AlzAuthors: Untangling Alzheimer's & Dementia

Welcome to a powerful episode of the AlzAuthors Podcast featuring acclaimed author Marita Golden and her novel, The Wide Circumference of Love, as part of the Aging & Amazing Book Club series. This engaging discussion dives into the storytelling craft, the nuances of family caregiving, and the realities of Alzheimer's and dementia, especially in African American communities. An award-winning author of 22 books, Marita Golden shares her journey as a writer, from being a story-loving child in Washington, D.C., to producing literary works that explore social issues and healing. She shares how she came to write a story centered on a caregiver after immersing herself in caregiving spaces, meticulous research, and witnessing a friend's torturous battle caring for her husband. Ms. Golden shares insights into the connection between writing and healing, and how journaling and other forms of writing can be vital mental health tools that promote resilience. She also speaks to the higher rates of Alzheimer's and other dementias in the African American community, citing the lack of representation in clinical trials as one contributing factor, and speaks to why awareness and advocacy are more important now than ever. For readers and writers, Ms. Golden shares insight into the craft of writing, her writing routine, and her creative evolution. Key Takeaways: Storytelling unites families and communities, easing the isolation of caregiving and dementia.Fictional works like The Wide Circumference of Love, along with memoirs and how-to guides, are crucial for raising awareness of Alzheimer's and dementia.Journaling and creative writing document the caregiving journey and provide healing and hope for both writers and readers.The urgent need for advocacy and equity in dementia care for marginalized communities. About Marita Golden: Marita Golden is President Emeritus and co-founder of the Hurston/Wright Foundation. She is also an educator and author of fiction and nonfiction exploring Black life, identity, and resilience. Her recent memoir, How to Become a Black Writer, is available now. Find out more about Marita Golden on her website. Read Marita's AlzAuthors Blog Follow Marita Golden: Facebook Instagram LinkedIn Buy Marita's books: The Wide Circumference of LoveUs Against Alzheimer's Anthology About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

In this episode we're sharing the highlights from our recent interview with Carol Steinberg, whose children's book, Come Grandpa Meow, Let's Fly, adds a much-needed resource for families navigating the challenges of Alzheimer's and dementia. A Personal Story Sparked by Loss Carol's journey began more than 25 years ago, during her own father's struggle with Alzheimer's. She originally wrote the book as part of her grieving process, but it wasn't until she'd spent years working at both local and national Alzheimer's organizations that the story truly found its shape. The finished book beautifully balances respect, understanding, and connection for readers young and old. Empowering Children & Families One thing that sets Carol's children's book apart is its focus on empathy, understanding, and practical intergenerational activities that help children stay connected with loved ones living with dementia. As Carol says, “We need to bust the stigmas. We need the world to know that people with dementia are still people. They're still your loved ones. They may act differently—and I hope I show that in the book.” For Adults, Too Although written for children (ages 5 to 9, but suitable for older readers too!), this book is just as impactful for adults. As Vicki Tapia, AlzAuthors acquisitions editor, noted, the story “helps explain and cope with the changes that are happening [to a loved one].” Plus, the activities at the end offer concrete, research-backed ways that families can nurture connection. Recommended by the Experts Don't just take our word for it—Come Grandpa Meow, Let's Fly comes with glowing endorsements from field leaders like Teepa Snow, Dr. Daniel Potts, and people living with dementia, who praise its realism, sensitivity, and stigma-busting power. Whether you're a caregiver, educator, parent, or grandparent, Carol's book is a gentle guide to fostering compassion, understanding, and lasting memories—no matter where you or your loved one are on the dementia journey. After the Podcast Purchase “Come Grandpa Meow, Let's Fly" Read Carol's AlzAuthors blog post Learn about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Do you want to gain a deeper understanding of the impact of dementia on marriages? If you're seeking practical guidance and emotional resilience in this area, discover solutions to help you navigate this challenging journey in this replay of an enlightening Books & Chit Chat discussion with Debra Tann, Ed.D. In this episode, you will be able to: Understand the ins and outs of dementia care to enhance your caregiving skills and provide better support.Gain insight into navigating the journey of dementia diagnosis to feel more empowered and informed.Explore the impact of dementia on marriages to build resilience and find ways to strengthen relationships.Implement effective care strategies for frontotemporal dementia, enhancing the quality of life for your loved one.Learn how to address racial disparities in dementia care to create a more inclusive and equitable support system. Our special guest is Debra Tann, Ed.D, the CEO of Reminiscent, who brings a vibrant blend of experience to the field of dementia education. Her journey into this space began with a career in education and a keen eye for behavioral changes in her husband, ultimately leading to a diagnosis of frontotemporal dementia (FTD). As a certified dementia educator and author of “The Race of Dementia,” Debra's expertise offers caregivers practical guidance and emotional resilience, drawing from her own lived experiences. Her compassionate approach and dedication to enhancing caregiving skills make her a valuable resource for those navigating the complexities of dementia care. Books & Chit Chat is a partnership with Aging and Amazing to bring authors and readers together to share stories and discuss the multiple facets of dementia care. After the Podcast Purchase “The Race of Dementia” Read Debra's AlzAuthors blog post Visit Debra's website: Debra On Dementia Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

David Bredbenner, author of "Going Home: A Journey with Dementia," shares his profound experience caring for his mother through her journey with dementia. Before dementia, Betty Jane was a dynamo - a retired nurse turned successful artist who ran marathons well into her late 70s. The decline began subtly after a fall, but it was the passing of David's sister Terry that marked the stark transition into full-blown dementia  One of David's most powerful lessons was learning to "throw logic right out the window." Traditional reasoning and reality-checking only led to frustration. Instead, he discovered the transformative power of meeting his mother where she was, using humor and creative redirection rather than confrontation. Despite working in technology and traveling frequently, David and his sister made the conscious choice to keep their mother at home. While acknowledging it wasn't always possible for everyone, he describes it as both "pure hell" at times and "an absolute gift." The journey taught him profound patience and the importance of focusing on emotional connection rather than factual accuracy. Even in the most challenging moments - like when his mother became combative or refused care - David found that humor and gentle persistence could break through where logic failed. Perhaps most touching was David's reflection on love transcending understanding: "She knew she was loved...and she didn't have to know why." This simple but profound observation captures the essence of caring for someone with dementia - that connection and comfort matter more than comprehension. In this episode, you will: ·      Discover effective strategies for caring for a parent with dementia. ·      Understand the emotional journey of being a dementia caregiver and how to navigate it. ·      Explore the impact of Alzheimer's on family dynamics and relationships. ·      Uncover the process of writing a book about personal dementia experiences. ·      Learn practical and valuable strategies for managing dementia symptoms. After the Podcast Read David's AlzAuthors blog post Purchase “Going Home: A Journey with Dementia” Learn about the World Walks Against Dementia Learn about Norrms McNamara and Global Purple Angel  Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club  About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Do you want to experience the healing power of family relationships and find hope and peace amidst the challenges of caregiving? In this episode we discuss a solution. Our special guest is Susan Landeis, author of "In Search of Rainbows: A Daughter's Story of Loss, Hope and Redemption." Susan is an inspiring voice in the Alzheimer's and dementia caregiving community. Her memoir delves into her journey of caring for her mother with Lewy Body Dementia, while navigating a lifelong, complex, and estranged relationship. Susan's candid storytelling and experiences offer invaluable insights into the challenges of caregiving and the transformative power of forgiveness and healing within family dynamics. As a member of the AlzAuthors management team, Susan brings a wealth of knowledge and compassion to her work, providing support and understanding to those facing similar struggles. Her personal journey and dedication to raising awareness of dementia caregiving make her a compelling and relatable guest for today's episode. Estrangement within families can present additional challenges when taking on the role of caregiver. Navigating this complex dynamic requires open communication, patience, and a willingness to address underlying issues. Caregivers like Susan have found that caregiving can offer a pathway to reconciliation, understanding, and forgiveness, ultimately bridging the gap created by estrangement. In this episode, you will: ·      Discover effective coping strategies for Lewy Body Dementia, bringing peace of mind to both you and your loved one. ·      Learn how caregiving can become a catalyst for healing family relationships, fostering understanding and connection. ·      Find ways to navigate the challenges of estrangement while providing loving care for your family member. ·      Explore the powerful process of writing a memoir on dementia caregiving, capturing and preserving precious memories. ·      Gain valuable insights into managing senior health and well-being, empowering you to provide the best care possible. After the Podcast Buy “In Search of Rainbows” Read Susan's AlzAuthors Post Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors. Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys.  We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening.  We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

