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In conversation with Dr. Jason Karlawish In partnership with the Philadelphia Chamber Music Society The clinical consulting director of support groups at The CaringKind (formerly The Alzheimer's Association), Dasha Kiper has an MA in clinical psychology from Columbia University. For the past decade she has worked with dementia patients, counseled caregivers, led support groups, trained and supervised mental health professionals, and counseled former caregivers who now lead support groups. Informed by her work as both a counselor and work as a caregiver herself, Travelers to Unimaginable Lands employs a wide range of compassionate stories to combat the myth of the so-called perfect caregiver. These ''moving and often surprising'' (The Wall Street Journal) case histories meld science and storytelling to show that caregivers don't just witness cognitive decline in their loved ones with dementia-they are its invisible victims. Dr. Jason Karlawish is the author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. A Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania, he is Co-Director of the Penn Memory Center, where he cares for patients. He also serves on the board of directors for The Greenwall Foundation, a grant-based organization dedicated to expanding bioethics knowledge. His essays have appeared in The New York Times, the Los Angeles Times, Forbes, and The Philadelphia Inquirer, among other places. Because you love Author Events, please make a donation to keep our podcasts free for everyone. THANK YOU! (recorded 4/30/2024)

What does it mean to live a good life when the very essence of your memory and autonomy begins to fade? In a world where aging is inevitable, the challenges of neurodegenerative diseases like Alzheimer's pose profound questions about identity, care, and dignity. Today, I'm honored to have a conversation with Dr. Jason Karlawish. He is the author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. As a professor of medicine, medical ethics, health policy, and neurology at the University of Pennsylvania's Perelman School of Medicine, Dr. Karlawish's work transcends the traditional boundaries of science and ethics, offering new perspectives on how we care for those living with Alzheimer's and other forms of dementia. His journey has led him to pivotal roles at the Alzheimer's Disease Research Center and the Penn Memory Center, where he provides leadership in the Penn Program on Precision Medicine for the Brain (P3MB). He addresses the ethical challenges of aging brains and explores how diseases like Alzheimer's and Lewy body disease affect autonomy and self-determination through innovative projects. Dr. Karlawish is reshaping how we understand and support the Alzheimer's community. His essays on ethics and aging have appeared in publications such as The Hill, The New York Times, The Philadelphia Inquirer, STAT News, The Washington Post, and more. In our conversation today, we discuss the evolution of Alzheimer's from a misunderstood condition to a widely recognized crisis, the vital role of caregivers, and the transformative impact of storytelling and advocacy in changing the narrative of dementia care. Dr. Karlawish's insights not only highlight the complexities of Alzheimer's disease but also celebrate the human spirit's resilience. Join us as we discuss the journey of caregiving, the challenges and opportunities in research and policy, and how we can collectively foster a society that supports all aspects of aging with grace and dignity. Thank you, Dr. Karlawish, for your compassionate care, for infusing humanity into your practice, and for engaging in this meaningful conversation with me. I am grateful for your dedication and advocacy. Thank you! Learn more at www.jasonkarlawish.com   We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts. Please follow for updates, rate & review! For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com

Concerned about your aging loved ones?In today's episode, hear about the remarkable ongoing research in Alzheimer's Disease, including advances in diagnosis and treatment. Every year there are more options to slow memory loss and prolong meaningful life, bringing hope to individuals around the world. Join Jennifer Reid, MD as she interviews Jason Karlawish, MD, a professor of medicine, medical ethics and health policy, and neurology at the University of Pennsylvania Perelman School of Medicine. He is co-associate director of the Alzheimer's Disease Research Center and co-director of the Penn Memory Center. He also directs the Penn Program on Precision Medicine for the Brain, which examines the bioethics of aging with a focus on diseases of the brain such as Alzheimer's disease and Lewy body disease.  A writer, Dr. Karlawish is also committed to translating science into society. His most recent book is titled, The Problem of Alzheimer's: How Science, Culture and Politics Turned a Rare Disease Into a Crisis and What We Can Do About It.References from Episode:Penn Memory Center https://pennmemorycenter.org/Sites for Additional Resources:Eldercare Locator https://eldercare.acl.govNational Adult Day Services Association (www.nadsa.org)Seeking a mental health provider? Try Psychology TodayNational Suicide Prevention Lifeline: 1-800-273-8255SAMHSA's National Helpline - 1-800-662-HELP (4357)Dial 988 for Mental Health EmergencyThank you to Brendan Callahan for the original music featured on the podcast.Disclaimer:The information and other content provided on this podcast or in any linked materials, are not intended and should not be construed as medical advice, nor is the information a substitute for professional medical expertise or treatment. All content, including text, graphics, images and information, contained on or available through this website is for general information purposes only.If you or any other person has a medical concern, you should consult with your health care provider or seek other professional medical treatment. Never disregard professional medical advice or delay in seeking it because of something that have read on this website, blog or in any linked materials. If you think you may have a medical emergency, call your doctor or emergency services (911) immediately. You can also access the National Suicide Help Line at 1-800-273-8255  The Reflective DocWebsite - Instagram - Facebook - Linked In - Twitter - Think Like a Shrink Blog on Psychology Today

