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We're excited to feature a roundtable discussion with a group of amazing hospice nurses discussing what makes a “good death” and the rituals they've created for themselves and caregivers.  Jean Ann Menna, Carrie Oram, and Shelley Henry have many years of end of life nursing experience. Along with Helen, they share the many facets of helping patients create good deaths for themselves. This conversation is a great inside look into how hospice nurses care for families when death occurs.  Find Jean Anne Menna and her book “Go with Grace: A Simple Guide to Caring for Someone on Hospice” here.  Connect with guest Carrie Oram at Angel Heart Holistics here. Find Shelley Henry and Amity Staffing at amitystaffing.com Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

n this episode of the Aging Gayfully podcast, host Christopher MacLellan speaks with Dr. Andrew Wagner, an audiologist with Hear USA, about the importance of hearing and communication, the impact of hearing loss on social interactions and cognitive health, and the advancements in hearing aid technology. Dr. Wagner shares his personal journey into audiology, discusses how to recognize hearing loss, and explains the process of hearing tests and the significance of custom hearing solutions. The conversation emphasizes the need for awareness and proactive measures in maintaining hearing health as we age. As we age, maintaining our hearing health becomes increasingly vital, yet many of us overlook its significance. Understanding the Journey into Audiology: Dr. Andrew Wagner shares his personal journey into audiology, rooted in his family background as communication specialists. His passion ignited when he witnessed the profound impact of cochlear implants on his best friend's brother, who was born deaf. The Education Behind Hearing Health: Dr. Wagner's academic journey began with a bachelor's degree in communication sciences and disorders at Ohio University, followed by a doctorate in audiology. His externship brought him to sunny South Florida, where he now practices. This blend of education and personal experience equips him to advocate for hearing health and the importance of early detection. Recognizing Hearing Loss: One of the most challenging aspects of hearing loss is recognizing it. Dr. Wagner emphasizes that many patients first become aware of their hearing issues through the concerns of loved ones. Common signs include frequently asking for repetition, difficulty hearing in noisy environments, and feeling fatigued after conversations. He emphasizes the importance of getting a baseline hearing test around age 55 to track changes over time. The Social Impact of Hearing Loss: The conversation shifts to the isolation that often accompanies hearing loss. Dr. Wagner recounts how his grandmother's reluctance to engage socially diminished her quality of life. He explains how individuals might withdraw from group settings due to the frustration of not being able to follow conversations. His wife's experiences as a speech pathologist reveal that many people in care settings may not be nonverbal; they could simply be unable to hear, highlighting the need for proper hearing assessments. Empowering Social Connections: Dr. Wagner encourages listeners to view hearing health as a vital aspect of overall well-being. He shares how his grandmother embraced new social environments in assisted living, treating it like a college experience and finding joy in connecting with others. He believes that communication is fundamental to our existence and that addressing hearing loss can significantly enhance one's social interactions and quality of life. Conclusion: Maintaining our hearing health is crucial for staying connected as we age. As Dr. Wagner highlighted, the gradual nature of hearing loss often leads to isolation, but awareness and proactive measures can foster social engagement and improve our overall well-being. By recognizing the signs of hearing loss early and seeking help, we can ensure that we continue to participate fully in our communities and maintain meaningful relationships. Learn more at https://www.hearusa.com/ Contact Dr. Wagner at: Andrew.Wagner@hearusa.com Key Takeaways: 1. Hearing health is essential for maintaining social connections and overall well-being. 2. Early detection and regular hearing assessments can help track changes over time. 3. Addressing hearing loss can alleviate feelings of isolation and enhance the quality of life. Tags: #HearingHealth #Audiology #AgingGayfully #Communication #HearingLoss #SocialIsolation #WellnessInAging #CochlearImplants

Are you feeling overwhelmed trying to care for aging parents while raising children? Do you find yourself stretched thin between different generations, each with their own unique needs? My name is Sue Ryan. As a caregiver for loved ones with Alzheimer's and other types of dementia, I understand the unique challenges faced by those in the sandwich generations. I recently spoke with Christy Byrne Yates, a licensed educational psychologist and author of “Building a Legacy of Love: Thriving in the Sandwich Generation.” Christy has personally navigated the challenges of caring for aging parents while raising her own children, and she brings both professional expertise and lived experience to help families thrive during this demanding season of life. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Chirstyyates.com - https://www.christyyates.com/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: C — Choose Your Role as a Caregiver The first step in successfully navigating the sandwich generation is making a conscious choice to embrace your caregiving role. Many people say “I didn't choose this.” or “I had no choice.” We always have a choice. Even not making a choice is still a choice. Tip 2: A — Address the ‘Elephants' in the Room Successful sandwich generation caregiving requires having difficult conversations early and often. These are the ‘elephants' dancing in every family room that everyone sees — but no one wants to discuss. Tip 3: R — Recharge Through Ruthless Self-Care Recharging takes on critical importance when you're caring for multiple generations. Self-care isn't selfish — it's essential for everyone you're caring for. Tip 4: E — Enlist Your Support Team You're not meant to journey alone, and this is especially true for sandwich generation caregivers who face multiple competing demands. Building a comprehensive support team is essential for sustainable caregiving. Tip 5: S — Surrender Control and Embrace Grace Perhaps the most challenging aspect of sandwich generation caregiving is accepting that you cannot control everything, even though you desperately want to. If everyone could just do things your way, life would be so much easier — but that's not reality. Read More in This Blog here

Why do we fear death—and how can we see its beauty? In this heartfelt episode, host Isabel Melgarejo speaks with death doula Martha Jo Atkins about end-of-life care, breaking taboos, and finding peace in life's hardest goodbyes.

There isn't a greeting card for every type of grief. Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief. Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself. This kind of grief is felt by both the person who's dying and the caregivers and family. Disenfranchised grief occurs when the relationship with the deceased person wasn't one that's recognized by society, and can't be publically mourned. Ex-spouses, abusive and estranged relationships can all be situations of disenfranchised grief. It can be difficult to find support for grief like this, making the griever feel isolated. Disenfranchised grief can be more complicated than grief related to healthy and close relationships.   If you need information about grief, check out the Hospice and Grief Info section of the Hospice Foundation of America's website.  Website: hospicefoundation.org Research on grieving: hospicefoundation.org/research-on-grief-and-grieving Grief and other types of loss: hospicefoundation.org/grief-and-other-types-of-loss Facebook: www.facebook.com/hospicefoundation Instagram: www.instagram.com/hfahospice X: x.com/hfahospice Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Hospice doctor Dr. Alen Voskanian is sharing the lessons he's learned at the bedside of the dying, including why managing compassion fatigue is so vital. Working with AIDs patients led him to hospice work and to obtaining his board certification in hospice and palliative care medicine. Through his practice, Alen tries to humanize his patients and tries to connect with them. He works to find the best balance of doing his job and seeing the patients as human beings. Debriefing with the hospice team and finding an outlet for his secondary grief has helped Alen create personal wellbeing and sustainability as a hospice physician.  Connect with Alen Voskanian: LinkedIn Purchase a copy of “Reclaiming the Joy of Medicine: Finding Purpose, Fulfillment, and Happiness in Today's Medical Industry” by Dr. Alen Voskanian here. Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

