua Tree, CA. She received her Bachelor's and Master's of Social Welfare (MSW) from the University of California Los Angeles (UCLA) and her Master of Library and Information Sciences from San Jose California State University (SJSU). She's a first-generation college student, and third culture kid (TCK) holding dual citizenship in Greece/ the EU. She has visited over 35 countries and documented most of them on social media. However, it was in completing the Camino de Santiago (500-mile pilgrimage across Spain) at the end of 2015, that she realized her strong affinity with writing. She decided to start BuenQamino, an Award-Winning, gluten-free, and health-conscious lifestyle, and travel publication. In her 100% remote clinical practice (@BeginWithinToday), she treats and is an advocate for those with chronic illness and C-PTSD, utilizing various modalities such as EMDR, CA, neural retraining, EFT, and others. She recently published 'Begin Within - A Daily Healing Journal' (www.beginwithintoday.com) for those living with chronic illness or other health-related challenges.Find out more at Begin Within Today, and connect with Christina on InstagramBuen QuaminoIN THIS PODCAST:What is chronic illness informed? 5:19What does it mean to be “holistic” when dealing with chronic illness? 9:17What Is Chronic Illness Informed?Understanding the complexities of living with a chronic conditionAdopting a chronic illness-informed approach in your practiceWhat is Spoon Theory?What Does It Mean To Be “Holistic” When Dealing With Chronic Illness?Understanding the interconnectedness when it comes to a person's physical, mental, emotional, social, and, spiritual well-beingWhat are the challenges when working with clients with chronic illness?What is Neural Retraining?Overcoming patient resistance when dealing with chronic pain or illnessThe benefits of journalingCollaborating with other healthcare providersConnect With MeInstagram @holisticcounselingpodcastFacebookJoin the private Facebook groupSign up for my free email course: www.holisticcounselingpodcast.comRate, review, and subscribe to this podcast on Apple Podcasts, TuneIn,
I'm smart. I've always been smart. And being smart is a central pillar of my identity. I much preferred being "the smart kid" to being "the disabled kid."Support the showWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and ThreadsSupport the pod ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy
In this podcast episode, the hosts explore the complex relationship between food and emotional needs. The conversation begins with a reflection on Stef's Instagram post suggesting that food serves as a portal to solitude, comfort, pleasure, and escape, making the idea of changing one's relationship with food seem like a sacrifice of essential coping mechanisms. The discussion delves into personal anecdotes and reflections on how food has occupied significant mental and emotional real estate, offering a sense of engagement or distraction during times of discomfort or emptiness. The conversation shifts to the concept of "spoon theory" as a metaphor for energy and capacity management, illustrating how individuals have limited resources to cope with daily demands. This leads to a broader discussion on the importance of recognizing one's own limits and allowing oneself the grace to rest without self-judgment. The episode emphasizes the significance of self-awareness and giving oneself permission to meet needs in more diverse and healthy ways, including acknowledging the importance of physical touch and emotional support. Throughout, the hosts engage with their live community, incorporating questions and comments that enrich the conversation. Join the LAD Membership Life After Diets on Instagram The LAD Website Email us @ lifeafterdietspodcast@gmail.com Stefanie's Website Stefanie on Instagram Stef's Body Image Webinar + Workbook Sarah's website Sarah's YouTube Channel Sarah's book, I Can't Stop Eating, is available on Amazon