Milk has become a boiling political issue in Karnataka ahead of the elections. Amul's potential entry is seen as a threat to the local brand Nandini. But what is the economics behind dairy politics? Host Mugdha Variyar travels through the milk belt of Karnataka in Mandya district to do a ground check on farmers' troubles, and to find out what the Amul-Nandini issue means for them.We speak to: Anitha Ramlingegowda, director of the women's dairy cooperative in Sunnadadoddi in Mandya district,  HK Putamma, women's president of the Mandya District Bharatiya Kisan Sangha,  H Sudhakar, general manager of Mandya Milk Union, and  Madhu Chandan, founder of Organic Mandya, who is the Mandya candidate for the Sarvodaya Karnataka Party. Credits: NDTV, Narendra Modi Youtube Channel,  NewsFirst Kannada 1 and NewsFirst Kannada 2.  If you like this episode from Mugdha Variyar, check out her other interesting episodes on Angel Tax, the demon that haunts startups, Saving Face On Social Media: The New Era of Brand Protection, The Gig Economy Gets Grimmer and more! You can follow our host Mugdha Variyar on her social media: Twitter and Linkedin  Catch the latest episode of ‘The Morning Brief' on ET Play, The Economic Times Online, Spotify, Apple Podcasts, JioSaavn, Amazon Music and Google PodcastsSee omnystudio.com/listener for privacy information.

Labour's attack ads against Sunak put targeted political advertising back in the spotlight. But the Tories have done more than their fair share of online attack ads too – not least to win over the public to *cough* Brexit. Have they gone too far? And how do we moderate what goes online? Alex Andreou talks to Kyle Taylor, founder of Fair Vote UK and author of The Little Black Book of Data and Democracy. “When social media emerged we thought it would be this public town square. The reason it's been so successful is because it's the exact opposite.” - Kyle Taylor “The thing about political ads is you do want more people to vote for you, but you only want to tell each box what they want to hear.” - Kyle Taylor “Taking things for granted in the digital age is a fool's errand.” - Kyle Taylor. Support us on Patreon: www.patreon.com/bunkercast  Written and presented by Alex Andreou Producer: Chris Jones. Audio production: Jade Bailey Music by Kenny Dickinson. Group Editor: Andrew Harrison. Managing Editor: Jacob Jarvis THE BUNKER is a Podmasters Production. Instagram | Twitter Learn more about your ad choices. Visit megaphone.fm/adchoices

Stephen A Smith admits ESPN is a DISASTER because too much Left Wing politics TURNED OFF fans! New To The Podcast? Looking for a alternative to WOKE Media?! You Are In The Right Place! Make sure you subscribe! New To The Channel? Hit the Subscribe Button and Check out Our Website For Exclusive Content and Livestreams: www.blackandwhitenetwork.com Get your MERCH here: https://teespring.com/stores/blackandwhitesports Use Promo Code "USAFIRST" for 25% Off! --- Support this podcast: https://anchor.fm/blackandwhitenetwork/support

All Home Care Matters was honored to welcome a remarkable and distinguished guest to the show, Dr. Jason Karlawish.   Dr. Karlawish is a physician, writer, and author.   He researches and writes about issues at the intersections of bioethics, aging, and the neurosciences. He is the author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It and the novel Open Wound: The Tragic Obsession of Dr. William Beaumont.   Dr. Karlawish has also written essays for the Los Angeles Times, The New York Times, The Washington Post, Forbes, The Hill, Nature, STAT, and the Philadelphia Inquirer.   Currently he is a Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, where he cares for patients. He is a member of the Board of Directors of The Greenwall Foundation. He lives in Philadelphia.