This episode is our contribution to Podcasthon, a global collaboration of podcasters to raise awareness of their favorite charities. Our favorite charity is us. We are a 501 (c) (3) organization. Please be generous. Donate at AlzAuthors.com. In this deeply personal and informative episode, hosts Marianne and Christy are joined by panelists Jean Lee, Ann Campanella, Loretta Woodward Veney, and David Iverson, all caregivers for ten or more years, as they explore the five pillars of caregiving – emotional toll, physical strain, financial difficulties, social isolation, and coping strategies. Key Themes & Takeaways: Emotional Toll: Caregivers shared moving personal stories of grief, guilt, and anger while navigating their loved ones' dementia journeys. There is strength in allowing yourself to grieve, as highlighted by Ann Campanella, who stated, “Grieving clears the way to bring in joy and beauty.” Physical Strain: From exhaustion to disruption of sleep cycles, the taxing demands of caregiving impact physical health drastically. David emphasized practicing self-care through exercise and staying physically active as a necessary coping mechanism. Financial Difficulties: A significant challenge highlighted was the cost of care, with inputs from Jean, Loretta, and Dave emphasizing the overwhelming need for better elder care policies. Loretta noted how caregivers should proactively explore local programs like Medicaid waiver lists early on for financial support. Social Isolation: Many caregivers expressed feeling isolated, especially given the stigma surrounding dementia diagnoses. Loretta found joy in keeping her mother socially active, even organizing creative activities like Lego building to keep her mother engaged. Strategies for Coping: Incorporating joy into daily routines was a recurring theme, especially for Loretta, who promised her mom “a little bit of joy every day.” The authors shared reminders to stay connected with loved ones and leverage support groups for affirming connections and shared experiences. After the Podcast Learn more about the panelists Purchase their books Alzheimer's DaughterBeing My Mom's MomMotherhood: Lost and FoundWinter Stars: An elderly mother, an aging son, and life's final journey  Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors.  Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Have you been told to walk away from loved ones with Alzheimer's, assuming there's nothing left to connect with? The pain of feeling disconnected and hopeless in caregiving is all too real. But what if there was a way to find joy and connection in the midst of it all? Let's uncover the power of creativity and joy in dementia care together. In this episode, Marilyn Raichle, author of "Don't Walk Away: A Care Partner's Journey," provides valuable insights on the power of art therapy for Alzheimer's patients. Her personal experience caring for her mother showed her that her mother was still "in there," and they built the loving relationship theyb were unable to create in the past. Quote: People living with dementia have lives to live and gifts to give. Watch on YouTube Key lessons Art Reveals Hidden Abilities Discovering her mother's artistic talents showed that people with dementia still have gifts to share. Focus on What's Present Instead of dwelling on what's lost, concentrate on discovering and appreciating what remains in the person. Take Time to Just Be Spending quality time together, even just five minutes doing something enjoyable, can build meaningful connections. Listen More Than Talk Ask questions and truly listen to their answers, even if repeated, as they may reveal what's important to them. Find Joy in Small Moments Sharing laughter, songs, walks and simple pleasures can create happiness for both caregiver and care recipient. Accept Their Reality Meet them where they are rather than trying to correct or change their perspective. Love Can Still Grow Despite memory loss, the capacity for giving and receiving love remains intact. Resources mentioned in this episode: Participate in the Expose Dementia Conference, The Art of the Matter, happening March 28th to 30th at the Maritime Conference Center in Linthicum, Maryland. Learn more about the intersection of art and dementia care. Tune in to Podcasthon starting on March 15th and listen to the AlzAuthors episode featuring a discussion on the long-term impact of caregiving. After the Podcast Purchase Don't Walk Away Learn more about the Moderators Marianne SciuccoChristy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here.  Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Connection is key in dementia care. Discover the transformative power of arts engagement for people living with dementia in this inspiring conversation with Mary Crescenzo, author of “The Planet Alzheimer's Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own.” In this heartfelt episode, a replay of an Aging & Amazing Books & Chit Chat discussion, Mary shares her decades of experience using various art forms to connect with and enrich the lives of people living with cognitive decline. From her early days as an art teacher to becoming a pioneering voice in arts engagement for dementia care, Mary offers practical, accessible ways to bring creativity into caregiving. You'll learn: Simple ways to incorporate music, visual arts, movement, and storytelling into daily careHow creative expression can bridge communication gapsThe importance of intergenerational engagement through artSelf-care strategies for caregivers through creative writingWays to implement arts activities in both home and facility settings Mary's Key Messages for Caregivers: Everyone has innate creative abilitiesArt activities don't require expensive materials or special trainingFocus on the present moment rather than past relationshipsCelebrate and display creative worksDon't give up if first attempts aren't successful Quote: “Art brings joy into the darkness of this disease.” - Mary Crescenzo After the Podcast Download Mary's Tip Sheet: 7 Tips for Connection and Communication through the Arts Get the book: The Planet Alzheimer's Guide by Mary Crescenzo Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you or the author. Read her AlzAuthors Blog Catch the Dementia & the Arts Podcast Episode Follow Mary Listen to her co-hosted show: Dementia and the Arts on Alzheimer's Speaks Resources mentioned: Mary's Caregiver Tip Sheet: “8 Ways to Use Arts for Engagement”Learn more about Mary's play "Planet A" and the inner world of Alzheimer's: Remember: You don't need to be an artist to engage in creative activities with your loved one. As Mary says, creativity is an innate human ability that can bring connection and joy to the dementia journey. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. Meet the Moderators Marianne Sciucco Christy Byrne Yates Support AlzAuthors We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias.To sustain our efforts please donate here Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Have you ever considered creating a “contract” with yourself as a caregiver—one that clearly defines what you can and cannot do? Debra Hallisey, caregiver advocate and author of A Relationship Contract for Dementia Caregivers, joins us to share her insights on navigating caregiving dynamics, especially for those caring for a loved one with dementia. In this heartfelt conversation, Debra offers practical tools and exercises to help caregivers embrace the reality of dementia while maintaining their emotional well-being. From her caregiving journey to her work supporting families, Debra provides a profoundly compassionate perspective on the challenges and rewards of creating a safe and loving environment for individuals with dementia. Whether you're a caregiver or supporting someone who is, this episode is a valuable resource filled with actionable strategies and powerful insights to help you navigate the complexities of dementia care. Don't miss it! In addition to learning more about relationship contracts, you'll learn: The importance of NOT keeping dementia diagnoses secretManaging grief throughout the caregiving journeyTransitioning from home care to assisted livingCultural perspectives on caregiving Debra also offers the following advice for caregivers: Remember your person is “still in there” despite changesSet clear boundaries using “I” statementsBe specific when asking others for helpGive yourself grace throughout the journey Quote: “Grief runs through caregiving like a river” - Debra Hallisey After the Podcast: Read Debra's AlzAuthors blog post Buy the book, A Relationship Contract for Dementia Caregivers, by Debra Hallisey, Note: We are an Amazon Associate and may receive a small commission from book sales. Follow Debra Website Facebook LinkedIn Twitter Resources mentioned in this episode are: Documentary: Wine, Women and Dementia by Kitty NortonGoodwin Living (Virginia) - Model program for caregiver education and support About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

We're excited to share a powerful new episode: "Dual Diagnosis: When Both Parents Have Dementia at the Same Time,” a replay of a live panel discussion held on November 19, 2024. Host Marianne Sciucco guides us through a powerful conversation with guests Vicki Tapia, Frank Silverstein, and Jean Lee, along with podcast co-host Christy Byrne Yates. Highlights: Vicki Tapia recounts her deeply personal experience of navigating her parents' aging and dementia, which included her father's Parkinson's Disease and her mother's Alzheimer's. She delves into the challenging decisions regarding her mother's resistance to accepting help, overseeing their care without the help of her only sibling, and her parent's eventual move to assisted living. She's the author of Somebody Stole My Iron: A Family Memoir of Dementia. Filmmaker Frank Silverstein shares the profound narrative of documenting his parents' dementia journey, initially through cell phone recordings, which eventually transformed into a powerful film project, Lousy: Love in the Time of Dementia. He opens up about the emotional challenges, capturing moments of humor amidst the pain, and the ethical considerations involved in their care. Jean Lee, author of the memoir Alzheimer's Daughter, discusses the guilt and emotional turmoil of turning her private family journey into a published book. She shares how writing became a transformative healing process, which has also brought hope and understanding to many others facing similar challenges. Christy Byrne Yates, author of Building a Legacy of Love: Thriving in the Sandwich Generation, provides insightful tips on managing family dynamics and maintaining communication as the primary caregiver. Drawing from her personal experience and professional knowledge, she emphasizes the importance of creating memories and the lasting impact caregiving has on younger generations. In this episode, you will: Discover effective strategies for caring for parents with dementia that enhance their quality of life.Learn how to foster better communication and cooperation among siblings in the challenging role of caregiving for a parent with dementia.Explore the importance of documenting the dementia journey and learn how to create a meaningful record of your caregiving experience. Buy the books: Somebody Stole My Iron Alzheimer's Daughter Building a Legacy of Love: Thriving in the Sandwich Generation Note: We are an Amazon Associate and may receive a small commission from book sales. Watch Lousy: Love in the Time of Dementia About the Podcast We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store 

Allison Applebaum, PhD, is a clinical psychologist with 15 years of experience in psycho-oncology and a pioneer in caregiver support services. She discovered the critical role family caregivers play in healthcare while during her work with terminally ill cancer patients, where she witnessed the immense impact of caregiving on families. Struck by the lack of targeted support services for caregivers, Allison founded the Caregivers Clinic at Memorial Sloan Kettering Cancer Center in 2011, the first targeted psychosocial care program for family caregivers in a cancer center, to address this crucial need. Soon after, her understanding of the challenges faced by caregivers became deeply personal when she took on the role of caregiver for her father, world-renowned musician Stanley Applebaum, who had Lewy Body Disease. This dual experience, both professionally and personally, sparked her motivation to advocate for improved support and validation for caregivers, leading her to author "Stand by Me,” which aims to make caregiver support accessible to the millions of caregivers across the country. Her expertise and passion for this critical issue make her a valuable resource for anyone navigating the complexities of caregiving. In this episode, you will: Uncover the psychological effects of caregiving and understand how to address and manage them for overall well-being.Discover effective strategies for supporting caregivers in healthcare settings to enhance the quality of care and support provided.Learn the importance of effective communication in providing quality care for loved ones. The resources mentioned in this episode are: The book, Stand by Me, by Allison Applebaum can be found on Amazon, the Simon and Schuster website, and AlzAuthors.com. Note: We are an Amazon Associate and may receive a small commission from book sales.To learn more about the book and keep up to date with any events, visit Allison Applebaum's website at allisonapplebaum.com.Listen to audio of all the songs referenced in the book on Allison's website.Read Allison's blog post to learn more about her story.Access Allison's Tool Kit “Developing Caregiver Clinical Services: A Toolkit for Cancer Centers and Staff” for the American Cancer Society: https://www.cancer.org/content/dam/cancer-org/cancer-control/en/toolkits/caregiver-clinic-toolkit.pdf About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Family caregiving is a profound and complex journey, particularly when faced with dementia or terminal illnesses. In this podcast episode, a replay of a Books & Chit Chat discussion, we delve into the experiences of Malia Kline, co-author of "Sisterly Shove." She shares her heartfelt story of caring for her aging parents and the intricate dynamics encountered with her physician sister and co-author Diane Stinson.  Malia's caregiving journey begins with her family grappling with the twin burdens of her father's dementia and her mother's pancreatic cancer. Malia and Diane had differing views on their care, which involved moving each parent cross-country from one sister's care to the other's. Diane, a pathologist, believed different medical decisions could extend their lives. Malia wished them relief from suffering even if it resulted in death. However, these differing perspectives did not create a chasm between them; instead, they brought the sisters closer in their shared mission. Writing a book with alternating chapters from each perspective helped in this process.  For Malia, writing "Sisterly Shove" with Diane was not just a story-telling endeavor but a therapeutic journey. The collaborative process allowed them to alternate writing and editing chapters, facilitating understanding and maintaining their relationship. Their book provides an intimate perspective on caregiving challenges, sibling dynamics, and their fight against the medical establishment. Through excerpts read during the podcast, we gain insights into how the sisters' different approaches reflected their childhood personalities and shaped their caregiving strategies. Malia emphasizes the importance of journaling and writing as tools for preserving memories and coping with the complex emotions of caregiving. In this episode, you will: Understand the impact of dementia on the entire family dynamic, not just the individual.Learn how to navigate complex sibling dynamics in elder care to foster a more cohesive and collaborative caregiving approach.Discover effective coping strategies when caring for a loved one with dementia, creating a more harmonious caregiving environment.See how writing is a powerful tool for processing and managing the emotional complexities of caregiving. After the Podcast Purchase Sisterly Shove Learn more about Malia at AlzAuthors.com and “Dementia with Difficult People”  Learn more about the Moderators Marianne Sciucco Christy Byrne Yates Learn more about Aging & Amazing Sign up for the book club About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Barbara Drake-Vera's caregiving journey in Peru, caring for her American father with Alzheimer's, is a unique and eye-opening story that sheds light on cultural differences in elder care. While Barbara lived in Lima, Peru with her Peruvian husband, her widowed father was diagnosed with Alzheimer's. He lived in a four-bedroom home he previously shared with his late wife in Florida, USA, and it was soon determined he could not live alone at home. As the only child, Barbara felt compelled to come to his assistance. She knew that elder care was manageable and affordable in Lima, where multigenerational families living together was the norm. So, she and her husband made the unconventional decision to move her dad to Peru to be cared for in their home. This was a radical change for him, a proud and independent American man, World War II veteran, and former postal worker in his eighties. Together, they navigated the cultural nuances of caregiving within a Latin community that, in spite of their challenges, led to success. Barbara, the author of Melted Away: A Memoir of Climate Change and Caregiving in Peru,had had a difficult relationship with her father for many years, but this caregiving journey helped heal old wounds. Quotes “Caring for someone with dementia can be a real gift, but you don't think of it at the time because you're just trying to get through each day.” - Barbara Drake-Vera “I decided to be compassionate. It wasn't forgiveness, but I chose not to let the past be my present.” - Barbara Drake-Vera “My father, who was a self-absorbed, narcissistic jerk, was never such a nice person as when he was finally treated for Alzheimer's and cared for in Peru.” - Barbara Drake-Vera In this episode, you will: Explore the impact of cultural differences in elder care and learn how diverse perspectives can enrich the caregiving experience for individuals with Alzheimer's.Discover the benefits of multigenerational living for Alzheimer's caregiving and how it can positively influence the well-being of both the individual with Alzheimer's and the caregivers.Learn effective strategies for transitioning elders with Alzheimer's to new environments and understand the importance of creating a supportive and familiar space for them.  After the podcast Purchase Melted Away: A Memoir of Climate Change and Caregiving in Peru Note: We are an Amazon Associate and may receive a small commission from book sales. Learn more about Barbara Drake-Vera About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