I know you've been there. Your task list is overflowing, and you're overwhelmed. You've got more to do than you can possibly complete in the time available. Perhaps you're in a feast period in your creative career, meaning your project calendar is jampacked full of fabulous projects that you're excited to work on. Which is great, except that it means all of your time is spent heads-down creating, with no time left over for the necessary administrative tasks that come with running a business. Or maybe life has gone sideways on you, and you're dealing with time-consuming complications in your personal life, resulting in a tight squeeze on the time available for your business work, whether that's creative tasks or administrative to-dos. Regardless of the reason, you've found yourself in a place where decisions need to be made. You can't do everything. So what do you choose to do, and what do you choose to leave undone? How do you prioritize? How did you decide what really matters to you, and how do you make sure your actions reflect those values? Today, we're going to look at some of those hard questions. We're going to talk about where your priorities lie. In this episode, you will learn: What my recent experience during a particularly hectic time has taught me about how to prioritize within my creative business. Why I intentionally chose to take some time off from this podcast and how I used that time to focus on other areas of my creative work. How you can use the Six Components of a Thriving Creative Business to guide your priority decisions when time gets tight. Why focusing on these six areas within your business is even more important when life and work gets overwhelming In this episode, I announced the Thriving Narrators Retreat, which is August 22-25, 2024 in Cincinnati, OH. You can learn more about this exciting growth opportunity for audiobook narrators on my website, https://www.starvingartistnomore.com/thrivingnarratorsretreat. I also mentioned the Thriving Artists Academy. You can learn more about this dynamic and supportive community on my website, www.starvingartistnomore.com/thrivingartistsacademy. In this episode, I refer to several past episodes of this podcast: 007: Working in your Creative & Financial Sweet Spot 008: Developing Asynchronous Income 016: The Six Components of a Thriving Creative Business 044: Consistency Is Hard I also mention the Spoon Theory of chronic illness, and I share the Merriam-Webster definition of "priority." A full transcript of this episode can be found here. Full transcripts of every episode will always be available at the Starving Artist No More Blog. Thank you for listening. Please feel free to reach out to me at www.StarvingArtistNoMore.com, with any questions, comments, or feedback. I'd love to hear from you.
Yes, we're a few days late, but we discussed some "Good News" that was shared on Rare Disease Day, February 29th. We'd love to hear what you think.We also got a new mascot and are in the process of naming them. (We are all inclusive so our mascot uses they/them pronouns.) Listen in to find out who the mascot could possibly be. Big surprise: it's NOT A ZEBRA! We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
What does self-care look like for you? It probably looks different than it does for me. A lot of what counts as traditional "self-care" may not be obtainable for someone who is disabled or chronically ill.Support the showWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and ThreadsSupport the pod ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy
Suzanne introduces the concept of 'spoon theory' to discuss managing one's mental and emotional energy in daily life. Suzanne talks about planned and unplanned spending of 'spoons' or energy, and how various activities can help replenish this energy, from reading to gardening or spending time with pets. She differentiates between self-care and 'shadow comforts,' stressing the importance of recognising when one is overextending themselves and the need to recharge properly to avoid burnout. Suzanne encourages listeners to identify their own strategies for replenishing energy and offers insights from her recent vacation and personal experiences to illustrate the importance of self-care. In this episode Suzanne talks about: The Spoon Theory: Managing Daily Energy Returning from Vacation: The Reality Check Replenishing Your Spoons: Personal Strategies Self-Care vs. Shadow Comfort Identifying and Replenishing Your Spoons Enjoy my podcast? You'll love my emails, sign up here: https://www.suzanneculberg.com/newsletter A simple way to make my day – please subscribe to my YouTube channel - https://www.youtube.com/@suzanneculberg The Nope coach Suzanne Culberg teaches you how to put yourself first without feeling selfish, by setting healthy boundaries and reclaiming the unapologetic badass you long to be. Find out more: https://www.suzanneculberg.com Get in touch with Suzanne here: https://www.suzanneculberg.com/contact (in typical Suze style this is NOT your usual contact page!)
