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After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today's special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management. As a hospice educator, she supports family caregivers and end of life workers alike. Highlights from Barbara's interview include: A snapshot of Barbara's advance care plan and why she thinks goodbyes are important Her recognition of how hard it was to balance work life and family life as a young mother How Barbara sees hospice work as a privilege Connect with Barbara Karnes: Website: bkbooks.com Blog: bkbooks.com Shop her products: bkbooks.com Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube Email: barbara@bkbooks.com Thank you to our series sponsor The Death Deck! Connect with the End of Life Deck and the Death Deck: Website: thedeathdeck.comhttps://thedeathdeck.com/ Shop: End of Life Deck Death Deck Socials for the Death Deck: Facebook IG Twitter (X) Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast
Dr. Allison Applebaum discusses the timely topic of care partnering with a loved one experiencing chronic illness, such as prostate cancer in this National Family Caregivers Month episode. She presents key aspects of successful and balanced caregiving from her recently published book Stand By Me: Navigating Modern, Meaningful Caregiving, and touches on the unique challenges faced by care partners of patients on the prostate cancer journey.
If you're caring for someone with Alzheimer's, you're not alone, and there is a world of support available. In honor of November being National Family Caregivers Month, we're excited to welcome RoseMary Jaramillo, Director of Community Engagement for Southeast Colorado at the Alzheimer's Association, to discuss advances in understanding Alzheimer's. In this special episode, RoseMary reflects on the history of Alzheimer's and the significant shifts that have occurred over the last 50 years in public understanding and perception, as well as the importance of support for caregivers. The conversation includes the tragedy of caregivers not caring for themselves, Alzheimer's Association's 24/7 help line, and keeping loved ones with dementia engaged – with special advice around the holidays. Aging with Altitude is recorded in the Pikes Peak region with a focus on topics of aging interest across the country. We talk about both the everyday and novel needs and approaches to age with altitude whether you're in Ft. Lauderdale, Florida or Leadville, Colorado. The Pikes Peak Area Agency on Aging is the producer. Cynthia Margiotta with PEARLS Program of Colorado and All About Dignity is our moderator. Learn more at: Pikes Peak Area Agency on Aginghttps://ppacg.org/pikes-peak-area-agency-on-aging Or call 719-471-2096 PEARLS Program of Colorado https://pearlsprogram.net/ Alzheimer's Association – Colorado Chapterhttps://www.alz.org/coOr call 800-272-3900 Follow Aging with Altitude so you don't miss an episode. Visit https://studio809podcasts.com to find your new favorite LOCAL podcast!
Too often, care partners remain invisible as they deal with the emotional, physical, and even financial burdens that go along with supporting a loved one who's living with multiple sclerosis. November is National Family Caregivers Month, and I'm devoting this entire episode to a roundtable discussion with four remarkable care partners as they share their insights, experiences, and lessons learned caring for a loved one with MS. You won't want to miss my conversation with Barbara, Marina, Maiya, and Matt. We have a lot to talk about! Are you ready for RealTalk MS??! Giving thanks :22 This Week: A roundtable discussion with four amazing MS care partners 1:31 Barbara, Marina, Maiya, and Matt discuss their roles as care partners 1:58 Share this episode 33:22 Have you downloaded the free RealTalk MS app? 33:43 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/378 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The MS Care Partner Connection https://mscarepartnerconnection.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 378 Guests: Barbara, Marina, Maiya, and Matt Privacy Policy
Caring for a loved one can be one of the most rewarding, and most challenging, roles you can take on. As it has evolved over time it is important to recognize that supporting yourself as a caregiver is just as important as the support you provide to those who depend on you. In honor of November being National Family Caregivers Month, we're excited to welcome Lucy Crandall, Supervisor of the Family Caregiver Support Center at the Pikes Peak Area Agency on Aging, to discuss the evolving role of family caregiving. With over 25 years of experience serving older adults and their families, Lucy has found her true passion helping family caregivers. In this special episode, Lucy reflects on the history of aging services and the significant shifts that have occurred over the last 50 years since the creation of the Area Agency on Aging. She explores how caregiving has evolved, what has driven these changes, and why support services are more essential than ever. Lucy also discusses the meaning of caregiving and how the growing need for these services has shaped the way we care for older adults today. Aging with Altitude is recorded in the Pikes Peak region with a focus on topics of aging interest across the country. We talk about both the everyday and novel needs and approaches to age with altitude whether you're in Ft. Lauderdale, Florida or Leadville, Colorado. The Pikes Peak Area Agency on Aging is the producer. Cynthia Margiotta with PEARLS Program of Colorado is our moderator. Learn more at: Pikes Peak Area Agency on Aginghttps://ppacg.org/pikes-peak-area-agency-on-aging Or call 719-471-2096 PEARLS Program of Colorado https://pearlsprogram.net/ If you live in the Pikes Peak region, find your new favorite local podcast at https://studio809podcasts.com
In this episode of "Gather Darlings," host Carrie, known as Dementia Darling, honors National Family Caregivers Month by shining a light on the incredible work of dementia caregivers! Carrie shares a comprehensive list of essential resources for dementia caregivers, including the Alzheimer's Association, Teepa Snow's Positive Approach to Care, and the Family Caregiver Alliance, among others. These organizations provide vital support, educational programs, and community connections that can make a significant difference in caregivers' lives. The episode also addresses mental health and self-care, encouraging caregivers to join support groups, seek professional help when needed, and practice mindfulness techniques. Carrie highlights the importance of respite care as a crucial support system, outlining various options such as in-home services and adult day centers that allow caregivers to recharge. Additionally, practical tips for daily caregiving are shared, including establishing routines and utilizing tools to enhance communication and quality of life. Tune in to this episode to gather insights, resources, and encouragement as we celebrate the dedication of dementia caregivers everywhere. Essential Resources for Dementia Caregivers 1. **Alzheimer's Association** - [alz.org](https://www.alz.org/help-support/resources): Offers a 24/7 helpline, support groups, and educational programs. 2. **Teepa Snow's Positive Approach to Care** - [teepasnow.com](https://www.teepasnow.com): Provides innovative dementia care training and resources. 3. **Be Light Care** - [belightcare.com](http://www.belightcare.com): Offers dementia care consulting and education. 4. **Roon Dementia** - [roon.com](http://www.roon.com): A platform that provides resources for dementia care. 5. **Family Caregiver Alliance** - [caregiver.org](https://www.caregiver.org): Provides comprehensive support and information for family caregivers. 6. **AARP Caregiving Resource Center** - [aarp.org/caregiving](https://www.aarp.org/caregiving/): Offers tools and information to help navigate the caregiving journey. Mental Health and Self-Care Resources 1. **Zen Caregiving Project** - [zencaregiving.org](https://zencaregiving.org): Offers mindfulness-based support for caregivers. 2. **Steadii App** - [steadii.com](https://www.steadii.com/): A mobile app designed to help caregivers manage their responsibilities. 3. Leeza's Care Connection for support groups https://leezascareconnection.org/home Respite Care Resources 1. **ARCH National Respite Network and Resource Center** - [archrespite.org](https://archrespite.org): Provides resources to help find respite care options in your area. 2. Area Agencies on Aging in your local area (google this for your location) 3. HFC www.wearehfc.org for respite grants and support groups Practical Tools and Engagement Resources 1. **Care Mobi App** - A mobile app for caregiver organization and reminders. 2. **Zinnia TV** - A platform for engagement activities tailored for seniors. 3. **Nana's Books, Mirador, SingFit, Music with Alexis**: Various resources for engaging activities with individuals living with dementia. Zinnia TV- www.zinniatv.com Nana's Books- www.nanasbookseries.com Mirador Magazine- www.miradormagazine.com Singfit http://www.singfit.com Music with Alexis- www.musicwithalexis.com CareMobi app https://nursing.nyu.edu/w/caremobi Additional Support **Navigating the World with Your Aging Loved One Podcast** - Hosted by Nicole Will, this podcast empowers older adults and caregivers with insights throughout the aging journey. More information can be found at [willgatherpodcast.com](http://www.willgatherpodcast.com). We'd love for you to subscribe, rate and review! Follow us on Instagram HERE and Join our Facebook Group HERE. Come as you are! We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.