In this replay of an Aging & Amazing Book Club discussion, we engage in a deep and emotional conversation with Carolyn Birrell, discussing her personal experience as a caregiver for her mother, who had dementia. Carolyn, author of Walking with Fay: My Mother's Uncharted Path into Dementia, shares her story of coping with the challenges of caregiving, its emotional toll, and the need to find humor and love in the face of difficult and unlovable behavior from her mother. She also shares the emotional story of the last days of her mother's life during the height of the COVID-19 lockdown. Throughout, Carolyn emphasizes the need for caregivers to find encouragement in being more loving during this difficult process, even when faced with resentment and disappointment. One of the most notable insights shared is Carolyn's reflection on learning to see past the unlovable behavior of her mother and to remember the person she fell in love with. Quotes Balancing Care and Judgment: "One of the most frightening things for me during that time was the perception from others that I was being overreactive and controlling and was inserting myself into my mother's life unnecessarily." Caring for a Loved One with Dementia: "I was able to manage her quality of care, but I wasn't able to manage her quality of life." Finding Encouragement in Challenging Times: "When I wrote the book, I thought I was writing it for people who were feeling alone and I wanted them to know that no, you're not alone, that others have gone through this just like you. You're going to be okay and hang in there." Finding Humor and Love in Caregiving: "And I think what I really learned from this whole thing is trying to find the humor and the spirit of actual loving this person who has become oftentimes unlovable." In this episode, you will: ·     Uncover insightful tips for navigating the unique challenges of dementia caregiving ·     Understand the profound impact of COVID-19 on dementia care ·     Discover effective coping strategies for dementia caregivers during challenging times. ·     Learn about the valuable support and resources available through the Alzheimer's Association support groups After the podcast Read Carolyn's AlzAuthors post Purchase Walking With Fay now Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Carolyn Facebook Instagram LinkedIn Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Unexpectedly, a physician's journey of caring for her father with Alzheimer's disease leads to groundbreaking insights. From reversing cognitive decline to the impact of emotional trauma, Dr. Helena Popovic shares a wealth of evidence-based strategies for caregivers. Her unique blend of personal experience and scientific knowledge sheds light on effective coping strategies and self-care techniques for those caring for individuals with Alzheimer's. Get ready to dive into a treasure trove of information, humor, and wisdom, as Dr. Popovic reveals the power of joy, gratitude, and holistic well-being in the face of Alzheimer's disease. Quotes "The human brain is continually altering its function, cell number, circuitry, and chemistry as a direct result of everything we do, experience, think and believe. This is called neuroplasticity." - Helena Popovic "The most important thing I could give him would be genuine joy, love, enthusiasm. So just looking after ourselves is just in itself already looking after the other person." - Helena Popovic "The greatest gift that we can give to the people we care about are our life force, our energy, our enthusiasm, our passion." - Helena Popovic In this episode, you will: Discover effective coping strategies to ease the challenges of caring for someone with Alzheimer's.Learn about potential methods to slow down or reverse cognitive decline in Alzheimer's patients.Explore the impact of emotional trauma on the risk of developing Alzheimer's and how to mitigate its effects.Uncover self-care techniques to maintain your well-being while caring for a loved one with Alzheimer's.Understand the benefits of practicing gratitude for your mental health and overall resilience. Purchase "In Search of My Father" Connect with Dr. Helena Popovic Facebook Instagram YouTube LinkedIn  About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Have you heard these myths about faith's role in caregiving? Myth 1: Faith won't make a difference in the practical challenges.Myth 2: Caregivers must be perfect in their faith to make a difference.Myth 3: Faith won't alleviate the emotional toll of caregiving. Let's unravel them with our guest Dorothy Horne in this replay of Books & Chit Chat with Aging & Amazing. We touch on everything from clinical trials to the role of faith, and the power of community and positive narratives on the dementia journey. Dorothy, a retired first-grade teacher and former columnist for a local newspaper, brings a unique perspective to the conversation as she shares her caregiving journey with her husband, Byron, who was diagnosed with early-onset Alzheimer's. Through her faith and resilience, Dorothy has found moments of grace and strength in the midst of the challenges of dementia caregiving. Her heartfelt reflections and personal experiences offer valuable insights into the role of faith in navigating the complexities of Alzheimer's and dementia, providing inspiration and support for others on similar paths. She has shared these insights in two books: Glimpses of Grace: Walking in Hope Through Alzheimer's and Ordinary Days and Glimpses of Grace: And Grace Will Lead Us Home.  In this episode, you will: Explore the profound impact of faith in providing strength and comfort while navigating the challenges of dementia caregiving.Learn how to break free from the negative stereotypes and misconceptions surrounding an Alzheimer's or dementia diagnosis.Encounter the concept of “lightbearers” and how to become one.Discover the transformative power of community support in finding emotional resilience and practical assistance.Prepare for a positive and fulfilling life beyond caregiving by understanding the transition process and available resources After the podcast Read Dorothy's AlzAuthors post Purchase Glimpses of Grace: Walking in Hope Through Alzheimer's and Ordinary Days and Glimpses of Grace: And Grace Will Lead Us Home now. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Dorothy Website Facebook Twitter LinkedIn Mentions Michael Verde's work - For those interested in Michael Verde's work and his insights on dementia care, you can explore his organization, Memory Bridge, and access his resources and speaking engagements. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Caring for a spouse with dementia is a deeply challenging and emotional journey. In this episode, hosts Marianne Sciucco and Christy Byrne Yates bring together three extraordinary guests: Richard Creighton (aka Frank Brown), Scott Rose, and Tio Stib (aka Stephen Miller), who share their personal experiences and hard-earned insights. Richard Creighton shares his journey caring for his wife Kate, who is in the advanced stages of Alzheimer's. He discusses the daily routines that bring them joy and emphasizes the profound impact of kindness and community support. Richard blogs about their Alzheimer's journey at Living with Alzheimer's.com. Learn more about Richard at AlzAuthors.com. Scott Rose opens up about the heartbreaking realization of his wife Maureen's cognitive decline due to frontotemporal dementia. He chronicles their experience in his book We Danced: Our Story of Love and Dementia, and highlights the importance of maintaining dignity and understanding communication challenges. Learn more about Scott on AlzAuthors.com. Tio Stib, who lost his sight around the same time his wife, Maria, was diagnosed with Alzheimer's, offers a unique perspective. He captures their poignant and humorous moments in his book My Dementia Diary: A blind caregiver's journey with his wife and her dementia, and discusses the cultural differences in dementia care between Mexico and the U.S. Learn more about Tio at AlzAuthors.com.  After the podcast  Purchase We Danced: Our Story oove and Dementia Purchase My Dementia Diary: A blind caregiver's journey with his wife and her dementia Note: We are an Amazon Associate and may receive a small commission from book sales.  Resources mentioned: Judy Cornish, The Dawn Method Lingraphica - A device that can help with communication for individuals with speech and language difficulties due to dementia. Security Camera with Two-Way Speaker - A security camera with a two-way speaker can be used to communicate with a loved one who may have difficulty using traditional communication devices. It allows for verbal interaction and reassurance. Children's Songs - Using familiar children's songs can help soothe and engage individuals with dementia, providing a sense of comfort and familiarity. Love and Patience - The most important takeaway is the need for love, patience, and understanding when caring for a loved one with dementia. This includes being patient with family members and caregivers who may have different perspectives on the care process. About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Marianne and Christy engage in a heartfelt conversation with Allene Symons, devoted caregiver to her late husband Allen, who battled Lewy Body dementia. She's the author of Love in a Time of Caterpillars: A Memoir of Monarchs and Caregiving. Her unique perspective on utilizing butterfly gardening as a source of therapy and joy, along with her insights on managing personal health crises during caregiving, make her a compelling and relatable guest. Allene shares how their hobby of tending to a butterfly garden became a source of therapy and hope, offering moments of respite and joy amidst the challenges of dementia. The simple act of observing caterpillars transforming into butterflies not only brought light to her husband's eyes but also became a cherished activity that bonded their caregivers with the natural world, providing a sense of purpose and connection. Allene's story beautifully illustrates the profound impact of outdoor activities and nature therapy in dementia care, showcasing the power of finding beauty and comfort in the midst of adversity. Her experiences highlight the importance of nature therapy, and the challenges faced by caregivers, especially amidst the disruptions caused by the COVID-19 pandemic. She also shares the difficulties she endured when she was diagnosed and treated for breast cancer during the pandemic. Quote "The extreme flexibility we need when we're caregivers who are a loved one with dementia is core to the journey." In this episode you will: Discover the unexpected connection between butterfly gardening and dementia care.Find out how one caregiver found joy and solace in nature therapy.Learn effective strategies for managing technology with dementia patients.Understand the unique impact of COVID-19 on dementia care and how to navigate it.Explore the compassionate use of loving lies in dementia caregiving.Embrace the importance of outdoor activities in improving the emotional well-being of dementia patients. After the podcast Read Allene's AlzAuthors post: we'll get this once it's published.Connect with Allene Website LinkedIn X-Twitter Facebook Instagram Purchase Love in a Time of Caterpillars now. Note: We are an Amazon Associate and may receive a small commission from book sales. Mentions Alzheimer's Association Companion cards PDF (download and print)  About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

One parent with dementia is challenging enough, but when you have TWO parents with dementia while raising young children it's easy to fall into despair and chaos. When Christy Byrne Yates, a licensed educational psychologist, writer, and speaker, found herself in this situation she learned the necessary skills she needed to not only provide care to her parents and children but also to herself. In this replay of the AlzAuthors Aging & Amazing Books & Chit Chat discussion, she shares her insights, offering practical tips on navigating family dynamics, building a legacy of love in caregiving, and providing emotional resilience and support Christy's openness about her emotional struggles and the lessons learned from her parents offers a profound exploration of the caregiving experience, reminding listeners of the enduring power of love, empathy, and self-discovery within the caregiving journey. Her unique perspective and heartfelt reflections make this episode a must-listen for anyone seeking valuable insights and guidance in managing the complexities of caregiving for aging parents, especially those dealing with dementia. Author of Building a Legacy of Love: Thriving in the Sandwich Generation, she's a member of the AlzAuthors management team, and co-host and producer of the "Untangling Alzheimer's & Dementia" podcast. In this episode, you will: Discover the power of self-care while caring for parents with dementia.Uncover the secrets to building a lasting legacy of love in your caregiving journey.Navigate and defuse challenging family dynamics while caring for loved ones.Unlock the top tips for managing the unique challenges of being a sandwich generation caregiver. About Christy Byrne Yates, MS In addition to being an author, Christy is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life's challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents. After the podcast Read Christy's AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Purchase Building a Legacy of Love: Thriving in the Sandwich Generation. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Christy Byrne Yates Website and blog Twitter  Facebook Instagram  LinkedIn YouTube About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

