Alopecia Connection

Episode 44- A New Gut Health Masterclass with Lisa Taylor!*Lisa Taylor is conducting a new masterclass on gut health this February 5th and February 12th, 2025.  This episode is a reposting of a previous interview with Lisa where she discusses the masterclass she offered in 2024.  Register for the upcoming course  today!"We need to learn to become the CEO of our own health, because the truth is we have way more power and way more agency in the trajectory of our  health than we are being led to believe."Lisa Taylor returns to Alopecia Connection to discuss her new masterclass, all about improving your gut health!  Register for Lisa's masterclass here: www.reversemyalopecia.comJoin Lisa's free Facebook Community: Alopecia Warriors for Holistic HealingLearn more about Lisa's self-healing programs: www.yourbestlifewithlisa.comSend us a textConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 43- Jennifer Gadosky & The Rocking Your Bald PodcastWe have a very special episode to start 2025!  Frank & Tommy are joined by Jenn Gadosky, host of the Rocking Your Bald podcast, to chat about our different perspectives on several alopecia topics.  This conversation will appear on both the Alopecia Connection and Rocking Your Bald platforms, albeit with slightly different edits.  Enjoy!Connect with Jenn!Instagram: @rocking_your_bald ; @nerdicuaSend us a textConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 42- Reuben Lane, Norwich United FC Goalkeeper!ALOPECIA AWARENESS MONTH 2024!On this special Alopecia Awareness Month episode Tommy and Frank welcome Reuben Lane, goalkeeper for the Norwich United FC!  Alopecia Connection is also pleased to announce that the show will be sponsoring Reuben for this 24'-25' season at Norwich United FC!Enjoy this interview where Reuben speaks about his alopecia journey which started at the age of 15!  Now 22, Reuben discusses how he has embraced his alopecia through charity runs, and playing sports.  He has remained a very confident individual, and enjoys raising alopecia awareness in all his endeavors.Here's to a great season for Reuben and Norwich United FC!Connect with Reuben!Instagram: @reuben.lane_Twitter: @iamreubenlaneConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 41- Tom Spencer"I feel like having (alopecia) gives you a little bit of grit.  Going through hard times in any situation in life, and you make it through and you're still here talking around, making jokes and stuff like that means you got a bit of grit in you.  You build on that grit the more you carry on.  That's not something you can buy, that's something you earn..."      On this episode of Alopecia Connect we welcome Tom Spencer, a former YouTuber who created impactful content advocating for alopecia in addition to being an ambassador for the charity, Alopecia UK. Tom shares his personal journey of living with alopecia and now focuses on mental health awareness. He is dedicated to highlighting the emotional challenges of hair loss from a male perspective, offering support and sharing his story to inspire others."Tom Talks Alopecia" YouTube ChannelConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

"It's my privilege to be the CEO of Alopecia UK. And because I have that lived alopecia experience from full hair to patchy through to the complete despair of the hairloss journey and now living very well with my alopecia... I feel, I hope that I am a good advocate and good role model because I can see it from multiple directions." On this episode of Alopecia Connection, we sit down with Sue Schilling, the incredible CEO of Alopecia UK. Sue shares her powerful and emotional journey of living with alopecia since childhood and how this visible difference has shaped her into a passionate advocate and leader for the community and this impactful charity. Her dedication to leading a team of devoted staff and volunteers has created a supportive network that transforms lives every day and truly doesn't stop. This heartfelt conversation highlights the incredible impact of community on both Sue's life and the lives of those affected by alopecia.This episode was particularly challenging to edit because the conversation was so enriching and insightful!Connect with Alopecia UK:Website: Alopecia UKInstagram: @alopeciaukFacebook: Alopecia UKEmail: info@alopecia.org.uk How to get Involved:https://alopecia.org.uk/donate/donatehttps://www.alopecia.org.uk/Listing/Category/volunteer-with-usResources:Parents: Advice for ParentsLiving Well: Living Well with AlopeciaMen's Guidance: Men's ResourcesConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 39-  TED Talks with Laura Mathias! (Part 2)"Finding those organizations was one thing, but actually lending my voice straight away to kind of the wider cause, that has become my support.  Meeting those people and giving myself that volunteer role, has also been how I... have healed and come to terms with everything."On this episode of Alopecia Connection, we're excited to bring part 2 of our chat with Laura Mathias. She's a U.K. based activist, Alopecia U.K. volunteer, ambassador, model, and influencer who shines a light on visible differences and acceptance through her alopecia journey.Laura recently hit a big milestone by giving a TED Talk in London, where she shared the impact of her journey and the importance of celebrating differences. Connect with Laura and hear her TED Talk!Instagram: @relightalopecia Linktree: RelightAlopeciaLaura's TED TalkConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 38- TED Talks with Laura Mathias! (Part 1)On this episode of Alopecia Connection, we're excited to chat with Laura Mathias. She's a U.K. based activist, Alopecia U.K. volunteer, ambassador, model, and influencer who shines a light on visible differences and acceptance through her alopecia journey.Laura recently hit a big milestone by giving a TED Talk in London, where she shared the impact of her journey and the importance of celebrating differences. Connect with Laura and hear her TED Talk!Instagram: @relightalopecia Linktree: RelightAlopeciaLaura's TED TalkConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 37- Dan Newman & BALDILOCKS!"So the story begins with alopecia, but really it's a story that carries right through to people trying to navigate through all sorts of adversities in life.  