Dr. Jason Karlawish (the University of Pennsylvania) is the author of "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What we can do about it. " Dr. Karlawish gives a presentation of the same name at the University of Wisconsin-Parkside on Wednesday morning, October 12th, at 9 a.m. More information about this free event and how to register for it is available at uwp.edu/hhs.

It's not often the words thoughtful, smart, and measured are used in describing a political debate these days, but the one and only debate for Texas Governor was a masterclass on how it should be done.    https://advertisecast.com/thejeffwardshow  Contact: sales@advertisecast.com  

If you love someone with Alzheimer's disease, you know that caregiving can be complicated and challenging. But you are not alone. There are many resources to help on your journey. In this episode, we hear from experts and other caregivers about some important dos and don'ts, and share resources where you can find more information. For even more resources, visit our website at HealthUnmuted.com What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Resources Part 1: Making Changes to Environment Home safety tips from MayoClinic Environmental changes (Social Care Institute for Excellence) Grants and resources to help make changes to the home (Alzheimer's Society, UK) Part 2: Helping Someone with Personal Care NIH BetterHealth (Australia) Alzheimer's Association Social Care Institute for Excellence (UK) MayoClinic WebMD, handling outbursts Alzheimer's Associations, managing anger Part 3: Things Not to Do/Say Alzheimer's Society Alzheimer's San Diego Part 4: Support for Caregivers Coping with caregiver depression  Managing stages of Alzheimer's disease  Alzheimer's Association support for caregivers (US) Alzheimer's Association Local Chapters (US) Alzheimer's Society support for caregivers (UK) Alzheimer's Society support groups (UK) Dementia Friendly America Healthline: How to find caregiver support groups (US) Alzheimer's Speaks - Resources and links Alz Authors - Books and Podcasts   Part 5: Links to information about advanced care planning Finding geriatric care managers ElderCare Locator from the US Administration on Aging Alzheimer's Association chapters  Alzheimer's Association guide for advance planning Finding your nursing home ombudsman (USA) Alzheimer's Society (Canada) Alzheimer's Society (UK) Links to information about clinical trials: Alzheimer's.gov Alzheimer's Association  Links to Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia  Dr. Jane Mullins - Finding the Light in Dementia: A Guide for Families, Friends and Caregivers A transcript of this episode is available here. This episode is made possible with support from Altoida.

If you love someone with Alzheimer's disease, you know that caregiving can be complicated and challenging. But you are not alone. There are many resources to help on your journey. In this episode, we hear from experts and other caregivers about some important dos and don'ts, and share resources where you can find more information.  For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources. What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here. Resources Part 1: Making Changes to Environment Home safety tips from MayoClinic Environmental changes (Social Care Institute for Excellence) Grants and resources to help make changes to the home (Alzheimer's Society, UK) Part 2: Helping Someone with Personal Care NIH BetterHealth (Australia) Alzheimer's Association Social Care Institute for Excellence (UK) MayoClinic WebMD, handling outbursts Alzheimer's Associations, managing anger Part 3: Things Not to Do/Say Alzheimer's Society Alzheimer's San Diego Part 4: Support for Caregivers Coping with caregiver depression  Managing stages of Alzheimer's disease  Alzheimer's Association support for caregivers (US) Alzheimer's Association Local Chapters (US) Alzheimer's Society support for caregivers (UK) Alzheimer's Society support groups (UK) Dementia Friendly America Healthline: How to find caregiver support groups (US) Alzheimer's Speaks - Resources and links Alz Authors - Books and Podcasts   Part 5: Links to information about advanced care planning Finding geriatric care managers ElderCare Locator from the US Administration on Aging Alzheimer's Association chapters  Alzheimer's Association guide for advance planning Finding your nursing home ombudsman (USA) Alzheimer's Society (Canada) Alzheimer's Society (UK) Links to information about clinical trials: Alzheimer's.gov Alzheimer's Association  Links to Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia  Dr. Jane Mullins - Finding the Light in Dementia: A Guide for Families, Friends and Caregivers Get all the links and the episode transcript by visiting the website here.

