Podcasts about karlawish

What does it mean to live a good life when the very essence of your memory and autonomy begins to fade? In a world where aging is inevitable, the challenges of neurodegenerative diseases like Alzheimer's pose profound questions about identity, care, and dignity. Today, I'm honored to have a conversation with Dr. Jason Karlawish. He is the author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. As a professor of medicine, medical ethics, health policy, and neurology at the University of Pennsylvania's Perelman School of Medicine, Dr. Karlawish's work transcends the traditional boundaries of science and ethics, offering new perspectives on how we care for those living with Alzheimer's and other forms of dementia. His journey has led him to pivotal roles at the Alzheimer's Disease Research Center and the Penn Memory Center, where he provides leadership in the Penn Program on Precision Medicine for the Brain (P3MB). He addresses the ethical challenges of aging brains and explores how diseases like Alzheimer's and Lewy body disease affect autonomy and self-determination through innovative projects. Dr. Karlawish is reshaping how we understand and support the Alzheimer's community. His essays on ethics and aging have appeared in publications such as The Hill, The New York Times, The Philadelphia Inquirer, STAT News, The Washington Post, and more. In our conversation today, we discuss the evolution of Alzheimer's from a misunderstood condition to a widely recognized crisis, the vital role of caregivers, and the transformative impact of storytelling and advocacy in changing the narrative of dementia care. Dr. Karlawish's insights not only highlight the complexities of Alzheimer's disease but also celebrate the human spirit's resilience. Join us as we discuss the journey of caregiving, the challenges and opportunities in research and policy, and how we can collectively foster a society that supports all aspects of aging with grace and dignity. Thank you, Dr. Karlawish, for your compassionate care, for infusing humanity into your practice, and for engaging in this meaningful conversation with me. I am grateful for your dedication and advocacy. Thank you! Learn more at www.jasonkarlawish.com   We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

Concerned about your aging loved ones?In today's episode, hear about the remarkable ongoing research in Alzheimer's Disease, including advances in diagnosis and treatment. Every year there are more options to slow memory loss and prolong meaningful life, bringing hope to individuals around the world. Join Jennifer Reid, MD as she interviews Jason Karlawish, MD, a professor of medicine, medical ethics and health policy, and neurology at the University of Pennsylvania Perelman School of Medicine. He is co-associate director of the Alzheimer's Disease Research Center and co-director of the Penn Memory Center. He also directs the Penn Program on Precision Medicine for the Brain, which examines the bioethics of aging with a focus on diseases of the brain such as Alzheimer's disease and Lewy body disease.  A writer, Dr. Karlawish is also committed to translating science into society. His most recent book is titled, The Problem of Alzheimer's: How Science, Culture and Politics Turned a Rare Disease Into a Crisis and What We Can Do About It.References from Episode:Penn Memory Center https://pennmemorycenter.org/Sites for Additional Resources:Eldercare Locator https://eldercare.acl.govNational Adult Day Services Association (www.nadsa.org)Seeking a mental health provider? Try Psychology TodayNational Suicide Prevention Lifeline: 1-800-273-8255SAMHSA's National Helpline - 1-800-662-HELP (4357)Dial 988 for Mental Health EmergencyThank you to Brendan Callahan for the original music featured on the podcast.Disclaimer:The information and other content provided on this podcast or in any linked materials, are not intended and should not be construed as medical advice, nor is the information a substitute for professional medical expertise or treatment. All content, including text, graphics, images and information, contained on or available through this website is for general information purposes only.If you or any other person has a medical concern, you should consult with your health care provider or seek other professional medical treatment. Never disregard professional medical advice or delay in seeking it because of something that have read on this website, blog or in any linked materials. If you think you may have a medical emergency, call your doctor or emergency services (911) immediately. You can also access the National Suicide Help Line at 1-800-273-8255  The Reflective DocWebsite - Instagram - Facebook - Linked In - Twitter - Think Like a Shrink Blog on Psychology Today