November is National Family Caregivers Month, and it's time to shine a light on the powerful women who give so much of themselves to others. In this episode of Wake Up Happy, Sis!, we're diving into “The Caregiver's Circle: Love and Burnout.” LeAnne Dolce, your Chief Self-Love Officer, explores how caregivers can care deeply for others without sacrificing their own well-being. From recognizing the early signs of burnout to building a toolkit of long-lasting self-care practices, this episode is packed with empowering tips to help caregivers reclaim their energy and joy. Join us for practical advice on balancing caregiving with self-love. We're breaking down ways to shift from just “surviving” to thriving in the caregiving journey, because Sis, it's time to put yourself back on the priority list. Tune in, reclaim your peace, and let's embrace the power of self-love together. Keywords: caregiver burnout prevention, self-care for caregivers, managing stress as a caregiver, overcoming caregiver fatigue, mental health for caregivers.
Special Interview with John L. Lehr, President & CEO of theParkinson's Foundation & Carla Velastegui, a Parkinson's Care Partner Each November, the Parkinson's Foundation recognizes National Family Caregivers Month as an important time to celebrate and honor the many contributions of the 65 million Americans caring for a loved one living with a chronic condition like Parkinson's disease (PD). This year, more than ever, the focus is care partner burnout as a special effort is made to encourage care partners to find time to care for themselves too.We have a special conversation with two unique experts. John L. Lehr is the President and CEO of the non-profit Parkinson's Foundation, and Carla Velastegui, a healthcare technologist and a care partner for her mother, who was diagnosed with Young-Onset Parkinson's disease (YOPD) in 2010. Based in Toronto, she is a member of the Parkinson's Foundation People with Parkinson's Advisory Council, a group of dedicated people in the Parkinson's community who advise and collaborate with the organization on a volunteer basis. WHAT YOU'LL LEARN ABOUT PD & THE NEEDS OF CAREGIVERS:Special resources for people who are taking care of people with PD, including new resources for the Spanish-speaking communityThe challenges of taking care of someone with a progressive diseaseEssential tips to prevent care partner burnout, which can affect anyone caring for someone with PD and other chronic diseasesInfo about the Parkinson's Foundation free Helpline at 1-800-4PD-INFO (473-4636) for answers to PD care questions in English and Spanish, and the Foundation's complete library of online resourcesBecome a supporter of this podcast: https://www.spreaker.com/podcast/late-night-health-radio--2804369/support.
Special Interview with John L. Lehr, President & CEO of theParkinson's Foundation & Carla Velastegui, a Parkinson's Care Partner Each November, the Parkinson's Foundation recognizes National Family Caregivers Month as an important time to celebrate and honor the many contributions of the 65 million Americans caring for a loved one living with a chronic condition like Parkinson's disease (PD). This year, more than ever, the focus is care partner burnout as a special effort is made to encourage care partners to find time to care for themselves too.We have a special conversation with two unique experts. John L. Lehr is the President and CEO of the non-profit Parkinson's Foundation, and Carla Velastegui, a healthcare technologist and a care partner for her mother, who was diagnosed with Young-Onset Parkinson's disease (YOPD) in 2010. Based in Toronto, she is a member of the Parkinson's Foundation People with Parkinson's Advisory Council, a group of dedicated people in the Parkinson's community who advise and collaborate with the organization on a volunteer basis. WHAT YOU'LL LEARN ABOUT PD & THE NEEDS OF CAREGIVERS:Special resources for people who are taking care of people with PD, including new resources for the Spanish-speaking communityThe challenges of taking care of someone with a progressive diseaseEssential tips to prevent care partner burnout, which can affect anyone caring for someone with PD and other chronic diseasesInfo about the Parkinson's Foundation free Helpline at 1-800-4PD-INFO (473-4636) for answers to PD care questions in English and Spanish, and the Foundation's complete library of online resourcesBecome a supporter of this podcast: https://www.spreaker.com/podcast/late-night-health-radio--2804369/support.
If you're one of the 11 million Americans providing unpaid care to a loved one with Alzheimer's disease, you know that caregiving is both incredibly rewarding and challenging. What makes caring for someone with dementia so emotionally and physically demanding, and what resources and strategies are available to help? In this episode, Bonnie Nuttkinson joins us to discuss the unique needs of dementia caregivers, tips for navigating each stage of the disease and ways to find support along the caregiving journey. Guest: Bonnie Nuttkinson, MS, research program coordinator, Wisconsin Alzheimer's Disease Research Center Show Notes Read the Alzheimer's Association's 2024 Facts and Figures report that Dr. Chin mentioned at 7:29 Get 10 tips and more resources for caregivers from the Caregiver Action Network that Dr. Chin mentioned at the 12-minute mark. Visit “Resources for People with Dementia and Care Partners” on the Wisconsin ADRC website. Find caregiving resources on the National Institute on Aging's (NIA) Alzheimer's Caregiving website. Download or order The Caregiver's Handbook from the National Institute on Aging (NIA) for free. Alzheimers.gov has information and resources for caregivers managed by the NIA at the National Institutes of Health (NIH). Find local elder care resources with the Elder Care Locator that Bonnie mentioned at 23:30. Learn more about Bonnie from her profile on the BerbeeWalsh Department of Emergency Medicine website. Read “UW–Madison Alzheimer's program staff featured in Badger Talks series during National Family Caregivers Month” on the Wisconsin ADRC website. Connect with us Find transcripts and more at our website. Email Dementia Matters: dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter. Subscribe to the Wisconsin Alzheimer's Disease Research Center's e-newsletter. Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer's. All donations go toward outreach and production.
