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A New Brunswick woman known as "Alice" wandered from her care home 12 times before dying cold and alone. The province's deputy senior advocate tells us what went wrong. Her B.C. counterpart says seniors there are also vulnerable with more than 7,000 waiting for a bed and no plan to fix the problem.
Alzheimer's can take so much, so fast, and the hardest part is feeling like you have zero control. We're Susie Singer Carter and Don Priess, and we're joined by Mark Wilson, a former Fortune 500 leadership executive whose new book, Breakthrough Alzheimer's Care, offers a hopeful roadmap that leads to thriving, not just surviving through a dementia journey.After his mother was diagnosed with both Alzheimer's and vascular dementia, Mark made the life-changing decision to leave a successful corporate career and become her full-time caregiver. What followed was a remarkable journey that challenged expectations and transformed both their lives.Drawing on leadership principles, practical strategies, and deep personal experience, Mark shares how families can become Care Leaders, not just caregivers, by creating environments that prioritize safety, joy, connection, purpose, and well-being.We discuss:• The mindset shift from caregiver to care leader• The five breakthrough pillars of care• Building and leading an effective care team• Creating moments of joy even in the face of dementia• Supporting your loved one without losing yourself• Why hope still matters after an Alzheimer's diagnosis• Finding purpose and meaning throughout the caregiving journeyWhether you're caring for a parent, spouse, partner, or friend, this episode offers practical guidance, heartfelt wisdom, and a powerful reminder that love can still create extraordinary moments.Because even when there is no cure, there can still be connection, purpose, and joy.If this conversation helps, subscribe, share it with a friend who's caregiving, and leave a review so more families searching for Alzheimer's caregiving support and dementia care strategies can find it.#LoveConquersAlz, #Alzheimers, #Dementia, #Caregiving, #FamilyCaregiver, #CaregiverSupport, #DementiaCare, #SeniorCare, #CareLeader, #AgingParents, #CaregiverLife, #AlzheimersAwareness, #CaregivingJourney, #ElderCare, #CaregiverWellnesConnect with Mark:Website: Bold Care LeaderLinkedIn: LinkedIn ProfileInstagram: @boldcareleaderFacebook: Mark Wilson / Bold Care Leader on FacebookBook: Breakthrough Alzheimer's CareSend us Fan MailIf someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change. History has shown us that It takes people power to change anything worthwhile. That's why we we're launching something that's never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We'rSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information.Please watch. Review. Share.Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walkFollow us on Twitter, FB, IG, & TiK Tok
What happens when we stop designing care around institutions and start designing it around people? In this week's episode, AgingIN CEO Susan Ryan sits down with internationally recognized dementia care innovator Eloy van Hal, to answer this question. Drawing on decades of experience in the Netherlands, Eloy tells Susan how he helped move residents from traditional high-rise nursing homes into small, neighborhood-style homes where daily life feels familiar, meaningful, and human. As founder of the groundbreaking Hogeweyk model of dementia village in the Netherlands, van Hal discusses the philosophy behind it and the broader movement toward relationship-based, person-directed dementia care. Their conversation explores the importance of trust, family education, staff development, and stakeholder collaboration in creating cultures of care that honor the person beyond the diagnosis. More about Hogewyk here: https://www.bethecareconcept.com/en/actual/access-health-international-dementia-village-interview-with-eloy-van-hal/ Learn about the AgingINnovation 2026 annual conference here: https://aginginnovationconference.org
In this original What the Dementia episode, we will discuss why dementia caregiving is not always about making or keeping your partner with dementia happy. We explain why emotions like sadness, frustration, or crying can still occur in people living with dementia and why these moments are not necessarily something caregivers need to “fix.”This episode will cover:— Why keeping someone with dementia happy isn't always the goal— How emotions can show up in people living with dementia— Why distress can be a form of communication— Questions caregivers can ask when someone is upset— When emotional changes should be discussed with a doctorMENTIONED IN EPISODE | Newsletter | https://letsbambu.com/newsletterCONNECT, GET RESOURCES, LEARN MORE, + SIMPLIFY YOUR CARE JOURNEY:LinkTree | https://www.letsbambu.com/b/linktreeMUSIC CREDIT: Listen To SpillageVillage - Tropical Landing Pop Songs At Looperman.com DISCLAIMER: The information contained in Bambu Care LLC's website, blog, emails, programs, services and/or products is for educational and informational purposes only. While we draw on our prior professional expertise and background in other areas, you acknowledge that we are supporting you in our role exclusively as a Dementia Care Consultant. By participating in Bambu Care, LLC's website, blog, emails, programs, services and/or products, you acknowledge that we are not a licensed psychologist, professional counselor, or medical doctor. We in no way, diagnose, treat, or cure any illnesses or diseases. Dementia Care Consulting is in no way to be construed or substituted as psychological counseling or any other type of therapy or medical advice. The information provided by Bambu Care, LLC also does not constitute legal or financial advice nor is intended to be. Dementia Care Consulting is not a substitute for the services of a CPA or attorney.
Today, we're speaking to Dr Charlotte Morris, a GP and academic based at the University of Manchester.Title of paper: Experiences of primary care for people with dementia from socioeconomically disadvantaged areas: a qualitative studyAvailable at: https://doi.org/10.3399/BJGP.2025.0407Existing national guidance recommends primary care-led dementia health care, but little is known about the experience of this for people living in socioeconomically deprived areas. This study highlights that people with dementia, and their carers, in socioeconomically disadvantaged areas want to maintain identity and understand their decline. Support from healthcare services often diminishes over time, with difficulties accessing and navigating healthcare systems when needed. There was uncertainty about primary care's role in dementia health care. Clearer communication and proactive support from primary care may improve experiences for these patients.TranscriptThis transcript was generated using AI and has not been reviewed for accuracy. Please be aware it may contain errors or omissions.Speaker A00:00:00.320 - 00:00:32.850Hello and welcome to BJ GP Interviews. I'm Ewan Lawson and I'm the editor of the BJ gp. Thanks for listening to the podcast today. In this episode, we are speaking to Charlotte Morris.Charlotte is a GP and doctoral research fellow at the University of Manchester and we have recently published her paper, Experiences of Primary Care for People with Dementia from Socioeconomically Disadvantaged Areas A Qualitative Study.So, Charlotte, first of all, what I'd like to ask you is how did you come to focus on people with dementia in deprived areas specifically, and what surprised you most in the interviews?Speaker B00:00:33.170 - 00:02:03.470Thanks, Ewan. Thanks so much to you and the BJGP for inviting me to do the podcast and publishing the paper.So, I guess my interest in people with dementia started when I finished my foundation training and I did a clinical fellowship year in London where I worked on a ward with people with dementia specifically. And at that time I wanted to be a care of the elderly doctor.But I was struck by how many people kept coming in and out of hospital with dementia regularly. We'd spend ages trying to get them home. They go home for maybe one or two days and then sadly come back on this cycle.And I think in reality, a lot of those people would probably have been better at home, even if that shortened their lives very sadly.And it made me realise I wanted to work in the community with people with dementia, trying to improve healthcare in terms of advanced care planning and kind of planning for progression. So that's where my interest in dementia came in.And I work in a practice in a relatively deprived area of Greater Manchester, and I always had an interest in health equity for kind of various reasons and health equity in terms of various lenses as well.So when I was designing my PhD project, I decided to kind of focus on both aspects, so health inequalities in terms of deprivation and primary care for people with dementia.Speaker A00:02:03.870 - 00:02:08.270I mean, I know we're going to touch another on some other stuff, but. Yeah. What surprised you most in the interviews?Speaker B00:02:09.390 - 00:02:47.530I think in terms of what surprised me most in the interviews, I think I was actually struck by how much people wanted more health care from their primary care teams. It's not like they felt they were getting the best care or they were really kind of thrilled with what they were getting in lot of times.But they were actually very trusting of their primary care teams and they really, really wanted more of that health care, which kind of struck me, really.And I actually found it kind of quite touching and humbling, as a practicing GP myself, to know that we were really valued and that the care that we provide, people tend to want more of it rather than less.Speaker A00:02:47.610 - 00:03:21.390Yeah, so that leads in nicely, because I wanted to ask you about one of the themes in your paper, which was the kind of proactive continuity.And several of your participants described your wanting their GP to take the initiative, you know, to call them, to know them, so just to anchor their sense of self while