Podcasts about spinal muscular atrophy type

"I spent a lot of my life scared of is it my... mortality? I was scared a lot that I can't do things like everybody else, that I had to go hard or go home, 'die before you're 30 plan'. And then now I'm 28 and I'm like, 'Oh my God, I now need to save and do the big adult things.'" - Michaela Broderick. Welcome back to ListenABLE for 2024 where our first guest Michaela Broderick doesn't waste time to not only do the things she wants to do but her passionate and simple acts of advocacy that impacts the future of her community. With Spinal Muscular Atrophy Type 2 and her arms to be described as ‘decorative', Michaela's ‘get ready with me' involves not only a team of support professionals but the versatile tool that is her mouth that allows her to sew, cut, wrap presents, cook, do her makeup and so much more “boring adult stuff” that brings Michaela joy more than most.Dylan and Angus are also back and Dylan discovers something SHOCKING about Angus' past. "This is the episode, Big Bombshells. I'm coming in big with 2024" - Angus. Watch this episode with captions in 4K here: https://youtu.be/kE0eVbZzLYw Want to know more about Michaela? Check out her Instagram: https://www.instagram.com/rockinglife_withmj/ Join the 10,000+ legends on Instagram: @ListenABLE_ Podcast https://www.instagram.com/listenable_podcast/ Grab our first merch release at our website From Your Pocket https://fromyourpocket.com.au/work/listenable/merch Recorded, edited and produced by Angus' Podcast Company  https://fromyourpocket.com.au/See omnystudio.com/listener for privacy information.

In this episode, Brian interviews Ijay Swanepoel. Ijay has Spinal Muscular Atrophy Type 2 and suffers from this neuromuscular disorder that results in the loss of motor neurons and progressive muscle wasting. Rather than be discouraged by his own disabilities and challenges, Ijay uses his music project Stephen Gawking The Nuclear Lyricist to be a symbol of hope and inspiration to those who are disabled, different, oppressed, bullied, and everyone in-between.Ijay discusses his recently released song "Andria The Angelic" and the personal connection he has to it. He explains that the song is dedicated to his late sister and resonates with anyone who has experienced the loss of a loved one. Brian and Ijay delve into the songwriting process, the production experience, and the talented collaborators involved in bringing "Andria The Angelic" to life.Ijay opens up about his journey as an artist, sharing his passion for music and his aspirations to further his career in the industry. He expresses his love for live concerts and the energy they bring to both the performers and the audience. Brian and Ijay also touch on the topic of iconic musicians from history, discussing the impact they have had on the music industry and the lasting legacies they leave behind.They delve into the challenges of standing out in the digital age, where countless artists are vying for attention and recognition. Ijay shares his thoughts on what it takes to truly make a mark in the music industry and the importance of staying true to oneself as an artist. They also explore the possibility of achieving iconic status in today's music landscape and the factors that contribute to such a status.Overall, this podcast episode provides an insightful and engaging conversation between Brian and Ijay Swanepoel, shedding light on the personal and creative aspects of his song "Andria The Angelic" and his aspirations as an artist.Find Ijay Swanepoel here:https://www.facebook.com/NuclearLyricist/https://www.instagram.com/nuclearlyricist/https://www.youtube.com/channel/UCf8XP-TBa7BucjLwnjyYVzAFind CTMU here:https://linktr.ee/ConcertsthatmadeusNewsletter: https://concertsthatmadeus.aweb.page/p/f065707b-2e34-4268-8e73-94f12bd2e938If you would like to support the show you can do so by rating/reviewing us on Itunes and Spotify or by signing up at https://www.patreon.com/ConcertsthatmadeusSave 10% on Band Builder Academy membership by following this link https://bandbuilderacademy.com/Brian_Concerts/join and using promo code "concerts" at signup. Become a member at https://plus.acast.com/s/concerts-that-made-us. Hosted on Acast. See acast.com/privacy for more information.

