Everyone Has A Story, But Not Everyone Gets The Chance To Tell Their Story. On The Whole Care Network, We Believe It Is Through Story Sharing Where Diversity Meets The Road To Combat A Common Cause. On The Whole Care Network, We Feature A Variety of Show Host Who Have A Story To Share, Resources to Provide for Caregivers World-Wide. That's Why On The Whole Care Network, YOU Talk and WE Listen!
Elder law attorney Patrick Cawley is equipping dementia caregivers with the essential tools they need for estate planning, including advance care planning for end of life. Patrick guides family members as they navigate the health care system and complicated ways to pay for long-term care for their loved one. He is a certified dementia care consultant, and host of the Dementia Empowered podcast. Patrick has lived experience with a family member who has Frontotemporal Dementia (FTD), so he knows firsthand what dementia caregivers face. Here are some highlights from this episode: Patrick endorses trying care solutions before going straight to legal solutions which might escalate problems and family dynamics. The biggest challenges for dementia caregivers that Patrick sees are financial issues, forming a care team, and complicated or discordant family dynamics.Patrick advocates for caregivers to be paid in certain situations, depending on estate taxes and the financial burden on the caregivers. Recording keeping is vitally important; Patrick recommends keeping a paper trail of transactions and healthcare decisions. Listen to the Dementia Empowered Podcast here. Connect with Keystone Elder Law here. Connect with Patrick Cawley on LI Find an Elder Law Attorney in your area at naela.org You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn
"When it comes to caregiving, the assumption about being able to take what we've learned and just naturally grow is not always going to be true." How do you think you would feel if you were caregiving for a second or third person living with dementia? Would you feel more prepared because of your previous experience? If you answered "yes," you might be surprised by what research is revealing about experienced caregivers. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, both of us have been caregivers more than once, and we recently learned about enlightening research from Dr. Emily Mroz, a researcher at Emory University's School of Nursing who coined the phrase "experienced caregiver." Her research is shedding light on a common phenomenon that affects millions of families: providing dementia care for multiple loved ones throughout adulthood. Dr. Mroz is a tenure-track assistant professor and social behavioral scientist who studies how people think, feel, and act within their social and personal situations. With training in developmental psychology, gerontology, geriatrics, and public health, she uses her multidisciplinary perspective to develop resources and interventions that support people living with serious illness, family caregivers, and those who are bereaved. Through her research and interviews with caregivers, Dr. Mroz has identified crucial insights about experienced caregivers that challenge common assumptions and offer practical guidance for those stepping into the caregiving role again. Full Show Notes https://thecaregiversjourney.org/37-studying-experienced-caregivers-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Dr. Emily Mroz, assistant professor and social-behavioral scientist, discusses her research on improving how patients and caregivers navigate serious illnesses such as dementia, end-of-life care and bereavement. Link to study flyer here To join this study, visit survey.qualtrics.emory.edu/jfe/form/SV_cYfshxWcThSSV5s.Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Avoid Assumptions About Who Is Prepared to Be a Dementia Caregiver Tip 2: Assess How Prepared You Really Feel Tip 3: Don't Hesitate to Get Involved in Skills Training and Support Groups Tip 4: Share Your Stories with Grace, Not Judgment The Importance of Research for Experienced Caregivers Dr. Mroz's study is part of a growing recognition that experienced caregivers represent a significant population with unique needs and strengths. Her virtual research study involves participants completing surveys about their caregiving experiences and sharing their stories to help researchers understand the differences between new and experienced caregivers. Study details: Focuses on people currently in active caregiving roles, including those early in their journey with a second or third care recipientParticipants receive a $50 gift card honorariumSessions are conducted virtually and take about one to two hoursCan participate alongside other dementia caregiver research studiesResearch is crucial for developing resources specifically tailored to experienced caregivers Read More in This Blog here
In this deeply personal podcast episode of, I Saved You. Now, Do the Dishes, I share the raw, nerve-wracking experience of bringing my husband home from the long-term cancer wing before I was ready. He wanted out of the hospital, but I wasn't prepared for everything I had to do for him. I shared my anxiety with the internal medicine department in hopes that they would keep him longer, but the team saw no reason to keep him, despite my pleas and the visible reality of our situation. My concerns were brushed off as caregiver overwhelm and I was advised to bring in an at-home nurse to help me with feedings, cleanings, and the drugs. I got a quick tutorial of how to feed my husband through his feeding tube by hand every three to four hours, a box of formula, a box of syringes and a vial of anti-anxiety prescription I had to give him before radiation every day. This is the reality of caregiving in crisis and what it takes to keep going when you are given more than you know what to do with and even more questions. If you're a family caregiver, reach out to me at www.carrieseverson.com or follow me at https://www.instagram.com/authorcarrieseverson/. #caregiver #caregiverburnout #marriage #cancer #mentalhealth #cancertreatment
On-call, after hours, 24/7 services - no matter what you call it, hospice care is available to patients and caregivers every hour of every day. Regardless of the day of the week, whether it's a holiday, or the office is closed, a member of the hospice team is accessible all the time. Some hospice agencies have answering services or triage teams, but the final result of a call is connection with a nurse. If another discipline is needed, that's going to be coordinated by the agency. No question or concern is dumb. Hospice agencies offer this service to make sure patients and caregivers feel comfortable in their homes while experiencing the end of a life. Here are some of the reasons a caregiver or patient might want to contact the hospice team when the office is closed. The patient has had a change in condition, and is showing different symptoms.Your person (the patient) has died. There's a question about medications. A piece of critical equipment isn't working (oxygen, BiPap, electric hospital bed, air mattress or overlay).There are spiritual or faith needs, and the chaplain's (or social worker's) support is needed. The patient has had a fall and there's an injury. You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
In this inspiring episode of A Time to Care: The Caregivers Podcast, we sit down with Alara Rosenberg, a retirement coach who helps individuals navigate the emotional and practical transition into post-career life. Alara shares that one of the most essential steps in this phase is taking the time to reflect on key questions: Who are you now? What do you want to do? Who do you want to become? She emphasizes the importance of social connection, encouraging retirees to build meaningful relationships and embrace the freedom to explore new interests. Retirement, she reminds us, is not a fixed destination—it's a journey of self-discovery where everyone's path is different. Alara invites retiree listeners to experiment with new hobbies, seek out fresh friendships, and pursue long-forgotten passions. This stage of life is a unique opportunity to realign with your values and find joy in new experiences. She leaves us with three powerful pieces of advice: Take intentional time to plan your retirement journey.Identify your new values, goals, and priorities.Take care of your brain and body to maintain vitality and good health. Tune in to be inspired and to rethink retirement not as an end, but as a new beginning filled with possibility.