In this episode of AgingGayfully®, hosts Chris MacLellan and Josh Wilson discuss the desire for change and new beginnings, particularly in light of recent events affecting the LGBTQ community. They reflect on the importance of community and belonging, navigating the current political climate, and the challenges of personal safety. The conversation also touches on the implications of relocation and the significance of personal connections in times of uncertainty. Takeaways Greg Louganis is moving to Panama for a fresh start.The desire to relocate is influenced by the current political climate.Community plays a crucial role in supporting individuals during tough times.Many LGBTQ individuals are considering moving to more accepting environments. The importance of personal connections and family when considering relocation.Navigating the noise of social media and AI-generated content is challenging.Historical patterns can inform current societal issues.The fear of leaving behind those who cannot move is significant. Engaging with the community is essential for support and understanding. TThe hosts encourage listeners to share their thoughts on relocation. Let's AgeGayfully® together, with intention, humor, and each other. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?… Say AgingGayfully®! AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully® is a modern type of activism that supports the concept of belonging. AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Kameron Browning is a resilient sandwich generation caregiver and single mom from Oklahoma who's caring for five people besides herself. She's navigating life between supporting her father, Jim, who lives with Alzheimer's disease, and raising four children from toddler to teenager. Over the years, Kameron has worn many caregiving hats—remote caregiver, in-home caregiver, and support caregiver—while balancing work and family life. After experiencing caregiver burnout, she's redefined “self-care” as simply giving her brain a chance to rest, letting go of people-pleasing, tuning out unsolicited advice, and leaning into advocacy, trust, and intuition for herself and those she loves. Show notes with product and resource links: http://bit.ly/HHCPod215 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

In this episode, host Marianne Sciucco and acquisitions editor Sheila Luna sit down with Shari Ross, a senior healthcare professional and author of “Senior Living Made S.I.M.P.L.E.: A Real World Guide for Navigating Senior Care for Your Loved One.” Shari's expertise spans her professional experience in senior living communities and her personal connection to dementia through family. This conversation explores the emotional, practical, and logistical challenges families face when transitioning loved ones to senior living, with a focus on memory care, language barriers, and advocacy. In this episode: Shari discusses her background as a senior healthcare specialist, working in senior living communities, and her personal caregiving experience with her grandmother.She provides an overview of her new guide, “Senior Living Made S.I.M.P.L.E.,” and how it can help make senior living transitions easier for all.The book's conversational, relatable, and honest approach to guiding families through the overwhelming senior care landscape is discussedShari's “S.I.M.P.L.E.” framework is explained: Support, Information, Matching, Preparation, Letting Go, Engagement.In addition, Shari reframes the “new” memory Care CommunitiesThe importance of language—using terms like “community” and “neighborhood” to foster warmth and reduce stigma.Shari provides pointers on transitioning to Community LivingWhy adult children and spouses often find themselves overwhelmed and unsure where to start, and how to approach those milestones.The need to tour and “feel the vibe,” prioritize care and community over aesthetics.The power of social engagement, good nutrition, and routine in enhancing quality of life. Aging in Place vs. Senior Living The hidden burdens and risks of managing aging at home—care coordination, safety concerns, and social isolation.Shari's research: Most homes aren't designed for aging adults; successful “aging in place” requires massive support.Community living can provide more safety, social interaction, and peace of mind for both loved ones and families. Buy Shari's book here Learn more about Shari Ross and her resources and services at seniorlivingmadesimple.com. Key Quotes: “Memory care is not a punishment; it's a lifeline.”“Independence without a support net is just a slow-motion disaster.”“Be observant, be vocal, and trust your gut.” Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube About the Moderator Marianne Sciucco About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias.  Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know    We've got merch! Shop our Store

In this episode, Isabel shares how a simple shift in mindset—choosing love, care, joy, and abundance—can transform everyday life. From self-talk to daily habits, she shows how to replace guilt with gentleness and discover the abundance already around us. A gentle reminder that you deserve more kindness, more joy, and more peace—starting with yourself.

Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've navigated the challenging process of handling death-related responsibilities firsthand. Between us, we've experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes If you are following along with our 20 step Navigating Dementia Caregiving Roadmap guide this is part of Step 20. This is the first guide listed on our guides page. There are many things that can be done ahead of time. We covered these in podcast episode 30 - End of life preplanning and blog as well as in the matching worksheet you can find on our website in the guides section called ‘End of Life Service Worksheet'. Click here to get to the Guides page, scroll down to find the sheet. Tip 1: Prioritize these things immediately after death1. Tip 2: Move to this list within the first few days and weeks Tip 3: Over the next few weeks and months - manage their estate Tip 4: Focus on the things to prioritize once the estate has been closed

Balance in caregiving is often talked about, but what does it really look like in everyday life? In this episode, Jerri McElroy, primary caregiver, entrepreneur, and author, shares her caregiving journey and how caregiving touches every part of our lives. From managing overwhelming medical responsibilities and advocating for a loved one, to caring for a parent with whom you may have had a complicated relationship, Jerri speaks candidly about the emotional and practical realities caregivers face. She also reflects on empathy, boundaries, and the importance of caring for yourself while caring for others. If you are a family caregiver or supporting an aging parent, you may see yourself in Jerri's story and gain insight into finding your own sense of balance along the caregiving journey. TRANSCRIPT Jerri's Linktree https://linktr.ee/jerrynjerri Daughterhood

Chris and Josh explore those things that help us reclaim our calm in the midst of chaos and disruption. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?… Say AgingGayfully®! AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully® is a modern type of activism that supports the concept of belonging. AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Elizabeth Uslander is empowering the dying every day to create a better ending. As co-founder and CEO of Empowered Endings, Elizabeth is passionate about helping people with serious illness to find the death that aligns with their values and wishes. Her social worker background equips her with problem solving skills she can use to be an advocate for patients and their caregivers. Elizabeth's theological training lets her support the religious, faith, and spiritual beliefs of her patients.   Elizabeth is not only an advocate for people who are at the end of life; she's also a proponent of the interdisciplinary team. She thrives in the collaborative environment that's the best structure for caring for the complex needs of serious illness. Elizabeth is a passionate change agent committed to humanity, dignity, and choice throughout life, and especially in its final chapters. Find out more about Elizabeth Uslander and Empowered Endings:  Website: empoweredendings.com and empoweredendings.org LinkedIn: @elizabeth-uslander or https://www.linkedin.com/in/elizabeth-uslander/ Instagram: @elizabethuslander or  https://www.instagram.com/elizabethuslander/ Facebook: @elizabethuslander or https://www.facebook.com/elizabethuslander/  Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

In this episode of Time to Care Like Caregivers, Isabel Melgarejo sits down with psychologist, author, and podcast host Dr. Mara Karpel to explore the hidden impact of ageism in healthcare and caregiving. From her personal journey advocating for her mother to her upcoming book on navigating an ageist system, Dr. Karpel shares insights, tools, and hope for caregivers who often feel unheard. A powerful conversation about dignity, advocacy, and finding passion at any age

Hospice nurse and End of Life Doula Erin Collins puts her heart and mind into helping people make peace with the end of life through compassionate, reflective conversations. As co-founder of The Peaceful Presence Project, Erin has seen the comfort and calm that advance care planning brings to not only those who are dying, but also to their family caregivers and the end of life workers who are serving them.   Facilitating end of life conversations is one of Erin's gifts. The Peaceful Presence Project offers a printed workbook called End Notes that helps people express their end of life wishes, and to capture memories and messages they don't want lost. You can find End Notes on The Peaceful Presence Project website. Through the advance care plan conversation, people feel better about the end of life. Medical decision makers also find their grief burden is less, as they simply follow directions that have been given by their Person.   Connect with guest Erin Collins: LinkedIn: www.linkedin.com/in/erin-collins-rn Instagram:@peacefulpresencedoulas Facebook: facebook.com/peacefulpresencedoulas Find more information about The Peaceful Presence Project at thepeacefulpresenceproject.org Check out their End of Life Doula training program here. Get your copy of End Notes here. Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Nancy Treaster, a retired software industry executive turned Certified Caregiving Consultant, co-founded The Caregiver's Journey with longtime friend Sue Ryan after both personally faced the challenges of dementia caregiving for multiple family members. Nancy has supported her father through Parkinson's, her father-in-law through Alzheimer's, and her husband through Frontotemporal Dementia. Drawing on her professional background and personal experience, Nancy offers a compassionate yet practical approach that empowers family caregivers to face their caregiving journey with confidence, fewer surprises, and more effective solutions. In this episode, we talk about the difference between palliative care and hospice care—and why both are often underutilized. Nancy also shares insights on the stages of grief (including a unique concept called “drip grief”), her love of travel, the power of podcasting, and how caregivers can access an interactive roadmap filled with practical tools and resources to guide them on their caregiving journey. Show notes with product and resource links: http://bit.ly/HHCPod218 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

In this episode of A Time to Care: The Caregivers Podcast, Isabel Melgarejo reminds us that life is more than work and responsibilities. She explores the power of hobbies and joyful activities, why we often postpone them, and how even small steps—like researching or trying something new—can bring energy and fulfillment into our daily lives.