There's no cure for Alzheimer's disease, but there are ways to manage it and treat symptoms. In this episode, we hear from people living with the disease about the healthy changes they've made to continue leading active, social lives. For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources. What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here. Resources For information about lifestyle changes Alzheimer's Society HelpGuide Healthline The MIND Diet Memory Cafe directory Patient Support and Advocacy Groups Alzheimer's Speaks Alz Authors Alzheimer's Association Local Chapters (US) Alzheimer's Society support groups (UK) Dementia Friendly America   Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia    Get all the links and the episode transcript by visiting the website here.

Medication for Alzheimer's disease has been around since the 1980s, and for some people, it can be an important part of managing symptoms. In this episode, we talk about the medications that are available now, and we learn about therapy to improve motor, speech and language skills.  For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources. What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here. Resources For information about medication Overview of medications for Alzheimer's disease FDA approval for Aducanumab About Aducanumab About Cholinesterase Inhibitors   For information about therapies American Physical Therapy Association American Speech Language and Hearing Association Total Health Works Speech Therapy Works Managing eating and swallowing challenges   For information about clinical trials: Alzheimer's.gov Alzheimer's Association     References about Aducanumab NIH article Alzheimer's Association article Nature.com article   Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia Get all the links and the episode transcript by visiting the website here.

Medication for Alzheimer's has been around since the 1980s, and for some people, it can be an important part of managing symptoms. In part 2 of Treatment for Alzheimer's, we explore some pharmaceutical options, as well as therapy to improve motor, speech, and language skills. For even more resources, visit our website at HealthUnmuted.com What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Resources For information about medication Overview of medications for Alzheimer's disease FDA approval for Aducanumab About Aducanumab About Cholinesterase Inhibitors   For information about therapies American Physical Therapy Association American Speech Language and Hearing Association Total Health Works Speech Therapy Works Managing eating and swallowing challenges   For information about clinical trials: Alzheimer's.gov Alzheimer's Association     References about Aducanumab NIH article Alzheimer's Association article Nature.com article   Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia A transcript of this episode is available here. This episode is made possible with support from Altoida.

There's no cure for Alzheimer's disease, but there are ways to manage it and treat symptoms. In part 1 of Treating Alzheimer's, we hear from people living with the disease about the lifestyle changes they've adopted to continue leading active, social lives.  For even more resources, visit our website at HealthUnmuted.com What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Resources For information about lifestyle changes Alzheimer's Society HelpGuide Healthline The MIND Diet Memory Cafe directory Patient Support and Advocacy Groups Alzheimer's Speaks Alz Authors Alzheimer's Association Local Chapters (US) Alzheimer's Society support groups (UK) Dementia Friendly America   Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia    A transcript of this episode is available here. This episode is made possible with support from Altoida.

Alzheimer's disease affects families across the United States, yet no two people with the disease are alike. Our understanding of Alzheimer's has changed a lot over the years. In this first episode, we start with the basics. We talk about causes, risk factors, symptoms, and how it affects the brain. Plus we learn about the difference between Alzheimer's disease and dementia. For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources. What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here. Resources For information about Alzheimer's Disease Alzheimer's Association  National Institutes of Health (NIH)  Healthline Bright Focus, for more information about amyloid and tau MayoClinic, for more information about disease progression Patient Support and Advocacy Groups Alzheimer's Speaks Alz Authors Alzheimer's Association Local Chapters (US) Alzheimer's Society support groups (UK) Dementia Friendly America HFC Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia  Get all the links and the episode transcript by visiting the website here.

The first case of Alzheimer's disease was diagnosed in the early 1900s– but only after the person had died, and doctors were able to do an autopsy. Science has come a long way since then! There are several tests available now. And soon we may be able to tell if someone will develop Alzheimer's disease before they even develop symptoms. In this episode, we learn about the latest tests. And we hear from people and their loved ones about how they handled the shock of diagnosis. For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources. What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here. Resources History of Alzheimer's disease Bright Focus  Alzheimer's Society Diagnosis information and what to expect at an appointment National Institute of Aging Alzheimer's Society Alzheimer's Association Mayo Clinic Mild Cognitive Impairment (MCI) Alzheimer's Association Cleveland Clinic Caregiver support  Family Caregiver Alliance Memory Cafes Memory Cafe Directory Guest's Books Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Get all the links and the episode transcript by visiting the website here.

