The Whole Care Network

In this episode of the WCNfluencer podcast, Christopher MacLellan speaks with Helen Bauer from the Heart of Hospice podcast. Helen and Chris discuss the importance of hospice care, the role of teams in caregiving, and the evolving perspectives in hospice nursing. Helen's four-part series with the Sanford Medicine Palliative Care team is an added bonus. It features a variety of guests who bring to life their experiences with hospice and palliative care. Throughout the episode, Helen shares insights from her experience and emphasizes the value of diverse voices in caregiving. They also explore hospice navigation services offered by the Heart of Hospice and how they can support families and caregivers in end-of-life care. To learn more about Helen, the Heart of Hospice Podcast, and the Hospice Navigation Services, visit https://www.theheartofhospice.com/ and the Heart of Hospice Whole Care Network landing page, where you can listen to the special four-part series with Sanford Medicine Palliative Care https://thewholecarenetwork.com/heart-of-hospice/ email Helen at Helen@theheartofhospice.com Takeaways The Heart of Hospice podcast aims to make difficult conversations easier. Team dynamics are crucial in providing effective hospice care. Caregivers, whether family or not, play a vital role in patient care. Open-mindedness in nursing can lead to better patient relationships. Language used in healthcare can impact caregiver perceptions. Diverse voices in caregiving enrich the conversation around hospice. Hospice navigation services provide unbiased support and information. Remote caregivers also contribute significantly to the caregiving team. Every caregiver's perspective has value and can benefit others. The Heart of Hospice podcast has over 560 episodes, amplifying various voices. Chapters 00:00 Introduction to the Heart of Hospice Podcast 03:07 The Importance of Team in Hospice Care 06:02 Evolving Perspectives in Hospice Nursing 09:06 The Value of Diverse Voices in Caregiving 12:11 Understanding Hospice Navigation Services 14:47 Connecting with the Heart of Hospice

Christy Byrne Yates of Alz Authors has experienced all the unique challenges of sandwich caregiving.  Caring for both of her parents with neurodegenerative diseases (dementia and Alzheimer's disease) while she raised young kids taught her lessons she now shares with other caregivers. In this open and honest conversation, Christy shares the good times and the struggles of her caregiving experience.  Christy is a Licensed Educational Psychologist, author, speaker, and coach. In Building a Legacy of Love: Thriving in the Sandwich Generation, she shares her journey as a working mom caring for parents with dementia. A retired school psychologist, she now delivers keynotes, workshops, and coaching to support caregiving families. Christy co-hosts Untangling Alzheimer's & Dementia, a podcast by AlzAuthors.com, and has been featured in Women's World Magazine (Jan 2025) and has been interviewed on over 20 podcasts. She's also a contributing writer on Sandwich Generation caregiving topics. Connect with Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation  Website: ChristyYates.com Buy the book: Building a Legacy of Love Media for Christy Yates Links-in-bio: Christy Byrne Yates: Coaching Caregivers Social Media: Facebook  Instagram  LinkedIn  Bluesky   YouTube Social Media for GrandPad:  Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Adding a new caregiver to your support team can be a challenging transition, whether they're coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer's or dementia, as changes in routine can cause confusion and resistance. If your loved one doesn't think they need help (and let's be honest, many don't), don't give up too quickly. Be patient and allow the process time to unfold. As one experienced caregiver shared, "He told the new caregiver for at least the first couple of weeks, every time she came, 'You need to go home.' She would just smile at him and say, 'Well, I'm not going home just yet.'"

In this raw and unfiltered episode of I Saved You. Now Do the Dishes, I walk you through the moment my husband finally faced what he'd been resisting: the need for a feeding tube. What should have been a moment of compassionate care turned into something else entirely—his physician assistant laughed, told him he made her job harder, and actually said we should pray to our lucky stars she could “work her magic” to get him a feeding tube. Unprofessional doesn't even begin to cover it. I got in her face. I yelled. And then I got Gavin admitted to the ER. His white blood cell count was so low, the attending ER physician said Gavin's body was close to shutting down. He was checked into the long-term cancer wing. This is a story about thresholds—of health, of patience, of love—and what happens when you're forced to cross them all at once. If you're a caregiver, I'd love to hear from you. Reach out to me at https://carrieseverson.com/home/ or follow me at https://www.instagram.com/authorcarrieseverson/

In May we pay tribute to the generations of Asian and Pacific Islanders who have enriched America's history and are instrumental in its future success. This caregiver spotlight episode echoes all of these sentiments. Meet Paurvi Bhatt, a dedicated family caregiver, care advocate, and second-generation Indian American with deep personal and professional caregiving experience. Raised in a family of caregivers, Paurvi spent nearly 30 years balancing her career as a ‘working daughter' while managing caregiving responsibilities. In this episode of the Happy Healthy Caregiver podcast, we explore critical gaps in the U.S. care economy, particularly for first- and second-generation immigrants, including challenges with language, care plans, and services. We also discuss the concept of “shadow resumes” and how the skills we develop as family caregivers not only support our loved ones but also enhance our professional lives. Paurvi shares how she built a strong care team as an only adult child, the resources that helped her navigate caregiving, and the impactful work being done by the Rosalynn Carter Institute for Caregivers. Plus, we get a glimpse into what she would do if she had unlimited time for herself! Show notes with product and resource links: https://bit.ly/HHCPod204 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

If you or someone you love has ever faced a health scare, this is a conversation you won't want to miss. My guest today is Dr. Edward G. Rogoff, an accomplished educator and advocate whose personal journey is nothing short of extraordinary. Diagnosed with hemophilia as a child, Dr. Rogoff faced a lifetime of uncertainty—until a liver transplant in adulthood led to an unexpected cure. His experience sparked a lifelong commitment to patient advocacy, organ donation awareness, and reshaping how we approach chronic illness. He's served on the boards of the Hemophilia Association of New York since 1980 and LiveOnNY, the major organ donor organization for the New York City metropolitan area, and now he's sharing his wisdom in his new book: "Scary Diagnosis: Navigating Fear, Finding Strength, and Securing the Health Care You Deserve." In this conversation, we explore the power of building the right medical team, managing uncertainty, denial, having tough conversations, staying resilient and how to not let a scary diagnosis overtake your life and keep it all in perspective. TRANSCRIPT Scary Diagnosis Navigating Fear, Finding Strength, and Securing the Health Care You Deserve  Daughterhood

