Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Kassi Crews both know this is a disease that cannot be faced alone. In fact, they each shared their story on film; MY MOM AND THE GIRL starring Valerie Harper in her final performance and BROKEN MEMORI…
What happens when your caregiving journey is complicated by family betrayal, mental illness, and profound loss? Meet Sheri Smith, a resilient entrepreneur whose life took unexpected turns when faced with both her mother's dementia and her husband's bipolar disorder simultaneously.Sheri's new memoir "Mama Drama: A Journey with Bipolar and Dementia, Finding Light Through Loss and Grief" chronicles her extraordinary path from running a successful catering business and owning an oceanfront castle in Hawaii to navigating the heartbreaking terrain of cognitive decline (her mother) and mental health challenges (her spouse). Her story reveals the devastating reality many caregivers face when family dynamics turn toxic—in Sheri's case, a cousin who prevented her from seeing her mother during her final days.The conversation delves into painful parallels between caring for someone with dementia and someone with untreated bipolar disorder. As Sherry candidly shares, "I made every mistake in the book because I simply didn't know better." This raw honesty about her attempts to "fix" situations beyond her control resonates deeply with anyone who has blamed themselves for not handling caregiving perfectly.Despite these enormous challenges, Sheri transformed her pain into purpose through writing. Her journey from confusion and self-blame to understanding and advocacy offers a roadmap for others navigating similar terrain. By sharing both mistakes and triumphs, she creates space for caregivers to forgive themselves and find strength even when outcomes aren't what they hoped for.Have you experienced family conflicts while caring for a loved one with dementia? Share your story and connect with our supportive community dedicated to finding light even in the darkest caregiving moments. For updates and releases, visit:Follow Sheri SmithOther ways to connect:Instagram | Support the showBe a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Follow us on Twitter, FB, IG, & TiK Tok
What happens when a former federal judge faces an Alzheimer's diagnosis? For Stephanie Duncan-Peters and her husband Richard James, it becomes an opportunity to showcase remarkable resilience, joy, and a refreshing perspective on living with cognitive change.In Episode 105, Don and I have a deeply moving and uplifting conversation with Stephanie, whose impressive career spans nearly 20 years as a District of Columbia Superior Court judge appointed by President George H.W. Bush. Far from letting her diagnosis define her, Stephanie has recently published a children's book, "The Blue-Footed Booby Blues," about a dancing bird who loves to travel—mirroring her own passions.The couple shares how they met through dance lessons 12 years ago and continue to dance together today, demonstrating how activities that build "cognitive reserve" can remain accessible and joyful despite Alzheimer's. Their calm, matter-of-fact approach to the diagnosis stems partly from Stephanie's previous experience supporting a Harvard Law professor friend through his Alzheimer's journey.We explore fascinating concepts like cognitive reserve—how certain skills and passions often persist longer in people with dementia—and the way Alzheimer's can paradoxically create what host I call "the ultimate state of Zen," fostering heightened presence and appreciation for the now.Richard offers valuable insights from the care partner perspective, discussing how unexpected connections in his community led to crucial support resources. Their story beautifully illustrates how love, resilience, and maintaining meaningful activities create a fulfilling life even when facing significant health challenges.Whether you're navigating dementia in your own family or simply seeking inspiration on facing life's unexpected turns with grace, this conversation will leave you with renewed hope and practical wisdom for the journey ahead. Listen now and discover how, as the podcast name suggests, Love truly Conquers Alz. :) Much Love,SusieConnect with Stephanie and Richard through Kayla Mancuso - kayla@ballastbooks.com Support the showBe a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE Purchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
In this episode of Love Conquers Alz, Don and I sit down with Kristina Hayes, the inspiring founder of Waltz Through Life. Kristina shares her journey of using dance, movement, and creativity to support individuals and families navigating the challenges of aging, dementia, and caregiving. Through her unique approach, she brings joy, connection, and healing to those who need it most. We explore the power of music, movement, and mindfulness in transforming the caregiving experience. I know how powerful dance has been in my life. It truly is my form of meditation. The healing power of music and movement for people with Alzheimer's radiates through this heartwarming conversation. For 15 years, Kristina has witnessed firsthand how dance transforms seniors in memory care, creating magical connections when words fail."Dancing to music is a shortcut to a person's heart and miracle medicine for Alzheimer's," Kristina explains, describing how residents who appear disengaged suddenly come alive when music plays. Her journey from ballroom dance instructor to therapeutic dance facilitator happened almost by accident, but has evolved into deeply meaningful work that challenges conventional approaches to dementia care.The conversation weaves through fascinating science about why music reaches people with cognitive decline—it lights up more regions of the brain than any other sensory input and remains accessible even in advanced stages of memory loss. Suzy shares poignant stories about singing with her mother, who responded to music when other forms of communication had slipped away.Beyond the therapeutic benefits, this episode explores larger questions about how society views aging and elder care. The hosts advocate for a movement that values and integrates older adults rather than marginalizing them. "We're all headed to the same place if we're lucky enough to live a long life," Kristina observes, making a powerful case for reconsidering how we approach our later years.This isn't just a conversation about dementia care—it's about reconnecting with what makes us human at every stage of life. Whether you're a caregiver seeking new approaches or simply someone interested in the healing power of movement, this episode will inspire you to turn up the music, move your body, and connect with others across all boundaries of age and ability. Subscribe, share, and keep dancing—it's good for your brain, body, and soul!Love,Susie xoSupport the showBe a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
Imagine your loved one living with Alzheimer's in a place where they could truly feel at home, free from the fear of wandering. This episode shares heartfelt stories of personal experiences, including my own mother's joyful time in a vibrant Los Angeles loft community. Join my co-host, Don Priess and I, as we welcome esteemed guest Dr. Allen Power, a renowned geriatrician, whose compassionate approach to dementia care challenges traditional methods and focuses on creating environments that foster contentment and security for those affected by Alzheimer's.We venture into the transformative journey of Dr. Power, who moved from general practice to become a leading advocate for non-pharmacological dementia care. Influenced by the Eden Alternative movement, he reveals his insights on the misuse of antipsychotic drugs and highlights the importance of communication and community integration. Our discussion sheds light on the experiences of families affected by medication misuse and calls for innovative care models that prioritize the well-being of individuals with dementia, emphasizing the power of love, companionship, and understanding.Explore how rethinking dementia care can enhance quality of life, balancing safety and freedom in care environments. Together with Dr. Power, we reflect on the power of intergenerational relationships and the vital need for societal shifts towards embracing diversity and supporting aging in place. With personal anecdotes and expert insights, we challenge misconceptions about dementia, highlighting the lessons of mindfulness and the importance of integrating people with dementia into communities, ultimately advocating for a more inclusive and compassionate approach to care.Thanks for watching, listening, and sharing!Much Love,SusieDr. Allen Power is a board-certified internist, geriatrician, Schlegel chair in aging and dementia innovation at the Schlegel U Waterloo Research Institute for aging, a sought after speaker around the world, and a trained musician and songwriter with four recordings. Peter, Paul and Mary performed his song of elder autonomy, “If You Don't Mind”, and Walter Cronkite used his song, “I'll Love You Forever” in a 1995 Discovery Channel profile of American families. A recent project was composing music for Anne Hills' latest album (www.annehills.com). Contact: DrAlPower@gmail.comSupport the showBe a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
Finding the right elder care for your loved ones shouldn't be a stressful challenge. But for most of us it is. Elder care is EXPENSIVE! Yet, families everywhere grapple with the lack of reliable information. Imagine if booking elder care were as easy as booking a hotel. In this episode of Love Conquers Alz, we sit down with Daniel Clarke, the visionary founder of Elderado— which is not a Cadillac or a song by ELO, but rather the perfect name for a groundbreaking web platform designed to help families compare over 1,400 long-term care and retirement homes across Ontario. Daniel shares the story behind Elderado, his mission to bring transparency to the long-term care industry, and his ambitious plans to expand the platform to the United States and the world. Don and I, along with guest Daniel, discuss the essential role of transparency and compassion in finding suitable elder care. We explore the importance of reliable resources and personal experiences when navigating these complex decisions, highlighting the positive aspects of elder care while addressing systemic issues families face.Whether you're searching for the right care home or advocating for change, this conversation is a must-listen!Learn More about ElderadoConnect With Daniel ClarkeSupport the showBe a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