the dementia progresses. There was a one man who had Alzheimer's who named it Ali. Was a kind of a. Was a striking example. You know, what, what kind of sense?What does that tell us about what primary care needs to be doing? I mean, you mentioned there about how much it was appreciated, but what kind of. What do you think they can do more of?Speaker B00:03:22.000 - 00:04:42.080Yeah, I think that kind of theme of proactive continuity splits into two, really. So I think the idea of being proactive is really important and people wanted their GPs not only to know them, but to actively contact them.Sorry, I mean, not just their gps, actually their whole primary care team recognising that we all work together in our practices as well as that proactivity.They wanted somebody who knew them, knew their family, knew their kind of history, knew the kind of outside of their life, rather than just their medical condition or their dementia. And that was really striking and came through kind of very strongly from most people who were interviewed, really.And I interviewed people with dementia and carers and from both sides. That idea of being known by their primary care team did come through very strongly.And I think for me as the interviewer and for me as a practicing gp, I also really like that side.You know, knowing our patients, knowing that person, and being there for the kind of entire journey of a diagnosis to dementia all the way through to that progressing. It's a real privilege and I think it's something really precious for us as, as primary care teams, that continuity.Speaker A00:04:42.240 - 00:05:02.930There was a bit of a gap. There wasn't. There's this kind of, oh, you know, there's potential gap in that.And you mentioned this in the paper about the falling away support, that sometimes participants went to the memory clinic, then they were discharged, and then they felt a little bit like they, you know, they weren't picked up necessarily. I wondered if you could tell us a little bit more how that showed up in your interviews.Speaker B00:05:03.570 - 00:06:27.830Yeah, yeah, for sure. So I guess everybody, everyone did describe a kind of different journey.And I don't want to just generalize, but the sentiment or the feeling I got from most people was that there was concern around a possible diagnosis, a kind of flurry of activity around when the diagnosis was made, referral to memory clinic, lots of calls.Somebody described a mind boggling array of things being offered around that time of diagnosis and then after that things seeming to kind of fall away. So somebody described the specialist dropped them and they were seen by memory clinic, started on medication and then just left back to the gp.So that idea of kind of there being a flurry of activity and then things gradually dropping away and that being a paradox because actually people felt that their needs generally increased as time went on. So that was very interesting really. And I've also done.It's kind of not a published paper yet and it's still being worked up, but I've done some interviews with primary care providers as well and that seemed to kind of come through as well from them and that there is a flurry of activity around one point around diagnosis. But then as time goes on do things do seem to kind of drop off and change. So it's perhaps felt from both sides as well.Speaker A00:06:27.830 - 00:07:03.200Yeah. Let's talk a little bit about when sometimes it doesn't happen so much or people who knew the system.And there was definitely an interesting rather novel finding that came out and I guess it's something we might be aware of, but I haven't seen too many papers that have highlighted it, that if there was someone in the family who knew the system, that was often perceived as crucial and it sort of implies a system rewards social capital or maybe it's just very specific to medical systems. But I wondered if you could, you know, how worried should we be about that? What can primary care do to address it or to flatten those kind of.Those kind of flatten it out. If there is a. If it is an inequality.Speaker B00:07:04.000 - 00:08:54.200Yeah, I think a great question and I also thought this was one of the most interesting themes to come out of the paper actually.So just to kind of describe it, a lot of people described how if they had a family member or a friend who knew a little bit about the healthcare system, so if they'd worked in research or if they'd worked in social care, they would be called upon to kind of navigate this complexity of the system and it kind of came through that they would know who to contact, know how much to push, know what strings to pull to get somebody seen. And that insider knowledge, how we termed it, seemed crucial in kind of getting things done.And, and that was described in detail by one...
In this week's episode of The Best Guest podcast we welcome Dementia with Dignity Champion and author, Jo-Anne Ross.We talk about:Why Jo-Anne's personal experience caring for her mother with dementia ignited her mission to transform the landscape of careHer visionary concept for a dementia village that prioritises dignity, joy, community, and connection with nature right to the very last breathHer seven-week Me First workshop methodology, designed to equip families and caregivers with practical self-care tools so they can give from a full vesselAbout Jo-Anne RossJo-Anne Ross is a Dementia with Dignity Champion, workshop facilitator, and multi-book author based in Canada. After spending nine months as the primary caregiver for her mother, Jo-Anne developed the Me First methodology to support families and caregivers navigating the emotional and practical challenges of dementia. She is currently developing a holistic dementia village concept and is the author of several books, with three more in progress.Key TakeawaysIf someone you love is showing signs of forgetfulness or behavioural changes, ask a doctor to test for a urinary tract infection before assuming dementia, as UTIs are frequently misdiagnosedDementia is also known as Type 3 Diabetes and reducing sugar intake can play a role in brain healthCaregivers must prioritise their own wellbeing first, because you cannot pour from an empty cupEvery dementia journey is unique, so research and tools need to be adapted to the individualIntergenerational, community-centred living benefits everyone, not just those with dementiaQuoteEvery single human being on this planet deserves to live with dignity and respect, joy and fun and community and quality of life, right to the very last breath." Jo-Anne RossConnect with Jo-Anne RossWebsite: savourthemomentinserenity.caFree Gift (Seven Things You Should Know About Dementia)Connect with Victoria BennionLearn more about us: https://thebestpodcastguest.co.uk/Download our checklist: How to be an Excellent Podcast Guest https://thebestpodcastguest.co.uk/checklist/Follow us on Instagram https://www.instagram.com/thebestpodcastguestJoin the Best Podcast Guest Facebook Group https://www.facebook.com/groups/thebestpodcastguestSubscribe to our YouTube channel https://www.youtube.com/@victoriabennionConnect with Victoria on LinkedIn https://www.linkedin.com/in/victoriabennion/
What happens when society looks away from its most vulnerable?In this episode of Love Conquers Alz, hosts Susie Singer Carter and Don Priess welcome WGA, AWD, award-winning, neurodiverse, bi, writer/director, and podcaster, Ellen Ancui, who specializes in traumadies—darkly funny stories where (mostly) women dig their own graves, then complain about the landscaping. Ellen writes about caregiving, sex, and the 2nd act of a creative life. She co-hosts the pod FILTHY MILFS with Sophie Levine, about women's health, desire, and aging fearlessly. Ellen wrote, produced, and directed the Oscar-qualified short film, SAVERIO, that sheds light on a shocking and often invisible issue: elder abandonment, also known as “granny dumping.”Through a powerful blend of humor and humanity, Ellen's film tells the story of a young woman forced to confront her own values when an elderly man is abandoned in her care—an all-too-real scenario happening far more often than most people realize.This episode is both a wake-up call and a reminder of what's at stake if we continue to look away.Because aging is not someone else's story.It's all of ours.And change starts with awareness.Follow Ellen and her podcast✨ IMDB✨ Apple Podcasts✨ Spotify✨ InSend us Fan MailIf someone you love experienced neglect in a nursing home…Then you know how desperately the system needs to change. History has shown us that It takes people power to change anything worthwhile. That's why we we're launching something that's never been done before. On September 27, communities across the country are coming together for the first-ever National Long-Term Care Reform Day.This is a peaceful national walk for dignity, accountability, and change in long-term care.We'rSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information.Please watch. Review. Share.Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walkFollow us on Twitter, FB, IG, & TiK Tok
Today we're continuing our Medicine in Transition theme with a topic that is deeply personal, professionally important, and long overdue. This episode is titled "The Shift of Dementia Care: From Control to Connection." But we're not doing this one alone. We're joined by a special guest, Jennifer Stoner.Jennie is a retired professor from Aurora University in Aurora, Illinois, where she taught in recreation administration and therapeutic recreation, helping train future professionals to design meaningful, person‑centered programs for older adults and people living with disabilities. She has spent much of her career at the intersection of aging, recreational therapy, and program administration, with a special interest in how purposeful leisure and engagement can support quality of life for people living with dementia. Through her academic work and consulting, she's been part of a broader movement to move dementia care away from simply controlling behaviors and toward connection, dignity, and participation—in long‑term care, adult day programs, and community settings.