In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children's book, Come Grandpa Meow, Let's Fly, adds a much-needed resource for families navigating the challenges of Alzheimer's and dementia. A Personal Story Sparked by Loss Carol's journey began more than 25 years ago, during her own father's struggle with Alzheimer's. She originally wrote the book as part of her grieving process, but it wasn't until she'd spent years working at both local and national Alzheimer's organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol's children's book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don't just take our word for it—Come Grandpa Meow, Let's Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you're a caregiver, educator, parent, or grandparent, Carol's book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

In this conversation, Josh and Chris discuss the importance of authenticity in storytelling, particularly Chris' relationship with deceased partner Richard and their journey through terminal illness. Throughout the episode, Chris reflects on the emotional complexities of revisiting memories while working on a film adaptation of their story. The discussion also touches on the broader implications of personal narratives in fostering empathy and societal change, emphasizing love and commitment as universal themes. Quote Chris referenced in the new title of the film "She had studied the universe all her life, but had overlooked its clearest message: For small creatures such as we, the vastness is bearable only through love."

Today on the podcast, we are joined by Miriam Bahar, a specialist in movement and transitions, who provides compassionate support to individuals—especially older adults—during the significant life event of relocating to a new home. Miriam shares how moving is not simply about changing addresses; it is a deeply emotional and meaningful process. For many seniors, parting with personal belongings can be difficult, as these items often hold sentimental value and are linked to cherished memories. She emphasizes the importance of having support during this time—someone who can walk alongside them with empathy and understanding, helping them make thoughtful decisions about what to keep, what to donate, and what truly serves them in the present. One of Miriam's core principles is focusing on what is currently useful and necessary. In her experience, simplifying one's space by keeping only what is actively used allows for a more peaceful and manageable transition. She also reminds us that people often hold onto objects not for their utility but for the emotional significance they carry. Navigating this attachment with care and sensitivity is essential in her work. Beyond emotional support, Miriam highlights the importance of planning for safety. She encourages individuals and families to take future mobility and accessibility into account when choosing a new home or arranging a living space. Proactively creating a safe and comfortable environment plays a key role in maintaining independence and quality of life as we age. Miriam's work serves as a beautiful reminder that moving can be a healing process—a chance to reflect, simplify, and look ahead with clarity and confidence.

In this episode of the WCNfuencer podcast, Host Christopher MacLellan welcomes author Carrie Severson, a new podcaster and caregiver advocate to the Whole Care Network. Carrie shares her personal journey of caregiving for her husband during his battle with cancer, emphasizing the importance of humor and mental health in caregiving. The conversation explores the challenges of navigating the healthcare system, the emotional toll of caregiving, and the transformative power of storytelling. Carrie discusses her podcast, 'I Saved You Now Do The Dishes,' which aims to provide support and resources for caregivers, as well as her books and speaking engagements focused on burnout recovery and caregiver advocacy. Takeaways * Caregiving can be a heavy burden, but humor helps. * Finding balance is crucial for caregivers. * Support groups can often feel overwhelming and negative. * Caregivers need to prioritize their mental health. * Navigating the healthcare system requires advocacy and persistence. * The emotional journey of caregiving is complex and multifaceted. * Storytelling can be a powerful tool for healing and connection. * Podcasts can provide a platform for sharing experiences and insights. * Books and seminars can help address caregiver burnout. * Connecting with others in similar situations can provide comfort and support. Subscribe to "I Saved You Now Do The Dishes" on your favorite podcast platform! To learn more about Carrie and her books, visit. https://carrieseverson.com/ and https://thewholecarenetwork.com/i-saved-you-now-do-the-dishes/

We're getting back to the basics of hospice care with Hospice Social Worker Lisa Pahl to talk about who's on the hospice team and what each person brings to the care of patients and caregivers. This episode focuses on the core members of the hospice interdisciplinary team (doctor, nurse, social worker, and chaplain) as well as hospice aides (Certified Nurse Assistants) and hospice volunteers. Each person on a hospice team brings very specific and essential skills to the care of patients, and the support of their families and caregivers. The best care of a hospice patient includes everyone on the hospice team. This enables the care of the patient to meet all the needs of body, mind, and spirit. Connect with Lisa Pahl, owner/creator (thedeathdeck.com) The Death Deck and End of Life Deck Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com. Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

Meet Jim Cooper who has been married for 40+ years and cared for his wife who had brain cancer. Jim is a man of many talents and experiences. He has been a radio DJ, real estate broker, IT consultant, author, podcaster, and currently is a voice over professional who narrates audiobooks. In this episode, Jim and I discuss the value of staying connected to friends, family, health professionals, and other caregivers. We talk about his self-care strategies and passions that helped him during his intense caregiving years and now as a human who lives without regret. You'll also want to stay tuned to learn about the special giveaway Jim is offering to some of our listeners. Show notes with product and resource links: https://bit.ly/HHCPod203 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

Carrie Aalberts (AKA the Dementia Darling) supports dementia caregivers with her heart and soul, and a whole lot of strength. With a Master of Science specializing in Gerontology and over a decade of hands-on experience in various care settings, Carrie has established herself as a leading voice in dementia education and support. As the founder of Dementia Darling, she has cultivated an online community of more than 63,000 followers, creating a nurturing space for caregivers to find education, resources, and support. Carrie's mission is to empower caregivers by fighting isolation, challenge prevailing narratives about dementia and aging, and foster moments of joy. As a full-time educator and advocate, she continues to push boundaries in dementia care, creating a movement that celebrates life and builds a supportive community. Connect with Carrie Aalberts on social media - @dementiadarling, or through her podcast "Gather Darlings" to join her mission of spreading knowledge and understanding the dementia and caregiving community. Website: dementiadarling.com Social media: Instagram LinkedIn Facebook TikTok YouTube Listen to the Gather Darlings Podcast here Interested in purchasing a GrandPad to stay connected with a senior loved one? Get more information at grandpad.net/thoh GrandPad website: grandpad.net Social Media for GrandPad: Facebook Instagram LinkedIn YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com Find more podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com