In this heartfelt episode of AlzAuthors, we dive into the emotional and practical aspects of caring for loved ones with dementia, with a special focus on family memories and intergenerational bonds. Jeannette Fazzari Jones shares a particularly touching story about her experiences with her grandparents' dementia, detailing both the struggles and joys she encountered along the way. She is the author of the beautifully illustrated children's book, Meatballs for Grandpa. We talk about how the many senses like touch and smell impact memory, and how to use sensory activities to connect not just with our person with dementia, but with children who may yearn to stay connected to a beloved person. As an educator, Jeanette speaks to the kinds of activities that can be used with young children who may read or listen to the story. We discuss the traditions of cooking and treasured recipes that are handed down through families that keep family connected. Jeanette is the author of the beautifully illustrated children's book, Meatballs for Grandpa. After listening to this warm and delicious episode, you might just be inspired to cook a big batch of meatballs! Connect with Jeannette Buy Meatballs for Grandpa Read her AlzAuthors blog post - need to add link Website Instagram Facebook Twitter/X About the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Christy Byrne Yates moderates an Aging & Amazing book club discussion with co-host Marianne Sciucco on the value of fiction in dementia caregiving. Marianne, a founder and manager of AlzAuthors, and also board president, podcast producer and host, draws from her experiences as a nurse and personal caregiver to share her journey and the inspiration behind her novel, "Blue Hydrangeas: An Alzheimer's Love Story." A registered nurse, she was drawn into the world of Alzheimer's and dementia care through personal experiences with family members affected by the disease. Working in the dementia unit of a nursing home, she found her calling in caring for individuals impacted by cognitive diseases. Her encounters with patients in various stages of memory impairment sparked a deep curiosity and desire to find solutions to improve their comfort and well-being. It was a serendipitous meeting with an elderly couple, where the wife had Alzheimer's and the husband was her devoted caregiver, that inspired Marianne to embark on her writing journey. Fueled by her passion for highlighting the often-overlooked male caregivers, her book delves into the emotional complexities of Alzheimer's and the unwavering love and hope that sustains caregivers through the challenges. Marianne's unique perspective and firsthand experiences bring authenticity to her narrative, offering readers a heartfelt glimpse into the world of Alzheimer's and the profound impact it has on those touched by its reach. She believes fiction can be an in important tool in educating people about Alzheimer's and dementia, offering a "soft landing space," where readers can not only find facts but discover the human story found in all dementia situations. In this episode, you will: Explore the process of writing books about Alzheimer's and the impact of storytelling on raising awareness.Gain valuable insights into navigating the complexities of dementia diagnosis and care, empowering you to make informed decisions.Understand the impact of Alzheimer's on families and gain insights into fostering resilience and coping mechanisms.Navigate the complexities of dementia diagnosis and care with valuable insights and expert perspectives. After the podcast Read Marianne's AlzAuthors postPurchase Blue Hydrangeas, an Alzheimer's love story About the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

Welcome to the AlzAuthors podcast, where we explore the power of collaboration and unity within the dementia community. In this episode, we're joined by Gina Awad from the U.K, who has channeled her passion for dementia care into valuable insights for caregivers. Her journey began at a young age, witnessing the impact of dementia on individuals in care homes, which fueled her dedication to the cause. Her background in health and social care, combined with her personal experiences, has led her to author the illustrated book "United: Caring for Our Loved Ones with Dementia," providing caregivers with practical strategies and emotional support. We discuss the challenges of competition in the field of dementia support, emphasizing the importance of working together to benefit those living with dementia and their families. We also delve into the collaborative process behind the creation of "United." Gina and her illustrator, the late Tony Husband, decided to join forces during COVID-19 lockdown to make a difference for people with dementia and their caregivers. Throughout the episode, we explore the significance of involving individuals directly impacted by dementia in conversations and initiatives, as emphasized by the phrase "Not about us without us." Gina shares a powerful story about a man with dementia trying to withdraw money from a bank, which led to an opportunity for her to educate bank staff about dementia and share the story in a local paper. We also talk about the rich support groups available for care partners and those living with dementia, as well as the Reading Well initiative, which released a list of 20 books, including contributions from authors living with dementia, to be available in public libraries across England and Wales. Join us as we explore the importance of collaboration, unity, and the sharing of experiences within the dementia community through Gina Awad's work and insights. Connect with Gina Read her AlzAuthors blog post Gina hosts a quarterly radio show on Phonic 106.8 FM ‘Living Better with Dementia' with over 70 shows to tune into at your leisure.: https://www.mixcloud.com/livingwithdementia/ LinkedIn Twitter About the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

In this podcast, host Marianne Sciucco is joined by an ensemble of talented poets to officially launch our anthology, Poetry for the Dementia Journey. This collection brings together caregivers who have personally navigated the complexities of caregiving, diagnosis, and emotional upheavals tied to Alzheimer's and dementia. They write about many of the situations common to caregivers: the impact of the initial diagnosis, moving into assisted living or memory care, saying goodbye. From touching moments with loved ones to the nuanced challenges of caregiving, these poems offer solace, understanding, and a break from the isolating silence often surrounding dementia. Whether you're a caregiver, a family member, or someone seeking to understand the impact of Alzheimer's, this anthology and today's episode provide a profound sense of connection and empathy. You'll experience a myriad of emotions, from sadness to joy, despair and hope. In the end, you will be comforted in knowing that you are not alone. Takeaways: ·      Gain insight into the profound impact of personal storytelling on Alzheimer's. ·      Understand the unique challenges and emotional impact of early onset Alzheimer's on families. ·      Explore the benefits of creative expression in providing holistic care for individuals with dementia. Purchase Poetry for the Dementia Journey Timestamps and page numbers: 2:30 Mariana Mcdonald, Diagnosis, p.30 5:06 Austin Alexis, Dementia Intrigue (not in book) 7:12 Sue Fagalde Lick, You Dance, p.80 8:42 Gail Thomas, A Daughter's Garland, p.114 10:28 Judith H. Montgomery, Mother's Day at Aspen Ridge Assisted Living, p.101 12:10 Ann Campanella, Child Mother, p.62 13:43 Margaret Stawowy, Mother Country, p.162 15:33 Eileen Kennedy, Ritual, p.59 16:41 Joy Johnston, At the Crossroads, p.167 17:47 Sherri Levine, Stealing Flowers from the Neighbors, p.147 20:37 Patricia McKernon Runkle, Given the Mother Word PURE, p.119 21:52 Alan Bern, Boxae, p.17 24:59 Kelly Dumar, Mrs. Bean's Snow, p.158 29:00 Renee Terry Mucci, Life, p.127 30:55 Eileen Kennedy, End of Day, p.60 31:59 Mariana Mcdonald, All the Books, p.31 34:10 Austin Alexis, The Patient, p.95 36:58 Gail Thomas, Alchemy, p.116 39:47 Alan Bern, Dream of Tangles, p.15 40:40 Judith Montgomery, Sometimes, p.103 43:56 Kelly Dumar, How He Asks, p.157 45:15 Ann Campanella, Beyond Words, p.63 47:01 Margaret Stawowy, Signs of Her Decline, p.163 About the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

How would you navigate the complication of having your spouse display Dissociative Identity Disorder - previously called Multiple Personality Disorder - alongside symptoms of Alzheimer's? Today, we delve into the memoir "Don't Forget to Dance" with Marc Alderdice for our June Books & Chit Chat with Aging and Amazing. Marc takes us on a poignant journey through his wife Mary's battle with early-onset Alzheimer's, starting at age 59, and the extraordinary challenges they faced together, including her struggles with dissociative identity disorder. We explore the deeply personal experiences that shaped Marc's narrative, his wife Mary's determination to do all she could to prepare herself for a dementia diagnosis and how his scientific background influenced their approach to Mary's care. Marc also shares how he embraced the role of a male caregiver in a predominantly female sphere, the importance of self-care, and the insights gained from support groups continuing to meet virtually since Covid. You'll hear about the significance of activities and physical gestures in communicating with nonverbal loved ones, the inspiration behind the book's title, and how Mary, despite her diagnosis, found joy in new hobbies and activities. Join us as we uncover themes of love, resilience, and the relentless pursuit of happiness amidst the trials of Alzheimer's. Quote:  I think our journey is positive and encouraging in the sense that it shows you really can make the best out of a bad situation. The person with Alzheimer's and the loved ones can be as happy as possible. It may take some work, and it may take a little bit to change your mindset for how you approach things, but it certainly worked for us. - Marc Alderdice In this episode, you will:  Understand the unique experiences of the Alzheimer's journeyPrepare yourself emotionally and mentally for the impact of Alzheimer's,Discover strategies to arm yourself with the resilience and coping strategies needed to face the journey ahead.Explore the relationship between dissociative identity disorder and Alzheimer'sDiscover valuable techniques for communicating with nonverbal Alzheimer's patients, fostering deeper connections and understanding. After the Podcast Buy the Book  Listen to Previous Podcast with Marc Find more about Marc Follow Marc on Social Media: LinkedIn Facebook About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store Purchase our new anthology, Poetry for the Dementia Journey

Welcome back to the podcast where we share the powerful stories of those who have been impacted by Alzheimer's and dementia. In this episode, Christy and Marianne sit down with Sue Fagalde Lick, a remarkable poet, author, musician, and dog lover from the Oregon coast. Sue shares her deeply moving story of caring for her husband, Fred, throughout their Alzheimer's journey until his passing. We dive into Sue's earlier work, Childless by Marriage, and explore her latest writings on widowhood and life after dementia, including her poetry anthologies and newly published memoir,  No Way Out of This: Loving a Partner with Alzheimer's, which beautifully intertwines the romance and challenges of life with Fred. Sue opens up about the support she unexpectedly received from friends, the therapeutic value of writing, and the importance of maintaining agency and preparedness as a caregiver. Sue's candor about the hardships of caregiving in a rural area, the emotional impact of rehoming pets, and the solace she finds in music and community will resonate deeply with listeners.  We also discuss the creation of our new anthology, Poetry for the Dementia Journey, for which Sue volunteered to serve as editor and formatter.  Join us for a heartfelt conversation that highlights resilience, love, and the importance of support systems in the caregiving journey. Key Takeaways Living Through Dementia TwiceCoping with a Spouse's Alzheimer'sEmbracing the Caregiver RoleThe Difficulties of Relocating for Medical CareThe Healing Power of Writing The Role of Pets in Caregiving and Therapy Learn more about Sue at AlzAuthors.com Connect with Sue Website Blog Facebook author page Twitter Can I do It Alone? on Substack Purchase Sue's books No Way Out of This Gravel Road Ahead Childless by Marriage Blue Chip Stamp Guitar Dining Alfresco with My Dog About the Hosts Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store Purchase our new anthology, Poetry for the Dementia Journey

This podcast is a replay of our recent panel discussion on LGBTQ+ caregiver concerns, hosted by Sue Evans of Kensington Senior Living and AlzAuthors. Authors Laura Davis, Christopher MacLellan, Vincent Zappacosta, and Douglass Christensen joined Sue, Christy and I as we delved into the complexities of caregiving within the LGBTQ+ community. They shared personal stories, insightful advice, and meaningful discussions about their caregiving journeys, offering knowledge and support to others currently caring for a loved one. Empathy emerged as a recurring theme during the discussion. The group explored how understanding and compassion are foundational to a positive caregiving experience, especially in the face of stigmas surrounding dementia and LGBTQ+ identities. The panelists underscored the critical importance of legal documents such as power of attorney and healthcare proxies. These tools grant caregivers the authority needed to make vital decisions during emergencies. The LGBTQ+ community, in particular, benefits from these preparations to navigate potential biases and ensure their loved ones' wishes are honored. They emphasized that preparing documents and passwords in advance can prevent needless complications, resonating with caregivers who might find themselves thrust into unexpected situations. The episode illuminated unique challenges faced by LGBTQ+ caregivers. Issues such as isolation and the need to select healthcare providers comfortable with their orientation were discussed candidly. Positive experiences in inclusive areas like California and New York City contrasted with occasional instances of discrimination, as shared by Vincent and Douglas when they faced resistance in having Douglass recognized as family. Legal tools and personal anecdotes underscored the power of preparedness in overcoming personal bigotry and ensuring smooth caregiving and end-of-life processes. The insights from this episode of the AlzAuthors podcast offer hope and guidance for caregivers, especially those navigating the additional layers of complexity tied to LGBTQ+ identities. About the Authors Laura Davis, The Burning Light of Two Stars Christopher MacLellan, What's the Deal with Caregiving? Vincent Zappacosta and Douglass Christensen, Dementia-Mama-Drama About the Moderators Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation Kensington Senior Living About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store Purchase our new anthology, Poetry for the Dementia Journey