Most healthcare organizations wait until they're drowning to add administrative support. Your Health is doing the opposite — and it's changing the math on what a primary care practice can actually deliver. In Part 1 of this two-part conversation, Scott Middleton — owner of Your Health, founder, and Chief Disruption Officer — sits down with Jamie Preston to unpack why a dedicated administrator is now sitting beside the executive director of clinical services at every care group. With hospice added to the model, a single care group can now be responsible for more than 80 staff members across four care teams — bigger than most medical organizations in the country. Asking a nurse to run that alone was breaking people and burying clinical judgment under scheduling concerns. In this episode: Why the care group exploded overnight — and what hospice changed about staffing ratios What the administrator does on Monday morning before the clinical team even looks at the dashboard The Bridget story: how a "we're not allowed to do one-on-ones" response nearly cost a dementia patient her home Why "what could we have done today" is the wrong question — and what to ask instead How fee-for-service quietly incentivizes the wrong decisions at the hospital level The team structure every administrator now sits inside: nurse, HR, marketing, engagement If you've ever wondered what's actually supposed to stand between a great clinician and burnout, this is it. www.YourHealth.Org
On a recent walk in the woods, Greg overheard a small but telling exchange: a daughter snapped at her mother for misremembering who once owned a camera. It was a tiny correction — and a familiar one. In this episode, Teepa Snow and Greg Phelps unpack why our reflex to set the record straight can quietly erode the relationships that matter most.Teepa walks care partners through a more useful question than Am I right? Instead, ask yourself: Is it worth it? Worth it in five minutes? Five hours? Five years? Worth it when this conversation is the last one you'll remember?You'll learn:· Why correcting a person living with dementia often feels like an attack, even when it's well-intentioned· How to slow down and use curiosity instead of confrontation ("So you're thinking it was me that owned that type of camera?")· A practical reframe for everyday moments — wet pants, spilled soup, mistaken identities — that protects dignity and the relationship· Why it's better to be kind than to be right is a skill, not just a sayingWhether you're supporting a spouse, parent, or client, this conversation will help you trade the urge to correct someone for the power to preserve your connection.If today's conversation made you stop and think about how you show up in those moments — the corrections, the arguments — check out Improving Communications in Dementia Care. It goes well beyond today's episode with five hours of hands-on skill-building that changes not just what you say, but how you connect.Subscribe to the Dementia Care Partner Podcast on Spotify or Apple Podcasts so you never miss a new episode. Have a question or topic you'd like Teepa to explore? Email Greg at GTPhelps@shaw.ca#DementiaCare #PositiveApproachToCare #TeepaSnow #CarePartner #PAC
Send us Fan MailToday on Progress, Potential And Possibilities, we explore a different kind of breakthrough in cognitive health - not a drug, not a device, but a simple daily practice that's quietly transforming lives.Our guest is Rob Liebreich, President and CEO of Goodwin Living ( https://goodwinliving.org/ ), an organization serving thousands of older adults across the Washington, D.C. region. Rob has spent more than two decades at the forefront of senior living and aging services - leading large-scale communities, building platforms to improve how families navigate care decisions, and working to fundamentally shift the narrative around aging from one of decline to one of purpose and possibility.But this story isn't just professional - it's deeply personal.When Rob's mother began experiencing cognitive decline, he refused to accept that deterioration was inevitable. Drawing on both his industry experience and a willingness to experiment, he developed a simple daily regimen - reading aloud, handwriting, and doing math - that helped her regain engagement, confidence, and independence.What began as a personal intervention evolved into StrongerMemory ( https://strongermemory.org/ ), a free, research-backed program now used by more than 60,000 seniors nationwide. Supported by emerging research from George Mason University, StrongerMemory is challenging conventional assumptions about what's possible in cognitive aging - and who gets access to meaningful care.At a time when memory care can cost thousands of dollars per month and pharmaceutical solutions remain limited, Rob's work raises a powerful question:What if one of the most effective tools for brain health isn't something you buy - but something you do, every day?#CognitiveDecline #Alzheimers #DementiaCare #BrainHealth #Neuroplasticity #AgingWell #Longevity #MemoryCare #SeniorLiving #HealthcareInnovation #PreventativeHealth #NonPharmacological #BrainTraining #MentalFitness #Caregiving #AgingPopulation #DigitalHealth #Healthspan #PodcastClips #FutureOfHealthcare #Wellness #CognitiveHealth #BrainExercises #StrongerMemory #Neuroscience #LongevityScience #HealthyAging #PublicHealthSupport the show
By 2030, more than a million people are expected to be living with dementia in the UK. It is among the most feared conditions — and yet a new book challenges the dominant tragedy narrative surrounding it, proposing instead a vision of social justice and equality for those living with the condition. What does it mean to treat someone with dementia as a social equal? How should care be reformed to better secure that equality? And what are the practical changes — in policy and in everyday life — that could make a real difference? Joining host Emily McTernan is Dr. Matilda Carter, Lecturer in Applied Ethics at the University of Leeds, to discuss her new book published by Cambridge University Press. Mentioned in this episode: Relating to People Living with Dementia as Equals: Towards Social Justice in Dementia Care by Matilda Carter (Cambridge University Press, 2025).
This episode recorded live at the Becker's Spring 2026 Payer Issues Roundtable features Dirk Soenksen, Chief Executive Officer of Ceresti Health, discussing why dementia is a major yet underrecognized cost driver and how it reshapes population health strategy. He highlights the critical role of family caregivers, the limitations of traditional care management, and how payer-focused models can improve outcomes while reducing costs. This episode is sponsored by Ceresti Health.
In this episode of Elevate Eldercare, AgingIN CEO Susan Ryan interviews two of the top experts in dementia, Jennifer Carson, PhD, and Al Power, MD. Together, they examine some of the most entrenched and damaging practices in dementia care and what can be done to eliminate them. Drawing from clinical experience, research, and personal caregiving journeys, they unpack how the overuse of antipsychotics often mask deeper systemic failures, from under-resourced environments to inadequate training. Dr. Carson highlights the serious risks, including increased mortality, while Der. Power calls for a fundamental reframing of dementia away from "managing behaviors" and toward supporting well-being, inclusion, and human rights. Together, they advocate for relationship-centered care, stronger enforcement of existing protections, and practical tools to help organizations assess and create conditions for optimal living. Their conversation also previews their forthcoming book on dementia inclusion, aimed at offering actionable pathways for real system change, including a call for non-segregated and unlocked dementia care communities. This episode is both a critique of the status quo and a hopeful call to redesign dementia care around dignity, equity, and true support. Find more about Dr. Power's work here: http://www.alpower.net/geriatrician/Dr.%20Al%20Power_intro.html Find out more about Dr. Caron's work here: https://deerprogram.org
This episode recorded live at the Becker's Spring 2026 Payer Issues Roundtable features Dirk Soenksen, Chief Executive Officer of Ceresti Health, discussing why dementia is a major yet underrecognized cost driver and how it reshapes population health strategy. He highlights the critical role of family caregivers, the limitations of traditional care management, and how payer-focused models can improve outcomes while reducing costs.This episode is sponsored by Ceresti Health.