Do you want to gain a deeper understanding of the impact of dementia on marriages? If you're seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support. Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed. Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships. Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one. Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra's expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra's AlzAuthors blog post Visit Debra's website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder and CEO of Eleplan, about what a care plan is and how to create one that works for your unique situation. Amanda's journey to creating Eleplan was deeply personal. Her brother Liam, who has autism, is her "North Star" and the inspiration behind her career path, including going to law school for special education law. Through observing her parents' caregiving journey with Liam, Amanda recognized the need to capture all the knowledge that lived in her parents' heads so that others could provide care that truly honored who Liam is as a person. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Additional Resources Mentioned Episode 32: Navigating The Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/Eleplan Website: https://www.eleplan.com/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Full Show Notes https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias Takeaways Tip 1: Start with the Basics The first step in creating a care plan is to document the essential information that would allow someone to provide short-term care (even for just 30 minutes) while you step out. This includes: Emergency contactsMedications and dosagesHigh-level meal preferencesAllergiesRelevant medical conditions Tip 2: Outline Preferences and Daily Routines Beyond the basics, a good care plan should capture what makes your loved one unique—their preferences, personality traits, and daily routines. Your care plan should include: Likes and dislikesDaily schedule and routinesBedtime and morning ritualsBehavioral patternsEmotional triggers (both positive and negative) Tip 3: Document What to Do in an Emergency Crisis situations demand clear instructions. Your care plan should outline: What constitutes an emergency for your loved oneWhen to call 911 vs. other resourcesWho to contact and in what orderSpecial instructions for EMTs or ER staffLocation of important medical documents Tip 4: Collect Key Contacts and Documents Gathering important documents in one accessible location is critical for seamless care. This includes: Insurance cardsHealthcare directivesPower of Attorney documentsGuardianship formsMedical history and medication lists Tip 5: Keep Everything Accessible and Current A care plan is only effective if it's up-to-date and easily accessible. Amanda frames this with an important question: "Do I have a system that is as dynamic as the needs of my loved one and the ever-changing piles of documents and information?" Whether you're using a physical binder, shared digital documents, or a specialized platform like Eleplan, the key is having a system that makes updates easy and ensures the information is available whenever and wherever it's needed. Read More in This Blog

“Caregiving never ends. No, it never stops.” - Natalie and JJ  Caregiving is a journey—full of love, lessons, and let's be honest, a few laughs along the way. In this candid conversation, we dive into the realities of caregiving: navigating skilled nursing facilities, managing emotional and financial stress, and finding strength in community. We're also sharing what's in store for 2025 and beyond. Too good to miss!

Working caregivers, are you feeling overwhelmed trying to balance it all? Many don't know about the resources & benefits available to them through their employers. This week, Kathy Sikorski, an elder law attorney, and Jen Fink, your host, uncover the hidden gems in your employee benefits package that can ease your caregiving burden. Discover the benefits that can give you back precious time and energy. Are you leaving money and support on the table? Tune in to find out! Additional resources mentioned in this episode: Legal BenefitsLong Term Care InsuranceFinancial AdvisorFMLAMental Health BenefitPhysical Health Benefits Our Guest: Cathy Sikorski, Esq. a Speaker, Elder Lawyer, Author and Media Guest unravels the complex financial and legal problems in the caregiving crisis.Cathy uses her own caregiver experience and expertise to educate, entertain and elevate the conversation around work, money, aging and caregiving. In October 2021, Corner Office Books released her latest book 12 Conversations: How to Talk to Almost Anyone about Long-Term Care Planning. Click below to connect with Cathy at Facebook. Or go to her website www.cathysikorski.com  

In our latest Care Lab podcast episode, we had the pleasure of sitting down with Ashley Mahoney—an occupational therapist who made a bold pivot into real estate—to explore a powerful question: What happens when the principles of OT shape the way we help people find homes? From Kansas City resources to national insights, we dive into: How accessibility and aging-in-place goals impact home buying The emotional weight of transitions for older adults and families Why community representation and advocacy matter in real estate What to look for in a real estate agent who truly understands accessibility needs #CareLabPodcast #OccupationalTherapy #RealEstate #AgingInPlace #Accessibility #SeniorCare #CaregiverSupport #HealthcareInnovation #InclusiveHousing Find Care Equipment solutions at https://www.asksamie.com/ Learn about the future of care navigation at https://seniorai.app/

In today's podcast episode, we have the pleasure of speaking with Judy Swanson, who shares valuable insights on mental health and well-being. She provides practical tips on how to cultivate small sparks of joy in everyday life and emphasizes the importance of being kinder to yourself. Judy encourages us to practice gratitude daily, engage in acts of kindness, smile more often, and find joy in the simple beauty of nature. She also explains how the way we phrase our thoughts and words can significantly impact our mood. For example, shifting from saying “I have to” to “I get to” can create a more positive mindset. Additionally, she reminds us to focus on small but essential habits, such as staying hydrated, nourishing our bodies with healthy foods, and incorporating movement into our daily routine. By shifting our focus to the positive, we can enhance our well-being and cultivate a more joyful and fulfilling life. Tune in for an uplifting conversation filled with wisdom and practical steps to nurture both your mind and spirit! To reach Judi Website: https://kindnesschampions.com/ Facebook: https://www.facebook.com/KindnessChampions/ Instagram: @kindness_champs https://www.instagram.com/kindness_champs/?hl=en X/Twitter: @KindnessChamps Blue Sky: @kindnesschampions.bsky.social LinkedIn: Judi Swanson and Kindness Champions Email: kindnesschampions2020@gmail.com

In this episode of I Saved You. Now, Do the Dishes., I'm sounding the alarm for caregivers walking the brutal line between cancer treatment and pain management. This one is personal. My husband had just been prescribed opioids for pain. And nobody gave him any additional or alternative instructions for days he had chemo. No one warned us about side effects chemo has with Oxy.

