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In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by sisters Johanna and Antonia Bennett. They reminisce on time spent with their father, legendary musician Tony Bennett, and discuss the experiences they had as a family before and during his journey with Alzheimer's disease. Dr. Correa is then joined by Dr. Joel Salinas, a neurologist, clinical assistant professor at NYU Grossman School of Medicine, and chief medical officer of Isaac Health in New York. Dr. Salinas discusses how family members can care for their loved ones with humanity and respect and models ways that tough conversations can be started throughout all stages of symptoms. Additional Resources Do You Still Think of Me by Antonia Bennett Tony Bennett Demonstrates the Power of Music Against Alzheimer's Disease Lynda Carter Advocates for Those with Alzheimer's Disease Other Brain & Life Podcast Episodes on This Topic Journalist Greg O'Brien on Chronicling His Life with Alzheimer's Actors Oscar Nuñez and Ursula Whittaker on Caring for Loved Ones with Dementia Lauren Miller Rogen on Facing a Parent's Early-Onset Alzheimer's Diagnosis We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Guests: Antonia Bennett @antoniabennett; Johanna Bennett @johannabennett; Dr. Joel Salinas @JoelSalinasMD Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
With courage and vulnerability, Sheralin Samuels shares her experience as a caregiver for her mom, and their journey through Early Onset Alzheimer's disease. Here are a few highlights from this episode, created in partnership with Stanford Health Care: Sheralin's mom Carlys began showing symptoms in 2012, and a definitive diagnosis of Alzheimer's disease wasn't found until about 10 years later. Carlys spent a year in hospice care before she was discharged. As a sandwich caregiver, Sheralin cares for her two kids while working a full time job and ensuring her mom's needs are being met. Being a caregiver has impacted Sheralin's family in numerous ways, affecting family dynamics, relationships, and finances. Sheralin knows there's strength in self care. Her self care includes getting outside, enjoying nature, and hiking. By creating YouTube videos to help other caregivers, Sheralin is creating meaning from her experience. Watch Sheralin Taylor's YouTube videos: @A_Daughters_Journey You can find more resources and information about palliative care at caringinfo.org and getpalliativecare.org Connect with our special series sponsor Kensington Senior Living: Website: https://kensingtonseniorliving.com/ Social media: Instagram LinkedIn Facebook Information for Jennifer O'Brien Website: jenniferaobrien.com Read more about Jennifer O'Brien here. Purchase your copy of Care Boss by Jennifer O'Brien here. Buy your copy of The Hospice Doctor's Widow: An Art Journal of Caregiving and Grief here. Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you're already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast Book podcast host Helen Bauer to speak at your event or conference by sending an email to helen@theheartofhospice.com.
I had the privilege of sitting down with Reese Zahner, a poet and writer who has beautifully transformed her grief journey into a powerful testament of healing and acceptance under the pen name Cleo Childs.Reese opens up about the profound impact of losing her mother to early onset Alzheimer's, a journey that spanned seven years from diagnosis to loss. Through her candid storytelling, Reese shares how she turned to poetry as a means to process her emotions.We delve into the complexities of anticipatory grief and the unique challenges of witnessing a loved one gradually slip away. Reese's honesty about her initial struggles with understanding grief and her eventual path to acceptance is both moving and inspiring. She speaks to the isolation she felt during this time and how writing became a lifeline, allowing her to express emotions she couldn't articulate otherwise.Her poetry, once a private refuge, has now become a beacon of hope for others navigating similar journeys. We explore the themes of presence, patience, and the lessons Reese learned along the way, emphasizing that healing is not linear but a continuous process.Throughout our conversation, her warmth and resilience shine through as she reflects on the gifts her mother gave her. Whether you're currently walking through a season of loss or supporting someone who is, her insights offer comfort and encouragement.Join us as we explore the healing power of poetry and the profound journey of love, loss, and acceptance.RESOURCES:WebsitePoetry on YouTubePoetry on SpotifyCONNECT:Contact FormSend Victoria a text message! Support the show_______NEED HELP? National Suicide Prevention Lifeline: 1-800-273-8255 Crisis Text Line provides free, 24/7 support via text message. Text HOME to 741741 to connect with a trained Crisis Counselor If you are struggling with grief due to any of the 40+ losses, free resources are available HERE.CONNECT WITH VICTORIA: Instagram Website LinkedIn Facebook This episode is sponsored by Do Grief Differently™️, my twelve-week, one-on-one, in-person/online program for grievers who have suffered any type of loss to feel better. Click here to learn new tools, grief education, and the only evidence-based method for moving beyond the pain of grief. Would you like to join the mission of Grieving Voices in normalizing grief and supporting hurting hearts everywhere? Become a sup...
What's it like to face an Alzheimer's diagnosis at just 50 years old? In this emotional and heartfelt episode, I sit down with Jeanette and Jeremy as they share their story about navigating life after Jeremy's early-onset Alzheimer's diagnosis.We cover:•
Sarah Smith shares the heartbreaking story of navigating her mother's journey with Early-Onset Alzheimer's disease. Sarah's mom, “Beauty,” was full of life, strong and independent. When she began slipping mentally, she and her husband tried to cover up the problem, and Beauty refused to go to the doctor for years. Eventually, Sarah's dad had to ask for help and that led to many emotional, physical and spiritual challenges for Sarah's parents and family. Sarah found comfort in God's abiding presence, even when the stress and struggles with Beauty seemed overwhelming. Receive the book Broken Beauty plus a free audio download of “Helping or Hurting: Understanding the Power of Your Words” for your donation of any amount! Your Gift DOUBLES to Give Families Hope! Save 2X the marriages and families this Christmas with your life-changing gift today! Get More Episode Resources If you've listened to any of our podcasts, please give us your feedback.
Walk with Me is the journey of Charlie Hess and his wife, episode guest Heidi Levitt, as they learn to live with his Early-Onset Alzheimer's disease. Over four years of filming with Heidi as director and care partner, they crisscross the country, redefining how life will be lived to its fullest. Charlie's charm, warmth, and appeal take center stage, illuminating a story of love and a reminder that life is really about our relationships. "Walk With Me" will screen at the Woodstock Film Festival on Saturday, October 19, 5:15PM at the Bearsville Theater. The post-screening Q&A will be moderated by Filmwax host Adam Schartoff. https://www.youtube.com/watch?v=geeZYBAc36Q
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Alzheimer's advocate Reda Harrison joins Being Patient Live Talks to discuss her experience with her diagnosis of dementia, and later Mild Cognitive Impairment (MCI), and early-onset Alzheimer's. She'll also discuss how those diagnoses led her to work with the Alzheimer's Association and back into quilting. Harrison was diagnosed with MCI in 2018 and is now in the early stages of Alzheimer's disease. After a group study on MCI at the University of Kentucky Sanders-Brown Center on Aging, she began researching the condition's connection to Alzheimer's disease, which led her to the Alzheimer's Association. She became involved in volunteer work and with support groups as she navigated her diagnosis. Harrison was later named an Early-Stage Advisor for the Alzheimer's Association in the 2022-2023 cohort and continues volunteering as an advocate. Since retiring in 2021 from the University of Kentucky as a Surgery Coordinator, Harrison has been involved as an advocate for the Alzheimer's Association. Beyond her advocacy work, she has rediscovered quilting and works on projects with her stepdaughter and members of the community. She also gardens as much as she can and takes piano lessons.