Despite significant breakthroughs in medical knowledge, Alzheimer's disease is still shrouded in stigma and misconception. In this episode, we hear personal stories of what living with Alzheimer's is like. We hear from people who are in the early stages and managing well, as well as carers and medical professionals working with advanced Alzheimer's patients. If you love someone with advanced Alzheimer's disease, stay tuned for an upcoming episode on how to manage your new normal– especially when the going gets tough.  For even more resources, visit our website at HealthUnmuted.com What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Resources Patient Support and Advocacy Groups Alzheimer's Speaks Alz Authors Alzheimer's Association Local Chapters (US) Alzheimer's Society support groups (UK) Dementia Friendly America Caregiver support  Family Caregiver Alliance ​​​​ Memory Cafes Memory Cafe directory Guest's Books Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease  A transcript of this episode is available here. This episode is made possible with support from Altoida.

The first case of Alzheimer's disease was diagnosed in the early 1900s via autopsy. Science has come a long way since then, and in the not-too-distant future, we may be able to tell if someone's at risk before they even develop symptoms. In the second episode of the Alzheimer's Podcast, we explore the latest diagnostic methods and hear from people and their loved ones about how they coped with the shock of diagnosis.  For even more resources, visit our website at HealthUnmuted.com What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Resources History of Alzheimer's disease Bright Focus  Alzheimer's Society Diagnosis information and what to expect at an appointment National Institute of Aging Alzheimer's Society Alzheimer's Association Mayo Clinic Mild Cognitive Impairment (MCI) Alzheimer's Association Cleveland Clinic Caregiver support  Family Caregiver Alliance Memory Cafes Memory Cafe Directory Guest's Books Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease A transcript of this episode is available here. This episode is made possible with support from Altoida.

Alzheimer's disease affects over 6 million Americans and counting, yet no two people with the disease are alike. Our understanding of Alzheimer's has changed a lot over the years. In this first episode, we start with the basics: causes, risk factors, symptoms, how it affects the brain– and explain the relationship between Alzheimer's disease and dementia. For even more resources, visit our website at HealthUnmuted.com What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Resources For information about Alzheimer's Disease Alzheimer's Association  National Institutes of Health (NIH)  Healthline Bright Focus, for more information about amyloid and tau MayoClinic, for more information about disease progression Patient Support and Advocacy Groups Alzheimer's Speaks Alz Authors Alzheimer's Association Local Chapters (US) Alzheimer's Society support groups (UK) Dementia Friendly America HFC Guest's Books Dr Andrew Budson - Seven Steps to Managing Your Memory: What's Normal, What's Not and What to Do About It Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease Dr Phillip Sloane - ​​Alzheimer's Medical Advisor: A Caregiver's Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia  A transcript of this episode is available here. This episode is made possible with support from Altoida.

Even though we know a lot more about Alzheimer's disease now than we used to, there are still a lot of misunderstandings about the disease. So in this episode, we hear from people with Alzheimer's disease about their day-to-day lives. Caregivers and medical professionals also share their experiences caring for people with more advanced Alzheimer's disease. If you love someone with advanced Alzheimer's disease, stay tuned for an upcoming episode on how to manage your new normal– especially when the going gets tough.  For a complete list of resources in this podcast series, please visit our website at HealthUnmuted.com/resources. What did you think of this episode? We'd love to hear from you. Please visit healthunmuted.com/feedback to let us know! Note: For links to our latest podcast entitled "Rethinking Alzheimer's Disease", visit our website here. Resources Patient Support and Advocacy Groups Alzheimer's Speaks Alz Authors Alzheimer's Association Local Chapters (US) Alzheimer's Society support groups (UK) Dementia Friendly America Caregiver support  Family Caregiver Alliance ​​​​ Memory Cafes Memory Cafe directory Guest's Books Dr Jason Karlawish - The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About it Dr Jennifer Bute - Dementia from the Inside: A Doctor's Personal Journey of Hope Anthony Copeland Parker - Running All Over The World: Our Race Against Early-Onset Alzheimer's Paul Hornback - God Still Remembers Me: Devotions for Facing Alzheimer's Disease with Faith Paul Hornback - My Purple Brick Road: A Faithful Battle with Early-onset Alzheimer's Disease Dr Daniel Gibbs - A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease  Get all the links and the episode transcript by visiting the website here.