Ann has experience having a service dog and Amberlyn wants to know more so why not have the discussion on the podcast, right?You may notice the new name: Tale of Two Zebras. Amberlyn aka Mrs. Labeezy and Ann aka Elder Zebra are making this thing official so you'll be noticing our efforts to make this brainchild a reality. Like so many things involving chronic illness, it will take baby steps and time to fully reach 100% official status. Thank you for joining us on our journey. Glad you're here. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
Thank you to our special guest this episode. We had a lot of fun talking about POTS, living with chronic illness, and sharing stories. There were a lot of resources mentioned and I will be adding them to the episode description asap. TBH: It was much harder editing the recording than I expected. It is one thing to live with health challenges, it is another to listen to others validate the experience. Listening back to the recording I was moved to tears and I need some time to process my feelings before finishing all the notes and details for reference. Thank you for your patience and understanding.Very soon we will be doing an official intro to our "new" podcast: The Tale of Two Zebras. Amberlyn and I feel it is a better reflection of our podcast topics and discussions. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
Sleep is suppose to be restorative but for EDS Zebras, it is often every but restorative. Who knew there was an illness where sleeping can actually be painful? Pillows quickly become friends. There are also higher risks of serious issues and it is strongly recommended that sleep troubles be discussed with medical professionals. We're on YouTube too: https://www.youtube.com/@taleoftwozebrasAmberlyn aka Mrs. Labeezy's Amazon Must Haves includes some of Ann's loved items too:https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_apin_aipsflist_aipsfmrs.labeezy_NQXZZ7SVJ2PSF3EZ700Y&language=en_USZebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at TaleofTwoZebras@gmail.comGiving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.
Don't me wrong, I've got nothing against kids. I just want to know why we give so much more consideration to their well-being and suffering than we do adults who are in similar positions.Support the showWatch my TEDx talk Email badattitudespod@gmail.comFollow @badattitudespod on Instagram, Facebook, Twitter, and ThreadsSupport the pod ko-fi.com/badattitudespodBe sure to leave a rating or review wherever you listen!FairyNerdy: https://linktr.ee/fairynerdy
Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us. With it being the month of February and Valentines Day in the week, Mrs. Lazbeezy and Ann decided to discuss friendships and the challenges presented by being a spoon.Here's a link to the reel that talked about 8 minute friends: https://www.instagram.com/reel/C3BM8ZkpMIG/?utm_source=ig_web_copy_linkWe gave a shout out to the our TikTok creator friend, eryykc, and his brilliant life hack to remember what he needs to bring with him for the day and how to make sure those items get home. Here's the link to hear his idea from the source: https://www.tiktok.com/@eryykc/video/7332858626647854379?is_from_webapp=1&sender_device=pc&web_id=7173368752716793390Mrs. Labeezy highlighted a Zebra "must have": handwarmers that are rechargeable, don't burn, and are highly portable. Here's a link and she is eligible for commission if you use the link: https://www.amazon.com/dp/B0CMQMYBK7?starsLeft=1&ref_=cm_sw_r_apin_dp_2DQG2WTP3K5B8D7V0KND&th=1 Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.Zebras are the rare type of spoonies often affiliated with the Ehlers-Danlos patients. Please check out the website: https://www.ehlers-danlos.comIf you'd like to be a guest, please reach out to Ann and Mrs. Labeezy at GotAnySpoons@gmail.com
Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.Our main topic of discussion this week is mobility aids. It's a hot topic and often a rough one with generational challenges of who, when, & why people should use them.Trigger Warning: we do talk about depression and mention suicidal ideation along with giving specifics to our weight as it relates to some mobility aids.Please visit Mrs. Labeezy's Amazon Link to see our Zebra "Must Haves". She is eligible for a small commission if you purchase by following the link.https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_AQWPX1V8SSS04G2WRF8ALast week I mentioned the Body Braid and shared the video that helps me get the most support out of my braid. I forgot to share a link to purchase the Body Braid, so let me correct that here: https://bodybraid.com/pages/products Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com