Have you ever wondered how someone diagnosed with dementia can still live a fulfilling and joyful life? In this recent episode of Christian Dementia Caregiving, we heard a remarkable story from an individual living with early-onset Alzheimer's disease. William Yeates' (https://www.awakeningyourpositivity.com/) journey is not just about dealing with the diagnosis but about finding ways to live well and maintain a positive outlook. His story offers unique insights that go beyond the typical advice found on most websites. Bill was diagnosed with early-onset Alzheimer's at the age of 59. He described the initial impact as devastating, both for himself and his family. He experienced cognitive decline and faced the hard reality of no cure. However, Bill's story takes a different turn from the usual narrative of despair. Bill emphasizes the importance of finding a passion and engaging in activities that bring joy and laughter. He believes in adapting to one's abilities and focusing on what makes life enjoyable. This mindset shift helped him navigate the post-diagnosis period with a renewed sense of purpose. Living with dementia is undeniably challenging, but stories like Bill's show that it is possible to find hope and joy. By embracing a positive outlook and engaging in meaningful activities, both caregivers and individuals with dementia can navigate this journey with resilience and grace. Ever Wonder How To Know What Is Causing Your Caregiver Stress? Take Our FREE Caregiver Stress Assessment Today! https://www.thinkdifferentdementia.com/quiz Join the Christian Dementia Caregiving Facebook Group today for more support: https://www.facebook.com/groups/1301886810018410 Are You A Christian Dementia Caregiver Struggling To Cope With Caregiving? Join the FREE "Ask the Dementia Mentor" Monthly Meet Up! And be on the podcast, get support and your questions answered. https://dementiacaregivingmadeeasy.com/ask Register For Your Personalized Dementia Care Audit Get Individual Guidance & Support! Only One Available Per Month. Be a Co-Creator of the podcast and get a customized audit of your caregiving journey. https://www.thinkdifferentdementia.com/audit Enjoy our podcast? Please take a moment to leave us a review on Apple Podcasts and Spotify —it really supports our show! https://podcasts.apple.com/us/podcast/dementia-caregiving-for-families/id1716187550
Conscious Caregiving with L & L is "Tackling the Tough Conversations." The topic of this episode is "Dementia Influencers" and features an All-Star Panel. Norman McNamara, Living with Dementia, Founder of the Purple Angel Rev. Katie Norris, Montessori Based Dementia Care Practitioner, Owner of Recourse Coaching: She is a Trauma-Informed Montessori dementia care specialist for 14 years and is an AMI Montessori for Aging and Dementia Practitioner. She is the primary author of Creative Connections in Dementia Care and she teaches Montessori care to family members, care communities, and home health agencies. She is also a family dementia care partner as her father has Alzheimer's and her mother had Lewy Body Dementia. Vicki de Klerk-Rubin, Executive Director of the Validation Training Institute: Vicki de Klerk-Rubin is the Executive Director of the Validation Training Institute and a certified Validation Master Teacher. She is the author of Validation Techniques for Dementia Care and Validation for First Responders. Together with her mother Naomi Feil, the founder of the Validation method, she co-authored the revisions of Validation: The Feil Method and The Validation Breakthrough. Dr. Jennifer Bute, Living with Dementia, International Advocate: Dr Jennifer Bute, worked in Africa as a doctor before working as a GP for 25 years involved in medical education. And was an honorary lecturer at Southampton university, She had to take early retirement when diagnosed with dementia but continues to use her skills She speaks at conferences, on radio, and has been spoken on International radio and appeared on UK television programmes raising awareness and understanding of dementia. She passionately believes more can be done to improve both the present and the future for those living with dementia. Her book ‘Dementia from the Inside". Mary Underwood, Dementia Care Specialist. Founder of Empowermentia: Mary Underwood is a social worker who has been in the field of memory care for over 35 years. She has worked in a variety of settings including home care, adult day programs, assisted living and nursing homes. Over the years, she has developed innovative programs and training sessions. Cyndy Luzinski, Executive Director of Dementia Together - MS, RN, L® Practitioner: Cyndy Hunt Luzinski is an advanced practice nurse with a nursing background which ranges from critical care to community case management. In honor of her dad, she founded Dementia Together, a nonprofit organization in Northern Colorado which offers education, enrichment, and hope. Laurie Scherrer, International Advocate, DAA Executive Board Member and Programs Director: Laurie Scherrer was diagnosed with Early Onset Alzheimer's & FTD at the age of 55. Unable to continue a professional career she turned her focus towards helping others through their dementia journey. Laurie serves on the Dementia Action Alliance Board of Directors. She is an international speaker and has been featured in many articles and documentaries. Debbie DeMoss Compton, CEO & Founder, The Purple Vine LLC: Debbie Compton is a three-time caregiver for parents with different forms of Dementia. She is a Certified Caregiving Consultant and Advocate, Educator for the Alzheimer's Assoc., speaker, and author of 10 books. Debbie founded The Purple Vine, whose mission is to empower caregivers to reduce stress, block burnout, and laugh again. Debbie's latest work is a collaboration book titled The Caregiver's Advocate, A Complete Guide to Support and Resources, produced by Brave Healer Productions and available for purchase in early July 2024. Ellen Belk, BC-DEd, CDP, Silver Living Strategist. Founder of Keep In Mind, Inc. & Creator of The Keep In Mind Dementia Education Community: Ellen Belk is a board-certified Dementia educator, Holistic Dementia care solutions expert and founding owner of Keep In Mind, Inc. A sought after web-educator & Keynote speaker, Ellen has over 22 years of professional leadership in long term living operations combined with 24 years (and still counting) of primary family caregiving for both of her parents. Join Ellen on the 'Keep In Mind Dementia Education Community', where her mission is to Elevate the Global Dementia IQ - one Student at a Time! Isabelle Mumby, Commercial Manager, Mumby's Live-in Care: I sabelle Mumby is the daughter of Trevor Mumby MSc. MBASW. AGPA (USA) and Commercial Manager at Mumby's Live-in Care, a family-run specialist Live-in care provider in Oxfordshire, UK. Trevor is a co-director of Mumby's Live-in Care, a recognized psychoanalyst, counsellor, and dementia publications author. To learn more about this topic and the panel read the article that encompasses this episode here: https://alzheimersspeaks.com/?p=40650 Lance A. Slatton and Lori La Bey Co-Host and Produce Conscious Caregiving with L & L.
Lance Funk was just 51-years-old when he was diagnosed with Early-Onset Alzheimer's Disease. Over the past few years, his wife, Sharley, has watched as her once strong, vivacious husband has all but disappeared from before her eyes and yet, for now, he is still with her physically and she is determined to cherish the time they have left together. On this week's episode, Sharley explains why she has tried to be open and honest in documenting her family's experience with Alzheimer's. 2:03- Signs and the Release of a Diagnosis 8:05- Falling in Love with Lance 11:29- Open and Honest 14:13- Receiving Service 17:11- Disappearing 20:26- Still There 22:45- The Honor of Caregiving 26:00- Going to Work 29:30- Anxiety and the Darkest Parts of Alzheimers 32:19- Anticipatory Grief and Fatigue 37:28- Preparing to Let Go 42:24- What Does It Mean To Be All In the Gospel of Jesus Christ? "I'm going to take this time...and just enjoy this and just lay my head on his shoulder and just remember what it feels like to sit next to him and to hear him breathe." Links: Sharley's Instagram account: https://www.instagram.com/the_moment_of_funk/
More than 6.7 million Americans suffer from Alzheimer's disease. The condition most often strikes those ages 65 and up, but can affect younger people as well. Early-onset Alzheimer's disease can develop as early as age 40 to 50. In this episode of San Diego Health, host Susan Taylor and Scripps Clinic neurologist Leonard Sokol, MD, discuss early-onset Alzheimer's disease, how it's diagnosed, who's at risk, and treatment options. Dr. Sokol also explains how the symptoms of early-onset Alzheimer's may not always be what older people experience.
Ben Lissner, a member of the Alzheimer’s Association Illinois Chapter Research Committee, joins Lisa Dent to tell the story of his dad Stewart, who suffered from early-onset Alzheimer's disease. Ben shares some his fondest memories of his dad before he was diagnosed and the biggest challenges his family faced since Stewart was diagnosed. Follow The […]
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Former neuroscience nurse practitioner and Alzheimer's advocate Doreen Monks joins Being Patient Live Talks to discuss her experience with diagnosis and her path toward advocacy. As she shared in her previous live talk with us, Monk was diagnosed with early-onset Alzheimer's in 2016 at age 63, after which she became dedicated to sharing her story and working with organizations like Voices of Alzheimer's, US Against Alzheimer's, and the Alzheimer's Association. Leveraging her background in neuroscience, specifically focusing on stroke care, management, prevention, and treatment, she uses her voice to reduce stigma around Alzheimer's and promote education about the disease. Watch the full talk to learn more about her diagnosis and how she is using her medical background to educate others about Alzheimer's disease.