Vicki Tapia is a founder of AlzAuthors and the author of Somebody Stole My Iron: A Family Memoir of Dementia. In this replay of a recent Aging and Amazing book club discussion, Vicki shares profound insights from her personal experiences. She discusses how caring for two parents with dementia placed a considerable strain on her personal support system. A long-distance caregiver, she found the challenges of managing her parent's concerning behaviors and medical needs from 200 miles away daunting. Their rural community and limited medical resources confounded the situation as well. Her only sibling's chosen absence from the situation was another stressor. Newly married, she was reticent to lean on her supportive physician husband too hard. Her adult children were also supportive but lived far away, making it difficult to ask them for help. A lifelong journaler, she resolved her feelings and worries by putting pen to paper, eventually coming to the realization that she had written a book. Initially, she hesitated to publish her book due to privacy concerns but was encouraged to do so by positive feedback. Her decision to publish was also influenced by her desire to help others navigate similar experiences. Somebody Stole My Iron was published in 2014 and was a finalist for the High Plains Book Awards in 2015. Each chapter ends with "Lesson Learned," imparting valuable insight and inspiration to caregivers. Three Key Takeaways 1.    Finding Humor in Hardships: Vicki emphasizes the importance of finding humor in difficult situations, which can provide emotional relief and resilience. 2.    The Necessity of Self-Care: Vicki's guilt over taking a trip is a common sentiment among caregivers. Her mother's philosophy, "life is for the living," underscores the need for self-care and balance, reminding caregivers to also focus on their own well-being. 3.    Patience and Kindness: Through her experience, Vicki learned the crucial caregiving virtues of patience, respect, and kindness. She advises new caregivers to meet their loved ones where they are and to let go of guilt and expectations. Learn more about Vicki at AlzAuthors.com. About the Moderators Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Christy Byrne Yates, Building a Legacy of Love: Thriving in the Sandwich Generation Purchase our new anthology, Poetry for the Dementia Journey About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care. Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Potts's therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience. We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream. Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry. Three Key Takeaways 1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity. 2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating. 3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving. About the Authors Sherri Levine, Stealing Flowers from the Neighbors Sue Fagalde Lick, Gravel Road Ahead Daniel Potts, MD, Bringing Art to Life Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas About the Moderators Ann Campanella, What Flies Away and The Beach Poems Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Pre-order our new anthology, Poetry for the Dementia Journey. Register for our Poetry Reading June 3 at 4 pm EST. About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Perhaps you can't cure or even prevent Alzheimer's, but what if you could slow the disease progression? Want to unlock the secrets to living in the moment with Alzheimer's? Get ready to embrace practical advice and actionable insights for a positive journey with Alzheimer's and dementia in this podcast with Danel Gibbs, MD.  He's a retired neurologist with extensive knowledge in the anatomy of the brain and the disease process of Alzheimer's and dementia. His personal experience living with Alzheimer's provides a unique perspective, enhancing his credibility in discussing practical approaches to managing these conditions. He's the author of "A Tattoo on My Brain" and "Dispatches from the Land of Alzheimer's," which offer a collection of essays and vignettes that provide valuable insights into the cognitive health and well-being of those living with Alzheimer's or dementia. His writing style, which simplifies complex scientific concepts, ensures that his work is accessible to a wide range of audiences, and his contributions to the understanding and management of Alzheimer's and dementia make him an essential guest on the podcast. Quotes:  “For those of us on the Alzheimer's journey, it's really important to embrace the moment and not dwell on the frustration of trying to remember the past and plan for the future. Happiness and peace come from focusing on the moment.” - Daniel Gibbs, M.D. “We don't have to wait for a cure. We can just do things that really make a significant difference, that are available, evidence proven, and don't cost anything. Except maybe a gym membership.” - Daniel Gibbs, M.D. In this episode, you will:  Explore real-life experiences of living with Alzheimer's and gain insights on managing the daily challenges.Discover the surprising link between sense of smell loss and Alzheimer's disease, and how it may impact early detection.Uncover the powerful impact of exercise on slowing the progression of Alzheimer's and enhancing overall well-being.Learn about dietary approaches that may help slow down the advancement of Alzheimer's disease. Resources mentioned: Trial MatchNational Institutes on Health - Clinical TrialsMind DietMediterranean Diet  After the Podcast Buy the Dispatches from the Land of Alzheimer's and A Tattoo on My Brain Watch the documentary A Tattoo on My Brain Read Daniel's AlzAuthors Post Visit Daniel's Blog Listen to Previous Podcasts: Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer's Disease Writing Through the Fog About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Delight in the surprising journey of Ruth Stevens, from crafting a stage play to penning a heartfelt novel about Alzheimer's. Delve into the unexpected twists and turns as Ruth shares her personal experiences and the emotional impact of her work. Stay tuned for eye-opening insights on turning personal stories into fiction and a sneak peek into her upcoming duology. Get ready to be captivated by Ruth's incredible journey, as she shares the highs and lows of her creative process. For our March installment of Books & Chit Chat, our monthly Book Club collaboration with Aging & Amazing, we talk with Ruth Stevens, a former public relations professional from New York City and LA, and the author of the debut novel "Stage Seven," inspired, in part, by her personal experience dealing with her mother's Alzheimer's disease and decline. A fiction story acquisitions editor with AlzAuthors and a member of the Dramatists Guild of America and Women's Fiction Writers Association, Ruth brings a unique perspective to her writing, infusing humor and tenderness into a difficult topic. Her storytelling abilities, honed through a career in creative writing, advertising campaigns, and numerous articles for magazines, newspapers, and journals, shine through in her work, offering a compelling and relatable portrayal of Alzheimer's and its impact on family dynamics. Like enjoying a performance of her play, you'll laugh, you'll cry, you'll learn a lot. Have a listen. Quote:  “I feel like your play gave me permission to move on with my life”. - Audience member In this episode, you will:  Explore real-life Alzheimer's caregiving experiences and gain insights into navigating the challenges with compassion and understanding.Discover the art of turning personal stories into compelling fiction, finding inspiration from the heart-wrenching yet beautiful moments of caregiving.Uncover the captivating journey within the novel "Stage Seven" by Ruth Stevens, delving into the emotional landscape of Alzheimer's and its impact on families.Understand the profound impact of Alzheimer's on family dynamics, gaining new perspectives on how to navigate relationships and support systems during difficult times. After the Podcast Buy the Book Stage Seven Find more about Ruth Stevens at https://ruthfstevens.com/ Listen to Ruth on on the Hilarity for Charity (HFC) and AlzAuthors Summer Book Club Follow Ruth on Social Media: Instagram  Facebook Goodreads  Blog  About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

When you're caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers aren't able to meet your needs. If any of this sounds familiar, this episode will be of comfort. Our special guest is Lance A. Slatton. Lance A. Slatton, the founder of a prominent home care company in southeastern Michigan, brings a wealth of personal experience and professional expertise to the table. His caregiving journey, rooted in profound connections with his grandparents and later involving the care of his grandmother during her dementia and his father's health crisis, has deeply influenced his perspective on family caregiver support. Drawing from these experiences, Lance established his own home care company, driven by a commitment to improving caregiver well-being and patient care. His unique insights, stemming from real-life situations, position him as a credible and valuable resource for individuals navigating similar caregiving challenges. Quotes:  Knowing you are not alone is crucial. Seek out others who can understand and relate to what you're going through and educate yourself. - Lance A. Slatton If you've seen one person with dementia, you've only seen that one person. There are so many different variables and all these situations. - Lance A. Slatton I wanted to put something out there that is talking to family caregivers. It's half book, half guide, going through the whole caregiving journey with a lot of great resources and information. - Lance A. Slatton In this episode, you will:  Uncover effective caregiving challenges and innovative solutions for better patient care.Learn how to utilize valuable resources for dementia care to improve your loved one's quality of life.Explore practical ways to enhance family caregiver support and well-being.Understand the impact of personal caregiving experiences on professional paths and career growth.Learn about upcoming collaborations on the All Home Care Matters PodcastHear about Lance's forthcoming book! After the Podcast Enriched Life Home Care Services https://www.elhcs.com/ All Home Care Matters Podcast https://allhomecarematters.com/ Lance's Book: All Home Care Matters Official Family Caregivers' Guide Ethics of Social Media show: Social Media Episode Unboxing Show: Unboxing Episode About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode. Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast. Quote: When love and duty are one, then Grace is within you. - Florrie Munat In this episode, you will: Gain insights into the caregiving journey for dementia patients and discover effective support strategies.Explore the therapeutic benefits of writing as a tool for caregivers to navigate their emotions and experiences.Learn how to effectively navigate complex family dynamics in the context of providing care for individuals with dementia.Discover the powerful benefits of journaling as a coping mechanism and reflective practice during the caregiving journey.Understand the unique challenges and symptoms associated with Lewy Body Dementia to better support individuals with this condition. After the Podcast Register for Books & Chit Chat Purchase Be Brave: A Wife's Journey Through Caregiving, which is available as a paperback, and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Connect with Aging & Amazing Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wife's Journey Through Caregiving by Florrie Munat About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