Navigating the emotional labyrinth of Alzheimer's care can be both heartbreaking and frustrating, especially when personalized care falls by the wayside. Our journey begins with a relatable exploration of these challenges—stories of care facilities that miss the mark on truly understanding their residents, turning beloved family members into mere room numbers. We wrap this poignant narrative with a lighthearted twist, sharing personal anecdotes about how life's quirks and ailments can be surprisingly comedic.Enter Tim and Tannis Roberts, the innovative duo behind EchoBox Memory Vault, who are reshaping person-centric healthcare with their groundbreaking tool. Neither were tech people, worked in healthcare, or had a business background. Yet both were moved to improve our care model by providing the comfort of a loved one's voice. EchoBox preserves cherished memories and stories, enriching family bonds and supporting those dealing with dementia and palliative care. Tim and Tannis share profound insights and personal stories that illustrate how capturing memories can provide lasting emotional benefits and a sense of belonging, transforming the caregiving experience.This episode celebrates the importance of personal connections and innovation in Alzheimer's care. We discuss the powerful impact of EchoBox, a technology that helps preserve and share the stories of loved ones, offering caregivers the ability to provide individualized care. • Conversations surrounding the emotional challenges of caregiving • The dehumanization often faced in care facilities • Introduction to EchoBox and its founding story • How EchoBox captures memories and personalizes care • Real-world examples showcasing its effectiveness • Technical details on practically using the app • Insights on the growing adoption of EchoBox in care facilities • Encouragement for advocacy and connection in caregivingSupport the showJOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
What better way to celebrate our 100th episode than with an interview that truly reflects the definition and the title of our show: Love Conquers Alz. Former Wisconsin Gov. Martin J. Schreiber is an award-winning crusader for Alzheimer's caregivers and persons with dementia and author of the best selling novel, My Two Elaines: Learning, Coping, and Surviving as an Alzheimer's Caregiver. Since 2016, Marty has been campaigning unlike anything he experienced while in office. Rather than seeking votes, Marty now works to recognize and support Alzheimer's caregivers – an unpaid workforce that now exceeds 16 million people nationwide. Schreiber's goal for caregivers (whom he calls heroes) is that they learn, cope, survive and even thrive during their difficult journey. All things that Marty learned caring for his beloved wife, Elaine.Imagine your spouse falling in love with you over and over again. Romantic, right? But what if they kept falling in love with you because every morning they woke up they'd forget who you were? The love story of Marty and his wife Elaine that began in the 1950s when they were high school freshmen began to take the cruelest of twists when Elaine, diagnosed with Alzheimer's, gradually transformed from the woman who had gracefully entertained in the Executive Residence to one who sometimes no longer recognized Marty as her husband. Yet, the two still found moments of joy which Marty lovingly talks about in his acclaimed My Two Elaines.We share insights from "My Two Elaines," a poignant memoir that highlights the emotional journey from partner to caregiver, offering practical advice on therapeutic fibbing and redirection. The episode underscores the importance of male caregivers seeking help and stepping away from outdated stereotypes, as we discuss the necessity of systemic reform in care facilities.Support the showJOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
Betsy Wurzel started her career as a Talk Show Host at Passionate World Talk Radio and the name of her show was Chatting with Betsy. Betsy is also is an unwavering advocate for Alzheimer's caregivers who shares her own heartfelt experiences caring for her husband, Matt Sloan. Her stories are candid and passionate and truly exemplify the transformative power of love, humor, and community in the difficult landscape of dementia care.Shifting gears, we confront the murky waters of hospice care—a field riddled with misconceptions and often misunderstood protocols. Misunderstandings about hospice care and the rights of patients can lead to inadequate pain management, affecting the dignity and well-being of those with dementia. Through our unvarnished discussion, we unearth Betsy's personal story of advocacy, emphasizing the critical role caregivers play in ensuring comfort and respect for their loved ones. This chapter serves as a poignant reminder that caregivers must be steadfast in their rights to demand the best care possible.Finally, we tackle the systemic challenges plaguing senior healthcare, from understaffing and inadequate training to the pitfalls of profit-driven care models. Betsy guides us through a sobering exploration of these issues, pointing out how they result in inconsistent care for vulnerable populations, like those with Alzheimer's. With a call to action for more compassionate and consistent caregiving, she stresses the importance of prioritizing people over profits, advocating for a system that values quality care above all. Through this inspiring episode, we aim to empower caregivers to fight for the dignity and quality care their loved ones deserve.Connect with Betsy:Email - Sloanbetsy31@gmail.comIGFBLinkedInSupport the showJOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
In Episode 98, Don and I have a fantastic conversation with Dr. Marc Rothman, MD,founder and president of the Dementia Spring Foundation, a non-profit 501(c)(3) venture studio that invests in visual and performing artists and innovators who are changing the prevailing narrative of dementia and bringing joy and creativity to the dementia community through their work. Founded in 2020, the Artist Network now includes over 200 artists and innovators from around the world who are grappling with memory loss, Alzheimer's disease and other dementias in their work. New artist Spotlights are shared every week on the Dementia Spring website. (Including our Oscar qualified short film, My Mom and the Girl ,starring Valerie Harper in her final performance!!)Through the Foundation's annual, competitive Dementia Arts Impact Award program, funding, technical & marketing support, and subject-matter expertise are provided to a select group of artists and innovators who are telling new stories of dementia and bringing theatre, dance, music, and other visual/performing arts programs to those living with dementia.And if that's not enough, Dr. Rothman is also the CEO of Lizzy Care, a company providing tools and resources for dementia care at home.Join us as our guest,Dr. Rothman, reveals his insights on harnessing artistic talents to enhance caregiving experiences. Discover how integrating art into dementia care not only brings joy and connection but also offers a holistic approach to treatment that blends medical and artistic perspectives, creating a more enriched life for both caregivers and individuals with dementia.Immerse yourself in discussions on the profound impact of music and visual arts on mental health and healing. We underscore the importance of preserving memories through photography and the ethical considerations that come with sharing such intimate moments. The episode also touches on the cultural shift required in our institutions to prioritize arts therapy, advocating for comprehensive care models that improve quality of life. With personal stories and innovative projects, including virtual reality and comedy, we demonstrate how creativity stands as a beacon of hope and connection for those affected by dementia. And that includes, Love Conquers Alz, of course!xoxoSusieSupport the showJOIN THE PEOPLE OVER PROFIT MOVEMENT FOR NURSING HOME REFORM! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
Elopement usually conjures up visions of secret excursions or maybe even the Elvis Chapel in Las Vegas. But elopement is also used to describe what happens when someone with dementia or cognitive loss leaves a safe area, such as a home or care facility, without supervision or awareness of the potential dangers. In dementia care facilities, it is a heartbreaking reality that needs urgent attention. With over 30 years of experience as an occupational-therapist-turned-dementia-coach and 5 years of being a daughter-of-dementia, our guest, Lizette Cloete OTR/L, CADDCT, CDP, shares her first-hand, personal experience with elopement, how it can lead to accidents, injuries, and even death as a result of hypothermia, malnutrition, and weight loss, and why there is a huge need to protect vulnerable residents living in long term facilities. Lizette is the owner of “Think Different” Dementia, helping families navigate dementia together, using science-backed strategies, has become a sought-after speaker on dementia-related topics, both nationally and internationally. Her podcast, Christian Dementia Caregiving, is a key resource for connecting and sharing her valuable insights. In 2023, Lizette was awarded a grant to create an online education and coaching community for family care partners. She is truly a fount of information and support for our caregiving community. We recount personal stories, including a tragic incident from 1994, highlighting the dire consequences of inadequate staffing and training in these facilities. By sharing these narratives, we stress the critical need for improvements in care and safety measures to protect vulnerable individuals. The broader implications of facility understaffing reveal a pressing need for vigilance and proactive strategies to prevent similar tragedies.Understanding and managing dementia-related wandering is a complex challenge for caregivers and families. From unpredictable behaviors to ethical dilemmas around monitoring technology, we discuss real-life anecdotes that underscore the relentless nature of wandering. With hopes pinned on proactive engagement and innovative solutions, we aim to inspire meaningful change in caregiving practices, ensuring the safety and well-being of loved ones.Connect with Lizette: Think Different Dementia Christian Dementia CaregivingSupport the showJOIN THE PEOPLE OVER PROFIT MOVEMENT FOR NURSING HOME REFORM! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
In honor of Residents' Rights Month, Don and I, along with our special guest-host, Producer Rick Mountcastle, the former US attorney famed for his role in the Purdue Pharma case, are highlighting the importance of listening to residents who live in our country's nursing homes, assisted living and board and care facilities.In episode 96, our guest, AARON ADAMS, helps us explore the emotional labyrinth of healthcare navigation which in too many cases isn't always kind. Aaron is a son, author inventor and former caregiver for his father, Thomas Adams, was a robust 75-year old. After treatment for heart issues, Thomas was sent to an acute rehab hospital. Through Aaron's poignant personal story caregiving for his father, we unveil the harsh realities of seeking adequate medical care and the systemic flaws that many families encounter. From Aaron's fiery exchange with healthcare providers who underestimated his father's needs, to the desperate struggle of a family fighting against hospital bureaucracy to grant their father a peaceful end at home, these narratives underscore the dire need for advocacy and transparency. Rick Mountcastle lends his legal expertise, dissecting these challenges and providing a sobering perspective on patient neglect and the systemic issues at hand.In a world where medical decisions can feel like a battlefield, the emotional rollercoaster of advocating for loved ones becomes evident. As families grapple with complex treatments and the ethical dilemmas surrounding end-of-life care, they find themselves questioning the motivations of medical professionals and the adequacy of patient care.The stories shared here emphasize the importance of informed advocacy, the emotional toll of feeling sidelined, and the sacrifices made to ensure dignity and respect for loved ones. Join us as we unravel these deeply personal and universal struggles, offering insights and solidarity to those navigating similar journeys.Connect with Aaron Adams on Facebook.Buzzsprout - Let's get your podcast launched!Start for FREEInstacart - Groceries delivered in as little as 1 hour.Free delivery on your first order over $35.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showJOIN THE PEOPLE OVER PROFIT MOVEMENT FOR NURSING HOME REFORM! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND MEPurchase GERI-GADGETS® here.COUPON CODE: LCA20 for 20% Off No MinimumLearn more about Peter Istvan Photography here. Follow us on Twitter, FB, IG, & TiK Tok