Adversity can bring a number of qualities.  It can help you develop a certain empathy and compassion for your fellow human being because you know what pain feels like..."On this episode of Alopecia Connection, Frank & Tommy welcome Dan Newman!  Dan is helping others heal by using his pain as his purpose.  BALDILOCKS is a movement where people suffering from hair loss can feel like they belong in the spaces they used to enjoy, such as barbers, spas and salons.  Dan wants to keep shiny people happy in his BALDIVERSE where he humorously and compassionately gets people to a place of self-acceptance and inclusivity.  BALDILOCKS is a symbol of how we can all find our glow again. Connect with Dan & BALDILOCKS!Instagram: @baldilocks.meLinktree: @baldilocksConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

36. Look Who's Back!  Coach Nick Returns to Alopecia Connection!"Coaching really pushes me to do that.  I can't tell the athletes that I work with, like you know, to keep working hard, never give up and be confident, if I can't do that."Two years after he appeared on the premier episode of Alopecia Connection, Nick returns to give us an update on what he's been up to, and how his alopecia journey has progressed.  Now coaching volleyball in both New Jersey and Florida, Nick chats about his passion for the sport and developing players.  Nick also talks about seeing fellow alopecian Alison Mann, @alison_mann (Alopecia Connection Ep. 22), around campus while they attended the same college, and the impact that had on his outlook!Connect with Nick!Instagram: @nikesp0 & @coachespo19Connection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 35- Alopecia Advocacy with NAAF's Gary Sherwood"It's been told to me so many times.  Women will say to me 'oh it's harder for me, men have it easy, because they can just go bald and it's not a big deal.'  And I have to correct them.  I say I've talked to enough men who have this disease, who have a lot of issues,  just as much as (women).  It's not easy for anyone, the gender doesn't matter.  It's really (about) the person."On this episode of Alopecia Connection, Frank and Tommy are pleased to welcome Gary Sherwood, Communication Director of the National Alopecia Areata Foundation (NAAF)!  Gary shares the history of NAAF, the organization's legislative advocacy, and answers questions on the upcoming 39th annual NAAF Conference, which will be held in Washington DC, June 27-30th!  Between this meeting, informational webinars, local support groups,  and fundraising walks, there's so many different ways YOU can get involved with NAAF!Connect with NAAF!Website: www.naaf.orgInstagram: @naaf_alopeciaFacebook: NAAFTwitter/X: @NAAF_orgYouTube: NAAFConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 34- Teen Talks: Mackenzie and Mom Lisa Embrace Alopecia"When I look back at pictures of me with hair, I use it as an example saying that was me and I was happy with who I was then, and I'm happy with who I am now.  And whether you make a small change or a big change to yourself, I think no matter what the right people around you will be happy about it, and I think that's all that really matters.  Because that's when you really find your real friends.  When a big change happens in your life, that's when you find who the right people are."On this episode of Alopecia Connection, Frank and Tommy welcome 15 year old Mackenzie, and her mother Lisa.  As you'll hear, Mackenzie is one of the most inspirational young people in the alopecia community.  Right from the beginning of her journey, Mackenzie and Lisa have promoted positivity and awareness of this condition by making and distributing over 3,000 silicone "Mackenzie Strong" alopecia awareness bracelets.  Despite having alopecia for a relatively short time, Mackenzie has already become an active role model for younger people with alopecia in her area.FUN FACT: Mackenzie is great friends with Austin, who appeared on Alopecia Connection Episode 26.  During this interview, Lisa discusses several organizations and groups that helped her as a parent of a child with alopecia.  These organizations included the National Alopecia Areata Foundation (NAAF), and the Children's Alopecia Project (CAP).  The Facebook groups that Lisa found particuarly helpful were Parents of Children with Alopecia Areata, and Children with Alopecia.Connect with Mackenzie & Lisa!Instagram: @kenzie_m715Connection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