In this week's episode, actor Oscar Nuñez joins Brain & Life Podcast co-host Dr. Daniel Correa to discuss his family's experiences with dementia and Alzheimer's. He shares how he helps keep his loved ones safe then his wife, actress Ursula Whittaker, shares the resources and supports she has found throughout this journey. Dr. Correa is then joined by Dr. Joel Salinas, a neurologist, clinical assistant professor at NYU Grossman School of Medicine, and chief medical officer of Isaac Health in New York. Dr. Salinas shares information about all stages of memory loss and demonstrates ways to have conversations with your loved ones at all stages of their life to make plans that keep everyone safe and happy. Additional Resources How to Keep Loved Ones with Dementia Safe from Firearms How to Talk to Loved Ones Who Have Dementia Actor Hector Elizondo Encourages Caregivers to Ask For Help Learn more about Dr. Joel Salinas What Is Alzheimer's Disease? Other Brain & Life Podcast Episodes on These Topics Finding Hope and Creating Change: Discussing Alzheimer's Advocacy with Cynthia Stone and Walt Dawson Lauren Miller Rogen on Facing a Parent's Early-Onset Alzheimer's Diagnosis Journalist Greg O'Brien on Chronicling His Life with Alzheimer's We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Guests: Oscar Nuñez @oscarnunezla; Ursula Whittaker @ursulacwhittaker; Dr. Joel Salinas @JoelSalinasMD Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Send us a Text Message.This week's episode showcases the incredible journey of Betsy Wurzel, a lifelong caregiver who began caring for others at the tender age of 4. Betsy's unwavering dedication is evident as she recounts her experiences caring for her mother-in-law, father, and her husband Matthew, who was diagnosed with early-onset Alzheimer's at the age of 56.Throughout her caregiving journey, Betsy emerged as a fierce advocate, championing the cause of Alzheimer's awareness and support. She pioneered the "Kick Alzheimer's" movement, igniting a spark of hope and rallying others in the face of dementia. Balancing the demands of a career and being a full-time caregiver, Betsy found solace and strength with the invaluable support of her son Josh.In the face of countless challenges spanning many years, Betsy's resilience and unwavering compassion shine through. Her story serves as an inspiration, reminding us of the power of resilience and compassion during life's most trying moments.What you will learn from this episode:1. Education is important for caregivers to understand a loved one's diagnosis better and how to manage behaviors.2. The need to advocate for yourself and your loved ones, especially regarding care needs and services.3. That caregiving is a marathon, not a sprint, and taking care of your mental health along the way is important.4. Celebrate your loved one's life daily and on special occasions, even after passing. Don't forget to honor their memory.5. Early-onset Alzheimer's and other dementias are more common than people realize and can impact people of any age.About Betsy:Betsy Wurzel has been a caregiver her whole life. At age 4, she decided to become a nurse when her mother battled pneumonia. She worked as an LPN for many years while also holding retail and preschool education roles. In 1980, she married Matthew Sloan, and they had a son named Josh in 1984. Betsy became an advocate due to Josh's cognitive disability, and later extended her advocacy to her mother-in-law with Alzheimer's and her husband with memory issues. To raise awareness about Early Onset Alzheimer's and caregiving, Betsy recorded and shared her experiences in car videos. In June 2018, she was recognized by Jeanne White, Station Manager of PWTRN, who invited her to speak on her Connect Show. By September 2019, Betsy had her own show, "Chatting with Betsy," where she discusses various topics with guests. In February 2019, Betsy founded the "# Kick Alzheimer's Ass Movement Group" on Facebook, creating a supportive community for caregivers with help from her friend Lorri Lorraine Lepore. Her tireless efforts were acknowledged in November 2021 when she received the Caregiving Visionary Advocate Award from Caregiving.com.Support the Show.Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn!Tune in on Whole Care Network
This week's episode showcases the incredible journey of Betsy Wurzel, a lifelong caregiver who began caring for others at the tender age of 4. Betsy's unwavering dedication is evident as she recounts her experiences caring for her mother-in-law, father, and her husband Matthew, who was diagnosed with early-onset Alzheimer's at the age of 56. Throughout her caregiving journey, Betsy emerged as a fierce advocate, championing the cause of Alzheimer's awareness and support. She pioneered the "Kick Alzheimer's" movement, igniting a spark of hope and rallying others in the face of dementia. Balancing the demands of a career and being a full-time caregiver, Betsy found solace and strength with the invaluable support of her son Josh. In the face of countless challenges spanning many years, Betsy's resilience and unwavering compassion shine through. Her story serves as an inspiration, reminding us of the power of resilience and compassion during life's most trying moments. What you will learn from this episode: 1. Education is important for caregivers to understand a loved one's diagnosis better and how to manage behaviors. 2. The need to advocate for yourself and your loved ones, especially regarding care needs and services. 3. That caregiving is a marathon, not a sprint, and taking care of your mental health along the way is important. 4. Celebrate your loved one's life daily and on special occasions, even after passing. Don't forget to honor their memory. 5. Early-onset Alzheimer's and other dementias are more common than people realize and can impact people of any age. About Betsy: Betsy Wurzel has been a caregiver her whole life. At age 4, she decided to become a nurse when her mother battled pneumonia. She worked as an LPN for many years while also holding retail and preschool education roles. In 1980, she married Matthew Sloan, and they had a son named Josh in 1984. Betsy became an advocate due to Josh's cognitive disability, and later extended her advocacy to her mother-in-law with Alzheimer's and her husband with memory issues. To raise awareness about Early Onset Alzheimer's and caregiving, Betsy recorded and shared her experiences in car videos. In June 2018, she was recognized by Jeanne White, Station Manager of PWTRN, who invited her to speak on her Connect Show. By September 2019, Betsy had her own show, "Chatting with Betsy," where she discusses various topics with guests. In February 2019, Betsy founded the "# Kick Alzheimer's Ass Movement Group" on Facebook, creating a supportive community for caregivers with help from her friend Lorri Lorraine Lepore. Her tireless efforts were acknowledged in November 2021 when she received the Caregiving Visionary Advocate Award from Caregiving.com. Support the show Confessions of a Reluctant Caregiver Sisterhood of Care, LLC Website: www.confessionsofareluctantcaregiver.com Like us on Facebook! Tweet with us on Twitter! Follow us on Instagram! Watch us on Youtube! Pin us on Pinterest! Link us on LinkedIn! Tune in on Whole Care Network
Are You Ready to Embark on a Courageous Caregiving Journey? Betsy Wurzel, is a lifelong caregiver and passionate advocate for cognitive impairment and caregiving. Betsy's journey started at age 4 when her mother's illness ignited her calling to be a caregiver. She later became an LPN, exploring various roles before marrying Matthew Sloan in 1980. But it was Matt's memory issues and later diagnosis of Early Onset Alzheimer's that set Betsy on an advocacy mission. She fought relentlessly for Matt's proper diagnosis and end-of-life care, defying initial disbelief due to his age. In 2018, Betsy's advocacy reached a wider audience when her videos caught the attention of Jeanne White, leading to her own show, "Chatting with Betsy." In 2019, she founded the #KickAlzheimersAss Movement Group on Facebook, ensuring no one faces caregiving alone. In 2021, Betsy received the Caregiving Visionary Advocate Award, a testament to her unwavering commitment. Her journey continues as she remains a caregiver, driven by the promise she made to Matt. Discover Betsy's incredible story, her advocacy for cognitive impairment, and her unwavering dedication to caregivers in this impactful episode. 0:03:04 Frustration with Doctors' Denial of Memory Problems 0:07:56 Stunned by Incompetence of Hospice Care System 0:09:57 Struggles with the Healthcare System 0:13:35 Dementia and Pain: Misconceptions and Personal Experience 0:17:49 The Emotional Journey of Loss and Separation 0:19:48 Lack of Compassion and Support in the Healthcare System 0:22:13 The Need for Early Intervention in Caregiving Journey 0:26:22 Celebrating Life and Joy Amidst Caregiving Challenges 0:30:35 Shifting mindset and overcoming negativity in caregiving journey 0:33:54 Grieving with hope and valuable life lessons from caregiving 0:36:19 Betsy's Show - Bringing Visibility to Dementia Caregivers 0:39:18 Challenging the Defeatist Attitude in Healthcare SOCIAL LINKS: Facebook page: Betsy E.Wurzel Personal https://www.facebook.com/profile.php?id=100005271496390&mibextid=2JQ9oc #Kick Alzheimer's Ass Movement Group Page https://m.facebook.com/groups/545809349256035/?ref=share&mibextid=I6gGtw LinkedIn page https://www.linkedin.com/in/betsy-wurzel-90a7b61a8 Chatting with Betsy on Spreaker https://www.spreaker.com/show/chatting-with-betsy Enjoy our podcast? Please take a moment to leave us a review on Apple Podcasts and Spotify —it really supports our show! https://podcasts.apple.com/us/podcast/dementia-caregiving-for-families/id1716187550 If you would like more information on how to help a parent living with dementia. Join our next free workshop. https://www.dementiacaregivingmadeeasy.com/wsl Join our Facebook Group at: https://www.facebook.com/groups/1301886810018410 Become a Founding Member of Our Exclusive Academy! Only 54 Founding Family Slots Available for Extraordinary Caregivers. https://www.dementiacaregivingmadeeasy.com/start