Though several validated biomarkers are studied and used in Alzheimer's disease research, most research participants don't have the opportunity to learn their biomarker results afterward, even if they have cognitive impairment. Drs. Jason Karlawish and Josh Grill join the podcast to discuss the debate over sharing biomarker results with research participants, how these powerful disclosures can be made ethically, and why it's as important for the field to study biomarker disclosures as it is to study the biomarkers themselves. Guests: Josh Grill, PhD, director, Institute for Memory Impairments and Neurological Disorders, associate professor, University of California, Irvine, and Jason Karlawish, PhD, co-director, Penn Memory Center, professor of medicine, medical ethics and health policy, and neurology, University of Pennsylvania Show Notes Read Dr. Jason Karlawish and Dr. Josh Grill's viewpoint piece, “Disclosing Alzheimer Disease Biomarker Results to Research Participants,” from JAMA Neurology's June 2022 issue. Listen to our episode with Dr. Daniel Gibbs about his book (mentioned by Dr. Karlawish at 34:21) on our website, Spotify, Apple Podcasts, or wherever you listen. Listen to our past episode on amyloid disclosures with research participants on our website, Spotify, Apple Podcasts, or wherever you listen. Learn more about Dr. Josh Grill at his bio on the University of California - Irvine website. Learn more about Dr. Jason Karlawish's work at his website. Connect with us Find transcripts and more at our website. Email Dementia Matters: dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter. Subscribe to the Wisconsin Alzheimer's Disease Research Center's e-newsletter.

All Home Care Matters was honored to welcome a remarkable and distinguished guest to the show, Dr. Jason Karlawish.   Dr. Karlawish is a physician, writer, and author.   He researches and writes about issues at the intersections of bioethics, aging, and the neurosciences. He is the author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont.   Dr. Karlawish has also written essays for the Los Angeles Times, The New York Times, The Washington Post, Forbes, The Hill, Nature, STAT, and the Philadelphia Inquirer.   Currently he is a Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, where he cares for patients. He is a member of the Board of Directors of The Greenwall Foundation. He lives in Philadelphia.

Dr. Jason Karlawish (the University of Pennsylvania) is the author of "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What we can do about it. " Dr. Karlawish gives a presentation of the same name at the University of Wisconsin-Parkside on Wednesday morning, October 12th, at 9 a.m. More information about this free event and how to register for it is available at uwp.edu/hhs.

Jason Karlawish is a geriatrician, a writer, a professor of medicine, medical ethics and health policy and neurology at the University of Pennsylvania, and is co director of the Penn Memory Center where he cares for patients. I couldn't wait to speak to Dr. Karlawish about his compelling and eye opening new book, The Problem of Alzheimer's How Science, Culture and Politics Turned a Rare Disease Into a Crisis and What We Can Do About It. It answered so many of my questions regarding research, policy and how we got here.

We continue our new format for “Let Me Say This About That” – highlighting all of the podcasts released in the month in one episode. In February three podcasts were released:- Reframing Dementia and Caregiving for the Future (Episode 135)- Editing the Genetics of Alzheimer's (Episode 136) - Getting Closer to Home with Marvell Adams, Jr. (Episode 137) This week on “Let Me Say This About That”, we highlight the key concepts and explore the overarching themes between all of the podcasts. In this episode we discuss S.P.I.C.E.S. – Quaker principles and how they apply to organizations, the concept of belonging, epigenetics, the stigma of Alzheimer's and a new frame for the all-important role of the caregiver.   Learn more about the writings of Dr. Karlawish: https://www.jasonkarlawish.com/writings Learn more about Quaker Principles – S.P.I.C.E.S. https://www.kendal.org/quaker-values-and-their-relevance-today/ Read more about Dementia Action Alliance & Aducanumab: https://daanow.org/wp-content/uploads/2022/02/Discussion-Points-About-CMS-Draft-Decision-on-Monoclonal-Antibodies-1.pdf Learn more about The Green House Project: www.thegreenhouseproject.org