Each November, the Parkinson's Foundation joins organizations across the country to honor care partners for National Family Caregivers Month. In this episode, we highlight the stories and experiences of two people who care for a person with Parkinson's disease. Ripley Hensley is an emergency room nurse and a doctoral student at the University of Connecticut School of Nursing. Although she currently lives in Connecticut, she manages to find ways to help support both her mother, who is the primary caregiver, and her father who has Parkinson's, back in Georgia. Meanwhile, Tom Graffeo lives with his partner, who has young-onset Parkinson's. Although their caregiving roles differ, they share similar concerns and discuss how they provide care for their loved ones, while also prioritizing their own well-being.
In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we're featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator. In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980's. Here are some highlights of this special episode: Barbara thinks she should have been a social worker but her mother talked her into nursing. She and her fellow hospice nurses learned how to provide their own self care without really knowing what it was. Barbara's aversion to causing patients any pain or suffering made patient care difficult for her. She believes it's important for hospice leadership to truly understand end of life work, and to have a comprehensive knowledge of hospice care. Barbara believes sacred rituals and beautiful memories can be created at the time of death. Connect with Barbara Karnes: Website: bkbooks.com Blog: bkbooks.com Shop her products: bkbooks.com Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube Email: barbara@bkbooks.com Thank you to our series sponsor The Death Deck! Connect with the End of Life Deck and the Death Deck: Website: thedeathdeck.comhttps://thedeathdeck.com/ Shop: End of Life Deck Death Deck Socials for the Death Deck: Facebook IG Twitter (X) Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast
On this podcast, we tend to talk a lot about new technologies, emerging treatments, the most recently approved disease-modifying therapies, and even some DMTs that haven't yet been approved. And in the midst of all that cutting-edge research and evolving science, it's easy to lose sight of the fact that expressive therapies like dance and movement therapy, music therapy, and art therapy have all been shown to help promote self-efficacy, emotional well-being, and motor control in people living with MS. Dr. Francois Bethoux joins me on today's episode to discuss the benefits of integrating dance and movement therapy, music therapy, and art therapy into your treatment plan to help manage your MS symptoms and enhance your well-being. November is National Family Caregivers Month, and we're sharing a neat piece of tech that can not only make life easier for MS caregivers but can make life better for their care recipients, as well. CEO Costin Tuculescu introduces us to his company's new device, OnScreen. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Adding expressive therapies to your MS treatment plan :22 OnScreen CEO Costin Tuculescu explains how OnScreen can help people with MS and their caregivers 1:34 Dr. Francoi Bethoux discusses the benefits of dance therapy, music therapy, and art therapy for people living with MS 17:45 Share this episode 31:47 Have you downloaded the free RealTalk MS app? 32:06 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/376 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com OnScreen https://onscreeninc.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 376 Guests: Costin Tuculescu and Dr. Francois Bethoux Privacy Policy
Welcome to a special episode of the Aging with Grace podcast, dedicated to celebrating National Family Caregivers Month. In this episode, your host DG explores the profound role of caregivers, focusing on unpaid family members, close friends, and spouses who provide essential support to enable their loved ones to live at home. DG shares emotional and personal stories, including her own journey of caregiving for her in-laws, which highlights the challenges and rewards of being a caregiver.You'll also learn about the "I Care" mission and values that guide Aging with Grace employees, emphasizing continuous improvement, appreciation, respect, and exceptional integrity. Additionally, DG offers practical tips to avoid caregiver burnout, featuring insights from the Parkinson's Foundation. Whether you're an experienced caregiver or new to the role, this episode provides valuable resources and heartfelt encouragement. Join us for an empowering and informative episode that honors those who care with love and dedication.Connect with Aging with Grace at agingwithgraceinfo.org
Being a teenager is hard. So, imagine for a moment that in addition to everything else that teenagers have to endure, you're a teenager who's been diagnosed with MS. Your ability to participate in after-school activities or just hang out with your friends is impacted by MS-related fatigue. The typical adolescent anxiety over something someone posted on social media evolves into depression. And cognitive issues begin to make it harder for you in the classroom. This is an unfortunate reality for many adolescents who are living with MS. Joining me to discuss how MS affects adolescents and how families can help manage MS is Dr. Ann Yeh. Dr. Yeh is a Professor of Pediatric Neurology at the University of Toronto and the director of the MS and Neuroinflammatory Disorders Program and Fellowship Program at the University of Toronto's Hospital for Sick Children, known as SickKids. We'll also tell you about a new online resource for MS care partners. We'll share the results of a study that explored how different symptom management responsibilities impact MS care partners. We'll share details of a study that demonstrated positive results in improving MS-related fatigue. We'll tell you about the discovery of a plant-based molecule that is showing promise in promoting myelin repair. And we're sharing surprising research results that have more than doubled the prevalence of MS in Australia. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Managing Teenage MS :22 November is National Family Caregivers Month 1:47 You're invited to preview MS Care Partner Connection 3:40 A study reveals the most challenging MS symptoms for care partners to manage 6:33 Study results show Modafinil and cognitive behavioral therapy are both effective in managing MS fatigue 7:25 Researchers discover a plant-based molecule that may be effective in promoting myelin repair 9:46 Prevalence of MS in Australia more than doubled over an 11-year period 12:54 Dr. Ann Yeh discusses the challenges of MS among adolescents 16:05 Share this episode 31:15 Have you downloaded the free RealTalk MS app? 31:36 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/375 ADD YOUR VOICE TO THE CONVERSATION I've always considered the RealTalk MS podcast a conversation. This is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The MS Care Partner Connection https://mscarepartnerconnection.com Addressing the Needs of Multiple Sclerosis Caregivers from Diagnosis Onward: The Development of a Comprehensive Online Caregiver Protocol https://meridian.allenpress.com/ijmsc/article/25/6/273/496788/Addressing-the-Needs-of-Multiple-Sclerosis STUDY: Symptom Management Among Multiple Sclerosis Care Partners in Canada https://meridian.allenpress.com/ijmsc/article/25/6/281/496792/Symptom-Management-Among-Multiple-Sclerosis-Care STUDY: Comparative Effectiveness of Cognitive Behavioural Therapy, Modafinil, and Their Combination for Treating Fatigue in Multiple Sclerosis (COMBO-MS): A Randomised, Statistician-Blinded, Parallel-Arm Trial https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(24)00354-5/abstract STUDY: Distinct Chemical Structures Inhibit the CEMIP Hyaluronidase and Promote Oligodendrocyte Progenitor Cell Maturationhttps://www.jbc.org/article/S0021-9258(24)02418-9/fulltext STUDY: Significantly Increasing Multiple Sclerosis Prevalence in Australia from 2010 to 2021 https://journals.sagepub.com/doi/10.1177/13524585241265890 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 375 Guest: Dr. Ann Yeh Privacy Policy