Special Episode in Conversation with Kelly Gordon In this episode, James chats with the inspirational Kelly Gordon, Kelly is the Creative Director for the sex toy brand Hot Octopuss. Kelly Gordon is a 33 year old entrepreneur and consultant based in the West Midlands, UK. She has Spinal Muscular Atrophy Type 3 which is a genetic disability meaning for her, that she uses an electric wheelchair to get around. Kelly's condition is progressive and has meant that she has faced losing her ability throughout her life especially when her body faced big changes and challenges such as pregnancy.  From a young age Kelly was outspoken and never let anyone dictate what her disability meant or allowed her to do this has seen her go through mainstream schools, get into a lot of trouble at college and ultimately push herself through many exciting and predominately male dominated industries.   Kelly also regularly appears in mainstream media throughout the UK discussing issues that disabled people face and advocating for other disabled people. https://www.instagram.com/mskelgee/

Welcome back to the podcasr, today I have the incredible honour of speaking to Thembelihle Ngcai - an anthologised essayist whose passionate about inclusive education and disabled sex. We talked about Thembelihle's experience being diagnosed with Spinal Muscular Atrophy Type 3 and how it influences her work of inclusive education. We also talked about how non-disabled people can be better allies to the disabled community and the importance of normalising mental illness.    Follow Thembelihle on social media Twitter: Thembi_Lily.  Instagram: lily_ngcai. Facebook: Thembelihle Lily Ngcai. Check out my YouTube channel: youtube.com/simplysifiso and follow me @simplysifiso on Instagram and Twitter

This week's guest is K.L. Cleeton, a professional poker player and entrepreneur, who shares his experiences with Spinal Muscular Atrophy Type 1 as well as the mindset that is needed for overcoming challenges and impacting other people's lives. We talk about how he got started with poker and the success that came with it, as well as how he shifted his focus to building a platform that's helping poker players of all levels to improve and stay sharp. In this episode, K.L. Cleeton joins the show to discuss what mindset people need to set themselves up for financial success. Click here to get the full show notes and resources from this week's episode

Welcome to the Sex With My Ex podcast! TRIGGER WARNING: This week's episode mentions mental health and self harm. If you are struggling with this please reach out to one of these help lines, and know that we are sending you Big Love! K & J xWe are delighted to have Kelly Gordon on this week's episode.Kelly is a 33 year old entrepreneur and consultant based in the UK. She has Spinal Muscular Atrophy Type 3, a genetic disability, meaning that she uses an electric wheelchair to get around. Kelly's condition is progressive and has meant that she has faced losing her ability throughout her life. From a young age Kelly was outspoken and never let anyone dictate what her disability meant or allowed her to do. Kelly's current projects span from recruitment to working for forward thinking sex toy brand ‘Hot Octopuss'. She also works as a presenter and is the current host of Hot Octopuss's brand podcast Pleasure Rebels.She has also worked on projects for the BBC, Channel 4 and Virgin Media. Kelly has also co-founded the business "With Not For” with Emma Gardner. Kelly is a great sport and gets in amongst it during ‘Hot or Not', where we discuss dental woes, vibrators for Egypt and pesky dribbles (amongst other things).We discuss owning your truth, staying safe and using sexual encounters to deal with self-confidence when disabled - all on the journey to Kelly's sexual liberation.Kelly explains how she has owned her body and disability as an adult and had a great response once she did that when going back to dating.We discuss her work at forward-thinking and inclusive sex-tech company ‘Hot Octopuss' - a job she adores!She explains that Adam, their co-founder and CEO, has designed several of their toys based on his own needs and desires. (Link below)Johnson takes it upon himself to pitch Kelly the Jellymaker - the end result… Watch out for Hot Octopuss's International Johnson Day (perhaps even some temporary rebranding for the day)!As the conversation turns towards Men's Mental Health, Kelly's dear friend Tom is remembered. We of course send Big Love to all those affected by a very sad tragedy. Kelly has a project coming up, somewhat in his honour, so we will be sharing those details with you all!We adore our listener feedback section as always - giving out 6 extra entries to our Yoni Pleasure Palace Giveaway!! (Be sure to follow us on Instagram and subscribe to our newsletter to enter!)The perfect conclusion is reached as Kelly preaches owning your truth, embracing the journey and ‘just doing it'.We thought deeply, there were tears and we laughed so hard!It was a blessing to hang out with such an inspirational woman! Thanks Kelly! xCONNECT WITH KELLYInstagramOther LinksSTUFF WE MENTIONEDHot Octopuss - Sex Toys - 20% OFF WITH CODE: Pleasure20Yoni Pleasure Palace With Not ForCrave VesperCome and join our community of sex positive, eager to learn and beautiful listeners. Everyone is welcomeSubscribe here!WHERE TO FIND USOur Website InstagramTwitterFacebookYouTubePlease consider buying us a coffee to support the show and join our community of sexy Patrons by heading to our Patreon page.