What happens when a former federal judge faces an Alzheimer's diagnosis? For Stephanie Duncan-Peters and her husband Richard James, it becomes an opportunity to showcase remarkable resilience, joy, and a refreshing perspective on living with cognitive change. In Episode 105, Don and I have a deeply moving and uplifting conversation with Stephanie, whose impressive career spans nearly 20 years as a District of Columbia Superior Court judge appointed by President George H.W. Bush.  Far from letting her diagnosis define her, Stephanie has recently published a children's book, "The Blue-Footed Booby Blues," about a dancing bird who loves to travel—mirroring her own passions. The couple shares how they met through dance lessons 12 years ago and continue to dance together today, demonstrating how activities that build "cognitive reserve" can remain accessible and joyful despite Alzheimer's. Their calm, matter-of-fact approach to the diagnosis stems partly from Stephanie's previous experience supporting a Harvard Law professor friend through his Alzheimer's journey. We explore fascinating concepts like cognitive reserve—how certain skills and passions often persist longer in people with dementia—and the way Alzheimer's can paradoxically create what host I call "the ultimate state of Zen," fostering heightened presence and appreciation for the now. Richard offers valuable insights from the care partner perspective, discussing how unexpected connections in his community led to crucial support resources. Their story beautifully illustrates how love, resilience, and maintaining meaningful activities create a fulfilling life even when facing significant health challenges. Whether you're navigating dementia in your own family or simply seeking inspiration on facing life's unexpected turns with grace, this conversation will leave you with renewed hope and practical wisdom for the journey ahead. Listen now and discover how, as the podcast name suggests, Love truly Conquers Alz. :)  Much Love, Susie Connect with Stephanie and Richard through Kayla Mancuso - kayla@ballastbooks.com  Support the show Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information. YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here. COUPON CODE: LCA20 for 20% Off No Minimum Learn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok 

In this episode of Care Lab, hosts Brandy and Emilia engage in a lighthearted discussion about their morning routines before transitioning into a serious conversation about significant changes in government policies affecting health and human services. They explore the implications of workforce reductions within the Department of Health and Human Services, particularly focusing on the impact of cuts to essential programs like Meals on Wheels, the economic benefits of investing in health, the extensive responsibilities of the Health and Human Services department, and the importance of institutional knowledge in navigating healthcare systems. They emphasize the need for strategic thinking in government cuts, the role of democracy in healthcare advocacy, and the necessity of community engagement to ensure that healthcare remains a priority. Find Care Equipment solutions at https://www.asksamie.com/ Learn about the future of care navigation at https://seniorai.app/

In this episode of our podcast, we have the pleasure of interviewing Jodi Benusa, a dedicated geriatric consultant who helps families find the ideal living arrangement for their aging loved ones. Her work is truly remarkable, as she goes beyond the surface to ensure that every placement is a perfect match. Jodi follows a unique and thorough approach to finding the right senior living community. She starts by asking the right questions to understand not only the medical and physical needs of the elderly person but also their personality, lifestyle, and personal preferences. She then reaches out to facility directors, sales teams, and receptionists to gain insight into the philosophy and culture of each institution, ensuring it aligns with the senior's values and way of life. Additionally, Jodi meticulously reviews records, investigates any reported violations, and identifies potential red flags to guarantee that the recommended facility is safe, reputable, and genuinely the best fit. Her diligence and expertise provide families with peace of mind, knowing that their loved ones will be well cared for in an environment that truly feels like home. Tune in to learn more about Jodi's insightful process and the importance of finding a place where seniors can thrive with dignity, comfort, and happiness. To reach Jodi http://www.usageriatricservices.com LinkedIN: https://www.linkedin.com/company/usa-geriatric-services/?viewAsMember=true Facebook: https://www.facebook.com/usageriatricservices Linktree: https://linktr.ee/USAGS

This week, I take you inside one of the hardest chapters of our journey—Week Five. My husband was deep in the trenches of treatment for head and neck cancer, and everything was unraveling. He could barely speak, eat, or drink, and his body was giving out. As his caregiver and medical advocate, I was doing everything I could to keep him alive—but we didn't agree on how to do that. He didn't want a feeding tube. I knew he wouldn't survive without one. The moment I had to tell the GI department he didn't consent to a consult—and then found out the wait time was two months—was the moment I realized just how fragile everything had become. This episode is about what happens when love, survival, and disagreement collide. It's about the emotional toll of caregiving when you're at odds with the person you're fighting for. It's raw, real, and a window into the quiet desperation that often gets left out of the story. Connect with me if you're on a similar path at www.carrieseverson.com or https://www.instagram.com/authorcarrieseverson/

In this episode of the WCN Fluencer podcast, Christopher MacLellan speaks with Dr. Justin Graham about Tell Mel, an innovative AI-driven platform designed to help caregivers capture and preserve their loved ones' stories. The conversation explores AI's empathetic nature, the importance of storytelling in caregiving, and Tell Mel's user-friendly experience. Justin shares insights into Mel's development, the onboarding process for users, and the future of AI in the caregiving space, emphasizing the need for empathy and connection in caregiving. To learn more about Tell Mel and their Mother's Day Special, visit Tell Mel online by clicking here! About Dr. Justin Graham: Dr. Graham, the co-founder of Tell Mel, is a seasoned physician executive and entrepreneur with over 15 years of experience in healthcare innovation, in addition to nearly 20 years of clinical practice. From serving as Chief Medical Officer at GYANT to leading health initiatives at Walmart's Store No. 8 and Hearst Health, Justin has dedicated his career to transforming clinical care through information technology and strategic leadership. He is a graduate of Harvard, UCSF, and Stanford, and the founder of the Bay Area Medical Informatics Society. Takeaways - -Tell Mel is an AI-driven platform for caregivers.- Mel helps capture personal stories through voice.- Empathy is crucial in caregiving and storytelling.- AI can provide emotional support and understanding.- The onboarding process is simple and user-friendly.- Mel remembers past conversations to enhance user experience.- Users can edit their memoirs by voice commands.- The platform addresses the challenges of technology for older generations.- AI in caregiving is a growing and impactful field.- Tell Mel aims to preserve family histories and memories.