In this episode, Brain & Life Podcast hosts Dr. Daniel Correa and Dr. Katy Peters highlight some of their favorite articles from the most recent edition of Brain & Life Magazine! They discuss updates on new Alzheimer's drugs and what they mean for patients, the links between oral hygiene and brain health, and how cosmetics brands are creating more accessible makeup for all people. If you would like to read these articles and more, be sure to subscribe to Brain & Life Magazine for free! Articles Discussed An Update on New Alzheimer's Drugs 11 Dental Care Tips to Boost Brain Health How Cosmetics Brands are Creating More Accessible Makeup Other Brain & Life Podcast Episodes on These Topics Finding Hope and Creating Change: Discussing Alzheimer's Advocacy with Cynthia Stone and Walt Dawson Ashley Brooks on Advocating for Herself and Others with Myasthenia Gravis Lauren Miller Rogen on Facing a Parent's Early-Onset Alzheimer's Diagnosis We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? · Record a voicemail at 612-928-6206 · Email us at BLpodcast@brainandlife.org Social Media: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode, Dr. Daniel Correa sits down with documentarian Cynthia Stone, and Walt Dawson, lifelong Alzheimer's advocate and policy expert. Cynthia discusses the creation of Keys Bags Names Words, a documentary film about hope in aging and dementia. Walt shares how his father's Alzheimer's diagnosis when he was just ten years old led him to speak out and work towards policy change for Alzheimer's Disease. Next, Dr. Correa speaks with Dr. Bruce Miller, a behavioral neurologist with the Global Brain Health Institute who studies the underlying mechanisms of neurocognitive disorders and is a world-renowned expert in the diagnosis and management of dementia. Dr. Miller discusses Global Health Brain Institute's Atlantic Fellows program and the science behind Alzheimer's prevention. Additional Resources Keys Bags Names Words What is Alzheimer's Disease? Tips for Building a More Alzheimer's-Resistant Brain Global Brain Health Institute CurePSP The Association for Frontotemporal Degeneration Atlantic Fellows Program Other Brain & Life Podcast Episodes on Dementia Lauren Miller Rogen on Facing a Parent's Early-Onset Alzheimer's Diagnosis Journalist Greg O'Brien on Chronicling His Life with Alzheimer's Maria Shriver and Patrick Schwarzenegger's Mission to Spread Brain Health Awareness ‘Humor and Heartache' of Caregiving with Filmmaker Michelle Boyaner Journalist, Producer Kitty Eisele's Honest Recount of Her Time as Caregiver Christina Zorich on the Joys and Struggles of Caregiving We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org Social Media: Guests: Cynthia Stone @GBHI_Fellows; Walt Dawson @healthpolicywd; Dr. Bruce Miller @UCSFmac, @AtlanticFellows Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
Darlene Greene wants to help you take charge of your own health, get out of pain, improve your energy, increase the quality of your sleep, reduce systemic inflammation, increase mental clarity, improve your nervous system, lower your anxiety, enhance brain functioning, improve cardiovascular functioning, and elevate your GHK-Cu for a host of additional benefits to include increasing your own stem cells, producing growth factors, protect lungs, reset genes to their younger healthier state, repair damaged DNA, inhibit cancer, increase hair growth, improve skin, increase healing, accelerate wound healing, reduce Fibrinogen (top predictor of cardiovascular disease) and more... Having exhausted IV stem cells, hyperbaric chamber, ozone therapies and more to help her husband with his Early Alzheimer's, she FINALLY discovered an affordable technology that dramatically improved his symptoms within the first week, without drugs, without a prescription, and without any contra-indications to other treatments or therapeutic modalities. After experiencing the amazing results for herself, and watching family and friends have their own miracles, Darlene is passionate about sharing this technology with the world. A driving force for her remains, “Why didn't I know about this two years ago… where would my husband be if we had started using this technology two years ago…and who out there needs to know about this right now?” When an anesthesiologist says, “This is the most significant medical breakthrough in my lifetime…” and when over 300 Olympic Athletes use the technology in the 2008 Olympics, aren't you curious as to what it could do for you in addition to making you look and feel younger? Darlene Greene has over 26 years of experience in executive leadership and senior management positions across diverse industries, including positions such as: Vice President of Strategic Technology Partner at McAfee (Intel), Dean of Culver Girls Academy, Director of Client Services for HyeTech Networks and Security, and Senior Director LifeWave Foundational Cell Activation Technology. During her 20 years of military experience, she earned her MBA and held three Commanding Officer positions, including serving as base commander and overseeing over 1200 personnel in multiple departments. Darlene created the Returning Warrior Weekend Workshop in 2006 to help military members and their spouses reintegrate successfully – a program still supporting military across the country today. Darlene's passion today is helping people elevate their GHK-CU peptide to activate their stem cells, repair their DNA, reverse age, and get out of pain through the latest photo biomodulation technology. Website: Darlene Greene wants to help you take charge of your own health, get out of pain, improve your energy, increase the quality of your sleep, reduce systemic inflammation, increase mental clarity, improve your nervous system, lower your anxiety, enhance brain functioning, improve cardiovascular functioning, and elevate your GHK-Cu for a host of additional benefits to include increasing your own stem cells, producing growth factors, protect lungs, reset genes to their younger healthier state, repair damaged DNA, inhibit cancer, increase hair growth, improve skin, increase healing, accelerate wound healing, reduce Fibrinogen (top predictor of cardiovascular disease) and more... Having exhausted IV stem cells, hyperbaric chamber, ozone therapies and more to help her husband with his Early Alzheimer's, she FINALLY discovered an affordable technology that dramatically improved his symptoms within the first week, without drugs, without a prescription, and without any contra-indications to other treatments or therapeutic modalities. After experiencing the amazing results for herself, and watching family and friends have their own miracles, Darlene is passionate about sharing this technology with the world. A driving force for her remains. Website: https://iamreverseaging.com --- Send in a voice message: https://podcasters.spotify.com/pod/show/new-mind-creator/message Support this podcast: https://podcasters.spotify.com/pod/show/new-mind-creator/support
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Writer, advocate, and international speaker Laurie Scherrer joins Being Patient Live Talks to discuss her experience living with early onset Alzheimer's and FTD. After being diagnosed with early-onset Alzheimer's and frontotemporal dementia at age 55, Scherrer started the blog Dementia Daze to share her journey and help others through their dementia journey. Writing about her feelings, challenges, symptoms, and experiences on her blog, she encourages people living with dementia and care partners to explore ways to live beyond dementia. Scherrer is a Dementia Action Alliance Board of Directors member and has been featured in the New York Times, AARP, PBC, and the South Africa Sunday Times. Watch the full video to learn more about her experience with early-onset Alzheimer's and FTD and her work fighting dementia stigma. Read the transcript here: https://www.beingpatient.com/laurie-s... YOUR TRUSTED SOURCE FOR BRAIN HEALTH NEWS AND SCIENCE. Being Patient is an editorially independent media platform publishing journalism about brain health, cognitive science, and neurodegenerative diseases like Alzheimer's. If you learned something from this talk, find more helpful science reporting, mythbusting, and patient and caregiver stories at beingpatient.com. Follow Being Patient on social: Twitter: / being_patient_ Instagram: / beingpatientvoices Facebook: / beingpatientalzheimers LinkedIn: / being-patient Check out our latest Live Talks with medical experts, scientists, researchers, patients and caregivers here: https://www.beingpatient.com/category...#Alzheimers #Dementia #FTD #EarlyOnsetAlzheimers #PatientPerspective
Conscious Caregiving with L & L is "Tackling the Tough Conversations." The topic of this episode is on Seniors & Travelling and features an All-Star Panel. Jan Dougherty is a nursing expert and leader in dementia care crafting award winning programs to support people living with dementia and their family caregivers. She is founder and president of TravALZ, LLC a company focused on dementia capable travel. Her book entitled, “Travel Well with Dementia: Essential Tips to Enjoy the Journey,” offers the first comprehensive look at supporting travel for people with dementia and their families. Jan is active in creating Dementia Friendly Airports while also certifying professional travel companions to support disabled and older adults to travel with success. Dave Johnston is a retired pastor who has lived with, worked with, traveled with. and loved seniors up to 100+ years old his entire life. Laurie Scherrer was diagnosed with Early Onset Alzheimer's & FTD at the age of 55. Unable to continue a professional career she turned her focus towards helping others through their dementia journey. Laurie serves on the Dementia Action Alliance Board of Directors. She is an international speaker and has been featured in many articles and documentaries. On her website, dementiadaze.com Laurie shares her feelings, challenges, symptoms and adjustments in hopes of encouraging other Persons with Dementia and care partners to explore ways to live beyond dementia. Together with her husband Roy, they work hard trying to identify the obstacles that trigger Laurie's challenges and symptoms and then figure out what adjustments they can make to overcome the barriers. “We don't automatically accept that I CAN'T do things anymore, instead we try to figure out HOW I CAN.” Lynn Smith has been involved with the Sunflower program for the last three years, creating awareness, managing products and distribution, and helping companies implement throughout their organizations. Lynn is also the CMO for The Sourcing Group, the previous North American partner for the Hidden Disabilities program. She is dedicated to making the Sunflower a national symbol for non-visible disabilities throughout the US. Conscious Caregiving with L & L is proudly hosted by Lori La Bey and Lance A. Slatton. Visit the Official Website for Conscious Caregiving with L & L: https://lnkd.in/gu8sSTvG Lori La Bey is the host of Alzheimer's Speaks Radio and the Co-Founder of Dementia Map Resource Directory. Lance A. Slatton is the host of All Home Care Matters and is a Senior Case Manager for Enriched Life Home Care Services.
This episode is in memory of Allan Hanssen. Julia's father, Allan, passed away from Early Onset Alzheimer's on 9.4.23 at the age of 61. This episode is filled with beautiful memories of him, and how horses changed his life. If you want to donate, please do so via, Keep Memory Alive exclusively support Cleveland Clinic Lou Ruvo Center for Brain Health.