Could artificial intelligence be the solution to our eldercare crisis? In this riveting episode, we dive deep into the intersection of technology and compassionate care with Breana Patel, founder and CEO of Owie AI. The statistics are sobering – we're facing a projected shortage of half a million nurses within the next decade while our aging population grows exponentially. But Breana's innovative approach offers a ray of hope in what can seem like an overwhelming challenge. Her company is developing contactless AI monitoring systems that can predict patient needs, prevent adverse events, and reduce the administrative burden on already overwhelmed caregivers. Imagine a world where technology can alert staff before a fall occurs, detect early signs of dehydration, or recognize when a non-verbal patient is in distress. These aren't futuristic dreams but tangible solutions Breana's team is currently piloting in healthcare facilities. What makes this approach revolutionary is its focus on enhancing rather than replacing human care – giving caregivers more time for meaningful interactions by automating documentation and routine monitoring. We explore the profound implications for transparency in long-term care, how AI might serve as a digital companion for isolated residents, and the careful privacy considerations built into these systems. Breana shares her personal motivation behind founding Owie AI after witnessing a loved one's complications from undetected health events, highlighting how technology can help prevent similar situations for countless families. As our society grapples with policy decisions that will fundamentally shape eldercare for decades to come, innovations like these represent our best hope for creating dignified, quality care for all. Join us for this thought-provoking conversation about how artificial intelligence might become our most powerful tool in ensuring no one is forgotten or neglected in their vulnerable years. Want to learn more about the challenges facing our long-term care system? Watch our documentary "No Country for Old People," releasing August 1st on Amazon. CONTACT BREANA PATEL OWIE AI Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE ABSOLUTELY CRUCIAL PROMOTION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Follow us on Twitter, FB, IG, & TiK Tok
Essential employee benefits for working caregivers. In this insightful episode, we explore into the critical intersection of caregiving responsibilities and career management. With a staggering 73% of employees juggling work and caregiving, it's essential to explore how workplaces can better support this significant portion of their workforce. We discuss leveraging Employee Resource Groups (ERGs) as valuable tools for both employers and employees. For organizations, ERGs provide crucial insights into the needs of working caregivers, informing the development of relevant employee benefits and fostering a supportive company culture. We explore which employee benefits are most valued by caregivers. Furthermore, we address the challenges faced by individuals who have stepped away from their careers to provide care. We offer practical advice on effectively positioning oneself for re-entry into the workforce, emphasizing how to highlight the valuable skills acquired through caregiving. This episode provides essential guidance for both employers seeking to support their caregiving employees and individuals navigating the complexities of balancing career and care. Our Guest: Zack Demploplous, author Working Caregivers - The Invisible Employees Zack Demopoulos has over 36 years of diverse experience working in the corporate and small business environments. His expertise spans across sales management; executive leadership; human resources; diversity, equity, and inclusion; small business; board leadership; and caregiving. Zack was drafted into a long distance caregiver for his father when he had a stroke and needed help with activities of daily living for six years until he passed away in 2011. During this time Zack traveled back and forth to North Carolina while holding down a full-time high-level leadership role for his organization. Today, Zack does the same for his mother who also lives in North Carolina.
This week, Ari Medrano delivers a powerful testament to the depth and complexity of caregiving. As a Mexican immigrant who came to the United States at age one, Ari's approach to caregiving is deeply rooted in her family's values of service, love, and compassion. Throughout the episode, she shares multiple experiences of caregiving, including caring for her cousin with bone cancer, a homeless woman named Teresa, her brother who was a victim of a violent crime, and her mother during critical health challenges. Her caregiving journey is marked by a remarkable ability to love creatively and find joy even in the most challenging circumstances. Ari's approach goes beyond traditional caregiving, incorporating humor, sensory experiences (such as using specific scents to uplift spirits), and an unwavering commitment to supporting not only the patient but also the healthcare workers around them. Her personal experiences, including her health challenges like heart disease and a brain tumor, have shaped her perspective, allowing her to approach caregiving with empathy, resilience, and a profound understanding of both giving and receiving care. What stands out most about Ari is her philosophy of "givers gain" and her conviction that we can experience both pain and joy simultaneously. Her stories illustrate how caregiving is not just a duty, but a calling that requires creativity, emotional intelligence, and a deep capacity for love. Whether it was bringing Santa Claus to her mother's hospital room, providing comfort to a homeless woman, or supporting her brother through his challenging health journey, Ari embodies the true spirit of compassionate caregiving. About Ari: Ari Medrano is a Mexican immigrant who arrived in the USA as a one-year-old, the middle child in a family of five. Her parents have been married for 58 years. Ari's caregiving journey deepened when she moved from Texas to California to care for her mother and youngest brother, who both became ill simultaneously. She provided home hospice care for her brother in his final weeks, following his brutal injuries from a bank robbery. Concurrently, she cared for her mother in the hospital for six months; her mother is now at home, receiving care from all siblings. As a mother of two sons, Ari also acknowledges their caregiving role during her own extensive health battles, which included multiple tumors, heart disease, a brain tumor, and numerous surgeries. She refers to herself as an "Olympian patient" and serves as a go-to health advocate for her family, friends, and community. She is notably a "1% Medical Miracle" who regained full mobility after being paralyzed by a craniotomy for a brain tumor extraction. Ari's legacy is defined by her philosophy: "Love God, Love People...creatively." Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network Share
Blending aromatherapy and sound bathing into the care of dying patients comes naturally to end of life doula and hospice nurse Carrie Oram. Carrie has witnessed deep, relaxing responses from clients as they experience the vibrations of Tibetan sound bowls. Regardless of diagnosis or disease progression, people who are at the end of their lives become more relaxed during treatments with aromatherapy. The benefits are many - calm, an elevated sense of happiness and wellbeing, comfort, connection with pleasant memories and sensations, even appetite stimulation. Carrie integrates her doula work into her work as a hospice nurse, being sure to separate responsibilities that are under her nursing license from her doula tasks. You can find Carrie at angelheartholistics.com. Carrie is the compassionate owner and operator of Angel Heart Holistics, where she combines her extensive background in healthcare with her deep passion for holistic healing. As a hospice nurse with years of experience, Carrie has witnessed firsthand the profound impact that emotional and physical well-being have on a person's overall quality of life. Connect with Carrie on Instagram (@angelheartholistics) Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.