We're getting back to the basics of hospice - talking about starting hospice care, and what you can expect from a hospice admission. Hospice nurse Beth Cavenaugh helps to navigate this topic. There are a lot of moving parts that compose the admission to hospice care. Here are some of the main things you should know about hospice admissions: The admission process includes assessment visits from the hospice nurse, social worker, and chaplain as well visits from other disciplines like a volunteer coordinator and an aide or CNA (Certified Nursing Assistant). Within the first 5 days of being admitted to hospice, a patient and their caregiver can expect visits from each of the core disciplines on the team (nurse, chaplain, social worker). This is due to hospice regulations and agency policies. Patients and caregivers have the right to refuse visits from certain disciplines on the team. A visit from the nurse at least every 2 weeks is required. It's always better to allow the assessment visits from each discipline to happen. This is the best way to find out what support each person from the team has to offer. While the process is lengthy and involves a lot of documentation, the time spent on an admission to hospice helps the team take better care of the patient and learn what matters most to them. Connect with guest host hospice nurse Beth Cavenaugh at bethcavenaugh.com Buy Beth's book Some Light at the End: Your Bedside Guide for Peaceful Palliative and Hospice Care Buy The Power and Pain of Nursing: Self-Care Practices to Protect and Replenish Compassion. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Today, my guest is Amy Fuchs, a Licensed Clinical Social Worker and Aging Life Care Professional with over 15 years of experience supporting families through the complexities of caregiving for aging loved ones. As the founder of The Elder Expert, Amy combines her compassion, empathy, and expertise to provide personalized care and guidance for older adults and their families. In today's episode, we'll discuss a challenging and all too familiar struggle: denial in caregiving. Whether it's denial from our care partners, our siblings, or even from ourselves, it's an obstacle many caregivers face. Amy shares practical strategies and insights to empower, cope, and manage it all. TRANSCRIPT The Elder Expert Daughterhood

In this episode of the Happy Healthy Caregiver podcast, we're joined by Carrie Severson—caregiver to her husband Gavin and a recognized expert in burnout. Carrie shares how her personal caregiving journey inspired her advocacy work, storytelling, and her podcast, I Saved You. Now, Do the Dishes. We dive into the difference between caregiver burnout and the entrepreneurial burnout Carrie previously experienced and spoke about. She also recounts a shocking experience with a disruptive healthcare professional and how she successfully had them removed from her care team. Plus, Carrie reveals some of her go-to self-care practices, including cold therapy, box breathing, and using music as a powerful healing tool. Show notes with product and resource links: https://bit.ly/HHCPod202 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

"He chose to keep living." - Amy Shaw When life takes an unexpected turn, how do you find the strength to carry on? JJ and Nat sit down with Amy Shaw to share her deeply moving story raising a large family, including children with special needs, and navigating the heartbreaking journey of her husband Brian's terminal illness. From the first signs of illness to the devastating diagnosis of brain cancer, Amy opens up about the raw emotions, challenges, and unwavering love that defined their final moments together. She reveals the lessons learned through caregiving, the impact on family life, and the importance of legacy, hope, and resilience.

In this engaging conversation, Chris and Josh explore Chris's journey to better health and adventure in his new endeavor: acting! A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?... Say AgingGayfully™! AgingGayfully™ is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully™ is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully™ is a modern type of activism that supports the concept of belonging. AgingGayfully™ is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Travel Hacks for Dementia Caregivers: Unlock the Secrets to Stress-Free Adventures Ever dreamed of taking that family vacation, but worried about how to manage your loved one's dementia away from home? Traveling with dementia can feel daunting, but it doesn't have to mean the end of your adventures. Join us as we chat with travel expert Adriane Berg and uncover practical travel hacks specifically for dementia caregivers. We'll discuss: Planning strategies: Choosing dementia-friendly destinations and accommodations. Packing essentials: Must-have items for comfort and safety. On-the-go tips: Managing challenges during flights, car rides, and excursions. Communication techniques: Navigating potentially stressful situations with ease. Get ready to rediscover the joy of travel with your loved one!

What if the deepest wounds aren't physical, but spiritual? In this powerful episode, hospice nurse practitioner Deborah Grassman introduces the concept of Soul Injury—a disconnection from our sense of self, often rooted in trauma, grief, and unresolved emotional pain. Drawing on her decades of work with veterans and dying patients, Deborah shares how recognizing and healing these unseen wounds can lead to profound self-acceptance and inner peace. This is more than a conversation—it's an invitation to reconnect with your true self.

Today, we are thrilled to celebrate a major milestone—our 100th podcast episode! This journey has been incredible, and we are so grateful to have you as part of our community. Every episode has been an opportunity to learn, grow, and connect, and we couldn't have done it without you. No matter where you are, we invite you to celebrate with us! Whether it's by sharing your favorite episode, reflecting on the insights gained, or simply taking a moment to appreciate this journey, let's make this a special occasion together. Thank you for being with us every step of the way. Here's to 100 episodes—and many more to come!

In this episode of I Saved You. Now, Do the Dishes., I pull back the curtain on the chaotic world of cancer treatment scheduling and pain management. Spoiler: it's less “organized care plan” and more “full-time logistical nightmare.” From juggling 12 appointments in a week to coordinating three different pharmacy pick-ups (yes, really) for five different drugs, I talk about what it's like to be the caregiver, the calendar, and the human pharmacy technician—all while trying to make sure my husband isn't suffering in silence. If you've ever felt like managing care takes more energy than the illness itself, this one's for you. You're not alone. And yes, it's okay to have someone else do the damn dishes.