A Nomad Caregiving Life of Traveling and Running with Anthony Copeland-Parker Anthony Copeland-Parker cares for his partner Catherine, who was diagnosed with Early Onset Alzheimer's ten years ago. Before becoming a family caregiver for Cat, Anthony who goes by Tony was a professional pilot for thirty-seven years, much of his career with United Parcel Service. When he retired, he started writing his blog called Running With Cat. Up until recently, they lived as nomads and completed marathons and half marathons while exploring 82 countries across all 7 continents! In this episode, Tony shares the ups and downs of the nomad caregiving life, where they have found support while traveling, why Tony pushed the envelope and insisted that he and Cat live together in independent senior living, and what special requests he makes of the home care professionals so Cat continues to live a life filled with her personal joys. Show notes with product and resource links: https://bit.ly/HHCPod164 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
A Nomad Caregiving Life of Traveling and Running with Anthony Copeland-Parker Anthony Copeland-Parker cares for his partner Catherine, who was diagnosed with Early Onset Alzheimer's ten years ago. Before becoming a family caregiver for Cat, Anthony who goes by Tony was a professional pilot for thirty-seven years, much of his career with United Parcel Service. When he retired, he started writing his blog called Running With Cat. Up until recently, they lived as nomads and completed marathons and half marathons while exploring 82 countries across all 7 continents! In this episode, Tony shares the ups and downs of the nomad caregiving life, where they have found support while traveling, why Tony pushed the envelope and insisted that he and Cat live together in independent senior living, and what special requests he makes of the home care professionals so Cat continues to live a life filled with her personal joys. Show notes with product and resource links: https://bit.ly/HHCPod164 Receive the podcast in your email here: http://bit.ly/2G4qvBv Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. Rate and Review the podcast: https://bit.ly/HHCPODREVIEW
We're revisiting some of our past episodes, for a very good reason!If you listened to Episode 23: A Family's Journey with Early-Onset Alzheimer's Disease, you heard Michelle pour her heart out to us as she took us through her father's experience and how it impacted her family. Happier days are here for Michelle and she's getting married! Edith is out of town for the wedding, so we bring you some summer reruns. Episode 4: Health insurance for older adults, legal advice for everyoneKathleen Flammia, Flammia Law FirmEpisode 19: Estate Planning, Life Insurance and MoreTony Perrone, president and founder of Estate & Business Planning GroupTony Perrone offers products and services using the following business names: Estate & Business Planning Group – insurance and financial services | Ameritas Investment Company, LLC (AIC), Member FINRA/SIPC – securities and investments | Ameritas Advisory Services (AAS) – investment advisory services. AIC and AAS are not affiliated with Estate & Business Planning Group, Robin Rountree, & Informed Aging.Episode 26: Sex and SeniorsTori Ricci, Peachi TherapyEpisode 8: HospiceSarah Garcia, AdventHealth HospiceEpisode 18: Aging and Quality of LifeApril Boykin, MSW, LCSW, Counseling Resource Services
Today we celebrate Caregivers as the Heroes they truly are with Betsy Wurzel. She's going to share her journey from Nurse, to Caregiver to talk show host. Alzheimer's did not defeat her and her passion and drive are infectious. Get ready for an inspiring show! Guest Bio: Betsy Wurzel was a caregiver for her mother in-law who had Alzheimer's and her husband Matt who had Early Onset Alzheimer's. She is still a caregiver for her son, Josh who has a cognitive disability. Betsy became an advocate and a talk show host because of Matt 's journey. She was determined not to let Alzheimer's defeat her! Guest Contact Info: linkedIn: https://www.linkedin.com/in/betsy-wurzel-90a7b61a8/ Facebook page: https://www.facebook.com/profile.php?id=100005271496390&mibextid=ZbWKwL Facebook Support group. #Kick Alzheimer's Ass Movement https://www.facebook.com/groups/545809349256035/ Host Page on Passionate World Talk Radio: https://passionateworldtalkradio.com/betsy-wurzel/ Spotify: https://open.spotify.com/show/3aakGqGvVDTvbdiMOkPXza Thanks for listening to the show! It means so much to us that you listened to our podcast! If you would like to continue the conversation, please email me at allen@drallenlycka.com or visit our Facebook page at http://www.facebook.com/drallenlycka. We would love to have you join us there, and welcome your messages. We check our Messenger often. If you loved the podcast, be sure to subscribe on your favorite platform, share it with friends and leave a review! Dr. wants you to live your best life. Visit coachingwithdrlycka.com and book your Discovery call today. His bestselling book, "The Secrets to Living a Fantastic Life" can be found on Amazon.com. Get your copy today! We are building a community of like-minded people in the personal development/self-help/professional development industries, and are always looking for wonderful guests for our show. If you have any recommendations, please email us! Dr. Allen Lycka's Social Media Links Facebook: http://www.facebook.com/drallenlycka Instagram: https://www.instagram.com/dr_allen_lycka/ Twitter: https://www.twitter.com/drallenlycka LinkedIn: https://www.linkedin.com/in/allenlycka YouTube: https://www.YouTube.com/c/drallenlycka Subscribe to the podcast We would be honored to have you subscribe to the How to Live a fantastic Life show – you can subscribe to the podcast app on your mobile device. Leave a review We appreciate your feedback, as every little bit helps us produce even better shows. We want to bring value to your day, and have you join us time and again. Ratings and reviews from our listeners not only help us improve, but also help others find us in their podcast app. If you have a minute, an honest review on iTunes or your favorite app goes a long way! Thank you!
Our Host, Lori La Bey talks with Heather Kirk Morrison a former High School teacher and now the mother of an 11-year-old boy (Jayce) and 8-year-old triplets (Jaylen, Myles, and Mya) and current care partner to her husband Kevin who was diagnosed with Early Onset Alzheimer's at age 47. After stops in Berkeley, Seattle, and Atlanta for her husband's former college coaching career. they currently live in San Diego, California, where Heather was born and raised. Since Kevin's diagnosis, they have all been trying to embrace the dementia journey as a family and enjoy the moments together. Contact Heather Morrison Email Instagram @heather_kirk_morrison21 Instagram @team_morrison2 Twitter @team_morrison2 Contact Lori La Bey Find FREE Educational Resources and a variety of services at www.AlzheimersSpeaks.com Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.Support this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.
Sandra Demontigny is 43 years old and has early onset Alzheimer's. She watched her father and grandmother suffer with the same disease, and wants to one day access medical assistance in dying. To do that, she has been pushing the Quebec government to allow advanced consent for people with forms of neurocognitive impairment. Matt Galloway talks to Demontigny about her fight for a good death; and also speaks with Dr. Judes Poirier, deputy director of the Centre for the Studies on the Prevention of Alzheimer's at the Douglas Mental Health University Institute in Montreal.
Jessica and her Mother, CG. When we think of someone caring for a loved one, our first impression isn't of a person in their mid-twenties. Generally, we think of an older adult spouse or middle-aged child caring for a parent. However, a rapidly growing population of caregivers are millennials. While millennial caregivers face all the same ups and downs as their older peers, they're also at a point in their lives that can compound the challenges of caregiving. They're often in less financially stable situations, trying to launch their careers or even start college. "This is a destabilizing disease for all communities, but has acute challenges for millennials and particularly millennials of color," said Jason Resendez, the executive director of the Latino coalition of the nonprofit UsAgainstAlzheimer's. I talk to Jessica Guthrie, a full-time millennial caregiver, advocate, educator, and nonprofit senior executive, in today's episode. Jessica is her mother's full-time caregiver, who was diagnosed with Early Onset Alzheimer's Disease eight years ago. For the first half of her journey, Jessica was caregiving from a distance while she worked in Texas and her mother lived in Virginia. After years of consistent travel, she recently moved back home to live with her mother to ensure she received the most attentive care. Jessica deeply cares about amplifying the voices and experiences of millennial caregivers as they navigate the complexities and rigors of the healthcare system, continue to thrive in their career growth, and intentionally balance their self-care and well-being. You can find her teaching dance fitness classes at her local YMCA when she's not working or caregiving. Jessica is also the Vice President and Chief Program Officer at Teach For America Dallas-Fort Worth. She works alongside a talented team to recruit, train and support our nation's most promising leaders to influence systems-level change in their classrooms and beyond. She has been instrumental in developing the leadership and teaching capacities of over 1,200 education leaders, reaching 60,000 students daily. Jessica profoundly believes that all children deserve unparalleled access to quality education to self-determine their futures in the face of our country's history and ongoing systemic inequity. Jessica is now working on blending her passion for equity, education, caregiving, and dementia care to support families and companies better helping our aging loved ones. Jessica started an Instagram account called, CareerCargivingCollide, where she shares her journey and advice daily. There are three things necessary for a podcast to be successful. One, great listeners like yourself. Two are sponsors who help cover the expenses of producing the podcast. Three great listeners who help support the podcast by taking advantage of the sponsors' special offers. With that said, here are our sponsors; Pharma-C Company (previously Pharma-C Wipes) Life is a journey, and at Pharma-C-Wipes, we provide products that support you at each twist and turn,when you need it. Have you ever had a loved one fall for a spam caller? How about a well-meaning donation request? You can put a stop to those now. Relevate from NeuroReserve Make Your Brain Span Match Your LifeSpan With Relevate nutritional supplement, you get science-backed nutrition to help protect your brain power today and for years to come. You deserve a brain span that lasts as long as your lifespan. Join Fading Memories On Social Media! If you've enjoyed this episode, please share this podcast with other caregivers! You'll find us on social media at the following links. Instagram Twitter LinkedIn Facebook Contact Jen at hello@fadingmemoriespodcast.com
Betsy Wurzel is a mom of an adult son with a cognitive disability, a retired LPN and Preschool Teacher 's Aide, Host of Chatting with Betsy on Passionate World Talk Radio, and the Creator and Founder of #Kick Alzheimer's Ass Movement Group on Facebook. Betsy took care of her mother in law for 5 years who had Alzheimer's, having never heard of Alzheimer's before, and educated herself about Alzheimer's with the information available at the time. Her husband Matt was diagnosed in 2010 with Early Onset Alzheimer's at age 56 and, after a 10 hear battle, died Jan 01, 2020 at age 66. Matt's journey changed her life for the better! Betsy found her gifts, her power and her voice, which she uses to help others! Betsy's mission and vision is to let people know they are not alone and to provide resources to help them! Join us in The Business Spotlight anytime in podcast. Connect with Betsy on Facebook, Facebook Groups, LinkedIn, Host Page and Apple Podcasts. Please support UnsilencedVoices.org. Enjoy Healing Through the Arts with Arete Gallery. We shine a light on No Such Thing as a Bully and thank Smith Sisters and the Sunday Drivers for our theme song, "She is You". Connect with Word of Mom on Facebook, Instagram and Twitter. WordofMomRadio.com - sharing the wisdom of women, in business and in life.