By Christy Byrne Yates, MS, California, US Podcast Description: Discover the unexpected truth about dementia care from a professional who found herself on the other side of caregiving. Get ready to uncover the surprising insights that transformed her perspective and could change yours too. Find out what left her reevaluating her own caregiving advice and how she's now championing an empowering approach for other caregivers. It's a revelation that could reshape the way you think about dementia care and caregiving. Mary Ann Drummond, a highly experienced nurse with a career spanning over 30 years, is a prominent figure in the realm of dementia care. Her book, Meet Me Where I Am: An Alzheimer's Care Guide, is a comprehensive resource derived from her extensive work in memory care settings. It offers practical strategies and insights tailored to the unique challenges of dementia caregiving. In collaboration with Dr. Beatrice Tauber Prior, Mary Ann co-authored Grandma and Me, a children's guide for Alzheimer's and dementia, emphasizing her commitment to addressing the broader impact of these conditions on families. With her wealth of nursing knowledge and literary skills, Mary Ann's contributions have significantly advanced the understanding and support available for individuals living with dementia and their caregivers. Quotes: “Give yourself grace. You're only human. There're going to be days where you don't always do exactly what you might know to do, but it's not wrong. It's just human.” “It's about capabilities. It's less about the limitations and more about the abilities.” In this episode, you will: Gain valuable insights into dementia care from real-life experiences.Discover the importance of prioritizing self-care as a caregiver.Learn to recognize and leverage individual capabilities in dementia care.Overcome challenges in decision-making as a caregiver for someone with dementia.Explore how to create a dementia-friendly caregiving environment for enhanced well-being. After the Podcast ·      Meet Me Where I Am – An Alzheimer's Care Guide ·      Grandma and Me – A Kid's Guide for Alzheimer's and Dementia I Choose to Remember, a reminiscence therapy aid - available exclusively on the Angel Tree Publishing website. Connect with MaryAnn Twitter at @RNforAlz for more information and updates. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's. Through their public speaking tour and workshops, Jane and Sky shared their experiences with dementia, aiming to break the silence and stigma surrounding the disease. Jane's dedication to storytelling and her commitment to raising awareness make her a valuable voice in the conversation about Alzheimer's and dementia. Quotes: "He wanted to meet his people. He wanted to meet other people with dementia. And by doing this church stuff and the workshops, it was his people all over the place." “He was still writing almost up to a year before his death, when he was still at home, and he was unable to dress himself and bathe himself. He was still writing.” In this episode, you will: Uncover the emotional rollercoaster of dementia caregiving.Discover the unique challenges of dementia caregiving during COVID-Understand the fluctuations in cognitive abilities in individuals with dementia.Learn the art of writing and publishing personal dementia caregiving experiences.Explore life after caregiving, including ways to move on both physically and emotionally. After the Podcast Purchase Alzheimer's Canyon: One Couples Reflections on Living with Dementia, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Jane's AlzAuthors post: ‘Alzheimer's Canyon' Honors Jane's Husband's Wish to Make Blog Posts a Book and Help Others with Dementia. Listen to Jane on the “Untangling Alzheimer's & Dementia” virtual event Podcast episode, “Writing Through the Fog: Three Authors Share Coping Strategies.” Jane's Bio: Jane Dwinell is a retired RN, freelance writer, and Unitarian Universalist minister. She is the author (or co-author) of four books including Birth Stories: Mystery, Power, and Creation and Alzheimer's Canyon: One Couple's Reflections on Living with Dementia, which won the Independent Publisher's of New England's 2023 award for narrative nonfiction. She lives in northern Vermont with her two cats, Tubby and Pogo, and her garden. Connect with Jane Facebook Instagram Website About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

This is the replay of our inaugural book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle Community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are moderated by Andrea Couture, whom we meet during this first of the discussions on January 30, 2024. Andrea, also known as Drea, is the author of "Embracing What Remains," a moving memoir chronicling her experience as a young caregiver for her father during his dementia journey while simultaneously raising her own young children. As an advocate for Alzheimer's and dementia, Andrea's insight into the challenges and emotional toll of balancing caregiving responsibilities with motherhood offers a unique perspective that resonates with many caregivers. Her poignant storytelling and candid reflections provide a relatable and authentic portrayal of the complexities of caring for a loved one with dementia. Andrea's ability to navigate the delicate balance between her roles as a daughter, mother, and caregiver shines through in her memoir, making her a valuable voice in the Alzheimer's and dementia community. Andrea is a member of the AlzAuthors management team specializing in acquisitions and serving as book club moderator. In this episode, you will: Develop resilience and new strategies for managing the unique obstacles faced by young caregivers.Uncover insights for coping with the emotional impact of caring for someone with Alzheimer's and find ways to protect your own well-being.Explore the therapeutic benefits of expressing and reflecting on your caregiving experiences through writing a memoir.Understand how the COVID pandemic impacted caregivers After the Podcast Register for Books & Chit Chat Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you Read Andrea's AlzAuthors post: Andrea Couture Wrote the Book She Yearned for on Her Dementia Journey Listen to Andrea's podcast "Behind the Mask: COVID, Kids and Caregiving" See Andrea on the AlzAuthors Live virtual panel discussion "When Dad Has Dementia" Connect with Aging & Amazing About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Have you heard these myths about the power of art in dementia care? Myth 1: Only artistic individuals can benefit from art therapy. Myth 2: People with advanced dementia can't engage in creative activities. Myth 3: Art therapy is only about painting and drawing. In this podcast, you will learn how different art forms can benefit those living with dementia and how you can incorporate them in your care. From using humor to engaging with music and art, our expert panelists are redefining the meaning of connection in dementia care. Learn how simple activities like painting, singing, and even reading can spark meaningful interactions, revive memories, and create joy. Stay tuned for heartwarming stories and unexpected insights that will change the way you approach dementia care. Immerse yourself in this inspiring journey of reconnection and hope. The Panelists Tom & Karen Brenner, Mary Crescenzo, Katya De Luisa, Marc Rothman, MD, and Tryn Rose Seley. For details on the authors visit our website. Quotes: "I like to generally think of people who have dementia as on a journey that's very different from the one we all are on who don't have dementia. And it's taking them to a different place. It's taking them to a place that's hard for us to recognize."- Marc Rothman, MD "When we meet a person with Alzheimer's where they are, by using fluid guidance, non-judgment, not having preconceived notions what they can or cannot do, we can begin to have engagements with them." Mary Crescenzo "It's our turn to start the conversation, to bring out the best in a person with dementia." - Tryn Rose Seley In this episode, you will: ·      Discover how art can transform the lives of individuals with dementia and enhance their well-being. ·      Learn how personalized art can revive memories and create meaningful connections with individuals experiencing dementia. ·      Explore the impact of humor individuals with dementia and how it fosters engagement and joy. ·      Uncover the benefits of using reading and writing as therapeutic tools to stimulate cognitive abilities in individuals with dementia. ·      Embrace the power of patience and innovation in art therapy to create meaningful and enriching experiences for individuals with dementia. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know Shop our Store Join our book club

Anyone living with Alzheimer's or dementia, and those who care for them, knows the importance of lifestyle adjustments to successfully navigate this journey. From simple strategies like making lists, reducing social commitments, and focusing on tasks that bring joy, to complex maneuvers like family involvement in advanced directive planning, the lifestyle changes are indeed varied. In this podcast hosted by Kensington Senior Living, three authors discuss the role of personalized coping mechanisms, underscoring the unique experience each individual and family uses to embrace and adapt to the uncertainties of Alzheimer's. You'll meet Daniel Gibbs, MD, a retired neurologist diagnosed with early onset Alzheimer's, Gerda Saunders, a retired instructor in the Gender Studies Program at the University of Utah diagnosed with cerebral microvascular disease, and Jane Dwinell, an RN, freelance writer, Unitarian Universalist minister, and caregiver to her late husband, Sky Yardley, diagnosed with Alzheimer's. Moderated by AlzAuthors co-founder Marianne Sciucco and Susan Evans from Kensington Senior Living. In this episode, you will: Hear personal stories of living with Alzheimer's and dementiaDiscover lifestyle modifications to better manage these conditionsLearn how to navigate daily life with dementiaUnderstand the importance of family support Outtakes: "The more you know, the better you could love." - Gerda Saunders "What's good for the heart is good for the head." - Dr. Daniel Gibbs Resources: Explore the AlzAuthors website to discover books, blogs, podcasts, and films written by authors who share their personal experiences with Alzheimer's and dementiaVisit Kensington Senior Living's website to learn more about their seven unique communities and the relationship-based care they offerConsider reading Dr. Daniel Gibbs' A Tattoo on My Brain to learn about his journey as a retired neurologist living with Alzheimer's and the lifestyle modifications that can help slow the progression of the diseaseCheck out Gerda Saunders' memoir, Memory's Last Breath, to gain insights into the experience of living with dementia and the perspective changes that come with itLearn more about Jane Dwinell's book, Alzheimer's Canyon, which chronicles her caregiving journey for her late husband with Alzheimer'sRead Marianne Sciucco's novel, Blue Hydrangeas, an Alzheimer's love story Our Book Club with Aging & Amazing Visit our website for full details Visit Aging & Amazing About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store Join our book club

AlzAuthors is excited and honored to partner with the online community Aging & Amazing for a monthly book club, a “Meet the Author” type of event: AlzAuthors Books and Chit Chat. The book club will feature a new book and author every month. The first few months have been scheduled and include: January 30th 7pm EST: Andrea Couture – Embracing What Remains: A Memoir February 27th 7pm EST: Florrie Munat – Be Brave, a Wife's Journey Through CaregivingMarch 26th 7pm EST: Ruth Stevens– Stage Seven, a novelApril 30th 7pm EST: A gathering of poets for National Poetry Month: featuring Sherri Levine, Stealing Flowers from the Neighbors; Sue Fagalde Lick, Gravel Road Ahead; Daniel Potts, MD, Bringing Art to Life; Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas Join Us To learn more about this book club or to become a member, please visit agingamazing.com. Register here to receive the Zoom link to the meetings. About Aging & Amazing In their own words, Aging & Amazing, based in Washington DC, is “an online community, in addition to local, in-person care management and training services supporting older adults, caregivers, and professionals specializing in aging. Aging & Amazing offers a helping hand to uplift older adults, caregivers, and professionals through services, education, and support.”

Caregiver Andrea Couture juggles young children, caregiving during the COVID 19 pandemic, and stigma to share her father's Alzheimer's journey, seeking connection and support in a rural community. Andrea Couture, the author of "Embracing What Remains," brings a unique perspective to the podcast with her firsthand experience caring for her father, a surgeon diagnosed with dementia, while also raising young children. Her background in journalism and heartfelt storytelling offer valuable insights into the challenges and triumphs of her caregiving journey, especially navigating through the complexities of providing care during the COVID-19 pandemic. Andrea's willingness to share her family's journey with openness and honesty provides comfort and support to others who may be facing similar experiences. Her memoir and active involvement within the Alzheimer's community showcase her dedication to raising awareness and creating a sense of community among caregivers. In this episode, you will be able to: Uncover the impact of COVID-19 on Alzheimer's caregiving and learn strategies to navigate through it.Understand the importance of sharing Alzheimer's experiences and how it can positively impact caregivers and families.Explore writing as a powerful form of Alzheimer's advocacy and its potential to make a difference. Impact of COVID-19 on Alzheimer's Caregiving Amid the global pandemic, Alzheimer's caregivers have faced more unique hurdles. As Andrea explained, managing in-home caregivers during COVID-19, the resulting anxieties, and ensuring safety gave rise to much distress. Understanding these challenges can provide viewpoints for creating effective strategies to assist caregivers in navigating similar situations now and in future crises. As a new member of the AlzAuthor sTeam, Andrea now serves as an Acquisition Editor and moderator of a new collaboration with Aging & Amazing - AlzAuthor's Books & Chit Chat," which will feature her book during the inaugural event on January 30, 2024. Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible. After the Podcast Register for AlzAuthors Books & Chit Chat on January 30, 2024 Purchase Embracing What Remains, which is available as a paperback, Kindle edition and on Audible. Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you. Read Andrea's AlzAuthors post See Andrea on When Dad Has Dementia on YouTube Andrea Couture is an author and mother of three children. She holds a Bachelor of Arts degree in Journalism from Saint Michael's College in Vermont. Embracing What Remains is her first memoir and book. She lives in New Hampshire with her husband, children, and dog. Connect with Andrea Facebook Instagram LinkedIn Twitter About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