Let's AgeGayfully® together, with intention, humor, and each other. Aging Gayfully hits the jukebox! Josh and Chris time-travel through the soundtrack of their lives—from 60s Motown and The Big Chill memories, to 70s Elton John and eight-tracks, to MTV-fueled 80s anthems like “Take On Me,” and finally a 90s detour to the Three Tenors that sparked a love of classical music. Along the way: why everyone needs “their pub,” the $20 bartender tip rule, TV shows that made us music fans, and how orchestral soundtracks and symphonies still soothe the brain as we age. It's nostalgia, community, and the science-backed wellness of music—served with bartender-level hospitality. Keywords: LGBTQ+ aging, music and memory, Motown, Elton John, MTV, 80s pop, classical music, wellbeing, community, travel & leisure. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?… Say AgingGayfully®! AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully® is a modern type of activism that supports the concept of belonging. AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

The International End of Life Doula Association believes everyone deserves compassionate, respectful care at the end of life. Executive Director Doug Simpson is working with the INELDA team to make that happen. Doug's journey to EOL doula work began with the death of his own father, followed by the birth of his son. Drawn to end of life work, Doug trained as a doula in 2018 and became an INELDA volunteer in 2019. He moved into the Executive Director position in 2022, and has never lost sight of the personal experiences that have guided his work. Reflecting back, Doug realizes the similarities between birth and death, and the deeply spiritual experiences of both these life events. He works with INELDA now to ensure that everyone has access to end of life care, resources to make that death an enriched experience, and education to promote growth and acceptance of the work of end of life doulas. You can find the work of the International End of Life Doula Association at inelda.org Read more about INELDA Executive Director Douglas Simpson here. Looking to find an INELDA doula in your area? Click here. Find out how EOL doulas serve the seriously ill and dying here. Facebook Instagram Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not alone, and there's a path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey. In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings both professional expertise and personal caregiving experience to this conversation. Barry cared for his mother with vascular dementia and his stepfather with Alzheimer's disease for seven years, and he co-authored the AARP Caregiver Answer Book with his wife, psychologist Julia Mayer. This content aligns with Step 8 of our Navigating Dementia Caregiving Roadmap: Start Planning for the Next Stage of Care, particularly when building your personal support network of family and friends. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Barry's website www.caregiveranswerbook.comBuy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZLNavigating Dementia Caregiving Roadmap guide https://thecaregiversjourney.org/guides/#guidesSupport the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Transforming your family into an effective caregiving team isn't easy. It's worth the effort — not just for your loved one with dementia — but for every member of your family. These four tips provide a framework: Create consensus (everyone on the same page).Define an ongoing format for decision making (regular meetings with clear rhythm).Build a family caregiving plan (who does what and when).Plan to deal with conflict (don't let disagreements become disrespectful).

In this episode, Isabel invites listeners to pause, reflect, and imagine their future as caregivers—or as care receivers. Drawing from her experience leading her first Planning Lab for Caregivers and Retirees, she shares how planning for care can be just as meaningful and intentional as planning a trip, a new home, or retirement dreams. Through a guided journaling and reflection exercise, Isabel encourages listeners to: Explore their expectations and emotions around caregiving.Identify the mix of feelings that come with this life stage—honor, sadness, guilt, joy, or overwhelm.Recognize which emotions they may want to shift, and understand why those emotions are present.Practice self-kindness and curiosity instead of judgment. She emphasizes that caregiving is not just about challenges—it can be a season of connection, self-discovery, and love. By reframing emotions and making small changes today, we can create a more compassionate, intentional future for ourselves and those we care for. Isabel closes by reminding listeners that they deserve love, care, joy, and abundance—and that even small mindset shifts can transform the caregiving journey.

My guest today is world-renowned dementia expert Teepa Snow, occupational therapist and founder of the Positive Approach to Care, which offers training, services, and resources to families and professionals worldwide.  Teepa has spent decades helping people understand the brain changes behind dementia and, just as importantly, how to support both the person living with dementia and the caregiver. In our conversation, we discuss strategies for interacting with your care partner from mild cognitive impairment on, what changes and what stays the same, accepting help from others, why knowing your person and knowing yourself are equally essential while providing care and so much more. TeepaSnow.com Daughterhood.org TRANSCRIPT

 In today's episode, we take you behind the scenes at Tum Coeur to share an exciting glimpse of what's coming next. From new podcast series and live workshops to community events and creative collaborations, we're building meaningful spaces to grow, connect, and care—together. Whether you've been with us from the beginning or you've just joined our community, this is the perfect time to tune in and learn about the vision that inspires everything we do. We talk about our goals for the months ahead, the new resources we're working on for caregivers and families, and how you can be part of the journey. Don't miss this episode—it's full of hope, gratitude, and momentum. The future of Tum Coeur is growing with intention, and we can't wait to walk this path with you. Youtube channel https://www.youtube.com/channel/UCuNZZr8K6hu11-9aSRbhsuQ To join to our newsletter write an email to: fer@tumcoeur.com

Trigger Warning: The content of this episode includes narratives about seriously ill children. If you need to sit this one out, catch up with us on another episode and please take time to care for yourself. In his memoir titled “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor's Soul”, Dr. Robert Macauley tells the story of the patients who have impacted his life, and how he's changed for good. As a pediatric palliative care physician, Bob walks alongside kids and their parents through serious illnesses. Those experiences have shaped who he is, what he believes and how he practices medicine.   Buy your copy of “Because I Knew You: How Some Remarkable Sick Kids Healed a Doctor's Soul” on Amazon Barnes & Noble   Watch Dr. Macaulay's TEDx talk here.  You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Have you noticed yourself feeling sad when your loved one can't remember their phone number? Do you find yourself withdrawing from friends or losing patience more easily? These feelings might be grief—and you may not even realize it's happening. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that grief doesn't only come after our loved one passes away. It's present throughout our entire caregiving journey, from the moment of diagnosis through each individual change along the way. The good news is that understanding grief—recognizing it, honoring it, and learning to move through it without getting stuck—can transform how we experience our caregiving journey. Today we're sharing six essential tips to help you navigate grief with grace and compassion. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/47-navigating-grief-throughout-caregiving-six-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Guide: Navigating Dementia Caregiving Roadmap: https://thecaregiversjourney.org/guides/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Read More in This Blog here

Even though P.K. Beville is considered an expert in psychology and gerontology, she still felt lost and overwhelmed as a dementia caregiver for her dad. P.K. is the founder of Second Wind Dreams, a pioneering nonprofit that fulfills dreams for older adults and champions dignity, hope, and joy in aging. She is the creator of the internationally acclaimed Virtual Dementia Tour®, a training tool that has helped millions better understand and care for those living with dementia. In 2023, she launched Empathic Transitions to support families during end-stage dementia and is currently certifying the first Dementia Doulas. In this episode of the Happy Healthy Caregiver podcast, we talk about why caring for a loved one in any setting is still tricky, how the phrase ‘I wish' sparked an uplifting non-profit in the older adult space, where we can find sources for humor and joy, and why the end-of-life experience for those living with dementia is different.  Show notes with product and resource links: https://bit.ly/HHCPod214 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

 In today's episode, we take a thoughtful look at the things we hold on to—especially the clothes and belongings that no longer serve a real purpose in our lives. It's easy to keep items simply because they once worked for us or because they hold sentimental value. But just because something was useful or meaningful in the past doesn't mean it's still helping us thrive today. We invite you to consider: Do the objects around you bring joy, comfort, or inspiration? Or are they simply taking up space—physically and emotionally? Letting go isn't always easy, but releasing what no longer serves us creates room for the new. New energy, new experiences, and new ways of expressing who we are now—not just who we used to be. This conversation is not just about decluttering a closet. It's about reflecting on the chapters of life that are ready to be closed, and opening space for what truly supports your well-being and growth. Join us as we explore how letting go can be an act of healing, self-respect, and even freedom.