Residence Inn by Marriott presents the 91st Episode of the Hondo Handy's Podcast. The podcast shares the journey of James Ian who was born with a degenerative muscular condition called Spinal Muscular Atrophy Type 3. James didn't let that slow him down. He still participated in sports and music. James is now a soulful singer, songwriter, and multi-instrumentalist. He attended Georgetown University and received in B.S. Marketing and Management and then went on to receive his Law Degree from Georgetown. His family has always been involved with singing. The played in a band during his early years and learned to play several instruments. He defies the odds on stage and in the studio. He continues to defy stereotypes of disabled people. The released of his world premiere of “SPACES! on November 9th has been a big hit. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

ONCE UPON A GENE - EPISODE 120 What Happens Now - Baby Boy is a Medical Miracle After Being Treated for Spinal Muscular Atrophy Type 1 with Kathryn Alexander Kathryn Alexander joins me for a part two segment to further discuss her unique rare disease experience. Through newborn screening, her son Connor was diagnosed with Spinal Muscular Atrophy (SMA). It's one of the five percent of rare diseases that has a treatment and her son is among the youngest to receive it. She highlights the fear, isolation and guilt she feels as she moves beyond treatment. EPISODE HIGHLIGHTS How did Connor's diagnosis and cure affect you emotionally? While you think you'd be relieved and thrilled to have a treatment so you could go on about your life, that wasn't my experience. He's living pre-symptomatically and he's able to do things that other children with his condition can't do, which is amazing. His therapy could last his whole life, but it also potentially couldn't. There are so many unknowns that it leaves me a nervous wreck and I don't have a sense of relief. I feel scared, confused and extremely isolated because no one else is in the position that I am. I also feel a lot of guilt that Connor received treatment when so many other children haven't. What advice do you have for parents who feel separated from the rare disease community? I like to practice the four A's- acknowledgement, acceptance, action and assessment. I think you have to abandon your definition of acceptance and redefine it for yourself. For me, acceptance is understanding something is true, it happened and it exists. Taking action helps me to feel like I'm making a difference, which helps me grieve, process and feel like I'm part of something even though I don't have a community of people around me who share my experience. This has helped me to make connections and has helped me in general. LINKS & RESOURCES MENTIONED Rare and Relatable on Discord https://discord.com/invite/7UFUPAFs8K ONCE UPON A GENE - Episode 119 - One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander https://effieparks.com/podcast/episode-119-kathryn-alexander ONCE UPON A GENE - Episode 090 - Mental Health and chronic stress with Rare Disease Dad and Psychologist Al Freedman, Ph.D https://effieparks.com/podcast/episode-090-rare-disease-dad-and-psychologist-al-freedman EveryLife Foundation https://everylifefoundation.org/ TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/