Planning for ageing, dementia, and independence. A practical, honest conversation about caring for parents, early warning signs, and preparing for later life.Connect with Vicki on YouTube: https://www.youtube.com/@AgingOnYourTerms This is a public episode. If you would like to discuss this with other subscribers or get access to bonus episodes, visit joblackwellmidlifeandbeyond.substack.com
In this episode of Love Conquers Alz, hosts Susie Singer Carter and Don Priess welcome Kathy Bradley, a nationally respected advocate with over 3 decades of experience in long-term care and the founder of Our Mother's Voice.After retiring from a career as a nursing home administrator, Kathy faced the system again as a daughter when her own mother rapidly declined into severe dementia. What she experienced changed everything.Despite knowing the system inside and out, Kathy struggled to get her mother the care she needed. That journey led her to create Our Mother's Voice, a nonprofit that provides free services and is dedicated to helping families understand their rights, advocate effectively, and navigate one of the most complex and overwhelming systems many will ever face.In this powerful conversation, you'll hear:• Why so many families feel powerless in long-term care• What to do when something “feels off” with your loved one's care• The importance of documentation and speaking the right language• How systemic issues and financial incentives impact quality of care• Practical ways to advocate without burning bridges or risking retaliation• And why love, empathy, and human connection still matter mostThis episode is both a wake-up call and a guide.Because every family will face this moment.And no one should have to face it alone.If you like what you saw and heard today, please follow, share, tell everyone about it, and also definitely go to www.roar4ltc.org. Sign up and be a ROARior! Join our movement. And if you haven't seen No Country for Old People, do yourself a favor, do your family a favor, sit down, watch three episodes of it on Amazon, Tubi, or Hoopla.Send us Fan MailSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information.Please watch. Review. Share.Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in the inaugural National National Long-Term Care Day, Sunday, September 27th The 1st ever ROAR 2026 National Walk for Long-Term Care Reform! Found out more here: https://www.roar4ltc.org/roar-2026-walkFollow us on Twitter, FB, IG, & TiK Tok
Can art bridge the gap when memory begins to fade? Today on BH Sales Wellness Wisdom, we are joined by the inspiring Marilyn Raichle (pronounced RAY-shul). Marilyn is a Harvard-educated advocate, the Executive Director of Maude's Awards, and the author of the moving book, Don't Walk Away.After her mother, Jean, received an Alzheimer's diagnosis in her 80s, something miraculous happened: she started to paint. These weren't just hobbyist sketches; they were vibrant, witty, and sophisticated windows into a mind that was very much still "at work."In this episode, we use the KAVE-COGS framework to explore:The "Care Partner" Shift: Why moving away from the word "caregiver" changes the emotional frequency of your home.Creative Resilience: How visual art and sensory anchors (Auditory, Gustatory, and Kinesthetic) can bypass cognitive decline.Maude's Awards: A look at the most innovative "Gold Standard" practices in dementia care today.Marilyn challenges the "empty shell" myth and shows us how to stay present, sovereign, and connected through the power of the creative spirit.
Dementia changes everything—but navigating it doesn’t have to start in crisis. Jackie Campbell sits down with Debbie Selsavage, co-founder of Coping with Dementia, to talk about real-world challenges families face when cognitive decline enters the picture. From caregiver burnout and role reversals to preserving dignity and finding local resources, this conversation explores what families often don’t know until they’re already overwhelmed. Debbie shares personal experience, practical insights, and why education, planning, and support matter long before an emergency arises. For more information or to schedule a consultation call 352-251-1015 or visit www.mycampbellandco.com! Follow us on social media: Facebook | YouTube | X | InstagramSee omnystudio.com/listener for privacy information.
Pippa speaks to registered nurse Shirley Frost about the practicalities of caring for a loved one who is suffering from dementia. Lunch with Pippa Hudson is CapeTalk’s mid-afternoon show. This 2-hour respite from hard news encourages the audience to take the time to explore, taste, read, and reflect. The show - presented by former journalist, baker and water sports enthusiast Pippa Hudson - is unashamedly lifestyle driven. Popular features include a daily profile interview #OnTheCouch at 1:10 pm. Consumer issues are in the spotlight every Wednesday while the team also unpacks all things related to health, wealth & the environment. Thank you for listening to a podcast from Lunch with Pippa Hudson Listen live on Primedia+ weekdays between 13:00 and 15:00 (SA Time) to Lunch with Pippa Hudson broadcast on CapeTalk https://buff.ly/NnFM3Nk For more from the show, go to https://buff.ly/MdSlWEs or find all the catch-up podcasts here https://buff.ly/fDJWe69 Subscribe to the CapeTalk Daily and Weekly Newsletters https://buff.ly/sbvVZD5 Follow us on social media: CapeTalk on Facebook: https://www.facebook.com/CapeTalk CapeTalk on TikTok: https://www.tiktok.com/@capetalk CapeTalk on Instagram: https://www.instagram.com/ CapeTalk on X: https://x.com/CapeTalk CapeTalk on YouTube: https://www.youtube.com/@CapeTalk567 See omnystudio.com/listener for privacy information.
In this episode, Trudy is joined by writer, editor and director Helen Metella to continue the conversation about caring for a loved one with dementia, offering practical insights for caregivers. The conversation covers the nitty gritty details — like paperwork — and creating moments of laughter and delight. Read our blog at CroneCast.caShare your questions and comments at cronecast.ca/contact. We want to hear from you about all things crone.(00:34) - Continuing the caregiving conversation (08:59) - What if survival isn't the goal? (16:28) - Time to declutter (26:31) - Building moments for joy and connection (36:17) - Look after your caregivers, too --Credits-- Hosted by Trudy Callaghan and Lisa Austin Produced by Odvod MediaAudio Engineering by Steve GlenOriginal music by Darrin Hagen
Alzheimer's disease affects a significant number of Americans over 65—more than 7 million—and is the sixth leading cause of death in that age group. It's expected that more than 13 million people will be diagnosed by 2060. Beyond Alzheimer's, roughly 10% of U.S. adults over 65 have dementia. On this podcast we talked with Dr. Ronald Petersen, a neurologist at the Mayo Clinic and an expert in Alzheimer's disease and other cognitive disorders, and Jennifer Rosen, vice president for state affairs at the Alzheimer's Association. Joining the podcast to offer the legislative perspective were Senator Laura Murphy of Illinois, a Democrat, and Senator T.J. Shope of Arizona, a Republican. Dr Petersen explained the remarkable progress that has been made in recent years in the diagnosis and treatment of Alzheimer's and the importance of early intervention. Rosen outlined the enormous financial impact of the disease on society, and the role state legislatures can play in supporting early detection and treatment. Senators Shope and Murphy each laid out the legislation enacted in their states and how that legislation will aid both people with the disease and their families. Resources Alzheimer's Disease Treatment Clinic, Mayo Clinic Alzheimer's Association Comprehensive Policy Approaches to Support the Aging Population, NCSL State Policy Approaches to Improving Alzheimer's and Dementia Care, NCSL State Strategies to Reduce Costs and Provide Quality Care for Older Adults and People with Disabilities, NCSL
March 26, 2026- Empire State Association of Assisted Living Executive Director Lisa Newcomb makes the case for increased state funding to help cover the cost of specialized care for New Yorkers with Alzheimer's.
People with dementia and their families see many different doctors and health care providers following a diagnosis. Some may be surprised to know that social workers play a role in dementia care as well. Jeni Synnes, a social worker at UW Health, joins the podcast to explain her role in a memory clinic, the support social workers provide for families and care partners, and what people should know before and after a memory assessment. Guest: Jeni Synnes, MSSW, LCSW, social worker, UW Health Show Notes Are you a clinician interested in receiving continuing education (CE) credits for listening to this episode? Find credit designation information, disclosures and evaluation information on our website and on the UW–Madison Interprofessional Continuing Education Partnership (ICEP) website. The accreditation for this course expires 3/23/2027. After this date, you will no longer be able to access the course or claim credit. Learn more about the Aging and Disability Resource Centers on the Wisconsin Department of Health Services website. Connect with us Find transcripts and more at our website. Email Dementia Matters: dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter. Subscribe to the Wisconsin Alzheimer's Disease Research Center's e-newsletter. Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer's. All donations go toward outreach and production. Learn about and pre-order Dr. Chin's book, When Memory Fades: What to Expect at Every Stage, from Early Signs to Full Support for Alzheimer's and Dementia, out June 2, 2026.
