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Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer's. His is a unique perspective once the doctor diagnosing other people's cognitive issues and now the patient facing his own. Alzheimer's disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist's Personal Battle Against Alzheimer's Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early. In this episode, we discuss the value of testing for the Alzheimer's gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey. After the Podcast Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO Note: We are an Amazon Associate and may receive a small commission from book sales. Other authors/books mentioned: Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer's by Peter Berry and Deb Bunt Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know Tracey Shorthouse's Poetry Provides a Glimpse into Early Onset Alzheimer's Laurette Klier Creates Nana's Books: Nostalgic Picture Books for Seniors Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again Greg O'Brien, On Pluto: Inside the Mind of Alzheimer's Greg O'Brien, Psychology Today articles Columbia Kindred Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end) Connect with Dr. Gibbs Website *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer's. His is a unique perspective once the doctor diagnosing other people's cognitive issues and now the patient facing his own. Alzheimer's disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist's Personal Battle Against Alzheimer's Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early. In this episode, we discuss the value of testing for the Alzheimer's gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey. After the Podcast Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO Note: We are an Amazon Associate and may receive a small commission from book sales. Other authors/books mentioned: Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer's by Peter Berry and Deb Bunt Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know Tracey Shorthouse's Poetry Provides a Glimpse into Early Onset Alzheimer's Laurette Klier Creates Nana's Books: Nostalgic Picture Books for Seniors Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again Greg O'Brien, On Pluto: Inside the Mind of Alzheimer's Greg O'Brien, Psychology Today articles Columbia Kindred Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end) Connect with Dr. Gibbs Website *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
Greg O'Brien was 59 years old when diagnosed with early-onset Alzheimer's disease, unmasked by doctors after suffering a serious head injury. The award-winning journalist, husband, and father of three, lost his mother, father, paternal grandfather, and paternal uncle to Alzheimer's.Greg learned from his beloved mother, Virginia, what it means to truly live with Alzheimer's, and it was her inspiration that prompted him to write and speak openly about his own diagnosis. Ever since, Greg has been chronicling his thoughts, addressing medical conferences and Alzheimer's support groups around the world. In 2014, Greg, now 72, published a memoir called On Pluto: Inside the Mind of Alzheimer's, which won the 2015 International Book Award for Health. The memoir is the first book written by an investigative reporter embedded inside the mind of Alzheimer's, chronicling the progression of his own disease. Lisa Genova, author of the best-selling Alzheimer's novel, Still Alice, whose screen version won an Academy Award, wrote the foreword. “If you're trying to understand what it feels like to live with Alzheimer's…then you need to read this book,” Now, a new documentary feature film, Have You Heard About Greg? A Journey Through Alzheimer's with Faith, Hope and Humor, about Greg's life opens nationwide May 6, 2022. (Written and coproduced by Greg O'Brien. Directed and coproduced by his childhood friend, Steve Ecclesine.)Powerfully told, HYHAG puts a human face on the most terrifying disease of Alzheimer's and other forms of dementia. Don and I spoke with Greg and Steve about the inspiration behind the documentary and why its message is so very important.Enjoy!xoxo Susie(Greg is a board member of UsAgainstAlzheimer's in DC, has served on the national Alzheimer's Association Early-Stage Advisory Group, and is an advocate for the Cure Alzheimer's Fund of Boston). Support the show (https://www.buymeacoffee.com/sscarter)
If you're interested in learning more about dementia and spirituality, check out the following books: Redeeming Dementia: Spirituality, Theology, and Science (2018) by Dorothy Linthicum and Janice Hicks. Walking Each Other Home: Spiritual Companionship for Dementia Caregivers (2021) by Jean DentonRedeeming Dementia: Spirituality, Theology, and Science (2018) by Dorothy Linthicum and Janice Hicks.On Pluto: Inside the Mind of Alzheimer's (2018 edition) by Greg O'Brien.Spirituality and Aging (2009) by Richard AtchleyLiving in the Memories of God (2012) by John SwintonBecoming Friends of Time: Disability, Timefullness, and Gentle Discipleship (Studies in Religion, Theology, and Disability) (2018) by John SwintonDancing with Elephants: Mindfulness Training For Those Living With Dementia, Chronic Illness or an Aging Brain (2017) by Jarem SawatskyYou might be interested in other ChurchNext classes on spirituality for caregivers and those suffering from illness:Courage for Caregivers with Jamie HaithGrowing Old with Grace (Not Glamor) with Barbara CraftonEucharistic Visitation with Tim SpannausHow to Help a Sick Friend with Joyce MercerWe close with a prayer adapted from Father Timothy Menezes' Prayer for Those Suffering from Dementia, written for the Pastoral Care Project© 2009:Father of all goodness, your Son brought healing of mind and body to show that your Kingdom is here. In our hour of need, we look to you, we seek to understand your purpose. We pray for those whose lives we share and who live with the knowledge of weakness, whose memory now fades, whose enjoyment of life's story is changing. Make us aware of the needs of others, of the dignity of life at every stage, of the collective memory that we own. Bless those who care for the sick, who share the journey. Your Kingdom come, Your will be done, in Your good time. We ask this through the same Christ our Lord. Amen.