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The Senior Care Industry Netcast w/ Valerie V RN BSN & Dawn Fiala
Send us a textUnlock the secrets of effective home care marketing during November's awareness months. Discover how to transform National Family Caregivers Month into a gateway for strengthening ties with caregivers by offering thoughtful survival kits that subtly highlight your services. Learn to navigate Alzheimer's Awareness Month with sensitivity through educational seminars that showcase your agency's expertise. Additionally, find out how partnerships with local pharmacies for diabetes health screenings during National Diabetes Month can spotlight your agency's management services. These strategies promise not only enhanced community engagement but also a reputation as a reliable and supportive home care provider.As we celebrate National Home Care Month, we'll guide you on creating meaningful connections and measuring your success through strategic use of social media, community events, and even cozy branded giveaways. We'll explore how tracking your agency's mentions and special offer redemptions can provide insights into your impact, all while maintaining genuine community connections. This episode is a treasure trove of insights and practical ideas designed to position your agency as a community pillar. Join us in this ongoing conversation and share your own experiences and plans, ensuring your marketing efforts leave a lasting impression.Continuum Mastery Circle IntroVisit our website at https://asnhomecaremarketing.comGet Your 11 Free Home Care Marketing Guides: https://bit.ly/homecarerev
November is National Family Caregivers Month. In this episode, we delve into the often-unseen world of cancer caregiving. Join us as we interview CancerCare's Caregiver Program Coordinator, Dina Smith, LMSW, exploring the multifaceted challenges and emotional experiences faced by those caring for loved ones diagnosed with cancer. We discuss practical issues, emotional tolls, family dynamics, and the evolving nature of the caregiving role. This episode offers valuable insights and resources for cancer caregivers, shedding light on their vital role in the cancer experience. Tune in to gain a deeper understanding and appreciation for these unsung heroes in cancer care.
In this episode of the Black Health 365 podcast, Britt and Jackie are celebrating National Family Caregivers Month by recognizing and honoring caregivers from all over the country. They welcome Jonah Francis, an active board member of the Alzheimer's Association, Vice Chairman of the Home Care Association of America in Connecticut, and owner of Pansy Homecare Service and a mental health organization, A Better Way, as a special guest. Jonah shares valuable insights into the world of caregiving and respite care, he also shares available resources. By acknowledging the providers and the month, Britt, and Jackie hope to bring attention to the selfless work of caregivers and the effort they put in that often goes unnoticed. Jonah Francis is an active board member for the Alzheimer's Association, Vice Chairman for the Home Care Association of America in Connecticut, and owner Pansy Homecare Service and a mental health organization, A Better Way. He was also recently recognized as a “40 under 40” honoree by the Hartford Business Journal and is a “100 Men of Color” honoree. His mission is to improve how we care for seniors, especially people living with dementia, and how we support their families living in it.See omnystudio.com/listener for privacy information.
In episode 238, The Dudes delve into the theme of friendship, highlighting the significance of chosen family and exploring the dynamics of their own unique bond. They draw inspiration from questions curated by MindPath Health, leading to an unscripted and genuine conversation. From childhood influences like movies to bucket list aspirations, The Dudes share personal stories, providing insight into their lives. The episode also touches on life's challenges, frustrations, and coping mechanisms, offering a candid look. In the spirit of National Family Caregivers Month, Sean and Kyle discuss how they prefer to receive care, emphasizing the importance of understanding and genuine support. The episode weaves together laughter, reflection, and wisdom, creating a connection with listeners through shared experiences and open conversation. The Dudes will be back with new episodes in February. In the meantime, check out past episodes. Links and Resources Mindpath Health - 80 fun questions to ask your friends to get to know them on a deeper level
Chris Holland had a successful career working as a paralegal when he was diagnosed with MS in 2004. And, while everyone reacts differently to being diagnosed with MS, no one could have predicted what happened next, as Chris lost everything battling demons he never imagined he would ever face. But it would be a mistake betting against Chris Holland's resilience. Bouncing back, Chris decided to pursue his lifelong dream of becoming a chef. Today, Chris is a three-time Food Network Chopped champion and the owner and executive chef at Kantina, in Sparkill, New York. This week, Chris joins me to share a story with a happy ending that almost wasn't. November is National Family Caregivers Month, which seems to be the perfect time for iConquer MS to expand its community to include MS caregivers. We're sharing all the details of the newly launched iConquer MS Caregivers initiative. It's impossible to discuss caregiving without mentioning the lifelong contributions made by former First Lady Rosalynn Carter. This week, we're remembering Mrs. Carter and reflecting on her legacy. And we'll tell you how Infusion Day actually became Spa Day in Dawson City, Yukon. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Chris Holland shares his remarkable story of resilience :22 November is National Family Caregivers Month 1:22 Remembering Former First Lady Rosalynn Carter 1:52 If you're caring for a loved one with MS, iConquer MS has set out a welcome mat 3:07 Infusion Day is now Spa Day in Dawson City, Yukon 7:13 Chris Holland talks about how he barely made it all the way back 9:34 Share this episode 28:24 Have you downloaded the free RealTalk MS app? 28:44 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/326 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com iConquer MS Caregivers https://iconquerms.org/caregivers PAPER: Addressing the Needs of Multiple Sclerosis Caregivers from Diagnosis Onward: The Development of a Comprehensive Caregiver Protocol https://meridian.allenpress.com/ijmsc/article/25/6/273/496788/Addressing-the-Needs-of-Multiple-Sclerosis Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 326 Guest: Chris Holland Privacy Policy
During National Family Caregivers Month this November, Oncology Data Advisor is celebrating the caregivers of patients with cancer and advocating for increased awareness, support, and education regarding the caregiving experience. In this interview, Megan-Claire Chase, patient advocate and member of the Oncology Data Advisor Editorial Board, shares her experience of being a caregiver for her mother, how her perception has changed before and after her own cancer diagnosis, the importance of prioritizing mental health, and messages for clinicians who seek to provide increased support for their patients' caregivers.