Jason Karlawish is a geriatrician, a writer, a professor of medicine, medical ethics and health policy and neurology at the University of Pennsylvania, and is co director of the Penn Memory Center where he cares for patients. I couldn't wait to speak to Dr. Karlawish about his compelling and eye opening new book, The Problem of Alzheimer's How Science, Culture and Politics Turned a Rare Disease Into a Crisis and What We Can Do About It. It answered so many of my questions regarding research, policy and how we got here.

Dr. Jason Karlawish, author and Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, talks with Caregiver SOS on Air cohosts Carol Zernial, nationally known expert on gerontology, and veteran broadcaster and attorney Ron Aaron about Dr. Karlawish's book - "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis." For more visit www.jasonkarlawish.com. See omnystudio.com/listener for privacy information.

Alzheimer's disease used to be a rare diagnosis. But today, more than 5.8 million Americans are living with Alzheimer's and this number is projected to triple to 14 million over the next forty years. In this episode, Emily discusses the mounting practical, moral, and ethical quandaries of caring for patients with Alzheimer's and other dementia-causing diseases with Dr. Jason Karlawish, author of The Problem of Alzheimer's: How Science, Culture and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. The Nocturnists are partnering with VCU Health Continuing Education to offer FREE CME credits for healthcare professionals. Visit ce.vcuhealth.org/nocturnists to claim credit for this episode. More at thenocturnists.com.

Dr. Jason Karlawish, physician and professor at the University of Pennsylvania and co-director of the Penn Memory Center, speaks with us about his book, "The Problem of Alzheimer's: How Science, Culture and Politics Turned a Rare Disease into a Crisis." The discussion was insightful in many ways. We talked about how Alzheimer's was first identifed as a disease, rather than just an outcome of aging. The challenges facing caregivers and the cost of long-term care, on individuals, families and society. We looked at how politics has used rhetoric to design a health care system that is not focused on long-term care or the expansion of a social insurance program. And we talked about some of the moral and ethical questions that caregivers face, such as "loving deception." The book shares stories of patients of Dr. Karlawish, he gets into the history of the scientists that first identified Alzheimer's as a disease and how the World Wars stopped the research and innovation. It is a valuable read and I would highly recommend it. You can subscribe to all Hey, Boomer materials on our website: https://heyboomer.biz  You can reach Dr. Karlawish through his website: www.jasonkarlawish.com  makingsenseof alzheimers.org is the other website mentioned in this episode

Dr. Jason Karlawish, author and Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, talks with Caregiver SOS on Air cohosts Carol Zernial, nationally known expert on gerontology, and veteran broadcaster and attorney Ron Aaron about Dr. Karlawish's book - "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis." For more visit www.jasonkarlawish.com.

Dr. Jason Karlawish, author and Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, talks with Caregiver SOS on Air cohosts Carol Zernial, nationally known expert on gerontology, and veteran broadcaster and attorney Ron Aaron about Dr. Karlawish's book - "The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis." For more visit www.jasonkarlawish.com. See omnystudio.com/listener for privacy information.

Patti welcomes Dr. Jason Karlawish, co-director of the Penn Memory Center, and author of “The Problem of Alzheimer's – How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It”.  They define the difference between mild cognitive impairment, dementia, and Alzheimer's and address the stigma associated with this disease.  America is one of the few western global democracies that has not formulated a national healthcare plan to cover the rising costs associated with caring for individuals suffering from this disease.  Dr. Karlawish identifies the signs to look for in diagnosing this disease and reveals how recent biomedical breakthroughs can spur our healthcare system from failing these patients to saving them.