How can a system meant to care for our most vulnerable turn into our worst nightmare? Join us as we kick off a special series of Love Conquers Alz episodes, inspired by our soon-to-be-released documentary, "No Country for Old People." We're honored to have Rick Mountcastle, former U.S. attorney and co-producer of our documentary, with us. Rick offers his eye-opening experiences prosecuting nursing homes for fraud and abuse. Together, we hope to shed light on the urgent need for public awareness and collective action to combat the systemic neglect rampant in the long-term care industry. In this series, we will present personal narratives that serve as powerful calls to action, urging us to demand better care standards and advocate for systemic change. In this episode, we feature the poignant account of Jen Trejo, who faced unimaginable hardship after her son Christopher (whose story was featured in the Netflix limited series "Painkiller") was prescribed OxyContin. From a mother's gut-wrenching moment of signing surgery papers for her son, to the neglect suffered within skilled nursing facilities, her story uncovers the severe failings of our profit-driven healthcare system. Jen shares the struggle of finding appropriate care for a loved one with a history of drug addiction and the frustrations of a system that prioritizes financial considerations over patient care. Jen also talks about the poor conditions in certain facilities and the lack of support for patients with more intensive care needs are also examined.We also explore the transformative power of love and advocacy in these challenging times and how collective efforts have sparked progress, especially in addressing the opioid crisis and improving caregiving standards. From the emotional toll of dealing with addiction and inadequate medical care, to the relentless pursuit of improvement despite resistance, this episode underscores the importance of empathy, persistence, and the human spirit in driving change. Tune in and join us in our mission to make a real difference.FACEBOOK Instagram Support the showJOIN THE PEOPLE OVER PROFIT MOVEMENT FOR NURSING HOME REFORM! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
What if the shift towards for-profit hospice care models is compromising the quality of your loved one's final days? In this episode, Don and I have a robust conversation on hospice with Penny Hawkins Smith, BSN, RN, CHPN. Hospice Nurse Penny, as she is known to her millions of social media followers, is a nationally certified hospice and palliative care registered nurse with over 17 years of experience with a passion for hospice advocacy and normalizing death and dying. Have you ever wondered how hospice care is funded and what services are actually covered? We break down the often-misunderstood world of hospice care funding, highlighting the system used by nonprofit agencies and detailing the array of services provided under this model, as well as the hidden truths behind the financial practices of many hospice agencies and their unsettling impact on patient care. We confront the alarming rise in Medicare spending and the exodus of physicians from the field. The episode also tackles the aggressive marketing strategies in the industry and the emotional turmoil families face when navigating palliative and hospice care. From the importance of clear communication and family advocacy to the systemic hurdles within end-of-life care, this conversation offers insights and personal stories that resonate deeply.Navigating the maze of hospice care decisions can be daunting, especially when facing ethical dilemmas and advocating for compassionate treatment. We explore the critical role of hospice advocacy, the rights of patients and families, and the often-overlooked challenges of caregiving in nursing homes. Through personal anecdotes and professional insights, we shed light on the importance of respecting patient dignity and goals, and the necessity for better education and support in end-of-life decisions. Join us as we call for empathy, open dialogue, and a more humane approach to hospice and elder care.Follow Hospice Nurse Penny on TIKTOKSupport the Show.JOIN THE PEOPLE OVER PROFIT MOVEMENT FOR NURSING HOME REFORM! Visit the No Country For Old People Website for more information.YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Can human connection and dignity survive in a profit-driven healthcare system? On this episode of "Love Conquers Alz," we are joined by the talented artist and filmmaker Teace Snyder, who introduces his thought-provoking film "Hold Me." The film explores the emotionally charged and controversial topic of voluntary euthanasia, focusing on a woman whose job is to comfort individuals in their final moments. Teace shares the poignant inspiration behind the film, highlighting the ambiguous professional role of a "holder" and how the film raises essential questions about human connection, grief, and end-of-life care. Our conversation with Snyder sheds light on the delicate balance between personal choice and ethical implications in these profound moments.Our discussion expands to the broader issues of systemic neglect and the isolating experiences of the elderly and sick in our healthcare system, especially during the COVID-19 pandemic. We draw parallels to solitary confinement and critique the pervasive influence of money in healthcare, particularly within the hospice system. Through a candid examination of systemic corruption and the hidden influence of the nursing home lobby, we aim to inspire grassroots movements and honest conversations. Our goal is to foster empathy and prioritize human dignity in a system too often driven by profit. Join us as we navigate these complex topics with hope and a commitment to meaningful change.Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In Episode 92, Don and I talked with three prolific writers who have made profound literary contributions to the Dementia community and now pooled their talents and love of poetry to launch a beautiful anthology, “Poetry For the Dementia Journey”, that sprung from an online event featuring over 30 poets. (This just may be one of my favorite episodes!!) Marianne Sciucco is not a (dementia) nurse who writes but a writer who happens to be a nurse. Her novel, Blue Hydrangeas, an Alzheimer's Love Story, is a testament to the power of love in the face of this heart wrenching disease. She has since launched her own podcast “Untangling Alzheimer's and Dementia: An AlzAuthors Podcast” and is the Co-founder of the non-profit AlzAuthors.com, a global community of over 300 dementia-centered writers. Ann Campanella is the manager/director of AlzAuthors and is a former magazine and newspaper editor. She is the author of two award-winning memoirs and four collections of poetry. Her first memoir, Motherhood: Lost and Found, tells the story of her mother's descent into Alzheimer's and was named “One of the best Alzheimer's books of all time,” by Book Authority two years in a row. Sue Fagalde Lick has been nominated for the Pushcart Prize in both fiction and nonfiction and won first prize in Willamette Writers Kay Snow Awards for poetry. Sue is co-founder of the Central Coast chapter of Willamette Writers and former president of the Oregon Poetry Association. Her latest release, No Way Out of This, is a meSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Comedian/Filmmaker/Caregiver HEATHER FINK came to filmmaking from comedy. She has been making funny videos since she was a kid growing up in small town New Jersey. After earning a Philosophy degree from The George Washington University, she began NYU's Grad Film program as Writer/Director. Heather has gone on to direct over 35 comedy short and has been featured on MTV, Dr. Phil, TV Guide Magazine and The Washington Post, to name a few. Most currently, she was featured in the LA Times with, as she said in her post on X, her “my most depressing interview and pull quotes ever!” talking about the residual affect ion her career following the SAG-AFTRA and WGAstrikes in 2023. She currently pays the bills as a Sound Person for film and tv, including Marvel's “Daredevil” and Hulu's “The Dropout.” Heather came to caregiving after her beloved father had a paralyzing stroke. Now, she is taking her life-altering story to the stage with her one-woman show, Quicksand, that chronicles how she navigated her role as a young caregiver after her dad's stroke and the challenges she faced trying to keep herself from sinking. As Heather says, “From caregiving to death and the midlife crisis, QUICKSAND is a storytelling and clown exploration of the realest sh*t we face.” We chatted with Heather about the importance of creating a supportive community and shared our personal experiences with grief and loss, and the challenges of balancing personal storytelling with the need to connect with a wider audience in documentary filmmaking. Don and I had a truly fantastic, funny, and heartfelt exchange with this incredible lady and are sure you are going to enjoy our conversation with the one and only Heather Fink.Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
SEASON 9 Premiere!Episode 90 features our esteemed guest, Dr. Ethelle Lord, is an author, practitioner, educator, management coach, presenter, mother and grandmother, and a pioneer in the containment of dementia. Spending 21 years in the care of her husband Larry, living with vascular dementia and Alzheimer's truly motivated Dr. Lord's career path as a Global Dementia Care Shape and the founding president of the International Caregivers Association, a Dementia-Management-Consultant and Creator of the “Transactional Dementia Intelligence” or TDI business model of dementia care, a WHOLE SYSTEM which includes management, training, care, and coaching. She has also authored the enlightening book, "Alzheimer and Dementia Coaching: Taking a Systems Approach in Creating an Alzheimer's Friendly Healthcare Workforce."As Dr. Lord says, “One of the biggest challenges people face is the lack of basic information on where to begin, what to do, and how to do it.” Well this dementia warrior is helping the world, face those challenges - and Don and I were honored to have her with us on Love Conquers Alz!Buzzsprout - Let's get your podcast launched!Start for FREEDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