Briefing: Knowledge has power and controls access to opportunity and advancement. During this time, Liz Persaud will explore and share the collective role each of us plays in promoting successful independent living beyond the everyday “typical” environments for individuals with disabilities by recognizing and adapting to diversity, inclusion, awareness, and the powerful role of Assistive Technology (AT). As a professional in the AT community with personal experiences that have structured and informed everyday living, Liz will spend this time to reflect back, look forward, and share her incredible life journey along with some valuable lessons learned. Diagnosed at the age of 9 months old with Spinal Muscular Atrophy Type 2, Liz was not expected to live beyond the age of 2. Medical advice focused on institutionalization and stated that survival would not include access to education, socialization, and employment. Using hope as a catalyst for survival, Liz has and continues to defy all medical expectations. Now at the age of 42, Liz is a college graduate, married, and recognized on an international level for her work to promote independence and disability awareness through assistive technology. She is a nationally recognized public speaker and advocates for addressing the need to build bridges and solidify the gaps between individuals living with and without disabilities. Liz currently serves as the Program and Outreach Manager for Tools for Life, Georgia's Assistive Technology Act Program, at the Center for Inclusive Design and Innovation within the College of Design at the Georgia Institute of Technology. Liz also serves on the Board of Directors at NMD United, Inc., a non-profit organization composed of adults living with neuromuscular disabilities and provides outreach and raises disability awareness to numerous groups and organizations across the globe. Her passion lies within education about generations of adults growing up and living independently and successfully with childhood neuromuscular diseases. Liz is sought-after for her influential storytelling, shedding light on the power of assistive technology and its impact on the lives of individuals living with disabilities and their support circles and by educating on self-determination and advocacy with a focus on technology and disabilities. During Liz's time with you she will shed more light on disability culture, share information about attitudinal barriers faced by people living with disabilities, along with helpful tips, strategies, and solutions on how to overcome these barriers using tools like education, understanding and moving beyond tolerance towards acceptance. Join Liz as she shares positive outcomes that can occur when thoughtful communication, inclusion and awareness are integrated into the lives of each and every one of us in a collective community. --- Send in a voice message: https://anchor.fm/marsh-naidoo/message

On today's episode of #mensexpleasure, I chat with Kelly Gordon. Kelly is a 32 year old entrepreneur and consultant based in the West Midlands, UK. She has Spinal Muscular Atrophy Type 3 which is a genetic disability meaning for her, that she uses an electric wheelchair to get around. Kelly's condition is progressive and has meant that she has faced losing her ability throughout her life especially when her body faced big changes and challenges such as pregnancy. Kelly has two young sons, which is quite trying for any parent but absolutely loves parenting with her disability with help from her supportive partner Josh and her awesome team of PA's. From a young age Kelly was outspoken and never let anyone dictate what her disability meant or allowed her to do, this has seen her go through mainstream schools, get into a lot of trouble at college and ultimately push herself through many exciting and predominantly male dominated industries. Kelly now works as a consultant which allows her to dedicate her time to projects that truly excite her and allows her also to manage her time to ensure she has sufficient time with her young sons. Kellys current projects span from recruitment to working for forward thinking sex toy brand Hot Octopuss. Kelly also works as a presenter and is the current host of Hot Octopuss's brand podcast Pleasure Rebels, as well as this Kelly has also worked on projects for the BBC, Channel 4 and Virgin Media. Kelly also regularly appears in mainstream media throughout the UK discussing issues that disabled people face and advocating for other disabled people. Kelly has also co-founded the business "With Not For” with Emma Gardner. Kelly and Emma are working together on this project to not only get disabled people into work but to push disabled people into high paid and high power roles, ultimately getting them to boardroom level by embracing talent, confidence and reeducating big employers about the benefits of adding people with disabilities to their teams. The two of us talk about Kelly's experience as a disabled person as well as the intersection of disability and sexuality. Key Points: - Kelly shares some of her story - The novelty of sex toys - How Kelly's disability has impacted her sexuality - The extra layers of consent - The disability bubble - Stigmatization of wheelchair users - Sex toys for people with disabilities - Sex toys for flaccid penises - Advice for people with a disability Relevant links: Kelly's Instagram: @mskelgee Pleasure Rebels podcast: @pleasurerebels Cam's Patreon: https://www.patreon.com/thecamfraser