33. Hitting the Road with Jeff Woytovich & the Children's Alopecia Project"Maybe you have a little boy that does not want to go to school without his baseball cap on, but he gets to camp and he starts hanging out with these other kids his own age.  They're not wearing a hat, so now he has a decision, do I keep my hat on and keep on playing, or do I take it off because they all have alopecia too?  Who cares?   And that's what it really comes down to.  They get to put themselves in that pecking order, as to where they're at too."On this episode of Alopecia Connection, Frank & Tommy are honored to have the founder of the Children's Alopecia Project (CAP), Jeff Woytovich, on to discuss all things CAP!  From the non-profit organization's beginnings, to the nationwide CAP Kid camps, ALOPECIAPALOOZA, school speaking tours, and a recent foray into podcasting, CAP's significant impact on the alopecia community is highlighted.Connect with Jeff & the Children's Alopecia Project!Website: www.childrensalopeciaproject.orgInstagram: @childrensalopeciaprojectFacebook: Children's Alopecia ProjectTwitter/X: @CAPKidAlopeciaYouTube: Children's Alopecia ProjectConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

32. "Whatever Trevor" with Author Caroline Ward (Part 2)On this episode of Alopecia Connection, Frank and Tommy speak with author Caroline Ward (@caroline__ward) about her alopecia journey and how it led to the creation of "Whatever Trevor," a children's book about living with alopecia.  Alopecia Connection has purchased several copies of "Whatever Trevor" and would love to send them to our listeners!  Simply message the show and we'll send you a copy today (while supplies last)!Connect with Caroline!Website: www.whatevertrevor.co.ukInstagram: @whatevertrevorbookConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 31- "Whatever Trevor" with Author Caroline Ward (Part 1)"Throughout all of lockdown I hadn't had a haircut, and my hair likes to grow really quickly, so I had really long hair.   I saw it one morning and I was like 'what!?' I just saw this thing, and it was a perfect little circle, and because it was a perfect circle, I was like 'that's not just a wide parting, there's something going on..."On this episode of Alopecia Connection, Frank and Tommy speak with author Caroline Ward (@caroline__ward) about her alopecia journey and how it led to the creation of "Whatever Trevor," a children's book about living with alopecia.  Connect with Caroline!Website: www.whatevertrevor.co.ukInstagram: @whatevertrevorbookConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Alopecia Connection Short: Alopecia UK Social EventOn this  Alopecia Connection Short, Tommy discusses attending the Alopecia UK Social held in London on February 3, 2023!  Tommy had the pleasure of meeting Laura Mathias (IG: @relightalopecia) among other incredible members of the UK alopecia community!Connect with Alopecia UK!Website: www.alopecia.org.ukFacebook: Alopecia UKInstagram: @alopeciaukTwitter/X: @AlopeciaUKConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 30- Get Ready for a Gut Health Masterclass with Lisa Taylor!"We need to learn to become the CEO of our own health, because the truth is we have way more power and way more agency in the trajectory of our  health than we are being led to believe."Lisa Taylor returns to Alopecia Connection to discuss her new masterclass, all about improving your gut health!  Register for Lisa's masterclass here: www.reversemyalopecia.comJoin Lisa's free Facebook Community: Alopecia Warriors for Holistic HealingLearn more about Lisa's self-healing programs: www.youbestlifewithlisa.comConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

FIRST JAK INHIBITOR SPECIFICALLY FOR ALOPECIA AREATA APPROVED IN THE UK!!Tommy and Frank discuss the breaking news that the National Institute for Health and Care Excellence (NICE) has made the decision to recommend the JAK inhibitor medicine ritlecitinib (Litfulo) for routine commissioning from the NHS.  This recommendation is for treatment of severe alopecia areata in patients aged 12 and over.Tommy shares his personal experience with the NHS, and how tremendous this news is for those in the UK with alopecia.  Congratulations to Sue Schilling and Alopecia UK for all their advocacy work regarding this decision!Connection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 29- Unveiling Purpose: Journeying Through Crohn's, Alopecia, and Self-Love with James Morrell*This episode contains significant mental health discussions and topics*"A few people, a few messages from a few guys here and there, everyday, it's been like 'you know what lad, you've made me realize that I can cry in front of my girlfriend.  I can talk, I can reach out.  I'm losing my hair lad, but I feel a little less alone, a little less stressed now cause I'm seeing you being a goofball on the internet, and you're showing us that it's fine.'  It's just another thing that's happening that we can deal with."On this edition of Alopecia Connection, meet James Morrell, a content creator and actor from England.  Prior to being diagnosed with alopecia, James developed Crohn's disease which dramatically impacted his life.  He became very ill, losing a significant amount of weight before adjusting to living with the disease.Since developing alopecia and Crohn's disease, James has become an advocate for those with these conditions, raising both money and awareness.  Mental health awareness has also been a focus for James, choosing to focus on the purpose we all have in our lives.Enjoy our conversation with James!Connect with James!Instagram: @jamesmorrell_TikTok: @jamesmorrell_YouTube: James MorrellTwitter/X: @jamesmorrell_Connection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 28- Samuel Picou, Using his "Voice" for Positive Change"Yeah, we can't forget about the power we have to choose.  We have a power and a choice to choose everyday, and we can make a good decision, we can make a bad decision.  It's hard at first, but when you start making those right choices, stick your chin up... push through the obstacle.  You're going to get the right results, and you'll be happy..."On this episode of Alopecia Connection, meet author, singer and songwriter Samuel Picou.  