“I'm a lawyer by trade, politician by practice, and an academic by accident.” These are the musings of the remarkable, and I have to say, charming, Max Sherman. In Episode 89, we interviewed a young and energetic 89 years old, Max Sherman. Max's life has been significantly influenced by women. But one in particular has shaped who he is today. In 1953 Max was among 4 high school boys conducting a church service at a local jail when he first laid eyes on a Gene Alice, who was there with her fold up field organ. And their love affair still thrives to this day... In 2002 Gene Alice started noticing that something was different and soon after was diagnosed with Alzheimer's. Through the inevitable progression of the disease Max and Gene Alice's journey together is now chronicled in the beautiful and poignant memoir, “Releasing the Butterfly: A Love Affair in Four Acts”. It's a caregiver's story and journey. An honest, heart wrenching and insightful look at not only the disease but of a bond that could not be broken. Max shares many of the insights he has gained as a caregiver, and thoughts on how to maintain connection even while grieving the losses of the fading abilities of a spouse living with Alzheimer's.Max boasts a rather formidable body of work which includes: Texas State Senator, President of West Texas State University, and Dean of the LBJ School of Public Affairs. His leadership roles also include President of the National Association of Schools of Public Affairs and Vice President of the Harry S. Truman Scholarship Foundation. AND recently he was honored as an 80 over 80 recipients. Don and I had the best conversation chatting with the author of this ode to a 70 year love-affair that will warm your heart and make you want to fall in love all over again!Support the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Heeeeeeee's back! And Don and I couldn't be happier! Our dear friend and “Senior Care Influencer”, Lance A. Slatton is not only a Writer, Author, and Healthcare professional with over 20 years in the healthcare industry…he is a number one class act and all around nice guy! Oh, and he is also the busiest person I have ever met! I thought I was juggling. Nope. Apparently not. ;)In case you're not familiar with Lance, here's just little background on this Care Commander: Lance is a native of Michigan, and the Senior Case Manager at Enriched Life Home Care Services, a leading care provider. His ingenuity and fortitude led to the creation of All Home Care Matters, an informative podcast and YouTube show devoted to helping families, caregivers, and their loved ones navigate long-term care issues. All Home Care Matters was recently the recipient of the Silver Creator Award from Google & YouTube. Lance also produces and Co-Host's two additional shows (I know! What are we doing wrong!?): Conscious Caregiving with L & L, co-hosted by Lori La Bey and The Caregiver's Journal with Denise M. Brown.If that were not enough, he also writes a monthly column for McKnight's Home Care News, DailyCaring.com, and AgeBuzz.Recognizing Lance's contributions to the industry, he was named a “50 Under 50” honoree by the New York City Journal for 2023 and has been chosen as a Juror for the Academy of Interactive Visual Arts for 2023 and 2024.And because he apparently has so much spare time on his hands Lance has now authored a new book, “The All Home Care Matters Official Family Caregivers' Guide”, a beacon of wisdom, meant to guide you through the complexities and emotional tides of becoming a caregiver. So, grab a cuppa tea or coffee and find out more about this new endeavor and everything else in the wild world of the inimitable Lance A. Slatton. And remember - Love is Powerful. Love is Contagious. And Love Conquers Alz.xoxo SusieSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Advocate. Leader. Caregiver. Jenny Abeling is dedicated to helping those in need, through the complexities of long-term care. Currently she is the Governor's Commissioner on Senior Services, working tirelessly to raise up senior related needs across the State of Oregon. Formerly the Essential Worker Healthcare Trust Director, Jenny led a first in the nation approach to lift Long -Term Care workers by supporting their health and wellness.Now she has launched JennyAbeling.com, where she provides personalized support to individuals, families and Long -Term Care workers, helping to navigate their care needs. Featured on CNN, Jenny shares her knowledge and experience through media, podcasts, speaking engagements, and events to harmonize empathy with her unique expertise. Jenny was recently honored by the Gray Panthers as a recipient of the coveted Above and Beyond Award honoring Long-term Care Workers.No Jenny has branched out as an author with A Kids Book About Long-Term Care, titled A Kids Book About Long-Term Care. She truly is a bright light in the world of caregiving and we were thrilled to have the opportunity to talk to her!Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Don and I both agree that Episode 85 (wow!), ranks as one of our favorites to date. Our amazing guest, Dr. Mitchell Clionsky is a board certified neuropsychologist with more than 30 years of clinical experience and has treated more than 20,000 patients with cognitive problems. Dr. Clionsky understands the toll of memory disorders as both a caring professional and as the son of his mother Muriel, who died in 2008 from dementia. Dr. Clionsky holds staff privileges on four hospitals and in addition to dementia, he evaluates ADHD, concussions, and a variety of neurological conditions. From years of patient data, Dr. Clionsky and his wife/partner Emily Clionsky, MD have developed the Memory Orientation Screening Test or MOST, a highly valid measure that provides a single, numerical score that reflects cognitive status and change over time. MOST helps identify -cognitive problems- earlier in the deterioration process so health professionals can intervene and help their patients live better lives. Now Dr. Clionsky and his wife, Emily, have taken what they do in their consulting room and have written a new book, Dementia Prevention: Using Your Head to Save Your Brain. It's an exciting, fun to read, motivating, and potentially life changing read that is the culmination of 45 years of extensive clinical evaluation and treatment. Scientifically detailed and vetted by Johns Hopkins University doctors and content experts, it is translated into terms that almost everyone will understand. 8 out of 10 people over 55 say that Alzheimer's disease and other dementias are a major concern. Well now there is something that can be done. Dementia is not inevitable, but for 1 out of 2 people it is preventable. And we are so excited to share all about this fascinating breakthrough. Enjoy!!Connect with Dr. Clionsky here.LINKEDINFACEBOOKSupport the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
If you don't know the preeminent caregiving champion, Christina Keys, you're in for a valuable treat! Christina was living her best life, enjoying a successful career, she was financially and spiritually healthy and happy - when in 2013 her beloved mother suffered a devastating stroke and was given a 1% chance to live. In a blink of an eye Christina went from care-free career woman to full-time caregiver. With Christina's dogged and loving support, her mother survived - but after 4 years Christina was bankrupt, financially, emotionally, mentally, and physically. And suddenly she was faced with a diagnosis of her own. Her body was shutting down from the stress and she was given 6 months to live. She knew she had to completely change her life…and she did. But she decided to not only transform her own life, but to help change the lives of other caregivers. Christina's mission to make sure caregivers everywhere are seen, heard valued and appreciated and are never alone through her local work with Loving Them Forward , the Non Profit she founded, and the national work she is doing as the Director of Community Growth at Caregiving.com. We can't wait for you to hear more about her remarkable transformation and journey!Connect with Christina: FACEBOOK INSTAGRAMConnect with Caregiving.com: https://www.caregiving.comApply and Learn more about the Caregiving.com CaregiverSupport the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In Episode 83, Don and I had a heartfelt and informative conversation with Dr. George Ackerman who started the movement Together for Sharon to honor his late mother Sharon Riff Ackerman, who succumbed to complications from Parkinson's Disease and Alzheimer's Disease on January 1, 2020. George is an absolutely tireless #advocate for those who suffer with PD and their families and has an unending hope for a cure. Come join us and learn about this important movement and why this is so important to George and his family.ORDER YOUR WRIST BANDS HERE: https://www.togetherforsharon.com/con...Please go to their site and follow their socials to show your support and solidarity:SiteFacebookInstagramTikTokLinkedInYouTubeTwitter/XLove Conquers Alz!Susie xoxoSupport the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In Episode 82, Don and I had a fantastic conversation (no surprise) with UK's own PIPPA KELLY. Author, podcast host, award-winning blogger, contributor to numerous national newspapers and magazines, Pippa has truly made a name for herself in the dementia and elder care universe. It was Pippa's own personal journey with her mother, who battled vascular dementia for 10 years, that shaped her creativity and launched her career. A prolific writer for the Huffington Post, The Guardian and many others, she also shares her thoughts and experiences on her popular, Covid-born podcast “Well I know Now…So Much More About Dementia.” And has become one of the UK's top 10 dementia influencers. But Pippa Kelly's artistic proclivities know no bounds. Her debut novel “Invisible Ink” deftly draws upon her experiences with her mother to craft a fascinating, poetic fictionalized tale that captures the intricacies of her mom's insidious disease.In this episode, we talk about the importance of sharing stories and personal experiences. The role of humor and creativity in advocating for better care. The need for education and ongoing advocacy.. The importance of creating community and promoting human interaction. And finally, the positive impact of therapy dogs, especially golden retrievers, is acknowledged.Pippa Kelly is a force to be reckoned with in the literary and dementia space. And let's face it, we absolutely love her accent. Follow Pippa Kelly here:TwitterFacebookInstagramLinkedInSupport the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