This week, our hosts Jennie and Damian chat with Kelly Gordon about loneliness and dating as a disabled person.  Kelly Gordon is a 32 year old entrepreneur and consultant based in the West Midlands, UK. She has Spinal Muscular Atrophy Type 3 which is a genetic disability meaning for her, that she uses an electric wheelchair to get around. Kelly's condition is progressive and has meant that she has faced losing her ability throughout her life especially when her body faced big changes and challenges such as pregnancy. Kelly has always been feisty and outspoken so you wouldn't assume she would find dating with a disability difficult but we learn that this wasn't always the case via a funny story about the lengths she went to on a date, hiding that she was a wheelchair user!This podcast looks at society's perception of disability and how this can impact disabled people in their disclosure of impairments.  This could be in the dating arena or in the workplace, which can ultimately lead to loneliness. 

I had the honour of chatting with Alex and Mark Starratt. Mark served as the Director of The Paralympic Foundation of Canada from 2015 until 2019. Mark and his wife Jennifer founded The Starrett Family Foundation in 2013. It was founded to raise awareness and funds for Neuromuscular research and to make the world more accessible to those with disabilities. Alex, Mark's son, is 12 years old and is diagnosed with Spinal Muscular Atrophy Type 2. He has starred in a Canadian Tire First Skate commercial as a young boy trying sledge hockey for the first time.

My thoughts on Covid while living with Spinal Muscular Atrophy Type 3. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/smainvisiblelife/support

What are some of the obstacles folks with disabilities might have when it come to sex? What are some tips for folks with disabilities to have more pleasure in their lives? Kelly shares this as well as her favorite sex toys for folks with disabilities.  About our guest: Kelly Perks-Bevington is a 32 year old entrepreneur and consultant based in the West Midlands, UK! She has Spinal Muscular Atrophy Type 3 which is a genetic disability meaning for her, that she uses an electric wheelchair to get around. Kellys condition is progressive and has meant that she has faced loosing her ability throughout her life especially when her body faced big changes and challenges such as pregnancy. Kelly has two young sons, which is quite trying for any parent but absolutely loves parenting with her disability with help from her supportive partner Josh and her awesome team of PA’s! From a young age Kelly was outspoken and never let anyone dictate what her disability meant or allowed her to do this has seen her go through mainstream schools, get into a lot of trouble at college and ultimately push herself through many exciting and predominately male dominated industries. Kelly now works as a consultant which allows her to dedicate her time to projects that truly excite her and allows her also to manage her time to ensure she has sufficient time with her young sons. Kellys current projects span from recruitment to working for forward thinking sex toy brand Hot Octopuss. Kelly also works as a presenter and is the current host of Hot Octopuss’s brand podcast Pleasure Rebels, as well as this Kelly has also worked on projects for the BBC, Channel 4 and Virgin Media. Kelly also regularly appears in mainstream media throughout the UK discussing issues that disabled people face and advocating for other disabled people. Kelly has also co-founded the business "With Not For” with Emma Gardner. Kelly and Emma are working together on this project to not only get disabled people into work but to push disabled people into high paid and high power roles, ultimately getting them to boardroom level by embracing talent, confidence and reeducating big employers about the benefits of adding people with disabilities to their teams! To learn more visit hotoctopuss.com/pleasure-rebels

SMA News Today’s multimedia associate, Price Wooldridge, discusses how sex, and the number of copies of the SMN 2 gene influence age of onset for Spinal Muscular Atrophy Type 3 patients. Also, DeAnn Runge shares Katie Napiwocki’s recent column, Keeping the ‘Wild Green Thorns’ of Advocacy Fatigue at Bay. Katie has an eloquent way of describing some of the struggles those with disabilities go through and the feelings that arise from those situations. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

Kelly Gordon is a 31-year old entrepreneur and consultant based in the West Midlands, UK. She has Spinal Muscular Atrophy Type 3 which is a genetic disability --  meaning that she uses an electric wheelchair to get around. Kelly is currently working with Hot Octopuss as their disability lead and is creating an inclusive space that gives advice and sells products to make sex easier and more exciting for those with limited mobility and disabilities. If you want to reach out to her:  https://www.hotoctopuss.com/ Mskelgee.co.uk @mskelgee  And if you’d like to find more shows, visit our website and please subscribe! We love our listeners and welcome your feedback. You can find us on Facebook and Twitter. Or you can write to us at this address. We can’t wait to hear your thoughts. As always, thanks for listening!  

SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi improving survival and motor development in infants with Spinal Muscular Atrophy Type 1. Forums Director Kevin Schaefer talks about managing his mental health and embracing the stillness. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

SMA News Today’s multimedia associate, Price Wooldridge, discusses why brain involvement in Spinal Muscular Atrophy Type 1 is still poorly understood. Also, DeAnn Runge talks about how she’s struggling to personalize her new chair. Right now she feels like it’s just another piece of equipment, but would like ideas on how to make it more unique to her. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

In this episode I had the privilege of interviewing Alex Johnston. Her son, Reign, was diagnosed with Spinal Muscular Atrophy Type 1 and they're on a race against time to fundraiser 3M dollars to see him receive a life-changing treatment not yet available in Canada. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

SMA News Today’s multimedia associate, Price Wooldridge, discusses the significant limits to treatment seen for a Spinal Muscular Atrophy, Type 0, baby. Despite feeling discontent DeAnn shares how she tries to look past what she can't do, focus on what she can and learns to be content with where she’s at. Are you interested in learning more about spinal muscular atrophy? If so, please visit https://smanewstoday.com/

Today’s special guest is K.L. Cleeton.Born with Spinal Muscular Atrophy Type 1, K.L. Cleeton of Southern Illinois, has played poker at some level for the last 10 years and has considered himself a professional for the last 2 1/2. In 2017, he won a contest from Daniel Negreanu and lived his dream of playing in the WSOP Main Event, ultimately cashing for $16,000. For the last year he has been coached by one of the best in the industry, former Chasing Poker Greatness guest Ryan LaPlante, and is a gladiator for one of the most prestigious backing groups in the world, Team651. In addition to playing, K.L. has been heavily involved in the launch and continued development of Ryan LaPlante's new tournament poker training site LearnProPoker. Never one to rest on his laurels, after being frustrated that there weren’t any resources designed specifically to help players learn and memorize ranges efficiently K.L., along with Matt McElligott, created and launched the app RangeTrainer Pro. Officially launched in early December, 2019 RangeTrainerPro has high hopes of becoming the go to tool for poker players of all levels to improve and stay sharp so they are always playing their A-game.In this episode, you’ll learn:- The mindset that will prevent you from ever achieving poker greatness. - Why deviating from your strategy without a solid foundation is a recipe for disaster.- Why K.L. believes “Range Trainer Pro” is the BEST tournament poker training software on the market for learning and memorizing ranges.- And much, much more.So, without any further ado, I bring to you the inspirational K.L. Cleeton.

Heather is a local disability activist, she discusses some of the struggles the disabled communities deal with on a daily basis. She also talks about the personal experience of growing up with Spinal Muscular Atrophy Type 3. Twitter Instagram

Living with Spinal Muscular Atrophy Type 3. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/smainvisiblelife/support

If you don’t laugh - you’ll cry….real life stories that you wouldn’t believe actually happened to one special needs family! This episode introduces us to the Vondrak family (Kennedi - age 14, Jaycie - age 12, and Bentley - age 9) from Northwest Iowa, who have had MORE than their fair share of difficult situations to deal with, including Spinal Muscular Atrophy - Type 2 diagnoses for all three daughters. The one constant for the Vondrak’s when dealing with too many pressures and serious moments, is Kari and Jesse’s ability to find humor in their experiences, even if sometimes it occurs between their tears.