Ask Win: http://ask-win.weebly.com. Ask Win sponsor: https://melodyclouds.com. Please donate to Ask Win by going to Payment Venmo Win1195 at https://venmo.com/. Win Kelly Charles' Books: https://www.amazon.com/Win-Kelly-Charles/e/B009VNJEKE/ref=dp_byline_cont_book_1. Win Kelly Charles' MONAT: https://wincharles.mymonat.com. On Ask Win today (Thursday, January 19, 2023), Best-Selling Author, Win C welcomes Betsy Wurzel. Betsy is a retired LPN and Teacher's Aide. Betsy is a mom of an adult son with a cognitive disability. Betsy didn't know she was an advocate for her son but she had to stand my ground for Josh to get what he needed. Betsy never heard about Alzheimer's until het mom in law was diagnosed in 2000. There wasn't much information at that time. Betsy took care of her mom in law for 5 years before she was placed. That was 5 difficult years. Betsy's dad also had Alzheimer's. In 2010, Betsy's husband Matt was diagnosed with Early Onset Alzheimer's. Matt's journey changed her life! Betsy became an advocate found her voice, gifts and my power! Betsy went in her car to do videos to raise awareness on Early Onset Alzheimer's. BetsyI talked about caregiving. Betsy showed Matt's journey. It was a battle from getting a diagnosis to receiving proper end of life care. In June 2018, Jeanne White, Station Manager of Passionate World Talk Radio saw one of Betsy's videos and asked Betsy for an interview! Jeanne asked Betsy to speak on her show. After 13 months, Betsy was given her own show. Betsy interview anyone about any topic! In February 2019, Betsy created and Founded #Kick Alzheimer's Ass Movement Group on Facebook. No one should ever walk this journey alone during caregiving or after caregiving! In November 2021, BetsyI was nominated and received the Caregiving Visionary Advocate Award from Caregiving.com. Betsy promised Matt that she would continue on with her work. Betsy's mission and vision is to help others by providing resources and to let people know they are not alone! To learn more about Betsy visit https://passionateworldtalkradio.com/chatting-with-betsy/.
An incredible romance between a couple when one of them is diagnosed with Early Onset Alzheimer's, and they decide to make the most of the time they have before the disease can progress too far, by running marathons all over the world. To learn more about Tony and Cat's story, you can read Tony's book, "Running All Over The World", on Amazon: https://www.amazon.com/Running-All-Over-World-Early-Onset/dp/1636921930/ref=mp_s_a_1_2?crid=R1X1URBPG6M1&keywords=running+all+over+the+world&qid=1672262466&sprefix=%2Caps%2C82&sr=8-2 Hope Lives Here is a production of Voyage Media. The series is produced by Nat Mundel, Robert Mitas and Dan Benamor. This episode, Running All Over The World, was written, produced and directed by Bonnie Solomon, based on Tony's novel, Running All Over The World. Starring Peter Lawson Jones and Tammy Kaitz as Tony and Cat. Edited, sound designed and mixed by Thomas Culeton. Original music by Derlis Gonzalez. If you're enjoying the show, please leave us a five star review on Apple Podcasts or anywhere you're listening, and subscribe now for future episodes. Learn more about your ad choices. Visit megaphone.fm/adchoices
What are some tips for the holidays when my loved one has dementia?Be adaptable, flexible and communicateThe holidays are a time for togetherness and making memories, but the reality is it can also bring stress and disappointment. Holiday traditions may need to evolve over time as family dynamics and situations change, including when a loved one has Alzheimer's or dementia.Megan Rowe is the Senior Program Manager with the Alzheimer's Association: Dallas and Northeast Texas chapter - and she has helpful tips if you're a caregiver or celebrating with someone who needs a little extra help.Megan recommends planning and making adjustments alongside your loved ones. Come together to discuss where your focus should be and what will bring the most joy to your family member with dementia or Alzheimer's. Then you can work together to make it a reality.Set expectationsFirst, it's important to have a meeting with your loved ones to make sure they understand the situation. The Alzheimer's Association website offers a letter template if you need help explaining the reality of your loved one's state to them. It may have been months or years since your family has seen your loved one, and maybe they're unprepared for how your loved one has regressed. Be sure to set boundaries and expectations around what you can and cannot do, giving yourself permission to only do what you can manage.Don't be afraid of changeWhile some traditions may not make sense considering your loved one's situation, try finding a suitable alternative. For example, hosting a holiday with 20 people can be overwhelming with someone who has dementia. Consider having a more intimate holiday – or, set aside a designated quiet space for your loved one to take breaks from the action. If you're accustomed to making a holiday feast by yourself, you might order food ahead of time or host a potluck-style meal so others can chip in.Also consider the environment. Those with dementia have sensory differences, so beware of fake food and too many blinking lights. Make the other guests aware of anything that could be dangerous to your loved one as well.Ask for helpYou don't need to manage everything on your own. It's better for you (and your loved one with dementia / Alzheimer's) to have a community on your side. It takes a village, and the more helping hands, the better. With their help, you can allow yourself to indulge in self-care and anything that manages your stress.Topics discussed:Alzheimer's and dementiaThe Alzheimer's AssociationHoliday planning with dementiaTips for caregivers around the holidaysTips for Alzheimer's during holidaysHow to help caregiversTakeaways from this episode:-Always include your loved ones in discussing options as you figure out what your holiday should look like.- Caregivers tend to mask their loved one's state, so others won't worry, but you should familiarize them with the situation, so everyone is on the same page.-Find safe, enjoyable, and purposeful ways for your loved one to help with the holidays. Maybe it's as simple as polishing silver or setting the table.-Those with dementia or Alzheimer's tend to be more active in the morning. Meeting in the late afternoon or at dinnertime is less ideal and more tiring.-Think of appropriate gifts for your loved one. Avoid buying them pets (this could be an additional stressor for caregivers). Caregivers can benefit from less traditional gifts such as meal delivery or handyman service.Resources mentioned in this episode:Navigating the Holiday Season While Living with Early-Onset Alzheimer's
During this Thanksgiving week as we reflect on gratitude and family, we revisit one of our listener favorites from earlier this year. Drs. Daniel Correa and Audrey Nath reflect again on their conversation with actress, producer, and Alzheimer's advocate Lauren Miller Rogen. In this interview, Lauren shares her mother's journey with the condition and how her caretaker experience inspired her to found HFC, a foundation with the mission to provide care and resources for families affected by Alzheimer's. Then, Dr. Nath speaks with Dr. Irina Skylar-Scott, a behavioral neurologist at Stanford University. Dr. Skylar-Scott provides listeners with additional information on the condition and tips on maintaining a healthy brain. Additional Resources: https://www.brainandlife.org/disorders-a-z/alzheimers-disease/ https://wearehfc.org/ https://www.brainandlife.org/articles/seth-rogen-lauren-miller-rogen-alzheimers https://www.youtube.com/watch?v=FOycpxNyIUg Social Media: Guest: Lauren Miller Rogen @iamlaurenmiller (Twitter), @laurenmillerrogen (Instagram) Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Audrey Nath @AudreyNathMDPhD
Hello, beautiful! This week I am so excited to welcome our phenomenal guest, Torri L Fisher. Torri is the author of Forget Me Not, A Caregiver's Guide to Early-Onset Alzheimer's Disease. In this episode, we break down why it is essential to take care of yourself while stepping into a caretaker role. We discuss Torri's journey from IT to Alzheimer's and dementia, and we also touch on some incredible resources for those who are stepping into a caretaking position or know of those who are. Reach out to Torri by following the links below, and don't forget to order her book on Amazon and take advantage of this major resource!See you on the inside…What You Learn:Torri's story and how she started in IT and ended up studying Alzheimer's and dementiaSome important life tips and incredible resources for those in caretaking positionsThat if you're caring for other people around you, it is also incredibly important to take care of yourself!Torri's advice for you listening today and how you can reach out and connect with her!Featured on the Show:Learn more about Torri and her book Forget Me Not on her website!Order Forget Me Not NOW on Amazon and take advantage of Torri's Black Friday Deal Nov 23-25!Check out HFC – Hilarity for Charity and all of the resources they provideClick here to learn more about AgingCare.comFollow Torri on Instagram, Twitter, and LinkedInLearn more about how you can work directly with AnitaLove the show? Leave a review of the show on Apple Podcasts (click the link to find out how).Follow me on Instagram!Find me on Facebook!