My co-host , Don, and I have been blessed with so many amazing guests, but truth be told, our 81st guest, Mary Lou Falcone , ranks as one of our very favorites!! We fell in love with this EXTRAORDINARY woman and we have no doubt you will, too.For over 50 years, Mary helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Then combining communication skills with her background as a performer and educator, she now adds another layer: advocate for Lewy body dementia (LBD) awareness.Mary became a caregiver when her father had a massive stroke. She was 10 years old. The experience prepared her for the day, many years later, when her husband, a world-renowned cartoonist, illustrator, painter, and 1950s rocker, Nicholas 'Nicky' Zann, was diagnosed with Lewy Body Dementia (LBD). Nicky, who died from LBD in 2020, was the catalyst for Mary's first book, I Didn't See It Coming: Scenes of Love, Loss, and Lewy Body Dementia. "Mary Lou Falcone is an expert storyteller. After years of telling other people's stories, she now tells her own compelling story." Friend and client, James Taylor. In her memoir of love, loss, and Lewy body dementia (LBD), Mary Lou Falcone takes readers on a cathartic journey of caregiving that is filled with hope, laughter, and tears, making stops along the way for music, romance, and surprises. Written to inspire and give hope, Mary Lou unflinchingly shares in detail her late husband's struggle with LBD, providing informative, compassionate, and inspiring insights into dementia. As she emerges transformed and energized, so will you after reading I Didn't See It Coming: Scenes of Love, Loss, and Lewy Body Dementia . Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers. Enjoy Episode 81!!Love conquers alz,Susie xoSupport the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Season 8 kicks off with episode 80 - a MUST LISTEN to show featuring JACKLYN RYAN - a sought-after speaker, consultant, workshop presenter, and best-selling author of the gut-wrenching book, “CareGivers, ScareTakers - Exposing Fraud In Senior Care”. With an aging population, families are struggling with dependable, trusted care. This process is riddledwith problems. What can adult children do to protect their parents from abuse and financial theft and also protect their inheritance and peace of mind from unscrupulous caregivers?Just like all of us, Jacklyn was instantly faced with a heart-wrenching time in life when her parents were no longer able to care for themselves are soon learned the world of home healthcare agencies is riddled with what she calls inappropriate and unscrupulous ScareTakers. Armed with her and other's powerful personal stories, plus extensive research on this undeniable problem, Jacklyn is sharing this life-changing information through her enlightening book in hopes of revising the process for those looking for appropriate and trustworthy care for their loved ones. We covered the following topics and more:• How to better prepare when you enter the "wormhole of healthcare" • The Actions You Can Take to Safeguard Your Family Inheritance and Expose the Scammers. • Don't wait for a Crisis to happen! Prepare YOUR OWN Care Ahead of Time. • We neglect to make a plan for our own care when we can no longer care for ourselves. • Make a Plan and Put it in Writing. • Discover resources, how to research and reviews on agencies and caregivers. • "My Father (or Mother) is in Love with His Caregiver! "Connect with Jacklyn here:EMAIL: info@caregiverscaretakers.comWEBSITE: https://caregiverscaretakers.comLinkedIn: Jacklyn (Jacci Perry) Ryan X: @Jacklyn72519695Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In Episode 79, my co-host, Don Priess, and I had an enlightening conversation with Stephan Jackman, the CEO of Alzamend Neuro, a clinical stage biotech company committed to “Making Alzheimer's Just a Memory™.” Stephan shared information about the new lithium-based drug that offers Alzheimer's patients hope.Stephan is laser focused on his mission to rapidly develop and market safe and effective treatments that address the unmet needs of those living with Alzheimer's and other neurodegenerative diseases and psychiatric disorders, through advanced research and development.Their current pipeline consists of two novel therapeutic drug candidates, AL001 – a patented ionic cocrystal technology delivering lithium via a therapeutic combination of lithium, proline and salicylate, and AL002 – a patented method using a mutant-peptide sensitized cell as a cell-based therapeutic vaccine that seeks to restore the ability of a patient's immunological system to combat Alzheimer's. Both of our product candidates are licensed from the University of South Florida Research Foundation, Inc. pursuant to royalty-bearing exclusive worldwide licenses.Our primary target, Alzheimer's disease, was among the most-feared diseases (second only to cancer) among Americans, according to a 2011 survey by the Harvard School of Public Health. Alzheimer's is also the sixth leading cause of death in the United States according to a 2021 report from the Alzheimer's Association, a nonprofit that funds research. Existing Alzheimer's treatments only temporarily relieve symptoms but do not slow or halt the underlying worsening of the disease, which currently affects roughly 6.2 million Americans and that number is expected to grow to 13 million individuals by 2050.Enjoy the listen.Love Conquers Alz,Susie Alzamend NeuroStephan JackmanSupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In episode 78, Don and I had a fantastic conversation with the warm-hearted and incredibly delightful, Maria Kent Beers. Maria, along with her partner, Rachael Martinez, is the co-founder and co-host of the Remember Me Podcast + Community. Maria has always had a love of radio and editing, receiving a TV Production Degree from Boston University where she was a host of BU In The Morning Radio Show. She also spent time at MTV Radio as an intern in NYC before falling into the world of fashion merchandising for 7 years. After losing her beloved mother, Amalia to FTD in 2020, Maria had a desire to share her mom and experience as a caregiver to the world and the seed for the Remember Me Podcast + Community was planted. Since its inception, the Remember Me Podcast has tripled its audience as the awareness for brain health, Alzheimer's and FTD continues to grow. Maria has served as a guest speaker at Alzheimer's and caregiving conferences around the world and continues to be a resource for others on the FTD journey. Remember Me Podcast + Community has collaborated with partners such as Learn FTD, The Association for Frontotemporal Degeneration (The AFTD) and the Bluefield Project to share their stories and offer support to the FTD community. You can follow along at @remembermepodcast and listen on your favorite podcast platform. World FTD Awareness Week Sept 24 - Oct 8, 2023. Remember Me is going on a 3-city tour (NYC, Philly, DC) to raise awareness of FTD Sept 25 - 28th. - please see their tour page here. Support the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
My co-host, Don Priess, and I had the distinct pleasure of speaking with, Ashton Applewhite, the internationally acclaimed spokesperson for the emerging movement to raise awareness of ageism and to dismantle it. A co-founder of the Old School Anti-Ageism Clearinghouse, she has been recognized by the New York Times, The New Yorker, National Public Radio, and the American Society on Aging as an expert on ageism. She speaks widely at venues that have included the TED main stage and the United Nations, has written for Harper's, the Guardian, and the New York Times, and is the voice of Yo, Is This Ageist? She has been named as a Fellow by The New York Times, Yale Law School, and the Royal Society for the Arts.In 2016, Ms. Applewhite joined the PBS site Next Avenue's annual list of 50 Influencers in Aging as their Influencer of the Year. In 2022, she appeared on HelpAgeUSA's inaugural 60 Over 60 List and on Fe:maleOneZero's first international edition of 40 over 40 – The World's Most Inspiring Women, and received the Maggie Kuhn Award from Presbyterian Senior Services.Ms. Applewhite is also the author of Cutting Loose: Why Women Who End Their Marriages Do So Well, described by Ms. magazine as “rocket fuel for launching new lives.” As the pseudonymous author of the Truly Tasteless Jokes series, she was the first person to have four books on the New York Times best-seller list and was a clue on “Jeopardy." Connect with Ashton Applewhite: Facebook X Instagram Email: ashton@thischairrocks.comSupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
“Anything is possible if you have the desire and passion to make it happen.” That is the mantra of our Episode 76 guest, Lance A. Slatton. Tirelessly dedicated to giving back, Lance has become a standout in the healthcare industry. A native of Michigan, he is a Senior Case Manager at Enriched Life Home Care Services, a leading care provider. His wealth of knowledge and experience, along with his innovative approach to providing care, has led to his award-winning home care company being named Michigan's top-rated service over the past five years.But Lance is committed to sharing his wealth of knowledge and experience far beyond the Michigan state line. His ingenuity and fortitude led to the creation of his podcast and YouTube show, All Home Care Matters. Reaching over 12 million viewers globally.If that weren't enough, as a contributor to McKnight's Home Care News, Lance's articles explore diverse topics from “the state of Medicare” to “innovations in senior care technology” to “caring for the caregiver” and more.Recognizing Lance's contributions to the industry, he was named a “50 Under 50” honoree by the New York City Journal for 2023. Don Priess and I share a candid, enlightening conversation that explores the challenges, possibilities and advantages of home care for our loved ones. If you are a caregiver, know a caregiver or may be a caregiver someday, today's chat with the inimitable Lance A. Slatton is a must listen. FOLLOW LANCE: Apple Podcast YouTube FB Twitter Instagram LinkedInSupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
If you have ever wondered just what the role of Adult Protective Services truly is, when should you contact them, what kinds of investigations they make, and how much power do they actually have when it comes to protecting your loved one or any vulnerable adult, then this is required listening! (Even if you have never wondered, I recommend this show!) My co-host, Don Priess, and I had an incredibly candid and enlightening conversation with Bettina Morrow, currently the Supervisor of Adult Protective Services in Jefferson County, Colorado.Bettina shares her invaluable, honest perspective of the program that promotes "the safety, independence, and quality-of-life for vulnerable adults who are, or are in danger of, being abused, neglected by self or others, or financially exploited, and who are unable to protect themselves." A program that can differ from state to state and even from county to county in terms of definitions, client eligibility requirements and standards of practice. With over 20 years of international experience, Bettina Morrow started her career in her home country of Australia before moving to the UK. There she practiced social work for 9 years, eventually leading to her move to the U.S. Bettina is a true unicorn, having spent the last 15 years working with at-risk and vulnerable adults with specific expertise in elder abuse, dementia, and guardianship. Bettina has obtained a Bachelor of Social Work and a Masters in Dementia, is a Nationally Certified Guardian, and has presented at state and national conferences. Support the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