Samuel developed alopecia at the age of 2, and eventually gained national notoriety as a 15-year-old contestant on the NBC's The Voice, Season 5.  Samuel advanced all the way to the live audition in front of the celebrity judges.  Although he wasn't selected by the judges, this experience led to additional opportunities for Samuel, including being a keynote speaker at the annual National Alopecia Areata Foundation conference.  More recently Samuel has dedicated his energies to pastoral work in the Los Angeles area, becoming a beacon of inspiration and positivity.  Between mission trips, Samuel has also released his book "Beyond the Cover," which further details his journey of personal growth.  Enjoy our conversation with Samuel and check out "Beyond the Cover!"Connect with Samuel!Instagram: @samuelcpicou"Beyond the Cover" on AmazonConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 27- With A Little Help From Her Friends, Erika M."Where you are now isn't where you will always be, and where you were yesterday isn't where you need to be tomorrow.  Knowing that you have the ability to change things if you want is so powerful.  In a disease that can really make you feel so powerless that is so important, because even though the situation won't change, tomorrow you're going to wake up and still going to be bald... your outlook on it can and will."On this episode of Alopecia Connection, meet Erika, an amazing women with a powerful story of how friends can make such a difference in our lives.  Erika developed alopecia as a young women, going through all the emotional and physical impacts.  After making the decision to shave her head, Erika's friend Cynthia accompanied her to the hairdressers to provide support.  There Cynthia sat in the chair next to Erika and told the stylist to "giver her what she's having," and proceeded to have her head shaved as well!  What an incredible friend, to show such support in this way.  They remain best of friends years later, with Erika even being chosen as the Godmother to Cynthia's daughter.  Erika shares other stories of her amazing friends supporting her in this alopecia journey.  Erika is also quite a culinary master,  taking on a challenge to cook a dish from every country in the world!  She documents this on a dedicated instagram account, @globalkitchenadditction.  Connect with Erika!Instagram: @e_marohnInstagram: @globalkitchenaddictionConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 26- Texas, Football, and Alopecia with Austin K."It was never emotionally hard on me, because I never really saw it in the aspect of 'this is bad or this isn't good...'  I always just saw it as 'this is me."The first episode of Alopecia Connection in 2024 features Austin, a young man from Texas, who developed alopecia at 6 months old.  Interestingly, Austin has an identical twin brother who does not have alopecia.  Together these siblings like to create comedic, prank, adventure videos to hopefully lighten people's days, and promote positive outlooks.    Austin also enjoys playing football and baseball, which has helped him continue to be an amazing, confident guy!Enjoy our conversation with Austin!Connect with Austin!Instagram: @austin_krall10TikTok: @austinkrall0YouTube: Axtro AussieLinktree: @axtroaussieConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 25- Alopecia Connection Year in Review!On this year-end episode of Alopecia Connection, Frank & Tommy take a look back on 2023 and reflect on the positive developments that have occurred for the show.  They discuss the most popular episodes of the year, their meetups, advocacy work, and what they would like to see for the podcast in the new year!Alopecia Connection would love to thank all the listeners for their support this year!  Wishing everyone an amazing 2024!Enjoy the show!Connection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 24- Giving Back with Rodney Eldik"...so now  if I have my family, I have my friends, I can tackle this (alopecia).  And that was a big moment for me, that's when I was really able to push through.  You know, as I got older, I stopped even wearing hats.  Now even sharing our story,... I'm very proud to be in a position where I feel like I'm comfortable to talk about that.  Help other people while doing it hopefully, that's really my aim here..."On this episode of Alopecia Connection meet Rodney Eldik, the owner and operator of Armour Shield Roofing, which serves the GTA in Ontario, Canada.  Rodney loves to support his local community by often helping distribute meals to those in need.  He joins Frank & Tommy to shares his experience of developing alopecia as a teenager, and how that impacted his youth and college experience.  Rodney is incredibly positive and has some interesting thoughts on what he would tell his younger self if given the chance!Enjoy our conversation with Rodney!Connect with Rodney and watch his "My Alopecia Story" video series through his social media accounts!Instagram: @rodney.eldikTwitter: @rodneyeldikConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 23- Living in the Moment with Author George Jreije"I find that folks that I meet who have alopecia or similar conditions tend to look at the world with a different perspective.  I sure do.  So it was ultimately for the benefit I think.  Folks always ask me today, they're like 'if you could take a pill that eliminates this condition and you regrow everything, would you?' and I say absolutely not..."Frank and Tommy welcome author George Jreije on this episode of Alopecia Connection!  George shares his alopecia journey, which started as a young man, and developed into alopecia universalis during college.  