“An educated and confident family caregiver who knows what to do in their role is really the absolute best medicine for the care receiver.” Dr. Carolyn Clevenger Do you know extensive research specifically focused on dementia caregivers is being conducted? Are you aware of innovative studies designed to equip family caregivers with navigation skills? Now you will, and you'll be learning about valuable opportunities to strengthen your caregiving journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we are continuously learning new ways to support our health and well-being, and that of our care receivers. We recently discovered the groundbreaking dementia caregiver research, the CANDO Study, Dr. Carolyn Clevenger, DNP, RN, GNP-BC, AGPCNP-BC, FAANP, FGSA, FAAN, Professor at the Emory University Nell Hodgson Woodruff School of Nursing is conducting. When most people think about dementia research, they focus on studies involving people living with dementia or pharmaceutical treatments. This crucial area of research focuses on supporting the family caregivers themselves. Dr. Clevenger is a professor and gerontological nurse practitioner who is nationally recognized as an education leader in advanced practice nursing and geriatrics. Carolyn founded, and directs, the comprehensive dementia care model called Integrated Memory Care (IMC), which provides memory and primary care in a single integrated approach for people living with dementia and their care partners. Full Show Notes https://thecaregiversjourney.org/36-learn-to-navigate-support-systems-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Dr. Carolyn Clevenger, a nationally recognized educational leader in advanced practice nursing, geriatrics and gerontology, shares her groundbreaking work on dementia family caregiver education programs that teach new caregivers how to transition into the role and navigate various support systems.For more information about joining this study, visit scholarblogs.emory.edu/CAN-DO/.Savvy Caregiver course: Available face-to-face or online (in-person version includes support group benefits)“Best Programs for Caregivers” website: A collaboration between the Benjamin Rose Institute on Aging and Family Care Alliance featuring only research-proven programs.Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Additional Resources Mentioned Takeaways Tip 1: Understand Different Levels of Care Early Home-Based CareCommunity-Based ProgramsResidential Care Options Key considerations: Each level has different eligibility requirements and payment structuresAvailability varies by state—some follow federal guidelines, others have state regulationsPeople often wait until they desperately need memory care but try to access assisted living instead, creating unnecessary stress Tip 2: Stay Ahead of Financial Challenges Protect your assets while maintaining oversightUnderstand the early warning signsWatch for judgment impairment issues Tip 3: Leverage Legal Support from Elder Law Experts What sets elder law attorneys apartSpecialized dementia expertiseLong-term benefits Tip 4: Take Evidence-Based Classes What makes evidence-based courses effectiveMeasurable outcomes The CAN-DO Study: Training Caregivers as Navigators Dr. Clevenger's current research project, CAN-DO (Caregiver As Navigator Developing Skills Online), trains family caregivers to navigate four critical systems: healthcare, financial, legal, and family systems. Course structure: Six-week online course following three families through different types of dementiaEach day presents real-life scenarios with appropriate responses and preventive measuresVideos from subject matter experts including elder law attorneys, investigators, estate planners, and healthcare providers
After filing formal complaints against the doctors who violated my husband's patient rights, everything changed. In this episode, I share what happened next—how advocating for Gavin led to a new physician assistant, a new nurse, and finally, the right medications. It wasn't easy, but standing my ground shifted the entire course of his care. Gavin was still in the hospital, newly reliant on a feeding tube and being checked for pneumonia—but for the first time in a while, it felt like we could both exhale. Despite the fact that I was still in caregiving burnout and wildly overwhelmed, I loved being able to lean on hospital staff. This is a story about the power of speaking up, even when your voice shakes, and the turning point that gave us hope again. Join me as I share more insights from my husband's cancer journey, focusing on the importance of being a strong patient advocate. I'll discuss navigating the healthcare system and the necessity of caregiver support. This episode also underscores the significance of patient safety within local hospitals. Connect with me if you're on a similar path at www.carrieseverson.com or instagram.com/authorcarrieseverson/
Art Bowker cares for his mother who is living with Alzheimer's while juggling multiple careers, including one as a cybercrime expert. Art has over 30 years of experience in law enforcement and corrections and co-authored a book to help us protect vulnerable adults from cybercrimes and provides guidance on surviving a cyberattack. In this episode we chat about cybercrime (like pig butchering), what we can do to help prevent a financial catastrophe, hoarding, legal guardianship, and Art's passion for cigars and bourbon. Show notes with product and resource links: https://bit.ly/HHCPod206 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
Dementia family caregivers face an overwhelming journey—without adequate support or resources. Supporting someone with dementia is a complex, emotional, exhausting journey. Yet, dementia family caregivers face this challenge without the coordinated support, training, or resources needed to provide the best care possible. But that's beginning to change. On July 1st Medicare is launching a new, first-of-its-kind program called GUIDE—Guiding an Improved Dementia Experience—created to provide comprehensive, FREE support for dementia family caregivers. Daughterhood has partnered with PocketRN, an approved Medicare provider for the GUIDE program and a nationwide organization offering families 24/7 access to nurses—right from their pocket. My guest today is Jenna Morgenstern-Gaines, the CEO and co-founder of PocketRN. In our conversation, Jenna will share more details about the GUIDE program and its comprehensive benefits, including ongoing caregiver support, education and training, access to respite care, how to enroll, everything you need to know to access the program. Episode TRANSCRIPT Access Daughterhood's GUIDE page with information and locator HERE CMS website information on GUIDE
In this episode, Sarah and Jeremy discuss the 48th season of "Survivor" and learn more about Eva Erickson, the first openly autistic contestant in the show's history. Check out all of our work at: Caregiver Chronicles | Stelmach Brown Media llc
In this engaging episode, hosts Marianne Sciucco and Christy Byrne Yates are joined by fiction writer and caregiver,Alfredo Botello, and AlzAuthors' acquisitions editor Ruth Stevens. Dive into a heartfelt and surprisingly humorous conversation as Alfredo discusses his novel, Spin Cycle, which explores the journey of a son caring for his mother with dementia. Alfredo, who transitioned from architect to screenwriter to novelist, and also runs a California dive bar, shares the inspiration behind his original story and opens up about balancing humor and heartbreak on the Alzheimer's caregiving path. Key Highlights: Alfredo's novel takes a rare spin, centering on a “pop-up school” for caregivers—the support group you wish you'd had—where ten diverse participants deal with overwhelming responsibilities, guilt, humor, and hope.Alfredo talks openly about his personal dementia journey, caregiving for his mother, facing challenging emotions, and the importance of self-forgiveness and embracing compassion, even in tough moments.From absentee siblings to laugh-or-cry moments, hear how Alfredo's characters mirror real life and help break the silence around caregiving.Discover how fiction can be as supportive and insightful as caregiver guides, helping readers feel less alone and more validated in their struggles.Learn about upcoming AlzAuthors initiatives, including book giveaways and a first-of-its-kind Alzheimer's and dementia film festival—unique ways to connect and educate through storytelling. Whether you're a caregiver, a family member, or simply want to better understand Alzheimer's and dementia, this episode offers vital insights, practical encouragement, and genuine laughter. Alfredo's honest storytelling and the hosts' empathetic questions highlight the challenges and unexpected gifts found on the dementia journey. Find Out More: Get Spin Cycle by Alfredo BotelloExplore his other works at https://alfredobotello.com/Join the AlzAuthors community and check out giveaways, event sign-ups, and caregiving resources at https://alzauthors.com/Read Alfredo's exclusive essay for AlzAuthors https://alzauthors.com/blog Subscribe and Share: If you enjoyed this episode subscribe to the AlzAuthors podcast and share this story with someone who cares. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
In this heartfelt episode of A Time to Care: The Caregivers Podcast, we speak with Deborah Armstrong, a specialist in senior isolation and loneliness. Deborah sheds light on a reality many older adults face: feeling disconnected from their families and the world around them. Whether it's an inability to relate to the fast-paced conversations of their children and grandchildren or the impact of cognitive or mental health issues, isolation often leads to deep sadness or depression. Deborah also reminds us how the COVID-19 pandemic heightened this problem, as everyone became more familiar with the toll that prolonged isolation can take. But there is hope. Deborah shares practical and compassionate strategies to help bring our aging loved ones back into connection with life and those around them. Some of her suggestions include: Taking them out for short visits to familiar or new placesBringing laughter into their lives through funny movies or joyful memoriesSurrounding them with children when possible, whose energy can be contagiousSharing family photos to spark stories and conversationBringing along favorite activities (like coloring, knitting, or puzzles) when going to appointments to make wait times more enjoyableEncouraging movement—short walks, gentle dancing, or just listening to musicSinging together or reading a book they once lovedReentering their world, rather than forcing them into ours Deborah's message is clear: reconnection doesn't require grand gestures—it starts with small, loving actions that honor who they are and what brings them joy. Tune in to learn how to help the elders in your life feel seen, heard, and valued once again.