In Episode 74, Don Priess and I had an incredible conversation withTerri Pease, Ph.D., an Author, Coach, and Consultant for Spousal Caregivers. As a highly experienced professional in the social services and healthcare industries, Terri has dedicated her working life to encouraging Parkinson's caregivers, to make self-care real, practical, and possible. But really, the same applies to almost all Spousal Caregivers - including those caring for spouses with Alzheimer's. Terri has has also dedicated her life to working with people who are facing highly stressful situations. Her experience has taught her how to provide supportive and trauma-informed care to those who need it most. When Terri married her husband who had Parkinson's Disease, she brought her wealth of knowledge and experience to bear on caring for him. She trained staff in organizations around the United States on how to offer supportive, empathic, and trauma-informed care. Her professional experience has informed her approach to caregiving, and to encouraging Parkinson's caregivers to make the idea of self-care real, practical, and possible. In addition to her work as an author and caregiver advocate, Terri's book, "Love, Dignity, and Parkinson's: from Care Partner to Caregiver" (Paperback – October 19, 2022 ), is a great resource for caregivers whose spouse or loved one has been diagnosed with Parkinson's Disease. and are feeling overwhelmed and unsure of how to best care for them without losing themself. The book offers a new approach to caregiving that can help ease the stress and anxiety that come with this diagnosis. In this book, you'll learn how to strengthen your caregiving capacity, maintain peace of mind, and live a less stressful, upsetting, or lonely caregiving life. You'll also find practical tips on how to deal with common experiences like changes in mood, challenging behavior, and communication difficulties. Most importantly, Love, Dignity, and Parkinson's will serve as a constant reminder that you are not alone in this journey. With compassion and wisdom, Pease offers invaluable insights into the caregiver experience, drawn both from her extensive professional experience providing trauma-informed care and from her own years as a caregiver to her husband. This book is an essential resource for any caregiver navigating the challengeSupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATION AT OUR GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok
Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer's and other dementias through the sharing of personal stories. If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders!You can find out more about AlzAuthors on their Website and their podcast, Untangling Alzheimer's and Dementia.#writers #writer #podcast #experience #love #art #medical #nurse #communitySupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATE HEREFollow us on Twitter, FB, IG, & TiK Tok
Anthony "Tony" Copeland-Parker is back for a record 3rd time on Love Conquers Alz... and Don and I are thrilled. Tony and his, partner Cat, have a unique and inspiring story that has been unfolding before our eyes and this new chapter is as heartening as ever. For those who may not be familiar with Tony andhis partner, Cat, here's a little background to get you up to speed. (I'm killing it with the running puns!) Tony and Cat were in there 50s going their merry way, when they were presented two life-changing pieces of news...at the same time. Tony was told he needed a heart valve replacement and Cat had early-onset Alzheimer's. But both being endurance athletes, their reaction to this news was, let's say, unique. They retired, sold their home, & became nomads, running marathons & half-marathons - literally over the world.Their book, Running All over the World, Our Race Against Early Onset Alzheimer's, is an engaging travelogue with a heart. Don't let the word "Alzheimer's" give you the wrong impression! It's filled with fun, humor, heart, and adventure. It's chock-full of interesting facts and detailed travel advice. And if you ever thought about running a marathon, but just can't seem to check that off your list, you'll experience the thrill of the finish…blister-free! The book is an account of their 5+ years of flying, running, walking, sailing, & sightseeing from Atlanta to Antarctica and back again.Now that Cat's Alzheimer's has progressed and she can no longer run marathons, she and Tony have embarked on a new chapter in their unique and awe-inspiring story. Enjoy this episode!Love,Susie SPECIAL GIVEAWAY! The first 5 people to leave a comment at RunningwithCat.com will receive an ebook version of Tony's book and one signed copy! Leave a comment and then let me know you did at loveconquersalz.susie@gmail.com. Good luck!Support the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATE HEREFollow us on Twitter, FB, IG, & TiK Tok
In episode 71, Don and I thoroughly enjoyed talking to Gail Weatherill, RN BSN CAEd, AKA the Dementia Nurse. Gail is a practicing RN for 43 years, a board-certified Alzheimer's Educator, a fearless advocate, and the author of The Caregiver's Guide to Dementia: Practical Advice for Caring for Yourself and Your Loved One. Gail became a family caregiver herself when a beloved client with no family moved in with her and her family for her last few years of life. She understands the demands of 24/7 care of a loved one with dementia. She now works to compensate for our health "care" system's failure to support caregivers in meeting those demands. Gail recently shared her irreverent approach to the American health care machine in a dynamic interview for our documentary, NO COUNTRY FOR OLD PEOPLE. It's no wonder she has become an effective and sought out advocate for those in deepest need. Her advocacy led to her participation in the Nurses Take DC movement for safe staffing ratios in our hospitals and long-term care facilities. Through her writing, speaking, and coaching, Gail lives to educate dementia caregivers "one heart at a time". She maintains a closed caregiver support group on Facebook, a group that has grown to 50,000 members from over 100 countries. The need is global and great. As Gail makes her way through her fortieth year of nursing practice, she will tell you she is just getting started. YOU'RE GOING TO LOVE HER! When she's not busy rabble-rousing for health care causes, Gail can be found reading, sewing fidget quilts, and missing her two daughters whom she says live entirely too far from their mother. She shares her home in Charlottesville, VA with a cat named Baby Silas who lets her use the laptop when he's not busy warming his belly on it.Enjoy!xox SusieSupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATE HEREFollow us on Twitter, FB, IG, & TiK Tok
For our 70th episode, we spoke with the very irrepressible Ellen Belk, a domestic educator and Silver Living strategist, with a refreshing "call it as she sees it" style that leaves a lasting impression on anyone who works with. Ellen is the company founder of the K.I.M. Academy (Keep In Mind) - An online Dementia Education platform to serve both professionals & families with on-demand, interactive learning-sessions for adult learners. Ellen has an impressive 20+years of operational experience in Senior housing as a holistic Dementia expert, author, trainer, and influencer. She brings a unique blend of proficiency in operations, sales, team building, resident experience, and innovation to her clients. Ellen is on a mission to elevate the collective (global) Dementia IQ by dispelling the myths, elevating the truth, and highlighting the LIVES that are still lived after a dementia diagnosis. As a rising Brand Ambassador, Ellen is a trusted voice seeking to share information about technology products and other services benefitting aging consumers within her circle-of-influence and network. Therefore, she's an asset to those innovator cohort groups who understand the need for influencer marketing strategies to reach Boomer consumers and ‘silver citizens'.Ellen is simply not satisfied with the status quo. If you tell her, “This is the way it's always been done”, she'll be the first voice to share an alternative solution. Her motto: Together we are stronger. Be the change. We couldn't agree more! Enjoy!xoxo Susie and DonFollow Ellen Belk on LinkedIn, YouTube, PinterestContact: kim.info@keepinmindinc.comSupport the showBEDSORE RESCUE - JEWELL NURSING SOLUTIONS: Home of the Patented Bedsore Rescue Positioning Wedge Cushions, Pads & Pillows (Use the PROMO CODE: NCFOP and All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.) SOCIAVI: Connecting Generations Made Simple - Globally - the simplest way for older adults and people with disabilities to connect and engage with their families and friends. There is no username, no password, no login, and no app to choose from. Just a dedicated device, the Sociavi C2M (Connect To Me) device that is always on and ready to use (When you signup for an annual subscription, All proceeds go to help fund the documentary NO COUNTRY FOR OLD PEOPLE.)No Country For Old People the documentary - MAKE YOUR TAX DEDUCTIBLE DONATE HEREFollow us on Twitter, FB, IG, & TiK Tok
In Episode 69, Love Conquers Alz hosts, Susie Singer Carter and Don Priess, cover a wide range of timely topics with the extremely accomplished mother, wife, educator, and physician, DR. MIRIAM ZYLBERGLAIT LISIGURSKI. Dr. Z is a triple Board-Certified Physician in Internal Medicine, Geriatrics, and Obesity Medicine with extensive clinical and academic experience. Dr. Z is also a well-being advocate with a strong focus on burnout, mental health, and leadership development. Dr. Z discusses how her advocacy led her to author, “The 3G Cycle of Life. The Secrets for Achieving Joy, Meaning, and Well-being,” in which she asks readers to imagine life as a sequence of cycles instead of a unidirectional line, where each cycle consists of basic three components: Goal, Grit, and Growth, as well as catalysts that may facilitate or hinder your progress throughout life. Dr. Z provides a broad vision of how to use each component of the 3G Cycle in your favor, even during the most challenging circumstances, to avoid the negative consequences of chronic stress and burnout. The book includes more than thirty experts' personal and professional experiences, evidence-based data, and Dr. Z's insights and stories. Dr. Z also candidly discusses the current phenomenon of “doctor burnout”. She blames it on a Healthcare system that does not allow doctors to practice the way that they want to. Dr. Z says there is a very big gap between what many doctors think medicine should be and what they are doing every day. Originally from Peru, Dr. Z has two awesome sons, a caring husband, and and is a caregiver for her mother who was recently diagnosed with dementia. Her dream is to help others achieve lives full of joy, meaning, and well-being.PURCHASE DR. Z'S BOOK HEREFOLLOW DR. Z HERESupport the showFollow us on Twitter, FB, IG, & TiK Tok