Working with people with dementia and their care partners can be complicated and confusing. What does the evidence say is the best approach? Is it rehabilitative or habilitative?? In this episode, hosts Erin Gallardo, PT, DPT, NCS and Claire McLean, PT, DPT, NCS interview occupational therapist and Dementia Collaborative founder Rachel Wiley, MS, OTR/L about her approach to working with people with dementia and their care partners. Rachel shares how past experiences with conflicting recommendations between professionals—and the confusion and mistrust this caused for families—motivated her to create a more advanced, evidence-based program that gets teams using the same language and approaches, especially around topics like rehabilitation vs. habilitation, assistive devices, responsive behaviors, and fall risk. She explains her practical, detective-style framework for understanding and managing responsive behaviors (like waking at night or agitation) by identifying triggers and using strategies such as acknowledge–reassure–redirect and meaningful routines. The episode also touches on the complexities of billing, maintenance care, and determining medical necessity in a progressive condition, emphasizing person-centered, ethical care that balances evidence, function, safety, and the realities of caregiving. Rachel recently launched the beta cohort of her new Certified Dementia Clinician (CDCn) Course, a 20-module, interdisciplinary training designed for OTs, PTs, SLPs, social workers, and other clinicians working with people living with dementia. www.dementiacollaborative.com www.daybydaydementiaconsulting.com www.rachelwileyot.com https://www.linkedin.com/in/rachel-wiley-ms-otrl-cdp-80521079/
Robotic pets make life easier for patients with dementia; Risks, benefits of “natural” ED formulas; Sorting out those pricey new injectable osteoporosis drugs; Daily multivitamin delays biological aging; Study challenges notion that aging means inevitable decline; Breastfeeding confers weight loss benefits—to moms; Can you avoid a colonoscopy with a new colon cancer blood test? Color blindness may hide warning signs of cancer.
The long-term care system is one of the most important issues families will face, yet few people understand it until they are in the middle of a crisis.In this episode of Love Conquers Alz, hosts Susie Singer Carter and Don Priess welcome Lindsay Friedman, a care advocate, writer, and educator dedicated to transforming how families navigate aging, caregiving, and long-term care. Lindsay is a four-time healthcare startup founder on a mission to solve real-world problems in caregiving and long-term care. (Our kind of girl!!)Lindsay's perspective is uniquely powerful. She has experienced the system from every side: as a nursing assistant working in memory care and nursing homes, as a family caregiver, and even as a care recipient herself.She shares how these experiences inspired the creation of two groundbreaking platforms:• CareBloom – a technology designed to help families monitor caregiving tasks and ensure accountability in care environments• LTC Nav – a free planning resource helping families understand the financial and logistical realities of long-term care before crisis strikesTogether, Susie, Don, and Lindsay dive into the real challenges families face, including:• The lack of accountability in many care facilities• Why planning for long-term care earlier is essential• The emotional realities of caregiving and aging• How technology could improve oversight and protect vulnerable patients• The importance of empathy and dignity in caregivingThis conversation is honest, emotional, and deeply informative. It reminds us that while the system may be broken, awareness, planning, and compassion can make a powerful difference.Because at the end of the day, the heart of caregiving is simple:Love.LTC Nav on Facebook, Instagram, YouTube EMAIL: hello@LTCareNav.comCarebloom on Facebook, Instagram, Send us Fan MailSupport the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information.Please watch. Review. Share.Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information and consider participating in ROAR 2026 -National Grandparents Day The 1st ever National Walk for Long-Term Care Reform! Found out more here:https://www.roar4ltc.org/roar-2026-walkFollow us on Twitter, FB, IG, & TiK Tok
Caring for a loved one living with dementia can be profoundly taxing. Gerontologist and dementia consultant Daniela Russo applies eight rules from an ancient text on warfare to lighten this load. Learn how to identify the real “enemy,” interpret challenging behaviour, and avoid unnecessary battles. Discover ways to encourage autonomy while offering support. Moments of safety and connection spell true victory. This episode's podcast notes and photograph · www.mariettesnyman.co.za · www.facebook.com · www.instagram.com · www.linkedin.com
On this episode Fred and Gregg welcome Xiaopeng Zhao, PhD, Professor and Chair of Mechanical Engineering at the University of Mississippi, whose research bridges artificial intelligence, robotics, and dementia care. Topics: Dr. Zhao discusses how machine learning techniques are being used to analyze complex EEG brainwave data to detect early-stage Alzheimer's disease, patterns invisible to the human eye but accessible through advanced signal processing. Beyond diagnostics, his lab is deploying humanoid robotic systems to assist individuals with dementia during everyday activities such as making coffee or brushing teeth, aiming to reduce caregiver burden and improve quality of life. The conversation explores “lost moments”, short-term lapses in memory that disrupt daily functioning, and how AI systems might identify and respond to them in real time. Dr. Zhao also addresses usability challenges, patient acceptance, and the importance of human-centered design in deploying assistive technologies. With dementia affecting millions worldwide, this episode examines both the promise and practical realities of integrating AI and robotics into population health strategies. To stream our Station live 24/7 visit www.HealthcareNOWRadio.com or ask your Smart Device to “….Play Healthcare NOW Radio”. Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen
For many of us, the scariest part of dementia isn't the diagnosis itself—it's the fear of losing our purpose, value, and roles. In this episode, Teepa Snow and Greg Phelps explore how to protect dignity while abilities shift by using substitution instead of subtraction. When a role needs to change, Teepa shares practical ways to offer a new job first—so the person isn't left feeling sidelined. You'll also hear why waiting for a crisis makes everything harder, and how the PIPES approach can help you plan role changes with more calm, clarity, and partnership.Feeling the shift in roles at home? Start with the Family Care Partner Starter Kit to build shared language, reduce friction, and keep your person involved in meaningful ways—one step at a time.This episode is educational and not medical advice.This podcast is distributed on third-party platforms (including Spotify and Apple Podcasts) to make listening more accessible and convenient for our community. Our presence on any platform does not indicate endorsement of that platform, its owners, its policies, moderation decisions, advertising practices, or any other content hosted or shared there. The views and opinions expressed in this episode are those of the speakers and do not necessarily reflect the views of Positive Approach to Care® (PAC™).
The most misunderstood symptoms of Alzheimer's and dementia are behavioral changes such as agitation, aggression, and social withdrawal. Author Lisa Skinner, in her book Truth, Lies & Alzheimer's: Its Secret Faces, identifies these as the "secret faces" of the disease—non-verbal communication used when a patient can no longer express physical pain or fear through words. Families often mistake these for personality flaws rather than neurological symptoms. While standard medical advice often focuses on "reality orientation"—constantly correcting a patient's confusion—Skinner advocates for an unconventional path that prioritizes emotional peace of mind over factual accuracy. This approach meets the patient in their own reality to reduce dementia-related distress, shifting the focus from clinical management to emotional validation. The "Truth vs. Lie" dynamic is a cornerstone of this compassionate care model. Skinner argues that "therapeutic fibbing" is often the kinder choice. Forcing a patient to face a painful truth, such as the death of a spouse decades ago, causes them to relive traumatic grief repeatedly. Entering their world to provide comfort is a more humane alternative than a truth that causes unnecessary psychological harm. In the realm of regenerative medicine, as highlighted in Skinner's work with Dr. Anand Srivastava, the narrative of brain diagnoses is shifting from inevitable decline toward potential cellular repair. Advances in stem cell research and cellular rejuvenation offer a future where "devastating" diagnoses are viewed through the lens of biological mitigation and neuro-regeneration rather than just symptom management. For caregivers navigating the "relentless pace" of the caregiver's gauntlet, the most immediate mental health shift is to Release the Guilt. Recognizing that "you cannot pour from an empty cup" is essential. Skinner emphasizes that accepting personal limitations and acknowledging that "good enough" care is more sustainable than perfectionist burnout is the first step toward reclaiming mental well-being. Web: https://www.mindingdementiasum... - Looking for that extra spark to level up your life? Say hello to Ash Brown—your go-to American powerhouse, motivational speaker, and the ultimate hype-woman for your personal and professional growth. Ash isn't just a voice in personal development; she's a trusted friend who brings real-talk wisdom and contagious energy to every conversation. Whether you're stuck in a rut or ready to scale your dreams, Ash is here to fuel your journey with a mix of heart and hustle.
Can Speech Therapy Help at Any Age?In this episode of Chatting with Betsy, host Betsy Wurzel welcomes Ebony Turner-Bailey, M.S., CCC-SLP, licensed speech-language pathologist and Founder of Prime Speech Solutions. Together they discuss early signs of speech and language delays in children, communication challenges related to Autism, and the importance of eye contact and social group therapy.Ebony also explains how speech therapy supports adults, including those living with Parkinson's Disease or Dementia, and how voice therapy can improve communication and quality of life at every age.Thank you for listening to Chatting with Betsy. Follow our channel for more meaningful conversations and share this episode with someone who may benefit from learning more about speech therapy and communication support.Become a supporter of this podcast: https://www.spreaker.com/podcast/chatting-with-betsy--4211847/support.