We're getting back to the basics of hospice, talking about Continuous Care with hospice nurse Gabby Jimenez of The Hospice Heart. Continuous care can be confusing. We're talking about when it's used, how it works, and where it happens. Here are some highlights from this episode: • Continuous Care (CC) is a level of care within the Medicare hospice benefit. It's also called Crisis Care. • CC is used for symptom management and is managed by the hospice team in the patient's residence. • There's no increased cost for the patient or family if CC is implemented. • Continuous Care DOES NOT have to be continuous - it can be divided into increments that benefit both patient and caregiver. • CC is used when symptoms become unmanageable, things like pain, shortness of breath, or agitation. • CC is temporary. Having Continuing Care DOES NOT mean the hospice team will put staff in the home 24/7 indefinitely; it's only in place until the symptoms are resolved. • An RN or LVN has to do at least 50% of Continuous Care hours. If medication is being administered, a nurse must be the hospice team member to provide the Continuous Care. • When the symptoms resolve, Continuous Care will be stopped, and the routine hospice care will resume. Connect with Gabby Jimenez of The Hospice Heart: Gabby Jimenez is a hospice nurse, end-of-life doula, death and dying educator, and author. Her website and Facebook page, which are both named The Hospice Heart, offer support for people who are either terminally ill, or caring for someone who is nearing the end of their life. Gabby has learned from being at the bedside of about 2,000 people who have taken their last breath. Her end-of-life doula training has helped her to truly understand the sacredness of death and dying, and what it means to be present for someone during that intimate and final moment. You can find her information and all of her offerings on her website: www.thehospiceheart.net Contact: thehospiceheart.net/contact Buy Gabby's books: thehospiceheart.net/books Book Gabby to speak at your event: thehospiceheart.net/book-gabby Social Media for Gabby Jimenez Facebook (The Hospice Heart) Instagram (gabrielle.elise.jimenez) Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
Is your loved one in a memory care community, or are you considering moving them into one? Understanding how to build a collaborative relationship with the care team is crucial for ensuring the best outcomes for your loved one. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that creating a true partnership with care community staff can dramatically improve quality of care and reduce stress for everyone involved. We recently spoke with James Lee, CEO and co-founder of Bella Groves, an award-winning memory care community. With over 17 years of experience in senior living and memory care, James has developed valuable insights on how to transform what is often an adversarial relationship between family caregivers and professional caregivers into a collaborative partnership. Full Show Notes https://thecaregiversjourney.org/35-build-a-partnership-with-your-care-community-six-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess the Overall Fit When looking for a memory care community, many families focus on practical aspects like location, price, and amenities. While these factors are important, James suggests that philosophical alignment and rapport with the management team are even more crucial for long-term success. When evaluating potential communities, James recommends shifting your mindset from "us versus them" to "us collectively versus dementia." This perspective can transform the relationship from the beginning. Tip 2: Embrace the Community Aspect Moving your loved one from home to a community setting represents a fundamental shift in their care environment—from one-on-one care to being part of a group. Tip 3: Acknowledge Your Role Has Changed When your loved one moves into a care community, your role shifts from being the primary caregiver to being a care partner working alongside professional caregivers. Tip 4: Recognize That the Diagnosis Will Progress A critical aspect of the care partnership is understanding that your loved one's condition will continue to change over time. In fact, by the time someone moves into a memory care community, they're often in the steeper part of their dementia journey where changes happen more rapidly. Tip 5: Acknowledge Your Grief The dementia journey involves ongoing loss, a phenomenon Sue calls "drip grief." As your loved one's condition progresses, you experience new losses almost daily—abilities that disappear, memories that fade, personality changes that emerge. Tip 6: Engage with the Community Caregiving Team The families whose loved ones have the best quality of life tend to be those who actively engage with the care team. This engagement goes beyond basic communication to building genuine relationships with the people caring for your loved one. Building a True Partnership Creating a collaborative relationship with your loved one's care community team isn't just about being nice—it's about achieving the best possible outcomes for your loved one with dementia. By reframing the relationship from "us versus them" to "us collectively versus dementia," you can transform what is often an adversarial dynamic into a true partnership. As James explains, "You are your loved one's expert, we are dementia experts. And the two together give us the best chance to get this right." Read More in This Blog here
In this episode of the Happy Healthy Caregiver podcast, Jess Ronne shares her powerful caregiving journey, from supporting her late husband through brain cancer to raising her son, Lucas, who lives with profound disabilities—alongside seven other children. Jess is an entrepreneur, author, speaker, podcast host, documentary producer, and passionate caregiver advocate. She opens up about the stark contrast in support she received during different caregiving seasons and how anger fueled her resilience as a young widow with four children. Jess also shares the incredible story of how a perfect stranger connected her with her now-husband, Ryan, despite living in different states. Now in another season of major transition, Jess and her family have created a group home where Lucas is thriving. With newfound space in her life, Jess is focused on healing from years of trauma, being present, and intentionally choosing which responsibilities to embrace or surrender. This episode is packed with valuable caregiver resources, inspiration, and hope. Show notes with product and resource links: https://bit.ly/HHCPod205 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
Welcome to a powerful episode of the AlzAuthors Podcast featuring acclaimed author Marita Golden and her novel, The Wide Circumference of Love, as part of the Aging & Amazing Book Club series. This engaging discussion dives into the storytelling craft, the nuances of family caregiving, and the realities of Alzheimer's and dementia, especially in African American communities. An award-winning author of 22 books, Marita Golden shares her journey as a writer, from being a story-loving child in Washington, D.C., to producing literary works that explore social issues and healing. She shares how she came to write a story centered on a caregiver after immersing herself in caregiving spaces, meticulous research, and witnessing a friend's torturous battle caring for her husband. Ms. Golden shares insights into the connection between writing and healing, and how journaling and other forms of writing can be vital mental health tools that promote resilience. She also speaks to the higher rates of Alzheimer's and other dementias in the African American community, citing the lack of representation in clinical trials as one contributing factor, and speaks to why awareness and advocacy are more important now than ever. For readers and writers, Ms. Golden shares insight into the craft of writing, her writing routine, and her creative evolution. Key Takeaways: Storytelling unites families and communities, easing the isolation of caregiving and dementia.Fictional works like The Wide Circumference of Love, along with memoirs and how-to guides, are crucial for raising awareness of Alzheimer's and dementia.Journaling and creative writing document the caregiving journey and provide healing and hope for both writers and readers.The urgent need for advocacy and equity in dementia care for marginalized communities. About Marita Golden: Marita Golden is President Emeritus and co-founder of the Hurston/Wright Foundation. She is also an educator and author of fiction and nonfiction exploring Black life, identity, and resilience. Her recent memoir, How to Become a Black Writer, is available now. Find out more about Marita Golden on her website. Read Marita's AlzAuthors Blog Follow Marita Golden: Facebook Instagram LinkedIn Buy Marita's books: The Wide Circumference of LoveUs Against Alzheimer's Anthology About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
In this episode of the podcast, we sit down with financial advisor Michael Lewis, who shares insightful perspectives on the intersection of brain health and financial planning. Michael points out that certain cognitive decline conditions can begin developing 7 to 10 years before any noticeable symptoms appear. With this in mind, he strongly recommends that just as we schedule annual physical checkups, we should also routinely assess our cognitive function. Proactive brain health screenings can make a significant difference in long-term financial decision-making and personal well-being. He also emphasizes that periods of high stress are some of the worst times to make major financial decisions. Stress can cloud judgment, heighten emotional responses, and lead to choices that may not be in our best interest. His advice? Plan ahead and prepare for the unexpected. Michael encourages families to have the important conversations before a crisis arises—whether about wills, care plans, or long-term financial goals—and to take action early, rather than delaying essential steps. This conversation is a powerful reminder of the importance of being proactive, not only in our finances but in our mental and emotional well-being as we age. To reach Michael. LinkedIn: linkedin.com/in/michael-lewis-cfa-mbaWebsite: www.familylegacync.com Calendar: https://calendly.com/caregiversresource/preliminary