With honest information and gentle humor, the founders of Before the Casket are teaching us how to plan for more than just funeral arrangements. Hospice nurses Erin Putney and Amy Hensley have designed workshops that educate attendees about hard end of life decisions, empowering them and their decision-makers and making the whole experience easier. Before the Casket also provides education for healthcare professionals, offering content on end of life interventions and compassionate conversations. Nurses can even get CEUs for license renewal.  Amy and Erin provide education that includes demos of medical devices and relaxed interaction. It's a great way to create realistic expectations for what care at the end of life looks like. You can connect with Before the Casket at beforethecasket.com Check out the courses offered for nurses and other healthcare workers here. You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Meet Lisa Musselman, a 2025 Elizabeth Dole Foundation Fellow, military caregiver, and passionate advocate for equitable care for veterans and their families. Lisa talks about her caregiving journey supporting her husband Andy, a pre-9/11 Air Force veteran living with ALS, while raising a family and trying to stay afloat herself. Lisa shares the emotional and physical toll of those early years—missing milestones with her children, struggling to find respite, and putting her own health last. On the brink of burnout, everything changed when skilled nursing entered the home. This support allowed her to rebuild strength through physical therapy, prioritize mental wellness with therapy, and make space for joy through family vacations and visits with friends. What makes Lisa's story especially powerful is how she turned adversity into a platform for advocacy. Motivated by a friend's early encouragement that she would “become a voice” for others impacted by ALS, Lisa now champions policy and support changes for military caregivers across the country. She firmly believes that veteran care should not be determined by zip code—and she's fighting to make that a reality. In this inspiring episode, we cover: The real cost of caregiving on health, time, and familyLisa's self-care strategies for physical and mental recoveryWhy caregiving support can be life-changing—not just for the veteran, but for the whole familyHow Lisa stepped into her role as a caregiver advocateThe urgent need for fair, accessible veteran care across the U.S. Lisa's story will resonate with anyone who has felt isolated or overwhelmed in their caregiving role—and it's a powerful example of how self-care and advocacy can go hand in hand.

Welcome to the fourth film discussion in AlzAuthors' 10th Anniversary Film Festival. This powerful episode features a deep-dive into the documentary "Wine, Women & Dementia,” and offers community, validation, practical wisdom, and a celebration of caregivers. Meet Kitty Norton, creator and director of "Wine, Women & Dementia." After leaving her television career in Los Angeles, Kitty returned to Portland, Oregon to care for her mother with dementia. From her experience she later crafted this touching film to honor family caregivers and raise authentic awareness of dementia's impact. Kitty's film has won awards and is used by medical organizations for staff training. It's a must-watch for caregivers, healthcare professionals, and anyone interested in the realities of dementia care. Learn about her journey, the healing power of humor, and the importance of support networks for caregivers everywhere. Why This Episode Matters Dementia Caregiving Resources: Gain firsthand advice and inspiration from those who've traveled the road of dementia caregiving.Film Festival Celebration: Discover why film is a powerful medium for sharing caregiving wisdom and breaking the stigma around dementia.Empowering Community: Learn how blogging, filmmaking, and online support groups are changing the landscape for caregivers.Real Talk: The podcast doesn't shy away from tough topics—money dilemmas, family dynamics, humor in adversity, and finding community. Key Takeaways Validation & Connection: As shared by Kitty Norton, "Wine, Women & Dementia" helps caregivers feel seen, heard, and supported. Audience feedback shows viewers finally feel understood and less alone.Community Building: The episode highlights how caregivers form lasting friendships and essential support systems—online, through art, and in local groups.The Power of Humor: Humor is a key theme. Listeners will find real stories of finding laughter and lightness, even amidst difficult caregiving situations.Practical Advice: From navigating support groups to honoring the dignity of people with dementia, the conversation offers lots of tips for caregivers. Connect & Learn More Find and follow Kitty Norton on social media: LinkedIn, Instagram, Facebook, TikTokVisit WWD to learn more about the film and how to schedule a screening event Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube Learn about the Moderators Marianne Sciucco  Christy Byrne Yates  About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our mission is to lift the silence and stigma surrounding Alzheimer's and other dementias. The Untangling Alzheimer's and Dementia Podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know    We've got merch! Shop our Store

In this special film festival episode celebrating the 10th anniversary of AlzAuthors, hosts Marianne Sciucco and Christy Byrne Yates welcome filmmaker Frank Silverstein for an intimate discussion about his documentary, “Lousy: Love in the Time of Dementia.” Frank shares his journey capturing the realities of caring for both parents with dementia, offering raw insight, practical wisdom, and hope for caregivers and families living with this disease. Featured Guest: Frank Silverstein – Veteran TV producer, author, and filmmaker. Creator of “Lousy: Love in the Time of Dementia”, a deeply personal iPhone-shot documentary chronicling his parents' decline and the challenges of caregiving. Key Discussion Topics: Behind the Film: Frank reveals how his career in news documentaries shaped his approach to filming, and why he began documenting the “real” moments with his parents as their dementia progressed. Caregiving Realities: The episode explores the confusion, unpredictability, and emotional complexity of caring for loved ones with dementia—including dealing with repeated questions, behavioral changes, and sibling dynamics. Honoring the Person: Frank shares poignant memories of his parents' lives before dementia, and discusses how core personality traits can persist even as the disease changes so much else. Sibling Care Teams: An honest look at family caregiving logistics, relationships, and the value of supporting one another—not just the person with dementia, but also fellow caregivers. Film Festival Details: For those registered for the AlzAuthors Film Festival, they can watch “Lousy: Love in the Time of Dementia” and other festival films through the end of the year. Memorable Quote: “It's very isolating when you're taking care of your parents. There's nobody really that's going to help you... you have to figure out your path out of there.” —Frank Silverstein Resources: Contact Frank Silverstein: www.franksilverstein.com AlzAuthors Podcast, “Caring for Two Parents with Dementia at the Same Time” Next Up: Join the next film festival discussion on Wine, Women, & Dementia by Kitty Norton — details and links on the AlzAuthors website Learn about the Moderators Marianne Sciucco  Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know    We've got merch! Shop our Store