There's really no way to avoid the obvious: Early-onset Alzheimer's disease is a scary condition. The causes are somewhat mysterious, results of treatments are mixed, and there is no cure. A diagnosis will impact everybody who it touches - logistically, financially, psychologically, and emotionally. Today, you're going to meet a man living alone with early onset, and a husband and wife team who are doing everything they can to make sure the husband is cared for. And you'll get some helpful things to keep in mind from a dementia-care education specialist. 1-800-272-3900 is The Alzheimer's Association's helpline. It is open 24/7. GUESTS: Teepa Snow: A dementia-care education specialist with a background in occupational therapy and close to 40 years of clinical practice, using a "positive approach to care" Brian Van Buren: Started experiencing memory issues when he was 50, but wasn't formally diagnosed with early-onset Alzheimer's until age 64. He was a 2017 member of the National Alzheimer's Association early onset advisory group, and is a member of the Dementia Action Alliance Advisory Board to bring awareness to people of color and the LGBTQIA+ community Marva and Tyrone Patterson: Pastors at Rescue Temple in East Hartford. Tyrone began experiencing symptoms of early-onset Alzheimer's in January of 2021 Support the show: https://www.wnpr.org/donateSee omnystudio.com/listener for privacy information.
Hosts, Susie and Don are joined by Professor/Author/Caregiver, Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies - including literature - that she used to stay connected and to manage her sadness.The narratives of the authors alternate in the book. Cindy tells the story of her father's illness, and how 30 years ago scant information was available to families about this vicious disease. She also tells the story of his life, and along the way, weaves in observations about literature and the insights she has gained from her favorite books. Bruce takes over certain sections of the text offering in-depth explanations of the science behind neurological topics including the brain, Alzheimer's and language.Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women's Fiction, and African-American literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In 2018-19, she was an Atlantic Fellow in the Global Brain Health Institute based at UCSF and Trinity College Dublin, where she studied neurology with an interdisciplinary group of scientists, artists, social scientists, and physicians. During this time, she worked with Dr. Bruce Miller on Finding the Right Words. WEBSITETWITTERLINKEDINAMAZONCALTECHSupport the showFollow us on Twitter, FB, IG, & TiK Tok
When you fall into caregiving at a young age, you may be navigating what career path you want to take, have finally landed your dream job after years of hard-work and sacrifice, or perhaps are rocking it out & climbing the ranks in your organization. You've got the time, energy and drive to move this area of your life ahead and really set yourself up for a solid future. Then, you fall into caregiving and balancing the demands of career, caregiving and personal life seem nearly impossible. You can't focus while you're at work because you're so immersed in your caregiving role, your quality of work is starting to slip because you aren't as present and have to take more PTO time for appointments and caregiving emergencies & you may be afraid to let your supervisor/coworkers know about your situation for fear of possibly not getting that next promotion or opportunity that may arise. How can you possibly continue working full time and balancing it all - somethings gotta give. Well, I'm here to tell you, it's possible. Which is why I asked my special guest to come on the podcast to share how she has navigated her career and caregiving journey. Meet Jessica Guthrie, or as many of you may know her from Instagram, When Career & Caregiving Collide - a full-time, millennial caregiver, advocate, educator and non-profit senior executive. Jessica is the full time caregiver for her mother who was diagnosed with Early Onset Alzheimer's Disease seven years ago. For the first half of her journey, Jessica was caregiving from a distance while she worked in Texas and her mother lived in Virginia. After years of consistent travel she recently moved back home to live with her mother to ensure she received the most attentive care. Jessica deeply cares about amplifying the voices and experiences of millennial caregivers and shares how she navigates the complexities and rigors of the healthcare system while continuing to thrive in her career growth and intentionally balance her own self-care and wellbeing. Where to connect with Jessica:On Instagram - @careercaregivingcollideWhere we can connect:Join the Young Life Interrupted Facebook group: https://www.facebook.com/groups/younglifeinterruptedSubscribe to the podcast: https://podcasts.apple.com/us/podcast/young-life-interrupted-a-podcast-for-young-caregivers/id1578015965Connect with Adrienne on Instagram - https://www.instagram.com/younglifeinterrupted/Follow Adrienne on Facebook - https://www.facebook.com/younglifeinterrupted
In the 25th episode, Jay Allen a contestant on Season 22 of 'The Voice' joins Nathanael to talk about the struggle of losing his mother to Early-Onset Alzheimer's, his renowned song 'Blank Stare' which has raised over 100 million dollars to fight Alzheimer's, his blind audition, choosing to be on Team Gwen and his tattoos. Host: Nathanael Reyes Guest: Jay Allen https://linktr.ee/imnathanaelreyes Our hearts go out to anyone who is suffering or knows someone suffering from this disease. Please check out the link for more information and to donate. https://www.alz.org
Rayna Neises, ACC, host, reflects on her interview last week with Betsy Wurzel Sloan who was a caregiver for her husband who had Early Onset Alzheimer's. Betsy shared her experiences with her caregiving journey and explained that she gave herself permission to have Pity Parties. She also talked about the dying process. Rayna shares more on both important subjects: [1:30] Pity Parties are helpful and provide the opportunity to vent your feelings.[2:18] Self-Pity can lead to Self-Compassion.[3:40] There are many euphemisms for death and dying.[6:34] When you hear some of the key phrases, ask for an explanation and more questions.[7:15] The process of dying happens over an extended period.[11:25] One to three months before death, there are both emotional and physical changes. [12:37] One to two weeks before, things move faster.[13:37] Hospice can offer comfort through the dying process with medications for air hunger, pain, and anxiety.[15:42] Many physical changes happen in the final weeks of life.[17:20] Join the simple 5-Day Challenge to help you consider your self-care (September 19th – 24th). Sign up at www.aseasonofcaring.com/selfcarechallenge
Brain Talk | Being Patient for Alzheimer's & dementia patients & caregivers
Michele Hall was diagnosed with early-onset Alzheimer's in her early fifties. Deborah talks to her about the process of her diagnosis and her experience with Aduhelm. We rely on donations to bring you the latest research on dementia and brain health and to support our amazing team of independent journalists. Please consider donating to support of our mission of giving people impacted by dementia a better resource and connection to experts at the forefront of research. Our audience has grown so rapidly; we have exciting plans for the future to enhance our coverage even further but we need your help. Please consider making a contribution to help fund Being Patient's editorial costs. https://beingpatient.nationbuilder.com/ --------------------------------------------------------------------------------------------------------------- Stay connected on social media: To catch our Brain Talks live, join our Facebook page: https://www.facebook.com/beingpatient... To learn more about us, follow us on Instagram: @beingpatientvoices For the latest news on dementia research and lifestyle tips, visit our site: https://www.beingpatient.com/
This week, Rayna Neises, your host, speaks with Betsy Wurzel Sloan. Betsy is a retired nurse and teacher's aide who now has her own talk show. She is the caregiver for her special needs adult son, and she has helped her mother-in-law, father, and husband as they experienced Alzheimer's. Through the journey with her husband, Betsy feels that she found her gifts, power, and voice. She now works to raise awareness of Early Onset Alzheimer's with her mission to help no one walk the journey alone during caregiving or after. Betsy provides the following insights: (5:00) Live your life and enjoy it while taking your loved one out as much as possible.(5:41) It can be easy to sit in a heap and feel sorry for yourself, but that is not going to do you or anyone else any good.(7:11) With Alzheimer's, know that today is the best day you have, so go ahead and take advantage of that.(9:26) Self-care is not an option.(12:59) We need to validate and acknowledge our feelings and have a ‘pity party.'(14:19) Remember that it does not matter what other people think.(16:55) Knowledge is power.(18:25) You know your loved one so go with your gut instinct.(21:19) We all need to learn about the dying process.(25:13) Find Betsy's show, ‘Chatting with Betsy' on Spotify, Streaker, Apple, Pod Chasers, and join her Facebook group #KickAlzheimersAssMovement | Facebook(26:07) This episode was brought to you by ‘No Regrets: Hope for Your Caregiving Season.' Check out the special bundle, including a signed copy of the book, available for purchase at No Regrets: Hope for Your Caregiving Season - Rayna Neises: A Season of Caring.