Lori Aden and Sheila Parsley are two incredible women who have taken their personal experiences as caregivers for loved ones with Alzheimer's and turned them into a powerful tool for support and understanding. Through their series of children's books, Lori and Sheila have found a unique way to address the complexities of Alzheimer's disease in a relatable and compassionate manner. With whimsical dragon characters and heartfelt storytelling, they guide children through the different stages of the disease, helping them understand and cope with the changes they may witness in their loved ones. Their books not only provide comfort and reassurance to children but also offer a valuable resource for caregivers who may be searching for ways to explain Alzheimer's to their young ones. Lori and Sheila's journey as caregivers and authors has allowed them to build a deep understanding of the challenges and emotions faced by those caring for someone with Alzheimer's. Their dedication to supporting others in similar situations is truly inspiring. Lori has also written a book called, “I Remember Me - The Mom Chronicles, which is a memoir of her time caring for her mother. She started with a Facebook thread for family that grew by leaps and bounds when family and friends asked to add others who were on a similar journey.  In this conversation you'll hear from both sisters about their struggles, and ultimately how this journey brought them closer together culminating in a delightful and touching resource for families. In this episode, you will be able to: Discover practical strategies for explaining Alzheimer's to children in a sensitive manner.Learn strategies for children to adapt to the changes in loved ones with Alzheimer's or dementia.Hear about strategies such as baby dolls for those with Alzheimer's and dementia.Learn about the financial strains experienced by caregivers.Explore the importance of community resources in Alzheimer's care, discovering how local support services and organizations can provide much needed assistance and a sense of community for both caregivers and those with Alzheimer's. website: http://irememberme.life  o  I Remember Me – The Mom Chronicles o   Grandma is Acting Funny – A Children's View of Alzheimer's o   Grandpa is Acting Funny – A Children's View of Alzheimer's  You can also hear Lori Aden read from the children's series on the “Poetry for the Dementia Journey,” episode of Untangling Alzheimer's & Dementia” Podcast  Listen Books by Loria Aden and Lori Aden & Sheila Parsley By Lori Aden I Remember Me - The Mom Chronicles: An Alzheimer's Journey Sharing Lessons Learned and Challenges Conquered as a Caregiver Category: Memoir, Caring for a Mother with Alz Link: https://amzn.to/3t4otaM By Lori Aden and Sheila Parsley Grandma is Acting Funny - Beginning Stage: A Children's View of Alzheimer's Category: Children's Books Link: https://amzn.to/46famRR Grandma is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Category: Children's Books Link: https://amzn.to/3QzkVcB Grandma is Acting Funny - the Late Stage: A Children's View of Alzheimer's Category: Children's Link: https://amzn.to/3u9H4Xf Grandpa is Acting Funny - the Beginning Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QE6nrZ Grandpa is Acting Funny - the Middle Stage: A Children's View of Alzheimer's Link: https://amzn.to/3SDbFXo Grandpa is Acting Funny - the Late Stage: A Children's View of Alzheimer's Link: https://amzn.to/3QwxPYO Baby Doll and Pet Doll Therapy Lori and Sheila referred to a Baby Doll that their mother loved. Baby Doll and Robotic Pet Therapy is often used for comfort for those with Alzheimer's and Dementia. Here are some links for both. They recommend NOT using all the accessories with the dolls. Toy Choi's 16 in Interactive Baby Doll Lissi Doll New York Doll Collection Robotic Pets

In a health crisis, we often refer to our journey as a "battle." We may see ourselves as "warriors." This is true for those impacted by Alzheimer's and dementia. The diagnosis brings uncertainty, disruption, and fear. But what happens when you're dealing with dementia in the middle of a war zone? When airstrikes are the norm, and screeching sirens interrupt each day, warning you to seek safety and shelter in a minute or less? When ordinary life ceases and the top of mind issue is simply staying alive? Avoiding disaster? Breathing? On October 7th, Miriam Green, an AlzAuthor living in Israel, found her life as a caregiver turned upside down when terrorists invaded her country. In this podcast, she shares with us the horror and brutality of what occurred, how her country, her family, friends and community have been affected by this conflict, and how they are dealing with it. She is a mother, daughter, grandmother, and wife, and like most women juggles her responsibilities as best as she can on a good day. Now, she struggles to find peace in the chaos, searching for meaningful, uplifting moments, even hope, while carefully balancing her family's needs. We are grateful to her for speaking with us. We take no sides in this conflict and pray for a peaceful resolution soon. In this episode, you will: Learn how Miriam finds brief moments of solace and peace in the midst of warSee how her mother's care community maintains a routine and stability for their patients even in the most challenging of circumstances, giving them a sense of familiarity and security.Discover the unique challenges faced by caregivers who are helping to raise grandchildren while caring for aging parents in war timeGain insights into the power of hope and resilience in the face of adversity, and learn how to nurture these qualities within yourself and your care recipients About Miriam Green Miriam Greenis the author of The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver. Her poetry has been published in several journals, including Poet Lore, The Prose Poem Project, Ilanot Review, The Barefoot Review, and Poetica Magazine. Her poem, “Mercy of a Full Womb,” won the 2014 Jewish Literary Journal's 1st anniversary competition. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. She holds an MA in Creative Writing from Bar Ilan University, and a BA from Oberlin College. Miriam is a 24-year resident of Israel. After the Podcast Find Miriam on Facebook and on Twitter . Read Miriam's AlzAuthors blog post. Purchase The Lost Kitchen: Reflections and Recipes from an Alzheimer's Caregiver Purchase Life on Planet Alz by Jack Cohen, Miriam's father Note: We are an Amazon Associate and may receive a small commission on book sales which will cost you nothing. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

In this episode of Untangling Alzheimer's & Dementia, hosts Marianne Sciucco and Christy Byrne Yates are joined by guests Cynthia Stone and Caroline Prioleau to discuss their documentary film "Keys Bags Names Words." The film explores the experiences of individuals and families affected by dementia and highlights the importance of community support and education. Cynthia and Caroline share their personal journeys and explain how their own encounters with dementia impacted their work on this powerful film. They discuss the process of creating the film, including obtaining footage and incorporating personal stories. The episode also delves into the impact of the film and the goals behind it, such as changing perceptions of dementia and promoting understanding and support. The conversation is filled with heartfelt stories, valuable insights, and practical resources, making it a must-listen for caregivers and anyone interested in Alzheimer's and dementia. So grab your headphones and tune in to gain a deeper understanding of the challenges and triumphs faced by individuals and families living with dementia. In this episode, you will: Gain valuable insights into Alzheimer's and dementia, empowering you to better understand the conditions and provide compassionate care.Understand the unique challenges faced by dementia caregivers and strategies to overcome them.Discover practical strategies for navigating the challenges of dementia caregiving, helping you feel more equipped and supported in your role.Explore a thought-provoking film about Alzheimer's and dementia, sparking meaningful conversations and raising awareness about these conditions. Watch the film trailer The resources mentioned in this episode are: Visit the AlzAuthors website at AlzAuthors.com to learn more about the global community of authors writing about Alzheimer's and dementia from personal experience.Subscribe to the Untangling Alzheimer's and Dementia podcast on major podcast platforms like Apple and Spotify, or visit AlzAuthors.com to listen to episodes.Email AlzAuthors at AlzAuthors@gmail.com if you have any questions or need assistance.Consider hosting a community screening of the film to start conversations and connect people to resources.Explore the hear/say Oral History Program, co-founded by Caroline Prioleau, to hear firsthand stories of lived experiences with Alzheimer's and dementia.Educate yourself and others about brain health and strategies for preventing or delaying the onset of Alzheimer's and dementia. Visit Alz.org. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

In this episode, you'll hear from a diverse group of guests who share their personal experiences and insights on living with dementia. Peter Berry, Michael Ellenbogen, Gerda Saunders, and Jennifer Bute each bring their unique perspectives, providing a wealth of knowledge and understanding about the challenges and triumphs of navigating life with dementia. From discussing the impact of technology on social connections to the importance of finding supportive living arrangements, this episode covers a wide range of topics that caregivers and family members of individuals living with dementia will find valuable. Tune in to gain new insights and discover how technology, support systems, and personal resilience can enhance the lives of individuals with dementia. In this episode, you will: Hear personal reflections from individuals living with dementia, offering a unique perspective on their journey and valuable insights for caregivers and family membersExplore the powerful ways in which technology can be utilized to manage and support individuals with dementia, enhancing their quality of lifeFind out what Jennifer thinks of A-L-E-X-A Meet the authors on our website Download ebook: Alzheimer's and Dementia Caregiving Stories Download Caregiver Tip Sheet: 13 Helpful Tips for the Long-Distance Caregiver Reading2Connect on AlzAuthors.com About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

Join hosts Marianne Sciucco and Christy Byrne Yates as they discuss the launch of the Whole Care Network's new streaming radio channel with guest Christopher MacLellan, the passionate founder, who aims to connect and empower caregivers through this groundbreaking platform. The app provides trusted information and support to caregivers. Listen to The Whole Care Network Streaming Radio! Download the app from Apple or Google Play. Discover WCN's October Surge event with AlzAuthors In this episode, you will be able to: Explore the resources provided by the Whole Care Network and AlzAuthors, empowering caregivers with a wealth of knowledge and support from experts in the field.Tune in to the streaming radio channel for caregivers to access a variety of informative and uplifting content anytime, anywhere.Get excited about the upcoming conversation that offers fresh perspectives and inspiring stories from caregivers who have overcome challenges and found resilience in their experiences. About Christopher: Christopher MacLellan, is a respected advocate in the caregiving economy. With his extensive experience and knowledge, Christopher offers valuable insights and practical advice to individuals in the caregiving community. As a guest on the AlzAuthors podcast, he shares his expertise on various caregiving topics, providing a wealth of information and support for listeners. Christopher's dedication to raising awareness and improving the lives of caregivers shines through in his contributions to the podcast. His commitment to collaboration and his involvement with the Whole Care Network further demonstrate his passion for connecting caregivers and providing them with the resources they need. Whether you're a caregiver seeking guidance or someone interested in supporting caregivers, Christopher's expertise and contributions are sure to provide valuable insights and support. After the episode, learn more about The Whole Care Network https://thewholecarenetwork.com/ https://thewholecarenetwork.com/wcn-surge Connect with Christopher: Email About About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store  

Anne Kenny, MD had been practicing medicine for more than 30 years, recognized by her peers as a “Top Doc” in Geriatric Medicine, but that did not make her caregiving journey with her mother any easier. In fact, when the professional became personal, she sought guidance through the available literature and found little to guide her and her family through the difficult decision making required in dementia care. So, she decided to write her own book, inspired by her experience as a physician and as a daughter, creating the book she wished she'd had for her mother's care. Making Tough Decisions about End-of-Life Care in Dementia was published in 2018 by Johns Hopkins University Press. Dr. Kenny has worked clinically as a geriatrician in nursing homes, assisted living, rehabilitation, and clinical outpatient settings. She's found joy in her work with individuals and their families managing issues related to the diagnosis of dementia. In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging-related issues including navigating dementia, exercise, nutrition, hormone therapy, death and dying, and frailty. In this episode, you will: Gain profound understanding of the lived experiences of dementia caregivers, enhancing your compassion and awareness.Explore the journey towards uncovering purpose and meaning amidst dementia, redefining your outlook on life.Appreciate the necessity for open dialogue about end-of-life decisions, strengthening emotional preparedness and resilience.Learn about the impactful role of arts and music in the realm of dementia care, introducing you to innovative care methodologies.Recognize the imperative of reaching out and receiving support in dementia caregiving, developing effective stress management techniques. Purchase Making Tough Decisions about End-of-Life Care in Dementia Note: We are an Amazon Associate and may receive a small commission from book sales. After the Podcast Read Anne's AlzAuthors post: Making Tough Decisions About End-of-Life Care in Dementia, by Author Anne Kenny, MD Explore Caring Kind Download 13 Tips for Long-Distance Caregivers About Anne Kenny, MD I'm a geriatric physician and founder of Together in Dementia, where I support families and care partners to modify their approach to dementia so that they can find joy, connection and calm in their care journey without losing their minds, falling into depression, or ruining their health or relationships. We do this using our KNOW/ADAPT/CONNECT (KnAC) method via courses, coaching and consulting. Connect with Anne Kenny, MD Facebook LinkedIn Twitter *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store    