https://www.alzheimersandthearts.com/ Watch the Trailer: https://youtu.be/TWtdSFd6qh0 About Steve: Steve Ecclesine has produced over 700 TV shows and 16 movies and is the producer and director of this events documentary premier Have you Heard About Greg? A Journey through Alzheimer’s with Faith, Hope and Humor. As a working producer in Hollywood, Steve's most recent productions include: Justin Bieber’s 2020 Dance Videos, which received 80M views om You Tube in five months, Chasing Happiness: Jonas Brothers which can be seen on Amazon Prime, and the documentary Demi Lovato: My Truth. Steve's first Hollywood job was as an as an assistant editor on Roger & Gene Corman’s film, The Slams, which was followed by a 2.5 year stint as Orson Welles editor on The Other Side of The Wind that premiered last November on Netflix. He was only the second American to produce a TV series in Vancouver: Airwolf II for Universal/USA Network. A decade later, he produced the pilot and first season of the very successful Sliders TV series for FOX in Vancouver. Other TV Credits include producing Pacific Blue for USA Network, Mantis for Sam Raimi’s Renaissance Productions/ FOX; Scruples, a one-hour pilot for WB/ABC; The Amazing Live Sea Monkeys for Howie Mandel/CBS Saturday Morning; Slamball for Tollin-Robbins/ Spike TV and Black Sash for Tollin-Robbins/ CW; and Pacific Blue for USA Network. Tom Clancy's Ghost Recon Wildlands: War Within the Cartel, for Ubisoft that premiered on Amazon Prime. Steve's book, So You Wanna Be A Producer? being used in film schools. Steve produced five original Creature Features movies for HBO/Screen Gems: She Creature, Day the World Ended, How to Make a Monster, Earth vs. The Spider, and Teenage Caveman, with creatures by Academy Award winner Stan Winston. There were a trio of films for Warner Home Video: Rest Stop II, Otis, and Alien Raiders. and for Odd Lot Entertainment Organyzm and Wanted: Undead or Alive. The family film Space Warriors was produced in Huntsville Alabama. Zburbs is a micro-budget zombie comedy being distributed by Indican. About Greg: Greg O’Brien, 70, is a career journalist, an old-salt-of-the-earth investigative reporter who’s written for many national and regional publications. He penned the international award-winning best seller, On Pluto: Inside the Mind of Alzheimer's which gives an inside look into his world as an person suffering from Alzheimer's Disease. Greg has more than 35 years of newspaper and magazine experience as a writer, editor, investigative reporter, and publisher. He has contributed over the years, among other publications, to the Associated Press, UPI, USA Today, The Arizona Republic, Boston Herald American, Boston Metro, New York Metro, Philadelphia Metro, The Providence Journal, Cape Cod Times, Boston Irish Reporter, and Boston Magazine where he was senior writer. The author/editor of several books, O’Brien has published 17 books by other writers, and was a founding managing director of Community Newspaper Company, established in Boston. He lives in West Brewster on Cape Cod with his wife, Mary Catherine. The couple has three children: Brendan, Colleen and Conor. O’Brien was diagnosed several years ago with Early Onset Alzheimer’s after a horrific head injury “unmasked” a disease in the making, as doctors note. His maternal grandfather and his mother died of the disease. O’Brien also carries a marker gene for Alzheimer’s.
Journalist and "On Pluto: Inside the Mind of Alzheimer's" author Greg O'Brien discusses his early-onset Alzheimer's diagnosis and advice he'd offer others who have received a similar diagnosis.