In Episode 68, Love Conquers Alz hosts, Susie Singer Carter and Don Priess have a fascinating conversation with Dr. Buffy Lloyd-Krejci, one of the foremost authorities on infection prevention and control in nursing homes and long-term care facilities. Dr. Buffy (as she likes to be called) is a frequent contributor and interview source for national and trade press concerning infection prevention and control and mitigation. Dr Buffy is also the author of Broken: How the Global Pandemic uncovered a nursing home industry in need of repair and the heroic staff fighting for change. In BROKEN, Dr. Buffy Lloyd-Krejci exposes an industry in dire need of a massive policy overhaul. Her book chronicles her "boots on the ground" experience visiting 200 nursing homes across the country as the pandemic brought these deadly problems into stark relief. Through interviews with patients, healthcare workers, advocate groups, and regulatory agencies, she reveals the critical flaws in a system that was set up to fail—and her bold vision for change.Dr. Buffy states that "Our elderly loved ones deserve to live out their final days with dignity and respect, not to be left alone to die in a broken system. But even before the COVID-19 pandemic, infectious diseases ran rampant in US nursing homes. Between one and three million infections resulted in 380,000 deaths among nursing home residents each year. That's over 1,000 people per day. All because the nursing home industry has been struggling with Infection Prevention and Control practices (IPC) for decades."Dr. Buffy's practice, IPCWell, is headquartered in the Phoenix metropolitan area and is devoted to mitigating infectious diseases and inappropriate antibiotic prescribing in all healthcare settings to reduce adverse events, infections, antibiotic resistance, re-admissions, and death. Dr. Buffy consults with health care facilities across the United States and internationally (Doctors Without Borders). FOLLOW DR. BUFFY ON:YOUTUBE LINKEDINSupport the showFollow us on Twitter, FB, IG, & TiK Tok
In Episode 67, Don Priess and I have a candid - and inspiring - conversation with our first guest of the year, Mary S. Daniel, a Board-Certified Patient Advocate whose mantra is "boldly advocate for your loved ones". Leading by example, Mary showed us just what that looks like when she took a job as a dishwasher at the facility where her husband, Steve (diagnosed with Alzheimer's disease in 2013 ), lived after being separated for 114 days during the lockdown due to COVID-19. The conversation delves into some of the very real challenges caregivers face navigating our ageist, ableist, and broken healthcare system that became glaringly apparent during the Covid era. A fierce advocate, Mary shares the incredible steps she took to make sure she kept a watchful eye and consistent connection with her husband, Steve, despite the seemingly impossible roadblocks.Mary founded the Facebook group "Caregivers for Compromise – because isolation kills too!" which has over 14,000 members and chapters in every state. Her grassroots effort got the attention of Florida Governor Ron DeSantis who named Mary to the Florida Task Force on the Safe and Limited Re-Opening of Long-Term Care Facilities. The recommendations of the Task Force were accepted by the Governor on September 1, 2020 and Essential Caregivers were allowed back in facilities to see their loved ones.On December 21, 2022, Mary announced that her beloved husband Steve, passed away peacefully that morning. One of her next posts simply said, "Now What?" Mary answers that question and much more in this "must listen"conversation. #healthcare #covid #Alzheimers #grieving #caregiving #carepartner #endalz #dementia #dementiacare #caregiver Support the showFollow us on Twitter, FB, IG, & TiK Tok
In Episode 66, Hosts Susie Singer Carter and Don Priess have a fantastic meeting of the minds with their guest from the UK, Dr. Kellyn Lee, as she breaks down her new approach to dementia care – Material Citizenship - which focuses on the important role and function of everyday - personal - physical objects & tasks make a HUGE positive impact in the caring process. Dr. Lee is the founder of WISER Health & Social Care Ltd and The Dementia Care Hub - supporting people living-well with dementia, both at home and in formal care settings. Dr. Lee is an accomplished academic with a BPS Chartered Psychologist and over 11 years-experience in “research in aging” and dementia. She has lectured in psychological research methods & fundamentals in older persons' complex care, Chairs the Innovation and Impact Board for the Institute of Health & Social Care Management, and is the former Co-Director of the Doctoral Training Centre for Dementia Care at the University of Southampton. Support the showFollow us on Twitter, FB, IG, & TiK Tok
In episode 65, Love Conquers Alz hosts, Susie SInger Carter and Don Priess dive deep into the world of Palliative and Hospice Care with their guest, Anne Kenny MD, Professor of Medicine with specialty training and board certification in Geriatric Medicine, and Palliative and Hospice care. Dr. Kenny has found immense joy in her work with individuals and their families managing issues related to the diagnosis of dementia. Her experience in partnering in the care of these families touched close to home when her own mother was diagnosed with dementia. Dr. Kenny's shares her expertise and experience ininpatient and outpatient Palliative and Hospice care which were called on whenher mother reached the final stages of living with dementia. The Kenny family worked together for their mother's graceful exit from this planet Dr. Kenny has been a practicing physician for nearly 30 years and has been recognized by her peers as a “Top Doc” in Geriatric Medicine. She has been honored with a Brookdale National Fellow and the prestigious Paul Beeson Physician Faculty Scholar awards. In addition to her clinical practice, Dr. Kenny lectures to both healthcare professionals and the public on aging related issues such as osteoporosis, exercise, nutrition, hormone therapy, death and dying, and frailty. She is an educator of medicine and research skills. She taught and mentored clinical and research skills to all levels of trainees including medical students, post-graduate residents and fellows, and early faculty members. She has been active investigator participating in clinical research focusing on various aspects of aging. She has over 100 scientific publicationsand presentations focused on improving the care and functioning of older adults. You can connect with Dr. Kenny here: WEBSITE TWITTERLINKEDIN FACEBOOKSupport the showFollow us on Twitter, FB, IG, & TiK Tok
In EPISODE 64, Co-Hosts Susie Singer Carter and Don Priess chat with Dr. Brittany Lamb, an ER Physician, Dementia Family Caregiver, Educator and Advocate. In medicine, there is a saying, "You don't know, what you don't know." Dr. Lamb is on a mission to inform Dementia Caregivers so they can make competent medical decisions on their person's behalf through anticipation and planning. Her enlightening services include such matters as advanced directives, planning for medical emergencies, how to talk to your family and determining goals of care just to name a few. So if you are someone's power of attorney, health care proxy, surrogate or default decision maker, Dr. Lamb can help create a plan to help you make informed future medical decisions and focus on spending quality time with your loved one now.Dr. Lamb openly discusses the challenges and stress doctors and healthcare workers face working within the current healthcare system. You don't want to miss this episode.You can connect with Dr. Brittany Lamb here:Facebook Group Online Group Program Phone Consultations LinkedInInstagramFacebookSupport the showFollow us on Twitter, FB, IG, & TiK Tok
Hosts, Susie and Don are joined by Professor/Author/Caregiver, Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies - including literature - that she used to stay connected and to manage her sadness.The narratives of the authors alternate in the book. Cindy tells the story of her father's illness, and how 30 years ago scant information was available to families about this vicious disease. She also tells the story of his life, and along the way, weaves in observations about literature and the insights she has gained from her favorite books. Bruce takes over certain sections of the text offering in-depth explanations of the science behind neurological topics including the brain, Alzheimer's and language.Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women's Fiction, and African-American literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In 2018-19, she was an Atlantic Fellow in the Global Brain Health Institute based at UCSF and Trinity College Dublin, where she studied neurology with an interdisciplinary group of scientists, artists, social scientists, and physicians. During this time, she worked with Dr. Bruce Miller on Finding the Right Words. WEBSITETWITTERLINKEDINAMAZONCALTECHSupport the showFollow us on Twitter, FB, IG, & TiK Tok
In Episode 62, Love Conquers Alz Co-Hosts and award-winning filmmakers, Susie and Don discuss what motivated them to produce their upcoming film, NO COUNTRY FOR OLD PEOPLE (NCFOP). An important documentary that will be the required punch to the gut that forces people to take a good hard look at the Long Term Care crisis that has been going on for decades and the health-care system that is literally collapsing around us.NCFOP will be a cautionary tale that exposes the dangerous façade of stability and safety held tightly by Long Term Care (LTC) nursing facilities. A pretense propagated by a system that subscribes to the notion that honesty is far less profitable than dishonesty and cavalierly regards human beings as commodities. A system that relies on deceitful marketing to successfully divert most Americans away from the fact that decades of underfunding has left the nursing home system in dire need of a seemingly unachievable overhaul. In a case of every cloud having a silver lining, we have Covid-19 to thank for pulling the curtain back on this nationwide crisis. Still, without comprehensive and accurate data, interventions to improve outcomes and quality are limited and consumers have a difficult time discerning how risky a particular facility might be. According to their producing partner, former Assistant Attorney General of Virginia, Rick Mountcastle (portrayed in the Hulu miniseries Dopesick by Peter Sarsgaard), it all comes down to understaffing. "With most not-for-profit nursing homes offering low pay, limited benefits, and not nearly enough training, and for-profit companies (that dominate the industry) having incentives to keep their costs low, neglect has regrettably become the industry standard."In the first six months of 2022, Susie was witness to this systemic crisis. She saw things she cannot unsee. Things she won't unsee. Her mother had been a resident at a 5-Star Nursing Facility in Los Angeles for 5 years – a place where she took solace in believing her mother was receiving the very best care possible. And as it turns out, she was. Unfortunately, the “best” turned out to be the worst. Susie had been on the front lines of what she calls a systemic catastrophe daily for the first six months of 2022. And despite her relentless advocating, her mother died July 17, 2022 from what was inarguably egregious nursing home neglect and abuse. It's unimaginable to think what happens to residents without advocates. This is Susie's mother's story. But it could be yours For more information: No Country For Old People** If you've been a victim of Nursing Home Neglect and/or abuse, and would like to share your story in this documentary, please contactus at LoveConquersAlz.Susie@gmail.com.Support the show