George has an amazing perspective on alopecia, and honestly life in general.  George has found publishing success with his Shad Hadid series,  the first being Shad Hadid and the Alchemists of Alexandria.  The follow up novel, Shad Hadid and the Forbidden Alchemies, was recently released and available wherever books are sold.Enjoy our conversation with George!Connect with George!Instagram: @bygeorgejreijeTwitter: @bygeorgejreijeWebsite: www.georgejreije.comConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 22- Alison Mann,  Coaching and Therapy for Hair Loss"I feel like I have a much fuller view of what body image mental health looks like, and it's not just your stomach, your legs, your arms; it's also your hair, your facial hair, your eyebrows, your eyelashes.  And that was something clearly not a lot of professionals knew about, because when you get diagnosed with alopecia it's never part of the conversation to be like 'Hey here's support you can get for the emotional impact of it.'  That doesn't exist."On this episode of Alopecia Connection, Frank & Tommy welcome Alison Mann, an inspiring therapist and wellness coach, specializing in body image and alopecia!  Alison shares her story of developing alopecia at a young age, the world of competitive gymnastics, and her turn towards helping others with the emotional impact of alopecia.  Through her own experience with alopecia, Alison identified a gap in emotional support options available for those experiencing alopecia.To help address this need, Alison has developed her own practice, Aid By Ali, where she offers professional therapy services for those residing in New York State, and coaching for those elsewhere.  Her collection of therapeutic journals gives another avenue for those looking for support, or for help in processing their experience.  If all that wasn't enough, Alison also offers a free virtual monthly support group!Thank you so much for joining us Alison!  Connect with Alison!Website: Aid By AliInstagram: @aidbyaliWebsite: Alison MannInstagram: @alison_mannConnection is everything!Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 21- Bald Villains in Pop Culture (Halloween Special)On this episode of Alopecia Connection, Frank & Tommy discuss the prevalence of bald villains in pop culture, whether in movies, television, or literature.  This topic was inspired by a recent journal article that qualitatively examined the prominence of hairless villains compared to their protagonist counterparts.  Why does this trend exist?Frank & Tommy discuss some of the more famous bald villains in history, as well as their favorite horror movies and personal plans for Halloween!Alopecia Connection also reflects on a very busy September, Alopecia Awareness Month!Enjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 20- John, Clinical Trials & the Power of PositivityOn this episode of Alopecia Connection meet an amazing man named John.   A native of New York City, John  discusses developing alopecia later in life, and how that impacted his life.  Despite trying to remain positive through his diagnosis and progressing alopecia, John sought support through the Alopecia Areata Facebook Group, and eventually found regrowth through participation in the CT-543 clinical trial.John is now an admin for the Alopecia Areata Facebook Group, and continues to spread his positivity and support to others in the community.      Connect with John!Alopecia Areata Facebook GroupInstagram: @kasparsportEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 19- Actor Anthony Carrigan, Alopecia Awareness Month (Part 2)"This experience that can feel so alienating, so much that you feel like no one really understands what it's like to be seen in this way, (and) no one understands what it's like to have this sudden drastic change.  There are, so many people have gone through it, and are going through it, but so many people have got to the other side of it, where they're just like 'oh ya, I get it.'"This is Part 2 of our special Alopecia Awareness Month edition of Alopecia Connection, with Emmy nominated actor Anthony Carrigan!You might recognize Anthony from hit TV shows such as HBO's Barry, and FOX's Gotham, or the films Bill & Ted Face the Music (2020) and Fatherhood (2021).  Since this interview took place, the 4th and final season of Barry has been released.  From Boston, Massachusetts, Anthony began developing alopecia areata at the age of 3.  He describes how stares from strangers made him feel "exposed," leading Anthony to cover his patches as best he could.  Through acting, Anthony finally found an outlet where he truly felt he could express himself.  Having successfully managed alopecia with his early acting career, Anthony's alopecia areata began developing into alopecia universalis while filming his first TV show.  His new situation created several challenges but ultimately, as Anthony describes, opened new opportunities and perspectives to go along with his award recognizing Hollywood performances!   *This interview was recorded prior to the 2023 WGA-SAG/AFTRA strikeConnect with Anthony!Instagram: @carriganagainEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 18- Actor Anthony Carrigan, Alopecia Awareness Month (Part 1)"... when I first got onstage, I actually felt like I could be anyone and I could actually just express this part of myself that had been kind of... too timid to actually be seen in the world.  When I got onstage it was like I had this freedom to be whoever, to do whatever..."On this special Alopecia Awareness Month edition of Alopecia Connection, we are pleased to bring you a conversation with Emmy nominated actor Anthony Carrigan!You might recognize Anthony from hit TV shows such as HBO's Barry, and FOX's Gotham, or the films Bill & Ted Face the Music (2020) and Fatherhood (2021).  