Celebrate a decade of AlzAuthors with this replay of a film discussion from our first film festival! Marianne Sciucco and the AlzAuthors community gathered to discuss Susie Singer Carter's documentary series No Country for Old People, inspired by her painful but illuminating journey alongside her mother in a five-star Los Angeles nursing facility. Key Topics Behind the Film: Susie shares what drove her to make No Country for Old People, highlighting the persistent systemic crises in long-term care and her struggle to advocate for her mom within a broken system.She discusses both personal and policy challenges—from underfunding and understaffing to navigating Medicaid and family caregiver roles.Caregiving Realities: Multiple audience members and guests brought their own lived experiences—from those who have placed loved ones in care homes to those doing the daily grind at their side.Honest input covers the isolation and exhaustion of caregiving, the guilt and judgments faced, and the varied trajectories and needs of those with dementia.Systemic and Cultural Barriers: The episode reveals the complexities behind facility care: understaffing, high turnover, the business model of elder care, and how profit-driven motives can lead to neglect, overmedication, and a lack of dignity for residents.Advocacy and Taking Action: Susie announced the ROAR initiative—Respect, Oversight, Advocacy, and Reform for Long Term Care. She stresses the urgent need for grassroots collective action and oversight to drive meaningful change for people living with dementia and their caregivers. Standout Quotes from Susie Singer Carter “Love is super powerful. I think it's our greatest tool.”“Documentaries are not money makers. They are changemakers at best.”“We have a broken system... But it's so important to know what's out there and what's really happening.” Takeaways Caregiver stories are unique—what works (or doesn't) varies case by case.The importance of advocacy and family involvement doesn't end with placement in a facility; sometimes, it increases.Systemic reforms are desperately needed, and community effort can move the needle.Connection, creativity, and compassion remain vital tools in the caregiving journey. Next Up Tune in to the upcoming episode with Frank Silverstein as he discusses his short film, Lousy: Love in the Time of Dementia, and continue engaging with films that capture the real, raw, and sometimes uplifting world of dementia caregiving. Join the film festival Resources Mentioned Listen & Watch: Find film festival films, replays, and podcast episodes on alzauthors.comListen to Susie's Love Conquers Alz PodcastWatch My Mom and the Girl (short film)Watch No Country for Old People (docu-series)Get Involved with ROARSubscribe to the AlzAuthors newsletter and follow us on social media (@alzauthors on Facebook, Twitter/X, Instagram, LinkedIn, Pinterest, Bluesky). Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Welcome to a special episode of the AlzAuthors podcast, part of our first-ever Film Festival! Celebrating our 10th anniversary, host Marianne Sciucco sits down with acclaimed arts educator, author, and filmmaker Mary Crescenzo to explore the transformative role of the arts in dementia care. In this heartfelt conversation, Mary shares her journey from early experiences in nursing homes to the creation of her poetic play-turned-film, "Planet A." We discuss her innovative, age-blind casting, the real-life stories inspiring her work, and practical strategies caregivers can use to bring arts engagement into dementia care—at home or in care facilities. Whether you're navigating Alzheimer's in your family, working in dementia care, or seeking creative approaches to foster dignity and connection, this episode is filled with inspiring insights and actionable tips. Key Topics Covered: Dementia Care & the Arts: Mary describes how music, visual art, dance, storytelling, and poetry can spark joy, communication, and connection for people living with dementia.How the Arts Can Reduce Isolation: Real examples showing that engaging in the arts can counteract boredom, boost mood, and foster community in care settings.Art Activities for Caregivers: Practical advice and encouragement for caregivers to use arts engagement at home—even if you don't see yourself as an artist!Readings from the Film: Moving excerpts from Mary's poetry, capturing the emotional landscape of people living with dementia and their caregivers. Quotes: “Everyone should be engaged in the arts to whatever level, because it's so beneficial to heart and mind and life.” – Mary Crescenzo“Boredom is huge. People decline when they're bored. But you give them something creative, they light up.” – Marianne Sciucco“You don't have to be an artist to make a difference – just pick up a pencil, sing together, or sway to music.” - Mary Crescenzo Takeaways: Try simple creative activities—drawing, music, singing, storytelling—regularly, not just once.Don't let fear or “not being an artist” stop you. The benefits are in doing, not perfection.Engaging in the arts brings meaning, dignity, and even joy to those living with dementia.The arts can transform not only the person with dementia but also relieve and uplift caregivers.Seek out support, community, and inspiration—you are not alone!   Resources and Links: Watch "Planet A" – available until year-end on YouTube. Register at AlzAuthors.com to receive linkBuy Mary Crescenzo's Book: "The Planet Alzheimer's Guide – 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own" on AmazonVisit AlzAuthors Website for a wealth of caregiver resourcesLearn about Creative Writing Workshops for Caregivers: Contact Mary CrescenzoSubscribe to our Podcast: Available on Apple, Spotify, Amazon Music, Pandora, iHeartRadio and more.Follow AlzAuthors on Social: Facebook, Instagram, LinkedIn, Pinterest, Twitter/X and Blue Sky for daily support, book recommendations, and community stories. Don't miss our continuing film festival—visit our website for upcoming screenings, panel discussions, and more creative resources for the dementia journey. If you found this episode helpful, subscribe, share, and leave us a review! For more stories and support, visit alzauthors.com. Meet the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Proud to be a Whole Care Network Featured Podcast Want to be on the podcast? Here's what you need to know Shop our Store

Join AlzAuthors Film Fest 2025 – Celebrating 10 Years of Dementia & Alzheimer's Awareness Experience powerful films on dementia, Alzheimer's, and caregiving—stories of hope, love, and resilience. Register now at AlzAuthors.com to receive streaming links and watch from the comfort of your home, anytime. Each month, meet a featured filmmaker in a live Q&A event at 2 PM ET, and explore their journey as storytellers and dementia care advocates. Don't miss this unique opportunity to connect, learn, and be inspired in the fight against Alzheimer's. Sept 8: Mary Crescenzo, “Planet A” Find out more about Mary Crescenzo https://alzauthors.com/alzheimers/mary-crescenzo-planet-alzheimers-guide/ Sept 22: Susie Singer Carter, “No Country For Old People” Find out more about Susie Singer Carter https://alzauthors.com/alzheimers/behind-the-scenes-of-nursing-homes-one-filmmakers-crusade-for-change-with-susie-singer-carter/ Oct. 6: Frank Silverstein, “Lousy: Love in the Time of Dementia” Find out more about Frank Silverstein https://alzauthors.com/dementia/frank-silverstein-lousy-love-in-the-time-of-dementia/ Nov 10: Kitty Norton., “Wine, Women and Dementia” Find out more about Kitty Norton https://alzauthors.com/alzheimers/please-join-us-next-month-at-the-2024-dementia-arts-festival-in-new-york-city/ Dec 8: C. Nathaniel Brown and his film, “The Present” Find out more about C. Nathan Brown  www.ExposeDementia.org Join the Newsletter:  https://sendfox.com/alzauthors Learn about the Moderators Marianne Sciucco https://alzauthors.com/alzheimers/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/ Christy Byrne Yates https://alzauthors.com/books-chit-chat/christy-byrne-yates-on-raising-kids-while-caring-for-parents-with-dementia/ About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys.We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias.To sustain our efforts please donate here: https://alzauthors.com/donate Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network Want to be on the podcast? Here's what you need to know:    We've got merch! Shop our Store 

Have you moved beyond the initial steps of your caregiving journey and now find yourself needing to take more control while your loved one still believes they can do most things independently? Are you noticing that simple tasks are becoming increasingly challenging for them, yet they resist your help? You're not alone! You've entered what we call the “messy middle” stage of your caregiving journey. We created for you the comprehensive, 20-step caregiving journey roadmap guide, Navigating Dementia Caregiving Roadmap Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Messy Middle First Steps - You recognize it's time to assert more control  11. Focus on safety.  Listen to these podcasts or read these blogs.Home Alone - Hear about the deal breakers for living home alone:21 minute TCJ podcast: 6. Home AloneTCJ blog: 6. Home Alone.Medication - Understand strategies to safely manage medication:20 minute TCJ podcast: 20. Medication ManagementTCJ blog: 20. Medication Management.Home Safety - Find approaches to the basics of home safety:25 minute TCJ podcast: 7. Home Safety TCJ blog: 7. Home SafetyWandering - Learn ways to manage three types of wandering: outside, inside and during the night.20 minute TCJ podcast: 4. Wandering TCJ blog: 4. Wandering. 12. Continue to prioritize your self-care.  Understand how to approach the realities of self-care:23 minute TCJ podcast: 27. The Realities of Caregiver Self-CareTCJ blog: 27. The Reality of Caregiver Self-Care. 13. Educate yourself on activities of daily living (ADLs). Prepare for changes in your loved ones ability to manage their ADLs.Listen to these podcasts or read these blogs on activities of daily living:26 minute TCJ podcast: 9. Preparing for Incontinence TCJ blog: 9. Preparing for Incontinence21 minute TCJ podcast: 14. Bathing and DressingTCJ blog: 14. Bathing and Dressing21 minute TCJ podcast: 15. Personal Care e.g. brushing teeth, trimming hair TCJ blog: 15. Personal Care21 minute TCJ podcast: 16. Eating and Drinking TCJ blog: 16. Eating and Drinking. 14.Create a Care Plan - at minimum a Family Emergency Plan. 25 minute TCJ podcast: 33. How to Create a Care Plan TCJ blog: 33. Creating a Care Plan. Messy Middle - Continued Second Steps - It's time for more support 15. Start or increase leveraging dementia/adult day programs.  Community resource finder: Select Community Services and choose Adult Day Centers for your search. 16. Start thinking about professional help. Educate yourself: Evaluate continuing care communities (even if you never plan to use one) just in case.33 minute TCJ podcast: 28. Home and Community Living Options TCJ blog: 28. Home and Community Living Options.Understand the types of paid caregivers:26 minute TCJ podcast: 32. Hiring a Paid Caregiver TCJ blog: 32. Hiring a Paid Caregiver.Find an organization to help. Search online: ‘Senior Care Advisor' + ‘your area'.Look for options yourself. Go to the Community Resource Finder sponsored by the Alzheimer's Association and AARP. 17. Continue your education. Take the Savvy Caregiver Advanced training (this can be taken in-person or virtually).Delusions:38 minute TCJ podcast: 23. DelusionsTCJ blog: 23. Delusions.Incontinence:26 minute TCJ podcast: 10. Incontinence Begins TCJ blog: 10. Incontinence Begins. Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney

DNP Elena Prendergast is empowering people with serious illness to find their voices, and advocate for their best quality of life. Working with patients who are dealing with end of life issues showed her how much extra support is needed, even when there's a healthcare team providing care. Elena helps clients navigate the confusing maze of the US healthcare system. She listens to what they think is important, and equips them with the tools to make their needs and wishes known. Her education as a doctorally prepared nurse practitioner with extensive experience in palliative care, additional training in trauma/resilience, and the sacred work of an end-of-life doula provides a unique perspective of the needs of clients with serious-illness.  If you're a patient, a caregiver or loved one, or a long-distance caregiver, you can work with Elena at Tree of Life Health Consultant by visiting treeoflifehealthconsultant.com.  Connect with Elena Prendergast, DNP on social media: Facebook  Instagram  LinkedIn You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Dan Contreras is a U.S. Army veteran, proud husband, and devoted caregiver to his wife, Teresa. After years of service and leadership with DAV (Disabled American Veterans)—including his role as National Commander—Dan has become a strong advocate for both caregivers and care receivers. Like many military spouses and family members, Dan didn't initially see himself as a “caregiver.” That changed when, as a DAV leader, he sought to better understand the DAV's Caregiver Support Program by completing the onboarding process. Now, he's on a mission to raise awareness and provide resources for the 70% of veterans who are caring for loved ones. In this episode of the Happy Healthy Caregiver podcast, Dan shares: The resources DAV offers to support veterans who are also caregiversHow his perspective on self-care has shifted as Teresa's cancer journey has progressedThe creative outlets he and Teresa enjoy together, including Legos, crafts, and hobbies that bring them joyHow something as simple as a karaoke app helps him relieve stress and recharge Show notes with product and resource links: http://bit.ly/HHCPOD216 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

In this episode of AgingGayfully®, hosts Chris and Josh discuss health updates, personal growth, and the importance of stepping into one's comfort zone. Chris shares his recent experiences with artistic expression and how it has helped him rediscover himself. The conversation reflects on life lessons, regrets, and the significance of using one's talents and skills. Takeaways Life does not stop when we get sick.Stepping into your comfort zone can lead to personal growth.Artistic expression can help rediscover oneself.It's important to use your talents and skills.Reflecting on life can help identify what truly makes you happy.There are no regrets, only lessons learned.Finding the right environment can foster growth.Everyone has a story worth sharing.Engaging with the community can lead to meaningful connections.Happiness often comes from using your innate talents. Share your story or drop a line: yesiam@aginggayfully.com Like, subscribe, and ring our bell (figuratively or otherwise). Let's AgeGayfully® together, with intention, humor, and each other. A gay senior, Christopher MacLellan, and an ally, Josh Wilson, podcasting about life, love, liberty and travel. Don't Say Gay?… Say AgingGayfully®! AgingGayfully® is about living life with dignity in an age-friendly society regardless of orientation or economic status because longevity is a justice issue. AgingGayfully® is about finding your voice as we age. We are all part of the aging process and have real connections in diversity. AgingGayfully® is a modern type of activism that supports the concept of belonging. AgingGayfully® is about Adventure, Leisure, Travel, being a citizen of the world, traveling to destinations, and being part of the global community as we age and prosper in body, mind, and spirit.

Have you completed the first six essential steps of the comprehensive 20-step caregiving journey roadmap guide Navigating Dementia Caregiving: Your Resource Roadmap for Every Stage? Are ready to take on more? Do you find yourself wanting to learn faster and more easily than trying to figure everything out on your own? If you answered ‘Yes', you're in the right place for the next phase of the dementia “In the Beginning” journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that building knowledge, and preparing for progression, are crucial for sustainable caregiving. We recently talked with Jenny Gay, licensed clinical social worker with Emory Integrated Memory Care, about our comprehensive 20-step caregiving journey roadmap guide: Navigating Dementia Caregiving Roadmap. In this podcast, we're sharing steps 7–10. Connect with us and share your tips: Website: https://thecaregiversjourney.org/Donate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/thecaregiversjourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/44-navigating-dementia-caregiving-roadmap-in-the-beginning-steps-7-10-alzheimers-and-other-dementias/ Additional Resources Mentioned Navigating Dementia Caregiving Roadmap Guide In the Beginning - continued Next Steps - You are ready for more  7. Continue your education: Take the Savvy Caregiver course in person or online.Read this magazine:  Mayo Clinic Living with dementia: A guide to caregiving and support. Find and take a virtual dementia tour near you. In the United States, in your search engine, type ‘virtual dementia tour' + 'your state'. For example: ‘virtual dementia tour Florida' or, outside the US, replace your state with your country. 8. Start planning for the next stage of care. Build your personal support network:21 minute TCJ podcast: 40. Create Your Personal Support NetworkTCJ blog: 40. Create Your Personal Support Network.Find and try a memory cafe (Caregivers and care receivers go together).Investigate dementia day centers (also known as adult day centers that include dementia care programs) for your care receiver. Community resource finder: Select Community Services and choose Adult Day Centers for your search.Ask your loved one's medical team for a home safety assessment.The goal is to have someone evaluate your home for safety and dementia care needs. This is usually available through palliative care, GUIDE program, or an order from a physician.You can get a free assessment from social services with this order, or you can pay for an independent assessment from a private organization. 9. Investigate your local government community support:  In the US, contact your local Area Agency on Aging. Search for yours at Eldercare.acl.gov or call 1-800-677-1116.Call and set up a screening for eligibility:They will point you to any free government services where you are eligible. Be sure to find out if you are eligible to get paid to be a caregiver.  10. Evaluate driving risks.  Some US states have specific requirements for individuals with dementia to report their diagnosis and potentially undergo driving evaluations. Listen to this podcast or read this blog:21 minute TCJ podcast: 5. Taking Away the KeysTCJ blog: 5. Taking Away the Keys.  Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis.  2. The Messy Middle - You begin asserting control; this is when it gets messy! 3. Later On - You are managing all aspects of their care. 