The full broadcast of Boston Public Radio from Wednesday, March 13th, 2019. As a candidate, Donald Trump vowed to protect Medicare and Medicaid. As president, his latest budget proposal would slash both those policies. We talked to Medical Ethicist Art Caplan about this, the "anti-vaxxer" movement's effect on recent measles outbreaks, and how a Georgia state representative is mocking the heartbeat abortion bill with a "testicular bill of rights," which would criminalize vasectomies and require men to get permission from their partners before getting that Viagra prescription filled. Caplan is the Drs. William F and Virginia Connolly Mitty Chair, and director of the Division of Medical Ethics at NYU Langone Medical Center. He’s also the co-host of the Everyday Ethics podcast. Carolyn Beeler, the environment reporter for PRI’s The World, joins us for another Antarctica dispatch, where she’s studying the effects of climate change. News broke Tuesday of an alleged college admissions scam, in which wealthy parents schemed to get their children into elite colleges. We opened the lines and asked our listeners: Is this symptomatic of how crazed society has become when it comes to going to the right school? Paul Manafort's four-year sentence has provoked outrage from those who say it is too lenient. But today, Manafort faces up to 10 more years of prison in another case for conspiracy against the U.S. Will sentencing Judge Amy Jackson see a different man than Judge Ellis did? We talk to Juliette Kayyem about this, the Robert Mueller case and more. Kayyem is on the faculty of Harvard’s Kennedy school, a CNN analyst and CEO of ZEMCAR. A new podcast takes an unfiltered look at Alzheimer’s through the experiences of an unfiltered man: Greg O’Brien, who was diagnosed with early-onset Alzheimer’s in 2009. The podcast, produced by WGBH editor Sean Corcoran, is called “The Forgetting: Inside the Mind of Alzheimer’s.” It’s co-hosted by O’Brien, the author of “On Pluto: Inside the Mind of Alzheimer’s” and David Shenk, the author of “The Forgetting: Alzheimer’s, Portrait of an Epidemic.” Sy Montgomery joins us for our monthly examination of the intersection of human and animal behavior. Montgomery is a journalist, naturalist and a BPR contributor. Her latest book is "How to Be A Good Creature: A Memoir in Thirteen Animals." WGBH’s Executive Arts Editor Jared Bowen joins us to talk about new leadership at the Peabody Essex Museum.
GREG O’BRIEN, Author, On Pluto: Inside the Mind of Alzheimer’s. Mr. O’Brien has more than 35 years of newspaper and magazine experience as a writer, editor, investigative reporter, and publisher. Over the years, he has contributed to the Huffington Post, Psychology Today, Washington Post, Chicago Tribune, Runner’s World, Time, Denver Post, Associated Press, UPI, USA Today, The Arizona Republic, Boston Herald American, Boston Metro, New York Metro, Philadelphia Metro, the Providence Journal, Cape Cod Times, Boston Irish Reporter, and Boston Magazine, where he was a senior writer
On Pluto: Inside the Mind of Alzheimer's with Greg O'Brien This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up! For more info visit: https://onpluto.org/ ************************************************* For more information about BITEradio products and services visit: http://www.biteradio.me/index.html
Nothing says Happy New Year like a healthy heart. To that end, Jane’s guest today is Doctor Srihari Naidu, a renowned interventional cardiologist and the Director of the Cardiac Catheterization Laboratory, at Winthrop-University Hospital. He will help listeners recognize the warning signs of an impending coronary crisis ----and suggest the latest treatments, tools and techniques, along with lifestyle modifications, to both prevent and cure artery and valve issues. Jane will also be speaking with Greg Obrien, an award-winning investigative reporter, who was diagnosed in 2009 at age 59 with Early Onset Alzheimer’s. Acting on instinct and true journalistic grit, he felt compelled to document his experience on living with Alzheimers, not dying from it. Those notes became his latest best-selling book, On Pluto: Inside the Mind of Alzheimer’s. Simply put: Greg will give hope to those who are lost ---and a voice to those who cannot speak.
Nothing says Happy New Year like a healthy heart. To that end, Jane’s guest today is Doctor Srihari Naidu, a renowned interventional cardiologist and the Director of the Cardiac Catheterization Laboratory, at Winthrop-University Hospital. He will help listeners recognize the warning signs of an impending coronary crisis ----and suggest the latest treatments, tools and techniques, along with lifestyle modifications, to both prevent and cure artery and valve issues. Jane will also be speaking with Greg Obrien, an award-winning investigative reporter, who was diagnosed in 2009 at age 59 with Early Onset Alzheimer’s. Acting on instinct and true journalistic grit, he felt compelled to document his experience on living with Alzheimers, not dying from it. Those notes became his latest best-selling book, On Pluto: Inside the Mind of Alzheimer’s. Simply put: Greg will give hope to those who are lost ---and a voice to those who cannot speak.
