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More than 50 million people across the United States live with the primary responsibility of caring for a loved one, such as a spouse. A parent. A child. A sibling. A close relative. A friend. They are the family caregivers who offer their selfless support for everything from managing and administering medications to assisting with the most basic tasks of daily living. November is National Family Caregivers Month in the U.S., which calls attention to family caregivers and the important role they play in the lives of those they care for. In this episode of A Couple Takes on MS podcast, we celebrate National Family Caregivers Month and open up about the challenges and stresses we face while serving as each other's primary caregiver. Sure, we know how much the quality of our lives are improved by having a spouse who understands what it's like to have MS, but being a caregiver for the other is tough and can be quite stressful. Yes, it is rewarding too, but we know how important preventing caregiver burnout is. Here are the links to the articles and resources we discussed: • iConquerMS Caregivers – The newly launched caregiver website developed by the Accelerated Cure Project and iConquerMS to provide information, support and community. • National Family Caregiver Summit – Stream sessions from this first-ever two-day online event presented by caregiving.com. Be sure to check out the Male Caregiver session where Dan served as one of four panelis • Caregiver Burnout – Cleveland Clinic webpage that delves into the causes and symptoms of caregiver burnout and ways to treat and prevent it. • 14 Life-Changing Tips to Relieve Caregiving Stress – Article from caringbridge.org
Episode Summary Hey caregivers, thank you for listening to episode 100! This episode is about stress. Now yes, it's common for caregivers to experience stress, especially if they're caring for a loved one on a full time basis. Caregiving can be physically and emotionally demanding. Show Links Follow Larissa on social media @coach_larissat Follow the Series Using the tag, Larissa Caregiver Tips, to find all episodes in the series! Subscribe You can subscribe to Larissa's Caregiver Tips podcast on Apple Podcasts, Google Podcasts, Spotify, and wherever you get your audio. If you enjoyed this episode make sure to listen to others here. Join the Conversation! Make sure to join the conversation on your favorite social channel using #coach_larissat. If you enjoyed this episode then make sure to listen to others! Want to advertise/sponsor our show Please email larissa@lorickroad.com Disclaimer The views, thoughts, and opinions expressed in this podcast belong solely to the host and guest speakers and are not necessarily representative of the views, thoughts, and opinions held by Lorick Road Road Creative (LRC). TAGS Larissa Caregiver Tips Series
The division of labor inside a family system is never equal, is it. What happens when grief hits the main caregiver, and they just can't keep giving? This week on the show, we discuss gender roles, invisible labor, and the redistribution of the workload inside families, with special guests Eve Rodsky and Dr. Aditi Nerurkar of the Timeout: A Fair Play podcast. Want your questions answered on the show? To submit your questions by voicemail, call us at (323) 643-3768 or visit megandevine.co In this episode we cover: The long history of invisible labor, and what that means for women right now How systems, boundaries, and communication can help redistribute the workload inside families Why women's time is spent like sand, and men's time is valued like diamonds How grief intensifies the workload on the identified “I keep this family rolling” person Guest Bios: Eve Rodsky is a New York Times bestselling author and the creator of Fair Play: a step-by-step approach that helps partners rebalance their domestic workload. Find her at everodsky.com. Special note for therapists and other healthcare workers: Eve's Fair Play system can be adapted to working with your clients. Follow the Fair Play link above for details. Dr. Aditi Nerurkar is an internal medicine physician, public health expert, and medical correspondent with an expertise in stress, resilience, and mental health. Find her at draditi.com Together, Eve and Aditi host the new show, Timeout: A Fair Play Podcast, which maps the ways caregivers can reclaim their time inside families and other systems that often invalidate women's contribution. Find Timeout wherever you get your podcasts. Questions to Carry with you: Mapping your own workload (so you can clearly see where you need help!) Resources: Need a place to tell the whole truth about what you're going through? Check out the Writing Your Grief course and community, from Megan Devine. Registration for the next session is open now. Looking for more training as you navigate grief on the job and in your life? Check out megandevine.co for upcoming workshops Get in touch: Thanks for listening to this week's episode of Here After with Megan Devine. Tune in, subscribe, leave a review, send in your questions, and share the show with everyone you know. Together, we can make things better, even when they can't be made right. To submit your questions by voicemail, call us at (323) 643-3768 or visit megandevine.co For more information, including clinical training and consulting, visit us at www.Megandevine.co For grief support & education, follow us at @refugeingrief on IG, FB, & TW Check out Megan's best-selling books - It's Okay That You're Not Okay and How to Carry What Can't Be Fixed Learn more about your ad-choices at https://www.iheartpodcastnetwork.com
Reducing Caregiving Stress
The COVID-19 outbreak has taken an emotional toll on everyone including caregivers. It is important to help family caregivers keep themselves and those around them safe, happy, and healthy. AARP in Texas knows the value caregivers bring to all our communities which is why we work feverishly to provide practical resources and up to the minute information to keep them safe. In this latest episode of the Prepare to Care Podcast, we talk to Care Partners. Like AARP, this nonprofit volunteer organization focuses on providing caregivers the tools to care for their loved ones throughout their caregiving journey. Jenna Dhayer is the Care Partners president and offers advice on how caregivers can stay positive and reduce stress during the COVID-19 pandemic.