More than 50 million people across the United States live with the primary responsibility of caring for a loved one, such as a spouse. A parent. A child. A sibling. A close relative. A friend. They are the family caregivers who offer their selfless support for everything from managing and administering medications to assisting with the most basic tasks of daily living. November is National Family Caregivers Month in the U.S., which calls attention to family caregivers and the important role they play in the lives of those they care for. In this episode of A Couple Takes on MS podcast, we celebrate National Family Caregivers Month and open up about the challenges and stresses we face while serving as each other's primary caregiver. Sure, we know how much the quality of our lives are improved by having a spouse who understands what it's like to have MS, but being a caregiver for the other is tough and can be quite stressful. Yes, it is rewarding too, but we know how important preventing caregiver burnout is. Here are the links to the articles and resources we discussed: • iConquerMS Caregivers – The newly launched caregiver website developed by the Accelerated Cure Project and iConquerMS to provide information, support and community. • National Family Caregiver Summit – Stream sessions from this first-ever two-day online event presented by caregiving.com. Be sure to check out the Male Caregiver session where Dan served as one of four panelis • Caregiver Burnout – Cleveland Clinic webpage that delves into the causes and symptoms of caregiver burnout and ways to treat and prevent it. • 14 Life-Changing Tips to Relieve Caregiving Stress – Article from caringbridge.org
9:01 November, National Family Caregivers Month, is an important part of the Parkinson's Foundation's efforts to honor the contributions of the 65 million people in the U.S. caring for a loved one who is aging or living with a chronic condition like Parkinson's disease (PD). We have a special interview with John L. Lehr, President and CEO of the non-profit Parkinson’s Foundation, and Gil Kim, the primary care partner for his wife, Gina, who was diagnosed with PD in 2011.
During National Family Caregivers Month this November, Oncology Data Advisor is spotlighting not only the caregivers of patients with cancer, but also the oncology nurses who partner with them to help navigate the cancer care journey. In this interview, Maria Badillo, Research Nurse Manager at MD Anderson Cancer Center and OncData Editorial Board member, shares how she helps support and provide education for her patients' caregivers, as well as resources she recommends for guiding them through the experience.
November is recognized as National Family Caregivers Month, which is an important part of the Parkinson's Foundation efforts to honor the contributions of the 65 million people in the U.S. who care for a loved one who is aging or living with a chronic condition like Parkinson's disease (PD). We have a special interview with John L. Lehr, President and CEO of the non-profit Parkinson's Foundation, and Gil Kim, who is the primary care partner for his wife, Gina, who was diagnosed with PD in 2011.John L. Lehr leads the Parkinson's Foundation as president & chief executive officer. He has nearly three decades of nonprofit fundraising and management experience, with a strong focus in the voluntary healthcare and medical research sectors. John played a key role in merging two legacy Parkinson's organizations into the Parkinson's Foundation in 2017. Since joining the Foundation, fundraising revenue has grown each year by double digits, allowing the Foundation to greatly expand its mission programs. John led the efforts to open 17 regional chapters to better serve local Parkinson's communities. These developments and other initiatives have allowed the Foundation to earn a 4-star rating from Charity Navigator, a Platinum Seal of Transparency from GuideStar, and to be named to the 2020 list of Best Places to Work by The Non-Profit Times. During his tenure at the Foundation, John has overseen several major initiatives including:Expanding the Foundation's Center of Excellence Network to 47 Centers globally;Launching PDGeneration: Mapping the Future of Parkinson's Disease, a groundbreaking study to gather genetic data for research and drug development on thousands of people with PD by offering free genetic testing and counseling;Co-hosting the Parkinson's Policy Forum to align the Parkinson's community around key issues, and to petition state and federal lawmakers to take action on pressing patient needs and policy changes.And, launching the Newly Diagnosed Initiative to reach the more than 60,000 individuals diagnosed with PD in the US each year, and to connect them to the Foundation's many educational resources.During his time with the Foundation, he has directed more than $30 million in research and clinical grants for promising Parkinson's disease studies. In advocating for the PD community, John recognizes the importance of expanding community services and resources that are offered for free, notably extended hours and Spanish-language capabilities for the Helpline, which receives thousands of calls each year. John earned his BA and MA in History from Villanova University. From 1990-1991, he served as a Peace Corps volunteer in Sri Lanka.Parkinson's Advocate & Caregiver Gil Kim is the primary care partner for his wife, Gina, who was diagnosed with PD in 2011. A 40-year Veteran of the Army Corps of Engineers, Gil has worked tirelessly to build a PD infrastructure in their home state of Mississippi that benefits rural residents of the state. Gil also serves on the Parkinson's Foundation People with Parkinson's Advisory Council, striving to improve the quality of life for his wife, people with PD, and their care partners.
November is recognized as National Family Caregivers Month, which is an important part of the Parkinson's Foundation efforts to honor the contributions of the 65 million people in the U.S. who care for a loved one who is aging or living with a chronic condition like Parkinson's disease (PD). We have a special interview with John L. Lehr, President and CEO of the non-profit Parkinson's Foundation, and Gil Kim, who is the primary care partner for his wife, Gina, who was diagnosed with PD in 2011.John L. Lehr leads the Parkinson's Foundation as president & chief executive officer. He has nearly three decades of nonprofit fundraising and management experience, with a strong focus in the voluntary healthcare and medical research sectors. John played a key role in merging two legacy Parkinson's organizations into the Parkinson's Foundation in 2017. Since joining the Foundation, fundraising revenue has grown each year by double digits, allowing the Foundation to greatly expand its mission programs. John led the efforts to open 17 regional chapters to better serve local Parkinson's communities. These developments and other initiatives have allowed the Foundation to earn a 4-star rating from Charity Navigator, a Platinum Seal of Transparency from GuideStar, and to be named to the 2020 list of Best Places to Work by The Non-Profit Times. During his tenure at the Foundation, John has overseen several major initiatives including:Expanding the Foundation's Center of Excellence Network to 47 Centers globally;Launching PDGeneration: Mapping the Future of Parkinson's Disease, a groundbreaking study to gather genetic data for research and drug development on thousands of people with PD by offering free genetic testing and counseling;Co-hosting the Parkinson's Policy Forum to align the Parkinson's community around key issues, and to petition state and federal lawmakers to take action on pressing patient needs and policy changes.And, launching the Newly Diagnosed Initiative to reach the more than 60,000 individuals diagnosed with PD in the US each year, and to connect them to the Foundation's many educational resources.During his time with the Foundation, he has directed more than $30 million in research and clinical grants for promising Parkinson's disease studies. In advocating for the PD community, John recognizes the importance of expanding community services and resources that are offered for free, notably extended hours and Spanish-language capabilities for the Helpline, which receives thousands of calls each year. John earned his BA and MA in History from Villanova University. From 1990-1991, he served as a Peace Corps volunteer in Sri Lanka.Parkinson's Advocate & Caregiver Gil Kim is the primary care partner for his wife, Gina, who was diagnosed with PD in 2011. A 40-year Veteran of the Army Corps of Engineers, Gil has worked tirelessly to build a PD infrastructure in their home state of Mississippi that benefits rural residents of the state. Gil also serves on the Parkinson's Foundation People with Parkinson's Advisory Council, striving to improve the quality of life for his wife, people with PD, and their care partners.