Nothing says Happy New Year like a healthy heart. To that end, Jane’s guest today is Doctor Srihari Naidu, a renowned interventional cardiologist and the Director of the Cardiac Catheterization Laboratory, at Winthrop-University Hospital. He will help listeners recognize the warning signs of an impending coronary crisis ----and suggest the latest treatments, tools and techniques, along with lifestyle modifications, to both prevent and cure artery and valve issues. Jane will also be speaking with Greg Obrien, an award-winning investigative reporter, who was diagnosed in 2009 at age 59 with Early Onset Alzheimer’s. Acting on instinct and true journalistic grit, he felt compelled to document his experience on living with Alzheimers, not dying from it. Those notes became his latest best-selling book, On Pluto: Inside the Mind of Alzheimer’s. Simply put: Greg will give hope to those who are lost ---and a voice to those who cannot speak.
This week we're learning more about Alzheimer's disease, from the perspective of a researcher and a patient. We'll discuss Alzheimer's and brain degeneration with Dr. Lili-Naz Hazrati, neurobiologist and researcher at the Tanz Centre for Research in Neurodegenerative Diseases at the University of Toronto. And we'll get a first hand account of living with the disease from journalist Greg O'Brien, author of "On Pluto: Inside the Mind of Alzheimer's."
Kathryn interviews award-winning investigative reporter Greg O'Brien, author of “On Pluto: Inside the Mind of Alzheimer's”. Without a cure, Alzheimer's is expected to exceed heart disease and cancer as the leading cause of death in the next 15 years. Diagnosed at 59 with Early-Onset Alzheimer's, O'Brien has written an illuminating, naked and honest account of living with the disease, not dying with it. In his memoir, On Pluto he speaks candidly about what it's like to lose your mind and to see slices of your identity slipping away. brbr Kathryn also interviews Alex Zaphiris MD, MS, creator of RecoverySuperstar.com. Drug overdoses have tripled in the U.S. over the past three. The new face of heroin addiction is young, white and suburban with 75% of users saying they first started not with heroin but with prescription opioids like OxyContin. Dr. Zaphiris specializes in opiate recovery and uses a neuroscience approach to working with drug addicts through her program Recovery Superstar.
Kathryn interviews award-winning investigative reporter Greg O'Brien, author of “On Pluto: Inside the Mind of Alzheimer's”. Without a cure, Alzheimer's is expected to exceed heart disease and cancer as the leading cause of death in the next 15 years. Diagnosed at 59 with Early-Onset Alzheimer's, O'Brien has written an illuminating, naked and honest account of living with the disease, not dying with it. In his memoir, On Pluto he speaks candidly about what it's like to lose your mind and to see slices of your identity slipping away. brbr Kathryn also interviews Alex Zaphiris MD, MS, creator of RecoverySuperstar.com. Drug overdoses have tripled in the U.S. over the past three. The new face of heroin addiction is young, white and suburban with 75% of users saying they first started not with heroin but with prescription opioids like OxyContin. Dr. Zaphiris specializes in opiate recovery and uses a neuroscience approach to working with drug addicts through her program Recovery Superstar.
Alzheimer's Speaks gives voice to all dealing with dementia. Today, our first guests will be Dr. Ashford of MemTrax. and who has developed a computerized memory measurement system to screen for memory problems, dementia, and Alzheimer's disease: www.memtrax.com. Learn about protecting your brain as you age. The memory test, which is interesting, engaging, and challenging, has the potential to efficiently screen for the earliest signs of Alzheimer's disease and serve as an inexpensive and practical approach to testing approaches to Alzheimer treatment and prevention. Email Curtis Watch a Video on MemTrax Our second guests are Greg O'Brien, veteran journalist who has dementia and Dr. Molly Perdue. Greg has been featured in several news features and has written the book On Pluto: Inside the Mind of Alzheimer's. This book is about living with Alzheimer's, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Contact Molly Perdue PhD at the Alzheimer's Family Support Center or email her. For more information and resources on Dementia and Caregiving Check out Alzheimer's Speaks website.Support this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.