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, join us to discuss this question: How do we cope when our caregiving experience could increase our risk for dementia? --- Send in a voice message: https://anchor.fm/caring-conversations/message
Claire E. Day, Chief Program Officer, Alzheimer's Association Northern California and Northern Nevada Chapter, join us to discuss this question: How do we cope when our caregiving experience could increase our risk for dementia? --- Send in a voice message: https://anchor.fm/caring-conversations/message
Alexandra Crosswell, PhD is a psychological scientist in the UCSF's Center for Health and Community where she studies the effect of stress on health and aging. She is currently studying the effects of the experiences of adult caregivers, and what can help caregivers thrive in their difficult role.SUBSCRIBE to our YouTube Channel.L!KE us on Facebook.FOLLOW us on Instagram.
Alexandra Crosswell, PhD is a psychological scientist in the UCSF's Center for Health and Community where she studies the effect of stress on health and aging. She is currently studying the effects of the experiences of adult caregivers, and what can help caregivers thrive in their difficult role. SUBSCRIBE to our YouTube Channel. L!KE us on Facebook. FOLLOW us on Instagram.
Let's talk about Sibling Rivalry. It isn't just for small children. Sibling rivalry can rear it's ugly head when the time comes to provide caregiving for Mom and Dad.Are you frustrated because the bulk of the caregiving falls on your shoulders?Are you irritated because you caregiving sibling acts like a martyr?Are you at a loss for how you can contribute to care when you live so far away?Do you and your sibling(s) disagree about end of life decisions?Let's talk about these issues to see if we can mend some sibling rivalry rifts or see the problems from a different perspective. Kim Shea is an experienced caregiver. She has worked in a nursing home and seen how adult children handle matters involving their parents' care. Kim has two brothers and four children of her own so she's well versed in the topic.
Let's talk about Sibling Rivalry. It isn't just for small children. Sibling rivalry can rear it's ugly head when the time comes to provide caregiving for Mom and Dad.Are you frustrated because the bulk of the caregiving falls on your shoulders?Are you irritated because you caregiving sibling acts like a martyr?Are you at a loss for how you can contribute to care when you live so far away?Do you and your sibling(s) disagree about end of life decisions?Let's talk about these issues to see if we can mend some sibling rivalry rifts or see the problems from a different perspective. Kim Shea is an experienced caregiver. She has worked in a nursing home and seen how adult children handle matters involving their parents' care. Kim has two brothers and four children of her own so she's well versed in the topic.
Let's talk about caregiving! Tune in today as we talk with Dr. Goodman about the challenges of caregiving for our HD and JHD loved ones. Many of us are dealing with so much loss before the loss and after the loss of our loved ones. If you are a caregiver you know what I'm talking about. One person states, "On top of the personal stress, there is also the stress of maintaining one's home: replacing broken glass, punched doors, cleaning the furniture, not having friends over as often which lends into losing many people. Many of these "things," which is actually part of one's home community, go to pot so to speak. Even the outside of the home becomes shabby....all this lends to the stress of a caregiver." In trying to identify how many of us are caregiving, I found that it's really impossible to know the numbers because of the level of stress that the caregiver is under 24/7. This stress does not let up; it only intensifies. Those of us who are under this kind of stress don't have time to answer surveys or polls. The question is how can we live like this? Who will help us? It's our own community who are so giving and caring and supportive, that's who. Thank you HD Community for all that you do; for your committment to help others. You are amazing!
Dr. Diane Bovenkamp, Science Communications Specialist for the BrightFocus Foundation, talks about coping with caregiver stress.