In this episode of the WCNfluencer podcast, Christopher MacLellan speaks with Helen Bauer from the Heart of Hospice podcast. Helen and Chris discuss the importance of hospice care, the role of teams in caregiving, and the evolving perspectives in hospice nursing. Helen's four-part series with the Sanford Medicine Palliative Care team is an added bonus. It features a variety of guests who bring to life their experiences with hospice and palliative care. Throughout the episode, Helen shares insights from her experience and emphasizes the value of diverse voices in caregiving. They also explore hospice navigation services offered by the Heart of Hospice and how they can support families and caregivers in end-of-life care. To learn more about Helen, the Heart of Hospice Podcast, and the Hospice Navigation Services, visit https://www.theheartofhospice.com/ and the Heart of Hospice Whole Care Network landing page, where you can listen to the special four-part series with Sanford Medicine Palliative Care https://thewholecarenetwork.com/heart-of-hospice/ email Helen at Helen@theheartofhospice.com Takeaways The Heart of Hospice podcast aims to make difficult conversations easier. Team dynamics are crucial in providing effective hospice care. Caregivers, whether family or not, play a vital role in patient care. Open-mindedness in nursing can lead to better patient relationships. Language used in healthcare can impact caregiver perceptions. Diverse voices in caregiving enrich the conversation around hospice. Hospice navigation services provide unbiased support and information. Remote caregivers also contribute significantly to the caregiving team. Every caregiver's perspective has value and can benefit others. The Heart of Hospice podcast has over 560 episodes, amplifying various voices. Chapters 00:00 Introduction to the Heart of Hospice Podcast 03:07 The Importance of Team in Hospice Care 06:02 Evolving Perspectives in Hospice Nursing 09:06 The Value of Diverse Voices in Caregiving 12:11 Understanding Hospice Navigation Services 14:47 Connecting with the Heart of Hospice
Christy Byrne Yates of Alz Authors has experienced all the unique challenges of sandwich caregiving. Caring for both of her parents with neurodegenerative diseases (dementia and Alzheimer's disease) while she raised young kids taught her lessons she now shares with other caregivers. In this open and honest conversation, Christy shares the good times and the struggles of her caregiving experience. Christy is a Licensed Educational Psychologist, author, speaker, and coach. In Building a Legacy of Love: Thriving in the Sandwich Generation, she shares her journey as a working mom caring for parents with dementia. A retired school psychologist, she now delivers keynotes, workshops, and coaching to support caregiving families. Christy co-hosts Untangling Alzheimer's & Dementia, a podcast by AlzAuthors.com, and has been featured in Women's World Magazine (Jan 2025) and has been interviewed on over 20 podcasts. She's also a contributing writer on Sandwich Generation caregiving topics. Connect with Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation Website: ChristyYates.com Buy the book: Building a Legacy of Love Media for Christy Yates Links-in-bio: Christy Byrne Yates: Coaching Caregivers Social Media: Facebook Instagram LinkedIn Bluesky YouTube Social Media for GrandPad: Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
Adding a new caregiver to your support team can be a challenging transition, whether they're coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer's or dementia, as changes in routine can cause confusion and resistance. If your loved one doesn't think they need help (and let's be honest, many don't), don't give up too quickly. Be patient and allow the process time to unfold. As one experienced caregiver shared, "He told the new caregiver for at least the first couple of weeks, every time she came, 'You need to go home.' She would just smile at him and say, 'Well, I'm not going home just yet.'"
In this raw and unfiltered episode of I Saved You. Now Do the Dishes, I walk you through the moment my husband finally faced what he'd been resisting: the need for a feeding tube. What should have been a moment of compassionate care turned into something else entirely—his physician assistant laughed, told him he made her job harder, and actually said we should pray to our lucky stars she could “work her magic” to get him a feeding tube. Unprofessional doesn't even begin to cover it. I got in her face. I yelled. And then I got Gavin admitted to the ER. His white blood cell count was so low, the attending ER physician said Gavin's body was close to shutting down. He was checked into the long-term cancer wing. This is a story about thresholds—of health, of patience, of love—and what happens when you're forced to cross them all at once. If you're a caregiver, I'd love to hear from you. Reach out to me at https://carrieseverson.com/home/ or follow me at https://www.instagram.com/authorcarrieseverson/
In May we pay tribute to the generations of Asian and Pacific Islanders who have enriched America's history and are instrumental in its future success. This caregiver spotlight episode echoes all of these sentiments. Meet Paurvi Bhatt, a dedicated family caregiver, care advocate, and second-generation Indian American with deep personal and professional caregiving experience. Raised in a family of caregivers, Paurvi spent nearly 30 years balancing her career as a ‘working daughter' while managing caregiving responsibilities. In this episode of the Happy Healthy Caregiver podcast, we explore critical gaps in the U.S. care economy, particularly for first- and second-generation immigrants, including challenges with language, care plans, and services. We also discuss the concept of “shadow resumes” and how the skills we develop as family caregivers not only support our loved ones but also enhance our professional lives. Paurvi shares how she built a strong care team as an only adult child, the resources that helped her navigate caregiving, and the impactful work being done by the Rosalynn Carter Institute for Caregivers. Plus, we get a glimpse into what she would do if she had unlimited time for herself! Show notes with product and resource links: https://bit.ly/HHCPod204 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
If you or someone you love has ever faced a health scare, this is a conversation you won't want to miss. My guest today is Dr. Edward G. Rogoff, an accomplished educator and advocate whose personal journey is nothing short of extraordinary. Diagnosed with hemophilia as a child, Dr. Rogoff faced a lifetime of uncertainty—until a liver transplant in adulthood led to an unexpected cure. His experience sparked a lifelong commitment to patient advocacy, organ donation awareness, and reshaping how we approach chronic illness. He's served on the boards of the Hemophilia Association of New York since 1980 and LiveOnNY, the major organ donor organization for the New York City metropolitan area, and now he's sharing his wisdom in his new book: "Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve." In this conversation, we explore the power of building the right medical team, managing uncertainty, denial, having tough conversations, staying resilient and how to not let a scary diagnosis overtake your life and keep it all in perspective. TRANSCRIPT Scary Diagnosis Navigating Fear, Finding Strength, and Securing the Health Care You Deserve Daughterhood
In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children's book, Come Grandpa Meow, Let's Fly, adds a much-needed resource for families navigating the challenges of Alzheimer's and dementia. A Personal Story Sparked by Loss Carol's journey began more than 25 years ago, during her own father's struggle with Alzheimer's. She originally wrote the book as part of her grieving process, but it wasn't until she'd spent years working at both local and national Alzheimer's organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol's children's book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don't just take our word for it—Come Grandpa Meow, Let's Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you're a caregiver, educator, parent, or grandparent, Carol's book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
In this conversation, Josh and Chris discuss the importance of authenticity in storytelling, particularly Chris' relationship with deceased partner Richard and their journey through terminal illness. Throughout the episode, Chris reflects on the emotional complexities of revisiting memories while working on a film adaptation of their story. The discussion also touches on the broader implications of personal narratives in fostering empathy and societal change, emphasizing love and commitment as universal themes. Quote Chris referenced in the new title of the film "She had studied the universe all her life, but had overlooked its clearest message: For small creatures such as we, the vastness is bearable only through love."