In honor of National Alzheimer and Dementia Care Educators Week (Feb 14–21), Teepa Snow and Greg Phelps take on a specific headline that reads: You can be a dementia therapy practitioner by next week. They unpack why quick certification promises can miss what matters most—building real, person-centered skills that help you respond to brain change in the moment, with confidence and respect.Ready to move beyond quick-fix dementia training? Join the Positive Approach to Care® Dementia Trainer Certification (live online) to build practical, person-centered skills you can use—and teach. Next live online dates: Feb 17–18, 2026This podcast is distributed on third-party platforms (including Spotify and Apple Podcasts) to make listening more accessible and convenient for our community. Our presence on any platform does not indicate endorsement of that platform, its owners, its policies, moderation decisions, advertising practices, or any other content hosted or shared there. The views and opinions expressed in this episode are those of the speakers and do not necessarily reflect the views of Positive Approach to Care® (PAC™).
What if shopping for medical equipment felt empowering instead of depressing? Caregiving is hard enough. Getting the right equipment should not be. In this episode, Hosts Susie Singer Carter and Don Priess talk with Erica Sell, founder of Harmony Home Medical in San Diego, about how the right equipment can help families keep loved ones at home longer, safer, and with more independence.Erica breaks down what Medicare typically covers (and what it does not), how reimbursement can work, and why the system often forces families to wait until a crisis. They also explore practical home solutions like high-low adjustable beds that still feel like home, safer bathing options, lift chairs, mobility devices, ramps, and monitoring tools that protect privacy.Plus, a moving story about how one piece of equipment gave a man his community back.Support the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT (Respect, Oversight, Advocacy, Reform) for quality long term care! Visit the ROAR 4 LTC Website for more information.Follow us on Twitter, FB, IG, & TiK Tok
How Dementia Education Changes the Caregiving ExperienceIn this deeply personal and informative episode of Chatting with Betsy, host Betsy Wurzel interviews dementia care expert Pat Hobson about why Alzheimer's Dementia Caregiver Education matters when families are overwhelmed and resources feel hard to find.They discuss how understanding a diagnosis can help caregivers advocate for their loved one and themselves, and how education prepares families for challenges such as hallucinations, agitation, and sundowning. Betsy also shares how the lack of guidance during her mother-in-law's hallucinations left her unsure what to do—and how education later made a profound difference when her husband Matt experienced hallucinations.Pat introduces her book, Enabling People With Dementia, and explains person-centred care: focusing on strengths, listening deeply, and creating meaningful activities while understanding progression.The episode also addresses caregiver burnout, self-care, and the kinds of practical support available to reduce stress at home and in care settings. For more information and resources: https://www.pmhcande.com/ If you have any questions or comments on this Podcast - Please Email us at: pwrnetworkllc@gmail.com - Thank you - Jeanne White- Station Manager Become a supporter of this podcast: https://www.spreaker.com/podcast/chatting-with-betsy--4211847/support.
One of the most precious resources in dementia care are the stories we share. Today, we welcome back two deeply respected members of the Love Conquers Alz family for a conversation rooted in care, credibility, and shared purpose that has led to a major milestone:Marianne Sciucco, registered nurse, author, and founding member of AlzAuthors, a groundbreaking global, rigorously vetted hub for Alzheimer's and dementia books, blogs, films, and podcasts, is passing the baton to senior care professional, writer Lance A. Slatton, host of the award-winning All Home Care Matters podcast and YouTube channel. , For over a decade, Marianne and the AlzAuthors team have thoughtfully spotlighted the most meaningful and reliable literature available for the Alzheimer's and dementia community. At a time when families are often overwhelmed by information, their careful curation created a trusted guidepost grounded in lived experience and compassion.Lance brings more than two decades of experience in senior care and continues to be a consistent, dependable voice, not only as a podcast host, but through his work as a Senior Case Manager with Enriched Life Home Care Services.What connects Marianne and Lance is presence. Both have remained steady voices in an ever-changing landscape, offering stringently curated, reliable resources to caregivers and families when clarity matters most.Join us as we celebrate a community that refuses to let its most valuable assets—truth, art, and love—fade into the noise. Subscribe, share with a caregiver who needs a lifeline, and tell us what resource you want to see next. Your voice shapes where this library goes from here.Support the showNo Country For Old People; a Nursing Home Exposé is STREAMING NOW on Amazon Prime (https://www.amazon.com/gp/video/detail/B0F7D1RR5X/ref=atv_dp_share_cu_r) Visit the No Country For Old People Website for more information. Please watch. Review. Share. Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the ROAR 4 Long Term CareWebsite for more information.Follow us on Twitter, FB, IG, & TiK Tok
We welcome Dr. David Hart of the Stratton VA Medical Center. A board certified neurologist, Dr. Hart sees general neurology and memory patients, with a focus on Alzheimer's and other dementias. Ray Graf hosts.
As 2025 comes to a close, dementia care expert Teepa Snow reflects on progress made—and shares what gives her hope for the year ahead: stronger foundations, global connection, and care that truly delivers what it promises. This forward-looking conversation invites care partners, professionals, and organizations to rethink awareness, skill-building, and what it really means to create communities that work well for everyone. If we're going to build dementia care that truly delivers on its promises, we need a shared understanding of how brain change unfolds — and how support must shift along the way. Progression of Dementia: Seeing GEMS® — Not Just Loss offers a hopeful, practical framework for recognizing abilities, adjusting expectations, and responding with intention at every stage. This DVD supports the future-focused conversation in this episode by helping care partners, professionals, and communities build stronger foundations rooted in skill, awareness, and respect.
Caring for elderly parents with dementia presents unique challenges for family caregivers, especially as memory loss progresses and decision-making becomes more complex. In this episode, caregiving expert Pamela D. Wilson shares vital caregiver tips and support strategies to help you navigate difficult choices when your aging loved ones can no longer fully understand or evaluate the consequences of decisions.Learn how to balance compassion in caregiving with the need for safety, including when to intervene in situations such as driving or living arrangements when caring for adult parents. Explore real dementia caregiver experiences and gain practical caregiver advice for managing caregiving challenges as memory loss advances with empathy and confidence.Pamela's extensive background as a home care agency owner, care manager, guardian, medical power of attorney, and expert witness provides valuable insights into eldercare solutions and offers proven and practical family caregiving support.Whether you are a new family caregiver of a person with dementia or seeking guidance on challenging family dynamics that can occur during dementia care, this episode offers eldercare solutions and actionable tips to support your caregiving journey. You'll find solutions to complex dementia caregiving challenges on this episode of The Caring Generation to share with your family members.Find podcast show transcripts and links mentioned in Episode 234 https://pameladwilson.com/caregiver-radio-programs-the-caring-generation/ For more caregiving, aging, and elder care tips for your caregiving journey, visit Pamela's website at https://www.PamelaDWilson.comLearn about Pamela D Wilson, her professional background, and her experience: https://pameladwilson.com/pamela-d-wilson-story/Schedule a 1:1 elder care consultation by telephone or video call with Pamela: https://pameladwilson.com/elder-care-consultant-aging-parent-consultation-managing-senior-care-needs-meet-with-pamela-d-wilson/Sign up for Pamela's newsletter here: https://pameladwilson.com/contact/Join Pamela's Online Caregiver Support Group on Facebook https://www.facebook.com/groups/thecaregivingtrap Follow Pamela on Social Media:Facebook: https://www.facebook.com/pameladwilsoncaregivingexpert/LinkedIn: https://www.linkedin.com/in/pameladwilsoncaregiverexpert/ X: https://www.x.com/CaregivingSpeakPamela D Wilson | Caregiver, Elderly Care & Caregiving Expert provides caregiver tips, support for caregivers, and resources for aging and elder care. Caregiving and aging for parents doesn't have to be challenging with expert caregiver advice, solutions, and strategies based on Pamela's 25 years of experience in care management, dementia care, and as an expert witness. Visit Pamela's website www.PamelaDWilson.com to access online caregiver programs, advice and tips to support caregivers and aging adults.©2018, 2025 Pamela D Wilson. All Rights Reserved
StartUp Health community member Aarabi Balasubramanian, CEO & Founder of EmTech Care Labs, joins StartUp Health co-founder Unity Stoakes to share the deeply personal story that inspired Care-Wallet™, her virtual care management platform for families navigating Alzheimer's disease and related dementias. In this conversation, Aarabi discusses: How her mother's long diagnostic journey revealed the realities of caregiving across countries and health systems Why families face so much fragmentation when managing dementia care at home How Care-Wallet blends AI support with human care managers to guide families step by step What she is learning as a solo founder building in a complex healthcare ecosystem How the StartUp Health community gives her support, shared experience, and a network of fellow founders pushing forward similar missions This is a must listen for anyone building in aging, caregiving, or brain health – or for anyone supporting a loved one through a complex care journey. Are you ready to tell YOUR story? Members of our Health Moonshot Communities are leading startups with breakthrough technology-driven solutions for the world's biggest health challenges. Exposure in StartUp Health Media to our global audience of investors and partners – including our podcast, newsletters, magazine, and YouTube channel – is a benefit of our Health Moonshot PRO Membership. To schedule a call and see if you qualify to join and increase brand awareness through our multi-media storytelling efforts, submit our three-minute application. If you're mission-driven, collaborative, and ready to contribute as much as you gain, you might be the perfect fit. » Learn more and apply today. Want more content like this? Sign up for StartUp Health Insider™ to get funding insights, news, and special updates delivered to your inbox.