In this episode of the WCN Author's Spotlight, Host Christopher MacLellan interviews Alfredo Botello, author of 'Spin Cycle: Notes from a Reluctant Caregiver.' Throughout the episode, Alfredo talks about his journey as a caregiver for his mother diagnosed with Alzheimer's, the emotional challenges he faced, and the importance of humor and compassion in caregiving. Alfredo shares insights on how to connect with loved ones experiencing cognitive decline and offers advice for new caregivers. The conversation emphasizes the shared experiences of caregivers and the need for emotional support and understanding in the caregiving community. About Author Alfredo Botello - Alfredo Botello is a novelist and screenwriter who has worked on projects ranging from the indie Sundance Global Short La Revolucion De Iguodala to the studio tent pole Fast and Furious 9. His debut novel, 180 Days, has garnered multiple literary awards. His second novel, Spin Cycle: Notes From A Reluctant Caregiver, was just published by Koehler Books on 1.14.25, and has won in two categories for the Firebird Book Awards: “contemporary novel” and “caregiving.” He is a Fulbright Fellow in architecture and a Nicholl Fellow in screenwriting. In addition to screenplays and novels, he contributed a chapter to the Amazon bestseller Wellness Through Words. Botello co-owns a cocktail bar in downtown Oakland, Little Bird Bar, and at home dotes on his two Corgis, George and Dotty. Learn more about Alfredo and purchase "Spin Cycle Notes from a Reluctant Caregiver visit: https://alfredobotello.com/ Important Takeaways: - Alfredo Botello has been a caregiver for his mother, diagnosed with Alzheimer's. - The emotional journey of caregiving can be overwhelming and isolating. - Humor can be a vital tool in navigating the challenges of caregiving. - It's important to enter the reality of the person you are caring for. - Shared memories can strengthen connections with loved ones. - Compassion and understanding are crucial in caregiving. - Caregivers often feel they are not alone in their struggles. - The importance of self-reflection and learning from experiences. - Alfredo's book aims to provide comfort to caregivers. - Everyone will likely need a caregiver at some point in their lives.

Patty Webster of The Conversation Project is talking with me about the swoopers and seagulls that are sometimes part of the caregiving experience. As part of her caregiving journey with her dad and siblings, Patty realized that she had been a “swooper”, offering her opinions about her dad's care during an intermittent visit.  Here's what Patty says she learned: Supporting the primary caregiver is an important part of caregiving from a distance.“Swoopers” and “seagulls” tend to offer input into the actions of the primary caregiver creating a mess in the care of their Person.  Patty and her siblings had to learn from her dad how he defined quality of life, and then support him in the right ways. Knowing each other's strengths is the key to success of a caregiving team.Shifting the approach to communication when it's not working, and listening to each other is vital to creating the best caregiving environment.  Supporting your Person's decisions about care contributes to feelings of confidence and comfort.   Patty and the team at The Conversation Project offer multiple resources for end of life conversations, offering resources for making end of life wishes known.  Website: theconversationproject.org Social media: Facebook Twitter   Instagram YouTube        Connect with The Conversation Project with questions (and to donate to support their work!) here        Need to have a conversation about end of life? Get started with resources from The Conversation Project. Interested in purchasing a GrandPad to stay connected with a senior loved one?  Get more information at https://www.grandpad.net/thoh. GrandPad website: https://www.grandpad.net/ Social Media for GrandPad https://facebook.com/grandpad https://instagram.com/grandpad_social/ https://www.linkedin.com/company/grandpad https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.  Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

In this fourth and final episode of our special series in partnership with Stanford Healthcare, our guest Susan Evans shares the ins and outs of caregiving, and talks about her work to support other caregivers dealing with the challenges of Alzheimer's Disease. As a caregiver, Susan worked to ensure her dad was safe and well cared for. She and her brother incorporated humor into their caregiving journey, and now she works to ensure other caregivers have the resources they need. Here are a few highlights from our conversation: Susan knows the power of story sharing, and how caregivers can learn from each other. When her dad began experiencing symptoms of Alzheimer's Disease, he took himself to his doctor at Stanford Healthcare. Susan recommends taking advantage of the present time caregivers have, to be in the moment instead of trying to remind your person of things they can't recall. Challenges from Alzheimer's Disease vary from person to person, and caregiver to caregiver. Despite the hard times, Susan has found fulfillment and meaning in her caregiving roles. You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org Connect with our special series sponsor Kensington Senior Living: Website: https://kensingtonseniorliving.com/ Social media: Instagram LinkedIn Facebook Information for Jennifer O'Brien Website: jenniferaobrien.com Read more about Jennifer O'Brien here. Purchase your copy of Care Boss by Jennifer O'Brien here. Buy your copy of The Hospice Doctor's Widow: An Art Journal of Caregiving and Grief here. Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Dr. Tina Sadarangani is a sandwich generation caregiver and a NYU Assistant Professor who is a board-certified adult and geriatric nurse practitioner. Even though she is a clinician and has a PhD focused on aging, she still finds navigating our healthcare system difficult as the quarterback of the family's care team. In this episode, we talk about what Dr. Tina would do to improve our healthcare system for family caregivers, her mobile app that helps families better manage a person's day to day health needs, what grief relief feels like, why boundaries are game changers for her, and how she got lucky in life. Show notes with product and resource links: https://bit.ly/HHCPod201 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

In this tips-loaded conversation, Brandy and Emilia challenge the common belief that aging means either living fully independently or moving into a nursing home. The reality? There's a wide spectrum of possibilities in between—and understanding those options is essential for individuals, families, and professionals working in senior care. Whether you're a caregiver, healthcare professional, or planning for your own future, this conversation offers thoughtful insights into aging with dignity, support, and community.