November is National Family Caregivers Month!Join us for this fabulous conversation with Star Bradbury, author of Successfully Navigating Your Parents' Senior Years - Critical information to maximize their independence and make sure they get the care they need.Star talks about making a plan, broaching sensitive subjects, holding family meetings, dealing with dissenting opinions, and so much more! None of us want to think about our parents' (or our own!) long-term care and lack of independence, but if you plan early and have open, honest conversations, you can avoid the trauma of having to make decisions during a crisis! 00:02:44 Developing a plan for long-term care.00:05:15 Approach sensitive topics with loved ones.00:08:15 Mom's experience with stepdad's decline, burial planned.00:10:20 Principle 1: Maximize parents' and seniors' independence.00:13:55 Helping others in need while maintaining independence.00:17:44 Caregiver burnout can be prevented - prioritize self-care.00:21:30 Eye contact, physical presence crucial in caregiving.00:25:25 Colleagues offer generational wisdom, happier social environment.00:28:47 Reevaluate and change senior plan with support.00:32:22 Love story, 3-5 year plan, retirement challenges.00:34:11 Ensure your home is safe and connected.00:37:58 Long-term care insurance is exciting and freeing.00:40:39 35% off book for National Family Caregivers Month.00:44:27 Contact info in show description, talk next week.Connect With Star Bradbury-November Book Deal: Save 35% in November -Use CAREGIVER at checkouthttps://starbradbury.com/november-is-national-family-caregivers-month/Resources available here: https://starbradbury.com/resources/Stay Connected!Amelia Website: https://www.thehelpfulplate.com/ IG: https://www.instagram.com/thehelpfulplate/ Cam Website: https://www.camoyler.com/ IG: https://www.instagram.com/heymomma_cam/ TikTok: https://www.tiktok.com/@heymomma_cam Midlife Mommas IG: https://www.instagram.com/midlife.mommas/ Please share, rate, and review the podcast. We appreciate you! ❤️
Did you ever imagine you'd be in this place, as a caregiver? Neither did I. As we celebrate National Family Caregivers Month, let's shine a light on the amazing work of over 50 million family caregivers across the country. Whether you're in the US or anywhere else, you deserve a virtual hug for all the extraordinary care you provide.
I thought it fitting to publish this episode during November, which is National Family Caregivers Month, and this year's theme is #caregiversconnect. A great theme since, on this show, we are about creating a connective community of family caregivers and connecting (or I say fast-tracking) you to the help and support you need, crave, or don't even know about. I have a relentless passion for seeing and helping family caregivers. When I started Happy Healthy Caregiver, I had a clear mission of providing support and resources to family caregivers, and I wanted to do this full-time. And I also need an income. I worked on Happy Healthy Caregiver while working full-time as a sandwich generation caregiver. I had no business starting a business, and yet I knew this was needed. I felt isolated, alone, overwhelmed, unhealthy, and drowning as a sandwich-generation working caregiver. If we change nothing, then nothing changes. I struggled with how to monetize HHC. I always wanted people who could afford my services (like organizations and companies) to pay for support for family caregivers. Caregivers are already paying and doing too much. I monetize my business in 2 ways. Accidental influencer – content, ads, partnerships with companies I like and respect who could offer a product or service caregivers may need or wantProfessional speaker – Talking about self-care and caregiving. I'm hired by faith communities, nonprofits, and employers to share my story and fast-track their members or employees to resources I wish I knew about. I validate their experiences and tell them that support is available and where to find it. Today's episode is primarily coming from a presentation I prepared for SHRM ATL conference about balancing carer and caregiving. Attendees at this conference were primarily those who work in Human Resources. Show notes with product and resource links: https://bit.ly/HHCPod171 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
I thought it fitting to publish this episode during November, which is National Family Caregivers Month, and this year's theme is #caregiversconnect. A great theme since, on this show, we are about creating a connective community of family caregivers and connecting (or I say fast-tracking) you to the help and support you need, crave, or don't even know about. I have a relentless passion for seeing and helping family caregivers. When I started Happy Healthy Caregiver, I had a clear mission of providing support and resources to family caregivers, and I wanted to do this full-time. And I also need an income. I worked on Happy Healthy Caregiver while working full-time as a sandwich generation caregiver. I had no business starting a business, and yet I knew this was needed. I felt isolated, alone, overwhelmed, unhealthy, and drowning as a sandwich-generation working caregiver. If we change nothing, then nothing changes. I struggled with how to monetize HHC. I always wanted people who could afford my services (like organizations and companies) to pay for support for family caregivers. Caregivers are already paying and doing too much. I monetize my business in 2 ways. Accidental influencer – content, ads, partnerships with companies I like and respect who could offer a product or service caregivers may need or want Professional speaker – Talking about self-care and caregiving. I'm hired by faith communities, nonprofits, and employers to share my story and fast-track their members or employees to resources I wish I knew about. I validate their experiences and tell them that support is available and where to find it. Today's episode is primarily coming from a presentation I prepared for SHRM ATL conference about balancing carer and caregiving. Attendees at this conference were primarily those who work in Human Resources. Show notes with product and resource links: https://bit.ly/HHCPod171 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
November is National Family Caregivers Month. Join host Kirk Puckett in this episode of NCJA 10-14 as he talks to Denise Young, program manager with the Alzheimer's Association - Western Carolina Chapter. They discuss how first responders can interact with caregivers and dementia patients during calls of emergency and crisis, and what resources are available to assist caregivers and first responders alike. TALK Tactics T - take it slow A - ask simple questions L - limit reality checks K - keep eye contact Additional Resources: Alzheimer's Association Western Carolina Chapter of the Alzheimer's Associaton Project Lifesaver International Safe Return Program Safe Return for Law Enforcement
November is National Family Caregivers Month. Join host Kirk Puckett in this episode of NCJA 10-14 as he talks to Denise Young, program manager with the Alzheimer's Association - Western Carolina Chapter. They discuss how first responders can interact with caregivers and dementia patients during calls of emergency and crisis, and what resources are available to assist caregivers and first responders alike. TALK Tactics T - take it slow A - ask simple questions L - limit reality checks K - keep eye contact Additional Resources: Alzheimer's Association Western Carolina Chapter of the Alzheimer's Associaton Project Lifesaver International Safe Return Program Safe Return for Law Enforcement
Tom Clavin is a #1 New York Times bestselling author and has worked as a newspaper editor, magazine writer, TV and radio commentator, and a reporter for The New York Times. He has received awards from the Society of Professional Journalists, Marine Corps Heritage Foundation, and National Newspaper Association. His books include the bestselling Frontier Lawmen trilogy—Wild Bill, Dodge City, and Tombstone—and Blood and Treasure and The Last Hill with Bob Drury. https://www.tomclavin.com/BOOK discussed in episode: Follow Me to Hell: McNelly's Texas Rangers and the Rise of Frontier JusticeDr. Jan Yager is a sociologist, freelance writer, coach, speaker, artist, and Adjunct Associate Professor in the Department of Sociology at John Jay College of Criminal Justice, City University of New York. She also teaches at Baruch College and William Paterson University. Her 50+ award-winning books, translated into 35 languages, include the international hit relationship title, When Friendship Hurts: How to Deal With Friends Who Betray, Abandon and many more. https://www.drjanyager.com/BOOK discussed in episode: HOW TO PROMOTE YOUR BOOK: A Practical Guide to Publicizing your Own TitleJohn L. Lehr is the President and CEO of the non-profit Parkinson's Foundation, and Veera Rastogi, primary caregiver for her late parents who both had Parkinson's. Each November, the Parkinson's Foundation recognizes National Family Caregivers Month. Additionally, the Foundation provides dedicated articles at https://www.parkinson.org/This show is part of the Spreaker Prime Network, if you are interested in advertising on this podcast, contact us at https://www.spreaker.com/show/3240061/advertisement
November is National Family Caregivers Month, National Hospice and Palliative Care Month as well as National Alzheimer's Awareness Month. Hear from the experts on how to care for yourselves as well as your loved ones.