In early 2017 Rachael and Jonny welcomed their first child into the world, a daughter named Mackenzie. But something was wrong, and at 10 weeks Mackenzie was diagnosed with the terminal genetic disease Spinal Muscular Atrophy Type 1. With 1 in 50 of us carriers of SMA, there’s a chance you or someone you know could be carriers. So why have we never heard of it?Speakers:Rachael CasellaDr Michelle Farrar, child neurologist at Sydney Children’s HospitalAlison McEwen, genetic counsellor and Associate Professor at the University of Technology SydneyProducer: Cheyne Anderson

What if you were told at the beginning of your life that you had no future? CRAIG V. ABBOTT was just six months old when he was diagnosed with Spinal Muscular Atrophy Type 1 which has a survival rate of two years.  This genetic disease causes loss of nerve cells in the spinal cord called motor neurons which affects the part of the nervous system that controls voluntary muscle movement. Craig V. Abbott survived his 22nd birthday and is now the oldest survivor living with Spinal Muscular Atrophy Type 1. BTC'S HOST KATHY BARRETT interviews CRAIG V. ABBOTT about how he has overcome this life challenge and about the story he so passionately wishes to share with the world.  His book, “Classified Terminally Ill: A Young Man’s Story of Beating the Odds," is in search of a publisher.    TUNE IN TO BE INSPIRED.  TUNE IN TO BE INFORMED.   Male Intro - Voice of Mitchell Geller   Night and The Theme Song Music performed, written and produced by Barbara Thies and Andrew Barrett

What if you were told at the beginning of your life that you had no future? CRAIG V. ABBOTT was just six months old when he was diagnosed with Spinal Muscular Atrophy Type 1 which has a survival rate of two years.  This genetic disease causes loss of nerve cells in the spinal cord called motor neurons which affects the part of the nervous system that controls voluntary muscle movement. Craig V. Abbott survived his 22nd birthday and is now the oldest survivor living with Spinal Muscular Atrophy Type 1. BTC'S HOST KATHY BARRETT interviews CRAIG V. ABBOTT about how he has overcome this life challenge and about the story he so passionately wishes to share with the world.  His book, “Classified Terminally Ill: A Young Man’s Story of Beating the Odds," is in search of a publisher.    TUNE IN TO BE INSPIRED.  TUNE IN TO BE INFORMED.   Male Intro - Voice of Mitchell Geller   Night and The Theme Song Music performed, written and produced by Barbara Thies and Andrew Barrett

What if you were told at the beginning of your life that you had no future? CRAIG V. ABBOTT was just six months old when he was diagnosed with Spinal Muscular Atrophy Type 1 which has a survival rate of two years.  This genetic disease causes loss of nerve cells in the spinal cord called motor neurons which affects the part of the nervous system that controls voluntary muscle movement. Craig V. Abbott survived his 22nd birthday and is now the oldest survivor living with Spinal Muscular Atrophy Type 1. BTC'S HOST KATHY BARRETT interviews CRAIG V. ABBOTT about how he has overcome this life challenge and about the story he so passionately wishes to share with the world.  His book, “Classified Terminally Ill: A Young Man’s Story of Beating the Odds," is in search of a publisher.    TUNE IN TO BE INSPIRED.  TUNE IN TO BE INFORMED.   Male Intro - Voice of Mitchell Geller   Night and The Theme Song Music performed, written and produced by Barbara Thies and Andrew Barrett

What if you were told at the beginning of your life that you had no future? CRAIG V. ABBOTT was just six months old when he was diagnosed with Spinal Muscular Atrophy Type 1 which has a survival rate of two years.  This genetic disease causes loss of nerve cells in the spinal cord called motor neurons which affects the part of the nervous system that controls voluntary muscle movement. Craig V. Abbott survived his 22nd birthday and is now the oldest survivor living with Spinal Muscular Atrophy Type 1. BTC'S HOST KATHY BARRETT interviews CRAIG V. ABBOTT about how he has overcome this life challenge and about the story he so passionately wishes to share with the world.  His book, “Classified Terminally Ill: A Young Man’s Story of Beating the Odds," is in search of a publisher.    TUNE IN TO BE INSPIRED.  TUNE IN TO BE INFORMED.   Male Intro - Voice of Mitchell Geller   Night and The Theme Song Music performed, written and produced by Barbara Thies and Andrew Barrett