How we talk to older adults matters more than we think. In this episode of Plugged into Public Health, host Lauren Lavin talks with Dr. Claire Shaw, assistant professor at the University of Iowa College of Nursing, about her research on dementia care and the communication patterns that shape it. Dr. Shaw explains what elderspeak is, why it often appears in caregiving settings, and how even well-meaning speech can unintentionally trigger stress, confusion, or care refusal in people living with dementia. Drawing from her work in nursing homes and hospitals, Dr. Shaw breaks down how communication can influence patient behavior, why certain caregiving habits persist, and how small changes in tone, wording, and approach can lead to better outcomes. She also shares practical tools for both healthcare professionals and families who want to communicate more respectfully and effectively with loved ones experiencing cognitive decline. This conversation offers a thoughtful look at the intersection of language, dignity, and care, and it highlights how awareness and intention can meaningfully improve the experiences of older adults and their caregivers. A transcript of this episode will be available soon. Have a question for our podcast crew or an idea for an episode? You can email them at CPH-GradAmbassador@uiowa.edu You can also support Plugged in to Public Health by sharing this episode and others with your friends, colleagues, and social networks. #publichealth #elderspeak #dementia #dementiacare #cognitivedecline #nursing #caregiver #communication #aging #olderadults #patientcare
The topic of discussion is Dementia Care. See omnystudio.com/listener for privacy information.
Unlocking Money for Dementia Care - A Reverse Mortgage Guide Is funding long-term care for a loved one with dementia weighing heavily on your mind? Many families struggle with the financial demands of aging in place, home renovations, and specialized dementia care. This episode of Fading Memories offers vital insights. Discover how a reverse mortgage can be a powerful financial tool, providing needed money for lots of aging challenges.. We demystify this often-misunderstood option, explaining its unique features. Learn how it differs from traditional mortgages. Find out if your property qualifies. More importantly, understand how it can provide much-needed money to support your loved one's needs. We also discuss how to prepare for this option in advance. Furthermore, we address common concerns about debt and equity. This conversation will illuminate how accessing home equity can transform financial security. You'll gain peace of mind knowing you have more money to ensure quality care. Tune in to unlock new possibilities for managing care costs and preserving your family's future money. Our Guest: Kevin Guttman Joining us is Kevin A. Guttman, a renowned Reverse Mortgage Specialist and best-selling author. Kevin believes senior homeowners deserve to enjoy their golden years, and he's dedicated to showing you how by illuminating the choices available for financing your home. You might even be surprised to learn about his past work with the Denver Broncos! +++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Related Episodes: Long-term Care Insurance Explained Long-term Care - Low Cost Options Home Dementia Care Alarm: Crisis in Long-term Care ++++++++++++++++++++++++++++++++++++++++ Sign Up for more Advice & Wisdom - email newsletter. ++++++++++++++++++++++++++++++++++++++++ Please help us keep our show going by supporting our sponsors. Thank you. ++++++++++++++++++++++++++++++++++++++++ Make Your Brain Span Match Your LifeSpan Relevate from NeuroReserve With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. ++++++++++++++++++++++++++++++++++++++++ Feeling overwhelmed? HelpTexts can be your pocket therapist. Going through a tough time? HelpTexts offers confidential support delivered straight to your phone via text message. Whether you're dealing with grief, caregiving stress, or just need a mental health boost, their expert-guided texts provide personalized tips and advice. Sign up for a year of support and get: Daily or twice-weekly texts tailored to your situation Actionable strategies to cope and move forward Support for those who care about you (optional) HelpTexts makes getting help easy and convenient. ++++++++++++++++++++++++++++++++++++++++ List of the Top 20 Alzheimer's Podcasts via FeedSpot! See where we rank. Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram LinkedIn Facebook Contact Jen at hello@fadingmemoriespodcast.com Or learn more at Our Website
Does hearing loss cause dementia? Teepa explores what headlines often miss and why simple answers rarely illustrate the full picture of complex brain change. You'll learn practical first questions—is it hearing, comprehension, or both?—as well as techniques that help keep people engaged. The takeaways: be skeptical of one-liners, stay curious, and choose practical strategies that help improve day-to-day interactions.Improving Communications in Dementia Care offers deeper insight into how hearing and comprehension challenges can look alike—and what to do about it. Learn practical strategies for sensitive conversations and keeping connections strong, even when communication changes.