Welcome and Thank you for joining us. We are not doctors and we do not give medical advice. We DO share our personal experiences good and bad and what has worked for us.The episode is a bit random and is a great example of our general randomness dealing with our chronic illness. I had never heard of the Ladle Theory so join in Amberlyn teaching me neat things. Please visit Mrs. Labeezy's Amazon Link to see our Zebra "Must Haves". She is eligible for a small commission if you purchase by following the link.https://www.amazon.com/shop/mrs.labeezy/list/1U6RAYC0SJK4T?ref_=cm_sw_r_cp_ud_aipsflist_aipsfmrs.labeezy_4QNC0KVCS7YE81PGMVVWI mentioned the Body Braid. You can find this product here.Here's the woman who's video who helps me every time I put mine on.https://youtu.be/_WzD6WJ6tQ8?si=jlo1rq_30lwUqGq5 Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com
The SPOON THEORY of chronic illness was created in 2003 by US writer and blogger CHRISTINE MISERANDINO. A metaphor to explain to a friend what life was like for her living with LUPUS. At a restaurant, she grabs some spoons and explains each spoon represents ENERGY. Living with a chronic illness we need to ration our spoons to manage daily tasks. Someone not living with a chronic illness has LIMITLESS SPOONS...unlike someone with a chronic illness. Jill explains the role of cortisol in the body and how all 30 trillion cells of the human body at any given moment are using cortisol and depleting our spoons. When someone with adrenal insufficiency runs OUT OF SPOONS...every cell in the body is struggling. LIVING WITH ADDISON'S BOOK https://www.chronicallyfitcanada.com/pages/online_store/productguide ADDISON'S SELF HELP GROUP UK https://www.addisonsdisease.org.uk/ WATCH and SUBSCRIBE on YouTube https://www.youtube.com/chronicallyfitcanada
Welcome Mrs. Labeezy and the New Year. Had some technical difficulties but we should be good to go both here and on YouTube. Mrs. Labeezy covers the Beighton Scoring System found on the EDS Society website here. We cover some other Zebra basics and have fun relating with our unique zebra experiences. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com
To learn more about the origins of the opioid crisis, check out HBO- MAX: The Crime of the Century.You can learn more about Brent David Slone and his wife's fight for justice at https://youarewithinthenorms.com/2022/03/26/they-killed-my-husband-brent-david-slone-2016-cdc-opioid-guidelines%EF%BF%BC/If you want to read about the Elliots' tragic demise, visit https://www.cato.org/commentary/after-crackdown-pain-clinic-tragic-double-suicide Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com
Mrs. Labeezy and Ann discuss clothing options that have worked to support the bendy zebra bodies. Links to come so check back. Giving credit where credit is due: Christine Miserandino revolutionized the chronic illness community by sharing her Spoon Theory with the world on her blog: https://butyoudontlooksick.com Because of her contribution, those suffering with chronic illness are often referred to as "Spoonies" and we often refer to energy stored and expended in units of spoons.If you'd like to be a guest, please reach out to Ann at GotAnySpoons@gmail.com
In this episode, recorded on November 14, 2023, Gina talks the 5 P's (Presenting, Predisposing, Precipitating, Perpetuating, and Protective factors) with Dr. Beverley David. Dr. Beverley is Clinical Psychologist registered with the College of Psychologists of Ontario. She also holds a Ph.D in Sleep Research (Insomnia), and a Masters Degree in Health Psychology.You can find the full video hosted at:https://www.facebook.com/groups/livymethodfall2023Topics covered:Introducing Dr. Beverley David @ IntroHow will we know when we get stuck? @ 1:42The impact of delayed emotions and why it is important to process them when we are ready. @ 4:15Nerf guns, Spoon Theory and why it's a good idea to know your energy capacity at the start of each day. @ 5:35The 5 P's: Presenting, Predisposing, Precipitating, Perpetuating, Protective. @ 9:00Being real with your feels as you present yourself to the world. @ 10:40What you bring into the world are predisposing factors. @ 12:52What has happened and what triggers you, good and bad, are precipitating factors. @ 13:55The cycles of sabotage are part of