Since this interview took place, the 4th and final season of Barry has been released.  From Boston, Massachusetts, Anthony began developing alopecia areata at the age of 3.  He describes how stares from strangers made him feel "exposed," leading Anthony to cover his patches as best he could.  Through acting, Anthony finally found an outlet where he truly felt he could express himself.  Having successfully managed alopecia with his early acting career, Anthony's alopecia areata began developing into alopecia universalis while filming his first TV show.  His new situation created several challenges but ultimately, as Anthony describes, opened new opportunities and perspectives to go along with his award recognizing Hollywood performances!   *This interview was recorded prior to the 2023 WGA-SAG/AFTRA strikeConnect with Anthony!Instagram: @carriganagainEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 17- Rebecca Saunders & The Champagne Lounge"I never really embraced (being) completely hair free until 18 months ago, so the journey has been a long one, it was 25 years of having alopecia...""Something had to give, and it was the wig... everything changed overnight."On this month's episode on Alopecia Connection meet Rebecca Saunders, owner of a worldwide video production company, creator of The Champagne Lounge, and podcast host of The Rebecca Saunders Show!At the age of 22, Rebecca bought a one-way plane ticket to Australia.  With little to her name, Rebecca sought to fulfill a dream of permanently residing in Australia.  This led to the creation of her video production company.   Like many businesses, Rebecca's production company was impacted by the COVID pandemic, but the unique situation eventually led to new heights for the company.  This success also coincided with Rebecca's decision to ditch her wig after 25 years!Alopecia Connection would like to thank Rebecca for joining us and sharing her story!Listen to The Rebecca Saunders Show!Apple PodcastsSpotifyConnect with Rebecca!Website: RebeccaSaunders.comInstagram: @therebeccasaundersFacebook: @therebeccasaundersYouTube: @therebeccasaundersLinkedin: @therebeccasaundersEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 16- Nicolas Roman Srut, the Naked Confidence Campaign"... and that's the brilliance of alopecia,  and acceptance of alopecia.  Does it really not matter to you what people think?  And if you can say yes, what's to fear?  There's nothing!"On this month's episode of Alopecia Connection, meet Nicholas "Nico" Srut, an author, comedian, motivational speaker, and founder of the Naked Confidence Campaign.  From Houston, TX, Nico describes developing alopecia at a young age and how that shaped his life.Over the past couple of years, Nico has established an enormous following on social media, where he shares his hilarious viral videos.  It's not uncommon to see him using plungers, suction cups, dry erase markers, and colorful wigs to create laughs!Thank you Nico for sharing your story with Alopecia Connection!Where to find Nico!Instagram: @xtheromanempireYouTube: @TheRomanEmpireTikTok: @xtheromanempireSnapchat: The Nicolas Roman ShowEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 15- Deeann Graham, Alopecia Life Podcast"...you're going to meet the most amazing people, and more than anything, you're going to find our things about yourself that would have never been possible without alopecia..."This month we are pleased to introduce you to Deeann Graham (IG: @alopecialifecoach), alopecia advocate and host of the Alopecia Life podcast!  Deeann's journey with alopecia began at the age of 7, and went through several periods of hair loss and regrowth.  In addition to her podcast, Deeann also produced a book, "Head-On, Stories of Alopecia," which profiles inspiring people with alopecia and their experiences.  Deeann has helped coach individuals with alopecia, and additionally developed several online resources for those in the community.  Through her time coaching in the alopecia field, Deeann saw the need for materials specifically designed for parents of children with alopecia.  She discusses this process during our conversation.Other highlights include Deeann describing her time at the National Alopecia Areata Foundation conferences, including being a featured speaker at the 34th Annual NAAF Conference.Finally, Deeann discusses her experience volunteering for the Children's Alopecia Project (CAP) and provides information on the organization's annual "Alopeciapalooza" event.Connect with Deeann and the Children's Alopecia Project!Alopecia Life WebsiteAlopecia Life LinktreeChildren's Alopecia ProjectEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 14- Sam Macgregor, "Truly, Madly, Baldy" At The Edinburgh FringeThis is a very special episode of Alopecia Connection,  featuring actor Sam Macgregor (IG: @samhazamacg), who started developing alopecia in 2019.  Sam has taken his experiences and developed a stage production titled "Truly, Madly, Baldy," which will be performed at the famous Edinburgh Fringe festival during the month of August.  Help Sam Bring "Truly, Madly, Baldy" to the Edinburgh Fringe!GoFundMeGreenLit (includes a video by Sam)"Truly, Madly, Baldy" PressBBC Radio InterviewChronicle Live Article- "Heaton writer and actor's first play based on his experience with alopecia to debut at Edinburgh Fringe"Alopecia UK- "Alopecia Awareness Funding Award Success for Sam!"Connect with Sam!Instagram: @samhazamacgTwitter: @SamMacGregor1Enjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 13:  Ethan's Alopecia Awareness'I haven't had hair in over 6 years.  