Amid the gradual aging of the American population, there's never been more awareness about Alzheimer's and other dementias – but the stigmas and misconceptions have also persisted alongside this public knowledge, even among well-meaning people. At the University of Pennsylvania's Penn Memory Center, Dr. Jason Karlawish and his colleagues take a holistic approach to caring for people living with Alzheimer's and other forms of dementia; as a medical ethicist and author, he also probes the ways that society devalues caregiving as a vital role, while also treating elders with cognitive decline as “others.” Karlawish joins Susan Ryan for a provocative discussion about Alzheimer's and dementia not just as diseases, but as social constructs: Why was losing one's sense of agency and self-reliance considered a natural part of aging, and not a disease, until relatively recently in human history? Why do we view family caregivers as housekeepers or visitors instead of crucial supports who can help people with dementia live more fulfilling lives – the way wheelchairs and other mobility aids allow those with physical disabilities to navigate the world more freely? The answers to those questions will only become more vital as policymakers continue to debate eldercare reforms – and as new generations of both familial and professional caregivers look to improve the lives of America's elders.    Learn about the Penn Memory Center and its philosophy on care: https://pennmemorycenter.org/who-we-are/ Read about Karlawish's recent book, “The Problem of Alzheimer's”: https://www.publishersweekly.com/978-1-250-21873-5 Show notes/call to action: Learn more about The Green House Project: www.thegreenhouseproject.org

Dr. Jason Karlawish, author and Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, talks with Caregiver SOS on Air cohosts Carol Zernial, nationally known expert on gerontology, and veteran broadcaster and attorney Ron Aaron about Dr. Karlawish's book - "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis." For more visit www.jasonkarlawish.com. See omnystudio.com/listener for privacy information.

Dr. Jason Karlawish, physician and professor at the University of Pennsylvania and co-director of the Penn Memory Center, speaks with us about his book, "The Problem of Alzheimer's: How Science, Culture and Politics Turned a Rare Disease into a Crisis." The discussion was insightful in many ways. We talked about how Alzheimer's was first identifed as a disease, rather than just an outcome of aging. The challenges facing caregivers and the cost of long-term care, on individuals, families and society. We looked at how politics has used rhetoric to design a health care system that is not focused on long-term care or the expansion of a social insurance program. And we talked about some of the moral and ethical questions that caregivers face, such as "loving deception." The book shares stories of patients of Dr. Karlawish, he gets into the history of the scientists that first identified Alzheimer's as a disease and how the World Wars stopped the research and innovation. It is a valuable read and I would highly recommend it. You can subscribe to all Hey, Boomer materials on our website: https://heyboomer.biz  You can reach Dr. Karlawish through his website: www.jasonkarlawish.com  makingsenseof alzheimers.org is the other website mentioned in this episode

Dr. Jason Karlawish, author and Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, talks with Caregiver SOS on Air cohosts Carol Zernial, nationally known expert on gerontology, and veteran broadcaster and attorney Ron Aaron about Dr. Karlawish's book - "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis." For more visit www.jasonkarlawish.com.

Dr. Jason Karlawish, author and Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, talks with Caregiver SOS on Air cohosts Carol Zernial, nationally known expert on gerontology, and veteran broadcaster and attorney Ron Aaron about Dr. Karlawish's book - "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis." For more visit www.jasonkarlawish.com. See omnystudio.com/listener for privacy information.

Patti welcomes Dr. Jason Karlawish, co-director of the Penn Memory Center, and author of “The Problem of Alzheimer's – How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It”.  They define the difference between mild cognitive impairment, dementia, and Alzheimer's and address the stigma associated with this disease.  America is one of the few western global democracies that has not formulated a national healthcare plan to cover the rising costs associated with caring for individuals suffering from this disease.  Dr. Karlawish identifies the signs to look for in diagnosing this disease and reveals how recent biomedical breakthroughs can spur our healthcare system from failing these patients to saving them.

In this session Danielle Kelly, our Director of Culture & Inclusion at Herbert Smith Freehills joins leading expert on Dementia Dr Jason Karlawish for an important and enlightening conversation on dementia and Alzheimers.During this session Dr Karlawish breaks the disease down for us by exploring the types of Dementia, the role of a caregiver, the early signs of Dementia, the typical stages of Dementia and the medical tests used for dementia diagnosis. For local resources in Australia, Dementia Australia represents the over 450,000 Australians living with dementia and the almost 1.6 million Australians involved in their care. Visit Dementia Australia website: www.dementia.org.au