Palliative physician Emma Jones knows the real effects of burnout, and now she's coaching others to rise from the ashes. While working in a high-pressure pediatric palliative care job, she found herself suffering the fallout of severe burnout. Emma was told to go home and figure out what was going on, but she realized there was no guide for how to do that. She began dealing with depression, trying to rebuild her self care. The care started with yoga, and grew to include healthy habits including daily movement, therapy, rest, and boundary setting. She calls them “small, radical changes”. Emma wanted to give other people a way out of their own burnout and validate their experiences. Her book The Phoenix Blueprint: Emerging Stronger From The Blaze of Healthcare, shares the skills and practices that have allowed her to emerge stronger from burnout and rediscover her calling to serve patients and colleagues. The Phoenix Blueprint provides a step-by-step guide to help those in healthcare rise like a phoenix from the ashes. Connect with Dr. Emma Jones: LinkedIn Facebook Instagram       Website: emmajonesmd.com Work with Dr. Jones to reclaim your career from burnout. Purchase your copy of The Phoenix Blueprint: Emerging Stronger From The Blaze of Healthcare here. You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care.  If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

In this intimate and heartfelt episode of I Saved You. Now Do the Dishes podcast, Carrie sits down with her husband, Gavin—the very person who inspired this podcast after his head and neck cancer diagnosis two years ago. With honesty, humor, and the kind of raw vulnerability that only comes from living through it, they revisit the milestone that changed everything. Carrie and Gavin unpack the days leading up to his diagnosis: a strange lump, escalating worry, and the surreal contrast of preparing to host their very first Thanksgiving while bracing for news that would upend their lives. Carrie shares what it was like to sit in the waiting period of uncertainty. Gavin opens up about hoping—really hoping—that the whole thing was nothing more than a big, stubborn boil. Together, they reflect on how fear, denial, intuition, partnership, and even humor carried them through that chapter. This episode is a testament to resilience, love, and the unseen emotional labor of caregiving and being cared for —spouse style.  If you've ever navigated a medical unknown, stood in the tension between hope and fear, or loved someone through a life-altering moment, this conversation is for you.

Dr Shoshana Ungerleider, is a board-certified internal medicine physician, science journalist, and passionate advocate for compassionate end-of-life care.  She hosts and produces TED Health and the NY Radio Award–winning podcast Before We Go, and founded the End Well Foundation to make end of life a part of life. Shoshana regularly appears as a medical expert on CNN, MSNBC, and CBS News, with bylines in TIME, USA Today, Scientific American, and more. She executive produced the Oscar-nominated Netflix film End Game, funded the Emmy-winning Extremis, and produced Robin's Wish, about the final years of Robin Williams.  In this episode, we explore how popular culture and healthcare meet—how film, media, and storytelling shape the way we see end-of-life, grief, loss, and caregiving—and we'll hear Shoshana's story of caring for her father through cancer. From documentaries to news headlines, including EndWell's part in consulting on HBO's Emmy winning drama The Pitt, these cultural moments guide how we talk about death, support those we love, and face our own final chapters. TRANSCRIPT with resources Daughterhood

In a conversation that challenges stereotypes and brings to light the unexpected realities of caregiving, this episode reveals the experiences of three men who stepped up to care for their mothers with dementia. It's a heartfelt exploration of grief, growth, and the bonds that are both tested and strengthened through caregiving. Shattering Stereotypes: Men as Caregivers We often associate caregiving with daughters, wives, and sisters, yet over 40% of caregivers are men. Many of them, like guests David Bredbenner, Alfredo Botello, and Vincent Zappacosta, find themselves in this role simply because "there really was no other option." Their stories reveal that caregiving isn't just a woman's job—it's a human one. Vincent shares, “My mother and I were always close and I just didn't trust anyone else to take care of her, because nobody knew her as well as I did.” David talks about “reacting, firefighting, and suddenly you're just drawn in, and before you know it, it becomes part of your routine.” Alfredo, navigating life as an only child, speaks honestly about how necessity and love for his mother collided the moment his stepfather passed away. Lifestyle Overhauls and Personal Sacrifice For each son, caring for their mothers led to seismic shifts in their daily lives. Plans are always tentative, boundaries are tested, and a new form of “parenting” emerges. As Alfredo vividly describes: “Nobody told me growing up that I'd have another kid in my 50s—only she'd be in her 80s and have opinions!” From rearranging work schedules to leaving reassuring Post-its for an anxious parent, the logistics become second nature, though the emotional toll lingers. The men openly discuss balancing frustration, guilt, and even resentment with deep love. They offer comfort in recognizing that no one is “superhuman”: “It's almost like we do expect ourselves to be perfect...and that never happened,” Christy reflects. While the stories in “Sons Caring for Mothers” circle around men, the lessons ring true for anyone on a caregiving journey. There are no perfect solutions, only the imperfect, beautiful bonds of love, memory, and forgiveness. After the Podcast Learn more about David, Vincent, and Alfredo and purchase their books here. Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know. We've got merch! Shop our Store

In today's episode of A Time to Care: The Caregivers Podcast, we welcome grief expert Danielle Southwick for a heartfelt and enlightening conversation on one of the most universal yet often misunderstood experiences: grief. Danielle reminds us that grief is a normal and natural part of life—it's not something to hide, fix, or rush through. She expands our understanding of grief by explaining that it doesn't only come from the death of a loved one. Grief shows up in many forms: Tangible losses, such as the death of someone close, graduating from school, or relocating to a new city.Intangible losses, like losing a sense of identity, confidence, faith, or emotional connection.Disenfranchised grief, a type of loss that isn't always recognized or validated by society—for example, mourning the death of a public figure or a pet, or feeling grief over a relationship that others might not have seen as significant. Danielle explains that the grieving process is deeply personal and complex. It's not just about what we've lost—it's also about the unspoken words, the dreams that were never fulfilled, the roles we no longer play, and the parts of ourselves that don't feel heard. The healing process begins with a small but essential step—what she calls the 1%. It's the decision to acknowledge the grief and allow ourselves to feel it. That small act of courage can open the door to greater healing. As Danielle says, "The rest will come, but the first step must be yours." This episode is a powerful reminder that grief is not a weakness—it's part of being human. Whether you're grieving a person, a season of life, or an old version of yourself, there's space for your feelings, and healing is possible. Join us for this deeply compassionate conversation about how to give yourself—and others—permission to grieve and the grace to heal.

Our guest is Barry J. Jacobs — he's a clinical psychologist and author based just outside of Philly who has a real heart for supporting family caregivers. And that passion is personal. Barry's caregiving journey started young — when he was just 14, his dad was diagnosed with brain cancer and sadly passed away the following year. That experience shaped the direction of his life and career. Later, from 2010 to 2017, Barry stepped into the caregiving role again — this time for his stepfather, who had Alzheimer's, and his mom, who was living with vascular dementia. He truly understands the emotional rollercoaster that comes with caregiving and has spent his career helping others navigate it with more support and less guilt.  In this episode, we discuss two of his books, co-written with his wife, one on love and relationships after 50, and one focused on addressing common family caregiving questions. We delve deeper into the topics of guilt, family dynamics, and self-care. Barry has much personal and professional wisdom to share, especially when it comes to self-kindness, using more honey and less vinegar, balancing ‘me time' and ‘we time,' and spreading ‘You Got This' confidence throughout the caregiving community. Show notes with product and resource links: https://bit.ly/HHCPod213 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW

Caregiving isn't always a storybook journey, especially when family ties are already frayed. In this candid, emotionally charged episode, Jennifer Sullivan joins Christy Byrne Yates and Jean Lee, an acquisitions editor at AlzAuthors, to share her raw and inspiring account of caring for her mother with Alzheimer's—through complicated family dynamics, financial crises, and the unique heartbreak of the COVID-19 pandemic. Discover how Jennifer turned deep childhood wounds and a rocky mother-daughter relationship into unexpected healing and clarity. Hear about her struggles with sibling responsibility, navigating Medicaid and memory care, and finally, the bittersweet reconnection with her mom just as the world—and their contact—shut down. Jennifer and the hosts dive deep into how dementia can shift family roles and reveal unspoken truths, the unexpected gifts that can emerge from even the most difficult relationships, and the importance of self-compassion on the caregiving journey. Top Takeaways: Navigating Dementia With a Difficult ParentJennifer's memoir explores caring for a parent when love is complicated by past betrayals and painful memories.Unfiltered Look at Sibling DynamicsLearn how sibling estrangement and differing responsibilities can complicate caregiving, and how to cope when support isn't reciprocalCOVID's Impact on Alzheimer's FamiliesA gripping account of forced separation, window visits, and the heartache—and hope—of loving at a distance.Finding Redemption and Healing Through CareJennifer's story proves that deep wounds can sometimes make way for unexpected healing, hope, and even joy.Actionable Advice for CaregiversInsights on navigating social services, setting boundaries, and the importance of storytelling and journaling for resilience. Memorable Quotes: “All the pressure I put on myself was taken away...not being afraid to just love has been one of the biggest gifts.” Where to Find Jennifer: Website: JENNSULL.comInstagramBook: When the Window Closes Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTubeSupport With a Donation Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias.  To sustain our efforts please donate here: https://alzauthors.com/donate Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know:   We've got merch! Shop our Store