Today on the podcast, we are joined by Miriam Bahar, a specialist in movement and transitions, who provides compassionate support to individuals—especially older adults—during the significant life event of relocating to a new home. Miriam shares how moving is not simply about changing addresses; it is a deeply emotional and meaningful process. For many seniors, parting with personal belongings can be difficult, as these items often hold sentimental value and are linked to cherished memories. She emphasizes the importance of having support during this time—someone who can walk alongside them with empathy and understanding, helping them make thoughtful decisions about what to keep, what to donate, and what truly serves them in the present. One of Miriam's core principles is focusing on what is currently useful and necessary. In her experience, simplifying one's space by keeping only what is actively used allows for a more peaceful and manageable transition. She also reminds us that people often hold onto objects not for their utility but for the emotional significance they carry. Navigating this attachment with care and sensitivity is essential in her work. Beyond emotional support, Miriam highlights the importance of planning for safety. She encourages individuals and families to take future mobility and accessibility into account when choosing a new home or arranging a living space. Proactively creating a safe and comfortable environment plays a key role in maintaining independence and quality of life as we age. Miriam's work serves as a beautiful reminder that moving can be a healing process—a chance to reflect, simplify, and look ahead with clarity and confidence.
In this episode of the WCNfuencer podcast, Host Christopher MacLellan welcomes author Carrie Severson, a new podcaster and caregiver advocate to the Whole Care Network. Carrie shares her personal journey of caregiving for her husband during his battle with cancer, emphasizing the importance of humor and mental health in caregiving. The conversation explores the challenges of navigating the healthcare system, the emotional toll of caregiving, and the transformative power of storytelling. Carrie discusses her podcast, 'I Saved You Now Do The Dishes,' which aims to provide support and resources for caregivers, as well as her books and speaking engagements focused on burnout recovery and caregiver advocacy. Takeaways * Caregiving can be a heavy burden, but humor helps. * Finding balance is crucial for caregivers. * Support groups can often feel overwhelming and negative. * Caregivers need to prioritize their mental health. * Navigating the healthcare system requires advocacy and persistence. * The emotional journey of caregiving is complex and multifaceted. * Storytelling can be a powerful tool for healing and connection. * Podcasts can provide a platform for sharing experiences and insights. * Books and seminars can help address caregiver burnout. * Connecting with others in similar situations can provide comfort and support. Subscribe to "I Saved You Now Do The Dishes" on your favorite podcast platform! To learn more about Carrie and her books, visit. https://carrieseverson.com/ and https://thewholecarenetwork.com/i-saved-you-now-do-the-dishes/
We're getting back to the basics of hospice care with Hospice Social Worker Lisa Pahl to talk about who's on the hospice team and what each person brings to the care of patients and caregivers. This episode focuses on the core members of the hospice interdisciplinary team (doctor, nurse, social worker, and chaplain) as well as hospice aides (Certified Nurse Assistants) and hospice volunteers. Each person on a hospice team brings very specific and essential skills to the care of patients, and the support of their families and caregivers. The best care of a hospice patient includes everyone on the hospice team. This enables the care of the patient to meet all the needs of body, mind, and spirit. Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
Meet Jim Cooper who has been married for 40+ years and cared for his wife who had brain cancer. Jim is a man of many talents and experiences. He has been a radio DJ, real estate broker, IT consultant, author, podcaster, and currently is a voice over professional who narrates audiobooks. In this episode, Jim and I discuss the value of staying connected to friends, family, health professionals, and other caregivers. We talk about his self-care strategies and passions that helped him during his intense caregiving years and now as a human who lives without regret. You'll also want to stay tuned to learn about the special giveaway Jim is offering to some of our listeners. Show notes with product and resource links: https://bit.ly/HHCPod203 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. With a Master of Science specializing in Gerontology and over a decade of hands-on experience in various care settings, Carrie has established herself as a leading voice in dementia education and support. As the founder of Dementia Darling, she has cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge prevailing narratives about dementia and aging, and foster moments of joy. As a full-time educator and advocate, she continues to push boundaries in dementia care, creating a movement that celebrates life and builds a supportive community. Connect with Carrie Aalberts on social media - @dementiadarling, or through her podcast "Gather Darlings" to join her mission of spreading knowledge and understanding the dementia and caregiving community. Website: dementiadarling.com Social media: Instagram LinkedIn Facebook TikTok YouTube Listen to the Gather Darlings Podcast here Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Find more podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com
Do you want to gain a deeper understanding of the impact of dementia on marriages? If you're seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support. Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed. Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships. Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one. Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra's expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra's AlzAuthors blog post Visit Debra's website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store
Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder and CEO of Eleplan, about what a care plan is and how to create one that works for your unique situation. Amanda's journey to creating Eleplan was deeply personal. Her brother Liam, who has autism, is her "North Star" and the inspiration behind her career path, including going to law school for special education law. Through observing her parents' caregiving journey with Liam, Amanda recognized the need to capture all the knowledge that lived in her parents' heads so that others could provide care that truly honored who Liam is as a person. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned Episode 32: Navigating The Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/Eleplan Website: https://www.eleplan.com/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Full Show Notes https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias Takeaways Tip 1: Start with the Basics The first step in creating a care plan is to document the essential information that would allow someone to provide short-term care (even for just 30 minutes) while you step out. This includes: Emergency contactsMedications and dosagesHigh-level meal preferencesAllergiesRelevant medical conditions Tip 2: Outline Preferences and Daily Routines Beyond the basics, a good care plan should capture what makes your loved one unique—their preferences, personality traits, and daily routines. Your care plan should include: Likes and dislikesDaily schedule and routinesBedtime and morning ritualsBehavioral patternsEmotional triggers (both positive and negative) Tip 3: Document What to Do in an Emergency Crisis situations demand clear instructions. Your care plan should outline: What constitutes an emergency for your loved oneWhen to call 911 vs. other resourcesWho to contact and in what orderSpecial instructions for EMTs or ER staffLocation of important medical documents Tip 4: Collect Key Contacts and Documents Gathering important documents in one accessible location is critical for seamless care. This includes: Insurance cardsHealthcare directivesPower of Attorney documentsGuardianship formsMedical history and medication lists Tip 5: Keep Everything Accessible and Current A care plan is only effective if it's up-to-date and easily accessible. Amanda frames this with an important question: "Do I have a system that is as dynamic as the needs of my loved one and the ever-changing piles of documents and information?" Whether you're using a physical binder, shared digital documents, or a specialized platform like Eleplan, the key is having a system that makes updates easy and ensures the information is available whenever and wherever it's needed. Read More in This Blog
“Caregiving never ends. No, it never stops.” - Natalie and JJ Caregiving is a journey—full of love, lessons, and let's be honest, a few laughs along the way. In this candid conversation, we dive into the realities of caregiving: navigating skilled nursing facilities, managing emotional and financial stress, and finding strength in community. We're also sharing what's in store for 2025 and beyond. Too good to miss!