In this session Danielle Kelly, our Director of Culture & Inclusion at Herbert Smith Freehills joins leading expert on Dementia Dr Jason Karlawish for an important and enlightening conversation on dementia and Alzheimers. During this session Dr Karlawish breaks the disease down for us by exploring the types of Dementia, the role of a caregiver, the early signs of Dementia, the typical stages of Dementia and the medical tests used for dementia diagnosis. For local resources in Australia, Dementia Australia represents the over 450,000 Australians living with dementia and the almost 1.6 million Australians involved in their care. Visit Dementia Australia website: www.dementia.org.au

Aducanumab has been a hot topic in the field of dementia and Alzheimer's disease. Aducanumab, also known as Aduhelm, is a new Alzheimer's drug for people with Alzheimer's disease in their early stages with mild cognitive impairment. With so many questions, it helps to have answers from experts like Dr. Jason Karlawish, Neurologist and Co-Director of the Penn Memory Center.In this episode, Dr. Karlawish and I discucss:Reasons that Dr. Karlawish is a "reluctant prescriber" of AducanumabThe risks and benefits of Aducanumab for Alzheimer's DiseaseHow the FDA made the decision to approve Aducanumab for useThe answer to the question: "is some hope is better than no hope?" (related to the use of Aducanumab for Alzheimers.)The effects of the COVID-19 virus on brain health (i.e., risk for dementia)The difference between FDA approval for Aducanumab versus COVID-19 vaccineClick here to visit the show notes page for all the resources mentioned in today's episode:Older Adult / Family? Download the Memory Loss & Mental Health GuideProfessional? Grab the Mental Health Professional's Guide to Working with Older AdultsHelp others find this show by subscribing and leaving a review wherever you listen to the podcast, or here on i-tunes.--DISCLAIMER: The material on this site is for informational and educational purposes only. Any comments Dr. Koepp may make on the TV Show, blog, or in response to an individual's story or comments should not be construed as establishing a psychologist-patient relationship between Dr. Koepp and the individual. None of Dr. Koepp's show, website, social media, comments, or group information should be considered a substitute for individualized medical or mental health assessment, diagnosis, or treatment. Dr. Koepp is only representing herself in her TV Show, blogs, and on her website.Are you a licensed therapist, psychiatrist, or neuropsychologist who specializes with older adults? Join me in building the ONLY geriatric mental health provider directory in the nation. For a limited time, you can claim your profile here for FREE with the code: fullaccesspass (all lower case). Hurry! This offer is only valid for the first 100 profiles.

Dementia is a general term for loss of memory, language, problem-solving, and other thinking abilities that are severe enough to interfere with daily life. Alzheimer's is the most common cause of dementia.As life expectancies increase, more and more people are at risk of developing dementia. But what does it even mean?According to alz.org, in the United States, there are more deaths from Alzheimer's and dementia than from breast cancer and prostate cancer combined. In the past few years, Alzheimer's deaths have increased by 16%. In 2021, Alzheimer's will cost the nation $355 billion. By 2050, this number could be over $1 trillion. More than 11 million Americans take care of people with Alzheimer's or other dementias without getting paid for it.Join me and Dr. Jason Karlawish as we chat about how you need to prepared for the increase in cases of dementia. We talked about how often people are getting dementia. 100 years ago, people did not get it as much and the cases were not diagnosed. They were not dying from it as often. Now, there are more cases of Alzheimer's than before. What would you do if you went back in time and talked to someone with memory problems? If the person has problems early on in life, they can be diagnosed with Alzheimer's. To help them, we need policy changes that will improve the well-being and dignity of people living with dementia.--------------------Timestamps:[00:00] Pre-intro dialogue from Jason Karlawish[01:41] Friendly get to know you and Hanh's experience with dementia in her family.[04:05] Introduction to Jason Karlawish[04:46] Jason's background, including what exactly sparked his interest in Alzheimer's and Dementia?[06:06] It seems like a hundred years ago, people didn't die of Alzheimer's as often. Was it just underdiagnosis or something else?[09:36] If you could go back a hundred years, what would you do to educate people about Alzheimer's to prevent us from being in the place where we are today?[11:25] How are we able to diagnose Alzheimer's early, even before a person has any memory problems?[14:40] Things we can do now to prepare for the future increase in cases of dementia?[17:41] What effect does a negative stigma around memory loss and dementia have on those with dementia?[19:20] Ageism and its role in these stigmas?[19:38] What could we do to break down these stereotypes? On a personal level and cultural level?[23:42] Your thoughts on Biogen's new drug?[25:19] Why are some people confused about the moral aspects of Alzheimer's medication?[27:06] Thoughts on future success as an Alzheimer's medication?[28:45] Ways to improve Alzheimer's disease treatment today without using drugs like Biogen's, returning to old treatments, such as HRT or Donepezil?[31:45] Implications social media have for our sense of determination in a society?[33:02] Anything else that you would like to add?[34:49] Where can listeners find you and find your book?--------------------Bio:Dr. Jason Karlawish is a physician and writer who researches and writes about issues at the intersection of bioethics, aging, and the neurosciences. Dr. Karlawish's work has aired on NPR (National Public Radio) as well as The New York Times, Washington Post, Forbes, Philadelphia Inquirer, and many others. His book "The Problem of Alzheimer's" will be published February 2021 by Macmillan/St Martin's Press in association with TED Books; this book tells the story of how science culture politics turned a rare disease into a crisis that we can do something about!Find out more about Jason:LinkedIn: https://www.linkedin.com/in/jason-karlawish-a4888030/Website: https://www.jasonkarlawish.com/