I've been strong about it.  I always try to put my best foot forward, stay confident, and always stay true to who I am...'On this episode of Alopecia Connection meet Ethan (IG: @ethans_alopecia_awareness), a truly inspiring young man who developed alopecia in the 5th grade.  Now in boarding school, Ethan has fully embraced his condition and created a 501c3 charity to bring awareness to alopecia and help those in the community.Wes (Ethan's father) is also present in the interview and gives advice as a parent of a young person with alopecia.  Together they share several anecdotes regarding Ethan's personal growth over the past couple of years.Following the discussion with Ethan and Wes, Tommy (Episode 8) joins the show to discuss the interview and  together we announce major news regarding the future of Alopecia Connection! Ethan's Alopecia Awareness WebsiteEnjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 12: Alopecia Warriors Program with Lisa Taylor, Gut Health CoachOn this episode of Alopecia Connection meet Lisa Taylor (IG: @yourbestlifewithlisa), an integrative nutrition gut health coach from Ontario, Canada.  Lisa discusses her 2016 alopecia diagnosis and work with a naturopathic doctor.  This experience caused her to completely rethink her personal nutrition and lifestyle.  Following this gut health focus, Lisa eventually experienced full hair regrowth.  Along with her hair, this newfound focus changed the trajectory of her career as Lisa decided to begin helping others repair their own gut health.    Join Lisa's Facebook Community- Alopecia Warriors for Holistic HealingLearn about private transformational coaching in Lisa's Alopecia Warrior programJoin the waitlist for Lisa's next group program- Alopecia Warrior Healing CollectiveLisa's website- https://www.yourbestlifewithlisa.com/Enjoy the episode! Remember to rate, review, subscribe and share!Alopecia Connection Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 11: Brandi, JAK Inhibitors for Alopecia Facebook Group'My mother noticed a spot when I was 18 months old…' Brandi has been navigating her alopecia even before she can remember; deeming herself a ‘lifer' with this condition. In this episode, she bravely shares her story of navigating this illness detailing numerous doctors visits, steroid injections, hair toppers, and the mental health battle we all know too well. It's safe to say that after all the hardships of trial and error comes Brandi's new lease on life as of 2021.  Having been introduced to JAK Inhibitors via a medical trial in the U.S., Brandi has not only had success with the medication but has also regained confidence by supporting fellow alopecians on the JAK Inhibitors for Alopecia Facebook group.  She has been an admin for the past year and half and shows no signs of slowing down…We are delighted to share Brandi's story and be joined today by Tommy (IG: @travelingputtputt, Alopecia Connection Episode 8) who discovered JAK Inhibitors from this Facebook Group. Enjoy the episode! Remember to rate, review, subscribe and share!Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 10- Angel Rosario Jr.This month Alopecia Connection features actor Angel Rosario Jr!  Hailing from Chicago, Angel discusses his journey with alopecia as well as how it has influenced his acting career.  Interestingly, pro wrestling also played a part in his story, as both an outlet from alopecia and as an avenue into acting.  Angel shares a bunch of anecdotes from his time filming projects such as the Winchesters pilot for The CW, DC's Black Adam, Netflix's Cobra Kai (S5 E2), and MacGruber on Peacock.  Angel, we really appreciate the time you spent with Alopecia Connection, and thanks for being such a positive figure in the alopecia community!See Angel in the previously mentioned projects as well as:Tulsa King (Paramount +)Mayans M.C. (FX)Law & Order: SVU (NBC)Clown Shoes (Short Film)Chicago Med (NBC)Angel's SocialsInstagramTwitterEnjoy the episode! Remember to rate, review, subscribe and share!Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 9- Mikayla, NAAF Conference 2022This episode of Alopecia Connection highlights Mikayla, a young woman from upstate New York  who originally developed alopecia at the age of 13.  Mikayla has since become quite involved with the National Alopecia Areata Foundation, attending the Legislative Hill Day in 2019 and most recently the 2022 NAAF Annual Conference in Washington, DC.Mikayla has contributed as a legislative liaison, and also in the mentor program for young children with alopecia.  She has conducted several fundraisers for NAAF as well.Amazing work for alopecia awareness! National Alopecia areata FoundationAlopecia Justice LeagueAlopecia Connection New Year Giveaway!!We've partnered with the Baldin on a Budget to give away some winter beanies for the New Year!To be entered in for a chance to win:(1) Follow Alopecia Connection AND Baldin on a Budget on your favorite social media platforms,(2) Rate & review Alopecia Connection on wherever you listen to the show.  Screenshot the review and send to Alopecia Connection along with the...(3) Answer to the question: Mikayla is a member of an organization that helps raise alopecia awareness and advocates for medical insurance companies to cover the costs of hair systems.  What is the name of this organization?Complete these three items and be entered into a chance to win a winter beanie from Baldin on a Budget!  Giveaway is open from 1/1/23-1/31/23, with winners being drawn and notified in early February!  Good luck!Enjoy the episode! Remember to rate, review, subscribe and share!Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 8- Tommy H., JAK InhibitorsOn this episode of Alopecia Connection we speak with Tommy (IG: @travelingputtputt), an American from Maine, who's been living and working in London for several years now.  Tommy developed alopecia universalis less than a year ago, and has recently starting using JAK inhibitors, with some success already!  Tommy's Metro UK Article: https://metro.co.uk/2022/09/25/i-lost-100-of-my-body-hair-in-the-space-of-6-months-17433809/Enjoy the episode! Remember to rate, review, subscribe and share!Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 7- Let Me Be Frank With YouOn this month's episode  of Alopecia Connection, Frank talks directly about his personal experiences with alopecia.  From developing alopecia universalis at the age of 17, to starting this podcast, he describes the rollercoaster ride that is this autoimmune condition.  Ryan M. from Alopecia Connection Episode 4 joins Frank to discuss this and all things alopecia!Enjoy the episode! Remember to rate, review, subscribe and share!Linktree Alopecia Connection Website*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 6- Mike S.On this episode of Alopecia Connection we have Mike (right4type@gmail.com).  Mike is 58 years old, lives in Toronto, Ontario, and has had alopecia since the age of 27.  We discuss his journey, perspectives on dating with alopecia, and Vitamin D as it relates to alopecia and living in the northern hemisphere.  Enjoy the episode! Remember to rate, review, subscribe and share!LinktreeWebsite*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that. Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 5- Michael, MC Squared 90On this episode of Alopecia Connection, Frank interviews Michael, a hilarious content creator on both Instagram (@mc_squared90) and TikTok (@mcsquared90).  Michael discusses his alopecia journey, gaming, drumming, and also gives some behind the scene information on how he creates those funny gamer skits.  Michael often gets asked about his appearance and regularly spreads alopecia awareness to his millions of followers.Michael provides an incredibly positive attitude regarding alopecia, self-image, and spreading kindness.If you haven't seen Michael's content, make sure to check it out!Michael's SocialsInstagram: @mc_squared90TikTok: @mcsquared90YouTube: MC Squared90Linktree: MCSquared90Burned in BrailleWebsite: burnedinbraille.com

Episode 4- Ryan M., FMT Clinical TrialsOn this month's episode of Alopecia Connection we have Ryan.  During the interview Ryan details his alopecia journey and research into FMT clinical trials for people with alopecia.  Gut health is discussed, and how it could possibly be related to various autoimmune issues.Enjoy the episode!  Remember to rate, review, subscribe and share!   Show Links:Boston Children's Hospital- FMTJohn Hopkins Medicine- FMTHarvard Medical School- Gut Health Immunity"Hair Growth in Two Alopecia Patients after Fecal Microbiota Transplant"- ACG Case Reports JournalClinicalTrials.govTufts Medical Center- Hair Loss ClinicDermatology News- "Microbiome: Gut dysbiosis linked to development of alopecia areata""What's New in the Pathophysiology of Alopecia Areata? The Possible Contribution of Skin and Gut Microbiome in the Pathogenesis of Alopecia- Big Opportunities, Big Challenges, and Novel Perspectives"- International Journal of TrichologyOpenBiome- Cambridge, MA*Discussions on Alopecia Connection are from the personal perspectives and experiences of its host and guests, and should be considered that.  Any personal medical decisions should only be made after consultation with one's health care provider.

Episode 3- Matt KeefeOn this month's episode of Alopecia Connection, meet Matt Keefe.  Developing alopecia around the age of 5, Matt discusses his journey with the condition, including his appearance on the "Today Show," and his involvement with Links for Locks, a golf tournament that raised over $100,000 for the National Alopecia Areata Foundation (www.naaf.org).  At the time, this was a greatest single fundraiser in the history of NAAF.  Matt brings a tremendously positive alopecia attitude to the the show, providing great perspectives on living with the condition.    Enjoy the episode!  Remember to rate, review, subscribe and share!   

Episode 2- Jason Berndt, founder of My Two Brows.On this month's episode of Alopecia Connection, we have Jason Berndt, the founder of My Two Brows (https://www.instagram.com/my_two_brows).  Jason joins the show to discuss his journey with alopecia, including thoughts on some recent regrowth he has been experiencing.  Jason also talked about the development of his temporary eye brow tattoos for those experiencing alopecia, chemotherapy, trichotillomania, and hashimoto's disease.When visiting My Two Brows (https://mytwobrows.com), use promo code "Frank25" at checkout for a special Alopecia Connection discount!Enjoy the episode!  Remember to rate, review, subscribe and share! 

Episode 1 - Nick E., The OscarsToday we have Nick (https://www.instagram.com/nikesp0/).  He is 23 and from New Jersey, developing alopecia at the age of 17.  Nick discusses his early experiences with alopecia and shares where his journey has taken him.  This interview took place the day after the 2022 Oscars, so naturally Jada Pinkett Smith, Will Smith and Chris Rock are discussed.Enjoy the episode!  Remember to rate, review, subscribe and share! 

Living with alopecia universalis for over 20 years, hear Frank describe the "why" behind creating this podcast and what to look forward to soon from Alopecia Connection!  Connection is everything!Instagram: https://www.instagram.com/alopecia_connection/