Send us a textIn this episode Scott Tarde talks about how a lab breakthrough became a lifeline for families, and why immersive reminiscence, caregiver coaching, and data-driven collaboration can change dementia care. Tarde, is the CEO of the George G. Glenner Alzheimer's Family Centers, emphasizes the significance of collaboration over competition in business, particularly in the healthcare sector. He advocates for organizations to support one another and engage in meaningful discussions to foster community and transformation within healthcare. Tarde believes that there is ample opportunity for synergy among organizations, and that intentional conversations are crucial to prevent individuals from being left behind in the evolving landscape of healthcare. He also covers the incredible innovative model that the Glenner Alzheimer's Family Centers has implemented for dementia care and is now franchising nationwide as Town Square. Join us, it is a great listen.Be sure to subscribe to both of our podcast, Anatomy of Leadership and TCNtalks.If you're interested, you can check out the book, The Anatomy Of Leadership, it's on AmazonSome Highlights• Origins of Glenner Centers and caregiver-first mission• Town Square immersive reminiscence model and design• Virtual Glenner Care to upskill family caregivers• Reducing ER visits and hospitalizations with coaching• Franchising strategy with local adaptation and standards• Data, EHR, and AI for trend spotting and prevention• Leadership practices: expectations, accountability, consistencyGuest: Scott Tarde, CEO of the George G. Glenner Alzheimer's Family CentersHost: Chris Comeaux, President / CEO of TeleiosThe Anatomy of Leadership podcast explores the art and science of leadership through candid, insightful conversations with thought leaders, innovators, and change-makers from a variety of industries. Hosted by Chris Comeaux, each episode dives into the mindsets, habits, and strategies that empower leaders to thrive in complex, fast-changing environments. With topics ranging from organizational culture and emotional intelligence to navigating disruption and inspiring teams, the show blends real-world stories with practical takeaways. The goal is simple yet ambitious: to equip leaders at every level with the tools, perspectives, and inspiration they need to lead with vision, empathy, and impact. https://www.teleioscn.org/anatomy-of-leadership
#660: Caring for an aging parent can morph into a second full-time job, and even the most financially savvy adults get blindsided. Bank accounts freeze, home sales stall, and family savings disappear faster than anyone expects. In this episode, we dig into what really happens when you take over a parent's financial life, from the first power of attorney to the final tax return. We explore the emotional and logistical realities of dementia care, Medicaid, trusts, probate, and why a single smartphone setting can determine whether you can access the information you need. Veteran financial journalist and certified financial planner Beth Pinsker joins us to share the hard lessons she learned while managing her parents' money, housing, and estate. She opens up about the “you don't know what you don't know” moments that hit even experts. We look at why almost every caregiver reaches a breaking point, the two documents that can save a year of stress and tens of thousands of dollars, how a forgotten zero-balance home equity line nearly torpedoed a real estate deal, and why phone access now belongs at the center of estate planning. We also confront the brutal math of long-term dementia care, the real differences between Medicare and Medicaid, how to evaluate facilities beyond brochures, and what happens when a parent dies without updated paperwork. Through it all, we focus on how clear conversations about wishes and values can reduce guilt and burnout for the people left steering the ship. Key Takeaways Financial caregiving comes for almost everyone eventually, and even experts hit roadblocks, so the goal is not perfection but reducing avoidable chaos. Power of attorney and healthcare proxy documents are foundational, often more urgent than a will, and they need to be current, state-appropriate, and shared with the people who may need to use them. A locked smartphone without a legacy contact can become a financial brick, cutting caregivers off from essential clues about accounts, subscriptions, and bills. Long-term dementia care can run five to six figures per year, outlasting even solid nest eggs, so families need to confront the realities of Medicaid and state-specific safety nets before the money runs out. How assets are titled, from bank accounts to real estate, determines whether heirs inherit smoothly through a trust or spend years and thousands of dollars navigating probate. The most important “plan” is knowing a loved one's wishes for quality of life and end-of-life care, so financial and medical decisions feel like honoring them instead of guessing in the dark. Key moments (0:00) Why financial caregiving blindsides even the experts (05:18) The hidden home equity line that almost killed a real estate deal (10:54) Two documents every adult in your life should have (14:29) The critical phone setting that protects access to accounts and memories (21:23) What Prince's estate taught us about wills and inertia (31:39) Planning for a decade of dementia care without going broke (35:16) How Medicaid really works and why “running out of money” is a process (38:46) The menu of care options from in-home help to CCRCs and nursing homes (44:31) The “smell test” for evaluating facilities in the real world (51:06) What to do in the first weeks after a parent dies (54:38) Trusts, titles, probate, and how one frozen account cost $5,000 to unlock (01:01:04) Knowing their wishes so money decisions feel like honoring, not guessing Resources and Links Beth Pinsker's website: bethpinsker.com Beth's retirement and financial planning columns at MarketWatch Beth's book, My Mother's Money, on financial caregiving and planning for aging parents and loved ones Learn more about your ad choices. Visit podcastchoices.com/adchoices
This episode is chock-full of important information about a topic that affects so many. What is dementia? What symptoms might it include? Why does it matter to test for dementia? What is a “dementia advance directive”? What are the needs of caregivers? How can support groups help? Jessica Empeño is the National Director of Clinical Engagement & Education for the nonprofit organization called Compassion and Choices. If you aren't familiar with this key organization, search them up today. Their indispensable and free downloadable workbook on this subject is called the “Dementia Values and Priorities Tool.” Books we mention include: The 36 Hour Day; Care Boss; and The Best Friends Approach to Dementia Care.For more information on Best Life Best Death please visit our website at www.bestlifebestdeath.com.Follow us on our social channels to receive pertinent and helpful resources on death, grieving, and more at:Facebook: www.facebook.com/bestlifebestdeathInstagram: www.instagram.com/bestlifebestdeath
The Caregiver's Journal hosted by Lance A. Slatton with Cindy (PT) & Christina (ST) Hardin-Weiss. The Caregiver's Journal is the show where we are sharing the caregiving experiences, stories, and wisdom of family caregivers. Chapter 16 - "Family Caregiver": About Madeline Bastida: My name is Madeline Bastida, but most people call me Maddy. I'm a proud Puerto Rican from New York City, now living in Washington State. I'm a daughter, advocate, and creative soul navigating life while caring for my dad, Fernando, who is living with Alzheimer's. Our journey began when my dad started showing early signs of memory loss, when he lived in Puerto Rico, and everything changed. I felt overwhelmed and alone, unsure of where to turn. But over time, I realized that this wasn't just a diagnosis, it was a chance to connect deeper, love harder, and find purpose through pain. That's why I created my platform to share real, joyful, and honest moments between me and my dad, to remind others they're not alone. From dancing through sundowning episodes to finding peace in small wins, I've made it my mission to advocate for caregivers and those living with dementia or Alzheimer's. I also volunteer for the Alzheimer's Association since they helped me a lot, I want to provide support. and I recently launched a fundraiser and awareness campaign through my Mindful Memory Solutions a website that I just created.
In this intimate and profoundly moving episode of Choosing Joy, host Deborah Joy Winans Williams sits down with her mother, Deborah Kerr Winans, to share a deeply personal story of love, legacy, and faith in the face of Alzheimer’s. What began as a conversation meant for family became something much more—a testament to the power of memory, God’s grace, and choosing joy in the midst of unimaginable challenges. Diagnosed with Alzheimer’s in 2020, Deborah Kerr Winans may not remember everything, but she never forgets her children, her faith, or the goodness of God. From growing up in Detroit and becoming the first in her family to earn a college degree to raising four children with fierce love and intention, this conversation honors a mother’s journey, strength, and unwavering belief. It’s a story about what remains even when memory fades—love, faith, and joy. ✨ Whether you’re a caregiver, a daughter, or someone facing hard truths about health and aging, this episode will wrap you in warmth and remind you: You’re not alone. And joy is still possible. Chapters 00:00 – Why This Conversation Matters01:00 – Living With Alzheimer's: A Daughter's Reflection03:00 – How the Diagnosis Changed Everything05:00 – Sitting in Gratitude, Not Just Grief07:00 – What My Mom Remembers Most09:00 – Holding Faith in the Middle of Memory Loss11:00 – Raising Us with Intention & Love13:00 – Faith, Detroit, and Family Values15:00 – A Mother's Unshakable Joy17:00 – The Gift of Her Legacy19:00 – Final Reflections, Birthday Song & A Blessing #DeborahJoyWinansWilliams #ChoosingJoyPodcast #DeborahKerrWinans #AlzheimersAwareness #FaithAndFamily #LegacyOfLove #BlackWomenCaregivers #ChoosingJoyInGrief #MotherDaughterLove #SpiritualHealingSee omnystudio.com/listener for privacy information.
All Home Care Matters and our host, Lance A. Slatton are honored to welcome Kimberly Anderson as guest to the show. About Kimberly Anderson, Director of Business Development at QuickChange Wrap for Men by UI Medical : Kimberly Anderson is the Director of Business Development at UI Medical, makers of the QuickChange® Wrap—a urine management device for men. With over 20 years in the medical field, she spent the last eight traveling nationwide to educate healthcare providers on QuickChange, previously serving as UI Medical's Director of Clinical Education. Kimberly is passionate about restoring dignity for men with incontinence and supporting caregivers through education on alternatives to traditional devices, helping to prevent UTIs, dermatitis, and pressure injuries. About UI Medical the Makers of the QuckChange Wrap: UI Medical LLC is a California-based company dedicated to improving the lives of less mobile individuals through innovative, easy-to-use solutions. We manufacture the QuickChange® Wrap, a Class I medical device designed specifically for men who are wheelchair users, bed-bound, or have unique incontinence needs. Proudly made in the USA, the QuickChange Wrap is available through major distributors like Medline Industries, as well as online retailers including Amazon and Walmart. Our patented design serves a distinct yet underserved population—approximately 15% of incontinent men—and we're committed to supporting both users and caregivers with a product that brings comfort, dignity, and convenience. UI Medical holds international patents and complies with CE and UKCA standards. We are registered in the U.S., EU, UK, Australia, and many other countries. Our ISO 13485–certified manufacturing facility in California ensures high-quality production and minimizes supply chain risks. A list of our institutional clients can be found on their website at www.quickchange.com.