In his new book The Problem of Alzheimer's, Dr. Jason Karlawish from the Penn Memory Center traces the history of a condition that impacts nearly 6 million Americans at a cost of more than $225 billion annually. These numbers may triple over the next decade. In today's episode, Dr. Karlawish discusses potential breakthroughs in the years ahead – both pharmacologic and social – that can help us weather this storm. We also review the FDA's controversial approval last week of aducanumab, the first new drug for Alzheimer's in nearly two decades.**Be sure to subscribe to The Healthy Skeptic MD on your favorite podcast app and on Youtube!Link for our channel on podcast apps and Youtube: wavve.link/healthyskepticmd

In this episode, we're picking up where we left off in episode 148: “I felt I had been harmed” with guest Jamie Tyrone.  Jamie is the author of Fighting for My Life: How to thrive in the shadow of Alzheimer's. She unexpectedly found out about her risk of developing Alzheimer's disease in the course of genetic testing for something else. As you can imagine, that had a significant impact on her life. More about that in a minute. Meanwhile, fast-forward to February 2021. Phil Gutis, who is our Assistant Sherpa on the show and was diagnosed with young onset Alzheimer's five years ago, landed us an interview with Dr Jason Karlawish, who is both Co-Director of the Penn Memory Center and part of Phil's neurology team.  Dr Karlawish came on the pod to discuss his new book The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. That conversation, featured in episodes 146: “It's a disease of autonomy” and 147: Safe, Social, and Engaged covered a lot of ground, as the title of the book suggests it would. One of the most intriguing ideas in the book is of creating a new diagnosis called "pre-clinical Alzheimer's.” Being able to diagnose people with "pre-clinical Alzheimer's” means they wouldn't be showing any symptoms of the disease, but rather that they have genetic markers indicating they'll likely develop it within their lifetime. People could live with a diagnosis of "pre-clinical Alzheimer's” for 30, 40, 50 years prior to showing symptoms. Now, back to Jamie Tyrone. She's been living with the information she has a significantly high risk of developing Alzheimer's disease for 11 years now. So of course we wanted to hear her thoughts on this idea of a "pre-clinical Alzheimer's” diagnosis.  In this episode, Phil and I have a conversation with Jamie about the psychological impact of genetic testing and knowing you have a diagnosis, or are at a significantly higher chance of eventually getting the dreaded diagnosis. The conversation got more real and raw than any of us anticipated. Affiliate disclosure: As an Amazon Associate I earn a small commission from qualifying purchases, at no/zero/none/nada additional cost to you. If you've heard/read/seen something helpful on The Alzheimer's Podcast or the Dementia Sherpa blog or YouTube channel, purchasing through the links on this page is a way to show support---thank you!).