Experiences in Caregiving; Personal Stories & Support for Caregivers
In honor of National Family Caregivers Month, we are bringing awareness to resources in our caregiving community. In this episode we talk about three organizations / projects / communities that are doing amazing work to help caregivers on their journeys. We discuss what resources they provide and how our listeners can access these much needed resources. A lot of our feedback from listeners is that they didn't even know our resource and others existed so we will continue to highlight organizations, projects, and communities that are doing great work in this space. Cheers to all the caregivers out there! For more information about episodes, links to resources, and to give us your thoughts and ideas for new topics, visit https://www.experiencesincaregiving.com/ Links: Care Virtue - Built for Family Caregivers Comfort Homesake - Caregiver, Non Profit, Long Term Care Hope Loves Company Sarah Trott's Caregiver Community Aidaly - Aidaly helps you get paid to be a caregiver for family
Becoming a caregiver is typically not a journey you ease into: much like the poem "Welcome To Holland" reminds us, it's often like suddenly landing in rainy Holland when you set off to vacation in sunny Italy. "But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland." And since November was recently proclaimed National Family Caregivers Month, I thought it was only fitting to invite Kim Kane to be my guest on today's episode. Kim is a mom to five children and walks beside her daughter Erin on her medical journey; she also cares for her mother with Alzheimer's. Kim brings a beautiful perspective of what it means to be a caregiver, how it affects your life with some great insights. Erin, who is now 15 years old, experienced a Hypoxic Ischemic Event which occurs when the brain experiences a decrease in oxygen or blood flow in the first week of her life. As Kim navigates life caring for a child with cerebral palsy and visual impairments, she's truly learned to not sweat the small things and make the best of what is. She reminds us that "every journey is easier with the right guides" and that by putting your faith in doctors and God, your journey can become a slightly lighter one. She also shares great advice on making hard and painful decisions when selecting surgeries or medical interventions for your children. And she reminds us to empower ourselves as caregivers; by remembering to fill our cups so that we have more to give out to others. The life of a caregiver can feel lonely, especially when you feel like you've "landed" there abruptly with no map or guidance. By reaching out to the right community and taking one step at a time, you'll be less likely to miss the joys that can be found along the way. Key Takeaways with Kim Kane Recognizing the love and sacrifice of caregivers providing crucial care to loved ones. How being a caregiver affects life as an individual, partner, and parent. Putting your faith in therapists and God during life's hardest challenges. Advice on making hard decisions regarding your child's medical interventions. Reminding ourselves to appreciate every day as a gift. How to “fill your cup” as a caregiver in order to have more to give to others. Remembering to celebrate the small wins The power and importance of reaching out to others and finding a community. Show Notes: Get Full Access to the Show Notes by visiting: MatteasJoy.org/42. Rate & Review If you enjoyed today's episode of The Joy In The Journey, hit the subscribe button on Apple Podcasts, Spotify, Stitcher, or wherever you listen, so future episodes are automatically downloaded directly to your device. You can also help by providing an honest rating & review over on Apple Podcasts. Reviews go a long way in helping us build awareness so that we can impact even more people. THANK YOU!
A school bus crash in Magoffin County; U.S. Senator Mitch McConnell will not become Senate Majority Leader; Google settles a lawsuit over allegations of misleading consumers about location tracking practices; Charles Williams describes the stressful, but fulfilling, experience of becoming a caregiver during National Family Caregivers Month; an art exhibit on female veterans and their service.
Jim Blake of Unity World Headquartershttps://iamjimblake.com/Unity.orgBOOK: The Zen Executive:Gems of Wisdom for Enlightened LeadershipMikki Shepard for National Adoption MonthWEBSITE: https://mikkishepardauthor.com/ or AdoptionAsAChoice.comBOOK: IN A HEARTBEAT: The Miracle of a Family that was Meant to BeJohn Lehr & Veera Ristogi of The Parkinsons FoundationJim Blake is the CEO of Unity World Headquarters, where he previously served as chief information officer and vice president of operations. Unity is a spiritual nonprofit founded in 1889 in Kansas City, Missouri. It helps people of all faiths and cultures apply positive spiritual principles in their daily lives. Blake has held numerous executive positions in the corporate world and is the author of The Zen Executive: Gems Of Wisdom For Enlightened Leadership. https://iamjimblake.com/Mikki Shepard is author of In a Heartbeat - The Miracle of a Family That Was Meant to Be, a delightful true story spanning several generations of families born out of love. It shares a ‘good news' adoption story about the greatest gift of love a parent can give their child and the most awesome gift another parent can receive. After serving four years in the U.S. Air Force, Mikki's diverse career spans multiple industries, successful entrepreneurship, and a strong background in speaking, real estate, and marketing. She is a published writer and seminar speaker and is now the Host of Adoption as a Choice radio show & podcast on VoiceAmerica's Empowerment Channel. https://mikkishepardauthor.com/John L. Lehr is the President and CEO of the non-profit Parkinson's Foundation, and Veera Rastogi, primary caregiver for her late parents who both had Parkinson's. Each November, the Parkinson's Foundation recognizes National Family Caregivers Month. Additionally, the Foundation provides dedicated articles at https://www.parkinson.org/resources-support/carepartners
Pamela Banning, an oncology social worker on the Oncology Navigation Team, speaks with Dr. Nish on the role of caregivers during National Family Caregivers Month.