Working caregivers, are you feeling overwhelmed trying to balance it all? Many don't know about the resources & benefits available to them through their employers. This week, Kathy Sikorski, an elder law attorney, and Jen Fink, your host, uncover the hidden gems in your employee benefits package that can ease your caregiving burden. Discover the benefits that can give you back precious time and energy. Are you leaving money and support on the table? Tune in to find out! Additional resources mentioned in this episode: Legal BenefitsLong Term Care InsuranceFinancial AdvisorFMLAMental Health BenefitPhysical Health Benefits Our Guest: Cathy Sikorski, Esq. a Speaker, Elder Lawyer, Author and Media Guest unravels the complex financial and legal problems in the caregiving crisis.Cathy uses her own caregiver experience and expertise to educate, entertain and elevate the conversation around work, money, aging and caregiving. In October 2021, Corner Office Books released her latest book 12 Conversations: How to Talk to Almost Anyone about Long-Term Care Planning. Click below to connect with Cathy at Facebook. Or go to her website www.cathysikorski.com
In our latest Care Lab podcast episode, we had the pleasure of sitting down with Ashley Mahoney—an occupational therapist who made a bold pivot into real estate—to explore a powerful question: What happens when the principles of OT shape the way we help people find homes? From Kansas City resources to national insights, we dive into: How accessibility and aging-in-place goals impact home buying The emotional weight of transitions for older adults and families Why community representation and advocacy matter in real estate What to look for in a real estate agent who truly understands accessibility needs #CareLabPodcast #OccupationalTherapy #RealEstate #AgingInPlace #Accessibility #SeniorCare #CaregiverSupport #HealthcareInnovation #InclusiveHousing Find Care Equipment solutions at https://www.asksamie.com/ Learn about the future of care navigation at https://seniorai.app/
In today's podcast episode, we have the pleasure of speaking with Judy Swanson, who shares valuable insights on mental health and well-being. She provides practical tips on how to cultivate small sparks of joy in everyday life and emphasizes the importance of being kinder to yourself. Judy encourages us to practice gratitude daily, engage in acts of kindness, smile more often, and find joy in the simple beauty of nature. She also explains how the way we phrase our thoughts and words can significantly impact our mood. For example, shifting from saying “I have to” to “I get to” can create a more positive mindset. Additionally, she reminds us to focus on small but essential habits, such as staying hydrated, nourishing our bodies with healthy foods, and incorporating movement into our daily routine. By shifting our focus to the positive, we can enhance our well-being and cultivate a more joyful and fulfilling life. Tune in for an uplifting conversation filled with wisdom and practical steps to nurture both your mind and spirit! To reach Judi Website: https://kindnesschampions.com/ Facebook: https://www.facebook.com/KindnessChampions/ Instagram: @kindness_champs https://www.instagram.com/kindness_champs/?hl=en X/Twitter: @KindnessChamps Blue Sky: @kindnesschampions.bsky.social LinkedIn: Judi Swanson and Kindness Champions Email: kindnesschampions2020@gmail.com
In this episode of I Saved You. Now, Do the Dishes., I'm sounding the alarm for caregivers walking the brutal line between cancer treatment and pain management. This one is personal. My husband had just been prescribed opioids for pain. And nobody gave him any additional or alternative instructions for days he had chemo. No one warned us about side effects chemo has with Oxy.
What happens when a former federal judge faces an Alzheimer's diagnosis? For Stephanie Duncan-Peters and her husband Richard James, it becomes an opportunity to showcase remarkable resilience, joy, and a refreshing perspective on living with cognitive change. In Episode 105, Don and I have a deeply moving and uplifting conversation with Stephanie, whose impressive career spans nearly 20 years as a District of Columbia Superior Court judge appointed by President George H.W. Bush. Far from letting her diagnosis define her, Stephanie has recently published a children's book, "The Blue-Footed Booby Blues," about a dancing bird who loves to travel—mirroring her own passions. The couple shares how they met through dance lessons 12 years ago and continue to dance together today, demonstrating how activities that build "cognitive reserve" can remain accessible and joyful despite Alzheimer's. Their calm, matter-of-fact approach to the diagnosis stems partly from Stephanie's previous experience supporting a Harvard Law professor friend through his Alzheimer's journey. We explore fascinating concepts like cognitive reserve—how certain skills and passions often persist longer in people with dementia—and the way Alzheimer's can paradoxically create what host I call "the ultimate state of Zen," fostering heightened presence and appreciation for the now. Richard offers valuable insights from the care partner perspective, discussing how unexpected connections in his community led to crucial support resources. Their story beautifully illustrates how love, resilience, and maintaining meaningful activities create a fulfilling life even when facing significant health challenges. Whether you're navigating dementia in your own family or simply seeking inspiration on facing life's unexpected turns with grace, this conversation will leave you with renewed hope and practical wisdom for the journey ahead. Listen now and discover how, as the podcast name suggests, Love truly Conquers Alz. :) Much Love, Susie Connect with Stephanie and Richard through Kayla Mancuso - kayla@ballastbooks.com Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here. COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
In this episode of Care Lab, hosts Brandy and Emilia engage in a lighthearted discussion about their morning routines before transitioning into a serious conversation about significant changes in government policies affecting health and human services. They explore the implications of workforce reductions within the Department of Health and Human Services, particularly focusing on the impact of cuts to essential programs like Meals on Wheels, the economic benefits of investing in health, the extensive responsibilities of the Health and Human Services department, and the importance of institutional knowledge in navigating healthcare systems. They emphasize the need for strategic thinking in government cuts, the role of democracy in healthcare advocacy, and the necessity of community engagement to ensure that healthcare remains a priority. Find Care Equipment solutions at https://www.asksamie.com/ Learn about the future of care navigation at https://seniorai.app/
In this episode of our podcast, we have the pleasure of interviewing Jodi Benusa, a dedicated geriatric consultant who helps families find the ideal living arrangement for their aging loved ones. Her work is truly remarkable, as she goes beyond the surface to ensure that every placement is a perfect match. Jodi follows a unique and thorough approach to finding the right senior living community. She starts by asking the right questions to understand not only the medical and physical needs of the elderly person but also their personality, lifestyle, and personal preferences. She then reaches out to facility directors, sales teams, and receptionists to gain insight into the philosophy and culture of each institution, ensuring it aligns with the senior's values and way of life. Additionally, Jodi meticulously reviews records, investigates any reported violations, and identifies potential red flags to guarantee that the recommended facility is safe, reputable, and genuinely the best fit. Her diligence and expertise provide families with peace of mind, knowing that their loved ones will be well cared for in an environment that truly feels like home. Tune in to learn more about Jodi's insightful process and the importance of finding a place where seniors can thrive with dignity, comfort, and happiness. To reach Jodi http://www.usageriatricservices.com LinkedIN: https://www.linkedin.com/company/usa-geriatric-services/?viewAsMember=true Facebook: https://www.facebook.com/usageriatricservices Linktree: https://linktr.ee/USAGS