The pandemic had a high mortality toll in care homes, but measures to try and reduce that, through extreme social isolation, has had its own cost. Social interaction, particularly with close family, is more than just a quick hello - evidence shows that mental stimulation can help with cognitive decline, and the lack of that interaction may have hastened progression of dementia in some patients. In this podcast, the team talk about what GPs can do to support patients in care homes, and we find out about some non-drug interventions patients can try. Our guests; Jason Karlawish, is a geriatrician, and co-director of the Penn Memory Center, he's also author of the book "The Problem of Alzheimer's How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It" Jennifer Watt is a geriatrician, and assistant professor at the university of Toronto, and one of the authors of the recent systematic review and meta-analysis of comparative efficacy of interventions for reducing symptoms of depression in people with dementia - https://www.bmj.com/content/372/bmj.n532 Reading; Washington Post article: https://www.washingtonpost.com/health/2020/09/16/coronavirus-dementia-alzheimers-deaths/?arc404=true Jason Karlawish and his book https://www.jasonkarlawish.com/the-problem-of-alzheimers This American Life episode: https://www.thisamericanlife.org/737/the-daily The Daily episode on aducanumab, "some hope is better than having no hope" https://www.nytimes.com/2021/07/07/podcasts/the-daily/aduhelm-alzheimers-fda-drug.html

When we started this podcast in January 2018, we were not thinking about whether it would make it to 200 episodes. Then again, we didn’t think we get reprimanded by Werner Herzog, either. So, borrowing from the “How it Started, How it’s going” meme, here’s Episode 200! Learn more about your ad choices. Visit megaphone.fm/adchoices

When we started this podcast in January 2018, we were not thinking about whether it would make it to 200 episodes. Then again, we didn’t think we get reprimanded by Werner Herzog, either. So, borrowing from the “How it Started, How it’s going” meme, here’s Episode 200! Learn more about your ad choices. Visit megaphone.fm/adchoices

In 2020, an estimated 5.8 million Americans had Alzheimer's, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer's from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems' failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer's to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers' support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/psychology

In 2020, an estimated 5.8 million Americans had Alzheimer's, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer's from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems' failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer's to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers' support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/medicine

In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/science-technology-and-society

In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/science

In 2020, an estimated 5.8 million Americans had Alzheimer's, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer's from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems' failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer's to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers' support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices

In 2020, an estimated 5.8 million Americans had Alzheimer's, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer's from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems' failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer's to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers' support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/neuroscience

In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2025. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It (St. Martin's Press, 2021) traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center. Galina Limorenko is a doctoral candidate in Neuroscience with a focus on biochemistry and molecular biology of neurodegenerative diseases at EPFL in Switzerland. To discuss and propose the book for an interview you can reach her at galina.limorenko@epfl.ch. Learn more about your ad choices. Visit megaphone.fm/adchoices Support our show by becoming a premium member! https://newbooksnetwork.supportingcast.fm/new-books-network

In this episode, we're picking up where we left off in episode 148: “I felt I had been harmed” with guest Jamie Tyrone.  Jamie is the author of Fighting for My Life: How to thrive in the shadow of Alzheimer's. She unexpectedly found out about her risk of developing Alzheimer's disease in the course of genetic testing for something else. As you can imagine, that had a significant impact on her life. More about that in a minute. Meanwhile, fast-forward to February 2021. Phil Gutis, who is our Assistant Sherpa on the show and was diagnosed with young onset Alzheimer's five years ago, landed us an interview with Dr Jason Karlawish, who is both Co-Director of the Penn Memory Center and part of Phil's neurology team.  Dr Karlawish came on the pod to discuss his new book The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. That conversation, featured in episodes 146: “It's a disease of autonomy” and 147: Safe, Social, and Engaged covered a lot of ground, as the title of the book suggests it would. One of the most intriguing ideas in the book is of creating a new diagnosis called "pre-clinical Alzheimer's.” Being able to diagnose people with "pre-clinical Alzheimer's” means they wouldn't be showing any symptoms of the disease, but rather that they have genetic markers indicating they'll likely develop it within their lifetime. People could live with a diagnosis of "pre-clinical Alzheimer's” for 30, 40, 50 years prior to showing symptoms. Now, back to Jamie Tyrone. She's been living with the information she has a significantly high risk of developing Alzheimer's disease for 11 years now. So of course we wanted to hear her thoughts on this idea of a "pre-clinical Alzheimer's” diagnosis.  In this episode, Phil and I have a conversation with Jamie about the psychological impact of genetic testing and knowing you have a diagnosis, or are at a significantly higher chance of eventually getting the dreaded diagnosis. The conversation got more real and raw than any of us anticipated. Affiliate disclosure: As an Amazon Associate I earn a small commission from qualifying purchases, at no/zero/none/nada additional cost to you. If you've heard/read/seen something helpful on The Alzheimer's Podcast or the Dementia Sherpa blog or YouTube channel, purchasing through the links on this page is a way to show support---thank you!).