Have you heard these common myths about reading to individuals with dementia? Myth 1: People with dementia can't understand or enjoy reading. Myth 2: Reading is a solitary activity and won't benefit socialization. Myth 3: It's too late to start reading to someone with dementia. In this episode, Susan Ostrowski debunks these myths and shares the truth about the impact of the Reading2Connect program on individuals with dementia. In her work, Susan has learned that people with dementia can continue to enjoy reading and often find it brings opportunities for socialization and leadership. In this episode, you'll learn: How the Reading2Connect® program can improve socialization and connection for individuals with dementia, leading to a better quality of life.The importance of selecting meaningful and clinically appropriate reading materials for individuals with cognitive impairments and how it can enhance their engagement and comprehension.How incorporating visual elements in reading materials can further enhance engagement and comprehension for individuals with dementia.About the success of the Reading2Connect® program in receiving funding and interest from libraries and organizations and how it's positively impacting the community.Insights into empowering individuals with dementia through leadership roles in reading and discussion groups, allowing them to foster a sense of purpose and autonomy. About Susan Ostrowski: Susan Ostrowski is a highly experienced speech pathologist and the creator of the Reading2Connect® program. With a remedial reading and speech background, Susan has devoted her career to helping individuals with cognitive impairments. Recognizing the impact of dementia on reading abilities, Susan embarked on a mission to develop materials that cater specifically to this population's needs. Through extensive field testing and collaboration with healthcare professionals, she has successfully created over 50 booklets that engage and resonate with individuals living with dementia. Susan's program addresses cognitive challenges such as organizational thought, sustained focus, and working memory, offering a unique approach to reading and comprehension. Her work has gained recognition and support, including partnerships with organizations like AGE-u-cate® and collaborations with libraries. Susan's dedication to improving the quality of life for individuals with dementia through reading is making a significant impact in the field, providing caregivers and individuals with valuable resources and opportunities for connection. After the episode, view these videos to see the program in action:  Bk Stand Falls logo.ChaseCity.mp4 Small Group Res-Directed.MOV Rosa Parks 4.mp4 Connect with Susan: Website LinkedIn About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store  

Kate Hanley's discovery of her parent's unique love language set her on a path she never anticipated—writing a book. Yet these beautiful “paper napkin sonnets,” and the story that surrounds them, were too precious and inspiring not to share, as they offer hope for anyone in the throes of caring for someone with dementia. The overwhelming peace she had when she witnessed her mother's love for her seven children overpower dementia encouraged her to write her story. It is her hope that others will believe that their compassion and resilience in caring for someone with dementia will not be forgotten. About Kate Hanley Kate is passionate about the work she does with her own consultancy, Kate Hanley Cominsky Associates, LLC. She is also an adjunct professor with Utica College and Teacher Education Programs. She and her husband live in Old Forge, NY with two dogs and two grown sons who come home as often as possible to enjoy the peace and beauty of the Adirondack Mountains. In this episode, you will be able to: ·     Realize the value of anecdotes related to dementia care, shedding light on love's strength and the hurdles encountered on the journey. ·     Expound on the essence of memory preservation techniques and harnessing the senses in dementia care. ·     Grasp the emotional aspects of caregiving and the importance of forging supportive alliances for mental well-being. ·     Recognize the early warning signs of dementia, distinguishing it from the natural aging process. ·     Acknowledge the efficacy of storytelling and clear-cut communication in enhancing the caregiving experience. After the Podcast Read Kate's AlzAuthors post: Love is Never Forgotten in Breakfast Memories: A Dementia Love Story Purchase Breakfast Memories: A Dementia Love Story Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Kate Hanley Website Facebook   *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    

Join hosts Marianne Sciucco and Christy Byrne Yates on the Untangling Alzheimer's & Dementia podcast as they dive into a lively conversation with AlzAuthor Tami Anastasia about the challenges caregivers face in supporting individuals with dementia. Tami's book, Essential Strategies for Dementia Care: Learning to P.A.C.E. Yourself, offers guidance for caregivers on various topics, from communication techniques to managing emotions like anger and grief. The conversation begins with Tami providing insights on motivating individuals with dementia to engage in activities. She emphasizes the importance of understanding that all behavior is a form of communication and highlights the need to truly listen to the person with dementia. Tami also explores the concept of grief and loss in dementia care, emphasizing the need to connect with the person rather than correcting them. In this episode, you will be able to: Gain enlightenment on the unvoiced hurdles that caregivers of dementia patients face.Kickstart your efficient caregiving journey with the assistance of the P.A.C.E. model.Determine how to strike the delicate balance between personal self-care and caretaking for your loved ones with dementia.Learn techniques to reinforce your confidence and self-esteem in your role as a caregiver.Develop a deeper understanding of the emotional intricacies involved in dementia care and how to manage them. More about Tami Tami Anastasia is a reliable confidante to countless family caregivers, guiding them through the complexities of dementia care. Drawing strength from her personal experiences—especially her encounters with her grandmother's dementia diagnosis—she's dedicated to easing the journey for caregivers. Besides running a bustling private practice in the greater Bay Area of California, she inked her experiences and wisdom in the form of her practical book, Dementia Caregiver: Learning to P.A.C.E. Yourself.  Connect with Tami Website LinkedIn Facebook X (Twitter) Instagram TikTok About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. AlzAuthors.com Shop our Store

Register for Everything You've Always Wanted to Know About Living with Dementia September 1 at 10:30 AM EST Watch the June 2021 episode on YouTube *** Rayna Neises comes to us from the heartland of Kansas to share her experience as a former caregiver for parents with dementia. She is the author of No Regrets: Hope for Your Caregiving Season. She also hosts the podcast "A Season of Caring," and is the publisher of "Content Magazine: Finding God in Your Caregiving Season." Our conversation focuses on her belief that caregiving is "a season of life," and the necessity of finding support to navigate its challenges. She offers valuable insights for caregivers who may feel overwhelmed and isolated, and emphasizes the importance of self-care and setting boundaries. Her book, podcast, and magazine offer further support for caregivers seeking to maintain their identity and find moments of respite amidst the chaos. In this podcast, you will: Embrace the enlightening concept of caregiving as a pivotal life season, rather than a mere duty;Learn how to navigate the complex landscape of dementia care unveiling truths that may transform your understanding of caregiving;Acknowledge the urgent need for advanced planning and transparent conversations around personal care choices;Discover that faith-based support groups may offer much-needed comfort in this demanding journey About Rayna Neises Rayna Neises understands the joys and challenges that come from a season of caring. She helped care for both of her parents during their separate battles with Alzheimer's over a thirty-year span. She looks back on those days now with no regrets – and she wishes the same for everyone caring for aging parents. To help others through this challenging season of life, Rayna has written No Regrets: Hope for Your Caregiving Season, a book filled with her own heart-warming stories and practical suggestions for journeying through a caregiving season. She is an ICF Associate Certified Coach with certifications in both Life and Leadership Coaching from the Professional Christian Coaching Institute. She is also the host of “A Season of Caring Podcast” and a passion speaker. Rayna lives on a farm in southeast Kansas with her husband, Ron, and small pack of adorable dogs. She is the baby of her family, but most would never guess that. A former teacher, she enjoys crafts of all kinds and spending time with her grandkids most of all. Connect with Rayna Facebook.com/ASeasonofCaringRaynaNeises Linkedin.com/RaynaNeises Instagram.com/RaynaNeises Pinterest.com/thcoaching Twitter Website Book About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. AlzAuthors.com Shop our Store

After a dementia diagnosis and heart surgery, Tony Copeland-Parker and his partner, Catherine, aka "Cat," traveled for years worldwide to run marathons and half-marathons. Now, due to the progression of Cat's early onset Alzheimer's, they've recently settled down in an assisted living facility. Tony and his memoir, Running All Over the World: Our Race Against Early Onset Alzheimer's, first came to AlzAuthors in January, 2022. He has appeared on our podcast and in a virtual panel discussion, Love Stories: Keeping Romance Alive in Dementia Care. Tony is an expert on traveling with a loved one with dementia, and now speaks about the intricacies involved in finding a suitable place to settle down for the duration of Alzheimer's. On the podcast, Tony shares how he initially struggled to accept Cat's diagnosis and find a way forward. He eventually realized that focusing on making the most of their time together was a more constructive approach than searching for a cure. By dedicating their energy to activities they love, Tony and Cat have been able to maintain their connection and find solace amidst the challenges posed by Alzheimer's. In this episode, you will: Delve into Tony's enlightening journey as an Alzheimer's caregiver and the lessons he's learnedDiscover how to develop a balanced approach to caregiving that preserves your self-identity and allows you to follow your passionsUncover essential strategies for hassle-free traveling with a cognitively impaired loved oneLearn the art of maintaining your own identity while caregiving without sacrificing your passionsDiscover the crucial aspects of selecting the perfect care facility for Alzheimer's care and why it matters After the Podcast Purchase Running All Over the World: Our Race Against Early Onset Alzheimer's Note: We are an Amazon Associate and may receive a small commission from book sales. Read Tony's AlzAuthors post Anthony Copeland-Parker and Partner Catherine Become Marathon Nomads Listen to Tony's first podcast Anthony Copeland-Parker Untangles Life as a Nomad and Early Onset Alzheimer's Listen to our panel discussion Love Stories: Keeping Romance Alive in Dementia Care Watch our panel discussion Love Stories: Keeping Romance Alive in Dementia Care Connect with Tony Website and blog Facebook Twitter About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Shop our Store

Jane Mullins, Ph.D. is a dedicated professional with a 30-year background in dementia care. As a trained nurse, Jane has worked in various roles, including managing care homes and supporting people with dementia in memory clinics. Her empathetic approach focuses on enhancing communication and understanding between individuals with dementia and their families. Jane's groundbreaking multisensory reminiscence technique has been a game-changer for couples impacted by dementia, encouraging connection and rekindling memories. Her book, "Finding the Light in Dementia Care," showcases her unwavering commitment to improving the lives of those living with cognitive impairment. She recently transformed the lessons in her book into an online course, available to anyone, In this episode, Jane highlights the importance of building trust and empathy with people with dementia and their families throughout their care journey. She believes that the person with dementia should always lead the way in their care, allowing them to create a trusting environment with the caregivers. This trust enables effective communication, which can significantly improve the person's quality of life, even in advanced stages of the disease. In this episode, you will learn: how to enhance dementia caregiving communication by utilizing sensory props and crafting a secure atmosphereways to streamline the learning process for caregivers with easy-to-understand, engaging, and compact educational materialthe crucial role of advanced care strategies and transparent dialogues in dementia carehow to access the Duet Caregiving Training approach, embracing Dignity, Understanding, Empathy, and Training principles About Jane Mullins, Ph. D Dr. Jane M. Mullins is a dementia nurse consultant who has devoted over 25 years to the study and practice of dementia care. Through listening to and supporting people and their families during their diagnosis in memory clinics, caring for them in hospital and in care homes, she has helped throughout all of the stages of their condition. Jane has uncovered certain common features that may help caregivers and the people they care for find better ways of coping. Her practice experience is backed up by expert knowledge gained from attending conferences, continuing education, lecturing and keeping up to date with research, as well as studying for her Ph.D. which explores multisensory ways of communicating and connecting. Connect with Dr. Mullins WebsiteTwitter Facebook LinkedInMature Times About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. AlzAuthors.com Shop our Store