 In today's episode, we speak with Eve Buck, an expert in generational trauma—the emotional and psychological wounds that are passed down from one generation to the next. Eve helps us understand that trauma isn't always caused by a single event. Sometimes, it's inherited. We may carry the weight of experiences we didn't personally live through, but that were passed to us through learned behaviors, emotional responses, and even family silence. These patterns often show up in our lives as chronic stress, anxiety, over-vigilance, or feelings of fear or mistrust, even when there's no clear explanation for them in our own personal history. Much of this is rooted in what Eve calls “direct parenting.” The way we were raised, the emotional environments we grew up in, and the unspoken rules or expectations within families all play a role. When trauma is unprocessed in one generation, it can shape the next through coping mechanisms, belief systems, and relational dynamics. But there's good news—awareness is the first step to healing. Eve shares insights on how to recognize generational trauma in your own life and offers tools to begin breaking harmful cycles. Whether it's through therapy, reflection, or conscious parenting, healing generational trauma means not only reclaiming your story, but also creating a better one for future generations. This conversation is powerful, eye-opening, and deeply human. If you've ever asked yourself, “Why do I feel this way?” or “Where did this pattern come from?”—this episode may offer the answers, and the hope, you've been seeking.

With honest information and gentle humor, the founders of Before the Casket are teaching us how to plan for more than just funeral arrangements. Hospice nurses Erin Putney and Amy Hensley have designed workshops that educate attendees about hard end of life decisions, empowering them and their decision-makers and making the whole experience easier. Before the Casket also provides education for healthcare professionals, offering content on end of life interventions and compassionate conversations. Nurses can even get CEUs for license renewal.  Amy and Erin provide education that includes demos of medical devices and relaxed interaction. It's a great way to create realistic expectations for what care at the end of life looks like. You can connect with Before the Casket at beforethecasket.com Check out the courses offered for nurses and other healthcare workers here. You can find the Approaching Death Support Kit at bkbooks.com. Find all of Barbara Karnes' products and resources at bkbooks.com. Read Barbara's blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X)  YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you're already receiving, we're here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.   Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook  Twitter  Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Welcome to another powerful episode of the AlzAuthors Podcast. In this episode, hosts Christy Byrne Yates and Marianne Sciucco are joined by acclaimed writer Eliezer Sobel, author of “The Silver Lining of Alzheimer's: One Son's Journey into the Mystery.” Jean Lee, founder, manager, and memoir acquisitions editor, shares her insights about what she found compelling about this book and author. Episode Highlights: Discover how Eliezer Sobel and his wife, Shari, left their life behind to care for his mother with Alzheimer's and his aging father following an unexpected traumatic brain injury. Hear about the emotional and practical challenges, and how caregiving became a profoundly transformative experience for the family members.Connection Over Correction: Learn about the importance of fostering connection rather than correcting memory loss or confusion. Discovering Silver Linings: Eliezer Sobel shares how, despite the heartbreak, his family found moments of humor, love, and even healing. Listen as he recounts rediscovering the deep, wordless bond with his mother, and how dementia changed their relationship for the better. The episode covers key caregiving tips, such as redirecting challenging behaviors, managing daily routines, and balancing personal loss with acceptance. Also, Navigating Family Dynamics and Finances. Dementia Resources and Books:  Learn about helpful resources for dementia caregivers, including Eliezer Sobel's own book for memory-challenged adults, "Blue Sky, White Clouds," as well as other author recommendations from the AlzAuthors community. About the Author: Eliezer Sobel is a writer, former editor, and the devoted son of parents affected by Alzheimer's and aging. His book, “The Silver Lining of Alzheimer's: One Son's Journey into the Mystery,” offers a rare and hopeful perspective into the mysteries—and unexpected joys—of dementia caregiving. His book “Blue Sky, White Clouds: A Book for Memory-Challenged Adults” helps those with cognitive decline and memory loss remain engaged with text and others. Mentioned in This Episode: Buy Eliezer's bookLearn more about Eliezer and his other works here. Laurette KlierSusan Ostrowski Key Quotes: "There was a sense of connection on a soul to soul, heart to heart, essence to essence level that had nothing to do with whether she knew my name, if she knew I was her son... There was a connection there that we both recognized." – Eliezer Sobel "You gave it all for your parents because they had given it all for you, all of your life. Your book is a true love story between you and your parents." Jean Lee Connect with AlzAuthors: Subscribe to the PodcastJoin the NewsletterFollow on YouTube Learn about the Moderators Marianne Sciucco  Christy Byrne Yates  About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias.  Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know    We've got merch! Shop our Store

Have you reached the point where you're now fully responsible for your loved one's care and safety? Do you find yourself guiding others or managing all aspects of their daily needs? You've entered what we call "later on"—the final stage of the caregiving journey, and while some aspects may feel more manageable, new challenges and emotions emerge that require specific attention and planning. This final phase completes our comprehensive 20-step roadmap for dementia caregiving, covering the essential steps when you've moved beyond the messy middle into full caregiving responsibility. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Guide: Navigating Dementia Caregiving Roadmap https://thecaregiversjourney.org/guides/ Donate: https://give.cornerstone.cc/thecaregiversjourney Full show notes Additional Resources Mentioned Later On - You are now managing all aspects of their care 18. Plan for their End of Life Service:   You may have done this with your loved one just after their diagnosis. If not, do this without them now:26 minute TCJ podcast: 30. End of Life Service PreplanningTCJ blog: 30. End of Life Service PreplanningLeverage this End of Life Planning Worksheet.  19. Call in hospice. If you are not working with palliative care or a US Medicare GUIDE program organization (both of these are able to tell you when it's time to call in hospice)Find a hospice organization. Get a doctor's referral. Schedule an initial evaluation. It's almost never too early to get the initial evaluation, so don't wait.Search ‘hospice' + ‘your country' - or in the US - ‘your state'. Scroll down until you get below the sponsored links where it says ‘Places':Click on ‘More places' to get a list with a map.  Notice rating stars and those located around your area.Schedule an initial consultation with two so you can compare.Educate yourself on when to call in hospice:26 minute TCJ podcast: 29. When To Call In HospiceTCJ blog: 29. When To Call In Hospice. 20. Continue your self-care. Learn about Anticipatory Grief.  Read this AARP article:How To Manage Mourning a Loss Before It Happens.Honor your grief, be compassionate with yourself, reach out for support:Each of us navigates the loss of our loved one in our own time and way.It's reasonable when your caregiving journey ends you may feel any or all of:A sense of relief because your journey has ended and your loved one is no longer suffering, Guilty at the same time because you feel relieved.A loss of your own identity, from prioritizing your loved one for so long.Not sure what to do next.If you feel lost, reach out to your family, support group, faith community, friends, professionals. Most importantly - reach out! Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways The Three Stages of the Dementia Caregiving Journey 1. In the Beginning - Your loved one receives a diagnosis. 2. The Messy Middle - You begin asserting control; this is when it gets messy!3. Later On - You are managing all aspects of their care.