This week, I take you inside one of the hardest chapters of our journey—Week Five. My husband was deep in the trenches of treatment for head and neck cancer, and everything was unraveling. He could barely speak, eat, or drink, and his body was giving out. As his caregiver and medical advocate, I was doing everything I could to keep him alive—but we didn't agree on how to do that. He didn't want a feeding tube. I knew he wouldn't survive without one. The moment I had to tell the GI department he didn't consent to a consult—and then found out the wait time was two months—was the moment I realized just how fragile everything had become. This episode is about what happens when love, survival, and disagreement collide. It's about the emotional toll of caregiving when you're at odds with the person you're fighting for. It's raw, real, and a window into the quiet desperation that often gets left out of the story. Connect with me if you're on a similar path at www.carrieseverson.com or https://www.instagram.com/authorcarrieseverson/
In this episode of the WCN Fluencer podcast, Christopher MacLellan speaks with Dr. Justin Graham about Tell Mel, an innovative AI-driven platform designed to help caregivers capture and preserve their loved ones' stories. The conversation explores AI's empathetic nature, the importance of storytelling in caregiving, and Tell Mel's user-friendly experience. Justin shares insights into Mel's development, the onboarding process for users, and the future of AI in the caregiving space, emphasizing the need for empathy and connection in caregiving. To learn more about Tell Mel and their Mother's Day Special, visit Tell Mel online by clicking here! About Dr. Justin Graham: Dr. Graham, the co-founder of Tell Mel, is a seasoned physician executive and entrepreneur with over 15 years of experience in healthcare innovation, in addition to nearly 20 years of clinical practice. From serving as Chief Medical Officer at GYANT to leading health initiatives at Walmart's Store No. 8 and Hearst Health, Justin has dedicated his career to transforming clinical care through information technology and strategic leadership. He is a graduate of Harvard, UCSF, and Stanford, and the founder of the Bay Area Medical Informatics Society. Takeaways - -Tell Mel is an AI-driven platform for caregivers.- Mel helps capture personal stories through voice.- Empathy is crucial in caregiving and storytelling.- AI can provide emotional support and understanding.- The onboarding process is simple and user-friendly.- Mel remembers past conversations to enhance user experience.- Users can edit their memoirs by voice commands.- The platform addresses the challenges of technology for older generations.- AI in caregiving is a growing and impactful field.- Tell Mel aims to preserve family histories and memories.
We're getting back to the basics of hospice - talking about starting hospice care, and what you can expect from a hospice admission. Hospice nurse Beth Cavenaugh helps to navigate this topic. There are a lot of moving parts that compose the admission to hospice care. Here are some of the main things you should know about hospice admissions: The admission process includes assessment visits from the hospice nurse, social worker, and chaplain as well visits from other disciplines like a volunteer coordinator and an aide or CNA (Certified Nursing Assistant). Within the first 5 days of being admitted to hospice, a patient and their caregiver can expect visits from each of the core disciplines on the team (nurse, chaplain, social worker). This is due to hospice regulations and agency policies. Patients and caregivers have the right to refuse visits from certain disciplines on the team. A visit from the nurse at least every 2 weeks is required. It's always better to allow the assessment visits from each discipline to happen. This is the best way to find out what support each person from the team has to offer. While the process is lengthy and involves a lot of documentation, the time spent on an admission to hospice helps the team take better care of the patient and learn what matters most to them. Connect with guest host hospice nurse Beth Cavenaugh at bethcavenaugh.com Buy Beth's book Some Light at the End: Your Bedside Guide for Peaceful Palliative and Hospice Care Buy The Power and Pain of Nursing: Self-Care Practices to Protect and Replenish Compassion. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.
Today, my guest is Amy Fuchs, a Licensed Clinical Social Worker and Aging Life Care Professional with over 15 years of experience supporting families through the complexities of caregiving for aging loved ones. As the founder of The Elder Expert, Amy combines her compassion, empathy, and expertise to provide personalized care and guidance for older adults and their families. In today's episode, we'll discuss a challenging and all too familiar struggle: denial in caregiving. Whether it's denial from our care partners, our siblings, or even from ourselves, it's an obstacle many caregivers face. Amy shares practical strategies and insights to empower, cope, and manage it all. TRANSCRIPT The Elder Expert Daughterhood
In this episode of the Happy Healthy Caregiver podcast, we're joined by Carrie Severson—caregiver to her husband Gavin and a recognized expert in burnout. Carrie shares how her personal caregiving journey inspired her advocacy work, storytelling, and her podcast, I Saved You. Now, Do the Dishes. We dive into the difference between caregiver burnout and the entrepreneurial burnout Carrie previously experienced and spoke about. She also recounts a shocking experience with a disruptive healthcare professional and how she successfully had them removed from her care team. Plus, Carrie reveals some of her go-to self-care practices, including cold therapy, box breathing, and using music as a powerful healing tool. Show notes with product and resource links: https://bit.ly/HHCPod202 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
"He chose to keep living." - Amy Shaw When life takes an unexpected turn, how do you find the strength to carry on? JJ and Nat sit down with Amy Shaw to share her deeply moving story raising a large family, including children with special needs, and navigating the heartbreaking journey of her husband Brian's terminal illness. From the first signs of illness to the devastating diagnosis of brain cancer, Amy opens up about the raw emotions, challenges, and unwavering love that defined their final moments together. She reveals the lessons learned through caregiving, the impact on family life, and the importance of legacy, hope, and resilience.
In this engaging conversation, Chris and Josh explore Chris's journey to better health and adventure in his new endeavor: acting! A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™! AgingGayfully™ is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully™ is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully™ is a modern type of activism that supports the concept of belonging. AgingGayfully™ is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.