In Episode 61, Don and I had the pleasure of speaking with Adria Thompson, a speech language pathologist, dementia educator, and owner of Be Light Care Consulting. Adria has over 8 years experience in working with individuals one on one providing speech therapy services for those with dementia.Adria has also created a dementia training program to teach therapists in 13 states how to increase their creativity, efficiency, and compassion. She creates daily content for over 200,000 professional and personal caregivers of individuals with dementia on social media platforms in a relatable, positive way that makes the condition seem a little less scary. I was particularly interested in talking to Adria about dysphagia (difficulty in swallowing) which often presents in late-stage dementia patients. Although dysphagia can only truly be diagnosed via Videofluoroscopy (VFS), also called a modified barium swallow study (the gold standard), many Long Term Care Facilities use antiquated ways to make their official assessment based on budget and man-power. This is what happened to my mother in the last 6 months of her life. Without having her properly tested, the facility that she was at claimed she could no longer swallow safely and insisted she be fed via a G-Tube. They also refused to allow her to have anything orally for fear she would aspirate. But the truth was, my mother was not only able to swallow, she wanted to desperately. Despite my advocating, they forbid it. I was finally able to convince them to have her assessed by their speech therapist who proceeded to diagnose her with dysphagia by watching her and placing a finger on her throat. I implored the therapist to watch me give my mother liquids from one of the sponges used for oral care. She agreed that my mother was able to swallow...for me. Her final decision was that I would be allowed to give liquids to my mother via a sponge on a stick. No one else would be given permission. Let's be honest - the decision was based on the fact that they were understaffed. And potential liability. Consequently, my mother suffered for 6 months from an unnecessary G-Tube, solid chunks of mucus that formed daily which happens when liquid is withheld from a person, and the monotony of almost zero oral gratification! Can you imagine? I say almost zero, because everyday for 6 months, I brought my mother "something to drink". I was restricted by their edict that it could only be provided by a sponge that my mother had to suck. It was heartbreaking. Their attempt to keep my mother from aspirating and developing pneumonia GREATLY affected her quality of life. In truth, it was an exercise in futility and really a distraction from the stage 4 pressure sore they allowed to develop and neglected to care for properly which ultimately resulted in sepsis and pneumonia several times during her last six months. We must protect our LOs from decisions based on policy that benefit the establishment and disregard our LOs quality of life... however long that may be. They deserve it. xo Susie Connect with Adria: Instagram FB TIK TOK LinkedIn info@belightcare.comSupport the show
Don and I had the pleasure of speaking with DR. DELON CANTERBURY, Board Certified Geriatric Pharmacist and Founder of GeriatRX, a Deprescribing Accelerator Program based on the premise that the majority of patients taking 15-18 medications annually are aged over 65, preventable medication errors cost nearly $21 billion dollars annually, and the ongoing inappropriate , HARMFUL, use of medications in the senior population. Too many Americans are dying from harmful medications and wasting thousands of their hard earned dollars on unnecessary prescriptions. Over 275,000 people die each year due to medication mismanagement. While other American's are wasting over $6,000 per year on unnecessary medications.GeriatRX is a pharmacist-lead consulting service that identifies that there is a lack of support for caregivers advocating for the elderly who need help in maneuvering a very difficult health care landscape by providing high quality evidence-based medication management for our most vulnerable patients, the elderly. Connect with Dr. Delon Canterbury:FacebookLinkedInTwitterSupport the show
There are no Survivors of Alzheimer's Disease. And the grief is unique, complicated, and layered. In Episode 59, Love Conquers Alz Host/Filmmaker, Susie Singer Carter, who lost her mother last month and Daughterhood the Podcast Host, Rosanne Corcoran, who lost her mother last year, share a very candid and revealing conversation about their personal experiences dealing with the final death of their beloved mothers and the veritable storm of the "typically untypical" process known as Dementia Grief. Both Susie and Rosanne have spent over a decade as hands-on caregivers for their mothers and bring an abundance of invaluable experience, knowledge, and perspective on the End of Life stage of Alzheimer's and beyond.Rosanne Corcoran is a former caregiver and founder and host of “Daughterhood The Podcast: For Caregivers” She is also a regional Daughterhood Circle Leader - a group that provides resources and support while caregiving. Connect with Rosanne:TwitterFacebook Instagram Blog Daughterhood Website Connect with Susie:IMDBLinkedInFacebookInstagramWikipediaTwitterWebsiteSupport the show
Our guest, Rayna Neises, has the story no one wants to have. Rayna lost both of her parents to Alzheimer's disease 20 years apart. Her mom was diagnosed when she was just 16, living 12 years with the disease. Her dad lived 14 years with the disease being diagnosed just 6 years after her passing. But even still, Rayna feels blessed to be able to share her family's story of journeying through Alzheimer's Disease in her book No Regrets: Hope for Your Caregiving Season. Rayna understands the joys and challenges that come from a season of caring. She helped care for both of her parents during their separate battles with Alzheimer's over a thirty-year span. And she is able to look back on those days now with no regrets – and she wishes the same for everyone caring for aging parents.No Regrets: Hope for Your Caregiving Season, is a book filled with her own heart-warming stories and practical suggestions for journeying through a caregiving season.Rayna is an ICF Associate Certified Coach with certifications in both Life and Leadership Coaching from the Professional Christian Coaching Institute. She is the host of “A Season of Caring Podcast” and a passion speaker.Rayna lives on a farm in southeast Kansas with her husband, Ron, and small pack of adorable dogs. She is the baby of her family, but most would never guess that. She is a former teacher and enjoys crafts of all kinds and spending time with her grandkids most of all. Facebook.com/ASeasonofCaringRaynaNeisesLinkedin.com/RaynaNeisesInstagram.com/RaynaNeisesPinterest.com/thcoachinghttps://twitter.com/raynaneiseshttps://www.ASeasonofCaring.comhttp://www.NoRegrets-book.comSupport the show
Annie Wood is a Hollywood native, neurodiverse, Israeli-American actor (Good Luck Chuck, My Sister's Keeper, Becker) an internationally exhibited mixed media artist, an author, screenwriter, and playwright. Annie was the host and co-producer of the nationally syndicated dating game show, BZZZ! making her the 3rd female solo dating game show host in the history of television. The Hollywood Reporter compared Annie's comedic chops to the legendary actresses, Jean Harlow and Mae West declaring that a new comic blonde is on the scene! Annie Wood is a find! Annie was a guest on The Tonight Show with Jay Leno and Politically Incorrect with Bill Maher and confesses to being a “creative compulsive.” Annie can juggle kiwis for about 3 seconds. (The fruit, not people from New Zealand.) Now you know everything. Almost...Annie's father was diagnosed with dementia but only after researching his horrible reaction to the antipsychotics that his doctors put him on did she do a deep dive to discover that he most likely had Lewy body dementia, the kind without Parkinson's. His main symptom is he has auditory hallucinations. And in particular, one that recurred on a very consistent basis. After a stressful few months with ER visits and lots of wild times, Annie placed her father into assisted living (he was previously living in a senior living place with his own apartment without additional help) and is able to see him almost everyday. During the really chaotic time when her father thought the voice was going to kill her, Annie turned to her talents to cope - writing, painting, as well as other expressions of art, which resulted in 44 powerful pages of art and poems that she shares HERE.Annie is currently writing a play called "Nudnik", the nickname she gave the main voice her father hears, that is scheduled to be read at the Dramatist Guild upon its completion. She is thinking about a documentary short incorporating her poetry. Connect with Annie:TWITTERINSTAGRAMPINTERESTGet her book, "Just a Girl in The Whirl", HERE on AmazonSUPPORT OUR NEW AFFILIATES!MEUNDIES - use the promo code LOVEALZ for 15% off your first purchaseYOUTHFORIA - use the promo code LOVE for 10% off your first purchase Support the show
In episode 56 of Love Conquers Alz, my outstanding guest co-host, Rosanne Corcoran and I have a very candid and extremely important conversation for anyone who has a loved one in a nursing home or anyone planning to live a long and fulfilling life. Like me, Rosanne cared for her mother, Rose, over a 12 year span. in 2019, Rosanne started a regional Daughterhood Circle in the Philadelphia suburbs . In November of that year she created Daughterhood The Podcast: helping Caregivers navigate their new role. You can also visit Rosanne on her website HeyRoe.com for information, inspiration and a little company. Previously, I spoke with Rick Mountcastle -Assistant Attorney General for the Commonwealth of Virginia and retired Federal Prosecutor. Rick and his partner, Randy Ramseyer, led the investigation and prosecution of Purdue Pharma, for falsely marketing OxyContin as told in the Hulu miniseries "Dopesick", where I literally gasped out loud when it was revealed in the last episode that they were going to go after Abbott Laboratories for falsely marketing Depаkote, to nursing homes- the drug responsible for rendering my physically healthy mother non ambulatory and incontinent in a matter of seven days. Rick led the investigation and prosecution of Abbott Labs which resulted in criminal and civil penalties totaling $1.5 Billion. He is back to continue the conversation we started along with one of his lead investigators, John Peirce – who had boots on the ground inside Nursing Homes across the US. and witnessed the many negative results of understaffing that is now too common in too many nursing homes - where people are viewed as commodities and compassion is a liability. John was employed as a Special Agent – Criminal Investigator with the Criminal Investigation Division of the IRS in western VA, eastern TN, & western NC. investigating numerous cases of tax fraud and financial crimes In 2007, John was hired as a Criminal Investigator by the Virginia Office of the Attorney General, Medicaid Fraud Control Unit. In 2013, he was promoted to Investigative Supervisor. While employed by the OAG, he assisted in several healthcare fraud investigations of providers including physicians, pharmaceutical companies, nursing homes, & pain clinics. Many of these investigations were conducted in conjunction with the US Attorney's Office before he retired in 2021.Note: There are many facilities that still provide excellent care, but there is nevertheless a crisis that must be stopped now. Subscribe to CARETRAINR (dIscount Code: Susie)Try Memory Lane TV free!. Support the show
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