Ask Win: http://ask-win.weebly.com. Please donate to Ask Win by going to Payment Venmo Win1195 at https://venmo.com/. Win Kelly Charles' Books: https://www.amazon.com/Win-Kelly-Charles/e/B009VNJEKE/ref=dp_byline_cont_book_1. Win Kelly Charles' MONAT: https://wincharles.mymonat.com. On Ask Win today (Wednesday, August 17, 2020), Best-Selling Author, Win C welcomes Betsy Wurzel. Betsy is a retired LPN and Teacher's Aide. Betsy is a mom of an adult son with a cognitive disability. Betsy didn't know she was an advocate for her son but she had to stand my ground for Josh to get what he needed. Betsy never heard about Alzheimer's until het mom in law was diagnosed in 2000. There wasn't much information at that time. Betsy took care of her mom in law for 5 years before she was placed. That was 5 difficult years. Betsy's dad also had Alzheimer's. In 2010, Betsy's husband Matt was diagnosed with Early Onset Alzheimer's. Matt's journey changed her life! Betsy became an advocate found her voice, gifts and my power! Betsy went in her car to do videos to raise awareness on Early Onset Alzheimer's. BetsyI talked about caregiving. Betsy showed Matt's journey. It was a battle from getting a diagnosis to receiving proper end of life care. In June 2018, Jeanne White, Station Manager of Passionate World Talk Radio saw one of Betsy's videos and asked Betsy for an interview! Jeanne asked Betsy to speak on her show. After 13 months, Betsy was given her own show. Betsy interview anyone about any topic! In February 2019, Betsy created and Founded #Kick Alzheimer's Ass Movement Group on Facebook. No one should ever walk this journey alone during caregiving or after caregiving! In November 2021, BetsyI was nominated and received the Caregiving Visionary Advocate Award from Caregiving.com. Betsy promised Matt that she would continue on with her work. Betsy's mission and vision is to help others by providing resources and to let people know they are not alone! To learn more about Betsy visit Support the show
Ask Win: http://ask-win.weebly.com. Please donate to Ask Win by going to Payment Venmo Win1195 at https://venmo.com/. Win Kelly Charles' Books: https://www.amazon.com/Win-Kelly-Charles/e/B009VNJEKE/ref=dp_byline_cont_book_1. Win Kelly Charles' MONAT: https://wincharles.mymonat.com. On Ask Win today (Wednesday, August 17, 2020), Best-Selling Author, Win C welcomes Betsy Wurzel. Betsy is a retired LPN and Teacher's Aide. Betsy is a mom of an adult son with a cognitive disability. Betsy didn't know she was an advocate for her son but she had to stand my ground for Josh to get what he needed. Betsy never heard about Alzheimer's until het mom in law was diagnosed in 2000. There wasn't much information at that time. Betsy took care of her mom in law for 5 years before she was placed. That was 5 difficult years. Betsy's dad also had Alzheimer's. In 2010, Betsy's husband Matt was diagnosed with Early Onset Alzheimer's. Matt's journey changed her life! Betsy became an advocate found her voice, gifts and my power! Betsy went in her car to do videos to raise awareness on Early Onset Alzheimer's. BetsyI talked about caregiving. Betsy showed Matt's journey. It was a battle from getting a diagnosis to receiving proper end of life care. In June 2018, Jeanne White, Station Manager of Passionate World Talk Radio saw one of Betsy's videos and asked Betsy for an interview! Jeanne asked Betsy to speak on her show. After 13 months, Betsy was given her own show. Betsy interview anyone about any topic! In February 2019, Betsy created and Founded #Kick Alzheimer's Ass Movement Group on Facebook. No one should ever walk this journey alone during caregiving or after caregiving! In November 2021, BetsyI was nominated and received the Caregiving Visionary Advocate Award from Caregiving.com. Betsy promised Matt that she would continue on with her work. Betsy's mission and vision is to help others by providing resources and to let people know they are not alone! To learn more about Betsy visit https://passionateworldtalkradio.com/chatting-with-betsy/.
Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer's. His is a unique perspective once the doctor diagnosing other people's cognitive issues and now the patient facing his own. Alzheimer's disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist's Personal Battle Against Alzheimer's Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early. In this episode, we discuss the value of testing for the Alzheimer's gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey. After the Podcast Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO Note: We are an Amazon Associate and may receive a small commission from book sales. Other authors/books mentioned: Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer's by Peter Berry and Deb Bunt Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know Tracey Shorthouse's Poetry Provides a Glimpse into Early Onset Alzheimer's Laurette Klier Creates Nana's Books: Nostalgic Picture Books for Seniors Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again Greg O'Brien, On Pluto: Inside the Mind of Alzheimer's Greg O'Brien, Psychology Today articles Columbia Kindred Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end) Connect with Dr. Gibbs Website *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
In this episode, Dr. Audrey Nath speaks with actress, producer, and Alzheimer's advocate, Lauren Miller Rogen. Lauren shares her mother's journey with the condition and how her caretaker experience inspired her to found HFC, a foundation with the mission to provide care and resources for families affected by Alzheimer's. Then, Dr. Nath speaks with Dr. Irina Skylar-Scott, a behavioral neurologist at Stanford University. Dr. Skylar-Scott provides listeners with additional information on the condition and tips on maintaining a healthy brain. Additional Resources: https://www.brainandlife.org/disorders-a-z/alzheimers-disease/ https://www.brainandlife.org/articles/seth-rogen-lauren-miller-rogen-alzheimers https://wearehfc.org/ Social Media: Guest: Lauren Miller Rogen @iamlaurenmiller @laurenmillerrogen Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Audrey Nath @AudreyNathMDPhD
In this episode, Virginia and Steve are joined by Cindy Weinstein, Ph.D., who co-authored a book with neurologist, Dr. Bruce Miller titled, Finding the Right Words: A Story of Literature, Grief, and the Brain. Dr. Weinstein talks about the guilt and grief she dealt with after her father was diagnosed with Early-Onset Alzheimer's Disease. She describes the challenges of being away from him while in graduate school, and the different strategies she used to stay connected and to manage her sadness.
Unconditional love. V Teamer Pat Brodde's journey to becoming her husband's caregiver after his Early-Onset Alzheimer's diagnosis.
Caring for someone with Alzheimer's Disease is a true challenge. Betsy has been there, done that, and has the experience to help guide you through the tough times. Betsy tells her story of how she was able to care for her own mother-in-law with Alzheimer's Disease, and she shares advice on how to get the support you need to care for your loved one. Betsy Wurzell is a retired Licensed Practical Nurse and Preschool Teacher's Aide. She is a mom to her son, Josh who is 37 and has special needs. She was also a caregiver for her mother-in-law for 5 years. She has never heard of Alzheimer's until her mom-in-law was diagnosed! Her husband Matt was diagnosed in 2010 with Early Onset Alzheimer's. Matt's journey changed her life. She became an advocate. She is the the creator and founder of Kick Alzheimer's Ass Movement group on Facebook. She beleives that no one should ever walk this journey alone during caregiving or after caregiving! Join me in this episode and learn why Betsy Wurzell is a Kickass Boomer! [00:01 - 08:57] Ask for Help When Memory Problems are Observed Alzheimer's was not mentioned as a disease back in the 1970s. Caregivers had to learn about the disease on their own. If your parents are still alive but their behavior is starting to change, it's time to take notice. People should get help for their loved ones as soon as possible if they start to have problems with their memory. [08:58 - 25:01] The Troubles of Alzhemier's and Dementia Early onset dementia is not well known and doctors are not yet aware of the disease, which can lead to depression. Contrary to popular belief, Alzheimer's can strike at any age. Alzheimer's changes personality and hallucinations can be a symptom of the disease. [25:02 - 34:49] Advocate for Those Who Need Help Sadly, there is the lack of care about the well-being of patients in hospice. It is important that we speak up about this issue and advocate for those who need help. Speak out and push for change in order to improve care for future patients. [34:50 - 38:59] Closing Segment Let's collect our voices to create change Connect with us! Links below Final announcements Tweetable Quotes: “There's no excuse for caregivers not to be educated. You have to do the work.” - Betsy Wurzell “This is not just an older person forgetting. This is dementia or Alzheimer's. This is serious. We've got to get him help so the more people can hear other people's stories, the better.” - Terry Lohrbeer “For us, boomers, we want change. We're going to make people change. We're going to fight so that when things happen, we're going to fight for the rights that we have and our loved ones have and we're going to be advocates.” - Terry Lohrbeer Email sloanbetsy31@gmail.com to reach out to Betsy Wurzell and check out her Facebook group and podcast Chatting With Betsy ----- BEE BOLD, NOT OLD. LEAVE A REVIEW and join me on my journey to become and stay a Kickass Boomer! Visit http://kickassboomers.com/ to listen to the previous episodes. Also check us out on Facebook, Twitter, Instagram, and LinkedIn. You can also connect with me by emailing terry@kickassboomers.com.