I have a tough, loving conversation about dementia and Alzheimer's with Jason Karlawish, physician, researcher, professor, clinician, and author of The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. This heartbreakingly common diagnosis creates multiple patients — both the diagnosed and the caregivers. We talk about the difference between Alzheimer's and dementia, how we respond to a disease that diminishes our autonomy, and what we can do to take care of ourselves and each other. Learn more about your ad choices. Visit podcastchoices.com/adchoices

Jason Karlawish is a geriatrician, a writer, a professor of medicine, medical ethics and health policy and neurology at the University of Pennsylvania, and is co director of the Penn Memory Center where he cares for patients. I couldn't wait to speak to Dr. Karlawish about his compelling and eye opening new book, The Problem of Alzheimer's How Science, Culture and Politics Turned a Rare Disease Into a Crisis and What We Can Do About It. It answered so many of my questions regarding research, policy and how we got here.

This episode is part two of our conversation with Dr. Jason Karlawish, author of the new book The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. The book is out today (February 23, 2021) and is available as both an audio book on audiobooks.com, as well as hardback at your favorite bookseller. If you haven't yet listened to the first part of our conversation with Dr Karlawish in episode 146: It's a Disease of Autonomy, you'll want to hit pause and go back to that episode to catch up before coming back to this episode. Episode 146 explains the historical and political context that got us to where we are today and the way it influenced policy decisions around Alzheimer's disease. This episode focuses more on my main interest: the humans affected, and our relationship with them. Phil Gutis, former New York Times journalist and our Assistant Sherpa on The Alzheimer's Podcast, leads the conversation with Dr. Karlawish. Jason Karlawish is a physician and writer. He researches and writes about issues at the intersections of bioethics, aging, and the neurosciences. He is the author of the novel Open Wound: The Tragic Obsession of Dr. William Beaumont and his essays have appeared in The New York Times, The Washington Post, Forbes, and the Philadelphia Inquirer. He is a Professor of Medicine, Medical Ethics and Health Policy, and Neurology at the University of Pennsylvania and Co-Director of the Penn Memory Center, where he cares for patients. He lives in Philadelphia. Affiliate disclosure: As an Amazon Associate I earn a small commission from qualifying purchases, at no/zero/none/nada additional cost to you. If you've heard or read or seen something helpful on The Alzheimer's Podcast or the Dementia Sherpa blog or YouTube channel, purchasing through these links is a way to show support. Thank you!

Where are we with Alzheimers?  Are we about to see a revolution in how we diagnose and treat it with Amyloid PET scans and the amyloid antibody aducanumab (which is currently on FDA's desk for approval)?  Or are we still in the same place where there is no meaningfully effective treatment?  Or is it somewhere in between, given the data that we have on comprehensive dementia care? We talk today with Jason Karlawish, a professor of medicine, medical ethics and health policy, and neurology at the University of Pennsylvania Perelman School of Medicine. In addition to being a geriatrician extraordinaire, he is the author of the new book “The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It.” In addition to talking about PET scans and new drugs like aducanumab, we discuss with Jason about the history of Alzheimers, the history of how we care for a fund caregivers, and where we go from here. So take a listen and check out Jason's book!

Phil Gutis, former New York Times reporter and our Assistant Sherpa, interviews Dr. Jason Karlawish, author of the new book (available 2/23/21) The Problem of Alzheimer's: How Science, Culture, and Politics Turned a Rare Disease into a Crisis and What We Can Do About It. Dr. Karlawish was very generous with his time, so this episode is part one of two.  In part one, the wide-ranging conversation touches on: Aducanumab How we got to a place that -- 100+ years later -- still doesn't include a cure The concept of "pre-clinical Alzheimer's disease" Public stigma and self-stigma Why Dr. Karlawish believes there's reason to hope in the (relatively) near-term. Links to everything in the show notes at DementiaSherpa.com/episode146.