We originally introduced you to our guest today, Jamie Tyrone, in episode 100: Enjoy Us in the Moment. In that episode, Jamie starts walking us through her experience of finding out (by accident!) she has two copies of the ApoE-4 gene, which puts her at a 91% lifetime risk of getting Alzheimer's disease. In addition to having a great-grandmother, grandmother, and two great-uncles who died of Alzheimer's disease, at the time Jamie found out her own genetic information, her dad was living with Alzheimer's disease. This is Jamie's third appearance on the show; episode 104: I Call it a Gift, is part two of the conversation we started in episode 100. We asked her back for a few reasons: number one, we wanted to hear Jamie's take on Dr. Jason Karlawish's idea about introducing a new diagnosis of "pre-clinical Alzheimer's," meaning people could theoretically be diagnosed decades before symptoms become apparent. (Dr. Karlawish talks about this in his new book The Problem of Alzheimer's and in episode 146: "It's a disease of autonomy" and episode 147: Safe, Social, and Engaged.)  As you can no doubt imagine, Jamie is in a position to speak authoritatively on what it's like to learn about and live with that information (which she discusses in detail in her book Fighting for My Life: How to Thrive in the Shadow of Alzheimer's.)   Number two, Jamie is a terrific storyteller---as you'll hear. And number three, Phil and I just adore her! :) This episode is part one of three in our latest conversation with Jamie.  Affiliate disclosure: As an Amazon Associate I earn a small commission from qualifying purchases, at no/zero/none/nada additional cost to you. If you've heard something helpful on The Alzheimer's Podcast, purchasing through these links is a way to show support---thank you!).

Jason Karlawish is a geriatrician, a writer, a professor of medicine, medical ethics and health policy and neurology at the University of Pennsylvania, and is co director of the Penn Memory Center where he cares for patients. I couldn't wait to speak to Dr. Karlawish about his compelling and eye opening new book, The Problem of Alzheimer's How Science, Culture and Politics Turned a Rare Disease Into a Crisis and What We Can Do About It. It answered so many of my questions regarding research, policy and how we got here.

This episode is part two of our conversation with Dr. Jason Karlawish, author of the new book The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. The book is out today (February 23, 2021) and is available as both an audio book on audiobooks.com, as well as hardback at your favorite bookseller. If you haven't yet listened to the first part of our conversation with Dr Karlawish in episode 146: It's a Disease of Autonomy, you'll want to hit pause and go back to that episode to catch up before coming back to this episode. Episode 146 explains the historical and political context that got us to where we are today and the way it influenced policy decisions around Alzheimer's disease. This episode focuses more on my main interest: the humans affected, and our relationship with them. Phil Gutis, former New York Times journalist and our Assistant Sherpa on The Alzheimer's Podcast, leads the conversation with Dr. Karlawish. Jason Karlawish is a physician and writer. He researches and writes about issues at the intersections of bioethics, aging, and the neurosciences. He is the author of the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and his essays have appeared in The New York Times, The Washington Post, Forbes, and the Philadelphia Inquirer. He is a Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, where he cares for patients. He lives in Philadelphia. Affiliate disclosure: As an Amazon Associate I earn a small commission from qualifying purchases, at no/zero/none/nada additional cost to you. If you've heard or read or seen something helpful on The Alzheimer's Podcast or the Dementia Sherpa blog or YouTube channel, purchasing through these links is a way to show support. Thank you!

Phil Gutis, former New York Times reporter and our Assistant Sherpa, interviews Dr. Jason Karlawish, author of the new book (available 2/23/21) The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. Dr. Karlawish was very generous with his time, so this episode is part one of two.  In part one, the wide-ranging conversation touches on: Aducanumab How we got to a place that -- 100+ years later -- still doesn't include a cure The concept of "pre-clinical Alzheimer's disease" Public stigma and self-stigma Why Dr. Karlawish believes there's reason to hope in the (relatively) near-term. Links to everything in the show notes at DementiaSherpa.com/episode146.

IMPACT Collaboratory PI Vince Mor speaks with Jason Karlawish, MD about his recent IMPACT Collaboratory Grand Rounds presentation on Modifications and Waivers of Informed Consent in Pragmatic Clinical Trials. Karlawish, Professor of Medicine, Medical Ethics and Health Policy, and Neurology, and Co-Director of the Penn Memory Center at University of Pennsylvania, focuses his research on issues at the intersections of bioethics, aging and the neurosciences.