unpacking perpetuating factors. @ 15:28Getting to know your protective factors. @ 17:00Dr. Beverley helps us understand how we might put the 5 P's together. @ 17:30Using a CBT Journal to monitor thoughts, behaviours, and strategies we can use to change. @ 18:28Asking "did that help or hinder" can be a great way to notice what is working or not. @ 22:19Noticing what you can control when the big feels hit you. @ 23:14Choosing YOU Forever: It's about building resilience to manage the waves of life you will face. @ 25:02Why it's important to take time for yourself at the right time of day to think about how you feel. @ 27:40Flip the switch: Make a conscious choice to be in the moment and be kind to yourself. @ 28:38How am I today? How to know when you are making progress. @ 29:01Creating a "safe box" to temporarily hold what you may not be ready to deal with at the moment. @ 30:30How to know when we need to deal with what we don't want to: Am I ready to go there? @ 35:08Being mindful, curious, and kind are great strategies for making progress as you get to know yourself. @ 37:03Dr. Beverley shares a final tip for the day: Try having a FEAR plan. @ 39:08FEAR unpacked: Feeling, Expectation, Action+Attitude, Reward. @ 40:00How to find Dr. Beverley David online. @ 42:37To learn more about The Livy Method, visit www.ginalivy.com. Hosted on Acast. See acast.com/privacy for more information.
Welcome to "Shit Talking Shrinks," I'm your host Paulie Siegel, a Licensed therapist, Certified Addiction Counselor and master-level trained mindfulness practitioner with a passion for psychology, humor, and insightful journeys through the realm of mental wellness. Join me as we explore the depths of the human mind, unraveling complexities while keeping it lighthearted.Today, we have a special guest, Emily Fraser, a Chronic Illness Advocate who works with a unique group of individuals known as Spoonies. Ever wondered what Spoon Theory is? Emily breaks it down for us and helps us identify the characteristics of a Spoonie.In this episode, we'll dive into the world of chronic illness, exploring what it means and how Spoonies can cope with its challenges. Emily shares valuable insights on pacing oneself and using energy wisely, essential skills for those navigating chronic health conditions. As a seasoned advocate, she provides practical strategies to enhance the lives of individuals who relate or identify as Spoonies.Join us for an enlightening conversation that combines psychology, humor, and genuine insights into the human experience. Whether you're a Spoonie yourself or simply curious about this unique perspective, you won't want to miss this episode.Listen now for episode that promises to be both informative and uplifting, as we navigate the intricacies of chronic illness with Emily Fraser on "Shit Talking Shrinks."Learn more about Emily's work at: https://www.emilyfraser.ca/Connect with Emily on Instagram here: @thespooniementorIf you want to work with me therapeutically and live in CO or ILhttps://www.courageouspathscounseling.comNeed quality therapy ASAP?! Receive 10% off your first month by clicking this link
Topeka City Manager Stephen Wade's battle with depression and mental illness came to a head in June when he attempted suicide. Wade was a "hometown" boy done good and was only about 10 months into his tenure as city manager. After being placed on indefinite leave with pay, he would be shockingly terminated for cause about a month later. In the aftermath of his dismissal, Wade opted to courageously share his mental health struggles publicly by granting an interview with the Topeka Capital-Journal. After reading that article I contacted Stephen and invited him to be a guest on the show, which he graciously agreed to do. This episode features a raw, intimate, and unfiltered look at mental health, suicide, and the extreme stress and pressures city managers must endure as they lead a city and attempt to keep multiple bosses (e.g., elected officials) and stakeholder groups happy. SHOW NOTES: During the interview, Stephen cited two sources of help that may be of value to you. This includes: The Spoon Theory by Christine Miserandino, and Damon Parker and "The Jones Project" SUPPORT THE PODCAST: If you like the show and enjoy the content, please take a moment to leave a rating AND a review on Apple or your preferred platform. It really does mean a lot to me and gives me a lot of motivation to continue producing content for the podcast. It is a lot of work and very time consuming. Thank you!