November is National Family Caregiver Month and National Gratitude Month. National Gratitude Month encourages us to embrace the power of gratitude. Gratitude is more than simply saying “thank you.” Gratitude's amazing powers have the ability to shift us from focusing on the negative to appreciating what is positive in our lives. Practicing daily gratitude gives us a deeper connection to ourselves, the world around us, and to our spirituality. Research has shown that gratitude can enhance our moods, decrease stress, and drastically improve our overall level of health and wellbeing. On average, grateful people tend to have fewer stress-related illnesses and experience less depression and lowered blood pressure, they are more physically fit, they are happier, have a higher income, more satisfying personal and professional relationships, and will be better liked.National Family Caregivers Month recognizes the dedication of family members who provide round the clock care to loved ones. When medical conditions demand attention, family steps into roles, they are often unprepared to accept. They become caregivers instead of partners or friends. Sometimes this change occurs suddenly or over time.Caregivers rarely have time for themselves. There's always another thing to be done. However, a caregiver requires rest, too.So this month, I want to spend time on The Caregiver Cup episodes to talk about one of the best practices you can incorporate into your daily routine and that is gratitude. Gratitude is the human way of acknowledging the good things of life. But you just can't say I am grateful and you see positivity and feel happier. It requires a practice and you need to want to do it. It's a muscle you have to build. Then it requires practice to do it naturally and the result will lead to a mindset that focuses on positivity, good and more happiness. “Gratitude is the healthiest of all human emotions.” Zig ZiglarBio, history, purpose Support the showThank you for listening. Follow me by clicking on the links below: CONNECT WITH CATHY ON INSTAGRAM @cathylynnvan for daily tips and inspiration Join the Caregiver Cup Circle ❤️ If you're interested in 1:1 Coaching ➡️ DM Cathy @cathylynnvan
November is National Family Caregivers Month: a time to recognize, reflect, and honor the work and value of caring for one anotherIn addition to our full-length episodes, we'll be releasing minisodes with strategies and resources that may be helpful in your caregiving journey. This month, our guests will share their stories, giving insight into what empowerment looks like in their caregiving experiences. Whether you're helping someone with daily needs and activities, managing paperwork and bills, or providing emotional support, the work you do is the heart of what it means to value human dignity. You deserve support and care in this work. We hope you'll share this month's episodes of The Caregiving Soul with friends, or listen as a group - to help energize your conversations, inspire new perspectives, and encourage one another as we all learn to better care for our loved ones and ourselves. Hosted on Acast. See acast.com/privacy for more information.
In this episode, Denice celebrates National Family Caregivers Month and shares her story of navigating the transition from being a Mom Caregiver to also taking on the care of her aging parents. Denice reflects on the conflicting feelings and emotions, as well as the intense responsibilities, that come when the child becomes the caregiver to the parent. She reveals lessons she's learned and encourages all of her fellow Caregivers to mindful of their own self-care as they take care of those they love.
UAMS Age Wise (by the Arkansas Geriatric Education Collaborative)
In this episode, we talk about the importance of support groups for caregivers. In honor of National Family Caregivers Month, we're sharing the story of a caregiver who found these groups helpful in his journey. Scott Luchesi became his wife's caregiver after she was diagnosed with Alzheimer's disease with vascular dementia. On the AGEC website, you can find more information about all of the programs we offer. Follow our social media pages to keep up with our latest events and news! Website: agec.uams.edu FREE online programs: https://patientslearn.uams.edu/agec/ Facebook: facebook.com/uamsagec Twitter: @uams_agec Instagram: @uams_agec
In this episode, Millennium Physician Group's Michelle McCormick talks with a grief specialist about how to get through the holidays when triggered by loved ones who have passed on. She also touches on National Family Caregivers Month and why it's important to recognize the people who give support to their loved ones.
Cancer Caregivers: This episode is especially for you! November is National Family Caregivers Month, and Joy provides so much helpful information from the sources of caregiving conflict to how multiple caregivers (or family members) can work together. There's also questions to ask the health care team along with tips for caregiving when your loved one's at the hospital and caregiving at home. How can you better manage all the financial costs of caregiving? How do you maximize an in-person visit when you're long-distance caregiving? What are some self-care tips for the exhausted caregiver? Where can cancer caregivers get free support? It's all in this jam-packed episode ... along with hearing Joy's recap from her first colonoscopy! Support the show (https://www.patreon.com/doseofjoy?fan_landing=true)
There are more than 53 million family caregivers in the United States. 61% of those caregivers are women who work a full-time job and devote about 20 hours per week to caring for a family member with many caring for more than one family member. Join Data Doyenne and Ann Battaglia, chief executive officer of the Health Community Alliance, as they discuss family caregivers and the support available for both caregiver and recipient. --- Support this podcast: https://podcasters.spotify.com/pod/show/data-doyenne/support
Cat Golden, founder of Nurses Inspire Nurses, joins Christina this week to talk about her decision to leave nursing to help nurses directly. Learn how Cat brings love and energy to her business and how she embraces doing things a little differently. Cat Golden's Bio:Cat Golden, a self love advocate, is the founder of Nurses Inspire Nurses, a movement to help nurses help themselves and each other as a community. Cat was able to build Nurses Inspire Nurses into a seven figure business in under two years. She is a pediatric nurse by trade who is obsessed with growth, learning and helping other nurses feel better.Resources and Links:Visit Cat's WebsiteLearn About Nurses Inspire NursesFollow Cat on InstagramFollow Nurses Inspire Nurses on Instagram If you enjoyed this episode, make sure and give us a five star rating and leave us a comment on iTunes, Podcast Addict, Podchaser and Castbox about what you'd like us to talk about that will help you realize that at any moment, any day, you too can decide, it's your turn! Christina Lecuyer's Bio:Christina Lecuyer is a former Professional Golfer, a three-time reality television competitor, Confidence + Mindset Coach, Motivational Speaker, and Founder of Women with C.L.A.S.S. Mastermind, as well as Decide It's Your Turn: Women's Weekend. Christina's mission in life is to empower people to fully live in their purpose, confidently and successfully! Decide It's Your Turn! PodcastResources and Links:Christina Lecuyer's WebsiteFollow us on InstagramFollow us on FacebookLooking for our Tweets?Christina Lecuyer on YouTubeHashtags : #justbe #worthaf #livealifeyoulove