We don't know what we don't know. But elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you're dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how and when to work with an elder law attorney can make all the difference in your journey. In this episode, we'll explore four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with a Master of Laws in elder law. Their expertise in Medicaid planning, VA benefits, estate planning, probate, trust administration, and guardianship offers valuable perspective for anyone navigating the complex legal landscape of aging and caregiving. Connect with us and share your tips: Website: https://www.thecaregiversjourney.com Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/TheCaregiversJourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.com, nancy@thecaregiversjourney.com Full Show Notes https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned www.NAELA.org The National Academy of Elder Law Attorneys website has a searchable directory. "They have a really good search function where you can type in your zip code and find elder law attorneys within a certain radius," Courtney notes. State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (www.AFELA.org). Beth Prather: https://www.gskattorneys.com/attorneys/beth-a-prather/ Courtney Lovejoy: https://www.gskattorneys.com/attorneys/courtney-van-emmerik-lovejoy/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: How to Find an Attorney Who Specializes in Elder Law Finding the right elder law attorney requires more than just a quick Google search. Here's how to identify professionals with genuine expertise in this specialized field: Look for Specialized Credentials Professional credentials can be helpful indicators of specialized knowledge in elder law: Board Certification: I Master of Laws (LLM) in Elder Law: Ask the Right Questions How many Medicaid applications did they file last year? What percentage of their practice focuses on elder law? Do they handle guardianships, Medicaid planning, or VA benefits cases regularly? Use Reliable Resources to Find Specialists NAELA.org: State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (AFELA.org). Personal referrals: Tip 2: Prioritize These Legal Documents and Planning Tools Once you've found an elder law attorney, certain planning tools should take priority: Comprehensive Durable Power of Attorney Consider Long-Term Care Insurance Limit or Avoid Gifting Avoid DIY Planning Common DIY mistakes include: Adding children to bank accounts or property titles Giving away assets based on outdated or incorrect advice Trying to "hide" assets from Medicaid Tip 3: Understand Medicaid and VA Benefits Options A significant part of elder law involves helping clients navigate government benefits for long-term care: Tip 4: Use This Time to Address Other Important Legal Matters Review Beneficiary Designations Create an Asset Inventory Consider Account Consolidation Address Healthcare Decision Documents Be Cautious About Adding Others to Accounts or Deeds Discuss End-of-Life Preferences

David Bredbenner, author of "Going Home: A Journey with Dementia," shares his profound experience caring for his mother through her journey with dementia. Before dementia, Betty Jane was a dynamo - a retired nurse turned successful artist who ran marathons well into her late 70s. The decline began subtly after a fall, but it was the passing of David's sister Terry that marked the stark transition into full-blown dementia One of David's most powerful lessons was learning to "throw logic right out the window." Traditional reasoning and reality-checking only led to frustration. Instead, he discovered the transformative power of meeting his mother where she was, using humor and creative redirection rather than confrontation. Despite working in technology and traveling frequently, David and his sister made the conscious choice to keep their mother at home. While acknowledging it wasn't always possible for everyone, he describes it as both "pure hell" at times and "an absolute gift." The journey taught him profound patience and the importance of focusing on emotional connection rather than factual accuracy. Even in the most challenging moments - like when his mother became combative or refused care - David found that humor and gentle persistence could break through where logic failed. Perhaps most touching was David's reflection on love transcending understanding: "She knew she was loved...and she didn't have to know why." This simple but profound observation captures the essence of caring for someone with dementia - that connection and comfort matter more than comprehension. In this episode, you will: · Discover effective strategies for caring for a parent with dementia. · Understand the emotional journey of being a dementia caregiver and how to navigate it. · Explore the impact of Alzheimer's on family dynamics and relationships. · Uncover the process of writing a book about personal dementia experiences. · Learn practical and valuable strategies for managing dementia symptoms. After the Podcast Read David's AlzAuthors blog post Purchase “Going Home: A Journey with Dementia” Learn about the World Walks Against Dementia Learn about Norrms McNamara and Global Purple Angel Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast

When Caregiving Finds You: Navigating Alzheimer's & Family Care Confessions of a Reluctant Caregiver 00:00 | 58:15 More Info Confessions of a Reluctant Caregiver When Caregiving Finds You: Navigating Alzheimer's & Family Care Apr 01, 2025 Episode 124 Natalie Elliott Handy and JJ Elliott Hill "You have to be ready to roll with it." - Alfredo Botello Stepping into the role of caregiver isn't always a choice, it's a journey filled with love, loss, and unexpected lessons. J.J. and Natalie welcome novelist and screenwriter, Alfredo Botello to open up about caring for his mother after his stepfather's passing and navigating the challenges of Alzheimer's and assisted living.

In this podcast, we have the pleasure of interviewing Amy Bridger from Farmstead, an organization dedicated to honoring those who have passed away in a truly unique and heartfelt way. Farmstead offers a special service that allows families to commemorate their loved ones in a serene and picturesque setting—a beautiful farm where ashes can be laid to rest in a manner that truly reflects the essence of the departed. This peaceful haven provides a personalized farewell, ensuring that the final tribute aligns with what would have been most meaningful to the individual. Whether it's during a breathtaking sunset, while taking a walk with their beloved pet, through a heartfelt religious reading, with laughter and cherished memories, or in quiet contemplation, every ceremony is carried out with deep respect and love. Join us as we explore this extraordinary way of celebrating life and paying tribute to those who are no longer with us. To reach Amy Bridger www.farmsteadscattering.com https://www.farmsteadscattering.com/blogs/news

Is Parkinson's Disease Linked to Gut Health? In this episode of CareLab, Dr. Lawrence Schiller dives into the fascinating connection between gut health and Parkinson's disease. Key takeaways from this episode: ✅ How the gut microbiome may play a role in Parkinson's ✅ Common digestive issues faced by Parkinson's patients ✅ The importance of diet and swallowing mindfulness ✅ The need for strong doctor-patient communication Listen now to uncover the latest insights. Find Caregiver Training at https://www.higherstandardscaregivertraining.com/ Find Care Equipment solutions at https://www.asksamie.com/ Follow Care Lab for more episodes! #ParkinsonsDisease #GutHealth #Microbiome #BrainGutConnection #Podcast

To Screen or Not To Screen" delves into the complex and deeply personal dilemma of early Alzheimer's disease screening. Imagine a test that could reveal your brain's future, decades before symptoms appear. Would you take it? This episode confronts the anxieties and potential benefits of such knowledge, particularly for those with a family history of dementia. Doctors Andy Lazarus and Alan Rot join host Jen Fink to dissect the realities of early screening. They discuss the limitations of current medical training on dementia, and the potential for false positives. False positives can lead to a psychological burden of a pre-symptomatic diagnosis. They challenge the notion that early detection automatically leads to effective interventio. By questioning the efficacy of current treatments and the influence of pharmaceutical companies, we might deliver better outcomes. They stress lifestyle changes. These are critical. Purpose in life is important. Open talks are needed. Discuss end-of-life care. This episode urges listeners to think. Consider early screening's true value. Prioritize holistic brain health. Take proactive approaches. Our Guests: Dr. Andy Lazris & Dr. Alan Roth Dr. Andy Lazris and Dr. Alan Roth have over 75 years of experience in medicine between them. In their new book, A RETURN TO HEALING, they draw on their expertise in primary care to unravel the complexities of the modern health care system. Through a wealth of patient stories and meticulous research, they dig into the roots of American health care challenges and seek its cure.

In this episode, we interview Alex Hall, a healthcare professional who shares valuable insights on the challenges women face during perimenopause—a transitional phase in life that often coincides with the responsibility of caring for aging parents. Alex highlights the importance of self-care, not just as a way to manage stress but as a powerful tool for self-discovery and renewed confidence. He offers practical advice on prioritizing personal well-being and maintaining balance while navigating this demanding stage of life. Tune in to hear his expert tips and strategies for embracing self-care during this transformative period.

Dr. Jocelyn Jiao and Social Worker Mike Polisso of the Stanford Healthcare Palliative Team know the value of getting to know patients and families from the start of the care relationship. As part of an interdisciplinary team providing neuropalliative care for people and families living with serious neurological illnesses, they're supporting patients and caregivers and training other healthcare workers in palliative care. Here are some topics discussed in this interview: Jocelyn discussed the importance of finding out communication preferences when it comes to early conversations about advance care planning and disease progression. Mike highlighted exploring preference questions with patients and caregivers, and staying curious to create opportunities for personalized care. Asking what kind of medical information is important to someone to know can create communication styles that are comfortable for the patient and caregivers. Mike finds many people don't know that palliative care social workers have a variety of roles, including helping with complex medical decision making and dealing with family dynamics that are impacting care. Both Mike and Dr. Jiao recognize the need for ongoing self care to support the work they do. You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org Connect with our special series sponsor Kensington Senior Living: Website: https://kensingtonseniorliving.com/ Social media: Instagram LinkedIn Facebook Information for Jennifer O'Brien Website: jenniferaobrien.com Read more about Jennifer O'Brien here. Purchase your copy of Care Boss by Jennifer O'Brien here. Buy your copy of The Hospice Doctor's Widow: An Art Journal of Caregiving and Grief here. Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

In this milestone 200th episode of the Happy Healthy Caregiver podcast, I'm thrilled to share something extra special with you—I'm introducing two amazing people who mean the world to me: my sisters! You may already be familiar with my older sister, Susie Morrell, who was our mom's primary caregiver for many years and has been featured on two previous episodes. However, this is the first time you'll meet my younger sister, Anne Woodbury, who has also been a part of our caregiving journey. Together, we'll reflect on our upbringing, caregiving experiences, and what it's been like to share the care for over a decade. We'll also dive into our current caregiving roles, including our care plan for our brother Tom, who lives with a developmental disability. Plus, we'll talk about what self-care really looks like for us now. Show notes with product and resource links: https://bit.ly/HHCPod200 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

With courage and vulnerability, Sheralin Samuels shares her experience as a caregiver for her mom, and their journey through Early Onset Alzheimer's disease. Here are a few highlights from this episode, created in partnership with Stanford Health Care: Sheralin's mom Carlys began showing symptoms in 2012, and a definitive diagnosis of Alzheimer's disease wasn't found until about 10 years later. Carlys spent a year in hospice care before she was discharged. As a sandwich caregiver, Sheralin cares for her two kids while working a full time job and ensuring her mom's needs are being met. Being a caregiver has impacted Sheralin's family in numerous ways, affecting family dynamics, relationships, and finances. Sheralin knows there's strength in self care. Her self care includes getting outside, enjoying nature, and hiking. By creating YouTube videos to help other caregivers, Sheralin is creating meaning from her experience. Watch Sheralin Taylor's YouTube videos: @A_Daughters_Journey You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org Connect with our special series sponsor Kensington Senior Living: Website: https://kensingtonseniorliving.com/ Social media: Instagram LinkedIn Facebook Information for Jennifer O'Brien Website: jenniferaobrien.com Read more about Jennifer O'Brien here. Purchase your copy of Care Boss by Jennifer O'Brien here. Buy your copy of The Hospice Doctor's Widow: An Art Journal of Caregiving and Grief here. Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.

Defining a foundational thought: awareness. Hey, Try This! is an emotional and mental wellness podcast published every Monday, Wednesday, and Friday. These 2 -5 minute offerings are brought by kindred spirits, folks just like the rest of us who want peace, hope, and rest through self improvement and personal growth. Familiar Wilsons Media produces content to bring people together. We are curious, hopeful, and try not to take ourselves too seriously - admittedly, with varying degrees of success.

My guest today is Dr Mary Frances O'Connor, Professor of Clinical Psychology and Psychiatry at the University of Arizona, Director of Clinical Training and a grief researcher. Dr O'Connor shared such great insights the first time she was on the podcast, I'm so glad she's back to discuss her new book The Grieving Body: How the Stress of Loss Can Be an Opportunity for Healing. Today we discuss the physical nature of grief, the physiological response of your body and how grief affects every system, We talk about our immune system, brain fog, ways to cope with grief, how to rebuild after loss and so much more. TRANSCRIPT OF THIS EPISODE MaryFrancesOconnor.org Daughterhood